Journal articles: 'Caregivers Services for Malaysia'

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M Selvarajah, Thinakaran, Eiko Yamamoto, Yu Mon Saw, Tetsuyoshi Kariya, and Nobuyuki Hamajima. "Satisfaction With Health Care Services at the Pediatric Specialist Clinic of the National Referral Center in Malaysia: Cross-sectional Study of Caregivers’ Perspectives." JMIRx Med 3, no. 2 (May 25, 2022): e33025. http://dx.doi.org/10.2196/33025.

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Background The concept of customer satisfaction is gaining hold in all corporate sectors worldwide, and a satisfaction survey is used as a tool to discover service problems and as a chance for customers to rate their experience with health care services. A high degree of patient satisfaction with the services given has been found in numerous studies conducted in Malaysian public health care facilities. However, there is limited information available on caregiver satisfaction with pediatric clinics run by the Ministry of Health (MoH) of Malaysia. Objective This was the first research performed at a public hospital’s pediatric clinic, which was the first hospital to adopt the public-private-partnership model under the MoH, with the aim of discovering the prevalence and factors affecting the satisfaction of caregivers at the national referral center. Methods Cross-sectional research using the standard self-administered SERVQUAL questionnaire was conducted among caregivers accompanying their children to the clinic. The questionnaire consists of 16 paired statements to evaluate their expectations and experiences with the clinic services. Results A total of 459 caregivers were involved in this study with a majority aged between 30 and 39 years (n=254, 55.4%). Caregivers from the Indian community (adjusted odds ratio [AOR] 2.91, 95% CI 1.37-6.18) and lower income groups (AOR 2.94, 95% CI 1.87-4.64), and those with lower educational backgrounds (AOR 3.58, 95% CI 1.19-10.72) were more likely to be satisfied with the quality of pediatric clinic services. Housewives/househusbands (AOR 0.48, 95% CI 0.25-0.90), on the other hand, appeared less likely to be satisfied with the services provided during their visit to the clinic. Looking at overall patient satisfaction, 50.5% (n=232) of caregivers demonstrated satisfaction with the quality of services, compared to 49.5% (n=227) of dissatisfied respondents. Conclusions This paper suggests that, although most caregivers are satisfied with the services, greater emphasis must be placed on delivering reliable service in response to the MoH’s mission to provide quality and integrated people-centered health services in Malaysia.

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Fadzil, Fariza, Idayu Badilla Idris, Norazlin Kamal Nor, Juriza Ismail, Azmi Mohd Tamil, Kamaliah Mohamad Noh, Noraziani Khamis, Noor Ani Ahmad, Salimah Othman, and Rohana Ismail. "Missed Appointments at a Child Development Centre and Barriers to Access Special Needs Services for Children in Klang Valley, Malaysia: A Mixed Methods Study." International Journal of Environmental Research and Public Health 19, no. 1 (December 29, 2021): 325. http://dx.doi.org/10.3390/ijerph19010325.

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Attending appointments is vital for children with special needs, as such appointments involve long-term interdisciplinary care to ensure continuity of care and improve health and well-being. This study was performed to determine the prevalence of missed clinic appointments and identify the factors among those who have ever missed appointments and barriers of access to children’s special needs services at the Child Development Centre (CDC) at the Universiti Kebangsaan Malaysia Medical Centre (UKMMC). Moreover, suggestions for improvement from the caregivers’ perspectives were explored. This is an explanatory sequential mixed methods study among caregivers of children with developmental disabilities aged up to 17 years old. Of 197 caregivers, 62 (31.5%) had missed clinic appointments. Forgetfulness was the most frequently cited reason. The bi-variable analysis showed significant differences in missed appointment rates by gender of caregivers and duration of follow-up. The final logistic regression model demonstrated that, when combined with the effect of being a male caregiver as an independent variable, follow-up duration of more than 6 years increased 2.67 times the risk of missing an appointment. Caregivers’ perceived barriers were transportation, caregiver, child and healthcare services factors. Policies and strategic plans should be focused on key findings from these factors to improve appointment adherence and accessibility to services for children with special needs.

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Yaacob, Wan Natrah Wan, Lili Husniati Yaacob, Rosediani Muhamad, and Maryam Mohd Zulkifli. "Behind the Scenes of Parents Nurturing a Child with Autism: A Qualitative Study in Malaysia." International Journal of Environmental Research and Public Health 18, no. 16 (August 12, 2021): 8532. http://dx.doi.org/10.3390/ijerph18168532.

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Many parents have experienced difficulties in parenting children with autism. We, therefore, consider a more in-depth understanding that is necessary to explore the challenges facing parents and families to provide a better outcome for both. We interviewed 21 parents of 24 children with autism spectrum disorder (ASD) to qualitatively explore the challenges they experienced through a phenomenological framework. Four main aspects emerged as challenges to the parents: inadequate knowledge, psychological distress and stigma, lack of support, and barriers to services. These four themes reflect a lack of balance between the needs of caregivers and the services and resources or support available in the community to meet those needs. Our study contributes to an understanding of how parents perceive challenges, making it easier to take necessary action to meet their needs and ease their burden of stress. A concerted effort is needed to coordinate services across all disciplines to address these challenges.

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Sulaiman, Yaty, Nurul Ain Binti Md Basri, Mohd Yusri Shahril Ismail, and Alysha Arif. "The Effect of Caregivers, Physical Facilities, Environment and Food Safety on Safety Assurance Level in Child Care Centre." WSEAS TRANSACTIONS ON ENVIRONMENT AND DEVELOPMENT 18 (March 16, 2022): 371–81. http://dx.doi.org/10.37394/232015.2022.18.37.

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Safety assurance is crucial for every child placed under the supervision and care of a childcare centre. This study aims to investigate factors influencing the safety assurance level of childcare centres in Perak, Malaysia. The scope of this study concentrates on the parents who subscribe to the services provided by licensed childcare centres and their views towards the safety assurance level provided by the centres. Meanwhile, the state of Perak was chosen as the research setting following its status as the second-highest population in peninsular Malaysia and no research to date has been conducted regarding the safety of childcare centres within the state. This research is important to create awareness among parents and childcare centres on the factors that may influence children’s safety at childcare centres. Furthermore, having in-depth insights and understanding about the factors influencing the safety assurance level at childcare centres will minimise any threats and dangers on site, subsequently avoiding potential injuries, particularly to children.

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Lai, Ming-Ming, Shi-Ying Lein, Siok-Hwa Lau, and Ming-Ling Lai. "Modeling Age-Friendly Environment, Active Aging, and Social Connectedness in an Emerging Asian Economy." Journal of Aging Research 2016 (2016): 1–14. http://dx.doi.org/10.1155/2016/2052380.

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This paper empirically tested eight key features of WHO guidelines to age-friendly community by surveying 211 informal caregivers and 402 self-care adults (aged 45 to 85 and above) in Malaysia. We examined the associations of these eight features with active aging and social connectedness through exploratory and confirmatory factor analyses. A structural model with satisfactory goodness-of-fit indices (CMIN/df = 1.11, RMSEA = 0.02, NFI = 0.97, TLI = 1.00, CFI = 1.00, and GFI = 0.96) indicates that transportation and housing, community support and health services, and outdoor spaces and buildings are statistically significant in creating an age-friendly environment. We found a statistically significant positive relationship between an age-friendly environment and active aging. This relationship is mediated by social connectedness. The results indicate that built environments such as accessible public transportations and housing, affordable and accessible healthcare services, and elderly friendly outdoor spaces and buildings have to be put into place before social environment in building an age-friendly environment. Otherwise, the structural barriers would hinder social interactions for the aged. The removal of the environmental barriers and improved public transportation services provide short-term solutions to meet the varied and growing needs of the older population.

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Hasan, Haliza, Aznida Firzah Abdul Aziz, and Syed Mohamed Aljunid. "Parents' and caregivers' satisfaction with community‐based rehabilitation (CBR) services for children with disability in east coast states in Peninsular Malaysia." Health & Social Care in the Community 29, no. 1 (July 28, 2020): 215–26. http://dx.doi.org/10.1111/hsc.13084.

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Haji Mukhti, Muhammad Iqbal, Mohd Ismail Ibrahim, Tengku Alina Tengku Ismail, Iliatha Papachristou Nadal, Sureshkumar Kamalakannan, Sanjay Kinra, Jafri Malin Abdullah, and Kamarul Imran Musa. "Exploring the Need for Mobile Application in Stroke Management by Informal Caregivers: A Qualitative Study." International Journal of Environmental Research and Public Health 19, no. 19 (October 10, 2022): 12959. http://dx.doi.org/10.3390/ijerph191912959.

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Background: Mobile health (mHealth) has been considered as a prominent concept in digital health and is widely used and easily accessible. Periodic follow-up visits, previously planned procedures, and rehabilitation services for stroke survivors have been cut down during the recent COVID-19 pandemic. Therefore, in this qualitative study we aimed to explore the need for a mobile application in stroke management by informal caregivers. Methods: A phenomenological qualitative study was conducted from November 2020 to June 2021. Thirteen respondents were recruited from two public rehabilitation centers in Kota Bharu, Kelantan, Malaysia. In-depth interviews were conducted. A comprehensive representation of perspectives from the respondents was achieved through purposive sampling. The interviews were conducted in the Kelantanese dialect, recorded, transcribed, and analyzed by using thematic analysis. Results: Thirteen participants were involved in the interviews. All of them agreed with the need for a mobile application in stroke management. They believed the future stroke application will help them to seek information, continuous stroke home care, and help in the welfare of caregivers and stroke patients. Conclusions: The current study revealed two themes with respective subthemes that were identified, namely, self-seeking for information and reasons for using a stroke mobile application in the future. This application helps in reducing healthcare costs, enhancing the rehabilitation process, facilitating patient engagement in decision making, and the continuous monitoring of patient health.

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Letchumanan, Devanthiran, Nuratiqah Mohamad Norpi, Zamros Yuzadi Mohd Yusof, Ishak Abdul Razak, Noor Hayaty Abu Kasim, Nurrul Ashikin Abdullah, Sheila Rani Ramalingam, et al. "Caregivers’ perceptions towards oral healthcare services for elders living in Malaysian nursing homes—A qualitative study." Gerodontology 37, no. 4 (March 2020): 332–41. http://dx.doi.org/10.1111/ger.12466.

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Chew, Lan-Sim, Yee-Ling Yeo, Chee-Tao Chang, Chii-Chii Chew, Doris George, and Philip Rajan. "Satisfaction among patients and caregivers receiving value-added services during the COVID-19 pandemic outbreak in a tertiary hospital in the Perak state of Malaysia." Journal of Pharmaceutical Health Services Research 12, no. 4 (October 23, 2021): 477–84. http://dx.doi.org/10.1093/jphsr/rmab057.

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Abstract Objectives Patient satisfaction was used as an indicator of service quality in the public hospitals. The pharmacy value-added services (VAS) were intensified after the COVID-19 outbreak, and evaluation of user’s satisfaction was important for service improvement. Methods This was a single-centre, cross-sectional, web-based study in the outpatient pharmacy in a tertiary hospital in the Perak state of Malaysia. Patients and caregivers aged 18 years and above, received at least one prescription refill using the pharmacy VAS from April to September 2020, were included. The questionnaire was adapted from a validated tool, underwent face and content validation before dissemination. The link was disseminated to the targeted population through short messages service (SMS). Key findings Out of 1200 invited people, 303 agreed to participate. Majority of the respondents were male (160, 52.8%), Chinese (156, 51.5%), with tertiary education (201, 66.3%) and retiree (112, 37.0%). Out of a maximum score of 5, the overall mean satisfaction score was 4.42 (SD: 0.55). The respondents were most agreeable to time-saving benefits of the pharmacy VAS (4.56 ± 0.63). Majority of the respondents felt that pharmacy VAS had made their life easier (290, 95.7%) and planned to recommend the pharmacy VAS to others (292, 96.4%) Respondents aged more than 60 (versus age 18–35, β = 2.375, P < 0.001) and those who used drive-through service (versus SPUB, β = 2.272, P = 0.001) reported higher satisfaction scores. Several suggestions were made for service improvement, including longer operating hours (18, 6.0%), upgraded communication system (9, 3.0%), smoother registration process (9, 3.0%), more polite staff (9, 3.0%), selection of preferred postage delivery time (6, 2.0%) and promotion of VAS (4, 1.3%) Conclusions Majority of the respondents were highly satisfied towards the pharmacy VAS. Future studies should compare the satisfaction of VAS with traditional counter service to compare the level and factors that contributed to the users’ satisfaction.

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Selvarajah, Thinakaran M., Eiko Yamamoto, Yu Mon Saw, Tetsuyoshi Kariya, and Nobuyuki Hamajima. "Authors’ Response to Peer Reviews of “Satisfaction With Health Care Services at the Pediatric Specialist Clinic of the National Referral Center in Malaysia: Cross-sectional Study of Caregivers’ Perspectives”." JMIRx Med 3, no. 2 (May 25, 2022): e37117. http://dx.doi.org/10.2196/37117.

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Taib, Fahisham, Hans Van Rostenberghe, and Nurul Adilah Muhammad. "Pediatric Palliative Care in Kelantan: A Community Engagement Model." Bangladesh Journal of Medical Science 15, no. 1 (April 11, 2016): 51–56. http://dx.doi.org/10.3329/bjms.v15i1.27139.

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Holistic package of palliative care service for children is not available in most places in the South East Asia. This has resulted in unwanted suffering and loss of hope in the unfortunate families. Pediatric palliative care (PPC) is a new subspecialty in Malaysia. In our region, it was started in 2012 as a Universitys community engagement project following completion of self-initiated palliative care distance learning in Australia by a pediatrician. The grant was labeled as a flagship project and secured under the Division of Community & Industry Network of USM (BJIM) to provide service in the hospital and outreach home based PPC services, which include nursing care, needs assessment and psychosocial support for the patients and caregivers. Knowledge transfer program was initiated, in collaboration with Yayasan Orang Kurang Upaya (YOKUK) or Kelantan Foundation for the Disabled, to equip the outreach team with skills dealing with children with life limiting illnesses (LLI) in Kelantan. The move has propagated regular training setup with transformational program from hospital to community settings. This setup has led to mutual cooperation across the disciplines and provided linkages for stronger networking and training either locally or internationally. Better understanding on the importance of palliative care in the community can be achieved by having active community participation and volunteerism.Bangladesh Journal of Medical Science Vol.15(1) 2016 p.51-56

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Rohani, Ropizah, Zakiyah Jamaluddin, and Abd Razak Abd Manaf. "Psychosocial Adjustment Among Abused Children in Residential Care." Journal of Business and Social Review in Emerging Economies 5, no. 1 (June 30, 2019): 175–80. http://dx.doi.org/10.26710/jbsee.v5i1.521.

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Purpose – The purpose of this paper is to propose a conceptual framework on the key determinant of psychosocial adjustments in terms of behavior, social, emotion and mental health among abused children in residential care. Methodology – This research is designed as a qualitative study approach. Case study method is used to explore primer data which emphasis on psychosocial adjustments and narrative data from the perspective of children living in residential care. Research participants consist of children living in welfare care in Perlis, Malaysia and the respective staffs. Findings – Chronic abuse will leave harmful effects on various aspects of the children’s development. Abuse will also affect one’s emotional wellness and balance which will further impact the psychosocial stability of an individual in adulthood. Most victims will not be able to develop a sense of belonging and necessary social skills which eventually will lead to these individuals not being able to socialize in the real life situations. Therefore the placements of these children in a safe environment so as to ensure better care and protection must be given proper attention. The transition of caregivers from parents to the welfare centre will affect these chindren too. They need time to build trust and relationship so that they can feel comfortable to share their experiences and also emotions. Caregivers in the institutions are the main elements in ensuring the quality and effectiveness of educational programmes of the centres. Practical Implications – Rehabilitation programme is needed to balance the children’s needs based on age and ability to give the residents chances to practice skills and also learn to adapt to the outside world. Social Implications – The institutions should provide condusive life experiences as they have a large impact to the success of the rehabilitation process. In addition, good quality services in fulfilling the children’s need will assure healthy development of the children and their ability to adapt well to the outside world

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Lim, C., T. L. Ho, M. T. Stephen, H. S. Mohd Hashim, N. I. Binti Junazli, S. L. Choo, K. Y. Low, and M. Muniasamy. "Hi, I Have Cancer, What Can I Do? An Analysis of Caller Characteristics of a Malaysian Cancer-Specific Information Hotline." Journal of Global Oncology 4, Supplement 2 (October 1, 2018): 118s. http://dx.doi.org/10.1200/jgo.18.28800.

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Background: Despite the advancement of technology in information dissemination, patients and caregivers often cite difficulties in getting the right cancer information, care and psychosocial support. It is crucial to optimize the availability of cancer information to increase knowledge among the public and for better decision making by patients and their families. In line with these strategies, the National Cancer Society of Malaysia (NCSM) established a toll-free, Cancer Information Service Helpline (CIS) in 2016 to act as a tool for provision of cancer-related information and psychosocial support. Aim: This study aimed to analyze caller characteristics and trends of calls received by the CIS between January 1 to December 31, 2017. Methods: A cross sectional study was conducted on the CIS call logs for the ascertained study period. Descriptive analysis was carried out to determine characteristics of callers including i) socio-demographics; ii) geographical location; iii) caller's cancer disease status or relationship with cancer patient and iv) reason(s) for calling the helpline. ANOVA was used to determine possible associations between the different variables and reasons for calling the helpline. Results: A total of 1613 calls were received during the study period. Majority of the callers were female (72%) and almost half of the callers were healthcare professionals (43%). 36% of the calls were inquiries on availability of screening services and this was significantly associated with calls from healthcare professionals ( P = 0.04). Callers of Malay ethnicity ( P = 0.03) and newly diagnosed cancer patients ( P = 0.001) were significantly associated with calling to seek for financial help. Conclusion: While being used as a source of some aspects of information pertaining to cancer, the CIS's capabilities in providing psychosocial support is not being maximized as yet. These results provide insight that targeted promotional efforts to raise awareness about CIS's psychosocial support capabilities is required to further maximize its potential among Malaysian patients, families and the public at large.

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Awaluddin, SMaria, Nurhuda Ismail, Siti Munira Yasin, Yuslina Zakaria, Norzila Mohamed Zainudin, Faridah Kusnin, Mas Ahmad Sherzkawee Mohd Yusoff, and Asmah Razali. "Exploring challenges faced by parents of children with tuberculosis to achieve treatment success." Journal of Clinical and Health Sciences 5, no. 2 (November 1, 2020): 46. http://dx.doi.org/10.24191/jchs.v5i2.10114.

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Introduction: Parents play an essential role in the success of their children’s tuberculosis (TB) treatment. They faced many challenges from the initial children’s health status changes until completing the TB treatment. The challenges were also described as perceived barriers, according to the Health Belief Model (HBM). This study aims to explore parents’ experiences on the challenges in achieving a successful TB treatment for their child in two districts of Selangor, Malaysia. Methods: The research was carried out using the phenomenology study design. In-depth interviews were conducted among purposely sample primary caregivers of children with TB disease who have completed TB treatment or still under treatment. MyTB version 2.1 data were sought from TB Unit, Selangor Health State Department for Klang and Petaling districts. The participants were selected based on the registration year of 2017 to 2019. The collected data was considered as achieving its saturation level if no new themes arise from the latest interviews session. The R-based Qualitative Data Analysis (RQDA) package version 0.2-8 was used for thematic data analysis. Results: The total number of participants in this study was fifteen mothers of children with TB disease. There were six main themes identified from this study, which were health symptoms challenges, TB investigation challenges, personal challenges, healthcare facilities challenges, administration medication challenges, and community challenges. Conclusions: Understanding the challenges faced by parents of children with TB disease is vital for improving the TB services and providing the required psychosocial support to the children’s family.

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Lawton, M. Powell, Elaine M. Brody, Avalie Saperstein, and Miriam Grimes. "Respite Services for Caregivers." Home Health Care Services Quarterly 10, no. 1-2 (October 13, 1989): 5–32. http://dx.doi.org/10.1300/j027v10n01_02.

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Chan, Siaw Leng, Nurul Syahmah Binti Matsah, Aidatul Ashya Binti Yusuf, Anis Syahmina Binti Mohd Khaidir, Nur Haiza Binti Hamdan, and Zayti Nurallya Binti Kamizi. "A review on family caregiving challenges in Malaysia." ProGCouns: Journal of Professionals in Guidance and Counseling 3, no. 1 (May 31, 2022): 1–9. http://dx.doi.org/10.21831/progcouns.v3i1.48386.

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Family caregiving often involves family members, relatives, and partners with whom the patients have a personal relationship to assist the care. The roles of caregivers are extensive and require a lot of effort, time, and commitment. These demands might possibly affect the life of caregivers. This paper aims to identify how family caregiving in Malaysia might have jeopardized the caregiver's life. A systematic approach analysis was utilized in this study while including seventeen articles. The exclusion criteria were articles published in reputable journals containing the research topic with the keywords “burden”, “finance”, and “stress”. The focus of the study was on the impact, mental health status, quality of life, and burden related to caregivers in Malaysia. The articles were categorized into four themes: mental health status, impact, quality of life, and burden towards family caregiving in Malaysia. The results showed that in the theme of mental health status, caregivers experienced significant stress and one of the factors is the family's lack of knowledge in dealing with stress. Meanwhile, in terms of impact, the results indicated that caregivers experienced negative impacts on their emotions and health. In the quality of life theme, the results presented that family caregiving had a positive impact on increasing bonding between patients and caregivers. The results also showed that caregivers experienced burdens related to financial issues and lack of social support. This study recommends mental health professionals provide support, knowledge, and training for caregivers to maintain their psychological well-being.

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Rahman, Md Mizanur, Norlizabinti Suut, Zabidahbinti Putit, Mohamad Taha Arif, Asri Bin Said, Mohd Raili Bin Suhaili, Mohd Fadzillah, Florence AkBakon, Zainab Binti Tambi, and Ling How Kee. "Burden of Stroke Caregivers: Evidence from a Qualitative Study in Sarawak, Malaysia." Bangladesh Journal of Medical Science 17, no. 4 (September 19, 2018): 593–99. http://dx.doi.org/10.3329/bjms.v17i4.38321.

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Background: Stroke survivors experience long-term physical, psychosocial and cognitive impairment that are formidable challenges to caregivers because caring for stroke survivors needs explicit knowledge and caregivers have to endure the stressfulness as a result of caring. In addition, little is known about perceived benefits of the stroke care giving experience.Objectives: This study was aimed to determine the caregivers’ burden and challenges as reported by caregivers of stroke survivors.Materials and Methods: This was a cross-sectional study involving 18 stroke caregivers. The data were collected from November 2015 to June 2016 at a conveniently selected community rehabilitation centre in Kuching, Sarawak.Results: The qualitative data analysis revealed that the burden was aggravated by financial problems, multiple responsibilities hold by the caregivers, behavioural changes of the stroke survivors and lack of social support during care giving.Conclusion: This study highlighted the experiences by the caregivers in caring for the stroke survivors that focused on the different needs of the caregivers. Understanding these experiences may help the service providers to provide better support and resources for caregivers in caring for stroke survivors.Bangladesh Journal of Medical Science Vol.17(4) 2018 p.593-599

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Kaufman, Allan V., and James P. Adams. "Providing Services to Family Caregivers." Journal of Teaching in Social Work 6, no. 1 (September 25, 1992): 157–73. http://dx.doi.org/10.1300/j067v06n01_10.

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Linsk, Nathan L., and Dorie J. Gilbert. "HIV/AIDS Caregivers and Services." Journal of HIV/AIDS & Social Services 2, no. 3 (April 21, 2004): 1–4. http://dx.doi.org/10.1300/j187v02n03_01.

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Barber, Chris. "Hidden caregivers: providing appropriate services." British Journal of Healthcare Assistants 6, no. 11 (November 2012): 530–33. http://dx.doi.org/10.12968/bjha.2012.6.11.530.

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Potter, Andrew J. "Factors Associated With Caregivers’ Use of Support Services and Caregivers’ Nonuse of Services Sought." Journal of Aging & Social Policy 30, no. 2 (January 2, 2018): 155–72. http://dx.doi.org/10.1080/08959420.2017.1414539.

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Md Mizanur Rahman, Zabidah binti Putit, Norliza binti Suut, Mohamad Taha Arif, Asri bin Said, Mohd Raili bin Suhaili, Mohd Fadzillah, Zainab binti Tambi, and Ling How Kee. "COPING STRATEGIES BY STROKE CAREGIVERS: EVIDENCE FROM A QUALITATIVE STUDY IN SARAWAK, MALAYSIA." Malaysian Journal of Public Health Medicine 20, no. 1 (May 1, 2020): 48–54. http://dx.doi.org/10.37268/mjphm/vol.20/no.1/art.550.

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Caring for stroke survivors is inevitably a burden to caregivers. It is not uncommon for stroke survivors who are discharged from the hospital and found themselves at home without any help and care from the supposed caregivers. However, in instances where there are available and willing caregivers, a sudden and unpredictable task of caring for stroke survivors require the stroke caregivers to apply their coping strategies due to the demanding nature of looking after a survivor. This study aimed to determine coping strategies undertaken by stroke caregivers in caring for stroke survivors. This was an exploratory qualitative study and data was collected from the caregivers of stroke survivor using a semi-structured guided questionnaire. A total of 18 caregivers were included in the study. The data were collected from November 2015 until June 2016 at a selected community rehabilitation centre in Kuching, Sarawak. The qualitative data analysis revealed that the coping strategies undertaken by stroke caregivers include change of role in life, self-motivation, sharing with other people, crying, trying to forget things that happen, hoping survivors will get better, emotion suppression and self-blame. The study highlighted the experiences by the caregivers for caring for stroke patients and focused on the coping strategies undertaken by the caregivers. Better ununderstanding of these experiences does help the service providers to provide better support and resources for caregivers in caring for stroke survivors.

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Whiting, C. Grace. "Caregiver Needs: Navigating Services, Technology, and Information." Innovation in Aging 4, Supplement_1 (December 1, 2020): 682. http://dx.doi.org/10.1093/geroni/igaa057.2375.

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Abstract Data suggests that caregivers may be taking on this role without adequate and affordable services and supports in place. Few caregivers report access to paid help and find it difficult to navigate a healthcare system that is complex and that changes continuously. Caregivers find it challenging to coordinate their recipients’ care across various providers, and the lack of affordable services make it difficult to be a caregiver today. While many caregivers rely on health care professionals (such as doctors, nurses, or social workers) as a source of information about providing care, few caregivers report having conversations with them about what they need to care for their recipient or to support their well-being. In this section, the presenter will discuss the needs of caregivers (respite, transportation, information, and training), focusing on policy and programmatic solutions geared to improving the well-being of caregivers and those under their care.

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Deen, Thaufiq, O. Argo Victoria, and Sumain Sumain. "Public Notary Services In Malaysia." Jurnal Akta 5, no. 4 (December 22, 2018): 1017. http://dx.doi.org/10.30659/akta.v5i4.4135.

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Starting January 5, 2015 the Embassy in Kuala Lumpur requires appointments for all notarial services. Please bring your appointment confirmation sheet and arrive at the embassy 10 minutes before the appointment time[1]. It can provide most of the same notarial services that a public notary is authorized by law to perform within the United States. Services are similary available as in U.S. and to foreign nationals with documents intended for use within the U.S. By following to the ACS Unit when requesting notary services: The documents to be notarized, including attachments, if any. The passport and one other photo identification. Witnesses, if required. (Consular staff are not alloitd to serve as witnesses.) $50.00 or the equivalent in Malaysian ringgit for each seal. Notary fees can be paid in cash or by credit card.Keywords: Notary, Management, Malaysia.[1] https://evisaforms.state.gov/acs/default.asp?postcode=KLL&appcode=1, Accessed on 15th February 2019

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Sim, Kui-Hian, and Alan Yean Yip Fong. "Cardiac Services in Sarawak, Malaysia." American Heart Hospital Journal 5, no. 2 (May 4, 2007): 100–102. http://dx.doi.org/10.1111/j.1541-9215.2007.06697.x.

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Abu Bakar, Siti Hajar, Richard Weatherley, Noralina Omar, Fatimah Abdullah, and Nur Saadah Mohamad Aun. "Projecting social support needs of informal caregivers in Malaysia." Health & Social Care in the Community 22, no. 2 (September 11, 2013): 144–54. http://dx.doi.org/10.1111/hsc.12070.

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Hoyt, Emily, Jyoti Savla, Karen Roberto, Aubrey L. Knight, Rosemary Blieszner, and Brandy R. McCann. "Dual Caregivers of Relatives with Dementia in Rural Virginia: The Added Stress of COVID-19." Innovation in Aging 4, Supplement_1 (December 1, 2020): 943. http://dx.doi.org/10.1093/geroni/igaa057.3453.

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Abstract Family caregivers often find themselves “sandwiched” between caring for an older relative with dementia (PWD) and another person. Serving in a dual caregiving role presents unique challenges and has consequences for caregivers’ physical and mental health. Seven daily diary interviews with 46 dual dementia caregivers assessed their daily stressors and informal and formal supports. Results showed that dementia caregivers who also cared for another older relative reported poorer physical health and used more community-based services to care for the PwD. Conversely, dementia caregivers who also cared for younger relatives reported greater secondary stressors, lower family support, and use of fewer community-based services to care for the PwD. Since the COVID-19 pandemic began, two telephone interviews were conducted with 15 dual dementia caregivers. Caregivers were asked in-depth questions about how the pandemic had impacted their caregiving responsibilities, mental health, and use of community-based services. Guided by stress process and behavior models, a thematic analysis of dual caregivers’ interviews revealed that caregivers had less time for themselves, engaged in self-care activities less often, and felt their social life had suffered. Many of the caregivers reported feeling exhausted, stressed, and had more things to do than they could handle. Of the eight caregivers that used services before COVID-19, six experienced a change in services including loss of services, different workers, or self-selected cancellation of services. Discussion focuses on challenges dual dementia caregivers face and the added stressors they experienced during the COVID-19 pandemic.

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Couture, Melanie, Pam Orzeck, and Apostolia Petropoulos. "PUBLIC HEALTH AND SOCIAL SERVICES SYSTEM: THE DISENCHANTMENT OF ISOLATED SENIOR CAREGIVERS." Innovation in Aging 3, Supplement_1 (November 2019): S387. http://dx.doi.org/10.1093/geroni/igz038.1420.

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Abstract Social isolation is one of the negative consequences associated with caregiving and is experienced by approximately 20% of Canadian family caregivers. Being in a public health and social services system, Canadian caregivers should normally turn to their local community service centres (CLSC) to access formal services and feel less isolated. However, studies have shown that satisfaction is low regarding accessibility and continuity of formal support services. In an effort to develop interventions that meet the needs of isolated senior caregivers, the purpose of this exploratory descriptive qualitative study was to identify challenges encountered in accessing and utilizing formal supports within the public health and social services system in Canada. Nineteen isolated senior caregivers participated in seven focus groups. Data analysis was performed using the Miles, Huberman, and Saldana (2014) approach. Results showed that isolated caregivers do not know where to get information about existing services within the formal system. Once services are found, waiting lists are linked to unbearable delays. Some caregivers are actually redirected to private services, if they can afford it. Isolated caregivers also criticize the unpredictability of the system as they face relentless changes of care providers, inadequate services and sometimes unwarranted cancellations or terminations. In addition, they find formal services lacking human sensitivity. Many of them come to the conclusion that formal services are not worthwhile and exclude themselves from the formal system. This research demonstrated that the health and social services system can actually contribute to the social isolation of senior caregivers longing for support.

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Hoyt, Emily K., Karen A. Roberto, and Jyoti Savla. "COMBATTING LONELINESS: SERVICE USE AMONG RURAL FAMILY CAREGIVERS OF PERSONS WITH DEMENTIA." Innovation in Aging 3, Supplement_1 (November 2019): S888. http://dx.doi.org/10.1093/geroni/igz038.3249.

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Abstract According to a 2018 AARP study, 42% of unpaid caregivers experience loneliness. While findings across multiple studies suggest that caregivers experience loneliness either because they lack intimacy in close relationships (i.e., emotional loneliness) or they feel disconnected from their social network (i.e., social loneliness), little is known about how aspects of dementia caregiving influence loneliness, particularly among rural caregivers. The purpose of this study was to examine the association between in-home service use and caregivers experience with both types of loneliness. Eighty-eight co-residing dementia caregivers in rural Appalachia (Mean Age = 68 years; 91% White; 58% Spouses) completed telephone interviews that included questions about their use of formal services and perceptions of emotional and social loneliness. More than half (58%) of the caregivers accessed 1 to 4 formal services. Regression models revealed that caregivers who experienced greater social loneliness were more likely to access personal care services (p=0.013) and respite services (p=0.004) compared to caregivers who experienced less social loneliness. Further, caregivers who experienced greater emotional loneliness were also more likely to access personal care (p=0.028) and respite (p=0.039) services compared to caregivers who experienced lower emotional loneliness. These associations remained robust even after controlling for relationship to the PwD (spouse vs. non-spouse). Findings suggest that beyond assisting with the care of the PwD, the use of formal services may help family caregivers manage loneliness and relieve social isolation. Discussion will focus on the importance of service accessibility and use for the health and psychological well-being of rural family caregivers.

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Albert, Wanda Kiyah George, Adi Fahrudin, Steward Lindong, and Husmiati Yusuf. "The Suffering Experiences: Family Caregiver of Home Based Palliative Care in Malaysia." Open Access Macedonian Journal of Medical Sciences 10, E (June 15, 2022): 1623–29. http://dx.doi.org/10.3889/oamjms.2022.8573.

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BACKGROUND: Caring for a family member who has advanced cancer and is nearing the end of their life comes with a slew of concerns and obstacles for the caregiver. A thorough understanding of the hardships and tribulations of caregiving may be a step toward resolving the issues that these patients’ family caregivers confront. AIM: The present study aimed to explore the suffering experienced faced by Malaysian family member who has advanced cancer and is nearing the end of their life. MATERIALS: The present qualitative study was conducted through in-depth semi-structured interviews held with seven family caregivers of cancer patients selected through purposive sampling. Interviews continued until the saturation of data. All interviews were recorded, transcribed, and analyzed through conventional content analysis. RESULTS: The codes extracted from interviews produced five main themes, including empathic suffering, powerless and hopeless suffering, predictive suffering, compliance suffering, and barriers’ wrath, which collectively caused suffering for family caregivers. CONCLUSION: Care provided in an atmosphere of suffering and discontent diminishes the caregiver’s quality of life and quality of patient care. Health planners should therefore consider the challenges and sufferings faced by family caregivers and should seek to obviate them through plans.

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Azman, Azlinda, Paramjit Singh Jamir Singh, and Jamalludin Sulaiman. "The mentally ill and their impact on family caregivers: A qualitative case study." International Social Work 62, no. 1 (September 19, 2017): 461–71. http://dx.doi.org/10.1177/0020872817731146.

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The impact of mental illness is profound. This qualitative study aims to explore the impact experienced by family caregivers who provide care to relatives with mental illness. A total of 15 family caregivers from the state of Kedah in Malaysia participated in this study. The findings indicated that the family caregivers experienced four types of negative impact, including financial burdens and social, psychological and physical health. This study suggests that the family caregivers should engage in support groups to obtain emotional support and the required information from other caregivers who have similar experiences in caring for individuals with mental illness.

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Kowanda, Michelle, Lindsey Cartner, Catherine Kentros, Alexa R. Geltzeiler, Kaitlyn E. Singer, W. Curtis Weaver, Christopher D. Lehman, et al. "Availability of Services and Caregiver Burden: Supporting Individuals With Neurogenetic Conditions During the COVID-19 Pandemic." Journal of Child Neurology 36, no. 9 (April 8, 2021): 760–67. http://dx.doi.org/10.1177/08830738211001209.

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Because of the COVID-19 pandemic, in-person services for individuals with neurodevelopmental disabilities were disrupted globally, resulting in a transition to remote delivery of services and therapies. For individuals with neurogenetic conditions, reliance on nonclinical caregivers to facilitate all therapies and care was unprecedented. The study aimed to (1) describe caregivers’ reported impact on their dependent’s services, therapies, medical needs, and impact on themselves as a result of the COVID-19 pandemic and (2) assess the relationship between the extent of disruption of services and the degree of self-reported caregiver burden. Two online questionnaires were completed by caregivers participating in Simons Searchlight in April and May 2020. Surveys were completed by caregivers of children or dependent adults with neurodevelopmental genetic conditions in Simons Searchlight. Caregivers reported that the impact of the COVID-19 pandemic moderately or severely disrupted services, therapies, or medical supports. The majority of caregivers were responsible for providing some aspect of therapy. Caregivers reported “feeling stressed but able to deal with problems as they arise,” and reported lower anxiety at follow-up. Caregivers reported that telehealth services were not meeting the needs of those with complex medical needs. Future surveys will assess if and how medical systems, educational programs, therapists, and caregivers adapt to the challenges arising during the COVID-19 pandemic.

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Yuen, Winnie WY, Samson Tse, Greg Murray, and Larry Davidson. "‘From my point of view, my wife has recovered’: A qualitative investigation of caregivers’ perceptions of recovery and peer support services for people with bipolar disorder in a Chinese community." International Journal of Social Psychiatry 65, no. 4 (April 15, 2019): 305–12. http://dx.doi.org/10.1177/0020764019842287.

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Background: Bipolar disorder (BD) is a chronic mental disorder, and family members play a key role in taking care of the affected individuals. The recovery movement has gradually transformed mental health services, for example, through the introduction of peer support services (sharing of expert-by-experience knowledge), and it has challenged the prevailing view that people with mental illness cannot recover. Aims: Through this study, the researchers explored how family caregivers in a Chinese context conceptualise recovery, how caregivers interact with peer support workers (PSWs) and how they perceive peer support services. Methods: Fourteen family caregivers from community settings participated in individual semi-structured interviews. The data were analysed through thematic analysis. Results: Family caregivers had multifaceted definitions of recovery and had various degrees of contact with PSWs. The views and experiences shared by PSWs were hope-instilling for caregivers and changed their perception of BD and their loved ones. Some limitations of PSWs were also identified. Conclusion: Social connectedness and functional outcomes were important indicators of recovery among Chinese family caregivers. Caregivers began to understand the benefits of PSWs after experiencing their services. Peer-led services could be a helpful support for both service users and family caregivers.

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Saravanan, Deepika Pugalenthi, Nihal Satyadev, Natashia Townsend, Katherine Rose, Harrison Ma, Donna Benton, and Lené Levy-Storms. "An Assessment of Dementia Caregivers’ Interaction With Community-Based Services." Innovation in Aging 5, Supplement_1 (December 1, 2021): 761. http://dx.doi.org/10.1093/geroni/igab046.2819.

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Abstract Respite care is an important service to address caregivers' stress and fatigue when caring for a person with dementia (PWD). YouthCare is a non-medical, at-home, intergenerational respite care program that partners trained student volunteers with PWDs. The Family Caregiver Survey was created and distributed to caregivers of PWDs in Los Angeles to better understand interactions with the community and its caregiver services. The survey assesses caregivers’ demographics, daily activities, mental health, and the type of respite support needed. The survey findings (n=47) show that 53.2% of caregivers are 54 and older and 83% females. 40.4% of the caregivers listened to the radio primarily in the morning while 61.7% watched television in the afternoon to evening time. For transportation of PWDs to and from destinations, 78.3% of caregivers reported using their own vehicles. In regards to their mental health, 61.7% of the caregivers stated that they felt tired and unmotivated to complete daily activities. When asked why they sought respite services, 40% stated that they were overwhelmed by the responsibilities in addition to their own work. The groups that primarily support caregivers are family and professional respite services. Findings indicate that caregivers are most likely to trust resource recommendations from family and friends. Similar surveys should be administered in other cities and in rural locations to improve the generalizability of our findings.

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Guberman, Nancy, and Pierre Maheu. "Le rapport entre l'adéquation des services de maintien à domicile et la trajectoire de travail des personnes soignantes." Canadian Journal on Aging / La Revue canadienne du vieillissement 19, no. 3 (2000): 380–408. http://dx.doi.org/10.1017/s0714980800015051.

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AbstractThis article examines to what extent the presence or absence, adequacy or inadequacy of formal services impacts on the work trajectory of caregivers to elderly relatives. The article is based on a qualitative study with 20 employed caregivers' whose elderly relatives received homecare services from one of two Montreal CLSCs: Results reveal the key role played by formal services in caregivers' attempts to juggle caregiving demands with those of their employment. They illustrate how the presence or the insufficiency of these services, their adequacy or inadequacy, combined with the other accommodations which caregivers put into place, can be determinants in caregivers' decisions to continue working and in their capacity to function well in the work place.

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ZAINUDDIN, NIZAMUDDIN, TAN YONG SOON, CHIANG SHUN LONG, and NORITA DERAMAN. "RAIL FREIGHT SERVICES UTILIZATION IN MALAYSIA." Quantum Journal of Social Sciences and Humanities 2, no. 6 (December 9, 2021): 104–12. http://dx.doi.org/10.55197/qjssh.v2i6.113.

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Due to the development of international and domestic trade, the growing important of related freight transport services is increasingly. This paper is intended to discuss the factors affecting the utilization of rail freight services in Malaysia. Three factors were identified which include price, time, location and physical. The data are obtained through a questionnaire which has been structured accordingly and distributed to the respondents. The sample collected were 103 through online questionnaire survey. In this study, the data are analysed using descriptive, normality, reliability, and multiple linear regression. All independent variables such as price, time, location and physical were found to show have significant relationship with the utilization of rail freight services in Malaysia. Although sample collected were from different background, but majority were collected in Western Malaysia, may not represent the entire haulage operator and freight customer in Malaysia. The duration of the study further increases the limitation whereby only 3 to 4 months to complete the entire research. Resources in related fields are limited. The use of rail freight services requires more investment, resources, and costs. Finally, the study's findings should help shifting the preference among haulage companies in the use of rail transportation in an effective, efficiency and environmentally friendly way, to increase the utilization rate of rail freight services in Malaysia. This study increases haulage operator and freight customer knowledge and awareness regarding the adoption of rail freight services. This study also encourages the haulage operator and consumer to use sustainable rail transport services. The paper marks an early contribution to the study on factors that affect the utilization of rail freight services in Malaysia.

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Salleh, Mohd Razali. "Community mental health services in Malaysia." Psychiatric Bulletin 16, no. 10 (October 1992): 648–50. http://dx.doi.org/10.1192/pb.16.10.648.

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The need to confine and restrain psychotic patients at the turn of the last century saw the building of a few large asylums which soon became overcrowded with the growth of the population. These asylums were the only service available to the mentally ill until 1959 when the trend to decentralise began with the building of general hospital psychiatric units.

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Hisamuddin, N. A. R. Nik, M. Shah Hamzah, and C. James Holliman. "Prehospital Emergency Medical Services in Malaysia." Journal of Emergency Medicine 32, no. 4 (May 2007): 415–21. http://dx.doi.org/10.1016/j.jemermed.2006.08.021.

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Teo, Yen Hua. "Water services industry reforms in Malaysia." International Journal of Water Resources Development 30, no. 1 (January 2, 2014): 37–46. http://dx.doi.org/10.1080/07900627.2013.846719.

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Wijasuriya, D. E. K. "Malaysia: The Development of Library Services." Information Development 1, no. 2 (April 1985): 74–84. http://dx.doi.org/10.1177/026666698500100203.

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NAKAGOSHI, Ryoma, Seiichi TAKEMASA, Yoshifumi NANBA, Hirofumi MORIOKA, Masataka OYAMA, and Kanako NAKAYAMA. "Satisfaction of Family Caregivers with Home Services." Rigakuryoho kagaku 29, no. 6 (2014): 983–87. http://dx.doi.org/10.1589/rika.29.983.

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Martindale-Adams, Jennifer, Linda O. Nichols, Jeffrey Zuber, Robert Burns, and Marshall J. Graney. "Dementia Caregivers’ Use of Services for Themselves." Gerontologist 56, no. 6 (September 8, 2015): 1053–61. http://dx.doi.org/10.1093/geront/gnv121.

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Applequist, Karen L., and Donald B. Bailey. "Navajo Caregivers' Perceptions of Early Intervention Services." Journal of Early Intervention 23, no. 1 (January 2000): 47–61. http://dx.doi.org/10.1177/10538151000230010901.

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Crais, Elizabeth, Cara S. McComish, Emily F. Kertcher, Steve Hooper, Rebecca Pretzel, Lucia Mendez, and Michelle Villalobos. "Autism Spectrum Disorder Identification, Diagnosis, and Navigation of Services: Learning From the Voices of Caregivers." Focus on Autism and Other Developmental Disabilities 35, no. 4 (June 3, 2020): 246–56. http://dx.doi.org/10.1177/1088357620922165.

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This study explored caregivers’ perspectives on facilitators and barriers to screening, diagnosis, and identifying and accessing other services for young children with autism spectrum disorder (ASD); and caregivers’ suggestions for improving the process. Eight focus groups with 55 caregivers were conducted. Four groups had a mix of White, African American, and Asian caregivers, and to gain broader populations, we recruited two groups of Spanish-speaking and two groups of American Indian caregivers. Some caregivers reported that their child and they received excellent services; however, the majority reported concerns about the services they and their child received. The findings also indicated a lower age of diagnosis and a smaller gap between concerns and diagnosis for White non-Hispanic children compared with Hispanic non-White children. Caregivers had many suggestions for ways to improve the process.

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Shchedrinskaya, O., M. Bebtschuk, and O. Khairetdinov. "Telehealth in children’s psychiatric services." European Psychiatry 64, S1 (April 2021): S346—S347. http://dx.doi.org/10.1192/j.eurpsy.2021.929.

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IntroductionCovid-19 intensified public demand for telehealth services in child psychiatry. The shift towards online services raised concerns related to safety and quality of services.ObjectivesThe objective of the study was to explore outcomes and perceptions regarding psychiatric telehealth services from the patients’ and professionals’ perspectives.MethodsSurvey and questionnaires were the main methods to collect feedback after 1129 sessions conducted by psychiatrists and psychotherapists for 559 young patients in 2020.ResultsOverall, patients/caregivers were generally satisfied with the quality of services, despite some technical issues and limitations of the platform. The most common outcomes of the sessions were: psychotherapy, in-depth assessment, pharmacotherapy, in-patient treatment, referrals for in-person appointments with other specialists, parenting strategies. Professionals gave more positive feedback on telehealth services after a few months of practice and training. Psychiatrists preferred conducting telehealth appointments for the patients they have previously seen in-person. The most common diagnosis were various neurodevelopmental disorders (48,9%), as well as patients within F84.0-F84.5 27,9%, and F84.8 (19,8%). Identification challenges, confidentiality and safety maintenance were among the top concerns for mental health workers. Specific guidelines for caregivers helped to use the appointment time effectively, prevent some technical and organizational issues and decrease negative effects of limited communication capabilities during a telehealth appointment.ConclusionsTelehealth services in psychiatry are meeting real needs of patients, caregivers and professionals, and require further development. Proper training for professionals and clear guidelines for caregivers are among the key factors that enhance the quality of services.

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TAN, PECK-LEONG, and JOHN GIBSON. "DOES OUTSOURCING HOUSEHOLD PRODUCTION HARM FUTURE HUMAN CAPITAL? EVIDENCE FROM MALAYSIA." Singapore Economic Review 62, no. 05 (December 2017): 959–81. http://dx.doi.org/10.1142/s0217590815500745.

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In some Asian countries, households import young women from poorer countries to work as live-in caregivers and maids. These caregivers are typically less educated than the child’s mother, so academic performance may suffer. The effects of ever having a foreign maid, a private tutor or a working mother are examined for Malaysian teenagers. Contrary to expectations, those ever having a foreign maid perform better in school examinations, recent private tutoring has positive impacts but earlier tutoring does not, and there is little effect of maternal employment. These results suggest no adverse effects on human capital from outsourcing household production.

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Papachristou, Iliatha, Gary Hickey, and Steve Iliffe. "Dementia informal caregiver obtaining and engaging in food-related information and support services." Dementia 16, no. 1 (July 26, 2016): 108–18. http://dx.doi.org/10.1177/1471301215583148.

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As dementia progresses, caregivers increasingly have to manage the decline of food-related abilities with little outside information or input from support services The provision of food coping skills and knowledge can lessen the burden on caregivers. However, there is little research on caregivers’ perspectives on food-related services. This paper reports on a qualitative study to investigate informal caregivers’ experiences of, and views on, food-related information and support services in dementia. Twenty informal caregivers were interviewed and the transcripts from these interviews were analysed using both deductive and inductive thematic analysis. Four categories emerged. ‘Direct food-related Information’, covers written material, training, ‘Direct food-related informal support’: lunch clubs, ‘Indirect non-food related formal support services’ covers respite services and domestic help at home. Finally ‘no services required’ covers those who did not feel they needed any form of intervention due to confidence in managing food-related processes or having no change in dementia progression and food responsibility. Most caregivers will need different levels of information and support at different stages of dementia. It is necessary therefore to undertake ongoing individual assessment of food information and support needs.

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Noelker, Linda S. "Case Management for Caregivers." Care Management Journals 3, no. 4 (December 2002): 199–204. http://dx.doi.org/10.1891/cmaj.3.4.199.57449.

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This article originally was prepared as a resource guide to assist the nation’s Area Agencies on Aging as they begin developing or expanding services for the caregivers of older adults. A seminal question they face is how to provide case management service for this particular target population. The article reviews the literature on case management service generally, including its goals, functions, models, and outcomes. Its primary purpose, however, is to explicate the specific issues for providers to consider when planning and implementing case management service for caregivers. The article concludes with recommendations based on the results of evaluation research to maximize the benefits of caregiver services.

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Soderberg, Judy. "The Needs of Caregivers." International Journal of MS Care 5, no. 2 (June 1, 2003): 52–55. http://dx.doi.org/10.7224/1537-2073-5.2.52.

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The Fairview Multiple Sclerosis Achievement Center (MSAC) is a maintenance rehabilitation program for those significantly affected by multiple sclerosis (MS). The MSAC offers a program that marries maintenance, physical, and occupational therapies to therapeutic recreation, support groups, and social services for persons with severe MS. A strong emphasis is also placed on caregiver support, in recognition of the critical role these individuals play in the lives of persons with MS. In addressing the needs of the caregivers, the MSAC focuses on sharing information on MS, providing listening and respite services, and developing a more effective care system for persons with chronic diseases. (Int J MS Care. 2003; 5: 52–55)

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Chew, Chii-Chii, Amar-Singh HSS, Huan-Keat Chan, and Mohamed Azmi Hassali. "Medication Safety at Home: A Qualitative Study on Caregivers of Chronically Ill Children in Malaysia." Hospital Pharmacy 55, no. 6 (June 6, 2019): 405–11. http://dx.doi.org/10.1177/0018578719851719.

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Introduction: Medication errors are more likely to occur in chronically ill children, who are highly dependent on caregivers for medication administration. This study aimed to explore the issues related to medication safety among pediatric outpatients in Malaysia from the caregivers’ perspective. Methods: This was a qualitative study conducted between May and June 2018 at a pediatric clinic of a regional referral hospital. Caregivers of children who (1) were under 6 years of age and (2) had hypothyroidism, epilepsy, thalassemia, asthma, or other chronic diseases were recruited via purposive sampling. Each selected disease was represented by at least 3 caregivers, who were identified from the medical records of their children. Face-to-face interviews were conducted with each of them, facilitated by a semi-structured interview guide. All the interviews were audio-recorded, transcribed verbatim, and analyzed using the thematic analysis approach. Results: A total of 15 mothers with a median age of 34 years were interviewed. Three themes emerged from the interviews: (I) actual experiences with medication errors, (II) underlying risk factors for medication errors, and (III) recommendations to improve medication safety. Several cases of administration errors, including missed doses and self-decided dose adjustment, were detected. Furthermore, the caregivers were found to have inadequate understanding of the medications in general. Conclusions: While children were shown to be consistently exposed to medication errors at home in Malaysia, the recommendations of the caregivers, including the use of written instructions and a diary, could be effective strategies to improve the out-of-hospital medication safety in children.

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Journal articles on the topic 'Caregivers Services for Malaysia'

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