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1

Fan, Ruiping, ed. Family-Oriented Informed Consent. Cham: Springer International Publishing, 2015. http://dx.doi.org/10.1007/978-3-319-12120-8.

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2

Consent: A novel. New York: Random House, 2002.

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3

Gilbar, Roy. The status of family in law and bioethics: The genetic context. Aldershot, Hants, England: Ashgate, 2005.

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4

Getz, Kenneth. Informed consent: A guide to the risks and benefits of volunteering for clinical trials. Boston, MA: CenterWatch, 2002.

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5

Dixon, Patricia. We want for our sisters what we want for ourselves: African American women who practice polygyny by consent. 2nd ed. Baltimore, MD: Imprint Editions, 2009.

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6

Medical treatment and the law: The protection of adults and minors in the Family Division. Bristol: Family Law, 1999.

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7

Sachs, Caroline Isabella. Verantwortete Elternschaft und Ehewille: Neue Perspektiven für den Ehenichtigkeitsgrund "Ausschluss der Nachkommenschaft". Essen: Ludgerus Verlag, 2013.

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8

Children, families, and health care decision making. Oxford: Clarendon Press, 1998.

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9

Tamayo, Eduardo Gómez. Vivencias de un hombre de consenso: Apuntes autobiográficos, discursos y opiniones. [Caracas, Venezuela: s.n.], 2008.

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10

Salas, Pedro Mejía. Tutela Curatela Consejo de familia: Doctrina, modelos, jurisprudencia. Peru: LEJ, 2003.

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11

Díaz, Máximo A. Procedimiento para la conformación del Consejo de familia. Santo Domingo, República Dominicana: Máximo A. Díaz, 2008.

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12

Linnard-Palmer, Luanne. When parents say no: Religious and cultural influences on pediatric healthcare treatment. Indianapolis, IN: Sigma Theta Tau International, 2006.

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13

(Province), Québec. Réaction du Conseil du statut de la femme au rapport du Comité de consultation sur la politique familiale intitulé Le soutien collectif recommandé pour les parents québécois. [Québec]: Le Conseil, 1986.

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14

L, Bennett Robin. The practical guide to the genetic family history. New York: John Wiley, 1999.

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15

Rousseau, Cécile. Etude longitudinale du processus de réunification familiale chez les réfugiés: Rapport présenté au Conseil québécois de la recherche sociale. [Montréal, Québec]: Centre universitaire de santé McGill, 2001.

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16

Fernández, Danton. El CEU: Album de familia en la UNAM. [Mexico]: Ediciones Pueblo y Universidad, 1988.

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17

Mario de la Cruz Campusano. La familia en la reflexión del CELAM. Santo Domingo, República Dominicana: Rvdo. P. Dr. Mario De la Cruz Campusano, 2013.

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18

Québec (Province). Conseil de la famille et de l'enfance. Rapport sur la mise en oeuvre de la Loi sur le Conseil de la famille et de l'enfance. [Québec]: Conseil de la famille et de l'enfance, Québec, 2002.

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19

1802-1885, Hugo Victor, Lorant-Colle Sylvia, and Bouches-du-Rhône (France). Conseil général. Espace 13, eds. Victor Hugo et les siens: Deux siècles d'art et d'artistes : Galerie d'art du Conseil général des Bouches-du-Rhône, Aix-en-Provence, 10 janvier-7 avril 2002. Arles: Actes sud, 2001.

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20

Québec, Conseil des communautés culturelles et de l'immigration du. L' intégration des familles immigrantes au Québec: Synthèse des recommandations présentées au Conseil de la famille. [Québec]: Conseil des communautés culturelles et de l'immigration, 1995.

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21

(Province), Québec. La condition des femmes au regard de la famille: Considérations du Conseil du statut de la femme touchant le document de consultation sur la politique familiale. Québec: Conseil du statut de la femme, 1985.

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22

Quintin, Ercilia. Variables de l'environnement familial qui affectent le développement intellectuel des enfants de milieu socio-économique faible: Rapport au Conseil québécois de la recherche sociale. [Trois-Rivières]: Groupe de recherche en développement de l'enfant, Dép. de psychologie, Université du Québec à Trois-Rivières, 1989.

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23

Daly, Jim. El mejor consejo que he recibido para criar hijos. Lake Mary, FL: Casa Creación, 2013.

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24

Eskridge, William N. Sexuality, gender and the law. [Toronto]: Faculty of Law, University of Toronto, 1999.

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25

Eskridge, William N. Sexuality, gender, and the law. Westbury, N.Y: Foundation Press, 1997.

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26

D, Hunter Nan, ed. Sexuality, gender, and the law. 2nd ed. New York, N.Y: Foundation Press, 2004.

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27

Dandurand, Renée B. Entre autonomie et solidarité: Parenté et soutien dans la vie de jeunes familles montréalaises : rapport présenté au Conseil québécois de la recherche sociale. Québec, Québec: Institut québécois de recherche sur la culture, 1992.

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28

Conseil national du bien-être social (Canada). Parents en santé, bébés en santé: Rapport du Conseil national du bien-être social. Ottawa, Ont: Conseil national du bien-être social, 1997.

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29

Roy, Jacques. État et famille : des politiques sociales en mutation: Document de réflexion soumis au Conseil de la famille. Québec, Qué: Conseil de la famille, 1990.

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30

Hurtubise, Roch. Jeunes de la rue et famille: Des productions sociales et des stratégies collectives au travers des mouvances du réseau : rapport de recherche présenté au Conseil québécois de la recherche sociale, subvention no RS-2856. Sherbrooke, Québec: Université de Sherbrooke, 2000.

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31

National Council of Welfare (Canada). Les enfants du préscolaire: Des promesses à tenir : rapport du Conseil national du bien-être social. [Ottawa]: Le Conseil, 1999.

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32

Warnicke, Retha M. The rise and fall of Anne Boleyn: Family politics at the court of Henry VIII. New York: Cambridge University Press, 1989.

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33

(Canada), Conseil national du bien-être social. Les enfants du préscolaire: Des promesses à tenir : rapport du Conseil national du bien-être social. Ottawa, Ont: Conseil national du bien-être social, 1999.

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34

Board, Ontario Environmental Assessment. Decision and reasons for decision: In the matter of two appeals, both by Leonard and Ruth Legros. The first appeal results from a decision of the Niagara Land Division Committee which refused their application for consent to sever 9.4 ha (1.01 acres) of land. The second appeal results from a decision of the Niagara Escarpment Commission which refused their application for a development permit to construct a two-storey, single family dwelling, with accessway and septic system : dated at Toronto this 20th day of December, 1991. Toronto, Ont: Environmental Assessment Board, 1991.

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35

Edwards, Lilian, Frances Wasoff, and Ann McGuckin. Mutual Consent Written Agreements in Family Law. The Stationery Office Books (Agencies), 1997.

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36

Schrank, Ben. Consent: A Novel. Random House Trade Paperbacks, 2003.

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37

Schrank, Ben. Consent: A Novel. Random House, 2002.

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38

Fox, Grenville, Nicholas Hoque, and Timothy Watts. Family support, consent, and end of life care. Oxford University Press, 2017. http://dx.doi.org/10.1093/med/9780198703952.003.0019.

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The chapter has a theme of supporting families, including strategies to develop successful relationships with families and involve families in decision-making in neonatal care. There are sections on effective communication with families, and consent to treatment. A detailed description of end of life decisions is included, with practical advice on redirection of care from intensive to palliative. Consent for post mortem examination is also covered.
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39

Edwards, Lilian, Frances Wasoff, and Ann McGuckin. Mutual Consent Written Agreements in Family Law (5). The Stationery Office Books (Agencies), 1997.

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40

Family-Oriented Informed Consent: East Asian and American Perspectives. Springer, 2015.

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41

Penny, Laurie, author of foreword and Queen, Carol, author of afterword, eds. Ask: Building consent culture. Thorntree Press, 2017.

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42

Emanuel, Linda L., and Rebecca Johnson. Truth telling and consent. Oxford University Press, 2015. http://dx.doi.org/10.1093/med/9780199656097.003.0104.

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Truth telling and informed consent are relatively recently established legal and ethical norms in end-of-life health care. This chapter provides an exploratory guide to the evolution of both norms, highlighting some of the benefits, problems, and issues associated with both terms. It also presents a selection of the stepwise protocols and practices which Western medicine has developed in order to deliver patient-centred palliative care which comforts and relieves. In addition, the chapter discusses the impact that constant adjustment to loss can have on patient psychology and decision-making in end-of-life care scenarios and the value of framing that experience in terms of continuous reintegration. Finally, the chapter discusses the lessons which can be learned from the contested place of family within health-care systems where decision-making depends on truth telling and informed consent, and the lessons which can be learned from familism across the globe.
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43

Silverman, Henry J. Informed consent in the ICU. Oxford University Press, 2016. http://dx.doi.org/10.1093/med/9780199600830.003.0025.

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The doctrine of informed consent is an important concept in medical care, but presents challenges in the critical care setting, where patients may have diminished capacity to provide their own informed consent. The elements of informed consent include adequate disclosure of information, cognitive capacity of individuals to make decisions, and the voluntary nature of such decisions. Currently, there are no universally accepted procedures regarding capacity assessment, especially in critically-ill patients. Such assessments remain subjective, but this chapter provides some guidelines on the subjective assessment of such capacity. When it is determined that patient lacks decision making capacity to provide consent, several mechanisms exist by which their autonomy can still be respected, including following any existing advance directives or family members or friends’ moral authority to make decisions for patients, based on either the substituted standard or the best-interests standard. Informed consent issues in the emergency clinical situations and in the context of research are also discussed.
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44

Margolin, Gayla, Lauren Spies Shapiro, and Kelly F. Miller. Ethics in Couple and Family Psychotherapy. Edited by John Z. Sadler, K. W. M. Fulford, and Werdie (C W. ). van Staden. Oxford University Press, 2014. http://dx.doi.org/10.1093/oxfordhb/9780198732372.013.36.

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Conducting therapy with couples and families creates unique ethical considerations. During couple therapy and family therapy, therapists may encounter ethical difficulties when identifying the goals of treatment in the face of family members’ conflicting desires, deciding when to disclose information obtained privately from one client to other family members, and managing risk in order to maintain client safety. Therapists can minimize these ethical dilemmas by clearly articulating their policies both during consent procedures and throughout treatment. Additionally, therapists who work with couples and families must be mindful of their own values and competencies in order to engage in ethical practice.
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45

Víctor, Brenes, ed. El derecho al consentimiento informado: Un ejericio en construcción : leyes, casos y procedimientos de queja en los servicios de planificación familiar en México. New York: Population Council, 1998.

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46

Borfitz, Deborah, and Ken Getz. Informed Consent: The Consumer's Guide to the Risks and Benefits of Volunteering for Clinical Trials. CenterWatch, 2002.

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47

Your legal right to make decisions about health care and advance directives in Washington State: Written for consumers, their families, and family surrogate decision-makers. [Olympia: Washington State Dept. of Social & Health Services, 2000.

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48

Shah, Monica, and David Waisel. Ethics in Pediatric Anesthesiology. Edited by Kirk Lalwani, Ira Todd Cohen, Ellen Y. Choi, and Vidya T. Raman. Oxford University Press, 2018. http://dx.doi.org/10.1093/med/9780190685157.003.0066.

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Ethical principles affect daily decision-making in pediatric anesthesiology. These medical decisions are interlaced with the ethical components of informed consent and obligations to the child and family. Informed consent in pediatrics includes the concepts of best interest, in which the parents or other surrogate decision-makers choose acceptable treatment for the child, and assent, which enables children to participate in decision-making to the best of their ability. Of equal significance to informed consent, the process of informed refusal requires anesthesiologists to more fully inform children and their guardians about risks and benefits while respecting refusal of assent and avoiding coercion. Pediatric considerations regarding end-of-life therapy are slightly different than adult considerations. To help resolve these ethical dilemmas, ethics committees are available for consultations to assist the medical team, family members, and patients in order to make the best decision for the child.
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49

Harper, Richard. Medical Treatment and the Law - Issues of Consent: The Protection of the Vulnerable - Children and Adults Lacking Capacity. Jordans Publishing Limited, 2014.

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50

The possible lack of due discretion of adult children of alcoholics under canon 1095, 2. 1990.

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