Relevant bibliographies by topics / Chronically ill children Care

Academic literature on the topic 'Chronically ill children Care'

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Published: 10 December 2022
Last updated: 28 January 2023

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Journal articles on the topic "Chronically ill children Care"

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Fox, Harriette B., and Paul W. Newacheck. "Private Health Insurance of Chronically III Children." Pediatrics 85, no. 1 (January 1, 1990): 50–57. http://dx.doi.org/10.1542/peds.85.1.50.

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Accurate information regarding the adequacy of private health insurance coverage available to the families of chronically ill children is scarce. A national survey was conducted of firms offering health insurance to employees and their dependents. Data were collected concerning private health insurance coverage of services needed by chronically ill children, including basic medical care services, ancillary therapies, mental health services, and long-term care. Nearly all surveyed firms offered health insurance. Coverage of inpatient hospital care, outpatient physician services, medical supplies and equipment, x-ra y stuies, laboratory services, and prescription medications was widespread, but coverage of services such as physical therapy, speech therapy, occupational therapy, and nutrition services was much less prevalent. More than two thirds of the firms covered comprehensive home health services but often with limits and only in lieu of more expensive inpatient care. Longterm care, such as skilled nursing home care, was covered by only one third of firms. Overall, the survey results, combined with information concerning recent trends in private health insurance, reveal increasing coverage of lower cost alternatives to hospital or institutional care and improved maximum lifetime benefits and stop-loss coverage but also increased cost-sharing requirements. These results suggest that, although families with chronically ill children may have access to a widening range of services such as home health care or individual benefits management, they may be forced to bear an increasing proportion of the cost.
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Moura, Flávia Moura de, Áderson Luiz Costa Júnior, Meryeli Santos de Araújo Dantas, Gilvan da Cruz Barbosa Araújo, and Neusa Collet. "Playful intervention with chronically-ill children: promoting coping." Revista Gaúcha de Enfermagem 35, no. 2 (June 2014): 86–92. http://dx.doi.org/10.1590/1983-1447.2014.02.41822.

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Chronic diseases can adversely affect the development process of children. This qualitative, action-research study had the aim to analyze the effects of activities in the manual "Como Hóspede no Hospital" (As a patient in the hospital) on the coping process of children with chronic diseases. Study participants included six children and adolescents aged seven to 13 years, who suffered from a chronic disease. Data were collected in the pediatric clinic of a public hospital in the Brazilian state of Paraíba, through participant observation and individual sessions with activities from the manual. Data interpretation followed the principles of thematic analysis. The activities from the manual encouraged participants' search for information about their disease and treatment, and increased their interest and participation in their health care process, thereby contributing to better coping. The study points to the need for comprehensive care for children with chronic diseases.
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Newacheck, Paul W., Dana C. Hughes, Jeffrey J. Stoddard, and Neal Halfon. "Children With Chronic Illness and Medicaid Managed Care." Pediatrics 93, no. 3 (March 1, 1994): 497–500. http://dx.doi.org/10.1542/peds.93.3.497.

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Incorporating these suggestions would necessitate a significant commitment of funds and other resources on the part of federal and state governments. This level of commitment is necessary if children with chronic conditions from low-income families are to receive appropriate care and their sponsors receive fair value. However, attending to the suggestions made in this commentary—while necessary—will not automatically assure that chronically ill children receive the services they need. All too often the emphasis of Medicaid managed care is on managing costs rather than managing care. It is only through a more enlightened perspective—one that places a greater emphasis on what is best for children and a lesser emphasis on what is best for budgets—that chronically ill children will receive the care they deserve.
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Piette, John D., Ann Marie Rosland, Maria Silveira, Mohammed Kabeto, and Kenneth M. Langa. "The case for involving adult children outside of the household in the self-management support of older adults with chronic illnesses." Chronic Illness 6, no. 1 (March 2010): 34–45. http://dx.doi.org/10.1177/1742395309347804.

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Objectives: This study sought to (1) identify barriers to spousal support for chronic illness self-care among community-dwelling older adults; and (2) describe the potential availability of self-care support from adult children living outside of the household. Methods: Nationally representative US sample of chronically ill adults aged 51+ were interviewed as part of the Health and Retirement Study (N = 14,862). Both participants and their spouses (when available) reported information about their health and functioning. Participants also reported information about their contact with adult children and the quality of those relationships. Results: More than one-third (38%) of chronically ill older adults in the US are unmarried; and when spouses are available, the majority of them have multiple chronic diseases and functional limitations. However, the vast majority of chronically ill older adults (93%, representing roughly 60 million Americans) have adult children, with half having children living over 10 miles away. Most respondents with children (78%) reported at least weekly telephone contact and that these relationships were positive. Roughly 19 million older chronically ill Americans have adult children living at a distance but none nearby; these children are in frequent telephone contact and respondents (including those with multiple chronic diseases) report that the relationships are positive. Discussion: As the gap between available health services for disease management and the need among community-dwelling patients continues to grow, adult children—including those living at a distance—represent an important resource for improving self-care support for people with chronic diseases.
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Plisková, Barbora, and Petr Snopek. "Primary School Teachers’ Awareness of Chronic Diseases of Children." Acta Educationis Generalis 7, no. 3 (December 20, 2017): 111–21. http://dx.doi.org/10.1515/atd-2017-0028.

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Abstract Introduction: More and more children and adolescents suffering from chronic diseases are included in common school education. Unfortunately, teachers do not feel confident enough about how to cope, fulfil and satisfy the needs of these children in the educational, social and emotional spheres. The aim ofp this part of research was to discover how teachers work with chronically ill children of younger school-age. There were three aims. The first aim was to investigate if teachers have basic awareness and knowledge about selected chronic diseases in children of younger school-age. The second aim was to discover what experience and attitudes towards chronically ill children of younger school-age teachers have. The third aim was to discover, how the quality of school care of chronically ill children of younger school-age can be improved. Methods: We used qualitative research methodology. Data were processed and gathered from semi-structured interviews. Interviews were conducted with 12 teachers. Results: Our findings revealed that teachers should be acquainted with the disease itself and its consequences in all aspects. In some cases, teachers must be acquainted also with the practical aspects of a chronic disease, e.g. first aid and application of drugs and aids in order to assist children if necessary. Discussion: The study offers unique insights into primary teachers’ views and experiences with chronically ill children, how teachers work with chronically ill pupils of younger school-age and how the quality of school care of chronically ill children of younger school-age can be improved. Limitations: The research is still being conducted and therefore, it is not possible to provide more detailed results and conclusions. However, our main aim was to draw attention to the very problem from the point of view of teachers themselves and to highlight their vivid experiences. Conclusions: It is necessary to create interconnected networks of experts and families who will cooperate and communicate and who will participate in satisfying needs of a child together. These networks will ensure that children will be integrated into common school life in spite of their disease without serious consequences affecting their development and education.
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Johnson, Emmanuel Janagan, and Samantha Onieka Mendoza. "Care-giving Coping Strategies Among Mothers with Chronically Ill Children." Journal of Social Service Research 44, no. 3 (May 27, 2018): 400–413. http://dx.doi.org/10.1080/01488376.2018.1476289.

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Brill, Nancy, Sarale Cohen, Mary Fauvre, Nancy Klein, Sue Clark, and Linda Garcia. "Caring for Chronically Ill Children: An Innovative Approach for Care." Children's Health Care 16, no. 2 (September 1987): 105–13. http://dx.doi.org/10.1207/s15326888chc1602_6.

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Fauman, Karen R., Kenneth J. Pituch, Yong Y. Han, Matthew F. Niedner, Janella Reske, and Ann Marie LeVine. "Predictors of Depressive Symptoms in Parents of Chronically Ill Children Admitted to the Pediatric Intensive Care Unit." American Journal of Hospice and Palliative Medicine® 28, no. 8 (March 30, 2011): 556–63. http://dx.doi.org/10.1177/1049909111403465.

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Objective: To identify factors in the pediatric intensive care unit (PICU) patient population that may result in increased risk of depressive symptoms in their parents. Design: Six-month, prospective, observational study in a tertiary-level PICU on parents of chronically ill children admitted to PICU. Parents were assessed by background questionnaire and standardized depression scale. Results: Data was compared to various markers such as child’s diagnosis, admission reason, palliative care diagnosis type (ACT code), and course/length of disease. Incidence of depressive symptoms in parents was inversely correlated with duration of child’s chronic illness. Parents of children admitted for planned postoperative management were more likely to report depressive symptoms compared to parents of children admitted for acute changes in health. Conclusion: Parents of certain chronically ill children may benefit from routine screening for depression.
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Mukhida, K. "67. Loving your child to death: Considerations of the care of chronically-ill children and euthanasia in Emil Sher's Mourning Dove and implications for medical educations." Clinical & Investigative Medicine 30, no. 4 (August 1, 2007): 65. http://dx.doi.org/10.25011/cim.v30i4.2828.

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How do parents cope when their child is ill or dying, when he or she experiences constant pain or suffering? What do parents think of the contributions that medical professionals make to the care of their chronically or terminally ill child? Is it possible for a parent to love a child so much that the child is wished dead? The purpose of this paper is to explore those questions and aspects of the care of chronically or terminally ill children using Mourning Dove’s portrayal of one family’s attempt to care for their ill daughter. A play written by Canadian playwright Emil Sher, Mourning Dove is based on the case of Saskatchewan wheat farmer Robert Latimer who killed his 12 year old daughter Tracy who suffered with cerebral palsy and lived in tremendous pain. Rather than focusing on the medical or legal aspects of the care of a chronically ill child, the play offers a glimpse into how a family copes with the care of such a child and the effects the child’s illness has on a family. Reading and examination of non-medical literature, such as Mourning Dove, therefore serve as a useful means for medical professionals to better understand how illness affects and is responded to by patients and their families. This understanding is a prerequisite for them to be able to provide complete care of children with chronic or terminal illnesses and their families. Nuutila L, Salanterä S. Children with long-term illness: parents’ experiences of care. J Pediatr Nurs 2006; 21(2):153-160. Sharman M, Meert KL, Sarnaik AP. What influences parents’ decisions to limit or withdraw life support? Pediatr Crit Care Med 2005; 6(5):513-518. Steele R. Strategies used by families to navigate uncharted territory when a child is dying. J Palliat Care 2005; 21(2):103-110.
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Dubé, Eve, Dominique Gagnon, Caroline Huot, Renée Paré, Solange Jacques, Alexandra Kossowski, Caroline Quach, and Monique Landry. "Influenza immunization of chronically ill children in pediatric tertiary care hospitals." Human Vaccines & Immunotherapeutics 10, no. 10 (October 3, 2014): 2935–41. http://dx.doi.org/10.4161/21645515.2014.970498.

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Dissertations / Theses on the topic "Chronically ill children Care"

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Bracey, Kimberly Vaunterice. "Experiences of Parents With Chronically Ill Children Regarding the Affordable Care Act." ScholarWorks, 2019. https://scholarworks.waldenu.edu/dissertations/6975.

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Ways in which the implementation of the Patient Protection and Affordable Care Act (ACA) affect parents with chronically ill children are not well understood. The purpose of this phenomenographic study was to gain greater insight into the perceived experiences of parents of chronically ill children regarding implementation of the ACA in a southern state. Argyris's intervention theory provided the framework for the study. Face-to-face interviews were conducted with a purposeful sample of 12 female parents who are caregivers of chronically ill children. Data were analyzed and coded to identify categories and themes. Findings indicated that parents view physicians and policymakers as key actors in their communities to create more equitable services for parents of chronically ill children through the expansion of Medicaid services in southern state. Many participants did not perceive that the ACA had made significant changes to services received prior to its implementation. Findings may assist health care providers, insurance companies, legislators, and other policymakers to develop appropriate health care policies and interventions to lessen the financial burden experienced by parents of chronically ill children. Providing more support services that address the physical, emotional, and financial needs of parents may improve the health outcomes of their chronically ill children.
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Spencer, Patricia E. "From morphine to milk of magnesia : a case study of children and families living with M.E." Thesis, University of East Anglia, 1997. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.338040.

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Ismail, Ahmad Faisal Bin. "Oral health status in children with type I diabetes mellitus." Thesis, The University of Hong Kong (Pokfulam, Hong Kong), 2014. http://hdl.handle.net/10722/206501.

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Diabetes mellitus is a metabolic disorder with varied etiology and diverse clinical course. World Health Organization (WHO) has distinguished three types of diabetes mellitus: insulin-dependent (Type I), non insulin-dependent (Type II) and associated with other disease and syndromes. Type I diabetes patients account for approximately 10% of all diabetics, in which children and adolescent almost exclusively develop Type I diabetes. Diabetes can be diagnosed on the basis of symptoms, such as excessive thirst appetite, polyuria, body weight reduction, glucosuria and hyperglycaemia, confirmed by laboratory test. Acute complications may develop in the course of diabetes, usually related to extreme level of plasma glucose. Chronic complications usually developed secondary to micro-vascular changes, causing damages to small vessels, nerves, multiple organs and oral cavity. The systematic review summarized the available evidence on the oral health of children with Type I diabetes mellitus. A total of 1179 abstract were retrieved during the initial search, and after exclusion, only 37 articles were qualified for final review and analysis. Though there was conflicting evidence regarding caries experience, it is clear that children with Type I diabetes mellitus exhibited poorer overall oral health status with higher plaque accumulation compared to healthy children. The case-control study aimed to evaluate and compare the oral health status of children with Type I diabetes mellitus with healthy, non-diabetic controls in Hong Kong. A sample of 64 children (32 Type I diabetes mellitus, 32 age- and gender-matched controls) were included in the study. The study concluded that children with Type I diabetes had poor oral health status with greater plaque deposition when compared to healthy, non-diabetic controls.
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Halls, Terry T. "The experience of parents raising a child with special health care needs while living in a rural area." Laramie, Wyo. : University of Wyoming, 2008. http://proquest.umi.com/pqdweb?did=1798480931&sid=1&Fmt=2&clientId=18949&RQT=309&VName=PQD.

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Hattori, Keiko. "Good Death Among Elderly Japanese Americans in Hawaii." Diss., University of Hawaii at Manoa, 2007. http://hdl.handle.net/10125/22054.

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The purpose of this focused ethnographic study was to describe the patterns of a good death held by elderly Japanese Americans living in Hawaii. Eighteen "healthy active" elderly Japanese Americans were interviewed individually. In addition, supplementary data, such as interviews with experts and field observations were collected for triangulation of the data. Four themes were derived from 1224 keywords, 56 categories, and 13 patterns. These were: being a burden to the family, process of life and death, individual views on death, and Japanese culture in Hawaii. Being a burden to the family was the largest concern in the participants' idea of dying a good death. Having secure financial resources were key for adequate preparation. The elderly Japanese Americans believed that suffering at the end-of-life should be avoided in order to achieve a good death. Their concept of suffering included: unmanageable pain, being ill for a long time, and being bedridden. Several participants preferred a sudden type of death because they would not have to suffer and not be burdens their family. Contentment in life was also an important aspect of a good death. There was a common belief that the way a person lived was connected with the way he/she died. A number of the participants preferred to die in their own home. Hospitals and retirement homes were other alternatives for the place of death. Individual views on death contributed to establish the concept of good death among elderly Japanese American participants. They shared similar attitudes toward death which were a part of life and inevitable. These attitudes were influenced by religious beliefs and past experiences with death. Different generations of elderly Japanese Americans had different views. The Shin-Issei (first generation who immigrated after World War II) and the Nisei (second generation) held more Japanese views compared to the Sansei (third generation) who were more acculturated. Although the Japanese American parents and children might have different views on life and death, the importance of close family relations and family support was passed on to younger generations.
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Cavanagh, Ellyn Elizabeth. "Maintaining a childhood : a phenomenologic study of family experiences providing home care for chronically ill, technology-dependent children /." Thesis, Connect to this title online; UW restricted, 1999. http://hdl.handle.net/1773/7373.

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Rodriguez, Francisco Jose. "Oral mucositis in children receiving bone marrow transplantation." Thesis, Birmingham, Ala. : University of Alabama at Birmingham, 2008. https://www.mhsl.uab.edu/dt/2008m/rodriguez.pdf.

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Fiala, Samuel E. "Camp counselors working with chronically ill children." Texas A&M University, 2005. http://hdl.handle.net/1969.1/3210.

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A growing body of empirical evidence suggests that attending specialized summer camps is beneficial for chronically ill youth (Briery & Rabian, 1999). However, there is some inconsistency across studies regarding these benefits (Hazzard & Angert, 1986). One potential explanation for these differences across camps is that they may differ in how well they recruit and train effective volunteer camp counselors. This possibility cannot be explored until more research is conducted identifying what type of person volunteers to work with chronically ill children and how they differ from others. In response to this gap in the research literature, the present study was conducted to examine characteristics of volunteer camp counselors (n =72), a group of nonvolunteers (n = 325), and a group of volunteer mentors (n = 194). Guided by Omoto and Snyder’s (1990) volunteer process model, the investigation explored how counselors differed from others in terms of dispositional variables, knowledge, and experience; and the relation between these individual characteristics and ratings of counselor efficacy was explored. Changes in counselors’ knowledge of and/or attitudes toward chronically ill children after their camp experience were also examined. Results suggest that camp counselors differ from others in terms of dispositional characteristics (e.g., attachment style), knowledge, and experience. Specifically, counselors displayed higher levels of agreeableness, greater attachment security, more knowledge of chronic illness, and greater experience with chronic illness than nonvolunteers. Efforts to predict which counselors would be rated as most effective were unsuccessful. Counselors’ knowledge of illness increased over the course of their camp experience.
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Lindström, Caisa. "Burnout in parents of chronically ill children." Doctoral thesis, Örebro universitet, Institutionen för hälsovetenskaper, 2016. http://urn.kb.se/resolve?urn=urn:nbn:se:oru:diva-47391.

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Parents of children with a chronic disease are usually highly involved in their child’s treatment and may be affected by the heavy demands and constant stress. This can increase the risk of developing burnout, which is an individual reaction to long-term stress consisting of symptoms associated with emotional exhaustion, as well as physical and cognitive fatigue. The overall aim was to estimate the prevalence of burnout in parents of children with Type 1 Diabetes Mellitus (T1DM) and inflammatory bowel disease (IBD) (paper I), identify the risk factors associated with parenting a child with T1DM (paper II), explore how mothers suffering from burnout describe their mothering of a child with diabetes, with special focus on their need for control and Performance-based self-esteem (PBSE) (paper IV), and to evaluate the effect of a group intervention aimed at reducing stress-related symptoms (paper III). A total of 251 parents of children with T1DM, 38 parents of children with IBD and 124 parents of healthy children participated in a population-based study (I, II). The validated Shirom-Melamed Burnout Questionnaire (SMBQ) was used to assess burnout. 16 parents (SMBQ ≥3.75) participated in a group intervention and were evaluated for changes in SMBQ and PBSE (III). A total of 21 mothers of children with T1DM who scored for clinical burnout (SMBQ) participated in a qualitative study. Semi-structured interviews were conducted and Inductive content analysis was used (IV). In the study group 36.0% parents of children with a chronic disease scored for clinical burnout (SMBQ ≥3.75) compared to 20.2% of the reference parents (p=0.001) with a preponderance of mothers compared to fathers, 42% vs. 20.5% (p=0.001), respectively (I). Less support from the social network, sleep disturbances and lack of personal leisure time and recovery seem to be important risk factors for clinical burnout in parents of children with T1DM, especially mothers (II). Mothers’ experiences of mothering a child with T1DM were interpreted as one theme; Mission impossible, illustrating the extremely difficult circumstances under which they bring up the child with diabetes to adulthood (IV). Parents’ subjective evaluation of the intervention group was mainly positive and SMBQ (p=0.01) and PBSE scale (p= 0.04) measurements were significantly reduced 6 months after completion of the intervention (III). It is important to pay attention to how parents and especially mothers experience their daily life in order to support those who are at risk of developing burnout.
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Fung, Shuk-man Amy. "Psychosocial risk and protective factors in chronic childhood illnesses : the case of thalassaemia major /." Hong Kong : University of Hong Kong, 1996. http://sunzi.lib.hku.hk/hkuto/record.jsp?B17390084.

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Books on the topic "Chronically ill children Care"

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Gagne, Tammy. Ways to help chronically ill children. Hockessin, DE: Mitchell Lane Publishers, 2011.

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Ways to help chronically ill children. Hockessin, DE: Mitchell Lane Publishers, 2011.

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W, Shayne May, and Bloom Sheila R, eds. Home and community care for chronically ill children. New York: Oxford University Press, 1993.

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Living with a seriously ill child. London: Sheldon Press, 2007.

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Dempsey, Sharon. Extreme parenting: Parenting your chronically ill child. London: Jessica Kingsley Publishers, 2008.

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Takamura, Tomoko. Tāminaru-ki ni okeru kyōiku, shinriteki taiō ni kansuru kenkyū: Kodomo to tomoni aru kyōiku o mezashite : Heisei 14-nendo-Heisei 17-nendo : kadaibetsu kenkyū hōkokusho. Yokosuka-shi: Kokuritsu Tokushu Kyōiku Sōgō Kenkyūjo, 2006.

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McKeever, Patricia Taylor. Mothering chronically-ill, technology-dependent children: An analysis using critical theory. [S.l: s.n.], 1991.

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Gadsby, J. William. Obtaining care for chronically ill children in the home based setting: Statement of J. William Gadsby, Associate Director, Human Resources Division, before the Committee on Finance, United States Senate. [Washington, D.C.?]: U.S. General Accounting Office, 1988.

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L, Pokorni Judith, and Long Toby M, eds. Chronically ill and at risk infants: Family-centered intervention from hospital to home. Palo Alto, CA: Vort Corp., 1989.

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Rentenversicherungsträger, Verband Deutscher. Rahmenkonzept und indikationsspezifische Konzepte zur medizinischen Rehabilitation von Kindern und Jugendlichen in der gesetzlichen Rentenversicherung: Empfehlungen des Verbandes Deutscher Rentenversicherungsträger / herausgegeben vom Verband Deutscher Rentenversicherungsträger. Bad Homburg: DRV-Schriften, 1998.

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Book chapters on the topic "Chronically ill children Care"

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Irons, Thomas G. "Loving the Chronically Ill Child: A Pediatrician’s Perspective." In Children And Health Care, 323–29. Dordrecht: Springer Netherlands, 1989. http://dx.doi.org/10.1007/978-0-585-27406-5_27.

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Miller-Smith, Laura, Ásdís Finnsdóttir Wagner, and John D. Lantos. "Chronically Critically Ill with Technological Dependence." In Bioethics in the Pediatric ICU: Ethical Dilemmas Encountered in the Care of Critically Ill Children, 93–109. Cham: Springer International Publishing, 2019. http://dx.doi.org/10.1007/978-3-030-00943-4_7.

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Carson, Shannon S., and Kathleen Dalton. "The Chronically Critically Ill." In The Organization of Critical Care, 197–216. New York, NY: Springer New York, 2014. http://dx.doi.org/10.1007/978-1-4939-0811-0_13.

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Flemming, Carol. "Hope for the Chronically Ill." In The Other Side of Medical Care, 97–108. London: Macmillan Education UK, 1986. http://dx.doi.org/10.1007/978-1-349-18179-7_9.

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Colaluca, Beth, and Jonelle Ensign. "Assessing and Intervening with Chronically Ill Children." In Best Practices in School Neuropsychology, 693–736. Hoboken, NJ, USA: John Wiley & Sons, Inc., 2012. http://dx.doi.org/10.1002/9781118269855.ch27.

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Olsen, M. Rolf. "The Care of the Chronically Mentally Ill." In Current Themes in Psychiatry, 1–20. London: Macmillan Education UK, 1985. http://dx.doi.org/10.1007/978-1-349-07746-5_1.

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Tew, Kristi. "Filial Therapy with Parents of Chronically Ill Children." In Child-Centered Play Therapy Research, 295–309. Hoboken, NJ, USA: John Wiley & Sons, Inc., 2012. http://dx.doi.org/10.1002/9781118269626.ch16.

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Staveski, Sandra, Elizabeth Price, Esther Liu, Aileen Lin, Elisabeth Smith, and Michelle Ogawa. "Chronically Critically Ill Pediatric Cardiac Patient: Nursing Considerations." In Pediatric and Congenital Cardiology, Cardiac Surgery and Intensive Care, 1371–82. London: Springer London, 2013. http://dx.doi.org/10.1007/978-1-4471-4619-3_85.

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Staveski, Sandra, Elizabeth Price, Esther Liu, Elisabeth Smith, Jenna Murray, and Michelle Ogawa. "Chronically Critically Ill Pediatric Cardiac Patient: Nursing Considerations." In Pediatric and Congenital Cardiology, Cardiac Surgery and Intensive Care, 1–12. London: Springer London, 2020. http://dx.doi.org/10.1007/978-1-4471-4999-6_85-2.

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Johnson, Melissa R., and Jennifer L. Kreimer. "Guided Fantasy Play for Chronically Ill Children: A Critical Review." In Empirically based play interventions for children., 105–22. Washington: American Psychological Association, 2005. http://dx.doi.org/10.1037/11086-006.

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Conference papers on the topic "Chronically ill children Care"

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Maier, Edith, Pascale Baer-Baldauf, Peter Jaeschke, Ulrich Reimer, and Tom Ulmer. "Continuous real-time remote monitoring of severely or chronically ill children." In The 18th international symposium on health information management research. Linnaeus University Press, 2022. http://dx.doi.org/10.15626/ishimr.2020.12.

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Compared to parents of healthy children, parents of severely or chronically ill children have significantly worse physical and mental health and a lower quality of life, e.g. because of lack of sleep. The proposed solution aims at assisting caregivers by means of a remote monitoring service run by professional nursing staff which should allow parents to get a good night’s sleep. A smart algorithm has been developed to detect if a particular parameter (heart rate, respiration rate or oxygen saturation) has exceeded a pre-defined threshold and thus may imply an emergency. Parents are only alerted after a professional nurse in the monitoring centre has cross-checked vital parameter trends and carried out an audio-visual inspection. The quality and accuracy of the system has been validated through iterative testing including a test performed in a children’s hospital to ensure that the monitoring system is not inferior to a hospital set-up.
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Hill, Melissa, Jennifer Hammond, Celine Lewis, Rhiannon Mellis, Emma Clement, and Lyn Chitty. "56 Parent and health professional experiences and views of genome sequencing for rapid diagnosis in critically ill children." In GOSH Conference 2019, Care of the Complex Child. BMJ Publishing Group Ltd and Royal College of Paediatrics and Child Health, 2019. http://dx.doi.org/10.1136/archdischild-2019-gosh.56.

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Williams, NM, S. Riphagen, M. McDougall, and M. Fine-Goulden. "G365(P) Sharing best practice in the care of critically ill children across a paediatric critical care network: education, innovation & dissemination." In Royal College of Paediatrics and Child Health, Abstracts of the RCPCH Conference and exhibition, 13–15 May 2019, ICC, Birmingham, Paediatrics: pathways to a brighter future. BMJ Publishing Group Ltd and Royal College of Paediatrics and Child Health, 2019. http://dx.doi.org/10.1136/archdischild-2019-rcpch.352.

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Hunter, Ryan Brandon, and Vijay Srinivasan. "Diagnosis and Management of Central Diabetes Insipidus in Critically Ill Children Widely Varies by Critical Care Medicine, Endocrinology and General Pediatrics Providers." In AAP National Conference & Exhibition Meeting Abstracts. American Academy of Pediatrics, 2021. http://dx.doi.org/10.1542/peds.147.3_meetingabstract.430.

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Dasi, Lakshmi P., Philippe Sucosky, Stephen Goldman, Mathew Paden, James Fortenberry, and Ajit P. Yoganathan. "Development of a Novel Fluid Management System for Accurate Continuous Hemofiltration in Extracorporeal Membrane Oxygenation." In ASME 2007 2nd Frontiers in Biomedical Devices Conference. ASMEDC, 2007. http://dx.doi.org/10.1115/biomed2007-38062.

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Failure of the cardiac or respiratory system is a common problem in the pediatric and neonatal intensive care unit. When conventional management fails to improve the child’s condition, extracorporeal life support such as extracorporeal membrane oxygenation (ECMO) can serve to provide life-saving temporary heart and lung support [1]. Renal failure often complicates care of these critically ill children on ECMO, leading to accumulation of fluid and volume overload that can worsen their heart and lung disease. Restrictive fluid management has been demonstrated to improve patient outcomes in acute lung injury.
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Takatori, Fumihiko, Masayuki Inoue, Shinji Yamamori, Seiki Abe, Matthew R. Maltese, Vinay M. Nadkarni, and Katsuyuki Miyasaka. "Finite Element Modeling of a Mainstream Capnometer System for Non-Intubated Pediatric Patients Requiring Oxygen Administration." In ASME 2013 Conference on Frontiers in Medical Devices: Applications of Computer Modeling and Simulation. American Society of Mechanical Engineers, 2013. http://dx.doi.org/10.1115/fmd2013-16061.

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Capnometry is the standard of care to measure the amount of carbon dioxide in the proximal airway, detect apnea, tracheal tube dislodgement, and effectiveness of ventilation during invasive mechanical ventilation in critically ill infants, children and adults [1]. Capnometry is not yet standard practice for non-invasively supported or ventilated patients, due to dead space ventilation, inspiratory gas washout, gas entrainment, and potential for rebreathing of gas. Potential capnometry use in non-intubated patients could identify impending respiratory failure, obstructed airways, and improve the safety and effectiveness of non-invasive support for infants and children [2].
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Hennigan, Kalie, Scott Miller, Prakash Kabbur, and Russell Woo. "The Development of a Novel Positioning System to Improve Pulmonary Outcomes in Critically Ill Patients." In ASME 2017 12th International Manufacturing Science and Engineering Conference collocated with the JSME/ASME 2017 6th International Conference on Materials and Processing. American Society of Mechanical Engineers, 2017. http://dx.doi.org/10.1115/msec2017-2992.

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An automated inflatable repositioning device was created in this study for use in the developmentally supportive care of premature neonates. Inflatable air cells were used to achieve the safe positioning of these patients. The system is comprised of two pumps, four valves and four inflatable air cells that safely and slowly direct the air flow into the desired air cells by means of an Arduino Uno and a multi-directional control switch in order to obtain safe and proper positioning. Range of motion testing was conducted and it was discovered that this system is successful in achieving a sufficient range of motion in order to safely position the manikin. A pressure sensor was also connected to the system to measure the amount of pressure in the air cells over time during inflation. From this testing, it was found that the system is successful in inflating the air cells in a slow and controlled manner. Additionally, four NICU nurses from the Kapi’olani Medical Center for Women and Children tested the device and a survey was conducted to obtain feedback about the performance of the system. Overall, the device created was found to be successful in achieving positions in four directions in a safe, slow and controlled manner by means of an easy to use system that has the potential to be integrated into current neonatal health care technology.
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Saxena, Rakhi, Promila Sharma, Pratibha Joshi, and Kavita Narwal. "Environmental Problems Among Rural Women and Management of Occupational Health and Safety." In Applied Human Factors and Ergonomics Conference. AHFE International, 2020. http://dx.doi.org/10.54941/ahfe100341.

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Women have long occupied a central place in agriculture production in developing countries, ensuring food security for their household and communities, but this role is not performed without adverse consequences for health. The major consequences include health risks owing due to women’s use and exposure to hazardous agro-chemicals/pesticides, farm-related accidents or physical injuries and exposure to hazardous solid fuel in the interior house. Developing countries like India have many polluting sources that produce high level of human exposure. Indoor air pollution in developing countries from biomass smoke is considered to be a significant source of public health hazard, particularly to the poor and vulnerable women and children. Women and children face the greatest exposure to the harmful health effects of pollution. Women traditionally carry out most household chores and spend a considerable part of their time indoors. The pollution also affects young children under their mothers’ care. Another source of high risk of ill health in rural India is exposure to spray of pesticides in the fields. In India, 70% of the population is farmers and they are the target group to be affected by the hazards of pesticide applications. In India, 70% of the population is farmers and they are the target group to be affected by the hazards of pesticide applications. Moreover, in developing countries the users are rather careless in handling pesticides. The high risk groups exposed to pesticides include the production workers, formulators, sprayers, mixers, loaders and agricultural farm workers. During manufacture and formulation, the possibility of hazards may be more because the processes involved are not risk free. In India, 70% of the population is farmers and they are the target group to be affected by the hazards of pesticide applications. Moreover, in developing countries the users are rather careless in handling pesticides. All pesticides in a given chemical group generally affect the human body in the same way; however, severity of the effects varies depending on the formulation, concentration, toxicity and route of exposure of the pesticide. Descriptive cum experimental research design was chosen for the study. The study was carried out in two districts Udham Singh Nagar and Nainital. Purposive cum Random sampling design was used to select the study area. Total sample size was comprised of 240 women from rural areas of Uttarakhand state in India. Experimental data was recorded through various scientific instruments and descriptive data was collected through interview schedule, awareness scales, and observation sheet. On the basis of anthropometric measurements the 5th, 50th and 95th percentile was calculated for the designing of personal protective equipments (gloves and coverall) through CAD for reducing the hazards of pesticide spraying and designing of chimney for minimizing the hazards of smoke originated by traditional cooking source. It was found from investigation that indoor air pollution and pesticide hazards were almost same for the families of hill region but sufferings related to indoor air pollution and pesticide hazards were more in the plain region as compare to hill region. The healthy and natural environmental conditions in the hill region and less dense housing of this region were the cause of less suffering from cooking smoke and pesticide spraying conditions. Taking the above fact into account the chances of diseases, risks and hazards were less for families of hill region.
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Reports on the topic "Chronically ill children Care"

1

Peñaloza, Blanca. Does paediatric home care improve health outcomes in children? SUPPORT, 2017. http://dx.doi.org/10.30846/1701133.

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Paediatric home care for ill children has been developed for different diseases and with different models as an alternative to care based in hospitals. In this summary we present evidence for home care for children with acute physical conditions, home rehabilitation for children with traumatic brain injury, and home chemotherapy.
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Homan, Rick, and Catherine Searle. Programmatic implications of a cost study of home-based care programs in South Africa. Population Council, 2005. http://dx.doi.org/10.31899/hiv14.1001.

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The HIV/AIDS epidemic has meant that an increasing number of chronically ill people need ongoing assistance with care and support. Programs providing home-based care (HBC) services are a key component of the response to HIV/AIDS. However, few programs are using operations research, including cost studies, to decide what services to provide and how to structure their services. In 2004, the Horizons Program undertook a study of six HBC programs from different South African provinces to provide key information to NGOs, government ministries, donors, and the programs themselves to inform decisions about service delivery. The study analyzed the cost of HBC services, the best use of resources, and how well programs are able to meet the needs of beneficiaries and their families. The sample represents programs that operate in rural areas and informal settlements. This brief focuses on the coverage, organization, volume, and costs of the services and on findings from two of the methods of data collection: financial records and service statistics, and interviews with financial officers, program managers, and caregivers.
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Steinmann, Peter. Can in-service health professional training improve the resuscitation of seriously ill newborns and children in low-income countries? SUPPORT, 2016. http://dx.doi.org/10.30846/1608152.

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Mortality among seriously ill neonates and children remains high in many low -income countries, even in healthcare facilities with professional staff. Most of these deaths occur within 48 hours of admission. In-service training courses in the emergency care of neonates and children are targeted towards professional healthcare staff. This is seen as a way of reducing mortality through training. However, most courses have been developed in high-income countries and their potential effectiveness in low-income country settings is unclear.
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How can we improve mental health care of mentally ill mothers in prison and the outcomes for them and their children? National Institute for Health Research, 2022. http://dx.doi.org/10.3310/nihropenres.1115168.1.

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