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Journal articles on the topic "Cittadinanzattiva"
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Votta, Mariano, Daniela Quaggia, Giulia Decarolis, Elena Moya, Josè Luis Baquero Ubeda, and Maira Cardillo. "Addressing the Life-Course Approach in Vaccination Policy across Europe: The Case History of Spain." Journal of Biomedical Research & Environmental Sciences 1, no. 7 (November 2020): 313–19. http://dx.doi.org/10.37871/jbres1161.
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In April 2019, the Italian NGO Cittadinanzattiva, through its international branch Active Citizenship Network (ACN) launched, during the European immunization week, a new project called “European Active Citizens for Vaccination”. The aim was to improve the awareness on the importance of vaccination across Europe: The scientific evidence is clear; vaccination is an essential public health tool and helps to guarantee our fundamental rights as European citizens. ACN realized a social media communication campaign supporting and spreading awareness on the topic of life-long vaccination, videos were made in all the national languages of the involved countries (Italy, Hungary, Poland, Ireland and Spain) and then produced, shared and customized for each country. Moreover, an informative leaflet in a different language was produced. Civic consultations on the National Immunization Plan were held in Poland, Hungary and Spain. This article describes the main results of the focus group held in Spain on the topic of vaccination and on its related policies. The full report has been published in the Report entitled “European Active Citizens for Vaccination: focus on Spain (2019 - 2020)” edited by Cittadinanzattiva APS.
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Votta, Mariano, Maira Cardillo, and Michaela Papavero. "Isolated but not alone: the response to the pandemic in the story of PAGs from the Italian case history to the Global Health Summit "Rome Declaration"." Advances in Health and Behavior 5, no. 1 (2022): 200–207. http://dx.doi.org/10.25082/ahb.2022.01.002.
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Struggling with practical problems such as the sudden cancellation of scheduled visits and exams and a sense of abandonment and uncertainty. This is how the "ordinary" patients lived the period of the health emergency in Italy. At the same time, civic and rights protection associations, since the beginning, have been active with a sense of responsibility, creativity, and energy, often revealing themselves to be the only point of reference and the only service available to citizens. This is the double side of the coin, in the implications of the pandemic on chronic and rare patients, which emerged from the XVIII National Report on Chronic Policies of Cittadinanzattiva, presented on October 13th, 2020, and entitled: "Isolated but not alone: the response to the pandemic in the story of Patients Advocacy Groups (PAGs)". The Report arised from the story of 34 Italian associations of patients with chronic and rare diseases who adhered to the National Coalition of Associations for Patients suffering Chronic Diseases (CnAMC) of Cittadinanzattiva. This experience thanks to Active Citizenship Network was first socialized on the occasion of the 15th European Patients’ Rights Day held on May 5th & 6th, 2021, and then brought to the attention of the leaders of the G20 and other states, gathered together with the heads of international and regional organizations on the occasion of the Global Health Summit held in Rome on May 21, 2021.
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Votta, Mariano. "Isolated but not alone: the response to the pandemic in the story of pags: from the italian case history to the global health summit “rome declaration”." Clinical Research Notes 3, no. 3 (April 30, 2022): 01–04. http://dx.doi.org/10.31579/2690-8816/057.
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Struggling with practical problems such as the sudden cancellation of scheduled visits and exams and a sense of abandonment and uncertainty. This is how the “ordinary” patients lived the period of the health emergency in Italy. At the same time, civic and rights protection associations, since the beginning, have been active with a sense of responsibility, creativity, and energy, often revealing themselves to be the only point of reference and the only service available to citizens. This is the double side of the coin, in the implications of the pandemic on chronic and rare patients, which emerged from the XVIII National Report on Chronic Policies of Cittadinanzattiva, presented on October 13th, 2020, and entitled: “Isolated but not alone: the response to the pandemic in the story of Patients Advocacy Groups (PAGs)” [1]. The Report arised from the story of 34 Italian associations of patients with chronic and rare diseases who adhered to the National Coalition of Associations for Patients suffering Chronic Diseases (CnAMC) [2] of Cittadinanzattiva [3]. This experience - thanks to Active Citizenship Network [4] - was first socialized on the occasion of the 15th European Patients' Rights Day held on May 5th & 6th, 2021 [5], and then brought to the attention of the leaders of the G20 and other states, gathered together with the heads of international and regional organizations on the occasion of the Global Health Summit held in Rome on May 21, 2021 [6].
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Votta, Mariano, Tiziana Toto, Cinzia Pollio, and Michaela Papavero. "Local public services and sustainable development goals: From a national perspective to a European joint action." Resources and Environmental Economics 3, no. 1 (2021): 245–50. http://dx.doi.org/10.25082/ree.2021.01.004.
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Local public services are a benchmark in the development of a sustainable society and attainment of the goals set by Agenda 2030. Therefore, it is necessary to gather information and hear directly from the citizens, who constantly deal with this realm, how their country performs in the provision of qualitative and sustainable services. In Italy, for instance, there is a low level of consideration and contentment in terms of the quality, management, and efficiency of public services. In particular, the local public transport sector stands out as the lowest rated by citizens. This manuscript has two main functions. First, it provides the results of a civic consultation conducted during 2020 in Italy by the Italian consumer organization Cittadinanzattiva APS, which informs about the perceptions and outlooks of citizens towards the reality of local public services that are a constant in their daily life. Second, it introduces a new political initiative promoted at European level in the field of sustainability and consumer protection: The Inter-Institutional Group “Sustainable Development Goals for well-being and consumers’ protection”, officially launched last February 16th, 2021. An initiative that represents the desire of the civil society to contribute to the SDGs, the “New Consumer Agenda” , and the “Green New Deal” and that aims at discussing and raising awareness on how each one of us as EU citizen can give their contribution, convinced that citizen and consumer’s empowerment should be the pillar of the transition towards a more inclusive and sustainable Europe.
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Votta, Mariano, and Maira Cardillo. "The National Recovery & Resilience Plans According to Citizens’ Perspective: will the EU regain its Leadership in Health? From the Italian Case History to the XVI European Patients’ Rights Day." Clinical Research and Clinical Trials 5, no. 2 (January 14, 2022): 01–05. http://dx.doi.org/10.31579/2693-4779/074.
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Healthcare, well-being, and a healthy lifestyle are vital for all of us. In this regard, the engagement of European citizens is key to improve the health system and it is necessary to provide a leading role to the people, the communities, intermediate bodies such as Patients' Advocacy Groups (PAGs), citizens organizations involved in healthcare issues and, more generally, to all actors that promote health as a common good. European institutions struggle to translate into concrete actions the many times highlighted principle relating to the involvement of actors of the civil society and PAGs in the management of health issues. The need to close the gap between the principles affirmed and the real involvement is even more serious when discussing about the management of serious cross-border threats to health. In line with its standing point, the civic organization Cittadinanzattiva [1], being deeply involved in health issues that promote civic participation in the policy-making activities both at the national level in Italy and, through its EU branch Active Citizenship Network (ACN) [2], also at the EU level, is working – of course not alone – to promote civic participation in the drafting and implementation process of National Recovery and Resilience Plans (NRRPs), with relevant political goals already achieved. As the Conference on the Future of Europe (CoFoE) [3] is approaching, emphasizing the great contribution of civil society to the success of the EU recovery plans is urgent and essential, now more than ever.
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Votta, Mariano, Ana Aviles, and Rossana Di Renzo. "Supporting Non-Communicable Disease Patients in Time of The Covid-19 Pandemic: From Motivating Them to Qualifying the Role of Their Caregivers." Women Health Care and Issues 5, no. 3 (May 4, 2022): 01–09. http://dx.doi.org/10.31579/2642-9756/111.
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Evidence collected globally during the pandemic show that Covid-19 has had a significant impact on patients suffering from non-communicable diseases (NCDs). Indeed, oncological and chronic patients have been left almost alone for several months, especially during the first wave of the pandemic. At the European level, the hope is that the measures adopted thanks to the Next Generation EU Fund [1] can have, in the shortest period possible, a significant impact towards more resilient healthcare systems in each Member State, in which the issue of health acts as a key element within their National Resilience and Recovery Plans (NRRPs). In addition to this, it is extremely essential to act on two sides: to motivate patients to not neglect their treatment path, and to support as much as possible the ones who informally help them in the shadow. In fact, behind every sick person there is often a caregiver, for many of whom every day the work of care takes up almost all of their daily time, with considerable expenditure of physical and mental energy. What is the situation of caregivers across Europe? While challenges faced by patients are a frequently discussed topic, not much is known about the issues caregivers face daily. To shed light on the latter in Italy has been a civic survey carried out along 2020 by the Italian NGO Cittadinanzattiva [2], engaged also at the European level in order to motivate patients and, as an Ambassador of the EU Pillar of Social Rights [3], committed with EU institutions to implement the 20 principles of the Pillar for the benefit of both patients and their caregivers.
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Amadori, Manuela, and Mariano Votta. "SDGs and the engagement of EU citizens: The role of behavioral science in the energy transition." Resources and Environmental Economics 3, no. 1 (2021): 239–44. http://dx.doi.org/10.25082/ree.2021.01.003.
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The EU’s ambitious targets to increase energy efficiency and cope with the challenge of climate change have pushed several stakeholders, including public authorities and Distributed System Operators (DSOs), to actively invest in the energy transition and improve energy efficiency. Although a significant part of this investment concerns digital infrastructure (i.e., smart meters) allowing citizens to monitor and better manage their consumption of energy, it is pivotal to recognize the necessity for changes in the overall energy-related behavior of consumers. Against this background, the NUDGE project seeks to first analyze the behavior of European citizens with concern the energy consumption and to consequently design and test nudging interventions on different segments of the population, in the hope to derive recommendations tailored to each country and to design more general policies at European level. Hence, pilot projects will be carried out in households, energy communities, and schools in five different EU countries, while a general profiling survey will be disseminated online across the EU. Indeed, in order to profile users and assess the impact of an intervention, NUDGE takes a mixed approach which combines field experiments and randomized control trials with surveys, on-site observations, and reports. The latter provide additional insights to the psychological and contextual variables that result in the behaviors evidenced in the trials. Fundamental to this research is the collaboration of the consortium’s partner Cittadinanzattiva-Active Citizenship Network with a number of civic and consumer organizations of different European countries that have shown their interest in the initiative and will collaborate in the dissemination of the online questionnaire in their country. Overall, this project is carried out with the ambition to of raising awareness of the projects’ major outcomes among the European institutions, starting from the Inter-Institutional Group “SDG’s for well-being and consumers’ protection,” which was launched at European level in February 2021 with the support of various Members of the European Parliament and the endorsement of 48 European and National Associations.
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Lo Scalzo, Alessandra, Anna Maria Vincenza Amicosante, Francesca Gillespie, Emilio Chiarolla, Tom Jefferson, Marina Cerbo, and Simona Paone. "OP79 Experimenting HTAi Patient Group Submission Template To Involve Patients." International Journal of Technology Assessment in Health Care 33, S1 (2017): 37–38. http://dx.doi.org/10.1017/s0266462317001593.
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INTRODUCTION:The Health Technology Assessment International (HTAi) community recognises the importance of including patients’ views from published research and systematically obtaining input from patient organizations (POs). The HTAi's Patients and Public Involvement Subgroup has elaborated the Patient Group Submission Template for HTA (HTA Template) to facilitate the collection of evidence from patients via POs involvement. In 2015 AGENAS outlined a procedure to involve POs and tested the HTA Template within a Health Technology Assessment (HTA) report on dialysis.METHODS:The HTAi template was translated into Italian and adapted to the HTA report's specific information needs: to understand patients’ experiences with different dialysis modalities and any delivery problems at the regional level. Some questions were reformulated, others were cut and two different versions of the template were used. One was tailored to POs representatives and the other to individual patients selected with a purposive sampling procedure. We provided the HTA Template to POs appointed by an umbrella organization, Cittadinanzattiva, for their input and to identify other relevant POs to be involved. We identified a list of four associations, based on geographical location and typology of patients. Each POs representative completed the first template and administered the second one to, at least one patient for each five dialysis modalities. AGENAS staff provided support on a cascade basis POs collected and returned all templates.RESULTS:Researchers performed a thematic analysis of the answers received and this input was introduced in the HTA report within the chapter on Patients Aspects. Patients’ experiences closely corresponded to the ones in our qualitative literature's systematic review. However, PO representatives templates revealed an important problem of equity in access to different dialysis modalities across regions that we highlighted in the HTA report's recommendations.CONCLUSIONS:One of the template's limitations was related to self-administration. In some cases, a lack of familiarity with communicating one's views in writing may have affected the survey's informative power. This pilot also demonstrated the need for a more inclusive involvement procedure, as some important POs were not initially represented by the umbrella organization.
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Calabrò, GE, M. Sassano, F. Moccia, A. Gaudioso, W. Ricciardi, and S. Boccia. "Citizens' knowledge and educational needs in the omics sciences field: results from an Italian survey." European Journal of Public Health 31, Supplement_3 (October 1, 2021). http://dx.doi.org/10.1093/eurpub/ckab165.295.
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Abstract Background Progress in genomics has crucial implications for public health. Therefore, a strategic line to define the promotion and governance of omics related innovation is necessary. In this context, citizens education is essential to allow appropriate decisions about their own health. Objectives As part of a project funded by the Italian Ministry of Health, we carried out in collaboration with an Italian civic organization (Cittadinanzattiva) a survey on citizens' attitude, knowledge, and educational needs in omics sciences field. On the basis of the results of two our literature reviews and of a survey with experts of the Italian Network of Genomics in Public Health (GENISAP), we developed an ad hoc questionnaire for citizens. It was developed in order to assess the current state of information on omics field in the Italian population. The survey was launched, through the Cittadinanzattiva channels, on October 29, 2020 and it was closed on April 15, 2021. Results As of April 2021, 359 responses have been collected. The average age of the participants was 46.04 ± 15.77 years. 73.5% of the participants had no knowledge of omics sciences and 66.6% of DTC-GTs. As regards the citizens' attitudes, 88.6% would change their lifestyle on the basis of the genetic tests results. 89.2% expressed doubts about the reliability of the information received through the media. Almost all believe that citizens are not adequately informed about omics sciences and DTC-GTs and that more training initiatives are necessary on these topics (omics sciences: 95.5%, DTC-GTs: 95%). Conclusions The omics sciences progress is linked to the need to develop a solid literacy of citizens. For this reason, effective tools of knowledge on the omics sciences field will have to be identified and implemented to improve citizens' literacy and engagement in this rapidly changing field. Key messages The progress of the omics sciences is related to the need to develop a solid literacy of citizens in order to enable them to make appropriate decisions about their own health. The current challenge is to identify effective methods of improving citizens' literacy and implementing them.
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"Addressing (Low) Back Pain in the Era of the European Pillar of Social Rights: Assessing Impact and Sharing Good Practices Across Europe." Global Journal of Surgery and Surgical Techniques, October 17, 2020, 1–7. http://dx.doi.org/10.46940/sphrj.02.1008.
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Abstract The manuscript provides the scientific society and experts involved in pain relief and patient empowerment with a good practice focused on low back pain (LBP). Such best practice is particularly relevant today, taking into account the important advancements in the fight against pain and the new context of the European Pillar of Social Rights. In particular, key principle N.17 on the “Inclusion of people with disabilities” declares that “People with disabilities have the right to income support that ensures living in dignity, services that enable them to participate in the labor market and in society, and a work environment adapted to their needs” [1]. In continuity with its long-term policy on the fight against pain, the Italian NGO Cittadinanzattiva APS [2], through its EU branch Active Citizenship Network [3] (ACN), has become an official Ambassador for the EU Social Pillar, following the invitation by the EU Commission-DG EMPL in 2020, in order to contribute to better implement the European Pillar of Social Rights for people suffering from chronic pain. This article has been written with the hope that the collection and dissemination of good practices against chronic pain, which ACN has been carried out across Europe for years, as well as the online publication of good practices by experts and committed operators, could be valued in the contest of the European Pillar of Social Rights and contribute to transfer the recent achievement on chronic pain from the European political agenda to the European culture as fast as possible.