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Journal articles on the topic 'Family centred care discourse'

Author: Grafiati

Published: 4 June 2021

Last updated: 18 February 2022

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1

Heap, Cheyann J., and Emma Wolverson. "Intensive Interaction and discourses of personhood: A focus group study with dementia caregivers." Dementia 19, no. 6 (December 4, 2018): 2018–37. http://dx.doi.org/10.1177/1471301218814389.

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Introduction Societal discourses of dementia are medicalised and dehumanising. This leads to a social problem: the loss of personhood in dementia care. The communication technique Intensive Interaction, however, honours personhood. The current study aimed to explore how paid caregivers of people with dementia enact societal discourses of dementia, with and without the context of Intensive Interaction. This was to explore ways to address the loss of personhood in dementia care. Method Paid caregivers from two residential care homes attended an Intensive Interaction training day. Caregivers participated in focus groups before and after training. Transcripts of the focus groups were analysed with Critical Discourse Analysis, an approach which relates discourse to social power. Results Before Intensive Interaction training, carers accessed medical discourses of loss, non-communication and lack of personhood. ‘Being with’ people with dementia was framed as separate to paid work. After training, caregivers accessed discourses of communication and personhood. Intensive Interaction reframed ‘being with’ people with dementia as part of ‘doing work’. Family caregivers were largely absent from discourses. Care home hierarchies and the industrialisation of care were barriers towards honouring personhood. Conclusions Medical discourses of dementia reinforce a status quo whereby interpersonal interactions are devalued in dementia care, and professional ‘knowledge’ (thereby professional power) is privileged over relationships. Intensive Interaction may enable paid caregivers to access person-centred discourses and related practices. However, this requires support from management, organisational structures, and wider society. More research is needed to identify ways to involve families in residential care and to explore the effects of using Intensive Interaction in practice.

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Olaison, Anna, and Elisabet Cedersund. "Home care as a family matter? Discursive positioning, storylines and decision-making in assessment talk." Communication and Medicine 5, no. 2 (March 14, 2009): 145–58. http://dx.doi.org/10.1558/cam.v5i2.145.

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Home care arrangements for older people are coordinated via a client-centred assessment process. This article describes how storylines and discursive positioning are used among older people and their relatives when divergent opinions of care needs are expressed. Eleven assessment interviews were studied using discourse analysis. The results show that relatives and older people advanced three major storylines, and positioned themselves within them with respect to the need for help. These storylines were based on whether the persons viewed home care as an intrusion into daily routines and relationships, or as a complement and support in everyday life, or as a right. The content of the storylines and the ways in which positions were shaped within them illustrate how positioning is incorporated as part of the ongoing reflexive process in interaction in which participants form an image of the older person’s needs. Assessments clarify the views of the participants on home care, but they also reflect the discourses that are prevalent in the aged care community and in society in general. The article raises questions about strengthening older people’s participation in the decision making process and also whether a new communicative practice is needed for assessments, i.e., one that proceeds on the basis of a broader family perspective.

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Bentwich, Miriam Ethel, Ya'arit Bokek-Cohen, and Nomy Dickman. "How figurative language may be related to formal care-givers’ person-centred approach toward their patients with dementia." Ageing and Society 39, no. 12 (July 17, 2018): 2653–70. http://dx.doi.org/10.1017/s0144686x18000685.

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AbstractPerson-centred care that respects a patient's personhood is the gold standard in dementia care, which is often difficult to achieve given the complexity of caring for people with dementia. This article delves into the narration style of formal care-givers from a variety of ethno-cultural backgrounds in search of linguistic cues that may be related to their emphasis on a person-centred approach to care. A qualitative study, using a discourse analysis of semi-structured interviews with 20 formal care-givers in an institutional setting, was employed. The care-givers fell into three groups: Arabs, immigrants from the former Soviet Union (IFSU) and Jews born in Israel (JBI). Our results show 20 figurative language expressions (FLEs) in the narratives of the JBI care-givers and 11 among the IFSU care-givers. In contrast, the Arab care-givers conveyed 48 FLEs. Many of the Arab care-givers’ FLEs were not associated with the ‘regular’ domains articulated by other care-givers (family, children, militaristic language) and were primarily individual-focused, emphasising the personhood of the patient. These findings, together with relevant theoretical literature, suggest that the extensive use of figurative language by Arab care-givers may be a possible tool assisting these care-givers to employ a person-centred approach, manifested in their stress on the personhood of the patient. Such tools may be useful for better achieving person-centred care for these patients.

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Tefre, Øyvind S. "The Child’s Best Interests and the Politics of Adoptions from Care in Norway." International Journal of Children’s Rights 28, no. 2 (June 17, 2020): 288–321. http://dx.doi.org/10.1163/15718182-02802004.

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This paper examines how Norway turned to a more active policy on adoption in the child welfare system. It examines the full public records from all four times that the government and Storting debated adoption from care, over the period 2002–2013. I analyse the empirical and normative arguments that shaped policy, through a discourse theoretical framework (Habermas, 1996) to distinguish different types of arguments. The Article contributes an empirical case for analysing the normative aspects of social and welfare policy. The findings show that an active adoption policy is justified by strengthening of child-centred perspectives. First, research and expert discourse gained influence in the framing of adoption policy over time. Second, the ethical response to this knowledge base has been to shift attention from shared family needs to the child’s individual and developmental needs. There are signs that legislators view adoption in relation to children as independent legal subjects with rights.

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Rodrigo, María José, Ana Delia Correa, María Luisa Máiquez, Juan Carlos Martín, and Guacimara Rodríguez. "Family Preservation Services on the Canary Islands." European Psychologist 11, no. 1 (January 2006): 57–70. http://dx.doi.org/10.1027/1016-9040.11.1.57.

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This article describes the results of a parenting program “Apoyo Personal y Familiar,” (APF; Personal and Family Support program) targeted at parents of families at high psychosocial risk. APF aims at preventing unnecessary placement of children from vulnerable families into foster-care by increasing parental competence in order to improve their autonomous functioning. The program is implemented through group meetings in community centers. The method involves exposing the parents to parental views and practices in specific child-rearing episodes and encouraging them to reflect on their own views and the consequences on child development. In the Intervention group 144 mothers completed the pretest and posttest measures and 155 mothers were in a waiting-list comparison group. Self-report measures on parental implicit theories, child-rearing practices, and personal agency were used to perform the evaluation. Group discourse and the monitor's behavior observed during the sessions were used as predictors of the program's efficacy. Compared to control mothers, program mothers endorsed less simple views on child development, reported positive changes in their child-rearing practices, and had more confidence in their personal resources and a more accurate view of their parental role. Group effect sizes on the outcome measures were predicted by the type of group discourse and the type of group management observed during the sessions. The use of a perspectivist discourse was positive for promoting complex ideas and actions, whereas a self-centered discourse was positive for improving personal agency and for reporting less use of permissive practices. The role of the monitor was particularly relevant for reinforcing the mothers' sense of confidence in their own resources and for facilitating changes in child-rearing tactics.

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Bogdanova, Elena. "Russian SOS Children’s Villages and Deinstitutionalisation Reform: Balancing between Institutional and Family Care." Journal of Social Policy Studies 15, no. 3 (September 25, 2017): 395–406. http://dx.doi.org/10.17323/727-0634-2017-15-3-395-406.

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Elena Bogdanova – PhD (Kandidat Nauk) in Sociology, Research Fellow, Centre for Independent Social Research; Visiting Lecturer, University of Eastern Finland, European University at St. Petersburg, Russian Federation. Email: bogdanova.nova@gmail.com This article examines how Russian SOS Villages are undergoing foster reform, which prescribes a transition from institutional care for children deprived of parental care to family care model. The article analyses the problems and transformations experienced by SOS Villages, outlining the aims, instruments, and priorities of the reform. Empirically, the article is based on qualitative investigation of two Russian SOS Villages. Officially, SOS villages have the status of non-state children’s homes. However, they were originally conceptualised as a means to implement family care by specially arranged SOS families (headed by SOS mothers). Comparing the activities of SOS Villages with the theoretical concepts of development, resilience, and attachment shows that children raised in SOS Villages avoid the typical problems associated with institutional care. SOS families provide favourable conditions for socialisation, protection, overcoming of social isolation, while maintaining sustainable contact with a significant adult. The normative context created by Decree 481, which changed the status of children’s homes, alongside innovations in family policy and the general upsurge of traditionalist discourse, has made SOS Villages vulnerable. As a result, they are forced to protect both forms of their existence: institutional and family. Despite their conceptual adherence to the goals of the reform, in the eyes of the state the SOS Villages remain institutional entities targeted for closure or transformation into temporary residences for children. My research shows that under these new conditions SOS Villages have developed various strategies of involuntary mimicry. The most significant is the re-registration of SOS families as foster families. This helps keep children with their SOS families but significantly increases the level of responsibility and risks for SOS mothers. SOS Villages have also developed new activities, which may be useful in these new conditions. The establishment of consulting service platforms is one of these. The transformations taking place with the SOS Villages show that the reform is directed mainly, or solely, towards correcting the institutional level of the system. Due to multiple formal conflicts with newly emerging conditions, one of the most successful and experienced providers of family care for children without parental care has been left in a vulnerable position.

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Wilbur, Jane, Tess Bright, Thérèse Mahon, Shaffa Hameed, Belen Torondel, Wakisa Mulwafu, Hannah Kuper, and Sarah Polack. "Developing Behaviour Change Interventions for Improving Access to Health and Hygiene for People with Disabilities: Two Case Studies from Nepal and Malawi." International Journal of Environmental Research and Public Health 15, no. 12 (December 5, 2018): 2746. http://dx.doi.org/10.3390/ijerph15122746.

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Limited evidence exists about how to design interventions to improve access to health care for people with disabilities in low and middle-income countries (LMICs). This paper documents the development of two behaviour change interventions. Case study one outlines the design of an intervention to improve uptake of referral for ear and hearing services for children in Malawi. Case study two describes the design of an intervention to improve menstrual hygiene management for people with intellectual impairments in Nepal. Both followed existing approaches—Medical Research Council Guidance for developing and evaluating complex interventions and Behaviour Centred Design. The purpose is to demonstrate how these frameworks can be applied, to document the interventions developed, and encourage further initiatives to advance health services targeting people with disabilities. Important components of the intervention design process were: (1) systematic reviews and formative research ensure that interventions designed are relevant to current discourse, practice and context; (2) people with disabilities and their family/carers must be at the heart of the process; (3) applying the theory of change approach and testing it helps understand links between inputs and required behaviour change, as well as ensuring that the interventions are relevant to local contexts; (4) involving creative experts may lead to the development of more engaging and appealing interventions. Further evidence is needed on the effectiveness of these types of interventions for people with disabilities to ensure that no one is left behind.

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Noyes, Jane P., Lesley Lowes, Rhiannon Whitaker, Davina Allen, Cynthia Carter, Rhiannon T. Edwards, Joanne Rycroft-Malone, et al. "Developing and evaluating a child-centred intervention for diabetes medicine management using mixed methods and a multicentre randomised controlled trial." Health Services and Delivery Research 2, no. 8 (March 2014): 1–442. http://dx.doi.org/10.3310/hsdr02080.

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AimTo develop and evaluate an individually tailored age-appropriate diabetes diary and information pack for children and young people aged 6–18 years with type 1 diabetes to support decision-making and self-care with a specific focus on insulin management and blood glucose monitoring, compared with available resources in routine clinical practice.DesignFour-stage study following the Medical Research Council framework for designing and evaluating complex interventions. Stage 1: context – brief review of reviews and mixed-method systematic review; updating of database of children’s diabetes information; children’s diabetes information quality assessment and diabetes guideline analysis; and critical discourse analysis. Stage 2: intervention development – working with expert clinical advisory group; contextual qualitative interviews and focus groups with children and young people to ascertain their information preferences and self-care practices; ongoing consultation with children; development of intervention programme theory. Stage 3: randomised controlled trial (RCT) to evaluate the diabetes diaries and information packs in routine practice. Stage 4: process evaluation.FindingsThe RCT achieved 100% recruitment, was adequately powered and showed that the Evidence into Practice Information Counts (EPIC) packs and diabetes diaries were no more effective than receiving diabetes information in an ad hoc way. The cost per unit of producing the EPIC packs and diabetes diaries was low. Compared with treatment as usual information, the EPIC packs fulfilled all NHS policy imperatives that children and young people should receive high-quality, accurate and age-appropriate information about their condition, self-management and wider lifestyle and well-being issues. Diabetes guidelines recommend the use of a daily diabetes diary and EPIC diaries fill a gap in current provision. Irrespective of allocation, children and young people had a range of recorded glycated haemoglobin (HbA1c) levels, which showed that as a group their diabetes self-management would generally need to improve to achieve the HbA1clevels recommended in National Institute for Health and Care Excellence guidance. The process evaluation showed that promotion of the EPIC packs and diaries by diabetes professionals at randomisation did not happen as intended; the dominant ‘normalisation’ theory underpinning children’s diabetes information may be counterproductive; risk and long-term complications did not feature highly in children’s diabetes information; and children and young people engaged in risky behaviour and appeared not to care, and most did not use a diabetes diary or did not use the information to titrate their insulin as intended.LimitationsRecruitment of ‘hard to reach’ children and young people living away from their families was not successful. The findings are therefore more relevant to diabetes management within a family context.ConclusionsThe findings indicate a need to rethink context and the hierarchical relationships between children, young people, parents and diabetes professionals with regard to ‘partnership and participation’ in diabetes decision-making, self-care and self-management. Additional research, implementation strategies and service redesign are needed to translate available information into optimal self-management knowledge and subsequent optimal diabetes self-management action, including to better understand the disconnection between children’s diabetes texts and context; develop age-appropriate Apps/e-records for recording blood glucose measurements and insulin management; develop interventions to reduce risk-taking behaviour by children and young people in relation to their diabetes management; reconsider what could work to optimise children’s self-management of diabetes; understand how best to reorganise current diabetes services for children to optimise child-centred delivery of children’s diabetes information.Study registrationCurrent Controlled Trials ISRCTN17551624.FundingThe National Institute for Health Research Health Services and Delivery Research programme.

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Hughes, Thomas, Mikkel Brok-Kristensen, Yosha Gargeya, Anne Mette Worsøe Lottrup, Ask Bo Larsen, Ana Torres-Ortuño, Nicki Mackett, and John Stevens. "“He's a normal kid now”: an ethnographic study of challenges and possibilities in a new era of haemophilia care." Journal of Haemophilia Practice 7, no. 1 (December 17, 2020): 150–57. http://dx.doi.org/10.17225/jhp00167.

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AbstractBackgroundRecent treatment option advances in haemophilia care have contributed to a discourse of ‘normality’ around the condition, in which people with haemophilia (PwH) are increasingly expected to live ‘normal’ lives unburdened by their condition.AimThe aim of this article is to explore notions of ‘normality’ in the experience of haemophilia across generations. This is one of the main themes identified in a large-scale ethnographic study of the everyday life of PwH, a broad qualitative investigation of beliefs and experiences related to condition, treatment, and personal ways of managing the condition.MethodsThe study used ethnographic research methods. Five haemophilia experts helped frame the research design by contributing historical and disease area context prior to the initiation of field research. PwH were recruited through patient organisations in five European countries (Italy, Germany, Spain, UK and Ireland). During field research, study researchers collected data through 8–12 hours of participant observation, semi-structured interviews, written exercises, facilitated group dialogues, and on-site observations of PwH interactions with friends, family, and health care professionals (HCPs). They also conducted on-site observation at haemophilia treatment centres (HTCs) and HCP interviews. The study employed a multi-tiered grounded theory approach and combined data were analysed using techniques such as inductive and deductive analysis, cross-case analysis, challenges mapping, and clustering exercises. This article explores findings related to the discourse of ‘normality’ and is thus focused on a subset of the data from the study.ResultsFifty-one PwH, aged 1.5 to 82 years, were interviewed and followed in their daily lives. Six treatment centres were visited, and 18 HCPs were interviewed. The study found that a discourse of present day ‘normality’, as compared to a difficult past, is ingrained in the haemophilia community. As a result, unlike most older PwH (40+), younger PwH (under 18) are not always taught to acknowledge the severity of their condition or how to sense bleeds (disease-related embodied knowledge), and risk unknowingly doing long-term damage to their bodies. Twenty-seven per cent (n=7/26) of younger PwH (children, teenagers) in the study were observed or described as engaging in high-risk behaviours in the short term indicating a lack understanding of long-term consequences.ConclusionsThese findings suggest that the discourse of ‘normality’ presents a number of challenges that need to be addressed, namely the potential for younger PwH to be unaware of bleeds and the general underreporting of haemophilia-related complications and limitations. One way forward in realising the full potential of advanced treatment could be to teach young PwH, through evidence-based initiatives, how to develop an embodied sense of their bleeds. Furthermore, if the current state of life with haemophilia is accepted as finally ‘normal’, then progress in further improving care may be stalled. It is important that remaining and new challenges are recognised in order for them to be acted upon.

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Isaacs, David. "Family‐centred care." Journal of Paediatrics and Child Health 56, no. 1 (January 2020): 3–4. http://dx.doi.org/10.1111/jpc.14664.

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Mitchell, Marion L. "Patient, Family Centred Care." Australian Critical Care 29, no. 4 (November 2016): 176–77. http://dx.doi.org/10.1016/s1036-7314(16)30091-1.

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Shields, Linda. "Questioning family-centred care." Journal of Clinical Nursing 19, no. 17-18 (August 15, 2010): 2629–38. http://dx.doi.org/10.1111/j.1365-2702.2010.03214.x.

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Westbrook, Kevin W., Cori Cohen Grant, Ed Rafalski, and Emin Babakus. "Patient-family Centred Care." Journal of Health Management 17, no. 3 (August 24, 2015): 304–15. http://dx.doi.org/10.1177/0972063415589232.

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Valentine, Fay. "Empowerment: family-centred care." Paediatric Nursing 10, no. 1 (February 1, 1998): 24–27. http://dx.doi.org/10.7748/paed.10.1.24.s26.

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Fox, Jennifer A., John Rosenberg, Stuart Ekberg, and Danette Langbecker. "Palliative care in the context of immune and targeted therapies: A qualitative study of bereaved carers’ experiences in metastatic melanoma." Palliative Medicine 34, no. 10 (April 27, 2020): 1351–60. http://dx.doi.org/10.1177/0269216320916154.

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Background: Immune and targeted therapies continue to transform treatment outcomes for those with metastatic melanoma. However, the role of palliative care within this treatment paradigm is not well understood. Aim: To explore bereaved carers’ experiences of immune and targeted therapy treatment options towards end of life for patients with metastatic melanoma. Design: An interpretive, qualitative study using a social constructivist framework was utilised. Interviews were recorded, transcribed and analysed using grounded theory methods. Setting/participants: Participants ( n = 20) were bereaved carers of patients who had received some form of immune and/or targeted therapy at one of three Australian metropolitan melanoma treatment centres. Results: Carers struggled to reconcile the positive discourse around the success of immune and targeted therapies in achieving long-term disease control, and the underlying uncertainty in predicting individual responses to therapy. Expectations that immune and targeted therapies necessarily provide longer-term survival were evident. Difficulty in prognostication due to clinical uncertainty and a desire to maintain hope resulted in lack of preparedness for treatment failure and end of life. Conclusion: Immune and targeted therapies have resulted in increased prognostic challenges. There is a need to engage, educate and support patients and carers to prepare and plan amid these challenges. Educational initiatives must focus on improving communication between patients, carers and clinicians; the differences between palliative and end-of-life care; and increased competency of clinicians in having goals-of-care discussions. Clinicians must recognise and communicate the benefit of collaborative palliative care to meet patient and family needs holistically and comprehensively.

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Harding, Rebecca. "Reflections on family-centred care." Paediatric Nursing 9, no. 9 (November 1997): 19–21. http://dx.doi.org/10.7748/paed.9.9.19.s21.

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Bubear, Tina Ann. "Family-centred care in brunei." Nursing Standard 9, no. 10 (November 30, 1994): 12. http://dx.doi.org/10.7748/ns.9.10.12.s72.

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Walton, Mary K. "Person- and family-centred care." British Journal of Nursing 23, no. 17 (September 25, 2014): 949. http://dx.doi.org/10.12968/bjon.2014.23.17.949.

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Shields, Linda. "WHAT IS “FAMILY-CENTRED CARE”?" European Journal for Person Centered Healthcare 3, no. 2 (June 3, 2015): 139. http://dx.doi.org/10.5750/ejpch.v3i2.993.

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Family-centred care is a ubiquitous term in paediatric health facilities. It means that an admitted child can never be treated as a single individual patient, that the family is the unit of care, as the parents and family are central to the child’s wellbeing, especially during traumatic experiences. There is no rigorous evidence that family-centred care works, but qualitative research is drawing out some grave concerns with how it is implemented. Part of the problem is that there are many descriptions of family-centred care, but few definitions, and some of its component parts may be in place in some health services without the whole model being in place. This causes confusion amongst health professionals and parents and children, and makes it impossible to test in a randomised controlled trial. This paper discusses these problems and suggests that a new model, child-centred care, may be a better model of care for children.

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Nijhuis, B. J. G., H. A. Reinders-Messelink, A. C. E. de Blécourt, W. M. G. C. Hitters, J. W. Groothoff, H. Nakken, and K. Postema. "Family-centred care in family-specific teams." Clinical Rehabilitation 21, no. 7 (July 2007): 660–71. http://dx.doi.org/10.1177/0269215507077304.

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Jordan, P. J. "Family-centred care in intensive care units." Southern African Journal of Critical Care 34, no. 2 (November 8, 2018): 34. http://dx.doi.org/10.7196/sajcc.2018.v34i2.369.

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McLaughlin, Kieran, Vidar Melby, and Vivien Coates. "Family-centred care during resuscitation events." Emergency Nurse 21, no. 3 (June 2013): 28–34. http://dx.doi.org/10.7748/en2013.06.21.3.28.e1152.

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Hjorngaard, Tina. "Family-Centred Care: A Critical Perspective." Physical & Occupational Therapy In Pediatrics 31, no. 3 (June 28, 2011): 243–44. http://dx.doi.org/10.3109/01942638.2011.589728.

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Mushtaq, Ammara, and Farooq Kazi. "Family-centred care in the NICU." Lancet Child & Adolescent Health 3, no. 5 (May 2019): 295–96. http://dx.doi.org/10.1016/s2352-4642(19)30089-6.

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Bradshaw, Maureen, Valerie Coleman, and Lynda Smith. "Interprofessional learning and family-centred care." Paediatric Nursing 15, no. 7 (September 2003): 30–33. http://dx.doi.org/10.7748/paed.15.7.30.s26.

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Hutchfield, Kay. "Family‐centred care: a concept analysis." Journal of Advanced Nursing 29, no. 5 (May 1999): 1178–87. http://dx.doi.org/10.1046/j.1365-2648.1999.00987.x.

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Polfrey, Katrina. "Family-centred care: theory to practice." British Journal of Nursing 22, no. 22 (December 12, 2013): 1319. http://dx.doi.org/10.12968/bjon.2013.22.22.1319.

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While, Alison. "Family centred nursing care of children." Nurse Education Today 11, no. 6 (December 1991): 481. http://dx.doi.org/10.1016/0260-6917(91)90026-7.

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Dan, Bernard. "Postmodern family‐centred care for disability." Developmental Medicine & Child Neurology 63, no. 7 (June 2, 2021): 760. http://dx.doi.org/10.1111/dmcn.14905.

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Baker, Sarah. "Family centred care: a theory practice dilemma." Paediatric Nursing 7, no. 6 (July 1995): 17–20. http://dx.doi.org/10.7748/paed.7.6.17.s22.

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Crawford, Doreen. "From iron lungs to family-centred care." Nursing Children and Young People 24, no. 5 (June 7, 2012): 6. http://dx.doi.org/10.7748/ncyp2012.06.24.5.6.p8527.

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Crawford, Doreen. "From iron lungs to family-centred care." Nursing Children and Young People 24, no. 5 (June 7, 2012): 7. http://dx.doi.org/10.7748/ncyp.24.5.7.s11.

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Arabiat, Diana, Lisa Whitehead, Mandie Foster, Linda Shields, and Linda Harris. "Parents' experiences of Family Centred Care practices." Journal of Pediatric Nursing 42 (September 2018): 39–44. http://dx.doi.org/10.1016/j.pedn.2018.06.012.

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Turrill, Sue. "Interpreting family-centred care within neonatal nursing." Paediatric Nursing 11, no. 4 (May 1, 1999): 22–24. http://dx.doi.org/10.7748/paed.11.4.22.s24.

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Bradshaw, Maureen, Valerie Coleman, Shirley Cutts, Christine Guest, and Julia Twigg. "Family-centred care: A step too far?" Paediatric Nursing 12, no. 10 (December 1, 2000): 6–7. http://dx.doi.org/10.7748/paed.12.10.6.s8.

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Geurts, Esther M. W., Janet Boddy, Marc J. Noom, and Erik J. Knorth. "Family-centred residential care: the new reality?" Child & Family Social Work 17, no. 2 (April 4, 2012): 170–79. http://dx.doi.org/10.1111/j.1365-2206.2012.00838.x.

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Uniacke, Suzanne, Tamara Kayali Browne, and Linda Shields. "How should we understand family-centred care?" Journal of Child Health Care 22, no. 3 (January 18, 2018): 460–69. http://dx.doi.org/10.1177/1367493517753083.

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What is family-centred care of a hospitalized child? A critical understanding of the concept of family-centred care is necessary if this widely preferred model is to be differentiated from other health care ideals and properly evaluated as appropriate to the care of hospitalized children. The article identifies distinguishable interpretations of family-centred care that can pull health professionals in different, sometimes conflicting directions. Some of these interpretations are not qualitatively different from robust interpretations of the ideals of parental participation, care-by-parent and partnership in care that are said to be the precursors of family-centred care. A prominent interpretation that regards the child and his or her family collectively as the ‘unit of care’ arguably arises from ambiguity and is significantly problematic as a model for the care of hospitalized children. Clinical practice driven by this interpretation can include courses of action that do not aim to do what will best promote a hospitalized child’s welfare, and such cases will not be unusual. More broadly, this interpretation raises challenging questions about the responsibilities and authority of health professionals in relation to the interests of hospitalized children and their families.

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Ochieng, Bertha M. N. "Minority Ethnic Families and Family-Centred Care." Journal of Child Health Care 7, no. 2 (June 2003): 123–32. http://dx.doi.org/10.1177/1367493503007002006.

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Becker, Patricia T. "Family Centred Care: Concept, Theory and Practice." Journal of Advanced Nursing 40, no. 6 (December 2002): 747. http://dx.doi.org/10.1046/j.1365-2648.2002.24402.x.

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Clarke, Sean P. "Patient- and Family-Centred Care: Some Solutions." Canadian Journal of Nursing Research 46, no. 3 (September 2014): 3–5. http://dx.doi.org/10.1177/084456211404600301.

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McHugh, Gretl. "Family centred care—concept, theory and practice." International Journal of Nursing Studies 39, no. 8 (November 2002): 879–80. http://dx.doi.org/10.1016/s0020-7489(02)00026-3.

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Rasmussen, Shayne, Tineke Water, and Annette Dickinson. "Children’s perspectives in family-centred hospital care." Contemporary Nurse 53, no. 4 (April 13, 2017): 445–55. http://dx.doi.org/10.1080/10376178.2017.1315829.

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Shields, Linda. "Family-centred care: the ‘captive mother’ revisited." Journal of the Royal Society of Medicine 109, no. 4 (November 25, 2015): 137–40. http://dx.doi.org/10.1177/0141076815620080.

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Westrup, B. "Family Centred Care - from a Systems Perspective." Pediatric Research 70 (November 2011): 48. http://dx.doi.org/10.1038/pr.2011.273.

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Caruana, Emily. "Family-centred care for children in hospital." Journal of Advanced Nursing 63, no. 1 (July 2008): 26. http://dx.doi.org/10.1111/j.1365-2648.2008.04674.x.

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Bergbom, Ingegerd. "Family centred care across the life continuum." Connect: The World of Critical Care Nursing 6, no. 3 (September 2008): 44–50. http://dx.doi.org/10.1891/1748-6254.6.3.44.

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Reid, Shelley, Sandie Bredemeyer, and Mary Chiarella. "The evolution of neonatal family centred care." Journal of Neonatal Nursing 27, no. 5 (October 2021): 327–33. http://dx.doi.org/10.1016/j.jnn.2021.03.002.

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Cullinane, A. M. "PAEDIATRIC CRITICAL CARE NURSES??? PERCEPTIONS OF FAMILY-CENTRED CARE." Pediatric Critical Care Medicine 6, no. 2 (March 2005): 247. http://dx.doi.org/10.1097/00130478-200503000-00085.

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ROETS, LIZETH, NATASJA ROWE-ROWE, and RIETTE NEL. "Family-centred care in the paediatric intensive care unit." Journal of Nursing Management 20, no. 5 (April 24, 2012): 624–30. http://dx.doi.org/10.1111/j.1365-2834.2012.01365.x.

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Davidson, Judy E., and Steffanie A. Strathdee. "The future of family-centred care in intensive care." Intensive and Critical Care Nursing 50 (February 2019): 3–4. http://dx.doi.org/10.1016/j.iccn.2018.03.003.

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