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Dissertations / Theses on the topic 'Informal Care'

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Published: 4 June 2021
Last updated: 10 March 2023

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1

Corney, M. J. R. "Dementia and informal care." Thesis, Bangor University, 1996. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.296320.

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2

Youn, Kyungmin. "Orchestrated Informal Care Coordination." Research Showcase @ CMU, 2016. http://repository.cmu.edu/theses/109.

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3

Humbert, Kirsten. "Ministers as informal mental health care professionals." Thesis, McGill University, 2014. http://digitool.Library.McGill.CA:80/R/?func=dbin-jump-full&object_id=121432.

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Although not typically considered formal mental health care professionals, clergy are regularly contacted as a resource by people with mental illness. Little is known about the clergy's role in this capacity. The aim of this research is to explore the experiences and perspectives of Canadian ministers of the United Church in response to mental health issues using simple qualitative description. Three female and nine male urban ministers of the United Church of Canada were recruited to participate in semi-structured interviews. Interviews were audio recorded, transcribed, and analyzed by hand for relevant themes. Themes within the following three main topics emerged: how ministers served people with mental illness, ministers' experiences working alongside formal mental health care professionals, and remaining challenges and facilitators. Ministers reported providing various support services for people with mental illness. While ministers reported little direct collaboration, they reported regularly referring people with suspected mental illness to formal mental health care professionals. Finally, ministers cited an innate trustworthiness in their profession and their community as facilitators, while remaining challenges included limitations in terms of financial resources, time, trust between themselves and formal mental health care professionals, and trust between ministers and their colleagues. The findings of this research indicate that collaborative relationships should be encouraged between formal mental health care professionals and ministers of the United Church to better serve people with mental illness.
N'étant généralement pas considérés comme des professionnels de la santé mentale, les membres du clergé sont régulièrement sollicités comme personnes ressources par des personnes atteintes de maladie mentale. On en connaît peu sur le rôle du clergé dans le domaine de la santé mentale. Le but de cette recherche est d'explorer les expériences et points de vue de pasteurs de l'Église Unie du Canada en réponse aux problèmes de la santé mentale à l'aide de la description qualitative simple. Trois femmes et neuf hommes pasteurs urbains de l'Église Unie du Canada ont été recrutés pour participer à des entrevues semi-structurées. Les entrevues ont été enregistrées, transcrites et analysées. Trois grands thèmes ont émergé : la façon dont les pasteurs mettent leurs services au profit des personnes atteintes de maladie mentale, l'expérience des pasteurs à travailler conjointement avec les professionnels des soins de santé mentale, et les défis restants et les mesures facilitant la prise en charge de ces personnes. Les pasteurs ont déclaré fournir divers services de soutien aux personnes atteintes de maladie mentale. Bien que les pasteurs aient signalé peu de collaboration directe des professionnels des soins de la santé mentale, ils ont déclaré leur diriger régulièrement des personnes soupçonnées d'être atteintes d'une maladie mentale. Finalement, les pasteurs ont déclaré avoir une confiance innée en leur profession et en leur communauté comme intervenants facilitateurs, bien que de nombreux défis se posent au niveau des ressources financières, du temps, de la confiance entre pasteurs et professionnels des soins de la santé mentale, ainsi que de la confiance entre les pasteurs et leurs collègues. Les résultats de cette recherche indiquent que les relations de collaboration entre les professionnels des soins de la santé mentale et les pasteurs de l'Église Unie devraient être encouragées pour mieux servir les personnes atteintes de maladie mentale.
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4

Gaal, Peter Andras. "Informal payments for health care in Hungary." Thesis, London School of Hygiene and Tropical Medicine (University of London), 2004. http://researchonline.lshtm.ac.uk/4646519/.

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There is a growing international interest in informal payment for health care - a payment that patients give, typically to medical doctors, for formally free services. The phenomenon is widespread and persistent in post-communist countries, but also reported from other countries in Africa and Asia. This thesis focuses on informal payments in Hungary, aiming to establish their scale and the motivation for giving, issues whose understanding are crucial in assessing their policy importance. The theoretical literature can be summarised in two contrasting hypothesis for informal payments. One is that patients pay because they want better care, which implies that payments reflect, and may sustain, defects in service delivery. This thesis elaborates a new theoretical framework that builds on this 'fee-for-service' hypothesis and Hirschman's theory of 'exit, voice, loyalty', identifying informal payments as one manifestation of another response to a perceived decline in health services: informal/internal exit or 'inxit' for short. The opposing view, the 'donation' hypothesis, however, considers such payments as motivated by gratitude, with no adverse effect on performance of health care. Unfortunately, previously existing evidence is inconclusive regarding both the motivation and scale of informal payments. The empirical part of this thesis addresses both issues directly, and also indirectly addresses motivation exploring any impact on equity, using a household survey, indepth interviews with patients and doctors, secondary analysis of existing datasets, official statistics and documentary analysis. Findings suggest that informal payment is indeed a problem in Hungary. First, although it is not a substantial source of health care financing (less than 5% of total expenditures in 2001), its importance as an incentive comes from its extent and distribution (at least 60% of the net income of family doctors and specialists) rather than its overall magnitude. Second, although survey findings did not confinn infonnal payment as a barrier to utilization and they supported gratitude as the most important motive, a contradiction has been found between the reasons for giving cited in the household survey and the revelation of pressures on patients to pay from in-depth interviews. Taken together, these suggest that payments generally take place a 'coercive' context, so the case for the 'donation' hypothesis is weak.
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5

Blaise, Marie. "Essays on longevity, ageing and informal care." Thesis, Strasbourg, 2019. http://www.theses.fr/2019STRAB016.

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Du contexte de vieillissement démographique en Europe, dont sa prévalence et sa généralisation au continent européen le rendent inédit et sans précédent, découle un certain nombre de problématiques. Ainsi, l’augmentation du nombre de personnes âgées, et plus particulièrement, du nombre de personnes âgées en situation de dépendance démocratise la question de leur prise en charge et du rôle de chacune des parties prenantes. Cette thèse se propose d’étudier les problématiques relatives au vieillissement et à l’offre d’aide informelle. Le premier Chapitre étudie la relation entre mortalité et revenu. Le deuxième Chapitre s’intéresse aux motivations des enfants à devenir les aidants informels de leurs parents. Les troisième et quatrième Chapitres analysent, respectivement, l’impact de l’aide informelle sur la santé de l’aidant et celle de son partenaire
In a context of population ageing, the number of people requiring long-term care (LTC) is expected to increase. This fast growing old-age population is mainly cared informally, either by family members or close relatives. This thesis aims at contributing to the existing knowledge about ageing and informal care. The first Chapter examines the relationship between longevity and income in European countries. In Chapter 2, we study the incentives of adult children to care their old-age parents. Chapter 3 and Chapter 4 address, respectively, the consequences of the decision to care on both caregivers’ health as well as on the caregivers ‘ couple
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6

Mentzakis, Emmanouil. "Economic issues of informal care values and determinants /." Thesis, Available from the University of Aberdeen Library and Historic Collections Digital Resources, 2008. http://digitool.abdn.ac.uk:80/webclient/DeliveryManager?application=DIGITOOL-3&owner=resourcediscovery&custom_att_2=simple_viewer&pid=25213.

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7

Jones, Kip. "Narratives of identity and the informal care role." Thesis, De Montfort University, 2001. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.366629.

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8

Skira, Meghan. "Essays on Informal Care, Labor Supply and Wages." Thesis, Boston College, 2012. http://hdl.handle.net/2345/2652.

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Thesis advisor: Andrew Beauchamp
Thesis advisor: Peter Gottschalk
This dissertation examines how caregiving for an elderly parent affects an adult child's labor supply and wages. In the first chapter (co-authored with Courtney H. Van Houtven and Norma B. Coe) we identify the relationship between informal care and labor force participation in the United States, both on the intensive and extensive margins, and examine wage effects. We control for time-invariant individual heterogeneity; rule out or control for endogeneity; examine effects for men and women separately; and analyze heterogeneous effects by task and intensity. We find modest decreases--1.4-2.4 percentage points--in the likelihood of working for caregivers providing personal care. Male and female chore caregivers, meanwhile, are more likely to retire. For female care providers who remain working, we find evidence that they decrease work by 3-10 hours per week and face a 2.3-2.6 percent wage penalty. We find little effect of caregiving on working men's hours or wages except for a wage premium for male intensive caregivers. In the second chapter I formulate and estimate a dynamic discrete choice model of elder parent care and work to analyze how caregiving affects a woman's current and future labor force participation and wages. Intertemporal tradeoffs, such as decreased future earning capacity due to a current reduction in labor market work, are central to the decision to provide care. The existing literature, however, overlooks such long-term considerations. I depart from the previous literature by modeling caregiving and work decisions in an explicitly intertemporal framework. The model incorporates dynamic elements such as the health of the elderly parent, human capital accumulation and job offer availability. I estimate the model on a sample of women from the Health and Retirement Study by efficient method of moments. The estimates indicate that intertemporal tradeoffs matter considerably. In particular, women face low probabilities of returning to work or increasing work hours after a caregiving spell. Using the estimates, I simulate several government sponsored elder care policy experiments: a longer unpaid leave than currently available under the Family and Medical Leave Act of 1993; a paid work leave; and a caregiver allowance. The leaves encourage more work among intensive care providers since they guarantee a woman can return to her job, while the caregiver allowance discourages work. A comparison of the welfare gains generated by the policies shows that half the value of the paid leave can be achieved with the unpaid leave, and the caregiver allowance generates gains comparable to the unpaid leave
Thesis (PhD) — Boston College, 2012
Submitted to: Boston College. Graduate School of Arts and Sciences
Discipline: Economics
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9

Henderson, J. "Conceptualisation of informal care : An analysis of community care policies based upon the perceptions of informal carers of elderly dependant women." Thesis, University of Bradford, 1988. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.381048.

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10

Sanchez, Collado Irene. "The impact of providing informal care on carer well-being, retirement, and health." Thesis, University of York, 2017. http://etheses.whiterose.ac.uk/20049/.

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This thesis includes a series of case studies exploring the impact of providing informal (unpaid) care on the well-being, retirement decisions, and physical and mental health outcomes of carers. We use a representative sample of the UK population and informal carers from eighteen waves of the British Household Survey (BHPS). Analysis is undertaken from an economic and micro-econometrics perspective, using a variety of econometric techniques tailored to the specific questions and data in each study. The first chapter introduces the topics and provides descriptive statistics of the sample of carers in BHPS. In the second chapter, we study the impact of providing informal care on happiness and life satisfaction and calculate monetary values for informal care for each of these subjective well-being measures and by gender. We find monetary values of around £18 per extra hour of informal care provided per week for men and women in our preferred model, although values vary with the well-being measure, the measure of informal care, and the estimation method used. In chapter three we study whether the decision to retire before the State Pension Age is affected by the intensity of the informal care provided by men and women. We find that the probability of retirement is around twice as high for carers than for non-carers. Chapter 4 analyses the impact of providing informal care on caregiver ́s health, using a variety of health measures: GHQ, SF-6D, health conditions and self-assessed health. We find a small but negative effect of providing informal care on both the physical and mental health of informal carers. With these analyses, we aim to contribute to the literature by providing evidence on the impact of informal caring on carers to inform policy towards them and those they care for.
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11

García, Gómez Pilar. "Health, informal care and labour market outcomes in Europe." Doctoral thesis, Universitat Pompeu Fabra, 2008. http://hdl.handle.net/10803/7376.

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Esta tesis contribuye a la literatura analizando los efectos causales que el estado de salud tiene sobre la participación laboral en la población en edad de trabajar. De este modo, analiza los efectos que un deterioro en el estado de salud tiene sobre la participación laboral del individuo, así como los efectos de proveer cuidados informales sobre la participación laboral femenina. El primer capítulo utiliza una aproximación empírica homogénea en nueve países europeos, lo que hace posible relacionar las diferencias encontradas con diferencias en el contexto institucional. El segundo capítulo analiza el papel que juega el estado de salud en las transiciones hacia y fuera del empleo. Los resultados muestran que el estado de salud general afecta simétricamente las entradas y salidas del empleo, mientras que cambios en el estado de salud mental sólo influyen el riesgo de abandonar el empleo. El tercer capítulo examina los efectos de varios tipos de cuidados informales en el comportamiento laboral femenino. Los resultados sugieren que los costes de oportunidad laborales aparecen en aquellas mujeres que conviven con la persona dependiente, al mismo tiempo que los efectos negativos surgen cuando se proveen cuidados informales por un período superior al año.
This thesis aims to contribute to the literature with an attempt to identify the causal effects of health on labour market outcomes in the working-age population. I analyse the effects of the onset of a health shock on the individuals' labour market outcomes, and also the effects of caregiving on female labour participation. The first chapter uses a homogeneous empirical framework to estimate the first set of effects on nine European countries, which allows me to relate the empirical estimates to differences in social security arrangements across these countries. The second chapter analyses the role of health in exits out of and entries into employment and the results show that general health affects symmetrically entries into and exits out of employment, but changes in mental health status influence only the hazard of non-employment for the stock sample of workers. The third chapter examines the effects of various types of informal care on female labour behaviour and the results suggest the existence of labour opportunity costs for those women who live with the dependent person they care for, and the negative effects appear when caregiving for more than a year.
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12

Mathews, Michelle C. "Measuring the quality of informal home-based care programs." Diss., Columbia, Mo. : University of Missouri-Columbia, 2006. http://hdl.handle.net/10355/5882.

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Thesis (Ph. D.)--University of Missouri-Columbia, 2006.
The entire dissertation/thesis text is included in the research.pdf file; the official abstract appears in the short.pdf file (which also appears in the research.pdf); a non-technical general description, or public abstract, appears in the public.pdf file. Title from title screen of research.pdf file viewed on (March 2, 2006) Vita. Includes bibliographical references.
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13

Orsini, Chiara. "Essays on informal and formal care for the elderly." College Park, Md. : University of Maryland, 2007. http://hdl.handle.net/1903/7286.

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Thesis (Ph. D.) -- University of Maryland, College Park, 2007.
Thesis research directed by: Economics. Title from t.p. of PDF. Includes bibliographical references. Published by UMI Dissertation Services, Ann Arbor, Mich. Also available in paper.
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14

Moore, Helen. "Adaptation of informal care relationships following Acquired Brain Injury." Thesis, University of Stirling, 2012. http://hdl.handle.net/1893/11094.

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The number of informal carers in the UK is rising, yet the dynamics of care within informal care relationships remain poorly understood. The present research examined adaptation of informal care relationships affected by Acquired Brain Injury. The research addresses four pairs of questions: (1a) Are there any disagreements and/or misunderstandings between carers and people with Acquired Brain Injury (PwABI) regarding carer identity? (1b) How can the pattern of divergences be explained? (2a) Are there any disagreements and/or misunderstandings between carers and PwABI regarding PwABI identity? (2b) How can the pattern of divergences be explained? (3a) What strategies do carers and PwABI use in collaboration on a joint task? (3b) Is the type of input provided by carers on the joint task comparable to scaffolding as described in the child development literature? (4a) What happens when carers and PwABI collaborate to fill in the Disability Living Allowance (DLA) claim form? (4b) Why do carers see more disability than PwABI when filling in the DLA form? Four mixed-method data sets were used to answer these questions: (1) numerical ratings given by PwABI and carers to map out convergences and divergences (2) videos of discussions between participants and researcher during rating tasks (3) videos of carers and PwABI engaging in a joint task - planning inviting a friend or relative round for a meal and (4) videos of carers and PwABI filling in part of the DLA claim form. All data was collected from the same 28 PwABI/carer dyads who were two or more years post injury. Chapter 4 addresses questions 1a and 1b. Carers’ and PwABIs’ perspective ratings revealed a number of disagreements regarding carer identity. Carers perceived themselves negatively compared to their partners’ view of them. Regarding question 1b, carers feel negatively about themselves due to difficulties in the transition to the role of ‘carer’. They experience a lack of recognition for this caring role as a result of concealing the burden of care. Carers require more long term support from health services to help them achieve recognition for their role, such as facilitating attendance at support groups. Chapter 5 addresses questions 2a and 2b. Carers’ and PwABIs’ perspective ratings revealed only one disagreement and corresponding misunderstanding regarding PwABI identity. Regarding question 2b, alignment was found between the perspectives of carers and PwABI regarding PwABI due to the relational rating method used. It is carer identity which is the source of most divergences of perspective, not PwABI identity as commonly assumed. Using a relational rating method shows promise as a tool to explore perspectives as it treats all viewpoints as equal and avoids pathologising the perspective of PwABI. Chapter 6 addresses questions 3a and 3b. Analysis of strategies shows that completing a joint task is a collaborative process. Carers direct the background of the task but PwABI are in charge of the foreground, making task decisions. However, carers dominate the process and control where and how PwABI contribute. Regarding question 3b, the interaction meets the criteria for scaffolding in the strategies chosen and the flexibility of collaboration. However, removal of supports is often an unrealistic goal, leading to frustration in carers. Examination of processes of collaboration has elucidated the strategies used by carers and PwABI and can enhance theoretical discussion of the applicability of the scaffolding metaphor for a cognitively impaired adult sample. Chapter 7 address questions 4a and 4b. Disagreements were frequent when completing the DLA form. Contestations were almost exclusively in the direction of carers seeing greater disability than PwABI. Regarding question 4b, carers see greater disability due to the communication required to complete the form. Dyads are forced to confront disability, a pattern of interaction they avoid in everyday life. Carers marginalise PwABI point of view and position themselves as ‘expert’ on the PwABI. Differences in frames of reference regarding audience, aim and scope lead carers to maximise the disability and PwABI to minimise this. The impact of completing complex forms on relationships and identity needs to be considered during development of disability benefit assessment methods. A relational approach which studies both halves of informal care partnerships simultaneously allows us to go beyond outcomes of ABI and affords a greater understanding of processes of adaptation.
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15

Thompson, Diane. "The social and political construction of care : community care policy and the 'private' carer." Thesis, University of Bedfordshire, 2000. http://hdl.handle.net/10547/233629.

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This thesis presents a retrospective critique of the social and political construction of 'informal care' within community care policy from the period of the late 1970s to the mid 1990s. The thesis considers the question of the degree of 'choice' available to informal carers to say 'no' to caring, or aspects of caring, within the reforms' positioning of informal care as the first line of support for adult dependants. The critique focuses on subjectivity, difference, agency and choice. A theoretical and methodological synthesis is developed between feminist post-structuralism, feminist critiques of mainstream social policy, and feminist theory and research, within which a qualitative in-depth interview study with informal carers is situated. The critique is then expanded through the development of a 'Q' Methodology study with a larger cohort of informal carers. The research identified gendered generational differences between the carers, and a 'burden' of care imposed as an outcome of consecutive governments' attempts to residualise welfare. The older carers' levels of agency and choice were severely curtailed. However, the younger female carers were more able to resist the drive of the community care reforms, their counter discourses being based on a new emergent notion of 'rights'. The direction of community care policy was found to be out of step with how the carers within this study perceived their responsibilities and 'obligations'. The thesis argues that whilst post-modernism may have constrained the capacity of governments and reconstituted our understanding of 'care', it has not done so to the extent that we are no longer prepared to make demands for 'care' from and by the state.
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16

Stanley, Vicki J. "Decision-Making Processes of Primary Informal Caregivers Regarding Care Recipients' Moves to Memory Care." Digital Archive @ GSU, 2011. http://digitalarchive.gsu.edu/gerontology_theses/25.

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Most persons with a dementia are cared for in the home by family members who experience a broad and considerable amount of stress and whose caregiving careers may include planning for or initiating moves to memory care units (MCUs). This study examines the decision-making processes of primary informal caregivers regarding their care recipients' moves to MCUs. Grounded theory methods were used to collect and analyze data in two long-term care (LTC) facilities varying in characteristics including capacity, state licensure, fees, and resident profiles. Specific aims are two-fold: 1) advance an understanding of how primary informal caregivers of persons with a dementia made decisions for formal memory care, and 2) identify the important factors related to the decision-making process.
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17

Joubert, Janetta Debora. "A profile of informal carers in South Africa." Diss., Pretoria : [s.n.], 2005. http://upetd.up.ac.za/thesis/available/etd-12022005-140227.

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18

Babbage, Roberta Louise. "Relieving strain in informal caregivers of the elderly." CSUSB ScholarWorks, 1989. https://scholarworks.lib.csusb.edu/etd-project/459.

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19

Donnellan, Warren James. "Providing informal care : how to facilitate resilience in challenging times." Thesis, University of Liverpool, 2017. http://livrepository.liverpool.ac.uk/3007859/.

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This thesis uses qualitative and quantitative methods to identify and explore resilience in informal carers using Windle and Bennett's (2011) ecological framework. First, we1 explore the ecological framework in older informal carers. We reveal that older spousal dementia carers and non-spousal informal carers can achieve resilience. Carers draw on assets and resources from across the resilience framework which interact with each other to facilitate resilience. Next we investigate the mechanisms through which emergent themes facilitate resilience over time. We find that older people display a positivity bias, with some evidence to suggest that this is more pronounced in older carers than older non-carers. We reveal that resilient and non-resilient carers share structurally and functionally similar support characteristics. Non-resilient carers are more likely to resist over-involved family support and resilient carers are more likely to receive support from friends with shared experience. Finally, we find that carers can remain or become resilient over time. Institutionalisation and widowhood provide opportunities to draw on more assets and resources. Together, the findings suggest that informal caregiving is not entirely burdensome; carers can achieve resilience and draw on several assets and resources from across the resilience framework. The findings emphasise the importance of social ecological approaches to resilience. However, resources are not always sufficient to facilitate resilience; practitioners and policy makers should deliver personalised carer services that match need.
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20

Potter, Andrew Joseph. "Informal caregivers and the health of older adult care-recipients." Diss., University of Iowa, 2016. https://ir.uiowa.edu/etd/2260.

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Family and friends provide substantial daily assistance to older adults with disabilities, but little is known about how that caregiving impacts the health of older adults. Using survey data on a nationally-representative sample of older adults and their caregivers, matched with Medicare claims, I explored several aspects of the relationship between caregiving and the health of older adults receiving care. I relied largely on Andersen’s behavioral model, which describes health services use as a product of predisposing, enabling, and need characteristics. I found that 33%-37% of older adults with unmet care needs at one point in time still have them one year later. I also found frequent change in the composition of older adults’ networks of caregivers. Having a formal caregiver was associated with lower odds of unmet care needs for women; conversely, men receiving care from a spouse had three times lower odds of unmet care needs than those receiving care from a non-spousal caregiver. Some caregivers use services such as respite care, training, and support groups, but some caregivers lack access to desired services. I found that caregivers reporting unmet service need were more likely to be Black and Hispanic, while service use was higher among caregivers providing help on a regular schedule. Care-recipient health and function was associated with both service use and unmet service need, but available measures of local caregiver service supply were not. Older adults frequently seek care in emergency departments (EDs), but this care may not always be necessary or desirable. I hypothesized, but did not find, that caregiver service use was associated with care-recipient ED use. Instead, chronic health conditions and other need factors were the strongest predictors of ED use. I found that care-recipients of male caregivers had lower rates of ED utilization for reasons that were urgent and not preventable. I also found that care-recipients of adult children had lower rates of non-urgent ED utilization than care-recipients of more distantly-related or unrelated caregivers. These findings suggest that unmet care needs might be reduced by improving access to formal care for older women with functional limitations and monitoring unmarried older men. In addition, improving service access for Black and Hispanic caregivers, and for caregivers who provide unscheduled care, could reduce caregivers’ unmet service need. Finally, targeting training and support services to male spousal caregivers could improve access both to needed daily care and to emergency care. Future research should focus on replicating these analyses after more data become available and on developing alternate measures of caregiver service supply.
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21

Pickard, Linda. "No end of care? : informal care for older parents in Britain between 1985 and 2000." Thesis, London School of Economics and Political Science (University of London), 2009. http://etheses.lse.ac.uk/323/.

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This study is concerned with the issue of substitution between formal and informal care in Britain between 1985 and 2000. This period provides the conditions for a ‘natural experiment’ in social policy. During the late 1980s/early 1990s, there was a rapid increase in long-stay residential care for older people, which came to an end around the mid-1990s. The key issues examined here are whether this increase in formal services led to a decline in provision of informal care, and whether this was subsequently reversed. For reasons identified in the literature review, the focus is on provision of intense informal care by adult children to their older parents, trends in which are identified using General Household Survey data. The study shows that there was a significant decline in provision of intense and very intense co-resident care for older parents between 1985 and 1995, which came to an end in the mid-1990s. A number of potential explanations for these trends are explored, including supply-side explanations in terms of changes in socio-demographic factors and employment rates, and an alternative demand-side explanation in terms of changes in ‘spouse care’. The study finds that, under certain circumstances, key trends in intergenerational care were negatively related to changes in long-stay residential care. In particular, the study finds evidence of substitution effects between nursing home/hospital care and very intense co-resident care for older parents provided by adult children for 50 hours a week or more. A key policy implication is that an expansion of very intense formal services for older people could bring about a decline in some of the most intense forms of intergenerational care for older people. The study relates these conclusions to options around reform of the long-term care system currently under consultation in England following the recent Green Paper on social care.
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22

Saweka, Delfina Ângela. "Factors influencing malaria care seeking behaviour in two Ghanaian communities : formal versus informal malaria care." Master's thesis, University of Cape Town, 2008. http://hdl.handle.net/11427/9456.

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Includes bibliographical references (leaves 101-110).
The study primary objective was to investigate the determinants and extent of household’s reliance on the informal malaria care sector in two Ghanaians communities. The secondary objective wass to inform policy-makers and planners, especially from the public healthcare sector, on supply side issues that are likely to influence the current malaria care seeking patterns.
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23

O'Sullivan, Amy K. "Caregivers to the elderly with dementia informal care provided, employment choices, and formal care arranged /." Available to US Hopkins community, 2002. http://wwwlib.umi.com/dissertations/dlnow/3068193.

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24

Wolff, Jennifer L. "Caregiving from the care recipient perspective informal care arrangements on health and use of health services /." Available to US Hopkins community, 2003. http://wwwlib.umi.com/dissertations/dlnow/308079.

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25

Hu, Yang. "Constructions of children's needs in informal kinship care in rural China." Thesis, Queensland University of Technology, 2013. https://eprints.qut.edu.au/61885/1/Yang_Hu_Thesis.pdf.

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Kinship care is the oldest form of alternative child care in the world. Recent years have witnessed a significant increase in the number of children being placed in kinship care across Western countries. However, in contrast to rapid knowledge advances about formal kinship care, far less is known about the needs of children in informal kinship care, especially in Asian contexts. This thesis and the study upon which it is formed sought to redress this knowledge gap. Qualitative approach was adopted to explore social constructions of children in informal kinship care in rural China. Parents in China seeking work in cities have left behind around 58 million rural children, mostly with relatives and without the involvement of the state. The present study examined caregivers’ and school personnel’s understandings of these school-age children’s needs through semi-structured interviews with 23 kin caregivers and five school personnel in Shijiapu Town, Jilin Province, China. The central question that guided the whole study is: What are the needs of children in informal kinship care in rural Jilin Province, China? Interpretative Phenomenological Analysis was used to categorise and interpret the qualitative data. Based on participants’ constructions, this study developed a need model with eight themes. They are: (1) emotional needs and mental health, (2) relationships, (3) empowerment and agency, (4) safety, (5) education, (6) basic care, (7) physical health, and (8) personal development. These needs are grounded in the Chinese context, and therefore a good understanding of Chinese culture is essential to address them. The first four needs particularly capture children’s separations from their parents, and the rest are more general, and can be applied to most Chinese children. To meet the most important need for children left behind, namely education, these caregivers determined that others needs sometimes have to be compromised. Children left behind are a vulnerable group in contemporary rural China, and their diverse needs are attended to by several groups. This study found that as children’s closest kin while their parents are away, caregivers play a vital role in salving the children’s emotional loss. Caregivers’ love and familial obligations strongly motivate them to care for these children, and sensitivity to social stigma makes them strive to show their love and care to compensate for perceived differences between these children and their peers. Caregivers’ efforts to make children happy, however, were sometimes criticised by some school personnel, who see this as spoiling. The conflicting viewpoint between caregivers and school personnel indicate their different roles and perceptions in children’s lives, and the latter influence these children in a more authoritative way. Informal kinship care has several advantages of addressing children’s needs, especially their needs for emotional bonds with family. Community-based kin networks provide children with both emotional and material support. However, these advantages sometimes are restricted by caregivers’ child rearing capacity. Having developed a model of the needs of children left behind in China, this study suggests that caregivers, school personnel and government social services work in harmony to be child-centred and meet these children’s diverse needs. The unmet needs of children left behind mainly result from unbalanced development between urban and rural China, therefore, it is imperative to enhance state policies and programs that improve wellbeing for this growing part of China’s people.
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Grochowski, Julie. "Predictors of Independent Living Outcomes Among Older Women Receiving Informal Care." FIU Digital Commons, 2014. http://digitalcommons.fiu.edu/etd/1685.

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This study examined the predictors of independent living outcomes among community–living older women who received informal care. The central hypothesis was that older women’s level of functioning is influenced by their relationship with their informal caregiver. The study attempted to understand the independence of older women through the perspective of both informal caregivers and the older women themselves. The following eight variables were measured: 1) the older women’s independence (dependent variable); 2) the relationship between older women and their informal caregivers (independent variable); 3) roles of both the informal caregiver and older women (independent variable); 4) the older women’s attitudes toward aging (independent variable); 5) the older women’s age identity (independent variable); 6) the older women’s health (control variable); 7) the older women’s level of social support (control variable); and 8) the older women’s level of depression (control variable). The variables were measured from the perspective of the older woman herself and her informal caregiver. This study used an ecological and developmental framework along with role theory to understand the interaction among the aforementioned variables through a cross-sectional design. The recruited older women participants of this study were receiving ongoing care and personal assistance from two large home care agencies located in Miami, FL. An analysis was conducted through a mixed-methods incorporated into the study design. The present study aimed to contribute to the understanding of how the relationship between older women and their informal caregivers influences older women’s ability to maintain independent outcomes. The primary finding of this study was that there were both positive and negative experiences within the relationship dynamic of older women and their informal caregivers and that this relationship was either unidirectional or bi-directional.
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Liu, Chi-pun, and 廖志彬. "Informal care patterns and health of the elderly in Hong Kong." Thesis, The University of Hong Kong (Pokfulam, Hong Kong), 1999. http://hub.hku.hk/bib/B31239006.

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Liu, Chi-pun. "Informal care patterns and health of the elderly in Hong Kong /." Hong Kong : University of Hong Kong, 1999. http://sunzi.lib.hku.hk/hkuto/record.jsp?B21021132.

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Oates, Joanne. "Informal Care in New South Wales For Survivors of Severe Neurotrauma." Thesis, The University of Sydney, 2014. http://hdl.handle.net/2123/12505.

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Introduction: Severe spinal cord injury (SCI) and traumatic brain injury (TBI) generate the greatest percentage of cost for care. Best available research on costs of care after severe neurotrauma acknowledges the limitations in the measurement and valuation of informal care time. Objective: To investigate the data collection and valuation methods of informal care time in defining the cost of care for NSW survivors of severe neurotrauma. Method: Sixty one adult survivors of severe neurotrauma, including high level SCI (n= 28) and severe TBI (n= 33) from both metropolitan and regional NSW were assessed using diary and recall questionnaire methodologies. The value of informal care was assessed using both replacement and contingent (self-valuation) methods. Results: Significant disparity in the estimate of informal care time was identified between diary (29 hours/week) and recall (61 hours/ week) methodologies (p<0.01). Assistance in personal care tasks was valued more highly by informal caregivers ($46/ hour) than domestic tasks ($29/ hour) and community living tasks ($29/ hour). Conclusion: Outcomes will inform resource planning through the better measurement and valuation of informal care time provided to people living with profound activity limitation following severe neurotrauma.
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Roquebert-Labbé, Quitterie. "Formal and informal care arrangements for the disabled elderly in France." Thesis, Paris 1, 2018. http://www.theses.fr/2018PA01E017/document.

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Le vieillissement de la population et la forte prévalence des incapacités qui lui est associée invitent à s’interroger sur les modes d’accompagnement de la perte d’autonomie. Tandis que l’aide reçue par les personnes âgées dépendantes provient majoritairement de leurs proches, les politiques publiques françaises favorisent le recours à l’aide professionnelle, dite aide formelle, pour les personnes résidant à domicile. Cette thèse se propose d’étudier les configurations d’aides formelles et informelles pour les personnes âgées en perte d’autonomie. Sous quelles conditions les individus ont-ils recours à l’aide professionnelle, et comment se détermine leur niveau de consommation ? Comment les producteurs d’aide familiale et professionnelle s’adaptent-t-ils aux contraintes de production qui leur sont propres ? Les quatre chapitres de cette thèse étudient empiriquement ces questions dans le contexte français. Mobilisant le cadre micro-économique et les outils économétriques, ils s’appuient sur des données d’enquête, des données administratives et des fichiers de gestion d’un service d’aide à domicile. Le premier chapitre porte sur l’aide apportée par les enfants à un parent âgé dépendant. Le deuxième chapitre étudie l’élasticité-prix de la demande d’aide formelle. Le troisième chapitre analyse comment le financement public de la demande et la régulation de l’offre affectent la décision de consommer de l’aide professionnelle. Le quatrième chapitre s’intéresse enfin aux coûts de transport des services d’aide professionnelle, comme contrainte de production pesant sur l’organisation de l’offre. Les résultats montrent que la demande d’aide est relativement peu sensible au prix de l’aide professionnelle, tandis que la régulation de l’offre affecte plus notablement les configurations d’aide
In a context of population ageing, the demand for long-term care is rising. While relatives remain the major source of care provision for disabled elderly, most OECD countries tend to foster the use of professional care, also called formal care, when individuals live at home. This thesis studies the determinants of home care arrangements for the disabled elderly in the context of France. What are the determinants of formal care consumption, at both the extensive and intensive margins? How do formal and informal care providers adjust to their provision constraints? The four chapters present original empirical evidence on these questions in the French context. They build on micro-econometric frameworks and use national survey data, administrative data or management files from a professional provider. The first Chapter studies the care provided by children to a disabled elderly parent. The second Chapter estimates the price-elasticity of the demand for formal care. The third Chapter analyzes how the decision to consume formal care is affected by the generosity of the public financing and the regulation of home care providers. The fourth Chapter focuses on the travel costs borne by home-care providers and their effect on the home care provision. The demand for formal care is found to be fairly little sensitive to its price, while the regulation of the supply is more likely to affect care arrangements
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Gendera, Sandra Social Policy Research Centre Faculty of Arts &amp Social Sciences UNSW. "Tansnational Care Space Zentraleuropa. Arbeits- und Lebensbedingungen von irregulär beschäftigten Migrantinnen in der häuslichen Pflege." Awarded by:Universit??t Wien. Fakult??t f??r Sozialwissenschaften, 2007. http://handle.unsw.edu.au/1959.4/39281.

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32

Washington, Karla Thomasson Parker-Oliver Debra. "Psychosocial influences on total pain management by informal hospice caregivers." Diss., Columbia, Mo. : University of Missouri--Columbia, 2009. http://hdl.handle.net/10355/6764.

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Title from PDF of title page (University of Missouri--Columbia, viewed on March 30, 2010). The entire thesis text is included in the research.pdf file; the official abstract appears in the short.pdf file; a non-technical public abstract appears in the public.pdf file. Dissertation advisor: Dr. Debra Parker Oliver. Vita. Includes bibliographical references.
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McNally, Lisa. "The psychosocial and physical effects of respite care on informal, spousal caregivers." Thesis, University College London (University of London), 2008. http://discovery.ucl.ac.uk/1445234/.

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The impact of caring for a chronically ill relative or friend is well documented. Adverse effects have been reported on both physical and psychological well-being. Respite care is a principle form of intervention aimed at alleviating the impact and burden of the caregiving role. However, little is known about the exact nature and stability of its effects on carers' well-being. This study utilised a sample of 112 spousal carers to examine the short- term effects of a single episode of residential respite care on carers' self-reported well-being, salivary Cortisol and care recipients' level of dependency. Concurrent comparisons were made between groups of carers receiving and not in receipt of respite. Respite care had a significant and positive effect on carers' self reported well-being, but the stability of these effects after the respite period had ended depended on the outcome employed. It was also found that respite had a more positive impact upon carers when they were able to increase their social activity during the respite period, although the findings also suggested that respite provision itself did not necessarily affect social activity to any significant degree. The effects of respite on salivary Cortisol levels directly contrasted at times with the effects on self-reported well-being. Changes in care recipients' level of dependency were found to impact immediately and significantly upon carers' well-being, regardless of whether or not respite care had been provided. Finally, the study included the development of a respite evaluation scale that had a clear factor structure, good internal reliability and some predictive validity. This scale may prove useful in future studies of respite care.
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Abbott, Katherine Harris. "BLENDING RESOURCES: INFORMAL NETWORKS AND HEALTH CARE UTILIZATION BY FRAIL MALE VETERANS." online version, 2005. http://rave.ohiolink.edu/etdc/view?acc%5Fnum=case1118329438.

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Ray, Maureen Georgina. "Continuity and change : sustaining long-term marriage relationships in the context of emerging chronic illness and disability." Thesis, Keele University, 2000. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.325863.

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36

Smith, Paula Caroline. "Family caregivers in palliative care : perception of their role and sources of support." Thesis, University of Southampton, 2000. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.340333.

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37

Hutchinson, Sarah J. "Informal carers' attitudes to pensions and retirement savings." Thesis, University of Oxford, 2012. http://ora.ox.ac.uk/objects/uuid:0c41358b-3c83-4f65-9ce6-53f7cc5f370e.

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Concerns about population ageing have been central to reforms of pensions policy and social care policy in the UK over recent decades. However, policy responses to these social problems are in tension, as individuals have been expected to take greater responsibility for both pension saving and provision of care, even when care involves a reduction in earnings and savings. While the pension system protects carers’ state pensions, little attention has been paid to their non-state pensions. This thesis therefore explores the attitudes and beliefs carers hold regarding pensions, and the effect of caring on pensions planning, particularly planning a non-state pension. It focuses on the assumptions made about agency and decision-making contained within social policy. Semi-structured interviews were held with those aged 35-64 who were providing 20 hours of care or more a week in the Thames Valley and Greater London. Almost all of the carers reported disruption to their private pension savings as their employment was impacted by caring. Few felt able to make a choice regarding either caring or employment. Caring also affected the importance many attached to saving, although there was no uniform effect on decision-making. Some carers became more reflexive, attempting to take more control in response to the uncertainty in their lives; others felt powerless due to this uncertainty and limited financial resources. The study provided support for the theory of an ethic of care, which suggests individuals make decisions based on relationships rather than calculations of expected outcomes. The findings challenge the assumptions made in pensions policy. Carers were classed in four categories of approach to pensions savings: reflexive planners, non-reflexive planners, reflexive non-planners and non-reflexive non-planners. A range of financial and social resources corresponding to Bourdieu’s habitus and economic and cultural capital was required for carers to act as reflexive planners.
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Plange-Kaye, Elizaebth. "Caregivers' Burden| A Phenomenological Study of the Lived Experiences of Informal Caregivers." Thesis, University of Phoenix, 2018. http://pqdtopen.proquest.com/#viewpdf?dispub=10744463.

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ABSTRACT The current increase in the population of older adults has created a high demand for more informal caregivers. Informal caregivers complain of many problems in providing care including psychological stresses and anxieties, as well as physical, emotional, financial, and other social burdens. The purpose of this phenomenological study was to understand and describe the essence of the lived experiences of informal caregivers. The study was also intended to make health professionals and policy makers aware of such problems. The study adopted a qualitative methodology and a hermeneutical phenomenological design. Purposeful sampling was used in selecting participants with informal caregiving experience. Eleven informal caregivers were interviewed via telephone for data collection. Data was analyzed using Nvivo 11 for the identification and description of patterns and themes from the perspectives of participants. Eight themes that emerged from data analysis were: (a) Gender, many females engaging in caregiving, (b) Caregivers feeling stressful, (c) Love played a crucial role in caregiving, (d) Need for training for caregivers, (e) Being cared for by loved family members, (f) Impacts on job performance, (g) Living arrangements between caregiver and care receiver, and (h) Lack of support from family, community or state agencies. The conclusions focused on the need for support to informal caregivers such as caregiver training, adult day care services, care leave or respite care, increased access to services, care payments, and expansion in the informal caregiver workforce.

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39

Robson, Jane. "The social construction of gender in informal care : a discourse analytic approach to investigating community care practitioners' talk." Thesis, Abertay University, 2006. https://rke.abertay.ac.uk/en/studentTheses/94a91514-6db2-4905-becf-f496b29ed04e.

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The world of informal care has become a fruitful ground for investigation particularly in relation to establishing the contextual variables of the population of carers and the recipients of care. Research has highlighted that significantly more women than men are engaged in the informal delivery of physical and personal care. A common assertion is that caring is seen predominantly as women’s work and that much of the decision making in community care is based upon such assumptions. Many empirical studies in the field of informal care rely on traditional approaches, which confine the focus of study to uncovering such assumptions and in so doing adopt a realistic perspective on responses. However, such studies prove problematic in that they treat language as a transparent and neutral medium for transmitting information and fail to acknowledge that responses are situationally specific, variable and deployed for particular purposes. Instead this thesis investigates the range of discourses that formal service providers use when talking about informal caregivers. It demonstrates how these discourses attribute a range of characteristics to informal care, which serves to pathologise it as a gendered activity. Six social care managers and six district nurses were interviewed to discuss the nature of informal care and the method of discursive psychology was used, which draws on the tradition of conversation analysis as well as Bakhtinian and Foucauldian ideas. Instead of viewing language as a transparent medium, this study sees the interplay between language and social processes and demonstrates how it both reflects and shapes informal care. This study reveals the range of cultural, historical and professional resources drawn upon to characterise and therefore constitute informal caregiving. It demonstrates how the informants produce versions of informal care, which draws heavily on a prior carer identity. The research reveals among other things how informal care by women is constructed as normative and informal care delivered by men as potentially deviant. The research offers a fresh insight into the social construction of gender within social institutions and makes an important contribution to the existing corpus in gender studies. In addition the findings have important implications for policy and practice in informal care and significant issues have relevance to social work, nurse education and continuing professional development.
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Mitchell, Annette Kathy Social Sciences &amp International Studies Faculty of Arts &amp Social Sciences UNSW. "Informal and formal caring strategies of female carers in two CALD communities." Publisher:University of New South Wales. Social Sciences & International Studies, 2008. http://handle.unsw.edu.au/1959.4/41448.

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This study, completed in 2008, aims to address gaps in the literature on caring concerning the reluctance of CALD communities in Australia to use formal care. It hypothesises that broader cultural considerations, rather than merely language barriers and lack of information, are responsible for the preference of CALD communities for informal care. The literature on caring, mediated by certain aspects of Bourdieu??s habitus, is employed as a conceptual framework to analyse the informal and formal strategies employed by carers from the Italian and Greek speaking communities. The study concludes that habitus, informed by cultural factors, influences both the means of access to formal care and the type of formal care acceptable to these communities but differs between communities and between generations within each community. However,second and third order influences can lead to modification of habitus and caring strategies
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Thompson, Alice. "Putting 'accommodating' families in the picture : housing, informal care and secondary student homelessness /." [St. Lucia, Qld.], 2006. http://www.library.uq.edu.au/pdfserve.php?image=thesisabs/absthe19826.pdf.

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42

Johnson, Anthony William. "The use of informal interviews in the study of 'care' in family life." Thesis, University of Nottingham, 1993. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.334797.

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43

Kankeu, Tchewonpi Hyacinthe. "Four essays on the economics of informal payments for health care in Africa." Thesis, Aix-Marseille, 2016. http://www.theses.fr/2016AIXM2021.

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La «petite corruption» est un élément important de la relation entre personnels de santé et patients dans les contextes propices aux actes de corruption. Ce phénomène bien étudié en Europe centrale et orientale sous le nom de «paiements informels» (PIs), est peu documenté en Afrique. Pour contribuer à combler cette lacune, cette thèse propose une série d'analyses sur certains aspects clés de ce problème dans le contexte africain. Dans le chapitre 1, nous montrons que les PIs sont concentrés sur les plus pauvres. Ils sont plus susceptibles d’avoir fait face à l'absence de médicaments, à l'absentéisme des médecins et à des longs temps d'attente dans leur hôpital public local, ce qui accroît la probabilité d'encourir des frais non officiels. Une analyse plus approfondie de l'influence des facteurs d'offre dans le chapitre 2 confirme que les longs temps d'attente, la gestion du personnel de santé (par exemple, le recours à la délégation de tâches) et la perception des personnels vis-à-vis de leur revenu jouent un rôle crucial. Le chapitre 3 met en évidence l’existence d’effets de pairs dans la survenue des PIs lors de la consultation, l’effet étant plus important chez les plus pauvres. Enfin, avec un modèle théorique dans le chapitre 4, nous montrons qu’à l'équilibre, les PIs sont plus élevés en salariat pur qu’avec une rémunération basée sur la production. Aussi, une augmentation du paiement unitaire dans ce dernier système fait baisser les PIs, alors qu'une augmentation du salaire a un effet contraire. Un système mixte (salaire + rémunération à la production) semble être approprié pour assurer la participation des médecins et les inciter à réduire la recherche de rente
« Petty corruption » is an important feature of the relationship between health workers and patients in settings that allow corrupt acts to happen. It has been well studied in Central and Eastern Europe under the term « informal payments » (IPs), but little has been done in Africa. To contribute in filling this gap in the literature, this thesis proposes a series of analyses to better understand some key aspects of this issue in the African context. In chapter 1, we show that the occurrence of IPs is concentrated on the poorest individuals. They are more likely to report having faced the lack of medicines, absenteeism of doctors and long waiting times in their local hospital, and these factors significantly increase the probability of incurring unofficial fees. In chapter 2, a deeper analysis of the influence of supply factors confirms that long waiting times, the management of the health workforce (e.g. using task shifting) and health workers’ perception vis-à-vis their earnings play a crucial role. In chapter 3, we highlight the existence of peer effects in the occurrence of IPs during consultation for HIV care, with a higher effect for the poorest patients. Finally, with a theoretical model in chapter 4, we show that at the equilibrium, the level of IPs is higher when the physician is paid by salary compared to output-based remuneration. Also, an increase of the unit payment in the later system leads to a reduction of IPs, while an increase of salary has the contrary effect. A blended remuneration (mix of salary and output-based remuneration) appears to be appropriate to both ensure the participation of physicians and introduce incentives to reduce rent-seeking
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Cruz, Rute Carla Antunes. "Cuidados continuados em Portugal : uma avaliação da sua integração no sistema de saúde português." Master's thesis, Instituto Superior de Economia e Gestão, 2016. http://hdl.handle.net/10400.5/13095.

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Mestrado em Economia e Políticas Públicas
A prestação de cuidados continuados tem merecido, nos últimos anos, uma atenção especial por parte dos responsáveis políticos de diferentes países europeus, nomeadamente no que diz respeito à sua sustentabilidade. Os cuidados domiciliários, opção mais económica, quando comparados com outras formas de cuidados, podem desempenhar um papel importante na prossecução desse objetivo. A presente dissertação procura avaliar se a Rede Nacional de Cuidados Continuados Integrados promove as condições necessárias para que os utentes possam ser tratados no seu domicílio. Questionaram-se 35 responsáveis pela gestão técnica das Unidades de Internamento, de modo a recolher a sua opinião sobre vários aspetos da Rede, entre os quais, os cuidados domiciliários (formais e informais), o financiamento e a articulação e integração com os restantes cuidados de saúde. Os cuidados domiciliários não têm tido apoio suficiente e a disponibilidade dos cuidadores informais para cuidar é pequena. Utentes em lista de espera, juntamente com o prolongamento desnecessário do internamento nas Unidades, revelam-se como ineficiências da Rede. O Governo, através do Plano de Desenvolvimento da RNCCI (2016-2019), reconhece a existência destes problemas, criando condições para o desenvolvimento dos cuidados domiciliários, constituindo um contributo importante para a contenção de custos do sistema.
The provision of long-term care has received, in recent years, a special attention from policy-makers from different European countries, particularly in regard to its sustainability. Home care, the most economical option, when compared to other forms of care, can play an important role in pursuing this goal. This thesis aims to assess whether the National Network of Long-Term Care promotes the necessary conditions so that patients can be treated in their homes. 35 responsible for the technical management of Long-term Care Units were surveyed, in order to seek their views about various aspects of the Network, including, home care (formal and informal), financing and articulation and integration with the remaining types of health care. Home care has not had enough support and the availability of informal caregivers is not much. The patients in the waiting lists, along with the unnecessary prolongation of hospitalization in the Units, are revealed as Network inefficiencies. The Government, through the RNCCI Development Plan (2016-2019), recognizes the existence of these problems, creating conditions for the development of home care, as an important contribution to the containment of system costs.
info:eu-repo/semantics/publishedVersion
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45

Meier, Robert. "Perceptions of Faculty-Student Informal Mentoring Relationships." Digital Commons @ East Tennessee State University, 2020. https://dc.etsu.edu/etd/3761.

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Perceptions of Faculty-Student Informal Mentoring Relationship This qualitative study examined the informal mentoring relationships between faculty and students at two small, faith-based, liberal arts campuses. Perceptions of both faculty and students’ views of informal mentoring were studied. The research questions further explored the factors that encouraged or discouraged faculty-student informal mentoring as well as the role of on-campus faculty housing. Student participants were selected after completing an online survey regarding their perception of connection with professors at the campus location. Faculty participants were selected after completing an online survey regarding their perception of how much time they spent with students outside the classroom. From these responses, nine students and nine faculty members were selected and agreed to participate in semi-structured interviews. Recognizing the power of story to communicate rich biographical moments, a narrative inquiry approach to data collection and data analysis was utilized and triangulated with observation, field notes, and historical document review. Interviews were analyzed using three cycles of coding that generated the resulting themes. Eight themes were identified from the data and include intentionality towards care and concern, the importance of relationship building, investment of time, size of campus, spaces that contribute to informal mentoring, the role of on-campus faculty housing, blurred lines, and hindrances to connection. Additionally, the experience of faith-based student development, student-faculty relationships on faith-based campuses, the notion of vocational calling, and impacts on informal mentoring are explored.
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Morgan, Fiona. "An analysis of the treatment of informal care as a social risk in England." Thesis, University of Bath, 2015. https://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.681037.

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The majority of dependent older people rely on informal care to meet their long-term care needs. The activity of care-giving can place informal carers at risk of experiencing financial poverty and welfare loss, including poor health, injuries and time poverty. This thesis argues that states should recognise and treat the informal care of older people as a social risk by providing informal carers and the older people they care for with adequate statutory protection against the risks which they face. A qualitative case study was conducted to analyse the extent to which care policies in England protect informal carers and the older people they care for against care-related risks. A policy simulation technique, the model care relationship matrix, was employed as a data collection and analysis tool. The matrices incorporated thirteen care relationship types and all of the care policy mechanisms in England, including cash benefits, care services, and employment-related support. Government documents and semi-structured interviews with practitioners and managers from a range of public sector and third sector agencies were used to determine the statutory support each care relationship would be entitled to receive. The way in which institutional structures, processes and actors within the policy environment can affect the level of statutory protection provided to care relationships was also analysed. The study’s findings reveal that the English state recognises but does not treat informal care as a social risk. The state’s treatment of informal care-givers and their care-related risks is inconsistent, unpredictable and inadequate. Some informal care-givers have access to inadequate levels of statutory protection, while the risks experienced by other groups of informal carers are left unprotected and privatised. Moreover the policy environment, itself, is revealed to produce risks due to being complex, fragmented, and adversarial in nature. Overall informal carers are found to occupy a marginalised and devalued position in the English care policy system.
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Jegermalm, Magnus. "Carers in the Welfare State : On Informal Care and Support for Carers in Sweden." Doctoral thesis, Stockholm University, Department of Social Work, 2005. http://urn.kb.se/resolve?urn=urn:nbn:se:su:diva-642.

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The general aim of this dissertation is to describe and analyse patterns of informal care and support for carers in Sweden. One specific aim is to study patterns of informal care from a broad population perspective in terms of types of care and types of carer. A typology of four different care categories based on what carers do revealed that women were much more likely than men to be involved at the ‘heavy end’ of caring, i.e. providing personal care in combination with a variety of other caring tasks. Men were more likely than women to provide some kind of practical help (Study I).

Another aim is to investigate which support services are received by which types of informal caregiver. Relatively few informal caregivers in any care category were found to be receiving any kind of support from municipalities or voluntary organizations, for example training or financial assistance (Study II).

The same study also examines which kinds of help care recipients receive in addition to that provided by informal carers. It appears that people in receipt of personal care from an informal caregiver quite often also receive help from the public care system, in this case mostly municipal services. However, the majority of those receiving personal, informal care did not receive any help from the public care system or from voluntary organizations or for-profit agencies (Study II).

The empirical material in studies I and II comprises survey data from telephone interviews with a random sample of residents in the County of Stockholm aged between 18 and 84.

In a number of countries there is a growing interest among social scientists and social policymakers in examining the types of support services that might be needed by people who provide informal care for older people and others. A further aim of the present dissertation is therefore to describe and analyse the carer support that is provided by municipalities and voluntary organizations in Sweden. The dissertation examines whether this support is aimed directly or indirectly at caregivers and discusses whether the Swedish government’s special financial investment in help for carers actually led to any changes in the support provided by municipalities and voluntary organisations. The main types of carer support offered by the municipalities were payment for care-giving, relief services and day care. The chief forms of carer support provided by the voluntary organizations were support groups, training groups, and a number of services aimed primarily at the elderly care recipients (Study III).

Patterns of change in municipal carer support could be discerned fairly soon. The Swedish government’s special allocation to municipalities and voluntary organisations appears to have led to an increase in the number of municipalities providing direct support for carers, such as training, information material and professional caregiver consultants. On the other hand, only minor changes could be discerned in the pattern of carer support services provided by the voluntary organizations. This demonstrates stability and the relatively low impact that policy initiatives seem to have on voluntary organizations as providers (Study IV).

In studies III and IV the empirical material consists of survey data from mail questionnaires sent to municipalities and voluntary organizations in the County of Stockholm.

In the fields of social planning and social work there appears to be a need to clarify the aims of support services for informal carers. Should the support be direct or indirect? Should it be used to supplement or substitute caregivers? In this process of reappraisal it will be important to take the needs of both caregivers and care recipients into account when developing existing and new forms of support. How informal caregivers and care recipients interact with the care system as a whole is undeniably a fertile field for further research.

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48

Carlisle, Caroline. "Staying on : the informal carers' experience of living with HIV and AIDS." Thesis, University of Liverpool, 1998. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.243206.

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49

Godwin, Jennifer Woodard. "Elderly parents' expectations and realizations of informal care from adult children an economic perspective /." College Park, Md. : University of Maryland, 2004. http://hdl.handle.net/1903/1400.

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Thesis (Ph. D.) -- University of Maryland, College Park, 2004.
Thesis research directed by: Economics. Title from t.p. of PDF. Includes bibliographical references. Published by UMI Dissertation Services, Ann Arbor, Mich. Also available in paper.
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50

Chambers, Val. "Helping at home and informal care : an examination of children's contribution to family life." Thesis, University of Northampton, 2003. http://nectar.northampton.ac.uk/2799/.

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Using a questionnaire sample of 980 eleven to sixteen year olds and a small number of interviews, this study explores what young people do to help at home. Research carried out over the last decade has provided considerable insight into the lives of children and young people involved in caring for family members who are ill or who experience disabilities. What is less well understood are the pathways for young people’s involvement into caring and the nature of the links between routine helping out at home and caring for a parent with a serious illness or disability. Young people's involvement in informal care causes concern, as such young people often carry a significant burden of both work and responsibility. This study seeks to identify the extent to which young people may be involved in different kinds of responsibilities and to assess the impact this has on their lives. The theoretical foundation for the research draws upon current social theory, focusing especially on the sociology of childhood and the sociology of social problems. The data gathered indicates that the family situation has little effect upon patterns of routine helping out, but significantly influences whether or not young people will become involved in greater levels of home responsibility. The key findings suggest that young people assume responsibility for others in a variety of circumstances and that it is useful to use the concept of a home responsibility continuum when considering young people’s helping behaviour in the home
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