Journal articles: 'Informed user'

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Johnson, Ian M. "Librarians and the informed user." Librarian Career Development 7, no. 4 (April 1999): 29–42. http://dx.doi.org/10.1108/09680819910276941.

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Chen, Tom, Judy Drennan, Lynda Andrews, and Linda D. Hollebeek. "User experience sharing." European Journal of Marketing 52, no. 5/6 (May 14, 2018): 1154–84. http://dx.doi.org/10.1108/ejm-05-2016-0298.

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PurposeThis paper aims to propose user experience sharing (UES) as a customer-based initiation of value co-creation pertaining to service provision, which represents customers’ level of effort made for the direct benefit of others in their service network. The authors propose and empirically examine a user experience sharing model (UESM) that explicates customer-to-customer (C2C) UES and its impacts on firm-desired customer-based outcomes in online communities.Design/methodology/ApproachBased on an extensive review, the authors conceptualize UES and UESM. By using online survey data collected from mobile app users in organic online communities, the authors performed structural equation modeling analyses by using AMOS 24.FindingsThe results support the proposed UESM, showing that C2C UES acts as a key driver of both firm-desired customer efforts and customer insights. The results also confirmed that service-dominant (S-D) logic-informed motivational drivers exert a significant impact on C2C UES. Importantly, C2C UES mediates the relationship between S-D logic-informed motivational drivers and firm-desired customer-based outcomes.Originality/valueThis study offers a pioneering attempt to develop an overarching concept, UES, which reflects customers’ initiation of value co-creation, and to empirically examine C2C UES. The empirical evidence supports the key contention that firms should proactively facilitate C2C UES.

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Schubel, Laura, Lucy Stein, Ronald Romero, and Kristen Miller. "Mitigating Cardiovascular Risk Through User Informed Clinical Decision Support." Proceedings of the International Symposium on Human Factors and Ergonomics in Health Care 9, no. 1 (September 2020): 67–69. http://dx.doi.org/10.1177/2327857920091045.

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As the volume of data within the electronic health record (EHR) increases, there is an evident need for user-friendly and efficient clinical decision support tools developed to assist with patient assessment. Risk calculators, specifically for atherosclerotic cardiovascular disease (ASCVD), are examples of surveillance tools that intend to quantify and predict patient risk of suffering a cardiovascular event. However, despite reported frequent use by clinicians, risk calculators exist largely outside of the EHR, requiring external navigation and increasing the likelihood of user error. Using a mixed methods approach to development, the present research mitigates the challenges posed by external surveillance platforms and discusses the process of designing and optimizing a clinical tool intended to address ASCVD risk at the point of care. These methods ultimately resulted in a risk calculator with both provider- and patient-facing platforms, data autopopulating functionality, and customizable and flexible integration within the provider’s EHR workflow.

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Huebener, Heike, Peter Hoffmann, Klaus Keuler, Susanne Pfeifer, Hans Ramthun, Arne Spekat, Christian Steger, and Kirsten Warrach-Sagi. "Deriving user-informed climate information from climate model ensemble results." Advances in Science and Research 14 (July 27, 2017): 261–69. http://dx.doi.org/10.5194/asr-14-261-2017.

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Abstract. Communication between providers and users of climate model simulation results still needs to be improved. In the German regional climate modeling project ReKliEs-De a midterm user workshop was conducted to allow the intended users of the project results to assess the preliminary results and to streamline the final project results to their needs. The user feedback highlighted, in particular, the still considerable gap between climate research output and user-tailored input for climate impact research. Two major requests from the user community addressed the selection of sub-ensembles and some condensed, easy to understand information on the strengths and weaknesses of the climate models involved in the project.

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Michaels, Amanda. "The informed user: a step up from the Clapham Omnibus." Journal of Intellectual Property Law & Practice 2, no. 4 (January 1, 2007): 208–10. http://dx.doi.org/10.1093/jiplp/jpm014.

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Banks, Penny. "User Involvement and Participation in Social Care: Research Informed Practice." Health and Social Care in the Community 9, no. 4 (July 2001): 260–61. http://dx.doi.org/10.1046/j.1365-2524.2001.00294-6.x.

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Mairesse, François, and Marilyn A. Walker. "Towards personality-based user adaptation: psychologically informed stylistic language generation." User Modeling and User-Adapted Interaction 20, no. 3 (July 3, 2010): 227–78. http://dx.doi.org/10.1007/s11257-010-9076-2.

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Miyagi, Toshihiko, and Genaro C. Peque. "Informed-user Algorithms that Converge to Nash Equilibrium in Traffic Games." Procedia - Social and Behavioral Sciences 54 (October 2012): 438–49. http://dx.doi.org/10.1016/j.sbspro.2012.09.762.

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Smyth, D. "Samsung v Apple: How does the judge become an 'informed user'?" Journal of Intellectual Property Law & Practice 7, no. 11 (September 17, 2012): 776–78. http://dx.doi.org/10.1093/jiplp/jps142.

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Bardeen, Angela, Kristina Spurgin, Therese Triumph, and Libby Wilcher. "Data-Informed Ebook Discovery: An Analytical Approach to the User Experience." Serials Review 43, no. 3-4 (October 2, 2017): 231–38. http://dx.doi.org/10.1080/00987913.2017.1368000.

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Kudina, Olya. "Regulating AI in Health Care: The Challenges of Informed User Engagement." Hastings Center Report 51, no. 5 (June 22, 2021): 6–7. http://dx.doi.org/10.1002/hast.1263.

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Calabrese, Justin M., Christen H. Fleming, Michael J. Noonan, and Xianghui Dong. "ctmmweb: A Graphical User Interface for Autocorrelation‐Informed Home Range Estimation." Wildlife Society Bulletin 45, no. 1 (February 12, 2021): 162–69. http://dx.doi.org/10.1002/wsb.1154.

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Andrienko, Natalia, and Gennady Andrienko. "Informed Spatial Decisions Through Coordinated Views." Information Visualization 2, no. 4 (December 2003): 270–85. http://dx.doi.org/10.1057/palgrave.ivs.9500058.

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According to a commonly accepted view, the process of decision making comprises three major phases: intelligence (situation analysis and problem recognition), design (finding possible variants of problem solution), and choice (evaluation of the options and selection of the most appropriate ones). It is widely recognised that exploratory data visualisation is very helpful during the first phase of the decision-making process, while the other phases require different software tools. In particular, the choice phase is typically supported by various computational methods that find appropriate trade-offs among multiple conflicting criteria taking into account user-specified priorities. Visualisation plays a limited role: in the best case, it is used to represent the final results of the computations. We argue that conscious, well-substantiated choice requires a more extensive use of exploratory visualisation facilities, which need to be properly coordinated with the computational multi-criteria decision support methods. Extremely important is a high degree of user interactivity, which allows the user to probe the robustness and quality of computationally derived solutions. We suggest several mechanisms for linking and coordinating visual exploratory tools with two types of computational methods differing in the sort of output they produce. We demonstrate the use of this dynamic link with an example of a real spatially related decision problem.

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Araujo Zubieta, Mariana, María Noel Firpo Gallo, Eloísa Capano Añon, María José Andrade Falconi, Diego Greif Waldman, María Fernanda Nozar Cabrera, Verónica Fiol Lepera, and Francisco Coppola Gonzalvez. "Información de las usuarias y consentimiento informado en inducciones del trabajo de parto." Horizonte Médico (Lima) 14, no. 4 (December 23, 2014): 15–18. http://dx.doi.org/10.24265/horizmed.2014.v14n4.03.

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Petersen, Carolyn. "User-focused data sharing agreements: a foundation for the genomic future." JAMIA Open 2, no. 4 (October 1, 2019): 402–6. http://dx.doi.org/10.1093/jamiaopen/ooz043.

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Abstract Data sharing agreements that clearly describe what individuals are agreeing to and what responsibilities data stewards will undertake are crucial for the establishment, maintenance, and flourishing of genomic datasets. To optimize genomic data resources, researchers, care professionals, and informaticians must regard system design, user objectives, and environmental considerations through users’ eyes, identifying fundamental values on which to build and potential barriers to success that must be avoided. Design of agreements that promote desired data sharing and protect valuable data resources as necessary begins with a review of user interests and concerns. Nontraditional approaches for informed consent (eg, abbreviated informed consent, electronic informed consent, and dynamic consent) can facilitate achievement of data donors’ privacy-related goals while making data available to researchers. Transparency in individual-researcher interactions, recognition and accommodation of cultural differences, and identification of shared needs and goals create a foundation for data sharing agreements that work over short and long terms.

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Sánchez-Bahíllo, Angel, Claire Davis, Richard Onyon, and Jan Birtle. "Involving service users in the recruitment of mental health staff: the Service User Informed Tool for Staff Selection (SUITSS)." Psychiatrist 36, no. 4 (April 2012): 133–36. http://dx.doi.org/10.1192/pb.bp.111.035030.

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Aims and methodService user involvement in the development of services is a fundamental aim of the National Health Service (NHS). However, a structured and quantifiable approach to their involvement in the recruitment of NHS staff is still lacking. In this study, we used service-user focus groups within a therapeutic community for people with personality disorder in order to develop the Service User Informed Tool for Staff Selection (SUITSS).ResultsWe enabled service users to develop SUITSS as a Likert scale with which to define relevant staff characteristics and rate applicants according to them, informing the staff-selection process. The tool has a semi-quantitative format that allows to test whether applicants with higher ratings are actually appointed by selection panels or not.Clinical implicationsThis new tool provides an approach to enhancing service user contributions to staff recruitment. It may be adapted and refined for use in a range of services, with local input from service users, following the approach described here.

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Moreno-Ger, Pablo, Javier Torrente, Yichuan Grace Hsieh, and William T. Lester. "Usability Testing for Serious Games: Making Informed Design Decisions with User Data." Advances in Human-Computer Interaction 2012 (2012): 1–13. http://dx.doi.org/10.1155/2012/369637.

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Usability testing is a key step in the successful design of new technologies and tools, ensuring that heterogeneous populations will be able to interact easily with innovative applications. While usability testing methods of productivity tools (e.g., text editors, spreadsheets, or management tools) are varied, widely available, and valuable, analyzing the usability of games, especially educational “serious” games, presents unique usability challenges. Because games are fundamentally different than general productivity tools, “traditional” usability instruments valid for productivity applications may fall short when used for serious games. In this work we present a methodology especially designed to facilitate usability testing for serious games, taking into account the specific needs of such applications and resulting in a systematically produced list of suggested improvements from large amounts of recorded gameplay data. This methodology was applied to a case study for a medical educational game, MasterMed, intended to improve patients’ medication knowledge. We present the results from this methodology applied to MasterMed and a summary of the central lessons learned that are likely useful for researchers who aim to tune and improve their own serious games before releasing them for the general public.

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Thaete, Kristi, Kasey Rowzer, Karen Stephens, and Susan M. Abdel-Rahman. "User-Informed Medical Device Development: A Case Study for Pediatric Malnutrition Assessment." Global Pediatric Health 6 (January 2019): 2333794X1986157. http://dx.doi.org/10.1177/2333794x19861575.

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Background. Mid-upper arm circumference (MUAC) has been extensively used to classify pediatric malnutrition. Recently, MUAC z score was recommended; however, the logistics of implementation were not addressed. This study examines the usability of a device that provides MUAC and corresponding z score range in a single device. Methods. This was a single-center study of nutrition services providers. The device was applied to children aged 2 months to 18 years admitted as inpatients or seen as outpatients. Surveys incorporated benchmarking questions, assessed the ease with which respondents could perform 6 critical tasks, and provided an open-ended question to elicit feedback. Users were surveyed monthly until saturation was reached. Survey data were analyzed in aggregate and cross-tabulated by the respondents’ experience with the device. Thematic analysis of the open-ended responses followed a structured approach. Results. Sixty device users responded to the survey 280 times. Respondents were female (100%) with a mean age of 45.2 ± 13.2 years and 9.6 ± 8.0 years in practice. Increasing device use was accompanied by significantly shortened measuring times ( P < .001) and shifts in ease of performance for 5 of 6 critical tasks ( P < .05). Open-ended response themes related largely to design and materials. These were used to iteratively refine the device. Conclusions. The active engagement of end users in the real-world testing of our nutritional assessment device allowed us to refine the innovation with special attention paid to the needs of dietitians. The result is a device the majority of dietitians found easy to use, efficient, convenient, and preferable to alternative measurement options.

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Wang, Qi, W. L. Woo, and S. S. Dlay. "Informed Single-Channel Speech Separation Using HMM–GMM User-Generated Exemplar Source." IEEE/ACM Transactions on Audio, Speech, and Language Processing 22, no. 12 (December 2014): 2087–100. http://dx.doi.org/10.1109/taslp.2014.2357677.

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Brunon-Ernst, Anne. "The Fallacy of Informed Consent: Linguistic Markers of Assent and Contractual Design in Some E-User Agreements." Revista Alicantina de Estudios Ingleses, no. 28 (November 15, 2015): 37. http://dx.doi.org/10.14198/raei.2015.28.03.

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Orthodox contract law theory assumes that parties agree to the terms of a contract before entering into an agreement. However, recent factual evidence points towards the fact that consumers do not systematically read, and thus become informed of, the terms of a contract. Academics are asking for mandatory frameworks to ensure that informed consent is indeed sought and given by parties to a contract. The present study looks into the user agreements of four online companies that provide a marketplace for the sale of goods or free provision of services by other sellers and/or users (Ebay, Tripadvisor, YouTube and Amazon). The aim is firstly to identify the lexical/textual markers and peri-textual features of agreement in order to highlight the fallacy of informed consent. Secondly, the paper lists textual and peri-textual alternative contractual design (here called counter-design) in online user agreement. In so doing, contractual design features are distinguished from nudges. Suggested counter-design features help make informed consent effective.

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Moberg, Linda, Paula Blomqvist, and Ulrika Winblad. "User choice in Swedish eldercare – conditions for informed choice and enhanced service quality." Journal of European Social Policy 26, no. 3 (May 9, 2016): 281–95. http://dx.doi.org/10.1177/0958928716645076.

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Ranerup, Agneta, and Helle Zinner Henriksen. "Enrolling citizens as informed consumers in quasi-markets." Information Technology & People 32, no. 6 (December 2, 2019): 1517–35. http://dx.doi.org/10.1108/itp-07-2017-0232.

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Purpose Many countries today, especially in Europe, provide publicly funded public services in quasi-markets. As these markets commercialize, agencies of various types are providing technologies that support citizens’ choice of services. Citizens’ use of technologies for service provision is studied as e-government under labels of channel management, e-service uptake or adoption. In contrast, by using actor–network theory (ANT), the purpose of this paper is to focus on the marketing devices that are used to enroll citizens to choose technologies in a context with large penetration of quasi-market arrangements. Design/methodology/approach Based on a Swedish case study, this paper uses qualitative data from 11 occurrences of technologies to support citizens’ choice (“market devices”) in education, healthcare and public pension in an analysis of the means taken (“marketing devices”) to increase their use. The study formulates a tentative typology of these devices. Findings The marketing devices are intended to attract citizens’ attention to the possibility of choice (e.g. catalogs, postcards and commercials), invite interaction (e.g. various social media platforms), improve the technological support in line with user needs (e.g. user participation in development), increase visibility of technological support (e.g. search optimization) or directly connect citizens to technological support (e.g. via links). Originality/value The paper contributes to e-government research through a typology of means taken to increase citizens’ technology use based on selected concepts from ANT, and to a discussion of technologies and humans.

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Marzal, Jefri, Rizqa Raaiqa Bintana, and Pradita Eko Prasetyo Utomo. "USER ACCEPTANCE OF DATA INFORMED DECISION MAKING PORTALS: APPLICATION OF THE UTAUT MODEL AND LEADERSHIP STYLES." Journal of Business Studies and Mangement Review 5, no. 1 (December 31, 2021): 102–7. http://dx.doi.org/10.22437/jbsmr.v5i1.17052.

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In general, to make decisions in the discipline of information systems are divided into two, namely Decision Support System (DSS) and Data Informed Decision Making (DIDM). DIDM is a data-driven decision-making process taking into account previous experience, user research, and other important information. Many applications are categorized as data-informed for universities, one of which is a portal that contains data or information about various aspects of a university. There are not many known factors that influence leaders to use informed data as a tool for making decisions. This study applies the UTAUT (Unified Theory of Acceptance and Use of Technology) model by adding a leadership style variable as a moderating variable. Hypothesis testing using the bootstrapping technique in this study involved a number of samples (N) of 300, testing for the two-tailed hypothesis, using a significance level of 5%. Based on the test results revealed only facilitating conditions that affect use behavior. Meanwhile, the variables of performance expectancy, effort expectancy, and social influence have no effect on behavioral intention to use the application. In addition, it was also found that the moderator variable of leadership style did not affect the relationship between performance expectancy, effort expectancy, social influence, and facilitating conditions with the intention and actual use of leaders in data informed applications to make decisions.

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Neal, David, Yvonne Kerkhof, Teake Ettema, Karin Dijkstra, and Rose-Marie Dröes. "User-Centered Design of a Dementia-Friendly Privacy Policy for the FindMyApps Intervention." Innovation in Aging 5, Supplement_1 (December 1, 2021): 588. http://dx.doi.org/10.1093/geroni/igab046.2256.

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Abstract The ability of people with dementia and their caregivers to successfully navigate online environments is increasingly important to their social health. However, uncertainty about privacy online is an important barrier. Theoretically, access to published privacy policies should allow users of websites or software applications to make informed decisions. In practice, such documents are often complicated texts, and consequently even less accessible to people with cognitive impairment than to the general population. We present results from a multi-stakeholder, user-centred design process, towards an accessible alternative: a ‘dementia-friendly privacy policy’. Three design sprints took place in 2021, led by participants of the ‘Smart Solutions Semester’ at Saxion University of Applied Sciences in the Netherlands, in collaboration with cognitively unimpaired laypeople, people with dementia, informal caregivers, and expert stakeholders. Outputs were specifications for the solution, low-fidelity prototypes and high-fidelity prototypes, respectively. The dementia-friendly privacy policy is now ready for implementation and further evaluation.

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Bagot, Kara, Elizabeth Hodgdon, Natasha Sidhu, Kevin Patrick, Mikaela Kelly, Yang Lu, and Eraka Bath. "End User–Informed Mobile Health Intervention Development for Adolescent Cannabis Use Disorder: Qualitative Study." JMIR mHealth and uHealth 7, no. 10 (October 4, 2019): e13691. http://dx.doi.org/10.2196/13691.

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Background The rates of cannabis use continue to increase among adolescents and the current interventions have modest effects and high rates of relapse following treatment. There is increasing evidence for the efficacy of mobile technology–based interventions for adults with substance use disorders, but there is limited study of this technology in adolescents who use cannabis. Objective The goal of our study was to elucidate elements of an app-based adjunctive intervention for cannabis cessation that resonate with adolescents who use cannabis. Methods Adolescents, aged between 14 and 17 years, who used cannabis were recruited from San Diego County high schools. Semistructured focus groups (6 total; N=37) were conducted to examine the ways in which participants used smartphones, including the use of any health behavior change apps, as well as to elicit opinions about elements that would promote engagement with an app-based intervention for adolescent cannabis cessation. An iterative coding structure was used with first cycle structural coding, followed by pattern coding. Results Themes that emerged from the analysis included (1) youth valued rewards to incentivize the progressive reduction of cannabis use, which included both nontangible rewards that mimic those obtained on social media platforms and prosocial activity-related rewards, (2) having the ability to self-monitor progression, (3) peer social support, (4) privacy and confidentiality discrete logo and name and usernames within the app, and (5) individualizing frequency and content of notifications and reminders. Conclusions Integrating content, language, interfaces, delivery systems, and rewards with which adolescents who use cannabis are familiar, engage with on a day-to-day basis, and identify as relevant, may increase treatment engagement and retention for adolescents in substance use treatment. We may increase treatment effectiveness by adapting and individualizing current evidence-based interventions, so that they target the needs of adolescents and are more easily incorporated into their everyday routines.

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Law, Heather, Anthony Morrison, Rory Byrne, and Ellen Hodson. "Recovery from psychosis: a user informed review of self-report instruments for measuring recovery." Journal of Mental Health 21, no. 2 (April 2012): 192–207. http://dx.doi.org/10.3109/09638237.2012.670885.

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Frabboni, Maria Mercedes. "Fashion designs and brands: The role of the informed user and the average consumer." Journal of World Intellectual Property 23, no. 5-6 (October 29, 2020): 815–31. http://dx.doi.org/10.1111/jwip.12176.

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Potts, Matthew W., Angus Johnson, and Seth Bullock. "Evaluating the complexity of engineered systems: A framework informed by a user case study." Systems Engineering 23, no. 6 (September 7, 2020): 707–23. http://dx.doi.org/10.1002/sys.21558.

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Hugé, J., A. J. Rochette, S. de Béthune, C. C. Parra Paitan, K. Vanderhaegen, T. Vandervelden, S. Van Passel, et al. "Ecosystem services assessment tools for African Biosphere Reserves: A review and user-informed classification." Ecosystem Services 42 (April 2020): 101079. http://dx.doi.org/10.1016/j.ecoser.2020.101079.

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Clément, Alexandre, Luciano Moreira, Miriam Rosa, and Gilberto Bernardes. "Musical Control Gestures in Mobile Handheld Devices: Design Guidelines Informed by Daily User Experience." Multimodal Technologies and Interaction 5, no. 7 (June 27, 2021): 32. http://dx.doi.org/10.3390/mti5070032.

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Mobile handheld devices, such as smartphones and tablets, have become some of the most prominent ubiquitous terminals within the information and communication technology landscape. Their transformative power within the digital music domain changed the music ecosystem from production to distribution and consumption. Of interest here is the ever-expanding number of mobile music applications. Despite their growing popularity, their design in terms of interaction perception and control is highly arbitrary. It remains poorly addressed in related literature and lacks a clear, systematized approach. In this context, our paper aims to provide the first steps towards defining guidelines for optimal sonic interaction design practices in mobile music applications. Our design approach is informed by user data in appropriating mobile handheld devices. We conducted an experiment to learn links between control gestures and musical parameters, such as pitch, duration, and amplitude. A twofold action—reflection protocol and tool-set for evaluating the aforementioned links—are also proposed. The results collected from the experiment show statistically significant trends in pitch and duration control gesture mappings. On the other hand, amplitude appears to elicit a more diverse mapping approach, showing no definitive trend in this experiment.

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Ramos, S. Raquel. "User-Centered Design, Experience, and Usability of an Electronic Consent User Interface to Facilitate Informed Decision-Making in an HIV Clinic." CIN: Computers, Informatics, Nursing 35, no. 11 (November 2017): 556–64. http://dx.doi.org/10.1097/cin.0000000000000356.

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Su, Ke. "A Research on the Informed Tectonics Design Model Based on Material." Applied Mechanics and Materials 556-562 (May 2014): 4211–13. http://dx.doi.org/10.4028/www.scientific.net/amm.556-562.4211.

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The institutionalized separation between form, structure and material, deeply embedded in modernist design theory. This research proposes a model based on informed tectonics for a material-based approach enabled form-generation. Based on the analysis of user demand, this thesis develops a way to build up user demand model based on user preference. This model gives some reference to the development of product innovation.

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Cortes-Chavez, Fabiola, Alberto Rossa-Sierra, and Elvia Luz Gonzalez-Muñoz. "Design Process for a Birthing Bed, Based on User Hierarchy: Promoting Improvement in User Satisfaction." Applied Sciences 11, no. 20 (October 11, 2021): 9430. http://dx.doi.org/10.3390/app11209430.

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The medical device design process has a responsibility to define the characteristics of the object to ensure its correct interaction with users. This study presents a proposal to improve medical device design processes in order to increase user acceptance by considering two key factors: the user hierarchy and the relationship with the patient’s health status. The goal of this study is to address this research gap and to increase design factors with practical suggestions for the design of new medical devices. The results obtained here will help medical device designers make more informed decisions about the functions and features required in the final product during the development stage. In addition, we aim to help researchers with design process didactics that demonstrate the importance of the correct execution of the process and how the factors considered can have an impact on the final product. An experiment was conducted with 40 design engineering students who designed birthing beds via two design processes: the traditional product design process and the new design process based on hierarchies (proposed in this study). The results showed a significant increase in the user acceptance of the new birthing bed developed with the hierarchical-based design process.

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De Sutter, Evelien, Drieda Zaçe, Stefania Boccia, Maria Luisa Di Pietro, David Geerts, Pascal Borry, and Isabelle Huys. "Implementation of Electronic Informed Consent in Biomedical Research and Stakeholders’ Perspectives: Systematic Review." Journal of Medical Internet Research 22, no. 10 (October 8, 2020): e19129. http://dx.doi.org/10.2196/19129.

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Background Informed consent is one of the key elements in biomedical research. The introduction of electronic informed consent can be a way to overcome many challenges related to paper-based informed consent; however, its novel opportunities remain largely unfulfilled due to several barriers. Objective We aimed to provide an overview of the ethical, legal, regulatory, and user interface perspectives of multiple stakeholder groups in order to assist responsible implementation of electronic informed consent in biomedical research. Methods We conducted a systematic literature search using Web of Science (Core collection), PubMed, EMBASE, ACM Digital Library, and PsycARTICLES. PRISMA (Preferred Reporting Items for Systematic Reviews and Meta-Analyses) guidelines were used for reporting this work. We included empirical full-text studies focusing on the concept of electronic informed consent in biomedical research covering the ethical, legal, regulatory, and user interface domains. Studies written in English and published from January 2010 onward were selected. We explored perspectives of different stakeholder groups, in particular researchers, research participants, health authorities, and ethics committees. We critically appraised literature included in the systematic review using the Newcastle-Ottawa scale for cohort and cross-sectional studies, Critical Appraisal Skills Programme for qualitative studies, Mixed Methods Appraisal Tool for mixed methods studies, and Jadad tool for randomized controlled trials. Results A total of 40 studies met our inclusion criteria. Overall, the studies were heterogeneous in the type of study design, population, intervention, research context, and the tools used. Most of the studies’ populations were research participants (ie, patients and healthy volunteers). The majority of studies addressed barriers to achieving adequate understanding when using electronic informed consent. Concerns shared by multiple stakeholder groups were related to the security and legal validity of an electronic informed consent platform and usability for specific groups of research participants. Conclusions Electronic informed consent has the potential to improve the informed consent process in biomedical research compared to the current paper-based consent. The ethical, legal, regulatory, and user interface perspectives outlined in this review might serve to enhance the future implementation of electronic informed consent. Trial Registration PROSPERO International Prospective Register of Systematic Reviews CRD42020158979; https://www.crd.york.ac.uk/prospero/display_record.php?RecordID=158979

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Aryana, Bijan, and Liz Brewster. "Design for mobile mental health: Exploring the informed participation approach." Health Informatics Journal 26, no. 2 (September 30, 2019): 1208–24. http://dx.doi.org/10.1177/1460458219873540.

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Mobile applications (apps) have the potential to improve mental health services. However, there is limited evidence of efficacy or responsiveness to user needs for existing apps. A lack of design methods has contributed to this issue. Developers view mental health apps as stand-alone products and dismiss the complex context of use. Participatory design, particularly an informed participation approach, has potential to improve the design of mental health apps. In this study, we worked with young mobile users and mental health practitioners to examine the informed participation approach for designing apps. Using auto-ethnography and a set of design workshops, the project focused on eliciting design requirements as a factor for successful implementation. We compared resultant ideas and designs with existing apps. Many user requirements revealed were absent in existing apps, suggesting potential advantages to informed participation. The observation of the process, however, showed challenges in engagement that need to be overcome.

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Williams, Kristin, Jessica Hammer, and Scott E. Hudson. "An upcycled IoT." XRDS: Crossroads, The ACM Magazine for Students 27, no. 4 (June 2021): 19–25. http://dx.doi.org/10.1145/3466872.

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An upcycled approach uses everyday objects as design material for IoT systems by enabling users to make their "dumb" objects "smart." Adopting this approach, IoT Codex realizes a new socially informed, context-aware computing and end-user programming.

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Hoang, Nam H., Hai L. Vu, and Hong K. Lo. "An informed user equilibrium dynamic traffic assignment problem in a multiple origin-destination stochastic network." Transportation Research Part B: Methodological 115 (September 2018): 207–30. http://dx.doi.org/10.1016/j.trb.2018.07.007.

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Noain-Sánchez, Amaya. "“Privacy by default” and active “informed consent” by layers." Journal of Information, Communication and Ethics in Society 14, no. 2 (May 9, 2016): 124–38. http://dx.doi.org/10.1108/jices-10-2014-0040.

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Purpose The purpose of this paper is to lay out an approach to addressing the problem of privacy protection in the global digital environment based on the importance that information has to improve users’ informational self-determination. Following this reasoning, this paper focuses on the suitable way to provide user with the correct amount of information they may need to maintain a desirable grade of autonomy as far as their privacy protection is concerned and decide whether or not to put their personal data on the internet. Design/methodology/approach The authors arrive at this point in their analysis by qualitative discourse analysis of the most relevant scientific papers and dossiers relating to privacy protection. Findings The goal of this paper is twofold. The first is to illustrate the importance of privacy by default and informed consent working together to protect information and communication technology (ICT) users’ privacy. The second goal is to develop a suitable way to administrate the mentioned “informed consent” to users. Originality/value To fulfil this purpose, the authors present a new concept of informed consent: active “informed consent” or “Opt-in” model by layers. “Opt-in” regimens have already been used with cookies but never with 2.0 applications, as, for instance, social network sites (SNS).

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Fischer, Björn, Alexander Peine, and Britt Östlund. "The Importance of User Involvement: A Systematic Review of Involving Older Users in Technology Design." Gerontologist 60, no. 7 (November 27, 2019): e513-e523. http://dx.doi.org/10.1093/geront/gnz163.

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Abstract Background and Objectives There is a lack of understanding of how older adults’ involvement and participation matters in actual design practice. This systematic literature review investigates existing empirical studies involving older users during the design of technologies and explores the nature and consequences of involving older people. Research Design and Methods Our literature review is informed by the guidelines of the PRISMA statement. We examined the included studies by means of thematic content analysis to identify the nature of older users’ involvement and existing evidence on what consequences it has. Results In total, 40 empirical studies published in the period 2014–2018 are included in the review. Most empirical studies involve older people from local networks, with underlying stereotypical images and at lower levels of participation. The results reveal three main consequences of involving older users: learning, adjusted design, and an increased sense of participation. Furthermore, we found that user involvement is a structured process whose outcomes are contingent on a range of premises. Discussion and Implications Synthesizing the results, we develop the concept of user involvement and present an analytical framework. Our results have implications for researchers and policy makers, since they throw into question the widely held assumption that involving older people inevitably yields beneficial outcomes.

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McCandless, Kate. "Just Because the Data Is There, It Doesn’t Mean It’s Yours to Take." Emerging Library & Information Perspectives 4, no. 1 (July 2, 2021): 34–61. http://dx.doi.org/10.5206/elip.v4i1.13554.

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In research conducted using Twitter data, informed consent has taken the back seat. This literature review examines the perspectives of users, researchers and research ethics boards to provide nuance and context to the issue. Users are generally unaware that their data can be taken for research purposes and that they have agreed to be studied within the platform’s terms of service. This is concerning for both researchers and users alike, as it continues to blur the line of public and private information. Users want to be informed when they are being studied. When informed consent is not obtained, researchers are not respecting the data and the humans who created it. If researchers were required to obtain informed consent when engaging with Twitter data, the resulting research would be more ethical and protect everyone involved: the researcher, the user, and the university.

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Hooiveld, Truus, Joyce M. Molenaar, Claudia M. van der Heijde, Frans J. Meijman, Theo P. Groen, and Peter Vonk. "End-user involvement in developing and field testing an online contraceptive decision aid." SAGE Open Medicine 6 (January 2018): 205031211880946. http://dx.doi.org/10.1177/2050312118809462.

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Objectives: Decision aids in the field of healthcare contribute to informed decision making. To increase the usefulness and effectiveness of decision aids, it is important to involve end-users in the development of these tools. This article reports on the development of an online contraceptive decision aid. Methods: An exploratory, qualitative study was conducted in the Netherlands between 2014 and 2016. The development process of the decision aid consisted of six steps and included a needs assessment and field test. Interviews were conducted with 17 female students. Results: The needs assessment provided information on the preferred content and structure of a contraceptive decision aid and guided the development of the online contraceptive decision aid prototype. Participants had an overall positive impression of the decision aid prototype during the field test. Minor revisions were made based on participants’ feedback. Participants expected that the decision aid would positively contribute to decision making by increasing knowledge and awareness regarding the available contraceptive methods and their features and attributes, and by opening up to other options than the known methods. Conclusion: The developed contraceptive decision aid can contribute to better informed decision making and consultation preparation. Involving end-users in development seems valuable to adapt decision aids to specific needs and to identify in what way a decision aid influences decision making.

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Bauer, Stephanie, Sally Bilić, Fikret Ozer, and Markus Moessner. "Dissemination of an Internet-Based Program for the Prevention and Early Intervention in Eating Disorders." Zeitschrift für Kinder- und Jugendpsychiatrie und Psychotherapie 48, no. 1 (January 1, 2020): 25–32. http://dx.doi.org/10.1024/1422-4917/a000662.

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Abstract. Objective: Research on the dissemination of e-mental health interventions is in an early stage, so that little is known about the reach, costs, participant characteristics, and patterns of program utilization associated with different recruitment strategies and access paths. This study investigated differences between user groups informed about an Internet-based program for the prevention and early intervention in eating disorders via different recruitment channels. Method: Participant characteristics and user behavior of 3548 participants in the Internet-based program ProYouth were analyzed. Participants were informed about ProYouth via different channels (e. g., print materials, high school, Internet). Results: Results indicate significant relationships between access paths and both user characteristics and program utilization. Participants who were informed about ProYouth at their high schools were more likely to be male, younger, and at lower risk of developing eating disorders. In contrast, other recruitment channels (e. g., Internet, print materials) resulted in participants with significantly higher risk and symptom levels who used the program more frequently and with higher intensity. Conclusion: Efforts aimed at the dissemination of Internet-based interventions should consider the effects that different recruitment channels and access paths may have on sample composition and utilization of the intervention.

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Gilmore, Kelly, Alison Ojanen-Goldsmith, Lisa S. Callegari, and Emily M. Godfrey. "The first 6 months: developing a user-informed anticipatory counselling video about the levonorgestrel intrauterine system." BMJ Sexual & Reproductive Health 44, no. 4 (June 22, 2018): 248–53. http://dx.doi.org/10.1136/bmjsrh-2018-200055.

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BackgroundThe levonorgestrel intrauterine system (LNG-IUS) is a contraceptive method that can cause irregular bleeding and cramping during the first 6 months of use. Expected side effects are common reasons given for LNG-IUS device discontinuation within 12 months of use. Anticipatory counselling regarding expected LNG-IUS side effects may reduce method discontinuation and improve patient satisfaction. Educational videos could improve anticipatory counselling for LNG-IUS users; however, none have been developed. This article describes the process of developing an anticipatory counselling video with input from women in the first 6 months of LNG-IUS use and from family planning (FP) experts.MethodsWe used a participatory, iterative process to develop an anticipatory counselling video about the first 6 months of LNG-IUS use. We developed a preliminary draft using evidence from the published literature. We sought feedback from 11 FP experts and 49 LNG-IUS users to revise the script before creating the final video.ResultsFP experts suggested balancing negative with positive information and using colloquial language. LNG-IUS users requested more detailed information on the LNG-IUS mechanism of action and expected side effects in the form of statistics, infographic animations, testimonials from LNG-IUS users, and technical as opposed to colloquial language. The final video is 6 min in length and features seven LNG-IUS users, three physicians, and infographic animations.ConclusionIncluding input from FP experts and LNG-IUS users in the development process resulted in a 6-min anticipatory counselling video that will be piloted among patients on the day of their LNG-IUS insertion.

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O'Brien, Tish, and Katrina Bannigan. "Making Informed Choices in the Context of Service User Empowerment and the Mental Capacity Act 2005." British Journal of Occupational Therapy 71, no. 7 (July 2008): 305–7. http://dx.doi.org/10.1177/030802260807100709.

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Khayamian Esfahani, B. "PUTTING USER IN CONTEXT: A PARTICIPATORY DESIGN APPROACH USING A SIMULATED BEACH ENVIRONMENT." Proceedings of the Design Society: DESIGN Conference 1 (May 2020): 1941–48. http://dx.doi.org/10.1017/dsd.2020.331.

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AbstractThe research outlined in this paper investigated the sun protection behaviour in young men age 18 to 24. Firstly, field observations were conducted on the beach where the sun protection behaviour occurs. The findings highlighted the importance of gender linked with low levels of sun protection behaviour in young men. This informed the next study through participatory design sessions using a simulated beach environment. The results showed design opportunities with taking an account of gender in sun protection behaviour which opens new avenues where design has a key role in health promotion.

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Blocker, Kenneth A., Kathleen C. Insel, Jeannie K. Lee, Qiong Nie, Abidemi Ajuwon, and Wendy A. Rogers. "User Insights for Design of an Antihypertensive Medication Management Application." Proceedings of the Human Factors and Ergonomics Society Annual Meeting 62, no. 1 (September 2018): 1077–81. http://dx.doi.org/10.1177/1541931218621247.

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Hypertension is the most common chronic disease affecting older adults (65+) in the United States. Unfortunately, many struggle to adhere to their antihypertensive medications as only about half diagnosed with the disease have it controlled. Therefore, there is a need for designing supportive medication management systems to aid this population with their antihypertensive medications, especially using increasingly adopted technologies such as smartphones. The preferences of older adults with hypertension must be considered when designing such systems for this population. Six older adults participated in structured interviews to inform the design of the Medication Education, Decision Support, Reminding and Monitoring System (MEDSReM). Results revealed management needs, design insights, and reminder preferences, as well as mostly positive opinions regarding technology use for medication management. These findings informed the development of MEDSReM with the goal of supporting older adults in successfully managing their antihypertensive medications.

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Li, Cheng-Te, and Zi-Yun Zeng. "Learning Effective Feature Representation against User Privacy Protection on Social Networks." Applied Sciences 10, no. 14 (July 14, 2020): 4835. http://dx.doi.org/10.3390/app10144835.

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Users pay increasing attention to their data privacy in online social networks, resulting in hiding personal information, such as profile attributes and social connections. While network representation learning (NRL) is widely effective in social network analysis (SNA) tasks, it is essential to learn effective node embeddings from privacy-protected sparse and incomplete network data. In this work, we present a novel NRL model to generate node embeddings that can afford data incompleteness coming from user privacy protection. We propose a structure-attribute enhanced matrix (SAEM) to alleviate data sparsity and develop a community-cluster informed NRL method, c2n2v, to further improve the quality of embedding learning. Experiments conducted across three datasets, three simulations of user privacy protection, and three downstream SNA tasks exhibit the promising performance of our NRL model SAEM+c2n2v.

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Goodacre, Lynne, and Gina Turner. "An Investigation of the Effectiveness of the Quebec User Evaluation of Satisfaction with Assistive Technology via a Postal Survey." British Journal of Occupational Therapy 68, no. 2 (February 2005): 93–96. http://dx.doi.org/10.1177/030802260506800206.

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The need to involve users of assistive technologies in the evaluation of equipment has been stressed consistently and linked directly with equipment use. However, in clinical practice obtaining feedback that is informed by prolonged use within the home can be difficult to achieve owing to current working practices. This paper describes the experience of using the Quebec User Evaluation of Satisfaction with Assistive Technology in a postal survey and discusses the potential application of this method of administration in routine practice to obtain user evaluation.

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Townsend, B., and D. Thaldar. "Informed consent in medical malpractice suits: An analysis of Beukes v Smith." South African Law Journal 137, no. 1 (2020): 13–25. http://dx.doi.org/10.47348/salj/v137/i1a2.

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In this case note we make two salient observations regarding the recent Supreme Court of Appeal judgment in Beukes v Smith. First, the judgment shows that when assessing alleged wrong fulness, the court is concerned with whether the health-care user did in fact provide informed consent, and not with formalities such as making notes of consultations. Secondly, the SCA assumed that the health-care user was using pain medication, and further assumed that she was not attentive during the consultation; hence her version of events was rejected. This line of assumption-based reasoning introduces a new anti-patient prejudice in our law, which is clearly unconstitutional, and should be rectified by the SCA at the earliest opportunity.

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Custers, Bart, Simone van der Hof, Bart Schermer, Sandra Appleby-Arnold, and Noellie Brockdorff. "Informed Consent in Social Media Use – The Gap between User Expectations and EU Personal Data Protection Law." SCRIPTed 10, no. 4 (December 17, 2013): 435–57. http://dx.doi.org/10.2966/scrip.100413.435.

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Journal articles on the topic 'Informed user'

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