Relevant bibliographies by topics / Family centred care discourse

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Academic literature on the topic 'Family centred care discourse'

Author: Grafiati
Published: 4 June 2021
Last updated: 18 February 2022

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Journal articles on the topic "Family centred care discourse"

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Heap, Cheyann J., and Emma Wolverson. "Intensive Interaction and discourses of personhood: A focus group study with dementia caregivers." Dementia 19, no. 6 (December 4, 2018): 2018–37. http://dx.doi.org/10.1177/1471301218814389.

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Introduction Societal discourses of dementia are medicalised and dehumanising. This leads to a social problem: the loss of personhood in dementia care. The communication technique Intensive Interaction, however, honours personhood. The current study aimed to explore how paid caregivers of people with dementia enact societal discourses of dementia, with and without the context of Intensive Interaction. This was to explore ways to address the loss of personhood in dementia care. Method Paid caregivers from two residential care homes attended an Intensive Interaction training day. Caregivers participated in focus groups before and after training. Transcripts of the focus groups were analysed with Critical Discourse Analysis, an approach which relates discourse to social power. Results Before Intensive Interaction training, carers accessed medical discourses of loss, non-communication and lack of personhood. ‘Being with’ people with dementia was framed as separate to paid work. After training, caregivers accessed discourses of communication and personhood. Intensive Interaction reframed ‘being with’ people with dementia as part of ‘doing work’. Family caregivers were largely absent from discourses. Care home hierarchies and the industrialisation of care were barriers towards honouring personhood. Conclusions Medical discourses of dementia reinforce a status quo whereby interpersonal interactions are devalued in dementia care, and professional ‘knowledge’ (thereby professional power) is privileged over relationships. Intensive Interaction may enable paid caregivers to access person-centred discourses and related practices. However, this requires support from management, organisational structures, and wider society. More research is needed to identify ways to involve families in residential care and to explore the effects of using Intensive Interaction in practice.
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Olaison, Anna, and Elisabet Cedersund. "Home care as a family matter? Discursive positioning, storylines and decision-making in assessment talk." Communication and Medicine 5, no. 2 (March 14, 2009): 145–58. http://dx.doi.org/10.1558/cam.v5i2.145.

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Home care arrangements for older people are coordinated via a client-centred assessment process. This article describes how storylines and discursive positioning are used among older people and their relatives when divergent opinions of care needs are expressed. Eleven assessment interviews were studied using discourse analysis. The results show that relatives and older people advanced three major storylines, and positioned themselves within them with respect to the need for help. These storylines were based on whether the persons viewed home care as an intrusion into daily routines and relationships, or as a complement and support in everyday life, or as a right. The content of the storylines and the ways in which positions were shaped within them illustrate how positioning is incorporated as part of the ongoing reflexive process in interaction in which participants form an image of the older person’s needs. Assessments clarify the views of the participants on home care, but they also reflect the discourses that are prevalent in the aged care community and in society in general. The article raises questions about strengthening older people’s participation in the decision making process and also whether a new communicative practice is needed for assessments, i.e., one that proceeds on the basis of a broader family perspective.
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Bentwich, Miriam Ethel, Ya'arit Bokek-Cohen, and Nomy Dickman. "How figurative language may be related to formal care-givers’ person-centred approach toward their patients with dementia." Ageing and Society 39, no. 12 (July 17, 2018): 2653–70. http://dx.doi.org/10.1017/s0144686x18000685.

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AbstractPerson-centred care that respects a patient's personhood is the gold standard in dementia care, which is often difficult to achieve given the complexity of caring for people with dementia. This article delves into the narration style of formal care-givers from a variety of ethno-cultural backgrounds in search of linguistic cues that may be related to their emphasis on a person-centred approach to care. A qualitative study, using a discourse analysis of semi-structured interviews with 20 formal care-givers in an institutional setting, was employed. The care-givers fell into three groups: Arabs, immigrants from the former Soviet Union (IFSU) and Jews born in Israel (JBI). Our results show 20 figurative language expressions (FLEs) in the narratives of the JBI care-givers and 11 among the IFSU care-givers. In contrast, the Arab care-givers conveyed 48 FLEs. Many of the Arab care-givers’ FLEs were not associated with the ‘regular’ domains articulated by other care-givers (family, children, militaristic language) and were primarily individual-focused, emphasising the personhood of the patient. These findings, together with relevant theoretical literature, suggest that the extensive use of figurative language by Arab care-givers may be a possible tool assisting these care-givers to employ a person-centred approach, manifested in their stress on the personhood of the patient. Such tools may be useful for better achieving person-centred care for these patients.
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Tefre, Øyvind S. "The Child’s Best Interests and the Politics of Adoptions from Care in Norway." International Journal of Children’s Rights 28, no. 2 (June 17, 2020): 288–321. http://dx.doi.org/10.1163/15718182-02802004.

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This paper examines how Norway turned to a more active policy on adoption in the child welfare system. It examines the full public records from all four times that the government and Storting debated adoption from care, over the period 2002–2013. I analyse the empirical and normative arguments that shaped policy, through a discourse theoretical framework (Habermas, 1996) to distinguish different types of arguments. The Article contributes an empirical case for analysing the normative aspects of social and welfare policy. The findings show that an active adoption policy is justified by strengthening of child-centred perspectives. First, research and expert discourse gained influence in the framing of adoption policy over time. Second, the ethical response to this knowledge base has been to shift attention from shared family needs to the child’s individual and developmental needs. There are signs that legislators view adoption in relation to children as independent legal subjects with rights.
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Rodrigo, María José, Ana Delia Correa, María Luisa Máiquez, Juan Carlos Martín, and Guacimara Rodríguez. "Family Preservation Services on the Canary Islands." European Psychologist 11, no. 1 (January 2006): 57–70. http://dx.doi.org/10.1027/1016-9040.11.1.57.

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This article describes the results of a parenting program “Apoyo Personal y Familiar,” (APF; Personal and Family Support program) targeted at parents of families at high psychosocial risk. APF aims at preventing unnecessary placement of children from vulnerable families into foster-care by increasing parental competence in order to improve their autonomous functioning. The program is implemented through group meetings in community centers. The method involves exposing the parents to parental views and practices in specific child-rearing episodes and encouraging them to reflect on their own views and the consequences on child development. In the Intervention group 144 mothers completed the pretest and posttest measures and 155 mothers were in a waiting-list comparison group. Self-report measures on parental implicit theories, child-rearing practices, and personal agency were used to perform the evaluation. Group discourse and the monitor's behavior observed during the sessions were used as predictors of the program's efficacy. Compared to control mothers, program mothers endorsed less simple views on child development, reported positive changes in their child-rearing practices, and had more confidence in their personal resources and a more accurate view of their parental role. Group effect sizes on the outcome measures were predicted by the type of group discourse and the type of group management observed during the sessions. The use of a perspectivist discourse was positive for promoting complex ideas and actions, whereas a self-centered discourse was positive for improving personal agency and for reporting less use of permissive practices. The role of the monitor was particularly relevant for reinforcing the mothers' sense of confidence in their own resources and for facilitating changes in child-rearing tactics.
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Bogdanova, Elena. "Russian SOS Children’s Villages and Deinstitutionalisation Reform: Balancing between Institutional and Family Care." Journal of Social Policy Studies 15, no. 3 (September 25, 2017): 395–406. http://dx.doi.org/10.17323/727-0634-2017-15-3-395-406.

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Elena Bogdanova – PhD (Kandidat Nauk) in Sociology, Research Fellow, Centre for Independent Social Research; Visiting Lecturer, University of Eastern Finland, European University at St. Petersburg, Russian Federation. Email: bogdanova.nova@gmail.com This article examines how Russian SOS Villages are undergoing foster reform, which prescribes a transition from institutional care for children deprived of parental care to family care model. The article analyses the problems and transformations experienced by SOS Villages, outlining the aims, instruments, and priorities of the reform. Empirically, the article is based on qualitative investigation of two Russian SOS Villages. Officially, SOS villages have the status of non-state children’s homes. However, they were originally conceptualised as a means to implement family care by specially arranged SOS families (headed by SOS mothers). Comparing the activities of SOS Villages with the theoretical concepts of development, resilience, and attachment shows that children raised in SOS Villages avoid the typical problems associated with institutional care. SOS families provide favourable conditions for socialisation, protection, overcoming of social isolation, while maintaining sustainable contact with a significant adult. The normative context created by Decree 481, which changed the status of children’s homes, alongside innovations in family policy and the general upsurge of traditionalist discourse, has made SOS Villages vulnerable. As a result, they are forced to protect both forms of their existence: institutional and family. Despite their conceptual adherence to the goals of the reform, in the eyes of the state the SOS Villages remain institutional entities targeted for closure or transformation into temporary residences for children. My research shows that under these new conditions SOS Villages have developed various strategies of involuntary mimicry. The most significant is the re-registration of SOS families as foster families. This helps keep children with their SOS families but significantly increases the level of responsibility and risks for SOS mothers. SOS Villages have also developed new activities, which may be useful in these new conditions. The establishment of consulting service platforms is one of these. The transformations taking place with the SOS Villages show that the reform is directed mainly, or solely, towards correcting the institutional level of the system. Due to multiple formal conflicts with newly emerging conditions, one of the most successful and experienced providers of family care for children without parental care has been left in a vulnerable position.
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Wilbur, Jane, Tess Bright, Thérèse Mahon, Shaffa Hameed, Belen Torondel, Wakisa Mulwafu, Hannah Kuper, and Sarah Polack. "Developing Behaviour Change Interventions for Improving Access to Health and Hygiene for People with Disabilities: Two Case Studies from Nepal and Malawi." International Journal of Environmental Research and Public Health 15, no. 12 (December 5, 2018): 2746. http://dx.doi.org/10.3390/ijerph15122746.

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Limited evidence exists about how to design interventions to improve access to health care for people with disabilities in low and middle-income countries (LMICs). This paper documents the development of two behaviour change interventions. Case study one outlines the design of an intervention to improve uptake of referral for ear and hearing services for children in Malawi. Case study two describes the design of an intervention to improve menstrual hygiene management for people with intellectual impairments in Nepal. Both followed existing approaches—Medical Research Council Guidance for developing and evaluating complex interventions and Behaviour Centred Design. The purpose is to demonstrate how these frameworks can be applied, to document the interventions developed, and encourage further initiatives to advance health services targeting people with disabilities. Important components of the intervention design process were: (1) systematic reviews and formative research ensure that interventions designed are relevant to current discourse, practice and context; (2) people with disabilities and their family/carers must be at the heart of the process; (3) applying the theory of change approach and testing it helps understand links between inputs and required behaviour change, as well as ensuring that the interventions are relevant to local contexts; (4) involving creative experts may lead to the development of more engaging and appealing interventions. Further evidence is needed on the effectiveness of these types of interventions for people with disabilities to ensure that no one is left behind.
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Noyes, Jane P., Lesley Lowes, Rhiannon Whitaker, Davina Allen, Cynthia Carter, Rhiannon T. Edwards, Joanne Rycroft-Malone, et al. "Developing and evaluating a child-centred intervention for diabetes medicine management using mixed methods and a multicentre randomised controlled trial." Health Services and Delivery Research 2, no. 8 (March 2014): 1–442. http://dx.doi.org/10.3310/hsdr02080.

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AimTo develop and evaluate an individually tailored age-appropriate diabetes diary and information pack for children and young people aged 6–18 years with type 1 diabetes to support decision-making and self-care with a specific focus on insulin management and blood glucose monitoring, compared with available resources in routine clinical practice.DesignFour-stage study following the Medical Research Council framework for designing and evaluating complex interventions. Stage 1: context – brief review of reviews and mixed-method systematic review; updating of database of children’s diabetes information; children’s diabetes information quality assessment and diabetes guideline analysis; and critical discourse analysis. Stage 2: intervention development – working with expert clinical advisory group; contextual qualitative interviews and focus groups with children and young people to ascertain their information preferences and self-care practices; ongoing consultation with children; development of intervention programme theory. Stage 3: randomised controlled trial (RCT) to evaluate the diabetes diaries and information packs in routine practice. Stage 4: process evaluation.FindingsThe RCT achieved 100% recruitment, was adequately powered and showed that the Evidence into Practice Information Counts (EPIC) packs and diabetes diaries were no more effective than receiving diabetes information in an ad hoc way. The cost per unit of producing the EPIC packs and diabetes diaries was low. Compared with treatment as usual information, the EPIC packs fulfilled all NHS policy imperatives that children and young people should receive high-quality, accurate and age-appropriate information about their condition, self-management and wider lifestyle and well-being issues. Diabetes guidelines recommend the use of a daily diabetes diary and EPIC diaries fill a gap in current provision. Irrespective of allocation, children and young people had a range of recorded glycated haemoglobin (HbA1c) levels, which showed that as a group their diabetes self-management would generally need to improve to achieve the HbA1clevels recommended in National Institute for Health and Care Excellence guidance. The process evaluation showed that promotion of the EPIC packs and diaries by diabetes professionals at randomisation did not happen as intended; the dominant ‘normalisation’ theory underpinning children’s diabetes information may be counterproductive; risk and long-term complications did not feature highly in children’s diabetes information; and children and young people engaged in risky behaviour and appeared not to care, and most did not use a diabetes diary or did not use the information to titrate their insulin as intended.LimitationsRecruitment of ‘hard to reach’ children and young people living away from their families was not successful. The findings are therefore more relevant to diabetes management within a family context.ConclusionsThe findings indicate a need to rethink context and the hierarchical relationships between children, young people, parents and diabetes professionals with regard to ‘partnership and participation’ in diabetes decision-making, self-care and self-management. Additional research, implementation strategies and service redesign are needed to translate available information into optimal self-management knowledge and subsequent optimal diabetes self-management action, including to better understand the disconnection between children’s diabetes texts and context; develop age-appropriate Apps/e-records for recording blood glucose measurements and insulin management; develop interventions to reduce risk-taking behaviour by children and young people in relation to their diabetes management; reconsider what could work to optimise children’s self-management of diabetes; understand how best to reorganise current diabetes services for children to optimise child-centred delivery of children’s diabetes information.Study registrationCurrent Controlled Trials ISRCTN17551624.FundingThe National Institute for Health Research Health Services and Delivery Research programme.
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Hughes, Thomas, Mikkel Brok-Kristensen, Yosha Gargeya, Anne Mette Worsøe Lottrup, Ask Bo Larsen, Ana Torres-Ortuño, Nicki Mackett, and John Stevens. "“He's a normal kid now”: an ethnographic study of challenges and possibilities in a new era of haemophilia care." Journal of Haemophilia Practice 7, no. 1 (December 17, 2020): 150–57. http://dx.doi.org/10.17225/jhp00167.

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AbstractBackgroundRecent treatment option advances in haemophilia care have contributed to a discourse of ‘normality’ around the condition, in which people with haemophilia (PwH) are increasingly expected to live ‘normal’ lives unburdened by their condition.AimThe aim of this article is to explore notions of ‘normality’ in the experience of haemophilia across generations. This is one of the main themes identified in a large-scale ethnographic study of the everyday life of PwH, a broad qualitative investigation of beliefs and experiences related to condition, treatment, and personal ways of managing the condition.MethodsThe study used ethnographic research methods. Five haemophilia experts helped frame the research design by contributing historical and disease area context prior to the initiation of field research. PwH were recruited through patient organisations in five European countries (Italy, Germany, Spain, UK and Ireland). During field research, study researchers collected data through 8–12 hours of participant observation, semi-structured interviews, written exercises, facilitated group dialogues, and on-site observations of PwH interactions with friends, family, and health care professionals (HCPs). They also conducted on-site observation at haemophilia treatment centres (HTCs) and HCP interviews. The study employed a multi-tiered grounded theory approach and combined data were analysed using techniques such as inductive and deductive analysis, cross-case analysis, challenges mapping, and clustering exercises. This article explores findings related to the discourse of ‘normality’ and is thus focused on a subset of the data from the study.ResultsFifty-one PwH, aged 1.5 to 82 years, were interviewed and followed in their daily lives. Six treatment centres were visited, and 18 HCPs were interviewed. The study found that a discourse of present day ‘normality’, as compared to a difficult past, is ingrained in the haemophilia community. As a result, unlike most older PwH (40+), younger PwH (under 18) are not always taught to acknowledge the severity of their condition or how to sense bleeds (disease-related embodied knowledge), and risk unknowingly doing long-term damage to their bodies. Twenty-seven per cent (n=7/26) of younger PwH (children, teenagers) in the study were observed or described as engaging in high-risk behaviours in the short term indicating a lack understanding of long-term consequences.ConclusionsThese findings suggest that the discourse of ‘normality’ presents a number of challenges that need to be addressed, namely the potential for younger PwH to be unaware of bleeds and the general underreporting of haemophilia-related complications and limitations. One way forward in realising the full potential of advanced treatment could be to teach young PwH, through evidence-based initiatives, how to develop an embodied sense of their bleeds. Furthermore, if the current state of life with haemophilia is accepted as finally ‘normal’, then progress in further improving care may be stalled. It is important that remaining and new challenges are recognised in order for them to be acted upon.
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Isaacs, David. "Family‐centred care." Journal of Paediatrics and Child Health 56, no. 1 (January 2020): 3–4. http://dx.doi.org/10.1111/jpc.14664.

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Dissertations / Theses on the topic "Family centred care discourse"

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Sye, Jill. "A fine balance." Click here to access this resource online, 2008. http://hdl.handle.net/10292/387.

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The aim of this study is to analyse the discourses drawn upon by community paediatric nurses in relation to children’s rights to health. The philosophy of Michel Foucault has been used to underpin the analysis of the interviews and exemplars of five experienced community nurses, revealing conflicting power relationships and discourses. Rights are formalised morality and so from a children’s rights perspective, discourses reflect both the moral and ethical positions of the nurses. Children are constructed as developing human beings whose moral status gradually changes and who, through a lack of developmental autonomy, entrust their decision-making to their representatives (parents and caregivers) as their trustees. Rights are correlative with the obligations and duties toward children by both families and society. Society constructs legislative and politically organised structures to govern raising children because children are an intrinsic social concern. Whilst representing society’s interest in children’s rights to health, nurses in the home act as a conduit for multiple governing structures. The nurses in this study construct their “truths” and knowledge about children’s health rights from nursing, medicine, law, education, and social policy. However, the values of individual parents can conflict with universal values for children’s health and wellbeing. Therefore representing society positions nurses as “agents of the state”, a role that potentially holds power over parents and children and leads to the epithet of “the health police”. Within the institution of the family, and in the privacy of the home, there are also mechanisms of power that can resist the mechanisms of the state and its representatives. Therefore the discourse “it takes a village to raise a child” competes with the “my home is my castle” discourse. Nurses negotiate a fine balance between these power relations. Nurses are challenged with using power productively to promote children’s rights whilst respecting the role of parents and families. I argue that children’s rights are central to the moral and ethical work of nurses but that such work is often obscured and invisible. I propose that children’s community nurses are excellent at negotiating networking and connecting at a micro level, but need to create a more sophisticated and cohesive entity at a macro level to become fully political children’s rights advocates.
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Toms, Gill. "Applications of family-centred care in clinical practice." Thesis, Bangor University, 2011. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.540738.

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Senabye, Juliet Sejosennye. "Family centred care in an intensive care unit in Botswana : the views of families." Diss., University of Pretoria, 2018. http://hdl.handle.net/2263/65856.

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Family-centred care (FCC) is a model of care that is focused on promoting collaboration through engagement of nurses and families in information sharing and decision making. This experience is common for families with patients admitted in the intensive care unit (ICU). Disruption of the social system usually manifests in the form of depression, fear and/or anger. Families need to be supported and involved in patient care and decision making, in order to reduce complaints, improve patient outcomes, and hence promote family-centred care. AIM The aim of the study was to describe the views of families regarding FCC and collaboratively develop strategies to enhance FCC in the general ICU in Botswana. Research Design The researcher used a qualitative, contextual, explorative and descriptive research design in order to explore and describe the lived views of families with patients admitted in the ICU regarding FCC. Methodology Ten family members of patients admitted in the ICU were purposively selected and data was collected by means of one-on-one interviews. The data-collection instrument was an Appreciative Inquiry semi-structured and open-ended interview guide. Findings The following main themes emerged: 1) workplace culture 2) compassion and 3) counselling. Conclusion Supporting and involving families in the care of the critically ill family member may improve family satisfaction, reduce complaints and ultimately lead to positive health outcomes for the patient.
Dissertation (MCur Nursing Science)--University of Pretoria, 2018.
Nursing Science
MCur Nursing Science
Unrestricted
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Yuennan, Choosak. "The nature of family-centred care in Thailand : a case study." Thesis, University of East Anglia, 2015. https://ueaeprints.uea.ac.uk/59197/.

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Thalassemia is a long-term condition that is highly prevalent in children in northern Thailand and the management of this disease requires a strong input from families. Family-centred care is a key philosophy in the nursing care of children and their families, especially as parents play a key role in the health and well-being of a child. However, the concept of family-centred care is a western one and there is limited literature on its use in Thailand. The aim of this study is to explore the characteristics of family-centred care in one hospital in Thailand and the factors that influence the nature of the nursing care. Using a qualitative case study approach, data was collected by non-participant observations, semi-structured interviews of five families, four nurses, a medical doctor and a Buddhist monk and the analysis of documentation in 2010. The data was initially analysed deductively using a recognised framework of family-centred care and this was followed by a thematic inductive analysis. The results showed that all the elements of the framework of family-centred care existed in varying degrees although the concept was not recognised as shaping the nature of this care. The nature of this care was influenced by three factors: the family, the hospital and Thai culture with its strong religious traditions. These factors were incorporated into a model of family-centred care that could be applied to other institutions in Thailand. This study has shown that the family-centred care model is practiced but it requires a strong commitment and input from healthcare professionals. Strengthening and formalising the use of this concept can be a very useful strategy to ensure that the needs of the child and family are recognised, valued and met.
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Ohene, Lillian. "Family centred care for children in Ghana hospitalised through road traffic accident." Thesis, De Montfort University, 2017. http://hdl.handle.net/2086/16366.

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Road traffic accident (RTA) is one of the leading causes of injuries and hospitalisation of children in Ghana. The sudden hospitalisation of the injured child is associated with anxieties and stressful episodes for the affected families. Family Centred Care (FCC) is a concept in paediatric nursing, which forms the basis of care for sick children and their families. FCC as a product of social constructs differs in cultures and context, despite the universal principles underpinning the concept. There is a perceived lack of knowledge of the concept in childcare practice in Ghana. This study explored the perspectives of FCC among health professionals and parents of children hospitalised through RTA in Ghana. The study adopted a qualitative approach, underpinned by a constructivist grounded theory methodology. Data was generated through in-depth individual interviews using a semi-structured technique. Participants consisted of twenty-four professionals and nineteen parents. Data were analysed using a constant comparative approach and two core categories emerged. Parental presence emerged from parents’ perspective, which generated four sub-categories. These include; managing emotions, negotiating the system, parental care roles, and challenges encountered. The professionals’ interviews generated family involvement; its sub-categories are parental involvement, communication, setting boundaries and support for family involvement. The emerging model of parental presence and family involvement for the care of the injured child in the hospital is the first of its kind in Ghana. The dimensions of negotiating the care system, which includes parents negotiating their social status with the professionals, also, demonstrating their usefulness in the hospital and establishing acquaintances with persons with influential powers within the socio-cultural context of Ghana forms part of key findings and the contribution to knowledge. The outcome of discussing the findings within the existing literature was projected using the Force Field Analysis as a conceptual framework for family involvement in the medico-cultural context of Ghana. The study recommends that institutional policies should reflect family involvement practice evidenced by clear written protocols for the involvement of parents/family in the care of the in-patient child.
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Pretorius, Rachele Lara. "Perceptions of stakeholders on family-centred care in the intensive care unit: an associative group analysis." Diss., University of Pretoria, 2019. http://hdl.handle.net/2263/73769.

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Introduction and background: Family-centred care in the intensive care unit has increased steadily over the past three decades, based on the premise that the illness and health of an individual family member affects the whole family unit. Although widely researched there are still inconsistencies in implementing family-centred care, which influences the ability to transfer research findings into practice. Research has shown that recognising the role of family members in the critical care environment should be considered an essential component to caring for the critically ill patient. Although recommendations have been made for the implementation of familycentred care, it is not feasible for all recommendations to be adopted by nurses and healthcare professionals in a single ICU. Nurses and healthcare professionals need to customise strategies to an individual intensive care unit to improve family-centred care. Aim: The aim of the study was to explore and describe nurses, healthcare professionals and family members’ perceptions of family-centred care in the intensive care unit. Research design and methods: A quali-quanti research design was used. Participants included nurses, healthcare professionals and family members in the intensive care unit of a private hospital in Gauteng, South Africa. There were a total of sixty (60) participants who took part in the study. Nurses were selected using stratified random sampling, healthcare professionals were selected using total population sampling and family members were selected using purposive, maximum variation and convenience sampling. Data was collected over a period of one month by means of structured interviews using an associative group analysis technique. Participants were asked to write down free word associations in relation to the stimulus word “family-centred care” in order to explore and describe their perceptions of family-centred care in the intensive care unit as it is currently, as it could be in the “ideal world” and any gaps that exist around these perceptions. Results: Five themes were derived from the data: communication, environment, continuum of feelings, reflections and spiritual care. Conclusion: The implementation of family-centred care should involve all stakeholders in the intensive care unit in order to address inconsistencies in perceptions around family-centred care. Keywords: Associative group analysis, intensive care unit, family-centred care, healthcare professionals, nurses, perceptions, stakeholders
Dissertation (MNur)--University of Pretoria, 2019.
Nursing Science
MNur (Clinical)
Unrestricted
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Wilson, Sally B. "Family Centred Care: A Descriptive Study of the Situation in Rural Western Australia." Curtin University of Technology, School of Nursing and Midwifery, 2004. http://espace.library.curtin.edu.au:80/R/?func=dbin-jump-full&object_id=15170.

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Family centred care is a concept espoused to be fundamental to achieving excellence in paediatric nursing. Although it is recognised that family centred care includes the child's rights to self determination the focus of this study is parental participation in the decision making and care of their hospitalised child at a partnership level. This is based on negotiation and requires frequent, effective communication between parents and nurses and for each to respect the other's knowledge and appreciate the other has something to offer in the relationship which will benefit the child. The purpose of this study was to identify whether family centred care was occurring in paediatric settings in rural Western Australia and explored parents' and nurses' perceptions of the concept. A questionnaire was designed based on the literature and common themes identified from focus groups. Convenience sampling was used and 15 rural hospitals facilitated participation of 243 parents who had a child under ten years of age hospitalised and 108 nurses who cared for children. Exploratory factor analysis identified four subscales from the parents' questionnaire and three subscales from the nurses' questionnaire which measured separate concepts of family centred care. Descriptive statistics were generated for each subscale, and independent t-tests, ANOVA and correlations were examined between independent variables and subscales of family centred care. There was a statistically significant difference in scores for parents' perceptions of `child friendly environment' between regional and district hospitals. Those parents who did not have social support scored a statistically significantly lower mean score for `respect as parent'. Nurses in district hospitals generated statistically significantly higher mean scores for `family focussed hospital' than those who worked in regional hospitals.
Parents and nurses both perceived that parents wanted to continue parenting their hospitalised child, however parents wanted to provide more nursing care than was perceived by nurses. Nurses' perceptions of delivering family centred care were greater than the perceptions of parents receiving it, however they were consistent in items that were scored low. Nurses did ask parents about the amount of participation they wanted in their child's care on admission however, it was not done on a regular basis. Parents perceived that nurses were unaware of other things that parents needed to attend to while their child was hospitalised and therefore did not enable parents to attend to these needs. More frequent negotiation of roles between parents and nurses by communicating each shift, or at least daily, could narrow the gap between differing perceptions in care provision and also enable parents to attend to their other roles thereby reducing their levels of physical and emotional stress.
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Puiras, Tuija. "A family-centred case management approach in long-term health care for children, parents' perceptions of care." Thesis, National Library of Canada = Bibliothèque nationale du Canada, 1998. http://www.collectionscanada.ca/obj/s4/f2/dsk2/tape15/PQDD_0024/MQ33433.pdf.

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Archibong, Uduak Emmanuel. "Promoting family-centred care through primary nursing practice in Nigeria : an action research project." Thesis, University of Hull, 1995. http://hydra.hull.ac.uk/resources/hull:11269.

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The context of the family in developing countries, especially in Nigeria, is very wide and embraces the immediate as well as the extended family members. The involvement of the family in health care can not be over-emphasised in the Nigerian society where every family member assumes the role of his/her brother's keeper. The expectations of and the role of the Nigerian extended family system in the health care of its members, the problem of incompatibility of the nursing process with the Nigerian nursing organisational pattern, which is predominantly functional nursing, and the increased call for the improvement of the quality of nursing care in Nigeria informed this study. The 'outsider' model of action research project using an 'insider' was undertaken to promote family-centred care through the introduction of primary nursing in Nigeria. The project involved introduction and evaluation of change in a model ward in a Nigerian hospital. The change was implemented in phases. A 37-bed medical-surgical ward in a 400-bed tertiary health institution formed the nucleus site for the change. Twenty-eight nursing staff (25 trained and 3 untrained), all patients and their families in the model ward and others took part in the change. In the pre-change evaluation study, 10 patients and 8 family members were assessed, while 8 patients and 6 family members were involved in the post-change evaluation. Data collection was carried out before and after the introduction of the change through observation, review of records, interview and self-report questionnaire. Measures used in the study included: QUALPACS, nurse-patient and nurse-family interaction sheets, modified Riser satisfaction questionnaire for patient and family satisfaction, questionnaire to determine the focus of nursing care and questionnaire to assess the practice of primary nursing in the model ward. Families and patients were supportive of the change, nurses were receptive of the change, hospital administration was helpful and other health care practitioners were neutral about the change. Other wards in the hospital and other hospitals expressed willingness to join in the change. After the introduction of primary nursing into the model ward, there appeared to be (1) marked improvement in the quality of nursing care received by the patients, (2) higher levels of family and patient satisfaction with nursing care, (3) an increase in the frequency of nurse-patient and nurse-family interactions, (4) improvement in the level of patient and family involvement in interactions and (5) an increase in the number of nurse-patient and nurse-family interactions in which supportive nursing activities were involved. Despite the study limitations, further research and replication studies are suggested to enable the spread of family-centred nursing care into other hospitals. Possibilities for continuity measures, outcomes for nursing staff and other health care practitioners have been raised as necessary variables for future evaluative studies. The need for more long term studies on primary nursing, and an in-depth study to ascertain the association between presence of family at patient's beside while the patient is under care and the level of patient satisfaction with nursing care have been implicated from this study.
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Van, Rhyn Gabieba. "Caregivers’ experiences with implementing asthma management guidelines for children who attend a hospital in the Western Cape." University of the Western Cape, 2013. http://hdl.handle.net/11394/4832.

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>Magister Scientiae - MSc
Asthma education aims to reduce exacerbations by helping the patient or the caregivers to recognize early warning signs and act accordingly. However, a number of studies have indicated that childhood asthma morbidity is still rising. The goal of this research study is to explore the caregivers’ experiences of implementing the asthma education guidelines. The question to be answered by this research is: “How do caregivers experience the implementation of the guidelines for preventing an asthma attack?” Caregivers attending the asthma clinic at Red Cross War Memorial Children Hospital, Rondebosch were the study population who participated in this qualitative study. Purposive sampling was applied for recruiting participants to the study. A semi-structured, open –ended interview schedule was used to collect data from individuals during semi-structured, in-depth interviews. The data was analysed according to the guidelines of Creswell (2009). The results showed that care-givers found the education programme useful. They also reported that the education programme were offered at their level and was easy to understand. Care-givers indicated that the programme should continue because they learnt every time they attended and found that the practical demonstrations were particularly useful.
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Books on the topic "Family centred care discourse"

1

Ainsworth, Frank. Family centred group care: Model building. Aldershot, Hants, England: Ashgate, 1997.

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Canada, Canada Health. Family-centred maternity and newborn care: National guidelines. Ottawa: Health Canada, 2000.

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Zlotnik Shaul, Randi, ed. Paediatric Patient and Family-Centred Care: Ethical and Legal Issues. New York, NY: Springer New York, 2014. http://dx.doi.org/10.1007/978-1-4939-0323-8.

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Shaul, Randi Zlotnik. Paediatric patient and family-centred care: Ethical and legal issues. New York: Springer, 2014.

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Woods, Robert T. Involving families in care homes: A relationship-centred approach to dementia care. London: Jessica Kingsley Publishers, 2007.

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Woods, Robert T. Involving families in care homes: A relationship-centred approach to dementia care. London: Jessica Kingsley Publishers, 2007.

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Rush, Janet. Family centred maternity care: Scoring tool/survey : project report March 1994. Toronto, Ont: Ontario Ministry of Health, 1994.

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1946-, O'Neil Di, ed. Beyond child rescue: Developing family-centred practice at St Luke's. St Leonards, NSW: Allen & Unwin, 1996.

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Primary care diagnostics: The patient-centred approach in the new commissioning environment. 2nd ed. London: Radcliffe Publishing, 2011.

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Rosner, Christine. Instructor's manual and test questions to accompany Betz, Hunsberger, and Wright family-centred nursing care of children. Philadelphia: W.B.Saunders, 1994.

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Book chapters on the topic "Family centred care discourse"

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Whittaker, Norma. "Family-centred Care." In Disorders and Interventions, 29–45. London: Macmillan Education UK, 2004. http://dx.doi.org/10.1007/978-0-230-21399-9_3.

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Bradshaw, Maureen, and Valerie Coleman. "Contemporary Family-centred Care." In Children’s and Young People’s Nursing in Practice, 30–59. London: Macmillan Education UK, 2007. http://dx.doi.org/10.1007/978-0-230-20984-8_3.

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Srivastava, Rani H. "Culture, Religion, and Family-Centred Care." In Paediatric Patient and Family-Centred Care: Ethical and Legal Issues, 57–77. New York, NY: Springer New York, 2014. http://dx.doi.org/10.1007/978-1-4939-0323-8_4.

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Keilty, Krista, David B. Nicholas, Karen Sappleton, and Karima Karmali. "Paediatric Patient-Centred Care at SickKids: Advancing Child & Family-Centred Care." In Paediatric Patient and Family-Centred Care: Ethical and Legal Issues, 129–43. New York, NY: Springer New York, 2014. http://dx.doi.org/10.1007/978-1-4939-0323-8_8.

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Nolan, Mike. "Creating an Enriched Environment of Care for Older People, Staff and Family Carers: Relational Practice and Organizational Culture Change in Health and Social Care." In Patient-Centred Health Care, 78–89. London: Palgrave Macmillan UK, 2013. http://dx.doi.org/10.1057/9781137308931_7.

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Sánchez Bautista, Consuelo. "Diaspora Policies, Consular Services and Social Protection for Ecuadorian Citizens Abroad." In IMISCOE Research Series, 127–46. Cham: Springer International Publishing, 2020. http://dx.doi.org/10.1007/978-3-030-51237-8_7.

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AbstractThis chapter provides a general overview of the main characteristics of Ecuadorian emigration and describes the general institutional framework whereby Ecuadorian authorities interact with nationals abroad. It then presents a general review of the main engagement policies with the Ecuadorian diaspora. Lastly, it presents the central social protection-oriented diaspora engagement policies and services currently in force to protect nationals abroad, specifically those who live overseas permanently and those in vulnerable conditions. A particular focus is put on policies in the areas of unemployment, health care, pensions, family-related benefits, and economic hardship. Overall, the chapter shows that Ecuador’s policy towards citizens abroad is connected to a political shift in the country and to the new political discourse that appeared as of 2006.
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Nicholas, David B., Krista Keilty, and Karima Karmali. "Paediatric Patient-Centred Care: Evidence and Evolution." In Paediatric Patient and Family-Centred Care: Ethical and Legal Issues, 3–18. New York, NY: Springer New York, 2014. http://dx.doi.org/10.1007/978-1-4939-0323-8_1.

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Gibson, Jennifer L. "Resource Allocation in Paediatric Patient and Family-Centred Care." In Paediatric Patient and Family-Centred Care: Ethical and Legal Issues, 35–54. New York, NY: Springer New York, 2014. http://dx.doi.org/10.1007/978-1-4939-0323-8_3.

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Gilmour, Joan M. "Legal Considerations in Paediatric Patient and Family-Centred Healthcare." In Paediatric Patient and Family-Centred Care: Ethical and Legal Issues, 115–25. New York, NY: Springer New York, 2014. http://dx.doi.org/10.1007/978-1-4939-0323-8_7.

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Shuman, Cheryl, and Riyana Babul-Hirji. "Clinical Genetics Practice: Integrating Paediatric Patient and Family-Centred Care." In Paediatric Patient and Family-Centred Care: Ethical and Legal Issues, 209–20. New York, NY: Springer New York, 2014. http://dx.doi.org/10.1007/978-1-4939-0323-8_13.

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Conference papers on the topic "Family centred care discourse"

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Marshall, Steve, Richard Harding, Katherine Bristowe, and Rachel Fearnley. "50 Family-centred care in hospices: what about the children?" In Marie Curie Palliative Care Research Conference. British Medical Journal Publishing Group, 2019. http://dx.doi.org/10.1136/spcare-2019-mariecuriepalliativecare.50.

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Kirk, R., and A. Gite. "G222(P) Family-centred care prior to transfer of the critically ill child." In Royal College of Paediatrics and Child Health, Abstracts of the RCPCH Conference–Online, 25 September 2020–13 November 2020. BMJ Publishing Group Ltd and Royal College of Paediatrics and Child Health, 2020. http://dx.doi.org/10.1136/archdischild-2020-rcpch.190.

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Fuller, MA, and P. Reynolds. "G37(P) Family centred neonatal care: ensuring the 24 hour parent consultation NNAP metric." In Royal College of Paediatrics and Child Health, Abstracts of the RCPCH Conference and exhibition, 13–15 May 2019, ICC, Birmingham, Paediatrics: pathways to a brighter future. BMJ Publishing Group Ltd and Royal College of Paediatrics and Child Health, 2019. http://dx.doi.org/10.1136/archdischild-2019-rcpch.37.

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Bullock, H., J. Mortimer, H. Williams, O. Hall, S. Farrell, and P. Prabhakar. "100 Evaluation of an interactive headache service family event: the use of patient-centred outcome measures." In Great Ormond Street Hospital Conference 2018: Continuous Care. BMJ Publishing Group Ltd and Royal College of Paediatrics and Child Health, 2018. http://dx.doi.org/10.1136/goshabs.100.

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Mallett, P., S. Willis, JP Corrigan, H. Keenan, H. Tough, M. Terris, and J. Richardson. "G377(P) Promoting family-centred care in paediatric intensive care: enhancing parental experience by introducing parental presence on ward rounds." In Royal College of Paediatrics and Child Health, Abstracts of the RCPCH Conference and exhibition, 13–15 May 2019, ICC, Birmingham, Paediatrics: pathways to a brighter future. BMJ Publishing Group Ltd and Royal College of Paediatrics and Child Health, 2019. http://dx.doi.org/10.1136/archdischild-2019-rcpch.363.

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Ewing, Gail, Sarah Croke, Christine Rowland, and Gunn Grande. "P-225 Enabling comprehensive person-centred support for family carers of people with motor neurone disease." In Transforming Palliative Care, Hospice UK 2018 National Conference, 27–28 November 2018, Telford. British Medical Journal Publishing Group, 2018. http://dx.doi.org/10.1136/bmjspcare-2018-hospiceabs.250.

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Brusa, Chiara, Julie De Graaf, Adnan Manzur, Marion Main, Evelin Milev, Mario Iodice, Danielle Ramsey, et al. "94 Secondary outcomes of spinal surgery in patients with spinal muscular atrophy (SMA): a retrospective analysis and a family-centred survey." In GOSH Conference 2019, Care of the Complex Child. BMJ Publishing Group Ltd and Royal College of Paediatrics and Child Health, 2019. http://dx.doi.org/10.1136/archdischild-2019-gosh.94.

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Sinnathamby, Annushkha, Celeste Yong, Amanda Zain, Siau Hwei Ng, Xin Yi Thong, and Si Min Chan. "452 Lessons in family-centred pandemic care: the psychological outcomes of families admitted with covid-19 in Singapore." In RCPCH Conference Singapore. BMJ Publishing Group Ltd, 2021. http://dx.doi.org/10.1136/bmjpo-2021-rcpch.250.

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Mallett, P., S. Willis, JP Corrigan, H. Keenan, H. Tough, M. Terris, and J. Richardson. "G27(P) Promoting family-centred care: assessing parent & healthcare professionals’ views on introducing parental presence on picu ward rounds." In Royal College of Paediatrics and Child Health, Abstracts of the Annual Conference, 13–15 March 2018, SEC, Glasgow, Children First – Ethics, Morality and Advocacy in Childhood, The Journal of the Royal College of Paediatrics and Child Health. BMJ Publishing Group Ltd and Royal College of Paediatrics and Child Health, 2018. http://dx.doi.org/10.1136/archdischild-2018-rcpch.26.

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Gaffari, Mohammed, Nuha Abdelghafar Nimeri, A. Samawal, Hameed Mohd Lutfi, Mai Abdulla AL Qubaisi, Hilal Amin Tawfik Al Rifai, and Nazla Abd El Monem Mohamed Mahmoud. "72 Going home safely, a family centred approach: facilitating the discharge process of preterm infant from neonatal intensive care unit." In RCPCH Conference Singapore. BMJ Publishing Group Ltd, 2021. http://dx.doi.org/10.1136/bmjpo-2021-rcpch.44.

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Reports on the topic "Family centred care discourse"

1

Appleford, Gabrielle, and Saumya RamaRao. Health financing and family planning in the context of Universal Health Care: Connecting the discourse. Population Council, 2019. http://dx.doi.org/10.31899/rh6.1021.

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Appleford, Gabrielle, and Saumya RamaRao. Health financing and family planning in the context of universal health care: Connecting the discourse in Kenya. Population Council, 2019. http://dx.doi.org/10.31899/rh6.1022.

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