Dissertations / Theses: 'Illness experience'

1

Gwyn, Richard. "The voicing of illness : narrative and metaphor in accounts of illness experience." Thesis, Cardiff University, 1996. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.321364.

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Wasserkrug, Sue 1960. "The experience of asthma: An illness ethnography." Thesis, The University of Arizona, 1988. http://hdl.handle.net/10150/291854.

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Thirty patients at a Tucson respiratory clinic were questioned to elicit data to yield an ethnography of asthma. The methodology involved one structured, open-ended interview per patient. The patients ranged in age from 24 to 82; a range of demographic, sociocultural, and medical variables were represented. Two themes, control and limitation, surfaced as the key issues in the construction of meaning attached to the experience of asthma. Asthmatics feel a loss of control over their lives, which they see as being shaped--to some degree--by the limitations that asthma incurs. The sensation of losing control causes fear or panic, a common emotion among asthmatics, according to informants. The need to take medication on a daily basis is seen as an important symbol in the development of patients' conceptions of their illnesses. The influence of dominant cultural values on the expression of asthma is discussed, and an understanding of the effect of asthma on the daily lives of Americans is offered.

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Chircop, Andrea Maria Justine. "The experience of women living with environmental illness." Thesis, National Library of Canada = Bibliothèque nationale du Canada, 1997. http://www.collectionscanada.ca/obj/s4/f2/dsk3/ftp04/mq24816.pdf.

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Sinnott, Patricia A. "Pharmacists' illness experience and the pharmacist-patient relationship." Thesis, National Library of Canada = Bibliothèque nationale du Canada, 1997. http://www.collectionscanada.ca/obj/s4/f2/dsk2/ftp01/MQ29338.pdf.

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5

MacNeil, Amanda Marie. "Understanding the Illness Experience of Veterans With Dementia." Cleveland State University / OhioLINK, 2021. http://rave.ohiolink.edu/etdc/view?acc_num=csu1619788545141776.

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6

Dunn, Penelope Claire. "Women’s perceptions of their illness experience with myocardial infarction." Thesis, University of British Columbia, 1985. http://hdl.handle.net/2429/24414.

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This study was designed to elicit women's perceptions of their illness experience with myocardial infarction for the purpose of exploring and describing the nature and meaning of this illness experience and its impact on everyday life. The phenomenological method, a type of qualitative research, was used to direct the study. The data were compiled through a series of semi-structured intensive interviews with eight women. The women were 36 to 71 years of age. Six of the women were married and living with their husbands. The women had been at home following discharge from hospital for 2 to 14 weeks. Data collection and data analysis proceeded simultaneously and data collection ceased once consistent themes were identified and validated and the data collected were sufficiently rich and in-depth. Women explain their illness experience with myocardial infarction as a loss phenomenon and the central and dominant loss within the heart attack experience for women is loss of predictability. Women's need for information following myocardial infarction is not met and lack of energy is a prominent feature in everyday life after a heart attack. Traditional sex role socialization sets the stage for potential problems in women's cardiac rehabilitation, especially in relation to support and role enactment. Physical rehabilitation is not a selected strategy to gain control over their loss experience for women with myocardial infarction. The findings and conclusions of this study suggest a number of implications for nursing practice. There is clear direction for family-centered nursing care in the rehabilitation of women with myocardial infarction to address potential problems in relation to support and role enactment. This study reinforces the value of using the concepts of loss and grief to care for patients with myocardial infarction. Also, this study indicates that, in planning nursing care for women with myocardial infarction, nurses should focus on Interventions to increase support, to meet patient and family educational needs, and to help women to anticipate normal physical and psychological responses to myocardial infarction. This study also has specific implications for the development of structured cardiac rehabilitation programmes addressing the special needs of women. In relation to nursing education, nurses must be prepared to assess, teach, and counsel patients with myocardial infarction and their families. Most importantly, this study directs nursing educators to provide course work in women's health issues to sensitize nurses to this field of study and to equip nurses with the understanding necessary to facilitate changes in women's health care. Implications for future research include further exploration of information needs, support, and strategies for control in relation to women with myocardial infarction.
Applied Science, Faculty of
Nursing, School of
Graduate

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7

Börjesson, Karin. "Mental illness : relation to childbirth and experience of motherhood /." Stockholm, 2005. http://diss.kib.ki.se/2005/91-7140-521-6/.

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Docherty, Deborah. "The narrative approach to understanding the chronic illness experience /." Thesis, McGill University, 2000. http://digitool.Library.McGill.CA:80/R/?func=dbin-jump-full&object_id=33459.

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This small exploratory study considers the use of the narrative approach in eliciting and understanding illness stories. The four participants, (two male and two female) range in age from 29 years to 74 years. They live with a variety of chronic illnesses (heart disease, Multiple Sclerosis, and Pick's disease). Narrative analysis of the four semi-structured transcribed interviews revealed four dominant themes: the emotional reaction to diagnosis; the role of stress in aggravating and coping with chronic illness; a view of death; the meaning attributed to illness.
A postmodern perspective is employed to explicate the social construction of the notion of chronic illness. A critique of the medical discourse regarding chronic health challenges is offered.
This study invites social workers to consider their position of power and privilege as they learn new ways of listening to illness narratives.

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Kendall, Marilyn. "Lost in space : service users' experience of mental illness." Thesis, Durham University, 2000. http://etheses.dur.ac.uk/1524/.

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Rashid, M. "Experience of diagnostics and medical treatment of illness Dieulafoy." Thesis, Sumy State University, 2014. http://essuir.sumdu.edu.ua/handle/123456789/36587.

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A syndrome Dieulafoy from literary data is the massive arterial bleeding caused by the break of aneurism of small artery under mucous layer of stomach wall. The clinical picture of this syndrome are not practically described. The choice of method of medical treatment remains a difficult problem. Taking into account all afore-mentioned, study of clinical manifestation and possibilities of endoscopic investigation in diagnostics of this disease allows to lower frequency of unknown sources of bleeding and improve his diagnostics. All afore-mentioned is determined by actuality of select theme. When you are citing the document, use the following link http://essuir.sumdu.edu.ua/handle/123456789/36587

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Butler, Lisa. "Talking about illness : a qualitative study examining how young people with learning disabilities experience and understand illness." Thesis, University of Surrey, 2001. http://epubs.surrey.ac.uk/2142/.

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Rechner, Mona Gale. "Adolescents with cancer : their experience living with a chronic illness." Thesis, University of British Columbia, 1989. http://hdl.handle.net/2429/27341.

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This phenomenologic study was designed to understand and describe the experiences of adolescents with cancer living with a chronic illness. The study was conducted with a sample of five adolescents, aged thirteen to seventeen who had received or were receiving treatments for cancer. Data were collected during audio-taped interviews and were analyzed for common themes. The findings revealed that the adolescents' overall goal was to get on with life. The teenagers responded to cancer by experiencing the illness and determining that they were normal. They developed a philosophy of being positive and redefined their social world in order to get on with life. Understanding the manner in which adolescents with cancer experience living with this illness may enable health care practitioners to provide appropriate care to the teenager with cancer. Implications for practice, research and education are discussed.
Applied Science, Faculty of
Nursing, School of
Graduate

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Lee, Nong Foon Ruth. "Illness experience of Chinese immigrants with chronic fatigue and weakness." Thesis, National Library of Canada = Bibliothèque nationale du Canada, 2000. http://www.collectionscanada.ca/obj/s4/f2/dsk1/tape4/PQDD_0026/NQ49957.pdf.

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Kinnvall, Johanna. "How does high school teachers experience students with mental illness?" Thesis, Linnéuniversitetet, Institutionen för psykologi (PSY), 2015. http://urn.kb.se/resolve?urn=urn:nbn:se:lnu:diva-39598.

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Syftet med denna uppsats var att undersöka hur lärare kunde identifiera och stötta elever med psykiska störnignar, med en särskild tonvikt på affektiva störningar. Studien utgjordes av semi – strukturerade intervjuer och innefattade fem lärare från gymnasium i södra Sverige samt Mellansverige. Intervjuerna analyserades utifrån en induktiv tematisk analys. Under analysen framkom tre teman; Att se eleverna, Förhållande till eleverna och Åtgärder. Dessa visade att lärare kunde identifiera elever som mår dåligt till viss mån, men att stora skolor kunde försvåra denna process. Studien visade även att huvudansvaret för en elev som mår dåligt ligger på mentorerna, samt att det finns en risk att dessa mentorer tog på sig en psykologroll. Slutligen visade resultatet att de åtgärder som görs för elever med psykisk ohälsa inbegriper att ändra examinationsform för att underlätta för eleven samt att hjälpa eleven till professionell hjälp, ofta i form av elevvårdsteam. Slutsatsen av studien visade att det behövs mer resurser inom elevhälsovården för att lärarna ska kunna få hjälp och stöd att handskas med psykiskt sköra elever, samt att mindre skolor som satsar på elevhälsan är det optimala för elever med psykiska störningar; dock kräver det senare ytterligare forskning.

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Blair, A. J. "Locating distress : Social class and the contextualisation of illness experience." Thesis, University of Sussex, 1986. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.374452.

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Phillips, Louise. "A language of its own? : approaches to the body and mental illness." Thesis, University of Kent, 2003. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.270817.

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17

DeHoff, Susan L. "Distinguishing mystical religious experience from psychotic experience in the Presbyterian Church." Thesis, Boston University, 2012. https://hdl.handle.net/2144/23024.

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Thesis (Ph.D.)--Boston University
Historically, mystical experiences have been interpreted variously within psychology and theology. This dissertation explores theological and psychological interpretations of these experiences among professionals in the Presbyterian Church (U.S.A.), putting their interpretations in conversation with the theologies of John Calvin, North American Calvinist traditions, and a range of psychological theories. The purpose is to draw theoretical and practical constructs from this research to guide pastors and counselors in responding to persons who report intense religious experiences, such as hearing the voice of God and seeing a vision of Christ. Some psychologists interpret such experiences as pathological, some as psychologically beneficial. Calvinists, focusing on the intellectual dimension of religion, have traditionally been wary of mystical experience. A more thorough reading of Calvin's theology shows his affirmation of mystica unio . In 18th century colonial America, Jonathan Edwards also accepted mystical experiences, but subjected their authenticity and meaning to rational, religious scrutiny. To explore understandings of mystical religious experience in the current Presbyterian Church (U.S.A.), twenty structured interviews were conducted with pastors and pastoral counselors in the Boston Presbytery. Results show that sources common to theologically trained professionals can be useful in distinguishing mystical religious experience from psychotic episodes. Using Scripture, Presbyterian beliefs, personal experience, and awareness of cultural religious differences, 70% of participants distinguished experiences such as hearing God's voice and seeing visions of Christ from mental illness, and 90% distinguished experiences such as sensing God's inner presence during prayer from mental illness. Using the same sources, participants identified some experiences with religious language and symbols as symptoms of mental illness rather than mystical religious experience. Presbyterian pastors and counselors concurred that many religious experiences can be interpreted within Reformed theology. The study revealed the need for more thorough education of pastors and counselors in the psychology of religious experience and theological interpretations of such experiences.
2042-07-17

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18

Harriet, Susan. "The shared experience of chronic illness : a comparison study of adolescents." Thesis, National Library of Canada = Bibliothèque nationale du Canada, 2000. http://www.collectionscanada.ca/obj/s4/f2/dsk2/ftp01/MQ47877.pdf.

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Hefferon, Kate. "Understanding the experience of posttraumatic growth following life threatening physical illness." Thesis, University of Strathclyde, 2008. http://oleg.lib.strath.ac.uk:80/R/?func=dbin-jump-full&object_id=21974.

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Diverging from the pathological focus of 1950's psychology, positive psychologists have concentrated on the potential for people to grow and enhance their quality of life following adversity, a phenomenon coined as "posttraumatic growth" (PTG) (Tedeschi & Calhoun, 1996). Although there has been significant advancement in PTG research, there are limitations in the current models, theories and methods of assessment. Therefore, the aim of this thesis was to attain an in-depth insight into the nature of PTG following breast cancer diagnosis using interpretative phenomenological analysis. The participants were ten female breast cancer survivors who were self selected as having experienced posttraumatic growth, as well as participated in an exercise programme during their cancer treatment (Mutrie et al., 2007). They participated in one open-ended interview at their one year follow-up, the primary focus being to understand their experience of PTG. The analyses yielded seven main themes: the body, exercise class, existential re-evaluation, self-identity, philosophy change, society and narrative from giowth-to-growth. Four of these have been extensively reported within the literature, thereby justifying the decision to further analyse the themes of 'narrative from growth-to-growth', 'exercise class' and 'the body' as they contributed the most to the expansion of PTG theory. The results suggest a reconfiguration of the Transformational Model of growth (Tedeschi & Calhoun, 2006) in terms of its proposed temporal sequences of initiation of growth and exclusivity upon rumination. Additionally, two other themes suggest that the facilitation of growth, and certain PTG outcomes, were the result of both the women's participation in an exercise class and a reconnection to their own body; previously these two elements have not been linked. Overall, the thesis provides in-depth and novel additions to the PTG research within illness related trauma. Future research could extend the findings to develop more definitive, links between thought processes, physical activity interventions and the body in the experience of PTG.

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Buggins, Sarah-Louise. "The experience of resilience in older people living with chronic illness." Thesis, University of Hull, 2016. http://hydra.hull.ac.uk/resources/hull:14087.

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This portfolio thesis consists of three parts: a systematic literature review, an empirical paper and a set of appendices. Part one is a systematic literature review which synthesises the published qualitative literature investigating resilience in older people living with chronic illness. The review aims to explore the role that resilience plays in ageing with a chronic physical illness, and how resilience is experienced by this group of people. The synthesis resulted in eight sub-themes subsumed under three super-ordinate themes. Super-ordinate themes are ‘the resilient mindset’, ‘engaging with others’ and ‘continuity in life’. The strength of the empirical evidence is evaluated, and findings are discussed in terms of their implications for future research and clinical practice. Part two is an empirical paper investigating narratives of resilience in older people who are living with a diagnosis of dementia. This qualitative study utilised a narrative approach to collect and analyse stories from eight older people around how they have responded to changes and challenges since receiving their dementia diagnosis. The stories contained a number of phases, and resilience emerged as an on-going process stimulated by people’s sense of identity, agency, connection and positive outlook on life. Clinical and research implications are discussed. Part three consists of a set of appendices which relate to both the systematic literature review and the empirical paper. This also includes a reflective account of the research process and an epistemological statement.

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Berger, Shirley. "An "inside story" : the illness experience of women with breast cancer." Master's thesis, University of Cape Town, 1990. http://hdl.handle.net/11427/8394.

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Bibliography: leaves i-ix.
This study explores the illness experiences of five women with breast cancer. The literature on psychosocial aspects of breast cancer among women is reviewed and limitations noted. A medical anthropological approach to the study of illness and health care is outlined. The importance of investigating women's own accounts and of recognising the social experience of illness and the dynamic nature of responses and understandings is asserted. Two interviews with each woman took place soon after medical diagnosis and follow-up interviews were conducted eight months later with four of the women. Concepts and insights from hermeneutically-oriented medical anthropology have been applied to the interview material. Arthur Kleinman's framework for interpreting 'illness narratives' is used to elucidate the layers of meaning in each woman's story. These include: the meaning of the symptoms, explanations of the disease, the cultural salience of cancer and the significance of the illness within personal and social contexts. The way in which the illness is understood, expressed and managed within the patterns of daily living is discussed. Contact with the professional health care system is one aspect of this process. The study suggests that this approach to understanding women's experiences of breast cancer is both theoretically valuable and clinically applicable.

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Edwards, Emery Rose. "Illness Experience of People with Chronic Pain Resulting from Temporomandibular Disorders." Thesis, The University of Arizona, 2007. http://hdl.handle.net/10150/193257.

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This thesis discusses the illness experience of people living with chronic pain resulting from Temporomandibular disorders (TMD). The literature discusses various aspects of the experience of chronic pain, but there is little research reported specifically on the experience of living with TMD. Using analysis of sufferers' narratives, I discuss common explanatory models and coping strategies. I then present aspects of the bodily experience of TMD as seen in people with comorbid illnesses. The personal or mental aspects of TMD are explored, particularly in terms of fear, anxiety, and hope for the future. Lastly, the broader impacts of TMD are explored through sufferers' relationships with friends and family, and sufferers' ability to function in social contexts. It is concluded that TMD impacts many areas of sufferers' lives, and that the lived experience extends beyond diagnosis and treatment seeking to include the day to day management of TMD pain.

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Lewis, P. "Growing up with cancer: A qualitative study of the impact of cancer on the experience of growing up." Thesis, The University of Sydney, 2012. http://hdl.handle.net/2123/9424.

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Because more young people are surviving cancer than ever before, more young people than ever before are living with the physical, psychological, emotional and social consequences of cancer illness and treatment. They do so during a transitional time of life and much is already known about their experiences of the physical and psychological effects of cancer illness and treatment. Less is known about the social consequences as they are experienced in relationship with other people. This thesis therefore focuses on the social consequences of cancer illness and treatment in young people who have completed their treatment and have returned to their usual social worlds. This thesis has two aims. First, to expand on our current understandings of the experience of young Australians with cancer by focussing on the period of remission and recovery. Second, to determine how young Australians conduct social inte ractions in light of their cancer experience. The thesis will address these aims by answering the research question: “what is the impact of cancer illness and treatment on the experience of growing up?” Methodology and Methods A quota sampling strategy ensured we recruited a balanced sample of women and men and of young people from different diagnostic categories. Participants ranged in age from 16 to 29 years old at the time of their first interview. They ranged from 10 to 22 years old at the time of their diagnosis. I conducted a thematic analysis of 49 interviews collected from 27 participants guided by the theoretical perspective of Symbolic Interactionism. Findings At the time of their cancer illness and treatment, participants became dependent on their families for care. During their period of remission and recovery, older participants sought to regain the independence they had lost or given up during thei r period of illness and treatment while maintaining the! intimac y they had developed with their parents. When treatment allowed, participants re-entered their usual social worlds where they experienced heightened levels of attention from their peers. Participants welcomed some forms of attention while resisting others as they undertook a process of accommodating their cancer experience into their post-cancer sense of self. As their social worlds expanded, participants met new acquaintances and formed new relationships. Participants underwent a difficult process of deciding how to disclose their cancer history to their new acquaintances and of negotiating the place of “cancer” in their new relationships. Discussion The impact of cancer on the process of growing up is evident in relationships with parents, peers, and new acquaintances. However, the impact is different for young people in early adolescence, mid-adolescence, late adolescence, and young adulthood. The diff erence reflects the normal changes in focus on different relationships during these phases of life. In childhood and early adolescence, the focus is on relationships with parents. In middle adolescence the focus shifts to relationships with peers. In late adolescence and young adulthood, the focus shifts to the young person‟s independence and relationships of a romantic and/or sexual nature. Conclusion Findings from this study have practical implications for young people who have had cancer, their parents, peers, and new romantic and/or sexual partners. The challenge for these groups is to accommodate the ongoing effects of cancer illness and treatment into their relationships while young people continue the process of growing up.

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Alwan, Claire. "The experience of osteoarthritis in older adults." Thesis, Open University, 2000. http://oro.open.ac.uk/58011/.

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Aims: This study aims to explore the experience of osteoarthritis (OA) in older adults, drawing on concepts from the literature on chronic illness including social-cognition models (e.g. Self-Regulatory Model) and cognitive concepts (e.g. self-schema). Design and Participants: A qualitative research design and Phenomenological Interpretative Analysis Methodology were used. Sixteen participants were interviewed. Ten were recruited from an orthopaedic surgical waiting list source and six from a GP source: age ranged from 67 to 79 years, and history of osteoarthritis ranged from one to 35 years. Measures: A semi-structured interview schedule was designed and piloted, based on the research literature. Results: Analysis identified the following themes: Demands of OA (pain, impact on activity, and impact on mood); Perceptions ofOA (onset/deterioration, cause, label, seriousness, prognosis); Strategies to manage OA (use of health services, changes in behaviour, psychological strategies, appraisal of strategies); Perception of Self (compared to past/future/others) and Contextual factors (age, co-morbidity, waiting list). Links between themes were reciprocal, and a tentative model ofOA is presented. Implications: A comprehensive model of the experience of chronic illness could provide a framework to guide interventions for direct clinical interventions (e.g. adjustment to chronic illness, pain management, identification of psychological comorbidity) and indirect interventions (e.g. consultancy with other health professionals).

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Breen, Alison. "Experience of mental illness in the context of poverty and service reform." Thesis, Link to the online version, 2006. http://hdl.handle.net/10019/981.

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Fior-Nossek, Felicia Mary. "The Lived Experience of a Family Member Who Suffers from Mental Illness." University of Toledo Health Science Campus / OhioLINK, 2005. http://rave.ohiolink.edu/etdc/view?acc_num=mco1125075263.

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Coates, Rosanne Margaret. "Mental illness, towards an understanding of the experience of treatment and diagnosis." Thesis, National Library of Canada = Bibliothèque nationale du Canada, 2000. http://www.collectionscanada.ca/obj/s4/f2/dsk1/tape4/PQDD_0021/MQ54526.pdf.

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Pearson, Veronica. "Mental illness in the People's Republic : an exploratory study of Chinese experience." Thesis, University of York, 1991. http://etheses.whiterose.ac.uk/4257/.

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Stark, Catherine M. "Caring for someone with HIV related illness : the experience of family carers." Thesis, University of Newcastle Upon Tyne, 1995. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.318181.

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Bridger, Jane Catherine. "An exploration of the illness experience of individuals with chronic kidney disease." Thesis, University of the West of England, Bristol, 2007. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.438782.

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Dumas, Jane. "The Lived Experience of Spirituality for Christians During a Life-threatening Illness." University of Toledo Health Science Campus / OhioLINK, 2004. http://rave.ohiolink.edu/etdc/view?acc_num=mco1107361918.

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Venegas, Maria D. "Concepts, Experience, and Language of Depressive Illness among Rural Women from Honduras." University of Cincinnati / OhioLINK, 2009. http://rave.ohiolink.edu/etdc/view?acc_num=ucin1243360238.

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Win, Win Aye Suphot Dendoung. "Illness experience of HIV positive married women in Peri-Urban Yangon, Myanmar /." Abstract, 2006. http://mulinet3.li.mahidol.ac.th/thesis/2549/cd388/4737923.pdf.

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Zeddies, Andréa McBride. "Chronic illness in context examining sociocultural factors in women's experience of lupus /." Access restricted to users with UT Austin EID, 2001. http://wwwlib.umi.com/cr/utexas/fullcit?p3037033.

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Van, Dyk D. L., and H. Bezuidenhout. "Learning experiences of students during integrated management of childhood illness (IMCI) training." Journal for New Generation Sciences, Vol 11, Issue 2: Central University of Technology, Free State, Bloemfontein, 2013. http://hdl.handle.net/11462/641.

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Published Article
The aim of the study on which this article is based was to reflect on the learning experiences of students during integrated management of childhood illness (IMCI) training in an undergraduate programme. IMCI is a set of guidelines that was established by the World Health Organisation (WHO) for cost-effective quality care for children younger than five to prevent diseases and death (WHO, 2004). Skilled primary healthcare workers are required to provide quality care at first contact with these children. The IMCI package was presented as an integral part of the second-year module that focuses on primary healthcare. In order to improve the quality of health services and refocus the health system on primary health-care (South Africa Department of Health, 2010), students have to demonstrate that they have achieved competence. According to Killen (2000:188), competence is a holistic term and focuses on knowledge, skills and values instead of competencies, which refer to specific capabilities. Primary health-care workers who act competently will integrate foundational IMCI knowledge with skills and values as well as with the ability to verify their decisions (Killen, 2000:188). Aqualitative, exploratory and descriptive research design was used to investigate the IMCI learning experiences. Such experiences are one of the indications whether training has been successful and how it can be improved (Suski, 2004:222). Data was collected by means of nominal-group technique (NGT) interviews with second-year nursing students of the training school who complied with the criteria for inclusion. NGT interviews were used effectively to evaluate clinical interaction, education and training.The findings reflected the different emotions experienced during teaching and learning as having been positive, negative or neutral. The consideration of negative emotions will assist with the improvement of IMCI teaching and learning, but all these findings can be useful for other higher-education institutions that present or plan to present IMCI training.

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Andresen, Retta. "The experience of recovery from schizophrenia development of a definition, model and measure of recovery /." Access electronically, 2007. http://www.library.uow.edu.au/adt-NWU/public/adt-NWU20080703.161126/index.html.

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Grizzle, Jonhenry Cordell. "The influence of contagion information and behavior on older adolescents' perceptions of peers with chronic illness." Texas A&M University, 2004. http://hdl.handle.net/1969.1/2798.

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To explore attributions about chronically ill peers, 545 older adolescents ages 17-26 read a short vignette describing a brief social encounter with a hypothetical peer suffering from a medical condition, and then responded to a series of questionnaires to assess their perceptions of that peer. Nine measures intended to assess perceptions of ill peers were developed and empirically validated. Test-retest reliability and internal consistency was moderate to good for all measures. Component structure of the Peer Acceptance Questionnaire (PAQ), Peer Acceptance Questionnaire ?? 3rd Person (PAQ-F), and Perceived Similarity Questionnaire (PSQ) were also evaluated. Principal components analysis yielded a 2-factor structure of Openness and Egalitarianism for both the PAQ and PAQ-F. A 6-factor structure of (a) Familial/Spiritual, (b) General Health, (c) Social, (d) Behavioral, (e) Physical, and (f) Educational was suggested for the PSQ. Results indicated an interaction between illness type and behavior on acceptance ratings, such that behavior potentiated the effect of illness type on acceptance. In addition, vignette characters with contagious illnesses were rated less favorably than those with noncontagious illnesses, and vignette characters displaying typical behavior were rated more favorably than either withdrawn or aggressive vignette characters. Illness-specific knowledge, ratings of perceived similarity, and ratings of assigned blame predicted acceptance ratings, whereas illness-specific knowledge and acceptance ratings predicted ratings of assigned blame. Finally, significant differences were observed between first- and third-person ratings of both acceptance and assigned blame.

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Griffith, Catherine A. "Frail older adults' experience of participating in clinical trials." Thesis, Boston College, 2015. http://hdl.handle.net/2345/bc-ir:104369.

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Thesis advisor: Callista L. Roy
Purpose: The purpose of this research was to address the gap in the literature related to frail older adults' experience of participating in clinical trials. Background: Frail older adults are generally underrepresented in the population of research volunteers from which evidence-based guidelines are derived. To improve care for frail older adults, research must be expanded to specifically target this population. Most of the users of healthcare today are greater than 65 years old, use more health care services than any other age cohort and suffer from coexisting illnesses for which they take several prescribed medications. Since the number of elders is increasing within the general population, it is important to reach a more thorough understanding of frail older adults' experience. Acquiring a better understanding of their experience will give the investigator more insight into barriers of recruitment, retention, and factors affecting elders' decision to participate in research. Method: Using a qualitative descriptive approach involving semi-structured interviews, a cohort of participants age 65 and older was asked about their experience of participating in research studies. Data analysis used an interpretive paradigm involving the methods of Miles, Huberman, and Saldana (2014). Results: Participants identified the main factors influencing their decision to participate as the opinions and encouragement of family members with the strongest influence being a recommendation from their doctor. Participants were varied in the emotions evoked by their participation in the study procedures. The majority of participants stressed how important it was to them to receive feedback in the form of results of studies in which they had participated. The majority of participants stated that receiving feedback or research results was the exception. Conclusions: Data generated from this study related to the experience of frail elder participation in clinical trials will be useful in designing future clinical trials to be more inclusive of this patient population. Keywords: frail elders, research participation, clinical trials, chronic illness, qualitative, multmorbidity
Thesis (PhD) — Boston College, 2015
Submitted to: Boston College. Connell School of Nursing
Discipline: Nursing

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Stols, Gabriël Jacobus. "Paediatric bipolar disorder and the lived experience of parents: a systematic review." Thesis, Nelson Mandela Metropolitan University, 2015. http://hdl.handle.net/10948/6040.

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Many international studies have been conducted on paediatric bipolar disorder, but few research studies have been conducted on parenting a child diagnosed with bipolar disorder, both on an international and national level. The researcher utilised Bronfenbrenner’s Ecological Systems Theory as the theoretical framework in exploring and describing this research field. The study has been conducted by means of a systematic review and all of the articles included in the review examined some aspect of parenting and paediatric bipolar disorder. The articles were systematically assessed, and six themes emerged which include: paediatric bipolar on the rise; the effects of paediatric bipolar disorder, post-paediatric bipolar disorder; managing paediatric bipolar disorder is a family responsibility; foundations for effective parenting; and supporting parents of a paediatric bipolar patient.

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Reed, Jonathan. "The development of a theory of psychological adjustment to multiple sclerosis based on accounts of subjective experience." Thesis, Open University, 1997. http://oro.open.ac.uk/57711/.

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This study explores the process of psychological adjustment to multiple sclerosis. Fourteen participants who were given a definite diagnosis of multiple sclerosis between five and forty years prior to the study and who experienced the relapse-remitting form of the disease were interviewed face to face using a semi structured interview schedule. Grounded theory was used to analyse the interviews and to build a theoretical account of the process of psychological adjustment to multiple sclerosis. The results suggest a model of adjustment in which some individuals with multiple sclerosis move from a stance of denial to a position of acknowledgement in response to the progress of the disease. Reaching acknowledgement allows individuals to adopt an active coping stance which can protect against negative psychological consequences. This adjustment process takes place against an overall process in which individuals experience multiple sclerosis as a progression through a series of different disease phases. Findings suggest that individuals also have to adjust within the social context. Role adjustment and communication were found to be central issues in the family adjustment process. Communication was also central to adjustment in the wider social context. Participants' service use suggests that they also undertake an adjustment from reliance on medical approaches to seeking out self help and alternative approaches. It is argued that this service use process reflects the individual adjustment process. The findings are critically evaluated and compared to existing models of adaptation to chronic illness. The clinical and service implications are discussed. A critical discussion of the methodology is presented and implications for further research are explored.

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DeAdder, Dawna Nadine. "The illness experience of patients following a myocardial infarction : implications for patient education." Thesis, University of British Columbia, 1990. http://hdl.handle.net/2429/29706.

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This study used the research method of phenomenology to elicit the patient's perspective of the illness experience following a myocardial infarction (MI). The purpose of studying this experience was to gain an understanding of what it meant to men and women to have a MI, what the learning needs were following a MI, and how these learning needs were met. It was proposed that patients would view the illness experience differently from health professionals, thus the patients would identify different learning needs. Anderson's (1985) adaptation of Kleinman's health care system framework was used to conceptualize this problem. Three males and two females, ranging in age from 42 to 77 years, participated in the study. Data were collected through 11 in-depth interviews. From analysis of this data significant statements were extracted to provide a description of the phenomenon under study. The findings of this study suggest that health professionals and patients do view the MI experience from different perspectives. The emphasis of the patients on understanding the MI experience from the reality of their world is reflected in their attempts to rationalize the occurrence of the MI and their desires to know more about their own MI, prognosis, and treatment. In order to plan patient education that will assist post-MI patients in their recovery health professionals must assess patients individually for their: (1) beliefs regarding risk factors and causes of MI; (2) desire for Information; (3) preference for method of instruction; and, (4) preference for timing of education.
Applied Science, Faculty of
Nursing, School of
Graduate

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Ravenscroft, Eleanor Fay. "Patient perspectives on health care system navigation : the chronic illness multi-morbidity experience." Thesis, University of British Columbia, 2008. http://hdl.handle.net/2429/642.

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Meeting the health care needs of people with chronic conditions presents one of the greatest challenges for 21st century health care system renewal. Appropriate redesign of health care delivery with this complex patient population in mind requires information from many sources. Although much is known about the patient experience of chronic illness much less is understood about how patients navigate their health care delivery context. The purpose of this qualitative study was to examine the point of view of patients dealing with multi-morbidity. These people have a unique understanding of how health care delivery links across time, place, and settings because of the care they require for their multiple chronic conditions. An interpretive descriptive design was used to examine patient navigation from the perspective of 20 adult patients with chronic kidney disease, and co-existing diagnoses of diabetes mellitus and/or cardiovascular disease. The findings generated from iterative, constant comparative analysis add important patient perspectives about health care system navigation. From the consumer perspective health care navigation is challenging, requiring (a) ongoing discovery about the complex social structures that make up the health care system, and (b) learning how to strategically use this knowledge to manage the health care system. The findings highlight the disjunctures and misalignments in the health care delivery system, the cumulative health care-related burden of multiple chronic conditions for consumers, and consumer concerns about subtle inequities in the health care system. As health care renewal efforts gain momentum new knowledge from the perspective of consumers, such as that captured in this research, is important. The consumer perspective provides a valuable opportunity for stakeholders in health care policy- and decision-making to contextualize and make greater sense of the information used in making decisions about health care service delivery for vulnerable populations, like patients with multiple chronic conditions.

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Brennan, Catherine Ann. "Living and losing: the experience of siblings of children with life-limiting illness." Thesis, University of Leeds, 2008. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.494594.

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Wainwright, June. "Family carers of adults with severe mental illness : conceptualising carer experience and need." Thesis, Durham University, 1997. http://etheses.dur.ac.uk/1641/.

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Husband, Linda Louise. "Managing chronic illness : the personal experience and the professional management of venous ulceration." Thesis, Durham University, 1996. http://etheses.dur.ac.uk/1520/.

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Miller, Deborah Mary. "Caregiving in chronic illness: The experience of married persons whose spouses have MS." Case Western Reserve University School of Graduate Studies / OhioLINK, 1990. http://rave.ohiolink.edu/etdc/view?acc_num=case1055258010.

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Tyler, Carmen M. "How the Illness Experience Predicts Key Psychosocial Outcomes in Veterans with Brain Injury." Cleveland State University / OhioLINK, 2017. http://rave.ohiolink.edu/etdc/view?acc_num=csu1494576111782556.

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Murphy, Rebecca. "A qualitative investigation into the experience of parenting with a severe mental illness." Thesis, University of Manchester, 2011. https://www.research.manchester.ac.uk/portal/en/theses/a-qualitative-investigation-into-the-experience-of-parenting-with-a-severe-mental-illness(4ad0c192-a4e2-4574-bc84-9d6cae8636d9).html.

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This thesis explores the experience of parenting with severe mental illness, using qualitative methodologies. It is presented in three parts: a literature review, a report of the empirical research, and a critical reflection of the process undertaken. The literature review provides both a systematic review of qualitative studies exploring the experience of parenting with a severe mental illness (SMI), and a meta-synthesis of the findings from the included studies. The findings demonstrated six overarching themes that were central to the parents' experience. The themes were interlinked and often conflictual in nature and a model of the relationship between the themes is provided. The synthesis revealed how the additional and conflicting pressures faced by parents with SMI can interact with their symptoms to affect parenting behaviours and decisions about engagement with services. The model of themes elicited by the synthesis provides a broad conceptual framework in which parenting with SMI can be considered across the age range of children, parental symptoms and parenting roles. The empirical research provides a specific focus on the views and experiences of parents with Bipolar Disorder (BD). Interpretative Phenomenological Analysis was used to explore the lived experience of parenting with BD, to provide insight into the parents' perspective and the influence that this may have on outcomes for parents as well as their children. The analysis resulted in six overarching themes, each of which consisted of a number of sub-themes. There were important interactions between the themes and these are illustrated for the reader. It was found that the parents identified a number of challenges in being a parent with BD and experienced feelings of inadequacy, guilt and worry relating to the impact that their illness had on their children and family. Strategies for managing these feelings and limiting the impact of BD could have an inadvertent negative effect on their own well-being, and that of their child. Learning to accept their diagnosis and developing strategies for managing their symptoms were crucial for positive parenting, although the changing needs of their children often presented new challenges. Contextual factors, including the stigma associated with mental illness, could also either mediate or exacerbate the challenge of parenting with BD. The clinical implications of these findings are discussed. The critical reflection provides a consideration of qualitative methodologies and a personal reflection on the qualitative process in relation to the empirical research. It details the critical debates around qualitative methodology, the application of qualitative methodologies, and the challenges this presented for the researcher. The report was written on completion of the investigation and reflects the process by which, as a novice, the author was able to develop an understanding of qualitative methodology and carry out an insightful piece of research.

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Stevens, Gemma. "The role of learning in the subjective experience of living with chronic illness." Thesis, University of the West of Scotland, 2015. https://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.744777.

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Bartova, Zdenka. "Learning from the experts: Qualitative study of the lived experience of mental illness." Thesis, Edith Cowan University, Research Online, Perth, Western Australia, 2014. https://ro.ecu.edu.au/theses/1412.

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Severe mental illness has a profound effect on the affected individuals yet it does not necessarily prevent them from leading a meaningful and fulfilling life, and therefore recovering. Recovery has received a great interest in clinical and consumer research yet little is known about how those individuals who do not primarily identify with recovery respond to the concept and come to accept it as something that is personally meaningful. Using a qualitative approach following the principles of Gadamer’s (1975) hermeneutics, the present study explored people’s subjective experience of mental illness with the aim of identifying factors related to their views of mental illness, their adaptation, coping and recovery, and the subjective meanings they gave to the phenomenon. In Phase I, 25 adults diagnosed with mental illness participated in unstructured, confidential interviews at the end of which they completed the Recovery Assessment Scale-Revised (RAS-R) (Corrigan et al., 1999). The study identified six main themes related to person-centred and social/relational factors that played a role in the persons’ life with mental illness: (a) mental illness as a journey, (b) personal conceptualisations of mental illness, (c) illness management and coping, (d) losses and gains, (e) professional help, and (f) the role of others. Phase II was completed by 18 participants from the original sample who were provided with feedback on their respective RAS-R (Corrigan et al., 1999) results and who in turn provided their feedback on the scale and their experience of completing it; this was followed by a discussion of recovery. The participant narratives suggested that recovery was conceptualised in two broad ways: as a return to baseline following crisis and as living as best as one can given personal circumstances. The findings further indicated that recovery as a concept had the potential to remain abstract and lack in meaning unless the person’s biases and perceptions were explored in an opened, non-directive conversation. Both the initial interview and the follow-up session were audiotaped, transcribed and consequently subjected to thematic content analysis. Following the analysis, the participants were invited for a third interview during which they were asked to provide feedback on the analysis and add further information. This represented Phase III, which was completed by 10 participants from the original sample; this phase also served as a reflection on the experience of research participation. Findings indicated that research participation was generally seen as a positive experience that could have potentially therapeutic benefits. The process involved active engagement for both the participants and the researcher, which may have helped foster closeness but that also raised a number of ethical dilemmas, primarily in terms of dual roles and researcher self-disclosure. Overall, the studies highlighted the complex interplay of both clinical and non-clinical factors that the individuals took into account as they were making sense of their experience. The studies have a number of clinical implications, specifically addressing the role of hospitals in treatment, the relationship between mental illness and trauma, participatory assessment of recovery, and the role of clinical psychology in the treatment of severe mental illness. Furthermore, the studies point out the potential benefits of supplementing clinical work, whether in research or in treatment, with the methods and processes of Gadamerian hermeneutics. The core principles of the Gadamerian approach (the fusion of the horizons of meaning, the hermeneutic circle and the dialogue) promote viewing of a phenomenon as a contextually embedded experience that is interpreted through the person’s pre-existing views and his/her present range of vision. The approach conceptualises interactions between two parties as opened conversations that aim at shared understanding, rather than objective truth. Such conversations are characterised by a back-and-forth movement between the whole and its parts, which eventually leads to improved understanding. Therefore greater appreciation of contextual information and meaning-making processes; treating both sources of expertise (consumer and professional) as equally important; viewing psychopathology as only one part of mental illness and mental illness as one part of the person’s life; and finally approaching clinical and research interactions as relational endeavours that test the underlying assumptions of both parties could help influence the way mental health professionals work with individuals with severe mental illness.

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Dissertations / Theses on the topic 'Illness experience'

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