Books on the topic 'Emotional caregiving'
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1
Caring: Home caregiving for a loved one with emotional illness. [Hollywood, Fla: Simon & Brown, 2008.
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2
Lally, J. Ronald. Infant/toddler caregiving: A guide to social-emotional growth and socialization. 2nd ed. Sacramento, CA: California Dept. of Education, 2011.
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Creating abuse-free caregiving environments for children, the disabled, and the elderly: Preparing, supervising, and managing caregivers for the emotional impact of their responsibilities. Springfield, Ill., U.S.A: C.C. Thomas, 1992.
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4
Starr, Matthew. Thoughtful Caregiving: Abuse Prevention Through Emotional Responsibility. KeyLight Press, LLC, 2010.
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5
Freitag, Lisa. Extreme Caregiving. Oxford University Press, 2017. http://dx.doi.org/10.1093/med/9780190491789.001.0001.
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Raising a child with multiple special needs or disabilities is a time-consuming and difficult task that exceeds the usual parameters of parenting. This book examines all the facets of that task, from the better-known physical, financial, and emotional burdens to the previously invisible moral work involved. Drawing from narratives written by parents of children with a variety of special needs, academic research in ethics and disability, and personal experience in pediatrics, this book begins to recognize the moral consequences of providing long-term care for a child with complex needs. Using a virtue ethic framework based on Joan Tronto’s phases of care, it isolates the various tasks involved and evaluates the moral demands placed on the parent performing them. Raising a child with special needs requires an excess of attentiveness, responsibility, competence, and responsiveness, and demands from the parent a reassessment of their personal and social lives. In each phase, moral work must be done to become the sort of person who can perform the necessary caregiving. Some of the consequences are predictable, such as the emotional and physical burden of constant attentiveness and numerous unexpected responsibilities. But the need for competence, which drives an acquisition of medical knowledge, has not previously been analyzed. Nor has there been recognition of the enormous moral task of encouraging identity formation in a child with intellectual delays or autism. For a child who cannot attain independence, parents must continue to provide care and support into an uncertain future.
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Adams, Susie Kinslow. My Mother My Child: A Caregiving Daughter Shares Her Emotional Eight Year Journey. Tate Outloud, 2006.
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7
Black, Helen K., John T. Groce, and Charles E. Harmon. Introduction. Oxford University Press, 2018. http://dx.doi.org/10.1093/acprof:oso/9780190602321.003.0001.
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Chapter One offers a brief history of the rise in awareness of the vast numbers of informal, family caregivers caring for aged, demented, and impaired loved ones in the home. The importance of informal caregivers to the healthcare system, both financially and emotionally, emerged in studies exploring the numbers of home caregivers and the nature of their care work. Early studies also focused on the sense of burden caregivers experienced due to caregiving. Since the 1980s, caregiving studies have been a constant in research, and have become increasingly complex in the use of large data sets and advanced technology to study the number of caregivers, their characteristics and labors, and the outcomes of caregiving on their emotional and physical health. Few studies have focused solely on the experience of caregiving in African-American elder male caregivers, and in the way we accomplish here.
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Camras, Linda A., Vanessa L. Castro, Amy G. Halberstadt, and Michael M. Shuster. Spontaneously Produced Facial Expressions in Infants and Children. Oxford University Press, 2017. http://dx.doi.org/10.1093/acprof:oso/9780190613501.003.0015.
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This chapter explores the question of whether infants and children produce prototypic emotional facial expressions in emotion-eliciting situations. Investigations of both infants and children are described. These include a natural observation study of a single infant during routine caregiving activities, a systematic experiment in which infants were presented with elicitors of fear and anger, a seminaturalistic experiment during which mothers and children discuss a topic of disagreement, and a study of children’s responses to a fear stimulus presented in the context of an Internet prank. Together these studies show that prototypic expressions are sometimes produced when it is unlikely that the corresponding emotion is experienced and often are not produced when the corresponding emotional experience seems likely. Overall findings suggest that the relationship between emotion and facial expression is more complex than portrayed within contemporary discrete emotion theories.
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Shipley, Peggy Z. ALS caregiver quality of life and psychological implications. Oxford University Press, 2018. http://dx.doi.org/10.1093/med/9780198757726.003.0016.
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Amyotrophic lateral sclerosis (ALS) impacts greatly not only those who have the disease, but also family caregivers who provide the majority of care for their loved ones throughout the ALS disease trajectory. In the provision of this care, these family caregivers frequently experience significant threats to their own physical and mental health, and thus to their quality of life. The burden of caregiving can be high, distress is not uncommon, and support is needed to best address these issues. Despite the physical and emotional challenges faced by family caregivers, limited research has been directed at this caregiving phenomenon. The more health care providers understand the key elements of the ALS caregiving experience, the better equipped they will be to recognize the caregivers as not only co-providers of care, but as potential recipients of care to meet the unique physical and mental challenges of this caregiving population.
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Dirks, Evelien. The Development of Young Deaf and Hard-of-Hearing Children. Oxford University Press, 2018. http://dx.doi.org/10.1093/oso/9780190880545.003.0018.
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Early parent–child interactions influence children’s later linguistic, social-emotional, and cognitive development. Since deaf and hard-of-hearing (DHH) children are more at risk for difficulties in their development than hearing children, the caregiving environment is an important context to enhance their development. This chapter describes different aspects of parent–child interactions that are related to the development of young DHH children. Parental language input, mental state language, and sensitivity are related to young DHH children’s language skills, social-emotional development, and executive functions. The chapter addresses parent-based interventions to promote DHH children’s linguistic, social-emotional, and cognitive development.
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Christopher, T. Erb, and Mark D. Siegel. Caring for the ICU Survivor: The Family Caregiver Burden. Oxford University Press, 2014. http://dx.doi.org/10.1093/med/9780199653461.003.0009.
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Almost fifty million people in the United States provide informal, non-professional supportive care to chronically ill and disabled family members. Survivors of critical illness often depend upon such care for their well-being and recovery. ICU survivors may need help with physical, psychological, and cognitive deficits, often involving many hours of care per day. Families play essential caregiving roles, supporting survivors’ diverse and profound needs, often with minimal outside help. Caregiving can be personally fulfilling, but many families suffer financially, physically, and emotionally as a result of caring for loved ones after critical illness. While some institutional programmes provide direct support to ICU survivors, little infrastructure exists to support the activity of informal family caregivers. Measures are needed to identify caregivers at risk and to develop and provide effective treatments both within and beyond the ICU. Research has begun to elucidate some of the ways in which providers of critical care can identify those at risk of long-term psychological or emotional hardship and suggests strategies to prevent some of the overwhelming sequelae of critical illness among families. More work is needed to provide a deeper and more nuanced understanding of risk factors and preventive strategies for caregiver burden following critical illness. This chapter reviews the burdens of caregiving and suggests ways to help ICU survivors’ families manage the daunting challenge of helping their loved ones recover from life-threatening illness.
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Freitag, Lisa. Attentiveness and Responsibility. Oxford University Press, 2017. http://dx.doi.org/10.1093/med/9780190491789.003.0005.
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This chapter begins to evaluate caregiving for children with multiple special needs through the lens of Joan Tronto’s first two phases of care. Multiple narratives written by parents of children with a variety of disabilities or health care needs are examined for depictions of attentiveness and responsibility. The child’s multiple needs create for the parents multiple new areas in which they must be acutely attentive and responsible. Parents also must learn to live with the emotional uncertainty and moral ambivalence of caring for a child whose health is fragile. They must advocate for the child on both a systemic and personal level. Morally, they must become the sort of person who can perform difficult tasks and make difficult medical decisions, despite the fact that, for the most part, they had no choice but to take on an enormous caregiving task.
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Freitag, Lisa. Narrative and the Phases of Care. Oxford University Press, 2017. http://dx.doi.org/10.1093/med/9780190491789.003.0004.
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In her book Moral Boundaries political scientist and ethicist Joan Tronto suggested a new way of evaluating care, as an action rather than an emotional state. She approached care in four phases, each of which has an associated virtue guiding how a caregiver might act. This chapter evaluates the four phases of care and their virtues (attentiveness, responsibility, competence, and responsiveness), extending their use to the care of children with special needs. The applicability of Tronto’s phases and their virtues is demonstrated by applying them to a complex parent narrative: Vicky Forman’s This Lovely Life. Forman’s narrative, examined with principle ethics, offers an unsolvable dilemma of children’s rights vs. parental autonomy. Examination using Tronto’s theories offers a new way to analyze parent caregiving and raises ethical questions not previously considered. This provides the groundwork for evaluation of the moral work involved in extreme caregiving.
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Freitag, Lisa. Hard Labor. Oxford University Press, 2017. http://dx.doi.org/10.1093/med/9780190491789.003.0003.
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Much of the research on parent caregivers examines only the physical or emotional state of the caregiver, reporting such problems as depression, stress, and poor health. Some more recent studies from the nursing and ethics literature, done mostly with families of children who are living at home and dependent on medical technology, also begin to uncover ethical concerns. This chapter outlines the tasks involved in extreme caregiving, dealing with the most well-researched ones: the physical and financial burdens of care, social isolation, and the need to maintain positivity and advocate for the child’s inclusion. Correlating existing studies with statements made by parents in narrative form, it becomes clear that issues raised by researchers are mirrored by parents. In addition, parent narratives reveal deeper concerns that researchers have not uncovered and begin to offer some explanation behind the problems that have been reported.
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Mong, Sherry N. Taking Care of Our Own. Cornell University Press, 2020. http://dx.doi.org/10.7591/cornell/9781501751448.001.0001.
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Mixing personal history, interviewee voices, and academic theory from the fields of care work, the sociology of work, medical sociology, and nursing, this book introduces us to the hidden world of family caregivers. Using a multidimensional approach, the book seeks to understand and analyze the types of skilled work that family caregivers do, the processes through which they learn and negotiate new skills, and the meanings that both caregivers and nurses attach to their care work. The book is based on sixty-two in-depth interviews with family caregivers, home and community health-care nurses, and other expert observers to provide a lens through which in-home care processes are analyzed, while also exploring how caregivers learn necessary procedures. Further, the book examines the emotional labor of caregiving, as well as the identities of caregivers and nurses who are key players in the labor process, and gives attention to the ways in which the labor is transferred from medical professionals to family caregivers.
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Black, Helen K., John T. Groce, and Charles E. Harmon. African-American Men’s Belief Systems. Oxford University Press, 2018. http://dx.doi.org/10.1093/acprof:oso/9780190602321.003.0006.
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“A book about caregiving can’t be written,” one of our caregivers said, “without some discussion of our spiritual life.” Our caregiving respondents noted the importance of their religious and spiritual beliefs as a means for coping with the daily stress of caregiving. Men’s faith offered guidelines for the morality or “rightness” of caregiving. Prayer was a vehicle used to ask God for help, particularly when in distress. For the most part, men believed that God, Allah, or a Higher Power ultimately controlled the precariousness of the caregiving situation. Religious services and fellow church members often provided camaraderie and sometimes respite for the caregiver. Men’s faith became an internal well in which they laid conflicting emotions to rest and drew a continuing spring of strength and peace.
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Meyer, Jessica. An Equal Burden. Oxford University Press, 2019. http://dx.doi.org/10.1093/oso/9780198824169.001.0001.
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An Equal Burden forms the first scholarly study of the Army Medical Services in the First World War to focus on the roles and experiences of the men of the ranks of the Royal Army Medical Corps (RAMC). These men, through their work as stretcher-bearers and orderlies, provided a range of labour, both physical and emotional, in aid of the sick and wounded. They were not professional medical caregivers, yet were called upon to provide medical care, however rudimentary; they served in uniform, under military discipline, yet were forbidden, as non-combatants, from carrying weapons. Their service as men in wartime was thus unique. Structured both chronologically and thematically, this study examines the work that RAMC rankers undertook and its importance to the running of the chain of medical evacuation. It additionally explores the gendered status of these men within the medical, military, and cultural hierarchies of a society engaged in total war, locating their service within the context of that of doctors, female nurses, and combatant servicemen. Through close readings of official documents, personal papers, and cultural representations, both verbal and visual, it argues that the ranks of the RAMC formed a space in which non-commissioned servicemen, through their many roles, defined and redefined medical caregiving as men’s work in wartime.
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Burgio, Louis D., and Matthew J. Wynn. The REACH OUT Caregiver Support Program. Oxford University Press, 2021. http://dx.doi.org/10.1093/med-psych/9780190855949.001.0001.
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Our nation increasingly relies on family members or friends (i.e., informal caregivers) for needed care and support as we age. Family caregivers typically assume their caregiving role willingly and reap personal fulfilment from helping a family member, developing new skills, and strengthening family relationships. For these benefits, however, caregivers often sacrifice their own health and well-being. Depression, anxiety, poor physical health, and compromised immune function are more common among family caregivers than in adults not providing such care. The REACH OUT (Resources for Enhancing Alzheimer’s Caregiver Health: Offering Useful Treatments) program is a multicomponent, tailored, and flexible intervention for caregivers of people with dementia focused on the evidence-based therapeutic strategy of problem solving. This work is designed to guide clinicians through the process and provide them the necessary tools to share with caregivers with the goal of enhancing caregiver physical and mental health. Five common risk areas (home safety, caregiver health, social support, challenging behaviors, and emotional well-being) are described in the manual; and interventions are described that respect the nuances of each risk area. By beginning with an individualized risk assessment and being flexible to the needs and issues of the caregiver, the REACH OUT intervention helps clinicians identify risk areas and provide caregivers with tailored action plans to reduce risk and promote well-being.
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Steffen, Ann M., Larry W. Thompson, and Dolores Gallagher-Thompson. Treating Later-Life Depression. 2nd ed. Oxford University Press, 2021. http://dx.doi.org/10.1093/med-psych/9780190068431.001.0001.
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One of the greatest challenges for providers treating later-life depression is the wide variability of life circumstances that accompany depressive symptoms for clients across outpatient mental health, integrated primary care, and inpatient psychiatric settings. This thoroughly revised Clinician Guide for Treating Later-Life Depression: A Cognitive-Behavioral Therapy Approach outlines culturally responsive practices that target the contexts and drivers/antecedents of depression in middle-aged and older adults. Clinicians choose research-supported modules from the accompanying workbook that fit the needs of their clients (i.e., changes in brain health, chronic pain, sleep problems, anxiety, experiences of loss, family caregiving issues). This practical guide reflects continuing international scientific and clinical advances in applying cognitive-behavioral therapy to age-related problems using individual and group formats, with clinician-tested recommendations for telehealth practice. Flexible use of these clinical tools enhances the personalized application of change strategies, including behavioral activation, problem solving, relaxation training, attention to personal strengths and positive emotional experiences, self-compassion, cognitive reappraisal, and communication skills training. Case examples are provided to support the efforts of practitioners from a range of disciplines (e.g., clinical psychology, psychiatry, social work, counseling, marriage and family therapy, nursing, occupational therapy, and recreational specialists). The appendices include aging-friendly assessment tools and other resources to support professional development. Because the practical techniques presented have empirical support accumulated over decades, Treating Later-Life Depression is an indispensable resource for behavioral health providers who wish to effectively and efficiently help diverse aging clients thrive in a daily life that is true to their values and personal strengths.
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Black, Helen K., John T. Groce, and Charles E. Harmon. The Hidden Among the Hidden. Oxford University Press, 2018. http://dx.doi.org/10.1093/acprof:oso/9780190602321.001.0001.
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The question of our research and our book is as follows: What is the experience of African-American elder male caregivers? Research and literature on African-American older males as informal, primary caregivers of demented or impaired family members, particularly spouses, are negligible. Male caregivers in general have been called “hidden” caregivers. Thus, we named the elderly African-American male caregivers we interviewed for this book “the hidden among the hidden.” We asked the experts—a group of 13 African-American male caregivers—to discuss the concrete and nonmaterial aspects of giving care to an impaired loved one. Our book addresses the knowledge gap about African-American male caregivers by revealing, in case-study form, their experiences of caregiving in the context of their personal biography and cohort history. Our focus is the practical and existential meaning of daily life as a caregiver. The men discussed in this book are over 60 years of age, most are long married, and they have been caregivers in their homes for at least 5 years and as long as 25 years. Their loved ones, particularly wives, suffered from a variety of illnesses and debilities that necessitated hands-on care. The book examines varied aspects of the caregiving experience, the unique generativity of men who give care, and the emotions and conflicts about decision making that emerge in day-to-day caregiving.
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Klimecki, Olga M., and Tania Singer. The Compassionate Brain. Edited by Emma M. Seppälä, Emiliana Simon-Thomas, Stephanie L. Brown, Monica C. Worline, C. Daryl Cameron, and James R. Doty. Oxford University Press, 2017. http://dx.doi.org/10.1093/oxfordhb/9780190464684.013.9.
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This chapter focuses on the neuroscience of compassion and related social emotions such as empathy, empathic concern, or empathic distress. First, we review neuroscientific literature on empathy and relate empathy to similar social emotions. We then turn to neuroscientific research on caregiving and social connection before describing cross-sectional studies on the neural signatures of compassion. To investigate whether training of compassion can change neural functions, the neural “fingerprints” of compassion expertise were studied in both expert and inexperienced meditators. The latter included the comparison between functional plasticity induced by empathy for suffering as opposed to compassion training. These studies show that compassion training changes neural functions, and that the neural substrates related to empathy for suffering differ experientially as well as neuronally. This is in line with the observation of distinct behavioral patterns related to feelings of empathic distress and compassion, described towards the end of the chapter.
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Kindt, Sara, Liesbet Goubert, Maarten Vansteenkiste, and Tine Vervoort. Chronic Pain and Interpersonal Processes. Oxford University Press, 2018. http://dx.doi.org/10.1093/oso/9780190627898.003.0007.
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This chapter argues that one particular type of a caregiver’s behavioral response to pain cannot, in and of itself, be considered adaptive or maladaptive. It contends that to understand the complexity of the interaction between caregivers and pain sufferers, a goal or need-based framework may be useful. Self-Determination theory (SDT) is presented as a heuristic framework that identifies three basic psychological needs as essential for successful adaption. Whether behavioral responses are supportive and helpful depends upon the extent to which these responses support the need for autonomy, competence, and relatedness of the sufferer. Drawing on an affective-motivational account on interpersonal dynamics in the context of pain, the chapter highlights how observer attunement toward sufferers’ needs may depend upon the regulation of various goals for caregiving, including self-oriented versus other-oriented goals and associated emotions.