Journal articles on the topic 'National administrative data collections'
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Hall, J., B. Arheimer, G. T. Aronica, A. Bilibashi, M. Boháč, O. Bonacci, M. Borga, et al. "A European Flood Database: facilitating comprehensive flood research beyond administrative boundaries." Proceedings of the International Association of Hydrological Sciences 370 (June 11, 2015): 89–95. http://dx.doi.org/10.5194/piahs-370-89-2015.
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Abstract. The current work addresses one of the key building blocks towards an improved understanding of flood processes and associated changes in flood characteristics and regimes in Europe: the development of a comprehensive, extensive European flood database. The presented work results from ongoing cross-border research collaborations initiated with data collection and joint interpretation in mind. A detailed account of the current state, characteristics and spatial and temporal coverage of the European Flood Database, is presented. At this stage, the hydrological data collection is still growing and consists at this time of annual maximum and daily mean discharge series, from over 7000 hydrometric stations of various data series lengths. Moreover, the database currently comprises data from over 50 different data sources. The time series have been obtained from different national and regional data sources in a collaborative effort of a joint European flood research agreement based on the exchange of data, models and expertise, and from existing international data collections and open source websites. These ongoing efforts are contributing to advancing the understanding of regional flood processes beyond individual country boundaries and to a more coherent flood research in Europe.
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Wateren, Jan van der. "The National Art Library: into the 1990s." Art Libraries Journal 15, no. 4 (1990): 12–18. http://dx.doi.org/10.1017/s0307472200006994.
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The National Art Library, at the Victoria & Albert Museum in London, seeks to fulfil its national role by becoming the focal point of a wider network of libraries. In order to support this role, and to carry it forward into the 1990s, the Library has redesigned its management structure, developed a role as a training library for the art library profession, and applied a professional approach, involving the collection and consideration of management data, to the Library’s administration. Collection development has been redefined, shifting the emphasis from the past to the present; this has resulted in an increased intake of material, in spite of a frozen budget, with a consequent need for more space which will be provided through a reorganisation of the Library’s existing accommodation. A plan for the conservation of items in the Library’s collections is being devised. Automation, installed in 1990, brings with it further possibilities and the critical question of whether to prioritise the development of the collections or the development of access to the collections.
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CHAMBERS, Georgina M., Stephanie K. Y. CHOI, Katie IRVINE, Christos VENETIS, Katie HARRIS, Alys HAVARD, Robert J. NORMAN, Kei LUI, William LEDGER, and Louisa R. JORM. "ANZARD Data Linkage – Agreement Between Births Recorded by Clinics and in NSW Perinatal Data Collection." Fertility & Reproduction 04, no. 03n04 (September 2022): 176. http://dx.doi.org/10.1142/s2661318222740875.
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Background: Fertility clinics submit treatment data on all ART cycles to the Australian and New Zealand Assisted Reproductive Technology Database (ANZARD) as part of their accreditation. The National Perinatal Epidemiology and Statistics Unit (NPESU), who manages ANZARD, is undertaking a study involving the linkage of ANZARD to state and commonwealth datasets to investigate health outcomes of infants born from fertility treatments. Aim: To describe the creation and performance of the linked dataset and to evaluate the agreement between births recorded by clinics and those recorded in state perinatal data collections (PDC). Method: The linked dataset was created by linking the ANZARD to NSW and ACT administrative datasets (performed by NSW Centre for Health Record Linkage (CHeReL)) and to Medicare Benefits Scheme and Pharmaceutical Benefits Schedule (performed by AIHW). The CHeReL’s Master Linkage Key (MLK) was used as a bridge between ANZARD’s statistical linkage key and state administrative datasets. Linkage rates and concordance between births recorded in ANZARD and PDCs was evaluated. Results: A 96.7% linkage rate was achieved between women recorded in ANZARD and CHeReL’s MLKs. A reconciliation of ANZARD-recorded births among NSW residents found that 94.2% (95% CI: 93.9-94.4%) of births were also recorded in NSW/ACT PDCs. A proportion of the missing births could be to women who had ART treatment in NSW but birthed in a different Australian state or country. A high concordance rate (>99%) was found in plurality status and birth outcome between ANZARD and PDCs. Conclusion: High linkage rates can be achieved with partially identifiable data and population spines, such as the CHeReL’s MLK, can be successfully used to link clinical registries and administrative datasets. This linkage resource will provide invaluable information on the safety of the ART and non-ART treatment, and the role of subfertility on the fertility treatments for Australia and beyond.
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Kelly, Maria, Katie M. O'Brien, and Ailish Hannigan. "Using administrative health data for palliative and end of life care research in Ireland: potential and challenges." HRB Open Research 4 (May 26, 2021): 17. http://dx.doi.org/10.12688/hrbopenres.13215.2.
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Background: This study aims to examine the potential of currently available administrative health and social care data for palliative and end-of-life care (PEoLC) research in Ireland. Objectives include to i) identify data sources for PEoLC research ii) describe the challenges and opportunities of using these and iii) evaluate the impact of recent health system reforms and changes to data protection laws. Methods: The 2017 Health Information and Quality Authority catalogue of health and social care datasets was cross-referenced with a recognised list of diseases with associated palliative care needs. Criteria to assess the datasets included population coverage, data collected, data dictionary and data model availability, and mechanisms for data access. Results: Nine datasets with potential for PEoLC research were identified, including death certificate data, hospital episode data, pharmacy claims data, one national survey, four disease registries (cancer, cystic fibrosis, motor neurone and interstitial lung disease) and a national renal transplant registry. The ad hoc development of the health system in Ireland has resulted in i) a fragmented information infrastructure resulting in gaps in data collections particularly in the primary and community care sector where much palliative care is delivered, ii) ill-defined data governance arrangements across service providers, many of whom are not part of the publically funded health service and iii) systemic and temporal issues that affect data quality. Initiatives to improve data collections include introduction of i) patient unique identifiers, ii) health entity identifiers and iii) integration of the Eircode postcodes. Recently enacted general data protection and health research regulations will clarify legal and ethical requirements for data use. Conclusions: Ongoing reform initiatives and recent changes to data privacy laws combined with detailed knowledge of the datasets, appropriate permissions, and good study design will facilitate future use of administrative health and social care data for PEoLC research in Ireland.
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Kelly, Maria, Katie M. O'Brien, and Ailish Hannigan. "Using linked administrative health data for palliative and end of life care research in Ireland: potential and challenges." HRB Open Research 4 (February 9, 2021): 17. http://dx.doi.org/10.12688/hrbopenres.13215.1.
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Background: This study aims to examine the potential of currently available administrative health data for palliative and end-of-life care (PEoLC) research in Ireland. Objectives include to i) identify administrative health data sources for PEoLC research ii) describe the challenges and opportunities of using these and iii) estimate the impact of recent health system reforms and changes to data protection laws. Methods: The 2017 Health Information and Quality Authority catalogue of health and social care datasets was cross-referenced with a recognised list of diseases with associated palliative care needs. Criteria to assess the datasets included population coverage, data collected, data dictionary and data model availability and mechanisms for data access. Results: Eight datasets with potential for PEoLC research were identified, including four disease registries, (cancer, cystic fibrosis, motor neurone and interstitial lung disease), death certificate data, hospital episode data, community prescription data and one national survey. The ad hoc development of the health system in Ireland has resulted in i) a fragmented information infrastructure resulting in gaps in data collections particularly in the primary and community care sector where much palliative care is delivered, ii) ill-defined data governance arrangements across service providers, many of whom are not part of the publically funded health service and iii) systemic and temporal issues that affect data quality. Initiatives to improve data collections include introduction of i) patient unique identifiers, ii) health entity identifiers and iii) integration of the eircode postcodes. Recently enacted general data protection and health research regulations will clarify legal and ethical requirements for data use. Conclusions: With appropriate permissions, detailed knowledge of the datasets and good study design currently available administrative health data can be used for PEoLC research. Ongoing reform initiatives and recent changes to data privacy laws will facilitate future use of administrative health data for PEoLC research.
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Berg, Emily, Johgho Im, Zhengyuan Zhu, Colin Lewis-Beck, and Jie Li. "Integration of statistical and administrative agricultural data from Namibia." Statistical Journal of the IAOS 37, no. 2 (June 3, 2021): 557–78. http://dx.doi.org/10.3233/sji-200634.
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Statistical and administrative agencies often collect information on related parameters. Discrepancies between estimates from distinct data sources can arise due to differences in definitions, reference periods, and data collection protocols. Integrating statistical data with administrative data is appealing for saving data collection costs, reducing respondent burden, and improving the coherence of estimates produced by statistical and administrative agencies. Model based techniques, such as small area estimation and measurement error models, for combining multiple data sources have benefits of transparency, reproducibility, and the ability to provide an estimated uncertainty. Issues associated with integrating statistical data with administrative data are discussed in the context of data from Namibia. The national statistical agency in Namibia produces estimates of crop area using data from probability samples. Simultaneously, the Namibia Ministry of Agriculture, Water, and Forestry obtains crop area estimates through extension programs. We illustrate the use of a structural measurement error model for the purpose of synthesizing the administrative and survey data to form a unified estimate of crop area. Limitations on the available data preclude us from conducting a genuine, thorough application. Nonetheless, our illustration of methodology holds potential use for a general practitioner.
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Allan, John A., Gary D. Hanson, Nicole L. Schroder, Anna J. O’Mahony, Roxanne M. P. Foster, and Grant E. Sara. "Six years of national mental health seclusion data: the Australian experience." Australasian Psychiatry 25, no. 3 (April 4, 2017): 277–81. http://dx.doi.org/10.1177/1039856217700298.
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Objectives: Reducing or eliminating seclusion from mental health care settings has been a national priority for Australia since 2005. This paper describes Australia’s national seclusion data collection, and summarises changes in seclusion rates in Australian public mental health services. Methods: Seclusion events per 1000 patient days were calculated from 2009–2010 to 2014–2015 utilising state and territory administrative data sources. Combined national data were used to calculate results for a number of service characteristics, such as target population and location of the service. Results: The rate of seclusion events decreased by 43% over the 6 years. Child and adolescent services reported consistently higher rates of seclusion, but a shorter duration of seclusion episodes, compared with other service types. There is high variation in seclusion rates between individual services (range 0.0–53.0 seclusion events per 1000 bed days in 2014–2015). Conclusions: Seclusion event rates in Australia’s specialised public acute mental health hospital services are declining. The use of existing administrative data was instrumental in establishing a national data source to facilitate the monitoring and reporting of progress of seclusion reduction strategies.
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Kursheva, Galina A., and Pavel S. Uchvatov. "NATIONAL ADMINISTRATIVE ELITE IN THE COUNCIL OF PEOPLE’S COMMISSARS OF THE MORDOVIAN ASSR DURING THE AUTONOMOUS REPUBLIC FORMATION." Historical Search 2, no. 1 (March 25, 2021): 21–29. http://dx.doi.org/10.47026/2712-9454-2021-2-1-21-29.
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The article examines the personnel composition of the Council of People’s Commissars of the Mordovian ASSR in the mid-1930s. It was during the period of Mordovia’s national statehood formation that a high percentage of representatives of the titular nation in the Soviet and party authorities was observed. The example of the supreme body of state administration of the autonomous republic shows the influence of indigenisation process in the administrative apparatus on the upper level of the regional Soviet and economic elite of functionaries, which managed to form in the post-revolutionary decade and a half. Data on individual members of the CPC, including their origin, age, and previous activities, are provided. A significant influence of the national factor in selecting executive officers is noted, which was of greater importance than the level of education and previous work experience. At the same time, promotion of the national cadres in accordance with political requirements did not always take into account objective circumstances, and a rapid rise of untrained people often led to a decrease in the quality of the Soviet bureaucracy. The article is based on previously unpublished documents from the collections of the Central State Archive of the Republic of Mordovia, as well as data obtained from open sources.
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Boulanger, Virginie, Étienne Poirier, Anne MacLaurin, and Caroline Quach. "Divergences between healthcare-associated infection administrative data and active surveillance data in Canada." Canada Communicable Disease Report 48, no. 1 (January 26, 2022): 4–16. http://dx.doi.org/10.14745/ccdr.v48i01a02.
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Background: Although Canada has both a national active surveillance system and administrative data for the passive surveillance of healthcare-associated infections (HAI), both have identified strengths and weaknesses in their data collection and reporting. Active and passive surveillance work independently, resulting in results that diverge at times. To understand the divergences between administrative health data and active surveillance data, a scoping review was performed. Method: Medline, Embase and Cumulative Index to Nursing and Allied Health Literature along with grey literature were searched for studies in English and French that evaluated the use of administrative data, alone or in comparison with traditional surveillance, in Canada between 1995 and November 2, 2020. After extracting relevant information from selected articles, a descriptive summary of findings was provided with suggestions for the improvement of surveillance systems to optimize the overall data quality. Results: Sixteen articles met the inclusion criteria, including twelve observational studies and four systematic reviews. Studies showed that using a single source of administrative data was not accurate for HAI surveillance when compared with traditional active surveillance; however, combining different sources of data or combining administrative with active surveillance data improved accuracy. Electronic surveillance systems can also enhance surveillance by improving the ability to detect potential HAIs. Conclusion: Although active surveillance of HAIs produced the most accurate results and remains the gold-standard, the integration between active and passive surveillance data can be optimized. Administrative data can be used to enhance traditional active surveillance. Future studies are needed to evaluate the feasibility and benefits of potential solutions presented for the use of administrative data for HAI surveillance and reporting in Canada.
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Hopkins, Robert B., Natasha Burke, Charlene Fell, Genevieve Dion, and Martin Kolb. "Epidemiology and survival of idiopathic pulmonary fibrosis from national data in Canada." European Respiratory Journal 48, no. 1 (May 26, 2016): 187–95. http://dx.doi.org/10.1183/13993003.01504-2015.
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Idiopathic pulmonary fibrosis (IPF) is a rare disease, with estimates of prevalence varying considerably across countries due to paucity in data collection. The aim of this study was to investigate the prevalence and incidence of IPF in Canada using administrative data requiring minimal extrapolation.We used mandatory national administrative data from 2007–2011 to identify IPF cases of all ages with an International Classification of Diseases (Version 10, Canadian) diagnosis code of J84.1. We used a broad definition that excluded cases with subsequent diagnosis of other interstitial lung diseases, and a narrow definition that required further diagnostic testing prior to IPF diagnosis. We explored survival and quality of life.For all ages, the broad prevalence of IPF was 41.8 per 100 000 (14 259 cases) and was higher for men. The incidence rate was 18.7 per 100 000 (6390 cases) and was higher for men. The narrow prevalence was 20.0 per 100 000 (6822 cases) and incidence was 9.0 per 100 000 (3057 cases). The 4-year risk of death was 41.0% and the quality of life with IPF after 2 years was lower than for Global Initiative for Chronic Obstructive Lung Disease stage IV chronic obstructive pulmonary disease.Using comprehensive national data, the prevalence of IPF in Canada was higher than other national estimates, suggesting that either IPF may be more common in Canada or that data capture may have been previously limited.
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APOSTU, Iulian. "DIVORCE THROUGH ADMINISTRATIVE PROCEDURE - SOCIAL ARGUMENTS." Jurnalul de Studii Juridice 15, no. 3-4 (December 20, 2020): 54–60. http://dx.doi.org/10.18662/jls/15.3-4/75.
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Although in Romania the number of divorces is considered to be in a continuous increase, in reality, the data of the National Institute of Statistics show that in Romania, the divorce rate remains constant and in small shares. In 1990, the Romanian divorce rate was 1.42 ‰ and the latest national INS data show a general indicator of 1.39 ‰. The low divorce rate in Romania does not imply, at the same time, a high rate of marital happiness in the Romanian family. With many cultural influences, the condition of being divorced does not enjoy much tolerance, so some of the potential legal separation decisions are obscured by traditional imperatives that block or delay the divorce. However, the new legal proceedings after 2010 regarding the option of legal separation at a notary or before the registrar have created the premise of a simplified divorce that avoids the courts, long and frequent appearances, as well as greater exposure. The study aims to analyze the motivations of individuals for divorce at the notary or the registrar, starting from the dilemma of arguing a simplified legal procedure or a decision related to a better protection of privacy. The paper is based on a qualitative research, the method used being the sociological survey, and the research tool - the semi-structured interview. For the data collection, the technique of non-probabilistic qualitative sampling of convenience was used.
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Boulton, Christopher, Carol Harrison, Timothy Wilton, Richard Armstrong, Elaine Young, Derek Pegg, and J. Mark Wilkinson. "Implementing large-scale data quality validation in a national arthroplasty registry to improve compliance." Bone & Joint Open 3, no. 9 (September 1, 2022): 716–25. http://dx.doi.org/10.1302/2633-1462.39.bjo-2022-0051.r1.
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Data of high quality are critical for the meaningful interpretation of registry information. The National Joint Registry (NJR) was established in 2002 as the result of an unexpectedly high failure rate of a cemented total hip arthroplasty. The NJR began data collection in 2003. In this study we report on the outcomes following the establishment of a formal data quality (DQ) audit process within the NJR, within which each patient episode entry is validated against the hospital unit’s Patient Administration System and vice-versa. This process enables bidirectional validation of every NJR entry and retrospective correction of any errors in the dataset. In 2014/15 baseline average compliance was 92.6% and this increased year-on-year with repeated audit cycles to 96.0% in 2018/19, with 76.4% of units achieving > 95% compliance. Following the closure of the audit cycle, an overall compliance rate of 97.9% was achieved for the 2018/19 period. An automated system was initiated in 2018 to reduce administrative burden and to integrate the DQ process into standard workflows. Our processes and quality improvement results demonstrate that DQ may be implemented successfully at national level, while minimizing the burden on hospitals. Cite this article: Bone Jt Open 2022;3(9):716–725.
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Hsu, Robert, Paula Ramirez, Lizbeth Acuña, and Gilberto Lopes. "Review of updated colorectal cancer disease management data in the Colombian National Administrative Cancer Registry." Journal of Clinical Oncology 37, no. 4_suppl (February 1, 2019): 508. http://dx.doi.org/10.1200/jco.2019.37.4_suppl.508.
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508 Background: The Office of High Cost of the Colombian Health Ministry created the National Administrative Cancer Registry (NACR) in 2015 to obtain nationwide cancer data to find areas for improvement in cancer delivery. From initial data, a collaboration of healthcare experts identified 15 disease management indicators in colorectal (CRC) cancer in Colombia. In this study, we look at 2017 NACR data to investigate significant findings. Methods: We obtained NACR data compiled from the Department of Health Ministry from January 2, 2016-January 1, 2017 consisting of 32 departments and 1122 municipalities. The 2017 NACR data for CRC includes 11 of 15 updated disease management indicators - time to diagnosis, proportion of patients with colorectal cancer in situ, proportion of new cases identified in early stages, proportion of patients with TNM staging, proportion of patients with TNM staging before treatment, time before treatment, time between neoadjuvant therapy and surgery, time between surgery and adjuvant therapy, proportion of stage I and II patients receiving curative surgery, proportion of patients with nutritional support, mortality rate, and incidence. Results: The incidence of CRC was 5.2 cases per 100,000 people and the mortality was 3.6 cases per 100,000 people. The time to diagnosis was on average 50.7 days. 3.6% of CRC cases were in situ. 35.6% of cases were identified in early stages, and 51.3% of cases had TNM staging with 45.1% staged prior to treatment. The time to initial treatment was 63.7 days. The time between neoadjuvant therapy and surgery was 116.1 days and the time between surgery and adjuvant therapy was 75.5 days. 24.2% of stage I and II patients received curative surgery. 9.8% patients received nutritional support. Conclusions: The updated NACR data show significant wait times for treatment and exaggerated wait times for patients needing neoadjuvant or adjuvant therapies. The findings show significant work is needed in providing supportive services. There needs to be further investigation into follow-up after initial treatment. Further directions should include more data collection of adjuvant and neoadjuvant wait times and outcomes data of specific treatment modalities.
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Kuznetsov, I., E. Panidi, A. Kolesnikov, P. Kikin, V. Korovka, and V. Galkin. "GIS-BASED INFECTIOUS DISEASE DATA MANAGEMENT ON A CITY SCALE, CASE STUDY OF ST. PETERSBURG, RUSSIA." ISPRS - International Archives of the Photogrammetry, Remote Sensing and Spatial Information Sciences XLIII-B3-2020 (August 22, 2020): 1463–67. http://dx.doi.org/10.5194/isprs-archives-xliii-b3-2020-1463-2020.
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Abstract. Medical geography and medical cartography can be denoted as classical application domains for Geographical Information Systems (GISs). GISs can be applied to retrospective analysis (e.g., human population health analysis, medical infrastructure development and availability assessment, etc.), and to operative disaster detection and management (e.g., monitoring of epidemics development and infectious diseases spread). Nevertheless, GISs still not a daily-used instrument of medical administrations, especially on the city and municipality scales. In different regions of the world situation varies, however in general case GIS-based medical data accounting and management is the object of interest for researchers and national administrations operated on global and national scales. Our study is focused onto the investigation and design of the methodology and software prototype for GIS-based support of medical administration and planning on a city scale when accounting and controlling infectious diseases. The study area is the administrative territory of the St. Petersburg (Russia). The study is based upon the medical statistics data and data collection system of the St. Petersburg city. All the medical data used in the study are impersonalized accordingly to the Russian laws.
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Madden, Rosamond H., Sue Lukersmith, Qingsheng Zhou, Melita Glasgow, and Scott Johnston. "Disability-Related Questions for Administrative Datasets." International Journal of Environmental Research and Public Health 17, no. 15 (July 28, 2020): 5435. http://dx.doi.org/10.3390/ijerph17155435.
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High rates of unemployment among people with disability are long-standing and persistent problems worldwide. For public policy, estimates of prevalence and population profiles are required for designing support schemes such as Australia’s National Disability Insurance Scheme; for monitoring implementation of the United Nations Convention on Rights of Persons with Disabilities; and for monitoring service access, participation, and equity for people with disability in mainstream systems including employment. In the public sector, creating a succinct identifier for disability in administrative systems is a key challenge for public policy design and monitoring. This requires concise methods of identifying people with disability within systems, producing data comparable with population data to gauge accessibility and equity. We aimed to create disability-related questions of value to the purposes of an Australian state and contribute to literature on parsimonious and respectful disability identification for wider application. The research, completed in 2017, involved mapping and identification of key disability concepts for inclusion in new questions, focus groups to refine wording of new questions, and online surveys of employees evaluating two potential new question sets on the topic of disability and environment. Recommendations for new disability-related questions and possible new data collection processes are being considered and used by the leading state authority.
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Buiten, Gert, Ger Snijkers, Paulo Saraiva, Johan Erikson, Anna-Greta Erikson, and Alice Born. "Business Data Collection: Toward Electronic Data Interchange. Experiences in Portugal, Canada, Sweden, and the Netherlands with EDI." Journal of Official Statistics 34, no. 2 (June 1, 2018): 419–43. http://dx.doi.org/10.2478/jos-2018-0019.
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Abstract This article discusses the experience and the ideas of National Statistical Institutes from four countries – Portugal, Sweden, Canada, and the Netherlands – in order to build a fully automated data collection system, to provide a system-to-system (S2S) data exchange or Electronic Data Interchange (EDI) between all stakeholders in the production chain. This joint work is a summary of an invited session at the Fifth International Conference on Establishment Surveys, which was devoted to ‘the future of business data collection’. Taken together, the four presentations provide an overview of recent experiences with S2S/EDI data collection for financial business data. The basis for such a system is an integrated unbroken digital information chain that runs from the recording of financial data in computerised administrative systems of individual businesses all the way to publishing economic statistics – the Business Information Chain. This chain can be ‘closed’ and made into a cycle by including a feedback loop, for example by providing benchmark data to businesses. However, to make it happen, technical standardisation, vertical and horizontal conceptual harmonisation between all partners in the chain, and positive business cases for all partners are needed. The article starts by putting EDI developments in historical perspective.
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Bonardi, Alexandra, Emily Lauer, Amie Lulinski, Mary Lee Fay, Andrew Morris, Margaret A. Nygren, and Gloria Krahn. "Unlocking the Potential of State Level Data: Opportunities to Monitor Health and Related Outcomes in People With Intellectual and Developmental Disabilities." Intellectual and Developmental Disabilities 57, no. 5 (October 2019): 390–404. http://dx.doi.org/10.1352/1934-9556-57.5.390.
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No single U.S. health surveillance system adequately describes the health of people with intellectual and developmental disabilities (IDD). Researchers and policy makers have sought to understand the potential of state and local administrative and survey data to produce a local as well as a national picture of the health of the population with IDD. Analyses of these secondary data sources have significant appeal because of the potential to derive new information without the burden and expense of new data collection. The authors examined the potential for data collected by states and territories to inform health surveillance in the population with IDD, including data from the administration of eligibility-based supports, health insurance claims, and surveys administered for monitoring and quality improvement. Although there are opportunities to align and harmonize datasets to enhance the available information, there is no simple path to use state and local data to assess and report on the health of the population with IDD. Recommendations for policy, practice, and research include the development and use of consistent operational definitions in data collection, and research to fill knowledge gaps.
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Prusov, Dmitry, and Olena Boyko. "THE CONCEPTUAL MODEL OF THE STRUCTURE AND FUNCTIONAL PURPOSE OF THE GEOINFORMATION SYSTEM FOR ADMINISTRATIVE AND ECONOMIC MANAGEMENT OF A REGIONAL AIRPORT." Geodesy and cartography 48, no. 2 (May 25, 2022): 46–55. http://dx.doi.org/10.3846/gac.2022.12570.
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This article is devoted to the development of a conceptual model of the structure of the geoinformation system (GIS) for the administrative and economic management of regional airports, taking into account the requirements of world and national experience, international and national standards, modern technologies of geospatial data collection. The research is aimed at structuring all the facilities and objects of the airport complex and isolating components by location and function; development of a generalized scheme of directions for the use of administrative and business GIS at airports based on the analysis of world and domestic experience; establishing the need to use international and national standards of the “Geographic Information / Geomatics” series when creating an airport GIS; development of a generic scheme of the composition of the database of the Digital Single Topographic Base of the Airport, basic and profile geoinformation resources for the administrative and economic GIS; development of conceptual model of structure and functional purpose of GIS of administrative and economic management of the airport. The developed conceptual model reflects the main production processes and needs of airports, based on the database of the Digital Numeral Topographic Framework, is a complete and consistent model of the relationship between the administrative and economic needs of airports and the functionality of modern geoinformation systems for the efficient operation of objects, structures and facilities communications, analysis of the current state, monitoring and management decision-making.
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Long, R., A. Woods, C. Biondi, J. Luzuriaga, C. Anderiesz, P. Jackson, C. Giles, and H. Zorbas. "Collection and Reporting of National Cancer Stage at Diagnosis Data in Australia (STaR Project)." Journal of Global Oncology 4, Supplement 2 (October 1, 2018): 67s. http://dx.doi.org/10.1200/jgo.18.61300.
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Background: Stage at diagnosis is an important prognostic factor for cancer, providing contextual information for interpreting population health indicators such as mortality from cancer and cancer survival. Australian population-based cancer registries (PBCRs) routinely collect information on cancer incidence and mortality. The need for high quality, comprehensive national data on stage at diagnosis to supplement these data are widely recognized in Australia. The collection and dissemination of quality national stage data will enhance the: • ability to better monitor cancer outcomes, inform cancer control policy; • understand variations across different populations; and • identify where further research and targeted strategies may be required to improve cancer outcomes. Linking data on cancer stage at diagnosis with other administrative cancer data will also allow for a better understanding of the relationship between stage at diagnosis, treatments received, patterns of cancer recurrence, and survival outcomes. Aim: To strengthen national data capacity by collecting and reporting cancer stage at diagnosis for Cancer Australia's Stage, Treatment and Recurrence (STaR) project. Methods: Working with state and territory population-based cancer registries (PBCRs) and the Australian Pediatric Cancer Registry, Cancer Australia supported the development and testing of Business Rules for the collection of national cancer stage at diagnosis for: • The top 5 incident cancers based on the Tumor, Node, and Metastasis (TNM) staging system. These rules were endorsed by the Australasian Association of Cancer Registries (AACR) as a national standard in May 2016; and • Childhood cancers, with a separate set of Business Rules for 16 childhood cancer types based on the Toronto Pediatric Cancer Stage Guidelines. These rules were supported by the AACR as a national standard. Results: Using the AACR-endorsed Business Rules, comprehensive national cancer stage at diagnosis data for the top 5 incident cancers (for 2011) have been collected in Australia for the first time. Over 90% of incidence cases were able to be assigned a value for registry-derived (RD) stage at diagnosis for melanoma (97%), prostate (97%), and female breast (94%) cancers. Lower staging completeness was found for colorectal cancers (88%), and for lung cancers (72%). Business Rules for the collection of stage at diagnosis data for pediatric cancers have also been developed; 93% of sample cases diagnosed in the period 2006-2010 were able to be staged, ranging from 84% for nonrhabdomyosarcoma to 100% for hepatoblastoma. Conclusion: The Business Rules enabled the uniform collection of cancer stage at diagnosis data for the first time in Australia. The collection of these data will allow for the linkage of stage at diagnosis to other sources of information, including patterns of treatments applied, and enable reporting of survival and recurrence outcomes by stage.
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Fakhruddin, Ghozy Prananda, Ale Alfero Deputra, and Adhitya Antomarta. "SUPERVISION OF FOREIGNERS ACCORDING TO THE IMMIGRATION LAW IN FACING POTENTIAL THREATS TO INDONESIA'S NATIONAL SECURITY." Journal of Law and Border Protection 4, no. 1 (May 17, 2022): 67–77. http://dx.doi.org/10.52617/jlbp.v4i1.288.
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This paper aims to find out the national security threats that may occur with the presence of foreigners in Indonesia and the supervision of foreigners according to the immigration law in the face of potential national security threats in Indonesia. The writing of this paper uses a normative juridical approach, which is a method for studying theories, legal principles, and laws and regulations relevant to research. The data collection method used is literature study. The author conducted a literature study of laws and regulations, immigration journals, and books related to immigration. Data analysis uses qualitative normative data analysis techniques. The results of this study show that the potential security threat of Indonesia with foreigners is a form of transnational organized crime (TOC), such as Cyber Crime, Human Trafficking, terrorism, drug trafficking, and money laundering (Money Laundry). The form of immigration supervision that can be carried out due to the potential threat is administrative supervision and field supervision. In addition, to develop the advancement of science and technology, the existence of a Foreigner Reporting Application (APOA) is targeted at hotel or lodging management to provide their access waivers. APOA serves to provide reports regarding the presence of foreigners to the local immigration office. Another form of immigration supervision is the presence of the TIMPORA ForeignEr Supervision Team assigned with the aim of supervising and cracking down on foreign nationals in indonesia's administrative regions
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Memon, Hafeezullah, Gayathri Madubhani Ranathunga, Virajini Medagedara Karunaratne, Samudrika Wijayapala, and Nilhan Niles. "Sustainable Textiles in the Past “Wisdom of the Past: Inherited Weaving Techniques Are the Pillars of Sustainability in the Handloom Textile Sector of Sri Lanka”." Sustainability 14, no. 15 (August 1, 2022): 9439. http://dx.doi.org/10.3390/su14159439.
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The paper aims to identify characteristics of the driving force of the domestic handloom textile industry of Sri Lanka. A qualitative data analysis methodology was chosen for the research. Data were gathered from observational studies and semi-structured interviews. The observational study was carried out in museum collections, scholarly written books, and research journal articles. Semi-structured interviews were carried out with weavers, designers, technical instructors, and administrative officers. Data were analyzed according to observational study, coding, and concept development. Identified characteristics are interlinked with inherited craft knowledge, Buddhist culture, and the networks of people who live and work in a particular industrial society. The industry is developed through hands-on experience and prolonged engagement, where human resources are the key factor. The research scrutinized seven concepts related to the sustainable survival of the weaving structures. Learning is the direct enforcer. The infrastructure is supplied by the Textile Department. The research suggests recognition of a consistent infrastructure supply chain as national policy. The paper recommends to policymakers with the factors found to connect culture with an active action plan.
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Coetzer, Willem, Alexandra Holland, and Ian Engelbrecht. "Biodiversity Data Curation: South Africa Goes Online." Biodiversity Information Science and Standards 2 (May 22, 2018): e25840. http://dx.doi.org/10.3897/biss.2.25840.
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The South African Institute for Aquatic Biodiversity (SAIAB) operates several research platforms, which may be used by the broader South African research community (e.g. a marine research vessel and a remotely operated underwater vehicle). SAIAB’s Enterprise-grade data centre, along with expertise in systems administration and biodiversity information management, allow the institute to offer a Biodiversity Information Management Platform. Data hosted by SAIAB is replicated across three data centres, with each centre being at least 250m apart and operating independently. Infrastructure at two data centres replicates in real time, forming a high availability cluster. The third datacentre is dedicated to storing backups. High-capacity tape backup will be added in the near future. As an additional measure, cloud storage is used to store daily extracts of Specify databases, which are retained for one year. In the first instance, the Platform aims to provide SAIAB researchers and associates with biodiversity data curation services. This begins with support for the SAIAB Collections Division, to ensure that voucher specimens, tissue samples and associated media are accurately catalogued and can be easily retrieved. Biodiversity data curation is broader than this. It also means that any biodiversity data/metadata (records of species, events, occurrences/observations and traits) can potentially be curated using Specify Software, and standardised and published (subject to relevant policies) to the GBIF Data Portal using the GBIF Integrated Publishing Toolkit. The use of Specify Software to curate biodiveristy data that do not represent voucher specimens (e.g. underwater images and video) is a new research project within SAIAB, which has the potential to be extended beyond SAIAB. A new national initiative, the Natural Science Collections Facility (NSCF), was launched in 2017 to reinvigorate natural science museums across the country, to halt deterioration of specimens and improve capacity for specimen and data curation. In support of the NSCF, the SAIAB platform is offered to natural science museums in South Africa (excluding herbaria, which are all part of or affiliated with SANBI, and therefore accommodated by a different system). Each museum will be provided with a webserver, Specify 7 database, Specify web portal and IPT server. In offering this platform to the broader South African Biodiversity Science community, SAIAB is primarily motivated by the potential for collaborative research in capacity development for biodiversity data curation / information management, using Specify Software. The first research project will examine participating museums’ capacity to use the Specify Workbench sustainably, to import new voucher/occurrence records generated by fieldwork. The requisite training to enhance this potential will be provided. The Natural Science Collections Facility (NSCF) is an important collaborator in the context of enhancing the general state of South Africa’s specimen collections, and the Specify Collections Consortium is an important collaborator, specifically for support.
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Zylbersztejn, Ania, Ruth Gilbert, and Pia Hardelid. "Developing a national birth cohort for child health research using a hospital admissions database in England: The impact of changes to data collection practices." PLOS ONE 15, no. 12 (December 15, 2020): e0243843. http://dx.doi.org/10.1371/journal.pone.0243843.
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Background National birth cohorts derived from administrative health databases constitute unique resources for child health research due to whole country coverage, ongoing follow-up and linkage to other data sources. In England, a national birth cohort can be developed using Hospital Episode Statistics (HES), an administrative database covering details of all publicly funded hospital activity, including 97% of births, with longitudinal follow-up via linkage to hospital and mortality records. We present methods for developing a national birth cohort using HES and assess the impact of changes to data collection over time on coverage and completeness of linked follow-up records for children. Methods We developed a national cohort of singleton live births in 1998–2015, with information on key risk factors at birth (birth weight, gestational age, maternal age, ethnicity, area-level deprivation). We identified three changes to data collection, which could affect linkage of births to follow-up records: (1) the introduction of the “NHS Numbers for Babies (NN4B)”, an on-line system which enabled maternity staff to request a unique healthcare patient identifier (NHS number) immediately at birth rather than at civil registration, in Q4 2002; (2) the introduction of additional data quality checks at civil registration in Q3 2009; and (3) correcting a postcode extraction error for births by the data provider in Q2 2013. We evaluated the impact of these changes on trends in two outcomes in infancy: hospital readmissions after birth (using interrupted time series analyses) and mortality rates (compared to published national statistics). Results The cohort covered 10,653,998 babies, accounting for 96% of singleton live births in England in 1998–2015. Overall, 2,077,929 infants (19.5%) had at least one hospital readmission after birth. Readmission rates declined by 0.2% percentage points per annual quarter in Q1 1998 to Q3 2002, shifted up by 6.1% percentage points (compared to the expected value based on the trend before Q4 2002) to 17.7% in Q4 2002 when NN4B was introduced, and increased by 0.1% percentage points per annual quarter thereafter. Infant mortality rates were under-reported by 16% for births in 1998–2002 and similar to published national mortality statistics for births in 2003–2015. The trends in infant readmission were not affected by changes to data collection practices in Q3 2009 and Q2 2013, but the proportion of unlinked mortality records in HES and in ONS further declined after 2009. Discussion HES can be used to develop a national birth cohort for child health research with follow-up via linkage to hospital and mortality records for children born from 2003 onwards. Re-linking births before 2003 to their follow-up records would maximise potential benefits of this rich resource, enabling studies of outcomes in adolescents with over 20 years of follow-up.
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Panagiotopoulos, Georgios, Kanaki Vasiliki, and Zoe Karanikola. "Kindergarten Teachers’ Perceptions on Management Training Issues and Needs." International Journal of Learning and Development 9, no. 3 (September 30, 2019): 66. http://dx.doi.org/10.5296/ijld.v9i3.15552.
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This study refers to the unexplored scientific field of administration in preschool education and comes to investigate the views of teachers working at the public kindergartens of Piraeus region, regarding their educational administration needs and the form of relevant training programs they wish to attend. In Greece, one kindergarten teacher of each school unit is required to perform both administrative and teaching tasks simultaneously, as there is not a separate principal who performs only administrative tasks. This survey was conducted from April to May 2019, whereas the quantitative approach was chosen for the collection of data. The questionnaires were delivered through the e-mail addresses of the kindergarten schools of the Piraeus region. The population of the survey was 150 kindergarten teachers, whereas the sample was 71 kindergarten teachers (response rate 47.3 %). The results of the survey show that the vast majority of teachers regard management training as being a crucial factor of effectiveness, while in terms of training programs they state that they desire a combination of introductory and periodic training organized by institutions such as the Institute of Educational Policy, Universities, the Ministry of Education and the Regional Centers for Educational Planning. In addition, they prefer to attend compulsory and fast-paced training programs whenever there is a change in administrative duties and whenever an educational reform occurs, organized by experienced school unit principals and the Professors of the National Centre for Public Administration and Local Government during working hours with exemption from teaching duties. The results of the present study provide guidance for the development of an educational program for kindergarten teachers in administrative issues.
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Saprudin, Achmad, and Musringudin. "Evaluation of Assessment of General Administrative Courses at SMK Sumpah Pemuda Jakarta." MANDAR: Social Science Journal 1, no. 1 (July 2, 2022): 48–55. http://dx.doi.org/10.31605/mssj.v1i1.1758.
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In general, all aspects and assessment criteria were met. However, it would be better if the supervision was carried out periodically by the school. However, several aspects and criteria have not been achieved, such as a detailed standard review, several general administration learning targets that have not been achieved, and three characteristics of education quality that have not been met. For this reason, the school must continue to evaluate so that later general administration learning is carried out more effectively and beneficially for the parties concerned. This research is a qualitative research. In this study, the author uses a case study as an investigative method. Furthermore, the research design model used is the discrepancy evaluation (DEM) model. Data collection techniques used: interviews with the school (principals, and teachers), students and parents, document study, and observation. In this study, the researcher used Miles and Huberman model data analysis, namely data analysis carried out at the time of data collection and after data collection was completed in a certain period. Activities in the data analysis model are data reduction, data display, and drawing conclusions/verification. The results of this study will have a positive and significant impact on the general administration learning program at this school if the parties optimize as much as possible in minimizing existing gaps and obstacles so that the positive impact of online learning that is carried out is more effective and widespread. Apart from that, future research can continue to explore the alignment between the national learning regulations of general administration and school regulations, as well as the readiness of school information technology facilities in implementing maximum learning.
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van Walraven, Carl, Timothy D. Jackson, and Nick Daneman. "Derivation and Validation of the Surgical Site Infections Risk Model Using Health Administrative Data." Infection Control & Hospital Epidemiology 37, no. 4 (January 20, 2016): 455–65. http://dx.doi.org/10.1017/ice.2015.327.
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OBJECTIVESurgical site infections (SSIs) are common hospital-acquired infections. Tracking SSIs is important to monitor their incidence, and this process requires primary data collection. In this study, we derived and validated a method using health administrative data to predict the probability that a person who had surgery would develop an SSI within 30 days.METHODSAll patients enrolled in the National Surgical Quality Improvement Program (NSQIP) from 2 sites were linked to population-based administrative datasets in Ontario, Canada. We derived a multivariate model, stratified by surgical specialty, to determine the independent association of SSI status with patient and hospitalization covariates as well as physician claim codes. This SSI risk model was validated in 2 cohorts.RESULTSThe derivation cohort included 5,359 patients with a 30-day SSI incidence of 6.0% (n=118). The SSI risk model predicted the probability that a person had an SSI based on 7 covariates: index hospitalization diagnostic score; physician claims score; emergency visit diagnostic score; operation duration; surgical service; and potential SSI codes. More than 90% of patients had predicted SSI risks lower than 10%. In the derivation group, model discrimination and calibration was excellent (C statistic, 0.912; Hosmer-Lemeshow [H-L] statistic, P=.47). In the 2 validation groups, performance decreased slightly (C statistics, 0.853 and 0.812; H-L statistics, 26.4 [P=.0009] and 8.0 [P=.42]), but low-risk patients were accurately identified.CONCLUSIONHealth administrative data can effectively identify postoperative patients with a very low risk of surgical site infection within 30 days of their procedure. Records of higher-risk patients can be reviewed to confirm SSI status.Infect. Control Hosp. Epidemiol. 2016;37(4):455–465
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Wu, S., R. C. Qu, C. L. Pan, Z. Y. Bao, and X. J. Feng. "SMART POVERTY ALLEVIATION ARCHITECTURE BASED ON GEOMATICS BIG DATA." ISPRS - International Archives of the Photogrammetry, Remote Sensing and Spatial Information Sciences XLII-3/W10 (February 7, 2020): 45–48. http://dx.doi.org/10.5194/isprs-archives-xlii-3-w10-45-2020.
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Abstract. With the rapid development of geomatics industry, it has accumulated a large amount of data such as digital city and national geoinformation survey, entered the geomatics big data era. At present, there are some researches on the collection and display of poverty alleviation based on geomatics. However, there are relatively few studies on smart poverty alleviation. Many problems need to be solved. It proposes a smart poverty alleviation architecture based on large geomatics data.It realizes the collection and monitor of smart poverty alleviation in administrative regions at all Levels, such as household, village, Township and county.It realizes the visualization of smart poverty alleviation with geomatics big data.It can poverty alleviation recommendation precisely.Aiming at this model,it proposes a precise poverty alleviation recommendation algorithm based on multi-dimensional correlation analysis. It uses Higher Order Singular Value Decomposition (HOSVD) algorithm to mine the relationship between geomatics and poverty alleviation, and recommends poverty alleviation policies. The research has certain practice and test. The architecture can effectively recommend poverty alleviation assistance policies, improve the efficiency of poverty alleviation archives collation, shorten the period of poverty alleviation archives collation, and improve the storage and access methods of poverty alleviation archives. It improves the efficiency of poverty alleviation collection, monitoring and assistance.
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Bain, Robert, Richard Johnston, Francesco Mitis, Christie Chatterley, and Tom Slaymaker. "Establishing Sustainable Development Goal Baselines for Household Drinking Water, Sanitation and Hygiene Services." Water 10, no. 12 (November 23, 2018): 1711. http://dx.doi.org/10.3390/w10121711.
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The World Health Organization (WHO) and United Nations Children’s Fund (UNICEF), through the Joint Monitoring Programme (JMP), are responsible for global monitoring of the Sustainable Development Goal (SDG) targets for drinking water, sanitation and hygiene (WASH). The SDGs represent a fundamental shift in household WASH monitoring with a new focus on service levels and the incorporation of hygiene. This article reflects on the process of establishing SDG baselines and the methods used to generate national, regional and global estimates for the new household WASH indicators. The JMP 2017 update drew on over 3000 national data sources, primarily household surveys (n = 1443), censuses (n = 309) and administrative data (n = 1494). Whereas most countries could generate estimates for basic drinking water and basic sanitation, fewer countries could report on basic handwashing facilities, water quality and the disposal of waste from onsite sanitation. Based on data for 96 and 84 countries, respectively, the JMP estimates that globally 2.1 billion (29%) people lacked safely managed drinking water services and 4.5 billion (61%) lacked safely managed sanitation services in 2015. The expanded JMP inequalities database also finds substantial disparities by wealth and sub-national regions. The SDG baselines for household WASH reveal the scale of the challenge associated with achieving universal safely managed services and the substantial acceleration needed in many countries to achieve even basic services for everyone by 2030. Many countries have begun to localise the global SDG targets and are investing in data collection to address the SDG data gaps, whether through the integration of new elements in household surveys or strengthening collection and reporting of information through administrative and regulatory systems.
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Ramadhan, Faisal Fajar, Antik Bintari, and Aditya Candra Lesmana. "ADMINISTRASI PENDAFTARAN TANAH KANTOR AGRARIA DAN TATA RUANG/BADAN PERTANAHAN NASIONAL KOTA BANDUNG UNTUK MENANGANI KASUS SERTIFIKAT GANDA HAK ATAS TANAH DI KOTA BANDUNG TAHUN 2020." Jurnal Administrasi Pemerintahan (Janitra) 2, no. 1 (August 3, 2022): 55. http://dx.doi.org/10.24198/janitra.v2i1.41100.
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This research is entitled “Administration of Land Registration Office of Agrarian and Spatial Planning/National Land Agency of Bandung City to Handle Cases of Dual Certificates of Land Rights in Bandung City. The purpose of this study is to analyze and determine the implementation of land registration administration in handling cases of dual certificates of land rights at the Agrarian and Spatial Planning Office/National Land Agency of Bandung City seen from using administrative theory from Harbani Pasolong (2019). The research method uses a qualitative method with a descriptive approach to describe the actual situation being studied. Data collection techniques were conducted by interview, literature study, observation, and documentation. Data analysis techniques used are data reduction, data exposure, and drawing conclusions. The data verification techniques used are member check, triangulation, and reference materials. The results of this study show that it is still not fully optimal from an administrative perspective, there are three indicators, namely Efficiency, Effectiveness, and Rationale because in its implementation there are still several factors that become problems such as the case of multiple certificates of land rights every year, the existence of people who administrative rules and regulations that apply and still apply for land certificates for land parcels that have been certified. Based on the results of the study, it can be concluded that the administration of land registration at the Bandung City Agrarian and Spatial Planning/National Land Agency in handling cases of dual certificates of land rights in 2020 is still not fully optimal. With this research, the authors provide suggestions from the administrative review that can be taken into consideration for ATR/BPN Bandung City in optimizing the implementation of land registration in handling cases of dual certificates of land rights. Penelitian ini berjudul “Administrasi Pendaftaran Tanah Kantor Agraria dan Tata Ruang/Badan Pertanahan Nasional Kota Bandung Untuk Menangani Kasus Sertifikat Ganda Hak Atas Tanah di Kota Bandung. Tujuan dari penelitian ini yaitu untuk menganalisis dan mengetahui pelaksanaan administrasi pendaftaran tanah dalam penanganan kasus sertifikat ganda hak atas tanah di Kantor Agraria dan Tata Ruang/Badan Pertanahan Nasional Kota Bandung dilihat dari menggunakan teori administrasi dari Harbani Pasolong (2019). Adapun metode penelitian ini menggunakan metode kualitatif dengan pendekatan deskriptif untuk menggambarkan keadaan sebenarnya yang diteliti. Teknik pengumpulan data dilakukan dengan wawancara, studi pustaka, observasi, dan dokumentasi. Teknik analisis data yang digunakan yaitu reduksi data, pemaparan data, dan penarikan kesimpulan. Teknik verifikasi data yang digunakan yaitu member check, triangulasi, dan bahan referensi. Hasil dari penelitian ini didapatkan bahwa masih belum sepenuhnya optimal dilihat dari perspektif administrasi yang terdapat tiga indikator yaitu Efisiensi, Efektivitas, dan Rasional karena pada pelaksanaannya masih terdapat beberapa faktor yang menjadi masalah seperti masih adanya kasus sertifikat ganda hak atas tanah setiap tahunnya, adanya masyarakat yang tidak tertib administrasi dan peraturan yang berlaku dan tetap mengajukan sertifikat tanah untuk bidang tanah yang sudah bersertifikat. Berdasarkan hasil penelitian, maka dapat disimpulkan bahwa administrasi pendaftaran tanah di Kantor Agraria dan Tata Ruang/Badan Pertanahan Nasional Kota Bandung dalam menangani kasus sertifikat ganda hak atas tanah tahun 2020 masih belum sepenuhnya optimal. Dengan penelitian ini, penulis memberikan saran dari tinjauan administrasi yang dapat dijadikan pertimbangan untuk ATR/BPN Kota Bandung dalam mengotimalkan pelaksanaan pendaftaran tanah dalam menangani kasus sertifikat ganda hak atas tanah.
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Mataputun, Yulius. "Analisis pemenuhan standar nasional pendidikan dan permasalahannya." Jurnal Konseling dan Pendidikan 8, no. 3 (December 30, 2020): 224. http://dx.doi.org/10.29210/148800.
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This study aims to analyze the fulfillment of the National Education Standards (SNP) and its problems in Papuan SMTKs. The research method used is a mixed method. The research subjects were 33 heads of Papuan SMTKs, heads of Christian education, and assessors of BAN-S / M Papua. Data collection used the 2017 SMA / MA accreditation instruments, interviews, and documentation. The data analysis technique used descriptive and interactive statistical tests by Miles and Huberman. The results showed that most of the Papuan SMTK had fulfilled the SNP. The Sapras and Tendik standards are still problematic because half of the SMTKs has not yet reached the SNP, even most of the SMTKs do not have biology, physics, chemistry, canteen, supervisors, administrative staff, administrative staff, and special service officers according to the SNP.
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Long, R., J. Luzuriaga, C. Biondi, A. Woods, P. Jackson, C. Anderiesz, C. Giles, and H. Zorbas. "Collection and Reporting of System-Wide Cancer Treatment Activity Data As Part of the Stage, Treatment and Recurrence (STaR) Project." Journal of Global Oncology 4, Supplement 2 (October 1, 2018): 74s. http://dx.doi.org/10.1200/jgo.18.61400.
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Background: The need for high quality, comprehensive national data on the treatments applied to cancers is widely recognized within the Australian cancer control community. The analysis and reporting of cancer treatment data will greatly enhance our ability to better understand cancer care activity and outcomes - and in particular the treatments being applied across population groups. Aim: To collect and report national data on cancer treatments, as part of Cancer Australia's Stage, Treatment and Recurrence (STaR) project. The linking of this data with national data on stage at diagnosis, survival and recurrence, will help inform policy and practice and ultimately improve cancer outcomes. Methods: Cancer Australia developed a dataset of selected surgical procedures for the treatment of the top five incidence cancers (prostate, breast, colorectal, lung, and melanoma). A dataset of key selected radiotherapy, and systemic therapies for the treatment of all cancer types was also developed. Data for reporting system-wide treatment activity were extracted from existing national health administrative datasets, including: the Pharmaceutical Benefits Scheme (PBS), the Medicare Benefits Schedule (MBS) and the National Hospital Morbidity Database (NHMD). The scope of the analysis was selected surgical procedures, radiotherapy procedures, or pharmaceutical agents administered with the general intent to change the outcome of the cancer and/or provide symptom relief/ palliative care. Results: The data reported provide a high-level national system-wide overview of cancer treatments applied, including: • More than 1 million radiotherapy services were provided for all cancers combined in Australia (as indicated by MBS reimbursement claims data) for the years 2013 to 2015 inclusive; • The number of people receiving systemic anticancer therapies in Australia for all cancers combined (as indicated by PBS reimbursement claims data) increased from 198,756 in 2012 to 247,939 in 2016; and • The number of hospital separations recorded in the NHMD (i.e., episodes of admitted patient care) for patients with a principal diagnosis of cancer undergoing surgery for the treatment of the top five high incidence cancers in Australia increased from 53,516 in 2010 to 57,651 in 2015. Conclusion: National cancer treatment data were successfully collected and reported. Australia is one of very few countries in the world to collect and report national system-wide treatment data with a specific focus on cancer. These data will be linked to cancer incidence, stage at diagnosis, survival and recurrence data to help inform for population-level reporting of cancer outcomes.
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Emmanuel Constantine, Lupilya, and Park J Hun. "Strategic Innovation, Knowledge Sharing and Policy Innovation Factors In E-Government in Developing Countries: The Case of Tanzania." Korean Journal of Policy Studies 30, no. 3 (December 31, 2015): 91–123. http://dx.doi.org/10.52372/kjps30305.
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The existing gap from strategic innovation in e-government knowledge creation has affected the effort to timely develop e-government policy in Tanzania. This paper is an attempt to describe multiple innovations outside the Tanzania that involve developing country collaboration, institutional innovation and resources and their linkages to national e-government-think tank. The central argument of this paper is to find factors for enhancing the development of national e-government policy innovation outside Tanzania. We developed national e-government policy framework to orchestrate local innovation and forge ahead of the e-government policy innovation. To do so, we developed and administered a set of the questionnaire from government and private institutions, entrepreneurship and social network group. Data collections were conducted from July 15 to September 20, 2015. The exploratory factor analysis using SPSS version 22 was employed to analyze data for strategic innovation, knowledge sharing, and e-government policy innovation. Four critical factors were identified as the key driver to the success of national e-government policy innovation: Coordinate knowledge sharing on e-government policies in the nation and international institutions; empower and coordinate e-government-think tank forum locally and nationally; create a technoculture society at local and national level; and Support e-government research alliance & engagement respectively. In additional, three developing countries were used as a reference model to support these findings. Our conclusion shows how national e-government-think tank and research alliance can become a strategic innovation in e-government towards coordinating knowledge sharing within private and government institutions. This can represent as "valuable and intellectual assets" for government institutions' stability and change towards national e-government policy innovation process.
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Hawk, Amanda K. "Reference Staffing and Scheduling Models in Archives and Special Collections: A Survey Analysis of Prepandemic Practices." American Archivist 85, no. 2 (September 1, 2022): 480–510. http://dx.doi.org/10.17723/2327-9702-85.2.480.
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ABSTRACT Reference services form the core function of any type of library. Even when faced with shrinking budgets and staff sizes, library and archives workers continue to provide reference services to meet the demands of researchers. Yet a critical analysis of the internal systems used for archival and special collections reference work is lacking compared to the robust body of research about users of collection materials. This article presents findings from a national survey about reference staffing and scheduling models in archival and special collections repositories conducted immediately prior to the onset of the COVID-19 pandemic. The survey data revealed specific models for staffing and scheduling used by participating institutions, respondents' level of satisfaction with staffing and scheduling models, and the most common challenges and successes related to reference services. The responses also conveyed information about the number of special collections and archives staff participating in reference services, the average length and frequency of shifts, and typical service hours. The findings indicated overall satisfaction among respondents in terms of their unit's staffing and scheduling models, with larger institutions reporting higher satisfaction rates across all categories than smaller institutions. Yet many survey participants reported budget constraints and staffing shortages that negatively impact public services operations. Although the results do not pinpoint a single approach to reference staffing and scheduling that will work for all archives and special collections units, qualitative responses suggest that successful reference models depend on sufficient staffing, internal buy-in and cooperation among employees, and support from supervisors and administration.
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Kidov, Artem A., Sabina N. Bunyatova, and Tavakkul M. Iskanderov. "Distribution and Conservation of Nikolsky’s Pitviper, Gloydius caucasicus (Reptilia, Viperidae) in Azerbaijan." Current Studies in Herpetology 20, no. 3/4 (December 15, 2020): 107–15. http://dx.doi.org/10.18500/1814-6090-2020-20-3-4-107-115.
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The paper discusses the distribution of Nikolsky’s pitviper, Gloydius caucasicus, in Azerbaijan. According to the authors’ own research results, literature data and museum collections, 32 findings of this species in the Jalilabad (1 locality), Yardymly (11 localities), Lerik (10 localities), Lenkoran (10 localities) and Astara (5 localities) administrative districts are presented. All the known findings of the pitviper are located within 10–1,980 m above sea level in the Lenkoran lowland, the mountain forest belt of the Talysh Mountains, as well as in the mountain-xerophytic steppe of the Yardymly, Deman and Diabar intermountain depressions. The species is recorded on the territory of “Hirkan” National Park and Zuvand regional reserve. G. caucasicus is a rare snake species in Azerbaijan. The main threat to the pitviper in the region is habitat loss. To preserve the species in the northwestern periphery of the habitat, the authors recommend creating a specially protected natural area in the Jalilabad and Yardymly districts on the Alashar-Burovar Ridge. It is also necessary to include G. caucasicus into the Red Data Book of the Republic of Azerbaijan in the category “Vulnerable species” (VU).
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Castano, Jairo. "Censuses of agriculture and COVID-19: Global situation and lessons." Statistical Journal of the IAOS 36, no. 4 (November 25, 2020): 861–65. http://dx.doi.org/10.3233/sji-200752.
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A review of the status of censuses of agriculture in 150 countries and territories shows that the impact of COVID-19 has not discriminated between developed and developing countries. However, some countries have fared better than others when faced with the challenges posed by the pandemic. Earlier improvements in national statistical systems, a wide range of ICT solutions and the sourcing of census data from administrative registers have enabled these countries to significantly reduce their reliance on physical contact for tasks such as final preparation of field activities, training and data collection. The experience has confirmed the usefulness of these efforts and will likely further accelerate the pace of innovation, even though most of these countries expect that farmers’ non-response rates will be higher than in the past. At the same time, the COVID-19 crisis has been a lesson to other countries on the need to improve the working environment, diversify census data collection and training methods, and make use of administrative registers in future census rounds.
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Fjeldstad, Odd-Helge, Merima Ali, and Lucas Katera. "Policy implementation under stress." Journal of Financial Management of Property and Construction 24, no. 2 (August 5, 2019): 129–47. http://dx.doi.org/10.1108/jfmpc-10-2018-0057.
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Purpose Inter-organisational cooperation in revenue collection has received limited attention in the tax administration literature. Recent experiences from Tanzania offer a unique opportunity to examine opportunities and challenges facing such cooperation between central and local government agencies in a developing country context. The administration of property taxes (PT) in Tanzania has been oscillating between decentralised and centralised collection regimes. This paper aims to examine how inter-organisational cooperation affected implementation of the reforms. Design/methodology/approach The study draws on data from a variety of sources of information collected during a series of fieldworks over the past decade. Semi-structured interviews were conducted with a wide range of stakeholders, including senior managers and operational staff of the national and municipal tax administrations. The interviews focused on the background and objectives of the property tax reforms, working relations between the central and local government revenue administrations, technical and administrative challenges and innovations, and changes over time with respect to revenue enhancement and implementation of the reforms. Relevant tax legislation and regulations, budget speeches and reports were reviewed. Findings Two lessons of broader relevance for policy implementation and PT administration are highlighted. First, institutional trust matters. Top-down reform processes, ambiguity related to the rationale behind the reforms and lack of consultations on their respective roles and expectations have acted as barriers to constructive working relationships between the local and central government revenue agencies. Second, administrative constraints, reflected in poor preparation, outdated property registers and valuation rolls and inadequate incentives for the involved agencies to cooperate hampered the implementation of the reforms. Originality/value This paper contributes to the literature on inter-organisational cooperation in revenue collection through a detailed case study of property tax reforms in a developing country context. It also contributes to the literature on policy implementation by identifying political and administrative factors challenging the reform process. In line with this literature, the study shows that policy implementation is not necessarily a coherent process. Instead, it is frequently fragmented and disrupted by changes in policy formulation and access to adequate resources.
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Pye, Virginia. "Caseload management framework for public health nurses in the Republic of Ireland." British Journal of Community Nursing 25, no. 1 (January 2, 2020): 27–33. http://dx.doi.org/10.12968/bjcn.2020.25.1.27.
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This article outlines the steps taken in a change management project to develop and implement a national caseload management framework for clinical nursing activities within public health nursing services in the Republic of Ireland. It involved the development of metrics, definitions, data collection resources and relevant written procedures. It was developed and implemented over a period of 12 months and involved the engagement and involvement of approximately 2000 frontline, management and administrative staff. Implementation was challenging due to the lack of software systems to collect and return data and support caseload management. Alternative IT-based data collection systems were identified, and work is ongoing to develop additional metrics and resources that will continue to support caseload management.
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Kaushik, Gaurav, Amit Gupta, Subodh Kumar, Kapil Dev Soni, and Ankita Sharma. "A Registry Software for Road Traffic Injury Patients at Apex Trauma Centre in India: An Innovation." Prehospital and Disaster Medicine 34, s1 (May 2019): s163. http://dx.doi.org/10.1017/s1049023x19003704.
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Introduction:A trauma registry is a disease-specific data collection composed of a file of uniform data elements that describe the injury even, demographics, prehospital information, diagnosis, care, outcomes, and costs of treatment for injured patients.Aim:To establish a trauma registry system on an electronic platform enabling data capturing through Android phones.Methods:A software has been developed for the registry data collection for road traffic injury patients arriving at JPNATC, AIIMS, New Delhi. The software has been designed to use in the Emergency Department on Android phones/laptops with internet access.Result:A detailed registry data set has been prepared to enter prehospital, in-hospital, and post-discharge details of all the admitted patients. This includes demographic data, prehospital data, injury event data, vital signs within 24-hrs of arrival, ED disposition (date and time), operative procedures within 48 hours of arrival, chest x-ray (date and time), CT (date and time), ventilation days, ICU-stay days, hospital disposition (date and time), injury coding data (region, severity level, ISS, AIS, ICD-10) and Others, e.g., first neurosurgical consultation (date and time) and first blood transfusion (date and time). There are two panels for this software; one for user panel and another for the administrative panel. User panel is being used for data collection by the trained data collectors 24/7 at the emergency department on a rotation basis. The administrative panel is accessible to only the investigator or other authorized persons. The administrative panel and user panels are password protected. The entered data is being saved in a spreadsheet in the backend and can be used for periodic data quality check and data analysis.Discussion:There is no trauma registry in India so far for the road traffic injury patients. Present innovation would lay the foundation of national Trauma Registry in India.
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Stuart, Claire, Andrew McKeown, Angela Henderson, and Chloe Trew. "Adults with learning disabilities known to local authorities in Scotland: a national dataset." Tizard Learning Disability Review 20, no. 1 (January 5, 2015): 15–23. http://dx.doi.org/10.1108/tldr-04-2014-0007.
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Purpose – Learning Disability Statistics Scotland collects information on adults with learning disabilities who are known to local authorities in Scotland and the services they use. The data collection supports national and local government policy making and is focused on monitoring the implementation of learning disability policy. The paper aims to discuss these issues. Design/methodology/approach – Individual level data are requested from all 32 local authorities on adults aged 16-17 who are not in full-time education and those aged 18 and over. Annual data guidance is developed in conjunction with local authorities prior to the collection and is issued to standardise the process and manage avoidable error. The collated data are extracted from local authority administrative data and records are provided on each adult regardless of whether they are currently receiving a service. Anonymisation takes place prior to upload and strict guidelines are followed to ensure it is not possible to identify individuals. Findings – The paper provides insights to the project's processes, uses, challenges and future plans. It details the position of the data outputs within a policy context and the role these might play within a broader research agenda. Research limitations/implications – This data includes only adults known to local authority services. Originality/value – The value of the project lies in its strength as a national social care data set comprised of individual level data. This methodology increases the analytical potential of the data set. This paper will be of interest to those interested in data on learning disability and those with an interest in the analytical potential of an individual level national data set.
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Dube, Yolisa Prudence, Corrine Warren Ruktanonchai, Charfudin Sacoor, Andrew J. Tatem, Khatia Munguambe, Helena Boene, Faustino Carlos Vilanculo, et al. "How accurate are modelled birth and pregnancy estimates? Comparison of four models using high resolution maternal health census data in southern Mozambique." BMJ Global Health 4, Suppl 5 (June 2019): e000894. http://dx.doi.org/10.1136/bmjgh-2018-000894.
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BackgroundExistence of inequalities in quality and access to healthcare services at subnational levels has been identified despite a decline in maternal and perinatal mortality rates at national levels, leading to the need to investigate such conditions using geographical analysis. The need to assess the accuracy of global demographic distribution datasets at all subnational levels arises from the current emphasis on subnational monitoring of maternal and perinatal health progress, by the new targets stated in the Sustainable Development Goals.MethodsThe analysis involved comparison of four models generated using Worldpop methods, incorporating region-specific input data, as measured through the Community Level Intervention for Pre-eclampsia (CLIP) project. Normalised root mean square error was used to determine and compare the models’ prediction errors at different administrative unit levels.ResultsThe models’ prediction errors are lower at higher administrative unit levels. All datasets showed the same pattern for both the live birth and pregnancy estimates. The effect of improving spatial resolution and accuracy of input data was more prominent at higher administrative unit levels.ConclusionThe validation successfully highlighted the impact of spatial resolution and accuracy of maternal and perinatal health data in modelling estimates of pregnancies and live births. There is a need for more data collection techniques that conduct comprehensive censuses like the CLIP project. It is also imperative for such projects to take advantage of the power of mapping tools at their disposal to fill the gaps in the availability of datasets for populated areas.
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Bavdaž, Mojca, Deirdre Giesen, Simona Korenjak Černe, Tora Löfgren, and Virginie Raymond-Blaess. "Response Burden in Official Business Surveys: Measurement and Reduction Practices of National Statistical Institutes." Journal of Official Statistics 31, no. 4 (December 1, 2015): 559–88. http://dx.doi.org/10.1515/jos-2015-0035.
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Abstract Response burden in business surveys has long been a concern for National Statistical Institutes (NSIs) for three types of reasons: political reasons, because response burden is part of the total administrative burden governments impose on businesses; methodological reasons, because an excessive response burden may reduce data quality and increase data-collection costs; and strategic reasons, because it affects relations between the NSIs and the business community. This article investigates NSI practices concerning business response burden measurement and reduction actions based on a survey of 41 NSIs from 39 countries. Most NSIs monitor at least some burden aspects and have implemented some actions to reduce burden, but large differences exist between NSIs’ methodologies for burden measurement and actions taken to reduce burden. Future research should find ways to deal with methodological differences in burden conceptualization, operationalization, and measurement, and provide insights into the effectiveness and efficiency of burden-reduction actions.
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Sims, Andrew, Kim Keltie, Emma Belilios, Julie Burn, Liz Brown, Aaron Jackson, Steven Powell, Sue Jones, and Adam Donne. "Our experience in developing and operating the Airway Intervention Registry for Recurrent Respiratory Papillomatosis (AIR-RRP): national data collection." NIHR Open Research 2 (February 24, 2022): 22. http://dx.doi.org/10.3310/nihropenres.13244.1.
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Recurrent respiratory papillomatosis (RRP) is characterised by benign wart-like growths in the respiratory tract caused by the human papillomavirus (HPV). These warts vary in size and grow quickly, causing voice changes and airway obstruction. Whilst the condition is rare, RRP is more common and aggressive in children. There is currently no curative treatment for HPV, therefore RRP is managed by maintaining a safe airway and a serviceable voice by repeated surgery to remove the growths. A lack of specific diagnostic codes prevents reliable case ascertainment of RRP from routine administrative databases such as Hospital Episode Statistics. To determine RRP burden in the UK, we conducted a cross-sectional survey of ENT consultants; 283 responded, identifying 918 RRP patients, half of whom received surgical intervention for RRP in the previous 12 months with 16 different interventions reported. Randomised controlled trials for RRP interventions are difficult due to the rarity of the disease, variation in severity and progression and non-standard care across the NHS. Consequently, there is a lack of definitive efficacy and safety evidence. The only national guidance for RRP interventions is “Radiofrequency cold ablation for respiratory papillomatosis” (NICE IPG434, 2017) which recommended further data collection due to lack of evidence. However, due to the wide variation in RRP management across the NHS, clinical opinion favoured that any data collection should include a comparison of safety and efficacy of all RRP interventions in order to advise which improved patient outcomes and quality of life. To address lack of evidence, and inform the future care of RRP patients, we developed a registry and used it to collect real-world data from patients receiving treatment for RRP in NHS hospitals across the UK. The purpose of this paper is to share lessons learned from this national data collection exercise to inform future clinical registry development.
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Chekol, Yayew Genet, Alemu Asfaw Nigusie, and Mulunesh Dessie Admasu. "Social protection and local government in Ethiopian private organization: the case of Ayehu and Birshelko privatized farm workers." Revista de Investigaciones Universidad del Quindío 34, no. 1 (November 24, 2022): 259–73. http://dx.doi.org/10.33975/riuq.vol34n1.744.
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This paper tried to investigate the social protection dimension in terms of the nature of citizenship and local government among the workers of Ayehu and Birshelko privatized farm investments in Amhara National Regional State of Ethiopia. Methodologically, a mixed research approach with a sequential exploratory design was used, whereby qualitative data was first collected, followed by quantitative data. Such methods of data collection as interviews, focus group discussions, observation, document review and questionnaires were employed to gather empirical data. Accordingly, the study found out that the workers in these two farms are organized under a kebele government administrative structure, just like other citizens of Ethiopia; they obtain some governmental services and social provisions. However, the workers also face serious challenges by virtue of being located on farms that are delinked from the neighboring rural communities, and they are at the periphery concerning basic government services. These predicaments basically emerge from the structural fault lines of kebele administrative logic and the lack of proper implementation of the citizenship rights as stipulated in the constitution.
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Joyce, Catherine M., and Leon Piterman. "Nurse - patient encounters in general practice: patterns in general practitioner involvement and use of nurse-specific Medicare items." Australian Journal of Primary Health 16, no. 3 (2010): 224. http://dx.doi.org/10.1071/py10009.
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A significant gap exists in knowledge about general practice nurses’ (GPNs) patient care activities, despite their now strong presence in Australian general practice. The aim of this paper is to explore the extent of direct general practitioner (GP) involvement in nurse–patient consultations, and to compare consultations where nurse-specific Medicare items were claimable with consultations where they were not. Data from the Practice Nurse Work Survey, a national cross-sectional survey conducted between May 2007 and May 2008, were analysed. Of the total 5253 nurse–patient encounters, 29% did not involve any contact between the patient and a GP, either directly before, during or directly after the nurse consultation. Encounters without GP involvement were more likely to be indirect (e.g. by telephone) and off-site (e.g. home visits), and had higher rates of administrative actions such as documentation and arranging visits. Nurse-specific Medicare item numbers applied in less than half (42%) of nurse–patient encounters. Encounters where no such item applied were more likely to involve medical examinations, blood tests, electrical tracings, physical function tests, removal of sutures, test results, assisting at operations and preparing for procedures. These results confirm that existing data collections do not capture the extent and nature of GPNs’ clinical work.
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Chapman, Roger J., and Philip J. Smith. "Asynchronous Communications to Support Distributed Work in the National Airspace System." Proceedings of the Human Factors and Ergonomics Society Annual Meeting 46, no. 1 (September 2002): 41–45. http://dx.doi.org/10.1177/154193120204600109.
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This research involved the evaluation of a multimodal asynchronous communications tool to support collaborative analysis of post-operations in the National Airspace System (NAS). Collaborating authors have been shown to provide different feedback with asynchronous speech based communications compared to text. Voice synchronized with pointing in asynchronous annotation systems has been found to be more efficient in scheduling tasks, than voice-only, or text only communication. This research investigated how synchronized voice and pointing annotation over asynchronously shared slide shows composed of post operations graphical and tabular data differs in its effect compared to text based annotation, as collections of flights ranked low by standard performance metrics are discussed by FAA (Federal Aviation Administration) and airline representatives. The results showed the combined problem solving and message creation time was shorter when working in the voice and pointing mode than the text based mode, without having an effect on the number and type of ideas generated for improving performance. In both modes the system was also considered useful and usable to both dispatchers and traffic managers.
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Hassell, Kathryn L., James R. Eckman, Elizabeth S. Klings, Robert J. Adams, Julie A. Panepinto, Tracey Grant, Wayne Huggins, et al. "Sickle Cell Disease Measures in the Phenx Toolkit." Blood 126, no. 23 (December 3, 2015): 281. http://dx.doi.org/10.1182/blood.v126.23.281.281.
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Abstract Background: Common measures and common data elements (CDEs) for sickle cell disease (SCD) are needed to help improve data quality and data comparability necessary for meta-analyses, guidelines development, and implementation science. In recent years, the National Heart, Lung, and Blood Institute (NHLBI) has undertaken several activities to develop CDEs and measures for SCD. These include developing 1) the Sickle Cell Quality of Life Measurement Information System (ASCQ-Me); 2) clinical practice recommendations for the management of SCD; and 3) a lexicon and consensus definitions for the most frequently occurring complications of SCD. In 2014, the NHLBI funded an Administrative Supplement to the PhenX Toolkit to identify common measures to further promote data comparability across SCD research. The Web-based PhenX Toolkit (consensus measures for Phen otypes and eX posures, https://www.phenxtoolkit.org/) provides a catalog of 449 standard measures and associated interoperability resources to help investigators improve quality of data collection and identify opportunities for collaborative research. The development and maintenance of PhenX Toolkit content is driven by the scientific research community. A Steering Committee, comprised of 11 scientists with a wide range of expertise, provides overarching guidance for the project and Working Groups (WG) of subject matter experts select measures for inclusion the PhenX Toolkit. Methods: An 11 member Sickle Cell Disease Research and Scientific Panel (SRSP) was assembled to provide guidance to the project, establish a Core Collection of SCD-related measures, and to define the scope of two Specialty Collections: 1) Cardiovascular, Pulmonary, and Renal Complications and 2) Neuroglogy, Quality of Life, and Health Services. For each Specialty Collection, a Working Group (WG) of seven SCD experts was convened to select high priority measures for inclusion in the Toolkit. Each WG selected representative measures available in the published literature or already in the Toolkit using a consensus process which included input from the scientific community. For each measure, the Toolkit provides a description of the measure, the rationale for its inclusion, detailed protocol(s), and supporting documentation. The Toolkit also provides data collection worksheets and data dictionaries to help integrate PhenX measures into their study design. To support investigators who want to collect data via the Web, PhenX protocols are available as REDCap Instrument Zip files. Results: The Sickle Cell Disease Core and Specialty Collections were released into the Toolkit in August of 2015. The Core Collection, which includes 25 measures covering demographics, socioeconomic status, anthropometrics, pulse oximetry, hemoglobin characterization, history of transfusion, and SCD-related pain episodes, is recommended for use by all NHLBI-funded investigators performing human subjects SCD research. The Specialty Collections are recommended for use within more specialized research areas. The Cardiovascular, Pulmonary, and Renal Specialty Collection includes 11 measures that address heart disease, lung function, and biomarkers for hemolysis, anemia, and iron overload. The Neurology, Quality of Life, and Health Services Specialty Collection includes 8 measures that address developmental delays, stroke risk factors and outcomes, quality of life, and quality of care. A list of other potentially relevant measures from the Toolkit was also developed and annotated for SCD. These measures, including the process, criteria, and rationale for their selection, will be presented. We now have consensus phenotypes of complications in SCD that are available for use in future clinical and epidemiologic studies and for use in harmonizing data across previous studies Implications: For researchers, adoption and use of PhenX standard measures will promote collaborations with clinicians and patients, facilitate cross-study analysis domestically and internationally, accelerate translational research, and lead to greater understanding of phenotypes and epigenetics in SCD. For clinicians, using PhenX measures will help improve patient care and quality of life. Consistent use of these standard measures will establish a common currency to help better understand the etiology, progression, and treatment of SCD. Funding provided by U01 HG004597 and U41 HG007050. Disclosures Klings: Pfizer: Consultancy; Actelion Pharmaceuticals: Research Funding. Panepinto:HRSA, NIH: Research Funding; NKT Therapeutics, Inc: Consultancy.
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Ahsan, Muhammad, Muhammad Saeed Nasir, and Noshaba Younus. "Discovering the Impact of National Language use in L2 learning on the Proficiency of Learners." Global Social Sciences Review VI, no. II (June 30, 2021): 17–29. http://dx.doi.org/10.31703/gssr.2021(vi-ii).03.
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Discovering the impact of national language use in L2 learning on the proficiency of learners at degree level was the focus of this research; in order to find out a clear comprehension of the current subject matter, the research aimed at 577 learners who were learning English at graduation level in different public sector colleges and universities of the Southern Punjab, Pakistan. For this study, the researcher used a questionnaire as a data collection tool. The data analysis was done using SPSS (statistical package for social sciences) version 23. The researcher analyzed the data using descriptive analysis, analysis of variance (ANOVA), T-Test and Cronbach's alpha. The findings of the present research depicted that the students exhibited extremely positive and constructive perceptions regarding the use of national language in the second language classroom. The majority of the respondents gave preference using Urdu in specific situations for enhancing their proficiency in specific reasons such as while discussing course policies, learning about grammar and its usage in L2 classroom, attendance, and other administrative information.
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Sumuan, Cindy Fitria, and Fidiana Fidiana. "Tax Sanctions from the Authority Perspective." Jurnal Ilmiah Akuntansi dan Bisnis 15, no. 1 (January 20, 2020): 107. http://dx.doi.org/10.24843/jiab.2020.v15.i01.p10.
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Tax sanctions are imposed by national and local tax authorities to provide a deterrent effect and encourage taxpayer compliance. This research aims to investigate the application of tax sanctions from the perspective of tax authorities. This is a qualitative research that recruited three informants from the tax authorities in the Surabaya Sawahan Tax Office. In-depth interviews comprised the data collection technique used in this research. Data analysis involved data reduction, data presentation and conclusion, and verification. Results showed that the tax sanctions in the Surabaya Sawahan Tax Office have been implemented in accordance with the legal procedures and regulations. Administrative sanctions can be applied through the issuance of tax collection letters conducted through prior research, and criminal sanctions can be imposed by the tax authorities as a last resort.
Keywords: Tax sanctions; tax authorities; gijzeling; tax compliance
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Subahri, Bambang, Amiruddin Hadi, and Ni'mah Lailatul Mas'adah. "Manajemen Administrasi BAZNAS pada Program SDGs di Era Pandemi." Idarotuna : Journal of Administrative Science 2, no. 1 (May 13, 2021): 57–74. http://dx.doi.org/10.54471/idarotuna.v2i1.5.
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Baznas is govermental institution non-structural which is independent and it has responsibility to the president throught the ministery which has obligation on the management of national zakat. Therefore, within the operational process of the administrative must be implememted professional and adapt the growth era. Based on the context of finding research that examined the program of Sustainable Development Goals (SGDs) concerning to the administrative management such as the payment of Zakat Maal, Infaq and Shodaqoh via e-banking using the application of SIMBA. The research tried to examined the step of strategic management would be done by BAZNAS Jember in Pandemic era and to know the management of adminstrative as the program of SDGs BAZNAS Jember in this Pandemic era. The method of research conducted was qualitative-descriptive. The data collection using deep interview, observation and documentation. And the data analysis was the interactive analysis concists of four related components, namely data collection, reducing, conclusiom. Thus, the reliability of research used triangulation. The resarch revealed that the management of strategy were planning formulation, planning implementation, and evaluation for each planning. The first step was formulate the planning, formulate the SDGs Village and evaluate the planning with the correction of planned program by seeing the target wether achieved or not.
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Situmorang, Benri. "Utilization of The Mobile Application of National Health Insurance (JKN) To Increase The Effectiveness of Services BPJS Insurance In Sibolga." Science Midwifery 10, no. 5 (December 6, 2022): 4065–71. http://dx.doi.org/10.35335/midwifery.v10i5.883.
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Currently, the government has developed several mobile applications for the National Health Insurance (JKN) to facilitate services for patients. The development of some of these applications aims to help consumers and support patient-centered decisions in choosing which benefits to choose (Bundorf et al., 2019). The digital transformation of the Badan Penyelenggara Jaminan Sosial (BPJS) is to provide convenience for BPJS users or the public, such as paying BPJS contributions, changing membership data, knowing family participant data, etc (Kipo-Sunyehzi, 2021). The aims of this study is to determine the use of the national health insurance application (JKN) to increase the effectiveness of BPJS health services in the city of Sibolga. The type of research taken is descriptive research with a qualitative approach. This study took as many as four resource persons. While the data collection technique is using the technique of observation, interviews and documentation. The results showed that through the national health insurance (JKN) mobile application, all administrative services at the Sibolga City BPJS office for patients became more effective and efficient. This shows that the benefits of the JKN mobile application have proven to be very helpful in accessing BPJS health services.