Relevant bibliographies by topics / Mothers of children with disabilities – Biography

Academic literature on the topic 'Mothers of children with disabilities – Biography'

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Published: 10 December 2022
Last updated: 29 January 2023

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Journal articles on the topic "Mothers of children with disabilities – Biography"

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Parchomiuk, Monika. "Mothers with Intellectual Disabilities Raising Children with Intellectual Disabilities." Journal of Intellectual Disability - Diagnosis and Treatment 4, no. 4 (January 20, 2017): 204–16. http://dx.doi.org/10.6000/2292-2598.2016.04.04.3.

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Parish, Susan L., Roderick A. Rose, Jamie G. Swaine, Sarah Dababnah, and Ellen Tracy Mayra. "Financial Well-being of Single, Working-age Mothers of Children with Developmental Disabilities." American Journal on Intellectual and Developmental Disabilities 117, no. 5 (September 1, 2012): 400–412. http://dx.doi.org/10.1352/1944-7558-117.5.400.

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Abstract Understanding the financial well-being of single mothers who care for children with developmental disabilities is important to ensure that public policies can be effectively targeted to support these vulnerable families. The authors analyze data from the Survey of Income and Program Participation to describe income poverty, asset poverty, income, net worth, and liquid assets of U.S. single, working-age mothers (n = 242) of children and adult children with developmental disabilities. The well-being of these mothers was compared to the situation of married mothers of children with developmental disabilities (n = 345) and of single mothers who did not have children with developmental disabilities (n = 6,547). Compared with both married mothers of children with developmental disabilities and single mothers without children with developmental disabilities, single mothers of children with developmental disabilities had markedly worse financial well-being across a range of income- and asset-based measures. Single mothers caring for children with developmental disabilities face adverse financial well-being as compared with other mothers. Policy makers should consider targeted measures to improve the financial well-being of these parents.
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Singh, Kishan Kumar. "Resilience in Mothers having Children with Disabilities." Chettinad Health City Medical Journal 11, no. 03 (September 30, 2022): 23–29. http://dx.doi.org/10.24321/2278.2044.202225.

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In a developing society and community with limited rehabilitation and care services there are major challenges for mothers with disabled children and the responsibility of a child’s growth falls solely on the shoulders of the mother or caregivers. Understanding the resilience in mothers (caregivers) is becoming more important as a process in the area of disabilities, for quality development and caring of children with disabilities. The question tthat comes to mind is, what factors make some families do well in adverse conditions while others fight to keep their family life functional, when they are subjected to similar stresses? The aim of this research is to explore the role of resilience factors in mothers having children with disabilities. This study was conducted to assess the resilience of mothers who have children with disabilities. In this scientific study all 300 mothers (100 mothers with intellectual disability, 100 mothers with locomotor disability, and 100 mothers of normal children) were selected from northern India. The resilience scales were administered to assess the resilience variable; the scale has the 4-factor solution, which had 31 items: the alpha reliability coefficient was 0.95. The result of the study shows that the F-value for resilience in mothers of intellectually disabled children, children with locomotor disabilities and of normal children the F value for resilience is 198.379 which is significant at 0.001 levels of significance. This shows that there is difference within the group of mothers of intellectually disabled children, children with locomotor disabilities and normal children. Findings reveal that the level of resilience is different in mothers of intellectually disabled children, children with locomotor disablilities and normal children. The dentification of factors that promote resilience in mothers of children with intellectual disabilities is likely to advance clinical practice by providing new emphasis in clinical areas in family- centered care. Evidence supports the theory that resilience is linked to the availability and accessibility of culturally relevant resources. The results are especially important for building a group of resilient mothers who will be involved in their children’s recovery.
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Koivula, Tanja, Noora Ellonen, Staffan Janson, Carolina Jernbro, Heini Huhtala, and Eija Paavilainen. "Psychological and physical violence towards children with disabilities in Finland and Sweden." Journal of Child Health Care 22, no. 3 (February 7, 2018): 317–31. http://dx.doi.org/10.1177/1367493518757379.

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This article describes psychological aggression and physical violence by Swedish and Finnish mothers ( N = 3420) towards their 0- to 12-year-old children with disabilities ( N = 286) by comparing such behaviour with the mothers of children without disabilities ( N = 3134). The survey data are based on representative samples from Finland and Sweden of mothers’ reports of their behaviour towards their child in conflict situations. Mothers of children with disabilities reported more psychological aggression towards their child than did mothers of children without disabilities. Mothers used psychological aggression, especially towards children with neurological/psychological disabilities. However, the only significant difference regarding physical violence was repetitive use of mild physical violence. Overall, the analysis suggests that children with neurological/psychological disabilities are more exposed to both psychological and physical violence than children without disabilities or children with somatic/developmental disabilities.
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Ceylan, Remziye, and Neriman Aral. "Association of Depression in Mothers of Disabled Children with the Child's Participation in Integrated Education." Perceptual and Motor Skills 105, no. 2 (October 2007): 649–53. http://dx.doi.org/10.2466/pms.105.2.649-653.

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To measure depression in mothers of 5 to 7-yr.-old children with disabilities and to find out whether mothers' depression varied by sex of the child, 126 mothers from Ankara participated; 59 were mothers of children with disabilities who participated in integrated education and attended preschool classes in public schools and, as a comparison group, 67 were mothers of children with disabilities of similar age and characteristics who did not participate in integrated education while attending public and private schools. In the study, the Beck Depression Scale and General Information Forms were used. Depression in mothers of children with disabilities who did not participate in integrated education was higher than in mothers of children with disabilities who participated in integrated education.
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Johnson, Barbara Schoen. "Mothers' Perceptions of Parenting Children With Disabilities." MCN, The American Journal of Maternal/Child Nursing 25, no. 3 (May 2000): 127–32. http://dx.doi.org/10.1097/00005721-200005000-00005.

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Ovina Intiyaskanti, Resita, Erti Ikhtiarini Dewi, and Enggal Hadi Kurniyawan. "Overview of Coping Mechanism Mother of Children With Disabilities in SDLB Negeri Tompokersan Lumajang." Nursing and Health Sciences Journal (NHSJ) 1, no. 2 (October 26, 2021): 88–96. http://dx.doi.org/10.53713/nhs.v1i2.25.

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Mothers who have children with disabilities have many problems and barriers. The research aims to describe mother’s coping mechanisms for children with disabilities in SDLB Negeri Tompokersan Lumajang. Respondents in this study were 54 mothers that were taken with purposive sampling technique with brief cope instrument. The result showed mother’s age have a median value of 39.50 years and the child's age have a median value of 11 years. Mothers who have children with disabilities have 1 child with disabilities in the family (96.3%) in order of disabled children in the main family of the first child (55.4%). The majority of mothers' last education is elementary school (35.2%) and The majority of the marital status is married (96.3%). Types of disabilities that are mostly experienced are intellectual disabilities (61.1%). The description of a mother’s coping mechanism in children with disabilities has a mean of 86.46. It is shown that the dominant indicators for respondents include religion (mothers believe there is wisdom in the problem), behavioral disengagement (mothers fulfill their education rights and provide therapy or medication), and substance use (mothers do not use drugs to protect themselves). Further researchers can identify mother’s motivation in caring for children with disabilities
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Mondol, Md Rasheduzzaman, Muhammad Tanvir Faysol, and Md Shaheen Sikder. "Developmental disabilities of children and their health outcomes." Bangladesh Journal of Scientific Research 29, no. 1 (September 27, 2016): 55–62. http://dx.doi.org/10.3329/bjsr.v29i1.29758.

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A study was conducted among 155 mothers of disabled children. The health outcome of disabled children in Bangladesh focuses overall on their health status. The cross sectional study was carried out in Bangladesh Protibondhi foundation and Society for the welfare of the Intellectual disability from august 2014 to March 2015. The analysis shows that age of most of the mothers of disabled children were between 30 and 39 years and the disabled children were their first baby. The mothers who had less than 3 antenatal visits have a great chance of having a developmental disabled child. Among 155 respondents, 27 per cent had autism and 72.9 per cent had other disabilities (Cerebral palsy, Down syndrome and intellectual disability). 35.5 per cent blood groups of fathers and mothers of children with developmental disabilities have different positive blood groups. After birth weight of 58.71 per cent baby with developmental disabilities were from 1.00 - 2.00 kg which is a low birth weight. About 70 per cent of mothers have not given exclusive breastfeeding to their disabled child. Only 29 per cent of mothers have given exclusive breastfeeding. There is a significant relationship between having delivery without skilled birth attendants and health outcomes of children. 57.7 per cent mothers with disabilities (Cerebral palsy, intellectual disability and Down syndrome) and 42.3 per cent mothers who had deliveries through non-skilled birth attendants gave birth to autistic babies. 9.1% mothers having history of violence during pregnancy gave birth to autistic babies and 90.9% mothers having history of violence during pregnancy gave birth to babies with other disabilities.Bangladesh J. Sci. Res. 29(1): 55-62, June-2016
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Ushakova, Vladislava. "EMOTIONAL ATTITUDE OF A MOTHER FOR A CHILD WITH DISABLED HEALTH." Living psychology 7, no. 4 (January 30, 2021): 9–18. http://dx.doi.org/10.51233/2413-6522-2021-9-18.

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The article is devoted to the problem of the emotional attitude of mothers to children with disabilities. The study involved 247 mothers of children with disabilities - 67 mothers of children with mental retardation, 60 mothers of children with general speech underdevelopment, 60 mothers of children with mental retardation and 60 mothers of children with autism spectrum disorder, the average age of children is 7.4 years. The distinctive features of the emotional attitude of mothers to children with various nosologies were identified and analyzed according to criteria such as justifying expectations, optimal emotional contact, excessive concentration on the child (overprotection), and emotional distance from the child (hypocaution). The emotional involvement of the mother in the process of interaction with a child with disabilities was determined.
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Kurniawan, Aditya, Nanda Wulandari, and Reny Yuniasanti. "A Support Program For Mothers As Caregivers Of Children With Disabilities In Indonesia." International Journal Of Community Service 2, no. 1 (February 16, 2022): 17–21. http://dx.doi.org/10.51601/ijcs.v2i1.68.

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As primary caregivers of children with disabilities, mothers in Javanese society play a significant role in nurturing a child's independence. However, the families often blame mothers when giving birth to children with disabilities. Preliminary data showed that mothers with children with disabilities tend to have a high sense of guilt upon their children's conditions and lack knowledge of supporting child growth. The mothers also have lack support from their spouses and families. These situations make mothers experience mental and physical exhaustion, chronic stress, irritability, and lack of confidence, which leads to ineffective parenting strategies. The program's purpose is to equip caregivers with knowledge of stress management and effective parenting strategies for children with disabilities.
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Dissertations / Theses on the topic "Mothers of children with disabilities – Biography"

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Krokidis, Nicole. "Mothers in transition : children with learning disabilities transition to adulthood." Thesis, University of East London, 2009. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.532952.

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This research project aimed to provide a more elaborate understanding of mothers' views regarding their child with learning disabilities' transition to adulthood. In particular, the researcher focused on how mothers conceptualised "transition", the role that mothers' relationships with services would play, and mothers' experiences of social structures. Individual semistructured interviews were conducted with seven mothers of young people (16-23 years) with learning disabilities; yielding information on their views and experiences of transition. Thematic analysis within a critical realist epistemological framework was utilised as an analytic methodology. Mothers' were found to conceptualise transition as a complex, life long, worrying process informed by previous experiences of transitions. Mothers considered transition to adulthood as marked by a transition to "independence"; however, the meaning of independence varied amongst the sample. Mothers' visions of their children's adult futures included ideas about social relationships, employment and development of sexuality. The transition process was positioned within important peripheral issues including mothers' predominantly negative reports of service provision, with some helpful exceptions and resources available to mothers external to service provision. Mothers' commitment to their children was demonstrated throughout the data, and was often spoken about in terms of "fighting talk" whereby mothers were campaigning for improved service provision. The implications for professionals working with mothers are to improve partnership working with mothers in preparing for transition and improving service provision more generally. A recognition by services of mothers' needs and alternative identities aside from their role as "maternal caregiver" is recommended.
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Lopez, Sheila. "Mothers' and Fathers' Attachment Relationships with Children who Have Disabilities." DigitalCommons@USU, 2013. https://digitalcommons.usu.edu/etd/2068.

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Research has found that attachment relationships between parents and children are formed independent of each other and have different outcomes for the child. Very little research regarding parent-child attachment relationships has been done with children who have a disability. This study aimed to learn more about whether differences exist in attachment relationships between mothers and fathers and whether or not the child has a disability. Results indicate that fathers of children with a disability appear to have less secure attachments with their children compared to fathers of typically developing children as well as mothers of children with and without disabilities. It is unclear as to why this may be; however, it is hypothesized that factors such as understanding the child’s needs and being able to engage in highly stimulating play (e.g., throwing child in the air, etc.) may contribute to this finding. Further research is needed to better understand what factors contribute to the development of a secure attachment between the father-child dyad when the child has a disability and why fathers may be experiencing greater difficulty than mothers of children with a disability as well as fathers of typically developing children.
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Chirwa, Masauso Simon. "Experiences of parenting children with disabilities : a qualitative study on the perspectives of mothers of children with disabilities in Zambia." Thesis, University of Warwick, 2017. http://wrap.warwick.ac.uk/101764/.

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This thesis sought to provide new insight into the lives and experiences of mothers of children with disabilities in the rural (Kaoma) and urban (Lusaka) settings of Zambia. A detailed literature review revealed that there is a dearth of research that has focused on the views of mothers parenting children with disabilities within the Zambian social and cultural context. Qualitative, biographical interviews were undertaken with thirty mothers whose child had a disability significant enough to qualify for intervention services at the time of the interviews. This study drew on a framework using insights from the social model of disability, feminist intersectionality and the social empowerment model. The methodology was informed by interpretivism, social constructionist grounded theory, feminist intersectionality theories, and data analysis was carried out concurrently with data collection. Findings revealed that disability is still surrounded by stigma and prejudice. It was associated with punishment and bad omen. The diagnosis of a child’s disability had an impact on mothers as it resulted in a liminal (suspended) state and a biographical disruption as they had to reorient their lives. Mother-blame was common and they were often ostracised by their significant others and the communities. Divorce was common especially among first-time mothers whose child had cerebral palsy. Divorce was an unexpected disruptive event that had socioeconomic impact on mothers. They had to bear the burden of caregiving in the absence of support from their partners. Some gave up their employment because of the demands associated with caregiving resulting in financial deprivation. Mothers also experienced loss of agency over their future and that of their child. More power was allotted to husbands than mothers with regard to decision making at home. The study makes a deeper, and more nuanced, contribution to the scarce literature on mothering children with disabilities in Zambia and globally.
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Gordon, Margaret. "Women's labour lost - mothers' labour's cost : workforce participation when children have disabilities /." [St. Lucia, Qld.], 2004. http://www.library.uq.edu.au/pdfserve.php?image=thesisabs/absthe18561.pdf.

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Lee, Ji Hyun. "Group Art Therapy and Self-Care for Mothers of Children with Disabilities." Thesis, Lesley University, 2017. http://pqdtopen.proquest.com/#viewpdf?dispub=10641805.

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The purpose of this study was to examine the effectiveness of a group art therapy intervention on psychological well-being of Korean mothers of children with disabilities. This study employed a quasi-experimental pre- and post-test research design with non-random assignment of participants to either the art therapy intervention group (AG) or the control group (CG). The present study quantitatively examined the effectiveness of the group art therapy intervention using four standardized measurements (Parental Distress sub-scale from Parenting Stress Index-Short Form, Perceived Stress Scale, Beck Depression Inventory-II, & The Multidimensional Scale for Social Support) assessing parenting stress, perceived stress, depression, and perceived social support. In addition, the Draw-a-Person-in-the-Rain (the DAPR) assessment with numerical scoring system was used to assess the mothers’ stress.

A total of 44 participants from multiple regions across Korea were included, and mothers in AG (n = 22) participated in 6 sessions of 100 minutes in length. The results of the statistical analysis showed significant differences between the two groups in parenting stress, perceived stress, and depression with those in the AG reporting a greater decrease in parenting stress, perceived stress, and depression than those in the CG. In terms of perceived social support, no significant difference was found between the AG and the CG. The results of the DAPR-Stress scale showed that stress indicators on the post-drawing assessment decreased significantly compared to the pre-drawing assessment after participating in the art therapy intervention. Thus, the art-based projective drawing assessment (the DAPR) supported the quantitative results of the art therapy intervention on decreasing stress. Overall findings support the effectiveness of the group art therapy intervention in enhancing psychological well-being of Korean mothers of children with disabilities.

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Li, Nicole Stacey. "Stress and coping in mothers of children with developmental disabilities across the lifespan." Thesis, National Library of Canada = Bibliothèque nationale du Canada, 1997. http://www.collectionscanada.ca/obj/s4/f2/dsk2/ftp01/MQ30953.pdf.

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Khusaifan, Shatha. "The well-being of mothers of children with intellectual disabilities in Saudi Arabia." Thesis, University of Southampton, 2005. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.419388.

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Balot, Michelle Magee. "Redefining Responsibility: Welfare Reform, Low-Income African American Mothers, and Children with Disabilities." ScholarWorks@UNO, 2009. http://scholarworks.uno.edu/td/957.

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Mothers of children with disabilities face a variety of problems compared to other mothers, but their experiences are not universal. This thesis provides a critical analysis of caregiving and disability by examining the experiences of a group of low-income African American mothers with children with disabilities. It explores the impacts of race, class, gender, and disability on mothers' experiences in the context of conflicting employment and caregiving demands for poor women. Drawing on in-depth qualitative interviews with ten low-income African American mothers of children with disabilities, I illustrate how the struggles of raising a child with a disability are amplified in the face of race and class inequalities. As a result, these women redefine the notion of personal responsibility and employ a series of survival strategies.
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Collins, Heather. "Mothers' Perceptions of Website Information in Solving Behavioral Problems in Children with Disabilities." BYU ScholarsArchive, 2009. https://scholarsarchive.byu.edu/etd/2300.

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This research investigated the needs of mothers in regard to designing an educational website for parents/caregivers of children with disabilities. This research was designed to provide information to inform outreach efforts of Brigham Young University's Family HOPE (Happiness, Optimism, Promise, and Excellence) Project. This project assists families struggling with child behavior problems. Results from this study provided an initial understanding of the potential for a website to offer support to families not directly served through the Family HOPE project. Participants included 26 adult females, 25 mothers and one female caregiver. Each participant was the primary caregiver of a child with a disability and challenging behaviors. Results from this study indicated that what parents would like to see on a website are modules or lessons to teach how to solve behavior problems, video demonstrations of parents successfully solving children's behavior problems, information about how to solve behavior problems, and blog/posts where parents can post questions and professionals and/or parents who have dealt with similar problems can post answers. This study provided incentive for practitioners, educators, and the human services field to conduct, design, and make available training modules or video demonstrations for parents on dealing with their children's problem behaviors at home. Due to the rise of computer networking via the Internet and advances in multimedia technology, the Internet provides an opportunity to provide services to families with limited access to traditional services (Feil et al., 2008). When participants were asked where they go to get the most helpful support in solving their child's behavior problem, the majority of respondents reported that they go to the doctor, family, friends, and the Internet for support: Most found these avenues to be helpful in providing that support. This study's findings offer several implications for practitioners, educators, and other human services professionals. Professionals, particularly school personnel, can increase their efforts to decrease family stress and increase their quality of life by providing support, resources, and expertise related to handling challenging behaviors in children with disabilities. Service providers must be open to exploring technology's potential to enhance their clinical work. It is critical to adapt empirically supported interventions to a nontraditional delivery system, such as the Internet.
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Allred, Diane W. "Caregiver Burden and Sibling Relationships in Families Raising Children with Disabilities." BYU ScholarsArchive, 2013. https://scholarsarchive.byu.edu/etd/3771.

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The purpose of this study was to examine sibling relationships and caregiver burden in families raising children with disabilities (CWD). In order to determine (a) are there differences in caregiver burden according to parent gender and types of disability (b) are there differences in sibling relationships according to parent gender and type of disability and (c) is there a relationship between caregiver burden and sibling relationships after controlling for CWD and sibling gender and age, and type of disability? After IRB approval, 166 families living in the west and raising typically developing children (TDC) or a CWD participated. Disabilities included autism; Down syndrome (DS); other disabilities (OD), which included orthopedic impairment, intellectual disabilities, emotional or physical disabilities, health impairment; and multiple disabilities (MD), which included both physical and intellectual disabilities. After consenting, both parents independently completed the 28-item Schaefer Sibling Inventory of Behavior. This inventory ranked sibling behaviors in relation to kindness, involvement, empathy,and avoidance. Additionally a revised version of the Caregiver Strain Index (Robinson, 1983) measuring hassle and frequency of burden was utilized. Mothers completed a demographic questionnaire. Analyses included descriptive statistics, a MANOVA, correlations, and multiple regressions. Results indicated mothers perceived more burden than fathers for all disability types. Parents of children with autism perceived the highest burden, and mothers of TDC and fathers of children with DS perceived the least amount burden. Mothers rated female siblings higher in kindness, involvement, and empathy than male siblings. Whereas, fathers rated siblings of children with OD as least avoidant; as did mothers of children with DS. The highest sibling relationship scores were fathers' rating of empathy in families raising children with DS and mothers' rating of empathy in families raising children with MD. There was a positive relationships between caregiver burden for both parents and between both parent's ratings of sibling empathy, kindness, and involvement. A negative relationship was found between parents'ratings of avoidance and empathy, kindness and involvement. All caregiver burden variables were positively related to avoidance. Siblings may benefit from information regarding a child's disability in order to decrease avoidance behavior. It would also be important to provide interventions/information about respite care and other appropriate community resources to parents of children with autism in order to help decrease the burden they experience. Finally, parents of CWD may benefit from information regarding the effect their perception of burden has on relationships between the child and siblings.
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Books on the topic "Mothers of children with disabilities – Biography"

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Parnes, Shulamit. Lakh, ʻAmirah. Tel-Aviv: Y. Golan, 1995.

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Parnes, Shulamit. Lakh, ʻAmirah. Tel-Aviv: Y. Golan, 1995.

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Rubber band girl: A mother's memoir. San Clemente, CA: Sourced Media Books, LLC, 2013.

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Charlotte, Farber, ed. A special education: One family's journey through the maze of learning disabilities. Cambridge, MA: Da Capo Press Lifelong Books, 2006.

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West, Stephanie. A mother's journey, a family changed. Salt Lake City: Millennial Mind Pub., 2010.

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Brobst, Staheli Lu Ann, ed. When hearts conjoin. Draper, Utah: Richard Paul Evans Pub., 2009.

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Keeping Katherine: A mother's journey to acceptance. New York: Three Rivers Press, 2004.

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Stagliano, Kim. All I can handle-- I'm no Mother Teresa: A life raising three daughters with autism. New York: Skyhorse Pub., 2010.

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Forman, Vicki. A memoir of premature motherhood. Boston: Houghton Mifflin Harcourt, 2009.

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A memoir of premature motherhood. Boston: Houghton Mifflin Harcourt, 2009.

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Book chapters on the topic "Mothers of children with disabilities – Biography"

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"Biography." In Barriers to Play and Recreation for Children and Young People with Disabilities, VII—XII. De Gruyter Open Poland, 2016. http://dx.doi.org/10.1515/9783110526042-001.

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Hunt-McCool, Janet. "U.S. Health Policy and Mothers of Children with Disabilities." In Working Time in Comparative Perspective - Volume II: Life-Cycle Working Time and Nonstandard Hours, 129–56. W.E. Upjohn Institute, 2001. http://dx.doi.org/10.17848/9780880992299.vol1ch5.

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Hunt-McCool, Janet. "U.S. Health Policy and Mothers of Children with Disabilities." In Working Time in Comparative Perspective - Volume II: Life-Cycle Working Time and Nonstandard Hours, 129–56. W.E. Upjohn Institute, 2001. http://dx.doi.org/10.17848/9780880992299.vol2ch5.

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Wickremesooriya, Shalini Felicity. "Mothers as Advocates of Social Inclusion for Children With Communication Disorders." In Research Anthology on Physical and Intellectual Disabilities in an Inclusive Society, 1455–85. IGI Global, 2022. http://dx.doi.org/10.4018/978-1-6684-3542-7.ch077.

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Social inclusion is based on acceptance and belonging irrespective of any status, disability, or disadvantage. The ability to communicate empowers humans in their quest for social inclusion. However, children challenged by communication disorders struggle to form friendships and make inroads into social groups. Mothers, the primary caregivers in most instances, with their intimate knowledge of their children, are considered the best advocates. This study set out to identify strategies that mothers engage in to pave the way for successful social inclusion of children with communication disorders. An online survey was conducted in different geographical locations. Mothers with children aged 6-13 years who had received speech therapy or are currently receiving speech therapy were invited to participate. Data were analyzed using a mixed methods approach. Outcomes suggest that all mothers believe in social inclusion despite facing a range of inclusion and exclusionary practices. Undeterred by these responses, mothers advocate for social inclusion by engaging in a range of strategies.
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Brannen, Julia. "Beginnings and Biography." In Social Research Matters, 1–20. Policy Press, 2019. http://dx.doi.org/10.1332/policypress/9781529208566.003.0001.

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This introductory chapter provides a brief biography of the author, offering a glimpse of the author's beginnings in the field of social research. This story is not intended to be a tale of individual endeavour but an examination of the times, concerns, and conditions in which the work of one sociologist develops and how a career reliant on research that is externally funded is forged. The research that the author discusses concerns the family and working lives of mothers and fathers, and also the lives of children, both across the life course and over historical time. The book has two main themes that will be interwoven throughout the text. A central theme is how social research matters in relation to historical context. A second theme focuses on the practice of social research; research is a craft that is learned with and from others as well as through reading methodological texts and training. Although the expertise of the researcher is crucial to all phases of the research process, much of the success of funded research is dependent on collaboration and the creation of conditions that are conducive to team-based research.
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Naniwadekar, Kadambari. "Stress and Anxiety Among Parents of Children With Communication Disorders." In Research Anthology on Physical and Intellectual Disabilities in an Inclusive Society, 1439–54. IGI Global, 2022. http://dx.doi.org/10.4018/978-1-6684-3542-7.ch076.

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Parenting is a wonderful and rewarding experience, but in the case of parents of children with communication disorder, this experience is often accompanied with high levels of stress, due to difficulties, frustrations, and challenges that these parents face in everyday life. This chapter was carried out to find the status of stress in parents of children with communication disorder and also to find the levels of stress among mothers as well as fathers, and the level of support system available. The results revealed that most of the parents experience stress and anxiety in bringing up their child with communication disorder, although the stress being more in the mothers. Gender of the child also played a crucial role in determining the levels of stress. The results highlighted the fact that parents of children with autism spectrum disorder have a higher level of stress followed by parents of children with intellectual disability, multiple disability, and hearing impairment.
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Stober, Kaitlin, and Alexis Franzese. "Chapter 5 The Parental Experience of Mothers with Children Who Have Developmental Disabilities: Qualitative Reflections On Marginalization and Resiliency." In Marginalized Mothers, Mothering from the Margins, 73–88. Emerald Publishing Limited, 2018. http://dx.doi.org/10.1108/s1529-212620180000025005.

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Baker, Regina S., and Linda M. Burton. "Chapter 4 Between a Rock and a Hard Place: SocioEconomic (IM)Mobility Among Low-Income Mothers of Children with Disabilities." In Marginalized Mothers, Mothering from the Margins, 57–72. Emerald Publishing Limited, 2018. http://dx.doi.org/10.1108/s1529-212620180000025004.

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Tomczyszyn, Dorota. "Trudności w realizacji ról rodzicielskich rodziców dzieci z niepełnosprawnością intelektualną." In Kiedy myślimy rodzina..., 231–48. Uniwersytet Papieski Jana Pawła II w Krakowie. Wydawnictwo Naukowe, 2016. http://dx.doi.org/10.15633/9788374385091.17.

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The paper presents the results of research on difficulties in realization of parental roles of parents of children with intellectual disabilities. The au­thor has surveyed 222 parents of chil­dren with intellectual disabilities, includ­ing 111 mothers and 111 fathers. The re­search was completed in 2013 and 2014 in the Lublin Province. On the basis of parents’ declarations it can be seen that most respondents did not encounter dif­ficulties in the professional sphere or the sphere of marriage, but in tasks connect­ed with raising a child with a disability. Problems that appear in parenting chil­dren with disabilities concern most of­ten health care services, rehabilitation and the way the disabled are treated by others.
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Gordon, Maria. "Parents as Advocates for Children with IBD at School." In Advances in Early Childhood and K-12 Education, 138–50. IGI Global, 2016. http://dx.doi.org/10.4018/978-1-4666-9452-1.ch007.

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Inflammatory Bowel Disease (IBD) is an “invisible” chronic illness, which is largely internal without significant observable external symptoms. Children with IBD experience painful and fluctuating physical symptoms caused by intestinal inflammation, as well as side effects from the medications. As a result, they necessitate special accommodations while they are in school. The Quebec Education Act (2010) stipulates that adequate services for a diverse student population must be provided. A case study conducted by Gordon (2013) with five families that participated in individual, semi-structured interviews revealed that families with a child with IBD functioned relatively well. These outcomes are contrary to the literature on families of children with disabilities. However, in Quebec public schools, parents and their children experienced teachers who lacked awareness of IBD and who provided insufficient classroom support. Hence, parents-(predominantly mothers) played an integral role in advocating for necessary accommodations on their child's behalf. This chapter will present the parents' school experiences and conclude with practical recommendations for teachers and families.
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Conference papers on the topic "Mothers of children with disabilities – Biography"

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Sanochkina, Anna Vladimirovna. "PSYCHOLOGICAL AND PEDAGOGICAL SUPPORT OF MOTHERS CARRYING OUT CHILDREN WITH DISABILITIES." In МЕЖДУНАРОДНЫЙ ПЕДАГОГИЧЕСКИЙ ФОРУМ "СТРАТЕГИЧЕСКИЕ ОРИЕНТИРЫ СОВРЕМЕННОГО ОБРАЗОВАНИЯ". Уральский государственный педагогический университет, 2020. http://dx.doi.org/10.26170/kso-2020-275.

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Santamaria Graff, Cristina. "Family as Faculty: Centering the Voices of Mothers of Color of Children With Disabilities." In 2022 AERA Annual Meeting. Washington DC: AERA, 2022. http://dx.doi.org/10.3102/1880814.

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Doyle, C., and P. Cronin. "G37 Difficulties in ‘giving medicines’ to children with severe and profound intellectual disabilities – mothers’ experiences." In Royal College of Paediatrics and Child Health, Abstracts of the Annual Conference, 24–26 May 2017, ICC, Birmingham. BMJ Publishing Group Ltd and Royal College of Paediatrics and Child Health, 2017. http://dx.doi.org/10.1136/archdischild-2017-313087.37.

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Kim, HyeYoung. "Case Study on Disclosing Children's Disabilities: Perspectives From First-Generation Immigrant Korean Mothers." In AERA 2022. USA: AERA, 2022. http://dx.doi.org/10.3102/ip.22.1899830.

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Cheyney-Collante, Kristi. "Mothers of Children With Disabilities Navigating School Closures and Remote Learning During the COVID-19 Pandemic." In 2021 AERA Annual Meeting. Washington DC: AERA, 2021. http://dx.doi.org/10.3102/1688825.

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Almakaneen, Hisham. "THE LEVEL OF PSYCHOSOCIAL SUPPORT PROVIDED FOR MOTHERS OF SYRIAN CHILDREN REFUGEES WITH DISABILITIES IN JORDAN." In 12th annual International Conference of Education, Research and Innovation. IATED, 2019. http://dx.doi.org/10.21125/iceri.2019.2476.

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Odintsova, M. A., and P. A. Ivanova. "ПРОЕКТИВНАЯ ТЕХНИКА «ПРОСТРАНСТВО ДЕРЕВА И СВЕТА» ПРИ РАБОТЕ С СЕМЬЯМИ С ИНВАЛИДНОСТЬЮ." In ПЕРВЫЙ МЕЖКОНТИНЕНТАЛЬНЫЙ ЭКСТЕРРИТОРИАЛЬНЫЙ КОНГРЕСС «ПЛАНЕТА ПСИХОТЕРАПИИ 2022: ДЕТИ. СЕМЬЯ. ОБЩЕСТВО. БУДУЩЕЕ». Crossref, 2022. http://dx.doi.org/10.54775/ppl.2022.20.74.001.

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The “Space of Trees and Light” technique, proposed by K. Adams, is based on the metaphors of trees and light as a special space, and allows a better understanding of the nature of children's experience of relationships in families with disabilities. There are 4 pictures filled with different shades of light and dark. In the first "The Vivid Space", a child is depicted sitting near a large tree in bright light, symbolizing stability and protection. The second “the Shimmering Space” depicts a road through a dark forest, along which a child is walking, accompanied by an adult, symbolizing family support. The third "The Opaque space" depicts twilight with a dark silhouette of a child, symbolizing loneliness and anxiety. The fourth "The Invisible Space" with trees in the fog and no child at all symbolizes doubt, detachment and loss of oneself. The results of the study involving 46 respondents with disabilities and 24 mothers of children with disabilities showed that a third of people with disabilities more often choose "The Vivid" and "The Shimmering" spaces, a quarter – "the Opaque Space" and 10.4% "the Invisible Space", in contrast to conditionally healthy mothers of children with disabilities (χ²=12.153; р=0.007). 62.5% of these mothers choose "the Vivid Space", 16.7% – "the Shimmering Space", 20.8% – "the Invisible space", in contrast to respondents with disabilities who do not have children (χ²=11.808; р=0.008). Mothers of children with disabilities have a rather favorable experience of relationships in the parental family, which they can pass on to their children. Although there is some detachment and loss of self, which may be associated with the traumatic situation of giving birth of a child with disabilities. People with disabilities equally often choose "the Vivid", "the Shimmering" and "the Opaque" spaces, which indicates a diverse experience of relationships in parental families. The set of pictures “Space of Trees and light” can become an instrument for assessing the experience of relationships in a parental family and a psychotherapeutic form of travel to childhood experience; a navigator for developing relationships in families with 176 disabilities. It is possible to dive into childhood experience, moving from picture to picture, discussing transitions and drawing resources from different spaces. Funding. The reported study was funded by Russian Science Foundation (RSF), project number 22-28-00820 (Psychological resources of socially vulnerable groups in the face of modern challenges (on the example of people with disabilities and their families). Техника «Пространство дерева и света» предложена К.Адамс, основана на метафорах пространств дерева и света, позволяет лучше понять характер детского опыта отношений в семьях с инвалидностью. Предлагаются 4 картинки, наполненные разными оттенками света и тьмы. На первой «Живое пространство», изображен ребенок, сидящий около большого дерева в ярком свете, символизирует устойчивость и защиту. На второй «Мерцающее пространство» изображена дорога через темный лес, по которой идет ребенок, поддерживаемый взрослым, символизирует поддержку в семье. На третьей «Непрозрачное пространство» изображены сумерки, различим темный силуэт ребенка, символизирует одиночество, тревогу. Четвертая «Невидимое пространство» с деревьями в тумане, на картине нет ребенка. Символизирует сомнения, отстраненность, потерю себя. Исследование с участием 46 респондентов с инвалидностью и 24 матерей детей с инвалидностью, показало, что треть людей с инвалидностью чаще выбирают «живое» «мерцающее», четверть – «непрозрачное» и 10,4% «невидимое» пространства в отличие от условно здоровых матерей, имеющих детей с инвалидностью (χ²=12,153; р=0,007). 62,5% матерей детей с инвалидностью выбирают «живое», 16,7% – «мерцающее», 20,8% – «невидимое» пространства в отличие от респондентов с инвалидностью, не имеющих детей (χ²=11,808; р=0,008). У матерей детей с инвалидностью достаточно благоприятный опыт отношений в родительской семье, который они могут передавать своим детям, хотя и отмечается некоторая отстраненность и потеря себя, что, возможно, связано с травматической ситуацией рождения ребенка с инвалидностью. Лица с инвалидностью одинаково часто выбирают «живое», «мерцающее» и «непрозрачное» пространства, что свидетельствует о разнообразном опыте отношений в родительских семьях. Набор картинок «Пространство дерева и света» может стать инструментом оценки опыта отношений в родительской семье и психотерапевтической формой путешествия в детский опыт; навигатором для развития отношений в семьях с инвалидностью. Можно совершать путешествия в детский опыт, двигаясь от картинки к картинке, обсуждая переходы и черпая ресурсы в разных пространствах. Финансирование:Исследование выполнено при поддержке Российского научного фонда (РНФ) в рамках научного проекта № 22-28-00820 («Психологические ресурсы социально уязвимых групп в условиях вызовов современности (на примере лиц с инвалидностью и их семей)»).
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