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Keegel, Tessa, Ollie Black, Ewan MacFarlane, Rwth Stuckey, Anthony LaMontagne, Rosemary Nixon, and Malcolm Sim. "O5B.4 Workers’ compensation claims for occupational contact dermatitis: 20 years of data from victoria, australia." Occupational and Environmental Medicine 76, Suppl 1 (April 2019): A44.1—A44. http://dx.doi.org/10.1136/oem-2019-epi.119.
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BackgroundOccupational contact dermatitis is one of the most common occupational diseases, but there is a lack of reliable information on incidence. Despite acknowledged limitations, workers’ compensation statistics may provide insights into contact dermatitis patterns.ObjectiveThe objective of the study was to characterise historical patterns of workers’ compensation claims for occupational contact dermatitis.MethodsThis was a retrospective analysis of workers’ compensation claims for occupational contact dermatitis from 1996–2015 (n=3,348) accepted by WorkSafe Victoria in Victoria, Australia. Accepted claims per 1 00 000 person-years stratified by sex, age and industry were calculated. Denominators for the population at risk were obtained from the Australian Bureau of Statistics using Victorian Labour Force Survey data.ResultsThe compensation claims rate of occupational contact dermatitis was 6.72 per 1 00 000 person-years for the overall twenty-year period. There was a significant reduction in claims from 11.84 in 1996 to 1.78 in 2015. Males had a higher overall claims rate of 7.97 compared to the rate for females of 5.18. Over the twenty-year period the rate for males decreased from 14.46 to 1.7 compared to a reduction from 8.4 to 1.8 for females. This decrease was still observed when the data were standardised for underlying changes in the age structure of the population. There was an overall decline across all high-risk occupational groupsConclusionsThere was a fivefold decrease in accepted claims for occupational contact dermatitis for the twenty-year period from January 1996 to December 2015 for the state of Victoria in Australia. These results need to be regarded with caution as the declining rate of accepted occupational contact dermatitis claims may indicate changes in workplace dermal exposures or improvements in workplace skin protection practices over time, or they may be driven by underlying changes to the workers’ compensation system or changes to claims behaviour amongst workers.
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Adams, Catina, Leesa Hooker, and Angela Taft. "The Enhanced Maternal and Child Health nursing program in Victoria: a cross-sectional study of clinical practice." Australian Journal of Primary Health 25, no. 3 (2019): 281. http://dx.doi.org/10.1071/py18156.
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The Maternal and Child Health (MCH) service in Victoria comprises a universal service, an enhanced program providing additional support for vulnerable families (EMCH) and a 24-h MCH telephone line. There is anecdotal evidence of variation in EMCH programs between Local Government Areas, and this study aims to explore the variation in EMCH programs to inform future EMCH policy and practice. An online survey was sent to MCH coordinators in Victoria in December 2016 (n = 79), with a response rate of 70% (55/79). Quantitative data have been analysed using descriptive statistics, with open-ended questions examined using content analysis. The data confirms that EMCH programs vary significantly across the state. Differences include a variation in referral and intake criteria, different models of service and modes of delivery, differences in EMCH nurse working conditions, issues with data collection and a lack of systematic clinical tools. Variation in the EMCH program is greatest between urban and rural services and between advantaged and disadvantaged urban councils. Lack of consistent service delivery and data collection impairs program evaluation, including outcome measurement and evidence of program effectiveness.
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Perlstein, Robyn, Scott McCoombe, Susie Macfarlane, Andrew Colin Bell, and Caryl Nowson. "Nutrition Practice and Knowledge of First-Year Medical Students." Journal of Biomedical Education 2017 (August 27, 2017): 1–10. http://dx.doi.org/10.1155/2017/5013670.
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Objectives. To compare the knowledge of Australian dietary recommendations to the dietary practices of first-year medical students. Design. Over a period of four years, anonymous online surveys were completed by medical students attending a first-year nutrition lecture. Background. There is little information on the nutritional knowledge and dietary practices of medical students. Setting. First-year postgraduate university medical students, Geelong, Victoria, Australia. Participants. Between the years 2012 and 2016, 32%–61% of first-year students completed the survey. Phenomenon of Interest. Student’s knowledge of dietary guidelines and related practices. Analysis. The frequency of response was assessed across the different year cohorts using descriptive statistics. Results. Between 59% and 93% of first-year students correctly identified the recommended daily servings for fruit, and between 61% and 84% knew the vegetable recommendations. In contrast only 40%–46% met the guidelines for fruit and 12%–19% met the guidelines for vegetables. Conclusions and Implications. Discrepancies between students’ nutrition knowledge and behavior can provide learning opportunities. With low rates of fruit and vegetable consumption in medical students, increased awareness of links between nutrition and health, together with encouragement to make behavioral changes, may increase the skills of graduates to support patients in improving dietary intake.
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Gill, Stephen D., Sarah Mansfield, Margie McLeod, Kathryn von Treuer, Matthew Dunn, and Frances Quirk. "HealthPathways improving access to care." Australian Health Review 43, no. 2 (2019): 207. http://dx.doi.org/10.1071/ah17090.
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Objective HealthPathways (HPW) is an international web-based information portal that provides health practitioners with guidelines and referral pathways to specialists and services. The present study explored usage of HPW by general practitioners (GPs) in the Barwon region, south-west Victoria, and any benefits and barriers to its use. Methods Approximately 421 GPs provide services in 86 clinics across the Barwon region, south-west Victoria and Barwon Health is the public health service providing acute, subacute, residential aged care and community health services to approximately 350000 people. The present study was a mixed-methods analysis of all GPs in the region, who were invited to complete a survey in two waves (2014 and 2016) and participate in focus groups. Data were survey/questionnaire (fixed response and free text options, analysed with descriptive statistics and content analysis), and focus groups (interview and facilitated group discussion, analysed using the principles of thematic analysis). Results Most GPs surveyed used HPW and usage increased over time from 2014 to 2016 (67% vs 77% respectively). Junior GPs used HPW more often than the more experienced practitioners. GPs reported that HPW was easy to access and navigate, improved their knowledge of local services, improved their confidence, changed their clinical management and saved them time. Main barriers to use of HPW were: GPs did not think to look at HPW, or simply did not know about it. Conclusions HPW has the potential to improve patient management and health outcomes, and use of HPW is increasing over time. What is known about the topic? Initiatives such as HPW are viewed positively by clinicians and have the potential to address challenges at the primary–secondary care interface, specifically, referral to secondary specialists. What does this paper add? Proof of concept that the ongoing availability of localised HPW for common clinical conditions improves GP usage of HPW and has increased access to HPW as the first source of clinical information. Benefits and barriers to use have been identified. What are the implications for practitioners? HPW improves knowledge of local services and provides GPs with easy access to referral pathways.
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De Cieri, Helen, Cathy Sheehan, Ross Donohue, Tracey Shea, and Brian Cooper. "Workplace bullying: an examination of power and perpetrators." Personnel Review 48, no. 2 (March 4, 2019): 324–41. http://dx.doi.org/10.1108/pr-02-2018-0057.
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Purpose The purpose of this paper is to apply the concept of power imbalance to explain workplace and demographic characteristics associated with bullying by different perpetrators in the healthcare sector. Design/methodology/approach All 69,927 members of the Australian Nursing and Midwifery Federation (Victoria) were invited to participate in an online survey in 2014; 4,891 responses were received (7 per cent response rate). Participants were asked about their exposure to workplace bullying (WPB) by different perpetrators. The questionnaire addressed demographic characteristics and perceptions of workplace characteristics (workplace type, leading indicators of occupational health and safety (OHS), prioritisation of OHS, supervisor support for safety and bureaucracy). Analysis involved descriptive statistics and regression analyses. Findings The study found that the exposure of nurses and health workers to bullying is relatively high (with 42 per cent of respondents experiencing WPB in the past 12 months) and there are multiple perpetrators of bullying. The research revealed several demographic predictors associated with the different types of perpetrators. Downward and horizontal bullying were the most prevalent forms. Workplace characteristics were more important predictors of bullying by different perpetrators than were demographic characteristics. Research limitations/implications There are limitations to the study due to a low response rate and the cross-sectional survey. Practical implications Practical implications of this study emphasise the importance of focussed human resource strategies to prevent bullying. Originality/value The key contribution of this research is to draw from theoretical explanations of power to inform understanding of the differences between perpetrators of bullying. The study highlights the workplace characteristics that influence bullying.
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Elliott, Michael. "Analysis of Health Surveys." Journal of the American Statistical Association 96, no. 453 (March 2001): 339–55. http://dx.doi.org/10.1198/jasa.2001.s382.
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Brogan, Donna, Brenda G. Cox, and Steven B. Cohen. "Methodological Issues for Health Care Surveys." Journal of the American Statistical Association 82, no. 400 (December 1987): 1189. http://dx.doi.org/10.2307/2289414.
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Atyeo, Paul, and Marelle Rawson. "Health surveys conducted by the Australian Bureau of Statistics." New South Wales Public Health Bulletin 12, no. 8 (2001): 237. http://dx.doi.org/10.1071/nb01080.
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Sirken, Monroe G., and Iris M. Shimizu. "Linked surveys of health services utilization." Statistics in Medicine 26, no. 8 (2007): 1788–801. http://dx.doi.org/10.1002/sim.2799.
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Metcalf, Patricia, and Alastair Scott. "Using multiple frames in health surveys." Statistics in Medicine 28, no. 10 (May 10, 2009): 1512–23. http://dx.doi.org/10.1002/sim.3566.
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Walters, Julie Lynette, Shylie Mackintosh, and Lorraine Sheppard. "The journey to total hip or knee replacement." Australian Health Review 36, no. 2 (2012): 130. http://dx.doi.org/10.1071/ah11050.
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Objectives. Despite the incidence of joint replacements in Australia, there is a paucity of information regarding how patients progress from their referral to their surgery. The aim of this study was to describe a patient pathway from referral to receipt of total hip replacement (THR) or total knee replacement (TKR) surgery in South Australian public hospitals. Methods. Patient perspectives of the pathway to THR and TKR surgery were obtained via a postal survey (n = 450) and hospital employee perspectives were attained via semi-structured interviews (n = 19). Survey data were analysed using descriptive statistics and interview data were analysed thematically. Results. A typical patient pathway to THR and TKR surgery can be divided into two distinct phases; referral-to-initial appointment (9–24 months), and initial appointment-to-surgery (12–15 months). This gives an overall waiting period between 2 and 3 years for THR or TKR surgery. Conclusions. Waiting times for THR and TKR surgery reported in this study were longer than other reports in the literature. Current Australian health policy does not consider the first (and longest) phase of the patient pathway. Excluding this initial phase could be generating an erroneous perception of the patient pathway to THR or TKR surgery, possibly leading to poorly considered health reforms. What is known about the topic? Meeting the demand for elective surgery services in public hospitals is an ongoing challenge for governments and health systems alike. The persistent mismatch between supply and demand has resulted in the development of waiting lists for elective total hip replacement (THR) and total knee (TKR) replacement surgery in Australia. Current state-level health policies such as the Policy Framework and Associated Procedural Guidelines for Elective Surgery Services in South Australia or the Elective Surgery Access Policy in Victoria, outline a generic pathway consisting of a few linear steps that occur immediately before receipt of surgery, without consideration of the early stages of the journey. Aside from these types of policies, we were unable to identify any published literature outlining the patient journey from referral to receipt of THR or TKR surgery. As such, our understanding of the issue is inadequate due the paucity of existing research evidence. What does this paper add? Our current understanding of the patient journey to THR and TKR surgery is limited to the perspective of the policy-makers, whose focus is the organisation of waiting lists and the systematic progression of an individual through the elective surgery system. This perspective reinforces the assumption that it is a simple, linear process and may lead to erroneous judgements regarding the impact that the patient pathway has on an individual and the time it takes to progress along that pathway. This study presents the patient pathway from the perspective of individuals working within the systems responsible for delivering THR and TKR surgery and from patients who have received a joint replacement in a South Australian public hospital. As such, this paper provides new insight into the length, impact and features of the entire patient journey, rather than a snap-shot of the final stages. What are the implications for practitioners? This study is the first step towards better understanding of the patient pathway to joint replacement surgery in Australian public hospitals. Greater understanding of the complete pathway and identification of areas of congestion within the pathway, as evidenced by longer waiting periods, offers insight into areas with the potential for effective reforms. Should the patient pathway be significantly altered, the experience of practitioners responsible for the interim and postoperative management of patients undergoing THR and TKR surgery will also be changed. Additionally, practitioners currently frustrated by the long delays experienced by their patients who are in need of elective surgery in Australian public hospitals, could have that frustration abated by system improvements that reduce the length and complexity of the pathway to joint replacement surgery.
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Metcalfe, Jenni, and Michelle Riedlinger. "Identifying and Testing Engagement and Public Literacy Indicators for River Health." Science, Technology and Society 14, no. 2 (July 2009): 241–67. http://dx.doi.org/10.1177/097172180901400203.
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Natural resource management (NRM) organisations in Australia are increasingly recognising the need for complement studies of biophysical condition of the environment with studies of social condition, such as values, understanding, and participation related to the environment. Relevant and reliable social indicators that can be scaled and measured on a regular basis are essential to meet this need. In this study, we identified four indicators to test the social condition of the public in the State of Victoria in Australia with regard to river health. These indicators were river use, river knowledge and literacy, values and aspirations, and river health behaviours. We tested the four indicators through telephone and web-based surveys with over 1000 people in three areas of Victoria. We analysed the survey data statistically and gathered baseline data on the social condition of river health in the three regions. We made recommendations for how this data could be interpreted and used in community engagement and science communication programmes about river health. We also examined the limitations of the methodology and recommended modifications to the survey design and application for an anticipated roll-out of the survey across the entire State of Victoria. The Victorian Department of Sustainability and Environment (DSE) will use this survey instrument to test social indicators on a regular basis.
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Jorm, Christine, Robyn Hudson, and Euan Wallace AM. "Turning attention to clinician engagement in Victoria." Australian Health Review 43, no. 2 (2019): 123. http://dx.doi.org/10.1071/ah17100.
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The engagement of clinicians with employing organisations and with the broader health system results in better safer care for patients. Concerns about the adequacy of clinician engagement in the state of Victoria led the Victorian Department of Health and Human Services to commission a scoping study. During this investigation more than 100 clinicians were spoken with and 1800 responded to surveys. The result was creation of a clear picture of what engagement and disengagement looked like at all levels – from the clinical microsystem to state health policy making. Multiple interventions are possible to enhance clinician engagement and thus the care of future patients. A framework was developed to guide future Victorian work with four elements: setting the agenda, informing, involving and empowering clinicians. Concepts of work or employee engagement that are used in other industries don’t directly translate to healthcare and thus the definition of engagement chosen for use centred on involvement. This was designed to encourage system managers to ensure clinicians are full participants in design, planning and evaluation and in all decisions that affect them and their patients.
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Ali, Jennifer S., Sarah McDermott, and Ronald G. Gravel. "Recent Research on Immigrant Health from Statistics Canada’s Population Surveys." Canadian Journal of Public Health 95, no. 3 (May 2004): I9—I13. http://dx.doi.org/10.1007/bf03403659.
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Griffiths, Daniel, Luke Sheehan, Dennis Petrie, Caryn van Vreden, Peter Whiteford, and Alex Collie. "The health impacts of a 4-month long community-wide COVID-19 lockdown: Findings from a prospective longitudinal study in the state of Victoria, Australia." PLOS ONE 17, no. 4 (April 7, 2022): e0266650. http://dx.doi.org/10.1371/journal.pone.0266650.
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Objectives To determine health impacts during, and following, an extended community lockdown and COVID-19 outbreak in the Australian state of Victoria, compared with the rest of Australia. Methods A national cohort of 898 working-age Australians enrolled in a longitudinal cohort study, completing surveys before, during, and after a 112-day community lockdown in Victoria (8 July– 27 October 2020). Outcomes included psychological distress, mental and physical health, work, social interactions and finances. Regression models examined health changes during and following lockdown. Results The Victorian lockdown led to increased psychological distress. Health impacts coincided with greater social isolation and work loss. Following the extended lockdown, mental health, work and social interactions recovered to an extent whereby no significant long-lasting effects were identified in Victoria compared to the rest of Australia. Conclusion The Victorian community lockdown had adverse health consequences, which reversed upon release from lockdown. Governments should weigh all potential health impacts of lockdown. Services and programs to reduce the negative impacts of lockdown may include increases in mental health care, encouraging safe social interactions and supports to maintain employment relationships.
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Gray, Shannon Elise, Belinda J. Gabbe, and Alex Collie. "Work absence due to compensable RTCs in Victoria, Australia." Injury Prevention 26, no. 1 (December 15, 2018): 11–17. http://dx.doi.org/10.1136/injuryprev-2018-043019.
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IntroductionRTC burden is commonly measured using fatality or hospitalisation statistics. However, non-fatal and less severe injuries contribute substantial economic and human costs, including work absence. In Victoria, Australia, two major compensation systems provide income support to employed people injured in RTCs; workers’ compensation (if RTC occurred during work) and an RTC-specific compensation system. This study aimed to describe the number and rate of episodes of work absence due to compensable RTC and determine factors associated with work-related RTC resulting in work absence.MethodsAdministrative data for working-age people (15–65 years) with accepted compensation claims between 1 July 2003 and 30 June 2013 were extracted from Victoria’s Compensation Research Database and analysed. Injured people receiving at least one day of income support were retained. Rate calculations used Victoria’s labour force as the denominator and negative binomial regression determined any time-based trend changes. Multivariable logistic regression was used to determine odds of the RTC being work-related.ResultsThere were 40 677 claims made by workers with an RTC injury that consequently missed work, averaging 4068 claims per year at a rate of 12.9 per 100 000 working population. Work-related cases contributed 17.4% (N=7061). Males, older adults and RTCs involving heavy vehicles, buses, trains and trams had higher odds of a work-related RTC resulting in work absence. More severe injuries tended not to be work-related.ConclusionsWork absence due to RTC injury constitutes a substantial burden, and this measure could provide a valuable addition to conventional RTC statistics.
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Falster, Kathleen, Linda Gelgor, Ansari Shaik, Iryna Zablotska, Garrett Prestage, Jeffrey Grierson, Rachel Thorpe, et al. "Trends in antiretroviral treatment use and treatment response in three Australian states in the first decade of combination antiretroviral treatment." Sexual Health 5, no. 2 (2008): 141. http://dx.doi.org/10.1071/sh07082.
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Objectives: To determine if there were any differences in antiretroviral treatment (ART) use across the three eastern states of Australia, New South Wales (NSW), Victoria and Queensland, during the period 1997 to 2006. Methods: We used data from a clinic-based cohort, the Australian HIV Observational Database (AHOD), to determine the proportion of HIV-infected patients on ART in selected clinics in each state and the proportion of treated patients with an undetectable viral load. Data from the national Highly Specialised Drugs program and AHOD were used to estimate total numbers of individuals on ART and the proportion of individuals living with HIV on ART nationally and by state. Data from the HIV Futures Survey and the Gay Community Periodic Survey were used to determine the proportion of community-based men who have sex with men on ART. The proportion of patients with primary HIV infection (PHI) who commenced ART within 1 year of diagnosis was obtained from the Acute Infection and Early Disease Research Program (AIEDRP) CORE01 protocol and Primary HIV and Early Disease Research: Australian Cohort (PHAEDRA) cohorts. Results: We estimated that the numbers of individuals on ART increased from 3181 to 4553 in NSW, 1309 to 1926 in Victoria and 809 to 1615 in Queensland between 2000 and 2006. However, these numbers may reflect a lower proportion of individuals living with HIV on ART in NSW compared with the other states (37% compared with 49 and 55% in 2000). We found similar proportions of HIV-positive men who have sex with men participants were on ART in all three states over the study period in the clinic-based AHOD cohort (81–92%) and two large, community-based surveys in Australia (69–85% and 49–83%). Similar proportions of treated patients had an undetectable viral load across the three states, with a consistently increasing trend over time observed in all states. We found that more PHI patients commenced treatment in the first year following HIV diagnosis in NSW compared with Victoria; however, the sample size was very small. Conclusions: For the most part, patterns of ART use were similar across NSW, Victoria and Queensland using a range of available data from cohort studies, community surveys and national prescription databases in Australia. However, there may be a lower proportion of individuals living with HIV on ART in NSW compared with the other states, and there is some indication of a more aggressive treatment approach with PHI patients in NSW compared with Victoria.
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Raghunathan, Trivellore E. "Combining information from multiple surveys for assessing health disparities." Allgemeines Statistisches Archiv 90, no. 4 (November 2, 2006): 515–26. http://dx.doi.org/10.1007/s10182-006-0003-0.
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Prestage, Garrett, Jason Ferris, Jeffrey Grierson, Rachel Thorpe, Iryna Zablotska, John Imrie, Anthony Smith, and Andrew E. Grulich. "Homosexual men in Australia: population, distributionand HIV prevalence." Sexual Health 5, no. 2 (2008): 97. http://dx.doi.org/10.1071/sh07080.
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Objectives: To assess the size, distribution and changes in the population of homosexual and bisexual men in Australia, and the capacity of available measures to make this estimation. Methods: We used data from five sources: the Australian Study of Health and Relationships, the Gay Community Periodic Surveys, HIV Futures, the Health in Men cohort study, the Australian National HIV and AIDS Registries and the Australian Household Census. Results: We estimated that in 2001 there were ~74 000 homosexual and bisexual men in New South Wales (NSW), ~42 000 in Victoria and ~37 000 in Queensland. There was, however, some discrepancy between datasets in the estimates of the overall proportions and distribution of homosexual and bisexual men across states. We also estimated HIV prevalence rates among homosexual and bisexual men in 2001 at ~8% in NSW, 5% in Victoria and 4% in Queensland. There were insufficient data to estimate whether the state-specific populations of homosexual men were changing with time. Conclusion: There are ~75% more homosexual and bisexual men in NSW than in Victoria and about twice as many as in Queensland. There are about two-thirds as many HIV-positive men in NSW as in Victoria and Queensland combined. Improved collection of population-based data on homosexuality are required.
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Evans, William N., Helen Levy, and Kosali I. Simon. "Data Watch: Research Data in Health Economics." Journal of Economic Perspectives 14, no. 4 (November 1, 2000): 203–16. http://dx.doi.org/10.1257/jep.14.4.203.
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In this paper, we discuss some important data sets that can be used by economists interested in conducting research in health economics. We describe six types of data sets: health components of data sets traditionally used by economists; longitudinal surveys of health and economic behavior; data on employer-provided insurance; cross-sectional surveys of households that focus on health; data on health care providers; and vital statistics. We summarize some of the leading surveys, discuss the availability of the data, identify how researchers have utilized these data and when possible, include a web address that contains more detailed information about each survey.
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Hocking, Jane S., Jessika Willis, Sepehr Tabrizi, Christopher K. Fairley, Suzanne M. Garland, and Margaret Hellard. "A chlamydia prevalence survey of young women living in Melbourne, Victoria." Sexual Health 3, no. 4 (2006): 235. http://dx.doi.org/10.1071/sh06033.
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Background: To estimate the population-based chlamydia prevalence among women aged 18 to 35 years living in Melbourne, Victoria, and to assess the feasibility of using mailed urine specimens to test women. Methods: A simple random sample of 11 001 households in Melbourne was selected from the telephone directory. Participants completed telephone interviews and provided urine specimens through the mail for chlamydia testing. Urines were tested using polymerase chain reaction. Results: 11 001 households were contacted, with 1532 households identified as including eligible women; telephone interviews were completed, with 979 women giving a response rate of 64%. Six hundred and fifty-seven women provided a urine specimen with a response rate of 43%. Among sexually active women aged 18–24 years, the chlamydia prevalence was 3.7% (95% CI: 1.2%, 8.4%) and 0.2% (95% CI: 0.0%, 1.1%) among 25–35 year olds. Chlamydia prevalence increased significantly with an increasing number of male sexual partners. Conclusions: This is the first study of its kind in Australia and shows that chlamydia prevalence increases with an increasing number of male sexual partners in the last 12 months. Mailed urine specimens are feasible for conducting population-based chlamydia-prevalence surveys but it is difficult to obtain high response rates with this methodology. Public health resources should now be directed towards investigating how to reach young women at increased risk of infection, ensuring that they are tested for chlamydia.
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Davis, B. A., C. R. Heathcote, and T. J. O'Neill. "Estimating cohort health expectancies from cross-sectional surveys of disability." Statistics in Medicine 20, no. 7 (2001): 1097–111. http://dx.doi.org/10.1002/sim.724.
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Tse, K., Y. Peña, K. Arntsen, S. C. Bae, L. Bloch, I. N. Bruce, K. Costenbader, et al. "AB1338-HPR GLOBAL PATIENT PERSPECTIVE ON TOP CHALLENGES IN LUPUS CARE AND RESEARCH PARTICIPATION." Annals of the Rheumatic Diseases 79, Suppl 1 (June 2020): 1957.1–1957. http://dx.doi.org/10.1136/annrheumdis-2020-eular.2871.
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Background:The Addressing Lupus Pillars for Health Advancement (ALPHA) Project is a global consensus initiative to identify, prioritize and address top barriers in lupus drug development, clinical care and access to care. The Lupus Foundation of America convenes ALPHA with Tufts Center for the Study of Drug Development and a Global Advisory Committee of lupus experts representing clinician-scientists, industry and patients.Objectives:Collect global patient input to determine alignment with the lupus clinician-scientist community on prior published consensus of top lupus barriers.Methods:A 23-question online Qualtrics survey was developed to identify challenges across lupus diagnosis, clinical care and research participation. The survey, available in English, Spanish, Korean and simplified Chinese, was fielded in November 2019 to people with lupus and caregivers of children <18 with lupus. SPSS 26 and SAS 9.4 were used for descriptive statistics and sub-analysis.Results:Analysis included only consented responses with ≥ 68% survey completion (n=3,447) received across 83 countries. 95% were female with a mean age of 45. Respondents reported being White (57%), Black or of African descent (14%), Hispanic or Latino (18%) and Asian (10%). 65% resided in the US while 35% resided in countries outside of the US. 97% were people with lupus while 3% were caregivers to children <18 with lupus.Highest ranked challenges were similar globally and across children and adults: medication side effects, lack of treatment options and high out-of-pocket costs. Managing side effects ranked significantly higher (p<.05) outside of the US (48%) compared to US (40%). 50% of caregivers reported managing side effects as the top challenge for children compared to 43% of adults (p<.05). Research participation was low (24%) and lower among children (16%). The top reason for not participating in a clinical trial was not being asked by their doctor.Conclusion:This global survey revealed that medication side effects and lack of effective treatments are top challenges for people with lupus, including children. Most respondents were never asked by their doctors to participate in a clinical trial, which may explain difficulties in trial recruitment. These barriers are consistent with prior published barriers identified by the clinician-scientist community.Acknowledgments:ALPHA sponsors: EMD Serono, GSK, Aurinia, MallinckrodtDisclosure of Interests:Karin Tse: None declared, Yaritza Peña: None declared, Kathleen Arntsen: None declared, Sang-Cheol Bae: None declared, Lauren Bloch Consultant of: Faegre Drinker Consulting is a division of Faegre Drinker Biddle & Reath, a law and consulting firm that represents patient advocacy organizations and sponsors developing drugs, Ian N. Bruce Grant/research support from: Genzyme Sanofi, GSK, and UCB, Consultant of: Eli Lilly, AstraZeneca, UCB, Iltoo, and Merck Serono, Speakers bureau: UCB, Karen Costenbader Grant/research support from: Merck, Consultant of: Astra-Zeneca, Bradley Dickerson Employee of: Aurinia, Thomas Dörner Grant/research support from: Janssen, Novartis, Roche, UCB, Consultant of: Abbvie, Celgene, Eli Lilly, Roche, Janssen, EMD, Speakers bureau: Eli Lilly, Roche, Samsung, Janssen, Kenneth Getz: None declared, Amy Kao Employee of: EMD Serono, Susan Manzi: None declared, Eric F. Morand Grant/research support from: AstraZeneca, Consultant of: AstraZeneca, Speakers bureau: AstraZeneca, Sandra Raymond: None declared, Brad H Rovin Grant/research support from: GSK, Consultant of: GSK, Laura Schanberg Grant/research support from: Sobi, BMS, Consultant of: Aurinia, UCB, Sanofi, Victoria Werth Grant/research support from: Biogen, Celgene, Gilead, Janssen, Viela, Consultant of: Biogen, Gilead, Janssen, Abbvie, GSK, Resolve, AstraZeneca, Amgen, Eli Lilly, EMD Serono, BMS, Viela, Kyowa Kirin, Joan Von Feldt Shareholder of: GSK, Employee of: GSK, David Zook Consultant of: Faegre Drinker Consulting is a division of Faegre Drinker Biddle & Reath, a law and consulting firm that represents patient advocacy organizations and sponsors developing drugs, Leslie Hanrahan: None declared
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Zablotska, Iryna B., Garrett Prestage, Andrew E. Grulich, and John Imrie. "Differing trends in sexual risk behaviours in three Australian states: New South Wales, Victoria and Queensland, 1998-2006." Sexual Health 5, no. 2 (2008): 125. http://dx.doi.org/10.1071/sh07076.
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Background: In Australia, the HIV epidemic is concentrated among gay men. In recent years, the number of new diagnoses stabilised in New South Wales (NSW), but increased in other states. We reviewed the trends in sexual behaviours to explain this difference. Methods: We used the Gay Community Periodic Surveys in NSW, Victoria and Queensland during 1998–2006 and restricted analyses to the 30–49 year olds who contribute most of the HIV cases. We used the χ2-test for trends in unprotected anal intercourse with casual partners (UAIC) and regular partners, number of partners, type of relationships, knowledge of HIV serostatus and its disclosure. We compared behaviours of HIV-positive and -negative men and men across states using logistic regression adjusted for the year of report. Results: Trends in behaviours differed across the states: following a period of increase, UAIC prevalence declined in NSW since 2001, but continued to increase in Victoria and Queensland. There were other changes in NSW that were not observed in Victoria and Queensland: a decline in factors increasing HIV risk (the proportions of men with multiple sex partners and men engaging in UAIC and not knowing or not disclosing HIV serostatus) and an increase in behaviours reducing it (the proportions of men in monogamous relationships and men disclosing HIV serostatus while having UAIC). Conclusion: There were patterns of declining HIV risk behaviours in NSW, and increasing risk behaviours elsewhere, that mirrored recent changes in HIV case notifications in Australia. These data suggest that behavioural surveillance can predict changes in HIV epidemiology.
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Kopra, Juho, Juha Karvanen, and Tommi Härkänen. "Bayesian models for data missing not at random in health examination surveys." Statistical Modelling 18, no. 2 (September 19, 2017): 113–28. http://dx.doi.org/10.1177/1471082x17722605.
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In epidemiological surveys, data missing not at random (MNAR) due to survey nonresponse may potentially lead to a bias in the risk factor estimates. We propose an approach based on Bayesian data augmentation and survival modelling to reduce the nonresponse bias. The approach requires additional information based on follow-up data. We present a case study of smoking prevalence using FINRISK data collected between 1972 and 2007 with a follow-up to the end of 2012 and compare it to other commonly applied missing at random (MAR) imputation approaches. A simulation experiment is carried out to study the validity of the approaches. Our approach appears to reduce the nonresponse bias substantially, whereas MAR imputation was not successful in bias reduction.
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Easthope, Gary, Bruce Tranter, and Gerard Gill. "The Incorporation of a Complementary Therapy by Australian General Practitioners: The Case of Acupuncture." Australian Journal of Primary Health 7, no. 1 (2001): 76. http://dx.doi.org/10.1071/py01012.
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Complementary therapies may be rejected by doctors as quackery or incorporated as part of their practice, although such incorporation may be limited. In Australia acupuncture has been incorporated as a normal part of general practice, although it is not accepted as an orthodox technique. This incorporation is demonstrated through analysis of national data on acupuncture usage and through analysis of two surveys of general practitioners undertaken independently in the states of Tasmania and Victoria, Australia. Further, it is argued, from examination of interview and focus group responses, that experienced doctors turn to acupuncture to deal with patients who do not respond to orthodox therapies. This move is possible because the valuing of clinical judgement allows practitioners to suspend their scientific judgement of the therapy although they are uneasy about doing so.
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Nagpal, Karan, Mitali Roy Mathur, Abhilash Biswas, and Andrew Fraker. "Who do phone surveys miss, and how to reduce exclusion: recommendations from phone surveys in nine Indian states." BMJ Global Health 6, Suppl 5 (August 2021): e005610. http://dx.doi.org/10.1136/bmjgh-2021-005610.
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Computer-assisted telephone interviews (CATI) through mobile phones are a low-cost, rapid and safe way to collect data. However, decisions for how such mobile phone surveys are designed and implemented, and their data analysed, can have implications for the sample reached, and in turn affect the generalisability of sample estimates. In this practice paper, we propose a framework for extending the use of CATI–mobile phone surveys in India, which can be applied broadly to future surveys conducted using this method. Across the stages of design, implementation and analysis, we outline challenges in ensuring that the data collected through such surveys are representative and provide recommendations for reducing non-coverage and non-response errors, thereby enabling practitioners in India to use CATI–mobile phone surveys to estimate population statistics with lower bias. We support our analysis by drawing on primary data that we collected in five mobile phone surveys across nine Indian states in 2020. Our recommendations can help practitioners in India improve the representativeness of data collected through mobile phone surveys and generate more accurate estimates.
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Racine, Andrew D. "Poverty and Health." Pediatrics In Review 16, no. 10 (October 1, 1995): 396–97. http://dx.doi.org/10.1542/pir.16.10.396.
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The effect of poverty on the health of children is profound and enduring. Although the United States ranks seventh in per capita income among the world's industrial societies, at least one in five American children currently lives in a family whose income is below the federal poverty level. The extent to which material deprivation of this magnitude harms these children can be measured through a variety of instruments, including vital statistics, population surveys based on parental report, and health examination surveys. Wise and Meyers provided a recent overview of the relationship between poverty and child health. They characterized a dual mechanism by which poverty may increase the risk of ill health among children: It can increase the probability of adverse events occurring and it can augment the impact that these events have on the children to whom they occur.
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Swerissen, Hal, and Linda Tilgner. "Development and Validation of the Primary Care Consumer Opinion Survey." Australian Journal of Primary Health 7, no. 1 (2001): 34. http://dx.doi.org/10.1071/py01005.
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Using past measures of consumer feedback, the aim of the present study was to construct a consumer opinion survey for use in community health centre settings; to pilot the survey instrument across a number of community health centres; and to validate the instrument. A total of 950 consumers attending one of six targeted services (physiotherapy, dental, podiatry, counselling/social work, dietetics, and speech pathology) across four northern metropolitan community health centres in Victoria were invited to participate. Returned surveys were analysed using principal component analysis and the extracted scales were tested for internal consistency and validity. Out of the 950 surveys distributed 471 were returned (response rate of 50%). The survey instrument was found to measure consumer opinion regarding satisfaction with centre environment and satisfaction with service provision. The centre environment scale consisted of one factor, with a Cronbach alpha of .80. The service provision scale consisted of two factors: 'aspects of the service provider' and 'benefits of the visit'. Reliability for the total scale was .93. The two scales correlated moderately with a validity item measuring overall satisfaction. The Primary Health Care Consumer Opinion Survey is a reliable and valid measure, which provides the potential for the establishment of norms to assess consumer opinion.
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Campostrini, Stefano, and Pierantonio Bellini. "Sick-leave and Other Job-related Health Issues from Labour Force Surveys Data." International Statistical Review 68, no. 2 (August 2000): 189–98. http://dx.doi.org/10.1111/j.1751-5823.2000.tb00321.x.
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Woyo, Erisher, and Elmarie Slabbert. "Cross-border destination marketing of attractions between borders: the case of Victoria Falls." Journal of Hospitality and Tourism Insights 2, no. 2 (June 3, 2019): 145–65. http://dx.doi.org/10.1108/jhti-10-2018-0073.
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PurposeThe success of tourism destinations is in many cases measured from a competitive advantage perspective, not from a collaborative advantage perspective, which limits the possibilities of destination marketing in a collaborative cross-border context. Currently, the marketing efforts of Victoria Falls are highly fragmented as each country promotes the attraction separately. The purpose of this paper is to explore the cross-border destination marketing possibilities and realities of Victoria Falls from a demand and supply side perspective.Design/methodology/approachA quantitative approach was applied in this study, with two separate surveys being conducted. Data for the demand side were collected by means of a questionnaire that was distributed by fieldworkers, while data for the supply side were collected online. The data were analysed using descriptive statistics, factor analyses and one-way analysis of variance.FindingsFive specific tourist motivations for visiting Victoria Falls were identified using demand data, of which sightseeing and destination attributes were the most important. Significant differences were found for tourists’ cross-border experiences using different border access points. Using supply data, challenges and opportunities of cross-border marketing were analysed. The most important opportunity was identified as cooperation, while the key challenges were economic and policy related. It is important to see the bigger picture and how cooperation can benefit both countries, which is unfortunately not currently the case for Zambia and Zimbabwe.Practical implicationsThere is a need for tourism destinations to shift from competition-based strategies to collaboration-based strategies in order to be successful. Cross-border marketing requires that each country understands tourists’ motivations and experiences. For Zambia and Zimbabwe to increase their tourist arrivals, income and investment opportunities, both countries must move away from isolating their marketing efforts of Victoria Falls. It is important to look beyond the individual benefits for each country and focus on the combined benefits. The challenges identified in this study must be addressed if Zambia and Zimbabwe’s cross-border marketing of Victoria Falls is to be effective. The integration of demand and supply views is thus critical for cross-border marketing to be effective and successful.Originality/valueResearch on cross-border destination marketing of shared border attractions is limited. With regard to Victoria Falls, such research has never been explored in an academic context. This study has value for destination marketers of Zambia and Zimbabwe, especially for attractions that are shared between their borders such as Victoria Falls and Kariba Dam. Additionally, the study has implications for attractions that are shared across the borders of southern African countries like Zimbabwe, South Africa and Mozambique, as well as other attractions shared between borders in the global context.
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Korn, Edward L., and Barry I. Graubard. "Analysis of Large Health Surveys: Accounting for the Sampling Design." Journal of the Royal Statistical Society. Series A (Statistics in Society) 158, no. 2 (1995): 263. http://dx.doi.org/10.2307/2983292.
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Silva, Renato Pereira da, Andréa Videira Assaf, Aline Sampieri Tonello, Gláucia Maria Bovi Ambrosano, Silvia Helena de Carvalho Salles Peres, Marcelo de Castro Meneghim, and Antonio Carlos Pereira. "Dental caries surveys." Arquivos em Odontologia 57 (March 15, 2022): 260–65. http://dx.doi.org/10.35699/2178-1990.2021.26960.
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Aim: To evaluate the impact of the recording of teeth whose clinical conditions rarely vary (anterior teeth and third molars) in inter-examiner agreement measurements. Methods: Clinical data from 56 schoolchildren, 12 years of age, previously collected by two examiners, according to the “Oral Health Surveys: basic methods” codes and criteria, were analyzed in the present study. The effects from including/excluding such teeth upon reproducibility were measured by general percentage agreement (GPA) and Kappa statistics (к) performances. Results: The exclusion of anterior teeth associated with the inclusion of third molars produced a decrease in GPA that was simultaneous to an increase in the weighted Kappa (nominal data) and simple (dichotomous data) values. The incorrect inclusion of third molars (GPA = 100%; к = + 1) in the reproducibility measurement artificially increased the inter-examiner Kappa values. Conclusion: The inclusion/exclusion of anterior teeth and third molars, seeking a more reliable agreement among examiners, can have a positive or negative impact on the measured reproducibility values. A clear warning about the impact of including third molars in the reproducibility measurement, in the 12 years old age group, should be performed in “Oral Health Surveys: basic methods” and similar manuals.
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Comino, Elizabeth J., Oshana Hermiz, Jeff Flack, Elizabeth Harris, Gawaine Powell Davies, and Mark F. Harris. "Using population health surveys to provide information on access to and use of quality primary health care." Australian Health Review 30, no. 4 (2006): 485. http://dx.doi.org/10.1071/ah060485.
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Objective: Currently, primary health care (PHC) is under-represented in health statistics due to the lack of a comprehensive PHC data collection. This research explores the utility of population health surveys to address questions relating to access to and use of PHC, using diabetes as an example. Methods: Drawing on published material relating to diabetes management, we developed a conceptual framework of access to and use of quality PHC. Using this framework we examined three recent population-based health surveys ? the 2001 National Health Survey, 2002?03 NSW Health Survey, and AusDiab ? to identify relevant information collection. Results: We identified seven domains comprising aspects of quality PHC for people with diabetes. For each domain we proposed associated indicators. In critiquing the three population health surveys in relation to these indicators, we identified strengths and weaknesses of the data collections. Conclusion: This approach could inform the development of questions and extension of population health surveys to provide a better understanding of access to and use of quality PHC in Australia. The additional information would complement other data collections with a communitybased perspective and contribute to the develop- ment of PHC policy.
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O'Neill, Cas. "Placement Disruption… A review of the literature." Children Australia 18, no. 3 (1993): 28–29. http://dx.doi.org/10.1017/s1035077200003539.
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This article is based on a small part of a review of relevant literature for a Master of Social Work thesis entitled, ‘Do You Mean We're Not The Only Ones?… Experiences of Permanent Placement Disruption’. Statistics and trends from the State of Victoria have been included where relevant.
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Wood, Debra A., Debra A. Wood, and Philip M. Burgess. "Epidemiological Analysis of Electroconvulsive Therapy in Victoria, Australia." Australian & New Zealand Journal of Psychiatry 37, no. 3 (June 2003): 307–11. http://dx.doi.org/10.1046/j.1440-1614.2003.01182.x.
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Objective: To determine the population-based utilization rate of electroconvulsive therapy (ECT) in Victoria between 1998–1999, to examine the characteristics of the ECT treated group, and to identify patient factors independently associated with differential rates of ECT treatment. Method: Electroconvulsive therapy is reported under statute in Victoria, Australia. Crude, age-adjusted and age–sex specific utilization rates were calculated using this statutory data for the 1998–1999 financial year and estimated mid-year populations from the Australian Bureau of Statistics. Descriptive characteristics of those treated with ECT were derived from the statutory data. Patient factors associated with an increased likelihood of ECT in the public sector were explored with logistic regression analysis, using non-ECT treated mental health patients from the Victorian Psychiatric Case Register as the reference population. Results: The crude treated-person and age-adjusted rates for the State (both public and private sectors) were 39.9 and 44.0 persons per 100 000 resident population per annum, respectively. The crude and age-adjusted administration rates were 330.3 and 362.6 ECT administrations per 100 000 resident population per annum, respectively. Age–sex specific rates varied by age and sex, with rates generally increasing with age and female sex. Overall, 62.8% of the treated group were women, 32.9% aged over 64, and 75.2% had depression. Diagnosis, age and sex each independently predicted ECT in the public sector, with diagnosis the most important factor, followed by age then sex. Conclusions: Despite decades of use, the appropriate rate of ECT utilization is still unclear. Further research should be directed at exploring the factors, including provider variables, determining ECT treatment.
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Schenker, Nathaniel, and Trivellore E. Raghunathan. "Combining information from multiple surveys to enhance estimation of measures of health." Statistics in Medicine 26, no. 8 (2007): 1802–11. http://dx.doi.org/10.1002/sim.2801.
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GREEN, HELEN K., JOSE C. SOUSA-FIGUEIREDO, MARIA-GLORIA BASÁÑEZ, MARTHA BETSON, NARCIS B. KABATEREINE, ALAN FENWICK, and J. RUSSELL STOTHARD. "Anaemia in Ugandan preschool-aged children: the relative contribution of intestinal parasites and malaria." Parasitology 138, no. 12 (August 8, 2011): 1534–45. http://dx.doi.org/10.1017/s0031182011001016.
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SUMMARYAnaemia is a severe public health issue among African preschool-aged children, yet little effective progress has been made towards its amelioration, in part due to difficulties in unravelling its complex, multifactorial aetiology. To determine the current anaemia situation and assess the relative contribution of malaria, intestinal schistosomiasis and infection with soil-transmitted helminths, two separate cross-sectional epidemiological surveys were carried out in Uganda including 573 and 455 preschool-aged children (⩽6 years) living along the shores of Lake Albert and on the islands in Lake Victoria, respectively. Anaemia was found to be a severe public health problem in Lake Albert, affecting 68·9% of children (ninety-five percent confidence intervals (95% CI) 64·9–72·7%), a statistically significant higher prevalence relative to the 27·3% detected in Lake Victoria (95% CI: 23·3–31·7%). After multivariate analysis (controlling for sex and age of the child), the only factor found to be significantly associated with increased odds of anaemia in both lake systems was malaria (Lake Albert, odds ratio (OR)=2·1, 95% CI: 1·4–3·2; Lake Victoria, OR=1·9, 95% CI: 1·2–2·9). Thus intervention strategies primarily focusing on very young children and combating malaria appear to represent the most appropriate use of human and financial resources for the prevention of anaemia in this age group and area. Looking to the future, these activities could be further emphasised within the National Child Health DaysPLUSagenda.
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Davies, Sarah, Cathryn Keenan, and Bernice Redley. "Health Assistant in Nursing: a Victorian health service pilot." Asia Pacific Journal of Health Management 12, no. 2 (July 18, 2017): 17–24. http://dx.doi.org/10.24083/apjhm.v12i2.73.
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Objective: Develop and evaluate pilot of a new role to support nursing care delivery in hospital settings.
Design: A naturalistic, three-stage pre-post, multimethod pilot design used data collected from hospital administrative datasets, and surveys and focus groups with staff participants.
Setting: Three wards at three hospital sites of a large tertiary health service in Victoria, Australia.
Subjects: Staff performing the new role and registered nurses working on participating wards.
Intervention: Pilot of a new Health Assistant in Nursing (HAN) role.
Main outcome measures: Staff outcomes were work satisfaction and workload of registered nurses; quality outcomes included reported patient falls and medication errors; organisational outcomes included service costs and sick leave.
Results: Work satisfaction and workload of registered nurses remained stable after introducing the new role. The frequency of reported patient falls reduced in two of the three wards. Costing outcomes suggested potential for cost benefits attributed to reduced falls in acute wards.
Conclusions: This pilot identified the new HAN role has capacity to contribute to improved patient quality and safety outcomes without compromising nurse job satisfaction and workload. Potential cost benefits of thenew role warrant further consideration in the acute care sector.
Abbreviations: CPO – Constant Patient Observer; CSN – Clinical Support Nurse; HAN – Health Assistant in Nursing. NWSQ – Nursing Workplace Satisfaction
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Graubard, Barry I., and Edward L. Korn. "Modelling the sampling design in the analysis of health surveys." Statistical Methods in Medical Research 5, no. 3 (September 1996): 263–81. http://dx.doi.org/10.1177/096228029600500304.
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Lopez-Carr, David, Kevin M. Mwenda, Narcisa G. Pricope, Phaedon C. Kyriakidis, Marta M. Jankowska, John Weeks, Chris Funk, Gregory Husak, and Joel Michaelsen. "Climate-Related Child Undernutrition in the Lake Victoria Basin: An Integrated Spatial Analysis of Health Surveys, NDVI, and Precipitation Data." IEEE Journal of Selected Topics in Applied Earth Observations and Remote Sensing 9, no. 6 (June 2016): 2830–35. http://dx.doi.org/10.1109/jstars.2016.2569411.
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Iansek, Robert, and Mary Danoudis. "Patients’ Perspective of Comprehensive Parkinson Care in Rural Victoria." Parkinson's Disease 2020 (March 31, 2020): 1–7. http://dx.doi.org/10.1155/2020/2679501.
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Introduction. There is a higher prevalence of Parkinson’s disease (PD) in rural Australia and a poorer perceived quality of life of rural Australians with PD. Coordinated multidisciplinary teams specialised and experienced in the treatment of PD are recommended as the preferred model of care best able to manage the complexities of this disorder. There remains a lack of team-based specialised PD services in rural Australia available to people living with PD. This study aims to explore how the lack of specialised PD services impacts on the person’s experiences of the health care they receive in rural Victoria. This study compared the health-care experiences of two different cohorts of people with PD living in rural Victoria; one cohort living in East Gippsland have had an established comprehensive care model implemented with local trained teams and supported by a metropolitan PD centre, and the other cohort was recruited from the remainder of Victoria who had received standard rural care. Methods. This descriptive study used a survey to explore health-care experiences. Questionnaires were mailed to participants living in rural Victoria. Eligibility criteria included having a diagnosis of PD or Parkinsonism and sufficient English to respond to the survey. The validated Patient-Centred Questionnaire for PD was used to measure health-care experiences. The questions are grouped accordingly under one of the 6 subscales or domains. Outcomes from the questionnaire included summary experience scores (SES) for 6 subscales; overall patient-centeredness score (OPS); and quality improvement scores (QIS). Secondary outcomes included health-related quality of life using the disease-specific questionnaire PDQ39; disease severity using the Hoehn and Yahr staging tool; and disability using the Movement Disorders Society-Unified Parkinson’s Disease Rating Scale, part II. Results. Thirty-nine surveys were returned from the East Gippsland group and 68 from the rural group. The East Gippsland group rated significantly more positive the subscales “empathy and PD expertise,” P=0.02, and “continuity and collaboration of professionals,” P=0.01. The groups did not differ significantly for the remaining 4 subscales (P>0.05) nor for the OPS (P=0.17). The QIS showed both groups prioritised the health-care aspect “provision of tailored information” for improvement. Quality of life was greater (P<0.05) and impairment (P=0.012) and disability were less (P=0.002) in the East Gippsland group. Conclusion. Participants who received health care from the East Gippsland program had better key health-care experiences along with better QOL and less impairment and disability. Participants prioritised provision of information as needing further improvement.
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Shafer, Alan B., and Judith M. Temple. "Factor Structure of the Mental Health Statistics Improvement Program (MHSIP) Family and Youth Satisfaction Surveys." Journal of Behavioral Health Services & Research 40, no. 3 (May 2, 2013): 306–16. http://dx.doi.org/10.1007/s11414-013-9332-4.
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Austin, Peter C., Nathaniel Jembere, and Maria Chiu. "Propensity score matching and complex surveys." Statistical Methods in Medical Research 27, no. 4 (July 26, 2016): 1240–57. http://dx.doi.org/10.1177/0962280216658920.
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Researchers are increasingly using complex population-based sample surveys to estimate the effects of treatments, exposures and interventions. In such analyses, statistical methods are essential to minimize the effect of confounding due to measured covariates, as treated subjects frequently differ from control subjects. Methods based on the propensity score are increasingly popular. Minimal research has been conducted on how to implement propensity score matching when using data from complex sample surveys. We used Monte Carlo simulations to examine two critical issues when implementing propensity score matching with such data. First, we examined how the propensity score model should be formulated. We considered three different formulations depending on whether or not a weighted regression model was used to estimate the propensity score and whether or not the survey weights were included in the propensity score model as an additional covariate. Second, we examined whether matched control subjects should retain their natural survey weight or whether they should inherit the survey weight of the treated subject to which they were matched. Our results were inconclusive with respect to which method of estimating the propensity score model was preferable. In general, greater balance in measured baseline covariates and decreased bias was observed when natural retained weights were used compared to when inherited weights were used. We also demonstrated that bootstrap-based methods performed well for estimating the variance of treatment effects when outcomes are binary. We illustrated the application of our methods by using the Canadian Community Health Survey to estimate the effect of educational attainment on lifetime prevalence of mood or anxiety disorders.
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Ward, Brian W., Manisha Sengupta, Carol J. DeFrances, and Denys T. Lau. "COVID-19 Pandemic Impact on the National Health Care Surveys." American Journal of Public Health 111, no. 12 (December 2021): 2141–48. http://dx.doi.org/10.2105/ajph.2021.306514.
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While underscoring the need for timely, nationally representative data in ambulatory, hospital, and long-term-care settings, the COVID-19 pandemic posed many challenges to traditional methods and mechanisms of data collection. To continue generating data from health care and long-term-care providers and establishments in the midst of the COVID-19 pandemic, the National Center for Health Statistics had to modify survey operations for several of its provider-based National Health Care Surveys, including quickly adding survey questions that captured the experiences of providing care during the pandemic. With the aim of providing information that may be useful to other health care data collection systems, this article presents some key challenges that affected data collection activities for these national provider surveys, as well as the measures taken to minimize the disruption in data collection and to optimize the likelihood of disseminating quality data in a timely manner. (Am J Public Health. 2021;111(12):2141–2148. https://doi.org/10.2105/AJPH.2021.306514 )
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Drent, Adam M., David C. Brousseau, and Andrea K. Morrison. "Health Information Preferences of Parents in a Pediatric Emergency Department." Clinical Pediatrics 57, no. 5 (September 13, 2017): 519–27. http://dx.doi.org/10.1177/0009922817730346.
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Parents of children seeking nonurgent care in the emergency department completed surveys concerning media use and preferences for health education material. Results were compiled using descriptive statistics, compared by health literacy level with logistic regression, adjusting for race/ethnicity and income. Semistructured qualitative interviews to elicit reasons for preferences, content preference, and impact of health information were conducted and analyzed using content analysis. Surveys (n = 71) showed that despite equal access to online health information, parents with low health literacy were more likely to use the internet less frequently than daily ( P < .01). Surveys and interviews (n = 30) revealed that health information will be most effective when distributed by a health care professional and must be made available in multiple modalities. Parents requested general information about childhood illness, including diagnosis, treatment, and signs and symptoms. Many parents believed that appropriate health information would change their decision-making regarding seeking care during their child’s next illness.
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Parker, Jennifer, Kristen Miller, Yulei He, Paul Scanlon, Bill Cai, Hee-Choon Shin, Van Parsons, and Katherine Irimata. "Overview and initial results of the National Center for Health Statistics’ Research and Development Survey1." Statistical Journal of the IAOS 36, no. 4 (November 25, 2020): 1199–211. http://dx.doi.org/10.3233/sji-200678.
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The National Center for Health Statistics is assessing the usefulness of recruited web panels in multiple research areas. One research area examines the use of close-ended probe questions and split-panel experiments for evaluating question-response patterns. Another research area is the development of statistical methodology to leverage the strength of national survey data to evaluate, and possibly improve, health estimates from recruited panels. Recruited web panels, with their lower cost and faster production cycle, in combination with established population health surveys, may be useful for some purposes for statistical agencies. Our initial results indicate that web survey data from a recruited panel can be used for question evaluation studies without affecting other survey content. However, the success of these data to provide estimates that align with those from large national surveys will depend on many factors, including further understanding of design features of the recruited panel (e.g. coverage and mode effects), the statistical methods and covariates used to obtain the original and adjusted weights, and the health outcomes of interest.
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Imbriano, Paul M., and Trivellore E. Raghunathan. "Three-Form Split Questionnaire Design for Panel Surveys." Journal of Official Statistics 36, no. 4 (December 1, 2020): 827–54. http://dx.doi.org/10.2478/jos-2020-0040.
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AbstractLongitudinal or panel surveys are effective tools for measuring individual level changes in the outcome variables and their correlates. One drawback of these studies is dropout or nonresponse, potentially leading to biased results. One of the main reasons for dropout is the burden of repeatedly responding to long questionnaires. Advancements in survey administration methodology and multiple imputation software now make it possible for planned missing data designs to be implemented for improving the data quality through a reduction in survey length. Many papers have discussed implementing a planned missing data study using a split questionnaire design in the cross-sectional setting, but development of these designs in a longitudinal study has been limited. Using simulations and data from the Health and Retirement Study (HRS), we compare the performance of several methods for administering a split questionnaire design in the longitudinal setting. The results suggest that the optimal design depends on the data structure and estimand of interest. These factors must be taken into account when designing a longitudinal study with planned missing data.
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Pascale, Joanne, Angela Fertig, and Kathleen Call. "Validation of Two Federal Health Insurance Survey Modules After Affordable Care Act Implementation." Journal of Official Statistics 35, no. 2 (June 1, 2019): 409–60. http://dx.doi.org/10.2478/jos-2019-0019.
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Abstract This study randomized a sample of households covered by one large health plan to two different surveys on health insurance coverage and matched person-level survey reports to enrollment records. The goal was to compare accuracy of coverage type and uninsured estimates produced by the health insurance modules from two major federal surveys – the redesigned Current Population Survey Annual Social and Economic Supplement (CPS) and the American Community Survey (ACS) – after implementation of the Affordable Care Act. The sample was stratified by coverage type, including two types of public coverage (Medicaid and a state-sponsored program) and three types of private coverage (employer-sponsored, non-group, and marketplace plans). Consistent with previous studies, accurate reporting of private coverage is higher than public coverage. Generally, misreporting the wrong type of coverage is more likely than incorrectly reporting no coverage; the CPS module overestimated the uninsured by 1.9 and the ACS module by 3.5 percentage points. Other differences in accuracy metrics between the CPS and ACS are relatively small, suggesting that reporting accuracy should not be a factor in decisions about which source of survey data to use. Results consistently indicate that the Medicaid undercount has been substantially reduced with the redesigned CPS.
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Holzberg, Jessica, Renee Ellis, Robin Kaplan, Matt Virgile, and Jennifer Edgar. "Can They and Will They? Exploring Proxy Response of Sexual Orientation and Gender Identity in the Current Population Survey." Journal of Official Statistics 35, no. 4 (December 1, 2019): 885–911. http://dx.doi.org/10.2478/jos-2019-0037.
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Abstract Within the United States Federal Statistical System, there has been interest in capturing sexual orientation (SO) and gender identity (GI), collectively known as SOGI, on surveys to allow researchers to estimate the size and distribution of sexual and gender minority populations. SOGI measurement in federal surveys may also help to identify disparities between people who identify as lesbian, gay, bisexual, and transgender (LGBT) and those who do not in domains such as health, crime, or employment. Although research has been conducted on best practices for SOGI measurement in surveys, it has largely been limited to examination of self-reports. Many federal surveys use proxy reports, when one person generally responds for all household members. This research used cognitive interviews and focus groups to explore proxy response to SOGI questions. We explored potential sources of measurement error in proxy responses to SOGI questions, including sensitivity, difficulty, as well as the willingness and ability of respondents to answer SOGI questions about other household members. We also conducted paired interviews with members of the same household to assess level of agreement for SOGI questions. Findings suggest that measuring SOGI by proxy may be feasible in federal large-scale, general population surveys.