Dissertations / Theses: 'Dementia support'

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Dawood, Eman Salah. "Dementia caregiving impact of location of residence on stress, coping, social support and health /." Diss., Online access via UMI:, 2007.

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Bennett, Claire. "Developing a tool to support diagnostic delivery of dementia." Thesis, University of Nottingham, 2018. http://eprints.nottingham.ac.uk/45188/.

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Current political drivers are set to increase the volume of people receiving a dementia diagnosis. However, there are problems with how diagnoses are being delivered, with people reporting it to be confusing, anxiety provoking, and being generally dissatisfied. Limited guidance exists that could help improve the delivery and steps are required to address this. Research has begun to explore the components of a good delivery of a diagnosis of dementia, however interventions to support clinicians to deliver diagnoses are limited. This project’s overarching aim was to develop a prototype tool that has future potential to be used by clinicians, patients, and companions who are involved in the delivery of diagnoses of dementia. A two-phase sequential design was undertaken. Phase one explored four Memory Assessment Service (MAS) clinicians’, five patients’, and five companions’ perspectives of what makes a good delivery of a diagnosis of dementia via 10 semi-structured interviews. Thematic analysis of this data produced four overarching themes relevant to a good delivery of a diagnosis of dementia: overcoming barriers; navigation of multiple journeys; and completing overt and covert tasks. Two paper based tools were devised from these themes. One tool for service deliverers to support reflective practice and skill development; and the other for service recipients. This contained three elements: an information guide containing an overview of MAS appointments and outcomes, introduction to choices, bringing a relative or friend; a notes sheet which supported consideration of main concerns and choices, provision of space to record answers; and a prompt sheet to use during appointments to prompt question asking, and recording information discussed. Phase two assessed the tool’s acceptability across four focused group discussions with seven service deliverers and six service recipients. Thematic analysis was used to explore the preliminary acceptability of the tools, as perceived by the participants, and guided revisions to improve the design of both tools. Overall feedback was positive and both tools were deemed to be acceptable. The tools were modified to remove the prompt sheet and incorporate the principles into the service deliverer’s guide. Some minor adaptations to improve acceptability of phrasing were also made. This project developed a novel tool for supporting clinical practice in the delivery of dementia diagnoses. It also contributes towards the knowledge of dementia diagnosis and provides an alternative narrative of quality diagnostic delivery, rather than diagnostic volume. The tool uniquely articulates clinicians' experiences of diverse and changing emotional responses to the process of diagnosis delivery and of their management of this to prevent impact on the recipient. It is suggested that by mastering these skills clinicians can facilitate cohesion with, rather than distancing from, the attendee’s emotions. It also highlights barriers to good practice and the management of power within diagnostic appointments, both considered to potentially extend previous guidelines. The next steps are to take the tools into further development work and then to evaluate the tools. This may include completing further focus groups to establish acceptability of the tools and contribute to further development. Formal evaluation of quality and usability could include field testing to assess feasibility.

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Alwin, Jenny. "Assessment of Support Interventions in Dementia : Methodological and Empirical Studies." Doctoral thesis, Linköping : Department of Medical and Health Sciences, Linköping University, 2010. http://urn.kb.se/resolve?urn=urn:nbn:se:liu:diva-54312.

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Engström, Maria. "A Caregiver Perspective on Incorporating IT Support into Dementia Care." Doctoral thesis, Uppsala University, Department of Public Health and Caring Sciences, 2006. http://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-7267.

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Aim: The overall aim of the present thesis was to describe and evaluate IT support in dementia care from the perspectives of staff and relatives. More specifically, it was to examine staff members’ satisfaction with work, life satisfaction and sense of coherence before and after increased IT support, to describe staff members’ opinions and perceptions of IT support during the process of implementation, to describe relatives’ opinions of IT support and to compare relatives’ perceptions of their irritations with care and life satisfaction before and after increased IT support. In addition, three questionnaires were further developed and tested among staff working in elderly care, and then used in the staff evaluation. Methods: A quasi-experimental design with baseline assessments and follow-ups and experimental and control groups was used in two studies to investigate the outcomes of IT support. A descriptive design was used to study staff views on IT support, and a correlative design was used in the methodological study. Participants were 33 staff members and 22 relatives in the evaluation, 14 staff members in the descriptive study and 299 staff members in the methodological study. Data collection methods were questionnaires and group interviews. The IT support consisted of passive passage alarms, fall detectors, sensor-activated night-time illumination of the lavatory, movement detectors, email communication, an Internet website and additional computers. Findings and conclusions: Staff job satisfaction and perceived quality of care increased in the experimental group. The relatives were generally positive about the IT support, and the experimental group showed a decrease in practical/logistical irritations. Staff described ‘moving from fear of losing control to perceived increase in control and security’ and ‘constant struggling with insufficient/deficient systems’. Conclusions are that IT support can be a resource in dementia care as perceived by caregivers if IT support is incorporated into the care system.

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Lindgren, Helena. "Decision support in dementia care : developing systems for interactive reasoning." Doctoral thesis, Umeå : Datavetenskap Computing Science, 2007. http://urn.kb.se/resolve?urn=urn:nbn:se:umu:diva-1138.

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Bennasar, Mohamed. "Clinical decision support system for early detection and diagnosis of dementia." Thesis, Cardiff University, 2014. http://orca.cf.ac.uk/73073/.

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Dementia is a syndrome caused by a chronic or progressive disease of the brain, which affects memory, orientation, thinking, calculation, learning ability and language. Until recently, early diagnosis of dementia was not a high priority, since the related diseases were considered untreatable and irreversible. However, more effective treatments are becoming available, which can slow the progress of dementia if they are used in the early stages of the disease. Therefore, early diagnosis is becoming more important. The Clock Drawing Test (CDT) and Mini Mental State Examination (MMSE) are well-known cognitive assessment tests. A known obstacle to the wider usage of the CDT assessments is the scoring and interpretation of the results. This thesis introduces a novel diagnostic Clinical Decision Support System (CDSS) based on CDT which can help in the diagnosis of three stages of dementia. It also introduces the advanced methods developed for the interpretation and analysis of CDTs. The data used in this research consist of 604 clock drawings produced by dementia patients and healthy individuals. A comprehensive catalogue of 47 visual features within CDT drawings is proposed to enhance the sensitivity of the CDT in diagnosing the early stages of dementia. These features are selected following a comprehensive analysis of the available data and the most common CDT scoring systems reported in the medical literature. These features are used to build a new digitised dataset necessary for training and validating the proposed CDSS. In this thesis, a novel feature selection method is proposed for the study of CDT feature significance and to define the most important features in diagnosing dementia. iii A new framework is also introduced to analyse the temporal changes in the CDT features corresponding to the progress of dementia over time, and to define the first onset symptoms. The proposed CDSS is designed to differentiate between four cognitive function statuses: (i) normal; (ii) mild cognitive impairment or mild dementia; (iii) moderate or severe dementia; and (vi) functional. This represents a new application of the CDT, as it was previously used only to detect the positive dementia cases. Diagnosing mild cognitive impairment or early stage dementia using CDT as a standalone tool is a very challenging task. To address this, a novel cascade classifier is proposed, which benefits from combining CDT and MMSE to enhance the overall performance of the system. The proposed CDSS diagnoses the CDT drawings and places them into one of three cognitive statuses (normal or functional, mild cognitive impairment or mild dementia, and moderate or severe dementia) with an accuracy of 78.34 %. Moreover, the proposed CDSS can distinguish between the normal and the abnormal cases with accuracy of 89.54 %. The achieved results are good and outperform most of CDT scoring systems in discriminating between normal and abnormal cases as reported in existing literature. Moreover, the system shows a good performance in diagnosing the CDT drawings into one of the three cognitive statuses, even comparing well with the performance of dementia specialists. The research has been granted ethical approval from the South East Wales Research Ethics Committee to employ anonymised copies of clock drawings and copies of Mini Mental State Examination made by patients during their examination by the memory team in Llandough hospital, Cardiff.

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O'Rourke, G., C. Pentecost, den Heuvel E. van, C. Victor, Catherine Quinn, A. Hillman, R. Litherland, and L. Clare. "Living with dementia during the COVID-19 pandemic: coping and support needs of community-dwelling people with dementia and their family carers. Research findings from the IDEAL COVID-19 Dementia Initiative (IDEAL-CDI)." Older People and Frailty Policy Research Group, 2021. http://hdl.handle.net/10454/18452.

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Yes
We interviewed people with dementia and carers from the IDEAL cohort to find out how the COVID-19 lockdown and continuing restrictions affected those living with dementia. Some people with dementia coped well, while others coped with difficulty or were only just coping. The additional stress of COVID-19 exacerbated pre-existing coping difficulties. For many, social isolation increased anxiety. Some felt that lack of activity or lack of social contact caused a decline in their abilities to manage everyday tasks. Confusion about COVID-19 rules or difficulty remembering what to do led to anxiety when leaving the house. People felt that members of the public might not understand their particular needs. While some carers felt they were coping well, others experienced stress when having to leave the home because the person with dementia might not be safe if left alone. Some experienced increased strain in the caring relationship compounded by an uncertainty about future availability of respite. Some were concerned about the complex health needs of the person with dementia alongside COVID-19 risk and lack of personalised information. Both people with dementia and carers talked about the importance of access to safe outdoor space. People were anxious about how others would react or behave towards them regarding keeping a distance if they went out. Being connected to friends, family and wider community or support groups was important to help combat the effects of isolation. People from BAME communities worried about their increased vulnerability to the virus. A lack of trust in Government guidance and in health care services added to their anxiety. However, some benefitted from strong community and faith group involvement. What might be helpful for people with dementia? • Reablement to help regain or maintain skills • Personalised health advice regarding managing COVID-19 risk and the opportunity to ask questions. • Identification of people with dementia who live alone and an assessment of their needs. What might be helpful for carers? • Needs assessment in regard to respite. • Novel forms of respite care that incorporate social distancing. What might be helpful for both carers and people with dementia? • Access to COVID-safe outdoor spaces. • Continuation and expansion of ‘just checking’ services. • Support to get online and use the internet. • Communication and information through non-digital means. • Community COVID-19 ‘dementia awareness’ initiatives. What might be helpful for people from Black and minority ethnic groups? • Addressing concerns about their increased risk of COVID-19. • Directing information and support through existing community and faith groups.
This report presents independent research funded by the National Institute for Health Research Policy Research Unit in Older People and Frailty.

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Ottenby, Anki. ""När jag väl har friheten…" : - en kvalitativ studie om anhörigas upplevelse av stöd." Thesis, Stockholm University, Department of Social Work, 1998. http://urn.kb.se/resolve?urn=urn:nbn:se:su:diva-26251.

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With this study I wanted to capture the experience of support and increase the knowledge of what it means for women who are living with a husband who suffers from dementia. To do so I conducted four interviews and used an informal questionnaire. The result shows that there are four key words that can symbolize what the women experience as support: communica-tion, freedom, understanding and knowledge. The women’s experience of support range from meaningful and secure to not satisfying and complicated. Living with a husband who suffers from dementia has made their lives very different from before. But even if they sometimes are in a tough situation they want to take care of their husbands. Being able to go away a few hours or half a day once a week, can sometimes be enough and gives the women a sense of satisfaction. On the other hand it is not certain that the support offered is what the women need or that it is satisfactory for the husband. The link between the women’s experience of support and that of their husband is strong. And if the husband is not pleased nor will the wife be.

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Egdell, Valerie. "The changing landscape of informal dementia : mapping the sites, stages and support." Thesis, University of Newcastle Upon Tyne, 2009. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.512135.

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Marshall, Ann. "Coping in early dementia : findings of a new type of support group." Thesis, University of Surrey, 1999. http://epubs.surrey.ac.uk/712/.

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Tzimoula, X. M. "Social support and psychological health of family carers of people with dementia." Thesis, University College London (University of London), 2013. http://discovery.ucl.ac.uk/1418834/.

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The majority of people with dementia are cared by family members. Family caregivers of PwD are vulnerable to high levels of burden, depression and loneliness. Social support, as a coping resource, can play an important role in the stress process. However, levels of social support can be lower than needed, which may lead to the experience of loneliness. This study aims to examine the effects of social support on caregivers' psychological well-being and whether social support interacts with burden or mediates in the burden — psychological outcome relationship, both cross-sectionally and longitudinally. Furthermore, I examine predictors of loneliness in caregivers of PwD and in particular the relationship between loneliness and social support. Methods: 120 family caregivers of PwD living in the community were interviewed at baseline and 97 (>80%) were re- interviewed two years later. Recruitment took place in the UK counties of Norfolk and Suffolk, and the London Borough of Havering. I employed measures of depression, perceived emotional support, burden and loneliness with sound psychometric properties. Results: Social support was significantly associated with reduced depression both at baseline and follow-up. Social support also was suggested to mediate the burden — depression relationship at baseline, but did not appear to buffer the effects of burden on depression. Psychosocial variables of perceived support and loss of companionship were suggested to predict loneliness over and above the demographic variables. Furthermore, perceived social support did not significantly buffer the effects of loss of companionship on loneliness. Therefore, different aspects of loneliness may be experienced as a result of loss of supportive others or loss of an attachment figure. Conclusions: Social support is suggested to reduce the effects of burden on depression, irrespective of how burdened caregivers were. Social support also is suggested to reduce feelings of loneliness but not those of loss of a close relationship.

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Bartels, Lucy. "Understanding positive experiences of professional caregivers who support people living with dementia." Thesis, University of Hull, 2017. http://hydra.hull.ac.uk/resources/hull:15912.

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This portfolio thesis is divided into three parts; a systematic literature review, an empirical paper, and a set of appendices. The thesis as a whole seeks to understand positive experiences of professional caregivers, in order to provide a more holistic understanding of caregiving in residential dementia care settings. Part one is a systematic literature review which explores and reviews the literature relating to positive and negative aspects of caregiving experienced by professional caregivers in residential dementia care settings. Factors associated with positive and negative experiences of caregiving are also examined. Fourteen papers were identified and reviewed using a narrative synthesis approach; three themes and six subthemes were identified. The findings are considered and discussed in the context of previous literature relating to caregiving in addition to clinical and research implications. Part two is an empirical paper exploring hope in professional caregivers in residential dementia care settings. The investigation includes the experience of hope, facilitators/barriers of hope and the role of hope in caregiving. Using a constructivist Grounded Theory approach a focus group consisting of six participants was conducted, and purposive theoretical sampling was used to conduct nine individual interviews. Data were analysed using constructivist Grounded Theory and nine categories emerged which were organised into three theoretical concepts. The emergent theory is discussed in the context of previous literature relating to hope and caregiving in addition to clinical and research implications. Part three is a set of appendices for both the systematic literature review and empirical paper, and includes an epistemological statement and reflective statement.

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Dokos, Malinda K. "The Role of Social Support in Dementia Care Facilities: Staff Member Perspectives." DigitalCommons@USU, 2019. https://digitalcommons.usu.edu/etd/7648.

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In this study, certified nursing assistants (CNAs) who work regularly with long-term care residents with dementia were interviewed to investigate whether they considered providing social and emotional support to people with dementia an important part of their jobs. They were given an online survey, then each participated in an in-person interview that was recorded and later transcribed and analyzed for common themes. Through data analysis, I found that the participating CNAs unanimously considered social support to be an important aspect of caring for someone with dementia, and several personal values were associated with this perspective. They also reported the trainings they had received in preparation for dementia care were largely not sufficient to prepare them for interacting effectively with the residents. Additionally, they cited various other barriers that impede their ability to provide the social support they feel is necessary to provide. Overall, this sample of CNAs did not provide great diversity, and future research should compare these results to more diverse groups.

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Andersson, Liza, and Lovisa Axelsson. "Att vara närstående till en äldre person med demenssjukdom : En litteraturstudie med kvalitativ ansats." Thesis, Högskolan Väst, Avdelningen för omvårdnad - grundnivå, 2016. http://urn.kb.se/resolve?urn=urn:nbn:se:hv:diva-10624.

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Nu för tiden blir människan äldre och med det så ökar risken för att insjukna i demens. Det är en obotlig sjukdom som innefattar en grav försämring av personens minne och intellekt och som slutligen leder till döden. Sjukdomen påverkar inte bara den drabbade utan även alla i dennes omgivning. Symtomen kommer smygande, vanligt är försämrat minne, intellekt och förändrad personlighet. Många av de drabbade är nedstämda, oroliga och kan även vara aggressiva. Detta beror på att de fortfarande har kvar sina känslor och kan känna att något är fel, men de kan inte sätta fingret på vad som är fel. Vid sjukdom så är behovet av stöd oftast stort och det är sjuksköterskans ansvar att ge stöd till den som behöver. För att kunna bemöta de behov som finns behövs kunskap om hur närstående upplever sin situation. Begränsad forskning finns kring närståendes erfarenheter av demenssjukdomen, och majoriteten av forskningen är inriktad på sjukdomen och hur den påverkar hjärnan och patienten. Därför valdes en litteraturbaserad studie till examensarbetet för att belysa erfarenheter av att vara närstående till en äldre person med demenssjukdom. Detta innebär att författarna granskat 10 artiklar från vetenskapliga tidskrifter och sammanställt till ett eget resultat. Temana som bildades efter granskningen var närståendes erfarenheter av stöd och sjukdomens progression och dess effekter på relation och känslor. Det första temat fokuserar just på de närståendes erfarenheter av stöd. Både från vården och andra i samma situation. Resultatet visar att stödet från sjuksköterskan bör vara lättillgängligt och ges i tidigt skede av sjukdomen för att undvika ohälsa. Även att prata med andra i samma situationer var viktigt, många tog hjälp av stödgrupper för att få råd. Andra ville inte ha stöd från sina familjer då de inte ville lägga bördan på dem så de tog själva allt ansvar för den drabbade. Sjukdomens progression och dess effekter på relation och känslor belyser de olika problem som uppkommer under sjukdomens gång. Det förändrade beteendet hos den drabbade skapade irritation och frustration hos de närstående, till exempel när den drabbade tappade tråden i samtal eller uppträdde förvirrat. I samband med det förändrade beteendet formades en ny relation till den drabbade. Känslor av skuld och skam var närvarande för många och specifikt för makar var sorgen av att ha mist den man en gång delat livet med.
Background: Dementia not only affects the individual patient, but also healthcare professionals and the relatives. It is an increasing incurable disease that affects the mind of the afflicted person. He or she will experience difficulties with either expressing oneself, recognizing daily things, performing tasks that he or she previously were able to managed or the ability to plan, initiate or complete various tasks. Aim: The aim of this study was to illuminate experiences of being a relative of an older person afflicted of dementia. Method: A literature based study was performed, analyzing 10 qualitative articles. Results: The results consist of two main themes, relatives experiences of support, with two subthemes, support in the care relationship and support from others in the same situation. The second theme progression of the disease and its affects on relations and feelings, with three subthemes, the partners behavioral change, a new kind of relationship and impact of the disease on feelings. These highlight significant experiences the relatives go through in relation to the disease. Support was something that may be given in different ways and the need for support was necessary. The behavioral change that comes with the disease, results in a new form of relationship with the affected. Feelings of sadness, guilt and shame were constantly present. Conclusion: The results shows that the relatives need support through the entire disease progression when the behavior of the affected changes and a new relationship is formed. When accepting the disease, the relatives found it easier to deal with life in general. Nurses need to have the means to respond to these relatives and to know how they experience their situation, to be able to support them in the best possible way.

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Kjällman, Alm Annika. "Long-Term Ongoing Structured Support in Early Stage of Dementia: A Family Affair." Doctoral thesis, Mittuniversitetet, Avdelningen för omvårdnad, 2014. http://urn.kb.se/resolve?urn=urn:nbn:se:miun:diva-22673.

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Demenssjukdomar drabbar mer än 35 miljoner människor världen över, en summa som kommer att fördubblas vart tjugonde år. Demens är en global störning av intellektuella funktioner: förmågan att minnas försämras, och förmågor som att orientera sig i tid och rum, språklig förmåga, tankeprocesser som att gå från tanke till handling, problemlösande, utföra saker praktiskt och känna igen föremål. Symtomen följs ofta av förändringar i beteende och personlighet, som låg initiativförmåga, irritation, grovt socialt beteende och humörsvängningar. I Sverige diagnostiseras 25 000 personer per år, totalt så lever 160 000 personer med sjukdomen i Sverige idag. I Sverige ställs diagnosen ofta utifrån blodprover, hjärnröntgen och Mini Mental Score Evaluation-Swedish Revision tillsammans med personens sjukdomshistoria. Efter diagnosen har ofta anhöriga många frågor om hur livet kommer att te sig framöver, är det bra att flytta eller ska man bo kvar? Hur kommer sjukdomen att förändra livet och personligheten hos den drabbade? Tidigare studier visar att dessa frågor ofta förblir obesvarade, det är svårt att få en uppföljning hos läkare och det finns få länder där stöd efter diagnosen är vanligt förekommande. Sverige har sen 2009 lagstiftat om rätten till stöd till anhöriga och närstående med demenssjukdom eller andra kroniska sjukdomar med funktionshinder. Typen av stöd som ges skiljer sig däremot åt, Socialstyrelsen kom därför hösten 2013 ut med riktlinjer för hur stödet bör se ut för att vara effektivt: 8-10 träffar under 3-6 månader med information och socialt stöd till anhöriga. En kommun i norra delen av Sverige har gett långvarigt stöd till personer med demenssjukdom och deras anhöriga sen 2006. Ett nära samarbete med Landstinget i regionen och på senare tid även privata vårdcentraler i området har lett till att stöd kan erbjudas i direkt samband med diagnostillfället. Personerna deltar ofta i stödgrupp inom ca 4-6 veckor efter sin diagnos. Avhandlingens syfte var att fördjupa kunskapen om personernas upplevelse av att vara i stödgrupp under lång tid; den längsta i 4 år. Intervjuer gjordes med anhöriga och personer med demenssjukdom. Resultaten visade att de par som varit med längst i stödgrupp kände sig trygga, de upplevde att de fick god kunskap om demens och var förberedda på den förändring som skulle komma. Resultaten visade också att vara vuxet barn till en person med demens innebar att vara tyngd av ansvar för att agera i den sjuka förälderns intresse trots en djup känsla av sorg of förlust vilket ofta leder till frustration med situationen. Relationerna inom familjen kan förändras efter demens diagnosen både till det bättre; att man sluter upp kring den demenssjuke föräldern men också till det sämre; att familjen splittras då relationerna utsätts för påfrestningar. Personerna med demenssjukdom som deltog i stödgrupperna upplevde och skattade sin känsla av sammanhang högt; att livet var meningsfullt, begripligt och hanterbart. Deras friska partner upplevde mindre begriplighet och hanterbarhet och de vuxna barnen mer meningsfullhet. Avhandlingens resultat har legat till grund för en modell för stöd till personer med demenssjukdom och deras anhöriga kallat PER-modellen®; Pedagogisk, Emotionell och Relationsbaserad modell för stöd.
Dementia disorders affect more than 35 million people around the world, which will double every twenty years. Dementia is a global disruption of intellectual functioning; there is a decrease of memory ability and other intellectual abilities such as orientation, visuospatial- perceptive ability, language, thinking, executive abilities, problem solving, apraxia and agnosia. These symptoms are often followed by behavioral changes and changes in the personality, such as loss of initiative, emotional instability, irritation, apathy, coarse social behaviour and mood changes. The most frequent symptoms were apathy, depression, irritability, and agitation. About 25, 000 persons are diagnosed with dementia each year in Sweden. Today, estimates are that 160, 000 persons in total are suffering from dementia in Sweden. In Sweden, most diagnoses are done in the primary health care setting by general practitioners and are based on the person´s own history, interviews with next of kin and an Mini Mental Score Evaluation- Swedish Revision (MMSE-SR) along with blood work and a brain scan to rule out any other diseases. After diagnosis the next of kin often have many questions about the coming lifestyle changes and ways to handle the personality changes that the person suffering from dementia may go through. Previous studies show that in many cases these questions are left unanswered, because it is difficult to get a follow up with a physician and there are few countries where support after diagnose is common. In 2009, the Swedish Parliament passed a new law that states that support is to be given to persons caring for people with chronic illnesses, elderly people, or people with functional disabilities. There was, however, no detailed description of the extent or kind of services to be provided, and the municipalities had extensive freedom in implementing the legislation. In the autumn of 2013 the Swedish National Health Board therefore, issued guidelines where eight to ten meetings during a three- to six-month period with information and social support were recommended.A municipality in northern Sweden have a long term ongoing support to persons with dementia and their next of kin since 2006. A close collaboration with the geriatric clinic and private health centers has resulted in support being offered within 4-6 weeks after diagnose. The overall aim of this thesis was to explore experiences of living with dementia both as a sufferer and as a next of kin; and being part of a long-term ongoing support group, the longest for four years. Interviews were done with persons with dementia and their next of kin. Results showed that couples who had been the longest in a support group felt great comfort and support. They experienced that their knowledge about the disorder was good and that they could prepare for the changes to come. Results also showed that to be an adult child of a person with dementia disease means being burdened with the responsibility to act on behalf of the diseased parent despite a deep sense of grief and loss, which leads to frustration with the situation. Relationships within the family can sometimes change when a family member is affected by dementia. Sometimes for the better; where the family rallied to support the affected member and sometimes for worse; where the relationships were strained when pressure became too much. The persons with dementia who participated in the support groups experienced a great sense of coherence and felt that life was manageable, comprehensible and meaningful. Their healthy partners experienced less comprehensibility and manageability and the adult children more meaningfulness. The results of the thesis have founded a model for support called PER-model®; Pedagogical, Emotional and Relationship based model of support.

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Furlini, Linda. "Living with chronic dementia from the caregiver perspective : a case for educational support." Thesis, McGill University, 2005. http://digitool.Library.McGill.CA:80/R/?func=dbin-jump-full&object_id=85161.

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Caregiving for two parents affected by chronic dementia was the original impetus for this study. My negative experiences led to a quest for insight and solutions through volunteer, professional and academic pursuits. It culminated in this exploration of caregivers' experiences and their decision-making to expose the educational support they need. Caregivers tend to be family members, and overwhelmingly women. Studies from various disciplines confirm that caregivers need educational support to make decisions. Yet, little is known about what type of educational support they need and how it is to be provided. Caregivers' voices are seldom included in research and they are frequently blamed for the problems they confront. This qualitative study honours caregivers' voices. Through in-depth semi-structured interviews, the perspectives of five women form my primary source of data. Personal documentation, archival materials, and interviews with experts in the field supplement these data. To analyze the data two complementary analytic approaches are used: categorization and contextualization. A categorization approach organizes the data into conceptual themes. These themes include activities of multitasking, being locked into a state of heightened alert, interpreting the disease, and managing care. These activities reveal physical and psychological suffering. Contextualization approaches situate the dilemmas the women face in particular contexts. These dilemmas highlight their lack of authority. The analyses indicate that the women engage in a wide range of decision-making and that they need both similar and specific types of educational support. These types of support include (1) lessening their burdens and their frustrations of decision-making; (2) facilitating ethical decision-making; (3) providing information about medical treatments; and (4) assisting with the access to and with the assessment of suitable resources. Overall, caregiving is a ve

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McKechnie, I. V. "The impact of an online support forum for carers of people with dementia." Thesis, University College London (University of London), 2013. http://discovery.ucl.ac.uk/1410117/.

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This thesis addresses computer-mediated interventions for carers of people with dementia and is comprised of three parts. Part 1 is a literature review of computer-mediated interventions for carers of people with dementia. It systematically reviews research studies in this field published after January 2000. Part 2, the empirical paper, is a mixed-methods evaluation of Talking Point, the UK Alzheimer’s Society’s online peer support forum for carers of people with dementia. Changes in new users’ depression, anxiety and quality of the relationship with the person with dementia are examined over a 12 week period, and follow-up qualitative interviews are conducted with eight participants. Part 3 is a critical appraisal of, and reflection on, the research and the manner in which it was conducted. It focuses on the following areas: issues in the evaluation of interventions for carers of people with dementia; the challenges of conducting research in a non-face-to-face context; the interview process; the extent of conclusions that can be drawn from the research and; future research.

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Wherton, Joseph P. "Exploring the requirements for technology to support people with dementia in the home." Thesis, University of York, 2008. http://etheses.whiterose.ac.uk/14201/.

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This thesis explores the requirements of technology to support people with dementia in the home. More specifically, it aims to establish design requirements for systems that prompt people with mild to moderate dementia through multi-step tasks. Chapter 1 presents existing literature that is relevant to the development of cognitive prostheses for people with dementia. The review describes patterns of cognitive decline in dementia, the impact of these deficits on everyday tasks, and technological and non-technological methods of support. Chapter 2 presents the problems of dementia in the home from a professional carer perspective. Nine interviews and one focus group were conducted with 22 occupational therapists and professional carers. The transcripts were analysed using Grounded Theory Analysis (GTA), in accordance with Strauss and Corbin (1990). The analysis revealed three main themes: 'Problems in the home' (daily activities, risks, and interpersonal interaction), 'underlying deficits' (sequencing, memory/orientations, and learning), and 'consequences' for the person with dementia (physical wellbeing and control) and the informal caregiver (relationship and care demands). The implications of these themes for the design of assistive technology are discussed. Chapter 3 presents the problems of dementia from a patient-caregiver perspective. Eight home visits and two individual interviews were conducted with people with mild to moderate dementia and informal caregivers. GT A revealed four main themes: 'Problems in the home' (daily activities, domestic tasks, leisure, and interpersonal interaction), 'underlying deficits' (sequencing and memory/orientation), 'consequences' for the person with dementia (Physical wellbeing and control), and the informal caregiver (relationship and care demands), and 'situated factors' (verbal cues, visual cues, and familiarity). The perspective is compared to the professional carer perspective, and the design implications are discussed. Chapter 4 describes the types of problems people with dementia experience when performing kitchen tasks. Six people with mild to moderate dementia were video recorded performing activities in their own kitchen. These included making a cup of tea/coffee, a bowl of soup, beans on toast, and tea/coffee with toast. Twenty-two video recordings were transcribed and analysed. Errors that prevented task accomplishment were recorded and grouped to form error classifications. Eight error types were identified with four main themes: 'Sequencing' (intrusion, omission, and repetition), 'orientation' (locating and identifying), 'operation' of appliances, and 'incoherence' (toying and inactivity). The error types are discussed in relation to cognitive theory and the implications for designing prompting systems. Chapter 5 describes an experiment embedded in a real activity, designed to evaluate the effect of a novel cueing method. Eight participants with moderate dementia carried out real cooking activities (making porridge with syrup and chocolate comflake cakes) with a care worker. At certain points, the participants were required to tum on/off the cooker. Correct control selection was scored under three different cueing conditions that represented the association between hotplates and controls. Condition 1 used the original design (symbols), condition 2 used verbal (written) cues, and condition 3 used a lighting effect (hotplate and corresponding control would light up). The implications of the experiment for the design and evaluation of technological prompts are discussed. Chapter 6 describes future steps that should be taken to develop prompting systems for people with dementia. This includes a review of recent developments in pervasive computing that match the design requirements for prompting systems, and an interactive design framework that should be used to guide the design of prompting systems for domestic settings. Chapter 7 provides a summary of the thesis. This includes an overview of requirements for technology to support people with dementia at home. The methodological contributions of the thesis are also discussed.

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Webster, Gemma. "Multimedia profiles as external personalities to support people with dementia and their carers." Thesis, University of Dundee, 2011. https://discovery.dundee.ac.uk/en/studentTheses/f68f7545-c3af-427d-b4fe-96633824208a.

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Dementia is a growing problem with prevalence rapidly increasing. It is a progressive and eventually severe disease that affects many areas of the person’s life. Often, as a result of this disease, individuals reside in care homes. Care staff can find it difficult to get to know a person with dementia as they have limited time to spend with each person. In addition, communication difficulties can make it difficult to learn important social information and preferences. This lack of knowledge about an individual with dementia can make social interactions very difficult and can often contribute to repetitive social interactions. This research aimed to establish if technology could be used to support care staff within their care environment to get to know people with late-stage dementia. The goal was to develop software that can act as an external communication bridge between carers and people with dementia through the creation of simple but effective ‘Portraits’. This thesis investigates the creation and use of multimedia ‘Portraits’ of individuals with dementia that are immediately and easily accessible to care staff. This thesis describes the development of a software tool called Portrait, designed to help staff in care homes quickly get to know a person with dementia as a person. It is intended to be used by the staff in their care environment to gain an initial understanding of that person’s life prior to entering care and to learn more personal information about their needs and habits. The Portrait system contains important but limited personal and social information about the people with dementia. Five key studies were conducted during this research. The first study evaluated the usability of the Portrait system. The second and third were conducted with care managers and staff in the care home setting to assess usefulness and usability of the Portrait system and to compare it to current methods used in the care home environment. The fourth study conducted case studies with families of people with dementia to investigate the Portrait creation process and the final study investigated the placement of these Portraits in the care environment. The results of this research are promising, with Portrait being very positively received by care managers, care staff and the families of people with dementia. This research highlights the potential benefits of technology in the care environment to assist care staff. A number of key areas for future research have been identified including the possibility of expanding the use of the system and using alternative state of the art devices.

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Golden-Kreutz, Deanna Maria. "Social networks, support perceptions, and depressive symptomatology in dementia family caregivers and noncaregivers /." The Ohio State University, 1993. http://rave.ohiolink.edu/etdc/view?acc_num=osu1487844948077746.

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FOX, MARY VYN. "SOCIAL SUPPORT AND PSYCHOLOGICAL DISTRESS AMONG SPOUSE CAREGIVERS OF DEMENTIA PATIENTS (ALZHEIMER'S DISEASE)." Diss., The University of Arizona, 1986. http://hdl.handle.net/10150/188184.

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This study is an examination of the informal support systems of 40 spouse caregivers of dementia patients in relation to two variables associated with maintaining their patient at home: (1) the caregiver's experience of psychological distress, and (2) the caregiver's need for formal support. There now exists evidence to suggest that informal supports act to mediate the stress associated with caring for a dementia patient; however, research in the area of social supports has generally lacked careful definitions of the variables at work. To remedy that deficiency, distinctions were made in this study between the quantitative and qualitative dimensions of informal supports and the expressive and instrumental functions of informal supports. Initial analyses did not support the hypotheses that informal supports operate independently to buffer caregivers' experience of psychological distress and the need for formal support. However, when formal support was redefined in terms of two types of services--professional counseling services and community services--significant findings did emerge. Level of caregiver anxiety was found to be significantly related to perceived need for counseling services. Perceived need for community services was predicted by the combination of the patient's level of cognitive impairment, and the caregiver's experience of higher levels of anxiety and lower levels of informal expressive support. These results suggest that interventions directed toward the provision of services should be based on a thorough evaluation which includes the patient's level of functioning as well as the caregiver's emotional and instrumental resources. Professionals working with dementia patients and their families must be alerted to those caregivers who are at risk of severe emotional distress, and services should be provided to them before families collapse under the strain of caregiving.

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Earnheart, Kristie. "Cardiovascular Problems as a Predictor of Later Cognitive Decline: Moderating Effect of General and Spousal Social Support." Thesis, University of North Texas, 2006. https://digital.library.unt.edu/ark:/67531/metadc5377/.

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Individuals are living longer now than they have in the past. As a result, there is an increased incidence in illnesses that are more prevalent in later life. One group of illnesses that is more prevalent is age related dementia. Alzheimer's disease (AD) and vascular dementia (VaD) are two common types of dementia found in the older adult population. Recent research suggests that these two types of dementia may both have a vascular component that is instrumental in their development. Not only may this vascular component be present in both these illnesses, but also it may be related to a more severe cognitive decline in the aging process. Results indicate that both cardiovascular disease and general and spousal social support in middle age are all three independent significant predictors of mild cognitive impairment and other non-normative cognitive impairment in later life. However, results do not indicate that social support moderates the relationship between cardiovascular disease and cognition.

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Gideon, Clare A. "SOCIAL ENVIRONMENTS OF DEMENTIA CAREGIVERS: RELATIONSHIPS BETWEEN SOCIAL SUPPORT, NEGATIVE SOCIAL INTERACTIONS, AND CAREGIVER EMOTIONAL DISTRESS." online version, 2007. http://rave.ohiolink.edu/etdc/view?acc%5Fnum=case1158541315.

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Albinsson, Lars. "A Palliative Approach to Dementia Care : Leadership and organisation, existential issues and family support." Doctoral thesis, Uppsala University, Department of Public Health and Caring Sciences, 2002. http://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-2930.

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The main purpose of this thesis was to apply the WHO and NHS palliative care approach to dementia care.

Thirty-one staff-members in mid-Sweden (studies I and II) and 20 next-of- kin (study IV) were interviewed. In study III, 316 staff-members from dementia care and 121 staff-members from palliative cancer care responded to a questionnaire about family support. The interviews were tape-recorded and analysed with a qualitative phenomenographic (I and II) and a hermeneutic approach (IV). The questionnaires (III) were analysed using qualitative and quantitative content analysis.

The staff-members stated almost unanimously that daily leadership was lacking, and consequently clear goal formulations and care planning were rare (I). Proper teamwork between the doctor and the staff who worked on a daily basis with the patients was absent (I). With respect to existential issues, education and staff discussions were lacking (II). The staff were at a loss concerning how to deal with these issues. Nevertheless, these issues are central to family-members who have to deal with an existential crisis (IV). Important questions emerged about obligation and guilt, faithfulness, responsibility, and paying back what you once received. Existential isolation could be identified e.g. in the reversal of roles experienced as "being a parent to your parent" and in the burden of "visiting a living dead person".

There were no routines for bereavement visits. The type of support suggested for dementia family members is partly similar to support in palliative cancer care, but it also differs in other respects such as feelings of guilt because the early signs of the disease are misunderstood, the need for respite because of the long trajectory of dementia diseases, and the occurrence of anticipatory grief because in the late phase family members can no longer make any contact at all with the patient (III).

A palliative approach can improve the quality of life for the dementia patient and for the family. It can be used as a basis for a clear goal formulation. Some of the suggestions listed in this thesis for improving the quality of care are more a reflection of the need for a change in attitudes rather than the need for substantial budget increases.

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Nasrollahzadeh, Yalda. "Support group for caregivers of older adults affected by dementia| A grant proposal project." Thesis, California State University, Long Beach, 2013. http://pqdtopen.proquest.com/#viewpdf?dispub=1523109.

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The purpose of this study was to explore how caregivers of patients with dementia are physically and mentally affected by their increase in responsibilities. The purpose of this project was to locate a potential funding source and write a grant to obtain funding for a caregiver support group for the Calabasas, CA community and its surrounding areas.

Caregiver intervention programs have been identified as a critical area of research by the Alzheimer's Association. Silverado Senior Living is a national organization that serves patients with dementia. The program consists of two support groups offering structure and flexibility through cognitive behavioral practices and a continuous feedback.

If funded and implemented, this program would add value to the body of research that exists for caregivers and drive awareness and change to current policy. In addition, Silverado would better serve its community and act as a model program for other Silverado locations.

The actual submission and/or funding of this grant was not a requirement for the successful completion of the project.

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Bajaj, Preeta. "Physical environmental cues that support activities of residents with dementia in special care units." [Gainesville, Fla.] : University of Florida, 2003. http://purl.fcla.edu/fcla/etd/UFE0001080.

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Chung, Yin-kwan Carol. "Stress, appraisal, coping and perceived social support as predictors of mental health outcomes of spouse-caregivers of persons withdementia." Thesis, The University of Hong Kong (Pokfulam, Hong Kong), 1998. http://hub.hku.hk/bib/B29697888.

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Thunberg, Julia. "Vårdpersonalens behov av stöd i sitt arbete med vårdtagarna i demensboende." Thesis, Uppsala universitet, Sociologiska institutionen, 2014. http://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-216137.

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This study will examine if caregivers, working with people with dementia problems, is in need of support and in what way they see how the support should be designed. Previous research shows that there are many factors in elderly care that affect all of the caregivers. Working with people in this sort if dependence, requires a lot of the caregivers, both mentally and physically. To study if the caregivers consider themselves to be in need of support, and in what way they see how the support should be designed, the study employs a qualitative approach using to types of interviews, one focus group with four assistant nurses, and two individual in-depth interviews with the administrative personnel and one nurse. The results show that the need for support for the caregivers exists. Caregivers working with people with dementia problems, daily face difficulties, some more difficult to handle than others. The more difficulties to handle, the more the caregivers have the need for support. The support should be designed in both internal and external forms, such as support from colleagues and tutoring. It is also indicated, by the caregivers that the need of support in their work exists despite of several years of experience. The need for continuous professional development is, according to caregivers, based in that each person with dementia problems has different needs. It can be seen as a similar need, but it's never quite the same.
Denna studie skall undersöka om vårdpersonalen, som arbetar med vårdtagare med demensproblematik, är i behov av stöd och på vilket sätt de då ser att detta i så fall ska utformas. Tidigare forskningsresultat visar att det finns väldigt många faktorer inom äldreomsorgen, som påverkar vårdpersonalen. Att arbeta med människor i denna beroendeställning kräver väldigt mycket av vårdpersonalen, både psykiskt och fysiskt. För att undersöka om vårdpersonalen anser sig ha ett behov, och i så fall på vilket sätt de ser att detta ska utformas, gjordes en kvalitativ studie. Studien delades upp i olika former av intervjuer. Det genomfördes två enskilda intervjuer och en fokusgruppintervju. Intervjuerna gjordes med sjuksköterska och chefen för demensboendet. Fokusgruppen genomfördes med fyra av demensboendets undersköterskor. Resultatet påvisar att det finns ett behov av stöd för vårdpersonalen. Ett arbete på ett äldreboende, med inriktning för vårdtagare med demensproblematik innebär dagligen svårigheter, vissa mer svårhanterliga än andra. De mer svårhanterliga utmaningarna, som sker på demensboendet, behöver vårdpersonalen hjälp att hantera. Stödet får gärna vara utformat i både interna och externa former, som till exempel stöd mellan kollegor och handledning. Det framkommer även av vårdpersonalen att de behöver ett stöd i sitt arbete trots flera års erfarenhet. Behovet av kontinuerlig kompetensutveckling ligger, enligt vårdpersonalen, i att varje vårdtagare har olika behov. Det kan ses som liknande behov, men det är aldrig helt lika.

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LIU, YU. "Impact of Family Caregiving upon Caregivers of Elders with Dementia in China." Diss., The University of Arizona, 2010. http://hdl.handle.net/10150/193869.

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Caring for an elder with dementia at home is considered a challenging and complex process. The purpose of this study was to describe the impact of family caregiving upon caregivers of elders with dementia on caregiver's health in the context of Chinese family caregiving. The investigation also describes the roles of caregiving appraisal, coping, familism, and perceived social support on the relationship between caregving stressors and caregiver outcomes.A cross-sectional correlational design was used to examine relationships among the variables. Ninety-six family caregivers of elders with dementia in China were recruited. Self-reported questionnaires were utilized to measure the variables.Results from bivariate correlational analysis found that ADL impairments had no any significant relationship with other variables and was not used in model testing.. Path analysis indicated that the proposed Dementia Caregiving Model did not fit the data well. Model modifications were performed based on AMOS 5.0 output and the theoretical rationale for the potential modifications. The modified final model fit the data perfectly. It explained 21.1% and 39.7% of the variance in caregiver physical health and psychological health respectively. In the final models, behavioral problems of care-recipients and perceived social support of caregivers had direct and indirect effects on caregiver physical health and psychological health. Familism and caregiving satisfaction only had indirect effects on caregiver psychological health and no effects on caregiver physical health. Conversely, caregiving subjective burden and coping had direct effects on caregiver health; burden had direct effects on both physical and psychological health of caregivers, whereas coping had a direct effect on caregiver psychological health.The findings enrich knowledge of dementia family caregiving in the context of China and Chinese culture and add the important variables of caregiver appraisal of caregiving satisfaction and familism to existing theories and models of stress and coping on family caregiving cross culturally. This study not only contributes to Chinese nursing research by introducing a conceptual model for family caregiving of elders with dementia, but also can be a basis for formulating interventions to help family caregivers of elders with dementia cope with their caregiving situations.

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Atcha, Maaria. "Access to dementia diagnosis and support in a diverse South Asian community : a qualitative study." Thesis, Lancaster University, 2018. http://eprints.lancs.ac.uk/127056/.

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Although members of the United Kingdom (UK) South Asian population appear to have an elevated risk of developing dementia, this population accesses dementia services less frequently, compared with the majority white population. The disparity between the prevalence of people with dementia and the reported incidence of dementia, especially among South Asian populations (the UK‟s largest ethnic minority), is of concern to public health service providers. This study aimed to identify the socio-cultural issues in accessing dementia services in the population living in Blackburn with Darwen [BwD], in the Northwest of England. This qualitative study explores how members of the BwD South Asian Indian and Pakistani population perceive dementia, and how their family members engage with local dementia care services and with healthcare professionals providing dementia services. Data collection included: three focus groups with thirteen people involved in a community project; two interviews with people living with dementia and their family members; and eight interviews with nine dementia services healthcare professionals [HCPs]. The data was analysed using thematic analysis. The findings suggest that members of the South Asian population are under-represented in dementia diagnostic services. Firstly, this appears to be due to a lack of knowledge in the Muslim South Asian Indian and Pakistani community about the nature of dementia. Various negative perceptions of dementia, influenced by cultural beliefs, were also identified which lead to people with dementia being stigmatised and hidden from public view by their families. This may explain why health professionals report that this population seeks help at a later stage of the illness, and thus there is an argument for public health services to develop culturally relevant outreach programmes.

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Christie, Julie. "'I try to forget about the dementia' : realising the resilience of the person ageing with dementia in social work practice." Thesis, University of Stirling, 2016. http://hdl.handle.net/1893/24422.

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This thesis considers whether the concept of resilience is applicable to people ageing with dementia; and, if so, what the implications are for social work practice. It begins with an exploration of the literature on dementia, resilience and social work. Using a symbolic interactionist approach it then details how the interactions of people with dementia and their social workers can potentially influence the realisation of resilience in practice. I collected data over a two year period. During this period six dyads comprising a person with dementia and social worker provided rich verbal accounts of their respective experiences. Using narrative analysis the stories of each person with dementia were explored to reveal threats to identity and possible resilience strategies. A resilience lens was applied to the verbal accounts of social workers in order to reveal opportunities and challenges to using resilience in practice. The findings indicate that identity continues to be of importance to people who are ageing with dementia. The preservation of identity could therefore be re-framed as the outcome of a resilience process. Each person could potentially acquire resources over their life which could help to mitigate threats to identity. This is referred to as the resilience reserve. This thesis details the potential domains of such a reserve. Further, it contains details of possible resilience strategies that a person with dementia might employ within stories of self. These strategies are placed within the context of protective and vulnerability factors in order that a resilience framework can emerge. This thesis argues for a re-framing of theories of what social work is. This, combined with a definition of resilience, and the development of a resilience practice framework could promote and realise the resilience of the person ageing with dementia.

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Pennington, Sarah C. E. "A longitudinal investigation into the effect of social support on depression and anxiety in dementia caregivers." Thesis, University of East Anglia, 2005. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.426812.

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Lett, Judy. "Utilization and evaluation of formal support services among informal caregivers of non-institutionalized elderly with dementia." Thesis, McGill University, 1994. http://digitool.Library.McGill.CA:80/R/?func=dbin-jump-full&object_id=55508.

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This study explored the utilization and evaluation of formal support services among caregivers of the elderly who suffer from dementia. Data for the analyses were obtained from the Canadian Study on Health and Aging, funded by Health and Welfare Canada (1991-92). The sample consisted of 327 informal caregivers of non-institutionalized elderly with dementia.
Results indicated that formal support service users cared for demented elderly who had greater ADL/IADL functional limitations, reported more burden, tended to be husbands, tended not to live with the care recipient, reported less informal support, and tended to live in the Prairie region. They also tended to perceive their health to be better than a year ago. Service users' reports indicated that utilization of in-home services was considerably greater than that of out-of-home services. Out-of-home respite and caregiver support groups had the largest number of barriers to use. The most common barriers identified for all services included cost and perceived lack of effectiveness.

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Edwards, Angela Catherine. "An Evaluation of a Specialist Multi-Agency Home Care Support Service for Older People with Dementia." Thesis, University of Nottingham, 2008. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.517848.

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Penny, Katherine Elizabeth. "The use of Telecare to support people with dementia to remain living in their own homes." Thesis, University of Southampton, 2018. https://eprints.soton.ac.uk/422201/.

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There are currently 820,000 people in the United Kingdom living with dementia and around 670,000 partners, family members, and friends providing them with support. The behavioural disturbances and memory loss that typify dementia can make the role of caregiver extremely challenging. The consequent burden that many carers experience is closely associated with the care receiver’s admission into institutional care. Due to the UK’s ageing population, the number of people with dementia is set to rise to over one million by 2021. Consequently, the UK government is keen to explore different options to support carers, and to meet the increasing demand on care services. One such option is telecare, which uses information and communication technology to help manage the risks of community living for people with dementia, and to support care delivery. This thesis presents a hybrid simulation model, TeleDem, which explores the influence of telecare on the number of people with dementia able to remain living in their own homes. Discrete Event Simulation (DES) is a widely used Operational Research (OR) tool for modelling complex stochastic systems, and its successful use in healthcare applications and care pathways has been well documented. The hybrid approach used in this thesis enhances the capability of DES by combining it with elements of Agent Based Simulation (ABS) in order to capture the complexity of this human centric system. Statecharts, a key component of ABS, are used to convert the passive entities associated with traditional DES into autonomous beings (or agents) whose behaviour is determined by their environment and their interactions with other elements of the system. In the TeleDem model these transformed entities are better equipped to reflect the human beings they represent; capturing each person’s disease progression, level of dependency, and their informal carer’s level of carer burden. These factors then govern the person’s movement through the social care system. The TeleDem Simulation models the potential experiences of thousands of hypothetical telecare service users. This enables the exploration of a range of scenarios to inform planning decisions for the provision of telecare services for people with dementia.

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Douglas, Lorraine. "Stress, coping and self-efficacy : designing an intervention to support informal caregivers of people with dementia." Thesis, Heriot-Watt University, 2017. http://hdl.handle.net/10399/3352.

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Informal caregivers of people with dementia are at an increased risk of negative outcomes, including stress, depression and physical ill-health (Ory et al., 1999). Attention has therefore been focussed on designing interventions to help prevent or reduce negative caregiving outcomes. Reviews have recommended that future research should provide interventions that are effective and cost-effective, theoretically-grounded and responsive to assessed needs (Gallagher-Thompson et al., 2012). The current thesis includes the design and testing of an intervention written to reduce negative caregiving outcomes by focussing on self-efficacy in informal caregivers of people with dementia. The intervention, designed to be brief in comparison with existing interventions, comprises three sessions covering different types of caregiving challenge: coping with behavioural aspects of dementia, coping with difficult feelings, and taking breaks. The intervention was initially pilot tested before being delivered in a quasi-experimental controlled study with informal caregivers (n=56), with intervention participants being able to choose whether to take part individually or in small groups. Intervention participants experienced significantly decreased caregiver burden compared to control participants (U=93.50, p=.016). Additionally, intervention participants reported being significantly less distressed by the symptoms of the person with dementia, compared to control participants (U=86.00, p=.015). However, no significant difference between groups was found on self-efficacy or depression, and possible reasons for this are discussed. A three-month follow-up (n=14) did not show sustained benefits of the intervention. In addition to the intervention study, two qualitative studies were carried out. The first was based on semi-structured interviews with informal caregivers of people with dementia (n=12) and ran concurrently with the intervention study, exploring the range of stressors and coping resources used by caregivers. Interpretative Phenomenological Analysis (IPA) was used to analyse the transcripts, which generated four major recurrent themes: Dementia and Change, Caring and the Self, Caring and Others, and The Care System. This study provided insights into the context in which interventions may be received by caregivers; in particular, it highlighted the complexity of caregiving experiences and the centrality of relationships. For example, accounts were given of families, friends and service providers either being a positive source of support or a contributor to stress, depending on the nature of the relationships. The second qualitative study followed the intervention study, and used IPA to analyse interviews with participants from both the group (n=4) and individual (n=2) intervention conditions. This study explored caregivers’ experiences of taking part in the intervention, and generated two recurrent themes: Sharing Experiences with Other Caregivers, and Meeting Needs. The analysis provided further insights into perceived benefits of the intervention for participants, and highlighted differing needs between group and individual participants. The results of these three studies are discussed in relation to current challenges and priorities for caregiver intervention research, and recommendations for practice are made. Further research is suggested to follow the outcomes of these studies, including development of a measure to gauge service-related sources of caregiving stress.

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May, Auriel Adele. "A person-centred AAC intervention to support interpersonal interaction in persons with dementia : an exploratory study." Thesis, University of Pretoria, 2020. http://hdl.handle.net/2263/78801.

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Background: The current mandate in dementia research is to develop interventions that are evidence-based and person-centred. However, person-centred augmentative and alternative communication interventions in dementia are limited. Method: A multimethod research design was conducted in three Phases. Phase one reviewed current research evidence to inform the development of a person-centred intervention. Phase two developed a person-centred augmentative and alternative communication intervention package with four components, (a) elements of person-centred care; (b) an electronic conversational support; (c) augmentative and alternative communication outcomes; and (d) an outcome measure. Phase three tested the feasibility of these four components by considering them in two ways (phase 3A and phase 3B). In 3A, Q-methodology was employed to obtain professionals’ viewpoints. In 3B, a case study was used to test the feasibility of the researcher’s implementation of an electronic conversational support with a participant with dementia and the scoring reliability of an outcome measure developed in this study. Results: Q-methodology results revealed professional views on (i) person-centred authorship, (ii) person-centred language style using supportive strategies (iii) adapted participatory methods with persons with dementia in their interventions. Case study results indicated that an electronic conversational support could be reliably implemented. Inter-rater reliability was not at an acceptable level for the multimodal domain of an outcome measure developed in this study. Conclusion: This study highlights the importance of using person-centred scaffolding strategies and exploring the potential of adapted participatory methods to develop and implement evidence-based, person-centred interventions in persons with dementia.
Thesis (PhD)--University of Pretoria, 2020.
Sponsor 1: National Institute for the Humanities and Social Sciences (NIHSS), in collaboration with the South African Humanities Deans Association (SAHUDA). Opinions expressed in this report and conclusions arrived at are those of the author and are not necessarily to be attributed to the NIHSS and SAHUDA. Sponsor 2: Andrew W. Mellon Foundation
Centre for Augmentative and Alternative Communication (CAAC)
PhD
Unrestricted

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Elliott, Ryan M. "The effect of prolonged support group attendance on depression among family caregivers to patients with dementia." Online version, 1999. http://www.uwstout.edu/lib/thesis/1999/1999elliott.pdf.

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Nordström, Sanne, and Rebecka Persson. "Stöd när minnet sviker : Stöd för person med demenssjukdom." Thesis, Högskolan i Halmstad, Sektionen för hälsa och samhälle (HOS), 2013. http://urn.kb.se/resolve?urn=urn:nbn:se:hh:diva-22195.

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Problemställning: Forskningen om stöd till personer som erhållit den medicinska diagnosen demenssjukdom är bristfällig. Även hur olika vårdteam med sjuksköterskor kan använda stödet, ordinera oberoende och få ordinerat beroende omvårdnadsåtgärder behöver kartläggas och vidareutvecklas. Vad erbjuds för stöd direkt till och hur kan sjuksköterskan stödja personer med demensdiagnos. Syfte: Syftet var att belysa stöd för personer med demenssjukdom.Metod: Studien genomfördes som en litteraturöversikt och baserades på 15 vetenskapliga artiklar. Dessa granskades, analyserades och kategoriserades för att finna stöd för personer med demenssjukdom. Resultat och Konklusion: I resultatet framkom sex kategorier som genererar stöd för personer med den medicinska diagnosen demenssjukdom, som benämndes: ”Behov och stöd”, ”Subjektiva upplevelser av stöd för person med demens”, ”Stödgrupper och föreningar”, ”Utbildning av vårdgivare”, ”Hjälpmedel” och ”Omgivning och miljö”.Implikation: Ytterligare forskning ur ett subjektivt perspektiv angående stöd för personer med demenssjukdom krävs för en ökad förståelse av vad stöd är för personer med demenssjukdom.
Problem: The research on support for people who have received themedical diagnosis of dementia is inadequate. Also, how different care teamswith nurses may use the support, prescribe independently and get prescribeddependent care measures need to be identified and developed. Whatkind of support is offered directly to and how can the nurse supportpeople with dementia diagnosis.Aim: The aim was to highlight the support for people with dementia.Method: The study was conducted as aliterature review and was based on 15 scientific articles. These were reviewed,analyzed and categorized in order to find support for people with dementia. Results and Conclusion: The results revealedsix categories that generate support for persons with the medical diagnosis ofdementia: ”Needs and support”, ”Subjective experience of support for peoplewith dementia”, ”Support-groups and compounds”, ”Education of caregivers”,”Tools” and ”Surrounding and environment”. Implication: Further research concerningsupport for people with dementia from a subjective perspective is needed for abetter understanding of what support is for people with dementia.

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Abika, Angela, and Evakajsa Jönsson. "Hur gör jag för att orka? : Stöd till närstående som vårdar en demenssjuk i hemmet." Thesis, Högskolan i Borås, Akademin för vård, arbetsliv och välfärd, 2017. http://urn.kb.se/resolve?urn=urn:nbn:se:hb:diva-11975.

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Det finns idag i Sverige många personer som har drabbats av en demenssjukdom. Att drabbas av demenssjukdom påverkar hela familjen och de närstående får ofta dra ett tungt lass vid vården av den sjuke. Många närstående sliter dygnet runt och löper därför stor risk att drabbas av hög stressbelastning och depression som följd. Demenssjukdom kan delas in i olika typer så som frontotemporal demens, Alzheimers sjukdom, vaskulärdemens. Olika typer av demens ger olika symtom men gemensamt är att de alla ger en kognitiv och känslomässig påverkan med bland annat nedsatt minnesfunktion, rastlöshet och oro. Syftet med studien var att undersöka vilka behov närstående som vårdar en demenssjuk i hemmet kan ha för att som sjuksköterska kunna stödja på bästa sätt. I denna studie har det använts elva artiklar varav sex är kvalitativa och tre kvantitativa samt två artiklar som var blandstudier med både kvalitativa och kvantitativa inslag. Analysen av materialet resulterade i två huvudkategorier vilka är kunskap om sjukdomen och kunskap om stöd som kan erbjudas, samt sex underkategorier. Resultatet visar att närstående har ett stort behov av utbildning och information, vilket de i dag inte tycker att de får tillräckligt av. De behöver dels kunskap om sjukdomen för att kunna förstå och ge en god vård, samt kunskap om sjukdomens utveckling för att kunna planera för framtiden. Det visar sig också att många närstående inte får tillräckligt information om hur de skall få kontakt med olika instanser, samt hur de kan söka olika stödåtgärder så som korttidsplats, dagverksamhet och avlösning i hemmet. För att närstående skall orka sköta den dagliga vården av den sjuke är det viktigt att han eller hon får tid att ta hand om sig själv. Som sjuksköterskor är det viktigt att ha en bra utbildning och en god förståelse för hur närstående och sjuka upplever sjukdomen, för att kunna ge en korrekt information samt att kunna stödja på bästa sätt.

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Russell, Alexandra. "Using life story boards to engage clinical support workers in person-centred care with people living with dementia in an NHS Inpatient Dementia Care Unit : a thematic analysis." Thesis, University of East Anglia, 2016. https://ueaeprints.uea.ac.uk/60986/.

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Person-centred care (PCC) is the recommended model of dementia care however there are challenges regarding how care staff implement PCC principles in practice. Life story work is one way for care staff to enact the principles of PCC in a structured way with people living with dementia. Life story boards are a less researched method of gathering and recording a life story but may provide a more visual and immediate impact on staff in their everyday clinical practice. Underpinned by elements of technical participatory action research (PAR), this study used life story boards to engage clinical support workers (CSWs) in PCC with people living with dementia in an inpatient dementia care setting. The study explored how these care staff reported their experiences of the process of creating life story boards and experienced PCC via this process. Semi-structured interviews were completed with seven CSWs pre and post-life story implementation to gather this data. Inductive thematic analysis identified four themes: the unit culture as a barrier to valuing PCC and the personhood of patients; ‘Us versus them’: CSWs positioning of their role; an altered view of the patient with dementia; and a sense of hope: getting past the barriers. Implications for clinical practice involve the importance of collaborative input and leadership from services, empowerment and support of CSWs, as well as commitment to PCC values at all levels of organisational structures so that the organisational culture does not impede life story work implementation for care staff such as CSWs. Using PAR elements and practice development approaches encourages these important clinical implications to be achieved. Recommendations for future research include maintaining focus on the more severe end of dementia in inpatient care and more research of the life story board format due to the boards not getting completed and displayed on the unit.

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Hamal, Pragya. "Evidenced-Based Support Services for Informal Caregivers of Individuals with Dementia in the United States, India, and Nepal." Bowling Green State University / OhioLINK, 2014. http://rave.ohiolink.edu/etdc/view?acc_num=bgsu1403796240.

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Jude, Caroline. "Depression, anxiety and social support of caregivers for people with dementia living at home or in residential care." Thesis, University of East Anglia, 2000. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.327202.

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Brooks, Deborah Jane. ""Bereavement without death": Improving psychosocial support of spousal family carers of people with dementia following placement into residential care." Thesis, Queensland University of Technology, 2020. https://eprints.qut.edu.au/201748/1/Deborah_Brooks_Thesis.pdf.

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This research explored the support needs of Australian spousal carers of people with dementia following residential care placement and piloted an evidence-based intervention to improve psychosocial outcomes. Overall, findings indicate that many spouses report high levels of stress, depression, guilt, and grief, but have not received any formal dementia education, counselling nor attended support groups. The pilot study found the Residential Care Transitions Module (developed in the US) to be feasible within an Australian context, with promising findings regarding acceptance of loss. The research adds to the evidence-base regarding the need for, and potential of, psychosocial interventions to improve support to spousal dementia carers post-placement.

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Smith, Hinders Julie Ann. "Unmet Support Needs of Informal Caregivers of Older Adults." ScholarWorks, 2019. https://scholarworks.waldenu.edu/dissertations/6375.

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Due to projected growth of the 65-and-older population and concerns of an impending care gap, reliance on informal caregivers is expected to increase. Improving support for informal caregivers is viewed as a national priority, yet research related to the unmet support needs of informal caregivers is limited. The purpose of this cross-sectional correlational study was to examine predictive relationships between contextual factors (caregiving relationship and type of illness) and environmental factors (rurality) and the unmet support needs (classes, service access, support groups, counseling, and respite) of informal caregivers of older adults. The theoretical framework was Bronfenbrenner's ecological systems theory. Archival data were drawn from the 2015 Behavioral Risk Factor Surveillance System optional caregiver module dataset provided by the Centers for Disease Control and Prevention. Findings from multiple logistic regression analysis revealed that spousal caregivers had 42.7% lower odds than adult child caregivers of reporting unmet support needs related to service access. Dementia caregivers had 2.05 times higher odds of reporting unmet support needs of counseling, 1.31 times higher odds of reporting unmet support needs related to service access, and 1.91 times higher odds of reporting unmet support needs for respite care, relative to other caregivers. Caregivers residing in a suburban county had 28.7% lower odds and caregivers not residing in a metropolitan statistical area (MSA) had 30.5% lower odds of reporting unmet support needs related to service access, relative to caregivers residing in the center city of an MSA. Health care leaders and policymakers may use the findings to distribute resources and tailor interventions to better meet the needs of informal caregivers of older adults.

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Siverth, Emelie, and Sandra Levisson. "Sjuksköterskors stöd till anhöriga som vårdar personer med demens : En litteraturöversikt." Thesis, Jönköping University, HHJ, Dep. of Nursing Science, 2008. http://urn.kb.se/resolve?urn=urn:nbn:se:hj:diva-6567.

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Uppskattningsvis lever 24 miljoner personer med en demenssjukdom idag, en siffra som förväntas öka. En demenssjukdom innebär ett lidande för personer med demens eftersom de som drabbas får svårigheter att sköta sitt dagliga liv. En demenssjukdom innebär också ett lidande för anhöriga. Över hela världen utför anhöriga den största delen av omvårdnaden för personer med demens. Anhöriga till personer med demens bär ofta ett stort ansvar och upplever sig psykiskt belastade, övergivna och i behov av stöd. Syftet med den här studien var att undersöka sjuksköterskors stöd till anhöriga som vårdar personer med demens. Studien genomfördes som en litteraturöversikt där 14 vetenskapliga studier granskades och analyserades. Huvudfynden visar att sjuksköterskorna gav både individbaserat och gruppbaserat stöd genom individuella behovsbedömningar, emotionellt och socialt stöd, samt stöd genom undervisning och information. Oavsett vilken typ av stödåtgärd som användes tycktes uppmärksamheten på och engagemanget för anhöriga vara det viktigaste stödet. De olika typerna av stödåtgärderna ledde till att anhöriga fick ökade färdigheter i omvårdnaden och till att anhörigas psykiska hälsa förbättrades. Det sågs att det är en viktig del i sjuksköterskornas arbete att uppmärksamma anhörigas behov, vara medvetet närvarande i mötet med dem och visa ett aktivt engagemang för dem.

Approximately 24 million people are living with a dementia disease today, a number which is expected to increase. A dementia disease entails suffering for persons with dementia because they experience difficulties in their daily life. A dementia disease also entails suffering for the relatives. All over the world the relatives are largely responsible for the caring of persons with dementia. Relatives to persons with dementia often carry a great deal of responsibility and a feeling of psychological burden, abandonment and they are in need of support. The aim of this study was to investigate how nurses can support the relatives caring for persons with dementia. A literature review was used where fourteen scientific articles were investigated and analyzed. The main findings showed that nurses gave both individually based and group based support through individual needs assessment, emotionally and social support, as well as support by teaching and information. Irrespective of the type of intervention it was the nurses´ attentiveness on and their commitment for the relatives that was the most important support. The different types of interventions resulted in that the relatives gained increased caring potential and experienced improved mental health. It was noticed that an important part of nurses´ work is to be attentive to the relatives´ needs, being consciously aware in the meeting with them and showing an active attentiveness for them.

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Eklund, Emelie, and Andersson Lovisa Lundberg. "Distriktssköterskans erfarenheter av att stödja närstående som vårdar en person som insjuknat i demens." Thesis, Linnéuniversitetet, Institutionen för hälso- och vårdvetenskap (HV), 2016. http://urn.kb.se/resolve?urn=urn:nbn:se:lnu:diva-53627.

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Bakgrund: Demens beskrivs som en sjukdom som berör hela familjen, varav närstående utgör en betydande del av vården av den sjuke i hemmet. Som en konsekvens av detta kan närstående uppleva negativ inverkan på fysisk och psykisk hälsa med nedsatt livskvalitet som följd. Distriktssköterskans förmåga att vara lyhörd för närståendes behov likaväl som patientens är därför av stor betydelse, för att kunna stödja närstående efter bästa förmåga med den hjälp de behöver. Dock föreligger svårigheter i distriktssköterskans arbete att tillgodose närståendes behov liksom att vara ett optimalt stöd. Syfte: Syftet med studien var att beskriva distriktssköterskans arbetssätt och förmågor liksom svårigheter att stödja närstående som vårdar en person som insjuknat i demens. Metod: Studien genomfördes som en intervjustudie med semistrukturerade intervjuer. Metoden var kvalitativ med induktiv ansats. Ändamålsenligt urval tillämpades vid rekrytering av deltagare. Inklusionskriterierna var distriktssköterskor inom hemsjukvården i två olika kommuner i södra Sverige, med måttlig till mycket erfarenhet inom området. Innehållet i intervjuerna analyserades med kvalitativ latent innehållsanalys enligt Graneheim och Lundman (2004). Resultat: Resultatet omfattade nio kategorier med tillhörande underkategorier. Kategorierna som skapades blev följande; “Distriktssköterskan vill utgå ifrån ett helhetsperspektiv”, “Distriktssköterskan vill arbeta preventivt genom varaktig kontakt med närstående”, “Att bli inkopplad sent är ett hinder i det hälsofrämjande arbetet”, “Teamsamarbete skapar förutsättningar för distriktssköterskan att ge stöd till närstående”,“En ömsesidig relation kan stödja närstående i den vårdande processen”, “Att uppmärksamma och vara lyhörd inför närståendes behov av stöd”, “Möjligheter att tillgodose behov av stöd försvåras av närståendes oförmåga att ta emot hjälp” samt “Att främja distriktssköterskans förmåga att uppmärksamma närståendes behov av stöd”. Dessa kategorier föll under två teman; “Att ligga steget före för att möta hela människan” och “Att finnas till hands och vara mottaglig för önskningar”. Slutsats: Det förekom skillnader mellan kommunerna huruvida distriktssköterskan i sitt sätt att arbeta använde rutiner eller inte. Distriktssköterskorna använder flera metoder för att stödja närstående som vårdar en person som insjuknat i demens, men upplever att de ibland blir inkopplade sent, något som hindrar dem i sitt hälsofrämjande arbete liksom möjligheterna att tillgodose ett optimalt omhändertagande. De önskade rutiner, mer utbildning inom området samt hjälpmedel som kunde underlättade deras arbete att uppmärksamma och identifiera närståendes mående och behov av stöd.
Background: Dementia is described as a disease that affects the whole family, whereof relatives are taking a considerable part of the caring in the home. As a consequence the related person can experience a negative impact on the physical as well as the psychological health. To be able to give good support the district nurse’s ability to read the related’s and the patient’s needs is of great importance. However, there are difficulties in the district nurse's work to meet the needs of related parties as well as to be an optimum support. Purpose: The purpose of the study was to describe the district nurse’s way of working and abilities as well as problems in supporting relatives who’s taking care of individuals with dementia. Method: The study was conducted as an interview study with semi-structured interviews. The method was qualitative with an inductive approach. Expedient selection was applied in the recruitment of participants. The inclusion requirement were district nurses in home care from two municipalities in southern Sweden, with intermediate or greater experience in the field. The content of the interviews were analysed using qualitative latent content analysis, as described by Graneheim och Lundman (2004). Result: The result includes nine categories with associated subcategories. The following categories were created; “The district nurse wants to originate from a holistic perspective”, ”The district nurse wants to work preventively through sustained contact with related parties”, “Becoming engaged late is a barrier in health promotion”, “Team collaboration creates conditions for the district nurse to provide support to related parties”, ”A mutual relationship can support related in the care process”, “Paying attention to and be responsive to related parties need of support”, “Opportunities to meet the needs of support is complicated by related parties' inability to accept help” and “Promoting the district nurse's ability to pay attention to related parties’ need off support”. These categories fell under two themes; “Staying ahead to meet the whole human” and “To be available and responsive to the desires of patients and related”. Conclusion: There were differences in using or not using procedures between the municipalities. The district nurses use several methods to support related who’s taking care of individuals with dementia, but feel that they are sometimes engaged late, which prevents them from providing health promotion and optimal care. The district nurses wished for routines, more education in the area as well as tools that could facilitate their work to highlight and identify related persons support needs and wellbeing.

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Jönsson, Hanna, and Anna Matilainen. "Sambandet mellan sorg, coping och stöd. En kvalitativ undersökning om anhöriga till yngre personer med demens." Thesis, Malmö högskola, Fakulteten för hälsa och samhälle (HS), 2013. http://urn.kb.se/resolve?urn=urn:nbn:se:mau:diva-26401.

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Demenssjukdom är oftast åldersrelaterad och utvecklas i senare ålder, men det finns personer och familjer som drabbas tidigare i livet. Rollen som anhörig kan vara både psykiskt och fysiskt påfrestande och är därför viktig att belysa. Syftet med studien är att undersöka det komplexa kvalitativa sambandet mellan sorg, copingstrategier och stöd hos anhöriga, när en närstående utvecklar demenssjukdom i tidig ålder. För att analysera datamaterialet som samlades in har kvalitativ innehållsanalys använts. Det som studien framför allt visar på är att det finns ett ömsesidigt samband mellan de tre komponenterna, där stödet utgör grunden. Ett väsentligt tema som framkom var sökandet efter trygghet. För att sorgearbetet ska kunna ta plats behövs ett tryggt samanhang. Genom rätt stöd kan det yttre sammanhanget förstärkas och kompensera för den otrygghet den förändrade situationen medför för de anhöriga. Hur det trygga yttre sammanhanget ser ut påverkar de copingstrategier som de anhöriga använder. Om sambandet studien visar på kan appliceras på fler områden inom socialtarbete kan insatser och stöd utformas utefter detta och en mer hanterbar vardag kan skapas.
Dementia is often age related and develops in a late stage of life but people can fall ill in a younger age. The roll of the close relative can be both psychologically and physically wearisome and hence important to emphasize on. The aim of the study was to explore the complex qualitative connection between the components grief, coping strategies and support among close relatives to a person developing dementia in a young age. Qualitative interview study method was used with semi structured interviews using an interview guide. Qualitative content analysis was applied. There is an interrelated connection between the three components, with the support as the foundation. A discovered central theme is the searching for security as this is a necessity for the grieving process ability. A satisfying support can enhance the external context and compensate for the insecurity the close relative experiences in this altering situation. The extent of the secure external context influences the chosen coping strategies by the affected close relatives. This study provides insight into the emotional situation of a close relative of a person who is developing dementia. A connection between the components have been found and described. The understanding of this connection could potentially be applied in other areas within social work and hence guide the chosen actions and support to create a more manageable everyday life for the client.

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Djapo, Hanna. "Närstående till äldre med demenssjukdom och deras upplevelser av stöd på äldreboenden : en kvalitativ studie." Thesis, Sophiahemmet Högskola, 2013. http://urn.kb.se/resolve?urn=urn:nbn:se:shh:diva-1370.

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Dukart, Jürgen. "Contribution of FDG-PET and MRI to improve Understanding, Detection and Differentiation of Dementia." Doctoral thesis, Universitätsbibliothek Leipzig, 2011. http://nbn-resolving.de/urn:nbn:de:bsz:15-qucosa-66495.

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Progression and pattern of changes in different biomarkers of Alzheimer’s disease (AD) and frontotemporal lobar degeneration (FTLD) like [18F]fluorodeoxyglucose positron emission tomography (FDG-PET) and magnetic resonance imaging (MRI) have been carefully investigated over the past decades. However, there have been substantially less studies investigating the potential of combining these imaging modalities to make use of multimodal information to further improve understanding, detection and differentiation of various dementia syndromes. Further the role of preprocessing has been rarely addressed in previous research although different preprocessing algorithms have been shown to substantially affect diagnostic accuracy of dementia. In the present work common preprocessing procedures used to scale FDG-PET data were compared to each other. Further, FDG-PET and MRI information were jointly analyzed using univariate and multivariate techniques. The results suggest a highly differential effect of different scaling procedures of FDG-PET data onto detection and differentiation of various dementia syndromes. Additionally, it has been shown that combining multimodal information does further improve automatic detection and differentiation of AD and FTLD.

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Dissertations / Theses on the topic 'Dementia support'

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