Relevant bibliographies by topics / Electronic personal health record

Academic literature on the topic 'Electronic personal health record'

Author: Grafiati
Published: 10 December 2022
Last updated: 29 January 2023

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Journal articles on the topic "Electronic personal health record"

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Abd, Lobna, Ahmed Sharaf, and Mona Mohamed. "Personal Integrated Electronic Health Record." International Journal of Computer Applications 150, no. 12 (September 24, 2016): 44–47. http://dx.doi.org/10.5120/ijca2016911656.

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McCartney, Patricia R. "The Electronic Personal Health Record." MCN, The American Journal of Maternal/Child Nursing 33, no. 6 (November 2008): 390. http://dx.doi.org/10.1097/01.nmc.0000341262.00620.dc.

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Karagiannis, George E., Vasileios G. Stamatopoulos, Michael Rigby, Takis Kotis, Elisa Negroni, Adolfo Munoz, and Loannis Mathes. "Web-based personal health records: the personal electronic health record (pEHR) multicentred trial." Journal of Telemedicine and Telecare 13, no. 1_suppl (July 2007): 32–34. http://dx.doi.org/10.1258/135763307781645086.

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A multicentre trial of a Web-based personal electronic health record (pEHR) service was conducted in three different European hospitals. A total of 150 patients and 22 health-care professionals were involved. The service was customised according to the needs of three groups of patients who had congenital heart disease, Parkinson's disease and type 2 diabetes. Two structured questionnaires, one for patients and one for health-care professionals, were used to collect their views on the pEHR service. The questions were about usability and user friendliness, safety and trustworthiness, reliability, functionality, satisfaction and the potential revenue model of the service in the case of future deployment. Patients perceived the service as very motivating and felt that it could help them in managing their clinical information. Health-care professionals showed a very positive attitude towards the use of the service and its potential for future large-scale deployment. They were also keen to recommend the service to their patients. Both study groups were unwilling to pay for the service and preferred it to be sponsored by a third party (e.g. the National Health Service).
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Hawthorne, Kisha Hortman, and Lorraine Richards. "Personal health records: a new type of electronic medical record." Records Management Journal 27, no. 3 (November 20, 2017): 286–301. http://dx.doi.org/10.1108/rmj-08-2016-0020.

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Purpose This paper examines existing research on the topic of personal health records (PHRs). Areas covered include PHR/patient portal, recordkeeping, preservation planning, access and provider needs for future reuse of health information. Patient and physician PHR use and functionality, as well as adoption facilitators and barriers, are also reviewed. Design/methodology/approach The paper engages in a review of relevant literature from a variety of subject domains, including personal information management, medical informatics, medical literature and archives and records management literature. Findings The review finds that PHRs are extensions of electronic records. In addition, it finds a lack of literature within archives and records management that may lead to a less preservation-centric examination of the new PHR technologies that are desirable for controlling the lifecycle of these important new records-type. Originality/value Although the issues presented by PHRs are issues that can best be solved with the use of techniques from records management, there is no current literature related to PHRs in the records management literature, and that offered in the medical informatics literature treats the stewardship aspects of PHRs as insurmountable. This paper offers an introduction to the aspects of PHRs that could fruitfully be examined in archives and records management.
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Cahill, Jennifer E., Mark R. Gilbert, and Terri S. Armstrong. "Personal health records as portal to the electronic medical record." Journal of Neuro-Oncology 117, no. 1 (January 30, 2014): 1–6. http://dx.doi.org/10.1007/s11060-013-1333-x.

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Lee, PS, WS Jian, CH Kuo, and YC Li. "Electronic Health Record Goes Personal World-wide." Yearbook of Medical Informatics 18, no. 01 (August 2009): 40–43. http://dx.doi.org/10.1055/s-0038-1638636.

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Summary Objective Increasing patient demand for convenient access to their own healthcare data has led to more personal use of the Electronic Health Record (EHR). With “consumer empowerment” being an important issue of EHR, we are seeing a more “patient-centric” approach of EHR from countries around the world. Researchers have reported on issues in EHR sharing including concerns on privacy and security, consumer empowerment, competition among providers, and content standards. This study attempts to analyze prior research and to synthesize comprehensive, empirically-based conceptual models of EHR for personal use. Methods We use “B2C(2B)” to represent this new behavior of EHR sharing and exchange, with “consumer” in the center stage. ResultsBased on different information sharing mechanisms, we summarized the “B2C(2B)” behavior into three models, namely, the Inexpensive data media model, the Internet patient portal model and the Personal portable device model. Models each have their own strengths and weaknesses in their ways to share patient data and to address privacy and security concerns. Conclusion Personal use of EHR under the B2C(2B) model does look promising based on our study. We started to observe a trend that governments around the world are embarking on related projects. With multiple stake-holders involved, we are only beginning to understand the complexity of such undertakings.
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Alami, MasoomehRahimi, Mahdieh Nemayande, Omid Yousefianzadeh, Mahnaz Samadbeik, Amir Abbas Azizi, Robabeh Motaghedi, Atefeh Zare, et al. "Personal Electronic Health Record for Patients with Diabetes; Health Technology Assessment Protocol." Internal Medicine and Medical Investigation Journal 2, no. 4 (October 5, 2017): 132. http://dx.doi.org/10.24200/imminv.v2i4.100.

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Introduction: In recent decades, diabetes has contributed significantly to the burden of disease in developed and developing countries, due to the considerable prevalence and involvement of various age groups in the communities.Today, a variety of ways to manage and control the disease are used, one of which is the use of personal electronic health records. Recently there has been a remarkable upsurge in activity surrounding the adoption of personal electronic health records systems for patients and consumers. personal electronic health records systems are more than just static repositories for patient data; they combine data, knowledge, and software tools, which help patients to become active participants in their own care.The present study was conducted with the goal of Health Technology Assessment the impact of personal electronic health records in Patients with Diabetes.Methods: Writing is based on PRISMA standards. This was a Health Technology Assessment study. It aimed to evaluate the technology of personal electronic health record . The scoping review was conducted to evaluate 8 dimensions (Health Problem and Current Use of the Technology, Description and technical characteristics of technology, Safety, Costs and economic evaluation, Ethical analysis, Organisational aspects, Patients and Social aspects, Legal aspects) of Personal electronic health record . This study was based on answering questions which were developed based on Health Diagnostics Technology Assessment Documents Framework and HTA Core Model 3.0 . A systematic review was conducted to evaluate the Clinical Effectiveness dimension of personal electronic health record in controlling diabetes. In order to gather evidences, Ovid databases, Cochrane Library, PubMed, CRD, Trip database and EMBASE, and Randomized Controlled Trial Registries, such as the Clinical Trial and Trial Registry, were searched using specific keywords and strategies. .Articles are evaluated on the basis of the quality criteria of JADAD.The data is analyzed by the STATA software.Dissemination:The results of the study will be published in a peer-reviewed journal and presented at relevant conferences.Policy makers and healthcare decision-makers can use these results.
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Gartrell, Kyungsook, Carla L. Storr, Alison M. Trinkoff, Marisa L. Wilson, and Ayse P. Gurses. "Electronic personal health record use among registered nurses." Nursing Outlook 63, no. 3 (May 2015): 278–87. http://dx.doi.org/10.1016/j.outlook.2014.11.013.

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Mandal, Ajaya, Prakriti Dumaru, Sagar Bhandari, Shreeti Shrestha, and Subarna Shakya. "Decentralized Electronic Health Record System." Journal of the Institute of Engineering 15, no. 1 (February 16, 2020): 77–80. http://dx.doi.org/10.3126/jie.v15i1.27716.

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With a view to overcome the shortcomings of traditional Electronic Health Record (EHR) system so as to assure the interoperability by providing open access to sensitive health data, while still preserving personal data privacy, anonymity and avoiding data misuse, Decentralized Electronic Health Record System was developed. The aforementioned issue concerning traditional EHR system can be addressed by implication of emerging technology of the era namely Block chain, together with Inter Planetary File System (IPFS) which enables data sharing in decentralized and transactional fashion, thereby maintaining delicate balance between privacy and accessibility of electronic health records. A block chain based EHR system has been built for secure, efficient and interoperable access to medical records by both patients and doctors while preserving privacy of the sensitive patient’s information. Patients can easily and comprehensively access to their medical records across providers and treatment sites using unique properties of block chain and decentralized storage. A separate portal for both the patients and doctors has been built enabling the smart contracts to handle further interaction between doctors and patients. So, in this system, it is demonstrated how principles of decentralization and block chain architectures could contribute to EHR system using Ethereum smart contracts and IPFS to orchestrate a suitable system governing the medical record access while providing patients with comprehensive record review along with consideration for audit ability and data sharing.
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Li, Yu-Chuan, Don E. Detmer, Syed-Abdul Shabbir, Phung Anh Nguyen, Wen-Shan Jian, George I. Mihalas, Edward H. Shortliffe, Paul Tang, Reinhold Haux, and Michio Kimura. "A global travelers' electronic health record template standard for personal health records: Figure 1." Journal of the American Medical Informatics Association 19, no. 1 (January 2012): 134–36. http://dx.doi.org/10.1136/amiajnl-2011-000323.

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Dissertations / Theses on the topic "Electronic personal health record"

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Baron, Karen. "Incorporating Personal Health Records into the Disease Management of Rural Heart Failure Patients." NSUWorks, 2012. http://nsuworks.nova.edu/gscis_etd/85.

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Personal Health Records (PHRs) allow patients to access and in some cases manage their own health records. Their potential benefits include access to health information, enhanced asynchronous communication between patients and clinicians, and convenience of online appointment scheduling and prescription refills. Potential barriers to PHR use include lack of computer and internet access, poor computer or health literacy, security concerns, and provider disengagement. PHRs may help those living in rural areas and those with chronic conditions such as heart failure, monitor and manage their disease, communicate with their health care team and adhere to clinical recommendations. To provide some much needed actual research, a descriptive mixed methods study of the usability, usefulness, and disease management potential of PHRs for rural heart failure patients was conducted. Fifteen participants were enrolled. Usability issues fell into three categories: screen layout; applying consistent, standard formatting; and providing concise, clear instructions. Participants used PHR features that were more convenient than other methods or that had some additional benefit to them. There was no difference between rural and urban participants. A heart failure nurse promoted recording daily heart failure symptoms in the PHR. Most participants did so at least once, but many found it cumbersome. Reasons for recording included the comfort of having clinical staff monitor the data. Participants who were stable did not find recording as useful as did those who were newly diagnosed or unstable. Participants used asynchronous communication to send messages to the heart failure nurse that they would not otherwise have communicated. The study expands the knowledge of PHR use by addressing useful functionality and disease management tools among rural patients with heart failure. The patients were able to complete tasks they found useful. The increased communication and disease management tools were useful to some.
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Cunningham, Scott. "My diabetes my way : an electronic personal health record for NHS Scotland." Thesis, University of Dundee, 2014. https://discovery.dundee.ac.uk/en/studentTheses/24b55130-8e8a-4316-8681-b9f4d8513631.

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Background: Diabetes prevalence in Scotland is increasing at ~4.6% annually; 247,278 (4.7%) in 2011. My Diabetes My Way (MDMW) is the NHS Scotland information portal, containing validated educational materials for people with diabetes and their carers. Internet-based interventions have potential to enhance self-management and shift power towards the patient, with electronic personal health records (PHRs) identified as an ideal method of delivery. In December 2010, a new service was launched in MDMW, allowing patients across Scotland access to their shared electronic record. The following thesis aims to identify and quantify the benefits of a diabetes-focused electronic personal health record within NHS Scotland. Methods: A diabetes-focused, population-based PHR was developed based on data sourced from primary, secondary and tertiary care via the national diabetes system, Scottish Care Information - Diabetes Collaboration (SCI-DC). The system includes key diagnostic information; demography; laboratory tests; lifestyle factors, foot and eye screening results; prescribed medication and clinical correspondence. Changes are tracked by patients over time using history graphs and tables, data items link to detailed descriptions explaining why they are collected, what they are used for and what normal values are, while tailored information links refer individuals to facts related to their condition. A series of quasi-experimental studies have been designed to assess the intervention using subjectivist, mixed-methods approaches incorporating multivariate analysis and grounded theory. These studies assess patient expectations and experiences of records access, system usage and uptake and provide preliminary analysis on the impact on clinical process outcomes. Survey questionnaires were used to capture qualitative data, while quantitative data were obtained from system audit trails and from the analysis of clinical process outcomes before and after the intervention. Results: By the end of the second year, 2601 individuals registered to access their data (61% male; 30.4% with type 1 diabetes); 1297 completed the enrolment process and 625 accessed the system (most logins=346; total logins=5158; average=8.3/patient; median=3). Audit trails show 59599 page views (95/patient), laboratory test results proving the most popular (11818 accesses;19/patient). The most utilised history graph was HbA1c (2866 accesses;4.6/patient). Users are younger, more recently diagnosed and have a heavy bias towards type 1 diabetes when compared to the background population. They are also likely to be a more highly motivated ‘early adopting’ cohort. Further analysis was performed to compare pre- and post-intervention clinical outcomes after the system had been active for nearly two and a half years. Results of statistical significance were not forthcoming due to limited data availability, however there are grounds for encouragement. Creatinine tests in particular improved following 1 year of use, with type 1 females in particular faring better than those in patient other groups. For other clinical tests such as HbA1c, triglycerides, weight and body mass index improvements were shown in mean and/or median values.96% of users believe the system is usable. Users also stated that it useful to monitor diabetes control (93%), improve knowledge (89%) and enhance motivation (89%). Findings show that newly diagnosed patients may be more likely to learn more about their new condition, leading to more productive consultations with the clinical team (98%). In the pre-project analysis, 26% of registrants expressed concerns about the security of personal information online, although those who actually went on to use it reported 100% satisfaction that their data were safe. Engagement remains high. In the final month of year two, 44.6% of users logged in to the system. 55.3% of users had logged in within the previous 3 months, 78.9% within the previous 6 months and 91.4% within the previous year. Some legacy PHRs have failed due to lack of uptake and deficiencies in usability, so as new systems progress, it is essential not to repeat the mistakes of the past. Feedback: "It is great to be able to view all of my results so that I can be more in charge of my diabetes".Conclusion: The MDMW PHR is now a useful additional component for the self-management of diabetes in Scotland. Although there are other patient access systems available internationally, this system is unique in offering access to an entire national population, providing access to information collected from all diabetes-related sources. Despite its development for the NHS Scotland environment, it has the potential to connect to any electronic medical record. This local and domain-specific knowledge has much wider applicability as outlined in the recommendations detailed, particularly around health service and voluntary sector ownership, patient involvement, administrative processes, research activities and communication. The current project will reach 5000 patients by the end of 2013.
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Gartrell, Kyungsook. "Factors Associated with Electronic Personal Health Record Use among Registered Nurses for Their Own Health Management." Thesis, University of Maryland, Baltimore, 2014. http://pqdtopen.proquest.com/#viewpdf?dispub=3636110.

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Background: Electronic personal health records (ePHRs) are consumer-centric tools that enable consumers to securely access, manage and share their health information with health care providers. Although the potential for ePHRs to improve healthcare is significant, there is no available evidence on health care professionals' use of ePHRs for their own health management. Nurses have a tremendous opportunity to assist and educate patients in ePHRs. Research has shown that ePHR adoption among patients were influenced by perceived usefulness and ease of use using the technology acceptance model (TAM). This study expanded the TAM adding perceived data privacy security protections and health promoting role models for the ePHR acceptance model.

Purpose: This study examined (1) characteristics associated with ePHR use by nurses: health, technology experience, and attitudes about privacy of electronic health information, (2) psychometric properties of the measures in the research model, (3) association of ePHR acceptance constructs: perceived usefulness, ease of use, data privacy and security protections, and health promoting role model with ePHR use, and (4) moderating effects of nurses characteristics: age, chronic illness and/or medication use, providers use of electronic personal health record (EHR) on the relationships between ePHR acceptance constructs and ePHR use.

Methods: Registered nurses working in hospitals and members of the nursing informatics community (NIC) completed an anonymous online survey in the Fall of 2013 (n=847). Differences between groups were examined using t-tests and χ² tests. The associations between nurses' characteristics and ePHR use were examined via multiple logistic regression models that also held constant possible confounding covariates and interaction terms.

Results: Less than half (41%) of the hospital nurses were ePHR users. The odds of ePHR use was significantly greater among those with chronic medical conditions/medication use (OR=1.64, 95% CI=1.06-2.53) and those whose health care providers used EHRs (OR=3.62, 95% CI=2.45-5.36) controlling for age, marital status, current positions and specialty area. ePHR use was more common among NIC nurses (72%). The odds of ePHR use was also increased among NIC nurses with providers that used EHRs (OR=5.99, 95% CI=1.40-25.61), but users were 70% less concerned about privacy of health information online than nonusers (OR=0.32, 95% CI=0.14-0.70) controlling for ethnicity, race and practice regions. The majority of both ePHR users and nonusers would grant access to their primary care providers. However, fewer ePHR users in both nursing groups granted permission to designated family members or friends, other care providers who care for them, or pharmacists to view ePHRs than nonusers who answered hypothetically. Sufficient reliability for usefulness, ease of use, and privacy and security protections, and health promoting role model scales were found (all Cronbach alphas>0.70). Three constructs contributed significantly to ePHR use after adjusting nursing group, age, chronic illness and medication use, and health care providers use of EHR (usefulness, OR=0.87, 95% CI=0.85-0.89; data privacy and security protection, OR=1.04, 95% CI=1.01-1.07; and health promoting role model, OR=1.07, 95% CI=1.04-1.11). Significant interactions existed between perceived data privacy and security protections and providers EHR use, and between perceived health promoting role model and age on ePHR use (p<0.05).

Conclusion: The study findings suggest practical insights for nurses. With the experience of using ePHRs, nurses can leverage use of ePHRs for patient education on chronic illness and medication management. Nurses in NIC can also play an important role in practical ePHR design to enhance functionality and security in ePHR with their specialties in nursing informatics.

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Abd-Alrazaq, Alaa Ali Eid. "Factors affecting patients' use of electronic personal health records." Thesis, University of Leeds, 2018. http://etheses.whiterose.ac.uk/21951/.

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England has recently introduced a nationwide electronic personal health record (ePHR) called Patient Online. Although ePHRs are widely available, adoption rates of ePHRs are usually low. Understanding the factors affecting patients’ use of ePHRs is considered important to increase adoption rates and improve the implementation success of ePHRs. Therefore, the current study aims to examine the factors that affect patients’ adoption of ePHRs in England. A systematic review was conducted to identify factors that affect patients’ adoption of ePHRs. Then, the most common theories and models relevant to technology adoption and human behaviour were reviewed to select an appropriate theory and use it as a theoretical lens for examining the factors in the current study. The Unified Theory of Acceptance and Use of Technology (UTAUT) was selected and tailored to the context of ePHRs by including the most influential factors identified by the systematic review. A cross-sectional survey of 624 patients in four general practices in West Yorkshire was carried out to empirically examine the proposed model via structural equation modelling. The results showed that performance expectancy, effort expectancy, and perceived privacy and security were significant predictors of behavioural intention. The relationship between social influence and behavioural intention was not statistically significant. Both facilitating conditions and behavioural intention affected use behaviour. Performance expectancy was also a significant mediator of the effect of both effort expectancy and perceived privacy and security on behavioural intention. Eleven relationships were moderated by age, sex, income, education, ethnicity, and internet access. The proposed model accounted for 76% and 48% of the variance in behavioural intention and use behaviour, respectively. The current study makes a significant contribution by adapting and validating a theoretical model (UTAUT) in a new context (ePHRs). Further, this study contributes to practices by providing several implications for developers, marketers, and GP practices.
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Logue, Melanie D. "Validating and Testing A Model to Predict Adoption of Electronic Personal Health Record Systems in the Self-Management of Chronic Illness in the Older Adult." Diss., The University of Arizona, 2011. http://hdl.handle.net/10150/204269.

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Problem statement: As a result of the aging population, the number of people living with chronic disease has increased to almost 50% (CDC, 2004). Two of the main goals in treating patients with chronic diseases are to provide seamless care from setting to setting and prevent disability in the older adult. Many have proposed the use of electronic personal health record systems (PHRs) in the self-management process, but adoption remains low. The purpose of this research was to validate and test an explanatory model of the barriers and facilitators to older adults' adoption of personal health records for self-managing chronic illnesses. The long range goal of the research is to use the explanatory model to develop interventions that will maximize the facilitators and minimize the barriers to adoption. Methods: A preliminary attempt to capture the essential barriers and facilitators that predict adoption of PHRs among older adults with chronic illness was synthesized from the literature. In Phase One of the study, the model was integrated from existing literature and validated using a Delphi method. In Phase Two of the study, the model was pilot tested and refined for future investigations. Findings: The results of this study validated the Personal Health Records Adoption Model (PHRAM) and a preliminary instrument that measured barriers and facilitators to the adoption of PHRs in older adults who are self managing chronic illness. Additional findings indicate that while seniors are seeking options to manage their health and have expressed an interest in using Internet-based PHRs, they may require assistance to gain access to PHRs. Implications: The potential for PHRs to increase patient autonomy and reduce for disability and the resulting negative health consequences needs further investigation as we move into the next era of healthcare delivery. The results of this study provided the foundation for continued theoretically-based research in this area.
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Carneiro, Carla Margarida da Silva. "Voluntary electronic patient record state of the art." Master's thesis, Universidade da Beira Interior, 2012. http://hdl.handle.net/10400.6/1191.

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Introduction: With an ongoing economic crisis, Portugal and many other countries are looking into ways to increase efficiencies in all sectors. With almost 10% of the Gross Domestic Product (GDP) spent in Healthcare, there is a need to improve the use of resources. A Voluntary Electronic Patient Record (VEPR) is an online record of health and healthcare related data provided by the patient himself, available to him, and his authorized health care providers and relatives, in a ubiquitous way anywhere/everywhere. According to some authors through VEPRs, every health institution could have an easier access to a summary of the patient’s most important health data if needed and authorized. Just like Portugal, Australia, for example, is currently preparing a health care reform and the implementation of a Personally Controlled Electronic Health Record (PCEHR) system is also being studied. Surveys to general practitioners and consumers of eHealth are being conducted in order to evaluate the quality and sustainability of Australia’s health care and to develop change and adoption strategies for the PCEHR system. VEPRs can be provided by private companies, hospitals and health organizations or health departments of governments themselves. In Portugal there is at least one VEPR free of charge provided by a private company. This has raised issues of security of data and risks, and has not been approved by the data protection agency, possibly due to considerations on its massive use as well as the ethical issues of linking it to national health data from the NHS. In addition to this private VEPR, Portugal also provides some health online services: eAgenda and eRNU (“Registo Nacional de Utentes”) since 2009. Currently, eAgenda allows patients to schedule for doctor´s appointments and to ask for prescriptions renewal. The online health service, eRNU, allows users to check their general practitioner, the health institution in which they are registered, the health services it provides and its opening schedule. VEPR can be efficient, allowing better sharing of information between health care providers through the online availability of health information. It can be convenient; provide easy access to timely and accurate information no matter where the patient is or when he needs it. It is empowering as it enables the patient to be more active and involved with his own health care. To ensure the privacy of the patient’s health information, a security program is required to allow only the appropriately authorized individuals to access the VEPR and to save the record’s data in case of a technical breakdown occurs. On the other hand, although everyone can have a VEPR, this is normally restricted to younger, more info-included citizens as access to the internet is not universal and there is a natural difficulty in older generations to use IT and Internet. This, however, can be mitigated and will only have a tendency to dissipate in future. Aims: 1. To assess the state of the art about VEPR; 2. To assess the state of the art about VEPR in Portugal; 3. To assess users expectancies towards VEPR in Portugal; 4. To help developing and set in motion a VEPR adjusted to Portuguese population’s health challenges. Methodology: This is a transversal study with a qualitative and quantitative approach. To elaborate this paper, a literature review was made in order to identify sources of information about VEPR and current state of the art on this field. It was established a cooperation with the Portuguese Ministry of Health as it was the only way to indirect and directly collect data about the portuguese VEPR, eAgenda and eRNU. A questionnaire composed of 14 questions, made anonymous, was created using Lime SurveyTM, named “Inquérito para utilizadores dos serviços eAgenda e eRNU”, permission obtained and it was then sent to eAgenda and eRNU users through their e-mail addresses. Data was processed using Microsoft Office Excel 97-2003 and statistically analyzed resorting to Epi Info 7. Because the last question was an open question, the related data was processed manually. Results: Currently, eAgenda and eRNU serve about 4% of the portuguese population. The typical user is female, married, completed high school, has children and age median 38, 5 years old. Own and household appointments scheduling were the more frequently selected as the most useful functionalities as well as those that most contributed to improvement on health care delivery. Waiting time reduction was the most frequent selected advantage of eAgenda and eRNU. Conclusions: It is to be concluded that eAgenda and eRNU are well suited for the portuguese population as only 3,28% of the inquired users pointed eAgenda and eRNU services has not having any advantage. More studies are still required to understand the patterns of use and to promote the online services so that more people, not only 4% of the overall portuguese population, may take advantage of their benefits.
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Richards, Rhonda J. "A Study of the Intent to Fully Utilize Electronic Personal Health Records in the Context of Privacy and Trust." Thesis, University of North Texas, 2012. https://digital.library.unt.edu/ark:/67531/metadc115145/.

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Government initiatives called for electronic health records for each individual healthcare consumer by 2014. the purpose of the initiatives is to provide for the common exchange of clinical information between healthcare consumers, healthcare providers, third-party payers and public healthcare officials.This exchange of healthcare information will impact the healthcare industry and enable more effective and efficient application of healthcare so that there may be a decrease in medical errors, increase in access to quality of care tools, and enhancement of decision making abilities by healthcare consumers, healthcare providers and government health agencies. an electronic personal health record (ePHR) created, managed and accessed by healthcare consumers may be the answer to fulfilling the national initiative. However, since healthcare consumers potentially are in control of their own ePHR, the healthcare consumer’s concern for privacy may be a barrier for the effective implementation of a nationwide network of ePHR. a technology acceptance model, an information boundary theory model and a trust model were integrated to analyze usage intentions of healthcare consumers of ePHR. Results indicate that healthcare consumers feel there is a perceived usefulness of ePHR; however they may not see ePHR as easy to use. Results also indicate that the perceived usefulness of utilizing ePHR does not overcome the low perceived ease of use to the extent that healthcare consumers intend to utilize ePHR. in addition, healthcare consumers may not understand the different components of usage: access, management, sharing and facilitating third-party ePHR. Also, demographics, computer self-efficacy, personal innovativeness, healthcare need and healthcare literacy impact a healthcare consumer’s privacy concerns and trusting intentions in the context of ePHR and intent to utilize ePHR. Finally, this research indicates that healthcare consumers may need a better understanding of the Health Insurance and Portability and Accountability Act of 1996 (HIPAA) regulations of ePHR as well as a better understanding of the impact HIPAA has on websites that may facilitate ePHR.
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Ansved, Linn, and Karin Eklann. "Exploring ways to convey medical information during digital triage : A combined user research and machine learning approach." Thesis, Uppsala universitet, Avdelningen för visuell information och interaktion, 2019. http://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-386420.

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The aim of this project was to investigate what information is critical to convey to nurses when performing digital triage. In addition, the project aimed to investigate how such information could be visualized. This was done through a combined user research and machine learning approach, which enabled for a more nuanced and thorough investigation compared to only making use of one of the two fields. There is sparse research investigating how digital triaging can be improved and made more efficient. Therefore, this study has contributed with new and relevant insights. Three machine learning algorithms were implemented to predict the right level of care for a patient. Out of these three, the random forest classifier proved to have the best performance with an accuracy of 69.46%, also having the shortest execution time. Evaluating the random forest classifier, the most important features were stated to be the duration and progress of the symptoms, allergies to medicine, chronic diseases and the patient's own estimation of his/her health. These factors could all be confirmed by the user research approach, indicating that the results from the approaches were aligned. The results from the user research approach also showed that the patients' own description of their symptoms was of great importance. These findings served as a basis for a number of visualization decisions, aiming to make the triage process as accurate and efficient as possible.
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Braga, Renata Dutra. "Registro eletrônico em saúde: proposta de um modelo de informação para uso na atenção primária com vistas à interoperabilidade." Universidade Federal de Goiás, 2014. http://repositorio.bc.ufg.br/tede/handle/tede/3870.

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Coordenação de Aperfeiçoamento de Pessoal de Nível Superior - CAPES
There are various health information systems in use in the country, which serve different purposes, but are not interoperable. To ensure interoperability in the development of a model that serves different health professions was held this research, which aimed to define a conceptual model for the registration of health information in primary care. Methods: This action research with analytical approach was held in conjunction with a panel of experts to represent the health professions recognized by the National Health Council (CNS), which through discussion meetings identified and systematized essential information needed to evaluate the overall health of individual, in the context of multidisciplinary primary care demands generating a preliminary model. This model was validated by Delphi method and a consensus model was proposed. Results: The conceptual model to health information registration obtained goes beyond the demands of administration, since its focus is the individual - source of all the information that generates health demands. The central structure of the information registry model comprised four groups of information, which were called pillars: Data Gathering, Diagnosis, Care Plan and Evaluation. Each of these pillars presented subgroups important to the different professions, whose complexity limit of detail of information stood on the complexity of primary health care. Conclusion: This study represents a joint effort to establish an architecture of essential information for creating an electronic record in interoperable and necessary to meet the individual's health in primary care.
Há vários sistemas de informação em saúde em uso no país, que servem a propósitos distintos, contudo não são interoperáveis. Para assegurar a interoperabilidade na elaboração de um modelo que atende diferentes profissões de saúde realizou-se esta pesquisa, cujo objetivo foi definir um modelo conceitual para o registro da informação em saúde na atenção primária. Métodos: Esta pesquisa-ação, com abordagem analítica, foi realizada em conjunto com um painel de profissionais que, por meio de reuniões de discussão identificou e sistematizou informações essenciais para a avaliação da saúde geral do indivíduo, no contexto das demandas multiprofissionais da atenção primária, gerando um modelo preliminar. Esse modelo foi validado pelo método Delphi e um modelo consensual foi proposto. Resultados: O modelo conceitual de registro da informação em saúde obtido extrapola as demandas da gestão administrativa, visto que o seu foco foi o indivíduo – fonte de todas as informações que geram as demandas em saúde. A estrutura central do modelo compreendeu quatro grupos de informações, denominados de pilares: Coleta de Dados, Diagnóstico, Plano de Cuidados e Avaliação. Cada um desses pilares apresentaram subgrupos importantes para as diferentes profissões, cujo limite de complexidade e detalhamento da informação situou-se na atenção primária em saúde. Conclusão: Este estudo representa um esforço conjunto para o estabelecimento de uma arquitetura de informações essenciais para a criação de um registro eletrônico em saúde interoperável e necessárias para o atendimento do indivíduo na atenção primária.
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Tilman, Laora. "L’utilisation des technologies de l’information et de la communication à l’hôpital face au droit." Thesis, Lille 2, 2017. http://www.theses.fr/2017LIL20008/document.

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L’utilisation des TIC à l’hôpital prend une place de plus en plus importante et son développement ne cesse de croître. Le cadre juridique applicable se révèle cependant complexe à appréhender, composé à la fois de textes de droit commun et de textes plus spécifiques, le tout formant un ensemble pas toujours cohérent. Pour accompagner au mieux l’utilisation des TIC à l’hôpital, le législateur doit trouver le juste équilibre entre cadre propice pour le développement de ces pratiques, protection des droits fondamentaux et sécurisation des pratiques. Or, à l’heure actuelle, le cadre juridique applicable à l’utilisation des TIC à l’hôpital ne permet pas d’assurer cet équilibre délicat. Les pouvoirs publics ont donc un rôle stratégique à jouer dans la sécurisation de l’utilisation des TIC à l’hôpital. Une impulsion nationale doit être donnée en la matière, afin d’assurer la cohérence des projets développés, au travers d’une gouvernance forte. Le cadre juridique doit, quant à lui, être rénové afin d’accompagner l’innovation dans le numérique en santé et assurer la sécurité juridique nécessaire à la bonne utilisation des TIC. Dans ce contexte, les hôpitaux ont un rôle essentiel à jouer afin de sécuriser leurs pratiques
The use of ICT has become increasingly important in hospitals. However, the legal framework structuring its use is very complex to grasp. Indeed, it is made up of general laws as well as specific ones and makes this framework sometimes unconsistent. To provide an optimal legal framework for the ICT to expand safely, the legislator needs to strike the right balance between protecting fundamental rights and securing practices. As the current legal framework does not provide this delicate balance, public authorities have a strategic role to play to ensure a secure use of ICT within hospitals. To guarantee the development of consistent projects, a strong governance has to set up a national leadership. The legal framework needs to be rehabilitated to support digital innovation in Healthcare and to ensure a legal protection required for an appropriate use of ICT. Hospitals have then a key role to play in securing their practices
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Books on the topic "Electronic personal health record"

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Electronic health records for allied health careers. Boston: McGraw Hill, 2009.

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Enabling programmable self with HealthVault: [an accessible personal health record]. Sebastopol, CA: O'Reilly, 2012.

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Great Britain. National Health Service. NHS summary care record: Your emergency care summary. [Place of publication not identified]: [Dept. of Health], 2012.

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Association, Medical Group Management, ed. EHR optimization and operations guide for medical practices. Englewood, CO: Medical Group Management Association, 2012.

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Sinha, Pradeep, Gaur Sunder, Prashant Bendale, Manisha Mantri, and Atreya Dande. Electronic Health Record. Hoboken, NJ, USA: John Wiley & Sons, Inc., 2012. http://dx.doi.org/10.1002/9781118479612.

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United States. Congress. Senate. Committee on Labor and Human Resources. Protecting our personal health information, privacy in the electronic age: Hearings before the Committee on Labor and Human Resources, United States Senate, One Hundred Fifth Congress, first session ... September 11 and October 28, 1997. Washington: U.S. G.P.O., 1998.

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New technologies for advancing healthcare and clinical practices. Hershey, PA: Medical Information Science Reference, 2011.

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Kitt, Libby. Advocating for health: Personal health record. [S.l]: Harlow, 1997.

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Canadian Institutes of Health Research. Personal Information Protection and Electronic Documents Act : questions and answers for health researchers =: Loi sur la protection des renseignements personnels et les documents électroniques : questions et réponses pour les chercheurs dans le domaine de la santé. Ottawa, Ont: Canadian Institutes of Health Research = Instituts de recherche en santé du Canada, 2001.

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Bercaw, Ronald G., Kurt A. Knoth, and Susan T. Snedaker. The Lean Electronic Health Record. Boca Raton : Taylor & Francis, 2018.: Productivity Press, 2017. http://dx.doi.org/10.1201/b22061.

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Book chapters on the topic "Electronic personal health record"

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Draper, Ronald J. "Electronic Patient Records: Usability vs Security, with Special Reference to Mental Health Records." In Personal Medical Information, 151–63. Berlin, Heidelberg: Springer Berlin Heidelberg, 1997. http://dx.doi.org/10.1007/978-3-642-59023-8_12.

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Stamatopoulos, Vasileios G., George E. Karagiannis, Michael L. Rigby, and Sophia Kossida. "Development and Evaluation of a Web-Based Personal Electronic Health Record (pEHR)." In Annals of Information Systems, 1–12. Boston, MA: Springer US, 2010. http://dx.doi.org/10.1007/978-1-4419-1274-9_1.

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Xu, Jun, Xiangzhu Gao, Golam Sorwar, Nicky Antonius, and John Hammond. "Exploring Individuals’ Perceptions on Personally Controlled Electronic Health Record System." In Lecture Notes in Computer Science, 285–91. Cham: Springer International Publishing, 2018. http://dx.doi.org/10.1007/978-3-319-94523-1_27.

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Alzahrani, Saeed, and Tuğrul Daim. "The Adoption and Use of Tethered Electronic Personal Health Records for Health Management." In R&D Management in the Knowledge Era, 95–143. Cham: Springer International Publishing, 2019. http://dx.doi.org/10.1007/978-3-030-15409-7_4.

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Jyothi, E. V. N., and B. Rajani. "Effective Handling Personal Electronic Health Records Using Metadata Over Cloud Computing." In Advances in Intelligent Systems and Computing, 415–26. Singapore: Springer Singapore, 2018. http://dx.doi.org/10.1007/978-981-13-1580-0_40.

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Kormiltsyn, Aleksandr, and Alex Norta. "Dynamically Integrating Electronic - With Personal Health Records for Ad-hoc Healthcare Quality Improvements." In Communications in Computer and Information Science, 385–99. Cham: Springer International Publishing, 2017. http://dx.doi.org/10.1007/978-3-319-69784-0_33.

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Muhammad, Imran, Say Yen Teoh, and Nilmini Wickramasinghe. "Trying to Streamline Healthcare Delivery in Australia via the Personally Controlled Electronic Health Record (PCEHR)." In Lean Thinking for Healthcare, 187–206. New York, NY: Springer New York, 2013. http://dx.doi.org/10.1007/978-1-4614-8036-5_11.

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Rabbi, Khandakar, Mohammed Kaosar, Md Rafiqul Islam, and Quazi Mamun. "A Secure Real Time Data Processing Framework for Personally Controlled Electronic Health Record (PCEHR) System." In Lecture Notes of the Institute for Computer Sciences, Social Informatics and Telecommunications Engineering, 141–56. Cham: Springer International Publishing, 2015. http://dx.doi.org/10.1007/978-3-319-23802-9_13.

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Alzahrani, Saeed, and Tuğrul Daim. "Assessing the Key Factors Impacting the Adoption and Use of Tethered Electronic Personal Health Records for Health Management." In R&D Management in the Knowledge Era, 373–96. Cham: Springer International Publishing, 2019. http://dx.doi.org/10.1007/978-3-030-15409-7_15.

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Mamun, Quazi. "A Conceptual Framework of Personally Controlled Electronic Health Record (PCEHR) System to Enhance Security and Privacy." In Advances in Intelligent Systems and Computing, 304–14. Cham: Springer International Publishing, 2017. http://dx.doi.org/10.1007/978-3-319-67071-3_37.

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Conference papers on the topic "Electronic personal health record"

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Ved, Vishesh, Vivek Tyagi, Ankur Agarwal, and A. S. Pandya. "Personal Health Record System and Integration Techniques with Various Electronic Medical Record Systems." In 2011 IEEE 13th International Symposium on High-Assurance Systems Engineering (HASE). IEEE, 2011. http://dx.doi.org/10.1109/hase.2011.63.

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Yeong-Tae Song. "Empowering patient through personal healthcare system using interoperable electronic health record." In 2015 IEEE/ACIS 16th International Conference on Software Engineering, Artificial Intelligence, Networking and Parallel/Distributed Computing (SNPD). IEEE, 2015. http://dx.doi.org/10.1109/snpd.2015.7176168.

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K` Simon, Sternly, Kalaiarasi Sonai Muthu Anbananthen, and Seldon Lee. "A Ubiquitous Personal Health Record (uPHR) Framework." In 2013 International Conference on Advanced Computer Science and Electronics Information. Paris, France: Atlantis Press, 2013. http://dx.doi.org/10.2991/icacsei.2013.105.

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Eung-Hun Kim and Yongmin Kim. "Digital divide: Use of electronic personal health record by different population groups." In 2010 32nd Annual International Conference of the IEEE Engineering in Medicine and Biology Society (EMBC 2010). IEEE, 2010. http://dx.doi.org/10.1109/iembs.2010.5626732.

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Rybynok, V. O., P. A. Kyriacou, J. Binnersley, and A. Woodcock. "Development of a personal electronic health record card in the United Kingdom." In 2010 32nd Annual International Conference of the IEEE Engineering in Medicine and Biology Society (EMBC 2010). IEEE, 2010. http://dx.doi.org/10.1109/iembs.2010.5626004.

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Raska, Paola, Katherine Schneider, Jordan Zivoder, Scott Steele, and Jame Abraham. "Abstract C02: Electronic personal health records, minorities and prevention." In Abstracts: Ninth AACR Conference on the Science of Cancer Health Disparities in Racial/Ethnic Minorities and the Medically Underserved; September 25-28, 2016; Fort Lauderdale, FL. American Association for Cancer Research, 2017. http://dx.doi.org/10.1158/1538-7755.disp16-c02.

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Kadhim, Dua Abdulrazak, Sarfraz Iqbal, and Päivi Jokela. "Electronic Health Records: Non-Swedish Speaking Refugee’s Perspective." In The 18th international symposium on health information management research. Linnaeus University Press, 2022. http://dx.doi.org/10.15626/ishimr.2020.16.

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Electronic health record (EHR) is a ubiquitous e-health tool that includes both Electronic Medical Record (EMR) and personal health record (PHR). EHR is aimed to be a versatile digital tool that can benefit both caregivers and patients through Quick and easy access to medical information at any time from hospitals or primary care. However, the fact that the bulk of core records, including self-service data for patients, is only available in Swedish may limit the scope, availability and feasibility of self service through EHRs access for refugee patients who are non-Swedish speakers. Research results suggest that the EHRs should be meaningful, modified, and improved based on patient’s needs, by actively involving patients in their healthcare. The issues such as EHRs an information sharing communication System, lack of Information about using EHR, language barrier a hinderance in using EHR, EHRs as medical recommendation system, better instructions about EHRs, presenting medical information in diagnosis part in EHRs in other languages and presenting medical information in diagnosis part in EHRs by sound are very important to address non-Swedish speaking refugee patients’ needs to use EHRs.
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Daglish, David, and Norm Archer. "Electronic Personal Health Record Systems: A Brief Review of Privacy, Security, and Architectural Issues." In 2009 World Congress on Privacy, Security, Trust and the Management of e-Business (CONGRESS). IEEE, 2009. http://dx.doi.org/10.1109/congress.2009.14.

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Andrews, Lynda, Tony Sahama, and Randike Gajanayake. "Contextualising co-creation of value in electronic personal health records." In 2014 IEEE 16th International Conference on e-Health Networking, Applications and Services (Healthcom 2014). IEEE, 2014. http://dx.doi.org/10.1109/healthcom.2014.7001872.

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Izaara, Ambrose Atuheire, Richard Ssembatya, and Fred Kaggwa. "An Access Control Framework for Protecting Personal Electronic Health Records." In 2018 International Conference on Intelligent and Innovative Computing Applications (ICONIC). IEEE, 2018. http://dx.doi.org/10.1109/iconic.2018.8601287.

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Reports on the topic "Electronic personal health record"

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Gillen, Emily, Olivia Berzin, Adam Vincent, and Doug Johnston. Certified Electronic Health Record Technology Under the Quality Payment Program. RTI Press, January 2018. http://dx.doi.org/10.3768/rtipress.2018.pb.0014.1801.

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The 2016 Quality Payment Program (QPP) is a Medicare reimbursement reform designed to incentivize value-based care over volume-based care. A core tenet of the QPP is integrated utilization of certified electronic health record technology (CEHRT). Adopting and implementing CEHRT is a resource-intensive process, requiring both financial capital and human capital (in the form of knowledge and time). Adoption can be especially challenging for small or rural practices that may not have access to such capital. In this issue brief, we discuss the role of CEHRT in the QPP and offer policy recommendations to help small and rural practices improve their health information technology (IT) capabilities with regards to participation in value-based care. The QPP requires practices to have health IT capabilities, both as a requirement for a complete performance score and to facilitate reporting. Practices that are unable to implement CEHRT will have difficulty complying with the new reimbursement system, and will likely incur financial losses. We recommend monetary support and staff training to small and rural practices for the adoption of CEHRT, and we recommend assistance to help practices comply with the requirements of the QPP and coordinate with other small and rural practices for reporting purposes.
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Schumacher, Robert M., and Svetlana Z. Lowry. Customizzed common industry format template for electronic health record usability testing. Gaithersburg, MD: National Institute of Standards and Technology, 2010. http://dx.doi.org/10.6028/nist.ir.7742.

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Hubbard, Rebecca A., Yong Chen, Jinbo Chen, Joanna Harton, Grace Choi, Arman Oganisian, Jing Huang, et al. Developing Statistical Methods for Estimating Phenotypes Using Electronic Health Record Data. Patient-Centered Outcomes Research Institute (PCORI), March 2021. http://dx.doi.org/10.25302/03.2021.me.151132666.

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Shepherd, Bryan_, and Pamela Shaw. New Methods to Improve Data Accuracy in Studies Using Electronic Health Record Data. Patient-Centered Outcomes Research Institute® (PCORI), August 2022. http://dx.doi.org/10.25302/08.2022.me.160936207.

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Dunn, Michael A., and Melissa Saul. Framework for Smart Electronic Health Record-Linked Predictive Models to Optimize Care for Complex Digestive Diseases. Fort Belvoir, VA: Defense Technical Information Center, July 2014. http://dx.doi.org/10.21236/ada608042.

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Veerappan, Ganesh. Framework for Smart Electronic Health Record - Linked Predictive Models to Optimize Care for Complex Digestive Diseases. Fort Belvoir, VA: Defense Technical Information Center, June 2012. http://dx.doi.org/10.21236/ada568058.

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Betteridge, John D. Framework for Smart Electronic Health Record- Linked Predictive Models to Optimize Care for Complex Digestive Diseases. Fort Belvoir, VA: Defense Technical Information Center, August 2013. http://dx.doi.org/10.21236/ada588419.

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Dunn, Michael A., and Melissa Saul. Framework for Smart Electronic Health Record-Linked Predictive Models to Optimize Care for Complex Digestive Diseases. Fort Belvoir, VA: Defense Technical Information Center, June 2013. http://dx.doi.org/10.21236/ada601336.

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Betteridge, John D. Framework for Smart Electronic Health Record- Linked Predictive Models to Optimize Care for Complex Digestive Diseases. Fort Belvoir, VA: Defense Technical Information Center, March 2015. http://dx.doi.org/10.21236/ada614941.

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Lowry, Svetlana Z., Mala Ramaiah, Emily S. Patterson, Latkany A. Paul, Debora Simmons, David Brick, and Michael C. Gibbons. Electronic Health Record Design Considerations in Responding to Incidences of Highly Infectious Diseases: Clinical Workflows and Exception Handling. National Institute of Standards and Technology, December 2015. http://dx.doi.org/10.6028/nist.ir.8095.

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