Journal articles: 'Health care burden'

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Hellwig, Jennifer. "Health Care Time Burden Disparities." Nursing for Women's Health 20, no. 1 (February 2016): 18. http://dx.doi.org/10.1016/s1751-4851(16)00042-8.

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Mueller, Anne, Scott R. Beach, Barbara J. Bowers, and Beth Fields. "Relationship between health care interactions and care partner burden." Families, Systems, & Health 40, no. 2 (June 2022): 225–31. http://dx.doi.org/10.1037/fsh0000675.

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Darling, Helen. "US health care costs: The crushing burden." Information Knowledge Systems Management 8, no. 1-4 (2009): 87–104. http://dx.doi.org/10.3233/iks-2009-0137.

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Bennett, Kevin J., M. Paige Powell, and Janice C. Probst. "Relative Financial Burden of Health Care Expenditures." Social Work in Public Health 25, no. 1 (December 29, 2009): 6–16. http://dx.doi.org/10.1080/19371910802672007.

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Wells, James M. "Cancer burden, finance, and health-care systems." Lancet Oncology 22, no. 1 (January 2021): 13–14. http://dx.doi.org/10.1016/s1470-2045(20)30681-1.

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Kong, David F., Michael A. Blazing, and Christopher M. O'Connor. "THE HEALTH CARE BURDEN OF UNSTABLE ANGINA." Cardiology Clinics 17, no. 2 (May 1999): 247–61. http://dx.doi.org/10.1016/s0733-8651(05)70072-2.

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Elsaid, Mohamed I., Tina John, You Li, Sri Ram Pentakota, and Vinod K. Rustgi. "The Health Care Burden of Hepatic Encephalopathy." Clinics in Liver Disease 24, no. 2 (May 2020): 263–75. http://dx.doi.org/10.1016/j.cld.2020.01.006.

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Banthin, Jessica S., Peter Cunningham, and Didem M. Bernard. "Financial Burden Of Health Care, 2001–2004." Health Affairs 27, no. 1 (January 2008): 188–95. http://dx.doi.org/10.1377/hlthaff.27.1.188.

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Fadden, G., P. Bebbington, and L. Kuipers. "The Burden of Care." British Journal of Psychiatry 150, no. 3 (March 1987): 285–92. http://dx.doi.org/10.1192/bjp.150.3.285.

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This paper reviews the literature on the effect of severe mental illness on other members of the patient's family. The burdens of caring for a patient at home are considerable. They often affect the caring relative's social and leisure activities, and financial problems arise frequently. Relatives have difficulties in understanding and coming to terms with illness-related behaviour. ‘Negative’ symptoms are often a particular problem. Despite their burden, relatives do not complain much, although they receive little support, advice or information from the professionals engaged in treating the patient; much is now known about the difficulties relatives face, but we still need to know how they can best be helped. Failure to do this will have bad effects on both relatives and patients.

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TURAL BÜYÜK, Esra, Nihal ÜNALDI BAYDIN, and Gamze TUNÇER ÜNVER. "The Relationship Between Mothers' Care Burden and Health Care Satisfaction." Turkiye Klinikleri Journal of Nursing Sciences 13, no. 2 (2021): 204–11. http://dx.doi.org/10.5336/nurses.2020-75308.

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Fahey, Charles J. "The Long-Term Care Burden." Health Affairs 21, no. 1 (January 2002): 274. http://dx.doi.org/10.1377/hlthaff.21.1.274.

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Beauchamp, Dan E., and Norman Daniels. "HIV and Health Care Reform: Sharing the Burden." Hastings Center Report 26, no. 3 (May 1996): 43. http://dx.doi.org/10.2307/3527933.

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Goodacre, S. "The health care burden of acute chest pain." Heart 91, no. 2 (February 1, 2005): 229–30. http://dx.doi.org/10.1136/hrt.2003.027599.

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Alosh, Hassan, David Li, Lee H. Riley, and Richard L. Skolasky. "Health Care Burden of Anterior Cervical Spine Surgery." Journal of Spinal Disorders and Techniques 28, no. 1 (February 2015): 5–11. http://dx.doi.org/10.1097/bsd.0000000000000001.

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Gunnarsson, Candace, Michael P. Ryan, Claudio Marelli, Erin R. Baker, Paul M. Stewart, Gudmundur Johannsson, and Beverly M. K. Biller. "Health Care Burden in Patients With Adrenal Insufficiency." Journal of the Endocrine Society 1, no. 5 (April 12, 2017): 512–23. http://dx.doi.org/10.1210/js.2016-1064.

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Kort, Jeries, Paolo F. Caimi, Pingfu Fu, Shufen Cao, James Driscoll, Marcos de Lima, and Ehsan Malek. "Health Care Burden of Monogammopathy of Renal Significance." Blood 136, Supplement 1 (November 5, 2020): 34–36. http://dx.doi.org/10.1182/blood-2020-139740.

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Monoclonal gammopathy of undetermined significance (MGUS) is a premalignant, clonal plasma cell disorder, characterized by the presence of a monoclonal (M) protein in serum, <10% clonal plasma cells in the bone marrow, and absence of end-organ damage attributable to multiple myeloma (MM). MGUS incidence is estimated as 0.3% and 3% among those <50 years and >50 years, respectively. Although renal failure is a defining feature of MM, frequently patients (pts) with a variety of renal pathologies have less than 10% plasma cell burden in the bone marrow, therefore they cannot be categorized as MM to be eligible for an anti-myeloma therapy. However, it is clear that there is a causative relationship between MGUS and the pathologic process in kidneys in at least a subset patient and starting anti-myeloma therapy potentially can reverse or slow down the renal insult caused by MGUS. This led to the creation of the new entity and term, "monoclonal gammopathy of renal significance" (MGRS), to properly convey the nature of these relationship. Therefore, MGRS depicts a subset of MGUS and ascertains that the significance of the monoclonal gammopathy is no longer undetermined. The epidemiology and health care burden of MGRS remains largely unknown. The incidence of MGRS, based on reports from single institutions, is estimated about 6%-10% of cases of MGUS (Nelson Leung et al. Blood. 2012), which suggests a total prevalence of 0.5-1% in the total United States population, accounting for a significant health care burden of 1.5-3 million cases with MGRS. Since pathologic characterization of MGRS is recent, a novel study to define the epidemiology of this subset of MGUS, its temporal course in relation to chronic kidney disease kidney (CKD), the risk factors for progression to end stage renal disease (ESRD) is urgently needed. Methods: All pts from the University Hospitals Cleveland Medical Center, Cleveland, OH, diagnosed with CKD from 2000 to 2019 were included. We identified all cases with diagnosis of MGUS by ICD code. Time to end stage renal disease (TTESRD) was measured from the date of diagnosis of CKD to the date of diagnosis of ESRD and was censored at the date of last follow-up for those without ESRD with death as competing risk. The overall survival (OS) was measured from the date of diagnosis of CKD to the date of death The Fine and Gray method was used for comparisons of cumulative incidence of ESRD between groups. The effect of important factors on TTESRD was further evaluated using multivariable Fine and Gray method. Survivor distribution was estimated using Kaplan-Meier methods and the difference of OS between/among groups was examined by log-rank test. Results: The final data for the statistical analysis reported here contains 626 pts with MGUS and CKD and 15337 pts with CKD alone. The median follow up was 19.7 (range: 0.03, 128) months. Patient's characteristics and distribution of diabetes (DM), hypertension (HTN) and CKD stage at both cohorts are shown in Table-1. Progression to ESRD: There was no difference between rate of progression to ESRD (as the binary outcome) in the cohort of pts with CKD and MGUS and the cohort of CKD without MGUS, 4.8% vs. 6%, respectively (p: 0.2). Univariate analysis of TTESRD showed lack of MGUS, Black race, DM, and CKD stage at baseline as statistically significant factors associated to progression to ESRD (Fig.1). Multivariable analysis on TTESRD including factors (MGUS status, age, gender, race, CKD stage, diabetes and hypertension) demonstrated higher CKD stage at baseline, younger age at time of CKD diagnosis, male gender and black race as the significant factors are associated with shorter TTESRD (Fig.3). Progression by CKD stage advancement: The CKD stage at baseline was compared to the CKD stage at year 1 and year 5 during follow-up. The progression by stage was 28.5% at year 1 for pts without MGUS vs. 29.3% for those with MGUS (p = 0.73). The progression by stage was 38.7% at year 5 for pts without MGUS vs. 39.4 % for those with MGUS (p = 0.89).There was no difference between median OS for pts with CKD with or without MGUS (Fig-2) Conclusion: Here we presented the data of around 16,000 CKD pts based on the MGUS diagnosis in 19 years time span and we could not detect any higher trend for CKD pts with MGUS to develop ESRD or move to higher CKD stage. These data can suggest MGRS forms a quite thin slice of the whole MGUS population. Assessing finding of this study in a larger national database is warranted. Disclosures Caimi: Amgen: Other: Advisory Board; Kite Pharma: Other: Advisory Board; ADC Therapeutics: Other: Advisory Board, Research Funding; Celgene: Speakers Bureau; Verastem: Other: Advisory Board; Bayer: Other: Advisory Board. de Lima:Incyte: Other: Personal Fees, advisory board; BMS: Other: Personal Fees, advisory board; Kadmon: Other: Personal Fees, Advisory board; Pfizer: Other: Personal fees, advisory board, Research Funding; Celgene: Research Funding. Malek:Takeda: Other: Advisory board , Speakers Bureau; Sanofi: Other: Advisory board; Amgen: Honoraria; Medpacto: Research Funding; Clegene: Other: Advisory board , Speakers Bureau; Janssen: Other: Advisory board, Speakers Bureau; Bluespark: Research Funding; Cumberland: Research Funding.

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Koh, Yen Sin, Gerald Choon-Huat Koh, David Bruce Matchar, Song-Iee Hong, and Bee Choo Tai. "Examining the Influence of Social Interactions and Community Resources on Caregivers’ Burden in Stroke Settings: A Prospective Cohort Study." International Journal of Environmental Research and Public Health 18, no. 23 (November 23, 2021): 12310. http://dx.doi.org/10.3390/ijerph182312310.

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Since the introduction of the integrated care model, understanding how social interactions and community resources can alleviate caregivers’ burden is vital to minimizing negative patients’ outcomes. This study (n = 214) examined the associations between these factors and caregivers’ burden in stroke settings. It used 3-month and 1-year post-stroke data collected from five tertiary hospitals. Subjective and objective caregivers’ burdens were measured using Zarit burden interview and Oberst caregiving burden scale respectively. The independent variables examined were quality of care relationship, care management strategies for managing patients’ behaviour, family caregiving conflict, formal service usage and assistance to the caregiver. Significant associations were determined using mixed effect modified Poisson regressions. For both types of burden, the scores were slightly higher at 3 months as compared to 1 year. Poorer care-relationship (relative risk: 0.81, 95% confidence interval (CI): 0.70–0.94) and adopting positive care management strategies (relative risk: 1.05, 95% CI: 1.02–1.07) were independently associated with a high subjective burden. Providing assistance to caregivers (relative risk: 2.45, 95% CI: 1.72–3.29) and adopting positive care management strategies (relative risk: 1.03, 95% CI: 1.02–1.04) were independently associated with a high objective burden. Adopting positive care management strategies at 3 months had a significant indirect effect (standardised β: 0.11, 95% CI: 0.01 to 0.20) on high objective burden at one year. Healthcare providers should be aware that excessive care management strategies and assistance from family members may add to caregivers’ burden.

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Park, Joohyun, and Kevin A. Look. "Health Care Expenditure Burden of Cancer Care in the United States." INQUIRY: The Journal of Health Care Organization, Provision, and Financing 56 (January 2019): 004695801988069. http://dx.doi.org/10.1177/0046958019880696.

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Using nationwide data, this study estimated and compared annual health care expenditures per person between noncancer and cancer patients, and among patients with the 4 most common cancers. Two-part models were used to estimate mean expenditures for each group by source of payment and by service type. We found that cancer patients had nearly 4 times higher mean expenditures per person ($16 346) than those without cancer ($4484). These differences were larger among individuals aged 18 to 64 years than those ≥65 years. Medicare was the largest source of payment for cancer patients, especially among those ≥65 years. Among the 4 most common cancers, the most costly cancer was lung cancer. Ambulatory care visits accounted for the majority of health care expenditures for those with breast cancer, while for those with other cancers, inpatient services also contributed to a significant portion of expenditures especially among younger patients. This study demonstrates that cancer patients experience a substantially higher health care expenditure burden than noncancer patients, with lung cancer patients having the highest expenditures. Expenditure estimates varied by age group, source of payment, and service type, highlighting the need for comprehensive policies and programs to reduce the costs of cancer care.

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Marzouk, M. S. "Aging, Age-Specific Health Care Costs and the Future Health Care Burden in Canada." Canadian Public Policy / Analyse de Politiques 17, no. 4 (December 1991): 490. http://dx.doi.org/10.2307/3551709.

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Xu, Wendy Yi, Sheldon M. Retchin, Eric E. Seiber, and Yiting Li. "Income-Based Disparities in Financial Burdens of Medical Spending Under the Affordable Care Act in Families With Individuals Having Chronic Conditions." INQUIRY: The Journal of Health Care Organization, Provision, and Financing 56 (January 2019): 004695801987181. http://dx.doi.org/10.1177/0046958019871815.

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This study examined income-based disparities in financial burdens from out-of-pocket (OOP) medical spending among individuals with multiple chronic physical and behavioral conditions, before and after the Affordable Care Act’s (ACA) implementation in 2014. Using the 2012-2015 Medical Expenditure Panel Survey data, we studied changes in financial burdens experienced by nonelderly U.S. populations. Financial burdens were measured by (1) high financial burden, defined as total OOP medical spending exceeding 10% of annual household income; (2) health care cost-sharing ratio, defined as self-paid payments as a percent of total health care payments, excluding individual contributions to premiums; and (3) the total OOP costs spent on health care utilization. The findings indicated reductions in the proportion of those who experienced a high financial burden, as well as reductions in the OOP costs for some individuals. However, individuals with incomes below 138% federal poverty level (FPL) and those with incomes between 251% and 400% FPL who had multiple physical and/or behavioral chronic conditions experienced large increases in high financial burden after the ACA, relative to those with incomes greater than 400% FPL. While the ACA was associated with relieved medical financial burdens for some individuals, the worsening high financial burden for moderate-income individuals with chronic physical and behavioral conditions is a concern. Policymakers should revisit the cost subsidies for these individuals, with a particular focus on those with chronic conditions.

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Wiebe, Samuel, Michael Eliasziw, David R. Bellhouse, and Christine Fallahay. "Burden of Epilepsy: The Ontario Health Survey." Canadian Journal of Neurological Sciences / Journal Canadien des Sciences Neurologiques 26, no. 4 (November 1999): 263–70. http://dx.doi.org/10.1017/s0317167100000354.

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Background:Few data exist on the frequency and burden of epilepsy in Canada and on the impact of self-reported epilepsy in the general population. We assess the frequency, general health, psychosocial function, and health care resource use among self-identified epileptic persons in the general population.Method:The 1990 Ontario Health Survey is an omnibus, extensive health survey of 61,239 subjects representing the Ontario population. Self-reported epileptic subjects are compared with three groups, ie., those with ≥1 other chronic illnesses, the general population, and those with no health problems.Results:The point prevalence of self-reported epilepsy was 5.8 per 1,000 population, a figure similar to that of active epilepsy in other studies. Quality of life, family function and social support were worse in epileptic than in other chronically ill subjects. Similarly, the epilepsy population had more disability days and limitations in activities, and lower annual income than all other groups, including the chronically ill. Accidents were no more common among epileptic subjects than among controls. Epileptic persons were high users of health care resources, including hospitalization, emergency room, psychological/social work, nursing services and telephone contact with health professionals. Barriers to health care were experienced infrequently. Small area variations in health status and care are explored.Conclusion:The health profile of self-reported epileptic subjects is similar to that obtained in studies involving defined epilepsy patients. In the general population, self-identification as having epilepsy carries a significant burden of illness, reflected in poorer health, psychosocial function, and quality of life, and higher health care resource use.

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Koros, Hillary, Ellen Nolte, Jemima Kamano, Richard Mugo, Adrianna Murphy, Violet Naanyu, Ruth Willis, et al. "Understanding the treatment burden of people with chronic conditions in Kenya: A cross-sectional analysis using the Patient Experience with Treatment and Self-Management (PETS) questionnaire." PLOS Global Public Health 3, no. 1 (January 17, 2023): e0001407. http://dx.doi.org/10.1371/journal.pgph.0001407.

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In Kenya, non-communicable diseases (NCDs) are an increasingly important cause of morbidity and mortality, requiring both better access to health care services and self-care support. Evidence suggests that treatment burdens can negatively affect adherence to treatment and quality of life. In this study, we explored the treatment and self-management burden among people with NCDs in in two counties in Western Kenya. We conducted a cross-sectional survey of people newly diagnosed with diabetes and/or hypertension, using the Patient Experience with Treatment and Self-Management (PETS) instrument. A total of 301 people with diabetes and/or hypertension completed the survey (63% female, mean age = 57 years). They reported the highest treatment burdens in the domains of medical and health care expenses, monitoring health, exhaustion related to self-management, diet and exercise/physical therapy. Treatment burden scores differed by county, age, gender, education, income and number of chronic conditions. Younger respondents (<60 years) reported higher burden for medication side effects (p<0.05), diet (p<0.05), and medical appointments (p = 0.075). Those with no formal education or low income also reported higher burden for diet and for medical expenses. People with health insurance cover reported lower (albeit still comparatively high) burden for medical expenses compared to those without it. Our findings provide important insights for Kenya and similar settings where governments are working to achieve universal health coverage by highlighting the importance of financial protection not only to prevent the economic burden of seeking health care for chronic conditions but also to reduce the associated treatment burden.

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NAKAGAWA, YOSHINORI, RINA YAMADA, and SEIGO NASU. "Characteristics of care-givers and care recipients influencing the impact of paid care services on family care-giver burdens." Ageing and Society 34, no. 8 (April 11, 2013): 1314–34. http://dx.doi.org/10.1017/s0144686x13000081.

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ABSTRACTIn the last few decades, a number of researchers have attempted to identify the effects of paid care services on alleviating the sense of burden of family care-givers, especially care-givers to people with dementia. However, few researchers have considered the possibility that paid care services alleviate the sense of burden only among those care-givers who possess specific characteristics. Without considering this point, the impact of paid care services would be averaged over an entire sample, and one might overlook the effects on these specific care-givers. With this background, this study examines the relationship between family care-givers' sense of burden and the amount of paid care services in Japan and identifies groups of care-givers among whom these services are significantly associated with a lesser sense of burden. The sense of burden of 339 family care-givers to older care recipients with dementia was measured using a modified version of the Caregiver Burden Inventory. In order to examine their association with the amount of paid care services received, logistic regression analysis was individually applied to groups of care-givers who exhibit specific characteristics. The results suggested that paid care services alleviated two out of five components of burden, provided the groups to which the analyses are applied are appropriately defined. In particular, two subsets of the entire sample, comprising young care-givers aged 49 or below, and including male care-givers, indicated that their overall sense of social and emotional burden were alleviated by the use of paid care services. The practical implications for policy makers are discussed.

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Annisa, Faida. "BURDEN OF FAMILY CAREGIVER." Belitung Nursing Journal 2, no. 1 (February 29, 2016): 10–18. http://dx.doi.org/10.33546/bnj.7.

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Shifting from hospital-based care to community-based care involves the family as advanced caregivers to the patients with Schizophrenia at their home. Yet, they have need of knowledge and skill in caring the patients as well as support from health care providers and society. Family caregivers should be well-prepared to take care the patients with Schizophrenia at home since it gets some negative consequences on their physical, psychological, social, and financial. Nurse need to assess the factors that might influence the family caregivers to felling burden, and include the family caregivers into nursing care in which would not only to improve the patients’ mental health but the family caregivers as well.

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Xu, Wenjian, Guang Gu, Libo Dong, and Lina Wang. "Analysis of Factors Influencing Telemedicine-Based Psychiatric Extended Care and Care of Psychiatric Patients." Journal of Healthcare Engineering 2022 (January 17, 2022): 1–11. http://dx.doi.org/10.1155/2022/9434820.

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The aim of this paper is to understand the current situation of the care burden of patients with mental illness in remission and the factors affecting it in order to provide a scientific basis for targeted interventions. This paper reviews the concept of telemedicine, the application of telemedicine in home hospice care, and the remaining problems and improvement strategies of telemedicine in home hospice care, with the aim of providing a reference for the application of telemedicine in home hospice care in China. The Zarit Burden Scale, Family Care Scale, and Social Functioning Scale were used to conduct one-to-one interviews with 201 schizophrenic patients in remission and their primary caregivers in Hubei Province. Among them, 66, 72, and 25 cases (32.8%, 35.9%, and 12.4%) had mild, moderate, and severe burdens, respectively. Caregivers’ family care and patients’ social functioning were generally poor. The results of multiple linear regression analysis showed that caregiver age, caregiver education, caregiver family care, patient medical costs, and patient social functioning were factors influencing the burden of care for patients with schizophrenia in remission ( P < 0.05 ). The government, mental health centers, and families should understand the level of caregiving burden of patients with schizophrenia in remission and the factors influencing it and provide targeted measures to reduce the caregiving burden.

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Perlick, Deborah, Robert R. Rosenheck, John F. Clarkin, Jo Anne Sirey, Patrick Raue, Susan Greenfield, and Elmer Struening. "Burden experienced by care-givers of persons with bipolar affective disorder." British Journal of Psychiatry 175, no. 1 (July 1999): 56–62. http://dx.doi.org/10.1192/bjp.175.1.56.

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BackgroundFamily members of patients with schizophrenia frequently report burdens associated with caring for their relatives.AimsWe evaluate the impact of illness beliefs on the burden reported by family care-givers of people with bipolar illness.MethodThe multivariate relationships between patient symptomatology and family illness beliefs and report of burden were examined at baseline among care-givers of 266 patients with Research Diagnostic Criteria-diagnosed bipolar illness who were subsequently followed for 15 months.ResultsAt baseline, 93% of care-givers reported moderate or greater distress in at least one burden domain. As a group, care-giver illness beliefs (illness awareness, perception of patient and family control) explained an additional 18–28% of variance in burden experienced beyond the effects of the patients clinical state and history.ConclusionsCare-givers of patients with bipolar illness report widespread burden that is influenced by beliefs about the illness.

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Insel, Thomas. "Mental health care 2.0." Science 376, no. 6596 (May 27, 2022): 899. http://dx.doi.org/10.1126/science.add1020.

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While the COVID-19 pandemic has been a burden for our mental health, it also led to a surge in mental health care innovation. Appointments by telephone or video, as well as web- and app-based tools, have become part of a digital mental health revolution. Last year, US venture capitalists invested $5.1 billion in this area, a fivefold increase from 2019. But is this surge in activity actually leading to improvements for those with the greatest needs?

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Wu, Yun, Sihui Jin, Jianwei Guo, Yi Zhu, Lijin Chen, and Yixiang Huang. "The Economic Burden Associated with Depressive Symptoms among Middle-Aged and Elderly People with Chronic Diseases in China." International Journal of Environmental Research and Public Health 19, no. 19 (October 10, 2022): 12958. http://dx.doi.org/10.3390/ijerph191912958.

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Coexisting physical diseases and depressive symptoms exacerbate morbidity and disability, but their incremental economic burden remains unclear. We used cross-sectional data from the China Health and Retirement Longitudinal Study (CHARLS) survey in 2018 to estimate the economic burden associated with depressive symptoms among middle-aged and elderly people with chronic diseases. A multivariable regression model was used to assess the annual health care utilization, expenditures, and productivity loss of depressive symptoms among people with 12 common chronic diseases. We found that depressive symptoms were associated with higher incremental economic burdens, as the total health care costs increased by 3.1% to 85.0% and annual productivity loss increased by 1.6% to 90.1%. Those with cancer or malignant tumors had the largest economic burden associated with depressive symptoms, with CNY 17,273.7 additional annual health care costs and a loss of CNY 2196.2 due to additional annual productivity loss. The effect of depressive symptoms on the economic burden of patients with chronic conditions did not increase by the number of chronic conditions. Considering the high economic burden associated with depressive symptoms among patients with chronic conditions, it is important to consider the mental health of patients in chronic disease treatment and management.

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Warnes, Anthony M. "Being Old, Old People and the Burdens of Burden." Ageing and Society 13, no. 3 (September 1993): 297–338. http://dx.doi.org/10.1017/s0144686x00001069.

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ABSTRACTBurdenis today often applied to elderly people in two senses, for the fiscal load of income support and health and social care costs, and for notions and scales of care-giving effort and stress. It does not however convey straightforward meanings for its understanding is affected by two millenia of metaphorical and rhetorical usage. The use of burden tends to simplify relationships, whether between age-groups of a population or between a carer and an elderly person, and it communicates senses of a nuisance and an excessive charge. Portentous implications are invoked from biblical senses and derogatory overtones are strengthened by association, earlier this century, with racial stereotyping. An etymological survey reveals many sources of the word's versatility and rhetorical power. Important extensions of usage towards the two contemporary gerontological applications are then studied. A bibliometric examination of the surge in the word's social science use since the early 1980s is undertaken, and the paper concludes with a discussion of current usage as evidence of current attitudes towards, and constructions of, old age on the part of politicians and policy analysts.

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Datz, Hannah, Dmitry Tumin, Rebecca Miller, Timothy P. Smith, Tarun Bhalla, and Joseph D. Tobias. "Pediatric chronic pain and caregiver burden in a national survey." Scandinavian Journal of Pain 19, no. 1 (January 28, 2019): 109–16. http://dx.doi.org/10.1515/sjpain-2018-0121.

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Abstract Background and aims Caring for children with chronic pain incurs burdens of cost and time for families. We aimed to describe variation in caregiver burden among parents of adolescents with chronic pain who responded to a nationally-representative survey. Our secondary aim was to identify child and parent characteristics associated with increased caregiver burden. Methods We used de-identified, publicly-available data from the 2016 National Survey of Children’s Health (NSCH), designed to be representative of non-institutionalized children in the United States. We analyzed data for households where an adolescent age 12–17 years old was reported by a parent to have chronic pain. Outcomes included the parent’s time spent on the child’s health needs, reduced labor force participation, and out-of-pocket medical costs. Results Data on 1,711 adolescents were analyzed. For adolescents with chronic pain, 15% of parents reported spending at least 1 h/week on their child’s health care, 14% reported cutting back on paid work, and 36% reported spending ≥$500 on their child’s health care in the past 12 months. Adolescents’ general health status and extent of specialized health care needs predicted increased caregiver burden across the three measures. Conversely, no consistent differences in caregiver burden were noted according to demographic or socioeconomic characteristics. Conclusions Among adolescents with chronic pain identified on a nationally-representative survey, parents frequently reported reducing work participation and incurring out-of-pocket expenses in providing health care for their child. Caregiver burdens increased with indicators of greater medical complexity (e.g. presence of comorbidities, need for specialized health care) and poorer overall adolescent health status. Implications We add a national-level perspective to studies previously performed in clinical samples addressing caregiver burden in pediatric chronic pain. Initiatives to reduce the burden of caring for children with chronic pain, described in prior work, may be especially beneficial for families with adolescents whose chronic pain is accompanied by other health problems or requires coordination of care among multiple providers.

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Jancar, J. "The Burdens — pioneers in mental health." Psychiatric Bulletin 13, no. 10 (October 1989): 552–55. http://dx.doi.org/10.1192/pb.13.10.552.

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Rarely in a lifetime do three people contribute to society in so many ways as the Burdens in Bristol. Here are some of their major achievements.The Reverend Burden and his wifw Katharine opened ‘The Royal Victoria Home’, near Horfield Prison, for the care of inebriate women and girls in moral danger in 1895.

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Nagarkar, Raj, Roshankumar Patil, Kavita Gadade, Nishtha Paleja, and Yasam Venkata Ramesh. "PSYCHOLOGICAL AND MENTAL HEALTH BURDEN ON HEALTH CARE PROVIDERS IN A CANCER CENTRE DURING COVID-19 PANDEMIC OUTBREAK IN INDIA." PSYCHIATRIA DANUBINA 34, no. 1 (April 22, 2022): 164–70. http://dx.doi.org/10.24869/psyd.2022.164.

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Rangarajan, Subhashini K., Palanimuthu Thangaraju Sivakumar, Narayana Manjunatha, Channaveerachari Naveen Kumar, and Suresh Bada Math. "Public Health Perspectives of Geriatric Mental Health Care." Indian Journal of Psychological Medicine 43, no. 5_suppl (September 2021): S1—S7. http://dx.doi.org/10.1177/02537176211047963.

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Background: In older adults (aged 60 years and above), mental health problems are gaining public health importance because of the increasing prevalence, disease burden, disability, morbidity, and mortality. Epidemiological studies on major mental health disorders such as depression and dementia in older adults have contributed to a better understanding of the distribution and determinants of these conditions. Identifying potential risk factors has stimulated interventional research on preventing these conditions under the public health framework towards their management. The increasing burden of geriatric mental health conditions like dementia in developing countries like India can contribute to significant challenges if there is no adequate strengthening of the public health response. This includes scaling up the measures of prevention, public awareness, early diagnosis, and quality health and social care equitably available to all sections of the population. The Decade of Healthy Ageing (2021–2030) provides the opportunity for concerted and coordinated initiatives to improve intrinsic capacity (physical and mental) and offer an age-friendly environment to enhance the functional ability of all older adults. Methods: This article reviews the critical public health issues related to geriatric mental health in India.

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Lindley, Lisa C., and Barbara A. Mark. "Children with Special Health Care Needs: Impact of Health Care Expenditures on Family Financial Burden." Journal of Child and Family Studies 19, no. 1 (June 20, 2009): 79–89. http://dx.doi.org/10.1007/s10826-009-9286-6.

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Karaca-Mandic, Pinar, Sung J. Choi-Yoo, Jinhyung Lee, and Peter Scal. "Family Out-of-Pocket Health Care Burden and Children's Unmet Needs or Delayed Health Care." Academic Pediatrics 14, no. 1 (January 2014): 101–8. http://dx.doi.org/10.1016/j.acap.2013.10.005.

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Krůtilová, Veronika. "Access to Health Care and the Out‑of‑Pocket Burden of the European Elderly." Acta Universitatis Agriculturae et Silviculturae Mendelianae Brunensis 64, no. 6 (2016): 1961–70. http://dx.doi.org/10.11118/actaun201664061961.

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Provision of access to health care is a desirable feature of health care systems. Access to health care is caused to be restricted whether out‑of‑pocket burden is too high. The paper focuses on the European elderly with restricted access to health care and evaluates their health care burden and determines factors affecting the burden. The data from the Survey of Health, Ageing and Retirement in Europe from the fifth wave is used. The methods of descriptive and multivariate analysis are applied. A linear regression model with a bootstrapped method is used. The results showed that inequalities in access to health care exist. Unmet need is a critical issue in Estonia and Italy. The highest burden is found in Estonia, Italy and Belgium. Chronic diseases and limitation in activities significantly contributes to health care burden. Expenditure on drugs, outpatient and nursing care have a significant effect on the burden. The effect is found to be insignificant for inpatient care. Income and the employment status is a preventing factor.

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Collaco, Joseph M., Angela D. Aherrera, Karla J. Au Yeung, Maureen A. Lefton-Greif, Jeannine Hoch, and Margaret L. Skinner. "Interdisciplinary Pediatric Aerodigestive Care and Reduction in Health Care Costs and Burden." JAMA Otolaryngology–Head & Neck Surgery 141, no. 2 (February 1, 2015): 101. http://dx.doi.org/10.1001/jamaoto.2014.3057.

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Tang, Bo, Zhi Li, Song Hu, and Jianru Xiong. "Economic Implications of Health Care Burden for Elderly Population." INQUIRY: The Journal of Health Care Organization, Provision, and Financing 59 (January 2022): 004695802211215. http://dx.doi.org/10.1177/00469580221121511.

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The implications of population aging for economic growth is not only the shrinking working-age population, but also the increasing health care burden of the elderly population. It is difficult to explain clearly the relationship between a country’s aging population and its economy without considering health effects. Based on the Solow economic growth model, the aims of this study are to estimate the economic effects of the health care burden for elderly population, and to access whether reducing effective labor input for economic production. The analysis employs a set of econometric approaches including fixed effects, generalized method of moments, instrumental variable, and mediation regression analyses using a multinational multi-database covering the years 2000-2019. The empirical evidence indicates that the health care burden was negatively correlated with economic growth during the study period, with every 1% increase in the health care burden leading to a 0.083% decrease in the GDP growth rate. The results of heterogeneity analysis and mediating analysis further confirmed that worsening health in the elderly population could be associated with the deceleration in economic development through the indirect pathway that lowering the employment rate of working-age population. This study provides new empirical evidence on the economic impact of population aging that the poor health of elderly population can be one critical factor of limiting economic growth, for the reason the labor inputs in household production are likely crowded out by family caregiving.

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Sanders, Thomas L., Hilal Maradit Kremers, Andrew J. Bryan, Jeanine E. Ransom, Jay Smith, and Bernard F. Morrey. "The Epidemiology and Health Care Burden of Tennis Elbow." American Journal of Sports Medicine 43, no. 5 (February 5, 2015): 1066–71. http://dx.doi.org/10.1177/0363546514568087.

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Dworkin, Robert H., Richard White, Alec B. O'Connor, and Kevin Hawkins. "Health Care Expenditure Burden of Persisting Herpes Zoster Pain." Pain Medicine 9, no. 3 (April 2008): 348–53. http://dx.doi.org/10.1111/j.1526-4637.2006.00196.x.

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Wilson, L., J. Huang, and D. Doshi. "PMH39: HEALTH CARE BURDEN AND COST OF PARKINSON'S DISEASE." Value in Health 3, no. 2 (March 2000): 92. http://dx.doi.org/10.1016/s1098-3015(11)70429-6.

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Khoshmohabat, Hadi, Mohammad Hosein Kalantar Motamedi, Masoud Saghafinia, and Amin Shams. "Immigration for health care in Iran: burden or blessing?" Lancet 383, no. 9922 (March 2014): 1039. http://dx.doi.org/10.1016/s0140-6736(14)60516-x.

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Harrison, Diana S., and Kenneth D. Cole. "Family Dynamics and Caregiver Burden in Home Health Care." Clinics in Geriatric Medicine 7, no. 4 (November 1991): 817–30. http://dx.doi.org/10.1016/s0749-0690(18)30522-6.

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Volicer, Ladislav. "Caregiver burden in dementia care: Prevalence and health effects." Current Psychosis & Therapeutics Reports 3, no. 1 (March 2005): 20–25. http://dx.doi.org/10.1007/bf02629405.

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Kehyayan, Vahe, and John P. Hirdes. "Care Needs and Health Care Burden of Persons With Epilepsy Receiving Home Care Services." Home Health Care Management & Practice 31, no. 1 (October 12, 2018): 42–50. http://dx.doi.org/10.1177/1084822318806291.

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The purpose of this study was to describe the characteristics of persons with epilepsy (PWE) receiving home care services. A cross-sectional study was conducted comparing the characteristics of PWE with those without epilepsy (comparison group). PWE were more likely to have mental health issues and functional, mobility, and cognitive impairments; to receive a variety of psychotropic medications; to experience psychosocial issues such as isolation and conflicts in their relationships; to have caregivers experiencing psychological distress; and to be economically disadvantaged necessitating making economic trade-offs in their care. Epilepsy is associated with caregiver distress and has an impact on health resource utilization. Future studies are needed to identify strategies to improve the quality of care and life of PWE.

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Tsou, Amy Y., William D. Graf, James A. Russell, and Leon G. Epstein. "Ethical Perspectives on Costly Drugs and Health Care." Neurology 97, no. 14 (October 4, 2021): 685–92. http://dx.doi.org/10.1212/wnl.0000000000012571.

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High drug prices have created substantial challenges for patients, physicians, health systems, and payers. High drug prices can affect patient care in many ways, including limiting access to treatment, increasing the burden of administrative tasks, and contributing to physician burnout. Exorbitant drug pricing poses direct challenges for distributive justice, which is concerned with fairly distributing benefits and burdens across society. In this position statement, we discuss ethical concerns raised by high drug costs, primarily focusing on concerns around distributive justice. We consider forms of rationing, approaches to allocation, potential complexities in real-life application, and structural forces contributing to high drug costs. Finally, we consider potential policy solutions and ramifications for individual clinicians.

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Garcia, Jesus Garcia, Sonya Grillo, Qing Cao, Claudio G. Brunstein, Mukta Arora, Margaret L. MacMillan, John E. Wagner, Daniel J. Weisdorf, and Shernan G. Holtan. "Low 5-year health care burden after umbilical cord blood transplantation." Blood Advances 5, no. 3 (February 8, 2021): 853–60. http://dx.doi.org/10.1182/bloodadvances.2020003369.

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Abstract Recipients of allogeneic hematopoietic cell transplantation (HCT) experience a substantial health care burden, with potentially differing patterns of long-term health care requirements using peripheral blood stem cells, bone marrow, and umbilical cord blood (UCB) grafts. We analyzed data from 1077 consecutive adult allogeneic HCT recipients who underwent transplant at the University of Minnesota between 2000 and 2016. To estimate health care burden over time, we compared the number of visits, laboratory studies, medications, and relative value units billed. Health care elements were analyzed both individually and together (ie, total health care elements used per patient days into a density composite score). UCB had the lowest density health care burden composite score from the time of transplant through year 5 (median score 64.0 vs 70.5 for peripheral blood stem cells and 88.0 for bone marrow; P < .01). In multivariate analysis of health care burden between years 1 and 5, recipients of either bone marrow (odds ratio [OR] 0.49 [95% confidence interval (CI) 0.29-0.84]) or peripheral blood stem cells (OR 0.49 [95% CI 0.36-0.67]) were half as likely to experience low health care burden compared with UCB. Adult recipients of UCB have a lower long-term health care burden compared with other graft sources, possibly reflecting a better quality of life.

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Meier, T., P. Deumelandt, O. Christen, G. I. Stangl, K. Riedel, and M. Langer. "Global Burden of Sugar-Related Dental Diseases in 168 Countries and Corresponding Health Care Costs." Journal of Dental Research 96, no. 8 (May 10, 2017): 845–54. http://dx.doi.org/10.1177/0022034517708315.

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Oral diseases such as dental caries, edentulism (tooth loss), periodontal disease (PD), and oral cancer currently constitute an increased major public health burden across the globe, with significant differences between countries. One of the main drivers of caries, edentulism, and PD is the excessive intake of sugars. Here, we aimed to quantify the global sugar-related dental health and cost burden in the year 2010. This study used a health-econometrical model to calculate the disease burden as well as the direct and indirect costs attributable to the intake of free sugars (mono- and disaccharides [MDS]). To this end, several databases from the Institute for Health Metrics and Evaluation (IHME), Organisation for Economic Co-operation and Development (OECD), Food and Agriculture Organization (FAO), and World Bank were used. In total, the corresponding disease burden in 168 countries and economic burden in 31 OECD countries were quantified. In 2010, the consumption of MDS was associated with a global dental disease burden of 4.1 million disability-adjusted life years (DALYs; 95% uncertainty interval [UI]: 2.1 to 7.4 million DALYs), with 2.7 million DALYs from MDS-related caries and 1.4 million DALYs from PD. In terms of economic costs, MDS-related dental diseases were associated with a global financial burden of 172 billion US dollars (USD; 95% UI: 91 to 295 billion USD), the largest share of which (151 billion USD) was incurred in OECD countries. Overall, 26.3% (95% UI: 13.3% to 47.5%) of the total global oral disease burden was attributed to the consumption of MDS. The present study emphasizes the need to further address the role of free sugars in oral health and nutrition policy. Although the largest share of the economic burden was accounted for by OECD countries, emerging economies should address this challenge early on in national public health policies if they are to avoid disease and the prospect of increased cost burdens.

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Rice, Dorothy P., Patrick J. Fox, Wendy Max, Pamela A. Webber, Walter W. Hauck, David A. Lindeman, and Ernestine Segura. "The Economic Burden of Alzheimer's Disease Care." Health Affairs 12, no. 2 (January 1993): 164–76. http://dx.doi.org/10.1377/hlthaff.12.2.164.

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de Rosa, Cristina, Ashleigh Holmes, Weijun Wang, and Yu-Ping Chang. "POSITIVE CAREGIVING AND CAREGIVING RELATIONSHIP ASSOCIATION WITH MENTAL HEALTH AND PERCEIVED GENERAL HEALTH." Innovation in Aging 6, Supplement_1 (November 1, 2022): 542. http://dx.doi.org/10.1093/geroni/igac059.2057.

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Abstract Caregiver burden is well understood as an important contributor to caregiver health. However, little is known about how positive aspects of caregiving (i.e., personal growth, gratitude, finding meaning) and the quality of caregivers’ relationships with care recipients might play a role in caregiver health. The study aimed to examine whether positive caregiving and caregivers’ relationship with care recipients were associated with caregiver mental health (depression and anxiety) and perceived general health. The sample consisted of 2,652 family caregivers in the National Study of Caregiving (NSOC) III (2017) providing care to older adults. A series of multiple regression models with covariate adjustments (i.e., caregiver’s age, sex, and race/ethnicity) were performed to examine the associations. Results indicated that positive aspects of caregiving predicted caregiver mental health but did not predict perceived general health. Caregivers’ relationship with care recipients and caregiver burden significantly predicted caregiver mental health (b = 0.285 [S.E. = 0.045], p < .001) and perceived general health (b = 0.096 [0.016], p < .001). After controlling for caregiver burden, only caregivers’ relationship with care recipients remained a significant predictor of caregiver mental health (b = 0.182 [0.041], p < .001) and perceived general health (b = 0.077 [0.018], p < .001). Our results suggest that positive caregiving perceptions and quality of relationships between caregivers and care recipients are linked to better caregiver mental health. Interventions to reduce caregiver burden, including strategies to help caregivers maintain positive attitudes and positive relationships with care recipients, might be beneficial to improving caregiver health.

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Journal articles on the topic 'Health care burden'

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