Academic literature on the topic 'HIV-positive persons – Canada – Social conditions'
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Journal articles on the topic "HIV-positive persons – Canada – Social conditions"
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Nguyen, Tu, Patrice Ngangue, Tarek Bouhali, Bridget Ryan, Moira Stewart, and Martin Fortin. "Social Vulnerability in Patients with Multimorbidity: A Cross-Sectional Analysis." International Journal of Environmental Research and Public Health 16, no. 7 (April 8, 2019): 1244. http://dx.doi.org/10.3390/ijerph16071244.
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Background: Social aspects play an important role in individual health and should be taken into consideration in the long-term care for people with multimorbidity. Purposes: To describe social vulnerability, to examine its correlation with the number of chronic conditions, and to investigate which chronic conditions were significantly associated with the most socially vulnerable state in patients with multimorbidity. Methods: Cross-sectional analysis from the baseline data of the Patient-Centred Innovations for Persons with Multimorbidity (PACEinMM) Study. Participants were patients attending primary healthcare settings in Quebec, Canada. A social vulnerability index was applied to identify social vulnerability level. The index value ranges from 0 to 1 (1 as the most vulnerable). Spearman’s rank correlation coefficient was calculated for the correlation between the social vulnerability index and the number of chronic conditions. Logistic regression was applied to investigate which chronic conditions were independently associated with the most socially vulnerable state. Results: There were 301 participants, mean age 61.0 ± 10.5, 53.2% female. The mean number of chronic health conditions was 5.01 ± 1.82, with the most common being hyperlipidemia (78.1%), hypertension (69.4%), and obesity (54.2%). The social vulnerability index had a median value of 0.13 (range 0.00–0.78). There was a positive correlation between the social vulnerability index and the number of chronic conditions (r = 0.24, p < 0.001). Obesity, depression/anxiety, and cardiovascular diseases were significantly associated with the most socially vulnerable patients with multimorbidity. Conclusions: There was a significant correlation between social vulnerability and the total number of chronic conditions, with depression/anxiety, obesity, and cardiovascular diseases being the most related to social vulnerability.
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de Vries, Brian, Gloria Gutman, Robert Beringer, Paneet Gill, and Helena Daudt. "Advance care planning among older Canadians amid the COVID-19 pandemic: a focus on sexual orientation." Palliative Care and Social Practice 15 (January 2021): 263235242110190. http://dx.doi.org/10.1177/26323524211019056.
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Objectives: The COVID-19 pandemic has led to death and hardship around the world, and increased popular discourse about end-of-life circumstances and conditions. The extent to which this discourse and related pandemic experiences have precipitated advance care planning (ACP) activities was the focus of this study with a particular emphasis on sexual orientation. Methods: A large, national online survey was conducted between 10 August and 10 October 2020 in Canada. The final sample of 3923 persons aged 55 and older was recruited using social media, direct email, and Facebook advertising and in conjunction with community groups. Women comprised almost 78% of the sample; just more than 7% of the sample identified as lesbian, gay, and bisexual (LGB). Measures included demographic variables and a series of questions on ACP, including documents and discussions undertaken prior to the pandemic and since its onset. Results: Descriptive analyses revealed few gender or sexual orientation differences on documents and discussions prior to the pandemic; since its onset, LGB persons have completed or initiated wills, powers of attorney, advance directives, representation agreements, and have engaged in ACP discussions in greater proportion than heterosexuals. Logistic regressions reveal the increased likelihood of pre-pandemic ACP engagement by age, gender (women), and education; since the pandemic onset, gender, education, and sexual orientation were predictive of greater ACP engagement. Care discussions were more likely undertaken by women and LGB persons since the pandemic most often with spouses, family, and friends, especially among LGB persons. Discussion: Gender roles and previous pandemic experiences (HIV/AIDS, in particular) are implicated in this pattern of results; opportunities for educational interventions are considered.
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Hossain, Saima N., Susan B. Jaglal, John Shepherd, Laure Perrier, Jennifer R. Tomasone, Shane N. Sweet, Dorothy Luong, et al. "Web-Based Peer Support Interventions for Adults Living With Chronic Conditions: Scoping Review." JMIR Rehabilitation and Assistive Technologies 8, no. 2 (May 25, 2021): e14321. http://dx.doi.org/10.2196/14321.
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Background Globally, 1 in 3 adults live with multiple chronic conditions. Thus, effective interventions are needed to prevent and manage these chronic conditions and to reduce the associated health care costs. Teaching effective self-management practices to people with chronic diseases is one strategy to address the burden of chronic conditions. With the increasing availability of and access to the internet, the implementation of web-based peer support programs has become increasingly common. Objective The purpose of this scoping review is to synthesize existing literature and key characteristics of web-based peer support programs for persons with chronic conditions. Methods This scoping review follows the PRISMA (Preferred Reporting Items for Systematic Reviews and Meta-Analyses) extension for scoping reviews guidelines. Studies were identified by searching MEDLINE, CINAHL, Embase, PsycINFO, and the Physiotherapy Evidence Database. Chronic diseases identified by the Public Health Agency of Canada were included. Our review was limited to peer support interventions delivered on the web. Peers providing support had to have the chronic condition that they were providing support for. The information abstracted included the year of publication, country of study, purpose of the study, participant population, key characteristics of the intervention, outcome measures, and results. Results After duplicates were removed, 12,641 articles were screened. Data abstraction was completed for 41 articles. There was a lack of participant diversity in the included studies, specifically with respect to the conditions studied. There was a lack of studies with older participants aged ≥70 years. There was inconsistency in how the interventions were described in terms of the duration and frequency of the interventions. Informational, emotional, and appraisal support were implemented in the studied interventions. Few studies used a randomized controlled trial design. A total of 4 of the 6 randomized controlled trials reported positive and significant results, including decreased emotional distress and increased health service navigation, self-efficacy, social participation, and constructive attitudes and approaches. Among the qualitative studies included in this review, there were several positive experiences related to participating in a web-based peer support intervention, including increased compassion and improved attitudes toward the individual’s chronic condition, access to information, and empowerment. Conclusions There is limited recent, high-level evidence on web-based peer support interventions. Where evidence exists, significant improvements in social participation, self-efficacy, and health-directed activity were demonstrated. Some studies incorporated a theoretical framework, and all forms of peer support—emotional, informational, and appraisal support—were identified in the studies included in this review. We recommend further research on web-based peer support in more diverse patient groups (eg, for older adults and chronic conditions outside of cancer, cardiovascular disease, and HIV or AIDS). Key gaps in the area of web-based peer support will serve to inform the development and implementation of future programs.
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Mel’nikova, E. N., A. N. Marchenko, V. V. Romanov, and E. A. Lebedeva. "Social portrait of persons with positive immune blotting to HIV infection based on the results of cadaveric blood test." Medical Science And Education Of Ural 22, no. 4 (December 30, 2021): 142–45. http://dx.doi.org/10.36361/1814-8999-2021-22-4-142-145.
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Aim. Determine the social profile of persons with positive immune blotting to HIV infection based on the results of cadaveric blood tests in the period from 2018 to 2020. Materials and methods. The work used retrospective, analytical, descriptive, evaluative and epidemiological research methods. The social characteristics of individuals were combined into a database based on a number of criteria. The patient’s personal data was encrypted with an alphanumeric code. The materials obtained during the research were analyzed and statistically processed in Microsoft Excel. Results. The results of the study made it possible to determine the social portrait of people with a posthumously positive HIV test result: 41.2 year-old men, unmarried, with a secondary vocational education, unemployed. Women, 43.8 years old, predominantly unmarried, secondary vocational education. Conclusion. Due to the fact that epidemiological investigations are not separately regulated when a positive immune blotting to HIV is detected based on the results of epidemiological investigations conducted by specialists in epidemiological studies. Thus, there is an urgent need to develop regulatory documents governing laboratory studies in conditions of positive immune blotting to HIV results of cadaveric blood tests.
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Hall, Gerod, Tejinder Singh, and Sung woo Lim. "Supportive Housing Promotes AIDS-Free Survival for Chronically Homeless HIV Positive Persons with Behavioral Health Conditions." AIDS and Behavior 23, no. 3 (January 25, 2019): 776–83. http://dx.doi.org/10.1007/s10461-019-02398-8.
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Speakman, Erica, and Dorothy Pawluch. "Deadly Disease vs. Chronic Illness: Competing Understandings of HIV in the HIV Non-Disclosure Debate." Qualitative Sociology Review 17, no. 4 (October 31, 2021): 24–42. http://dx.doi.org/10.18778/1733-8077.17.4.02.
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Over the past several decades, understandings of what it means to have contracted the human immunodeficiency virus (HIV) have shifted so that an infection once viewed as deadly and ultimately terminal is now largely regarded as chronic and manageable, at least in the West. Yet, the shift has not been complete. There are arenas of discourse where understandings of what health implications HIV carries with it are contested. One such space is the debate concerning the appropriate response to cases of HIV non-disclosure, that is, situations where individuals who are HIV-positive do not disclose their health status to intimate partners. This paper examines the competing constructions of HIV found within this debate, particularly as it has unfolded in Canada. Those who oppose the criminalization of non-disclosure tend to construct HIV as an infection that is chronic and manageable for those who have contracted it, not unlike diabetes. Those who support criminalization have mobilized a discourse that frames the infection as harmful and deadly. We use the case of the HIV non-disclosure debate to make the argument that representations of health conditions can become mired in larger social problems debates in ways that lead to contests over how to understand the fundamental nature of those conditions.
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Whelan, Michael, Christina Renda, Karin Hohenadel, Sarah Buchan, and Michelle Murti. "All together now: aggregating multiple records to develop a person-based dataset to integrate and enhance infectious disease surveillance in Ontario, Canada." Canadian Journal of Public Health 111, no. 5 (February 24, 2020): 752–60. http://dx.doi.org/10.17269/s41997-020-00295-5.
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Abstract Setting Syndemics occur when two or more health conditions interact to increase morbidity and mortality and are exacerbated by social, economic, environmental, and political factors. Routine provincial surveillance in Ontario assesses and reports on the epidemiology of single infectious diseases separately. Therefore, we aimed to develop a method that allows disease overlaps to be examined routinely as a path to better understanding and addressing syndemics in Ontario. Intervention We extracted data for individuals with a record of chlamydia, gonorrhea, infectious syphilis, hepatitis B and C, HIV/AIDS, invasive group A streptococcal disease (iGAS), or tuberculosis in Ontario’s reportable disease database from 1990 to 2018. We transformed the data into a person-based integrated surveillance dataset retaining individuals (clients) with at least one record between 2006 and 2018. Outcomes The resulting dataset had 659,136 unique disease records among 470,673 unique clients. Of those clients, 23.1% had multiple disease records with 50 being the most for one client. We described the frequency of disease overlaps; for example, 34.7% of clients with a syphilis record had a gonorrhea record. We quantified known overlaps, finding 1274 clients had gonorrhea, infectious syphilis, and HIV/AIDS records, and potentially emerging overlaps, finding 59 clients had HIV/AIDS, hepatitis C, and iGAS records. Implications Our novel person-based integrated surveillance dataset represents a platform for ongoing in-depth assessment of disease overlaps such as the relative timing of disease records. It enables a more client-focused approach, is a step towards improved characterization of syndemics in Ontario, and could inform other jurisdictions interested in adopting similar approaches.
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Sok, Phan, Mary V. Seeman, Rosane Nisenbaum, James Watson, and Sean B. Rourke. "Four-Year Trajectories of Health-Related Quality of Life in People Living with HIV: Impact of Unmet Basic Needs across Age Groups in Positive Spaces, Healthy Places." International Journal of Environmental Research and Public Health 18, no. 22 (November 22, 2021): 12256. http://dx.doi.org/10.3390/ijerph182212256.
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Despite significant advances in antiretroviral therapy, unmet basic needs can negatively impact health-related quality of life (HRQoL) in people living with HIV, especially as they age. We aimed to examine the effect of unmet basic needs across age groups on changes in HRQoL over a 4-year period in persons with HIV. Physical and mental HRQoL scores from the Positive Spaces, Healthy Spaces cohort interviewed in 2006 (n = 538), 2007 (n = 506), and 2009 (n = 406) were examined across three age groups according to their unmet needs for food, clothing, and housing. Individual growth curve model analyses were used to investigate changes over time, adjusting for demographics, employment, living conditions, social supports, HIV status, and health behavior risks. Low scores on physical and mental HRQoL were positively associated with higher number of unmet basic needs (β = −6.40, standard error (SE) = 0.87, p < 0.001 and β = −7.39, SE = 1.00, p < 0.001, respectively). There was a slight improvement in physical and mental HRQoL over 4 years in this HIV cohort, but the burden of unmet basic needs took its toll on those over 50 years of age. Regularly assessing unmet basic needs is recommended given the impact these can have on HRQOL for people living with HIV. Recognition of unmet needs is vital, as is the development of timely interventions.
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Hunt, Bijou R., Rachel Anderson, Paarul Sinha, Hollyn Cetrone, and Nancy Glick. "481. Epidemic – Pandemic Impacts Inventory (EPII) Survey Results for Persons Living with HIV in Chicago’s West and Southwest Communities." Open Forum Infectious Diseases 7, Supplement_1 (October 1, 2020): S307—S308. http://dx.doi.org/10.1093/ofid/ofaa439.674.
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Abstract Background The rapid spread of COVID-19 in recent months has caused local and regional governments to enact protective measures that have hindered economies and imposed demanding restrictions on daily life. Households may be experiencing physical, psychological, social, and economic challenges due to these preventative measures. Populations with fewer resources and/or pre-existing conditions may be at higher risk for these negative, life-altering effects. Therefore, we investigated COVID-19 impact on daily life among persons living with HIV (PLH) in Chicago’s under-resourced, largely minority, west and southwest side communities. Methods We modified the EPII, a survey designed to measure pandemic disease impact over nine domains of life, to assess how COVID-19 affected PLH receiving outpatient HIV care. From 5/11–29/2020, participants (n=49) completed the survey online or over the phone and received a $10 grocery gift card. We present the proportion of respondents who reported that they or any household member was impacted by select survey items. Results More than half of respondents reported a household member getting laid off and/or furloughed (63%), increased mental health (45%) or sleep problems (51%), less physical activity (61%), and increased screen time (82%); 45% were unable to pay important bills. Positive changes included eating healthier foods (53%), more time for enjoyable activities (63%), more quality time with friends or family (65%), and paying more attention to personal health (76%). We observed differences by gender, age, and race/ethnicity over all domains (Table 1). Finally, 80% of those who participated in telehealth services were satisfied with their experience. Table 1. Conclusion Overall, respondents struggled with employment, emotional and physical health effects of COVID-19, yet also experienced aspects of positive life change. In the future, these results should be compared with results from a general population to determine whether PLH are disproportionately burdened. Regardless, COVID-19 has negatively impacted daily life for everyone, including PLH, and these individuals may need additional resources compared to their less resource-challenged counterparts. Disclosures All Authors: No reported disclosures
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Ibáñez-Carrasco, Francisco, Catherine Worthington, Sean Rourke, and Colin Hastings. "Universities without Walls: A Blended Delivery Approach to Training the Next Generation of HIV Researchers in Canada." International Journal of Environmental Research and Public Health 17, no. 12 (June 15, 2020): 4265. http://dx.doi.org/10.3390/ijerph17124265.
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(1) Background: Although HIV has not diminished in importance in Canada, the field of HIV research remains small, and the graduate students who decide to pursue careers within it feel isolated and uncertain about their professional skills and opportunities. Universities Without Walls (UWW) was created in 2009 to help redress these shortcomings. This paper presents a case study of UWW, a non-credit training program for emerging HIV researchers in Canada. In particular, we focus on the possibilities of experiential learning via online and blended delivery. UWW uses both online and in-person teaching modalities to teach engaged scholarship, interdisciplinarity, community-based research (CBR), intervention research, and ethics. (2) Methods: Using a case study, we elucidated the research question: “What are the factors that make Universities Without Walls a viable training environment in the contemporary HIV/AIDS field?” Focus groups were conducted with 13 UWW key stakeholders in 2012 during a program mid-point evaluation; in 2014, telephone or in-person interviews with the three directors were conducted by a UWW fellow (the 4th author of this paper), and in 2019 the authors analyzed the information and anecdotal evidence, which had been incorporated as thick description. In addition, fellows’ self-assessments via portfolio and results from formal learning assessments were included. We also thematically analyzed 65 student self-reports (2009–2015). (3) Results and Discussion: Each UWW cohort lasted 9 months to one year and was comprised of: a) sustained mentorship from the co-directors (e.g., phone conversations, assistance with grant writing, letters of reference, etc.); b) fortnightly online webinars that aim to develop fellows’ knowledge of community-based research (CBR), research ethics, intervention research, and interdisciplinary research; c) community service learning in the form of a “field mentoring placement”; d) face-to-face engagement with fellows and mentors, most notably at the week-long culminating learning institute; e) a stipend for fellows to carry out their training activities. The UWW pedagogical framework features experiential learning, critical pedagogy, and heutagogy made manifest in the field mentoring placements (community service learning), mentorship mediated by technologies, and in-person learning institutes. Our analysis showed that experiential learning was imparted by UWW’s a) transparency about its “implicit curriculum”, the attitudes, values, character, and professional identity imparted in the program as well as the overarching programmatic elements, such as commitment to diversity, the inclusion of those with lived experience, the flexible admissions policies and procedures, interdisciplinary faculty, flexible team, administrative structure, and valuing of technology in conducting research, learning, and teaching; b) curriculum co-designing and co-teaching, and c) sustaining a community of practice. The main results reported in our case study included significant “soft outcomes” for UWW fellows, such as developing a “social presence” as a precursor to lasting professional connections; learning to experience community-based research, intersectionality, and interdisciplinarity by interacting online with persons living with HIV, leaders in the field, and a variety of stakeholders (including nonprofit staff and policymakers). (4) Limitations: While fellows’ self-evaluation data were collected by an independent assessor and anonymized to the extent this was possible, the co-authors inevitably bring their preconceptions and positive biases to UWW’s assessment. As UWW was developed to function outside of traditional academic structures, it is unlikely that the UWW program could be transferred to a post-secondary environment in its entirety. UWW was also built for the socio-political environment of HIV health research. (5) Conclusions: The experiences of those involved with UWW demonstrate that explicit curricular components—such as interdisciplinarity, community-based research, intervention research, and applied ethics—can be learned through a blended delivery when combined with opportunities to apply the knowledge in ways, such as a field mentoring placement and a learning institute. Related to this outcome, our case study describes that implicit curricular components in the formation of a professional—the sense of self in the field as a researcher, student, and community member—can also be delivered through a blended model. However, the tools and activities need to be tailored to each student for their context, while pushing their disciplinarian and professional boundaries.
Dissertations / Theses on the topic "HIV-positive persons – Canada – Social conditions"
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Lesko, Igor. "Attitudes and beliefs around HIV and AIDS stigma: the impact of the film "The sky in her eyes"." Thesis, University of the Western Cape, 2005. http://etd.uwc.ac.za/index.php?module=etd&.
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This research explored cultural perceptions of HIV&AIDS with students at the University of the Western Cape and attempted to understand how these perceptions of the disease reinforce stigma and stigmatising attitudes towards people living with HIV/AIDS. This study investigated HIV/AIDS stigma as a social phenomenon and analysed the socio-cultural and historical roots of HIV/AIDS stigma.
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Coetzee, Mignon. "Factors affecting quality of life in people with HIV/AIDS : a review." Thesis, Stellenbosch : Stellenbosch University, 2001. http://hdl.handle.net/10019.1/52266.
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Thesis (MA)--University of Stellenbosch, 2001.ENGLISH ABSTRACT: This paper provides an overview and critical evaluation of current (1990-2001) research into Human Immune-deficiency Virus (HIV) and Acquired Immuno-deficiency Syndrome (AIDS), with particular reference to factors affecting quality of life (QOL) among those living with the disease. A brief look at the importance of optimal QOL when faced with a life crisis such as HIV/AIDS, leads to a discussion of factors influencing QOL in HIV/AIDS. These factors include coping styles, mental adjustment, social support, stigmatization, socio-economic and socia-cultural factors, gender, depression as well as disease progression. The overview is informed by prominent research trends and a critical look at the current understanding of factors impacting on the QOL of people living with HIV/AIDS. Recommendations are made on issues that need further clarification, while future research orientations are also suggested. In the absence of satisfactory treatment strategies or a cure for HIV/AIDS, as well as the evidence of a potentiall0 to 12 year life expectancy, there is a pressing need for a better understanding of factors that influence QOL. There is strong support for the notion that QOL directly impacts on disease progression and therefore also on the quality and quantity of survival time. It follows that a better understanding of the nature and determinants of QOL for HIV patients will yield valuable intervention guidelines within a biopsychosocial framework.
AFRIKAANSE OPSOMMING: Hierdie artikel bied 'n oorsig en kritiese evaluering van onlangse (1990-2001) navorsing in die veld van Menslike Immuniteitsgebrek Virus (MIV) en Verworwe Immuniteitsgebrek Sindroom (VIGS), met besondere verwysing na faktore wat bydra tot die lewenskwaliteit van geïnfekteerde indiwidue. Die belangrikheid van optimale lewenskwaliteit teen die agtergrond van 'n lewenskrisis soos 'n MIV-diagnose, word kortliks bepsreek. Daarop volg In bespreking van faktore wat In invloed het op lewenskwaliteit in HIV/AIDS. Hierdie faktore sluit in hanteringstyl, psigiese aanpasbaarheid, sosiale ondersteuning, stigmatisering, sosio-ekonomies en sosio-kulturele faktore, geslag, depressie asook siekteverloop. Die oorsig word gerugsteun deur prominente navorsingstendense asook 'n kritiese blik op huidige perspektiewe op faktore wat 'n impak het op die lewenskwaliteit van mense wat leef met MIVjVIGS. Aanbevelings word gemaak aangaande aspekte waaroor verdere helderheid verkry moet word, asook oor toekomstige navorsingsvraagstukke. Gegewe die afwesigheid van voldoende behandelingstrategieë of selfs 'n geneesmiddel vir MIV, tesame met die bewys van 'n 10 tot 12 jaar potensiële lewensverwagting, bestaan daar 'n dringende noodsaaklikheid vir grondiger insig in faktore wat lewenskwaliteit beïnvloed. Daar is sterk steun vir die uitgangspunt dat lewenskwaliteit 'n direkte impak het op siekteverloop en derhalwe ook op die duur en kwaliteit van oorlewingstyd. Verbeterde kennis oor die aard en determinante van lewenskwaliteit in MIV-pasiënte sal dus waardevolle inligting kan verskaf in terme van toepaslike riglyne vir intervensies binne 'n biopsigososiale raamwerk.
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Haipinge, Rauha. "Woman vulnerability to HIV/AIDS : an investigation into women's conceptions and experiences in negotiating sex and safe sex in Okalongo constituency, Omusati Region, Namibia." Thesis, Rhodes University, 2013. http://hdl.handle.net/10962/d1004337.
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This study emerged from the high prevalence rate of HIV and AIDS infection among women in Sub-Saharan Africa, which has no exception to Namibia. Women have been vulnerable to HIV and AIDS let alone on sex related issues since the epidemic emerged, but not research has been done specifically to Okalongo women. The way in which women vulnerable to HIV and AIDS infection were explored by examined social and cultural identities that affect women’s sexual relations in negotiating sex and safe sex. Qualitative study on a sample of fifteen women was conducted in Okalongo. The purpose of this study was to investigate the conceptions and experiences of women in negotiating sex and safe sex with their husband and partners. Feminist theory guided the methodology and analysis of data. I assumed that gender roles andsexuality are socially constructed, shaped by religion, social, political, and economic influences and modified throughout life. Feminist theory assisted in documentary the ways in which the female’s gender and sexuality in Okalongo is shaped by cultural influences and by institutions that disadvantage female and other oppressed groups by silencing their voices. The feminist further guided the discussion of the contradicting messages about women’s sexuality and their experiences, as women complied, conformed and even colluded with their oppression. To address the issue under study, the primary analysis of data from the focus group discussion and individual interview were utilised. The following themes were the heart of analysis: Women Positionality, Normalisation and Compliance, Women Agency and Male Dominance Power, Women Perceptions of Risk, Sex Education in and out of school among Women.In this study the data suggested that women in Okalongo are more vulnerable to their lack of assertiveness, as they have difficult in developing an authoritative voice, they tend to be humble about their achievements and knowledge and to only assertively when concerned about others. The findings supported the literature that women’s vulnerability is strongly influenced and tied by broader forces present in the society. Women’s vulnerability is real and needs to be tackled for any progress to occur in the fight against AIDS. Until factors that constraints and enabling women agency to negotiate sex and safe sex acknowledged and addressed, women will continue to succumb to the HIV pandemic.
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Jaiswal, Jessica Lynn. "A qualitative study of urban people of color living with human immunodeficiency virus: challenges related to retention in care, antiretroviral therapy acceptance, and “conspiracy beliefs”." Thesis, 2017. https://doi.org/10.7916/D8GF106X.
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Background: Despite advances in HIV medication, many people living with HIV (PLWH) do not link to care upon diagnosis, do not remain engaged if linked, and do not achieve viral suppression through consistent ART adherence. Not achieving viral suppression is associated with low CD4-cell counts, preventable hospitalizations, frequent emergency room usage, risk of developing a drug resistance, and excess morbidity and mortality. Despite extensive literature that explores barriers to care, these disparities remain, particularly among racial, ethnic and sexual minority groups. Mistrust of health care systems and/or providers is thought to provide a partial explanation for why racial and ethnic minority groups are less likely to access outpatient HIV care. One form of health-related mistrust, referred to as “conspiracy beliefs” in the literature and in popular culture, is particularly associated with racial and ethnic minority people. HIV-related “conspiracy beliefs” can include the ideas that the government created HIV to target specific minority groups, that antiretroviral medication is used to experiment on vulnerable groups, or that a cure is being withheld or delayed by pharmaceutical companies and/or the government. Although many studies have assessed the prevalence of such beliefs, little is known about the possible relationship between endorsing these ideas and engagement from HIV care/ART adherence among PLWH. Moreover, the extant literature has provided equivocal findings that point to the need for further research on the relationship between these beliefs and managing one’s HIV.
Methods: Over the course of one year, 27 semi-structured, in-depth interviews were conducted with low income PLWH of color living in the NYC area that are currently, or were recently, disengaged from outpatient HIV medical care. Additionally, a brief questionnaire was administered to obtain demographic and engagement/medication adherence data to describe the sample of participants.
Findings: This analysis revealed the variation, texture and diversity related to people’s beliefs about the origin and treatment of HIV. Beliefs about the pharmaceutical industry and the government highlighted both the racism and classism experienced by low income who belong to racial and ethnic minority groups. Notably, HIV care providers did not appear to be perceived as part of the government-pharmaceutical power complex. This suggests that while many people may endorse these types of ideas, endorsement does not necessarily directly impact engagement in care. However, endorsing positive beliefs about the efficacy of ART, and the belief that HIV can be a chronic disease if treated consistently, helped participants remain adherent or desire to re-commit to taking it consistently. Participants also appreciated, and desired, providers that engaged in patient-centered medicine.
Recommendations:
It may be that public health does not necessarily need to endeavor to dislodge origin or pharmaceutical/cure-related beliefs; rather, interventions can focus on building trust between health care providers and populations that have been experienced both historically and ongoing marginalization. Participants’ emphasis on wanting to manage their ART-related challenges with their providers suggests that HIV providers have an instrumental role in not only lowering viral loads and achieving viral suppression, but also helping their patients feel agentic and able to manage their HIV. Implementing patient-centered medicine will also engender trust, thereby helping patients internalize the belief that consistent engagement and ART adherence makes HIV a chronic, manageable illness.
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Myeni, Ethel Zandile. "Being a woman and HIV positive in Soweto : a challenge to the church." Thesis, 2007. http://hdl.handle.net/10413/306.
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The main aim of this study was to explore the extent of freedom or lack thereof in the relationships of HIV positive pregnant women and their partners. These women were attending antenatal care in two Soweto clinics, run by the Perinatal HIV Research Unit. A semi-structured interview schedule was developed and used as the data collection tool. A theoretical framework based on Amartya Sen's theory of Development as Freedom and Isabel Apawo Phiri's theological reflections on women's freedom, was used to analyze data collected from the participants of the study. The ideas of the two theorists complemented each other with regard to the sources of "unfreedom" for women from an economic point of view and from the cultural and religious points of view. Sen highlighted lack of basic freedoms and human rights as the core causes of lack of freedom, which is both a primary means and principal ends of development. Phiri advocated for the liberation of women from the oppressive cultural and religious practices brought about by patriarchy. Removal of all those key sources of unfreedom would provide an ideal situation in which women would be less vulnerable to HIV infection. The analysis of the participants' responses in this study suggested a lack of freedom in their relationships with the fathers of their unborn babies. This had an adverse effect in their ability to disclose their HIV positive status, negotiate safer sex and contraception. Economic dependency on the partners was found to be the major cornerstone that kept women in bondage in their relationships. The churches in Soweto did not seem to have any plausible impact in the lives of the participants and as a result all of them had very loose links with the church. This was another major gap in the initiatives to reduce HIV infection which challenges the churches in Soweto to strengthen their prophetic ministry in terms of women's freedom and their dignity both in the church and in society.Thesis (M.A.)-University of KwaZulu-Natal, Pietermaritzburg, 2007
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Thindisa, Johanna Ntlwaneng. "An explorationary study of the types of psychosocial services provided to educators living with HIV at selected primary schools in Limpopo Province." Diss., 2011. http://hdl.handle.net/10500/4820.
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Educators play an essential role within the education system as role models. Many
educators, in addition to being affected by learners living with HIV and AIDS, are
themselves living with HIV and struggle to cope. SMTs have to play a role in the
provision of psychosocial services. The purpose of this study was to explore the types
of psychosocial services provided to ELWHIV by their SMTs in order to gain insight and
understanding and to make suggestions on how psychosocial services can be
improved. A qualitative study was undertaken in 2008. Fifteen interviews were
conducted with ELWHIV and members of SMTs at four primary schools in Bela-Bela,
Limpopo Province. The findings reveal that SMTs are failing to implement government
policies and are not providing adequate support for ELWHIV. None of the participating
schools had a functional AIDS policy. Support structures were found to be inadequate
and ineffective. Disclosure was identified as one of the major obstacles to the provision
of effective services.Sociology
M.A. (Social Behaviour Studies in HIV/AIDS)
7
Thindisa, Johanna Ntlwaneng. "An exploratory study of the types of psychosocial services provided to educators living with HIV at selected primary schools in the Limpopo Province." Diss., 2011. http://hdl.handle.net/10500/4820.
Full textAbstract:
Educators play an essential role within the education system as role models. Many
educators, in addition to being affected by learners living with HIV and AIDS, are
themselves living with HIV and struggle to cope. SMTs have to play a role in the
provision of psychosocial services. The purpose of this study was to explore the types
of psychosocial services provided to ELWHIV by their SMTs in order to gain insight and
understanding and to make suggestions on how psychosocial services can be
improved. A qualitative study was undertaken in 2008. Fifteen interviews were
conducted with ELWHIV and members of SMTs at four primary schools in Bela-Bela,
Limpopo Province. The findings reveal that SMTs are failing to implement government
policies and are not providing adequate support for ELWHIV. None of the participating
schools had a functional AIDS policy. Support structures were found to be inadequate
and ineffective. Disclosure was identified as one of the major obstacles to the provision
of effective services.Sociology
M.A. (Social Behaviour Studies in HIV/AIDS)
8
Moyo, Zvisinei. "School leadership and teachers with HIV/AIDS : stigma and discrimination in Gauteng Province schools." Thesis, 2015. http://hdl.handle.net/10500/20082.
Full textAbstract:
Since the discovery of HIV/AIDS in the late 1980s, the pandemic has become the leading cause of death in South Africa and one of the leading causes worldwide. South Africa has the largest number of people infected with HIV/AIDS in the world. South African teachers, in particular, have experienced unparalleled challenges as a result of HIV/AIDS.
This qualitative research study was designed to explore how principals handle the sensitive HIV/AIDS-related issues affecting teachers in schools in South Africa’s Gauteng Province. The study was carried out within the constructivist paradigm. The narrative inquiry research design within the qualitative research approach was used with purposive and network sampling of participants. The sample consisted of ten handpicked principals and eight teachers living with HIV/AIDS accessed through network sampling from around the province. Data were collected through narrative interviews and the compilation of a reflective diary. The data were analysed according to the qualitative content analysis method. Consent was elicited from participants with confidentiality, anonymity and trust maintained throughout the study.
The participants’ most common responses were that teachers living with HIV/AIDS are faced with the dilemma of disclosure and stigma and discrimination. This research showed that principals are experiencing a range of challenges due to teachers living with HIV/AIDS. The goals of quality education are often defeated because of the challenges surrounding teachers living with HIV/AIDS. Once teachers succumb to the opportunistic illnesses associated with HIV/AIDS, their productivity deteriorates. Principals were clear about the inadequacy that they experience in responding to HIV/AIDS-related issues amongst teachers. They lack the training and management skills to develop long-term strategies to mitigate the impact of HIV/AIDS on teaching and learning. Teacher absenteeism is rife, causing drastically detrimental effects to teaching and learning programmes and posing serious challenges to principals, who are not equipped with the required information and resources. It was evident in this research study that infected teachers often fail to take responsibility or disclose their status; instead, they look to principals for solutions to their HIV/AIDS-related problems.Educational Leadership and Management
D. Ed. (Education Management)
9
Ntshakala, Theresa Thembi. "Quality of life of people living with HIV and AIDS in Swaziland who are on antiretroviral therapy." Thesis, 2013. http://hdl.handle.net/10500/8873.
Full textAbstract:
This study was done to assess the quality of life (QOL) of people living with HIV and AIDS (PLWHA) in Swaziland who are on antiretroviral therapy (ART). No study has been done on QOL of PLWHA in Swaziland who are on ART since it started to be administered in Swaziland in 2001.
A qualitative, exploratory, descriptive, and contextual design was used to assess QOL of PLWHA in Swaziland who are on ART. Twenty-four PLWHA were purposely selected to participate in the study. Methods of data collection used were semi-structured individual in-depth interviews, focus group discussions, and observations. The data (tape-recorded interviews and discussions, and field notes) were transcribed verbatim for data analysis. Data analysed was done using Tesch’s framework of data analysis as described in Creswell (2002:256-283).
The research findings are reflected, with the six domains of QOL identified through a literature review and validated by nurses’ expertise. These domains are the physiological, psychological, spiritual, socio-economic, cognitive, and environmental domains.The study revealed that PLWHA in Swaziland are faced with many challenges concerning ART, namely: inability to meet their nutrition needs, non-adherence to
ART, experience of disfiguring side effects of ARVs, inconsistent condom use, experience of stigma and discrimination, depression, difficulty in accepting and coping with ARVs, lowered self-esteem, a negative influence of some religions on ART, a lack of financial support, poor support systems, poor understanding of ARVs, negative thoughts about HIV and AIDS and ART, an unsatisfactory health care delivery system, a negative influence of culture on ART, and violation of the rights of PLWHA. These challenges negatively influence the QOL of PLWHA and hence the study concluded that PLWHA in Swaziland who are on ART have a poor QOL.
Conclusions drawn from the data analysis reveal that PLWHA in Swaziland are powerless to deal with the above challenges and improve their QOL. The researcher, therefore, developed guidelines to empower PLWHA to deal with these challenges and adhere to ART, thus improving their QOL. Recommendations were made with regard to nursing practice, nursing education, and further nursing research.Health Studies
D. Litt. et Phil. (Health Studies)
10
Barnes, Brian David. "Homeless in Indianapolis: Characteristics of the Sheltered and Long-Term Homeless." Thesis, 2014. http://hdl.handle.net/1805/4025.
Full textAbstract:
Indiana University-Purdue University Indianapolis (IUPUI)Virtually every society can, at some point, be affected by homelessness. In recent years in the United States, homeless rates have hovered around three percent of the entire population. Although this marginalized population has been studied before, little is known regarding the possible characteristics that can keep an individual in homelessness or affect their living conditions while being homeless. This thesis provides an in-depth look at specific characteristics that could be factors in the length of the homeless experience, as well as how these same characteristics could impact the shelter status while an individual is homeless. The study reveals that homelessness in Indianapolis was mostly experienced by those who were male, African-American, and between the ages of 31-50. Furthermore, the majority were found to live in shelters and be homeless for twelve months or less.
Books on the topic "HIV-positive persons – Canada – Social conditions"
1
Sukanta, Putu Oka. Kerlap-kerlip mozaik: Berjuang hidup dengan HIV. [Jakarta]: Ford Foundation, 2000.
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2
Chiao, Chi. Individual- and community-level determinants of social acceptance of people living with HIV in Kenya: Results from a national population-based survey. Calverton, MD: Macro International, 2008.
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3
Han'guk sahoe tongsŏngaeja wa HIV kamyŏmin ŭi sam ŭi chil. Sŏul-si: Chisik kwa Kamsŏng, 2015.
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4
(Firm), Femina HIP, ed. Yaliyopita si ndwele. Dar es Salaam: Femina HIP, 2008.
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5
Zimbabwe Lawyers for Human Rights, ed. Zimbabwe HIV and AIDS human rights charter. Harare?: Zimbabwe Lawyers for Human Rights, 2008.
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6
Touching communities, transforming lives: Stories of sex workers and MSM in alliance India's Avahan programme. New Delhi: India HIV/AIDS Alliance, 2014.
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7
Projet santé familiale et prévention du SIDA. Marcelline et Jojo: Un combat pour la vie. Abidjan: Projet régional santé familiale et prévention du SIDA, 2002.
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8
HIV/AIDS in U.S. communities of color. Dordrecht, [Netherlands]: Springer, 2009.
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9
Chipenembe, Maria Judite Mário. Manual de conceitos e termos básicos sobre a situação do HIV/SIDA em Moçambique. Maputo: Grupo Técnico Multisectorial de Apoio à Luta contra o HIV/SIDA em Moçambique, 2009.
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10
HIV/AIDS in South Africa: 25 years on psychosocial perspectives. New York: Springer, 2009.
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