Academic literature on the topic 'Cancer patients ethnography'
Create a spot-on reference in APA, MLA, Chicago, Harvard, and other styles
Consult the lists of relevant articles, books, theses, conference reports, and other scholarly sources on the topic 'Cancer patients ethnography.'
Next to every source in the list of references, there is an 'Add to bibliography' button. Press on it, and we will generate automatically the bibliographic reference to the chosen work in the citation style you need: APA, MLA, Harvard, Chicago, Vancouver, etc.
You can also download the full text of the academic publication as pdf and read online its abstract whenever available in the metadata.
Journal articles on the topic "Cancer patients ethnography"
1
Wanat, Marta, Mary Boulton, and Eila Watson. "Patients' experience with cancer recurrence: a meta-ethnography." Psycho-Oncology 25, no. 3 (July 29, 2015): 242–52. http://dx.doi.org/10.1002/pon.3908.
Full text
2
Hamzah, Irna, A. Imran Nordin, Hamidah Alias, Nadhirah Rasid, and Hanif Baharin. "Game Design Requirements Through Ethnography Amongst Pediatric Cancer Patients." Advanced Science Letters 24, no. 3 (March 1, 2018): 1567–70. http://dx.doi.org/10.1166/asl.2018.11110.
Full text
3
Rasid, Nadhirah, Puteri N. E. Nohuddin, Zuraini Zainol, Irna Hamzah, Hamidah Alias, and A. Imran Nordin. "Experience Mining Through Ethnography Study Among Pediatric Cancer Patients in Malaysia." Advanced Science Letters 24, no. 3 (March 1, 2018): 1562–66. http://dx.doi.org/10.1166/asl.2018.11109.
Full text
4
Anderson, Alice, Angela Starkweather, Xiaomei Cong, Kim Kyounghae, Michelle Judge, and Dena Schulman-Green. "Exploring Cancer Pain Self-Management Needs and Preferences: A Meta-Ethnography." Qualitative Health Research 31, no. 9 (April 9, 2021): 1609–21. http://dx.doi.org/10.1177/1049732321998975.
Full textAbstract:
Self-management of chronic disease and related symptoms provides a framework for understanding the contextual factors that influence self-management knowledge and skills that patients and families require to manage their condition on a day-to-day basis. The management of cancer pain is a significant issue for patients and families, and their experience can provide insight on cancer pain self-management support needs and preferences. A meta-synthesis of 20 qualitative research articles on self-management of cancer pain was conducted to gain a deeper understanding of the self-management support needs of patients with cancer pain. Noblit and Hare’s meta-ethnographic model was used. The meta-synthesis resulted in increased understanding of the needs and preferences for self-management support of cancer pain and the role of the health care practitioner. Practical implications are presented.
5
Weiss, Meira. "Cancer and Imputed Infection: Images of ‘The Disease’ among Patients' Relatives." Sociological Review 43, no. 1 (February 1995): 1–35. http://dx.doi.org/10.1111/j.1467-954x.1995.tb02476.x.
Full textAbstract:
A description of the social construction of cancer is offered from the cancer patient's relatives' point of view, focusing on the linkage made between contamination and cancer. The ethnography brings together four detailed observations of cancer patients found in a transient stage of remission, who are perceived by their relatives as paradoxically being at one and the same time very good-looking and also very sick. A semiotic explanation to the phenomenon of imputed infection with regard to cancer patients of ‘doubtful appearance’ is discussed, arguing that such imputation can be seen as one of several mechanisms intended to force the disease ‘into the open’ and thus re-align the lost congruence between internal and external.
6
Hildebrandt, Christiane, Hanna Mayer, and Antje Koller. "Experiences of patients with colorectal cancer from diagnosis until completion of treatment: A meta‐ethnography approach." Psycho-Oncology 28, no. 2 (December 28, 2018): 219–27. http://dx.doi.org/10.1002/pon.4946.
Full text
7
Kim, Eun Young, and Se Jin Hong. "Decision-Making Experience of Older Patients with Cancer in Choosing Treatment: A Qualitative Meta-Synthesis Study." Journal of Korean Gerontological Nursing 23, no. 4 (November 30, 2021): 418–30. http://dx.doi.org/10.17079/jkgn.2021.23.4.418.
Full textAbstract:
Purpose: This study was conducted to analyze and synthesize the findings of qualitative studies related to the decision-making experience of older patients with cancer in choosing treatment.Methods: We used the seven steps of Noblit and Hare’s meta-ethnography to analyze and synthesize selected qualitative studies. Seven databases were used to search the literature that explored the decision-making experiences of older patients with cancer in choosing treatment: PubMed, CINAHL, Embase, Web of Science, Research Informations Sharing Service (RISS), Koreastudies Information Service System (KISS), and National Assembly Library.Results: The final 11 studies were included in the analysis. Three themes emerged as result of synthesizing: “Checking the feasibility of treatment in one’s own life”, “The constant weighing up the gains and losses of treatment”, and “Having meanings to life”.Conclusion: This study provides an in-depth understanding of treatment decision-making experiences of older patients with cancer and highlights the complex factors that influence their treatment decision-making process. This may contribute to the development of interventions that help older patients with cancer choose treatment during the decision-making process.
8
Fitchett, Russell C., Edward J. Aldus, Lucy R. Fitchett, and Jane Cross. "The lived experience of head and neck cancer patients receiving curative radiotherapy: A systematic review and meta-ethnography." Psycho-Oncology 27, no. 9 (June 29, 2018): 2077–86. http://dx.doi.org/10.1002/pon.4790.
Full text
9
Robinson, Anna, Umay Oksuz, Robert Slight, Sarah Slight, and Andrew Husband. "Digital and Mobile Technologies to Promote Physical Health Behavior Change and Provide Psychological Support for Patients Undergoing Elective Surgery: Meta-Ethnography and Systematic Review." JMIR mHealth and uHealth 8, no. 12 (December 1, 2020): e19237. http://dx.doi.org/10.2196/19237.
Full textAbstract:
Background Digital technology has influenced many aspects of modern living, including health care. In the context of elective surgeries, there is a strong association between preoperative physical and psychological preparedness, and improved postoperative outcomes. Health behavior changes made in the pre- and postoperative periods can be fundamental in determining the outcomes and success of elective surgeries. Understanding the potential unmet needs of patients undergoing elective surgery is central to motivating health behavior change. Integrating digital and mobile health technologies within the elective surgical pathway could be a strategy to remotely deliver this support to patients. Objective This meta-ethnographic systematic review explores digital interventions supporting patients undergoing elective surgery with health behavior changes, specifically physical activity, weight loss, dietary intake, and psychological support. Methods A literature search was conducted in October 2019 across 6 electronic databases (International Prospective Register of Systematic Reviews [PROSPERO]: CRD42020157813). Qualitative studies were included if they evaluated the use of digital technologies supporting behavior change in adult patients undergoing elective surgery during the pre- or postoperative period. Study quality was assessed using the Critical Appraisal Skills Programme tool. A meta-ethnographic approach was used to synthesize existing qualitative data, using the 7 phases of meta-ethnography by Noblit and Hare. Using this approach, along with reciprocal translation, enabled the development of 4 themes from the data. Results A total of 18 studies were included covering bariatric (n=2, 11%), cancer (n=13, 72%), and orthopedic (n=3, 17%) surgeries. The 4 overarching themes appear to be key in understanding and determining the effectiveness of digital and mobile interventions to support surgical patients. To successfully motivate health behavior change, technologies should provide motivation and support, enable patient engagement, facilitate peer networking, and meet individualized patient needs. Self-regulatory features such as goal setting heightened patient motivation. The personalization of difficulty levels in virtual reality–based rehabilitation was positively received. Internet-based cognitive behavioral therapy reduced depression and distress in patients undergoing cancer surgery. Peer networking provided emotional support beyond that of patient-provider relationships, improving quality of life and care satisfaction. Patients expressed the desire for digital interventions to be individually tailored according to their physical and psychological needs, before and after surgery. Conclusions These findings have the potential to influence the future design of patient-centered digital and mobile health technologies and demonstrate a multipurpose role for digital technologies in the elective surgical pathway by motivating health behavior change and offering psychological support. Through the synthesis of patient suggestions, we highlight areas for digital technology optimization and emphasize the importance of content tailored to suit individual patients and surgical procedures. There is a significant rationale for involving patients in the cocreation of digital health technologies to enhance engagement, better support behavior change, and improve surgical outcomes.
10
Prince, Rebecca M., Laura Parente, Anthony Soung Yee, Melanie Powis, Katherine Enright, Sonal Gandhi, Eva Grunfeld, Rashida Haq, Amna Husain, and Monika K. Krzyzanowska. "Defining user needs for an electronic tool to improve chemotherapy-related toxicity management." Journal of Clinical Oncology 34, no. 7_suppl (March 1, 2016): 157. http://dx.doi.org/10.1200/jco.2016.34.7_suppl.157.
Full textAbstract:
157 Background: Cancer drugs are associated with toxicities which can negatively impact patients’ (pts) quality of life, outcomes and increase acute care use (ACU). There is increasing interest in leveraging technology to solve clinical problems in healthcare. We hypothesized that an electronic tool (toxicity module) targeting management of chemotherapy toxicities could decrease ACU by facilitating more effective symptom management. Methods: Participatory design methodology consisting of end user needs assessment through ethnographic field study (shadowing and in-depth interviews) and focus groups was used to inform design of an interactive prototype toxicity module. Oncology pts and their caregivers, and health care providers (HCPs) including oncologists, oncology nurses and primary care providers were included in all stages of development. Contemporaneous notes were taken during ethnography while focus groups were also audio recorded. Thematic analysis through ideation sessions and time-of-day exercises allowed identification of overarching issues. Results: Eight pts and 8 HCPs participated in the ethnographic field study. Two focus groups, one with 7 pts, one with 4 HCPs were held. Most themes were common to both pts and HCPs; gaps and barriers in the current system, need for decision aids, improved HCP communication and options in care delivery, and access to credible information delivered in a timely, secure manner and integrated into existing systems. Additionally, pts further identified missed opportunities, care not meeting their needs, feeling overwhelmed and anxious and wanting to be more empowered; HCPs identified accountability as an issue. These themes informed development of a prototype for a web-based toxicity management tool, which has served the purpose of defining user needs for symptom tracking, self-management advice, and timely communication with an oncology provider. Iterative evaluation over 2 rounds of usability testing is currently underway. Conclusions: An electronic tool that integrates just-in-time self-management advice and oncology provider support into routine care may address some of the gaps identified in the current system for managing chemotherapy toxicity.
Dissertations / Theses on the topic "Cancer patients ethnography"
1
Mullan, D. A. "The influence of social processes upon hospice care : an ethnography." Thesis, Queen's University Belfast, 2001. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.368479.
Full text
2
Mitchell, Gary. "A critical ethnography of communication processes involving the management of oral chemotherapeutic agents by patients with a primary diagnosis of colorectal cancer." Thesis, Queen's University Belfast, 2017. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.728191.
Full textAbstract:
Communication about medications can be one-sided, leaving the patient to take a passive role in discussions about medications. In relation to oral chemotherapy, there is a paucity of research in this area, which is surprising given the extremely narrow therapeutic index of oral chemotherapy and subsequent high risk of toxicity. The aim of this ethnographic study was to illuminate the processes of communication between healthcare professionals, patients and informal carers during oral cancer drug therapy in order to identify factors that promote or inhibit concordance and appropriate medication administration. Observations were conducted on interactions between healthcare professionals and eight patients. These observations occurred over a period of six months, in outpatient departments where prescriptions were explained and supplied, and on follow-up consultations where treatment regimens were monitored and assessed. Semi-structured interviews were conducted with patients and their informal carers during and after their six-month treatment. Focus-groups were carried out with healthcare professionals at the conclusion of the study. These data were analysed using thematic analysis. The results of this study are divided into two sections. The first relates to the patient journey to their first consultation appointment, which includes two broad themes of the shock of the lifeworld and the waiting room experience. The second explores the patient’s six-month journey of receiving communication about oral chemotherapy and this includes the three broad themes of colonization of the lifeworld, mutual system lifeworld and detachment of the system. Communication processes within oncology are complex. This study found that the main communication priority for patients, their family members and healthcare professionals, was medical management of side-effects. Importantly, communication about oral chemotherapy is not an isolated event. It occurs over a long period, is preceded by important communication processes through the diagnosis period and succeeded by supportive communication in the period after treatment.
3
Champlin, Anne. "Doing time : an ethnographic study of waiting in the cancer treatment experience /." Access Digital Full Text version, 1995. http://pocketknowledge.tc.columbia.edu/home.php/bybib/11750832.
Full textAbstract:
Thesis (Ed.D.)--Teachers College, Columbia University, 1995.Includes appendices. Typescript; issued also on microfilm. Sponsor: Elizabeth Tucker. Dissertation Committee: Herve Varenne. Includes bibliographical references (leaves 126-132).
4
Merchant, Susan Patricia. "Exploring the interactions between radiation therapists and cancer patients : an ethnographic study." Thesis, Curtin University, 2011. http://hdl.handle.net/20.500.11937/1316.
Full textAbstract:
Radiation therapists are responsible for the planning and delivery of radiation therapy treatment for patients diagnosed with cancer as prescribed by radiation oncologists. Treatment courses with a curative intent usually involve daily interaction between radiation therapists and the patient for six to eight weeks. Evidence in the literature suggests that patients with a diagnosis of cancer can experience levels of anxiety and depression, and radiation therapy can also invoke fear and anxiety. Psychosocial support of the patient has been found to enhance the treatment experience and the efficacy of the treatment. Radiation therapists need to communicate with patients and may have a role to play in reducing patient anxiety and distress. The aims of this study were to gain an understanding of the underlying beliefs, values, practices and systems that form the current culture of radiation therapists and how it might be affecting the extent of supportive care that their patients receive.An ethnographic approach enabled the gathering of rich descriptive data through observations and interviews conducted in two radiation therapy centres between May-November 2009. Participants were radiation therapists, patients, nurses and administration staff. Four group interviews with radiation therapists were conducted between April-June 2010. Data was analysed by familiarisation with the raw data, charting themes using coding and identifying subthemes, and interpretation using mind mapping diagrams, consultation with supervisors and presentations to peers. Extensive reflective journaling was also used to assist data analysis.Radiation therapists’ interactions with patients are complicated by a combination of radiation therapists’ cultural aspects, radiation therapists’ perceptions of supportive patient care, and the environment where the interactions occur. This study disclosed new understandings and highlighted the complexities of four main cultural concepts. These concepts consist of: a disease focus, technology motivated, task and teamwork behaviour and a heightened awareness of time and space.Interactions between radiation therapists and patients were identified as (a) structured consisting of information provision and instruction giving, and (b) unstructured (i.e. informal talk). The findings of the study indicated the lack of appropriate space or available space within treatment areas restricted radiation therapists interacting in-depth or in meaningful interactions with patients. The amounts of time radiation therapists had available for interactions were limited because their role within the treatment area required greater amounts of time undertaking technical tasks. There was also pressure to keep to time with an emphasis on efficient throughput of patients. However, patients found interacting with radiation therapists helpful in reducing anxiety and normalising the process but required information to be individualised to cater for individual needs.This study provides an understanding of the cultural and environmental factors underpinning the radiation therapist/ patient relationship. The findings suggest the need for Australian radiation therapists’ to reassess their current approaches to supportive patient care. This study highlighted the need for radiation therapy education and training to be inclusive of communication skills and their use within different clinical spaces. The findings of the study suggest the need to develop a structured approach to supportive patient care by radiation therapists and to the future professional role development of radiation therapists in supportive patient care.
5
Mock, Brandon E. ""We are the Cancer Justice Network:" An Ethnographic Investigation of Community-Based Patient Navigation." University of Cincinnati / OhioLINK, 2020. http://rave.ohiolink.edu/etdc/view?acc_num=ucin1595247292699655.
Full text
6
Hamilton, David Winston. "Patient involvement in multidisciplinary team decision making in head and neck cancer : an ethnographic study." Thesis, University of Newcastle upon Tyne, 2014. http://hdl.handle.net/10443/2694.
Full textAbstract:
Head and neck cancer (HNC) confers a poor prognosis and patients face complex treatment decisions. As with every cancer in the UK, recommendations for treatment are made through a multidisciplinary team (MDT). This thesis critically analyses the working of the MDT: data are presented from an ethnographic study across three head and neck cancer treatment centres. Data collection comprised non-participant observation of 35 MDT meetings and 37 MDT clinic appointments and semi-structured interviews with 19 patients pre- and post-treatment and nine staff members of the MDT. Data generated were analysed using a Constructionist Grounded Theory approach, drawing on symbolic interactionism and dramaturgical analysis. This thesis provides an in depth account of the backstage behaviour of the MDT members. Although an assessment of which treatment is considered ‘best’ drives their discussion, there is often disagreement or uncertainty surrounding this assessment. On delivering the recommendation to the patient, this backstage work often remains hidden, contributing to problems when offering treatment choice. Even when a choice of treatment is acknowledged, the MDT faces barriers in delivering and supporting this in the MDT clinic. For the patient, the majority of the work of decision making takes place away from the MDT clinic, a process which is not always supported by the MDT The difficulties of actively involving patients in the MDT decision process have never been explored, but the complexities of offering treatment choice in the MDT need to be recognised to support patients in this setting. The guiding principles, purpose and limitations of the MDT meeting and the resultant treatment recommendation need to be iii clear. A process of collaborative MDT decision making should allow effective communication of treatment risk and uncertainty, structured elicitation of patient preferences and support for patients to make decisions in line with their preferences and values.
7
Anagnostou, Despina. "The last months of living : an ethnographic study of the trajectories of illness and care for patients with advanced cancer in Greece." Thesis, King's College London (University of London), 2013. https://kclpure.kcl.ac.uk/portal/en/theses/the-last-months-of-living-an-ethnographic-study-of-the-trajectories-of-illness-and-care-for-patients-with-advanced-cancer-in-greece(e8f7138e-f1d2-439d-bd43-84c9ae8dd30b).html.
Full textAbstract:
Context: There is little institutionalised palliative care in Greece; hence most patients with advanced cancer die in hospitals with unrecognised palliative care needs. There is little evidence on the care these patients receive. Patients’ perspectives and experiences of the illness and care, and their preferences on issues around death and dying have not been examined within the Greek context. Aim: To explore in-depth the care received by patients with advanced cancer in Greece, and how they and their families experience the illness and care throughout the last months of life. Methods: A prospective longitudinal, qualitative approach was adopted, employing an ethnographic methodological framework. Thirteen patients with advanced cancer were followed until death, from the point they came into contact with either one of two medical wards or a day clinic in an oncology hospital in Athens. The data were collected using participant observation, semi-structured interviews and discussions. The patients, 34 family members, and 32 health professionals involved in their care were interviewed (total 75 hours) and observed (total 830 hours). Data were analysed in both Greek and English, using thematic network analysis and case study analysis. Results: Six men and seven women (patients) took part in the study, age ranging 30-75 years. Primary diagnoses included breast, lung and colon cancer. They were followed for 40 days to six months prior to death. Twelve out of the 13 died in the hospital (one died at home); their last admission ranged 10-70 days. Care focused on cure and prolonging life until the late stages of the disease, allowing little opportunity for transitioning to a palliative phase. Decision-making was doctor and/or family focused. The patient’s voice was expressed through families. When patients chose to be actively involved, they did so through: a) planning care near the end of life, b) maintaining their role within the family, and c) assuring the space and time for their dying preparation. Dying trajectories were dependent on illness progression and doctors’ attitudes; decision-making of care; symptom control; preferences for care and priorities of life, which shifted over time for patients and families; and patients and families values and attitudes towards death and dying. Patients’ wishes for symptom relief increased as the illness progressed, whilst their focus shifted from the illness to the relationship with their loved ones, often resulting in changing preferences in support of their families’ wishes. Near death, patients actively negotiated space and time for preparing to die, and performed dying rituals. Families proved to have a central role in care provision. Members with a dominant role within the family most often adopted a decision-making role, whilst others retained the care-giving one. As the illness progressed, the focus of family’s decision-making changed from cure to care and the symptom burden increased. Also, in cases where the decision maker within the family changed during the illness trajectory, the decision-making shifted to the preferences of the new decision maker. All patients expressed a preference to die at home. Most families changed their preference from home to hospital death due to lack of health care support at home. Conclusions: The study showed the all importance of the interplay between decision making, illness progression, awareness of dying, family dynamics and their change over time in shaping patient trajectory at the last months of life. A framework of mindset orientation of goals and priorities is proposed whicch may provide a new prospect for approaching trajectories in palliative care. In Greece, the journey of advanced cancer patients over their last months of life is shaped by a combination of factors including doctors’ attitude towards cure rather than care; the lack of symptom control; the lack of availability of home care services; families’ resources to advocate for the patient and the role of the patient within the family. Preferences and choices over care changed over time for some patients and their families due to these factors. For palliative care to develop within Greece, the reasons behind these attitudes need to be further studied and challenged, and suitable training developed. Also, proper multi-professional teamwork, an integral component of palliative care, needs to be developed.
8
Péters, Alice. "Le traitement de la douleur thérapeutique en milieu hospitalier: interactions quotidiennes entre soignants, patients et proches." Doctoral thesis, Universite Libre de Bruxelles, 2016. http://hdl.handle.net/2013/ULB-DIPOT:oai:dipot.ulb.ac.be:2013/238295.
Full textAbstract:
« Il faut souffrir pour guérir ». Ce dicton se prête particulièrement bien au cancer. Les effets secondaires de ses traitements ont un impact majeur tant sur le plan physique que psychologique et social. Comment se gèrent au cœur de la relation soignant/patient, la douleur et la souffrance qui découlent des thérapies et de l’hospitalisation ?Comment le triangle soignants/patients/proches s’organise autour de la maladie ?Comment les soignants arrivent-ils à soigner lorsque tenter de guérir c’est faire mal ?Enfin, comment les patients essaient de tenir bon et de s’en sortir dans le quotidien ?Telles sont les questions posées par ma recherche basée sur un terrain dans deux services d’hématologie en Belgique et en Angleterre. Une attention particulière est portée aux différences entre ces deux terrains. Je tente également d’aborder, via cette expérience concrète, les présupposés et les représentations culturelles liées à la thanatologie et à la douleur au niveau médical en Europe.Doctorat en Sciences politiques et sociales
info:eu-repo/semantics/nonPublished
9
Rochmawati, Erna. "An Exploration of Palliative Care Services in Two Palliative Care Facilities in Indonesia: An Ethnographic Study." Thesis, 2016. http://hdl.handle.net/2440/119295.
Full textAbstract:
Background: Patients at end of life and their families have complex needs that require comprehensive care. Along with pain and physical symptoms, psychological, social and spiritual needs have been identified in the literature. Historically palliative care services have been developed for some time in well-resourced countries, the development of these services particularly in low resource countries has been more recent and as result may be less developed. In Indonesia, formal palliative care services have been established since the 1990s to provide care for patients and families mainly with cancer. As models of palliative care were first developed in well-resourced western countries there is a need to explore if the ongoing growth of palliative care in the developing countries, such as in Indonesia, is culturally appropriate. This study sought to explore the current provision of palliative care for cancer patients to describe, understand, provide insight and explore the implications for provision of culturally appropriate palliative care services. The central research question guiding this study was ‘What is the current practice of palliative care services in two facilities in Indonesia?’ Methodology and methods: Contemporary ethnography based on interpretive and post-positive paradigm was adopted to undertake this study incorporating multiple methods of data collection and analysis. Observations was conducted in the hospital-based palliative care; interviews and collection of relevant documents were undertaken in both facilities; a survey questionnaire explored the perceptions and satisfaction of patient’s relatives. Findings and discussions: Multiple methods of data collection with palliative care staff, palliative care patients and their relatives gave in-depth insight into the phenomena under investigation. The culture of palliative care provision was described as having many challenges relating to the patient’s complex needs while maintaining his/her dignity. Some of interventions offered or employed by the palliative care team may be viewed as being unnecessary or even aggressive care for patients at end of life. The patients were primarily being cared for in their own home. As a result the family played significant role in providing care for the patients. The cultural context also suggested that local community support was an additional important feature in the palliative care provision. Spirituality/religiosity was identified as central to daily life for the patients, the family and the palliative care staff in this study and became a significant element in the palliative care provision. This study showed that all the cultural actors (the palliative care team, the patients and the relatives) were affiliated to particular religions and performed their religious practices in their daily life. It was also observed that the patient’s relatives in this study commonly acknowledged and addressed the patient’s needs for spiritual care. The palliative care staff provided support for spiritual care of the patients (e.g. religious/spiritual discussion, conducting prayers together). In return the patients and relatives supported the health professionals to perform worship in their home. A particular cultural issue emerged in this study around discussions about end of life. Discussions between the palliative care team and the patient’s relatives were overt and frank. However, discussions about impending death between the palliative care team and the patients, where often oblique at best or even not discussed. Conclusion: This study has provided a more comprehensive understanding of the cultural aspects of palliative care provision in two facilities in Indonesia. Challenges identified in the care provision included late referral, interventions employed by the palliative care team that might be perceived as unnecessary care and the complexity of care. Supporting factors included family and community involvement and spirituality has a significant role in the provision of palliative care.Thesis (Ph.D.) -- University of Adelaide, Adelaide Nursing School, 2016
10
Papaikonomou, Maria. "Exploring stories of coping with childhood cancer in a support group for parents." Thesis, 2001.
Find full textAbstract:
This study examines through autoethnographic inquiry my research journey in the world of childhood cancer. The unfolding research experience eventually led to the focus of this investigation which is exploring stories of coping with childhood cancer in a support group for parents. Using the principles of ethnographic epistemology this study
explores the stories of eight parents whose children were diagnosed with cancer and who decided to join the support group for parents called, TOUCH. An overview of the existing body of knowledge on childhood cancer and the family is presented as well as the value of a social support group in parenting a child with cancer. The need of a conceptual shift in order to understand the problem of parenting a child with cancer is propagated. The stories of eight parents within the setting of a social support group are presented. Through the principles of the qualitative method of ethnography the story of the child's cancer is described by means of emerging themes. The coping mechanisms used to cope in this world of uncertainty and ambiguity, follows. Finally the contribution of the support group is discussed in terms of my relationship with the group member, the group members' communication pattern and what was perceived to be helpful to the group member. The eight stories discussed all follow the same pattern. Four hypotheses emerged from the eight stories described and are presented in the final chapter. The strengths and limitations of the study are discussed as well as recommendations for future research.Psychology
D. Lit. et Phil. (Psychology)
Books on the topic "Cancer patients ethnography"
1
Standing Ovation: Performing Social Science Research About Cancer (Ethnographic Alternatives, 11). AltaMira Press, 2002.
Find full textBook chapters on the topic "Cancer patients ethnography"
1
Lindén, Lisa. "Initiators, Controllers, and Influencers." In Healthcare Activism, 140–64. Oxford University Press, 2021. http://dx.doi.org/10.1093/oso/9780198865223.003.0006.
Full textAbstract:
This chapter looks at how patient advocates have intervened in cervical cancer policies to promote and enact the HPV test as the new “right tool for the job” in cervical cancer screening. By drawing upon an ethnography of a Swedish patients’ group, it provides a case study of patient advocates as key actors in the current fabrics and monitoring of healthcare policies. Focused on the interplay between “uninvited participation” and “evidence-based activism,” the chapter discusses how patient advocacy roles—“initiators,” “controllers,” and “influencers”—are enacted and sparked through policy-related patient activism. The author pays particular attention to how patient advocates translate “credentialized knowledge,” such as clinical guidelines, journal articles, and statistics, into evidence in support of policy change. The chapter develops the notion of “evidential objects,” used for analyzing the role of such material and textual objects in patient advocates’ mobilization of evidence.
2
Livingston, Julie. "The Next Epidemic." In When People Come First. Princeton University Press, 2013. http://dx.doi.org/10.23943/princeton/9780691157382.003.0010.
Full textAbstract:
This chapter looks closely at some of the more fine-grained processes of clinical care in order to suggest how cancer, as an emergent issue in African public health, forces longstanding questions of palliation to the foreground and highlights the intensely social nature of pain. It explores the conditions that facilitate the marginalization of pain and palliation in African clinical practice and in global health more widely, and examines the contemporary clinical dynamics that engender this marginalization in the specific context of oncology, where many patients suffer severe and intractable pain, as a result either of their illness or the effects of biomedical therapies. In other words, the chapter explores how and why biomedicine proceeds in Africa with so little palliation and so much compliance. The context for this ethnography is Botswana's lone cancer ward, where the author has been researching conditions of care since 2006.