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Books on the topic 'Consent in research'

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Author: Grafiati
Published: 10 December 2022
Last updated: 28 January 2023

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1

Glahn, Sandra. Informed consent: A novel. Colorado Springs, CO: David C. Cook, 2007.

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2

Kim, Scott Y. H. Evaluation of capacity to consent to treatment and research. Oxford: Oxford University Press, 2010.

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3

1953-, Smyth Marie, and Williamson Emma, eds. Researchers and their "subjects": Ethics, power, knowledge, and consent. Bristol, UK: Policy Press, 2004.

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4

Salmons, Janet, and Kate Orton-Johnson. How to Understand and Gain Informed Consent for Internet Research. 1 Oliver’s Yard, 55 City Road, London EC1Y 1SP United Kingdom: SAGE Publications, Ltd., 2022. http://dx.doi.org/10.4135/9781529608113.

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5

Great Britain. Mental Health Act Commission. Research involving detained patients. Nottingham: The Commission, 1997.

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6

Menikoff, Jerry. Patients at risk: The hidden truth about medical research. New York, N.Y: Oxford University Press, 2006.

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7

American College of Physician Executives., ed. Medical risk and the right to an informed consent in clinical care and clinical research. Tampa, Fla: American College of Physician Executives, 1998.

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8

Manipulation and consent: How voters and leaders manage complexity. Vancouver: UBC Press, 1993.

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9

Ellickson, Phyllis L. An assessment of active versus passive methods for obtaining parental consent. [Santa Monica, Calif: Rand Corp.], 1989.

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10

Council for International Organizations of Medical Sciences. and World Health Organization, eds. International ethical guidelines for biomedical research involving human subjects. Geneva: CIOMS, 2002.

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11

Research involving persons with mental disorders that may affect decisionmaking capacity. Rockville, Md. (6100 Executive Blvd., Suite 5B01, Rockville 20892-7508): National Bioethics Advisory Commission, 1998.

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12

Tri-Council Working Group on the Ethics of Research Involving Humans (Canada). The ethics of research involving humans. [Toronto]: The Working Group, 1994.

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13

Genetic research on addiction: Ethics, the law, and public health. Cambridge: Cambridge University Press, 2012.

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14

Arscott, Katy J. [Assessing the ability of people with a learning disability to consent to treatment and research]. Birmingham: University of Birmingham, 1996.

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15

Marshall, Patricia Loomis. Ethical challenges in study design and informed consent for health research in resource-poor settings. Geneva, Switzerland: World Health Organization, 2007.

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16

Arscott, Katy J. Assessing the ability of people with a learning disability to consent to treatment and research. Birmingham: University of Birmingham, 1996.

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17

New York (State). Dept. of Health. Advisory Work Group on Human Subject Research Involving the Protected Classes. Recommendations on the oversight of human subject research involving the protected classes. [Albany?]: State of New York Dept. of Health, 1998.

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18

Natural Sciences and Engineering Research Council Canada, Social Sciences and Humanities Research Council of Canada, and Interagency Secretariat on Research Ethics (Canada), eds. Tri-council policy statement: Ethical conduct for research involving humans. Ottawa: Interagency Secretariat on Research Ethics, 2010.

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19

Price, David P. T. Human tissue in transplantation and research: A model legal and ethical donation framework. Cambridge, UK: Cambridge University Press, 2009.

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20

Bach, Michael. Seeking consent to participate in research from people whose ability to make an informed decision could be questioned: The supported decision-making model. [North York, Ont.]: Roeher Institute, 1996.

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21

Getz, Kenneth. Informed consent: A guide to the risks and benefits of volunteering for clinical trials. Boston, MA: CenterWatch, 2002.

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22

Ethical and legal requirements for transnational genetic research. München: C.H. Beck, 2010.

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23

Mettre en banque l'ADN: Enquête sur une biopolitique du consentement. Paris: L'Harmattan, 2010.

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24

Institute of Medicine (U.S.). Committee on Assessing the System for Protecting Human Research Subjects. Preserving public trust: Accreditation and human research participant protection programs. Washington, D.C: National Academy Press, 2001.

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25

Len, Doyal, and Tobias Jeffrey S, eds. Informed consent in medical research. London: BMJ, 2000.

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26

Tobias, Jeffrey. Informed Consent in Medical Research. Blackwell Publishing Limited, 2001.

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27

Sugarman, Jeremy, Jeffrey P. Kahn, and Anna Mastroianni. Beyond Consent: Seeking Justice in Research. Oxford University Press, 1998.

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28

Ray, Sumantra (Shumone), Sue Fitzpatrick, Rajna Golubic, Susan Fisher, and Sarah Gibbings, eds. Informed consent in a research setting. Oxford University Press, 2016. http://dx.doi.org/10.1093/med/9780199608478.003.0009.

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Abstract:
Informed consent is a legal requirement for all clinical trials conducted on human subjects. This chapter summarises the process for obtaining consent for non-clinical trial research and goes on to describe the more highly regulated consent process for clinical trials in investigational medicinal products (CTIMPs). The chapter defines consent and discusses the requirements for consent in capable adults. The process for CTIMP studies is outlined together with the required elements of consent to be documented in the patient information sheet and the process to be followed with withdrawal of consent is also described. Consent, assent and the concept of legal representatives in vulnerable groups is discussed including children and incapacitated adults. How to assess capacity is described along with consent in emergency situations. Formally documenting the consent process and how the information is given to the patient is vital. The role of the research team in consent is outlined. The investigator is advised to describe the process of consent and should identify which registered health professionals will undertake the process. In some situations a medically qualified person will be required to determine eligibility prior to enrolment, to discuss the study and assess capacity if necessary. A participant's decision to consent for research may be influenced by 'the research culture' in the country or the health care setting. Transparency and providing information continuously to participants throughout the study will re-assure them and reaffirm their willingness to continue.
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29

P, Kahn Jeffrey, Mastroianni Anna C, and Sugarman Jeremy, eds. Beyond consent: Seeking justice in research. New York: Oxford University Press, 1998.

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30

(Editor), Jeffrey P. Kahn, Anna C. Mastroianni (Editor), and Jeremy Sugarman (Editor), eds. Beyond Consent: Seeking Justice in Research. Oxford University Press, USA, 1998.

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31

Sugarman, Jeremy, Jeffrey P. Kahn, and Anna C. Mastroianni. Beyond Consent: Seeking Justice in Research. Oxford University Press, Incorporated, 2018.

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32

Glahn, Sandra. Informed Consent. David C. Cook Distribution, 2007.

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33

Alderson, Priscilla. Disabled People and Consent to Medical Treatment and Research (Consent Conference S.). Research & Education Association,U.S., 1993.

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34

Jeremy, Sugarman, and Hastings Center, eds. Empirical research on informed consent: An annotated bibliography. [Garison, NY: Hastings Center], 1999.

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35

European Neonatal Research: Consent, Ethics Committees and Law. Taylor & Francis Group, 2017.

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36

Megone, Chris, and Su Mason. European Neonatal Research: Consent, Ethics Committees and Law. Taylor & Francis Group, 2020.

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37

Megone, Chris, and Su Mason. European Neonatal Research: Consent, Ethics Committees and Law. Taylor & Francis Group, 2018.

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38

Megone, Chris, and Su Mason. European Neonatal Research: Consent, Ethics Committees and Law. Taylor & Francis Group, 2018.

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39

Megone, Chris, and Su Mason. European Neonatal Research: Consent, Ethics Committees and Law. Taylor & Francis Group, 2018.

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40

Megone, Chris, and Su Mason. European Neonatal Research: Consent, Ethics Committees and Law. Taylor & Francis Group, 2018.

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41

Megone, Chris, and Su Mason. European Neonatal Research: Consent, Ethics Committees and Law. Taylor & Francis Group, 2020.

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42

Megone, Chris, and Su Mason. European Neonatal Research: Consent, Ethics Committees and Law. Taylor & Francis Group, 2020.

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43

(Editor), Susan A. Mason, and Chris Megone (Editor), eds. European Neonatal Research: Consent, Ethics Committees and Law. Ashgate Publishing, 2001.

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44

Megone, Chris, and Su Mason. European Neonatal Research: Consent, Ethics Committees and Law. Taylor & Francis Group, 2020.

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45

Megone, Chris, and Su Mason. European Neonatal Research: Consent, Ethics Committees and Law. Taylor & Francis Group, 2018.

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46

Informed Consent: Information Production and Ideology. The Scarecrow Press, Inc., 2003.

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47

Schiff, Lisa R. Informed Consent: Information Production and Ideology. Scarecrow Press, Incorporated, 2003.

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48

Kim, Scott Y. H. Evaluation of Capacity to Consent to Treatment and Research. Oxford University Press, 2009.

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49

(Editor), Marie Smyth, and Emma Williamson (Editor), eds. Researchers and Their 'Subjects': Ethics, Power, Knowledge and Consent. Policy Press, 2004.

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50

Researchers and Their 'Subjects': Ethics, Power, Knowledge and Consent. Policy Press, 2004.

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