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Journal articles on the topic 'End-of-life decision making'

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Published: 4 June 2021
Last updated: 10 March 2023

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1

Williams, Brian. "End of life decision‐making." Journal of Adult Protection 7, no. 1 (June 2005): 46–47. http://dx.doi.org/10.1108/14668203200500006.

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2

Pirani, Sehrish, Rozina Karmaliani, and Robyna Irshad Khan. "End-of-Life Decision-Making." Asian Bioethics Review 6, no. 3 (2014): 289–301. http://dx.doi.org/10.1353/asb.2014.0025.

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3

Morse, Elizabeth Lada. "End of Life Decision Making." International Journal of Knowledge, Culture, and Change Management: Annual Review 5, no. 10 (2006): 121–34. http://dx.doi.org/10.18848/1447-9524/cgp/v05i10/49463.

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4

Ventres, William B., Gary S. Fischer, Robert M. Arnold, Mary R. Rose, James A. Tulsky, and Laura A. Siminoff. "End-of-life decision making." Journal of General Internal Medicine 14, no. 1 (January 1999): 68. http://dx.doi.org/10.1046/j.1525-1497.1999.00286.x.

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5

Rosenfeld, Kenneth E., Neil S. Wenger, and Marjorie Kagawa-Singer. "End-of-life decision making." Journal of General Internal Medicine 15, no. 9 (September 2000): 620–25. http://dx.doi.org/10.1046/j.1525-1497.2000.06289.x.

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6

Virginia, Sharpe. "End-of-life decision making." Women's Health Issues 6, no. 5 (September 1996): 286. http://dx.doi.org/10.1016/1049-3867(96)00038-2.

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7

Colclough, Yoshiko Yamashita, and Gary M. Brown. "End-of-Life Treatment Decision Making." American Journal of Hospice and Palliative Medicine® 31, no. 5 (June 17, 2013): 503–12. http://dx.doi.org/10.1177/1049909113489592.

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8

Barrett, Linda L. "Supporting End of Life Decision Making." Activities, Adaptation & Aging 18, no. 3-4 (November 14, 1994): 77–88. http://dx.doi.org/10.1300/j016v18n03_06.

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9

Rebagliato, Marisa, Marina Cuttini, Lara Broggin, István Berbik, Umberto de Vonderweid, Gesine Hansen, Monique Kaminski, et al. "Neonatal End-of-Life Decision Making." JAMA 284, no. 19 (November 15, 2000): 2451. http://dx.doi.org/10.1001/jama.284.19.2451.

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10

Bieńkowska, Daria. "End of life decision making in healthcare in the prism of Council of Europe’s Human Rights Standards." Gubernaculum et Administratio 2(24) (2021): 137–55. http://dx.doi.org/10.16926/gea.2021.02.24.

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The issue of decisions made at the end of life relating to the so-called “Right to death”, “death in dignity”, which in the literature on the subject is referred to as end-of-life decision making in the legal and medical space, arouses the interest of lawyers and doctors, and due to the specific gravity of the topic, it is also the subject of public debate. This article presents the issue of end-of-life decision making in health care in the light of the standards of the Council of Europe. The main purpose of the problem outlined in this way will be to analyze the legal admissibility of decisions concerning the end of life at the request of the interested person in the legal and human perspective. The summary indicates that despite the lack of a consensus in contemporary Europe as to the understanding of human rights, and hence the admissibility of active euthanasia and assisted suicide, the situation may change with the increasing emphasis on individual autonomy in medical law.
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11

Blank, Robert H. "End-of-Life Decision Making across Cultures." Journal of Law, Medicine & Ethics 39, no. 2 (2011): 201–14. http://dx.doi.org/10.1111/j.1748-720x.2011.00589.x.

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As is evident from the other articles in this special issue, end-of-life treatment has engendered a vigorous dialogue in the United States over the past few decades because decision making at the end of life raises broad and difficult ethical issues that touch on health professionals, patients, and their families. This concern is exacerbated by the high cost related to the end of life in the U.S. Moreover, in light of demographic patterns, progressively scarce health care resources, and an expanding array of life-saving technologies, decisions at the end of life are becoming problematic matters of public and, thus, scholarly concern in most countries. Issues at the end of life are central not only to bioethics but also raise important ancillary policy dimensions.
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12

Isaacs, David, and Anne Preisz. "Suffering and end‐of‐life decision‐making." Journal of Paediatrics and Child Health 57, no. 9 (February 15, 2021): 1356–59. http://dx.doi.org/10.1111/jpc.15380.

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13

Brancatisano, Stephen. "SUFFERING AND END‐OF‐LIFE DECISION MAKING." Journal of Paediatrics and Child Health 57, no. 5 (March 24, 2021): 766. http://dx.doi.org/10.1111/jpc.15461.

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14

Tobin, Bernadette. "Suffering and end‐of‐life decision‐making." Journal of Paediatrics and Child Health 57, no. 9 (March 10, 2021): 1360–61. http://dx.doi.org/10.1111/jpc.15437.

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15

Thiers, Mary. "End-of-life decision making in ICU." Critical Care Nurse 26, no. 2 (April 1, 2006): 16–17. http://dx.doi.org/10.4037/ccn2006.26.2.16.

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16

Tindall, Gillian. "Decision Making at the End of Life." Journal of the Royal Society of Medicine 91, no. 3 (March 1998): 166–67. http://dx.doi.org/10.1177/014107689809100319.

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17

Drought, Theresa S., and Barbara A. Koenig. ""Choice" in End-of-Life Decision Making." Gerontologist 42, suppl_3 (October 1, 2002): 114–28. http://dx.doi.org/10.1093/geront/42.suppl_3.114.

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18

Ko, Eunjeong, and Holly Nelson-Becker. "Does End-of-Life Decision Making Matter?:." American Journal of Hospice and Palliative Medicine® 31, no. 2 (March 21, 2013): 183–88. http://dx.doi.org/10.1177/1049909113482176.

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19

Hwang, David Y., and James L. Bernat. "Neurologists and end-of-life decision-making." Neurology: Clinical Practice 5, no. 1 (December 5, 2014): 6–8. http://dx.doi.org/10.1212/cpj.0000000000000096.

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20

Zuckerman, Connie. "End of Life Care and Decision Making:." Hospice Journal, The 14, no. 3/4 (November 9, 1999): 85–107. http://dx.doi.org/10.1300/j011v14n03_07.

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21

Gauthier, Donna M. "Decision Making Near the End of Life." Journal of Hospice & Palliative Nursing 7, no. 2 (March 2005): 82???90. http://dx.doi.org/10.1097/00129191-200503000-00011.

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22

MEEKER, MARY ANN, and MARY ANN JEZEWSKI. "Family decision making at end of life." Palliative and Supportive Care 3, no. 2 (June 2005): 131–42. http://dx.doi.org/10.1017/s1478951505050212.

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Objective: To enhance understanding of the phenomenon of family surrogate decision-making at the end of life (EOL) by means of a systematic review and synthesis of published research reports that address this phenomenon.Methods: Garrard's (1999) methods for conducting a systematic review of the literature were followed. Fifty-one studies focusing on family decision-making experiences, needs, and processes when assisting a dying family member were selected following electronic database searches and ancestry searches.Results: In studies using hypothetical scenarios to compare patients' choices and surrogates' predictions of those choices, surrogates demonstrated low to moderate predictive accuracy. Increased accuracy occurred in more extreme scenarios, under conditions of forced choice, and when the surrogate was specifically directed to use substituted judgment. In qualitative explorations of their perspectives, family members voiced their desire to be involved and to accept the moral responsibility attendant to being a surrogate. Quality of communication available with providers significantly influenced family satisfaction with decision-making and EOL care. Group or consensual decision-making involving multiple family members was preferred over individual surrogate decision-making. Surrogates experienced long-term physical and psychological outcomes from being decision-makers.Significance of results: Functioning as a surrogate decision-maker typically places great moral, emotional, and cognitive demands on the family surrogate. Clinicians can provide improved care to both patients and families with better understanding of surrogates' needs and experiences.
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23

Smerald, Georgina, Nicolas Lee, Catriona Hay, Jenny Holland, and Becky Rowe. "Understanding decision making at end of life." European Journal of Surgical Oncology 43, no. 11 (November 2017): 2234–35. http://dx.doi.org/10.1016/j.ejso.2017.10.173.

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24

Smerald, Georgina, Nicolas Lee, Catriona Hay, Jenny Holland, and Becky Rowe. "Understanding decision making at end of life." European Journal of Surgical Oncology 44 (March 2018): S37—S38. http://dx.doi.org/10.1016/j.ejso.2018.01.570.

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25

Caron, Chantal D., Jennifer Griffith, and Marcel Arcand. "End-of-life decision making in dementia." Dementia 4, no. 1 (February 2005): 113–36. http://dx.doi.org/10.1177/1471301205049193.

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26

Cohen, Andrew B., Megan S. Wright, Leo Cooney, and Terri Fried. "Guardianship and End-of-Life Decision Making." JAMA Internal Medicine 175, no. 10 (October 1, 2015): 1687. http://dx.doi.org/10.1001/jamainternmed.2015.3956.

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27

Meisel, Alan, Jan C. Jernigan, and Stuart J. Youngner. "Prosecutors and End-of-Life Decision Making." Archives of Internal Medicine 159, no. 10 (May 24, 1999): 1089. http://dx.doi.org/10.1001/archinte.159.10.1089.

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28

Sullivan, Jane Elizabeth, Lynn Heather Gillam, and Paul Terence Monagle. "The enactment stage of end-of-life decision-making for children." Palliative and Supportive Care 17, no. 2 (January 11, 2018): 165–71. http://dx.doi.org/10.1017/s1478951517001110.

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AbstractObjectivesTypically pediatric end-of-life decision-making studies have examined the decision-making process, factors, and doctors’ and parents’ roles. Less attention has focussed on what happens after an end-of-life decision is made; that is, decision enactment and its outcome. This study explored the views and experiences of bereaved parents in end-of-life decision-making for their child. Findings reported relate to parents’ experiences of acting on their decision. It is argued that this is one significant stage of the decision-making process.MethodsA qualitative methodology was used. Semi-structured interviews were conducted with bereaved parents, who had discussed end-of-life decisions for their child who had a life-limiting condition and who had died. Data were thematically analysed.ResultsTwenty-five bereaved parents participated. Findings indicate that, despite differences in context, including the child’s condition and age, end-of-life decision-making did not end when an end-of-life decision was made. Enacting the decision was the next stage in a process. Time intervals between stages and enactment pathways varied, but the enactment was always distinguishable as a separate stage. Decision enactment involved making further decisions - parents needed to discern the appropriate time to implement their decision to withdraw or withhold life-sustaining medical treatment. Unexpected events, including other people’s actions, impacted on parents enacting their decision in the way they had planned. Several parents had to re-implement decisions when their child recovered from serious health issues without medical intervention.Significance of resultsA novel, critical finding was that parents experienced end-of-life decision-making as a sequence of interconnected stages, the final stage being enactment. The enactment stage involved further decision-making. End-of-life decision-making is better understood as a process rather than a discrete once-off event. The enactment stage has particular emotional and practical implications for parents. Greater understanding of this stage can improve clinician’s support for parents as they care for their child.
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29

Murali, Komal Patel. "End of Life Decision-Making: Watson’s Theory of Human Caring." Nursing Science Quarterly 33, no. 1 (December 3, 2019): 73–78. http://dx.doi.org/10.1177/0894318419881807.

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The phenomenon of end-of-life (EOL) decision-making is a lived experience by which individuals or families make decisions about care they will receive prior to death. A postmodern philosophical approach suggests EOL decision-making is a varied contextual phenomenon that is highly influenced by subjectivity. Thus, there is no specific definition for the phenomenon of EOL decision-making. Watson’s theory of human caring complements a postmodern approach in guiding the nursing process of caring for individuals as they experience EOL decision-making.
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30

Whitty-Rogers, Joanne, Marion Alex, Cathy MacDonald, Donna Pierrynowski Gallant, and Wendy Austin. "Working with Children in End-of-Life Decision Making." Nursing Ethics 16, no. 6 (November 2009): 743–58. http://dx.doi.org/10.1177/0969733009341910.

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Traditionally, physicians and parents made decisions about children’s health care based on western practices. More recently, with legal and ethical development of informed consent and recognition for decision making, children are becoming active participants in their care. The extent to which this is happening is however blurred by lack of clarity about what children — of diverse levels of cognitive development — are capable of understanding. Moreover, when there are multiple surrogate decision makers, parental and professional conflict can arise concerning children’s ‘best interest’. Giving children a voice and offering choice promotes their dignity and quality of life. Nevertheless, it also presents with many challenges. Case studies using pseudonyms and changed situational identities are used in this article to illuminate the complexity of ethical challenges facing nurses in end-of-life care with children and families.
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31

Wilson, Caitlin. "Thinking differently about end-of-life decision-making." Journal of Paramedic Practice 13, no. 9 (September 2, 2021): 386–87. http://dx.doi.org/10.12968/jpar.2021.13.9.386.

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32

Cruz Esquivel, Juan, and Gabriela Irrazábal. "End-of-life Decision-making and Religious Beliefs." Revista Latinoamericana de Bioética 21, no. 1 (July 23, 2021): 77–98. http://dx.doi.org/10.18359/rlbi.5125.

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This paper analyzes the opinions on and attitudes towards the end of life among the population residing in Argentina. The data presented are taken from the Second National Survey of Religious Beliefs and Attitudes in Argentina, which was conducted on a multi-stage sample of 2421 cases in 89 districts throughout the country. Opinions about the end of life include positions in favor of euthanasia, requesting life extension through life support technologies, and leaving death to God’s will. Religious beliefs and affiliations prove to be determining variables in the positions taken by Argentine citizens regarding the end of life, death, and euthanasia. Furthermore, among those without any religious affiliation, some positions of autonomy over their bodies stand out: prolonging life and bringing life to an end, which means that their support for euthanasia can be assumed. The data presented here intend to contribute to planning health policies about the end-of-life process. The different views on this process or, in other words, the beliefs, values, and needs of patients and their families have a unique relevance that must be considered in the organization of care settings in end-of-life contexts.
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33

Thelen, Mary. "End-of-Life Decision Making in Intensive Care." Critical Care Nurse 25, no. 6 (December 1, 2005): 28–37. http://dx.doi.org/10.4037/ccn2005.25.6.28.

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34

Scherer, Yvonne, Mary Ann Jezewski, Brian Graves, Yow-Wu Bill Wu, and Xiaoyan Bu. "Advance Directives and End-of-Life Decision Making." Critical Care Nurse 26, no. 4 (August 1, 2006): 30–40. http://dx.doi.org/10.4037/ccn2006.26.4.30.

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35

Caulley, Lisa, Muriel R. Gillick, and Lisa S. Lehmann. "Substitute Decision Making in End-of-Life Care." New England Journal of Medicine 378, no. 24 (June 14, 2018): 2339–41. http://dx.doi.org/10.1056/nejmclde1800817.

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36

Manara, Alex. "Bespoke End-of-Life Decision Making in ICU." Critical Care Medicine 43, no. 4 (April 2015): 909–10. http://dx.doi.org/10.1097/ccm.0000000000000837.

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37

Weingarten, Reviewed by: Kevin, and Christine Ullrich. "End-of-Life Care and Pragmatic Decision Making." Journal of Palliative Medicine 15, no. 2 (February 2012): 254. http://dx.doi.org/10.1089/jpm.2012.9610.

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38

Coppola, Kristen M., and David B. Strohmetz. "Teaching end-of-life decision-making “Newlywed style”." Death Studies 40, no. 3 (October 14, 2015): 147–53. http://dx.doi.org/10.1080/07481187.2015.1103325.

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39

Caldwell, Charmaine D., and Stephen J. Freeman. "End-of-Life Decision Making: A Slippery Slope." Journal of Professional Counseling: Practice, Theory & Research 37, no. 2 (September 2009): 21–33. http://dx.doi.org/10.1080/15566382.2009.12033858.

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40

Lyon, Maureen E., Mary Ann McCabe, Kantilal Patel, and Lawrence J. D’Angelo. "Adolescent attitudes about end-of-life decision-making." Journal of Adolescent Health 32, no. 2 (February 2003): 138–39. http://dx.doi.org/10.1016/s1054-139x(02)00626-2.

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41

Parks, Susan Mockus, and Laraine Winter. "End of Life Decision-Making for Cancer Patients." Primary Care: Clinics in Office Practice 36, no. 4 (December 2009): 811–23. http://dx.doi.org/10.1016/j.pop.2009.07.006.

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42

Fins, Joseph J., Franklin G. Miller, Cathleen A. Acres, Matthew D. Bacchetta, Lynn L. Huzzard, and Bruce D. Rapkin. "End-of-Life Decision-Making in the Hospital." Journal of Pain and Symptom Management 17, no. 1 (January 1999): 6–15. http://dx.doi.org/10.1016/s0885-3924(98)00109-2.

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43

Finucane, Thomas E., and Michael Harper. "Ethical Decision-Making Near the End of Life." Clinics in Geriatric Medicine 12, no. 2 (May 1996): 369–77. http://dx.doi.org/10.1016/s0749-0690(18)30233-7.

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44

Kaldy, Joanne. "End-of-Life Decision-Making: Myths versus Options." Journal of the American Medical Directors Association 2, no. 4 (July 2001): H40—H41. http://dx.doi.org/10.1016/s1525-8610(01)80013-x.

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45

Kolva, Elissa, Barry Rosenfeld, Robert Brescia, and Christopher Comfort. "Assessing decision-making capacity at end of life." General Hospital Psychiatry 36, no. 4 (July 2014): 392–97. http://dx.doi.org/10.1016/j.genhosppsych.2014.02.013.

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46

April, C., and M. Parker. "End of life decision-making in neonatal care." Journal of Medical Ethics 33, no. 3 (March 1, 2007): 126–27. http://dx.doi.org/10.1136/jme.2006.020107.

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47

Wilson, Donna M., Tibor van Rooij, Poongodi Sampath, and Jessica A. Hewitt. "Innovative research on end-of-life decision making*." Critical Care Medicine 39, no. 7 (July 2011): 1831–32. http://dx.doi.org/10.1097/ccm.0b013e31821caf33.

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48

Kepple, Alyson L., Pierre N. Azzam, Priya Gopalan, and Robert M. Arnold. "Decision-making capacity at the end of life." Progress in Palliative Care 23, no. 3 (November 10, 2014): 133–36. http://dx.doi.org/10.1179/1743291x14y.0000000109.

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49

Souza, Jennifer Martinelli. "End of life decision-making: An interdisciplinary perspective." Families, Systems, & Health 20, no. 4 (2002): 449–53. http://dx.doi.org/10.1037/h0089596.

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50

Louw, S. "Cultural Issues in End-of-Life Decision Making." Age and Ageing 33, no. 2 (March 1, 2004): 212–13. http://dx.doi.org/10.1093/ageing/afh033.

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