Relevant bibliographies by topics / Health care burden

Academic literature on the topic 'Health care burden'

Author: Grafiati
Published: 10 December 2022
Last updated: 28 January 2023

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Journal articles on the topic "Health care burden"

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Hellwig, Jennifer. "Health Care Time Burden Disparities." Nursing for Women's Health 20, no. 1 (February 2016): 18. http://dx.doi.org/10.1016/s1751-4851(16)00042-8.

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Mueller, Anne, Scott R. Beach, Barbara J. Bowers, and Beth Fields. "Relationship between health care interactions and care partner burden." Families, Systems, & Health 40, no. 2 (June 2022): 225–31. http://dx.doi.org/10.1037/fsh0000675.

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Darling, Helen. "US health care costs: The crushing burden." Information Knowledge Systems Management 8, no. 1-4 (2009): 87–104. http://dx.doi.org/10.3233/iks-2009-0137.

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Bennett, Kevin J., M. Paige Powell, and Janice C. Probst. "Relative Financial Burden of Health Care Expenditures." Social Work in Public Health 25, no. 1 (December 29, 2009): 6–16. http://dx.doi.org/10.1080/19371910802672007.

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Wells, James M. "Cancer burden, finance, and health-care systems." Lancet Oncology 22, no. 1 (January 2021): 13–14. http://dx.doi.org/10.1016/s1470-2045(20)30681-1.

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Kong, David F., Michael A. Blazing, and Christopher M. O'Connor. "THE HEALTH CARE BURDEN OF UNSTABLE ANGINA." Cardiology Clinics 17, no. 2 (May 1999): 247–61. http://dx.doi.org/10.1016/s0733-8651(05)70072-2.

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Elsaid, Mohamed I., Tina John, You Li, Sri Ram Pentakota, and Vinod K. Rustgi. "The Health Care Burden of Hepatic Encephalopathy." Clinics in Liver Disease 24, no. 2 (May 2020): 263–75. http://dx.doi.org/10.1016/j.cld.2020.01.006.

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Banthin, Jessica S., Peter Cunningham, and Didem M. Bernard. "Financial Burden Of Health Care, 2001–2004." Health Affairs 27, no. 1 (January 2008): 188–95. http://dx.doi.org/10.1377/hlthaff.27.1.188.

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Fadden, G., P. Bebbington, and L. Kuipers. "The Burden of Care." British Journal of Psychiatry 150, no. 3 (March 1987): 285–92. http://dx.doi.org/10.1192/bjp.150.3.285.

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This paper reviews the literature on the effect of severe mental illness on other members of the patient's family. The burdens of caring for a patient at home are considerable. They often affect the caring relative's social and leisure activities, and financial problems arise frequently. Relatives have difficulties in understanding and coming to terms with illness-related behaviour. ‘Negative’ symptoms are often a particular problem. Despite their burden, relatives do not complain much, although they receive little support, advice or information from the professionals engaged in treating the patient; much is now known about the difficulties relatives face, but we still need to know how they can best be helped. Failure to do this will have bad effects on both relatives and patients.
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TURAL BÜYÜK, Esra, Nihal ÜNALDI BAYDIN, and Gamze TUNÇER ÜNVER. "The Relationship Between Mothers' Care Burden and Health Care Satisfaction." Turkiye Klinikleri Journal of Nursing Sciences 13, no. 2 (2021): 204–11. http://dx.doi.org/10.5336/nurses.2020-75308.

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Dissertations / Theses on the topic "Health care burden"

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Obot, Stella S. "Health Care Disparities and Chronic Disease Burden: Policy Implications for NGOs." Digital Archive @ GSU, 2010. http://digitalarchive.gsu.edu/iph_theses/88.

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The purpose of this capstone is to develop a program to address health literacy among African American adults. The social cognitive theory and the health belief model was used to create a model of an age appropriate, culturally sensitive program with a pre and post test to improve the health literacy in this population. The Community Health Literacy Improvement Program (CHIP) is a pilot program that will consist of a four week didactic intervention focused on combating prose, document, and quantitative health illiteracy. This program will be implemented through a community based nonprofit organization. Participants who complete the CHIP program will be able to identify risk factors for chronic diseases, assess their ability to avoid chronic diseases, and be able to locate community health resources. This proposed intervention will show that community based nonprofit organizations have an important role to play in building community buy in and establishing the agency necessary for community based, culturally sensitive programs such as CHIP to succeed.
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Caicedo, Carmen. "Children with Special Health Care Needs: Comparison of the Effects of Home Care Setting, Prescribed Pediatric Extended Care Setting, and Long-Term Care Setting on Child and Family Health Outcomes and Health Care Service Use." FIU Digital Commons, 2013. http://digitalcommons.fiu.edu/etd/844.

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Technological advances during the past 30 years have dramatically improved survival rates for children with life-threatening conditions (preterm births, congenital anomalies, disease, or injury) resulting in children with special health care needs (CSHCN), children who have or are at increased risk for a chronic physical, developmental, behavioral, or emotional condition and who require health and related services beyond that required by children generally. There are approximately 10.2 million of these children in the United States or one in five households with a child with special health care needs. Care for these children is limited to home care, medical day care (Prescribed Pediatric Extended Care; P-PEC) or a long term care (LTC) facility. There is very limited research examining health outcomes of CSHCN and their families. The purpose of this research was to compare the effects of home care settings, P-PEC settings, and LTC settings on child health and functioning, family health and function, and health care service use of families with CSHCN. Eighty four CSHCN ages 2 to 21 years having a medically fragile or complex medical condition that required continual monitoring were enrolled with their parents/guardians. Interviews were conducted monthly for five months using the PedsQL TM Generic Core Module for child health and functioning, PedsQL TM Family Impact Module for family health and functioning, and Access to Care from the NS-CSHCN survey for health care services. Descriptive statistics, chi square, and ANCOVA were conducted to determine differences across care settings. Children in the P-PEC settings had a highest health care quality of life (HRQL) overall including physical and psychosocial functioning. Parents/guardians with CSHCN in LTC had the highest HRQL including having time and energy for a social life and employment. Parents/guardians with CSHCN in home care settings had the poorest HRQL including physical and psychosocial functioning with cognitive difficulties, difficulties with worry, communication, and daily activities. They had the fewest hours of employment and the most hours providing direct care for their children. Overall health care service use was the same across the care settings.
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Snow-Spracklin, Elizabeth G. "Caregivers' perception of health, burden, social support, and care receiver problems." Thesis, National Library of Canada = Bibliothèque nationale du Canada, 1998. http://www.collectionscanada.ca/obj/s4/f2/dsk2/tape17/PQDD_0014/MQ36179.pdf.

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Okwori, Glory, Elaine Loudermilk, Steven Stewart, Delaney Lawson, and Megan Quinn. "Health Care Burden and Expenditure Associated with Adverse Childhood Experiences in Tennessee and Virginia." Digital Commons @ East Tennessee State University, 2021. https://dc.etsu.edu/asrf/2021/presentations/72.

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Introduction: Adverse childhood experiences (ACEs) have been considered a significant risk factor for poorer adult outcomes. Considering the studies linking ACEs to chronic diseases in adulthood as well as the increasing prevalence for these chronic conditions, exposure to childhood traumas represents a significant economic burden in the United States which has not been explored. This study provides the first examination of the attributable burden and costs of conditions associated with exposure to ACEs in Tennessee (TN) and Virginia (VA) during 2017. Methods: This is a cross-sectional study of individuals aged 18+ having exposure to ACEs using Behavioral Risk Factor Surveillance System (BRFSS) data for TN and VA in 2017. Eight chronic diseases (asthma, obesity, hypertension, diabetes, chronic obstructive pulmonary disease (COPD), depression, cardiovascular disease, and arthritis ) and two risk factors (smoking and drinking ) associated with ACEs were analyzed. Pearson's chi-square tests analyzed the association between individuals exposed to ACEs and the risk factors with the chronic diseases. The population attributable risk (PAR) were estimated for the ACEs related diseases and risk factors. These estimates were combined with published estimates of health care expenses and Disability Adjusted-Life-Years (DALYs). Results: Among those who had experienced at least 1 ACE in TN, 10% had COPD, 17% had diabetes, 36% had obesity, and 30% had depression. Individuals who had experienced at least 1 ACE in VA had higher percentages for COPD, obesity and depression diseases compared to those who had no ACE (p< .0001). ACEs exposure resulted in a burden of about 115,00 years and 125,000 years in terms of DALYs in TN and VA respectively. The total health spending associated with ACEs based on PARs was about $650 million ($158.15 per adult) and $942 million ($305.02 per adult) in TN and VA respectively. Depression accounted for the largest combined sum of health care spending (TN - $448,105,983, VA – $633,225,398). With DALYs valued at $235,855 in 2017 dollars, the monetized cost of DALYs attributable to ACEs was over $27 billion, $6615 per exposed adult Tennessean. The monetized loss due to DALYs represents over $30 billion (in 2017 dollars) , $9,737 per exposed adult in Virginia. Conclusions: This study emphasizes the need to reduce ACEs which can be utilized to inform interventions to reduce the impact of ACEs in Tennessee and Virginia. Medical conditions attributable to childhood traumas can result in increased utilization of hospital services, psychiatric care, as well as care related to chronic conditions, which includes increased primary and specialty care utilization as well as the cost of medications. While medical expenses represent a significant burden, reduced quality of life resulting from ACE attributable conditions also represents a burden in disability adjusted life years (DALYs) and premature morbidity. As resources are limited and the burden of ACEs shown here is very high, there is the need for a wide range of prevention and treatment strategies to mitigate these effects.
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Plange-Kaye, Elizaebth. "Caregivers' Burden| A Phenomenological Study of the Lived Experiences of Informal Caregivers." Thesis, University of Phoenix, 2018. http://pqdtopen.proquest.com/#viewpdf?dispub=10744463.

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ABSTRACT The current increase in the population of older adults has created a high demand for more informal caregivers. Informal caregivers complain of many problems in providing care including psychological stresses and anxieties, as well as physical, emotional, financial, and other social burdens. The purpose of this phenomenological study was to understand and describe the essence of the lived experiences of informal caregivers. The study was also intended to make health professionals and policy makers aware of such problems. The study adopted a qualitative methodology and a hermeneutical phenomenological design. Purposeful sampling was used in selecting participants with informal caregiving experience. Eleven informal caregivers were interviewed via telephone for data collection. Data was analyzed using Nvivo 11 for the identification and description of patterns and themes from the perspectives of participants. Eight themes that emerged from data analysis were: (a) Gender, many females engaging in caregiving, (b) Caregivers feeling stressful, (c) Love played a crucial role in caregiving, (d) Need for training for caregivers, (e) Being cared for by loved family members, (f) Impacts on job performance, (g) Living arrangements between caregiver and care receiver, and (h) Lack of support from family, community or state agencies. The conclusions focused on the need for support to informal caregivers such as caregiver training, adult day care services, care leave or respite care, increased access to services, care payments, and expansion in the informal caregiver workforce.

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Bigatti, Silvia Marcela. "Relationships between perceived burden, physical health, and health care use among spouses of people with fibromyalgia syndrome /." Diss., Connect to a 24 p. preview or request complete full text in PDF format. Access restricted to UC campuses, 2000. http://wwwlib.umi.com/cr/ucsd/fullcit?p9970686.

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Moorman, Jonathan P., Matthew R. Krolikowski, Stephanie M. Mathis, and Robert P. Pack. "HIV/HCV Co-infection: Burden of Disease and Care Strategies in Appalachia." Digital Commons @ East Tennessee State University, 2018. https://dc.etsu.edu/etsu-works/2766.

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Purpose of Review: The purpose of this review is to address infection with HIV and hepatitis C in the Appalachian region of the USA and the driving forces underlying this epidemic. We seek to discuss epidemiology of disease and the possible interventions to reduce incidence and burden of disease in this resource-limited area. Recent Findings: The rise of the opioid crisis has fueled a rise in new hepatitis C infection, and a rise in new HIV infection is expected to follow. Injection drug use has directly contributed to the epidemic and continues to remain a risk factor. Men who have sex with men remains a significant risk factor for HIV acquisition as well. Summary: Progress has been made in the battle against HIV and, to a lesser extent, hepatitis C, but much more can be done. Limited data on co-infection with HIV/HCV are currently available for this at-risk region, but it is clear that Appalachia is highly vulnerable to co-infection outbreaks. A multipronged approach that includes advances in assessment of co-infection and education for both patients and clinicians can help to recognize, manage, and ideally prevent these illnesses.
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Neethling, Ian. "Enhancing the use of burden of disease information for health sector decision making." University of the Western Cape, 2019. http://hdl.handle.net/11394/6930.

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O'Donovan, Simon Terence. "Dementia caregiving : burden and breakdown." Thesis, University of South Wales, 2004. https://pure.southwales.ac.uk/en/studentthesis/dementia-caregiving(34088905-f406-4d82-bc09-aeed052f5e3c).html.

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This study was an investigation of the phenomenon of dementia caregiving burden and breakdown in community caregiving situations. 109 carer subjects participated in the study, with 91 current carers - 17 via face-to-face interview and 74 via the internet, and 18 past carers - two via face-to-face interview and 16 via the internet, contributing their experiences of dementia caregiving. Two new carers' assessment tools were devised to meet more fully the requirements of the 'Carers (Recognition and Services) Act 1995' (DoH, 1995), namely the 'Dementia Caregiving Problems Questionnaire (DCPQ)' and 'Dementia Caregiving Burden Questionnaire (DCBQ)'. These new assessments were tested and demonstrated to be reliable, with Cronbach Alpha scores of 0.7029 and 0.8430 respectively, and are recommended for implementation in clinical practice. The key predictive risk factors for high caregiving burden in this study were perceived stress; omission of caregiving satisfactions; carer depression; perceived impact on quality of life; perceived helpfulness of community care services; behaviour problems - especially shouting, swearing and screaming, irritability and night disturbance; poor quality carer/dependant relationship; mood problems; perceived helpfulness of informal support; perceived impact of caregiving on dependant emotional well-being and, to a lesser extent, hours spent in caregiving. The key predictive risk factors for expected relinquishment of home caregiving were DCBQ score; perceived impact on quality of life; perceived stress; carer depression and, to a lesser extent, geographical distance in caregiving; perceived helpfulness of community care services and omission of positive feelings in the carer. Based on the above risk factors, a new 'Dementia Caregiving Breakdown Risk Assessment Tool (DCBRAT)' is proposed for use by community care managers to identify 'at risk' caregiving situations so that service interventions can be targetted more towards carers who are highly burdened in their role, who are at risk of developing psychological health problems or who may be nearing breakdown in their caregiving situation. Thus the effectiveness of service interventions may be maximised and optimal health gain for carers achieved, resulting in improved outcomes for people with dementia. The DCBRAT and the similarly proposed 'Conceptual Model of Dementia Caregiving, Burden and Breakdown' will need to be further tested in post-doctoral research.
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Carter, Angela Joy Wilhelmina. "Sharing the burden : a study of teamwork and well-being in secondary health care teams." Thesis, University of Sheffield, 2000. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.324455.

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Books on the topic "Health care burden"

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Komamura, Kōhei. Who bears the burden of social insurance? Cambridge, MA: National Bureau of Economic Research, 2004.

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Fagin, Claire M. When care becomes a burden: Diminishing access to adequate nursing. New York, NY: Milbank Memorial Fund, 2001.

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Do, Erin. Financing health care for the uninsured: Who bears the burden in Tennessee. Nashville, Tenn: Comptroller of the Treasury, Offices of Research and Education Accountability, 2007.

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Ramana, G. N. V. Andhra Pradesh burden of disease and cost effectiveness study. Hyderabad: Institute of Health Systems, 2000.

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Goldberg, David. The general practitioner, the psychiatrist and the burden of mental health care. London: Institute of Psychiatry, 1997.

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Goldberg, David. The general practitioner, the psychiatrist and the burden of mental health care. London: Institute of Psychiatry, 1996.

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Corporation, Rand, ed. The economic burden of providing health insurance: How much worse off are small firms? Santa Monica, CA: RAND Corporation, 2008.

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Hixon, Illston Laurel, and Hanley Raymond J, eds. Sharing the burden: Strategies for public and private long-term care insurance. Washington, D.C: Brookings Institution, 1994.

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Komamura, Kōhei. Who bears the burden of social insurance?: Evidence from Japanese health & long-term care insurance data. Cambridge, MA: National Bureau of Economic Research, 2004.

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Boyle, Joseph M. Does the benefit outweigh the burden in the artificial provision of nutrition and hydration? two answers. I. An affirmative answer. [Braintree, Ma.]: Pope John Center, 1989.

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Book chapters on the topic "Health care burden"

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Tuckman, Howard P., and Cyril F. Chang. "Who Bears the Burden of Uncompensated Hospital Care?" In Health and Poverty, 91–101. New York: Routledge, 2021. http://dx.doi.org/10.4324/9781003249443-8.

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Gognalons-Nicolet, Maryvonne, and Anne Bardet-Blochet. "Social Networks and Health Burden on Care-Givers." In Manage or Perish?, 603–11. Boston, MA: Springer US, 1999. http://dx.doi.org/10.1007/978-1-4615-4147-9_72.

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Ibrahim, Ahmed H., and Emad Shash. "General Oncology Care in Egypt." In Cancer in the Arab World, 41–61. Singapore: Springer Singapore, 2022. http://dx.doi.org/10.1007/978-981-16-7945-2_4.

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AbstractEgypt is a young nation with a growing oncology health sector. It is faced with many challenges, such as the endemicity of HCV and schistosomiasis causing the high prevalence rates of hepatocellular carcinoma and bladder cancer respectively. In recognition of their tremendous health and economic burden, the Egyptian government established the “100 Million Healthy Lives” campaign in September 2018 for the screening of HBV, HCV, hypertension, and diabetes mellitus patients. MoH also founded the National Committee for Control of Viral Hepatitis to implement an integrated national strategy to contain the situation. More oncology-specialized hospitals and units are built every year to cope with the increased demand, such as the New National Cancer Institute, Shefaa El-Orman hospital, and Baheya hospital. Non-Communicable Diseases (NCDs), especially neoplasms, are the twenty-first century’s biggest challenge after significant control of communicable ones with the advancement of antimicrobial and progression of community health and epidemiology knowledge. Hence, we believe more light should be shed on their burden in society to increase public awareness and encourage investment in the health care sector.
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Brijnath, Bianca, and Andrew Simon Gilbert. "Aged Care Policy and Structural Burden: Transnational Ambiguities in India and Australia." In Handbook of Aging, Health and Public Policy, 1–17. Singapore: Springer Nature Singapore, 2022. http://dx.doi.org/10.1007/978-981-16-1914-4_41-1.

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Mohamed Brahim, Selma, Ekhtelebenina Zein, Ahmed Houmeida, and Ahmedou Tolba. "General Oncology Care in Mauritania." In Cancer in the Arab World, 149–61. Singapore: Springer Singapore, 2022. http://dx.doi.org/10.1007/978-981-16-7945-2_10.

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AbstractAs in most African countries, cancer is rapidly becoming a public health problem in Mauritania due to the lack of financial resources, scarcity of skilled health workers, and prevalence of inherent risk factors. Efforts are undertaken by the government to ease the burden of this disease on the local population. In this chapter, we present the history and milestones of oncology in Mauritania, the attempts by the state to fight cancer progression and the prospect of these actions.
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Camilleri, Natalie, Nate Henks, Kangwon Seo, and Jung Hyup Kim. "EMR Usage and Nurse Documentation Burden in a Medical Intensive Care Unit." In Digital Human Modeling and Applications in Health, Safety, Ergonomics and Risk Management. Health, Operations Management, and Design, 165–73. Cham: Springer International Publishing, 2022. http://dx.doi.org/10.1007/978-3-031-06018-2_11.

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Peng-Keller, Simon. "Charting Spiritual Care in Digital Health: Analyses and Perspectives." In Charting Spiritual Care, 213–22. Cham: Springer International Publishing, 2020. http://dx.doi.org/10.1007/978-3-030-47070-8_13.

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Abstract This final contribution draws together the various lines of discussion. It outlines the main arguments as well as the points of convergence between transnational developments. Taking up the introductory chapters, the reasons for the rapid development of chaplaincy documentation in the last two decades are examined. The rise of charting spiritual care is understood as an aspect of the ongoing digitalization of society and healthcare. At least three further drivers are clearly identifiable: the emergence of a new paradigm of healthcare chaplaincy, the development of interprofessional spiritual care, and remarkable changes in Western societies concerning the role of religion and spirituality in public spaces. In current discussions about recording spiritual care in EMRs, there is a growing convergence on at least four points. First, used as a tool for planning, coordination, and self-evaluation, digital charting can benefit the work of chaplains. Second, it can also have undesired side effects. Third, any future healthcare chaplaincy will have to be a part of the evolving process of digital recording. Fourth, the ongoing change in healthcare and society forces chaplains to become clearer about its nature and role. In sum, the task of charting spiritual care into EMRs might be seen as a bureaucratic burden. However, with its questions of the “who,” the “what,” and the “how,” it touches the heart of chaplaincy as a spiritual profession in healthcare. The paper concludes with an outline of a possible future for the practice of charting spiritual care.
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Washio, Masakazu, Yasuko Toyoshima, Ikuko Miyabayashi, and Yumiko Arai. "Burden Among Family Caregivers of Older People Who Need Care in Japan." In Current Topics in Environmental Health and Preventive Medicine, 17–32. Singapore: Springer Singapore, 2018. http://dx.doi.org/10.1007/978-981-13-1762-0_2.

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Anumba, Dilly OC, and Shamanthi M. Jayasooriya. "Global Antenatal Care Coverage and Content." In Evidence Based Global Health Manual for Preterm Birth Risk Assessment, 1–5. Cham: Springer International Publishing, 2022. http://dx.doi.org/10.1007/978-3-031-04462-5_1.

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AbstractAccess to, timely initiation of, and good quality antenatal care is crucial to reducing the global burden of neonatal morbidity and mortality which disproportionately affects low-and middle-income countries. Despite the availability of global guidance regarding the frequency and content of ANC, the utilisation of such care to assess and address the risks of preterm birth remains patchy, largely because public awareness has not been sufficiently raised regarding the evidenced risk factors for preterm birth that may be amenable to early initiation of mitigation. This chapter briefly summarises recommended global ANC coverage standards as a basis for discussions in subsequent chapters regarding how improved coverage addressing the risk factors for preterm birth in LMICs can contribute to reducing preterm birth rates.
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Mugisha, James. "Sociocultural Aspects of Health Promotion in Palliative Care in Uganda." In Health Promotion in Health Care – Vital Theories and Research, 303–12. Cham: Springer International Publishing, 2021. http://dx.doi.org/10.1007/978-3-030-63135-2_21.

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AbstractDespite its vital importance, health promotion has not occupied its due place in public health in Uganda. The country is engulfed into a rising wave of both communicable and non-communicable conditions. This rising burden of both communicable and non-communicable conditions turns health promotion and palliative care essential health care packages; though there is little to show that these two important programs are getting vital support at policy and service delivery levels. A new theoretical framework that is anchored into sociocultural issues is essential in guiding the design and delivery of both health promotion and palliative care in Uganda. The salutogenic theory puts socio-cultural issues at the centre of developing health promotion and palliative care and, seems to solve this dilemma. In this chapter, illustrations from indigenous communities in Uganda are employed to demonstrate the challenges to the health promotion and palliative care agenda in the country and how they can be addressed. Uganda Ministry of Health should develop robust structures within public health for development of health promotion and palliative care in the country. Research should be conducted on the effectiveness of the current strategies on health promotion and palliative care and their cultural sensitivity and appropriateness. Given the limited resources available for development of health care in Uganda, as an overall strategy, health promotion and palliative care should be anchored in public health and its (public health) resources.
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Conference papers on the topic "Health care burden"

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Campbell, C., J. Bert, K. Teschke, and P. Quintana. "305. Body Burden of Dioxins and Furans in Sawmill Workers Exposed to Chlorophenol Fungicides." In AIHce 1996 - Health Care Industries Papers. AIHA, 1999. http://dx.doi.org/10.3320/1.2764979.

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Bahçe, Serdal, Altuğ Murat Köktas, and Deniz Abukan. "Health Care Reform and Household Welfare: Health Transformation Programme in Turkey." In International Conference on Eurasian Economies. Eurasian Economists Association, 2013. http://dx.doi.org/10.36880/c04.00718.

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We assessed the health care reform and its effects on household’s welfare such as access to health care and household economic burden. We used descriptive analysis on 2002-2011 Ministry of Health and OECD Health Statistics. The main result is about using health care. Access to health care increased after health care reform in Turkey. Number of applications to health care service server and its units rose. On the other hand, financial burden of health care on household’s budget decreased number of applications. The main result percentage of not consulting a specialist even needed to consult a specialist but did not during the past 12 months is %4.9 in 2003 and %19.9 in 2010. To improve health care access, policy makers should improve public sector provision of health care, increase social security benefit packages and protect poor and vulnerable.
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Coats, Louise, and Bill Chaudhry. "22 Reducing burden of ambulatory care in adult congenital heart disease to improve health outcomes – a cohort study." In British Cardiovascular Society Annual Conference, ‘100 years of Cardiology’, 6–8 June 2022. BMJ Publishing Group Ltd and British Cardiovascular Society, 2022. http://dx.doi.org/10.1136/heartjnl-2022-bcs.22.

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Wong, John Quan, Leizel P. Lagrada, Katherine Ann Villegas Reyes, Rizza Majella Lee Herrera, Beverly Lorraine Chua Ho, Pura Angela Wee Co, and Diana Beatriz Samson Bayani. "051: LOCALIZING BURDEN OF DISEASE DATA FOR THE DEVELOPMENT OF A PRIMARY CARE BENEFIT IN THE PHILIPPINES." In Global Forum on Research and Innovation for Health 2015. British Medical Journal Publishing Group, 2015. http://dx.doi.org/10.1136/bmjopen-2015-forum2015abstracts.51.

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Schwartz, Kendra, Julia Mantey, Julie Ruterbusch, Stephanie Pandolfi, Theresa A. Hastert, Hayley Thompson, Jennifer Beebe-Dimmer, and Ann G. Schwartz. "Abstract D083: Care burden of informal caregivers of African American cancer survivors." In Abstracts: Twelfth AACR Conference on the Science of Cancer Health Disparities in Racial/Ethnic Minorities and the Medically Underserved; September 20-23, 2019; San Francisco, CA. American Association for Cancer Research, 2020. http://dx.doi.org/10.1158/1538-7755.disp19-d083.

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Conium, JC, A. Astle, IE Takon, and N. Bajaj. "G178(P) Burden of care in children with epilepsy and learning difficulties: management challenges." In Royal College of Paediatrics and Child Health, Abstracts of the Annual Conference, 13–15 March 2018, SEC, Glasgow, Children First – Ethics, Morality and Advocacy in Childhood, The Journal of the Royal College of Paediatrics and Child Health. BMJ Publishing Group Ltd and Royal College of Paediatrics and Child Health, 2018. http://dx.doi.org/10.1136/archdischild-2018-rcpch.173.

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Dures, E. "SP0190 Facts and figures: how mental health care addresses the psychological burden of rmd's in europe." In Annual European Congress of Rheumatology, 14–17 June, 2017. BMJ Publishing Group Ltd and European League Against Rheumatism, 2017. http://dx.doi.org/10.1136/annrheumdis-2017-eular.7121.

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CHEN, XU. "Study on the Care Burden and Influencing Factors of the Family Caregivers of Disabled Elders in Dalian." In ICMHI 2022: 2022 6th International Conference on Medical and Health Informatics. New York, NY, USA: ACM, 2022. http://dx.doi.org/10.1145/3545729.3545785.

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Giménez Campos, MS, Villaverde P. Flors, Melchor E. Soriano, Mulió A. Bahamontes, Martinez B. Valdivieso, and Martin MP Barreto. "2 Caregiver burden and health status perception of family caregivers of patients receiving palliative care at home." In Accepted Oral and Poster Abstract Submissions, The Palliative Care Congress 1 Specialty: 3 Settings – home, hospice, hospital 19–20 March 2020 | Telford International Centre. British Medical Journal Publishing Group, 2020. http://dx.doi.org/10.1136/spcare-2020-pcc.23.

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Peak, Katherine, Miguel Marino, Steele Valenzuela, Robert Voss, and Ana Quinones. "Multimorbidity Burden for Adults Seeking Care in Community Health Centers Living in Different Areas of Social Deprivation." In NAPCRG 50th Annual Meeting — Abstracts of Completed Research 2022. American Academy of Family Physicians, 2023. http://dx.doi.org/10.1370/afm.21.s1.3977.

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Reports on the topic "Health care burden"

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Cromwell, Jerry, Deborah Healey, Elizabeth Seeley, Diana Trebino, and Genevieve Cromwell. The Nation's Health Care Bill: Who Bears the Burden? Research Triangle Park, NC: RTI Press, August 2013. http://dx.doi.org/10.3768/rtipress.2013.bk.0010.1307.

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Collins, Sara R. Collins, Sophie Beutel Beutel, Michelle Doty Doty, and Munira Gunja Gunja. How High Is America's Health Care Cost Burden? Findings from the Commonwealth Fund Health Care Affordability Tracking Survey, July-August 2015. New York, NY United States: Commonwealth Fund, November 2015. http://dx.doi.org/10.15868/socialsector.25053.

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Motaze, NV, and Charles Shey Wiysonge. Do social and community-based health insurance schemes have an impact on the poor and the informal sector in low- and middle-income countries? SUPPORT, 2017. http://dx.doi.org/10.30846/1704123.

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People with low incomes often have poor access to health services and limited ability to pay for medical care. For such individuals and households, substantial out-of-pocket healthcare expenditure may have catastrophic financial consequences and worsen poverty. Health insurance schemes are intended to reduce the burden of health costs on individuals and households.
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Dy, Sydney M., Julie M. Waldfogel, Danetta H. Sloan, Valerie Cotter, Susan Hannum, JaAlah-Ai Heughan, Linda Chyr, et al. Integrating Palliative Care in Ambulatory Care of Noncancer Serious Chronic Illness: A Systematic Review. Agency for Healthcare Research and Quality (AHRQ), February 2020. http://dx.doi.org/10.23970/ahrqepccer237.

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Objectives. To evaluate availability, effectiveness, and implementation of interventions for integrating palliative care into ambulatory care for U.S.-based adults with serious life-threatening chronic illness or conditions other than cancer and their caregivers We evaluated interventions addressing identification of patients, patient and caregiver education, shared decision-making tools, clinician education, and models of care. Data sources. We searched key U.S. national websites (March 2020) and PubMed®, CINAHL®, and the Cochrane Central Register of Controlled Trials (through May 2020). We also engaged Key Informants. Review methods. We completed a mixed-methods review; we sought, synthesized, and integrated Web resources; quantitative, qualitative and mixed-methods studies; and input from patient/caregiver and clinician/stakeholder Key Informants. Two reviewers screened websites and search results, abstracted data, assessed risk of bias or study quality, and graded strength of evidence (SOE) for key outcomes: health-related quality of life, patient overall symptom burden, patient depressive symptom scores, patient and caregiver satisfaction, and advance directive documentation. We performed meta-analyses when appropriate. Results. We included 46 Web resources, 20 quantitative effectiveness studies, and 16 qualitative implementation studies across primary care and specialty populations. Various prediction models, tools, and triggers to identify patients are available, but none were evaluated for effectiveness or implementation. Numerous patient and caregiver education tools are available, but none were evaluated for effectiveness or implementation. All of the shared decision-making tools addressed advance care planning; these tools may increase patient satisfaction and advance directive documentation compared with usual care (SOE: low). Patients and caregivers prefer advance care planning discussions grounded in patient and caregiver experiences with individualized timing. Although numerous education and training resources for nonpalliative care clinicians are available, we were unable to draw conclusions about implementation, and none have been evaluated for effectiveness. The models evaluated for integrating palliative care were not more effective than usual care for improving health-related quality of life or patient depressive symptom scores (SOE: moderate) and may have little to no effect on increasing patient satisfaction or decreasing overall symptom burden (SOE: low), but models for integrating palliative care were effective for increasing advance directive documentation (SOE: moderate). Multimodal interventions may have little to no effect on increasing advance directive documentation (SOE: low) and other graded outcomes were not assessed. For utilization, models for integrating palliative care were not found to be more effective than usual care for decreasing hospitalizations; we were unable to draw conclusions about most other aspects of utilization or cost and resource use. We were unable to draw conclusions about caregiver satisfaction or specific characteristics of models for integrating palliative care. Patient preferences for appropriate timing of palliative care varied; costs, additional visits, and travel were seen as barriers to implementation. Conclusions. For integrating palliative care into ambulatory care for serious illness and conditions other than cancer, advance care planning shared decision-making tools and palliative care models were the most widely evaluated interventions and may be effective for improving only a few outcomes. More research is needed, particularly on identification of patients for these interventions; education for patients, caregivers, and clinicians; shared decision-making tools beyond advance care planning and advance directive completion; and specific components, characteristics, and implementation factors in models for integrating palliative care into ambulatory care.
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Kenny, Caroline. Parental Alcohol Misuse and Children. Parliamentary Office of Science and Technology, February 2018. http://dx.doi.org/10.58248/pn570.

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Parental Alcohol Misuse (PAM) can negatively affect children’s physical and mental health, and other outcomes including educational attainment and behaviour. Effects can be acute when experienced in conjunction with other adverse experiences such as domestic abuse, marital conflict, and deprivation. PAM is a common feature in child protection and care proceedings, and places a considerable burden on social services.
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Hajarizadeh, Behzad, Jennifer MacLachlan, Benjamin Cowie, and Gregory J. Dore. Population-level interventions to improve the health outcomes of people living with hepatitis B: an Evidence Check brokered by the Sax Institute for the NSW Ministry of Health, 2022. The Sax Institute, August 2022. http://dx.doi.org/10.57022/pxwj3682.

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Background An estimated 292 million people are living with chronic hepatitis B virus (HBV) infection globally, including 223,000 people in Australia. HBV diagnosis and linkage of people living with HBV to clinical care is suboptimal in Australia, with 27% of people living with HBV undiagnosed and 77% not receiving regular HBV clinical care. This systematic review aimed to characterize population-level interventions implemented to enhance all components of HBV care cascade and analyse the effectiveness of interventions. Review questions Question 1: What population-level interventions, programs or policy approaches have been shown to be effective in reducing the incidence of hepatitis B; and that may not yet be fully rolled out or evaluated in Australia demonstrate early effectiveness, or promise, in reducing the incidence of hepatitis B? Question 2: What population-level interventions and/or programs are effective at reducing disease burden for people in the community with hepatitis B? Methods Four bibliographic databases and 21 grey literature sources were searched. Studies were eligible for inclusion if the study population included people with or at risk of chronic HBV, and the study conducted a population-level interventions to decrease HBV incidence or disease burden or to enhance any components of HBV care cascade (i.e., diagnosis, linkage to care, treatment initiation, adherence to clinical care), or HBV vaccination coverage. Studies published in the past 10 years (since January 2012), with or without comparison groups were eligible for inclusion. Studies conducting an HBV screening intervention were eligible if they reported proportion of people participating in screening, proportion of newly diagnosed HBV (participant was unaware of their HBV status), proportion of people received HBV vaccination following screening, or proportion of participants diagnosed with chronic HBV infection who were linked to HBV clinical care. Studies were excluded if study population was less than 20 participants, intervention included a pharmaceutical intervention or a hospital-based intervention, or study was implemented in limited clinical services. The records were initially screened by title and abstract. The full texts of potentially eligible records were reviewed, and eligible studies were selected for inclusion. For each study included in analysis, the study outcome and corresponding 95% confidence intervals (95%CIs) were calculated. For studies including a comparison group, odds ratio (OR) and corresponding 95%CIs were calculated. Random effect meta-analysis models were used to calculate the pooled study outcome estimates. Stratified analyses were conducted by study setting, study population, and intervention-specific characteristics. Key findings A total of 61 studies were included in the analysis. A large majority of studies (study n=48, 79%) included single-arm studies with no concurrent control, with seven (12%) randomised controlled trials, and six (10%) non-randomised controlled studies. A total of 109 interventions were evaluated in 61 included studies. On-site or outreach HBV screening and linkage to HBV clinical care coordination were the most frequent interventions, conducted in 27 and 26 studies, respectively. Question 1 We found no studies reporting HBV incidence as the study outcome. One study conducted in remote area demonstrated that an intervention including education of pregnant women and training village health volunteers enhanced coverage of HBV birth dose vaccination (93% post-intervention, vs. 81% pre-intervention), but no data of HBV incidence among infants were reported. Question 2 Study outcomes most relevant to the HBV burden for people in the community with HBV included, HBV diagnosis, linkage to HBV care, and HBV vaccination coverage. Among randomised controlled trials aimed at enhancing HBV screening, a meta-analysis was conducted including three studies which implemented an intervention including community face-to-face education focused on HBV and/or liver cancer among migrants from high HBV prevalence areas. This analysis demonstrated a significantly higher HBV testing uptake in intervention groups with the likelihood of HBV testing 3.6 times higher among those participating in education programs compared to the control groups (OR: 3.62, 95% CI 2.72, 4.88). In another analysis, including 25 studies evaluating an intervention to enhance HBV screening, a pooled estimate of 66% of participants received HBV testing following the study intervention (95%CI: 58-75%), with high heterogeneity across studies (range: 17-98%; I-square: 99.9%). A stratified analysis by HBV screening strategy demonstrated that in the studies providing participants with on-site HBV testing, the proportion receiving HBV testing (80%, 95%CI: 72-87%) was significantly higher compared to the studies referring participants to an external site for HBV testing (54%, 95%CI: 37-71%). In the studies implementing an intervention to enhance linkage of people diagnosed with HBV infection to clinical care, the interventions included different components and varied across studies. The most common component was post-test counselling followed by assistance with scheduling clinical appointments, conducted in 52% and 38% of the studies, respectively. In meta-analysis, a pooled estimate of 73% of people with HBV infection were linked to HBV clinical care (95%CI: 64-81%), with high heterogeneity across studies (range: 28-100%; I-square: 99.2%). A stratified analysis by study population demonstrated that in the studies among general population in high prevalence countries, 94% of people (95%CI: 88-100%) who received the study intervention were linked to care, significantly higher than 72% (95%CI: 61-83%) in studies among migrants from high prevalence area living in a country with low prevalence. In 19 studies, HBV vaccination uptake was assessed after an intervention, among which one study assessed birth dose vaccination among infants, one study assessed vaccination in elementary school children and 17 studies assessed vaccination in adults. Among studies assessing adult vaccination, a pooled estimate of 38% (95%CI: 21-56%) of people initiated vaccination, with high heterogeneity across studies (range: 0.5-93%; I square: 99.9%). A stratified analysis by HBV vaccination strategy demonstrated that in the studies providing on-site vaccination, the uptake was 78% (95%CI: 62-94%), significantly higher compared to 27% (95%CI: 13-42%) in studies referring participants to an external site for vaccination. Conclusion This systematic review identified a wide variety of interventions, mostly multi-component interventions, to enhance HBV screening, linkage to HBV clinical care, and HBV vaccination coverage. High heterogeneity was observed in effectiveness of interventions in all three domains of screening, linkage to care, and vaccination. Strategies identified to boost the effectiveness of interventions included providing on-site HBV testing and vaccination (versus referral for testing and vaccination) and including community education focussed on HBV or liver cancer in an HBV screening program. Further studies are needed to evaluate the effectiveness of more novel interventions (e.g., point of care testing) and interventions specifically including Indigenous populations, people who inject drugs, men who have sex with men, and people incarcerated.
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Maheshwar, Seema. Experiences of Intersecting Inequalities for Poor Hindu Women in Pakistan. Institute of Development Studies (IDS), December 2020. http://dx.doi.org/10.19088/creid.2020.012.

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Through first-hand accounts of marginalisation and discrimination, the research paper in question explores the reality of life in Pakistan for poor Hindu women and girls who face intersecting and overlapping inequalities due to their religious identity, their gender and their caste. They carry a heavy burden among the marginalised groups in Pakistan, facing violence, discrimination and exclusion, lack of access to education, transportation and health care, along with occupational discrimination and a high threat of abduction, forced conversion and forced marriage.
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Stall, Nathan M., Kevin A. Brown, Antonina Maltsev, Aaron Jones, Andrew P. Costa, Vanessa Allen, Adalsteinn D. Brown, et al. COVID-19 and Ontario’s Long-Term Care Homes. Ontario COVID-19 Science Advisory Table, January 2021. http://dx.doi.org/10.47326/ocsat.2021.02.07.1.0.

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Key Message Ontario long-term care (LTC) home residents have experienced disproportionately high morbidity and mortality, both from COVID-19 and from the conditions associated with the COVID-19 pandemic. There are several measures that could be effective in preventing COVID-19 outbreaks, hospitalizations, and deaths in Ontario’s LTC homes, if implemented. First, temporary staffing could be minimized by improving staff working conditions. Second, homes could be further decrowded by a continued disallowance of three- and four-resident rooms and additional temporary housing for the most crowded homes. Third, the risk of SARS-CoV-2 infection in staff could be minimized by approaches that reduce the risk of transmission in communities with a high burden of COVID-19. Summary Background The Province of Ontario has 626 licensed LTC homes and 77,257 long-stay beds; 58% of homes are privately owned, 24% are non-profit/charitable, 16% are municipal. LTC homes were strongly affected during Ontario’s first and second waves of the COVID-19 pandemic. Questions What do we know about the first and second waves of COVID-19 in Ontario LTC homes? Which risk factors are associated with COVID-19 outbreaks in Ontario LTC homes and the extent and death rates associated with outbreaks? What has been the impact of the COVID-19 pandemic on the general health and wellbeing of LTC residents? How has the existing Ontario evidence on COVID-19 in LTC settings been used to support public health interventions and policy changes in these settings? What are the further measures that could be effective in preventing COVID-19 outbreaks, hospitalizations, and deaths in Ontario’s LTC homes? Findings As of January 14, 2021, a total of 3,211 Ontario LTC home residents have died of COVID-19, totaling 60.7% of all 5,289 COVID-19 deaths in Ontario to date. There have now been more cumulative LTC home outbreaks during the second wave as compared with the first wave. The infection and death rates among LTC residents have been lower during the second wave, as compared with the first wave, and a greater number of LTC outbreaks have involved only staff infections. The growth rate of SARS-CoV-2 infections among LTC residents was slower during the first two months of the second wave in September and October 2020, as compared with the first wave. However, the growth rate after the two-month mark is comparatively faster during the second wave. The majority of second wave infections and deaths in LTC homes have occurred between December 1, 2020, and January 14, 2021 (most recent date of data extraction prior to publication). This highlights the recent intensification of the COVID-19 pandemic in LTC homes that has mirrored the recent increase in community transmission of SARS-CoV-2 across Ontario. Evidence from Ontario demonstrates that the risk factors for SARS-CoV-2 outbreaks and subsequent deaths in LTC are distinct from the risk factors for outbreaks and deaths in the community (Figure 1). The most important risk factors for whether a LTC home will experience an outbreak is the daily incidence of SARS-CoV-2 infections in the communities surrounding the home and the occurrence of staff infections. The most important risk factors for the magnitude of an outbreak and the number of resulting resident deaths are older design, chain ownership, and crowding. Figure 1. Anatomy of Outbreaks and Spread of COVID-19 in LTC Homes and Among Residents Figure from Peter Hamilton, personal communication. Many Ontario LTC home residents have experienced severe and potentially irreversible physical, cognitive, psychological, and functional declines as a result of precautionary public health interventions imposed on homes, such as limiting access to general visitors and essential caregivers, resident absences, and group activities. There has also been an increase in the prescribing of psychoactive drugs to Ontario LTC residents. The accumulating evidence on COVID-19 in Ontario’s LTC homes has been leveraged in several ways to support public health interventions and policy during the pandemic. Ontario evidence showed that SARS-CoV-2 infections among LTC staff was associated with subsequent COVID-19 deaths among LTC residents, which motivated a public order to restrict LTC staff from working in more than one LTC home in the first wave. Emerging Ontario evidence on risk factors for LTC home outbreaks and deaths has been incorporated into provincial pandemic surveillance tools. Public health directives now attempt to limit crowding in LTC homes by restricting occupancy to two residents per room. The LTC visitor policy was also revised to designate a maximum of two essential caregivers who can visit residents without time limits, including when a home is experiencing an outbreak. Several further measures could be effective in preventing COVID-19 outbreaks, hospitalizations, and deaths in Ontario’s LTC homes. First, temporary staffing could be minimized by improving staff working conditions. Second, the risk of SARS-CoV-2 infection in staff could be minimized by measures that reduce the risk of transmission in communities with a high burden of COVID-19. Third, LTC homes could be further decrowded by a continued disallowance of three- and four-resident rooms and additional temporary housing for the most crowded homes. Other important issues include improved prevention and detection of SARS-CoV-2 infection in LTC staff, enhanced infection prevention and control (IPAC) capacity within the LTC homes, a more balanced and nuanced approach to public health measures and IPAC strategies in LTC homes, strategies to promote vaccine acceptance amongst residents and staff, and further improving data collection on LTC homes, residents, staff, visitors and essential caregivers for the duration of the COVID-19 pandemic. Interpretation Comparisons of the first and second waves of the COVID-19 pandemic in the LTC setting reveal improvement in some but not all epidemiological indicators. Despite this, the second wave is now intensifying within LTC homes and without action we will likely experience a substantial additional loss of life before the widespread administration and time-dependent maximal effectiveness of COVID-19 vaccines. The predictors of outbreaks, the spread of infection, and deaths in Ontario’s LTC homes are well documented and have remained unchanged between the first and the second wave. Some of the evidence on COVID-19 in Ontario’s LTC homes has been effectively leveraged to support public health interventions and policies. Several further measures, if implemented, have the potential to prevent additional LTC home COVID-19 outbreaks and deaths.
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Grafova, Irina, Alan Monheit, and Rizie Kumar. How Do Economic Shocks Affect Family Health Care Spending Burdens? Cambridge, MA: National Bureau of Economic Research, November 2019. http://dx.doi.org/10.3386/w26443.

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Leavy, Michelle B., Costas Boussios, Robert L. Phillips, Jr., Diana Clarke, Barry Sarvet, Aziz Boxwala, and Richard Gliklich. Outcome Measure Harmonization and Data Infrastructure for Patient-Centered Outcomes Research in Depression: Final Report. Agency for Healthcare Research and Quality (AHRQ), June 2022. http://dx.doi.org/10.23970/ahrqepcwhitepaperdepressionfinal.

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Objective. The objective of this project was to demonstrate the feasibility and value of collecting harmonized depression outcome measures in the patient registry and health system settings, displaying the outcome measures to clinicians to support individual patient care and population health management, and using the resulting measures data to support patient-centered outcomes research (PCOR). Methods. The harmonized depression outcome measures selected for this project were response, remission, recurrence, suicide ideation and behavior, adverse effects of treatment, and death from suicide. The measures were calculated in the PRIME Registry, sponsored by the American Board of Family Medicine, and PsychPRO, sponsored by the American Psychiatric Association, and displayed on the registry dashboards for the participating pilot sites. At the conclusion of the data collection period (March 2020-March 2021), registry data were analyzed to describe implementation of measurement-based care and outcomes in the primary care and behavioral health care settings. To calculate and display the measures in the health system setting, a Substitutable Medical Apps, Reusable Technology (SMART) on Fast Healthcare Interoperability Resource (FHIR) application was developed and deployed at Baystate Health. Finally a stakeholder panel was convened to develop a prioritized research agenda for PCOR in depression and to provide feedback on the development of a data use and governance toolkit. Results. Calculation of the harmonized outcome measures within the PRIME Registry and PsychPRO was feasible, but technical and operational barriers needed to be overcome to ensure that relevant data were available and that the measures were meaningful to clinicians. Analysis of the registry data demonstrated that the harmonized outcome measures can be used to support PCOR across care settings and data sources. In the health system setting, this project demonstrated that it is technically and operationally feasible to use an open-source app to calculate and display the outcome measures in the clinician’s workflow. Finally, this project produced tools and resources to support future implementations of harmonized measures and use of the resulting data for research, including a prioritized research agenda and data use and governance toolkit. Conclusion. Standardization of outcome measures across patient registries and routine clinical care is an important step toward creating robust, national-level data infrastructure that could serve as the foundation for learning health systems, quality improvement initiatives, and research. This project demonstrated that it is feasible to calculate the harmonized outcome measures for depression in two patient registries and a health system setting, display the results to clinicians to support individual patient management and population health, and use the outcome measures data to support research. This project also assessed the value and burden of capturing the measures in different care settings and created standards-based tools and other resources to support future implementations of harmonized outcome measures in depression and other clinical areas. The findings and lessons learned from this project should serve as a roadmap to guide future implementations of harmonized outcome measures in depression and other clinical areas.
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