Journal articles: 'Mothers of children with disabilities – Biography'

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Parchomiuk, Monika. "Mothers with Intellectual Disabilities Raising Children with Intellectual Disabilities." Journal of Intellectual Disability - Diagnosis and Treatment 4, no. 4 (January 20, 2017): 204–16. http://dx.doi.org/10.6000/2292-2598.2016.04.04.3.

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Parish, Susan L., Roderick A. Rose, Jamie G. Swaine, Sarah Dababnah, and Ellen Tracy Mayra. "Financial Well-being of Single, Working-age Mothers of Children with Developmental Disabilities." American Journal on Intellectual and Developmental Disabilities 117, no. 5 (September 1, 2012): 400–412. http://dx.doi.org/10.1352/1944-7558-117.5.400.

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Abstract Understanding the financial well-being of single mothers who care for children with developmental disabilities is important to ensure that public policies can be effectively targeted to support these vulnerable families. The authors analyze data from the Survey of Income and Program Participation to describe income poverty, asset poverty, income, net worth, and liquid assets of U.S. single, working-age mothers (n = 242) of children and adult children with developmental disabilities. The well-being of these mothers was compared to the situation of married mothers of children with developmental disabilities (n = 345) and of single mothers who did not have children with developmental disabilities (n = 6,547). Compared with both married mothers of children with developmental disabilities and single mothers without children with developmental disabilities, single mothers of children with developmental disabilities had markedly worse financial well-being across a range of income- and asset-based measures. Single mothers caring for children with developmental disabilities face adverse financial well-being as compared with other mothers. Policy makers should consider targeted measures to improve the financial well-being of these parents.

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Singh, Kishan Kumar. "Resilience in Mothers having Children with Disabilities." Chettinad Health City Medical Journal 11, no. 03 (September 30, 2022): 23–29. http://dx.doi.org/10.24321/2278.2044.202225.

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In a developing society and community with limited rehabilitation and care services there are major challenges for mothers with disabled children and the responsibility of a child’s growth falls solely on the shoulders of the mother or caregivers. Understanding the resilience in mothers (caregivers) is becoming more important as a process in the area of disabilities, for quality development and caring of children with disabilities. The question tthat comes to mind is, what factors make some families do well in adverse conditions while others fight to keep their family life functional, when they are subjected to similar stresses? The aim of this research is to explore the role of resilience factors in mothers having children with disabilities. This study was conducted to assess the resilience of mothers who have children with disabilities. In this scientific study all 300 mothers (100 mothers with intellectual disability, 100 mothers with locomotor disability, and 100 mothers of normal children) were selected from northern India. The resilience scales were administered to assess the resilience variable; the scale has the 4-factor solution, which had 31 items: the alpha reliability coefficient was 0.95. The result of the study shows that the F-value for resilience in mothers of intellectually disabled children, children with locomotor disabilities and of normal children the F value for resilience is 198.379 which is significant at 0.001 levels of significance. This shows that there is difference within the group of mothers of intellectually disabled children, children with locomotor disabilities and normal children. Findings reveal that the level of resilience is different in mothers of intellectually disabled children, children with locomotor disablilities and normal children. The dentification of factors that promote resilience in mothers of children with intellectual disabilities is likely to advance clinical practice by providing new emphasis in clinical areas in family- centered care. Evidence supports the theory that resilience is linked to the availability and accessibility of culturally relevant resources. The results are especially important for building a group of resilient mothers who will be involved in their children’s recovery.

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Koivula, Tanja, Noora Ellonen, Staffan Janson, Carolina Jernbro, Heini Huhtala, and Eija Paavilainen. "Psychological and physical violence towards children with disabilities in Finland and Sweden." Journal of Child Health Care 22, no. 3 (February 7, 2018): 317–31. http://dx.doi.org/10.1177/1367493518757379.

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This article describes psychological aggression and physical violence by Swedish and Finnish mothers ( N = 3420) towards their 0- to 12-year-old children with disabilities ( N = 286) by comparing such behaviour with the mothers of children without disabilities ( N = 3134). The survey data are based on representative samples from Finland and Sweden of mothers’ reports of their behaviour towards their child in conflict situations. Mothers of children with disabilities reported more psychological aggression towards their child than did mothers of children without disabilities. Mothers used psychological aggression, especially towards children with neurological/psychological disabilities. However, the only significant difference regarding physical violence was repetitive use of mild physical violence. Overall, the analysis suggests that children with neurological/psychological disabilities are more exposed to both psychological and physical violence than children without disabilities or children with somatic/developmental disabilities.

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Ceylan, Remziye, and Neriman Aral. "Association of Depression in Mothers of Disabled Children with the Child's Participation in Integrated Education." Perceptual and Motor Skills 105, no. 2 (October 2007): 649–53. http://dx.doi.org/10.2466/pms.105.2.649-653.

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To measure depression in mothers of 5 to 7-yr.-old children with disabilities and to find out whether mothers' depression varied by sex of the child, 126 mothers from Ankara participated; 59 were mothers of children with disabilities who participated in integrated education and attended preschool classes in public schools and, as a comparison group, 67 were mothers of children with disabilities of similar age and characteristics who did not participate in integrated education while attending public and private schools. In the study, the Beck Depression Scale and General Information Forms were used. Depression in mothers of children with disabilities who did not participate in integrated education was higher than in mothers of children with disabilities who participated in integrated education.

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Johnson, Barbara Schoen. "Mothers' Perceptions of Parenting Children With Disabilities." MCN, The American Journal of Maternal/Child Nursing 25, no. 3 (May 2000): 127–32. http://dx.doi.org/10.1097/00005721-200005000-00005.

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Ovina Intiyaskanti, Resita, Erti Ikhtiarini Dewi, and Enggal Hadi Kurniyawan. "Overview of Coping Mechanism Mother of Children With Disabilities in SDLB Negeri Tompokersan Lumajang." Nursing and Health Sciences Journal (NHSJ) 1, no. 2 (October 26, 2021): 88–96. http://dx.doi.org/10.53713/nhs.v1i2.25.

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Mothers who have children with disabilities have many problems and barriers. The research aims to describe mother’s coping mechanisms for children with disabilities in SDLB Negeri Tompokersan Lumajang. Respondents in this study were 54 mothers that were taken with purposive sampling technique with brief cope instrument. The result showed mother’s age have a median value of 39.50 years and the child's age have a median value of 11 years. Mothers who have children with disabilities have 1 child with disabilities in the family (96.3%) in order of disabled children in the main family of the first child (55.4%). The majority of mothers' last education is elementary school (35.2%) and The majority of the marital status is married (96.3%). Types of disabilities that are mostly experienced are intellectual disabilities (61.1%). The description of a mother’s coping mechanism in children with disabilities has a mean of 86.46. It is shown that the dominant indicators for respondents include religion (mothers believe there is wisdom in the problem), behavioral disengagement (mothers fulfill their education rights and provide therapy or medication), and substance use (mothers do not use drugs to protect themselves). Further researchers can identify mother’s motivation in caring for children with disabilities

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Mondol, Md Rasheduzzaman, Muhammad Tanvir Faysol, and Md Shaheen Sikder. "Developmental disabilities of children and their health outcomes." Bangladesh Journal of Scientific Research 29, no. 1 (September 27, 2016): 55–62. http://dx.doi.org/10.3329/bjsr.v29i1.29758.

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A study was conducted among 155 mothers of disabled children. The health outcome of disabled children in Bangladesh focuses overall on their health status. The cross sectional study was carried out in Bangladesh Protibondhi foundation and Society for the welfare of the Intellectual disability from august 2014 to March 2015. The analysis shows that age of most of the mothers of disabled children were between 30 and 39 years and the disabled children were their first baby. The mothers who had less than 3 antenatal visits have a great chance of having a developmental disabled child. Among 155 respondents, 27 per cent had autism and 72.9 per cent had other disabilities (Cerebral palsy, Down syndrome and intellectual disability). 35.5 per cent blood groups of fathers and mothers of children with developmental disabilities have different positive blood groups. After birth weight of 58.71 per cent baby with developmental disabilities were from 1.00 - 2.00 kg which is a low birth weight. About 70 per cent of mothers have not given exclusive breastfeeding to their disabled child. Only 29 per cent of mothers have given exclusive breastfeeding. There is a significant relationship between having delivery without skilled birth attendants and health outcomes of children. 57.7 per cent mothers with disabilities (Cerebral palsy, intellectual disability and Down syndrome) and 42.3 per cent mothers who had deliveries through non-skilled birth attendants gave birth to autistic babies. 9.1% mothers having history of violence during pregnancy gave birth to autistic babies and 90.9% mothers having history of violence during pregnancy gave birth to babies with other disabilities.Bangladesh J. Sci. Res. 29(1): 55-62, June-2016

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Ushakova, Vladislava. "EMOTIONAL ATTITUDE OF A MOTHER FOR A CHILD WITH DISABLED HEALTH." Living psychology 7, no. 4 (January 30, 2021): 9–18. http://dx.doi.org/10.51233/2413-6522-2021-9-18.

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The article is devoted to the problem of the emotional attitude of mothers to children with disabilities. The study involved 247 mothers of children with disabilities - 67 mothers of children with mental retardation, 60 mothers of children with general speech underdevelopment, 60 mothers of children with mental retardation and 60 mothers of children with autism spectrum disorder, the average age of children is 7.4 years. The distinctive features of the emotional attitude of mothers to children with various nosologies were identified and analyzed according to criteria such as justifying expectations, optimal emotional contact, excessive concentration on the child (overprotection), and emotional distance from the child (hypocaution). The emotional involvement of the mother in the process of interaction with a child with disabilities was determined.

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Kurniawan, Aditya, Nanda Wulandari, and Reny Yuniasanti. "A Support Program For Mothers As Caregivers Of Children With Disabilities In Indonesia." International Journal Of Community Service 2, no. 1 (February 16, 2022): 17–21. http://dx.doi.org/10.51601/ijcs.v2i1.68.

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As primary caregivers of children with disabilities, mothers in Javanese society play a significant role in nurturing a child's independence. However, the families often blame mothers when giving birth to children with disabilities. Preliminary data showed that mothers with children with disabilities tend to have a high sense of guilt upon their children's conditions and lack knowledge of supporting child growth. The mothers also have lack support from their spouses and families. These situations make mothers experience mental and physical exhaustion, chronic stress, irritability, and lack of confidence, which leads to ineffective parenting strategies. The program's purpose is to equip caregivers with knowledge of stress management and effective parenting strategies for children with disabilities.

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Yanuar, Deni, Zakirah Azman, and Eni Tri Retnaningsinh. "Komunikasi Interpersonal Ibu Tunggal dan Anak Penyandang Disabilitas." Jurnal Komunikasi Global 8, no. 2 (December 31, 2019): 240–57. http://dx.doi.org/10.24815/jkg.v8i2.15278.

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This study aims to find out the interpersonal communication between single mothers with their children with disabilities in Aceh. The research used symbolic interaction theory with a qualitative descriptive approach. The subject of this study was a single mother who has children with disabilities studying at SMALB YPPC Banda ACEH, selected using a purposive sampling technique. To collect data, the researchers deployed semi-structured interviews on three single mothers who have children with disabilities and observations of their interpersonal communication with their children. The results showed that interpersonal communication of single mothers and children with disabilities varies depending on the child's condition. Many mothers used non-verbal communication especially with deaf children and spoke slowly so that their children could easily understand. In the communication process, single mothers often faced obstacles to get feedback which sometimes caused misunderstandings. The quality of communication, in general, is good because the children demonstrated openness, empathy, support, and positive attitudes in communicating with their mothers.

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Kishore, M. Thomas. "Disability impact and coping in mothers of children with intellectual disabilities and multiple disabilities." Journal of Intellectual Disabilities 15, no. 4 (December 2011): 241–51. http://dx.doi.org/10.1177/1744629511431659.

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Understanding the disability impact on parenting and caregiving is important for intervention. The present study was designed to understand the differences in perceived disability impact and related coping in mothers having children with intellectual disabilities alone compared to those having children with intellectual disabilities and additional disabilities. Accordingly, 30 mothers of children with intellectual disabilities and 30 mothers of children with intellectual and additional disabilities were assessed for disability impact and coping. Group differences for disability impact were present in specific domains but not overall. Despite variations in coping pattern, both positive and negative coping strategies were observed in both groups. The results may imply that the impact of intellectual disability is so pervasive that except in certain domains mothers may not perceive the further impact of additional disabilities. Positive coping does not rule out negative coping strategies. These findings have specific relevance to service delivery in a cultural context.

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Kim, Jieun, and Sunyoung Kim. "Positioning of Korean Immigrant Mothers of Children with Disabilities." International Journal of Multicultural Education 19, no. 3 (October 31, 2017): 41. http://dx.doi.org/10.18251/ijme.v19i3.1362.

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This study examines the ways in which Korean immigrant mothers take up roles to position themselves while they engage in their children’s education across a wide range of settings—academic, social, and linguistic. Data sources included interviews with four Korean mothers, home and community observations, and field notes. Positioning theory is a research approach that provides a useful analytic means for understanding positioning of Korean immigrant mothers as being parents of children with disabilities attending American schools. The results demonstrate that Korean immigrant mothers seek to learn how to be supportive mothers of children with disabilities by negotiating and facilitating contextual affordances and limitations between home, school, and community in order to obtain valuable potential resources for their children’s linguistic repertories and social skill development and their future success.

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Kovalenko, Alla, Tetyana Traverse, and Eliso Hryshchuk. "IMAGES OF OWN FUTURE OF MOTHERS HAVING CHILDREN WITH DISABILITIES." SOCIAL WELFARE: INTERDISCIPLINARY APPROACH 2, no. 8 (July 7, 2019): 106. http://dx.doi.org/10.21277/sw.v2i8.388.

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The article presents the results of research on images of own future for mothers having children without health problems and with disabilities. The studied time perspective and content of adults’ images show that both groups are future oriented.The differences in the psychological characteristics and time perception of the mothers having children without health problems and with disabilities are the following: the mothers having children with disabilities are more negatively perceive the past and estimate higher the present (both hedonistic and fatalistic); mothers having children without health problems percept the past more positively.The content of images of the future presented by the mothers having children with disabilities is characterized by emphasis on the health of their children and family, on their desire to be more “stronger”, to have more full-fledged life.There is the statistically significant difference between the groups concerning time perception, namely, the mothers having children with disabilities perceive the past negatively and the present (hedonistic and fatalistic) more positively; the mother having children without health problems have a higher level of awareness of life, higher indicators of locus of control, but lower self-actualization, lower personal anxiety; whereas the mothers having children with disabilities have higher self-actualization (especially for synergy and human nature), higher anxiety (both reactive and personal).The peculiarities of time perception are determined by the psychological characteristics of mothers (their awareness of life and its components, self-actualization and its components), which is reflected in multiple correlations.

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Yim, Shin Young, Hae Won Moon, Ueon Woo Rah, and Il Yung Lee. "Psychological characteristics of mothers of children with disabilities." Yonsei Medical Journal 37, no. 6 (1996): 380. http://dx.doi.org/10.3349/ymj.1996.37.6.380.

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Gordon, Meg, Monica Cuskelly, and Linda Rosenman. "Influences on Mothers' Employment When Children Have Disabilities." Journal of Policy and Practice in Intellectual Disabilities 5, no. 3 (September 2008): 203–10. http://dx.doi.org/10.1111/j.1741-1130.2008.00174.x.

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Wickham-Searl, Parnel. "Careers in Caring: Mothers of Children with Disabilities." Disability, Handicap & Society 7, no. 1 (January 1992): 5–17. http://dx.doi.org/10.1080/02674649266780021.

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Chou, Yueh-Ching, Teppo Kröger, and Cheng-yun Pu. "Underemployment among mothers of children with intellectual disabilities." Journal of Applied Research in Intellectual Disabilities 31, no. 1 (February 16, 2017): 152–58. http://dx.doi.org/10.1111/jar.12336.

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Al-Yagon, Michal. "Fathers and Mothers of Children With Learning Disabilities." Learning Disability Quarterly 38, no. 2 (February 10, 2014): 112–28. http://dx.doi.org/10.1177/0731948713520556.

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Jacob, Jean, Megan Kirshbaum, and Paul Preston. "Mothers with Physical Disabilities Caring for Young Children." Journal of Social Work in Disability & Rehabilitation 16, no. 2 (March 2017): 95–115. http://dx.doi.org/10.1080/1536710x.2017.1299660.

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FELKER, KITTY S. "Are Children with Disabilities “Special Gifts”? Mothers' Views." Counseling and Values 36, no. 1 (October 1991): 58–61. http://dx.doi.org/10.1002/j.2161-007x.1991.tb00780.x.

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TRAUSTADOTTIR, RANNVEIG. "Mothers Who Care." Journal of Family Issues 12, no. 2 (June 1991): 211–28. http://dx.doi.org/10.1177/019251391012002005.

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Based on a qualitative study of families of children with disabilities, this article examines the role of gender in caring for a child with a disability. Findings reveal caring as a complex phenomenon that has at least three meanings: (a) “caring for,” which refers to the caregiving work, (b) “caring about,” referring to the love, and (c) “the extended caring role,” when mothers of children with disabilities extend their caring to a broader societal concern. The findings, which suggest that the responsibilities for caring are still ascribed on the basis of gender, are discussed in relation to traditional disability family studies and the situation of women in today's society.

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Lee, Yoon Joo, Hye June Park, and Seung Yeon Lee. "Learning to Live With Ambiguity: Rethinking Ambiguous Loss for Mothers of Children With Disabilities." SAGE Open 12, no. 2 (April 2022): 215824402210950. http://dx.doi.org/10.1177/21582440221095014.

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The purpose of this study was to explore the mothering experiences of children with disabilities. The theory of ambiguous loss was applied to interpret the meanings that mothers give to the process of caregiving and the ways they stay proactive in the midst of challenges. Eleven mothers of children ages 6 to 35 with various disabilities participated in in-depth interviews to talk about their child’s educational history, their family’s routine, and the rewards and challenges of raising a child with disabilities. Findings illustrate that the mothers faced different experiences of ambiguity depending on the visible or invisible nature of their child’s disabilities. However, regardless of the nature of the disabilities, the mothers had learned to live with ambiguity in the face of new and continuous challenges. They did this by redefining their lives through maintaining valued identities as mothers and redefining the meaning of family. Findings also imply that the scope of ambiguous loss needs to be expanded.

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Βουγιούκας, Κωνσταντίνος, Μαρία Τζουριάδου, Γεώργιος Μενεξές, Μαρία Γκέκα, and Λητώ Ελένη Μιχαλοπούλου. "Intellectual disability and mothers' stressors: A Greek Paradigm." Psychology: the Journal of the Hellenic Psychological Society 21, no. 4 (October 15, 2020): 421. http://dx.doi.org/10.12681/psy_hps.23510.

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Ongoing research has demonstrated higher levels of stress for parents of children with intellectual disabilities than in parents of typically developed children. Three major source domains of parental stress include comorbid conditions, parental characteristics and parents’ life situations. The aim of this study was the investigation of Greek mothers’perceptions of the characteristics of their intellectually disabled children and their life situations as stressors. The research was carried out in Rhodes, Greece. The study sample consisted of fifty-nine mothers ofchildren diagnosed with moderate intellectual disabilities with and without comorbid conditions. Interviews were used to collect the data. Main findings were that stress varies among mothers of children with intellectual disabilities and that children comorbid conditions appear to be the most important maternal stress factor. Family support should be based on the partnership-empowerment model. Further research on family needs of children with intellectual disabilities is needed in Greece, so that children find partnership and support throughout their lives.

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Alwhaibi, Reem Mohammed, Uzma Zaidi, Ebtesam Alzeiby, and Adel Alhusaini. "A comparative study of socioeconomic status, perceived social support and psychological distress of mothers of children with and without disabilities." International Journal of Therapy and Rehabilitation 26, no. 9 (September 2, 2019): 1–16. http://dx.doi.org/10.12968/ijtr.2018.0019.

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Background/Aims Quality of life has been defined as a measure of a person's physical wellbeing, psychological state, and social relationships. However, comparisons of psychological distress, socioeconomic status, and social support between mothers of children with and without disabilities have been limited, particularly in Saudi Arabia. The aim of this study is to comparatively evaluate the socioeconomic status, perceived social support, and psychological distress of mothers of children with and without disabilities. Methods The Socio-Demographic Information Form, the Multidimensional Scale of Perceived Social Support, and the Depression Anxiety Stress Scales were completed by 200 mothers of children with cerebral palsy or Down's syndrome and 100 mothers of children without disabilities. Results Welch's test indicated significant differences between the two groups on the total Depression Anxiety Stress Scales and all its subscales (<0.01) and the Multidimensional Scale of Perceived Social Support Friends subscale (0.02). Conclusions Mothers of children with disabilities perceived high levels of overall social support, which might have reduced their psychological distress. It is recommended for rehabilitation centres to organise support groups for family members. It will also be beneficial for families of children with disabilities, if heath sector policy makers can review and develop effective socioeconomic policies to improve their standards of living.

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Perić Bralo, Magdalena. "FAMILY AND MOTHER LEISURE OF CHILDREN WITH DISABILITY." Research in Education and Rehabilitation 4, no. 1 (2021): 4–12. http://dx.doi.org/10.51558/2744-1555.2021.4.1.4.

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Leisure is often associate with quality of life of an individual. Objective leisure definitions are used by economic, business and recreational researchers, and focused on behaviors that we can observe. Subjective definitions are more concerned with scientists who are focused on the microsphere of an individual. Modern families are under great stress and that through different family activities the reduction of stress can be achieved and also increase feel of family well-being. Family leisure is considered as very important component of family life. It often shows as idealized, constantly happy time in which everyone enjoys together, time that is pleasure for all family members as individuals and also for the whole family.During family leisure mothers usually have mixed roles of caring for children and caring for the household, thus disrupting their sense of freedom and enjoyment. Many roles that parents of children with disabilities need to take over creates a time pressure that does not occur to parents of children without disabilities. That time pressure is reflected on psychological and physical health of the parents, affecting simultaneously the lack of time for different activities such as going to work, leisure activities, personal care and social interactions. Research has shown that mothers of children with disabilities generally have much less time for themselves and family activities than when it comes to mothers of children without disabilities, no matter what type and level of disability is about. Key words: leisure, family, mothers of children with disabilities

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Song, Jieun, Marsha R. Mailick, and Jan S. Greenberg. "Apolipoprotein ɛ4 Allele and Subjective Cognitive Functioning in Parents of Adults With Disabilities." Journals of Gerontology: Series B 75, no. 8 (May 3, 2020): e189-e197. http://dx.doi.org/10.1093/geronb/gbaa061.

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Abstract Objectives Parents of individuals with disabilities face ongoing responsibilities of providing care and support for their children, even during the child’s adulthood. Past research has shown that this caregiving role is linked to chronic stress and subsequent adverse health outcomes for parents, including impaired cognition. This study examines the impacts of genetic risk for cognitive impairment (apolipoprotein [APOE] ɛ4 allele) among parents of adults with disabilities and comparison parents whose adult children do not have disabilities. Method We performed rank order regression analysis of data from the Wisconsin Longitudinal Study (2004–2006 and 2010–2012 surveys and DNA samples). Participants included parents of adults with disabilities (247 mothers and 159 fathers) and comparison parents whose adult children were not disabled (1,482 mothers and 954 fathers). Results Mothers who had adult children with disabilities and who were APOE ɛ4 carriers reported significantly declining levels of subjective cognitive functioning over time, but mothers of adults with disabilities who did not have the APOE ɛ4 allele did not manifest this change. Among comparison group mothers, cognitive change over time was not a function of their APOE ɛ4 carrier status. Fathers’ cognitive function did not differ significantly by either parental status or APOE ɛ4 carrier status. Discussion The results show that older mothers of adults with disabilities are more susceptible to cognitive impairment than their age peers if they have the genetic risk factor of APOE ɛ4 allele.

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Corrice, April M., and Laraine Masters Glidden. "The Down Syndrome Advantage: Fact or Fiction?" American Journal on Intellectual and Developmental Disabilities 114, no. 4 (July 1, 2009): 254–68. http://dx.doi.org/10.1352/1944-7558-114.4.254-268.

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Abstract The “Down syndrome advantage” is the popular conception that children with Down syndrome are easier to rear than children with other developmental disabilities. We assessed whether mothers of children with developmental disabilities would demonstrate a consistent Down syndrome advantage as their children aged from 12 to 18 years. Results did not reveal significant differences between mothers of children with Down syndrome and mothers of children with other developmental disabilities on most maternal functioning variables. Although the prior group reported a consistent advantage in terms of personal reward and subjective well-being, these diagnostic group differences disappeared when maternal age and child adaptive behavior were controlled. We concluded that these variables may help to explain the Down syndrome advantage.

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Matsuzawa, Akemi, and Yuko Shiroki. "Mothers’ Experiences of Care Coordination for Children with Disabilities: A Qualitative Study." Children 9, no. 6 (June 4, 2022): 835. http://dx.doi.org/10.3390/children9060835.

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Few studies have investigated the care coordination for children with disabilities and their families in Japan. Care coordination enhances the quality of care for these children and their families. This study explores mothers’ experiences of coordinated care provided to their children with disabilities and their families. We used a qualitative descriptive approach, conducting semi-structured interviews with 11 Japanese mothers/primary caregivers of children with disabilities to describe their experiences. Four main themes were identified: shared decision-making with key workers, receiving an assessment of the entire family, timely access to coordinated health care services, and a reduced psychological burden and empowerment of mothers. Our findings suggest that care coordination has multiple beneficial effects on children with disabilities and their families, including improving the outcomes. Further research should examine how high-quality care coordination can be provided for such children and their families.

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Abdat, Rawhi, Maxwell Peprah Opoku, Mohammed Safi, Siham Al Harballeh, and Rhoda Myra Garces-Bacsal. "Virtual Training on Stress Management for the Mothers of Children with Disabilities in the United Arab Emirates." International Journal of Environmental Research and Public Health 20, no. 2 (January 13, 2023): 1450. http://dx.doi.org/10.3390/ijerph20021450.

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Parenting children with disabilities has consistently been reported to be associated with stress, and even more so among mothers who are primary caregivers. In non-Western contexts such as the United Arab Emirates (UAE), there is a dearth of research on maternal mental health in relation to raising children with disabilities and related mitigation strategies. During the COVID-19 pandemic (2020–2021), the Federal Government of the UAE used the Save the Child’s Stress Checklist to assess the stress levels of 635 mothers who were raising children with disabilities in the northern part of the country. In the pre-test, an estimated 6% (36/635) of the mothers were found to be experiencing high levels of stress. Consequently, virtual stress management training was conducted, and 12 of the 36 mothers completed the full training. Wilcoxon’s ranked test showed a reduction in their total, physical, emotional and cognitive stress at the end of the training. This study demonstrates the pressing need for ongoing training programmes to improve the mental health of mothers of children with disabilities in the UAE and similar contexts.

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Ferdosipour, Atefeh, and Sara Gholipour. "The effectiveness of problem-solving education on perceived stress and quality of life of mothers with children with special learning disabilities." New Trends and Issues Proceedings on Humanities and Social Sciences 7, no. 1 (July 2, 2020): 271–78. http://dx.doi.org/10.18844/prosoc.v7i1.4887.

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The purpose of this study is to determine the effectiveness of problem-solving education on perceived stress and quality of life of mothers with children with specific learning disabilities in Tehran in 2019. By using the convenience sampling method, 40 mothers (20 for each group) were selected having children with special learning disabilities in Tehran and they were randomly divided into experimental and control groups. The experimental group received seven 60-minutes sessions of problem-solving training and the control group remained on the waiting list. Data were collected using the perceived stress questionnaire and quality of life questionnaire. The results show that the mean of experimental group decreased in perceived stress of mothers with children with specific learning disabilities compared to the control group. It can be said that problem-solving training has been effective on the perceived stress and quality of life of mothers of children with specific learning disabilities; therefore, the results represent new horizons in clinical interventions.

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Porterfield, Shirley, and Eunsun Kwon. "CARING FOR CHILDREN WITH DISABILITIES, WORKING, AND SAVING FOR RETIREMENT OVER THE LIFE COURSE." Innovation in Aging 6, Supplement_1 (November 1, 2022): 806. http://dx.doi.org/10.1093/geroni/igac059.2907.

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Abstract In the US, financial security in retirement depends on having savings and other assets accumulated during the pre-retirement years. Pension savings accrue over the working life, in defined-benefit or defined-contribution retirement plans. Mothers with children with disabilities experience different life-course work trajectories than mothers without children with disabilities, though data used in previous studies primarily examine a single point in time or a short span of years. This paper draws longitudinal data from the nationally-representative 1979 National Longitudinal Survey of Youth for the years 1987 through 2018, using a life-course perspective and sequence analysis to identify long-term work patterns among women with children who do and do not have disabilities with an explicit focus on variations in occupational class and employment status. We found a distinctive pattern of long-term work history with five types: Full-time semi-professional to not working, Constantly not working, Semi-professional full time, Professional full time, and Not working to full time work. Results from regression analyses revealed variation in mothers’ household financial preparation for retirement at late mid-adulthood. Compared with mothers who held professional full-time jobs throughout their adulthood, mothers who started full time jobs in middle age and have children with disabilities were less likely to have pension plans. Mothers of children with disabilities who left the labor force in early middle age tended to have lower retirement savings. Policy interventions to address these mothers’ caregiving ability to stay engaged in the workforce and prepare for their retirement need to be explored.

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oideen, N., and S. M. Mathai. "Parental stress of Mothers of Children with Learning Disabilities." Researchers World : Journal of Arts & Science and Commerce(RWJASC) IX, no. 2 (April 30, 2018): 01. http://dx.doi.org/10.18843/rwjasc/v9i2/01.

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김천국 and Jinhee Kim. "Needs of Fathers and Mothers of Children with Disabilities." Journal of Special Children Education 14, no. 3 (September 2012): 279–96. http://dx.doi.org/10.21075/kacsn.2012.14.3.279.

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Cho, In Sook, and Hyun Sook Ryu. "Factors Affecting Depression in Mothers of Children with Disabilities." Child Health Nursing Research 21, no. 1 (2015): 46. http://dx.doi.org/10.4094/chnr.2015.21.1.46.

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McConnell, David, and Gwynnyth Llewellyn. "Health of mothers of school-age children with disabilities." Australian and New Zealand Journal of Public Health 30, no. 6 (December 2006): 572–74. http://dx.doi.org/10.1111/j.1467-842x.2006.tb00789.x.

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Munsell, Sonya E., and Lori O’Malley. "The Lived Experiences of Mothers of Children with Disabilities." New Educator 15, no. 4 (May 10, 2019): 269–80. http://dx.doi.org/10.1080/1547688x.2019.1601315.

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Cameron, S. J., A. Snowdon, and R. R. Orr. "Emotions Experienced by Mothers of Children With Developmental Disabilities." Children's Health Care 21, no. 2 (March 1992): 96–102. http://dx.doi.org/10.1207/s15326888chc2102_5.

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McGuire, Brianna K., Terry K. Crowe, Mary Law, and Betsy VanLeit. "Mothers of Children with Disabilities: Occupational Concerns and Solutions." OTJR: Occupation, Participation and Health 24, no. 2 (March 2004): 54–63. http://dx.doi.org/10.1177/153944920402400203.

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Lee, Jiwon, Regena Spratling, and Ashley Helvig. "Sleep Characteristics in Mothers of Children With Developmental Disabilities." Journal of Pediatric Health Care 32, no. 1 (January 2018): e9-e18. http://dx.doi.org/10.1016/j.pedhc.2017.08.002.

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Konrad, Shelley Cohen. "Posttraumatic Growth in Mothers of Children with Acquired Disabilities." Journal of Loss and Trauma 11, no. 1 (January 2006): 101–13. http://dx.doi.org/10.1080/15325020500358274.

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Virtanen, Timo, and Irma Moilanen. "Mothers of children with mild neurological disabilities: Adaptational outcomes." International Journal for the Advancement of Counselling 14, no. 4 (December 1991): 301–11. http://dx.doi.org/10.1007/bf00116539.

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Esdaile, Susan A. "Valuing difference: caregiving by mothers of children with disabilities." Occupational Therapy International 16, no. 2 (June 2009): 122–33. http://dx.doi.org/10.1002/oti.274.

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KaiSook Chung, 서보순, 최은실, 박희경, and jae-kook Park. "A study of factors which influence maternal happiness for mothers of young children with disabilities and mothers of young children without disabilities." Korean Journal of Early Childhood Education 33, no. 1 (February 2013): 153–73. http://dx.doi.org/10.18023/kjece.2013.33.1.008.

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BIALAS, MARCIN. "Characteristics of the roles of mothers of children with intellectual disabilities as a basis for their individual therapy." Baltic Journal of Health and Physical Activity 13, no. 1 (March 30, 2021): 63–82. http://dx.doi.org/10.29359/bjhpa.13.1.08.

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Background: ‪Women enjoy a variety of social roles during their lives. Among the commonly known ones, which include e.g. the roles of wives and mothers, there are also those that radically change the scenario of one’s past life. These include the role of mothers of children with intellectual disabilities. After all, the hardships associated with caring for them and with their upbringing, influence their mothers' perception of the world, change the existing family and professional social relations, determine the choice of values, and limit or block the goals set to date. It seemed interesting to the author of the study to recognise the roles of mothers of children with intellectual disabilities. Material and methods: ‪Their categorisation revealing the nature of a given role was possible owing to the conducted research. It was attended by 104 mothers of children with intellectual disabilities who answered a series of questions included in the interview questionnaires. A hermeneutical analysis of their answers made it possible to describe a given role in detail. Among these four can be distinguished which are conventionally defined as: «REBEL», «RATIONALIST», «SHAM» and «RESOURCEFUL». Results: ‪These roles are fundamentally different from each other, indicating the traits that characterise mothers bringing up children with intellectual disabilities. Identifying oneself with one of them may show both the desired features of the role played and indicate the destructive elements which negatively determine the course of their previous lives. Conclusions: ‪This is the basis for personalised therapy dedicated to mothers of children with intellectual disabilities.

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Park, Gyeong-A., and Oan Na Lee. "The Moderating Effect of Social Support on Parental Stress and Depression in Mothers of Children with Disabilities." Occupational Therapy International 2022 (March 14, 2022): 1–8. http://dx.doi.org/10.1155/2022/5162954.

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Purpose. Mothers caring for children with disabilities often experience parental stress, which may lead them to suffer from depression. It is necessary to find a way to relieve their stress and depression. Therefore, we examined the effect of parental stress on depression and the buffering role of social support between them in a sample of 164 mothers of children with disabilities. Participants. One hundred and sixty-four participants (aged 25–58 years) in Gwangju and Jeollanamdo, South Korea, completed a set of self-reported measures. Methods. Parental stress, depression, and social support are assessed by Parental Stress Index, Multidimensional Scale Perceived Social Support, and Center for Epidemiological Studies Depression Scale, respectively. Results. Parental stress significantly predicted depression, and social support showed the buffering effect on the relationship between parental stress and depression among mothers of children with disabilities. These findings indicate that mothers who perceive a high level of social support are less likely to experience depression. Conclusions. This study shows the moderating effect of social support on the relationship between parental stress and depression among mothers of children with disabilities. The level of depression they experience is not that great if they perceive a high level of social support even if they experience a high level of parental stress. These findings imply that social support is a critical resource that prevents the negative effect of parental stress on depression among mothers of children with disabilities.

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Ryde‐Brandt, Brita. "Defence strategies and anxiety in mothers of disabled children." European Journal of Personality 5, no. 5 (December 1991): 367–77. http://dx.doi.org/10.1002/per.2410050504.

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The aim of this investigation was to study anxiety and defence strategies in mothers of children with different disabilities. Mothers of children with childhood psychosis, motor handicaps, or Down's syndrome were tested with a projective, percept‐genetic technique, viz. the Mother‐Child Picture Test (MCPT). Levels of anxiety were measured with the Hospital Anxiety and Depression Scale (HAD). In mothers of psychotic children, the absence of anxiety was significantly associated with misinterpretations and/or failure to recognize the MCPT motif (a close relation between mother and child). This association was not found in the mothers of motor‐handicapped children or children with Down's syndrome. The results suggest that, for mothers of psychotic children, the activation of defensive strategies is important to avoid feelings of anxiety evoked by the mother‐child situation. For mothers of children with other chronic disabilities, for example, motor handicaps or Down's syndrome, low levels of anxiety may be experienced without the mobilization of strong defensive mechanisms. Different interpretations of the correlation between defence strategies and anxiety in the mothers of psychotic children are discussed.

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Bakhshisamarin, F., S. Mirzaei, F. Ansarizangakani, L. Mousavi, and A. Sorifijini. "Prevalence of psychological disorders among caregivers of children with intellectual disabilities and motor disabilities in Shiraz." European Psychiatry 64, S1 (April 2021): S723. http://dx.doi.org/10.1192/j.eurpsy.2021.1915.

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IntroductionThe prevalence of mental disorders plays an important role in identifying the state of mental health of the community and estimate the required facilities at any time.ObjectivesTherefore, the purpose of this study was to investigate the prevalence of psychological disorders in caregivers of children with intellectual disabilities and motor disabilities in Shiraz.MethodsThe research was descriptive and cross-sectional survey. The statistical population consisted of all mothers of children with disabilities who were admitted to welfare centers and clinics of Shiraz in 2019. Of these families, 35 mothers with children with intellectual disability and 35 mothers with children with motor disability were selected as the sample group. SCL-90-R (1976) was used to collect of data. For analyze the data, MANOVA test was used.ResultsThe results of this study showed that the most common psychological disorders in caregivers of children with intellectual disability were aggression (hostility), hypersensitivity to interpersonal relationships, anxiety and depression, and in caregivers of children with motor disabilities were physical complaints, sensitivity to interpersonal relationships, paranoid thoughts and anxiety.ConclusionsAccording to the findings of this research, it can be concluded that caregivers of children with special needs in terms of mental health are not in a favorable situation, which is due to the lack of proper adaptation with the disability of their child and the failure to meet their needs.DisclosureNo significant relationships.

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Kilburn, Janice E., and Cheri J. Shapiro. "The Structure and Function of Social Networks of Mothers of Young Children With Disabilities." Topics in Early Childhood Special Education 39, no. 4 (April 5, 2018): 250–59. http://dx.doi.org/10.1177/0271121418767306.

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The current exploratory study examines the structure and function of social support for mothers of very young children (under 24 months) with a range of disabilities who are receiving Individuals With Disabilities Education Act (IDEA) Part C early intervention services. The psychological well-being and social networks of 88 mothers in one state were assessed. Associations between network characteristics and maternal stress were found for the total network, along with a connection between lowered depression and concrete support from the spouse/partner and lowered stress and emotional support from professional helpers. This study mirrors some findings of similar studies of mothers with older children with disabilities but uniquely found spouse/partner support to be prominent. Implications for both research and early intervention practitioners are considered.

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Schachter, Debbie Carol, Barry Pless, and Maggie Bruck. "Self-Report of Family Histories of Learning Difficulties." Canadian Journal of Psychiatry 37, no. 1 (February 1992): 29–32. http://dx.doi.org/10.1177/070674379203700107.

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Self-reports of learning difficulties by parents of reading disabled children may be inflated because of recall bias. A retrospective study of the association between specific reading disabilities and familial reports of learning difficulties indicated the relative odds of being reading disabled for those whose relatives reported learning difficulties compared with children whose relatives did not report learning difficulties was statistically significant if fathers or siblings reported learning difficulties. No significant association was found between mothers' self-reports of learning difficulties and a diagnosis of specific learning disabilities in their children. The results support the association between specific reading disabilities and self-reported histories of academic problems in the father or siblings, but not in mothers of learning disabled children. The results suggest that reports of learning difficulties among mothers of reading disabled children may be inflated because of recall bias.

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Journal articles on the topic 'Mothers of children with disabilities – Biography'

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