Journal articles on the topic 'Dementia support'
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Raz, Limor, Janice Knoefel, and Kiran Bhaskar. "The neuropathology and cerebrovascular mechanisms of dementia." Journal of Cerebral Blood Flow & Metabolism 36, no. 1 (July 15, 2015): 172–86. http://dx.doi.org/10.1038/jcbfm.2015.164.
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The prevalence of dementia is increasing in our aging population at an alarming rate. Because of the heterogeneity of clinical presentation and complexity of disease neuropathology, dementia classifications remain controversial. Recently, the National Plan to address Alzheimer’s Disease prioritized Alzheimer’s disease-related dementias to include: Alzheimer’s disease, dementia with Lewy bodies, frontotemporal dementia, vascular dementia, and mixed dementias. While each of these dementing conditions has their unique pathologic signature, one common etiology shared among all these conditions is cerebrovascular dysfunction at some point during the disease process. The goal of this comprehensive review is to summarize the current findings in the field and address the important contributions of cerebrovascular, physiologic, and cellular alterations to cognitive impairment in these human dementias. Specifically, evidence will be presented in support of small-vessel disease as an underlying neuropathologic hallmark of various dementias, while controversial findings will also be highlighted. Finally, the molecular mechanisms shared among all dementia types including hypoxia, oxidative stress, mitochondrial bioenergetics, neuroinflammation, neurodegeneration, and blood–brain barrier permeability responsible for disease etiology and progression will be discussed.
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Sturdy, Deborah. "Expert support for dementia." Nursing Older People 22, no. 4 (April 29, 2010): 9. http://dx.doi.org/10.7748/nop.22.4.9.s11.
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Wenger, G. Clare. "Support networks and dementia." International Journal of Geriatric Psychiatry 9, no. 3 (March 1994): 181–94. http://dx.doi.org/10.1002/gps.930090303.
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Kotecha, Anish, and Kerry Phelps. "Support for people with dementia." InnovAiT: Education and inspiration for general practice 12, no. 12 (September 19, 2019): 706–12. http://dx.doi.org/10.1177/1755738019875167.
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Dementia costs the UK economy over £26.3 billion a year. Although dementia is a progressive and often terminal condition, people typically survive for many years after diagnosis. People affected by dementia and their families can struggle in understanding the changes that occur in daily living and will often turn to their GPs for support. This article outlines the problems that people with dementia can face and the organisations and other sources of support that can help right from the outset.
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Hunt, Neil. "Support for People with Dementia." InnovAiT: Education and inspiration for general practice 2, no. 4 (April 2009): 245–49. http://dx.doi.org/10.1093/innovait/inp023.
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Dementia is a progressive and eventually terminal condition, but with early intervention and the right support, people with dementia can continue to enjoy a good quality of life for many years. Living with dementia can be challenging both for those affected and their families as it can affect all aspects of daily life. It is vital that people with dementia and their carers are signposted to the support services that can help them take control of their condition and help them remain active and independent.
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STERN, YAAKOV, MING-XIN TANG, DIANE M. JACOBS, MARY SANO, KAREN MARDER, KAREN BELL, GEORGE DOONEIEF, PETER SCHOFIELD, and LUCIEN CÔTÉ. "Prospective comparative study of the evolution of probable Alzheimer's disease and Parkinson's disease dementia." Journal of the International Neuropsychological Society 4, no. 3 (May 1998): 279–84. http://dx.doi.org/10.1017/s1355617798002793.
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No previous comparison of test performance in probable Alzheimer's disease (pAD) and Parkinson's disease (PD) dementia has provided information about potential differences in the dementing process. This study compared the evolution of cognitive changes associated with these dementias. Generalized estimating equations (GEE) applied to regression analyses with repeated measures were used to evaluate cognitive changes over 1 to 3 years prior to the point when dementia was diagnosed in 40 matched pairs of patients with incident pAD and PD dementia. Both groups' performance declined on the Short Blessed, Selective Reminding Test (SRT; total recall, long-term retrieval, and delayed recall), Boston Naming Test, Category Fluency, and Similarities. The decline on naming and SRT delayed recall was more rapid in the PD dementia group, suggesting that these performance deficits emerge earlier in the development of pAD. The PD dementia group performed worse on Category Fluency throughout the follow-up period, suggesting either that dementia is overlaid on this preexisting performance deficit or that this type of executive deficit is an early manifestation of dementia in PD. The pAD group performed more poorly throughout the follow-up period on SRT delayed recognition, consistent with a pAD-specific encoding deficit. We conclude that while pAD and PD dementia are similar in many respects, differences in their evolution support previous observation of unique features in the 2 dementias and suggest different underlying pathologies. (JINS, 1998, 4, 279–284.)
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Andersen, Stacy L., Walter Boot, and Jeffrey Kaye. "HARNESSING TECHNOLOGY TO SUPPORT PERSONS WITH DEMENTIA AND THEIR CAREGIVERS." Innovation in Aging 3, Supplement_1 (November 2019): S389. http://dx.doi.org/10.1093/geroni/igz038.1429.
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Abstract One in eight older adults in the US has Alzheimer’s disease or a related dementia, which are characterized by progressive cognitive and physical declines. The impact of dementia also goes beyond the individual since 92% of persons with dementia receive functional and emotional support from family members and other informal caregivers. The time demands, financial strain, and emotional toll of caregiving are known to cause increased stress and health problems. Therefore, there is a wealth of opportunities to develop new ways to intervene in the progressive loss of function among persons with dementia and ways to support them and their caregivers. Co-sponsored by the Alzheimer’s Disease and Related Dementias and Technology and Aging Interest Groups, this symposium addresses innovations in the implementation of new and existing technologies in the dementia care continuum. We will discuss the development and testing of a new mobile application designed to integrate both physical activity and cognitive training. Then we will discuss results from a virtual support group intervention to provide disease education, care planning, and emotional and social support among persons newly diagnosed with Alzheimer’s disease and living alone. Next we will share results from a study using customized voice-assisted technologies to enable individuals with memory impairment to maintain independence and quality of life and reduce caregiver burden. Finally, we will present findings regarding the validity and accuracy of a wearable sensor-based device that measures skin conductivity and heart rate variability to monitor stress level among caregivers of persons with dementia.
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Kim, So Yoon, and Seonghee Jeong. "The Effects of a Support Program for Family Caregivers of Elderly with Dementia on Empowerment and Attitudes toward Dementia." Journal of Korean Academic Society of Nursing Education 25, no. 1 (February 28, 2019): 103–14. http://dx.doi.org/10.5977/jkasne.2019.25.1.103.
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Purpose: This research was conducted to identify the effects of providing support programs to families of elderly with dementia on family empowerment and attitudes toward dementia. Methods: A nonequivalent control group pre- and post-test design was used. Participants were 49 family caregivers, experimental (24) and control (25), recruited from families through a dementia support center in Y district. This program implemented Haearim, a support program for family caregivers of demented elders developed by the National Institute of Dementia in 2016. Outcome measures were empowerment and attitudes toward to dementia. Data were analyzed with a ${chi}^2-test$, independent t-test, Fisher's exact probability test, paired t-test, and repeated measures ANOVA with SPSS/PC version 20.0. Results: Family empowerment (F=6.84, p=.002) and family caregivers' attitudes (F=16.48, p<.001) toward dementia in the experimental group improved significantly more than that of the control group after intervention. Conclusion: Results indicate that support programs for families of elderly with dementia are effective in positively changing empowerment and attitudes toward dementia among family caregivers.
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Kurniasih, Uun, Nuniek Tri Wahyuni, Heni Fa'riatul Aeni, Suzana Indra Giri, and Affah Fuadah. "HUBUNGAN DUKUNGAN KELUARGA DENGAN DEMENSIA PADA LANSIA." Jurnal Kesehatan 12, no. 2 (December 12, 2021): 102–9. http://dx.doi.org/10.38165/jk.v12i2.253.
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Penyakit demensia sering ditemukan pada lansia hal ini berkaitan dengan bertambahnya usia yang semakin tua. Kejadian demensia pada lansia di Puskesmas Plumbon tahun 2020 paling tinggi yaitu sebesar 37,5%. Penelitian ini bertujuan untuk mengetahui hubungan dukungan keluarga pada pasien lansia dengan demensia. Jenis penelitiannya yaitu penelitian kuantitatif dengan desain cross sectional. Sampel dalam penelitian ini yaitu lansia yang berkunjung ke Posbindu Wilayah Kerja Puskesmas Plumbon Kabupaten Indramayu pada bulan Maret 2020 sebanyak 63 orang dengan teknik purposive sampling. Pengumpulan datanya menggunaan kuesioner dengan teknik wawancara. Analisis data menggunakan uji statistik chi square Hasil penelitian menunjukkan bahwa ada hubungan signifikan antara dukungan keluarga pada pasien lansia dengan demensia di Posbindu Wilayah Kerja Puskesmas Plumbon Indramayu Kabupaten Indramayu tahun 2020 dengan p value = 0,017. Petugas kesehatan agar meningkatkan kegiatan penyuluhan kepada keluarga tentang pentingnya memberikan dukungan kepada lansia yang mengalami demensia baik moril maupun materil, mengoptimalkan kegiatan posbindu dengan kegiatan-kegiatan untuk lansia seperti senam lansia, pengobatan, dan juga pemberian informasi kepada lansia mengenai demensia dan cara penanganannya.Kata Kunci: Dukungan Keluarga, Demensia, Lansia AbstractDementia disease is often found in the elderly, this is related to increasing age. The incidence of dementia in the elderly at the Plumbon Health Center in 2020 was the highest at 37.5%. This study aims to determine the relationship of family support in elderly patients with dementia. The type of research is a quantitative study with a cross sectional design . The sample in this study was the elderly who visited the Posbindu in the Plumbon Health Center Work Area, Indramayu Regency in March 2020 as many as 63 people with purposive sampling technique. Collecting data using a questionnaire with interview techniques . Analysis of the data using the chi square statistical test. The results showed that there was a significant relationship between family support for elderly patients with dementia in Posbindu, Plumbon Indramayu Health Center Work Area, Indramayu Regency in 2020 with p value = 0.017. Health workers should increase outreach activities to families about the importance of providing support to the elderly with dementia both morally and materially, optimizing posbindu activities with activities for the elderly such as elderly gymnastics, treatment, and also providing information to the elderly about dementia and how to handle it.Keywords: Family Support, Dementia, Elderly
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Liu, Noreena, Gary Wills, and Ashok Ranchhod. "Support dementia carers in game." EAI Endorsed Transactions on Game-Based Learning 5, no. 16 (September 13, 2018): 155086. http://dx.doi.org/10.4108/eai.13-7-2018.155086.
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Levin, Kate Ann, Stephen Lithgow, Martine Miller, and Jill Carson. "Post-diagnostic support for dementia." Health Education 118, no. 4 (June 4, 2018): 320–38. http://dx.doi.org/10.1108/he-08-2017-0042.
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Purpose The purpose of this paper is to examine three interpretations of post-diagnostic support (PDS) for dementia, to understand how best to support people recently diagnosed with dementia. Design/methodology/approach A sequential mixed-method approach was used which included analysis of the data collected by each sector, a focus group and interviews with PDS linkworkers and other staff. Findings All three sectors used a mix of supported self-management workshops and one-to-one PDS, however sectors varied by linkworker’s affiliation, caseload management and client group. Caseload varied greatly between sectors. Stage of disease and socioeconomic make-up of the local population were raised as factors determining the form of PDS offered. Some pillars appeared to be more easily achieved than others. There was a general agreement among all staff that “caseload” was misleading and that a measurement of workload would be preferable. Agile/mobile working was preferred by linkworkers. Even within teams there was variation in perceptions of PDS; some felt the linkworker role to be one of signposting, while others felt more involved with their client group, and for longer than 12 months. Practical implications Guidance at the outset of the PDS programme was sparse. The findings of this study should inform future development of the PDS model and a supporting guidance framework. Originality/value There is a growing interest in PDS for dementia. However, little is known about what a model of PDS should look like. This study attempts to capture the most important aspects of PDS delivery.
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Han, Ji Won, Hyeon Jeong, Jae Young Park, Tae Hui Kim, Dong Young Lee, Dong Woo Lee, Seung-Ho Ryu, et al. "Effects of social supports on burden in caregivers of people with dementia." International Psychogeriatrics 26, no. 10 (July 9, 2014): 1639–48. http://dx.doi.org/10.1017/s1041610214001331.
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ABSTRACTBackground:Social support programs for dementia caregivers were widely used in order to reduce care burden. We investigated which types of social supports can reduce psychological and non-psychological burdens of dementia caregivers, and explored the mechanism of those social supports.Methods:We evaluated 731 community-dwelling dementia patients and their caregivers from the National Survey of Dementia Care in South Korea. We investigated the five types of social supports (emotional support, informational support, tangible support, positive social interaction, affectionate support) using the Medical Outcomes Study Social Support Survey in each caregiver. The mechanisms of specific types of social support on psychological/non-psychological burden were examined using path analysis.Results:Positive social interaction and affectionate support reduced psychological burden via direct and indirect paths. Tangible support reduced the non-psychological burden via direct and indirect paths. Informational support and emotional support were not helpful for reducing psychological or non-psychological burden. A maximum of 20% of psychological burden could be relieved by positive social interaction and 10.3% of that could be reduced by affectionate support. Tangible support was associated with a 15.1% maximal improvement in non-psychological burden.Conclusions:In order to reduce caregiver burden in dementia effectively, psychosocial interventions should be tailored to target type of caregiver burden.
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Alty, Jane, Maree Farrow, and Katherine Lawler. "Exercise and dementia prevention." Practical Neurology 20, no. 3 (January 21, 2020): 234–40. http://dx.doi.org/10.1136/practneurol-2019-002335.
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Ageing, genetic, medical and lifestyle factors contribute to the risk of Alzheimer’s disease and other dementias. Around a third of dementia cases are attributable to modifiable risk factors such as physical inactivity, smoking and hypertension. With the rising prevalence and lack of neuroprotective drugs, there is renewed focus on dementia prevention strategies across the lifespan. Neurologists encounter many people with risk factors for dementia and are frequently asked whether lifestyle changes may help. Exercise has emerged as a key intervention for influencing cognition positively, including reducing the risk of age-related cognitive decline and dementia. This article focuses on the current evidence for physical inactivity as a modifiable dementia risk factor and aims to support neurologists when discussing risk reduction.
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Chertkow, H., H. Bergman, H. M. Schipper, A. M. Clarfield, S. Gauthier, S. Fontaine, and R. Bouchard. "Assessment of Suspected Dementia." Canadian Journal of Neurological Sciences / Journal Canadien des Sciences Neurologiques 28, S1 (May 2001): S28—S41. http://dx.doi.org/10.1017/s0317167100001189.
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At the Second Canadian Consensus Conference on Dementia (CCCD) (February, 1998), a group of neurologists, geriatricians, and psychiatrists met to consider guidelines for evaluation of dementia in Canada. This review paper formed a background paper for their discussion of dementia diagnosis. These experts from across the country concluded that diagnosis of suspected dementia cases continued to rest on skilled clinical assessment. Mental status exam, preferably in some quantifiable form, has become an essential part of the assessment. Selected laboratory tests are advisable in all cases (CBC, TSH, electrolytes, calcium, and glucose), but the CCCD continued to advise that CT scanning was mandatory only in selected cases where clinical findings pointed to another possibility besides Alzheimer’s disease. The growing list of other diagnostic measures with potential usefulness in diagnosis of Alzheimer’s disease or dementia in general was reviewed, but the evidence was judged as insufficient to support routine use of these tests by physicians. As new treatments for Alzheimer’s disease become available, neurologists face new diagnostic challenges - differentiating Mild Cognitive Impairment, Frontotemporal dementias and Mixed dementias, and Lewy Body Dementia. Guidelines to aid in differential diagnosis are presented.
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Finkel, Sanford I. "New Focus on Behavioral and Psychological Signs and Symptoms of Dementia." International Psychogeriatrics 8, S3 (May 1997): 215–16. http://dx.doi.org/10.1017/s1041610297003360.
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The conceptualization of an international consensus conference for the purpose of beginning to establish an operational definition for “behavioral disturbances of dementia” was born at the 7th International Psychogeriatric Association (IPA) Congress in Sydney, Australia, in November 1995. At that time, a special symposium on “research methodological issues in evaluating behavioral disorders of dementia” took place. From the high level of interest and attendance, it was clear that this matter was a source of great attention and concern by clinicians and researchers working with demented elderly. Although we have been aware that patients with dementias, including Alzheimer's disease (AD), manifest psychotic, depressive, and behavioral symptoms over the course of the illness, such symptoms until recently have elicited little interest or research support. Further, research was hampered by the absence of viable measurements and scales developed for this specific population. In addition, rigorous clinical trials were rare and virtually nonexistent in those with moderate and advanced dementias. Prior to 1992, only seven randomly assigned, double-blind trials in this population had been published, only one in a nursing home setting.
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Killen, Alison. "Psychosocial support for people with dementia with Lewy bodies." Nursing and Residential Care 23, no. 5 (May 2, 2021): 1–8. http://dx.doi.org/10.12968/nrec.2021.23.5.3.
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Background Lewy body dementia is the second most common form of age-related neurodegenerative dementia. It has two forms: dementia with Lewy bodies and Parkinson's disease dementia. Methods There are specific core symptoms associated with dementia with Lewy bodies. Optimum care requires awareness of the features associated with these, as well as appropriate support and management strategies, which are provided in this article. Results The core features of dementia with Lewy bodies are visual hallucinations, cognitive fluctuations, Parkinsonism and rapid eye movement sleep behaviour disorder. Appropriate psychosocial strategies includes psychoeducation, social support and environmental modification. Adoption of these approaches can reduce adverse outcomes. Conclusions The core features of dementia with Lewy bodies can significantly impair quality of life. Nursing and residential care staff are ideally placed to address this through the implementation of psychosocial strategies both directly, and through the provision of psychoeducation for family caregivers.
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Rote, S. M., J. L. Angel, and M. P. Aranda. "DEMENTIA SUPPORT IN THE LATINO POPULATION." Innovation in Aging 2, suppl_1 (November 1, 2018): 215–16. http://dx.doi.org/10.1093/geroni/igy023.793.
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Zachos, Konstantinos, Neil Maiden, Kristine Pitts, Sara Jones, Ian Turner, Malcolm Rose, Kevin Pudney, and Julie MacManus. "Digital creativity in dementia care support." International Journal of Creative Computing 1, no. 1 (2013): 35. http://dx.doi.org/10.1504/ijcrc.2013.056924.
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Sullivan, Michele G. "Caregiver-Support Program Decreased Dementia Emergencies." Caring for the Ages 14, no. 10 (October 2013): 4. http://dx.doi.org/10.1016/j.carage.2013.09.005.
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Tam, Mallorie T., Jill A. Dosso, and Julie M. Robillard. "Community and Provider Evaluation of a Canadian Dementia Support Services Program." Canadian Geriatrics Journal 25, no. 2 (June 1, 2022): 162–70. http://dx.doi.org/10.5770/cgj.25.548.
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BackgroundCommunity programs and services dedicated to support those living with dementia and care partners can improve their qual-ity of life. In close collaboration with the Alzheimer Society of British Columbia, we evaluated the First Link® dementia support services, aiming to identify key strengths and areas of improvements to inform the services offered. MethodsA survey instrument was developed and distributed to people living with dementia, care partners, and health-care providers. ResultsA total of 1,123 surveys were analyzed. Overall, respondents were satisfied with First Link dementia support services. Key strengths of the program included providing information and education for their clients to learn more about dementia and other resources in the community. Areas for improvement that were identified as part of this evaluation included additional supports for participants’ mental health and well-being in terms of reducing stress, burden and isolation. Findings uncov-ered discrepancies in the way people living with dementia, care partners, and health-care providers view the effectiveness of the First Link dementia support services. Conclusion An evaluation of programs and services for people living with dementia and their care partners can provide valuable insights about their experiences which can ensure that their needs are addressed.
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Ekström, Anna, Ulrika Ferm, and Christina Samuelsson. "Digital communication support and Alzheimer’s disease." Dementia 16, no. 6 (December 6, 2015): 711–31. http://dx.doi.org/10.1177/1471301215615456.
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Communication is one of the areas where people with dementia and their caregivers experience most challenges. The purpose of this study is to contribute to the understanding of possibilities and pitfalls of using personalized communication applications installed on tablet computers to support communication for people with dementia and their conversational partners. The study is based on video recordings of a woman, 52 years old, with Alzheimer’s disease interacting with her husband in their home. The couple was recorded interacting with and without a tablet computer including a personalized communication application. The results from the present study reveal both significant possibilities and potential difficulties in introducing a digital communication device to people with dementia and their conversational partners. For the woman in the present study, the amount of interactive actions and the number of communicative actions seem to increase with the use of the communication application. The results also indicate that problems associated with dementia are foregrounded in interaction where the tablet computer is used.
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Esser, Sally R., and Peter P. Vitaliano. "Depression, Dementia, and Social Supports." International Journal of Aging and Human Development 26, no. 4 (June 1988): 289–301. http://dx.doi.org/10.2190/ytt7-bkxp-u2pa-qqvb.
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Recent literature on the relationships among dementia, depression, and social support was reviewed, with particular emphasis on the diagnostic differentiation of dementia and depression, and the role of these three entities in elderly individuals with cognitive impairment. Dementia-like symptoms arising in depression and the coexistence of dementia and depression are discussed. Research is necessary to determine more objective criteria for depression and dementia, to provide cognitive and psychiatric testing for elderly individuals, to clarify the diagnostic or prognostic value of the term pseudodementia, and to further elucidate relationships between depression, dementia, and social support.
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Femiola, Clementine, and Mary Tilki. "Dementia peer support: service delivery for the people, by the people." Working with Older People 21, no. 4 (December 11, 2017): 243–50. http://dx.doi.org/10.1108/wwop-08-2017-0020.
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Purpose The purpose of this paper is to describe a community-based peer support project in the London borough of Brent, led by people living with dementia for people living with dementia. Design/methodology/approach The Brent Dementia Peer Support Project is a collaboration between a social movement Community Action on Dementia Brent, Brent CCG, Brent Council, third-sector organisations and faith communities. Findings Stakeholder workshops, ethnographic research highlighted the need to support people living with dementia, especially by people who understand that experience. The findings also demonstrated the abilities and skills retained by people living with dementia, their wish to help others to contribute and to remain connected with their communities. Research limitations/implications This is an account of one pilot project in a London borough, but is broadly applicable elsewhere. Further research is needed into the values and practicalities of peer support by and for people living with dementia. Practical implications People with dementia and their carers lack accessible information and empathetic support to cope with the condition and live independently. This can be offered through dementia peer support services. Social implications There are growing numbers of people living with dementia who are motivated to share their knowledge, skills and experiences to improve the lives of other people with dementia. Originality/value This paper describes how people with dementia can be enabled to design, inform and deliver support to other people with the condition.
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Lim, Kyung Choon. "Influencing Factors on Care Burden among Family Caregivers for Elders with Dementia: Focusing on Family Caregivers using a Support Center for Dementia." Journal of Korean Academic Society of Nursing Education 25, no. 1 (February 28, 2019): 136–47. http://dx.doi.org/10.5977/jkasne.2019.25.1.136.
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Purpose: This study aimed to explore influencing factors on care burden among family caregivers for elders with dementia living at home. Methods: Participants in this study were 211 family caregivers who were taking care of elders registered at a support center for dementia located in S-gu, Seoul. Data were collected using a structured questionnaire. Data were analyzed with descriptive statistics, t-test, ANOVA, Pearson correlation coefficients, and multiple regression in SPSS WIN 23.0. Results: The care burden of family caregivers was mild to moderate ($40.31{pm}21.50$) in this study. The factors influencing care burden among family caregivers for elders with dementia were the age, behavioral problems, and dependency in instrumental activities of daily living of demented elderly, in addition to the perceived health status and resting hours of family caregivers. Overall, these factors explained 46.5% of the total variability in care burden in this sample (F=13.01, p<.001). Conclusion: Findings from this study suggest that the characteristics of demented elderly and family caregivers can influence care burden differently. Individually tailored strategies based on the various caregiving contexts need to be developed to reduce the level of care burden among family caregivers for elders with dementia.
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Rowley, Claire, and Julia Cook. "Suspected dementia, the eye and the ‘mind’s eye’: How primary care eye specialists could support early identification of Alzheimer’s Disease and its variants." Neuropsychologist 1, no. 14 (October 2022): 8–17. http://dx.doi.org/10.53841/bpsneur.2022.1.14.8.
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The current article outlines the nature of visuoperceptual deficits in Alzheimer’s Disease (AD) and its ‘atypical’ variants. Evidence to highlight that visual and visuoperceptual difficulties are common in dementias driven by Alzheimer’s-based pathology will be discussed. Following this, the ways in which early identification of visual and lower-level visuoperceptual symptoms of dementia may be facilitated within primary care optical health settings will be considered. It is hoped that this may inspire work to support opticians and optometrists to identify where timely signposting to dementia services may be beneficial for people with suspected dementia who are experiencing visuoperceptual deficits. This is particularly important given that visual and visuoperceptual deficits can be early signs of dementia and often have a significant impact on activities of daily living (e.g. dressing, increased falls risk, accidents whilst driving, difficulties navigating familiar environments; Tippett et al., 2019). An illustrative case example is provided, outlining how timely detection of suspected dementia could have enabled early provision of appropriate treatment and support to enhance quality of life (e.g. medication for symptom management, provision of cognitive strategies and functional aids; Armstrong & Kergoat, 2015).
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McHale, Cathy, Martina McGovern, Josephine Dewergifosse, Maria Domsa, Anna McMahon, Fergus Timmons, Julei Greene, et al. "330 Insights into Dementia- An Integrated Care Approach to Family Support." Age and Ageing 48, Supplement_3 (September 2019): iii17—iii65. http://dx.doi.org/10.1093/ageing/afz103.213.
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Abstract Background The increase in the number of people with dementia in the coming years will be significant and could be as high as 132,000 people by 2041. There is a growing need for enhanced post diagnostic supports for patients living with dementia and their families. We identified the need for a localised educational resource for families and supportive others attending our specialist memory service Methods Staff from the Integrated Care Team, Specialist Memory Service and Primary Care were trained by the Alzheimer’s Society of Ireland to deliver a 6 week ‘Insights Into Dementia’ carers course. Tutors and dementia advisors from the Alzheimer’s Society of Ireland provided in-depth training prior to course delivery and feedback to the facilitators on a weekly basis. The course included advice and education on Dementia; Changing Relationships, Communication; Responding to changes in behaviour; Nutrition; Engaging in activities; Assisting with personal care and Safety in the home. Families gained advice regarding their self-care needs and learned how to access information and support. All services involved worked together to identify, refer and support families with dementia in the local area. The group took place in an accessible location at a time which accommodated families to attend. Each course attendee completed a questionnaire prior to and after commencing the group. Results The group has delivered education and support to 48 families to date. Feedback from participants was very positive with self-reported increase in confidence, knowledge and awareness about dementia. Waiting time to access support has significantly decreased. Every course has led to a support group who meet up on a regular basis in their community. Conclusion This novel collaboration has become a key part of the integrated care pathway we have developed to support people living with dementia and their supportive others in our catchment area. The Integrated Care approach has served to enrich the programme and allow for timely signposting to localised supports.
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Hollister, Brooke, Jarmin Yeh, Leslie Ross, Jennifer Schlesinger, and Debra Cherry. "Building a Model of Advocacy: Improving the Dementia Capability of Managed Care Health Plans in California." Innovation in Aging 5, Supplement_1 (December 1, 2021): 16–17. http://dx.doi.org/10.1093/geroni/igab046.059.
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Abstract Given the growing prevalence of Alzheimer’s Disease and related dementias, and the intensity of this population’s care needs, it is imperative that health plans (HPs) increase their dementia-capability. The Dementia Cal MediConnect (Dementia CMC) project proposes an innovative model of health care advocacy that can create dementia-capable systems change. The Dementia CMC project was a partnership (2013 – 2018) between local Alzheimer’s organizations and ten managed care HPs in California. It used the following model of health care advocacy: 1) Identify dementia-capable best practices to set as systems change indicators; 2) Identify and leverage public policies in support of systems change indicators; 3) Identify and engage champions; 4) Develop and advocate for a value and business case to improve dementia care; 5) Identify gaps in dementia-capable practices; 6) Provide technical assistance, tools, and staff training to address the gaps in dementia-capable practices; and 7) Track systems change. Systems change data was collected through participant observation with HPs and interviews with key informants. HPs reported making systems changes toward more dementia-capable practices such as: better pathways for identification and diagnosis; better identification, assessment, support, and engagement of caregivers; and improved systems of referral to Alzheimer’s organizations. Some indicators of systems change were inconclusive as a result of variability in HP practices and the lack of common record systems between HPs and providers. The application of this advocacy model has led to systems changes that can be replicated to improve care for people living with dementia and their caregivers.
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Mikhaylova, N. M. "Old Age Dementia: Clinical Patterns of Progression. Part 1." Psikhiatriya 18, no. 3 (September 20, 2020): 108–20. http://dx.doi.org/10.30629/2618-6667-2020-18-3-108-120.
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Background: the clinical experience testifies to the fact, that the increase of dementia severity in late age occurs quickly in some cases and in others it proceeds slowly, which is reflected in the total duration of the disease and survival. One of the aspects of dementias research is the study of significant differences in dementia progression rates.The objective of the review was to generalize the obtained data on progression rates of late age dementias of various genesis, first of all due to Alzheimer’s disease and its associated disorders.Material and methods: papers in MedLine/PubMed bases from1990 to 2020 were selected and analyzed according to the key words: “old age”, “dementia”, “Alzheimer’s disease”, “vascular dementia”, “progression”, “progression rate”, “disease trajectories”, as well as relevant papers in the references of the analyzed works.Conclusion: the history of research of old age dementias natural course was presented in the review of scientific publications. According to the results of development of progression rates detection methods, singling out of dementias with rapid and slow increase in the severity of cognitive decline was substantiated. Works devoted to the study of frequency and nosological belonging of dementias with different progression rates were considered. In the most recent studies prognostic models with detection of various trajectories of the course of the disease were developed. The concept of various dementias progression rates admittedly has practical meaning for provision of diagnostic and treatment assistance and planning of medical and social support measures for patients with dementia and their families. Differentiation of dementia progression clinical patterns during formation of comparable groups of patients seems appropriate for investigation of new therapy methods, as well as in clinical-biological studies of pathogenesis.
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Brucki, Sonia Maria Dozzi, Ivan Aprahamian, Wyllians Vendramini Borelli, Victor Calil da Silveira, Ceres Eloah de Lucena Ferretti, Jerusa Smid, Breno José Alencar Pires Barbosa, et al. "Management in severe dementia: recommendations of the Scientific Department of Cognitive Neurology and Aging of the Brazilian Academy of Neurology." Dementia & Neuropsychologia 16, no. 3 suppl 1 (September 2022): 101–20. http://dx.doi.org/10.1590/1980-5764-dn-2022-s107en.
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ABSTRACT Alzheimer’s disease (AD) and other neurodegenerative dementias have a progressive course, impairing cognition, functional capacity, and behavior. Most studies have focused on AD. Severe dementia is associated with increased age, higher morbidity-mortality, and rising costs of care. It is fundamental to recognize that severe dementia is the longest period of progression, with patients living for many years in this stage. It is the most heterogeneous phase in the process, with different abilities and life expectancies. This practice guideline focuses on severe dementia to improve management and care in this stage of dementia. As it is a long period in the continuum of dementia, clinical practice should consider non-pharmacological and pharmacological approaches. Multidisciplinary interventions (physical therapy, speech therapy, nutrition, nursing, and others) are essential, besides educational and support to caregivers.
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Orrell, Martin, Juanita Hoe, Georgina Charlesworth, Ian Russell, David Challis, Esme Moniz-Cook, Martin Knapp, et al. "Support at Home: Interventions to Enhance Life in Dementia (SHIELD) – evidence, development and evaluation of complex interventions." Programme Grants for Applied Research 5, no. 5 (February 2017): 1–184. http://dx.doi.org/10.3310/pgfar05050.
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BackgroundDementia is a national priority and this research addresses the Prime Minister’s commitment to dementia research as demonstrated by his 2020 challenge and the new UK Dementia Research Institute. In the UK > 800,000 older people have dementia. It has a major impact on the lives of people with dementia themselves, on the lives of their family carers and on services, and costs the nation £26B per year. Pharmacological cures for dementias such as Alzheimer’s disease are not expected before 2025. If no cure can be found, the ageing demographic will result in 2 million people living with dementia by 2050. People with dementia lose much more than just their memory and their daily living skills; they can also lose their independence, their dignity and status, their confidence and morale, and their roles both within the family and beyond. They can be seen as a burden by society, by their families and even by themselves, and may feel unable to contribute to society. This programme of research aims to find useful interventions to improve the quality of life of people with dementia and their carers, and to better understand how people with dementia can be supported at home and avoid being admitted to hospital.Objectives(1) To develop and evaluate the maintenance cognitive stimulation therapy (MCST) for people with dementia; (2) to develop the Carer Supporter Programme (CSP), and to evaluate the CSP and Remembering Yesterday, Caring Today (RYCT) for people with dementia both separately and together in comparison with usual care; and (3) to develop a home treatment package (HTP) for dementia, to field test the HTP in practice and to conduct an exploratory trial.Methods(1) The MCST programme was developed for people with dementia based on evidence and qualitative work. A randomised controlled trial (RCT) [with a pilot study of MCST plus acetylcholinesterase inhibitors (AChEIs)] compared MCST with cognitive stimulation therapy (CST) only. The MCST implementation study conducted a trial of outreach compared with usual care, and assessed implementation in practice. (2) The CSP was developed based on existing evidence and the engagement of carers of people with dementia. The RCT (with internal pilot) compared the CSP and reminiscence (RYCT), both separately and in combination, with usual care. (3) A HTP for dementia, including the most promising interventions and components, was developed by systematically reviewing the literature and qualitative studies including consensus approaches. The HTP for dementia was evaluated in practice by conducting in-depth field testing.Results(1) Continuing MCST improved quality of life and improved cognition for those taking AChEIs. It was also cost-effective. The CST implementation studies indicated that many staff will run CST groups following a 1-day training course, but that outreach support helps staff go on to run maintenance groups and may also improve staff sense of competence in dementia care. The study of CST in practice found no change in cognition or quality of life at 8-month follow-up. (2) The CSP/RYCT study found no benefits for family carers but improved quality of life for people with dementia. RYCT appeared beneficial for the quality of life of people with dementia but at an excessively high cost. (3) Case management for people with dementia reduces admissions to long-term care and reduces behavioural problems. In terms of managing crises, staff suggested more costly interventions, carers liked education and support, and people with dementia wanted family support, home adaptations and technology. The easy-to-use home treatment manual was feasible in practice to help staff working in crisis teams to prevent hospital admissions for people with dementia.LimitationsGiven constraints on time and funding, we were unable to compete the exploratory trial of the HTP package or to conduct an economic evaluation.Future researchTo improve the care of people with dementia experiencing crises, a large-scale clinical trial of the home treatment manual is needed.ConclusionThere is an urgent need for effective psychosocial interventions for dementia. MCST improved quality of life and was cost-effective, with benefits to cognition for those on AChEIs. MCST was feasible in practice. Both CSP and RYCT improved the quality of life of people with dementia, but the overall costs may be too high. The HTP was useful in practice but requires evaluation in a full trial. Dementia care research may improve the lives of millions of people across the world.Trial registrationsCurrent Controlled Trials ISRCTN26286067 (MCST), ISRCTN28793457 (MCST implementation) and ISRCTN37956201 (CSP/RYCT).FundingThis project was funded by the National Institute for Health Research (NIHR) Programme Grants for Applied Research programme and will be published in full inProgramme Grants for Applied Research; Vol. 5, No. 5. See the NIHR Journals Library website for further project information.
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Nickel, F., and PL Kolominsky-Rabas. "Pathways to Dementia Diagnosis and Post-Diagnostic Support: the Bavarian Dementia Survey." Value in Health 20, no. 9 (October 2017): A715. http://dx.doi.org/10.1016/j.jval.2017.08.1902.
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Lindauer, Allison, Katherine Wild, Andrew Natonson, Miriam Wolf, Nora Mattek, and Deborah Messecar. "USING ECHO TO SUPPORT DEMENTIA DIAGNOSIS IN THE PRIMARY CARE NETWORK." Innovation in Aging 3, Supplement_1 (November 2019): S895—S896. http://dx.doi.org/10.1093/geroni/igz038.3274.
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Abstract Approximately 60% of those with dementia do not carry a diagnosis, undermining patient participation in clinical trials and family access to support. Under-diagnosis is driven by lack of knowledge about dementia, stigma, clinician inexperience and therapeutic nihilism. To address clinician-based contributors to under-diagnosis, we developed and implemented “Dementia 360,” a telementoring program modeled on the ECHO (Extension for Community Health Outreach) framework. Remote participants (n=67) learned about the diagnostic process, pharmacological management, family support and dementia-related resources. The video-conference-based one-hour sessions occurred weekly over 2 months. Instruction was provided by a multi-disciplinary faculty team with extensive clinical experience. Didactic presentations were followed by case studies offered by participants. Physicians, nurses, psychologists and social workers from 40 organizations participated, of which 62% were from medically underserved rural clinics. Participants were administered pre- and post-program questionnaires about their level of confidence in assessing and treating individuals with memory loss and dementia-related behavioral symptoms. Of the 54 clinicians who completed pre-intervention confidence assessments, 30 completed post-assessment. The clinicians had significantly increased confidence in diagnosing and treating dementia and managing behavioral symptoms of dementia (p ranging from .0002 to .003). Qualitative feedback from focus groups was generally positive, for example, “Knowing the diagnosis criteria and steps to take to rule out other diagnoses will help me more accurately diagnose and rule out dementia for my patients.” Our findings suggest that delivering case-based education via ECHO has potential to increase clinician workforce confidence in diagnosing and managing dementia.
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Foss, Maria Paula, Celmira Lange, José Humberto Silva Filho, Fabiana Brunini, and Francisco A. Carvalho do Vale. "Support groups for caregivers of patients with Dementia: A comparative study." Dementia & Neuropsychologia 1, no. 2 (June 2007): 196–202. http://dx.doi.org/10.1590/s1980-57642008dn10200013.
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Abstract Since the dementias lead to the need for caregivers, a Group for Dementia Caregivers (GC) was set up where the present study compared the psychosocial characteristics, quality of life and caregiver overload in a Group For Dementia Caregivers (GC) with caregivers not involved in this scheme (non-GC). Methods: 19 primary caregivers counseled by this group (GC group) was studied and compared to a group of 13 caregivers not receiving such counseling (non-GC group). The instruments used were the World Health Organization Quality of Life (WHOQOL-bref), the State-Trait Anxiety Inventory (STAI) and Caregiver Load Scale (CLS). Results: The two groups did not differ in mean age or gender (P<0.05). GC caregivers had a higher educational level, were service workers where majority were the children of patients. In the Non-CG group, the most frequent occupation was housewife, with most subjects being spouses. The WHOQOL revealed a significant difference (p<0.05) between groups in the physical, social relations and environment domains (GC>Non-GC). The STAI revealed a significant difference (p<0.05) in the Trait subscale (GC>Non-GC), but not in the State subscale. There was no significant difference in CLS. Conclusion: The GC appeared to be of benefit to its participants, with probable positive repercussions on the patients, particularly regarding their quality of life.
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Aldridge, Zena, Emily Oliver, Hannah Gardener, and Karen Harrison Dening. "Admiral Nursing—A Model of Specialist Dementia Care in Acute Hospitals." SAGE Open Nursing 6 (January 2020): 237796082095267. http://dx.doi.org/10.1177/2377960820952677.
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Introduction The rising prevalence of dementia has led to increased numbers of people with dementia being admitted to acute hospitals. This demand is set to continue due to an increasingly older population who are likely to have higher levels of dependency, dementia, and comorbidity. If admitted to the hospital, people with dementia are at higher risk of poor outcomes during and following a hospital admission. Yet, there remains a significant lack of specialist support within acute hospitals to support people with dementia, their families and hospital staff. Methods Admiral Nurses are specialists that work with families affected by dementia and provide consultancy and support to health and social care colleagues to improve the delivery of evidenced based dementia care. Historically, Admiral Nurses have predominantly been based in community settings. In response to the increasing fragmentation of services across the dementia trajectory, the Admiral Nurse model is evolving and adapting to meet the complex needs of families impacted upon by dementia inclusive of acute hospital care. Results The Admiral Nurse acute hospital model provides specialist interventions which improve staff confidence and competence and enables positive change by improving skills and knowledge in the provision of person-centred dementia care. The role has the capacity to address some of the barriers to delivering person centred dementia care in the acute hospital and contribute to improvements across the hospital both as a result of direct interventions or influencing the practice of others. Conclusion Improving services for people with dementia and their families requires a whole system approach to enable care coordination and service integration, this must include acute hospital care. The increasing numbers of people with dementia in hospitals, and the detrimental effects of admission, make providing equitable, consistent, safe, quality care and support to people with dementia and their families a national priority requiring immediate investment. The inclusion of Admiral Nursing within acute hospital services supports service and quality improvement which positively impacts upon the experience and outcomes for families affected by dementia.
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Johansson, Alf, and Lars Gustafson. "Psychiatric Symptoms in Patients With Dementia Treated in a Psychogeriatric Day Hospital." International Psychogeriatrics 8, no. 4 (December 1996): 645–58. http://dx.doi.org/10.1017/s1041610296002955.
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Sixty-five consecutive patients with dementia, treated at a psychogeriatric day hospital, were studied regarding prevalence of psychiatric symptoms. The clinical diagnoses were dementia of the Alzheimer type (n = 19), vascular dementia (n = 27), mixed Alzheimer's disease and vascular dementia (n = 13), vascular dementia of frontal type (n = 2), and other diseases (n = 4). Mean age at referral was 75.6 ± 6.6 years and the average treatment time was 21 ± 14 months. About 90% of the patients showed one or several significant psychiatric symptoms during the course of dementia. Most common were delirious episodes, anxiety, sleep distrubances, and depressed mood. The relationship between clinical features and the type and duration of dementia was analyzed. Sleep disturbances and depressed mood often appeared early, whereas misidentification and delusions became more prevalent later in the course of dementia. The results indicate that the psychogeriatric day hospital may offer effective and flexible care and support to demented persons living at home.
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Shioji, Naoko, Miyoji Aiba, Hiroshi Tsuda, and Hiroshi Isonuma. "Study of discharge support in dementia cases." Nippon Ronen Igakkai Zasshi. Japanese Journal of Geriatrics 47, no. 3 (2010): 250–56. http://dx.doi.org/10.3143/geriatrics.47.250.
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LeNavenec, Caroline. "Victims of Dementia: Services, Support, and Care." Journal of Gerontological Nursing 21, no. 4 (April 1, 1995): 51. http://dx.doi.org/10.3928/0098-9134-19950401-21.
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Steffen, Ann M., and Kristin R. Mangum. "Predicting Attendance at Dementia Family Support Groups." American Journal of Alzheimer's Disease & Other Dementiasr 27, no. 8 (November 9, 2012): 633–39. http://dx.doi.org/10.1177/1533317512465677.
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This longitudinal study examined the predictors of dementia family caregivers’ self-reported attendance at support group meetings over 6 months. First-time attendees were contacted by telephone after their first meeting and assessed for ( a) perceptions of similarity between themselves and other members, ( b) depressive symptoms, and ( c) perceptions of social support from the facilitator and other members. Participants (N = 70) were recontacted 6 months later to obtain self-reports of attendance patterns. Self-reported attendance at any meeting during this follow-up period was predicted by perceived similarity in care recipient’s stage of dementia and perceived support from group members as assessed at the first interview. Greater perceived support from group members and fewer depressive symptoms at time 1 predicted a higher frequency of support group attendance over the follow-up period. Results have implications for orienting new support group members as well as training and supporting group facilitators.
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Martindale-Adams, Jennifer, Linda O. Nichols, Robert Burns, Marshall J. Graney, and Jeffrey Zuber. "A Trial of Dementia Caregiver Telephone Support." Canadian Journal of Nursing Research 45, no. 4 (December 2013): 30–49. http://dx.doi.org/10.1177/084456211304500404.
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Martin, Anne-Marie. "Dementia: Key factors in recognition and support." Practice Nursing 17, no. 1 (January 2006): 12–16. http://dx.doi.org/10.12968/pnur.2006.17.1.20289.
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Williams, Kristine, Anne Arthur, Michelle Niedens, Lois Moushey, and Lewis Hutfles. "In-Home Monitoring Support for Dementia Caregivers." Clinical Nursing Research 22, no. 2 (September 20, 2012): 139–50. http://dx.doi.org/10.1177/1054773812460545.
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Wright, Scott D., Clara C. Pratt, and Vicki L. Schmall. "Spiritual support for caregivers of dementia patients." Journal of Religion & Health 24, no. 1 (March 1985): 31–38. http://dx.doi.org/10.1007/bf01533257.
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Woodcock, Caroline. "Giving continence support to people with dementia." Nursing Standard 34, no. 9 (September 4, 2019): 51–52. http://dx.doi.org/10.7748/ns.34.9.51.s15.
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M. Orvos, Judith. "Nutritional Care, Support Key for Dementia Patients." Caring for the Ages 17, no. 1 (January 2016): 19. http://dx.doi.org/10.1016/j.carage.2015.12.021.
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Giebel, Clarissa, Sarah Robertson, Audrey Beaulen, Sandra Zwakhalen, Dawn Allen, and Hilde Verbeek. "“Nobody Seems to Know Where to Even Turn To”: Barriers in Accessing and Utilising Dementia Care Services in England and The Netherlands." International Journal of Environmental Research and Public Health 18, no. 22 (November 22, 2021): 12233. http://dx.doi.org/10.3390/ijerph182212233.
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Background: Accessing post-diagnostic care can be difficult for people with dementia and their informal carers. Little is known, however, about the determinants of barriers to access, and how these might vary between countries. The aim of this study was to explore potential inequalities in access to formal dementia care services between England and the Netherlands, specifically from more disadvantaged areas. Methods: This was a mixed-methods study, involving semi-structured qualitative interviews and a carer questionnaire. People with dementia and informal carers were recruited by clinicians. The postal survey was co-produced with people with dementia, informal carers, and health care professionals. The survey asked carers about their own and their relatives with dementia’s, social support service usage and financing; as well as how they were made aware of services and whether they required more support. Qualitative transcripts were analysed by two researchers in each country using thematic analysis. Results: A total of 103 carer questionnaires were received by post and 13 interviews were conducted with people with dementia and family carers between January 2020 and April 2020. Many services were accessed via self-funding. Thematic analysis generated five core themes: Health literacy; Having faith and lack of faith; Service suitability; Structural issues surrounding service provision; and Financing care. One major difference between both country’s systems of care were the case manager and network support which people with dementia and carers benefitted from in the Netherlands, which was rarely the case in the UK. Conclusions: People with dementia and informal carers need to be supported better in accessing formal dementia care services in both the UK and the Netherlands, whilst some learning can be taken to improve access.
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Maslow, Katie, Scott A. Trudeau, and Sara J. Czaja. "USING ACCESSIBLE TECHNOLOGY TO SUPPORT CAREGIVERS OF PERSONS WITH DEMENTIA." Innovation in Aging 3, Supplement_1 (November 2019): S243. http://dx.doi.org/10.1093/geroni/igz038.910.
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Abstract There is widespread enthusiasm about the potential of technology in general to support persons living with dementia and their families and other caregivers. At the same time, recommendations from the 2017 National Research Summit on Care, Services, and Supports for Persons with Dementia and their Caregivers emphasize the need for research to develop, evaluate, and disseminate specific technologies that can achieve meaningful benefits for well-defined subgroups of persons living with dementia and their caregivers, including individuals from diverse populations and individuals who live and receive care in various settings. This symposium focuses on specific home-based technologies to help family caregivers of community-living persons with dementia. Our three speakers will talk about research results for three different technology-related interventions, including: use of home video telehealth visits to help family caregivers provide effective dementia care and provide medical management; use of home video assessments by occupational therapists to help family caregivers increase home safety for community-living persons with dementia; and approaches for making a self-paced Home Safety Toolkit available to family caregivers of community-living veterans with dementia. Each speaker will report both positive outcomes, including family caregiver satisfaction, and barriers encountered in delivering the interventions. Such barriers include difficulties with the technologies as well as caregiver reluctance to change and costs that were not covered by health care insurance or health systems. Our discussant will respond to the presentations and solicit audience questions and discussion.
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Ashraf, A., P. Mehta, and P. Edison. "Amyloid imaging in dementia." Reviews in Clinical Gerontology 23, no. 1 (November 6, 2012): 43–60. http://dx.doi.org/10.1017/s0959259812000160.
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SummaryA major advancement in the field of medicine has been the timely advent of amyloid imaging, which has allowed critical evaluation of the complex relationship between amyloid β peptide (Aβ) aggregation and Alzheimer's disease in vivo. Most importantly, amyloid imaging has the potential to detect Aβ in mildly affected as well as asymptomatic individuals, when the therapeutic window of opportunity might still be open to pharmacological intervention. It also shows significant promise in differential diagnosis of mild cognitive impairment or atypical dementias. Amyloid imaging studies support a model in which amyloid aggregation is considered an early event on the path of dementia, beginning insidiously in cognitively healthy individuals being accompanied by subtle cognitive, functional and structural brain alterations suggestive of incipient AD. As individuals progress to dementia, clinical decline and neurodegeneration accelerate and might proceed independently of amyloid accumulation. In this review we focus on amyloid imaging with particular emphasis on [11C]PIB in AD, mild cognitive impairment and other dementias, and discuss the advances made in this perplexing field.
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Meyer, Kylie, Lyndsey Miller, and Jeffrey Kaye. "INNOVATIONS IN REMOTE SUPPORT FOR DEMENTIA FAMILY CAREGIVERS." Innovation in Aging 6, Supplement_1 (November 1, 2022): 392–93. http://dx.doi.org/10.1093/geroni/igac059.1545.
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Abstract Remote delivery of dementia caregiver interventions can decrease delivery costs, and make it more feasible to provide evidence-based interventions to caregivers across the country. As the science behind remote delivery develops, new technologies and their applications can ensure preservation of important intervention components and principles, as well as novel forms of data collection. In this symposium, investigators will present on studies that demonstrate how technology can be used to improve delivery and assessment of remote caregiver interventions. Walter Dawson, D.Phil, will share findings from the Support via Technology: Living and Learning with Advancing Alzheimer’s disease and related dementia (STELLA) intervention. Using secondary data collected via weekly survey, he examined the association between costs of care and behavioral symptoms of dementia. Next, Allison Gibson, PhD, MSW, will present results from focus groups about caregivers’ experiences of the Harmony at HOME (H@H), a telehealth intervention to improve person-environment fit and limit behavioral symptoms of dementia. Kylie Meyer, PhD, will present results from the Learning Skills Together intervention, which uses teleconferencing to teach family caregivers how to provide complex care tasks while adhering to self-efficacy theory. Lastly, Shirin Hiatt, MPH, MS, RN, will present findings from the REmote Assessment and Dynamic Response (READyR) study, which tests the application of remote monitoring technology to assess adherence to value-based care (e.g., autonomy) among spousal family care partners. Each study was supported by the Emory University Roybal Center for Dementia Caregiving Mastery or Oregon Roybal Center for Care Support Translational Research Advantaged by Integrating Technology.
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Douglas, Natalie. "Adapting Montessori Programming for Aging and Dementia With Implementation Strategies." Innovation in Aging 5, Supplement_1 (December 1, 2021): 49. http://dx.doi.org/10.1093/geroni/igab046.187.
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Abstract There is a need to translate research findings to support the wider adoption of person-centered care into typical long-term care environments across the world. Montessori for Aging and Dementia is one mechanism to support person-centeredness, dignity and autonomy of older adults living in long-term care environments. In this presentation, strategies used to support the implementation of Montessori for Aging and Dementia in a long-term care community of 20 people living with severe dementia will be highlighted. Implementation support was provided through capturing and sharing local knowledge, ongoing training and consultation, and tailoring communication supports. Through the use of these iterative strategies, the program was successfully adapted to include people living with severe dementia. While key findings of the project included improvements on a variety of observational and staff administered measures, the focus of this presentation will be on the relationships between the Montessori program’s fidelity, local needs and implementation strategies.
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Mitra, Madhumanti, and Raghupathy Paranthaman. "Audit into post diagnostic support in newly diagnosed dementia patients." BJPsych Open 7, S1 (June 2021): S335. http://dx.doi.org/10.1192/bjo.2021.878.
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AimsThis audit aims to identify whether newly diagnosed dementia patients are offered post diagnostic support and potential factors influencing patient choice.BackgroundA diagnosis of dementia can be life changing and hence post-diagnostic support for dementia is key. Multiple guidelines suggest that post diagnostic support need to be offered to all patients diagnosed with dementia. The Department of Health and Social Care and other national/ local guidelines suggest that post diagnostic support is offered to all patients diagnosed with dementia.MethodData were collected for 40 patients diagnosed with dementia. Using random number generator, patient group was selected from pool of patients diagnosed with dementia between July’ 2017 - December’ 2017. Data included whether they had been offered support during the initial appointment and what post-diagnostic support was offered. Demographic details obtained to identify patterns of support accessed by patients.ResultAll patients were offered post-diagnostic support. Diagnosis was discussed in appointment in about 93% of patients. Medication was discussed in 82% patients. Driving was discussed in only 64% patients and LPA was discussed in only 63% patients. When given choice between Post diagnostic support group (PDSG) and Dementia adviser (DA), slightly more women tend to choose PDSG group. The only 2 ethnic minority patients chose DA. 21% more patients opted for PDSG group when they had a carer.ConclusionThe positive is that some post-diagnostic support is offered to all patients. Although discussion of diagnosis with patients was done well, discussion of medication, driving and LPA can be improved upon. Ethnicity and family structure/ carer may have a bearing on patient choice of post-diagnostic support.