Academic literature on the topic 'Cystic fibrosis in children'

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Journal articles on the topic "Cystic fibrosis in children"

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Staab, D. "Cystic fibrosis -- therapeutic challenge in cystic fibrosis children." European Journal of Endocrinology 151, Suppl_1 (August 1, 2004): S77—S80. http://dx.doi.org/10.1530/eje.0.151s077.

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Cystic fibrosis (CF) is the most common autosomal recessive disease with fatal outcome in Caucasians with a frequency of 1 in 2500 life births. It is caused by mutations in a single gene on the long arm of chromosome 7 encoding a protein called the cystic fibrosis transmembrane regulator (CFTR). The defect in CFTR leads to pathological changes in all organs with mucus-secretory glands, e.g. airways, pancreas, gut, biliary tract, vas deferens and sweat glands. Despite impressive advances in understanding the molecular basis of the disease, life expectancy is still limited in CF and chronic infection of the lung resulting in fibrosis and bronchiectasis followed by respiratory insufficiency is still the main factor in morbidity and the leading cause of death. Poor nutritional status is one of the major problems in the vicious cycle of chronic inflammation and lung destruction and its impact on outcome in lung function has been demonstrated. The possible role of growth hormone treatment in this context will be discussed.
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Maffessanti, Mario, Manila Candusso, Franca Brizzi, and Francesco Piovesana. "Cystic Fibrosis in Children." Journal of Thoracic Imaging 11, no. 1 (1996): 27–38. http://dx.doi.org/10.1097/00005382-199601110-00002.

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Slieker, Martyn G., Anne G. M. Schilder, Cuno S. P. M. Uiterwaal, and Cornelis K. van der Ent. "Children With Cystic Fibrosis." Archives of Otolaryngology–Head & Neck Surgery 128, no. 11 (November 1, 2002): 1245. http://dx.doi.org/10.1001/archotol.128.11.1245.

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Littlewood, J. M. "Fibrosing colonopathy in children with cystic fibrosis." Postgraduate Medical Journal 72, no. 845 (March 1, 1996): 129–30. http://dx.doi.org/10.1136/pgmj.72.845.129.

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Reichard, Kirk W., Charles D. Vinocur, Maria Franco, Kristin L. Crisci, Jonathan A. Flick, Deborah F. Billmire, Daniel V. Schidlow, and William H. Weintraub. "Fibrosing colonopathy in children with cystic fibrosis." Journal of Pediatric Surgery 32, no. 2 (February 1997): 237–42. http://dx.doi.org/10.1016/s0022-3468(97)90186-x.

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Klimov, L. Ya, S. V. Dolbnya, E. I. Kondratyeva, A. A. Dyatlova, E. A. Enina, V. A. Kuryaninova, A. N. Kasyanova, et al. "Vitamin d status during winter months among children and adolescents with cystic fibrosis living in southern Russia." Medical Council, no. 2 (February 16, 2019): 240–49. http://dx.doi.org/10.21518/2079-701x-2019-2-240-249.

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The article presents the results of vitamin D tests in children with cystic fibrosis and in healthy children living in the South of Russia. The study showed the high prevalence of vitamin D deficiency and inadequate levels in patients with cystic fibrosis (86.7%). 25(OH) D level characterizing the vitamin D status decreases progressively in patients and healthy children. With regard to the above mentioned, it is significantly lower in patients with cystic fibrosis than in healthy children in all age periods. The correlation between the serum calcidiol level and the age of patients with cystic fibrosis was r = -0.44 (p = 0.015). Intake of prophylactic (500--1000 IU/day) and therapeutic (1500--3000 IU/day) doses of cholecalciferol results in a less significant increase in calcidiol levels in patients with cystic fibrosis compared with healthy children. A significantly lower 25(OH)D level was detected in patients with cystic fibrosis infected withStaph. aureus.The 25(OH)D levels are significantly lower in children with cystic fibrosis and hypocholesterolemia, than in patients with normal cholesterol levels. Risk factors for the development of severe hypovitaminosis D in children with cystic fibrosis are age, physical developmental delay, exocrine pancreatic insufficiency, presence of chronicStaph. Aureusbronchopulmonary infection. Given the conducted study, the dosage of cholecalciferol in patients with cystic fibrosis should be at least 2 times higher than that in healthy children.
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Amarri, Sergio, Marilyn Harding, W. Andrew Coward, T. John Evans, and Lawrence T. Weaver. "13C and H2 Breath Tests to Study Extent and Site of Starch Digestion in Children with Cystic Fibrosis." Journal of Pediatric Gastroenterology and Nutrition 29, no. 3 (September 1999): 327–31. http://dx.doi.org/10.1002/j.1536-4801.1999.tb02423.x.

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ABSTRACTBackground:Starch is an important source of energy for children with cystic fibrosis, but little is known about their capacity to digest it.Methods:A 13C breath test was used to measure starch digestion and oxidation in 16 children with cystic fibrosis (median [range] age, 7.9 [4‐15] years; 7 girls, 9 boys) and 5 normal healthy control subjects (median age, 8.3 [7‐13] years; 3 girls, 2 boys). A test meal of 13C flour and lactulose was consumed and breath samples were obtained half‐hourly thereafter for 6 hours to measure 13C enrichment by isotope ratio mass spectrometry and H2 by electrochemistry. The test was repeated on 10 children with cystic fibrosis when they were taking pancreatic supplements.Results:The median (range) cumulative percentage 13C dose recovery (cPDR), was 35% (18‐52%) in control subjects, 18% (9‐33%) in children with cystic fibrosis without enzymes, and 29% (22‐51%) in those with pancreatic supplements. cPDR differed significantly between healthy control subjects and children with cystic fibrosis without enzymes (p = 0.01) and between children with cystic fibrosis with and without enzymes (p < 0.0001), but there was no difference between control subjects and children with cystic fibrosis taking enzymes (p = 0.5). Eight children with cystic fibrosis had a cPDR within control range, and in six there was a second peak in 13CO2 enrichment coincident with an increase in H2.Conclusions:Starch digestion and oxidation are diminished in children with cystic fibrosis, but pancreatic enzymes restored them to near normal levels. A second peak in 13CO2 enrichment, suggestive of colonic starch fermentation was absent in healthy children, but present in some children with cystic fibrosis and abolished by pancreatic enzymes.
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Burlutskaya, A. V., V. Yu Brisin, A. V. Statova, O. Yu Zenkina, and J. V. Pisotskaya. "Targeted Therapy for Cystic Fibrosis in Children." Innovative Medicine of Kuban, no. 4 (November 17, 2023): 142–47. http://dx.doi.org/10.35401/2541-9897-2023-8-4-142-147.

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A mutation in the CFTR gene causes the malfunctioning of the CFTR protein that is located on the apical membrane of epithelial cells and functions as a chloride channel. The discovery of CFTR modulators is an advance in cystic fibrosis treatment.Objective: To analyze modern Russian and foreign literature on targeted therapy for cystic fibrosis in children. We also describe the history of cystic fibrosis, evolution in its diagnosis and treatment, and mechanisms behind targeted therapy for cystic fibrosis.
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Daftari, Tahereh, Naser Havaei, Mandana Rezaei, and Babak Ghalibaf. "Occupational performance status and reliability of the Canadian Occupational Performance Measure in children with cystic fibrosis." International Journal of Therapy and Rehabilitation 27, no. 6 (June 2, 2020): 1–9. http://dx.doi.org/10.12968/ijtr.2019.0088.

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Background/Aims Cystic fibrosis affects the respiratory system and may interfere with an individual's occupational performance. This study intended to evaluate the reliability of the Canadian Occupational Performance Measure in children with cystic fibrosis and to compare the occupational performance of children with cystic fibrosis to that of healthy participants. Methods A total of 21 children with cystic fibrosis were included in the reliability and comparison phases of this study and 30 healthy children were recruited for the comparison phase. The Canadian Occupational Performance Measure was used to collect data on occupational performance and satisfaction. Intraclass correlation coefficients and standard error measurements were obtained to evaluate the reliability of the Canadian Occupational Performance Measure. An independent t-test was used to compare the occupational performance of the two groups. Results The test–retest reliability using a 7-day interval was 0.86–0.87 (standard error: 1.79–1.91). The agreement between therapists' scores for inter-rater reliability ranged from 0.87 to 0.90 (standard error: 1.44–1.68). There was a significant difference in performance subscale scores between children with cystic fibrosis and healthy children (P<0.05). There was no significant between-group difference in satisfaction scores. Conclusions The Canadian Occupational Performance Measure is a reliable tool for evaluating the occupational performance of children with cystic fibrosis. Cystic fibrosis directly and indirectly affects occupational performance. Children with cystic fibrosis and their parents may require help and education in the performance and organisation of activities and occupations.
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Stapleton, Denise, Deborah Kerr, Lyle Gurrin, Jill Sherriff, and Peter Sly. "Height and Weight Fail to Detect Early Signs of Malnutrition in Children With Cystic Fibrosis." Journal of Pediatric Gastroenterology and Nutrition 33, no. 3 (September 2001): 319–25. http://dx.doi.org/10.1002/j.1536-4801.2001.tb07464.x.

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ABSTRACTBackgroundMany children with cystic fibrosis grow poorly and are malnourished. This study was undertaken to determine whether extensive anthropometry could detect early signs of malnutrition in prepubertal children with cystic fibrosis to prevent deficits in height and weight.MethodsHeight, weight, six skin folds (triceps, subscapular, supraspinale, abdominal, front thigh, and medial calf) and five girths (arm relaxed, forearm, chest, thigh, and calf) were measured in a cross‐sectional study of children aged 6 to 11 years with cystic fibrosis.ResultsThe children with cystic fibrosis were shorter and lighter for their age and gender than those in the reference groups. The mean weight and height z scores for the girls with cystic fibrosis were lower than those for the boys, significantly so for z weight (P < 0.05). Although, the mean percent ideal body weight value of 98.6% suggested that the children with cystic fibrosis were adequately nourished, most of the measures of muscularity and adiposity of the children with cystic fibrosis were significantly lower than those of the reference group (P < 0.05). The z scores of the anthropometric measures revealed that the deficit in muscularity of the children with cystic fibrosis was relatively much greater than the deficit in adiposity.ConclusionsThe percent ideal body weight index does not seem to be an adequate measure of nutritional status in children with cystic fibrosis. Anthropometric assessments should include skin‐fold and circumference measurements of numerous sites on the upper and lower body, the trunk, and the limbs to detect deterioration in nutritional status early. Early detection of deficits in nutritional status may result in the adverse effects of malnutrition on height and weight, and possibly clinical status, being prevented.
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Dissertations / Theses on the topic "Cystic fibrosis in children"

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Gibson, Hannah Taylor. "Handgrip Strength in Children with Cystic Fibrosis." BYU ScholarsArchive, 2017. https://scholarsarchive.byu.edu/etd/6761.

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Background: Body mass index (BMI) is the primary accepted method to determine nutrition status in children with cystic fibrosis (CF); however, lean body mass (LBM) is more strongly associated with pulmonary function. Handgrip strength (HGS) measures muscle function and is reflective of LBM. The aims of this study were to assess if there was a relationship among HGS, nutrition status, and pulmonary function, to assess if HGS changed after hospitalization, and to assess if there was a relationship between HGS and nutrient intake. Methods: Twenty-three children with CF ages 6-18 years participated. BMI z-scores, nutrition risk scores, and pulmonary function were assessed about five months before, day 5-7 of, and about six weeks after hospitalization. HGS z-scores and arm anthropometrics were measured during and after hospitalization. Nutrient intakes were assessed during hospitalization. Results: Mean dominant HGS z-score was -1.95 ± 0.92 at hospitalization and -1.59 ± 1.06 at follow-up (p=0.007). Mean BMI z-score was -0.09 ± 0.64 at hospitalization and 0.06 ± 0.54 at follow-up (p=0.178). No significant relationship was found between HGS z-scores and BMI z-scores (p=0.892) or HGS z-scores and pulmonary function (p=0.340). Conclusions: HGS z-scores were lower than the standard even though mean BMI z-scores classified participants as normal nutrition status. Further research should be done utilizing a larger sample size in order to better examine HGS's potential as a nutrition assessment tool in this population.
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Bizzell, Laurie. "Maternal Stress and Cystic Fibrosis." Thesis, University of North Texas, 1996. https://digital.library.unt.edu/ark:/67531/metadc278693/.

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The purpose of the current study was to examine the relationship between parent and child factors for mothers of children diagnosed with cystic fibrosis to predict mother's psychological distress. Mothers were surveyed to identify measurement models in areas of Child and Parental characteristics and a Full Causal Model of Maternal distress. Factors related to Child Characteristics include general parental stressors and cystic fibrosis specific parental stressors. Factors related to Parental Characteristics include the mother's sense of parental competence and self-esteem. Additional factors related to the Full Causal Model include social support, major and minor life events, and demographics. Results were analyzed using LISREL IV structural equation modeling. Measurement model analysis found a good fit for the Child Characteristics model (Chi Square = 6.85, df = 4, JD = .144, Goodness of Fit Indices = .972) and Parental Characteristics model (Chi Square = 5.89, df = 3, p = .117, Goodness of Fit Indices = .971), but not for the full causal model of maternal distress (Chi Square = 114.98, df = 66, E = .000, Goodness of Fit Indices = .853)
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Modi, Avani C. "Adherence in children with cystic fibrosis and asthma." [Gainesville, Fla.] : University of Florida, 2004. http://purl.fcla.edu/fcla/etd/UFE0005641.

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Thesis (Ph.D.)--University of Florida, 2004.
Typescript. Title from title page of source document. Document formatted into pages; contains 94 pages. Includes Vita. Includes bibliographical references.
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Goodhart, Frances. "What children with cystic fibrosis know about their illness." Thesis, City University London, 2003. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.269436.

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Davidson, Joanna K. "Nutrition and Bone Density in Children with Cystic Fibrosis." DigitalCommons@USU, 2004. https://digitalcommons.usu.edu/etd/5521.

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The purpose of these studies was to further research on bone density in children with cystic fibrosis, particularly as it pertains to nutritional parameters and care. The first paper presented a comparison of a group of 50 children with cystic fibrosis to a group of 32 control children. There were no significant differences between the groups in any of the pertinent bone density measurements. Serum 25(0H) vitamin D was positively correlated with spine density z score in the cystic fibrosis group. The second paper, incorporating all of the information obtained from the first paper, describes an intervention study with the implementation of a fortified milk to determine the effects of additional calcium and vitamin D on bone density in the cystic fibrosis group. A follow-up bone scan was done. The fortified milk did not significantly improve bone density, but the fortified milk group did have significantly higher lung function scores on follow-up.
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Buntain, Helen Mary. "Clinical aspects of bone mass accrual in children and adolescents with cystic fibrosis /." [St. Lucia, Qld.], 2005. http://www.library.uq.edu.au/pdfserve.php?image=thesisabs/absthe19505.pdf.

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Dahné, Tova, and Tatyana Filonova. "Cystic Fibrosis and Physical Activity : Total Energy Expenditure and Physical Activity Levels in Children and Adolescents with Cystic Fibrosis." Thesis, Uppsala universitet, Institutionen för folkhälso- och vårdvetenskap, 2012. http://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-169166.

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Aim: The aim with the current study was to examine the physical activity levels (PAL) in a group of children and adolescents with cystic fibrosis (CF) and compare PAL-values between boys and girls. Further, the aim was to look at the total energy expenditure (TEE) estimated with an activity diary and measured with the accelerometer and compare values between these two measurement methods. Method: The sample consisted of 29 children and adolescents diagnosed with CF where PAL and TEE was measured during a three-day registration with activity diary and the ActiCal© accelerometer. The data was analyzed with the Mann-Whitney U-test. Results: The results indicated that the girls had a slightly higher median PAL-value than the boys. In addition, the range between the lowest and highest PAL-value was larger among the boys. The lowest PAL-value was lower among the boys than among the girls and the highest value was similar to the girls’ highest PAL-value. Overall, the subjective estimation of the PAL-values were slightly higher than what was objectively measured by the accelerometer. There was a slight difference between TEE estimated with the activity diary compared to the TEE measured by the accelerometer. There was no significant difference in PAL-values between boys and girls. Conclusion: There was no significant difference in PAL-value between boys and girls and that there was a slight difference in TEE estimated with the activity diary and measured with the accelerometer. Both methods of data collection are reliable enough when used together to produce a valid estimation of CF- children’s activity levels and TEE. The fact that both PAL and TEE values were higher in the activity diary may be because the participants perceived a higher level of physical activity then what was objectively measured with the accelerometer.
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Attard, Melanie Jane. "Carriers of responsibility : an existential encounter with parents who know their child is, or could be, a carrier of a mutation in the cystic fibrosis gene." Phd thesis, Faculty of Nursing and Midwifery, 2009. http://hdl.handle.net/2123/7883.

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Watson, Melissa. "Factors affecting the psychological adjustment of children with cystic fibrosis." Thesis, Open University, 2001. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.273318.

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Dakin, Carolyn Women's &amp Children's Health Faculty of Medicine UNSW. "Infection and inflammation in children with cystic fibrosis lung disease." Awarded by:University of New South Wales. Women's & Children's Health, 2009. http://handle.unsw.edu.au/1959.4/44624.

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The purpose of this study was to examine the relationships between inflammation, infection and lung function in cystic fibrosis during the evolution of lung disease in childhood and early adolescence. The developmental stages of childhood and the progression of lung disease together affected the methods and techniques used in the study, with the consequence that the work for this thesis fell naturally into two parts. The first part concerned the study of early lung disease in infants and young children who were unable to expectorate or to cooperate with lung function testing. In the second part, the inflammatory processes in both stable lung disease and during clinical exacerbations in older children and adolescents were studied non-invasively using sputum. The absence of a recognised definition of pulmonary exacerbation lead to further investigation into clinical heterogeneity in the diagnosis and management of an exacerbation. In early lung disease, inflammation was not found to be independent of infection, with pathogens in the lower airways found to correlate with levels of inflammation, respiratory system compliance and degree of air trapping (a relationship not previously shown). This suggested that infection remains the key target to minimizing lung damage in cystic fibrosis. The relationship between sputum markers of inflammation and lung pathology in established disease was found to be less clear, with high inflammation levels in both stability and during exacerbation. Reduction in sputum inflammatory levels following treatment of an exacerbation was found to be greater in those with lower pre-treatment levels. The definition and management of an exacerbation was found to be an area lacking consensus among clinicians, with likely consequent heterogeneity of clinical care and therefore inhomogeneity of hospitalization as a surrogate measure of exacerbation in a research setting. The work from this thesis, and the ensuing publications, has contributed to the understanding of the interactions between the inflammatory and infectious processes involved in CF lungdisease, in both early and more established lung disease in childhood.
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Books on the topic "Cystic fibrosis in children"

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Rosaler, Maxine. Cystic fibrosis. New York: The Rosen Pub. Group, 2007.

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Harris, Ann. Cystic fibrosis: The facts. 3rd ed. Oxford: Oxford University Press, 2003.

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Apel, Melanie Ann. Cystic fibrosis: The ultimate teen guide. Lanham, Md: Scarecrow Press, 2006.

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Orenstein, David M. Cystic fibrosis: A guide for patient and family. 4th ed. Philadelphia: Wolters Kluwer Health/Lippincott Williams & Wilkins, 2012.

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MacDonald, Anita. Eating well with cystic fibrosis: A guide for children and parents. Bromley: Cystic Fibrosis Trust, 1996.

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Parker, James N. The 2002 official parents's sourcebook on cystic fibrosis. Edited by Parker Philip M. 1960-, Icon Group International Inc, and NetLibrary Inc. San Diego, Calif: Icon Health Publications, 2002.

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United States. Congress. Senate. Committee on Small Business. Research on childhood diseases by entrepreneurs: Hearing before the Committee on Small Business, United States Senate, One Hundred Third Congress, second session ... Thursday, May 26, 1994. Washington: U.S. G.P.O., 1995.

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United States. Congress. Senate. Committee on Small Business. Research on childhood diseases by entrepreneurs: Hearing before the Committee on Small Business, United States Senate, One Hundred Third Congress, second session ... Thursday, May 26, 1994. Washington: U.S. G.P.O., 1995.

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Wineland, Claire. Every breath I take: Surviving and thriving with cystic fibrosis. Irvine, Calif: Business Ghost Books, 2012.

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Orenstein, David M. Cystic fibrosis: A guide for patient and family. New York: Raven Press, 1989.

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Book chapters on the topic "Cystic fibrosis in children"

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Mills, Hazel, and Mary MacFarlane. "Cystic Fibrosis." In Care Planning in Children and Young People's Nursing, 183–90. West Sussex, UK: John Wiley & Sons, Ltd,., 2013. http://dx.doi.org/10.1002/9781118785324.ch19.

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Batsche, George, and Hope Tunnicliffe. "Cystic fibrosis." In Health-related disorders in children and adolescents: A guidebook for understanding and educating., 204–12. Washington: American Psychological Association, 1998. http://dx.doi.org/10.1037/10300-029.

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Smith, Jeanette, and Keiko Aoyagi. "Cystic fibrosis." In Health-related disorders in children and adolescents: A guidebook for educators and service providers (2nd ed.)., 351–58. Washington: American Psychological Association, 2023. http://dx.doi.org/10.1037/0000349-042.

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Burton, Lindy. "Children with cystic fibrosis." In The Family Life of Sick Children, 6–21. London: Routledge, 2022. http://dx.doi.org/10.4324/9781003285397-1.

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Woodley, Frederick W., Rosara Bass, Don Hayes, and Benjamin T. Kopp. "GER in Cystic Fibrosis." In Gastroesophageal Reflux in Children, 95–121. Cham: Springer International Publishing, 2022. http://dx.doi.org/10.1007/978-3-030-99067-1_9.

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Brecelj, Jernej. "Gastroesophageal Reflux and Cystic Fibrosis." In Gastroesophageal Reflux in Children, 209–26. Cham: Springer International Publishing, 2017. http://dx.doi.org/10.1007/978-3-319-60678-1_15.

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Piper, Amanda J. "Sleep and Breathing in Cystic Fibrosis." In Sleep Disordered Breathing in Children, 365–83. Totowa, NJ: Humana Press, 2012. http://dx.doi.org/10.1007/978-1-60761-725-9_27.

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Murphy, Alexia J., and Peter S. W. Davies. "Anthropometry in Children with Cystic Fibrosis." In Handbook of Anthropometry, 1571–83. New York, NY: Springer New York, 2012. http://dx.doi.org/10.1007/978-1-4419-1788-1_96.

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Colombo, Carla, and Dominique Debray. "Hepatobiliary Disease in Cystic Fibrosis." In Diseases of the Liver and Biliary System in Children, 241–55. Chichester, UK: John Wiley & Sons, Ltd, 2017. http://dx.doi.org/10.1002/9781119046936.ch16.

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Colombo, Carla. "Hepatobiliary Disease in Cystic Fibrosis." In Diseases of the Liver and Biliary System in Children, 270–88. Oxford, UK: Wiley-Blackwell, 2009. http://dx.doi.org/10.1002/9781444300536.ch12.

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Conference papers on the topic "Cystic fibrosis in children"

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Ramasli Gursoy, Tugba, Tugba Sismanlar Eyuboglu, and Ayse Tana Aslan. "Non-cystic fibrosis bronchiectasis in children." In ERS International Congress 2021 abstracts. European Respiratory Society, 2021. http://dx.doi.org/10.1183/13993003.congress-2021.pa579.

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Shahin, Walaa, Ahmed Badr, Walaa Rabie, Rawdah Ahmed, Mona Mohsen, and Mona El-Falaki. "Early renal involvement in children with cystic fibrosis." In ERS International Congress 2018 abstracts. European Respiratory Society, 2018. http://dx.doi.org/10.1183/13993003.congress-2018.pa4627.

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Van Mason, A. J., W. C. Estrellado, K. Williams, E. Meier, C. E. Elson, S. Duehlmeyer, and C. M. Oermann. "Improving Pneumococcal Polysaccharide Vaccination in Children with Cystic Fibrosis." In American Thoracic Society 2019 International Conference, May 17-22, 2019 - Dallas, TX. American Thoracic Society, 2019. http://dx.doi.org/10.1164/ajrccm-conference.2019.199.1_meetingabstracts.a4635.

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Pollak, M., D. Wilson, M. Klingel, M. Solomon, and H. Grasemann. "Bronchodilator Response in Children with Cystic Fibrosis Pulmonary Exacerbations." In American Thoracic Society 2019 International Conference, May 17-22, 2019 - Dallas, TX. American Thoracic Society, 2019. http://dx.doi.org/10.1164/ajrccm-conference.2019.199.1_meetingabstracts.a5682.

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Cirstea, Olga, Oxana Turcu, and Ala Jivalcovschi. "P339 Nutritional status assessment in children with cystic fibrosis." In 8th Europaediatrics Congress jointly held with, The 13th National Congress of Romanian Pediatrics Society, 7–10 June 2017, Palace of Parliament, Romania, Paediatrics building bridges across Europe. BMJ Publishing Group Ltd and Royal College of Paediatrics and Child Health, 2017. http://dx.doi.org/10.1136/archdischild-2017-313273.427.

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McGarry, M., D. W. Nielson, and N. P. Ly. "Staphylococcus Aureus Acquisition in Hispanic Children with Cystic Fibrosis." In American Thoracic Society 2020 International Conference, May 15-20, 2020 - Philadelphia, PA. American Thoracic Society, 2020. http://dx.doi.org/10.1164/ajrccm-conference.2020.201.1_meetingabstracts.a2659.

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Combret, Yann, Clément Médrinal, Guillaume Prieur, Aurora Robledo Quesada, Pascal Le Roux, and Grégory Reychler. "Oxygen uptake kinetics in walking children with cystic fibrosis." In ERS International Congress 2018 abstracts. European Respiratory Society, 2018. http://dx.doi.org/10.1183/13993003.congress-2018.pa4618.

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Krivec, Uros, Marina Praprotnik, Malena Aldeco, Dusanka Lepej, Ana Kotnik Pirs, and Aleksandra Zver. "Flexible bronchoscopy in children and adolescents with cystic fibrosis." In ERS International Congress 2018 abstracts. European Respiratory Society, 2018. http://dx.doi.org/10.1183/13993003.congress-2018.pa627.

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Popin, Diana, Liviu Pop, Mihaela Dediu, Corina Pienar, Laura Savu, and Ioana Mihaiela Ciuca. "Lung function in children with cystic fibrosis liver disease." In ERS International Congress 2021 abstracts. European Respiratory Society, 2021. http://dx.doi.org/10.1183/13993003.congress-2021.pa3376.

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Ciuca, Ioana Mihaiela, Mihaela Dediu, and Liviu Laurentiu Pop. "Lung clearance index and lung ultrasound in cystic fibrosis children." In ERS International Congress 2018 abstracts. European Respiratory Society, 2018. http://dx.doi.org/10.1183/13993003.congress-2018.oa4988.

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Reports on the topic "Cystic fibrosis in children"

1

Garber, Alan, and Joseph Fenerty. Costs and Benefits of Prenatal Screening For Cystic Fibrosis. Cambridge, MA: National Bureau of Economic Research, October 1988. http://dx.doi.org/10.3386/w2749.

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2

Taub, Daniel, and Joshua Page. Cystic Fibrosis: Exploration of Evolutionary Explanations for the High Frequency of a Common Genetic Disorder. Genetics Society of America Peer-Reviewed Education Portal (GSA PREP), October 2013. http://dx.doi.org/10.1534/gsaprep.2013.004.

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3

Barros-Poblete, Marisol, Rodrigo Torres-Castro, Mauricio Henríquez, Anita Guequen, Isabel Blanco, and Carlos Flores. Dysbiosis as a prognostic factor for clinical worsening in chronic respiratory disease: A systematic review and metanalysis. INPLASY - International Platform of Registered Systematic Review and Meta-analysis Protocols, April 2022. http://dx.doi.org/10.37766/inplasy2022.4.0089.

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Review question / Objective: Is dysbiosis a prognostic factor for clinical worsening in patients with chronic respiratory diseases?. Condition being studied: Dysbiosis, defined as changes in the quantitative and qualitative composition of the microbiota. Eligibility criteria: Over 18 years old adult patients with chronic respiratory diseases clinical diagnosis (cystic fibrosis, chronic obstructive pulmonary disease, asthma, idiopathic pulmonary fibrosis, interstitial lung disease, sarcoidosis, bronchiectasis, non-CF bronchiectasis, pulmonary hypertension) according to the International Statistical Classification of Diseases and Related Health Problems (ICD) from OMS) and international guidelines of each disease.
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Borisova, Dayana, Tanya Strateva, Tsvetelina Paunova-Krasteva, Ivan Mitov, and Stoyanka Stoitsova. Phenotypic Investigation of Paired Pseudomonas aeruginosa Strains Isolated from Cystic Fibrosis Patients Prior- and Post-tobramycin Treatment. "Prof. Marin Drinov" Publishing House of Bulgarian Academy of Sciences, August 2018. http://dx.doi.org/10.7546/crabs.2018.08.05.

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Kofinova, Denica, Raina Shentova-Eneva, Petyo Hadzhiyski, Mila Baycheva, Diana Kyoseva-Shishkova, Penka Yaneva, and Daniela Avdjieva-Tzavella. Twodimensional Shear-wave Elastography for Assessment of Liver Fibrosis in Children. "Prof. Marin Drinov" Publishing House of Bulgarian Academy of Sciences, October 2021. http://dx.doi.org/10.7546/crabs.2021.10.17.

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6

Levi, Brittany E. Choledochal Cysts: In Brief with Dr. Alexander Bondoc. Stay Current, May 2022. http://dx.doi.org/10.47465/sc1.

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Choledochal cysts are a core pathology in pediatric surgery, affecting 1/100,000 live births in the western world, and 1/13,000 in eastern asia. These cysts are classified by the Todani classification, types I-V, in respect to their location and underlying pathophysiology. Infants and children presenting with stigmata of biliary disease should undergo evaluation for choledocal cyst. Workup includes axial imaging, ultrasonography, and laboratory investigation. A liver biopsy is necessary in neonates and newborns to rule out cystic biliary atresia, which would require further evaluation and management. Large choledochal cysts may be visualized on prenatal ultrasound, and warrant referral to a fetal care center for postnatal work up and monitoring. Management of choledochal cysts is dependent on the anatomic variant and spans from ERCP with sphincterotomy, to cyst excision with ductal and alimentary tract reconstruction. Type V choledochal cysts may require liver transplantation. Long term follow up is required due to an enhanced risk of future malignancy, even after resection.
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Levi, Brittany E., Rodrigo G. Gerardo, Alexander J. Bondoc, Rachel E. Hanke, Chandler Gibson, Ellen M. Encisco, and Todd A. Ponsky. Choledochal Cysts: In Brief with Dr. Alexander Bondoc. Stay Current, May 2022. http://dx.doi.org/10.47465/sc00001.

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Abstract:
Choledochal cysts are a core pathology in pediatric surgery, affecting 1/100,000 live births in the western world, and 1/13,000 in eastern asia. These cysts are classified by the Todani classification, types I-V, in respect to their location and underlying pathophysiology. Infants and children presenting with stigmata of biliary disease should undergo evaluation for choledocal cyst. Workup includes axial imaging, ultrasonography, and laboratory investigation. A liver biopsy is necessary in neonates and newborns to rule out cystic biliary atresia, which would require further evaluation and management. Large choledochal cysts may be visualized on prenatal ultrasound, and warrant referral to a fetal care center for postnatal work up and monitoring. Management of choledochal cysts is dependent on the anatomic variant and spans from ERCP with sphincterotomy, to cyst excision with ductal and alimentary tract reconstruction. Type V choledochal cysts may require liver transplantation. Long term follow up is required due to an enhanced risk of future malignancy, even after resection.
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