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Dissertations / Theses on the topic 'Chronically ill children Care'

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Published: 10 December 2022

Last updated: 28 January 2023

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1

Bracey, Kimberly Vaunterice. "Experiences of Parents With Chronically Ill Children Regarding the Affordable Care Act." ScholarWorks, 2019. https://scholarworks.waldenu.edu/dissertations/6975.

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Ways in which the implementation of the Patient Protection and Affordable Care Act (ACA) affect parents with chronically ill children are not well understood. The purpose of this phenomenographic study was to gain greater insight into the perceived experiences of parents of chronically ill children regarding implementation of the ACA in a southern state. Argyris's intervention theory provided the framework for the study. Face-to-face interviews were conducted with a purposeful sample of 12 female parents who are caregivers of chronically ill children. Data were analyzed and coded to identify categories and themes. Findings indicated that parents view physicians and policymakers as key actors in their communities to create more equitable services for parents of chronically ill children through the expansion of Medicaid services in southern state. Many participants did not perceive that the ACA had made significant changes to services received prior to its implementation. Findings may assist health care providers, insurance companies, legislators, and other policymakers to develop appropriate health care policies and interventions to lessen the financial burden experienced by parents of chronically ill children. Providing more support services that address the physical, emotional, and financial needs of parents may improve the health outcomes of their chronically ill children.

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2

Spencer, Patricia E. "From morphine to milk of magnesia : a case study of children and families living with M.E." Thesis, University of East Anglia, 1997. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.338040.

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3

Ismail, Ahmad Faisal Bin. "Oral health status in children with type I diabetes mellitus." Thesis, The University of Hong Kong (Pokfulam, Hong Kong), 2014. http://hdl.handle.net/10722/206501.

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Diabetes mellitus is a metabolic disorder with varied etiology and diverse clinical course. World Health Organization (WHO) has distinguished three types of diabetes mellitus: insulin-dependent (Type I), non insulin-dependent (Type II) and associated with other disease and syndromes. Type I diabetes patients account for approximately 10% of all diabetics, in which children and adolescent almost exclusively develop Type I diabetes. Diabetes can be diagnosed on the basis of symptoms, such as excessive thirst appetite, polyuria, body weight reduction, glucosuria and hyperglycaemia, confirmed by laboratory test. Acute complications may develop in the course of diabetes, usually related to extreme level of plasma glucose. Chronic complications usually developed secondary to micro-vascular changes, causing damages to small vessels, nerves, multiple organs and oral cavity. The systematic review summarized the available evidence on the oral health of children with Type I diabetes mellitus. A total of 1179 abstract were retrieved during the initial search, and after exclusion, only 37 articles were qualified for final review and analysis. Though there was conflicting evidence regarding caries experience, it is clear that children with Type I diabetes mellitus exhibited poorer overall oral health status with higher plaque accumulation compared to healthy children. The case-control study aimed to evaluate and compare the oral health status of children with Type I diabetes mellitus with healthy, non-diabetic controls in Hong Kong. A sample of 64 children (32 Type I diabetes mellitus, 32 age- and gender-matched controls) were included in the study. The study concluded that children with Type I diabetes had poor oral health status with greater plaque deposition when compared to healthy, non-diabetic controls.
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Dental Surgery
Master
Master of Dental Surgery

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4

Halls, Terry T. "The experience of parents raising a child with special health care needs while living in a rural area." Laramie, Wyo. : University of Wyoming, 2008. http://proquest.umi.com/pqdweb?did=1798480931&sid=1&Fmt=2&clientId=18949&RQT=309&VName=PQD.

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5

Hattori, Keiko. "Good Death Among Elderly Japanese Americans in Hawaii." Diss., University of Hawaii at Manoa, 2007. http://hdl.handle.net/10125/22054.

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The purpose of this focused ethnographic study was to describe the patterns of a good death held by elderly Japanese Americans living in Hawaii. Eighteen "healthy active" elderly Japanese Americans were interviewed individually. In addition, supplementary data, such as interviews with experts and field observations were collected for triangulation of the data. Four themes were derived from 1224 keywords, 56 categories, and 13 patterns. These were: being a burden to the family, process of life and death, individual views on death, and Japanese culture in Hawaii. Being a burden to the family was the largest concern in the participants' idea of dying a good death. Having secure financial resources were key for adequate preparation. The elderly Japanese Americans believed that suffering at the end-of-life should be avoided in order to achieve a good death. Their concept of suffering included: unmanageable pain, being ill for a long time, and being bedridden. Several participants preferred a sudden type of death because they would not have to suffer and not be burdens their family. Contentment in life was also an important aspect of a good death. There was a common belief that the way a person lived was connected with the way he/she died. A number of the participants preferred to die in their own home. Hospitals and retirement homes were other alternatives for the place of death. Individual views on death contributed to establish the concept of good death among elderly Japanese American participants. They shared similar attitudes toward death which were a part of life and inevitable. These attitudes were influenced by religious beliefs and past experiences with death. Different generations of elderly Japanese Americans had different views. The Shin-Issei (first generation who immigrated after World War II) and the Nisei (second generation) held more Japanese views compared to the Sansei (third generation) who were more acculturated. Although the Japanese American parents and children might have different views on life and death, the importance of close family relations and family support was passed on to younger generations.

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6

Cavanagh, Ellyn Elizabeth. "Maintaining a childhood : a phenomenologic study of family experiences providing home care for chronically ill, technology-dependent children /." Thesis, Connect to this title online; UW restricted, 1999. http://hdl.handle.net/1773/7373.

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7

Rodriguez, Francisco Jose. "Oral mucositis in children receiving bone marrow transplantation." Thesis, Birmingham, Ala. : University of Alabama at Birmingham, 2008. https://www.mhsl.uab.edu/dt/2008m/rodriguez.pdf.

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8

Fiala, Samuel E. "Camp counselors working with chronically ill children." Texas A&M University, 2005. http://hdl.handle.net/1969.1/3210.

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A growing body of empirical evidence suggests that attending specialized summer camps is beneficial for chronically ill youth (Briery & Rabian, 1999). However, there is some inconsistency across studies regarding these benefits (Hazzard & Angert, 1986). One potential explanation for these differences across camps is that they may differ in how well they recruit and train effective volunteer camp counselors. This possibility cannot be explored until more research is conducted identifying what type of person volunteers to work with chronically ill children and how they differ from others. In response to this gap in the research literature, the present study was conducted to examine characteristics of volunteer camp counselors (n =72), a group of nonvolunteers (n = 325), and a group of volunteer mentors (n = 194). Guided by Omoto and Snyders (1990) volunteer process model, the investigation explored how counselors differed from others in terms of dispositional variables, knowledge, and experience; and the relation between these individual characteristics and ratings of counselor efficacy was explored. Changes in counselors knowledge of and/or attitudes toward chronically ill children after their camp experience were also examined. Results suggest that camp counselors differ from others in terms of dispositional characteristics (e.g., attachment style), knowledge, and experience. Specifically, counselors displayed higher levels of agreeableness, greater attachment security, more knowledge of chronic illness, and greater experience with chronic illness than nonvolunteers. Efforts to predict which counselors would be rated as most effective were unsuccessful. Counselors knowledge of illness increased over the course of their camp experience.

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9

Lindström, Caisa. "Burnout in parents of chronically ill children." Doctoral thesis, Örebro universitet, Institutionen för hälsovetenskaper, 2016. http://urn.kb.se/resolve?urn=urn:nbn:se:oru:diva-47391.

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Parents of children with a chronic disease are usually highly involved in their child’s treatment and may be affected by the heavy demands and constant stress. This can increase the risk of developing burnout, which is an individual reaction to long-term stress consisting of symptoms associated with emotional exhaustion, as well as physical and cognitive fatigue. The overall aim was to estimate the prevalence of burnout in parents of children with Type 1 Diabetes Mellitus (T1DM) and inflammatory bowel disease (IBD) (paper I), identify the risk factors associated with parenting a child with T1DM (paper II), explore how mothers suffering from burnout describe their mothering of a child with diabetes, with special focus on their need for control and Performance-based self-esteem (PBSE) (paper IV), and to evaluate the effect of a group intervention aimed at reducing stress-related symptoms (paper III). A total of 251 parents of children with T1DM, 38 parents of children with IBD and 124 parents of healthy children participated in a population-based study (I, II). The validated Shirom-Melamed Burnout Questionnaire (SMBQ) was used to assess burnout. 16 parents (SMBQ ≥3.75) participated in a group intervention and were evaluated for changes in SMBQ and PBSE (III). A total of 21 mothers of children with T1DM who scored for clinical burnout (SMBQ) participated in a qualitative study. Semi-structured interviews were conducted and Inductive content analysis was used (IV). In the study group 36.0% parents of children with a chronic disease scored for clinical burnout (SMBQ ≥3.75) compared to 20.2% of the reference parents (p=0.001) with a preponderance of mothers compared to fathers, 42% vs. 20.5% (p=0.001), respectively (I). Less support from the social network, sleep disturbances and lack of personal leisure time and recovery seem to be important risk factors for clinical burnout in parents of children with T1DM, especially mothers (II). Mothers’ experiences of mothering a child with T1DM were interpreted as one theme; Mission impossible, illustrating the extremely difficult circumstances under which they bring up the child with diabetes to adulthood (IV). Parents’ subjective evaluation of the intervention group was mainly positive and SMBQ (p=0.01) and PBSE scale (p= 0.04) measurements were significantly reduced 6 months after completion of the intervention (III). It is important to pay attention to how parents and especially mothers experience their daily life in order to support those who are at risk of developing burnout.

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10

Fung, Shuk-man Amy. "Psychosocial risk and protective factors in chronic childhood illnesses : the case of thalassaemia major /." Hong Kong : University of Hong Kong, 1996. http://sunzi.lib.hku.hk/hkuto/record.jsp?B17390084.

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11

Driskill, Gail. "Chronically Ill Children: Maternal Stress and Psychological Symptomatology." Thesis, University of North Texas, 1995. https://digital.library.unt.edu/ark:/67531/metadc279114/.

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This study used a parenting stress and coping model to identify predictors of symptomatology for 13 8 mothers of medically compromised children. This model proposed that: child characteristics (severity of the chronic illness and child related parenting stressors); parent characteristics (self-esteem, sense of competence, and parents' perceived stress/distress); and environmental characteristics (social support, general life stressor events, and demographic variables) contribute to psychological symptomatology for these mothers. Multiple regression analysis found a relationship between general life stressor events, severity of the children's chronic conditions, lower satisfaction with social support, lower self-esteem, and younger mothers' ages and greater symptomatology. Trends toward significance were found for more parenting stress and lower parenting sense of competence predicting greater symptomatology. Predicted relationships between family socioeconomic status and parenting daily hassles and symptomatology were not supported.

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12

Stanberry-Beall, Jenny Kay. "Building a case for lifespan respite the effects of formal respite care on caregivers of family members with chronic dependencies /." Access to citation, abstract and download form provided by ProQuest Information and Learning Company; downloadable PDF file, 242 p, 2007. http://proquest.umi.com/pqdweb?did=1251902551&sid=1&Fmt=2&clientId=8331&RQT=309&VName=PQD.

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13

Lees, Nancy Berman. "The self-esteem of chronically ill adolescents." CSUSB ScholarWorks, 1991. https://scholarworks.lib.csusb.edu/etd-project/852.

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14

Rodak, Rina S. "Chronically and terminally ill children and medical decision-making." Thesis, National Library of Canada = Bibliothèque nationale du Canada, 2000. http://www.collectionscanada.ca/obj/s4/f2/dsk2/ftp03/MQ55708.pdf.

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15

Salmond, Susan Warner. "Perceptions of health care needs of the chronically ill population according to stage of illness /." Access Digital Full Text version, 1987. http://pocketknowledge.tc.columbia.edu/home.php/bybib/10692733.

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16

Fritts, Sharon Louise. "The impact of chronic illness on the family, the educators, and the community : an ethnographic research study /." For electronic version search Digital dissertations database. Restricted to UC campuses. Access is free to UC campus dissertations, 2004. http://uclibs.org/PID/11984.

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Thesis (Ph. D.)--Joint Doctoral Program in Educational Leadership (California State University, Fresno and University of California, Davis).
Typescript. Includes bibliographical references. Also available via the World Wide Web. (Restricted to UC campuses)

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17

Myers, Basil Joseph. "School, hospital information exchange, boundary spanning for chronically ill children." Thesis, National Library of Canada = Bibliothèque nationale du Canada, 1997. http://www.collectionscanada.ca/obj/s4/f2/dsk3/ftp04/nq20759.pdf.

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18

Ioannou, Chrissi. "Acute pain in chronically ill children : psychological assessment and intervention." Thesis, University of Leicester, 1992. http://hdl.handle.net/2381/34660.

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Five separate studies are reported on two groups of chronically ill children: children with end-stage renal failure who had received renal transplants and children with insulin dependent diabetes mellitus (IDDM). Assessment studies of both these groups investigated psychosocial factors influencing children's anxiety, pain and distress during venipunctures. Behavioural, cognitive and physiological measures of pain were used as well as standardized and structured interview questionnaires. The assessment studies involved 21 renal transplant children and 62 chidren with IDDM. The results found a revised version of the Observation Scale of Behavioural Distress to be a valid and reliable measure of children's distress during venipuncture. The predictor variables for children's distress in the transplant sample were the child's self-concept for social acceptance and the child's usual anxiety over injections. In the diabetic sample, the presence of emotional/conduct disorder, the child's usual anxiety over bloodtests and parent's rating of the child's usual anxiety over bloodtests were the three predictor variables for children's distress. Other significant psychosocial variables are discussed. Bloodtests were reported to be the most stressful aspect of the medical treatment by parents of children with renal transplants and by diabetic children. A pilot study is reported of cognitive-behavioural and hypnotic intervention with children in the transplant clinic. Cogntive-behavioural intervention was found to be effective in reducing distress during venipuncture in children aged four to seven years, following renal transplantation. With older children aged 6-16 years, both cognitive-behavioural and hypnotic intervention were effective in reducing diabetic children's distress. However, control groups appeared to improve following baseline observations, possibly as a result of non-specific factors such as attention and therapist presence. The results are discussed in relation to the literature on acute pain in children.

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19

Thompson, Jacquelyn J. "How chronic illness affects family relationships and the individual." Online version, 2009. http://www.uwstout.edu/lib/thesis/2009/2009thompsonj.pdf.

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20

Jean, Raynice Eveline. "The perceptions among African American caregivers of children with chronic illnesses /." Digital version accessible at:, 1999. http://wwwlib.umi.com/cr/utexas/main.

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21

Reich, Julie A. "Perceptions of Parental Differential Treatment: Correlates in Chronically Ill and Non-Ill Samples of Children." [Tampa, Fla.] : University of South Florida, 2003. http://purl.fcla.edu/fcla/etd/SFE0000063.

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22

Blubaugh, Victoria G. "Self-concept in siblings of chronically ill children : Duchenne muscular dystrophy /." The Ohio State University, 1986. http://rave.ohiolink.edu/etdc/view?acc_num=osu1487265555440494.

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23

Tew, Kristi L. (Kristi Lee). "The Efficacy of Filial Therapy with Families with Chronically Ill Children." Thesis, University of North Texas, 1997. https://digital.library.unt.edu/ark:/67531/metadc277594/.

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This study was designed to determine the effectiveness of Filial Therapy as a method of intervention with families with chronically ill children. Filial Therapy is an intervention that focuses on strengthening and enhancing the parent-child relationship. Parents are trained to become the agents of change for their children's behaviors by utilizing basic child-centered play therapy skills in weekly play sessions. The purpose of this study was to a) determine the effectiveness in decreasing parental stress, b) determine the effectiveness in increasing parental acceptance, and c) determine the effectiveness in decreasing problematic behaviors in the chronically ill child as assessed by their parents.

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24

Neimeyer, Jennifer. "The Impact of a Coordinated Care Program on Uninsured, Chronically Ill Patients." VCU Scholars Compass, 2010. https://scholarscompass.vcu.edu/etd/2038.

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This study explored how being enrolled in a program that both coordinates patient care and provides a medical home changes health care utilization for uninsured patients, more specifically those persons with chronic conditions, through the use of the Chronic Care Model and Andersen and Aday’s Behavioral Model for Access to Health Care. Uninsured patients typically seek out care in a fragmented manner, which may lead to ineffective and inefficient care, especially for conditions that may require ongoing treatment and monitoring such as chronic conditions. The methodology used to examine the relationship between the interaction of enrollment and chronic condition status and health care utilization was multivariate linear regression. The results of this study show that enrollment in a coordinated care program does have an impact on health care utilization, and that the impact differs for patients with no chronic conditions, a single chronic condition, and multiple chronic conditions. These results point to the effectiveness of implementing the Chronic Care Model to improve access to health care for patients with chronic conditions.

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25

Allgood-Scott, Jill R. "A study of health care utilization among chronically ill rural older adults." free to MU campus, to others for purchase, 1998. http://wwwlib.umi.com/cr/mo/fullcit?p9901213.

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26

English, Amber L. "Measuring parenting stress in those with chronically ill children: A psychometric evaluation." Thesis, English, Amber L. (2020) Measuring parenting stress in those with chronically ill children: A psychometric evaluation. Masters by Coursework thesis, Murdoch University, 2020. https://researchrepository.murdoch.edu.au/id/eprint/60896/.

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This study examined the measurement of parenting stress in caregivers of chronically ill children (N=203). The evaluation was focussed on the two most popular measures in the literature; the Parenting Stress Index-Short Form and the Paediatric Inventory for Parents. The Parenting Stress Index-Short Form (PSI-SF) it the most commonly used measure. However, while the PSI-SF has been well-supported in the healthy populations it was designed for, the evidence was poor for its utility with parents of chronically ill children. The Paediatric Inventory for Parents (PIP), developed with parents of children with cancer, has emerged as a popular alternative as a general measure for paediatric disease populations. However, the PIP had not been adequately investigated to make sure it is the best measure for this population. To address this, the present study conducted exploratory factor analyses of the PSI-SF and the PIP. The results failed to support the proposed factor structure for either measure. Instead, both demonstrated a univariate structure, indicating that they may lack the sensitivity to capture discrete aspects of parenting stress in this population. The implications of these results are discussed, and potential univariate solutions considered. The main recommendation for future research is to focus on condition-specific measures, as general measures appear to lack.

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27

Shiu, Shiona. "Achieving equity in educational outcomes for students with chronic illness." View thesis, 2008. http://handle.uws.edu.au:8081/1959.7/19222.

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Thesis (Ed.D.)--University of Western Sydney, 2008.
A thesis submitted to the University of Western Sydney, College of Arts, School of Education, in fulfilment of the requirements for the degree of Doctor of Education. Includes bibliography.

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28

Wintermann, Gloria-Beatrice, Jenny Rosendahl, Kerstin Weidner, Bernhard Strauß, and Katja Petrowski. "Predictors of Major Depressive Disorder following Intensive Care of Chronically Critically Ill Patients." Hindawi, 2018. https://tud.qucosa.de/id/qucosa%3A32480.

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Objective. Major depressive disorder (MDD) is a common condition following treatment in the Intensive Care Unit (ICU). Long-term data on MDD in chronically critically ill (CCI) patients are scarce. Hence, the primary aim of the present study was to investigate the frequency and predictors of MDD after intensive care of CCI patients. Materials and Methods. In a prospective cohort study, patients with long-term mechanical ventilation requirements () were assessed with respect to a diagnosis of MDD, using the Structured Clinical Interview for DSM-IV, three and six months after the transfer from acute ICU to post-acute ICU. Sociodemographic, psychological, and clinical risk factors with values ≤ 0.1 were identified in a univariate logistic regression analysis and entered in a multivariable logistic regression model. A mediator analysis was run using the bootstrapping method, testing the mediating effect of perceived helplessness during the ICU stay, between the recalled traumatic experience from the ICU and a post-ICU MDD. Results. 17.6% () of the patients showed a full- or subsyndromal MDD. Perceived helplessness, recalled experiences of a traumatic event from the ICU, symptoms of acute stress disorder, and the diagnosis of posttraumatic stress disorder (PTSD) after ICU could be identified as significant predictors of MDD. In a mediator analysis, perceived helplessness could be proved as a mediator. Conclusions. Every fifth CCI patient suffers from MDD up to six months after being discharged from ICU. Particularly, perceived helplessness during the ICU stay seems to mainly affect the long-term evolvement of MDD. CCI patients with symptoms of acute stress disorder/PTSD should also be screened for MDD.

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29

Carrillo, Victor A. "Community and Patient-Centered Medical Home in the Care of Chronically Ill Patients." ScholarWorks, 2016. https://scholarworks.waldenu.edu/dissertations/3143.

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Large portions of the US population live in poor inner-city communities. Health needs assessment data have shown that these communities have disproportionately high rates of chronic illnesses. The patient-centered medical home (PCMH) model was developed to address the gaps that exist in the primary care system, and emphasizes a redesign of primary care that is patient centered, utilizes multiple levels of healthcare professionals, information technology, and care coordination. However, little evidence exists on the value of this model which may explain why it has not gained wide acceptance by primary care providers. Therefore, this study was designed to examine the efficacy of the PCMH model through emergency department and inpatient utilization reductions, and with a specific focus on the role of social connectedness. This research used existing data on 706 participants from Columbia University and a local New York inner-city hospital. An in-depth analysis of hospital utilization data, using an unpaired two-sample t-test and linear regression, found that the PCMH framework strengthens continuity of care and care coordination, and helps reduce avoidable hospitalization utilization. Additionally, these reductions were greater for study participants with strong social support networks. This research highlights the relationships between primary care, social support networks, and good health outcomes. Over time, further enhancement of the PCMH and systemic changes to the delivery of care may contribute to the development of a stronger primary care system that place patients at the center of care, focuses on the importance of social connectedness, and contributes to a lasting impact on society through the development of overall healthier communities.

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30

Loong, Lai-ching Eve, and 龍麗貞. "Effectiveness of chronic disease self management program (CDSMP) for non-English speaking population: a narrativeliterature review." Thesis, The University of Hong Kong (Pokfulam, Hong Kong), 2011. http://hub.hku.hk/bib/B46940728.

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31

Mireau, Margaret Ruth. "The experience of women who are caregivers to their chronically mentally ill adult children." Thesis, National Library of Canada = Bibliothèque nationale du Canada, 2000. http://www.collectionscanada.ca/obj/s4/f2/dsk2/ftp03/MQ54734.pdf.

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32

Bendavid-Streiner, Zohar. "The relationship between coping strategies and psychological adjustment among siblings of chronically ill children." Thesis, National Library of Canada = Bibliothèque nationale du Canada, 2000. http://www.collectionscanada.ca/obj/s4/f2/dsk2/ftp02/NQ58264.pdf.

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33

Oliviero, Margaret C. "The relationship between frequency of hospitalization and the anxiety levels in chronically ill children /." Staten Island, N.Y. : [s.n.], 1993. http://library.wagner.edu/theses/nursing/1993/thesis_nur_1993_olivi_relat.pdf.

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34

Maggio, Barbara J. "The effect of nurses' parental status on attitude toward working with chronically ill children /." Staten Island, N.Y. : [s.n.], 1990. http://library.wagner.edu/theses/nursing/1990/thesis_nur_1990_maggi_effec.pdf.

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35

Chang, Lu-I. 1965. "Perceptions of parenting stress and family functioning among Taiwanese mothers with chronically ill children." Thesis, The University of Arizona, 1993. http://hdl.handle.net/10150/558217.

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36

Haley, Janice M. "Voicing the strengths of parent caregivers of medically fragile children from the Pacific Islands and the Philippines." Thesis, University of Hawaii at Manoa, 2003. http://proquest.umi.com/pqdweb?index=0&did=764803621&SrchMode=1&sid=4&Fmt=2&VInst=PROD&VType=PQD&RQT=309&VName=PQD&TS=1233350447&clientId=23440.

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37

Wiencek, Clareen. "Symptom Burden and Its Relationship to Functional Status in the Chronically Critically Ill." Case Western Reserve University School of Graduate Studies / OhioLINK, 2008. http://rave.ohiolink.edu/etdc/view?acc_num=case1207241196.

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38

Fung, Shuk-man Amy, and 馮淑敏. "Psychosocial risk and protective factors in chronic childhood illnesses: the case of thalassaemia major." Thesis, The University of Hong Kong (Pokfulam, Hong Kong), 1996. http://hub.hku.hk/bib/B31234847.

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39

Foster, Christine C. "Families of chronically ill children: The relationship between mothers' reports of normalization and social support." Thesis, University of Ottawa (Canada), 1996. http://hdl.handle.net/10393/9789.

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This study tested the hypotheses that mothers of chronically ill children who reported high use of normalization by their families had higher levels of perceived social support. Additionally, the internal reliability of the Normalization Scale (Murphy, 1992) was determined. A non-probability purposive sample of thirty-three mothers of chronically ill school-aged children was recruited from a medical day unit of a regional pediatric tertiary health setting. Employing the Family Management Style Model (Knafl & Deatrick, 1990) as a conceptual framework, the study used a descriptive correlational design. Data were collected from mothers using the Normalization Scale (Murphy, 1994), the Personal Resource Questionnaire, (Weinert, 1987) and a demographic questionnaire. Mothers' reported use of normalization by their families was found to be associated with perceived social support and their satisfaction with help received from their social support network. The relationship between mothers' reported use of normalization and the size of the social support network was not significant. The study demonstrated that family and friends are the sources of support that mothers most frequently cite as helpful. This investigation also confirmed the importance of health care professionals in the family's process of normalizing their child's illness and their family life. Support groups were not perceived as helpful by these mothers. (Abstract shortened by UMI.)

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40

Lindholm, Michelle Marie. "Chronic childhood disease and child abuse." CSUSB ScholarWorks, 1998. https://scholarworks.lib.csusb.edu/etd-project/1559.

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The purpose of the present research is to investigate whether or not chronically ill children are victims of child abuse more frequently than healthy children. The gender of the child and of the parent will also be examined for differences in the treatment children receive.

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41

Cunningham, Daniel Morton. "The impact of aggressive case management service in reducing the frequencies of acute episodes of the chronically mentally ill." CSUSB ScholarWorks, 1996. https://scholarworks.lib.csusb.edu/etd-project/1287.

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42

Hüther, Jakob [Verfasser], and Martin [Akademischer Betreuer] Härter. "Incomplete Medication Adherence of Chronically Ill Patients in German Primary Care / Jakob Hüther. Betreuer: Martin Härter." Hamburg : Staats- und Universitätsbibliothek Hamburg, 2014. http://d-nb.info/105230916X/34.

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43

Chiriboga, Jennifer Ann. "The effects of gender, ethnicity, and social self concept, on behavioral intentions towards children with chronic illness." Virtual Press, 2005. http://liblink.bsu.edu/uhtbin/catkey/1317742.

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Spurrier, Nicola J. "Parent's management of childhood asthma : the relevance of psychosocial factors /." Title page, contents and abstract only, 1998. http://web4.library.adelaide.edu.au/theses/09PH/09phs7722.pdf.

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McIntyre, Carol Lynne. "The role of competency-enhancing helpgiving practices in parental adaptation for families of children with special needs /." Full text (PDF) from UMI/Dissertation Abstracts International, 2000. http://wwwlib.umi.com/cr/utexas/fullcit?p3004337.

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Sam, Noluthando. "Experiences of professional nurses related to caring for chronic mentally ill patients at rural primary healthcare clinics." Thesis, Nelson Mandela Metropolitan University, 2014.

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Abstract:

Since the deinstitutionalisation of chronic mentally ill patients, there has been an increase in the number of relapsed chronic mentally ill patients who become acutely mentally ill and need to be re-admitted for acute care in psychiatric institutions. Professional nurses working at rural primary healthcare clinics find it difficult to care for these individuals because they lack the necessary knowledge and skills. Chronic mentally ill patients who have been admitted to acute care facilities are stabilised by rendering care, treatment and rehabilitation and then released into the care of the professional nurses working at rural primary healthcare clinics. These patients live in the community and have to make use of the primary healthcare clinics nearest to their homes to provide them with their prescribed medication and care. Furthermore the patients’ mental conditions do not always remain stable, possibly because of a knowledge deficit, at times about their mental status. Patients may become non-compliant, resulting in the recurrence of symptoms, and thus need to be re-admitted to the acute care facility. However, the problem leading to re-admission is not clear for all admissions. It may be that patients do not make use of the primary healthcare clinics. It also seems that the professional nurses in the primary healthcare clinics are unfamiliar in dealing with chronic mentally ill patients living in rural communities. The aim of this study was therefore, to explore and describe the experiences of these professional nurses in caring for chronic mentally ill patients living in a rural community. The researcher used qualitative, explorative, descriptive, and contextual research design. The research population consisted of professional nurses working at primary healthcare clinics. Non-probability purposive sampling was used to identify participants for inclusion in the study. Data collection was conducted using one-on-one, semi structured interviews, observations and field notes and interviews were tape-recorded and transcribed. Data analysis was conducted using Tesh’s method of content analysis to identify themes and sub-themes. A literature control was done to compare the findings to the current published research. Trustworthiness was ensured by using Gubas’s model (1985) of trustworthiness. A pilot study, conducted by interviewing a small sample prior to the start of the main study, determined whether the sampling and interviewing techniques of the researcher as well as the research questions were adequate for data collection. The researcher ensured that the study was of a high ethical standard by taking into consideration values that guide the principles of autonomy, beneficence, non-maleficence and justice. The findings of the study was categorised into three main themes and 13 sub-themes. The main themes were as follow: Professional nurses experience problems when they have to take care of psychiatric patients attending rural primary healthcare clinics. This theme had six sub-themes which were discussed in details in chapter three. The second theme was that professional nurses experience that psychiatric patients in rural communities experience problems which affected their well-being. This second theme has got five sub-themes which were discussed further in chapter three. The last theme was that professional nurses have positive experiences when caring for psychiatric patients in rural communities. This theme has got two sub-themes as well discussed further in chapter three.

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Cheung, Kam-fong Monit. "Home care option for older adults with chronic limitations : an evaluation of PASSPORT /." The Ohio State University, 1986. http://rave.ohiolink.edu/etdc/view?acc_num=osu1340987548.

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Lalkhen, Nuruneesa. "The quality of life of parents of children with epilepsy." Thesis, Stellenbosch : Stellenbosch University, 2002. http://hdl.handle.net/10019.1/53152.

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Abstract:

Thesis (MA)--Stellenbosch University, 2002.
ENGLISH ABSTRACT: The focus of the present review is the quality of life (QOL) of parents caring for a child with epilepsy. The review is informed by published books and articles available on the Psychlit and Medline databases. The paper provides an overview of epilepsy and the problems patients, particularly children, are confronted with. The important roles that parents fulfil in their child's life is followed by a discussion of the stress and burden experienced by parents caring for a child with epilepsy. Descriptions and definitions of the construct QOL are followed by reported research findings on the QOL of patients with epilepsy. The importance of the QOL of parents caring for a child with epilepsy is emphasized and this leads to an examination of existing research on the QOL of these parents. Research on the QOL of parents of children with epilepsy is limited despite the important roles parents fulfil in the life of their child with epilepsy and the potentially negative consequences of these additional roles for the child, the parents and the remainder of the family. Identification and an understanding of the dimensions of QOL of parents that are impacted upon by a child's epilepsy may produce improved treatment outcomes and QOL for children diagnosed and living with epilepsy. Recommendations for future research are included in the present review.
AFRIKAANSE OPSOMMING: Die fokus van hierdie oorsig is die lewenskwaliteit van ouers wat 'n epileptiese kind versorg. Die oorsig is gebaseer op gepubliseerde boeke en artikels wat beskikbaar is op Psychlit en Medline databasisse. Die oorsig voorsien 'n omskrywing van epilepsie asook van die probleme wat pasiente, veral kinders, ondervind. Die belangrike rolle wat ouers in hul kinders se lewe speel word bespreek en dit word gevolg deur 'n bespreking van die stres en druk wat ouers wat epileptiese kinders versorg, ondervind. Beskrywings en definisies van die konstruk lewenskwaliteit word aangebied, gevolg deur 'n opgawe van navorsingsbevindinge oor die lewenskwaliteit van epiletiese pasiënte. Die belangrikheid van die lewenskwaliteit van ouers van 'n epileptiese kind word beklemtoon en dit lei tot 'n oorsig van huidige navorsing oor die lewenskwaliteit van hierdie ouers. Ten spyte van die belangrike rolle wat ouers in die lewe van hul epileptiese kind speel en die moontlike negatiewe gevolge van hierdie bykomende rolle vir die kind, die ouers en die ander familielede, is navorsing oor die lewenskwaliteit van ouers met epileptiese kinders beperk. Identifisering van en insig in die faktore wat 'n impak het op die lewenskwaliteit van ouers met 'n epileptiese kind, kan lei tot verbeterde behandelingresultate en hoër lewenskwaliteit vir kinders wat gediagnoseer word en wat met epilepsie saamleef. Aanbevelings vir toekomstige navorsing word ook in hierdie oorsig gemaak.

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Keith, Lorraine Nicole. "Relationships among family as a social support system, exercise of self-care agency, and health status in the adult with a chronic illness." Virtual Press, 1993. http://liblink.bsu.edu/uhtbin/catkey/865961.

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Inadequate, expensive health care services for the chronically ill, confront the lay person as one of the major forces in the social movement toward self-care. The purpose of this predictive correlational study was to investigate within a theoretical framework derived from Orem's conceptual model of nursing relationships among family as a social support system, exercise of self-care agency, and health status for the person with a chronic illness. The sample group was 51 chronically ill adults diagnosed with diabetes mellitus who attended diabetic instructions from one of the Central Indiana Hospitals. Findings indicated a weak positive correlation between self-care and cohesion and weak negative correlation between health status and cohesion. Findings also revealed significant differences between male and female for the variables self-care and conflict.Conclusions were that this study supported certain relationships proposed by Orem's conceptual model in nursing. Results can guide diabetics in providing optimal daily self-care. Professionals in the health care arena can utilize the results for educational development and encouragement of self-care agency in the adult diabetic. The family members can also clarify roles in supporting the diabetic adult.
School of Nursing

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Irwin, Mary Kay. "Educational Issues of Children who are Chronically Ill: A Qualitative Analysis of Patients’, Caregivers’, and Educators’ Beliefs." University of Cincinnati / OhioLINK, 2012. http://rave.ohiolink.edu/etdc/view?acc_num=ucin1353088496.

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