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Journal articles on the topic 'Chronically ill children'

Author: Grafiati
Published: 4 June 2021
Last updated: 29 July 2024

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1

Vane, Julia R. "Dealing With Chronically Ill Children." Contemporary Psychology: A Journal of Reviews 31, no. 2 (February 1986): 150–51. http://dx.doi.org/10.1037/024533.

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2

Meleski, Debra D. "Families with Chronically Ill Children." American Journal of Nursing 102, no. 5 (May 2002): 47–54. http://dx.doi.org/10.1097/00000446-200205000-00036.

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3

Sochett, Etienne B., and Outi Mäkitie. "Osteoporosis in chronically ill children." Annals of Medicine 37, no. 4 (June 2005): 286–94. http://dx.doi.org/10.1080/07853890510007250.

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4

Jaudes, Paula Kienberger. "Neglect of Chronically Ill Children." Archives of Pediatrics & Adolescent Medicine 140, no. 7 (July 1, 1986): 655. http://dx.doi.org/10.1001/archpedi.1986.02140210053024.

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5

Blackford, Karen A. "The Children of Chronically Ill Parents." Journal of Psychosocial Nursing and Mental Health Services 26, no. 3 (March 1988): 33–36. http://dx.doi.org/10.3928/0279-3695-19880301-10.

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6

Kieckhefer, Gail M., Nicholas Hobbs, James M. Perrin, and Henry T. Ireys. "Chronically Ill Children and Their Families." American Journal of Nursing 86, no. 8 (August 1986): 975. http://dx.doi.org/10.2307/3425518.

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7

Smith, H. "Chronically ill children with their families." Archives of Disease in Childhood 61, no. 8 (August 1, 1986): 824–25. http://dx.doi.org/10.1136/adc.61.8.824-b.

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8

Martin, Sylvia S., Michael P. Brady, and Joseph A. Kotarba. "Families with Chronically Ill Young Children." Remedial and Special Education 13, no. 2 (March 1992): 6–15. http://dx.doi.org/10.1177/074193259201300203.

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9

Boling, Whitney. "The Health of Chronically Ill Children." Family & Community Health 28, no. 2 (April 2005): 176–83. http://dx.doi.org/10.1097/00003727-200504000-00009.

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10

B. Reichenbach, Mary Ann. "Promoting Normalcy in Chronically ill Children." Orthopaedic Nursing 15, no. 1 (January 1996): 37???42. http://dx.doi.org/10.1097/00006416-199601000-00008.

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11

Nelms, Bobbie Crew. "Emotional behaviors in chronically ill children." Journal of Abnormal Child Psychology 17, no. 6 (December 1989): 657–68. http://dx.doi.org/10.1007/bf00917729.

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12

Flegel, K. "Chronically ill children and fragile families." Canadian Medical Association Journal 186, no. 16 (October 14, 2014): 1195. http://dx.doi.org/10.1503/cmaj.141207.

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13

Cohn, Robert C., and Ben H. Brouhard. "Technical Skills in Chronically Ill Children." Clinical Pediatrics 39, no. 6 (June 2000): 347–49. http://dx.doi.org/10.1177/000992280003900604.

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14

Hobbs, Nicholas, M. James, Perrin, and Henry T. Ireys. "Chronically Ill Children and Their Families." MCN, The American Journal of Maternal/Child Nursing 11, no. 6 (November 1986): 424. http://dx.doi.org/10.1097/00005721-198611000-00022.

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15

WESOLOWSKI, CYNTHIA A. "Self-Contracts For Chronically Ill Children." MCN, The American Journal of Maternal/Child Nursing 13, no. 1 (January 1988): 20–23. http://dx.doi.org/10.1097/00005721-198801000-00008.

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16

Nisevic, Sanja. "The importance of social support to chronically ill adolescents." Medical review 59, no. 7-8 (2006): 331–34. http://dx.doi.org/10.2298/mpns0608331n.

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Introduction. Improvements in medicine have significantly prolonged life of chronically ill children and adolescents in the past several decades. There is a great variability in adaptation to illness among chronically ill persons - some of them seem to be very well adapted, with almost no problems. However, research results suggest that chronically ill children are more likely to have psychological problems than their healthy peers. Material and methods. Eighty-four subjects, all elementary school pupils, participated in the study. The first group included adolescents with chronical illness (malignant illness, insulin dependent diabetes mellitus, epilepsy, or asthma), and the second their healthy peers. Depression and social support were evaluated. The Birleson's Depression Scale and Perceived Social Support Scales (forms for friends and for family members) were used. Results and discussion. The results show significant differences for two of the three variables: depression, and perceived social support from family, while there was no significant difference for perceived social support from friends. The results suggest that chronically ill adolescents are more depressed and that they perceive that the social support they receive from their families is lower when compared to their healthy peers. Conclusion. The results of this study showed that chronically ill adolescents are more depressed than their healthy peers. This group of adolescents also perceives that they have less social support from their families than their healthy peers. When it comes to perceived social support from friends, these two groups do not differ. .
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17

Rauch-Elnekave, H., N. Gabbai, M. Spitz, and I. Weissman. "PITY? WHAT CHRONICALLY ILL CHILDREN REALLY NEED." EDTNA-ERCA Journal 29, no. 1 (January 3, 2003): 11–14. http://dx.doi.org/10.1111/j.1755-6686.2003.tb00266.x.

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18

WEIL, WILLIAM B. "Review of 'Neglect of Chronically Ill Children'." Archives of Pediatrics & Adolescent Medicine 140, no. 7 (July 1, 1986): 628. http://dx.doi.org/10.1001/archpedi.1986.02140210026017.

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19

Nakamura, Miho, Yuriko Kanematsu, Midori Yokota, Junko Takeda, Nobue Nakamura, Mitsue Maru, Kayuri Furuya, Miwako Noguchi, Masayo Uchida, and Youko Sugimoto. "Social Support of Chronically-ill Children and Healthy Children." Journal of Japan Academy of Nursing Science 17, no. 1 (1997): 40–47. http://dx.doi.org/10.5630/jans1981.17.1_40.

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20

Plisková, Barbora, and Petr Snopek. "Primary School Teachers’ Awareness of Chronic Diseases of Children." Acta Educationis Generalis 7, no. 3 (December 20, 2017): 111–21. http://dx.doi.org/10.1515/atd-2017-0028.

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Abstract Introduction: More and more children and adolescents suffering from chronic diseases are included in common school education. Unfortunately, teachers do not feel confident enough about how to cope, fulfil and satisfy the needs of these children in the educational, social and emotional spheres. The aim ofp this part of research was to discover how teachers work with chronically ill children of younger school-age. There were three aims. The first aim was to investigate if teachers have basic awareness and knowledge about selected chronic diseases in children of younger school-age. The second aim was to discover what experience and attitudes towards chronically ill children of younger school-age teachers have. The third aim was to discover, how the quality of school care of chronically ill children of younger school-age can be improved. Methods: We used qualitative research methodology. Data were processed and gathered from semi-structured interviews. Interviews were conducted with 12 teachers. Results: Our findings revealed that teachers should be acquainted with the disease itself and its consequences in all aspects. In some cases, teachers must be acquainted also with the practical aspects of a chronic disease, e.g. first aid and application of drugs and aids in order to assist children if necessary. Discussion: The study offers unique insights into primary teachers’ views and experiences with chronically ill children, how teachers work with chronically ill pupils of younger school-age and how the quality of school care of chronically ill children of younger school-age can be improved. Limitations: The research is still being conducted and therefore, it is not possible to provide more detailed results and conclusions. However, our main aim was to draw attention to the very problem from the point of view of teachers themselves and to highlight their vivid experiences. Conclusions: It is necessary to create interconnected networks of experts and families who will cooperate and communicate and who will participate in satisfying needs of a child together. These networks will ensure that children will be integrated into common school life in spite of their disease without serious consequences affecting their development and education.
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21

Leone, Giovanna, and Francesca D'Errico. "Che ruolo ha la condizione lavorativa materna nella tendenza ad aiutare troppo un figlio malato cronico?" PSICOLOGIA DELLA SALUTE, no. 2 (November 2009): 99–118. http://dx.doi.org/10.3280/pds2009-002007.

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- The article presents an empirical research aimed to explore if employed (vs. not employed) mothers of chronically ill children (vs. healthy ones) overhelp more their ill children and express more negative emotions (shame, anxiety or sadness) when helping them. Twenty mother-child dyads, balanced for the child gender, were videotaped during a 10 min. gaming simulation, evoking the child's need of being helped in relation to a simple problemsolving (puzzle). Results show that unemployed mothers tend to overhelp more their children when they are healthy (vs. chronically ill), while employed mothers tend to overhelp more their children when they are chronically ill (vs. healthy). During the helping game, unemployed mothers show significantly higher NVC's signals of anxiety, sadness and shame, and mothers of chronically ill children show higher NVC's signals of sadness and shame. Nevertheless, anxiety seem to be influenced by an interaction effect of mother's employment and health status of child, similar to the one shown by overhelp behaviour. Moreover, checking for the three observed negative emotions, a significant correlation was found only between overhelping behaviour and anxiety. The role of mother's employment as a risk or as a protection referring to the overhelping behaviour is discussed.Key words: overhelp, mother-child dyad, mothers' employment, negative emotions, anxiety, simulation gameParole chiave: sovraiuto, diade madre-bambino, occupazione materna, emozioni negative, ansia, gioco di simulazione
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22

Moura, Flávia Moura de, Áderson Luiz Costa Júnior, Meryeli Santos de Araújo Dantas, Gilvan da Cruz Barbosa Araújo, and Neusa Collet. "Playful intervention with chronically-ill children: promoting coping." Revista Gaúcha de Enfermagem 35, no. 2 (June 2014): 86–92. http://dx.doi.org/10.1590/1983-1447.2014.02.41822.

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Chronic diseases can adversely affect the development process of children. This qualitative, action-research study had the aim to analyze the effects of activities in the manual "Como Hóspede no Hospital" (As a patient in the hospital) on the coping process of children with chronic diseases. Study participants included six children and adolescents aged seven to 13 years, who suffered from a chronic disease. Data were collected in the pediatric clinic of a public hospital in the Brazilian state of Paraíba, through participant observation and individual sessions with activities from the manual. Data interpretation followed the principles of thematic analysis. The activities from the manual encouraged participants' search for information about their disease and treatment, and increased their interest and participation in their health care process, thereby contributing to better coping. The study points to the need for comprehensive care for children with chronic diseases.
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23

Powers, Gail M., Linda M. Gaudet, and Stephen Powers. "Coping Patterns of Parents of Chronically Ill Children." Psychological Reports 59, no. 2 (October 1986): 519–22. http://dx.doi.org/10.2466/pr0.1986.59.2.519.

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This study examined the coping patterns of 107 parents of chronically ill children in Southern Arizona. Coping patterns were measured with the Coping-Health Inventory of Parents. Mothers scored higher than fathers on strengthening the self and understanding the medical situation. Anglo-American parents scored higher than Hispanic-American on strengthening the self. No significant correlations were found between income, education or age with coping patterns of parents.
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24

Park, Eun Sook, Kee Hyoung Lee, Won Oak Oh, Yeo jin Im, and Eun ji Cho. "Parenting Experience of Parents with Chronically Ill Children." Child Health Nursing Research 21, no. 3 (July 31, 2015): 272–84. http://dx.doi.org/10.4094/chnr.2015.21.3.272.

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25

Sheetz, J. "Screening Parents of Chronically Ill Children for Depression." AAP Grand Rounds 26, no. 3 (September 1, 2011): 34. http://dx.doi.org/10.1542/gr.26-3-34.

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26

Spence, Linda J., and Lana Kaiser. "Companion Animals and Adaptation in Chronically Ill Children." Western Journal of Nursing Research 24, no. 6 (October 2002): 639–56. http://dx.doi.org/10.1177/019394502320555395.

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27

Seagle, Heather, Peggy Jessee, and M. Christine Nagy. "Altruism: Choices of healthy and chronically ill children." Early Child Development and Care 172, no. 6 (December 2002): 573–83. http://dx.doi.org/10.1080/03004430215097.

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28

Worchel-Prevatt, Frances F., Robert W. Heffer, Bruce C. Prevatt, Jennifer Miner, Tammi Young-Saleme, Daniel Horgan, Molly A. Lopez, William A. Rae, and Lawrence Frankel. "A School Reentry Program for Chronically Ill Children." Journal of School Psychology 36, no. 3 (September 1998): 261–79. http://dx.doi.org/10.1016/s0022-4405(98)00012-0.

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29

Giorgio, D., A. Liguori, T. Capriati, D. Elia, D. Marino, F. Romano, F. Bellucci, A. Cappelli, and A. Diamanti. "Nutritional status and morbidity in chronically ill children." Digestive and Liver Disease 48 (October 2016): e281. http://dx.doi.org/10.1016/j.dld.2016.08.106.

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30

Tew, Krisit, Garry L. Landreth, Kimberly D. Joiner, and Misty D. Solt. "Filial therapy with parents of chronically ill children." International Journal of Play Therapy 11, no. 1 (2002): 79–100. http://dx.doi.org/10.1037/h0088858.

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31

Fox, Harriette B., and Paul W. Newacheck. "Private Health Insurance of Chronically III Children." Pediatrics 85, no. 1 (January 1, 1990): 50–57. http://dx.doi.org/10.1542/peds.85.1.50.

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Accurate information regarding the adequacy of private health insurance coverage available to the families of chronically ill children is scarce. A national survey was conducted of firms offering health insurance to employees and their dependents. Data were collected concerning private health insurance coverage of services needed by chronically ill children, including basic medical care services, ancillary therapies, mental health services, and long-term care. Nearly all surveyed firms offered health insurance. Coverage of inpatient hospital care, outpatient physician services, medical supplies and equipment, x-ra y stuies, laboratory services, and prescription medications was widespread, but coverage of services such as physical therapy, speech therapy, occupational therapy, and nutrition services was much less prevalent. More than two thirds of the firms covered comprehensive home health services but often with limits and only in lieu of more expensive inpatient care. Longterm care, such as skilled nursing home care, was covered by only one third of firms. Overall, the survey results, combined with information concerning recent trends in private health insurance, reveal increasing coverage of lower cost alternatives to hospital or institutional care and improved maximum lifetime benefits and stop-loss coverage but also increased cost-sharing requirements. These results suggest that, although families with chronically ill children may have access to a widening range of services such as home health care or individual benefits management, they may be forced to bear an increasing proportion of the cost.
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32

Piette, John D., Ann Marie Rosland, Maria Silveira, Mohammed Kabeto, and Kenneth M. Langa. "The case for involving adult children outside of the household in the self-management support of older adults with chronic illnesses." Chronic Illness 6, no. 1 (March 2010): 34–45. http://dx.doi.org/10.1177/1742395309347804.

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Objectives: This study sought to (1) identify barriers to spousal support for chronic illness self-care among community-dwelling older adults; and (2) describe the potential availability of self-care support from adult children living outside of the household. Methods: Nationally representative US sample of chronically ill adults aged 51+ were interviewed as part of the Health and Retirement Study (N = 14,862). Both participants and their spouses (when available) reported information about their health and functioning. Participants also reported information about their contact with adult children and the quality of those relationships. Results: More than one-third (38%) of chronically ill older adults in the US are unmarried; and when spouses are available, the majority of them have multiple chronic diseases and functional limitations. However, the vast majority of chronically ill older adults (93%, representing roughly 60 million Americans) have adult children, with half having children living over 10 miles away. Most respondents with children (78%) reported at least weekly telephone contact and that these relationships were positive. Roughly 19 million older chronically ill Americans have adult children living at a distance but none nearby; these children are in frequent telephone contact and respondents (including those with multiple chronic diseases) report that the relationships are positive. Discussion: As the gap between available health services for disease management and the need among community-dwelling patients continues to grow, adult children—including those living at a distance—represent an important resource for improving self-care support for people with chronic diseases.
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33

Verbianova, O. M., E. V. Ulybina, and O. V. Gruzdeva. "COMPARATIVE ANALYSIS OF VOLUNTARY QUALITIES DEVELOPMENT AMONG HEALTHY AND FREQUENTLY AND CHRONICALLY ILL CHILDREN OF SENIOR PRESCHOOL AGE." Bulletin of Krasnoyarsk State Pedagogical University named after V.P. Astafiev 59, no. 1 (March 30, 2022): 106–15. http://dx.doi.org/10.25146/1995-0861-2022-59-1-321.

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Statement of the problem. The period of preschool age is a necessary and significant period for the beginning of the formation of the volitional aspect of the personality. This predetermines the interest in studying this issue. The relevance of studying the development of volitional qualities of frequently and chronically ill children is explained by an increase in the proportion of somatically sick children and becomes especially important in connection with the search for effective ways of raising these children. The purpose of this article is to study the systemic characteristics of the development of volitional qualities in healthy and frequently and chronically ill children in a comparative aspect. The methodological basis of the study includes the activity approach, cultural and historical concept of the development of higher mental functions, and the theory of internalization in the formation of mental functions. Theoretical research methods, empirical methods, and methods of statistical analysis were used. Research results. The study made it possible to reveal: the peculiarities of the development of volitional qualities in the group of healthy children and in the group of frequently and chronically ill children; the dynamics of the development of individual qualities; heterogeneity in the nature of the development of individual volitional qualities. The article provides a discussion of the revealed features in the development of volitional qualities of frequently and chronically ill children. Conclusion. The results allow us to assess the formation of volitional qualities in healthy and somatically sick contemporary preschool children. The presented information helps to build pedagogical work on the formation of volitional qualities in preschool children and to provide effective psychological and pedagogical assistance to children and their parents.
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34

Walęcka-Matyja, Katarzyna Kamila. "Family values vs parental involvement in families with a chronically ill child." Kwartalnik Naukowy Fides et Ratio 53, no. 1 (March 28, 2023): 47–61. http://dx.doi.org/10.34766/fetr.v53i1.1169.

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Introduction: The aim of the study was to determine the differences in family values and parental involvement in groups of parents raising a chronically ill child and a healthy child. In addition, it was checked whether family values allow predicting parental involvement. Method: The study was conducted using the CAWI method in a group of 160 adults, of whom 64 (40%) had a chronically ill child. Research tools with good psychometric properties were used: Familism Scale, Parental Involvement Questionnaire and a questionnaire. Results: It was found that mothers and fathers raising a chronically ill child achieved a statistically significantly higher intensity of the value expressed in striving for independence and self-sufficiency than parents of healthy children. Mothers raising a chronically ill child obtained statistically significantly higher scores in terms of general, valence and behavioural parental involvement than mothers raising a healthy child. Fathers raising a chronically ill child were characterized by lower scores in terms of general parental involvement, cognitive-emotional and behavioural involvement. In the group of parents raising a healthy child, as the value emphasizing the importance of material achievements increased, the intensity of the general parental involvement variable decreased. Conclusions: The results of the study complement the existing knowledge on selected psychological conditions of chronically ill children’s parents’ functioning.
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35

Bell, Megan F., Donna M. Bayliss, Rebecca Glauert, and Jeneva L. Ohan. "Developmental vulnerabilities in children of chronically ill parents: a population-based linked data study." Journal of Epidemiology and Community Health 73, no. 5 (February 21, 2019): 393–400. http://dx.doi.org/10.1136/jech-2018-210992.

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BackgroundCurrently, there is mixed evidence regarding the effects on children when a parent is chronically ill. Research has also primarily been conducted with adolescent samples. This study investigated developmental vulnerabilities in young children of parents with chronic illness.MethodsThis study used linked administrative data. The study population included children born in Western Australia during 2003–2004 (n=19 071; mean age 5.5 years). The outcome measure was a score in the bottom 25% on any of the five developmental domains (physical, social, emotional, communicative and cognitive) of the Australian Early Development Census (2009 collection). Parental chronic illnesses were identified from hospital and cancer registry records, during the period from 1 year prior to the child’s birth and until the end of 2009.ResultsHigher odds of developmental vulnerabilities in physical, social, emotional and communication domains were observed for daughters of chronically ill mothers. Sons of chronically ill mothers had increased odds of language and cognitive difficulties. Risk level increased with each additional year of exposure to maternal chronic illness. Results also indicated increased odds of developmental vulnerabilities for children of mothers experiencing multiple compared with single chronic conditions; however, results were not statistically significant (all p>0.05). No association between fathers’ chronic illness and children’s developmental outcomes was found.ConclusionsMaternal chronic illness is associated with an increased risk of poor developmental outcomes for children, particularly daughters. Healthcare services have an important role to play in linking families into appropriate family-centred services to best support the needs of chronically ill mothers.
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36

GIBSON, CHERYL H. "Facilitating critical reflection in mothers of chronically ill children." Journal of Clinical Nursing 8, no. 3 (May 1999): 305–12. http://dx.doi.org/10.1046/j.1365-2702.1999.00259.x.

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37

Hovey, Judith K. "Fathers Parenting Chronically Ill Children: Concerns and Coping Strategies." Issues in Comprehensive Pediatric Nursing 28, no. 2 (January 2005): 83–95. http://dx.doi.org/10.1080/01460860590950863.

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38

PELLETIER, L., G. GODIN, L. LEPAGE, and G. DUSSAULT. "Social support received by mothers of chronically ill children*." Child: Care, Health and Development 20, no. 2 (March 1994): 115–31. http://dx.doi.org/10.1111/j.1365-2214.1994.tb00858.x.

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39

Cantrell, Mary Ann, and Michelle M. Kelly. "Health-Related Quality of Life for Chronically Ill Children." MCN, The American Journal of Maternal/Child Nursing 40, no. 1 (2015): 24–31. http://dx.doi.org/10.1097/nmc.0000000000000090.

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40

Razaz, N., C. Hertzman, R. A. Marrie, H. Tremlett, and W. T. Boyce. "Children of chronically ill parents: the silence of research." Child: Care, Health and Development 40, no. 5 (August 11, 2014): 753–54. http://dx.doi.org/10.1111/cch.12120.

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41

Köhler, Lennart. "Chronically ill and handicapped children in the Nordic countries." International Journal of Rehabilitation Research 11, no. 2 (June 1988): 196. http://dx.doi.org/10.1097/00004356-198806000-00022.

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42

Belcher, John R. "Mothers Alone and Supporting Chronically Mentally Ill Adult Children." Women & Health 14, no. 2 (December 29, 1988): 61–80. http://dx.doi.org/10.1300/j013v14n02_05.

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43

Allen, Elizabeth R., Janet W. Horsley, and Patricia A. White. "School nutrition services for handicapped and chronically ill children." Journal of Nutrition Education 23, no. 5 (September 1991): 260C—261C. http://dx.doi.org/10.1016/s0022-3182(12)81285-4.

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44

Doron, Hadas, Meirav Hen, and Adi Sharabi-Nov. "Relationship Quality among Chronically Ill Children and their Parents." Journal of Child and Family Studies 27, no. 12 (August 13, 2018): 3866–76. http://dx.doi.org/10.1007/s10826-018-1228-8.

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45

Mahat, Ganga, Mary Ann Scoloveno, and Cassandra Barnette Donnelly. "Written educational materials for families of chronically ill children." Journal of the American Academy of Nurse Practitioners 19, no. 9 (September 2007): 471–76. http://dx.doi.org/10.1111/j.1745-7599.2007.00254.x.

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46

Rao, Pradeep, Prakash V. Pradhan, and Henal Shah. "Psychopathology and coping in parents of chronically ill Children." Indian Journal of Pediatrics 71, no. 8 (August 2004): 695–99. http://dx.doi.org/10.1007/bf02730656.

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47

Neff, John M. "Paid Family Leave for Parents of Chronically Ill Children." JAMA 300, no. 9 (September 3, 2008): 1080. http://dx.doi.org/10.1001/jama.300.9.1080.

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48

Günüşen, Neslihan Partlak, Marian Wilson, and Burcu Aksoy. "Secondary Traumatic Stress and Burnout Among Muslim Nurses Caring for Chronically Ill Children in a Turkish Hospital." Journal of Transcultural Nursing 29, no. 2 (January 30, 2017): 146–54. http://dx.doi.org/10.1177/1043659616689290.

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Purpose: This study investigated secondary traumatic stress and its relationship to burnout among nurses working at a Turkish hospital. Design: A mixed-methods design included a cross-sectional survey administering the Professional Quality of Life instrument and Maslach Burnout Inventory to 106 nurses. Interviews with a subgroup of eight participants explored nurses’ experiences and coping strategies related to caring for chronically ill pediatric patients. Results: High risk levels of secondary traumatic stress existed among 40.6% participants, and those over the age of 40 years were at greater risk. Two main interview themes emerged that identified (a) consequences and (b) coping strategies while caring for chronically ill children. Nurses experience emotional burdens and may purposefully distance themselves from chronically ill children. Social support from nurse colleagues and spiritual beliefs assist coping. Implications: Workplaces should acknowledge stressors inherent in chronic pediatric nursing care. Environments that welcome spiritual practices and actively encourage social support could address job hazards.
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49

Newacheck, Paul W., Dana C. Hughes, Jeffrey J. Stoddard, and Neal Halfon. "Children With Chronic Illness and Medicaid Managed Care." Pediatrics 93, no. 3 (March 1, 1994): 497–500. http://dx.doi.org/10.1542/peds.93.3.497.

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Abstract:
Incorporating these suggestions would necessitate a significant commitment of funds and other resources on the part of federal and state governments. This level of commitment is necessary if children with chronic conditions from low-income families are to receive appropriate care and their sponsors receive fair value. However, attending to the suggestions made in this commentary—while necessary—will not automatically assure that chronically ill children receive the services they need. All too often the emphasis of Medicaid managed care is on managing costs rather than managing care. It is only through a more enlightened perspective—one that places a greater emphasis on what is best for children and a lesser emphasis on what is best for budgets—that chronically ill children will receive the care they deserve.
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50

Fauman, Karen R., Kenneth J. Pituch, Yong Y. Han, Matthew F. Niedner, Janella Reske, and Ann Marie LeVine. "Predictors of Depressive Symptoms in Parents of Chronically Ill Children Admitted to the Pediatric Intensive Care Unit." American Journal of Hospice and Palliative Medicine® 28, no. 8 (March 30, 2011): 556–63. http://dx.doi.org/10.1177/1049909111403465.

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Abstract:
Objective: To identify factors in the pediatric intensive care unit (PICU) patient population that may result in increased risk of depressive symptoms in their parents. Design: Six-month, prospective, observational study in a tertiary-level PICU on parents of chronically ill children admitted to PICU. Parents were assessed by background questionnaire and standardized depression scale. Results: Data was compared to various markers such as child’s diagnosis, admission reason, palliative care diagnosis type (ACT code), and course/length of disease. Incidence of depressive symptoms in parents was inversely correlated with duration of child’s chronic illness. Parents of children admitted for planned postoperative management were more likely to report depressive symptoms compared to parents of children admitted for acute changes in health. Conclusion: Parents of certain chronically ill children may benefit from routine screening for depression.
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