Journal articles on the topic 'Information governance, policy and ethics'

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1

Nathan, G. "Innovation process and ethics in technology: an approach to ethical (responsible) innovation governance." Journal on Chain and Network Science 15, no. 2 (December 7, 2015): 119–34. http://dx.doi.org/10.3920/jcns2014.x018.

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In general, innovation governance models, which deal with organizational structure, innovation process, strategy and leadership, are becoming increasingly important for innovative companies for effective innovation management. Moreover, responsible innovation (RI) as a topic among academic scholars and policy makers is gaining importance, in order to address some of the ethical concerns and dilemmas as issues of governance in general and with special reference to technological innovations. This article attempts to show that technological innovation processes require a circular RI process instead of a linear one with embedded ethical decision-making framework for ethical innovation governance.
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Zhang, Zhengqing, Chenggang Zhang, and Xiaomeng Li. "The Ethical Governance for the Vulnerability of Care Robots: Interactive-Distance-Oriented Flexible Design." Sustainability 14, no. 4 (February 17, 2022): 2303. http://dx.doi.org/10.3390/su14042303.

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The application of caring robots is currently a widely accepted solution to the problem of aging. However, for the elderly groups who live in gregarious residences and share intelligence devices, caring robots will cause intimacy and assistance dilemmas in the relationship between humans and non-human agencies. This is an information-assisted machine setting, with resulting design ethics issues brought about by the binary values of human and machine, body and mind. The “vulnerability” in risk ethics demonstrates that the ethical problems of human institutions stem from the increase of dependence and the obstruction of intimacy, which are essentially caused by the increased degree of ethical risk exposure and the restriction of agency. Based on value-sensitive design, caring ethics and machine ethics, this paper proposes a flexible design with the interaction-distance-oriented concept, and reprograms the ethical design of caring robots with intentional distance, representational distance and interpretive distance as indicators. The main purpose is to advocate a new type of human-machine interaction relationship emphasizing diversity and physical interaction.
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Arellano, April Moreno, Wenrui Dai, Shuang Wang, Xiaoqian Jiang, and Lucila Ohno-Machado. "Privacy Policy and Technology in Biomedical Data Science." Annual Review of Biomedical Data Science 1, no. 1 (July 20, 2018): 115–29. http://dx.doi.org/10.1146/annurev-biodatasci-080917-013416.

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Privacy is an important consideration when sharing clinical data, which often contain sensitive information. Adequate protection to safeguard patient privacy and to increase public trust in biomedical research is paramount. This review covers topics in policy and technology in the context of clinical data sharing. We review policy articles related to ( a) the Common Rule, HIPAA privacy and security rules, and governance; ( b) patients’ viewpoints and consent practices; and ( c) research ethics. We identify key features of the revised Common Rule and the most notable changes since its previous version. We address data governance for research in addition to the increasing emphasis on ethical and social implications. Research ethics topics include data sharing best practices, use of data from populations of low socioeconomic status (SES), recent updates to institutional review board (IRB) processes to protect human subjects’ data, and important concerns about the limitations of current policies to address data deidentification. In terms of technology, we focus on articles that have applicability in real world health care applications: deidentification methods that comply with HIPAA, data anonymization approaches to satisfy well-acknowledged issues in deidentified data, encryption methods to safeguard data analyses, and privacy-preserving predictive modeling. The first two technology topics are mostly relevant to methodologies that attempt to sanitize structured or unstructured data. The third topic includes analysis on encrypted data. The last topic includes various mechanisms to build statistical models without sharing raw data.
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Tertychka, Valeriy. "Policy and Governance." Journal of Policy & Governance 01, no. 01 (August 10, 2021): vi—vii. http://dx.doi.org/10.33002/jpg010100.

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Welcome to the “Journal of Policy & Governance”! In my opinion, an editorial may reflect the general direction of the journal, values, strategy, priorities, goals and objectives, and so on. This is the first edition of the Journal of Policy & Governance where I act as the Editor-in-Chief. The title of the journal includes two key concepts, the "Policy" and the "Governance", and they are crucial for the target audience of the journal. That is, the field of "Policy Science": policy cycle, problem identification for analysis, policy environment, resources, stakeholders’ analysis, communications (strategic, multilevel, etc.), policy tools and evaluation, etc. Also, these are values, objectives and methodology of the research and policy analysis, policy as the process and reasons for state intervention, evidence-based policy, quantitative and qualitative methods of data processing and the formation of evidence in the policy process and so on. The field of governance is also valuable for research: democratic, good, sensitive, multilevel, digital, and so on: Service State, public consultation, and interaction between government, business and civil society in the policy-making process. Common decisions, power and out of power policy makers, leadership, analysts and policy actors also require semantic and empirical content in the articles of the journal. Promising areas of research would be multilevel governance and balanced social development, cohesion policy, vertical-horizontal interaction and networks in the multilevel governance, digital multilevel governance, etc. An interesting example would be benchmarking of global and multilevel governance: supranational, national, regional and local levels in their interaction. Also, the "Spiral of Success" as a follow-alternative to linear model of policy making is worth mentioning. As an applied aspect it would be desirable to show different types of policy documents in the articles. Public administration, gender aspects, microeconomics for policy analysis, finance and budgeting, local self-government, administrative behavior, policy paradoxes, urban planning, etc. are important areas of research in the articles of this journal. Special emphasis should be placed on policy and governance monitoring and evaluation, performance audit, governance forecasting and diagnosis, and policy measurement indicators. Multidisciplinarity and interdisciplinarity are the basic and main components for promising cross-researches of "Policy" and "Governance" areas. Ethics and morality as well as effectiveness, efficiency, economy, balance and publicity of policy are necessary components of research in the published articles. These are promising and urgent directions for studying in the articles of our journal. I believe that strategic public management in the context of governance would be an innovative area for research in future articles. Moreover, such threads would be important, such as strategic public management, planning, forecasting, target programming and public policy, governance and operational management, research of information and technical support for policy-making, change management and public policy and governance. Of course, the above thoughts only clarify the formulated purpose of the journal. Innovation, interdisciplinary benchmarking and a cross-cultural approach to public policy and governance will contribute to the quality of the journal. I hope that this first edition of “Journal of Policy & Governance" and subsequent editions will meet the high standards of quality articles and content of promising research. I would like to wish the authors bring a sustainable and evidence-based content to the future articles. The Editorial Board, following the principles of the academic integrity, will support and encourage authors for innovative and promising articles. I wish all the success and inspiration to the authors and journal staff.
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McStay, Andrew, and Gilad Rosner. "Emotional artificial intelligence in children’s toys and devices: Ethics, governance and practical remedies." Big Data & Society 8, no. 1 (January 2021): 205395172199487. http://dx.doi.org/10.1177/2053951721994877.

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This article examines the social acceptability and governance of emotional artificial intelligence (emotional AI) in children’s toys and other child-oriented devices. To explore this, it conducts interviews with stakeholders with a professional interest in emotional AI, toys, children and policy to consider implications of the usage of emotional AI in children’s toys and services. It also conducts a demographically representative UK national survey to ascertain parental perspectives on networked toys that utilise data about emotions. The article highlights disquiet about the evolution of generational unfairness, that encompasses injustices regarding the datafication of childhood, manipulation, parental vulnerability, synthetic personalities, child and parental media literacy, and need for improved governance. It concludes with practical recommendations for regulators and the toy industry.
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Habibie, Dedi Kusuma, Sanny Nofrima, Prawira Yudha Pratama, Herdin Arie Saputra, and Danang Kurniawan. "Viewing Omnibus Law's Policy in a Governance Ethics Perspective through Social Media Twitter." Jurnal Public Policy 7, no. 1 (May 25, 2021): 52. http://dx.doi.org/10.35308/jpp.v7i1.3225.

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Social media can quickly help people interact with the Government and use technology to turn communication into interactive dialogue. This study looks at Omnibus Law policies from government ethics through social media Twitter hashtag (#) Omnibus law. The method used in this research is qualitative, then data is collected from the Twitter hashtag using Nvivo12 Plus to analyze the data. This study's results reveal that the Hashtag (#) Omnibus Law's effectiveness is proven to be efficient in viewing data analysis through information dissemination on Nvivo12 Plus on Twitter to see policies and responses from the public who use the Hashtag (#) Omnibus Law.
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7

Семенова, Л., L. Semenova, М. Кудрявцева, and M. Kudryavceva. "Ethical Issues of Business Communication in Modern Russia." Scientific Research and Development. Modern Communication Studies 6, no. 6 (November 29, 2017): 63–70. http://dx.doi.org/10.12737/article_5a12b316b45525.54849236.

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The digital revolution that accomplished in the world in the last decade, has brought to life many social phenomena, the consequences of which require a multidimensional understanding, primarily from the point of view of socio-psychological and socio-cultural risks. Russian reality is especially risky because of mental and cultural factors shaping its national identity. The aim of the study is massive amounts of information, influencing on the outworld’s numerous communication channels, and first of all, on communication. A special place in this context is the ethics of social responsibility policy of business and commercial advertising which using manipulative techniques that are valid from the standpoint of law, but violating ethical requirements. There remains an insufficient degree of implementation of the principles of ethics in corporate and professional communications of Russia. The authors, using methodological approaches: systemic, deontological and ethic-axiological, held a theoretical and empirical study of large amounts of information on social responsibility of Russian business, commercial advertising, corporate and professional ethics in Russia, taking into account public interests. We studied the results of studies of corporate governance, transparency and business ethics, the ratings of social responsibility, corruption, etc. The systematic approach allowed us to consider integrated communications as a system, a holistic set of interrelated components. Deontological approach to the analysis of business communications is the nitial source of the rating of such categories as proper, perfect, multifunctional, and normative. Ethic-axiological approach allows to evaluate actual and desired. There remains the question of the relationship between the two main categories of ethics — duty and the good. The authors concluded that there needed an optimization of the process of ethical regulation of business communication in modern Russia.
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8

Bollinger, Juli M., Peter D. Zuk, Mary A. Majumder, Erika Versalovic, Angela G. Villanueva, Rebecca L. Hsu, Amy L. McGuire, and Robert Cook-Deegan. "What is a Medical Information Commons?" Journal of Law, Medicine & Ethics 47, no. 1 (2019): 41–50. http://dx.doi.org/10.1177/1073110519840483.

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A 2011 National Academies of Sciences report called for an “Information Commons” and a “Knowledge Network” to revolutionize biomedical research and clinical care. We interviewed 41 expert stakeholders to examine governance, access, data collection, and privacy in the context of a medical information commons. Stakeholders' attitudes about MICs align with the NAS vision of an Information Commons; however, differences of opinion regarding clinical use and access warrant further research to explore policy and technological solutions.
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Ogunyemi, Kemi, and Emem Laguda. "Ethics, workforce practices and sustainability by multinationals in Nigeria." Worldwide Hospitality and Tourism Themes 8, no. 2 (April 11, 2016): 158–81. http://dx.doi.org/10.1108/whatt-11-2015-0052.

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Purpose This paper aims to carry out a thematic review of literature on ethics, governance and sustainable practices with regard to workforce engagement and development in the Nigerian hospitality industry. Design/methodology/approach The review covered the available conceptual and empirical research articles along with a number of alternative sources containing helpful information, such as industry reports and news articles. The review suggests that, for the Nigerian hospitality industry, extant research on ethics, governance and sustainability with regard to workforce management can be categorized into five themes adapted from the categorization of ethical constructs in the work of Tucker et al. (1999) on codes of conduct. These five themes are integrity, equality, economic efficiency and equivalence, distributive and contributive justice and environmental concern. Findings There appeared to be a high incidence of unethical behaviour in the industry, the most common being maltreatment by employers and dishonesty of employees. Research limitations/implications Impressions derived from the study could be inaccurate, given the dearth of research publications in this regard in Nigeria. More empirical research must be done to better understand where industry players need help to be more responsible and sustainable in their business practices and in the way they engage and develop their workforce. Practical implications A number of recommendations were made regarding how to entrench ethics and sustainability in hospitality organizations and to develop the workforce in line with this. Originality/value The paper is important because of the high reliance on people for competitive advantage in this industry.
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10

McGuire, Amy L., Jessica Roberts, Sean Aas, and Barbara J. Evans. "Who Owns the Data in a Medical Information Commons?" Journal of Law, Medicine & Ethics 47, no. 1 (2019): 62–69. http://dx.doi.org/10.1177/1073110519840485.

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In this paper, we explore the perspectives of expert stakeholders about who owns data in a medical information commons (MIC) and what rights and interests ought to be recognized when developing a governance structure for an MIC. We then examine the legitimacy of these claims based on legal and ethical analysis and explore an alternative framework for thinking about participants' rights and interests in an MIC.
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11

Shrestha, Mahesh. "AGRICULTURAL SUPPORT POLICY OF NEPAL: CASES OF SUBSIDIES." International Multidisciplinary Research Journal 1 (January 30, 2021): 16–22. http://dx.doi.org/10.47722/imrj.2001.04.

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As an agrarian nation, agriculture policies of Nepal have been prioritized subsidies to increase production, improve food security, and reduce poverty. Nepal government has been allocating a huge amount each year for agricultural subsidies. This paper focuses on identifying the critical issues of the effective implementation of agricultural policies and programs in Nepal. The paper is based on primary and secondary sources of information. The primary data were collected on the field visit and in-depth interview has been taken with key stakeholders of the agriculture field. The secondary sources of information are based on government and academics' publications and their study reports. Qualitative research method has been adopted for this study, and the collected data are being analyzed based on the narrative analysis method. This study found that the utilization of agricultural subsidies has not been utilized properly in practice, and small and needy farmers are not being benefitted from the agriculture support policies and programs. It is found that government subsidies are heavily influenced by political power and politically influential persons. The bureaucratic complicated system, lack of transparency and good governance, lack of proper information about the subsidy are found the key constraints to easy access of subsidy to the small and needy farmers. In addition, failure of anti-corruptions mechanism and degradation of the values, ethics and morality are also significant issues of Nepal.
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Thorpe, Jane Hyatt, Elizabeth A. Gray, and Lara Cartwright-Smith. "Show Us the Data: The Critical Role Health Information Plays in Health System Transformation." Journal of Law, Medicine & Ethics 44, no. 4 (2016): 592–97. http://dx.doi.org/10.1177/1073110516684800.

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Truly transforming the healthcare delivery and payment system turns on the ability to engage in the interoperable electronic exchange of patient health information across and beyond the care continuum. Achieving transformation requires a legal framework that supports information sharing with appropriate privacy and security protections and a trusted governance structure.
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Bektas, Prof Dr Cetin. "Message from Editor." Global Journal of Business, Economics and Management: Current Issues 8, no. 2 (July 30, 2018): I. http://dx.doi.org/10.18844/gjbem.v8i2.3604.

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Dear Readers, It is the great honor for us to publish seventh volume, second issue of Global Journal of Business, Economics and Management: Current Issues. Global Journal of Business, Economics and Management: Current Issues is an international, multi- disciplinary, peer-refereed journal which aims to provide a global platform for professionals working in the field of business, economics, management, accounting, marketing, banking and finance and scholars and researchers to share their theoretical, empirical and practical knowledge on current issues in the area of business, economics and management. The scope of Global Journal of Business, Economics and Management: Current Issues includes; but is not limited to current issues on; Accounting, Advertising Management, Business and Economics, Business Ethics, Business Intelligence, Business Information Systems, Business Law, International Finance, Labor Economics, Labor Relations & Human Resource Management, Law and Economics, Management Information Systems, Business Law, Business Performance Management, Business Statistics, Communications Management, Comparative Economic Systems, Consumer Behavior, Corporate Finance and Governance, Corporate Governance, Cost Management, Management Science, Market Structure and Pricing, Marketing Research and Strategy, Marketing Theory and Applications, Operations Research, Organizational Behavior & Theory, Organizational Communication, Prices, Business Fluctuations, and Cycles, Product Management, Decision Sciences, Development Planning and Policy, Economic Development, Economic Methodology, Economic Policy and so on.
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Bektas, Prof Dr Cetin. "Message from Editor." Global Journal of Business, Economics and Management: Current Issues 8, no. 3 (November 27, 2018): I. http://dx.doi.org/10.18844/gjbem.v8i3.3861.

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Dear Readers, It is the great honour for us to publish eighth volume, third issue of Global Journal of Business, Economics and Management: Current Issues. Global Journal of Business, Economics and Management: Current Issues is an international, multi- disciplinary, peer-refereed journal which aims to provide a global platform for professionals working in the field of business, economics, management, accounting, marketing, banking and finance and scholars and researchers to share their theoretical, empirical and practical knowledge on current issues in the area of business, economics and management. The scope of Global Journal of Business, Economics and Management: Current Issues includes; but is not limited to current issues on; Accounting, Advertising Management, Business and Economics, Business Ethics, Business Intelligence, Business Information Systems, Business Law, International Finance, Labor Economics, Labor Relations & Human Resource Management, Law and Economics, Management Information Systems, Business Law, Business Performance Management, Business Statistics, Communications Management, Comparative Economic Systems, Consumer Behavior, Corporate Finance and Governance, Corporate Governance, Cost Management, Management Science, Market Structure and Pricing, Marketing Research and Strategy, Marketing Theory and Applications, Operations Research, Organizational Behavior & Theory, Organizational Communication, Prices, Business Fluctuations, and Cycles, Product Management, Decision Sciences, Development Planning and Policy, Economic Development, Economic Methodology, Economic Policy and so on.
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Rothstein, Mark A., John T. Wilbanks, Laura M. Beskow, Kathleen M. Brelsford, Kyle B. Brothers, Megan Doerr, Barbara J. Evans, Catherine M. Hammack-Aviran, Michelle L. McGowan, and Stacey A. Tovino. "Unregulated Health Research Using Mobile Devices: Ethical Considerations and Policy Recommendations." Journal of Law, Medicine & Ethics 48, S1 (2020): 196–226. http://dx.doi.org/10.1177/1073110520917047.

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Mobile devices with health apps, direct-to-consumer genetic testing, crowd-sourced information, and other data sources have enabled research by new classes of researchers. Independent researchers, citizen scientists, patient-directed researchers, self-experimenters, and others are not covered by federal research regulations because they are not recipients of federal financial assistance or conducting research in anticipation of a submission to the FDA for approval of a new drug or medical device. This article addresses the difficult policy challenge of promoting the welfare and interests of research participants, as well as the public, in the absence of regulatory requirements and without discouraging independent, innovative scientific inquiry. The article recommends a series of measures, including education, consultation, transparency, self-governance, and regulation to strike the appropriate balance.
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Onesti, Gianni, and Riccardo Palumbo. "Tone at the Top for Sustainable Corporate Governance to Prevent Fraud." Sustainability 15, no. 3 (January 24, 2023): 2198. http://dx.doi.org/10.3390/su15032198.

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This paper aims to provide a systematic literature review of sustainable corporate governance to prevent fraud through the tone at the top perspective. In recent years, studies on corporate governance and sustainability have considerably increased. The main aspects of the intersection of these fields were analyzed, especially considering the role of fraud and risk management. Indeed, corporate fraud can hinder corporate sustainability goals. However, to remove fraudulent behavior, rules of conduct, formal recommendations, or the implementation of business ethics programs are often insufficient. In this sense, corporate ethics linked to governance has been referred to as “tone at the top”. Given the significant progress in this area and the lack of a generally accepted theory, an exhaustive organization of the research is needed. Based on these assumptions, this study employed text network analysis to systematically analyze the research contributions collected from the Scopus database for the period 1990–2021. This study establishes networks using the main information of scientific contributions, such as “Abstract”, “Title”, and “Keywords”, and performs analyses, such as co-occurrence and content analyses. The main findings highlight the growing importance of corporate governance in sustainability and propose the emerging role of tone at the top as one of the main drivers of corporate governance sustainability to prevent fraud. We conclude by suggesting some insights derived from the study. The results could be useful for both the academic and professional communities, offering an opportunity for future research.
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Lemmens, Trudo. "Pharmaceutical Knowledge Governance: A Human Rights Perspective." Journal of Law, Medicine & Ethics 41, no. 1 (2013): 163–84. http://dx.doi.org/10.1111/jlme.12012.

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In recent years, the development process of pharmaceuticals, medical devices, and related products and the overall market of these products have become increasingly global. This paper discusses the need for better governance of one aspect of this market: the production, distribution, and use of pharmaceutical knowledge. Various controversies, some of which will be described in this paper, highlight how industry control over pharmaceutical data production has resulted in very serious threats to public health. Different practices and regulatory fields that affect what I will refer to in this paper as “pharmaceutical knowledge production” are all too often artificially separated and dealt with in isolation, which seriously affects the quality of the available information on the safety and effectiveness of products. I will examine here how a human rights-based approach should inspire us to look more carefully not only at the significant human rights-related interests that are at stake, but also at the relations between the different interwoven regulatory, cultural, and social factors and how these play out at the various stages of knowledge production.
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Kharel, Saramsh, Sabina Magar, Nitu Chaurasiya, Sumi Maharjan, and Chandra Prasad Rijal. "Transparency and accountability in the Nepalese corporate sector: a critical assessment." Quest Journal of Management and Social Sciences 1, no. 1 (October 18, 2019): 1–25. http://dx.doi.org/10.3126/qjmss.v1i1.25972.

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Background: In the present changing context of Nepal, accountability and transparency may not only be treated as functionally interdependent, but also equally important in the process of maintaining effective governance in all contexts by imparting a system based on fairness, ethics, accountability, transparency and delivered quality. Therefore, it is essential for organiza­tions to follow the pathways of sustainable governance in order to enhance their desired level system efficiency and effectiveness. Objectives: Primarily, the present work was accomplished to have a critical assessment of prevalence of corporate governance in the Nepalese corporate sector with focus on compliance of transparency and account­ability. Methods: The present work was accomplished using a fully qualitative method of inquiry by performing a compliance review of transparency and accountability. Results: Universal evidence of existing literature confirms that account­ability and transparency play vital role in transforming organizational trustworthiness. The practice of transparency provides access to conve­nient and reliable information required to enhance organizational deci­sion-making, which ultimately results in improved level of performance. As a component ethical management, corporate governance, refers to the visionary proposition of organizational leadership for shared expectations of valued stakeholders. The world practices confirm that both transparen­cy and accountability should go side by side to achieve quality and ethical organizational system practices, results and outcomes. Conclusions: Since Nepal is a new practitioner of modern concepts of corporate governance, its effective compliance is still infant. Thus, the Gov­ernment of Nepal needs to devise and enact needful policy reforms. Implications: The present paper may serve instrumental as it attempts to analyze the existing evidences, discusses how approaches to learning of trans­parency and accountability might be improved, and recommends how the Nep­alese corporate sector in the field of CG could be enhanced and empowered with a vision to sustainable corporate development and promotion in the country.
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Esien, Eddy Bruno. "Shared-knowledge, Transparency, and Accountability: In Enabling State-Society Relations Governance on COVID-19 Resilience Building Societies." HAPSc Policy Briefs Series 1, no. 1 (June 30, 2020): 89. http://dx.doi.org/10.12681/hapscpbs.24953.

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This policy brief examines shared-knowledge, transparency and accountability to improve enabling state-society relations on COVID-19 resilient building governance and takes into account the impact on third-country nationals (TCNs) in Austria, Finland, Czechia, and Lithuania. Existing research pointed to state-society relations as decentralised multi-stakeholder governance in public service reform for sustainable resilience building societies. However, the governance faced budgetary constraints and low public sector performance management. Although the relational governance shows certain public authorities have failed and/or ineffective to administer and achieve a range of public policy goals, there is still little policy study research in Nordic, Baltic, Central Eastern European- CEE and Central Western European countries explaining the improvement of state-society relations model on COVID-19 resilient building societies and its impacts to TCNs’ in the selected entities. Based on a qualitative cross-country oriented research approach with fewer country com­parisons, primary data from the authors of this policy paper research, documents, published and unpublished scholarly texts are collected and analyzed with document and content analysis techniques. The findings indicates insufficient shared-knowledge for responsive decision to local concerns, lack of diverse interests groups’ consultations, and quality service delivery often not transparent that infringe the core values of trust, public accountability, mutual responsibilities, and citizens’ participation in effective public service relational governance implementation and impact TCNs and ethnic minorities peoples’ COVID-19 crisis-related resilient in the selected entities. This policy brief recommends shared-knowledge for open access to relevant information, mutual corporate responsibilities between government, public and private organization policy for public interest, diversify migrants communities involvement in policy consultation for open democracy, rebuilding of bureaucrats’ professional capacity to ensure commitment and increase public service staff, and legislation to set specific working ethics and values compatible with public interest that combine honesty, integrity, transparency, accountability, and fair equal treatment of citizens (especially from heterogeneous minorities subgroups) in the formulation, implementation, and delivery of public care to sustain COVID-19 resilient building societies. Not meeting these marginal policy adjustments and recommendations may intensify the reinforcement of public service distrust and corruption, deepen political and /or social inequalities, jeopardize open democracy, and impair sustainable COVID-19 resilient building societies.
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ROMMETVEIT, KJETIL. "Tackling Epistemological Naivety: Large-Scale Information Systems and the Complexities of the Common Good." Cambridge Quarterly of Healthcare Ethics 20, no. 4 (August 16, 2011): 584–95. http://dx.doi.org/10.1017/s0963180111000326.

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We have arrived at a situation in which policymakers and ethicists are considering abandoning informed consent in the governance of certain new technologies, many of which are related to large-scale information systems. A paradigm case is the problem with using individuals’ informed consent to regulate biobanks. As sometimes suggested, there is a need for “new ethical frameworks.”
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Hijal Moghrabi, Imane, and Meghna Sabharwal. "The Role of the Information Society in Promoting a Better and a More Democratic Governance." Journal of Public Administration and Governance 7, no. 4 (November 14, 2017): 132. http://dx.doi.org/10.5296/jpag.v7i4.12018.

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One of the major shifts that our society has witnessed in the past few decades is the paradigm shift from traditional bureaucracies to network arrangements in policy making and service delivery. This paper explores the New Governance as a paradigm shift in Public Administration with an emphasis on the democratic aspect of it. Approaching the New Governance from an Open Systems Theory perspective, this paper argues that the advent and the widespread use of ICTs and the “infosphere” – and the “information society” that has emerged from it – would help in promoting a better and a more democratic governance by providing new channels to put democracy into practice. This paper also acknowledges the dark side of the “infosphere” and the ethical challenges that have come along with it.
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Das, Anup Kumar. "Research Integrity in the Context of Responsible Research and Innovation (RRI) Framework." DESIDOC Journal of Library & Information Technology 39, no. 2 (March 11, 2019): 82–86. http://dx.doi.org/10.14429/djlit.39.2.13892.

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In April 2017 the Research and Information System for Developing Countries (RIS), in collaboration with the Department of Science and Technology, Government of India, organized a national consultation on Responsible Research and Innovation (RRI). Five key issues aligning in the RRI framework were discussed in the meeting, which are namely public engagement, open access, gender equality, science education, and ethics. As pointed out by the expert panelists, the aspects of ethics in research and academia include the research integrity, minimization of research misconduct and plagiarism, besides a few others. Recently launched “RRI-Practice Report from National Case Study: India”, extensively analyzed the public policy instruments facilitating the governance of responsible research in India. The fundamental tenets of responsibility in research and innovation are to be based on the ideas of Access, Equity, and Inclusion (AEI), as identified by the said country case study. On the other hand, the idea of Scientific Social Responsibility (SSR) was advocated by the Prime Minister of India in lines with the Corporate Social Responsibility (CSR) during the 104th Indian Science Congress, 2017. RRI framework addresses many of the critical issues related to SSR. This paper explores the opportunities and challenges in the RRI Framework while ensuring the research integrity in India. This paper includes the highlights from the INSA Policy Statement on "Dissemination and Evaluation of Research Output in India" (2018), UGC (Promotion of Academic Integrity and Prevention of Plagiarism in Higher Educational Institutions) Regulations (2018), and RRI-Practice’s “Report from National Case Study: India” (2018).
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Mitchell, Ronald B., and Charli Carpenter. "Norms for the Earth: Changing the Climate on “Climate Change”." Journal of Global Security Studies 4, no. 4 (April 2, 2019): 413–29. http://dx.doi.org/10.1093/jogss/ogz006.

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AbstractClimate change poses a grave security threat to national borders, habitats, and vulnerable people. Plagued by asymmetries in both states' vulnerability to climate impacts and their capacity to mitigate them, climate change presents states with a “wicked” problem that poses significant obstacles to interest-based solutions. Yet, most global climate change policy involves rationales and mechanisms grounded in an interest-based logic of consequences: information-sharing, reciprocity, and exchange. We argue that strategies that promote ethics-based discourse and policies offer considerable promise for hastening stronger global climate governance. We argue that successes in human security norm-building, including bans on land mines, cluster munitions, and nuclear weapons, provide climate scholars and practitioners with alternative governance models that rely on activating a logic of appropriateness and spearhead faster, more effective climate action. We identify five strategies that previous scholars have shown fostered efforts to promote a logic of appropriateness in human rights, humanitarian law, and disarmament. We examine the empirical experience of those strategies and particularly highlight the recent success of efforts to negotiate a treaty banning nuclear weapons. Given the success of these strategies in other issue areas, we argue scholars of climate change could fruitfully focus greater attention on political efforts that promote strong global ethical norms for climate action.
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Tayauova, Gulzhanat. "EDITORIAL." New Trends and Issues Proceedings on Humanities and Social Sciences 6, no. 8 (December 31, 2019): I. http://dx.doi.org/10.18844/prosoc.v6i8.4568.

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It is with great honor that we edit the proceedings of “7th Global Conference on Business, Economics, Management and Tourism (BEMTUR-2019)”, Lara – Antalya, Turkey, Turkey, 18-20 October 2019. As the guest editors of this issue, we are glad to have received a variety of articles focusing on Accounting, International Finance, Advertising Management, Labor Economics, Business & Economics, Labor Relations & Human Resource Management, Business Ethics, Law and Economics, Business Intelligence, Management Information Systems, Business Information Systems, Management Science, Business Law, Market Structure and Pricing, Business Performance Management, Marketing Research and Strategy, Business Statistics, Marketing Theory and Applications, Change Management Operations Research, Communications Management, Organizational Behavior & Theory, Comparative Economic Systems, Organizational Communication, Consumer Behavior, Prices, Business Fluctuations, and Cycles, Corporate Finance and Governance, Product Management, Corporate Governance, Production and Organizations, Cost Management, Production/Operations Management, Decision Sciences, Public Administration and Small Business Entrepreneurship, Development Planning and Policy, Public Choice, Economic Development, Public Economics and Finance, Economic Methodology, Public Relations, Economic Policy, Public Responsibility and Ethics, E-Business, Regulatory Economics, E- Marketing, Resource Management, Economic Systems, Strategic Management, Entrepreneurship, Strategic Management Policy, Finance & Investment, Stress Management, Financial Economics, Supply Change Management, Global Business, Systems Management, Global Marketing, Systems Thinking, Growth; Aggregate Productivity, Taxes (related areas of taxes), Household Behavior and Family Economics, Technological Change; Research and Development, Human Resource, Technology & Innovation, Industrial and Manufacturing Engineering, Time Management, Information Systems, Total Quality Management, Information Technology Management, Travel/Transportation/Tourism, International Business, Welfare Economics, International Economics etc. Furthermore, the conference is getting more international each year, which is an indicator that it is getting worldwide known and recognized. Scholars from all over the world contributed to the conference. Special thanks are to all the reviewers, the members of the international editorial board, the publisher, and those involved in technical processes. We would like to thank all who contributed to in every process to make this issue actualized. A total of 29 full papers or abstracts were submitted for this conference and each paper has been peer reviewed by the reviewers specialized in the related field. At the end of the review process, a total of 5 high quality research papers were selected and accepted for publication. I hope that you will enjoy reading the papers. Best Regards Guest Editors Prof. Dr. Gulzhanat Tayauova, Almaty Management University, Almaty, Kazakhstan Editorial Assistant Zeynep Genc, PhD. Istanbul Aydin University, Istanbul, Turkey
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Purbani, Kamalia. "Collaborative planning for city development. A perspective from a city planner." Przegląd Naukowy Inżynieria i Kształtowanie Środowiska 26, no. 1 (April 14, 2017): 136–47. http://dx.doi.org/10.22630/pniks.2017.26.1.12.

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A number of definitions related to collaborative governance have been developed since early 2000. The common characteristics of collaborative governance are, among others, policy consensus, community visioning, consensus rule-making, and collaborative network structures. Collaborative planning is a new paradigm of planning for a complex contemporary society through which it encourages people to be engaged in a dialogue in a situation of equal empowerment and shared information to learn new ideas through mutual understanding, to create innovative outcomes and to build institutional capacity. This indicates that collaborative planning can provide policy makers with more effective community participation. Collaborative process is the key of collaborative planning which also emphasizes the significant role of collaborative leadership. The process includes a participatory activity of dialogue oriented to the joint decision and summarized in a collaborative process. The collaborative leadership is crucial for setting and maintaining clear ground rules, building trust, facilitating dialogue, and exploring mutual gains. Along with the shift of planning paradigm, the role of city planner will also change since the city planning deals with the political process. In the political process, city planners must be able to perform as technocrats, bureaucrats, lawyers and politicians who always uphold their ethics because they are responsible to the society, the assignor for their integrity and professionalism.
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Cousins, Sian, Hollie S. Richards, Jez Zahra, Harry Robertson, Johnny A. Mathews, Kerry N. L. Avery, Daisy Elliott, et al. "Healthcare organization policy recommendations for the governance of surgical innovation: review of NHS policies." British Journal of Surgery 109, no. 10 (July 30, 2022): 1004–12. http://dx.doi.org/10.1093/bjs/znac223.

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Abstract Background The governance for introducing innovative surgical procedures/devices differs from the research requirements needed for new drugs. New invasive procedures/devices may be offered to patients outside of research protocols with local organization oversight alone. Such institutional arrangements exist in many countries and written policies provide guidance for their use, but little is known about their scope or standards. Methods One hundred and fifty acute NHS trusts in England and seven health boards in Wales were systematically approached for information about their policies. A modified framework approach was used to analyse when policies considered new procedures/devices to be within local organization remit and/or requiring research ethics committee (REC) approval. Results Of 113 policies obtained, 109 and 34 described when local organization and REC approval was required, respectively. Procedures/devices being used for the first time in the organization (n = 69) or by a clinician (n = 67) were commonly within local remit, and only 36 stated that evidence was required. Others stated limited evidence as a rationale for needing REC approval (n = 13). External guidance categorizing procedures as ‘research only’ was the most common reason for gaining REC approval (n = 15). Procedures/devices with uncertain outcomes (n = 28), requiring additional training (n = 26), and not previously used (n = 6) were within the remit of policies, while others recommended REC application in these situations (n = 5, 2 and 7, respectively). Conclusion This study on NHS policies for surgical innovation shows variability in the introduction of procedures/devices in terms of local oversight and/or need for REC approval. Current NHS standards allow untested innovations to occur without the safety of research oversight and thus a standard approach is urgently needed.
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IACOB, Dr Andreea Iluzia. "Message from Editor." Global Journal of Business, Economics and Management: Current Issues 6, no. 1 (October 25, 2016): 01. http://dx.doi.org/10.18844/gjbem.v6i1.1138.

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Dear Readers,It is the great honor for us to publish sixth volume of Global Journal of Business, Economics and Management: Current Issues.Global Journal of Business, Economics and Management: Current Issues is an international, multi-disciplinary, peer-refereed journal which aims to provide a global platform for professionals working in the field of business, economics, management, accounting, marketing, banking and finance and scholars and researchers to share their theoretical, empirical and practical knowledge on current issues in the area of business, economics and management.The journal welcomes original empirical investigations and comprehensive literature review articles. The scope of Global the journal includes, but is not limited to; Accounting, Advertising Management, Business and Economics, Business Ethics, Business Intelligence, Business Information Systems, Business Law, International Finance, Labor Economics, Labor Relations and Human Resource Managemen, Law and Economics, Management Information Systems, Business Law, Corporate Finance and Governance, Corporate Governance, Cost Management, Management Science, Market Structure and Pricing, Marketing Research and Strategy, Marketing Theory and Applications, Operations Research, Organizational Behavior and Theory, Organizational Communication, Prices, Business Fluctuations, and Cycles, Product Management, Decision Sciences, Development Planning and Policy, Economic Development, Economic Methodology, Economic Policy, Production and Organizations, Production/Operations Management, Public Administration and Small Business Entrepreneurship, Public Choice, Public Economics and Finance, Public Relations, Public Responsibility and Ethics, Regulatory Economics, Resource Management, Strategic Management, Strategic Management Policy, Stress Management, Supply Change Management, Systems Thinking, E-Bussiness and Industrial and Manufacturing Engineering.Financial performance, organizational climate, service quality and insurance education issues have been included into this issue. The topics of the next issue will be different. You can make sure that we will be trying to serve you with our journal with a rich knowledge in which different kinds of topics are discussed in 2016 Volume.A total number of eleven (11) manuscripts were submitted for this issue and each paper has been subjected to double-blind peer review process by the reviewers specialized in the related field. At the end of the review process, a total number of five (5) high quality research papers were selected and accepted for publication. We present many thanks to all the contributors who helped us to publish this issue.Best regards, Prof. Dr. Andreea Iluzia Iacob Editor – in Chief
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J. Wulf, Alexander, and Ognyan Seizov. "Artificial Intelligence and Transparency: A Blueprint for Improving the Regulation of AI Applications in the EU." European Business Law Review 31, Issue 4 (August 1, 2020): 611–40. http://dx.doi.org/10.54648/eulr2020024.

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The adoption of Artificial Intelligence is steadily increasing, but the underlying algorithms have become so complex that they are no longer transparent. The EU has introduced some modest AI transparency requirements as part of its General Data Protection Regulation. However, two years after their introduction, the effectiveness of these rules remains questionable. Our aim is to contribute towards the further development of a governance framework for AI. We begin by explaining how the algorithms that enable the speed and data processing power of AI also obscure its transparency. We review how major guidelines on AI ethics operationalize algorithmic transparency, following which we assess whether these principles are adequately covered by the GDPR. We then present the results of semi-structured interviews of a heterogeneous sample of stakeholders of consumer information online (N=75). Our data provide evidence that the current implementation of the EU’s informed consumer paradigm fails to establish a satisfactory level of consumer protection and information online. If simple technological applications such as cookies remain non-transparent to consumers, the current approaches are entirely incapable of addressing the problem of complex AI applications. We conclude by formulating a policy proposal as to how the transparency of AI applications could be improved from the perspective of end users. artificial intelligence, explainable AI, automated individual decision-making, profiling, consumer protection, data protection, GDPR, information disclosures, transparency, AI ethics
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Dove, Edward S. "Biobanks, Data Sharing, and the Drive for a Global Privacy Governance Framework." Journal of Law, Medicine & Ethics 43, no. 4 (2015): 675–89. http://dx.doi.org/10.1111/jlme.12311.

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Spurred by a confluence of factors, most notably the decreasing cost of high-throughput technologies and advances in information technologies, a number of population research initiatives have emerged in recent years. These include large-scale, internationally collaborative genomic projects (Table 1) and biobanks (Table 2), the latter of which can be defined as an organized collection of human biological material and associated data stored for one or more research purposes. Biobanks are a key emerging research infrastructure, and those established as prospective research resources comprising biospecimens and data from many participants are viewed as particularly promising drivers of biomedical progress. Such biobanks, particularly those publicly funded and set up to promote the public interest, have expanded across the globe in recent years.
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Bergren, Martha Dewey, and Kathleen Johnson. "Data Sharing." NASN School Nurse 34, no. 4 (July 2019): 211–13. http://dx.doi.org/10.1177/1942602x19852934.

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The data life cycle starts with defining what data are needed, to collecting, storing, protecting, using, sharing, retiring, and destroying data. A May 2019 NASN School Nurse article, “Data Governance and Stewardship,” addressed who is accountable for the data life cycle within a school system. This article will discuss data sharing, the ethics, and the steps that must be taken to share data responsibly. As discussed in the previous article, policies and procedures about data sharing are available in every school district. Frequently, the guidelines pertain only to sharing personally identifiable student information and do not address the sharing of aggregated information for the purposes of needs assessments, priority setting, outcomes measurement, or for advocating for resources or policy changes at the district, state, or national level. Fortunately, guidance of sharing data and crafting data sharing agreements is provided by the Privacy Technical Assistance Center at the U.S. Department of Education. This is the sixth article in the series on data.
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Curtin, Deirdre M., and Filipe Brito Bastos. "Interoperable Information Sharing and the Five Novel Frontiers of EU Governance: A Special Issue." European Public Law 26, Issue 1 (March 1, 2020): 59–70. http://dx.doi.org/10.54648/euro2020004.

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Information exchanges between authorities located at different levels of administration, and in different Member States, have always constituted a central feature of European Union governance. Nevertheless, the increasingly pervasive phenomenon of interoperable information-sharing, where information systems pertaining to different policy fields are joined up to facilitate exchanges of (personal) data, generates new structural challenges to the European Union from a political, legal, and indeed constitutional perspective. In this introduction, besides offering a brief overview of the contributions to the special issue, we argue that interoperability shifts the frontiers of EU governance in at least five distinct respects. It shifts existing boundaries in the divisions of power within the EU; in the reach of its data protection laws; in the tensions between the EU’s commitment to fundamental rights and the principle of mutual trust between the Member States; in the relations between EU, third state, and international authorities; and lastly, between the technicalities of information technologies and critical ethical and constitutional imperatives. interoperability, information-sharing, European administrative governance, data protection, accountability
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Bektas, Prof Dr Cetin. "EDITORIAL." New Trends and Issues Proceedings on Humanities and Social Sciences 6, no. 3 (September 18, 2019): I. http://dx.doi.org/10.18844/prosoc.v6i3.4578.

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It is with great honor that we edit the proceedings of “8th World Conference on Business, Economics and Management (BEM-2019)”, Grand Park Lara Hotel Convention Center, Antalya, Turkey, 26-28 April 2019. This privileged scientific event has contributed to the field of ELT for the eight year. As the guest editors of this issue, we are glad to have received a variety of articles focusing on Accounting, International Finance, Advertising Management, Labor Economics, Business & Economics, Labor Relations & Human Resource Management, Business Ethics, Law and Economics, Business Intelligence, Management Information Systems, Business Information Systems, Management Science, Business Law, Market Structure and Pricing, Business Performance Management, Marketing Research and Strategy, Business Statistics, Marketing Theory and Applications, Change Managementi Operations Research, Communications Management, Organizational Behavior & Theory, Comparative Economic Systems, Organizational Communication, Consumer Behavior, Prices, Business Fluctuations, and Cycles, Corporate Finance and Governance, Product Management, Corporate Governance, Production and Organizations, Cost Management, Production/Operations Management, Decision Sciences, Public Administration and Small Business Entrepreneurship, Development Planning and Policy, Public Choice, Economic Development, Public Economics and Finance, Economic Methodology, Public Relations, Economic Policy, Public Responsibility and Ethics, E-Bussiness, Regulatory Economics, E- Marketing, Resource Management, Economic Systems, Strategic Management, Entrepreneurship, Strategic Management Policy, Finance & Investment, Stress Management, Financial Economics, Supply Change Management, Global Business, Systems Management, Global Marketing, Systems Thinking, Growth; Aggregate Productivity, Taxes (related areas of taxes), Household Behavior and Family Economics, Technological Change; Research and Development, Human Resource, Technology & Innovation, Industrial and Manufacturing Engineering, Time Management, Information Systems, Total Quality Management, Information Technology Management, Travel/Transportation/Tourism, International Business, Welfare Economics, International Economics etc. Furthermore, the conference is getting more international each year, which is an indicator that it is getting worldwide known and recognized. Scholars from all over the world contributed to the conference. Special thanks are to all the reviewers, the members of the international editorial board, the publisher, and those involved in technical processes. We would like to thank all who contributed to in every process to make this issue actualized. A total of 45 full papers or abstracts were submitted for this conference and each paper has been peer reviewed by the reviewers specialized in the related field. At the end of the review process, a total of 12 high quality research papers were selected and accepted for publication. I hope that you will enjoy reading the papers. Best Regards Guest Editors Prof. Dr. Cetin Bektas, Gaziosmanpasa University, Turkey Editorial Assistant Zeynep Genc, Phd. Istanbul Aydin University, Istanbul, Turkey
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Nelson, Kristen C., David A. Andow, and Michael J. Banker. "Problem Formulation and Option Assessment (PFOA) Linking Governance and Environmental Risk Assessment for Technologies: A Methodology for Problem Analysis of Nanotechnologies and Genetically Engineered Organisms." Journal of Law, Medicine & Ethics 37, no. 4 (2009): 732–48. http://dx.doi.org/10.1111/j.1748-720x.2009.00444.x.

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Societal evaluation of new technologies, specifically nanotechnology and genetically engineered organisms (GEOs), challenges current practices of governance and science. When a governing body is confronted by a technology whose use has potential environmental risks, some form of risk analysis is typically conducted to help decision makers consider the range of possible benefits and harms posed by the technology. Environmental risk assessment (ERA) is a critical component in the governance of nanotechnology and genetically engineered organisms because the uncertainties and complexities surrounding these technologies pose such risk potential. However, GEOs are unique technologies, and there is widespread, international recognition (e.g., the Cartagena Protocol on Biosafety of Living Modified Organisms) that many traditional forms of ERA are not well-suited for evaluating them. Nanotechnology products are also likely to need different models of risk assessment, as there is very little information on their fate, transport, and impacts in the environment.
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Ignatjeva, Olga A. "Algocracy in the Political System: Pro & Contra." Socialʹnye i gumanitarnye znania 8, no. 2 (June 18, 2022): 138. http://dx.doi.org/10.18255/2412-6519-2022-2-138-145.

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The development of information and communication technologies leads to new technological phenomena, such as artificial intelligence, which makes it possible to increase the capacity of the human brain to process information and make decisions. Over the last twenty years, the information collection system has become more complex, its volume is growing exponentially, and new ways of processing information, such as neural networks and machine learning, are appearing. Technologies are rapidly changing and developing, and of course the public administration system takes them to improve the accuracy of forecasts and the quality of decision-making in various policy sectors. Algorithmic governance is referred to by the term algocracy. However, not all of the public administration system works with the use of machine learning algorithms remain areas where traditional decision-making methods persist. Despite the progressiveness of algorithmic governance there are still a number of problematic aspects that require ethical and legislative regulation of algorithmic governance. The purpose of this article is to analyze the essence of governance based on the use of big data algorithms and to present a classification of the advantages and risks of an automated data analysis system for public administration.
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Cousins, Sian, Hollie Richards, Jesmond Zahra, Daisy Elliott, Kerry Avery, Harry F. Robertson, Sangeetha Paramasivan, et al. "Introduction and adoption of innovative invasive procedures and devices in the NHS: an in-depth analysis of written policies and qualitative interviews (the INTRODUCE study protocol)." BMJ Open 9, no. 8 (August 2019): e029963. http://dx.doi.org/10.1136/bmjopen-2019-029963.

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IntroductionInnovation is key to improving outcomes in healthcare. Innovative pharmaceutical products undergo rigorous phased research evaluation before they are introduced into practice. The introduction of innovative invasive procedures and devices is much less rigorous and phased research, including randomised controlled trials, is not always undertaken. While the innovator (usually a surgeon) may introduce a new or modified procedure/device within the context of formal research, they may also be introduced by applying for local National Health Service (NHS) organisation approval alone. Written policies for the introduction of new procedures and/or devices often form part of this local clinical governance infrastructure; however, little is known about their content or use in practice. This study aims to systematically investigate how new invasive procedures and devices are introduced in NHS England and Wales.Methods and analysisAn in-depth analysis of written policies will be undertaken. This will be supplemented with interviews with key stakeholders. All acute NHS trusts in England and Health Boards in Wales will be systematically approached and asked to provide written policies for the introduction of new invasive procedures and devices. Information on the following will be captured: (1) policy scope, including when new procedures should be introduced within a formal research framework; (2) requirements for patient information provision; (3) outcome reporting and/or monitoring. Data will be extracted using a standardised form developed iteratively within the study team. Semistructured interviews with medical directors, audit and governance leads, and surgeons will explore views regarding the introduction of new invasive procedures into practice, including knowledge of and implementation of current policies.Ethics and disseminationIn-depth analysis of written policies does not require ethics approval. The University of Bristol Ethics Committee (56522) approved the interview component of the study. Findings from this work will be presented at appropriate conferences and will be published in peer-reviewed journals.
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Huang, Aidan, Yuling Lin, Liyuan Zhang, Jingwen Dong, Qiwei He, and Kun Tang. "Assessing health governance across countries: a scoping review protocol on indices and assessment tools applied globally." BMJ Open 12, no. 7 (July 2022): e063866. http://dx.doi.org/10.1136/bmjopen-2022-063866.

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IntroductionMost global health indices or assessment tools focus on health outcomes rather than governance, and they have been developed primarily from the perspective of high-income countries. To benchmark global health governance for equity and solidarity, it becomes necessary to reflect on the current state of indices or assessment tools evaluating health governance across countries. This scoping review aims to review the existing multicountry indices and assessment tools applied globally with measurable indicators assessing health governance; summarise their differences and commonalities; identify the lessons learnt through analysis of their advantages and gaps; and evaluate the feasibility and necessity to establish a new index or consensus framework for assessing global health governance.Methods and analysisThis scoping review protocol follows Arksey and O’Malley’s methodological framework, the Joanna Briggs Institute guidelines and the Preferred Reporting Items for Systematic Reviews and Meta-analyses methodology for scoping reviews. Key information sources will be bibliographic databases (PubMed, Embase and Web of Science Core Collection), grey literature and citation tracking. The time frame will be from 1 January 2000 to 31 December 2021. Only indices or assessment tools that are globally applicable and provide measurable indicators of health governance will be eligible. A qualitative content analysis will follow the proposed data extraction form to explicate and compare each eligible index or assessment tool. An analysis based on a proposed preliminary evaluation framework will identify the advantages and gaps and summarise the lessons learnt. This scoping review will also discuss the feasibility and necessity of developing a new global health governance index or consensus framework to inform future research and practices.Ethics and disseminationThis scoping review does not require ethics approval. Dissemination will include a peer-review article, policy briefs and conference presentations. This protocol has been registered in the Open Science Framework (osf.io/y93mj).
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Pedrick-Case, Rebecca, Rowena Bailey, Ben Beck, Bridget Beesley, Bryan Boruff, Sinead Brophy, Donna Cross, et al. "Built Environments And Child Health in WalEs and AuStralia (BEACHES): a study protocol." BMJ Open 12, no. 10 (October 2022): e061978. http://dx.doi.org/10.1136/bmjopen-2022-061978.

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IntroductionChildhood obesity and physical inactivity are two of the most significant modifiable risk factors for the prevention of non-communicable diseases (NCDs). Yet, a third of children in Wales and Australia are overweight or obese, and only 20% of UK and Australian children are sufficiently active. The purpose of the Built Environments And Child Health in WalEs and AuStralia (BEACHES) study is to identify and understand how complex and interacting factors in the built environment influence modifiable risk factors for NCDs across childhood.Methods and analysisThis is an observational study using data from five established cohorts from Wales and Australia: (1) Wales Electronic Cohort for Children; (2) Millennium Cohort Study; (3) PLAY Spaces and Environments for Children’s Physical Activity study; (4) The ORIGINS Project; and (5) Growing Up in Australia: the Longitudinal Study of Australian Children. The study will incorporate a comprehensive suite of longitudinal quantitative data (surveys, anthropometry, accelerometry, and Geographic Information Systems data) to understand how the built environment influences children’s modifiable risk factors for NCDs (body mass index, physical activity, sedentary behaviour and diet).Ethics and disseminationThis study has received the following approvals: University of Western Australia Human Research Ethics Committee (2020/ET000353), Ramsay Human Research Ethics Committee (under review) and Swansea University Information Governance Review Panel (Project ID: 1001). Findings will be reported to the following: (1) funding bodies, research institutes and hospitals supporting the BEACHES project; (2) parents and children; (3) school management teams; (4) existing and new industry partner networks; (5) federal, state and local governments to inform policy; as well as (6) presented at local, national and international conferences; and (7) disseminated by peer-reviewed publications.
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Iyamu, Ihoghosa, Oralia Gómez-Ramírez, Alice XT Xu, Hsiu-Ju Chang, Sarah Watt, Geoff Mckee, and Mark Gilbert. "Challenges in the development of digital public health interventions and mapped solutions: Findings from a scoping review." DIGITAL HEALTH 8 (January 2022): 205520762211022. http://dx.doi.org/10.1177/20552076221102255.

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Background “Digital public health” has emerged from an interest in integrating digital technologies into public health. However, significant challenges which limit the scale and extent of this digital integration in various public health domains have been described. We summarized the literature about these challenges and identified strategies to overcome them. Methods We adopted Arksey and O’Malley's framework (2005) integrating adaptations by Levac et al. (2010). OVID Medline, Embase, Google Scholar, and 14 government and intergovernmental agency websites were searched using terms related to “digital” and “public health.” We included conceptual and explicit descriptions of digital technologies in public health published in English between 2000 and June 2020. We excluded primary research articles about digital health interventions. Data were extracted using a codebook created using the European Public Health Association's conceptual framework for digital public health. Results and analysis Overall, 163 publications were included from 6953 retrieved articles with the majority (64%, n = 105) published between 2015 and June 2020. Nontechnical challenges to digital integration in public health concerned ethics, policy and governance, health equity, resource gaps, and quality of evidence. Technical challenges included fragmented and unsustainable systems, lack of clear standards, unreliability of available data, infrastructure gaps, and workforce capacity gaps. Identified strategies included securing political commitment, intersectoral collaboration, economic investments, standardized ethical, legal, and regulatory frameworks, adaptive research and evaluation, health workforce capacity building, and transparent communication and public engagement. Conclusion Developing and implementing digital public health interventions requires efforts that leverage identified strategies to overcome diverse challenges encountered in integrating digital technologies in public health.
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Levy, Adrian, Brian Harrigan, Karissa Johnston, and Andrew Briggs. "Comparative Effectiveness Research Through the Looking Glass." Medical Decision Making 29, no. 6 (November 2009): NP6—NP8. http://dx.doi.org/10.1177/0272989x09351590.

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The goal of comparative effectiveness research (CER) articulated by the United States government is to provide information on relative strengths and weakness of medical interventions. Such information is intended to help clinicians and patients make better decisions which, in turn, would improve the performance of the health care system. However, it is unclear how information on relative benefits would enable improvement. Making sense of the CER debate requires addressing 2 issues: the ethical framework must be made explicit, and greater critical thinking must be applied for developing goals. Frank discussion about the problems CER will address, viewed through an ethical lens, will lead to operational objectives and desired outcomes. Ultimately, the extent to which a proposed publicly-funded CER institute meets expectations will depend on governance, structures and processes. Without a clear vision, CER as currently construed may touch on many problems plaguing US health care but runs the risk of solving none.
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Vanstone, Meredith, Julia Bidonde, Ken Bond, Julia Abelson, Lisa Schwartz, Laura Tripp, and Carolyn Canfield. "OP82 Ethical Challenges Related To Engaging Patients And The Public In HTA." International Journal of Technology Assessment in Health Care 34, S1 (2018): 30. http://dx.doi.org/10.1017/s0266462318001198.

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Introduction:It is widely recognized that the incorporation of patient and public perspectives can enrich health policy decision-making. Methodological and practical advice on engaging patients and the public has proliferated in recent years, with many health technology assessment (HTA) agencies working to formalize their processes in this area. However, despite growing enthusiasm for patient and public engagement, many ethical issues remain unaddressed including: balancing risks and benefits to participants; recruitment methods; reimbursement for time spent participating; representation; and, information disclosure.Methods:In this critical analysis, we draw on our collective experiences engaging with patients and public in the context of HTA. We use principles from two theories, i) research ethics, and ii) participatory governance, to analyze these challenges. The purpose of this analysis is to explore the ways in which risks and benefits to patient and public participants might be balanced in HTA activities.Results:We begin by describing some ethically challenging experiences we have faced when soliciting views and values from patients and members of the public, some anticipated and some unexpected. These challenges include unexpected disclosures of information, navigating power differentials when working with vulnerable populations, eliciting information about potentially traumatizing experiences, and fairly representing controversial and conflicting opinions. We offer examples about what types of patient engagement activities may subject participants to unreasonable risk, and suggest some guiding principles to help plan ethical patient and public engagement activities.Conclusions:Patient and public engagement requires more than just procedural methodological expertise- it also requires the ability to identify and analyze relevant ethical issues. We posit that health technology assessors have a moral obligation to ensure that the risks of patient and public engagement activities do not outweigh the benefits. We call upon the HTA community to engage in thoughtful deliberation about what can be learned from experiences within HTA and in other contexts.
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Xafis, Vicki, and Markus K. Labude. "Openness in Big Data and Data Repositories." Asian Bioethics Review 11, no. 3 (September 2019): 255–73. http://dx.doi.org/10.1007/s41649-019-00097-z.

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Abstract There is a growing expectation, or even requirement, for researchers to deposit a variety of research data in data repositories as a condition of funding or publication. This expectation recognizes the enormous benefits of data collected and created for research purposes being made available for secondary uses, as open science gains increasing support. This is particularly so in the context of big data, especially where health data is involved. There are, however, also challenges relating to the collection, storage, and re-use of research data. This paper gives a brief overview of the landscape of data sharing via data repositories and discusses some of the key ethical issues raised by the sharing of health-related research data, including expectations of privacy and confidentiality, the transparency of repository governance structures, access restrictions, as well as data ownership and the fair attribution of credit. To consider these issues and the values that are pertinent, the paper applies the deliberative balancing approach articulated in the Ethics Framework for Big Data in Health and Research (Xafis et al. 2019) to the domain of Openness in Big Data and Data Repositories. Please refer to that article for more information on how this framework is to be used, including a full explanation of the key values involved and the balancing approach used in the case study at the end.
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Vasileiou, Eleftheria, Ting Shi, Steven Kerr, Chris Robertson, Mark Joy, Ruby Tsang, Dylan McGagh, et al. "Investigating the uptake, effectiveness and safety of COVID-19 vaccines: protocol for an observational study using linked UK national data." BMJ Open 12, no. 2 (February 2022): e050062. http://dx.doi.org/10.1136/bmjopen-2021-050062.

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IntroductionThe novel coronavirus SARS-CoV-2, which emerged in December 2019, has caused millions of deaths and severe illness worldwide. Numerous vaccines are currently under development of which a few have now been authorised for population-level administration by several countries. As of 20 September 2021, over 48 million people have received their first vaccine dose and over 44 million people have received their second vaccine dose across the UK. We aim to assess the uptake rates, effectiveness, and safety of all currently approved COVID-19 vaccines in the UK.Methods and analysisWe will use prospective cohort study designs to assess vaccine uptake, effectiveness and safety against clinical outcomes and deaths. Test-negative case–control study design will be used to assess vaccine effectiveness (VE) against laboratory confirmed SARS-CoV-2 infection. Self-controlled case series and retrospective cohort study designs will be carried out to assess vaccine safety against mild-to-moderate and severe adverse events, respectively. Individual-level pseudonymised data from primary care, secondary care, laboratory test and death records will be linked and analysed in secure research environments in each UK nation. Univariate and multivariate logistic regression models will be carried out to estimate vaccine uptake levels in relation to various population characteristics. VE estimates against laboratory confirmed SARS-CoV-2 infection will be generated using a generalised additive logistic model. Time-dependent Cox models will be used to estimate the VE against clinical outcomes and deaths. The safety of the vaccines will be assessed using logistic regression models with an offset for the length of the risk period. Where possible, data will be meta-analysed across the UK nations.Ethics and disseminationWe obtained approvals from the National Research Ethics Service Committee, Southeast Scotland 02 (12/SS/0201), the Secure Anonymised Information Linkage independent Information Governance Review Panel project number 0911. Concerning English data, University of Oxford is compliant with the General Data Protection Regulation and the National Health Service (NHS) Digital Data Security and Protection Policy. This is an approved study (Integrated Research Application ID 301740, Health Research Authority (HRA) Research Ethics Committee 21/HRA/2786). The Oxford-Royal College of General Practitioners Clinical Informatics Digital Hub meets NHS Digital’s Data Security and Protection Toolkit requirements. In Northern Ireland, the project was approved by the Honest Broker Governance Board, project number 0064. Findings will be made available to national policy-makers, presented at conferences and published in peer-reviewed journals.
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Rakšnys, Adomas Vincas, Dangis Gudelis, and Arvydas Guogis. "The Analysis of Opportunities of the Application of Big Data and Artificial Intelligence Technologies in Public Governance and Social Policy." Socialinė teorija, empirija, politika ir praktika 22 (July 15, 2021): 88–100. http://dx.doi.org/10.15388/stepp.2021.31.

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This interdisciplinary article presents a concept of the 21st century and phenomena that are products of the 4th industrial revolution – big data and Artificial Intelligence technologies – as well as the opportunities of their application in public governance and social policy. This paper examines the advantages and disadvantages of big data, problems of data collection, its reliability and use. Big data can be used for the analysis and modeling of phenomena relevant to public governance and social policy. Big data consist of three main types: a) historical data, b) present data with little delay, c) prognostic data for future forecasting. The following categories of big data can be defined as: a) data from social networks, b) traditional data from business systems, c) machine-generated data, such as water extraction, pollution, satellite information. The article analyzes the advantages and disadvantages of big data. There are big data challenges such as data security, lack of cooperation in civil service and social work, in rare situations – data fragmentation, incompleteness and erroneous issues, as well as ethical issues regarding the analysis of data and its use in social policy and social administration. Big data, covered by Artificial Intelligence, can be used in public governance and social policy by identifying “the hot spots” of various phenomena, by prognosing the meanings of variables in the future on the basis of past time rows, and by calculating the optimal motion of actions in the situations where there are possible various alternatives. The technologies of Artificial Intelligence are used more profoundly in many spheres of public policy, and in the governance of COVID-19 pandemics too. The substantial advantages of the provided big data and Artificial Intelligence are a holistic improvement of public services, possibilities of personalization, the enhancement of citizen satisfaction, the diminishing of the costs of processing expenditure, the targeting of adopted and implemented decisions, more active involvement of citizens, the feedback of the preferences of policy formation and implementation, the observation of social phenomenas in real time, and possibilities for more detailed prognosing. Challenges to security of data, necessary resources and competences, the lack of cooperation in public service, especially rare instances of data fragmentation, roughness, falseness, and ethical questions regarding data analysis and application can be evaluated as the most significant problems of using big data and Artificial Intelligence technologies. Big data and their analytics conducted using Artificial Intelligence technologies can contribute to the adequacy and objectivity of decisions in public governance and social policy, effectively curbing corruption and nepotism by raising the authority and confidence of public sector organizations in governance, which is so lacking in the modern world.
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Hoyle, Philip. "Health information is central to changes in healthcare: A clinician’s view." Health Information Management Journal 48, no. 1 (November 26, 2017): 48–51. http://dx.doi.org/10.1177/1833358317741354.

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Changes in healthcare, such as integrated care, the use of big data, electronic health records (EHRs), telemedicine, decision support systems and consumer empowerment, are impacting on the management of health information. Integrated care requires linked data; activity-based funding requires valid coding; EHRs require standards for documentation, retrieval and analysis; and decision support systems require standardised nomenclatures. The ethical oversight of how health-related information is used, as opposed to governance of its content, storage and communication, remains ill-defined. More fundamentally, the conceptual foundations of health information in terms of “diagnostic” constructs are creating limitations: Why should a medical diagnosis be privileged as the key descriptor of care, over disability or other aspects of the human experience? Who gets to say what matters, and how and by whom is that translated into meaningful information? These are important questions on which the health information management profession is well placed to lead. In this changing environment, threats and opportunities for the profession are presented and discussed. Highlighted is the need for leadership from the profession on the ethical use of health information.
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Georgiou, Andrew, Farah Magrabi, Hannele Hyppönen, Zoie Wong, Pirkko Nykänen, Philip Scott, Elske Ammenwerth, and Michael Rigby. "The Safe and Effective Use of Shared Data Underpinned by Stakeholder Engagement and Evaluation Practice." Yearbook of Medical Informatics 27, no. 01 (April 22, 2018): 025–28. http://dx.doi.org/10.1055/s-0038-1641194.

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Objectives: The paper draws attention to: i) key considerations involving the confidentiality, privacy, and security of shared data; and ii) the requirements needed to build collaborative arrangements encompassing all stakeholders with the goal of ensuring safe, secure, and quality use of shared data. Method: A narrative review of existing research and policy approaches along with expert perspectives drawn from the International Medical Informatics Association (IMIA) Working Group on Technology Assessment and Quality Development in Health Care and the European Federation for Medical Informatics (EFMI) Working Group for Assessment of Health Information Systems. Results: The technological ability to merge, link, re-use, and exchange data has outpaced the establishment of policies, procedures, and processes to monitor the ethics and legality of shared use of data. Questions remain about how to guarantee the security of shared data, and how to establish and maintain public trust across large-scale shared data enterprises. This paper identifies the importance of data governance frameworks (incorporating engagement with all stakeholders) to underpin the management of the ethics and legality of shared data use. The paper also provides some key considerations for the establishment of national approaches and measures to monitor compliance with best practice. Conclusion: Data sharing endeavours can help to underpin new collaborative models of health care which provide shared information, engagement, and accountability amongst all stakeholders. We believe that commitment to rigorous evaluation and stakeholder engagement will be critical to delivering health data benefits and the establishment of collaborative models of health care into the future.
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Ramos Montesdeoca, Monica, Agustín Sánchez Medina, and Felix Blázquez Santana. "Research Topics in Accounting Fraud in the 21st Century: A State of the Art." Sustainability 11, no. 6 (March 14, 2019): 1570. http://dx.doi.org/10.3390/su11061570.

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Companies play a role in society that clearly goes beyond mere economic interest. Their contribution to social development and to the sustainability of the territory where they are located seems unquestionable. However, after the great financial scandals of companies such as ENRON, WorldCom or AHOLD, interest groups require accurate and transparent financial information. The development of more demanding financial reporting standards seems, however, not to have been up to scratch, since accounting fraud continues to be detected all over the world. The search, therefore, for possible causes that may induce companies to act unethically was the main motivation behind this research. To do this, a review of the literature in high-impact journals that has dealt with accounting fraud, covering the main lines of research, was carried out. The findings of the literature review highlight the importance of responsible corporate governance and good accounting practices, as well as the importance of certain psychological characteristics of managers and employees as enhancers of the lack of ethics. It is clear that the social cost of accounting fraud should be minimized, and governments should develop specific policies that combine responsible corporate governance in companies with the sustainability of their environment.
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Arda, Devid Putra. "MANAGEMENT TECHNIQUE, GOVERNANCE, AND MANAGEMENTSTRATEGY FOR PERFORMANCE AND BUSINESS ETHICS OF PUBLIC SERVICE HOSPITALS." International Journal of Contemporary Accounting 2, no. 1 (July 2, 2020): 59. http://dx.doi.org/10.25105/ijca.v2i1.7200.

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<p align="center"><strong>Abstract</strong><strong></strong></p><p align="center"><strong> </strong></p><p><em>The purpose of this paper is to </em><em>test management technique, governance, and strategy choices </em><em>affect the performance of government hospitals assigned as public service agencies.Indonesian’s well aware of opting for</em><em> </em><em>medical</em><em> </em><em>treatments in hospital are basically underlined by higher level education, prolonged life expectancy, and more information disclosure. This awareness leads to significant increases in number of inpatients and outpatients treated in </em><em>public </em><em>health services</em><em>.</em><em>This research belongs to quantitative research which implements validity test, reliability test, normality test, m</em><em>ulticollinearity test, and heteroskedasticity test. Quantitative research is required to examine whether the instruments used in this study are valid, consistent, and normally distributed.</em><em> This study consist of one dependend variabel namely performance, three independent variables, namely management technique, GCG, and management strategies. Supplemented by one moderation variable, business ethics. </em><em>This research</em><em> employs an explanatory design, comprising an elucidation of events in present conditions (explanation) and events that will occur (prediction)</em><em>.</em><em> The sampling technique used was purposive sampling with sampling criteria that are at the level of administrative staff up to the directors and have worked for at least one year. Based on predetermined criteria, there were 260 research respondents</em><em>. Data was collected using a questionnaire and measured on a Likert scale of 1-5 with a value of 1 for answers that strongly disagree and a value of 5 for answers strongly agree. The data analysis technique used is multiple regression analysis with the help of SPSS 22.</em><em> Based on the above findings and discussions, the limitations for future research are elaborated as follows: the level of understandings possessed by respondents regarding the concept of hospitals as public service agencies varies and cannot be controlled or specified. Stakeholders from different occupational positions may have different experiences and educational backgrounds which may affect their understanding of public service agency, particularly the hospital. For this reason, mapping specific respondents might be required for future research. Categorized and specified respondents could optimize the research process by providing more focused answer from and more thorough discussion with stakeholders with the same understanding level. This research can be developed by extending the coverage of hospitals granted with the BLU authorization throughout Indonesia. Besides, alternative research object can also developed by examining non-BLU hospitals.</em><em> T</em><em>his research </em><em>concludes Corporate Governance is positive influencer for and significant to Performance; in contrast, Management Strategy is insignificant to</em><em> </em><em>Performance. Besides, Ethics itself indirectly influences</em><em> p</em><em>erformanc</em><em>e. This study is useful for regulators as policy makers to improve professionalism and improve hospital services. It is also hoped that the results of this study will benefit other stakeholders, change business-oriented mindset without neglecting services and human values.</em><em></em></p><p> </p><p><strong><em>Keywords: </em></strong><strong><em>Management Technique, Governance, Management Strategy, Performance, </em></strong><strong><em>Business Ethi</em></strong><strong><em>cs, </em></strong><strong><em>Public Service Hospitals</em></strong><strong><em>. </em></strong><strong><em></em></strong></p>
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A., Rahmawati. "Effect on performance audit implementation of good corporate governance in kab.Luwu (Case Study Inspectorate Kab.Luwu)." Journal of Economics and Behavioral Studies 7, no. 1(J) (February 28, 2015): 13–19. http://dx.doi.org/10.22610/jebs.v7i1(j).559.

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This paper describes how internal audit can support Good Corporate Governance in local government. How auditor capability and quantity can be accepted by 33 department of the local government Luwu. It also finds that Auditor capacity to do audit with independency, professionalisms and quality of auditor. This paper elaborates that the internal audit such as finance audit, compliance audit, and operational audit is required in local government to decrease fraud before the external audit find, and can be good for corporate governance. One of the things that can realize good corporate governance is seen from the performance of any organization of government activities, good performance in terms of achieving policy objectives, regulations and applicable law, the achievement of performance in an efficient, effective, and economical, as well as the compatibility between the performance achieved with established criteria. To assess the extent to which the achievement of local government performance in serving the interests of society, it is necessary to audit the performance. The purpose of this study was to determine the effect of Internal Audit on the implementation of good corporate governance in local government Luwu. The sample in this study was all local governments Internal Auditor in Luwu district Inspectorate office. The collection of information is done by compiling a list of questions that are appropriate for the respondents submitted to the analysis method used in this research is quantitative method by using a simple linear regression analysis were processed with SPSS software version 18. The results of this study concluded that the existence of an internal audit will encourage the achievement of implementation of good corporate governance system within the Inspectorate so that later in outline will encourage financial governance system within the district will go well. Although many other factors that will support that have not been investigated as thoroughly as the auditor's own characteristics, auditor ethics deal other factors. Accountability and transparency have become important issues in the management of an organization that disclosure with full disclosure will provide a thorough understanding of users of financial statements. Compliance audit of internal audit affects the implementation of good corporate governance can be seen that the results of testing for compliance audits variable has a probability of 0.041 significance where the value is less than 0.05. Thus H4 accepted, this means that the compliance audit of internal audit significantly influence the implementation of good corporate governance in Luwu.
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Prictor, Megan, Sharon Huebner, Harriet J. A. Teare, Luke Burchill, and Jane Kaye. "Australian Aboriginal and Torres Strait Islander Collections of Genetic Heritage: The Legal, Ethical and Practical Considerations of a Dynamic Consent Approach to Decision Making." Journal of Law, Medicine & Ethics 48, no. 1 (2020): 205–17. http://dx.doi.org/10.1177/1073110520917012.

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Dynamic Consent (DC) is both a model and a specific web-based tool that enables clear, granular communication and recording of participant consent choices over time. The DC model enables individuals to know and to decide how personal research information is being used and provides a way in which to exercise legal rights provided in privacy and data protection law. The DC tool is flexible and responsive, enabling legal and ethical requirements in research data sharing to be met and for online health information to be maintained. DC has been used in rare diseases and genomics, to enable people to control and express their preferences regarding their own data. However, DC has never been explored in relationship to historical collections of bioscientific and genetic heritage or to contexts involving Aboriginal and Torres Strait Islander people (First Peoples of Australia).In response to the growing interest by First Peoples throughout Australia in genetic and genomic research, and the increasing number of invitations from researchers to participate in community health and wellbeing projects, this article examines the legal and ethical attributes and challenges of DC in these contexts. It also explores opportunities for including First Peoples' cultural perspectives, governance, and leadership as a method for defining (or redefining) DC on cultural terms that engage best practice research and data analysis as well as respect for meaningful and longitudinal individual and family participation.
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Winkelmann, Zachary K., Elizabeth R. Neil, and Lindsey E. Eberman. "Athletic Training Students' Knowledge of Ethical and Legal Practice with Technology and Social Media." Athletic Training Education Journal 13, no. 1 (January 1, 2018): 3–11. http://dx.doi.org/10.4085/13013.

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Context: Technology, social media, and access to health care continue to grow simultaneously. There is limited research on the knowledge of athletic training students regarding the ethical and legal practice of protected health information using technology and social media. Objective: To explore social media use of athletic training students and to determine their knowledge of patient privacy regulations within social media and technology. Design and Setting: Online survey instrument and knowledge assessment. Patients or Other Participants: A total of 652 athletic training students. Intervention(s): A knowledge assessment of 12 items based on the governance and use of patient privacy compliance in health care within the context of athletic training students' clinical experiences. Main Outcome Measure(s): An instrument of 26 questions, including 14 demographic and 12 knowledge items, was developed and content validated using a Delphi panel of experts in athletic training, health care information technology, and risk management lawyers. Descriptive statistics and independent t tests were calculated. Results: Athletic training students stated they had received previous education (n = 587 of 637, 92.2%) regarding Health Insurance Portability and Accountability Act (HIPAA) regulations, and had an average of 6.81 ± 2.75 active social media accounts. Only 24.2% (n = 154 of 636) of respondents stated their professional athletic training program had a social media policy that was strictly enforced. We identified a lack of knowledge of best practice by athletic training students, with an average knowledge assessment score of 4.92 ± 1.7 out of 13 (37.8%). Total knowledge scores were significantly different (P = .008) if the respondent had previous HIPAA education. Conclusions: The respondents scored poorly on the knowledge assessment despite previous education related to HIPAA regulations. Athletic training educators should seek out strategies to adapt professional or preprofessional curricula to incorporate health care informatics and ethics to adapt to the current culture of technology and social media.
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