Journal articles: 'Caregiving professionals'

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Balmuth, Alexa, Julie Miller, Lauren Cerino, Adam Felts, Lisa D'Ambrosio, and Joseph Coughlin. "CONVERSATIONS ON THE COSTS OF CAREGIVING: COMPARING CAREGIVERS’ AND FINANCIAL ADVISORS’ PERCEPTIONS." Innovation in Aging 6, Supplement_1 (November 1, 2022): 558. http://dx.doi.org/10.1093/geroni/igac059.2109.

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Abstract Costs of caregiving go beyond physical, mental, and emotional; the financial costs are astronomical. On average, family caregivers spend 26% of their income on caregiving (AARP 2021). As the need for family caregivers grows due to longer lifespans (AARP 2020), incorporating the topic of caregiving into financial planning for longevity conversations becomes increasingly necessary. Drawing on data from the MIT AgeLab Caregiver Panel, a research panel of over 1400 family caregivers, and from the MIT AgeLab Preparing for Longevity Advisory Network, a research panel of over 900 financial professionals, this presentation will describe mixed methods research findings that highlight caregivers’ and financial professionals’ attitudes and perceptions toward caregiving as a topic within client-advisor conversations. Results demonstrate that many caregivers wish they had financially planned for the costs of caregiving more than they did. However, caregivers rarely turn to their financial advisors for support; many perceive their value to be strictly financial and are unaware of their advisors’ ability to support them. Despite caregivers’ doubts, most financial professionals feel equipped and willing to have caregiving-related conversations with clients. Additionally, while over three-quarters of financial professionals reported making referrals to outside resources for caregiving-related support, some critical avenues – including social workers and therapists, support groups, and respite care providers – were underutilized. Implications of these findings for caregivers and professionals of various industries will also be discussed.

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Palkovitz, Rob. "Review Essay: Caregiving: Families, Development, and Professionals." Journal of Family Theory & Review 2, no. 3 (August 2, 2010): 211–14. http://dx.doi.org/10.1111/j.1756-2589.2010.00054.x.

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DePasquale, Nicole, Courtney A. Polenick, Kelly D. Davis, Phyllis Moen, Leslie B. Hammer, and David M. Almeida. "The Psychosocial Implications of Managing Work and Family Caregiving Roles: Gender Differences Among Information Technology Professionals." Journal of Family Issues 38, no. 11 (May 5, 2015): 1495–519. http://dx.doi.org/10.1177/0192513x15584680.

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An increasing number of adults, both men and women, are simultaneously managing work and family caregiving roles. Guided by the stress process model, we investigate whether 823 employees occupying diverse family caregiving roles (child caregiving only, elder caregiving only, and both child caregiving and elder caregiving, or “sandwiched” caregiving) and their noncaregiving counterparts in the information technology division of a white-collar organization differ on several indicators of psychosocial stress along with gender differences in stress exposure. Compared with noncaregivers, child caregivers reported more perceived stress and partner strain whereas elder caregivers reported greater perceived stress and psychological distress. With the exception of work-to-family conflict, sandwiched caregivers reported poorer overall psychosocial functioning. Additionally, sandwiched women reported more family-to-work conflict and less partner support than their male counterparts. Further research on the implications of combining a white-collar employment role with different family caregiving roles is warranted.

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Ward-Griffin, Catherine. "Boundaries and Connections Between Formal and Informal Caregivers." Canadian Journal on Aging / La Revue canadienne du vieillissement 21, no. 2 (2002): 205–16. http://dx.doi.org/10.1017/s0714980800001471.

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ABSTRACTAlthough the experiences of formal and informal caregiving have been discussed and debated in the literature, more is assumed than is actually known (McDaniel & Gee, 1993). This qualitative study explored both informal and formal caregivers' perceptions of their own caregiving and the views of each other's caregiving. Information was collected through the use of in-depth interviews with 23 family caregivers and 15 nurses providing home care to older persons. Analysis of interview transcripts and field notes reveals that both informal and formal caregivers engage in all facets of caring work – physical, intellectual and emotional care – but that they carry out this work in varying degrees, and for different reasons. The reasons given for these differences, namely the nurses' professional knowledge and higher status designation, are key elements that define the boundaries between professional and family caregiving. However, it is apparent that, over time, this demarcation diminishes as family caregivers' knowledge and skill match those of health professionals. Study findings point to implications for future theory development and research.

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Ward-Griffin, Catherine, Judith Belle Brown, Anthony Vandervoort, Susan McNair, and Ian Dashnay. "Double-Duty Caregiving: Women in the Health Professions." Canadian Journal on Aging / La Revue canadienne du vieillissement 24, no. 4 (2005): 379–94. http://dx.doi.org/10.1353/cja.2006.0015.

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ABSTRACTThe purpose of this feminist narrative study was to examine the experiences of women in four different health professions (nursing, medicine, physiotherapy, and social work) who provided care to elderly relatives. Although caring is a central and common feature of the personal and professional lives of many women (Baines, Evans, & Neysmith, 1991; Baines, 2004), the separation of professional, paid caregiving from family, unpaid caregiving among health care providers is problematic. Study findings suggest that female health professionals who assume familial responsibilities continually negotiate the boundaries between their professional and personal caring work. Despite the use of a variety of strategies for managing their double-duty caregiving demands, many women experienced a dramatic blurring or erosion of these boundaries, resulting in feelings of isolation, tension, and extreme physical and mental exhaustion. These findings suggest that women who are double-duty caregivers, especially those with limited time, finances, or other tangible supports, may experience poor health, which warrants further study.

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Serçekuş, Pınar. "Becoming a family caregiver of a patient living with cancer." International Journal of Palliative Nursing 26, no. 5 (June 2, 2020): 206–12. http://dx.doi.org/10.12968/ijpn.2020.26.5.206.

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Background: There is insufficient information on how the burden of caregiving is affected when the family caregiver is a health professional. Studies are needed to investigate this issue. Aims: The purpose of this study was to reveal difficulties experienced by a nurse family caregiver offering care to a family member diagnosed with end-stage cancer and how she coped with these difficulties. Methods: This was an autoethnographic study. Findings: Findings were grouped under three headings: being both a researcher and a subject; effects of caregiving; and coping. Conclusions: Offering care to a cancer patient has many physiological and psychological effects. If a family caregiver is a health professional, his/her caregiving burden can be even higher. Cultural values affect both life and coping ways of caregivers. It should be kept in mind that family caregivers need support from health professionals whatever their occupations are. Support to caregivers plays an important role in their coping.

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Harvath, Theresa A., Jennifer M. Mongoven, Julie T. Bidwell, Fawn A. Cothran, Kathryn E. Sexson, Diana J. Mason, and Kathleen Buckwalter. "Research Priorities in Family Caregiving: Process and Outcomes of a Conference on Family-Centered Care Across the Trajectory of Serious Illness." Gerontologist 60, Supplement_1 (February 14, 2020): S5—S13. http://dx.doi.org/10.1093/geront/gnz138.

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Abstract The number of older adults living with functional decline and serious illness is growing exponentially at a time when availability of both family and professional caregivers is strained. Achieving optimal outcomes for this vulnerable population involves advancing the knowledge needed to improve the quality of care delivered by families, health professionals, and community programs. Recent reports from National Institute of Health and the National Academy of Science, Engineering and Medicine have called for the identification of gaps in key areas of family caregiving intervention research. In March 2018, the Family Caregiving Institute at UC Davis convened an invitational meeting of over 50 thought leaders in family caregiving—representing service agencies, funding organizations, and academia—to participate in the Research Priorities in Caregiving Summit: Advancing Family-Centered Care across the Trajectory of Serious Illness. Using an iterative process, attendees identified the top 10 research priorities and created research priority statements that incorporated a definition of the priority topic, rationale for the priority; problem(s) to address; priority population(s); and example research topics. The research priority statements serve as a roadmap for research development that will address the most significant gaps in the caregiving field.

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Holm, Maja, Anette Henriksson, Ida Carlander, Yvonne Wengström, and Joakim Öhlen. "Preparing for family caregiving in specialized palliative home care: An ongoing process." Palliative and Supportive Care 13, no. 3 (June 9, 2014): 767–75. http://dx.doi.org/10.1017/s1478951514000558.

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AbstractObjective:Family caregivers have been given increasing importance in palliative home care and face a great responsibility as caregivers for patients suffering from incurable illness. Preparedness for caregiving has been found to moderate negative effects and promote well-being in family caregivers. The aim of our study was to explore family caregivers' own experiences of preparing for caregiving in specialized palliative home care.Method:An interpretive descriptive design was chosen. A strategic sampling method was applied with a focus on participants who rated their preparedness as high and low using a structured instrument. Qualitative interviews were completed with 12 family caregivers. They were analyzed using a constant-comparative technique.Results:Family caregivers described their experience of preparing for caregiving as an ongoing process, rather than something done in advance. The process was illustrated through three subprocesses: “awaring” (realizing the seriousness of the situation), “adjusting” (managing a challenging situation), and “anticipating” (planning for the inevitable loss).Significance of results:Knowledge about the process of preparedness for caregiving and its subprocesses could be valuable to healthcare professionals, given the positive effects shown by preparedness in this context. Being able to recognize the different subprocesses of preparedness for caregiving could provide healthcare professionals with opportunities to support family caregivers in managing them. Preparedness for caregiving should be seen as a process to be supported and promoted continuously in palliative home care, not just at enrollment.

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Wynaden, Dianne, Ursula Ladzinski, Jenny Lapsley, Ian Landsborough, Janice Butt, and Vivien Hewitt. "The caregiving experience: How much do health professionals understand?" Collegian 13, no. 3 (January 2006): 6–10. http://dx.doi.org/10.1016/s1322-7696(08)60526-0.

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Oman, Doug, T. Anne Richards, John Hedberg, and Carl E. Thoresen. "Passage Meditation Improves Caregiving Self-efficacy among Health Professionals." Journal of Health Psychology 13, no. 8 (November 2008): 1119–35. http://dx.doi.org/10.1177/1359105308095966.

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Gascón González, Trino Javier. "Formación académica del psicólogo en la atención del adulto mayor: retos." Revista Investigación de Psicología, no. 26 (December 28, 2021): 143–50. http://dx.doi.org/10.53287/bupm9814vy38c.

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The purpose of this research paper was to carry out a bibliographical revision on the academic training of the psychologistfor the caregiving of elders, in Venezuela. Its relevance relays on providing innovating information in the area, for this subject has been little explored in this country. Therefore, it is important to consider all knowledge and experiences held by the professional psychologist on this stage of human development, from an academic perspective. The access to new knowledge will allow generating programs for appropriate psychological intervention directed to elders, whether these be institutionalized or non-institutionalized; aiming, not only to improve life quality of an old person, but also to address to it from the different areas of its overall functioning. To conclude, we can highlight that it actually exist the imperious need to train academically Venezuelan psychologist, as one of those professionals sufficiently competent with scientific knowledge to provide proper attention to this population.

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Siles González, José, and Maria del Carmen Solano Ruiz. "Cultural history and aesthetics of nursing care." Revista Latino-Americana de Enfermagem 19, no. 5 (October 2011): 1096–105. http://dx.doi.org/10.1590/s0104-11692011000500006.

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The aim of this study was to clarify the role of aesthetics in the organization and motivation of care through history. The guiding questions were: What values and aesthetic feelings have supported and motivated pre-professional and professional care? and Based on what structures has pre-professional and professional care been historically socialized? Primary and secondary sources were consulted, selected according to established criteria with a view to avoiding search and selection bias. Data analysis was guided by the categories: "habitus" and "logical conformism". It was found that the relation between social structures and pre-professionals (motherhood, religiosity) and professional aesthetic standards (professionalism, technologism) of care through history is evidenced in the caregiving activity of the functional unit, in the functional framework and the functional element. In conclusion, in social structures, through the socialization process, "logical conformism" and "habitus" constitute the aesthetic standards of care through feelings like motherhood, religiosity, professionalism, technologism and humanism.

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Bruns, Deborah, and Jeanette McCollum. "Partnerships Between Mothers and Professionals in the NICU: Caregiving, Information Exchange, and Relationships." Neonatal Network 21, no. 7 (January 2002): 15–23. http://dx.doi.org/10.1891/0730-0832.21.7.15.

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Purpose: The purpose of this study was to examine the perspectives of mothers, nurses, and neonatologists on the importance and implementation of NICU practices related to caregiving, information exchange, and relationships within the context of family-centered care.Design: This study design was descriptive. The PARTNERS Questionnaire was developed and implemented, including both quantitative and qualitative items in the three areas (caregiving, information exchange, relationships). For the parent participants, it was a retrospective study.Sample: Two hundred fifteen questionnaires were distributed to professionals and 157 questionnaires were mailed to mothers of NICU graduates. A total of 196 questionnaires (53 percent) was returned (55 mothers, 18 neonatologists, and 123 nurses).Results: Ratings of importance to the respondent and ratings of degree of implementation of items in the three areas were uniformly high. Mothers and nurses had significantly higher ratings than neonatologists in implementation of caregiving. In addition, mothers and nurses rated importance higher than implementation for the areas of information exchange and relationships.

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Holmes, Holly M., and Thomas R. Cole. "NOTES FROM THE FIELD: TAPPING INTO RESILIENCE THROUGH REFLECTIVE WRITING." Innovation in Aging 3, Supplement_1 (November 2019): S230. http://dx.doi.org/10.1093/geroni/igz038.850.

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Abstract Reflective writing is a powerful tool that can help healthcare providers address burnout and access inner strength. We describe the formation and functioning of a writing group for palliative care and geriatrics physicians at McGovern Medical School. The group has served several functions, including the promotion professional and personal growth. Using reflective writing and prompts, our group has explored issues of compassion, caregiving, grief, and loss. Group writing has provided a safe space for processing and letting go of professional and personal stressors related to caring for patients and to demands in our daily lives. The positive impact of the writing group has extended to caregiving and to other writing, including technical writing. This symposium is designed for healthcare professionals in all disciplines who are interested in exploring the use of reflective writing in regular practice.

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Tabootwong, Watchara, and Frank Kiwannuka. "Family caregiver participation in caregiving for hospitalized elderly patients with a tracheostomy: a literature review." Working with Older People 24, no. 2 (March 15, 2020): 105–11. http://dx.doi.org/10.1108/wwop-02-2020-0005.

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Purpose Elderly patients requiring prolonged mechanical ventilation are treated with a tracheostomy. Oftentimes, the family caregivers need to participate in the care for elderly patients with a tracheostomy during hospitalization. Therefore, this paper was conducted to acknowledge what family caregivers experience while caregiving for hospitalized elderly patients with a tracheostomy. Design/methodology/approach This literature review identifies family caregiver participation in caregiving for the elderly patient, the impact of caregiving, and the needs of family caregivers. Findings Family caregivers participate in the planning and provision of care to elderly patients. Furthermore, they also collaborate in the therapeutic process for elderly patients as well. Albeit the former sentiments, they experience physical, psychological, social and financial consequences of caregiving. It has been revealed that during the process of caring for their loved ones, family caregivers often experience poor sleep quality, strain, reduction in social interaction and insufficient income. Thus, health-care professionals should support and provide care for the needs of family caregivers. This can be achieved through providing information on prognosis, the care plan, emotional support and collaboration during the therapeutic process to provide better care for elderly patients with a tracheostomy. In addition, family caregivers’ relatives can also provide financial support and rotation of caregiving schedules to avoid burnout. Originality/value The paper indicates that family caregivers experience the impacts of caregiving. They should be supported by health-care professionals and their relatives.

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Tan, Rebekah, Serena Koh, Min En Wong, Ma Rui, and Shefaly Shorey. "Caregiver Stress, Coping Strategies, and Support Needs of Mothers Caring for their Children Who Are Undergoing Active Cancer Treatments." Clinical Nursing Research 29, no. 7 (November 9, 2019): 460–68. http://dx.doi.org/10.1177/1054773819888099.

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The diagnosis of childhood cancer not only affects the life of the child but also impacts the lives of the caregivers as well. This study aims to explore the caregiving stress, coping strategies, and support needs of mothers caring for children/adolescents with cancer during the active treatment phase. Individual semi-structured interviews were conducted, and two authors independently and thematically analyzed data. Caregiving mothers went through a process of emotional changes and a change in lifestyles when their children were diagnosed with cancer and undergoing treatments. It is important to ensure that caregiving mothers of children/adolescents with cancer are well supported by family, friends, and healthcare professionals. Healthcare professionals can develop informational booklets on cancer treatment protocols and work together with mothers. Parent support groups and plans for psychoeducational and spiritual care programs for mothers as forms of informational and emotional support may also be established.

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Veltkamp, Gerlieke. "When Do Professionals Envision and Trust Fathers as Caregivers over the Course of Giving Birth? A Comparison of Pre- and Postnatal Healthcare Professionals’ Assessments of Fathers in the Netherlands, Germany, and Poland." Social Politics: International Studies in Gender, State & Society 26, no. 3 (November 14, 2018): 370–93. http://dx.doi.org/10.1093/sp/jxy028.

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Abstract When fathers are involved in caregiving from the beginning of their child’s life, they are more likely to stay involved, resulting in more gender equality between spouses and in positive cognitive and psychosocial health outcomes for children. It has been shown, however, that professional experts often focus predominantly on and build trust relationships with mothers rather than fathers. In this paper, drawing on interviews with and observations of pre- and postnatal healthcare professionals in the Netherlands, Germany, and Poland, I examine in which institutional contexts these professionals did activate and build trust relationships with fathers, while envisioning them as caregivers.

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van der Hulst, Marije, Rianne Kok, Peter Prinzie, Eric A. P. Steegers, and Loes C. M. Bertens. "Early Maternal Caregiving Capacities in Highly Vulnerable, Multi-Problem Families." International Journal of Environmental Research and Public Health 19, no. 23 (December 2, 2022): 16130. http://dx.doi.org/10.3390/ijerph192316130.

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Caregiving capacities may be an important link between multi-problem circumstances and adverse child development. This study aims to assess caregiving capacities and their correlations in highly vulnerable, multi-problem families in Rotterdam, the Netherlands. Caregiving capacity (overall, emotional and instrumental) was prospectively assessed in 83 highly vulnerable women using video-observations of daily caregiving tasks, six week postpartum. Supporting data were collected at three time points: at inclusion, six weeks after inclusion and six weeks postpartum, and these included psychological symptoms, self-sufficiency, problematic life domains, home environment, income, depression, anxiety and stress. Pregnancy- and delivery-related information was collected from obstetric care professionals. Maternal caregiving scores averaged below adequate quality. Mothers living in an unsafe home environment (B = 0.62) and mothers with more problematic life domains (≤3 domains, B = 0.32) showed significantly higher instrumental caregiving capacities. Other variables were not related to caregiving capacities. Caregiving capacity in this highly vulnerable population was below adequate quality. However, in most cases there was no significant association between caregiving and the variables related to vulnerability. This means that a potential association between vulnerability and caregiving capacities might be driven by the interaction between several problems, rather than the type or number of problems.

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Kokorelias, Kristina M., Nira Rittenberg, Amy Law, Natasha T. Chin Wan, Jennifer Machon, Yasmin Arfeen, and Jill I. Cameron. "Brothers and sisters sharing in the care of a parent with dementia." Dementia 21, no. 3 (February 3, 2022): 765–80. http://dx.doi.org/10.1177/14713012211053970.

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Brothers’ and sisters’ experiences providing care to a parent with dementia differ, but little is known about how mixed-gender siblings share their caregiving responsibilities or how sharing affects their relationship. This study aimed to explore mixed-gender siblings processes for distributing caregiving tasks when caring for a parent with dementia and the impact of sharing care on their relationship. This descriptive qualitative study recruited fourteen English-speaking mixed-gender sibling pairs caring for a parent with dementia. Online open-ended surveys and individual semi-structured interviews were completed. Interviews and surveys explored division of caregiving responsibilities, conflict resolution, and the effects of sharing care on sibling relationships. Thematic analysis was used to analyze the qualitative data. Five themes were identified: goal of shared caregiving is to meet parents’ needs, sisters often take the lead, practical issues affect sharing of caregiving activities, personal resources or skills affect division of responsibilities, and shared caregiving influences relationship quality. Understanding how siblings share caregiving responsibilities can inform the practices of healthcare professionals who care for people with dementia and their family caregivers.

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Højlund, Holger, and Kaspar Villadsen. "Technologies in caregiving: professionals’ strategies for engaging with new technology." New Technology, Work and Employment 35, no. 2 (March 3, 2020): 178–94. http://dx.doi.org/10.1111/ntwe.12161.

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Perrig-Chiello, Pasqualina, and Sara Hutchison. "Family Caregivers of Elderly Persons." GeroPsych 23, no. 4 (December 2010): 195–206. http://dx.doi.org/10.1024/1662-9647/a000025.

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In light of the mixed findings concerning the determinants of family caregivers’ burden and using a stress-resource model, we present questionnaire data from 311 family caregivers (partners and children) and 311 home-care professionals of the same elderly carereceiver. The differentiation between gender and kinship demonstrates the complexity and at the same time the disparity of investment and perceived burden among family caregivers. Although caregiving children are confronted with less primary objective stressors and have better health resources than caregiving partners, they report more primary subjective stressors and seem generally more burdened, especially caring daughters. The comparison of caregivers’ self-reports and professionals’ appraisals provide important insights into a gender and cohort reporting bias.

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Muders, Pia, Corinna Aruna Zahrt-Omar, Sonja Bussmann, Julia Haberstroh, and Martin Weber. "Support for families of patients dying with dementia: A qualitative analysis of bereaved family members' experiences and suggestions." Palliative and Supportive Care 13, no. 3 (February 13, 2014): 435–42. http://dx.doi.org/10.1017/s1478951513001107.

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AbstractObjective:To explore and document the needs of family caregivers of patients dying with dementia and to identify how healthcare professionals can adequately support them.Method:We employed a cross-sectional survey containing open-ended questions that were analyzed using qualitative methods.Results:Receiving information about the diagnosis and disease trajectory of dementia is essential for the caregiving families of people dying with the disease. However, at present the communication of information offered by professionals is not experienced as satisfying. Further aspects that require improvement concern issues related to time constraints, as well as practical and emotional support from professionals in the care setting. Family members would also like professionals to better assist them during and after the dying process.Significance of Results:Family members face multiple burdens while caring for their demented relatives and need more professional support during the course of the disease trajectory as well as in the terminal phase.

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Rentsch, Julie H., David Bass, Kathy Kelly, Katie Maslow, Alyssa Ciancibello, Leah Eskenazi, and Rachel Schaffer. "BEST PRACTICE CAREGIVING: DIFFERENCES AND GAPS AMONG DEMENTIA SUPPORT PROGRAMS FOR FAMILY & FRIEND CAREGIVERS." Innovation in Aging 3, Supplement_1 (November 2019): S957. http://dx.doi.org/10.1093/geroni/igz038.3471.

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Abstract Family members and friends are the main providers of care for persons living with dementia. However, dementia caregivers are at greater risk than other caregivers of experiencing negative caregiving consequences. Despite the development of evidence-based programs to support dementia caregivers, few health or social service organizations offer any of these programs due, in part, to a lack of knowledge about their availability. Best Practice Caregiving is a newly launched website where professionals can get detailed information about these programs. Data collected to develop Best Practice Caregiving are analyzed for a sample of 42 evidence-based dementia caregiving programs to describe similarities and differences among programs including gaps in assistance available from these programs. Results show 64% of programs are delivered to caregivers only while the remaining are delivered to the caregiver and/or persons with dementia. Nearly half (43%) of the 42 programs are delivered in-person, 38% by phone, with 17% delivered all or in part online. Most programs are delivered by professionals (86%) followed by trained lay leaders (40%) and self-guided (12%). Most programs (95%) provide assistance with coping with illness/caregiving and the relationship of the dyad. Fewer than half of the programs assist caregivers with issues regarding finances (45%), end-of-life care (43%), and medical care (40%). Data from 233 delivery organizations show the most common challenge was getting caregivers to accept and complete the program (86%). Delivery sites reported more success with funding the program (mean=8.2 on a scale of 1-10) than with marketing and recruiting participants (mean=6.7).

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Jeyathevan, Gaya, Jill I. Cameron, B. Catharine Craven, and Susan B. Jaglal. "Identifying Required Skills to Enhance Family Caregiver Competency in Caring for Individuals With Spinal Cord Injury Living in the Community." Topics in Spinal Cord Injury Rehabilitation 25, no. 4 (September 2019): 290–302. http://dx.doi.org/10.1310/sci2504-290.

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Background: Due to the earlier discharge of individuals with spinal cord injury (SCI), family caregivers are often left with limited time for learning caregiving skills, and they usually feel unprepared to undertake the caregiver role. Objective: Considering the key role of family caregivers in maintaining the overall health and well-being of the individual with SCI, the objective of this study was to determine the breadth of skills needed by family caregivers to enhance their competency in caring for individuals with SCI living in the community. Methods: A qualitative descriptive approach was used with semi-structured interviews. Thematic analysis was used to determine key themes arising from the experiences of individuals with SCI ( n= 19) and their family members ( n = 15). Results: Twenty-nine SCI family caregiving skills were identified and grouped into six caregiving processes signifying the multiple dimensions of the SCI caregiving role. These include monitoring and managing physical health and secondary health conditions, providing for psychosocial needs, decision making, time management, being flexible, and navigating the health and social services system. Conclusion: The current study demonstrated that development of multiple caregiving skills is crucial to enhance family members' competency in caregiving. These findings should further alert health care professionals that assessment of caregiving skills at regular intervals is necessary to help caregivers achieve mastery in situations where they are facing caregiving difficulties. Future programs need to be designed to include the skills that family caregivers need and use in real-life caregiving situations.

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De Jesus, Nancy Santiago, and Aurelie Maurice. "Exploring mental health carers’ caregiving experiences in France." Journal of Mental Health Training, Education and Practice 15, no. 4 (May 28, 2020): 207–21. http://dx.doi.org/10.1108/jmhtep-06-2019-0031.

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Purpose France, once a pioneer in psychiatry, is now sinking as its population faces major mental health challenges. This includes the 12 Million French individuals with psychiatric conditions, the lack of appropriate structures and the shortage of skilled mental health professionals, but it also leaves families in critical situations. The purpose of this study is to explore the carers’ caregiving experiences and to suggest ways to organise educational programmes to support mental health carers in France. Design/methodology/approach The research was conducted from January 2018 to November 2019. It included French carers of patients with mental conditions. Recorded semi-structured interviews were used and findings were analysed through an inductive thematic analysis and regrouped into key themes. Findings Participants had overwhelming negative representations of “mental illness”. The fact that they were excluded from participating in the patient’s health management further added to their misconceptions around mental disability, it limited their communication with their family and amplified their burdens. Research limitations/implications There is an urgent need for carer empowerment; carers should be included in educational programmes, they should benefit from French Government subsidies and social-network assistance and receive quality assistance by trained mental health professionals. The critical situation of carers can only be addressed by combining these three steps and through the action of appropriate actors in the field of mental health, thus alleviating the current paradigm of psychiatric care in France. Originality/value Thousands of research papers regarding carers have been published in other countries. In addition yet, to the knowledge, only a few investigations on French mental health carers have been conducted to this day. The singularity of this research lies in the rare individual interviews, which provided us with first-hand testimonies of mental health carers in France. This data could be of vital aid for professionals and for policymakers when advocating for better support of carers in mental health.

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Vargas, Maryel Tapia, Sandra Yazmín Cortés Ascencio, Maza García Alejandro Augusto, and Jesús Carlos Ruvalcaba Ledezma. "Perception of caregiving based on gender roles as seen by nursing professionals, students and non-professionals." Greener Journal of Epidemiology and Public Health 6, no. 4 (December 29, 2018): 87–92. http://dx.doi.org/10.15580/gjeph.2018.4.011719018.

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Stewart, Stacey. "Spousal Caregiving in Community Settings in Canada: Implications for Nursing Professionals." Gerontology and Geriatric Medicine 6 (January 2020): 233372142091447. http://dx.doi.org/10.1177/2333721420914476.

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Objective: Spousal caregivers report significantly more health effects and psychological consequences than caregivers of aging parents. Traditional approaches to assist these caregivers often include lifestyle approaches with a lack of health promotion initiatives. Consequently, alternative approaches to facilitate the adaptation to the social context of spousal caregivers’ experiences are needed. Method: This article systematically reviewed literature on spousal caregiving in Canada using a health promotion approach. Nine peer reviewed articles were identified from the health and social care literature and critically analyzed for relevant themes. Results: Gender, social support, health care, and income emerged as themes in the literature published to date. Discussion: The article concludes with directions for future research in Canada and suggested solutions for family nursing practice.

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Powers, Sara, Alyssa Ciancibello, Rachel Schaffer, David Bass, and Morgan Minyo. "Outcome Priorities Among Evidence-Based Dementia Caregiving Programs: A Closer Look." Innovation in Aging 5, Supplement_1 (December 1, 2021): 8. http://dx.doi.org/10.1093/geroni/igab046.028.

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Abstract Currently, the Best Practice Caregiving website provides information on 231 published studies from 44 dementia caregiving evidence-based programs that have demonstrated beneficial outcomes for dementia caregivers within health care and community-based settings. Across all programs, a total of 34 biopsychosocial outcomes were identified. Supported by the commonly used stress-related frameworks (e.g., Stress-Health Process, Cognitive Behavioral Theory) for which the programs were developed, the most frequently utilized program outcomes included: 1) Caregiver stress, strain, and/or burden (84.1%); 2) Caregiver depressive symptomology (79.5%); and 3) Caregiving efficacy, skills, and/or confidence (63.6%). The least common programmatic outcomes included: 1) Access to support information/Community service use (9.1%); 2) Unmet needs (6.8%); and 3) Respite/break from care (2.3%). The lesser utilized outcomes provide critical insight into current evidence-based programmatic priorities and ways in which professionals can seek to fill gaps in dementia caregiving interventions. Discussion will also focus on future directions of caregiver-related outcome assessments.

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Stajduhar, Kelli I., Wanda Martin, and Moira Cairns. "What makes grief difficult? Perspectives from bereaved family caregivers and healthcare providers of advanced cancer patients." Palliative and Supportive Care 8, no. 3 (September 2010): 277–89. http://dx.doi.org/10.1017/s1478951510000076.

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AbstractObjective:Family members who take on the role of caregiving for someone who is dying begin bereavement after being emotionally and physically taxed by the caregiving experience. The course of bereavement is influenced by a number of factors, including health problems, financial concerns, social support, and family relationships. This paper reports on findings from a secondary analysis of qualitative data from a study examining family caregiver coping in end-of-life cancer care, to describe, from the perspectives of bereaved family caregivers, their perspectives on what made their grief difficult.Method:Qualitative data from three focus groups with family caregivers (n = 19) and two focus groups with health professionals (n = 14) were subjected to interpretive thematic analysis.Results:Our finding suggest three broad areas that make family caregivers' grief difficult: (1) dealing with occurrences in everyday life; (2) dealing with challenges specific to the caregiving situation; and (3) dealing with the healthcare system.Significance of results:The findings provide an important beginning point in understanding the types of issues that seem to make grief difficult for family caregivers of cancer patients at the end of life and can help professional groups to understand what is needed by family caregivers in terms of support and delivery of services.

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Young, Heather. "HARNESSING THE POWER OF NETWORKS: PARTNERSHIPS TO PROMOTE HEALTH AND WELL-BEING FOR FAMILY CAREGIVERS." Innovation in Aging 3, Supplement_1 (November 2019): S539. http://dx.doi.org/10.1093/geroni/igz038.1981.

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Abstract This paper will address social and professional networks that support family caregivers who are providing care to older adults. Family caregiving is commonly a long-term commitment that can include functional, health care, social, financial and emotional support. This role can have a major impact on the health, well-being and economic security of the family caregiver, particularly for those who are socially isolated. This paper will highlight the nature of caregiving demands on individuals and families, particularly those providing intense and complex care, with a focus on cultural diversity. Health care professionals encounter family caregivers during routine care and at times of crisis and have an opportunity to enhance support and preparation. This paper will discuss effective community-level and health system partnerships and strategies that promote health and well-being for family caregivers, examine the potential for scaling these approaches, and suggest priorities for education, practice and future research.

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Bass, David, Alyssa Ciancibello, Rachel Schaffer, and Sara Powers. "Description and Demo of the Best Practice Caregiving Database on 44 Research Proven Dementia Caregiving Programs." Innovation in Aging 5, Supplement_1 (December 1, 2021): 7. http://dx.doi.org/10.1093/geroni/igab046.025.

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Abstract A major advance in family caregiving has been the development, testing, and community delivery of research-proven, evidence-based support programs for family or friend caregivers of persons living with dementia. This presentation showcases and demos Best Practice Caregiving (BPC), a new online resource with comprehensive profiles for 44 of the top evidence-based dementia caregiving programs that are ready for scaling in communities. For these 44 programs, BPC is a database that presents key research findings with links to all its published articles, comprehensive program descriptions including all implementation features, and survey data on program delivery experiences from 324 healthcare and community organizations that offered the program as a regular part of their service portfolio 2019. BPC enables professionals to make side-by-side comparisons of the 44 programs, with the goal of increasing implementations of these evidence-based programs by healthcare and community service organizations.

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Buchanan, Robert J., Chunfeng Huang, and Zhida Zheng. "Factors Affecting Employment Among Informal Caregivers Assisting People with Multiple Sclerosis." International Journal of MS Care 15, no. 4 (December 31, 2013): 203–10. http://dx.doi.org/10.7224/1537-2073.2012-050.

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The objective of this study was to identify characteristics of informal caregivers, caregiving, and the people with multiple sclerosis (MS) receiving assistance that are associated with reduced caregiver employment. Data were collected during telephone interviews with 530 MS caregivers, including 215 employed caregivers, with these survey data analyzed using logistic regression. Poorer cognitive ability by the care recipient to make decisions about daily tasks and more caregiving hours per week predicted reduced caregiver employment. Better physical health domains of caregiver quality of life were associated with significantly lower odds of reduced employment. Health professionals treating informal caregivers, as well as those treating people with MS, need to be aware of respite, support, and intervention programs available to MS caregivers and refer them to these programs, which could reduce the negative impact of caregiving on employment.

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Matthys, Orphé, Sigrid Dierickx, Luc Deliens, Lore Lapeire, Peter Hudson, Chantal Van Audenhove, Aline De Vleminck, and Joachim Cohen. "How are family caregivers of people with a serious illness supported by healthcare professionals in their caregiving tasks? A cross-sectional survey of bereaved family caregivers." Palliative Medicine 36, no. 3 (January 28, 2022): 529–39. http://dx.doi.org/10.1177/02692163211070228.

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Background: Due to medical advances and an increasingly ageing population, the number of people living with a serious illness is rising. This has major implications for the burden on family members of assisting with care. Support of family caregivers by healthcare professionals is needed to ensure they can provide quality care for people with serious illness. Aim: To investigate how family caregivers of people with serious illness are supported by healthcare professionals in their caregiving tasks. Design/Participants: Population-based cross-sectional survey of bereaved family caregivers of people with serious illness ( N = 3000) who cared for a person who had died 2–6 months before the sample was drawn (November 2019), as identified through three sickness funds in Flanders, Belgium. The survey explored support from healthcare professionals for family caregivers 3 months prior to bereavement. Results: Response rate was 55.0%. Most family caregivers received support from one or more healthcare professionals for family caregiving tasks, ranging from 71% for promoting social interaction to 95% for managing symptoms. The type of support mostly involved providing information. Use of palliative care services was the strongest predictor of such support across physical, psychosocial and practical tasks. Conclusion: Most family caregivers of those with serious illness get some form of support from healthcare professionals for their tasks. However, an empowering support strategy for example one aimed at increasing self-efficacy of the family caregiver is rare and end-of-life communication between healthcare professionals and family caregivers needs improvement.

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Posch-Eliskases, Ursula, Christine Rungg, Markus Moosbrugger, and Susanne Perkhofer. "Supporting Family Cargivers / Unterstützung für pflegende Angehörige." International Journal of Health Professions 2, no. 1 (June 1, 2015): 31–37. http://dx.doi.org/10.1515/ijhp-2015-0004.

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AbstractFamily caregivers suffer from stress due to the caregiving situation which is negatively associated with health. This review focuses on possibilities of support for the family caregivers. This review was performed by the use of the databases PubMed and PsychINFO with the following keywords in various combinations: stress, chronic stress, burden, family caregiving, family caregiver, coping, intervention. An exclusion criterion was infantile care recipient.Our results indicate that knowledge, information and training for caregivers reduce stress. External advice by health care professionals, as well as the encouragement to focus on their own needs is experienced as helpful. Support can also be given via telephone helpline and/or the internet. Also direct communication with other caregivers reduces stress. A positive view on care needed in old age helps to bear the burden of caring for older adults. The effort of family caregivers should be more recognized as they play an important part in society. The Austrian Republic saves 2-3 billion € per year due to informal caregiving. Health professionals should identify family caregivers as a risk group and provide information on an interdisciplinary base. With the given advice, attention and support, the burden of the caregivers on the one hand and un-necessary costs on the other hand could be reduced.

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Swartzell, Kristen, Janet Fulton, and Jane Von Gaudecker. "OLDER ADULT CAREGIVERS’ THOUGHTS ON WOUND CARE RESOURCES." Innovation in Aging 6, Supplement_1 (November 1, 2022): 871–72. http://dx.doi.org/10.1093/geroni/igac059.3113.

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Abstract As healthcare increasingly shifts to home and community-based settings, informal caregiver responsibilities are increasing beyond assistance with activities of daily living to include complex care procedures previously performed by licensed caregivers in clinical settings. With an aging population, increasing numbers of older adults are assuming a caregiving role and these older adult caregivers are performing complex care procedures such as wound care. The negative physical and mental health consequences of caregiving for older adult caregivers are well documented in the literature. However, access to and use of resources are associated with better physical and mental health. Past research on caregiving resources has utilized pre-determined resource variables. Little is known about older adult caregivers’ salient thoughts on resources important to caregiving and performing complex care procedures. This study utilized thematic analysis of qualitative interview data to identify themes and patterns related to resources as described by older adult caregivers. The following seven themes related to resources needed or utilized were identified: 1) expert guidance from healthcare professionals; 2) written instructions; 3) relationships with healthcare professionals for obtaining wound care supplies; 4) additional durable medical equipment; 5) financial resources; 6) coverage for caregiver personal time; and 7) select persons for social and emotional support. Older adult caregivers need and use a variety of resources when providing wound care. As increasing numbers of older adults choose to ‘age in place’, the importance of adequate resources to sustain care recipients and their caregivers in the home setting is critical.

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Storck, Lauren E. "Large Groups and Women Leadership: Caregiving for Multiple Authenticities." Group Analysis 38, no. 2 (June 2005): 328–40. http://dx.doi.org/10.1177/0533316405053018.

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Professionals in many disciplines are interested in large group dynamics, and simultaneously, there is a need to formulate coherent trainings for large group leadership roles. Group analysis being my ‘home territory’ to explore these highly complex forces and challenges, this article is one woman’s group-analytic understanding of larger groups and issues of conducting larger groups in our interconnected and interdependent world.

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Zaidman-Mograbi, Rachel, Liana (MP) le Roux, and Herna Hall. "The influence of culture on maternal attachment behaviours: a South African case study." Children Australia 45, no. 1 (March 2020): 30–39. http://dx.doi.org/10.1017/cha.2020.4.

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AbstractIt is widely accepted that culture is a contextual factor that can affect mother–infant attachment. Cultural beliefs are translated into child-rearing patterns that influence maternal responsiveness to infant attachment behaviours and could thus affect sensitive caregiving that lies at the heart of secure attachment. This article reports on the findings of a study that explored the influence of culture on maternal caregiving behaviours in the multi-cultural South African context. Data were collected by means of semi-structured interviews conducted with participants from three study samples to ascertain their perceptions of socio-cultural influences on attachment. Two samples consisted of mothers and mental health professionals, respectively, who represented different South African cultures (Xhosa, Sotho, Zulu, Coloured, Indian and White). The third sample consisted of experts in the field of attachment. The research findings indicate that culture could influence maternal caregiving behaviours. Although all the participants valued good caregiving, some maternal responses to infant attachment behaviours varied among participants from different cultures. The research emphasises the importance of considering local contexts in understanding attachment and maternal sensitivity.

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Edelstein, Offer E., Talia Shorer, Zamir Shorer, and Yaacov G. Bachner. "Correlates of Caregiving Burden among Bedouin-Muslim Mothers of Children Diagnosed with Epilepsy." International Journal of Environmental Research and Public Health 19, no. 18 (September 14, 2022): 11595. http://dx.doi.org/10.3390/ijerph191811595.

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A paucity of research exists on caregiving burden (CB) and the factors associated with it among minority groups, such as Bedouin mothers of children diagnosed with epilepsy (CDE). The aim of this study was to explore associations between CB and care-recipients’ characteristics, contextual factors, and caregivers’ characteristics among those mothers. Methods: A total of 50 mothers completed self-report questionnaires while visiting pediatric neurology outpatient clinic centers, using valid and reliable measures. Results: Bivariate associations were found between social support, number of medications, and CB. General self-efficacy and place of residence emerged as significant predictors of caregiver burden. Conclusions: These findings provide health professionals with a better understanding of the factors that should be assessed in order to address caregiver burden among Bedouin mothers of CDE. Understanding the unique characteristics and culture of the Bedouin community can help professionals in targeting caregivers with a lower sense of self-efficacy, and those that reside in Bedouin cities, in order to reduce their caregiving burden.

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McDonald, Thomas P., Graciela Couchonnal, and Theresa Early. "The Impact of Major Events on the Lives of Family Caregivers of Children with Disabilities." Families in Society: The Journal of Contemporary Social Services 77, no. 8 (October 1996): 502–14. http://dx.doi.org/10.1606/1044-3894.960.

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The authors examine the family caregiving experience among families with children with severe emotional disabilities from a perspective that recognizes the importance of the family's views and feelings. This viewpoint anticipates the occurrence of both positive and negative experiences and seeks to illuminate the caregiving process from the perspective of outcomes achieved. Family caregivers of 164 children with serious emotional disorders were asked to identify major pleasant and stressful events that had occurred in the past 12 months. The most frequently described pleasant events related to children's behavior, school activities, and interactions with professionals and friends. Frequently described problem areas included children's behavior, professionals/services, and difficulty with school. The impact of these pleasant and stressful events was examined with respect to caregivers' perceived well-being: (1) overall stress, (2) the ability to fulfill responsibilities, and (3) pleasure experienced in various life domains. Implications of the study findings for supporting family caregivers in their roles are discussed.

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JO, SUSAN, KEVIN BRAZIL, LYNNE LOHFELD, and KATHLEEN WILLISON. "Caregiving at the end of life: Perspectives from spousal caregivers and care recipients." Palliative and Supportive Care 5, no. 1 (February 27, 2007): 11–17. http://dx.doi.org/10.1017/s1478951507070034.

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Objective: The purpose of this study is to examine the perspectives of both the spousal caregiver and care recipient on the caregiving experience in home-based palliative care.Methods: A qualitative research strategy involving home-based face-to-face interviews with older palliative care patients and their spousal caregivers was used to examine the caregiving experience.Results: Ten spousal caregivers and care recipient dyads participated in the study. Most informal caregivers viewed caregiving as an extension of the family relationship where caregiving responsibilities evolved over time. Spousal caregivers identified many negative reactions to caregiving, such as fatigue or weariness, depression, anger and sadness, financial stresses, and lack of time. Care recipients acknowledged the emotional and financial strain and expressed concern for their spouses. Both caregivers and care recipients were appreciative of home care services although they identified the need for additional services. They also identified difficulties in communication with formal providers and poor coordination of care among the various services. Both caregivers and care recipients disclosed some challenges with informal supports, but on the whole felt that their presence was positive. Additional positive aspects of caregiving reported by spouses included strengthened relationship with their spouse and discovering emotional strength and physical abilities in managing care.Significance of results: Health care and social service professionals need to recognize and understand both caregiver and care recipient perspectives if they are to successfully meet the needs of both members of the dyad.

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Mongoven, J., T. A. Harvath, K. Bettega, and H. M. Young. "DEVELOPMENT OF FAMILY CAREGIVING COMPETENCIES FOR HEALTH PROFESSIONALS: A MODIFIED DELPHI STUDY." Innovation in Aging 2, suppl_1 (November 1, 2018): 194. http://dx.doi.org/10.1093/geroni/igy023.713.

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Oman, Doug, John Hedberg, David Downs, and Debra Parsons. "A Transcultural Spiritually Based Program to Enhance Caregiving Self-Efficacy: A Pilot Study." Complementary health practice review 8, no. 3 (October 2003): 201–24. http://dx.doi.org/10.1177/1076167503250796.

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This study examined how training in a nonsectarian toolkit of spiritually based self-management techniques affected the caregiving self-efficacy (confidence) of health professionals, including physicians, nurses, psychologists, and chaplains. Before and after an 8-week, 2-hour per week training in the meditation-based Eight Point Program of Easwaran (1978/1991b), participants ( n = 14) completed a newly developed 32-item caregiving self-efficacy questionnaire. Data were also gathered regarding sociodemographic characteristics, spiritual and religious self-perceptions and practices, and program adherence. Results indicated that mean pre/post self-efficacy increases were large (Cohen's d > 0.80), statistically significant ( p < 0.01), and associated with greater use of specific pro-gram practices. Three participants reported increases in self-perceived spirituality. Self-efficacy increases were largest for participants identifying themselves as least spiritual at pretest ( p < 0.05), or reporting increases in spirituality ( p < 0.05). Although preliminary, these findings support using this already widely crossculturally disseminated toolkit for a variety of purposes in clinical practice, health promotion, and health professional education.

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Page, Jools. "Reframing infant-toddler pedagogy through a lens of professional love: Exploring narratives of professional practice in early childhood settings in England." Contemporary Issues in Early Childhood 18, no. 4 (December 2017): 387–99. http://dx.doi.org/10.1177/1463949117742780.

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There is an increased international interest in how close attachment interactions with infants and toddlers are realised and interpreted by early years professionals. It is troubling for those who work in early years settings with infants and toddlers to know how best to demonstrate healthy loving attachment behaviours as an expectation of their professional caregiving role when ‘standing in for parents’. This article reports the interview findings from a mixed-methods study which examined practitioners’ views on love, care and intimacy within the English early years policy context. It draws on attachment theory and relational ethics to analyse the narratives of practice drawn from eight in-depth interviews with infant-toddler professionals to reveal the extent of their challenge as well as their beliefs about attachment and professional love. The responses highlighted the level of concern about the place of love and intimacy in non-familial pedagogical relationships with young children, against the backdrop of child protection and safeguarding following the global concern about infant abuse. The study suggests that there is a need to embrace an infant-toddler pedagogy to include the lens and the language of attachment and professional love, and to provide early years professionals with training and guidance on how to safely interpret these theories in their everyday practice.

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Buchanan, Robert J., Dagmar Radin, and Chunfeng Huang. "Caregiver Burden Among Informal Caregivers Assisting People with Multiple Sclerosis." International Journal of MS Care 13, no. 2 (July 1, 2011): 76–83. http://dx.doi.org/10.7224/1537-2073-13.2.76.

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Multiple sclerosis (MS) burdens not only patients but also their informal or family caregivers. This study was conducted to identify characteristics of caregivers, caregiving, and MS patients receiving informal care that are associated with caregiving burden. Data were collected through a national survey of informal MS caregivers and analyzed using an ordered logistic regression model to identify factors associated with burden. Burden was found to be significantly greater among male caregivers than among female caregivers. Moreover, greater burden was associated with more frequent patient bladder dysfunction, more hours per week spent providing assistance, and greater restriction on the caregiver's ability to perform daily activities because of caregiving responsibilities. A strong association was found between the mental health status of the caregiver and burden. Health professionals should be sensitive to the impact of caregiving on the mental health of MS caregivers. The results of this study suggest that treating patient bladder dysfunction and facilitating respite care may reduce burden and improve the mental health of informal caregivers of people with MS. Future research should identify programs and services designed specifically to reduce burden experienced by male caregivers.

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Anderson, Eric W., and Katie M. White. "“It Has Changed My Life”: An Exploration of Caregiver Experiences in Serious Illness." American Journal of Hospice and Palliative Medicine® 35, no. 2 (April 16, 2017): 266–74. http://dx.doi.org/10.1177/1049909117701895.

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Background: Informal, unpaid caregivers shoulder much of the care burden for individuals with serious illness. As part of a project to create an innovative model of supportive care for serious illness, a series of user interviews were conducted, forming the basis for this article. Objective: To understand both individual and interpersonal aspects of caregiving for serious illness. Methods: Twelve semistructured group interviews were conducted with patients, families, and professionals as part of a larger study of late-life serious illness. Transcript data were analyzed with descriptive coding, and then coded material was analyzed to elicit major themes and subthemes. Results: A total of 73 individuals participated in group interview sessions. Using descriptive coding, quotes were assigned to first-order codes of rewards, challenges, and a category of learnings and adaptations. Subthemes of reward included gratitude, a sense of accomplishment or mastery, and closeness in personal relationships. The most oft-cited challenges included emotional and physical stresses of caregiving and feeling unprepared or unsupported in caregiving. Reflecting on their experiences, caregivers cited new ways in which they had learned to be creative, to show assertiveness and advocacy, and to create personal balance in a demanding situation. Conclusions: The experience of caregiving is a life-altering journey as individuals rise to challenges and reflect on the rewards. Caregivers described intensive caregiving, often without acknowledgment or understanding of their role from the health-care system. This invisibility created its own iatrogenic caregiving challenge. The identified themes suggest avenues of meaningful caregiver support that bear further exploration.

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Caciula, Ioana, Gill Livingston, Rodica Caciula, and Claudia Cooper. "Recognition of elder abuse by home care workers and older people in Romania." International Psychogeriatrics 22, no. 3 (January 25, 2010): 403–8. http://dx.doi.org/10.1017/s104161020999161x.

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ABSTRACTBackground: No previous studies have considered elder abuse in Eastern Europe. We aimed to determine the proportion of home care workers and older people receiving care in a Romanian home care service who correctly identified elder abuse in a vignette, and who had detected elder abuse at work.Methods: In 2009, care workers and clients of a non-government home care organization serving four areas in Romania completed the Caregiver Scenario Questionnaire to measure ability to identify abuse. We asked the professionals whether they had detected a case of abuse.Results: 35 (100%) professionals and 79 (65.8%) older people took part. Four (11.4%) professionals had encountered a case of elder abuse, two (5.7%) in the last year. No staff and only one older person correctly identified all four abusive strategies in a vignette. Staff with more professional caregiving experience recognized fewer abusive strategies (r = −0.46, p = 0.007).Conclusion: Rates of identification were worryingly low among all professionals, and this was more marked if they had worked longer, suggesting their experiences may have reduced their ability to detect it. Mandatory abuse training for care professionals, and strategies to support reporters of suspected abuse, could help improve the management of elder abuse in all countries.

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Galvin, Miriam, Sile Carney, Bernie Corr, Iain Mays, Niall Pender, and Orla Hardiman. "Needs of informal caregivers across the caregiving course in amyotrophic lateral sclerosis: a qualitative analysis." BMJ Open 8, no. 1 (January 2018): e018721. http://dx.doi.org/10.1136/bmjopen-2017-018721.

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ObjectivesAmyotrophic lateral sclerosis (ALS), also known as motor neuron disease (MND), is a debilitating terminal condition. Informal caregivers are key figures in ALS care provision. The physical, psychological and emotional impact of providing care in the home requires appropriate assistance and support. The objective of this analysis is to explore the needs of informal ALS caregivers across the caregiving course.DesignIn an open-ended question as part of a semistructured interview, caregivers were asked what would help them in their role. Interviews took place on three occasions at 4-month to 6-month intervals. Demographic, burden and quality of life data were collected, in addition to the open-ended responses. We carried out descriptive statistical analysis and thematic analysis of qualitative data.Setting and participantsHome interviews at baseline (n=81) and on two further occasions (n=56, n=41) with informal caregivers of people with ALS attending the National ALS/MND Clinic at Beaumont Hospital, Dublin, Ireland.ResultsThe majority of caregivers were family members. Hours of care provided and caregiver burden increased across the interview series. Thematic analysis identified what would help them in their role, and needs related to external support and services, psychological-emotional factors, patient-related behaviours, a cure and ‘nothing’. Themes were interconnected and their prevalence varied across the interview time points.ConclusionThis study has shown the consistency and adaptation in what caregivers identified as helpful in their role, across 12–18 months of a caregiving journey. Support needs are clearly defined, and change with time and the course of caregiving. Caregivers need support from family, friends and healthcare professionals in managing their tasks and the emotional demands of caregiving. Identifying the specific needs of informal caregivers should enable health professionals to provide tailored supportive interventions.

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Greiner, Bobbi S., and Gail A. Poskey. "Fatigue: Has It Affected Your Compassion?" Neonatal Network 36, no. 5 (2017): 289–93. http://dx.doi.org/10.1891/0730-0832.36.5.289.

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AbstractCompassion fatigue is a concept used to describe how various stressors affect individuals who work in health care and other caregiving professions. The results of compassion fatigue may include decreased work productivity, poor quality of care, safety concerns, job dissatisfaction, and job turnover. The NICU professionals are at an increased risk for experiencing compassion fatigue because of the nature of working with critically ill infants, their families, and the additional stress of the workplace. The purpose of this article is for the NICU professional to understand compassion fatigue, identify the risk factors, recognize the signs and symptoms, and offer strategies to implement within the NICU environment.

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Tucker, Mark, and Charles Edmund Degeneffe. "Future Concerns Among Families Following Brain Injury in the United States: Views from the Brain Injury Association of America State Affiliates." Australian Journal of Rehabilitation Counselling 19, no. 2 (November 7, 2013): 135–41. http://dx.doi.org/10.1017/jrc.2013.16.

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The objective of this study was to examine brain injury professionals’ perspectives on the future concerns of families of persons with brain injuries in the United States of America. A total of 28 persons in leadership positions with the Brain Injury Association of America (BIAA) participated. Through qualitative data analysis of an open-ended question in an electronic survey containing both qualitative and quantitative questions, participants identified future concerns related to future caregiving responsibilities, financial concerns, living arrangements, recovery, access to professional care, relationships and employment. The findings indicate that many families are unprepared to meet the future care and support needs of their injured family members.

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Burke, Meghan M., Chung eun Lee, Catherine K. Arnold, and Aleksa Owen. "The Perceptions of Professionals Toward Siblings of Individuals With Intellectual and Developmental Disabilities." Intellectual and Developmental Disabilities 55, no. 2 (April 1, 2017): 72–83. http://dx.doi.org/10.1352/1934-9556-55.2.72.

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Abstract Adult siblings of individuals with intellectual and developmental disabilities (IDD) report struggling to navigate the adult disability service delivery system and collaborate with professionals. To date, though, it is unclear how professionals encourage sibling involvement and, accordingly, the facilitators and challenges in working with siblings. For this study, 290 professionals participated in a national web-based survey; participants answered three open-ended questions about ways to involve siblings, positive experiences with siblings, and challenges in working with siblings. Professionals reported person-level and systems-level supports to encourage sibling involvement. Also, professionals reported enjoying working with cohesive families of individuals with IDD and witnessing the benefits that siblings bring to their brothers and sisters with IDD. Challenges in working with siblings included: lack of sibling involvement, systemic barriers, and caregiving burden. Implications for future research and practice are discussed.

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Journal articles on the topic 'Caregiving professionals'

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