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1

Williams, Ruth. "Dementia services." Nursing Management 18, no. 3 (May 27, 2011): 11. http://dx.doi.org/10.7748/nm.18.3.11.s5.

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Tranmer, J. E., R. Croxford, and P. C. Coyte. "Dementia in Ontario: Prevalence and Health Services Utilization." Canadian Journal on Aging / La Revue canadienne du vieillissement 22, no. 4 (2003): 369–79. http://dx.doi.org/10.1017/s0714980800004232.

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ABSTRACTTo understand the impact of ongoing reform of mental health and dementia care in Ontario, an examination of prevalence and health services utilization rates is needed. However, there exists a gap in current prevalence and health services research specific to dementia care in Ontario. The objective of this study was to address these concerns using linked administrative databases to determine the incremental use of health services by elderly Ontarians with dementia. Overall, study results demonstrated that individuals with dementia used services in a pattern similar to non-demented persons, albeit at a higher level. Exceptions were women's use of hospital and home care services, where the most elderly women received significantly fewer services. Thus, the study provided important insight regarding the relative levels of health services used by demented Ontarians. Research in this area will become increasingly important as the population ages and the settings integral to dementia care and management shift and evolve.
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Anderson, David N. "Commissioning dementia services." Psychiatrist 37, no. 7 (July 2013): 246. http://dx.doi.org/10.1192/pb.37.7.246.

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4

Asquith, Ian. "An Interpretive Phenomenological Analysis investigation into service user and service provider views on dementia services." FPOP Bulletin: Psychology of Older People 1, no. 124 (October 2013): 51–57. http://dx.doi.org/10.53841/bpsfpop.2013.1.124.51.

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Since the person-centred care revolution, social psychological factors that contribute to the cognitive decline have been recognised. Increasingly, having an understanding of the person with dementia’s experience is now seen as an important element of care. One approach that has been neglected in the research is whether the person-centred care revolution has resulted in a change in attitudes from the service providers. This research investigated the attitudes of service users and service providers towards dementia services using an interpretive phenomenological analysis. The analysis suggests that service user themes included personal understanding of the illness, staff members, nature of support and limitations to services. Service provider themes focused on appropriate staff members, approach to dementia, personalisation, support and constraints to provision. The discussion outlines the similarities in the themes, practical implications, limitations and the direction of future research.
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Bannon, Sarah M., Mira R. Reichman, Katherine Wang, Simrit Uppal, Victoria A. Grunberg, and Ana-Maria Vranceanu. "A qualitative meta-synthesis of common and unique preferences for supportive services among persons with young onset dementia and their caregivers." Dementia 21, no. 2 (October 6, 2021): 519–39. http://dx.doi.org/10.1177/14713012211048118.

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Background and Objectives Young onset dementias (young onset dementia) produce a myriad of stressors for persons with young onset dementia and their caregivers, yet there is a critical shortage of supportive services that address their needs. To develop such services, it is necessary to first comprehensively understand persons’ with young onset dementia and their caregivers’ service preferences. Therefore, we conducted a meta-synthesis to integrate and summarize qualitative data on persons’ with young onset dementia and caregivers’ preferences for supportive services for young onset dementia, defined as support provided by medical providers, psychosocial interventions, and any other resources/services provided to promote positive adjustment in persons with young onset dementia and their caregivers. Research Design and Methods We searched five electronic databases for qualitative articles from inception to January 2020. We extracted and synthesized data from eligible articles using thematic analysis. After removal of duplicates, we screened 219 articles identified through database and hand searches. Findings Forty-three studies met our inclusion criteria. We extracted findings from these 43 studies on preferences within three a priori defined domains: 1) general characteristics of supportive services, 2) format and modality of supportive services, and 3) content for supportive services. Persons with young onset dementia and caregivers predominantly expressed common preferences, with some unique preferences based on their specific roles within the partnership. Discussion and Implications Persons with young onset dementia and their caregivers endorsed largely overlapping preferences, including having direct contact with providers and the ability to participate together in programs that have content and skills relevant to their specific needs and challenges. Findings can directly inform the format, content, and procedures of supportive services for persons with young onset dementia and their caregivers.
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Ion, Robin. "Dementia Services Development Centre." Nursing Standard 29, no. 33 (April 15, 2015): 30. http://dx.doi.org/10.7748/ns.29.33.30.s31.

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7

Brodaty, Henry, and Anne Cumming. "Dementia services in Australia." International Journal of Geriatric Psychiatry 25, no. 9 (August 23, 2010): 887–995. http://dx.doi.org/10.1002/gps.2587.

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8

Rockwood, Kenneth, and Ron Keren. "Dementia services in Canada." International Journal of Geriatric Psychiatry 25, no. 9 (August 23, 2010): 876–80. http://dx.doi.org/10.1002/gps.2590.

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9

Torian, Lucia, Emily Davidson, George Fulop, Laura Sell, and Howard Fillit. "The Effect of Dementia on Acute Care in a Geriatric Medical Unit." International Psychogeriatrics 4, no. 2 (September 1992): 231–39. http://dx.doi.org/10.1017/s1041610292001066.

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Treatment of dementia costs billions of dollars in long-term care and community services every year. Dementia also burdens the acute care system and may contribute to financial problems for hospitals serving large numbers of demented elderly. In a specialized geriatric medical unit devoted to acute care of the frail elderly, Alzheimer's disease and vascular and mixed dementias afflicted 63% of inpatients and were associated with excess consumption of nursing resources, complications of treatment, nosocomial infections, lengthy hospitalizations, and financial losses to the hospital. Due in part to the effects of dementia on mobility, continence, and nutrition, demented patients suffered more frequently from life-threatening infections, sepsis, iatrogenic disease, and prolonged hospital stays. Hospital losses were 75% higher for demented patients than for nondemented patients.Dementia affected the majority of acute care patients in this study. However, it was rarely coded as an admitting diagnosis, even though it may have been the proximate cause of the medical morbidity which led to the acute hospitalization. In addition, despite the significant impact of dementia on the hospital course and costs, it was a factor in hospital reimbursement in less than one third of cases. The results indicate that dementia was not considered to be an acute diagnosis, nor was it recognized as a complex medical illness. The impact of dementia on acute hospitalization, including the mechanisms by which dementia prolongs the hospital stay, requires further investigation.
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Lendon, Jessica, Manisha Sengupta, and Amanuel Melekin. "Dementia Specialization Among Adult Day Services Centers: National Study of Long-Term Care Providers." Innovation in Aging 5, Supplement_1 (December 1, 2021): 84. http://dx.doi.org/10.1093/geroni/igab046.320.

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Abstract Adult day services centers (ADSC) are a source of community-based care for persons with Alzheimer’s disease/other dementias. This study compares dementia specialized ADSCs (DSADSC) and their participants to other ADSCs that do not specialize in dementia care using the 2016-2018 National Study of Long-term Care Providers. DSADSCs account for 10% of all ADSCs and serve 15% of all ADSC participants with dementia. About half of DSADSC participants have dementia, compared to 30% in other ADSCs. A higher percentage of DSADSCs, compared to other ADSCs, were in the Midwest, were nonprofit, had a social model, and employed nursing aides. Fewer DSADSCs, compared to other ADSCs, provided nursing, mental health, and transportation services. More DSADSC participants were 75 years of age or older and needed assistance with eating and toileting. Findings may help identify how ADSCs, particularly, DSADSCs, meet the unique care needs of older adults with dementia.
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11

Blatch, Gary. "Person-centred Dementia Care - Making Services BetterPerson-centred Dementia Care - Making Services Better." Nursing Standard 21, no. 31 (April 11, 2007): 31. http://dx.doi.org/10.7748/ns2007.04.21.31.31.b603.

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LoGiudice, D., and A. Hassett. "Uncommon dementia and the carer's perspective." International Psychogeriatrics 17, s1 (September 2005): S223—S231. http://dx.doi.org/10.1017/s1041610205002048.

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There is much caregiving literature describing factors that affect carer burden, and interventions that may be useful for carers of those with common dementias such as Alzheimer's disease (AD). By contrast, relatively little information and few data are available on potentially diverse issues facing carers of those with uncommon dementias, such as frontotemporal dementia (FTD), Huntington's disease (HD) and human immunodeficiency virus (HIV) dementia. This paper highlights particular characteristics of caregiving for those with uncommon dementias, and the unique needs that may arise for this group of carers who often “fall between the net” of services and supports available. Further research into this area is required.
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Boersma, Froukje, Jan A. Eefsting, Wim Van Den Brink, and Willem Van Tilburg. "Care services for dementia patients: predictors for service utilization." International Journal of Geriatric Psychiatry 12, no. 11 (November 1997): 1119–26. http://dx.doi.org/10.1002/(sici)1099-1166(199711)12:11<1119::aid-gps702>3.0.co;2-h.

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Henderson, Catherine, Martin Knapp, Anthony Martyr, Laura D. Gamble, Sharon M. Nelis, Catherine Quinn, Claire Pentecost, et al. "The Use and Costs of Paid and Unpaid Care for People with Dementia: Longitudinal Findings from the IDEAL Cohort." Journal of Alzheimer's Disease 86, no. 1 (March 8, 2022): 135–53. http://dx.doi.org/10.3233/jad-215117.

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Background: The drivers of costs of care for people with dementia are not well understood and little is known on the costs of care for those with rarer dementias. Objective: To characterize use and costs of paid and unpaid care over time in a cohort of people with dementia living in Britain. To explore the relationship between cohort members’ demographic and clinical characteristics and service costs. Methods: We calculated costs of health and social services, unpaid care, and out-of-pocket expenditure for people with mild-to-moderate dementia participating in three waves of the IDEAL cohort (2014–2018). Latent growth curve modelling investigated associations between participants’ baseline sociodemographic and diagnostic characteristics and mean weekly service costs. Results: Data were available on use of paid and unpaid care by 1,537 community-dwelling participants with dementia at Wave 1, 1,199 at Wave 2, and 910 at Wave 3. In models of paid service costs, being female was associated with lower baseline costs and living alone was associated with higher baseline costs. Dementia subtype and caregiver status were associated with variations in baseline costs and the rate of change in costs, which was additionally influenced by age. Conclusion: Lewy body and Parkinson’s disease dementias were associated with higher service costs at the outset, and Lewy body and frontotemporal dementias with more steeply increasing costs overall, than Alzheimer’s disease. Planners of dementia services should consider the needs of people with these relatively rare dementia subtypes as they may require more resources than people with more prevalent subtypes.
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15

Powers, R. E., S. K. Powell, C. N. Schlough, and P. J. Whitehouse. "Autopsy Services for Dementia Patients." Gerontologist 29, no. 1 (February 1, 1989): 120–23. http://dx.doi.org/10.1093/geront/29.1.120.

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16

Jolley, David. "Services for patients with dementia." Psychiatric Bulletin 18, no. 7 (July 1994): 389. http://dx.doi.org/10.1192/pb.18.7.389.

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17

McNamara, George. "Dementia services in primary care." Practice Management 26, no. 8 (September 2, 2016): 28–29. http://dx.doi.org/10.12968/prma.2016.26.8.28.

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18

Gibson, D., B. Draper, R. Karmel, A. Peut, P. Anderson, G. Brien, and I. Seebus. "The hospital dementia services project." Alzheimer's & Dementia 5, no. 5 (September 2009): e10-e11. http://dx.doi.org/10.1016/j.jalz.2009.07.008.

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19

Woods, Bob, and Tina Maciejewski. "Dementia Services Development Centre Wales." FPOP Bulletin: Psychology of Older People 1, no. 76 (April 2001): 15–17. http://dx.doi.org/10.53841/bpsfpop.2001.1.76.15.

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20

Meesters, Corrie. "Signposts for dementia care services." FPOP Bulletin: Psychology of Older People 1, no. 76 (April 2001): 58–59. http://dx.doi.org/10.53841/bpsfpop.2001.1.76.58.

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21

Wellbrock, Elizabeth, and Joanna Hutchinson. "FIRST: Enhancing Agency Dementia Capability through Dementia-Specific Interventions and Supportive Services." Innovation in Aging 5, Supplement_1 (December 1, 2021): 743. http://dx.doi.org/10.1093/geroni/igab046.2761.

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Abstract Through the First Identify and Refer then Serve and Track (FIRST) Project, individuals and caregivers have critical connections to community organizations and resources to learn ways to handle living with memory problems. The FIRST project integrated new practices into existing programs to address gaps in service and piloted a new dementia-specific case management program. The initial intervention is a system-level change within the County of San Diego’s Aging & Independence Services (AIS) department to identify, pilot, and implement a brief Alzheimer’s Disease and Related Dementias (ADRD) screening tool. The tool was used by non-clinical personnel to identify potential ADRD cases. Individuals who screened positive for possible ADRD were referred to their physicians for an accurate diagnosis. The second intervention consisted of two components: a behavioral symptom management intervention for social workers to use in the home with caregivers and a dementia-specific case management program (including respite care) to improve quality of life and future planning for those with ADRD living alone or with a family caregiver. As of January 2021, 536 clients across several AIS programs have been screened for ADRD, of which, 60% screened positive. FIRST case management has served 196 clients, 70 who lived alone and 126 who lived with their caregiver. Respite was provided to 98 clients totaling to 3,666 hours. This poster evaluates the effectiveness of the program components in increasing dementia capability of an agency, and where applicable, its effect on caregiver burden and self-efficacy.
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Draper, Brian, Charles Hudson, Ann Peut, Rosemary Karmel, Natalie Chan, and Diane Gibson. "Hospital Dementia Services Project: Aged care and dementia services in New South Wales hospitals." Australasian Journal on Ageing 33, no. 4 (June 5, 2013): 237–43. http://dx.doi.org/10.1111/ajag.12042.

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23

Prescop, Krista L., Hiroko H. Dodge, Richard K. Morycz, Richard M. Schulz, and Mary Ganguli. "Elders With Dementia Living in the Community With and Without Caregivers: An Epidemiological Study." International Psychogeriatrics 11, no. 3 (September 1999): 235–50. http://dx.doi.org/10.1017/s1041610299005803.

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Background: Previous studies of dementia and family caregiving have focused on individuals seeking diagnosis and treatment, and have rarely been conducted in representative community samples. Identifying demented individuals participating in a community survey, we determined (a) the factors associated with demented elderly living alone; (b) the factors associated with the demented elderly having caregivers; (c) the factors associated with increased levels of burden among caregivers of persons with dementia. Population and Methods: During an epidemiological survey of a mostly rural U.S. community, the authors identified 116 noninstitutionalized elderly individuals with dementia. These individuals were classified into those living alone and those living with others; both groups were further classified into those with an without identifiable family caregivers. Characteristics of both caregivers and care recipients were examined. Results: Approximately a third of the subjects with dementia lived alone, and only half of them had caregivers. The average age of the caregivers was 67.4 years, and 73% of them were women. Almost half of the caregivers were spouses, whereas almost a third were offspring, of the demented individuals. Over two thirds of caregivers lived with the subjects. Female caregivers were significantly younger than male caregivers. Multivariate analyses revealed that subjects with dementia who were living alone were independently and significantly more likely to be women and to have dementias of shorter duration, lesser severity, and lesser functional impairment than those living with others. Demented subjects with caregivers were more likely to have greater dementia severity, functional impairment, and cognitive impairment and more current cognitive and behavioral symptoms than those without caregivers. Demented subjects whose caregivers reported higher levels of burden were more likely to be women and to have greater dementia severity, functional impairment, and cognitive impairment and more current symptoms than those whose caregivers had no/minimal burden. Conclusions: These results draw attention to the problems of persons with dementia living alone, particularly those without caregivers. Our data also provide epidemiological confirmation of previous clinical/volunteer studies of dementia caregiving, as well as a preliminary assessment of need in the community at large. Living arrangements and caregiver issues should be taken into account when planning services for the elderly.
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Rozsa, Michael, and Leon Flicker. "Assessing the Penetrance of Dementia Services." Healthcare 7, no. 3 (June 27, 2019): 81. http://dx.doi.org/10.3390/healthcare7030081.

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Introduction: This scoping review aims to identify studies that assess dementia case finding programs (such as memory clinics) on a population basis and specifically assess the impacts that these services have on the diagnosis and management of dementia within a specific population. Methods: We conducted a literature review using the PubMed database, Ovid search engine, and records identified from external sources. This review assessed studies that contained data on patients diagnosed with dementia within a set population, reviewed the impact of specialty services on the diagnosis and management of such patients, and evaluated how this compared to data estimates for that population catchment. Results: The literature review yielded 1106 unique studies, of which only five were determined to be relevant based on the inclusion criteria. There was considerable variation between the primary outcome measures of the five studies included, and a quantitative meta-analysis could not be performed. Discussion: There are currently limited data on the fraction of the total population of people with dementia that are diagnosed and managed by specialised dementia assessment services within a set population. Further studies investigating how these services impact the incidence and prevalence of dementia diagnosis and ongoing management are required.
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Morgan, Debra, Melanie Funk, Margaret Crossley, Jenny Basran, Andrew Kirk, and Vanina Dal Bello-Haas. "The Potential of Gait Analysis to Contribute to Differential Diagnosis of Early Stage Dementia: Current Research and Future Directions." Canadian Journal on Aging / La Revue canadienne du vieillissement 26, no. 1 (2007): 19–32. http://dx.doi.org/10.3138/1457-2411-v402-62l1.

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ABSTRACTEarly differential diagnosis of dementia is becoming increasingly important as new pharmacologic therapies are developed, as these treatments are not equally effective for all types of dementia. Early detection and differential diagnosis also facilitates informed family decision making and timely access to appropriate services. Information about gait characteristics is informative in the diagnostic process and may have important implications for discriminating among dementia subtypes. The aim of this review paper is to summarize existing research examining the relationships between gait and dementia, including gait classification systems and assessment tools, gait patterns characteristic of different dementias (Alzheimer's disease, vascular dementia, dementia with Lewy Bodies, and fronto-temporal dementia), and the utility of gait analysis in early-stage diagnosis. The paper concludes with implications for future research.
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Giebel, Clarissa, Sarah Robertson, Audrey Beaulen, Sandra Zwakhalen, Dawn Allen, and Hilde Verbeek. "“Nobody Seems to Know Where to Even Turn To”: Barriers in Accessing and Utilising Dementia Care Services in England and The Netherlands." International Journal of Environmental Research and Public Health 18, no. 22 (November 22, 2021): 12233. http://dx.doi.org/10.3390/ijerph182212233.

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Background: Accessing post-diagnostic care can be difficult for people with dementia and their informal carers. Little is known, however, about the determinants of barriers to access, and how these might vary between countries. The aim of this study was to explore potential inequalities in access to formal dementia care services between England and the Netherlands, specifically from more disadvantaged areas. Methods: This was a mixed-methods study, involving semi-structured qualitative interviews and a carer questionnaire. People with dementia and informal carers were recruited by clinicians. The postal survey was co-produced with people with dementia, informal carers, and health care professionals. The survey asked carers about their own and their relatives with dementia’s, social support service usage and financing; as well as how they were made aware of services and whether they required more support. Qualitative transcripts were analysed by two researchers in each country using thematic analysis. Results: A total of 103 carer questionnaires were received by post and 13 interviews were conducted with people with dementia and family carers between January 2020 and April 2020. Many services were accessed via self-funding. Thematic analysis generated five core themes: Health literacy; Having faith and lack of faith; Service suitability; Structural issues surrounding service provision; and Financing care. One major difference between both country’s systems of care were the case manager and network support which people with dementia and carers benefitted from in the Netherlands, which was rarely the case in the UK. Conclusions: People with dementia and informal carers need to be supported better in accessing formal dementia care services in both the UK and the Netherlands, whilst some learning can be taken to improve access.
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Lopez, Ruth Palan, Karen M. Rose, Lauren Kenney, Victoria Sanborn, and Jennifer Duncan Davis. "Managing Shame: A Grounded Theory of How Stigma Manifests in Families Living With Dementia." Journal of the American Psychiatric Nurses Association 26, no. 2 (March 13, 2019): 181–88. http://dx.doi.org/10.1177/1078390319832965.

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BACKGROUND: Alzheimer’s disease and related dementias are irreversible, progressive brain disorders that slowly destroy memory, language, problem solving, and cognition. In the United States, dementia is the fifth leading cause of death for people age 65 years and older. Early diagnosis could have important benefits stigma related to dementia remains a significant impediment to diagnosis, treatment, and accessing services. While a growing body of research documents the existence and negative outcomes of stigma, less is known about how dementia-related stigma produces ill effects. AIMS: The purpose of this study was to use qualitative methods to explore how stigma manifests within families from the perspective of family caregivers of people with dementia. METHOD: Using a grounded theory approach, we interviewed 13 family caregivers of people with dementia. RESULTS: Shame emerged as the central theme experienced by family caregivers of people with dementia. Attempting to manage shame, produced three categories of responses: (1) silencing and not calling attention to the symptoms, (2) concealing the diagnosis, and (3) shunning and avoiding contact. CONCLUSIONS: Shame may be an underlying mechanism by which stigma is enacted and perpetuated, resulting in caregivers’ isolation and delay in access to diagnostic and supportive services. Efforts to dispel the misconception that dementia is a shameful disease may be one way to diminish stigma.
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Whitfield, Kyle, and Susan Wismer. "Inclusivity and Dementia: Health Services Planning with Individuals with Dementia." Healthcare Policy | Politiques de Santé 1, no. 2 (January 15, 2006): 120–34. http://dx.doi.org/10.12927/hcpol.2006.17883.

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Roach, Pamela, John Keady, Penny Bee, and Kevin Hope. "Subjective experiences of younger people with dementia and their families: implications for UK research, policy and practice." Reviews in Clinical Gerontology 18, no. 2 (May 2008): 165–74. http://dx.doi.org/10.1017/s0959259809002779.

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Young-onset dementia (dementia in people under 65 years of age) remains an under-researched area of dementia care. As populations age in industrialized countries, dementia is set to increase: this includes dementias in younger people. Current estimates suggest there are over 15 000 younger people living with dementia in the UK, whilst dedicated services and research in this area remain limited. Younger people may be affected by rarer forms of dementia that can create various kinds of impairment in the individual. For example, as Boxer and Miller report, although memory can be affected, people with conditions such as frontotemporal dementia can present initially with personality changes as the primary symptom. Younger people may also have more difficulties with visuospatial and semantic tasks when compared with an person, and there are likely to be personal and societal implications for the entire family.
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Parish, Colin. "Dementia guide set to improve services." Learning Disability Practice 12, no. 10 (December 4, 2009): 5. http://dx.doi.org/10.7748/ldp.12.10.5.s6.

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McDonald, Ann, and Becky Heath. "Developing services for people with dementia." Working with Older People 13, no. 3 (September 25, 2009): 18–21. http://dx.doi.org/10.1108/13663666200900045.

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32

Cox, Nancy J., and Burton V. Reifler. "Dementia Care and Respite Services Program." Alzheimer Disease & Associated Disorders 8 (1994): 113–21. http://dx.doi.org/10.1097/00002093-199404000-00013.

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Cox, Nancy J., and Burton V. Reifler. "Dementia Care and Respite Services Program." Alzheimer Disease & Associated Disorders 8 (1994): 113–21. http://dx.doi.org/10.1097/00002093-199424004-00013.

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34

Corbett, Anne, and Clive Ballard. "Information provision services in dementia care." International Journal of Older People Nursing 6, no. 3 (August 30, 2011): 217–26. http://dx.doi.org/10.1111/j.1748-3743.2011.00289.x.

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35

Bentham, Peter, and Jenny La Fontaine. "Services for younger people with dementia." Psychiatry 4, no. 2 (February 2005): 100–103. http://dx.doi.org/10.1383/psyt.4.2.100.59105.

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Bentham, Peter, and Jenny La Fontaine. "Services for younger people with dementia." Psychiatry 7, no. 2 (February 2008): 84–87. http://dx.doi.org/10.1016/j.mppsy.2007.12.008.

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37

Wilson, K. C. M., and José Ferran. "Services for younger sufferers with dementia." Advances in Psychiatric Treatment 2, no. 6 (November 1996): 258–64. http://dx.doi.org/10.1192/apt.2.6.258.

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Prevalence and incidence rates of dementia in people under the age of 65 are difficult to determine. Surveys differ in design, examine different population samples and include varying levels of disease in estimating rates. Most of the surveys are small and are conducted through case note review.
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38

Reed, Jan, Caroline Cantley, Charlotte L. Clarke, and David Stanley. "Services for Younger People with Dementia." Dementia 1, no. 1 (February 2002): 95–112. http://dx.doi.org/10.1177/147130120200100105.

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39

Robinson, Andrew, Jean Elder, Carolyn Emden, Emma Lea, Paul Turner, and James Vickers. "Information pathways into dementia care services." Dementia 8, no. 1 (February 2009): 17–37. http://dx.doi.org/10.1177/1471301208099051.

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40

Learner, Sue. "Relatives' low expectations of dementia services." Nursing and Residential Care 15, no. 4 (April 2013): 186. http://dx.doi.org/10.12968/nrec.2013.15.4.186.

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Jolley, D. "Integrated services for people with dementia." Age and Ageing 37, no. 2 (March 1, 2008): 237. http://dx.doi.org/10.1093/ageing/afn018.

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42

Delany, Norma, and Henry Rosenvinge. "Presenile dementia: Sufferers, carers and services." International Journal of Geriatric Psychiatry 10, no. 7 (July 1995): 597–601. http://dx.doi.org/10.1002/gps.930100710.

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43

Forbes, Dorothy A., Debra Morgan, and Bonnie L. Janzen. "Rural and Urban Canadians with Dementia: Use of Health Care Services." Canadian Journal on Aging / La Revue canadienne du vieillissement 25, no. 3 (2006): 321–30. http://dx.doi.org/10.1353/cja.2007.0003.

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ABSTRACTThe purpose of this research was to examine the characteristics of older Canadians with dementia (compared to those without dementia), their use of health care services, and the impact of place (rural/urban) on use of services. Andersen and Newman's Behavioural Model of Health Services Use (1973) guided the study. A cross-sectional design used data from the Canadian Community Health Survey (CCHS) Cycle 1.1 (N=49,995 older Canadians; those with dementia =313). Results indicated that among Canadian females between the ages of 50 and 64, those with dementia were more likely than those without dementia to live in rural areas. Among females 80 years of age and over, those with dementia had higher levels of education and income than those without dementia. In addition, a higher proportion of white than of visible minority Canadians was afflicted with dementia. The results further suggest that Canadians with dementia primarily required support services and that they were more likely than persons without dementia to report that their health care needs were unmet. It is recommended that publicly funded national home care programs be expanded to ensure that the supportive services needed by this population are available.
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Bail, Kasia, Charles Hudson, Laurie Grealish, Kay Shannon, Saraah Ehsen, Ann Peut, Diane Gibson, Brian Draper, and Rosemary Karmel. "Characteristics of rural hospital services for people with dementia: Findings from the Hospital Dementia Services Project." Australian Journal of Rural Health 21, no. 4 (August 2013): 208–15. http://dx.doi.org/10.1111/ajr.12041.

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Arruda, Elizabeth H., and Olimpia Paun. "Dementia Caregiver Grief and Bereavement: An Integrative Review." Western Journal of Nursing Research 39, no. 6 (July 13, 2016): 825–51. http://dx.doi.org/10.1177/0193945916658881.

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Alzheimer’s disease and related dementias make up the fifth leading cause of death for individuals of 65 years of age and older in the United States. Seventy percent of these individuals will die in long-term care settings. The aim of this integrative review was to examine and synthesize the evidence on grief and bereavement in Alzheimer’s disease and related dementias caregivers. This review identified five critical gaps in the existing evidence: (a) a lack of ethnic and gender diversity among caregivers studied, (b) limited use of valid instruments to study dementia caregiver grief and bereavement, (c) no substantive research examining dementia caregiver grief and bereavement for caregivers whose family members die in long-term care, (d) a lack of evidence examining the effect of hospice services on dementia caregiver grief and bereavement, and (e) a lack of grief and bereavement interventions for dementia caregivers whose family members die in long-term care.
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Li, Xia, Qi Qiu, Yinghua Yang, Ling Sun, MinJun Jiang, chunling Gu, Ming Cui, and Xiang Lin. "BUILDING A CONTINUOUS DEMENTIA MANAGEMENT MODEL IN COMMUNITIES OF SHANGHAI." Innovation in Aging 3, Supplement_1 (November 2019): S444. http://dx.doi.org/10.1093/geroni/igz038.1665.

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Abstract Over 10 million people with Alzheimer’s disease or related dementias (ADRD) live in China. In Shanghai, the prevalence of ADRD is about 3-4% among aged 60 or older, and approximately 70-85% have never been diagnosed. This study reported the pilot testing results of a dementia management model launched by Shanghai Mental Health Center to build dementia friendly communities. The dementia management model links screening, diagnosis, care planning, treatment, and services, to improve dementia literacy and standard diagnosis rate. About 3,786 senior residents were screened using the AD 8 and MoCA scales. The cognitively intact group was suggested for annual check-up, while at -risk groups were referred to formal diagnosis and intervention. About 125 older adults with a mild cognitive impairment diagnosis were provided referrals for cognitive training, and 109 diagnosed with dementia were provided medical and social interventions. This management model adds to dementia awareness and education.
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Rose, Karen, and Ruth Palan Lopez. "THE IMPACT OF DEMENTIA STIGMA IN RECRUITING PARTICIPANTS INTO RESEARCH STUDIES." Innovation in Aging 3, Supplement_1 (November 2019): S592—S593. http://dx.doi.org/10.1093/geroni/igz038.2200.

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Abstract Despite efforts to increase awareness and education about Alzheimer’s disease and other dementias, persons with dementia and their family caregivers experience stigma. Dementia related stigma is associated with negative repercussions for those with the disease and their family caregivers. In our prior work, we identified shame as a mechanism by which stigma is enacted and results in isolating and delaying access to supportive services for family caregivers. As such, stigma may influence decisions to participate in research studies. Healthcare providers, friends and family, and society, in general, play roles that further perpetuate stigma in dementia. Best practices from the literature, coupled with our experiences and findings in recruiting persons with dementia and their family caregivers in to research studies will be examined.
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Tam, Mallorie T., Jill A. Dosso, and Julie M. Robillard. "Community and Provider Evaluation of a Canadian Dementia Support Services Program." Canadian Geriatrics Journal 25, no. 2 (June 1, 2022): 162–70. http://dx.doi.org/10.5770/cgj.25.548.

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BackgroundCommunity programs and services dedicated to support those living with dementia and care partners can improve their qual-ity of life. In close collaboration with the Alzheimer Society of British Columbia, we evaluated the First Link® dementia support services, aiming to identify key strengths and areas of improvements to inform the services offered. MethodsA survey instrument was developed and distributed to people living with dementia, care partners, and health-care providers. ResultsA total of 1,123 surveys were analyzed. Overall, respondents were satisfied with First Link dementia support services. Key strengths of the program included providing information and education for their clients to learn more about dementia and other resources in the community. Areas for improvement that were identified as part of this evaluation included additional supports for participants’ mental health and well-being in terms of reducing stress, burden and isolation. Findings uncov-ered discrepancies in the way people living with dementia, care partners, and health-care providers view the effectiveness of the First Link dementia support services. Conclusion An evaluation of programs and services for people living with dementia and their care partners can provide valuable insights about their experiences which can ensure that their needs are addressed.
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Manthorpe, Jill, and Helen Alaszewski. "Listening to the dementia workforce: Local providers' perceptions of dementia services." Quality in Ageing and Older Adults 3, no. 2 (June 2002): 22–29. http://dx.doi.org/10.1108/14717794200200012.

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Kwak, Jung, Kevin Smith, and Mercedes Bern-Klug. "Dementia Care Involvement and Training Needs of Social Services Directors in U.S. Nursing Homes." Innovation in Aging 5, Supplement_1 (December 1, 2021): 116. http://dx.doi.org/10.1093/geroni/igab046.445.

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Abstract This study describes social services directors’ involvement in dementia care in U.S. nursing homes, focusing on interest in and needs for dementia care training. Respondents were 841 social service directors from U.S. nursing homes. We found that 87% of social service departments engaged in cognitive assessment; 59% of social services directors were strongly interested in dementia care training, and 23% would need up to 10 hours of preparation time or would not be able to train staff on dementia-related care. Racial minority background, fewer years of experience in nursing homes, and barriers to staffing predicted strong interest in dementia care training. These findings demonstrate social services directors’ active involvement in dementia care and need for training.
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