Dissertations / Theses: 'Chronic illness'

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Holt, Jim. "Diabetes: A Chronic Illness." Digital Commons @ East Tennessee State University, 2007. https://dc.etsu.edu/etsu-works/6501.

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Bryant, Tess. "Self-identity and Chronic Illness: Is self-illness enmeshment unique to chronic pain?" Thesis, University of Southampton, 2007. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.484846.

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Objective: The study aimed to investigate whether self-illness enmeshment is unique to chronic pain using explicit measures of self and whether the implicit sense of self is less positive for those who experience chronic conditions than for healthy controls. Method: Three groups of participants; a group with chronic pain (n';; 15), a group with type 2 diabetes (n = 15) and a healthy control group (n = 15) completed standardized self-report measures of affect and quality of life, then generated characteristics describing their current actual self, hoped-for self and feared-for self, and made judgments about the degree to which their future possible selves (hoped-for and feared-for) were dependent on a change in their current health status. They then completed a self-esteem version ofthe Implicit Association Test. Results: The chronic pain group were inore enmeshed with their current health status and had a less positive implicit sense ofselfthan participants with no chronic health problems. Participants with diabetes did not significantly differ from the other two groups on these measures with the exception of higher levels of illness-enmeshment with a feared-for self. Conclusion: This result is discussed in relation to self-discrepancy and self-regulatory theories and other research on illness-enmeshment and implicit self-esteem biases in clinical populations. KEYWORDS: chronic illness, selfidentity, self-esteem, enmeshment, implicit.

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Cochran, Haley. "Schooling with a Chronic Illness." Wittenberg University Honors Theses / OhioLINK, 2018. http://rave.ohiolink.edu/etdc/view?acc_num=wuhonors1527671372323964.

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Hampton, Jenaneta Sue. "Women, spirituality, and chronic illness." Thesis, Montana State University, 2004. http://etd.lib.montana.edu/etd/2004/hampton/HamptonJ1204.pdf.

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Eldred, Kerry T. "Coping with Chronic Illness: Do Strategies Differ by Illness Type?" UNF Digital Commons, 2011. http://digitalcommons.unf.edu/etd/125.

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While coping varies with individuals and is a product of complex, interrelated factors, the primary interest of this study was determining how coping behaviors manifest according to these chronic illness types: those of known pathology (e.g., asthma, osteoarthritis, lupus) and those that lack a clear, structural pathology (i.e., functional somatic syndromes and medically unexplained symptoms). Data for this study were gathered from a series of four comprehensive online surveys, which included measures of coping (Brief COPE), pain and health outcomes (SF-36), negative affect (I-PANAS-SF) and depression (PHQ- 8). The analyzed sample was comprised of 148 participants (119 Female, 28 Male and 1 Not Answered) with a mean age of 43.34 (SD = 13.69), all of whom experienced at least three months of chronic physical symptoms. Based on diagnosis, the participants were grouped into that of conventional disease (CD), functional somatic syndromes (FSS) or medically unexplained symptoms (MUS). Even while controlling for significant covariates (e.g., depression, negative affect, pain perception), multivariate analyses revealed no significant differences in coping strategies by illness group, Wilks’s Lambda = .96, F(4, 222) = 1.05, p = .38. The results suggest that the use of coping strategies does not differ by illness type, but can be predicted by other, health-related factors, notably stress, β = -.21, t(120) = -2.09, p = .04; symptoms, β = .32, t(120) = 2.82, p = .01; personal control, β = .19, t(120) = 2.16, p = .03, and negative affect, β = .34, t(121) = 2.81, p = .01. It appears that patient experience with chronic illness can be more informative regarding appropriate treatments and therapeutic interventions than just illness type itself.

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Weiland, Stephan Karl. "Chronic illness and maladjustment in childhood." Thesis, McGill University, 1989. http://digitool.Library.McGill.CA:80/R/?func=dbin-jump-full&object_id=55688.

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Lackner, Sharron L. "Chronic illness and social support, understanding interaction." Thesis, National Library of Canada = Bibliothèque nationale du Canada, 1999. http://www.collectionscanada.ca/obj/s4/f2/dsk1/tape10/PQDD_0032/NQ38482.pdf.

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Martinez, Jill A. "Chronic illness in higher education| An autoethnography." Thesis, Northern Arizona University, 2015. http://pqdtopen.proquest.com/#viewpdf?dispub=1595011.

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Higher education can present many challenges for students including managing and scheduling classes, assignments, projects, and professional and social obligations. This experience can be even more difficult for students living with chronic illness, many of whom face the additional challenges of debilitating pain, fatigue, social misconceptions, and frequent medical care. To succeed some students with chronic illnesses will need support and accommodation in order to achieve their goals and complete their degrees. In this thesis I explore the barriers I faced as a student with chronic illness in higher education and what accommodations may help remove those barriers for future students. With this thesis I hope to participate in social, political and academic conversations as a means to increase understanding among fellow students, faculty, staff, and administrators. It is my hope that these conversations will contribute to a movement that will help support and encourage students with chronic illnesses.

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Sartain, Samantha Anne. "Vulnerability and capacity in childhood chronic illness." Thesis, Northumbria University, 2004. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.400006.

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Karnad, Madhu. "Gender differences in coping with chronic illness." [Johnson City, Tenn. : East Tennessee State University], 2001. http://etd-submit.etsu.edu/etd/theses/available/etd-0327101-184147/unrestricted/KarnadL%5F0501.pdf.

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Suchak, Meghana. "Role conflict, uncertainty in illness, and illness-related communication avoidance| College students facing familial chronic illness." Thesis, Purdue University, 2015. http://pqdtopen.proquest.com/#viewpdf?dispub=3702105.

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The focus of the current study was on examining possible differences in college students' adjustment based on residency status (i.e., international Asian vs. domestic students) and illness status (i.e., having a family member with a chronic illness vs. not having a family member with a chronic illness). The study also examined the associations between overall college student adjustment and the family and illness-related factors of role conflict, uncertainty in illness, and illness-related communication avoidance for students will a chronically ill family member. The literature review drew from the fields of college student development, family studies, communication, and nursing. Data were collected from 232 students (85 international Asian and 147 domestic) from two Midwestern public universities. A MANCOVA and a hierarchical regression were performed to address four research questions and test three associated hypotheses. Results indicated that international Asian students scored lower than their domestic peers on the college student adjustment domains of social adjustment and institutional attachment. Students who had a family member with a chronic illness scored lower on the college student adjustment domain of personal-emotional adjustment than students who did not have a family member with a chronic illness. Finally, there was a negative association between role conflict and overall college adjustment regardless of residency or illness status. Recommendations are discussed for counseling psychologists working in a variety of settings across college campuses.

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Öhman, Marja. "Living with serious chronic illness from the perspective of people with serious chronic illness, close relatives and district nurses." Licentiate thesis, Luleå tekniska universitet, Omvårdnad, 2003. http://urn.kb.se/resolve?urn=urn:nbn:se:ltu:diva-26546.

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The overall aim of this licentiate thesis is to elucidate the meaning of experiences of serious chronic illness as narrated by people with such illness (n=10), close relatives (n=14) and district nurses (DN) (n=10), that is from an insider viewpoint. Data was collected through narrative interviews that were analysed using a phenomenological hermeneutic interpretation. People living with serious chronic illness live a life hovering between suffering and enduring but which also includes a cautious process of reformulation of the self. Suffering emerges, first and foremost, from pain, fatigue, loss of strength and independence. Central to the illness experience is a feeling of loneliness and existing in a state of tension between hope and despair about survival. The experience of being involved in a struggle for normalcy by integrating changes and by learning to live a new kind of daily life at home is also salient in the narratives. Close relatives living with people with serious chronic illness live a life with reduced personal freedom and an increased sense of responsibility for the care of the ill person. The relatives struggle with the ethical demand that they gain the strength to manage this responsibility, which requires their total involvement in living with the ill person's pain, fear, anxiety and suffering. Feelings of loneliness arise relating to the silence of the home; the illness influences their capacity to converse about mutual memories and everyday happenings. The death of the ill person creates immediately a huge emptiness and a lack of mission and meaning in life. For DNs serious chronic illness means encounters with the people concerned in a close relationship. They share both the experiences of the ill person and their close relativesas well as their understanding of the illness. This wakes DNs available to alleviate and console them by being entirely present and by staying with them in in communion in difficult situations. The comprehensive understanding of this study concerns togetherness, throug sharing an inter-subjective world and being in communion.
Godkänd; 2003; 20061205 (andbra)
Att vara svårt sjuk i hemmet

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Mayhew, Sophie Louise. "Service engagement and illness appraisals in individuals with psychotic illness or chronic relapsing physical illness : a review." Thesis, University of Birmingham, 2003. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.397123.

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Johnson, Juli A. "A Retrospective Look at How Effectively Parents, Peers Without a Chronic Illness, and Other Adolescents With a Chronic Illness Impact the Self-Esteem and Body Image of Adolescents With a Chronic Illness." Ohio University / OhioLINK, 2016. http://rave.ohiolink.edu/etdc/view?acc_num=ohiou1472747981.

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Hatchcock, Tara L. "Social Connectedness and the Impact on Chronic Illness." UNF Digital Commons, 2012. http://digitalcommons.unf.edu/etd/590.

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Having a chronic illness may feel alienating, yet examination of the literature shows limited research on social connectedness and health. In order to contribute to the understanding of this impact of illness, I examined perceived levels of social connectedness in persons with chronic diseases (CD), functional somatic syndromes (FSS) and medically unexplained symptoms (MUS). A major focus of this study was to investigate the association of social connectedness with depression, anxiety, and general health in patients with ongoing symptoms of illness. Data collection was obtained through the use of four online surveys collectively known as VOICE (Verification of Coping, Illness and Experience). For the purposes of this study, five measures were used: the Social Connectedness Scale, Short Form Health Survey (SF-36), Patient Health Questionnaire depression scale (PHQ-8), Hopkins Symptoms Checklist (HSCL) and the Social Impact Scale. Participants were recruited through announcements via online message boards and support groups, as well as through the distribution of brochures in local medical practices. A total of 148 participants (80% female) completed all four surveys. Results indicated that the chronic illness groups did not significantly differ in social connectedness, although there was some indication that the FSS group felt more social isolation. Regression analyses indicated that, while accounting for socio-cultural and health factors, social connectedness was the strongest predictor of depression (β = - .43, p < .001), anxiety (β = -.48, p < .001) and general health (β = .34, p < .001) in chronically ill persons. The independent and robust relationship of social connectedness with psychological and physical health in individuals with chronic illness suggests that this is an important factor deserving of future research with important clinical applications.

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Dogolich, O. I. "Chronic fatigue syndrome – an illness or a syndrome?" Thesis, БДМУ, 2020. http://dspace.bsmu.edu.ua:8080/xmlui/handle/123456789/18048.

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Lee, Debra A. "The Role of Relationships During Chronic Critical Illness." Case Western Reserve University School of Graduate Studies / OhioLINK, 2011. http://rave.ohiolink.edu/etdc/view?acc_num=case1307657748.

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Rehm, Roberta S. "Mexican American family experiences with chronic childhood illness /." Thesis, Connect to this title online; UW restricted, 1996. http://hdl.handle.net/1773/7327.

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Wayman, Lisa M. "Art as a Healing Modality in Chronic Illness." Diss., The University of Arizona, 2013. http://hdl.handle.net/10150/293411.

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Chronic illness is endemic in the United States. Though people with chronic illnesses will not be cured, interventions can improve their well-being. Creating art as an intervention has been shown to assist people with chronic illnesses to improve well-being. Though creating art as a health promotion intervention is widespread it has not been well studied and the structure, process and outcomes of the intervention are not well understood. The purpose of this study was to identify and describe various key components of creating visual art as a healing intervention in the context of chronic illness. This study developed knowledge that will assist practitioners who use this complex intervention and researchers seeking to test its effectiveness in health promotion and healing in a chronically ill population. A qualitative descriptive design was used to explore art as a healing intervention. Photographs of art created by participants were observed, and participants were interviewed to collect data on the structure, process and outcomes of art as a healing intervention. The content and descriptive analysis of the data are used to describe the components of art as an intervention as well as the modifiers of the intervention process and the relationship of the components to each other to allow further research to be appropriately focused. Creating art is an intervention that works with a whole person to provide an opportunity for emergent change through disrupting old patterns, creating movement, and providing the opportunity for the participant to adopt new healthier patterns for living with chronic illness. Creating art does not have a predictable outcome, but rather has patient specific outcomes dependent on the patient's particular needs and individual self-organization. This study contributed to knowledge about creating art as a healing intervention by exploring various intervention components that must be explicated prior to development of program initiatives in practice and conducting systematic studies about the effectiveness of this intervention. The results of this study provide a foundation for a research career that both furthers the use of art as a healing intervention and further develops intervention theory to include complex evaluation methods.

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McKee, Kaitlyn M. "Chronic Illness Stigma: The Experiences of Emerging Adults." Digital Commons @ East Tennessee State University, 2017. https://dc.etsu.edu/honors/422.

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Individuals with chronic illness often face the added burden of stigma associated with their chronic conditions. Stigma has been associated with fewer psychosocial resources of social support, self-esteem, and self-compassion, as well as less access and usage of mental and physical healthcare. However, it is unclear whether stigma experiences vary by age of the individuals with chronic illness. It was hypothesized that emerging adults would report more perceived stigma, fewer psychosocial resources and less access to medical treatments. It was additionally hypothesized that perceived stigma would mediate the association between age and outcomes. 197 participants completed an online survey using Survey Monkey. Results of multiple regression analysis testing for mediation did not support hypotheses. In fact, emerging adults reported easier access to treatments than older adults. Post-hoc analyses were conducted and revealed that among emerging adults – but not older adults – perceived stigma was significantly related to less access to medical treatments. Thus, age may moderate the impact of stigma of chronic illness on access to healthcare in individuals with chronic illness, rather than predict more or less stigma of chronic illness. This indicates that in spite of easier access to care for emerging adults, increased stigma might interfere with their seeking of that care. Future studies should examine the impact of stigma on emerging adults’ treatment access.

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Brady, Ann Marie Brigid. "Chronic illness in childhood and adolescence : a longitudinal exploration of co-occurring mental illness." Thesis, Queen Mary, University of London, 2017. http://qmro.qmul.ac.uk/xmlui/handle/123456789/31703.

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Chronic health problems are hypothesised to be a risk factor to child and adolescent mental health, due the consistent and continuing stress these health problems pose to normative patterns of development. However, this theory remains to be substantiated by empirical research. Moreover, a systematic review conducted as part of this research indicated that the empirical body is not one on which the validity of this theory can be adequately tested. The major question posed is whether the lack of high quality epidemiological data in the field is obscuring a true psychiatric risk associated with chronic illness in childhood and adolescence, or whether, in contrast, the theory of chronic health problems as a particular risk factor to child and adolescent mental health, is based on false premises. In order to provide a stronger insight into the association of chronic health problems to mental ill-health across the late childhood and adolescent period, this study used data from a large, representative British sample (the Avon Longitudinal Study of Parents and Children (ALSPAC)) and sensitive measures of mental health outcomes. Mediating factors in these associations were also identified, and a model of the association of chronic health problems to poor mental health outcomes in early adolescence was developed. In order to ensure that all findings were applicable across chronic health conditions, outcomes over this period for children with chronic illness more generally were compared to outcomes for children with asthma diagnoses. Children with chronic health problems presented with a disproportionate rate of psychiatric illness at 10 years, and these chronic health problems continued to be associated with poor mental health outcomes across the early to mid-adolescent period. The outcomes at 10 and 13 years were suggested to be mediated by factors non-specific to any diagnosis, specifically peer victimisation and health-related school absenteeism. Limitations to external validity in the research, and implications for public health and future research are discussed.

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Brassington, Linsay. "Better living with illness : transdiagnostic approaches to psychological interventions for people with chronic illness." Thesis, University of Edinburgh, 2015. http://hdl.handle.net/1842/20955.

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Objective: Chronic physical health problems are on the rise. Psychological interventions can play a role in helping people cope with the challenges that long term physical conditions brings. This thesis systematically reviewed the literature for group psychological interventions. Following this, an Acceptance and Commitment Therapy group intervention for people living with a range of long term physical conditions was designed and evaluated. Methods: Key databases were searched for relevant randomized-controlled studies. Papers that met inclusion criteria were quality assessed, and a meta-analysis was conducted. Participants with chronic physical health conditions were invited to an Acceptance and Commitment Therapy group (n=53). Measures were completed at assessment, pre, post and 3-month follow-up. These assessed anxiety and depression symptoms, health perceptions, values-based living and psychological flexibility. Assessment to pre-intervention served as a within-participant control. Results: 22 relevant studies were retrieved, with 18 rated as acceptable or high quality and 14 included in a meta-analysis. The majority of studies reported interventions as efficacious at reducing mental health problems, though effect sizes were weaker when compared to active controls such as education. In the Acceptance and Commitment therapy group, depression and anxiety symptoms reduced significantly from pre to post, compared to control period. Conclusions: Group psychological interventions may be beneficial for people with physical health problems. In particular, group-based ACT interventions may be effective with this population and can be delivered transdiagnostically for a range of physical conditions.

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Keller, Alyse. "Performing Narrative Medicine: Understanding Familial Chronic Illness through Performance." Scholar Commons, 2017. http://scholarcommons.usf.edu/etd/6876.

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This study presents the process of creating a performance ethnography of my family’s narratives about familial chronic illness and disability. I label this process performing narrative medicine. By documenting and granularly analyzing the process of my performance ethnography, the following chapters provide a step-by-step discussion of how families communicate about chronic illness/disability through storytelling and humor, and how/what performance does as a method, metaphor and object of study to further our current communicative practices and understandings of chronic illness and disability in families. I argue that performing narrative medicine is a heuristic for families living with chronic illness and disability, and a method that may be used and applied outside the context of my own family. The chapters in my dissertation directly address the following questions: How does my performance work as embodied knowledge to gain greater understanding of the lived experience of familial disability/chronic illness? How does the use of humor as a communicative construct, and performance ethnography work as a practice of “performing narrative medicine?” What are our scholarly stakes in performing narrative? How too might binding narrative medicine to performance inform how we do qualitative research? How do the respective motions of narrative medicine and research practices/principles of performance ethnography converge and cross-fertilize each other? Does a work like narrative medicine endow storytelling and performance with a consequentiality? This performance ethnography of familial disability and chronic illness contributes to understandings of families dealing with chronic illness/disability, extends narrative medicine as a theoretical construct, and speaks to a long tradition of the practice of performance ethnography. Overall, performing narrative medicine reveals the underlying communication competencies at work in families living with chronic illness and disability. Through the use of humor and performance as a communication practice, I reveal the power of empathy. The power in realizing our own human capacities to relate to one another across differences, and continue the work of “living well.” This dissertation emphasizes the power of performance to constitute alternative ways of performing and understanding familial chronic illness, by emphasizing the work of creating, implementing and studying performance.

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Mandlik, Milind Anil. "Professional service relationships in chronic illness: the client's perspective." AUT University, 2010. http://hdl.handle.net/10292/942.

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The relationship between professional service providers and their clients is of great importance to many service industries including educational, financial, consulting and healthcare services. The aim of this research enquiry is to identify, generate and describe a theoretical explanation of how a client engages in and manages their relationship with their health professional over a period of time. Fifteen participants living with chronic medical conditions were interviewed over a period of four months with data collected via unstructured in-depth interview sessions, and analysed using thematic analysis. The analysis reveals three major themes, nature of relationship, degree of control and service satisfaction. Of central concern is the longevity of the relationship between the healthcare client and his/her service provider. If the service provider is willing to share their authority and relinquish some of the control to the client, the client feels empowered. The client is then willing to provide information and effort to co-create effective service episodes. This sharing of authority enables the client to have better control on their service consumption. The sharing of authority also has an impact on the client’s propensity to remain engaged with their service provider. The findings of this study have implications for our knowledge and understanding of professional service delivery and how it differs from the delivery of consumer services. The study clearly indicates a shift in the role of a client as an empowered entity who wants to be part of, not just the service consumption, but service production as well. The key lessons from this study may inform other types of services including financial, educational and consulting services.

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Docherty, Deborah. "The narrative approach to understanding the chronic illness experience /." Thesis, McGill University, 2000. http://digitool.Library.McGill.CA:80/R/?func=dbin-jump-full&object_id=33459.

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This small exploratory study considers the use of the narrative approach in eliciting and understanding illness stories. The four participants, (two male and two female) range in age from 29 years to 74 years. They live with a variety of chronic illnesses (heart disease, Multiple Sclerosis, and Pick's disease). Narrative analysis of the four semi-structured transcribed interviews revealed four dominant themes: the emotional reaction to diagnosis; the role of stress in aggravating and coping with chronic illness; a view of death; the meaning attributed to illness.
A postmodern perspective is employed to explicate the social construction of the notion of chronic illness. A critique of the medical discourse regarding chronic health challenges is offered.
This study invites social workers to consider their position of power and privilege as they learn new ways of listening to illness narratives.

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Pit-ten, Cate Ineke Martha. "Family adjustment to disability and chronic illness in children." Thesis, University of Southampton, 2003. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.400489.

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Weston, Christine Anne. "Psychosocial adjustment in children and adolescents with chronic illness." Thesis, University of Southampton, 2000. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.327607.

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Lenton, Rebecca. "Living with chronic illness : experiences of diagnosis and treatment." Thesis, University of Warwick, 2017. http://wrap.warwick.ac.uk/94817/.

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The experience of living with a chronic illness can impact on both the person receiving a diagnosis and those close to them. Experiences of diagnosis and any subsequent treatment are important as it allows individual, lived experiences to be better understood. Through exploring these experiences, it is hoped that services, treatment and support could be developed and improved. This paper consists of three chapters. Chapter one focuses on the experiences of partners of men with prostate cancer. A review of the literature identified twenty-two papers that are reviewed and synthesised into four overarching themes. Changes to the relationship and the unmet needs of partners are explored. Further ways in which services and professionals can support partners are identified. Chapter two involves a qualitative study exploring the experiences of seven men living with a diagnosis of Bipolar Disorder. Interpretative Phenomenological Analysis is utilised to understand men’s lived experiences. One theme identifies the battles men experience internally and externally in relation to vulnerability, masculinity, medication and stigma. Clinical implications and research directions are identified. Chapter three is a reflective account of the overall research process. It spans from the development of the research proposal through to conducting and reflecting on the research undertaken. Consideration is given to the role of a Clinical Psychologist in the research process.

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Ho, Cornelia. "Understanding and influencing dietary self-care in chronic illness." Thesis, University of Birmingham, 2012. http://etheses.bham.ac.uk//id/eprint/3848/.

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Objectives Coeliac Disease (CD) is a common chronic autoimmune disorder characterised by sensitivity to gluten. This study investigated the relationships between CD illness representations, coping, self-efficacy, health related quality of life, wellbeing, psychological distress and dietary self-care (following a gluten free diet) among adults with coeliac disease. Design A questionnaire-based correlation design was used to investigate the hypothesised relationships between illness representations and outcomes. Methods Ninety six adults with CD, recruited through dietician clinics, completed a single booklet of questionnaires about their beliefs, experiences and behaviour in relation to their CD. In addition serology (CD antibody levels) and clinician rated levels of dietary self-care (both taken within one month of participation) were employed as additional measures of behaviour. Results Results of regression analyses showed that some aspects of illness representation, particularly estimates of consequences and emotional impact were related to some psychosocial outcomes but not levels of dietary self-care (which was generally high among the sample). Conclusions Illness representations may be useful in explaining some psychosocial outcome for CD, but more research would be needed to assess whether they are useful in explaining dietary behaviour among this population. Findings related to coping and self-efficacy are also discussed.

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Mycue, Victoria de los Santos. "Listening to the body| Embodied engagement with chronic illness." Thesis, California Institute of Integral Studies, 2016. http://pqdtopen.proquest.com/#viewpdf?dispub=10117914.

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Using a phenomenological hermeneutic embodied methodology, this study investigates the phenomenon of chronic illness as it is experienced internally. Through a focusing meditation and an embodied art directive, the stage is set to explore the phenomenon. Using a semi-structured protocol, participants were interviewed two times over a four-month period, and asked to identify how their internal experiences informed the management of their illness. Participants were also asked how this body-based information converged with medical prescriptions from primary care providers. Qualitative data were analyzed using interpretative phenomenological analysis (IPA). Participants took part as co-researchers in the coding process and two peer debriefers were engaged in a discursive analysis tracing themes across narratives to develop codes organized under three superordinate categories with ten corresponding subordinate headings. Three primary findings were clustered under the superordinates: 1.0 My body has a place at the table now, 2.0 My body as it relates to medicine, 3.0 Looking forward, looking back: making meaning from this body’s history. Results indicate that participants used their bodies’ signs by recognizing the language that the body communicates, then processing the impact and making decisions about how to proceed. Secondly, participants described a time when their bodies conflicted with medical advice and the reality of what they were physically experiencing was so compelling they were obliged to go with the strong physical evidence that was expressed by their bodies. A third finding from this investigation is that individuals can have highly developed ideas about the origins of their illnesses and these ideas might play a pivotal role in their healing process.

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Williams, Simon Johnson. "The consequences of chronic respiratory illness : a sociological study." Thesis, Royal Holloway, University of London, 1990. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.321334.

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The Study upon which this thesis is based attempts to offer a sociological perspective on the consequences of chronic respiratory illness. Using the International Classification of Impairments, Disabilities and Handicaps [WHO 1980] as a framework, 92 patients suffering from chronic obstructive airways disease (CO.AD: chronic obstructive bronchitis, emphysema and chronic asthma) were interviewed in order to assess the extent of impairment (functional limitation), disability (activity restriction) and handicap (social disadvantage) experienced. A smaller sub-sample of twenty-four of these patients - and where possible their carers - were subsequently followed-up using qualitative, open-ended, interviews, in order to cover in greater detail some of the issues raised within the first-stage of the study. Chapter 1 provides a critical review of the existing psychosocial literature on COAD, chapter 2 discusses of some of the main methodological problems of assessing the consequences of CO.AD, whilst chapter 3 outlines the methods used within the study and the basic sample characteristics. The thesis then goes on to discuss the experience of living and coping with COAD and its symptomatology (chapter 4); medical care and the problems of medical regimens (chapter 5); practical problems of daily life (chapter 6); problems of work and income (chapters 7 & 8), and finally; the more diffuse social consequences of COAD (chapter 9). Patients were found to experience quite severe problems spanning a broad range of areas including: breathlessness and associated COAD symptomatology, psychological distress, disability, practical problems of daily life, problems of work and income, and problems concerning social and family life. Moreover, physiological measures of lung function proved to be fairly poor predictors of disability/quality of life (e.g. - 0.38 p < .001), whilst much higher correlations were found to exist between breathlessness and such measures (e.g.-0.90 p < .001). The thesis concludes by discussing some of the policy implications of the study: particualarly the extent to which a reduction in handicap could bring about a considerable improvement in sufferers quality of life. The need for a more integrated approach to the care and rehabilitation of such patients and their families is also discussed.

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Adair-Stantiall, Alethea. "Illness representations, coping and psychosocial outcome in chronic pain." Thesis, University of Southampton, 2010. https://eprints.soton.ac.uk/172759/.

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Research has recognised the importance of understanding the chronic pain experience using a biopsychosocial model. This approach acknowledges the impact of cognitive factors on psychosocial adjustment to chronic pain. This literature review explores the difficulties encountered by individuals adapting to a life with pain. It evaluates the evidence pertaining to the idea that beliefs about illness and coping strategies affect psychosocial outcome in chronic pain. The review considers the role of cognitive factors in self-regulating illness using the Common-Sense Model of Illness Representations (CSM). An evaluation of this model as it applies to chronic conditions is provided. Reviewing the literature reveals that despite numerous studies examining the CSM in chronic illness, there is a paucity of research applying it specifically to chronic pain. This review highlights the potential usefulness of exploring the CSM in this population in order to consider both the empirical value of the CSM and gain further knowledge regarding useful psychotherapeutic interventions in chronic pain. On this basis, the present study sought to investigate the CSM in a sample of adults with chronic pain. A significant relationship between a number of illness representations (beliefs about illness) and psychosocial outcomes was found. A subset of these met criteria for mediation. The findings imply that particular illness representations (identity, consequences and emotional representation) are associated with the coping strategy catastrophising, which in turn is associated with an increased tendency for depression, anxiety and reduced quality of life. Due to the cross-sectional design, causal inferences cannot be made. However, the findings imply partial support for the CSM in a chronic pain population. Directions for future research are highlighted, as well as implications for psychotherapeutic interventions which could help reduce unhelpful beliefs and maladaptive coping strategies.

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Kilbreath, Eric Howard. "Applying thomistic virtue ethics to patients with chronic illness." Thesis, University of Bristol, 2000. http://hdl.handle.net/1983/a6e68092-4f42-4e81-a374-eeead1f73ea0.

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Thompson, Jacquelyn J. "How chronic illness affects family relationships and the individual." Online version, 2009. http://www.uwstout.edu/lib/thesis/2009/2009thompsonj.pdf.

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Bodycombe-James, Marie Elizabeth. "Children's stories on managing their chronic illness at home." Thesis, Swansea University, 2012. https://cronfa.swan.ac.uk/Record/cronfa42534.

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Changes in the epidemiology of child health have resulted in the reduction of acute infectious disease and an increase in the numbers of children who live with a chronic condition. Children with a chronic condition are more likely to be hospitalised due to complications, or exacerbation of their condition. Repeated hospital admission for children has been shown to be detrimental to their psychological and physical health. However the provision of care at home by community children's nursing service has been reported as less stressful and facilitates normality for the child and family. Within this thesis I have explored the experiences of thirty (n-30) children between the ages of seven and eleven years of age of managing their chronic illness at home. I adopted a narrative inquiry approach to the research which was based on the concept that children are social actors who can act with intention in their own lives. The thesis is grounded within the new sociology of childhood and adopted the framework of the Mosaic Approach to focus this study to involve child participants as co-constructors of meaning. The study shows that children prefer to be looked after at home by the community children's nurse. They are able to recognise the knowledge and skills of the community children's nurse, and the study has identified that the community children's nurse empowers children with a chronic illness to enable them to develop the knowledge and skills they require to manage their chronic illness at home. The study highlights the need for more research that includes children as participants and also as co- researchers to ensure that services provided to children are designed to meet needs that the children themselves have identified.

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Brown, Amanda. "The Lived Experiences of Managing Uncertainty in Chronic Illness." ScholarWorks, 2018. https://scholarworks.waldenu.edu/dissertations/4912.

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Chronic illness is an increasing concern in the United States as the CDC reports that about 50% of adults have at least 1 chronic illness. When individuals must adjust to chronic illness they may experience uncertainty regarding the illness, prognosis, and symptoms. The purpose of this qualitative, phenomenological study was to explore the lived experiences of individuals living with uncertainty in chronic illnesses. A Merle Mishel's uncertainty in illness theory was the framework used to explore the lives of individuals diagnosed and living with chronic illness. In-depth interviews were conducted with 8 individuals who have chronic disease; data were audio-recorded and transcribed. The data were analyzed using thematic coding, and stored in NVivo and categorized for commonality in results. Results revealed themes that individuals with chronic illness do experience uncertainty and that it impacts almost all aspects of their lives. The individuals expressed changes in daily activities, the need to plan ahead, altering plans based on symptoms, and retraining their minds to accept their new normal. Individuals diagnosed with chronic illness face daily challenges. Obtaining a better understanding of alternate ways to cope and manage uncertainty can greatly impact the individuals quality of life. The information produced from this study will help contribute to positive social change to enable healthcare providers to address the uncertainty at diagnoses and offer ways for individuals to cope and manage the additional stressor. Recommended areas for further research include repeating the study with a larger, more diverse sample, conducting interviews during different times of the year, and investigating the use of a multidisciplinary team approach for chronic illness treatment.

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Faber, Shawna. "Renal failure : a sociocultural investigation of an illness." Thesis, National Library of Canada = Bibliothèque nationale du Canada, 1999. http://www.collectionscanada.ca/obj/s4/f2/dsk1/tape7/PQDD_0018/NQ46342.pdf.

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Zeddies, Andréa McBride. "Chronic illness in context examining sociocultural factors in women's experience of lupus /." Access restricted to users with UT Austin EID, 2001. http://wwwlib.umi.com/cr/utexas/fullcit?p3037033.

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Pontefract, Amanda. "Differentiating coping patterns for illness-related and other types of stressors in adolescents with chronic illness." Thesis, University of Ottawa (Canada), 2003. http://hdl.handle.net/10393/29063.

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The aim of this study was to investigate the personal stressors and patterns of coping in adolescents living with a chronic illness. Primary objectives were to: (1) identify salient stressors and to determine the relation between cognitive appraisals and the degree to which a stressor is perceived as illness-related or typical of adolescence; (2) assess differences in coping strategies used for illness-related and other types of stressors; (3) investigate if gender or age influences the frequency, cognitive appraisals or types of stressors reported, or the nature and the overall number of coping strategies reported. A secondary objective was to assess the extent to which health-related quality of life is related to stressors, coping strategies and coping in general. In the current study, 193 chronically ill adolescents listed up to 20 personal stressors and rated the frequency, control over the cause, perceived impact, control over the outcome, and the extent to which each stressor was related to the chronic illness, and typical of adolescence. Adolescents reported coping strategies (Kidcope) for one self-identified illness related and one non-illness related stressor and for two stressors standardized for the entire sample. Participants also completed a global measure of adolescent coping (A-COPE) and a health-related quality of life measure (Rand 36-item Health Survey). Results showed that the most frequently identified stressors were similar to those reported for healthy adolescents. Moreover, stressors were rated as more typical of adolescence than they were illness-related. Although perceived control over the cause was negatively related to stressor impact for self-identified stressors, neither controllability ratings nor impact were significantly correlated with illness or typical ratings. Considerable consistency in coping was found across self-identified stressors only. Females employed more social support and emotional regulation than did males. Although the number of stressors and the perceived impact of stressors increased with age, consistent age differences in coping were not obtained. Poorer general health perception was associated with greater impact for illness stressors. Perceived controllability over the outcome was associated with increased approach coping for both self-generated and standard stressors. Study limitations, suggestions for future research, and clinical implications are discussed.

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Rechner, Mona Gale. "Adolescents with cancer : their experience living with a chronic illness." Thesis, University of British Columbia, 1989. http://hdl.handle.net/2429/27341.

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This phenomenologic study was designed to understand and describe the experiences of adolescents with cancer living with a chronic illness. The study was conducted with a sample of five adolescents, aged thirteen to seventeen who had received or were receiving treatments for cancer. Data were collected during audio-taped interviews and were analyzed for common themes. The findings revealed that the adolescents' overall goal was to get on with life. The teenagers responded to cancer by experiencing the illness and determining that they were normal. They developed a philosophy of being positive and redefined their social world in order to get on with life. Understanding the manner in which adolescents with cancer experience living with this illness may enable health care practitioners to provide appropriate care to the teenager with cancer. Implications for practice, research and education are discussed.
Applied Science, Faculty of
Nursing, School of
Graduate

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Oke, Carolyn Louise. "Differential patterns of maternal and child adaptation to chronic illness." Thesis, National Library of Canada = Bibliothèque nationale du Canada, 2000. http://www.collectionscanada.ca/obj/s4/f2/dsk2/ftp03/NQ49527.pdf.

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Lee, Nong Foon Ruth. "Illness experience of Chinese immigrants with chronic fatigue and weakness." Thesis, National Library of Canada = Bibliothèque nationale du Canada, 2000. http://www.collectionscanada.ca/obj/s4/f2/dsk1/tape4/PQDD_0026/NQ49957.pdf.

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McPherson, Gladys Irene. "Children's participation in chronic illness decision-making: an interpretive description." Thesis, University of British Columbia, 2007. http://hdl.handle.net/2429/579.

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Participation in decision-making and inclusion in the important matters of one’s life are upheld as measures of equality and indicators of the moral status of individuals in liberal democratic societies. To some extent, the status of children in western societies is a contested question, and hence, the nature of children’s contributions to decisions is a matter of debate. Evidence suggests that in spite of an apparent societal commitment to children’s participation in the important matters of their lives, children tend to be excluded from decisions in which they might reasonably be involved. This project investigated the participation of one group of children—chronically ill school-age children— in decisions related to their health care. Adopting interpretive description as methodology, data were collected and analyzed through interviews and participant observation with 31 chronically ill children (ages 7 to 12 years) and their parents, as well as through interviews with health care providers. In this study, children’s participation in health care decisions emerged as a complex activity, deeply embedded in relationship and history. Participation varied within two key domains: children’s opportunities and abilities to formulate and make known their intentions and desires in decisional contexts (the resonance of children’s voices); and the standing achieved by children’s views within decisional processes (the relevance of children’s voices). The interplay of adult authority and children’s agency at the nexus of the resonance and relevance of children’s voices created certain participatory spaces, depicted as moral and social realms variously characterized by children’s silence, children’s tangible expression, adult imposed authority, or adult assumed responsibility. The findings of this study demonstrate a need to re-think our concept of children’s participation, and point to the importance of developing a more relational and contextual understanding of how chronically ill children may contribute to important matters in their lives. The findings also support a view that nurses and other health care providers hold certain responsibilities to critically question the relationships and structures that comprise children’s health care encounters, toward a goal of creating conditions where possibilities for children’s participation are optimized.

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Nolan, Terence. "Clinical trial of social worker assistance in childhood chronic illness." Thesis, McGill University, 1986. http://digitool.Library.McGill.CA:80/R/?func=dbin-jump-full&object_id=75376.

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Children with chronic illnesses have a doubled risk of developing psychosocial maladjustment--emotional problems, behavior disorder or difficulties in social relationships. Social work support and counselling aims to reduce this secondary morbidity, and is a common form of hospital-based psychosocial service. The first randomized controlled trial of this type of intervention was carried out to evaluate its effectiveness in treating and preventing maladjustment. This thesis describes how child behavior outcomes were assessed before and 4 months after a 6 month period of social worker assistance in 173 children randomized to intervention, and in 169 controls, all with chronic illnesses.
No significant difference between intervention and control groups in the overall prevalence of maladjustment was found. There was no evidence to support a therapeutic or preventive effect of social work counselling on child behavior outcomes, nor was there improvement in child perceived competence. A search for treatment interactions failed to reveal any sub-group that benefitted from the intervention, and restriction of the analysis to individuals who actually received the intervention does not alter any of these conclusions.
Measurement problems, co-intervention, or other forms of bias cannot account for the negative results. It is speculated that if social work support is to be effective, it should be targetted, potent, of adequate duration, and possibly integrated within specialist clinic services.

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Moreland, Jessica Elizabeth Natanya. "Illness representations, acceptance, coping and psychological distress in chronic tinnitus." Thesis, University of Leicester, 2007. http://hdl.handle.net/2381/9098.

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Tinnitus is a prevalent condition which is associated with significant distress and disability in a substantial proportion of the population. The variance in distress is not adequately explained by audiological characteristics of the symptom and it has been widely accepted that other variables are influential in determining the relationship between the stimulus and distress. A review of the literature highlights significant relationships between many psychosocial variables and tinnitus severity (impact on life). However, conclusions based on existing research are limited due to methodological weaknesses and widespread neglect of coherent theoretical foundations. The review identifies a need for further research with comprehensive theoretical underpinning to provide a greater understanding of adaptation to chronic tinnitus. One theoretical framework which has been applied extensively to explore the process of adaptation to chronic conditions is Leventhal's Self Regulation Model (SRM). This model has not yet been applied to the study of chronic tinnitus with sufficient methodological rigour to draw firm conclusions on its utility for this patient group. Existing research on tinnitus suggests that coping efforts (integral to the SRM) are often associated with increased distress with the notable exception of strategies indicative of acceptance. Recent research into chronic pain has indicated a role for acceptance in predicting adaptation, however it has not been investigated in the context of tinnitus to date. Therefore, research was undertaken to investigate the relationships between cognitive illness representations, coping, acceptance and psychological distress in patients with chronic tinnitus. The findings suggest that cognitive illness representations predict variance in psychological distress and that coping and acceptance variables enhance the explanatory power of the models. The clinical implications of the findings and the limitations of the study are discussed. Finally, an account of the process of undertaking the research and reflections on this experience is presented.

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Selfe, Susan Anne. "Chronic pelvic pain in women : illness, disease and medical attitudes." Thesis, University of Southampton, 1998. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.262875.

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Cook, Carolyn M. "Impact of Chronic Traumatic Encephalopathy Information on Perceptions of Illness." Ohio University / OhioLINK, 2019. http://rave.ohiolink.edu/etdc/view?acc_num=ohiou1562589809804291.

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Phillips, Mark W. "Spiritual dimensions coping with chronic illness such as multiple sclerosis /." Theological Research Exchange Network (TREN), 2000. http://www.tren.com.

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Shiu, Shiona. "Achieving equity in educational outcomes for students with chronic illness." Thesis, View thesis, 2008. http://handle.uws.edu.au:8081/1959.7/19222.

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This portfolio documents an investigation of both parent and educator perspectives of managing a chronic illness at school with the aim of developing a framework to ensure that students with chronic illness have equitable access to the same educational outcomes as their healthy peers. This study provides an in-depth exploration of a number of facets of the impact of having a chronic illness, including social, emotional, cognitive and physical aspects. The use of both parent and teacher perspectives provides insights into the realities of having a child with chronic illness at school, and offers some understandings of the risks and challenges parents face as they relinquish care of their ill child into the hands of educators. It also examines the role of educators as they assume much of the responsibility for providing educational, social and emotional support for these students, as well as monitoring their medical needs and health status whilst at school. The evidence from research in the field of child chronic illness suggests that students with chronic illness are at risk academically, emotionally and socially. The effectiveness of any strategy that aims to achieve equity in participation and outcomes for this group of students will depend upon understanding the complex factors that impact on students with chronic illness at school such as absenteeism, relationships with peers and individual resilience. This study addresses the research questions: What are the concerns of parents, educators and students with chronic illness in the educational context? What strategies are consistently being identified as effective in supporting students with a chronic illness at school? And what are the barriers to chronically ill students accessing educational services? Two, two part questionnaires were used to elicit responses from parents and educators of students with chronic illness. The parent respondents consisted of 121 parents of students with chronic illness attending Department of Education schools across NSW, Australia. The teacher respondents consisted of 111 teachers of students with chronic illness in Department of Education schools across NSW. The insights that emerged from the research suggest that the needs of this group of students remain unrecognised and under-resourced. Major findings indicate that many students with chronic illness have high levels of absenteeism, are underachieving academically, have difficulties keeping up and catching up with missed school work, are challenged in their relationships with their peers, and their medical needs are not recognised nor resourced adequately. Teachers of students with chronic illness are inadequately trained, and lack the time and resources to meet the individual needs of these students. The results demonstrated that students with chronic illness are not accessing educational services in the same ways as their healthy peers. The findings of this study suggest schools can make a difference to how well a student and a family cope with chronic illness. The provision of appropriate support, resources and the demonstration of positive attitudes by school communities can foster an environment that facilitates the academic and social growth of the student. The study includes recommendations in the areas of: building communication between home, school and medical professionals; maintaining academic achievement; building peer relationships; managing student medical needs; supporting students returning to school; reducing absenteeism; and supporting emotional health of student and family. The findings of this study have raised an awareness of the needs of students with chronic illness at school, and identified strategies for their support and inclusion. The findings also provide a framework for the provision of educational services for students with chronic illness. Hence, this portfolio represents an exploration of the journey much traveled by parents and educators of students with a chronic illness, with the intent of raising awareness of their needs, and providing direction for policy makers in the field of education, to ensure that students with chronic illness have equitable access to the same educational outcomes as their healthy peers.

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Shiu, Shiona. "Achieving equity in educational outcomes for students with chronic illness." View thesis, 2008. http://handle.uws.edu.au:8081/1959.7/19222.

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Thesis (Ed.D.)--University of Western Sydney, 2008.
A thesis submitted to the University of Western Sydney, College of Arts, School of Education, in fulfilment of the requirements for the degree of Doctor of Education. Includes bibliography.

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Dissertations / Theses on the topic 'Chronic illness'

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