Relevant bibliographies by topics / Hospice

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  1. Journal articles
  2. Dissertations / Theses
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  4. Book chapters
  5. Conference papers
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Academic literature on the topic 'Hospice'

Author: Grafiati
Published: 4 June 2021
Last updated: 26 January 2023

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Journal articles on the topic "Hospice"

1

Plotzke, Michael, Thomas Christian, Kim Groover, Zinnia Harrison, Ihsan Abdur-Rahman, and Cindy Massuda. "Construction and Performance of the Hospice Care Index Claims-Based Quality Measure." Innovation in Aging 5, Supplement_1 (December 1, 2021): 62. http://dx.doi.org/10.1093/geroni/igab046.239.

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Abstract As part of the Medicare Hospice Benefit (MHB), hospices submit claims containing information that allows policy makers to assess hospice quality, help policy makers improve the MHB, and increase patients’ experiences of care. We examine ten different hospice quality indicators related to the provision of services and patterns of live discharge. We calculated indicators using 100% Medicare fee-for-service (FFS) claims from October 1, 2018 through September 30, 2019. A hospice’s total score among all ten indicators is referred to as their Hospice Care Index (HCI), with a possible high score of 10. We examined all hospices with at least 20 discharges. After exclusion, we examined 4,155 hospices representing 1,562,003 beneficiaries. Most hospices earn a high HCI score: over 85% of hospices had scores of eight or more. At the same time, there were some lower scoring hospices: one in ten hospices scored seven on the index, and the remaining 4.9% scored six or lower. We find that on average hospices with higher HCI scores have better Consumer Assessment of Healthcare Providers and Systems (CAHPS®) Hospice ratings. Among hospices with a score of ten, 85.1% of caregivers reported they would definitely recommend the hospice vs. 82.9% of caregivers of patients receiving treatment from hospices with a score of seven or less. Using the HCI, the Centers for Medicare and Medicaid Services and hospice patient caregivers can assess hospices across a broad set of indicators. Policymakers and hospices should monitor these ten indicators to understand their performance relative to peers.
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Bedard, Louise, Kelly Marie Procailo, Sam Beusterien, Kleanthe Kolizeras, Cindy Straight, and Jennifer J. Griggs. "Hospice and medical oncology collaboration in a statewide collaborative." Journal of Clinical Oncology 37, no. 27_suppl (September 20, 2019): 83. http://dx.doi.org/10.1200/jco.2019.37.27_suppl.83.

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83 Background: Hospice enrollment (QOPI measure 42) has consistently been lower in practices in the Michigan Oncology Quality Consortium (MOQC), a collaborative of nearly all medical oncology practices. MOQC enrollment has been 47% during CY2014-18 compared to national QOPI, which ranged from 53 to 59% during the same time period. We describe our approach to improve hospice use in the care of oncology patients. Methods: MOQC providers suggested that hospices across the state be involved in facilitating patient-centered approaches to increase enrollment of patients to hospice care. Beginning in Spring 2018, hospices in each of the six MOQC regions were invited to participate in standing regional meetings as well as teleconferences (one per region). Root cause analyses identified barriers universal and specific to that region. Each region was asked to choose at least one hospice-oncology project. Results: Thirty hospices are participating, including the five largest hospices in the state and hospices associated with the largest healthcare systems. Barriers to hospice include lack of hospice services in rural areas, in complete understanding among oncologists about what hospice can provide, resistance from patients and families due to misperceptions, communication issues with oncologists, between practices and hospices, and/or with patients once referred to hospices, lack of appreciation by hospice providers regarding the long standing relationship between patients and oncologists, and variation in use of palliative treatment such as radiation therapy. A total of 13 projects have been selected by the hospices and oncology practices to be developed by the regions. Once harmonized by the Coordinating Center, the projects will be shared across the state. The Coordinating Center is addressing lack of access to hospice in remote rural areas. Conclusions: Our partnership between oncology practices and hospices across a statewide collaborative has been a mutually beneficial relationship that promises to address some of the key systemic barriers to hospice enrollment. Feedback has indicated that communication between oncology and hospice providers is becoming more seamless and that referrals to hospice have increased.
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Hughes, M. Courtney, and Erin Vernon. "Closing the Gap in Hospice Utilization for the Minority Medicare Population." Gerontology and Geriatric Medicine 5 (January 2019): 233372141985566. http://dx.doi.org/10.1177/2333721419855667.

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Background: Medicare spends about 20% more on the last year of life for Black and Hispanic people than White people. With lower hospice utilization rates, racial/ethnic minorities receive fewer hospice-related benefits such as lesser symptoms, lower costs, and improved quality of life. For-profit hospices have higher dropout rates than nonprofit hospices, yet target racial/ethnic minority communities more through community outreach. This analysis examined the relationship between hospice utilization and for-profit hospice status and conducted an economic analysis of racial/ethnic minority utilization. Method: Cross-sectional analysis of 2014 Centers for Medicare & Medicaid Services (CMS), U.S. Census, and Hospice Analytics data. Measures included Medicare racial/ethnic minority hospice utilization, for-profit hospice status, estimated cost savings, and several demographic and socioeconomic variables. Results: The prevalence of for-profit hospices was associated with significantly increased hospice utilization among racial/ethnic minorities. With savings of about $2,105 per Medicare hospice enrollee, closing the gap between the White and racial/ethnic minority populations would result in nearly $270 million in annual cost savings. Discussion: Significant disparities in hospice use related to hospice for-profit status exist among the racial/ethnic minority Medicare population. CMS and state policymakers should consider lower racial/ethnic minority hospice utilization and foster better community outreach at all hospices to decrease patient costs and improve quality of life.
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Townsend, Apollo, Alice L. March, and Jan Kimball. "Can Faith and Hospice Coexist." Journal of Transcultural Nursing 28, no. 1 (July 9, 2016): 32–39. http://dx.doi.org/10.1177/1043659615600764.

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African Americans are twice as likely as Caucasian Americans to choose aggressive hospital treatment when death is imminent. Repeat hospitalizations are traumatic for patients and drain patient and health system resources. Hospice care is a specialized alternative that vastly improves patient quality of life at end-of-life. This study was conducted to determine if hospices partnering with African American churches to disseminate hospice education materials could increase utilization of hospice services by African Americans. Members of two African American churches ( N = 34) participated in focus group discussions to elicit beliefs about hospice care. Focus group transcripts were coded and comments were grouped according to theme. Six themes were identified. Lack of knowledge about hospice services and spiritual beliefs emerged as the top two contributing factors for underutilization of hospice services. Study findings support partnerships between hospices and African American churches to provide hospice education to the African American community.
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Swietlik, E., and A. Doboszynska. "History and organization of palliative care in Poland." Journal of Clinical Oncology 27, no. 15_suppl (May 20, 2009): e20749-e20749. http://dx.doi.org/10.1200/jco.2009.27.15_suppl.e20749.

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e20749 Beginning of the hospice care in Poland is associated with democratic opposition in the eighties of the XX century and social movement Solidarity. In 1978, C. Saunders visited Gdansk, Warsaw, and Krakow, supporting an organization of palliative care in Poland. Polish hospice care, similarly to other countries,originated from the necessity of special care of terminally ill cancer patients. Palliative care societies, initially informal, then registered formally, emerged in Poland in 1981. Hospices, both institutional and house hospice care, came into being in all larger cities in Poland to the nineties of the XX century. In 1991, National Forum of the Hospice Movement was founded. This Forum, gathering the majority of hospices, is actually transformed into the association of societies: Forum of the Polish Hospices. In the nineties of the XX century, professional palliative care developed. Since 1998, specialization in the palliative care for both physicians and nurses is available. From the very beginning, hospice care based on the volunteers gathered at the Roman Catholic parish and several priests first organized palliative care. In 1991, The Sejm (lower chamber of the Polish Parliament) passed the law Health care institutions, enabling various societies and associations to establish health care institutions, whereas the law The Social Insurance Act (1997) gives an opportunity to get financial means for hospice care from the State. Actually, there are hospices acting on voluntary service (the number of such hospices decreases), partial voluntary service and also paid employees, and institutions which activities are based on full-time employment and financed by the National Health Fund. About 130 non-profit societies and hospice foundations both secular andchurch exist in Poland. Non-public health care institutions founded 99 hospices. About 70 hospices (both public and private) are stationary. No significant financial relationships to disclose.
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Leiter, Richard E., Charles T. Pu, Emanuele Mazzola, and Rachelle E. Bernacki. "A HOSPICE COLLABORATIVE NETWORK TO IMPROVE SERIOUS ILLNESS CARE IN A LARGE HEALTHCARE SYSTEM." Innovation in Aging 3, Supplement_1 (November 2019): S132. http://dx.doi.org/10.1093/geroni/igz038.481.

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Abstract The quality of hospice care in the United States varies significantly, yet healthcare systems lack methods to comprehensively evaluate and stimulate quality improvement in organizations that serve their patients. Partners HealthCare, an integrated healthcare system located in Eastern Massachusetts, sought to create a high-quality hospice collaborative network based on objective and quantitative criteria obtained from public reporting as well as the hospice itself. Through a modified Delphi procedure, clinicians, administrators, and data scientists developed a set of criteria and a scoring system focused on three areas: organizational information, clinical care quality indicators, and training and satisfaction. All Medicare-certified hospices in good-standing in Massachusetts were eligible to participate in a request for information (RFI) process. We blinded all hospice data prior to scoring and invited hospices scoring above the 15th percentile to join the collaborative for a 2-year initial term. Of 72 eligible hospices, the majority (53%) responded to the RFI, of which 60% submitted completed surveys. Hospices could receive up to 23.75 points with scores ranging from 2.25 to 19.5. The median score was 13.62 (IQR: 10.5-16.75). For the 19 hospices scoring above the 15th percentile, scores ranged from 10.0-19.5 (median: 14, IQR: 11.1-16.9). There was no association between quality score and continuous (Spearman’s correlation 0.24, p=0.27) or dichotomous (Wilcoxon rank sum test p=0.13) measures of hospice size. The hospice collaborative network is one healthcare system’s initial attempt to effectively leverage its influence and relationships to improve hospice quality for the benefit of its seriously ill patients and their families.
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Brody, Abraham A., Shih-Yin Lin, Catherine E. Schneider, Alycia A. Bristol, Kimberly E. Convery, and Victor Sotelo. "DEVELOPING AND IMPLEMENTING ALIVIADO DEMENTIA CARE IN HOSPICES: CHALLENGES ENCOUNTERED AND LESSONS LEARNED." Innovation in Aging 3, Supplement_1 (November 2019): S363. http://dx.doi.org/10.1093/geroni/igz038.1325.

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Abstract Hospice was originally developed to care for individuals with metastatic, solid-tumor cancers. While advanced ADRD is now the primary illness in approximately 19% of the hospice population and presents as a co-morbid condition in many more, little evidence-based work has been performed to retool hospice to care for persons with ADRD and their caregivers. Aliviado Dementia Care-Hospice Edition is a systems level change program consisting of hospice workforce training, an implementation toolbox, and agency-wide workflow changes. Aliviado seeks to improve the quality of life for persons with ADRD and their caregivers receiving hospice, focused specifically on BPSD and pain assessment and management. In developing a coalition of hospice agencies and implementing this pragmatic intervention, we discuss our solutions to overcoming a number of barriers, including varying electronic health records, performing culture change with a disseminated workforce, scaling to 25 hospices, and working with some hospices who lack experience performing research.
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Langen-Datta, Shalene, Helen Wesson, Joanna Flemming, Abi Eccles, Catherine Grimley, Jeremy Dale, Kathryn Almack, et al. "The impact of Covid-19 pandemic on hospices: A systematic integrated review and synthesis of recommendations for policy and practice." AMRC Open Research 4 (October 26, 2022): 23. http://dx.doi.org/10.12688/amrcopenres.13105.1.

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Background: The Covid-19 pandemic resulted in the development of numerous recommendations for practice and policy for specialist palliative care provided by hospices in United Kingdom (UK), as hospices were significantly affected by the pandemic and protections put in place. The aim of this review is to identify and synthesise recommendations or implications for policy and practice that have been generated for adult hospice specialist palliative care during the first 24 months of the Covid-19 pandemic. Methods: AMED, BNI, CINAHL, EMBASE, EMCARE, HMIC, Medline, PsycINFO, PubMed databases were searched for peer-reviewed papers, as well as hand searchers for grey literature. Literature relating to hospices and Covid-19 in the UK were included and a thematic synthesis of recommendations for hospice policy and practice was undertaken. Results: 858 articles were identified with 12 meeting the inclusion criteria. Fifty-eight recommendations or implications were identified: 31 for policy, 27 for practice, and 10 covering both. Recommendations were organised under ten themes. There were several recommendations seeking to secure hospice resources to mitigate the short-term impact of the pandemic, as well as those focused on longer-term implications such as core funding. The impact of the pandemic on the quality of hospice care was the focus for numerous recommendations around improving integration of hospice care in the community, provision of bereavement support and better use of Advance Care Plans (ACP). However, there were significant gaps related to carer visitation in hospices, inequities of palliative care, or hospice-at-home services. Conclusion: The Covid-19 pandemic and protections exposed several ongoing policy and practice needs, especially around hospice resources, while generating novel issues for hospices to address. Significant policy gaps remain to be addressed to mitigate the impact of the pandemic on the quality of hospice specialist palliative care.
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van Langen-Datta, Shalene, Helen Wesson, Joanna Fleming, Abi Eccles, Catherine Grimley, Jeremy Dale, Kathryn Almack, et al. "The impact of Covid-19 pandemic on hospices: A systematic integrated review and synthesis of recommendations for policy and practice." Health Open Research 4 (January 5, 2023): 23. http://dx.doi.org/10.12688/amrcopenres.13105.2.

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Background: The Covid-19 pandemic resulted in the development of numerous recommendations for practice and policy for specialist palliative care provided by hospices in United Kingdom (UK), as hospices were significantly affected by the pandemic and protections put in place. The aim of this review is to identify and synthesise recommendations or implications for policy and practice that have been generated for adult hospice specialist palliative care during the first 24 months of the Covid-19 pandemic. Methods: AMED, BNI, CINAHL, EMBASE, EMCARE, HMIC, Medline, PsycINFO, PubMed databases were searched for peer-reviewed papers, as well as hand searches for grey literature. Literature relating to hospices and Covid-19 in the UK were included and a thematic synthesis of recommendations for hospice policy and practice was undertaken. Results: 858 articles were identified with 12 meeting the inclusion criteria. Fifty-eight recommendations or implications were identified: 31 for policy, 27 for practice, and 10 covering both. Recommendations were organised under ten themes. There were several recommendations seeking to secure hospice resources to mitigate the short-term impact of the pandemic, as well as those focused on longer-term implications such as core funding. The impact of the pandemic on the quality of hospice care was the focus for numerous recommendations around improving integration of hospice care in the community, provision of bereavement support and better use of Advance Care Plans (ACP). However, there were significant gaps related to carer visitation in hospices, inequities of palliative care, or hospice-at-home services. Conclusion: The Covid-19 pandemic and protections exposed several ongoing policy and practice needs, especially around hospice resources, while generating novel issues for hospices to address. Significant policy gaps remain to be addressed to mitigate the impact of the pandemic on the quality of hospice specialist palliative care.
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Demmer, Craig. "A National Survey of Hospice Bereavement Services." OMEGA - Journal of Death and Dying 47, no. 4 (December 2003): 327–41. http://dx.doi.org/10.2190/e2dy-42c7-7qp6-7052.

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Introduction: Historically, bereavement services have been viewed as the “poor stepchild” within hospice programs. In 1986, a survey was conducted of hospices to examine the nature and function of hospice bereavement services. This article presents the results of a similar survey that was conducted in 2002. The aim of this study was to provide updated information on several aspects of hospice bereavement services including staffing, training, services provided, issues, and obstacles. Methods: A self-administered questionnaire, with items adapted from the 1986 study, was mailed to a random sample of 450 Provider Members of the National Hospice and Palliative Care Organization (NHPCO). The 23-item questionnaire took approximately 10 minutes to complete. There was a 58% return ( n = 260) of the questionnaires. Results: Hospices employed fewer bereavement personnel who served more bereaved individuals than compared to hospices in the 1986 study. Major obstacles were lack of time and too few bereavement staff. Bereavement programs tended to focus on less time intensive services such as mailings of letters and literature on grief versus phone calls and home visits. Bereavement staff expressed a desire to provide more groups and educational programs, as well as make more home visits, if they had more resources. Conclusions: Hospices are faced with difficult choices in an era of increased competition between hospices, insufficient reimbursement, and increased demands to document the effectiveness of services. Against this background, hospice bereavement services will continue to compete for attention and resources with other components of hospice programs.
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Dissertations / Theses on the topic "Hospice"

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Cho, Yuen-yee Christine, and 曹婉怡. "Hospice." Thesis, The University of Hong Kong (Pokfulam, Hong Kong), 1999. http://hub.hku.hk/bib/B3198454X.

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Cho, Yuen-yee Christine. "Hospice." Hong Kong : University of Hong Kong, 1999. http://sunzi.lib.hku.hk/hkuto/record.jsp?B2595099x.

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Phinazee, Teresa Y. "BELIEFS ABOUT HOSPICE CARE AMONG HELPING PROFESSIONALS." CSUSB ScholarWorks, 2015. https://scholarworks.lib.csusb.edu/etd/214.

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ABSTRACT Centered on interviews with 13 hospice care professionals from two large hospice organizations in Southern California, this thesis project examines the challenges that arise in hospice work. Hospice’s delivery of end-of-life care is becoming even more significant as the population lives longer. According to the National Institute on Aging (2014), the face of aging in the United States is changing dramatically. This examination discloses some of the challenges that hospice workers face in a continuously changing health care system, while trying to provide extraordinary service to the terminally ill. Hospice regards dying as a conventional progression, and neither hastens nor defers death. Hospice health care professions are essential in providing care. This thesis uses a qualitative method and examined beliefs about hospice care among hospice professionals using compassion fatigue also known as burnout, job satisfaction and religion and spirituality as a foundation. The findings of this thesis found that compassion fatigue is a real phenomenon and has been experienced by nine or 69% of participants, and of the 69%, six or 67% that experienced compassion fatigue are paid employees who work a forty hour work week. The remaining three participants or 33% who have experienced compassion fatigue are volunteers who commit to volunteering more than two days a week. Frequent contact with individuals who are terminally ill increases the likelihood of compassion fatigue. The iv findings also indicate that 100% of participants experienced job satisfaction while working in patient care, despite the length of time working in the field of hospice. Job satisfaction is contributed to the belief that participants have regarding hospice care, and that belief is the work they do in hospice is a "calling" and they all consider working with the terminally ill as a privilege. Lastly, the findings indicate that religion and spirituality play a major role in how participants deal with the ongoing death of patients. Ninety two percent or 12 out of the 13 participants claim a belief in a higher power, and they use this belief to cope with the suffering and death of patients. They also use religion and spirituality as a way to decrease stress and to have a piece of mind that when a patient dies they are in a much better place and relieved of their suffering. Taken as a whole, this study concentrated on hospice professionals and the correlation of compassion fatigue, job satisfaction and religion and spiritually which can have a pronounced impact on the overall quality of service delivery. The purpose of this study was to bring mindfulness to the hospice social professional. What has been provided in this study is empirical support for advanced research in the field of hospice care. Additional research is necessary in order to understand more about the beliefs of hospice care among helping professionals and the motivations they use in order to deliver optimal service to the terminally ill.
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Coffell, Amy Marie. "Hospice Social Workers' Roles and Responsibilities Within Interdisciplinary Hospice." ScholarWorks, 2017. https://scholarworks.waldenu.edu/dissertations/4431.

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The role of the hospice social worker is unclear and misunderstood by interdisciplinary team members due to role blurring, communication challenges, and poor collaboration efforts. This is important because these actions may result in decreased quality of patient care and decreased quality of life for the clinical hospice social workers. The purpose of this action research project was to explore communication, role blurring, professional activities and abilities, and cohesive goals among hospice clinical social workers. The theoretical foundation for this research was the model of interdisciplinary collaboration (MIC) which was used to describe both the concepts of interdisciplinary collaboration and the influences on that collaboration. The research question addressed the 5 concepts of the MIC to fully understand the collaboration challenges identified within hospice interdisciplinary teams. This action research study utilized the design and method of open-ended questions to gather the information using an online questionnaire. The data were coded by the action researcher to yield the key results of 3 main concepts of challenges for clinical hospice social workers (a) underutilization and misunderstanding of skillsets, (b) role blurring among the disciplines, and (c) working toward cohesive goals. A conclusion of this research was that hospice social workers are misunderstood, which presents a spectrum of challenges for the entire hospice interdisciplinary team. Implications for positive social change occurred through recommendations to reduce or eliminate these challenges, thus improving the quality of patient care and clinical hospice social workers' quality of life.
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Papež, Jakub. "Zaměření budovy hospice v Rajhradě." Master's thesis, Vysoké učení technické v Brně. Fakulta stavební, 2014. http://www.nusl.cz/ntk/nusl-227096.

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In this Diploma thesis, a 3D model and building plans of hospice building in Rajhrad was created. These products can be used by building management for planning reconstructions and annexes. In the introductory part of this work, informations about hospice building are presented. The second part is devoted to describing data collection for the model. The last largest part describes the modeling in AutoCAD 2014, creation of building plans and the accuracy testing of the final product.
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Parker-Oliver, Debra. "The diffusion of hospice care in Missouri /." free to MU campus, to others for purchase, 2000. http://wwwlib.umi.com/cr/mo/fullcit?p9988689.

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Sharifi, Nahal Alsadat. "Children's Hospice Care." Thesis, Virginia Tech, 2016. http://hdl.handle.net/10919/71772.

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With advancements in medical technology, the mechanics of dying and death has changed significantly. Centuries ago, people mostly died of infectious diseases. From the time they were diagnosed, to the time of their death did not take long. Today, public health has improved remarkably. We have a better control over infectious diseases, but we have to deal with cancer and other chronic illnesses. The long period of treatment for such illnesses makes us spend a lot of our time in healthcare facilities such as hospitals, hospices, and care homes. Unfortunately, in many cases, these facilities do not pay much attention to emotional and spiritual needs of their patients and are mostly designed around their own institutional and technological needs. In that regard, these buildings become pretty awful places with no natural light and long corridors. Today, due to the nature of chronic diseases that we mostly deal with, hospice care facilities are becoming more popular. The idea of a hospice is to focus on quality of the place for families and patients who have already spent a lot of their time in a hospital setting. The goal is provide humane care for patients who do not have much time left, to make sure that they live the remainder of their lives as comfortably and as fully as possible. It is important to remember that when such facilities are designed for children, we need to pay extra attention to their unique needs. It is important to provide opportunities for children with terminal illnesses to continue to learn and grow. This thesis is exploration of an architectural setting in which children with a terminal prognosis would spend the last few weeks of their lives. Located in Old Town Alexandria, Virginia, this project takes advantage of the existing nature of the site to create an oasis for families who have gone through an exhausting battle with an untreatable disease. The goal is to shift the focus from curing to healing and to create a nurturing place that helps to bring normalcy back to the lives of patients and their families.
Master of Architecture
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Wilks, Keith M. "Bridging hospice and church: preparing church members to be hospice volunteers." DigitalCommons@Robert W. Woodruff Library, Atlanta University Center, 2012. http://digitalcommons.auctr.edu/dissertations/336.

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There are a number of hospice patients and their families struggling through the end-of-life journey without the aid and comfort of a faith community. Some of these families have been separated from faith communities for many years. Hospice provides spiritual care to all patients who will accept chaplain support. However, there is still a place for the local church to join in the care plan for hospice patients and their families. As a Heartland Hospice chaplain and local pastor the researcher became aware there was a divide between Heartland Hospice and local churches in the area. This project was designed to build a bridge between hospice and the church by preparing church members to become hospice volunteers. The project design was to assist church members to dispel their myths about hospice, address unresolved fear of death and dying, and realize the need for a hospice volunteer ministry at the church. Project participants gained knowledge and experience in being hospice volunteers through hands on caring for ten hospice-patients from their church membership. This project has been instrumental in transforming Mount Carmel’s current hospice patient ministry within the congregation.
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Kaufman, Isabel Esther. "Assessing Spirituality Among Hospice Patients: A Phenomenological Study of Hospice Nurses." ScholarWorks, 2015. https://scholarworks.waldenu.edu/dissertations/1518.

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The shift in health care and nursing philosophy and practice from a holistic approach to a highly technological, cure-oriented approach has been attributed to effective pharmaceuticals made to prolong life. Recently medical professionals have shifted their focus to a combination of spiritual healing and medicine. Hospice care in particular have taken a key interest in integrating spirituality within their health care. The problem is that due to the complications in defining spirituality and appropriate training and education of spirituality within nursing curriculum, assessing patients' spiritual distress may be difficult for many hospice nurses which may be at a loss when attempting to integrate spirituality within their practice. This study used a phenomenological approach to explore the infusion of spirituality in nursing practice and the hospice nurses perceptions of assessing spiritual distress needs of terminally ill patients. Frankl's existential theory and Kubler- Ross's stages of grief theory framed the study. Participants included 8 hospice nurses working in a Pacific Northwestern state. Face-to-face interviews were conducted to explore the essence of the experience of integrating spirituality as well as their views and concerns regarding assessment instruments used to assess spiritual distress. Data was analyzed for content themes. The study found that spiritual courses were merged into hospice nursing as a teaching unity making it difficult for hospice nurses in a Pacific Northwestern State to fully grasp the concept of spirituality. Further findings suggested that only a handful of schools had spiritual nursing as an independent course. The study may impact social change by informing the advancement of hospice nurses and hospice administrators in the practice of including spirituality within healthcare and integrating extensive existential support training within nurses' curriculum.
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Hunt, Halley Lambert. "IMPROVING EQUITY IN HOSPICE ACCESS BY REDUCING CULTURAL BARRIERS IN HOSPICE SERVICES AND HOSPICE DISCUSSIONS FOR NONWHITE US GROUPS." Master's thesis, Temple University Libraries, 2017. http://cdm16002.contentdm.oclc.org/cdm/ref/collection/p245801coll10/id/432978.

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Urban Bioethics
M.A.
Though there is ample evidence in existing literature demonstrating racial inequity in end-of-life care, there is minimal examination of how the culturally mainstream values of hospice contribute to inequity and reduced access for nonwhite populations. This paper reviews participatory action research, interviews and chart reviews of nonwhite populations including African Americans, Latinx, Asians and Native Americans to determine what end-of-life values these groups report and how they differ from the values of hospice and western biomedicine. All of these groups reported unmet cultural needs with respect to hospice access ranging from differing communication style preferences to different religious beliefs to different ideas about what they dying process should look like. Contributing to these barriers was practitioner ignorance about cultural variance in end-of-life preferences, demonstrated by studies of physicians to identify barriers to effectively providing end-of-life care. To help foster better knowledge and understanding between practitioners and nonwhite patients whose cultural needs are not being met, I have created a value-assessment tool to add to the standard structure of end-of-life conversations. Using this tool with patients in end-of-life conversations could improve physician confidence in understanding the needs of patients and provide patients an opportunity to freely communicate their needs and therefore increase access to the hospice services that can meet those needs.
Temple University--Theses
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Books on the topic "Hospice"

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1948-, Leon Joel, ed. Hospice care. Newbury Park, Calif: Sage Publications, 1992.

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The handbook of hospice care. Amherst, N.Y: Prometheus Books, 1996.

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Connor, Stephen R. Hospice: Practice, pitfalls, and promise. Washington, D.C: Taylor & Francis, 1998.

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Nuances, the soul of hospice. Branford, CT: Connecticut Hospice, 1997.

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Beresford, Larry. The hospice handbook: A complete guide. Boston: Little, Brown, 1993.

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Beresford, Larry. The hospice handbook: A complete guide. Boston: Little, Brown, 1993.

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Dame, Saunders Cicely M., and Kastenbaum Robert, eds. Hospice care on the international scene. New York: Springer Pub. Co., 1997.

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Hospice, Highland. Highland Hospice. Inverness: Highland Hospice ltd., 1994.

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Lind, Infeld Donna, Gordon Audrey K, and Harper Bernice Catherine, eds. Hospice care and cultural diversity. New York: Haworth Press, 1995.

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Bell, Karen Whitley. Living at the end of life: A hospice nurse addresses the most common questions. New York, NY: Sterling, 2010.

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Book chapters on the topic "Hospice"

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Post, Stephen G. "Hospice." In Encyclopedia of Women’s Health, 610–12. Boston, MA: Springer US, 2004. http://dx.doi.org/10.1007/978-0-306-48113-0_204.

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Aleksandrova-Yankulovska, Silviya. "Hospice." In Encyclopedia of Global Bioethics, 1–11. Cham: Springer International Publishing, 2014. http://dx.doi.org/10.1007/978-3-319-05544-2_228-1.

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Breakwell, Susan. "Hospice." In Clinical Case Studies in Home Health Care, 447–57. West Sussex UK: John Wiley & Sons, Inc., 2013. http://dx.doi.org/10.1002/9781118785744.ch42.

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Orbell, Sheina, Havah Schneider, Sabrina Esbitt, Jeffrey S. Gonzalez, Jeffrey S. Gonzalez, Erica Shreck, Abigail Batchelder, et al. "Hospice." In Encyclopedia of Behavioral Medicine, 982–85. New York, NY: Springer New York, 2013. http://dx.doi.org/10.1007/978-1-4419-1005-9_960.

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Choi, Moon. "Hospice." In Encyclopedia of Immigrant Health, 845–46. New York, NY: Springer New York, 2012. http://dx.doi.org/10.1007/978-1-4419-5659-0_372.

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Doka, Kenneth J. "Hospice." In Encyclopedia of Psychology and Religion, 1110–13. Cham: Springer International Publishing, 2020. http://dx.doi.org/10.1007/978-3-030-24348-7_9082.

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Stajduhar, Kelli I., and Linda Outcalt. "Hospice." In Encyclopedia of Quality of Life and Well-Being Research, 2926–29. Dordrecht: Springer Netherlands, 2014. http://dx.doi.org/10.1007/978-94-007-0753-5_1313.

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Croom, Andrea. "Hospice." In Encyclopedia of Behavioral Medicine, 1087–90. Cham: Springer International Publishing, 2020. http://dx.doi.org/10.1007/978-3-030-39903-0_960.

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Doka, Kenneth J. "Hospice." In Encyclopedia of Psychology and Religion, 836–40. Boston, MA: Springer US, 2014. http://dx.doi.org/10.1007/978-1-4614-6086-2_9082.

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Yun, Young Ho. "Hospice." In Encyclopedia of Trauma Care, 769–71. Berlin, Heidelberg: Springer Berlin Heidelberg, 2015. http://dx.doi.org/10.1007/978-3-642-29613-0_219.

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Conference papers on the topic "Hospice"

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Sweeney, Joyce, Ian Marshall, and Ian Wilson. "P-239 The inside out hospice project – ardgowan hospice." In Leading, Learning and Innovating, Hospice UK 2017 National Conference, 22–24 November 2017, Liverpool. British Medical Journal Publishing Group, 2017. http://dx.doi.org/10.1136/bmjspcare-2017-hospice.264.

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Knowles, Grace, Teresa M. Vente, and Jessica T. Fry. "Hospice Home Birth." In AAP National Conference & Exhibition Meeting Abstracts. American Academy of Pediatrics, 2021. http://dx.doi.org/10.1542/peds.147.3_meetingabstract.533.

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Cowan, Margaret Mary. "P-06 Kilbryde Hospice: Scotland’s newest hospice. Challenges, collaboration and community." In Finding a Way Forward, Hospice UK National Conference, 22–24 November 2022, Glasgow. British Medical Journal Publishing Group, 2022. http://dx.doi.org/10.1136/spcare-2022-hunc.28.

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Allen, Gemma, Sharon Hudson, Alice Spearing, Mark Jones, Suzanne McArthur, Jenni Fryer, and Marianne Grant. "P-23 Hospice pride." In Dying for change: evolution and revolution in palliative care, Hospice UK 2019 National Conference, 20–22 November 2019, Liverpool. British Medical Journal Publishing Group, 2019. http://dx.doi.org/10.1136/bmjspcare-2019-huknc.47.

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Richardson, R., K. Maw, and D. Willis. "148 Hospice at home." In Accepted Oral and Poster Abstract Submissions, The Palliative Care Congress 1 Specialty: 3 Settings – home, hospice, hospital 19–20 March 2020 | Telford International Centre. British Medical Journal Publishing Group, 2020. http://dx.doi.org/10.1136/spcare-2020-pcc.168.

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Richardson, R., K. Maw, and D. Willis. "149 Hospice outreach team." In Accepted Oral and Poster Abstract Submissions, The Palliative Care Congress 1 Specialty: 3 Settings – home, hospice, hospital 19–20 March 2020 | Telford International Centre. British Medical Journal Publishing Group, 2020. http://dx.doi.org/10.1136/spcare-2020-pcc.169.

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McArthur, Suzanne, Cheryl Brewerton, and Sarah Wells. "P-251 The journey from a caring hospice to a compassionate hospice." In Leading, Learning and Innovating, Hospice UK 2017 National Conference, 22–24 November 2017, Liverpool. British Medical Journal Publishing Group, 2017. http://dx.doi.org/10.1136/bmjspcare-2017-hospice.276.

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Miller, Gemma, and Agnes Rupango. "P-214 The twining relationship between LOROS hospice and Ndi Moyo hospice." In Transforming Palliative Care, Hospice UK 2018 National Conference, 27–28 November 2018, Telford. British Medical Journal Publishing Group, 2018. http://dx.doi.org/10.1136/bmjspcare-2018-hospiceabs.239.

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Crook, Anne-Marie, Kelly McManus, Tracy Rhodes, and Leone Beet. "P-223 Hospice support assistants." In Dying for change: evolution and revolution in palliative care, Hospice UK 2019 National Conference, 20–22 November 2019, Liverpool. British Medical Journal Publishing Group, 2019. http://dx.doi.org/10.1136/bmjspcare-2019-huknc.245.

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Darge, Rebecca Grace, Pauline Flanagan, Margaret Jarvis, Nicci Williamson, and Claire Hookey. "P-82 Becoming a research active hospice: introducing research into a day hospice environment." In Leading, Learning and Innovating, Hospice UK 2017 National Conference, 22–24 November 2017, Liverpool. British Medical Journal Publishing Group, 2017. http://dx.doi.org/10.1136/bmjspcare-2017-hospice.109.

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Reports on the topic "Hospice"

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Naulty, Cheryl M. Children's Hospice. Fort Belvoir, VA: Defense Technical Information Center, May 2007. http://dx.doi.org/10.21236/ada517169.

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Naulty, Cheryl M. Children's Hospice. Fort Belvoir, VA: Defense Technical Information Center, January 2006. http://dx.doi.org/10.21236/ada466557.

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Varma, Laurie, Ashley Rice, Kathryn Knight, Edmon Begoli, and Daniel Redmon. Hospice Landscape Report. Office of Scientific and Technical Information (OSTI), September 2021. http://dx.doi.org/10.2172/1830119.

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MacArtney, John I., Joanna Fleming, Abi Eccles, Catherine Grimley, Helen Wesson, Catriona Mayland, Sarah Mitchell, et al. Impact of Covid-19 pandemic on Hospices (ICoH): Staff Cohort Report. University of Warwick Press, May 2022. http://dx.doi.org/10.31273/978-1-911675-04-4.

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This report describes the diversity of experiences of hospice staff who worked in operational roles in hospices in the West Midlands during the Covid-19 pandemic. It is one of four cohort reports – the others focus on patients, carers, and senior managers respectively – that form the evidence base for a Policy Report into the impact of Covid-19 on hospices. In these reports we address the nine key themes that were identified as potentially important in our previous collaborative knowledge synthesis (MacArtney et al., 2021) and seek to address some of the policy gaps we identified in our review of recommendations for hospice practice and policy (van Langen-Datta et al., 2022). Together these outputs are the result of an Economic and Social Research Council funded study (grant number: ES/W001837/1). This is one of the first studies to contribute an in-depth exploration of hospice-based experiences of the pandemic to the growing body of knowledge about the effectiveness and effects of changes to hospice services, at regional and national levels in response to Covid-19. The aim of this report is therefore to explore the effects the Covid-19 pandemic had on the experiences of hospice staff as they sought to provide care and support to people with life-limiting conditions and those that cared for them so that we can identify recommendations for clinical practice and healthcare policy. Drawing on these findings, this report offers recommendations for hospices and clinicians who continue to provide care and support for people with life limiting conditions and those that care them during the ongoing pandemic. These recommendations will also be of interest to local commissioners who will need to work with hospices in their region to ensure informal carers receive the support they need, and national policymakers who will need to ensure the necessary resources and guidance are available.
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MacArtney, John I., Joanna Fleming, Abi Eccles, Catherine Grimley, Helen Wesson, Catriona Mayland, Sarah Mitchell, et al. Impact of Covid-19 pandemic on Hospices (ICoH): Patient Cohort Report. University of Warwick Press, May 2022. http://dx.doi.org/10.31273/978-1-911675-02-0.

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This report describes the diversity of experiences of people with life-limiting illnesses who were supported by hospices in the West Midlands during the pandemic. It is one of four cohort reports – the others focus on carers, frontline hospice staff, and senior managers respectively – that form the evidence base for a Policy Report into the impact of Covid-19 on hospices. In these reports we address the nine key themes that were identified as potentially important in our previous collaborative knowledge synthesis (MacArtney et al., 2021) and seek to address some of the policy gaps we identified in our review of recommendations for hospice practice and policy (Langen-Datta et al., 2022). Together these outputs are the result of an Economic and Social Research Council funded study (grant number: ES/W001837/1) that is one of the first studies to contribute an in-depth exploration of hospice-based experiences of the pandemic to the growing body of knowledge about the effectiveness and effects of changes to hospice services, at regional and national levels in response to Covid-19. The aim of this report is therefore to explore experiences of those with life-limiting conditions the effects of the Covid-19 pandemic on the care and support to identify recommendations for clinical practice and healthcare policy. Drawing on these findings, this report offers recommendations for hospices and clinicians who continue to provide care and support for people with life limiting conditions during the ongoing pandemic. These recommendations will also be of interest to local commissioners who will need to work with hospices in their region to ensure people with life-limiting conditions receive the support they need, and national policymakers who will need to ensure the necessary resources and guidance are available.
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MacArtney, John I., Joanna Fleming, Abi Eccles, Catherine Grimley, Helen Wesson, Catriona Mayland, Sarah Mitchell, et al. Impact of Covid-19 pandemic on Hospices (ICoH): Carer Cohort Report. University of Warwick Press, May 2022. http://dx.doi.org/10.31273/978-1-911675-03-7.

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This report describes the diversity of experiences informal carers for people with life-limiting illnesses who were supported by hospices in the West Midlands during the pandemic. It is one of four cohort reports – the others focus on patients, frontline hospice staff, and senior managers respectively – that form the evidence base for a Policy Report into the impact of Covid-19 on hospices. In these reports we address the nine key themes that were identified as potentially important in our previous collaborative knowledge synthesis (MacArtney et al., 2021) and seek to address some of the policy gaps we identified in our review of recommendations for hospice practice and policy (Langen-Datta et al., 2022). Together these outputs are the result of an Economic and Social Research Council funded study (grant number: ES/W001837/1). This is one of the first studies to contribute an in-depth exploration of hospice-based experiences of the pandemic to the growing body of knowledge about the effectiveness and effects of changes to hospice services, at regional and national levels in response to Covid-19. The aim of this report is therefore to explore experiences of those informal carers of people with life-limiting conditions and the effects of the Covid-19 pandemic on the care and support they experienced, to identify recommendations for clinical practice and healthcare policy. Drawing on these findings, this report offers recommendations for hospices and clinicians who continue to provide care and support for people with life limiting conditions and those that care them during the ongoing pandemic. These recommendations will also be of interest to local commissioners who will need to work with hospices in their region to ensure informal carers receive the support they need, and national policymakers who will need to ensure the necessary resources and guidance are available.
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Fleming, Joanna, John I. MacArtney, Abi Eccles, Catherine Grimley, Helen Wesson, Catriona Mayland, Sarah Mitchell, et al. Impact of Covid-19 pandemic on Hospices (ICoH): Senior Management Cohort and Grey Evidence Report. University of Warwick Press, May 2022. http://dx.doi.org/10.31273/978-1-911675-05-1.

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This report describes the diversity of experiences of people with life-limiting illnesses who were supported by hospices in the West Midlands during the pandemic. It is one of four cohort reports – the others focus on patients, carers, and frontline hospice staff respectively – that form the evidence base for a Policy Report into the impact of Covid-19 on hospices. In these reports we address the nine key themes that were identified as potentially important in our previous collaborative knowledge synthesis (MacArtney et al., 2021) and seek to address some of the policy gaps we identified in our review of recommendations for hospice practice and policy (van Langen-Datta et al., 2022). Together these outputs are the result of an Economic and Social Research Council funded study (grant number: ES/W001837/1) that is one of the first studies to contribute an in-depth exploration of hospice-based experiences of the pandemic to the growing body of knowledge about the effectiveness and effects of changes to hospice services, at regional and national levels, in response to Covid-19. As the key decision makers during the Covid-19 pandemic, this part of the ICoH study aimed to explore senior managers’ experiences and to understand how they responded to the challenges imposed on them whilst still delivering a high-quality palliative care service. Coupled with hospice grey evidence in the form of, for example, senior management emails to staff, policy and guideline documents, we can start to understand the pressures and context in which decisions were made, including what worked well and what did not. The aim of this report is therefore to explore experiences of senior managers during the Covid-19 pandemic to identify recommendations for clinical practice and healthcare policy. Drawing on these findings, this report offers recommendations for hospices managers and clinicians who continue to provide care and support for people with life limiting conditions during the ongoing pandemic. These recommendations will also be of interest to local commissioners who will need to work with hospices in their region to ensure people with life-limiting conditions receive the support they need, and national policymakers who will need to ensure the necessary resources and guidance are available.
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Wilkie, Diana, Robert Molokie, Yingwei Yao, Scott Morris, Miriam Ezenwa, Anayza Gill, Theresa Hipp, et al. Testing Tablet-based Software to Help Reduce Hospice Patients’ Pain. Patient-Centered Outcomes Research Institute® (PCORI), August 2019. http://dx.doi.org/10.25302/8.2019.ih.13046553.

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Svynarenko, Radion, Theresa L. Profant, and Lisa C. Lindley. Effectiveness of concurrent care to improve pediatric and family outcomes at the end of life: An analytic codebook. Pediatric End-of-Life (PedEOL) Care Research Group, College of Nursing, University of Tennessee, Knoxville, 2022. http://dx.doi.org/10.7290/m5fbbq.

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Implementation of the section 2302 of the 2010 Patient Protection and Affordable Care Act (ACA) enabled children enrolled in Medicaid/Children's Health Insurance Program with a prognosis of 6 months to live to use hospice care while continuing treatment for their terminal illness. Although concurrent hospice care became available more than a decade ago, little is known about the socio-demographic and health characteristics of children who received concurrent care; health care services they received while enrolled in concurrent care, their continuity, management, intensity, fragmentation; and the costs of care. The purpose of this study was to answer these questions using national data from the Centers of Medicare and Medicaid Services (CMS), which covered the first three years of ACA – from January 1, 2011, to December 31, 2013.The database included records of 18,152 children younger than the age of 20, who were enrolled in Medicaid hospice care in the sampling time frame. Children in the database also had a total number of 42,764 hospice episodes. Observations were excluded if the date of birth or death was missing or participants were older than 21 years. To create this database CMS data were merged with three other complementary databases: the National Death Index (NDI) that provided information on death certificates of children; the U.S. Census Bureau American Community Survey that provided information on characteristics of communities where children resided; CMS Hospice Provider of Services files and CMS Hospice Utilization and Payment files were used for data on hospice providers, and with a database of rural areas created by the Health Resources and Services Administration (HRSA). In total, 130 variables were created, measuring demographics and health characteristics of children, characteristics of health providers, community characteristics, clinical characteristics, costs of care, and other variables.
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Bongiovanni, Annette, and Mary Greenan. Hospice Africa Uganda: End-of-project evaluation of palliative care services. Population Council, 2009. http://dx.doi.org/10.31899/hiv11.1019.

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