Dissertations / Theses on the topic 'Cancer caregiving'
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1
Nijboer, Christine. "Caregiving to patients with colorectal cancer a longitudinal study on caregiving by partners /." [S.l. : Amsterdam : s.n.] ; Universiteit van Amsterdam [Host], 2000. http://dare.uva.nl/document/81019.
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Mazanec, Polly M. "Distance Caregiving of a Parent with Advanced Cancer." Case Western Reserve University School of Graduate Studies / OhioLINK, 2009. http://rave.ohiolink.edu/etdc/view?acc_num=case1247250761.
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Steinwedel, Cynthia M. "The impact of cancer caregiving on cancer caregivers| Stories of lives in transition." Thesis, The University of Wisconsin - Milwaukee, 2014. http://pqdtopen.proquest.com/#viewpdf?dispub=3602366.
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The purpose of the study was to examine the impact of cancer caregiving on primary caregivers, exploring their personal narratives looking back on the entire experience from diagnosis, through treatment, and beyond. Caregiving is associated with exacerbation of stress-related disorders such as hypertension and heart disease and may also be associated with increased mortality rates. Transitions theory served as the conceptual framework for the study. Eleven adult caregivers, pre-retirement age, each participated in two semi-structured interviews. Caregivers were recruited from a community cancer resource center and were purposively selected to achieve maximum variation in terms of outcome of cancer treatment. The sample included 8 females and 3 males; there were 3 husbands, 6 wives, and 2 daughters. Caregivers provided care for patients with a variety of cancer types and a variety of treatment outcomes, from cancer free with sequelae to deceased. Each caregiver interview recording was transcribed, and preliminary examination of each transcript helped guide subsequent interviews. NVivo9 software was used to assist with data management. Data saturation was achieved. Narrative within-case analyses as well as thematic analysis were used to address research questions. Thematic analysis resulted in seven themes: Burden: The Load that Never Ends; Disconnectedness and Isolation: The Invisible Person; Helplessness and Loss of Control: Tied to This Ride; Dealing with the Healthcare System; Role Disruption: Spinning the Plates; Loss, Change, and Grief: Reaction to the Whole; and Carrying Forward with Scars: New Priorities and Permanent Change. All of the caregivers changed their employment or social responsibilities due to the demands of caregiving. Themes were present in different parts of the cancer trajectory and in differing intensities in all interviews. Findings included disconnectedness and isolation as a central feature of cancer caregiving, plus significant grief present through the cancer trajectory, especially in the post-treatment phase. Furthermore, the experience of cancer caregiving remained one of significant impact years after treatment had ended. Successful transitioning requires connectedness and mastery, but participants in this study identified that their caregiving trajectories were full of isolation, grief, burden, and helplessness. Many suggested the need for support, even though they tended to deny their own physical and emotional needs while caregiving. Healthcare professionals can help by providing information, support, listening, and grief counselling. Research is needed on interventions that may reduce isolation, helplessness, and burden for caregivers.
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Stamataki, Zoe. "The Cancer Caregiving Experience : Testing a Model and Exploring Perceptions." Thesis, University of Kent, 2010. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.523641.
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Al, Awar Zeina. "Using HIT to Support Informal Caregivers of Cancer Patients at Home: a Needs Assessment." Thesis, Université d'Ottawa / University of Ottawa, 2016. http://hdl.handle.net/10393/34112.
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Introduction: This research investigated the requirements of an HIT solution that is usable and useful to informal caregivers of cancer patients on home palliative care.
Methodology: A needs assessment method was used with an exploratory and a confirmatory stage. Eight semi-structured interviews and two focus groups were used for data collection. Qualitative content analysis was used to analyse caregiver experiences with both inductive and deductive coding.
Results/Discussion: Expressed and unexpressed caregiver needs were extracted into four categories, Implementation, Presentation, Information, and Practical Caregiving, and used to create the application requirements. Five user personas were created based on caregiving intensity and the functional level of the patients, a method of tailoring the application content to the different personas was created, and a low-fidelity prototype of the application was designed.
Conclusion: The findings of this research can improve the preparedness and coping of informal caregivers of cancer patients on home palliative care.
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Bernard, Lori Lynn. "Husband's and Daughter's Role Strain During Breast Cancer Hospice Patient Caregiving and Bereavement Adjustment." Thesis, University of North Texas, 2000. https://digital.library.unt.edu/ark:/67531/metadc2542/.
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Current literature regarding caregiver bereavement adjustment has advanced two competing models explaining adjustment in relation to caregiver interrole conflict: the Relief Model and Complicated Grief Model. This research has primarily focused on the experience of those providing care to dementia patients. This study tests these competing models of bereavement adjustment for husband and daughter caregivers of breast cancer hospice patients. For husbands, greater psychological strain and health strain were predictive of greater difficulty with bereavement adjustment, supporting the Complicated Grief Model of bereavement adjustment. For daughters, strain was not a significant predictor of bereavement adjustment, and thus did not support either bereavement adjustment model. While daughter caregivers experienced more role strain than husband caregivers during patient care, the degree of role strain was predictive of bereavement adjustment for husbands but not for daughters, suggesting that relationship type (husbands versus daughters) between caregiver and patient impacts which factors influence bereavement adjustment.
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Edmonds, Maura Fulham. "Managing Change| The Process of Caregiving for Informal Caregivers of Head and Neck Cancer Patients." Thesis, University of Maryland, Baltimore, 2013. http://pqdtopen.proquest.com/#viewpdf?dispub=3563316.
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Purpose: The goal of this study was to gain a better understanding of the process undertaken by the informal caregivers of head and neck cancer (HNC), with an eye toward theory development. Although the development of a theory was beyond the scope of this project, it was meant to be a first step toward understanding the important categories and concepts that are part of this process.
Methods: This study used grounded theory methods and was conducted at a large urban National Cancer Institute (NCI)-designated cancer center in the Mid-Atlantic region of the US. Constant comparative analysis and theoretical sampling were used to gather and analyze data from six caregivers of HNC patients. Audio-recorded and transcribed, de-identified raw data were analyzed using Atlas ti Software™.
Results: The caregiving process was described in terms that yielded a core category and two other categories. Subcategories were identified as well as dimensions of some of the subcategories. The core category was entitled Managing Change and the two other categories were entitled Types of Change and Strategies for Managing Change. Types of Change encompassed the subcategories of Changes in Life Patterns, Witnessing Physical Changes, Relationship Changes, and Increased Uncertainty. Strategies for Managing Change included the subcategories of Controlling Life Pattern Changes, Utilizing the Quality of the Relationship, and Managing Stress. Key findings included the identification of many different types of change, variation in types and amounts of change over time, utilization of quality of the relationship between patient and caregiver as an important strategy for caregivers, and caregivers’ use of a variety of strategies to manage change.
Conclusions: This study has attempted to broaden the understanding of the role of a caregiver of a patient with HNC using grounded theory methods. This work is the first step in developing a theory of caregiving related to this population which may also be applied to a broader population of caregivers.
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Mori, Hiroko. "Characteristics of caregiver perceptions of end-of-life caregiving experiences in cancer survivorship: in-depth interview study." 京都大学 (Kyoto University), 2012. http://hdl.handle.net/2433/157856.
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Lamanna, Jennifer. "A brief problem-solving intervention for caregivers of children with cancer." VCU Scholars Compass, 2012. http://scholarscompass.vcu.edu/etd/2709.
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OBJECTIVE: Pediatric cancer treatment is stressful for caregivers. Research has indicated that problem-solving coping reduces stress related to caregiving. The current study examines the effects of a problem-solving intervention (Parent Empowerment Program), based on Problem-Solving Therapy, for caregivers of children on active cancer treatment. It was hypothesized that participants who received the intervention would show decreases in caregiving stress and posttraumatic stress symptoms, and increases in problem-solving ability between baseline and post-test assessments compared to those who received an attention control. METHOD: Thirty-nine caregivers (all parents; 48% participation rate) participated. The majority were mothers (90%), married or partnered (59%) and Caucasian (56%). Participants were randomly assigned to condition (intervention vs. attention control) after completing baseline questionnaires. Participants who received the intervention received one session of problem solving intervention and a follow-up session. Those in the attention control condition received two general support sessions. Participants were assessed at baseline, one month after the second session, and three months after the second session. RESULTS: There were no effects of the intervention on any of the outcome variables when data for all participants was examined. However, there was a significant effect of the intervention on problem-solving ability among participants of children between 4-16 weeks post-diagnosis. CONCLUSIONS: There were many factors that contributed to the lack of effect, including small sample size, variations in time since diagnosis, low participation rates, and limited number of sessions. Future studies should target parents who are under the highest levels of stress and increase the intensity of sessions. However, the finding that the intervention has an effect on problem-solving ability early in the treatment trajectory replicates previous research and has potential clinical utility.
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Thomas, Sarah Nichole. "Decisions to Seek and Share: A Mixed Methods Approach to Understanding Caregivers Surrogate Information Acquisition Behaviors." The Ohio State University, 2020. http://rave.ohiolink.edu/etdc/view?acc_num=osu1595545894518707.
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Daly, Shauna. "Family Caregiver Experiences: A Case Study of Caregiving for an Advanced Cancer Patient Enrolled in a Palliative Rehabilitation Program." Thesis, Université d'Ottawa / University of Ottawa, 2016. http://hdl.handle.net/10393/34923.
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This study employed a case study research design to explore how family caregivers
experience caring for an advanced cancer patient enrolled in a palliative rehabilitation program. Demographic, case note, pre-post quality of life scores, and interview data sets were collected from four family caregivers throughout patient enrollment in the 8-week Ottawa Palliative Rehabilitation Program. Thematic analysis of the interview data revealed caregivers’ perceived caregiving as: 1) Being a Witness of the Patient’s Struggles, 2) A Duty Paired with a Desire to Support Patients - Regardless of the Challenges, and 3) A Role Which Requires Tailored Knowledge, Support, and Resources to Aid in Improving Patient Functioning and in Managing Caregiving Tasks. Involving family caregivers in palliative rehabilitation programs provides them an opportunity to engage with the patient and health care professionals in order to develop a shared understanding of the illness implications, learn tailored caregiving approaches, and gain social support.
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Petricone-Westwood, Danielle. "Caregiving for Patients Diagnosed with Ovarian Cancer: An Examination of Distress and Relationships with Healthcare Providers Using Attachment Theory." Thesis, Université d'Ottawa / University of Ottawa, 2020. http://hdl.handle.net/10393/41449.
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This thesis focuses on describing and investigating the experiences of caregivers of individuals with ovarian cancer. Caregivers are an essential part of cancer care, and yet they are not formally recognized as such. The special focus on these caregivers stems from the recognition that ovarian cancer is unique from more commonly studied diseases, with a poor prognosis and frequent recurrences. This thesis sought to study this understudied population. The thesis begins with a scoping review of existing literature that specifically investigated this population. From this study, it was confirmed that few studies had focused on this population, however the mapped literature suggested that these caregivers experienced significant compromises to their quality of life. Some preliminary studies identified a theme that the caregiving experience was influenced by the relationships with healthcare providers.
This theme informed the second study of the thesis, that was a cross-sectional, correlational study that sought to recruit partner-caregivers of patients with ovarian cancer, a sample mostly of male-caregivers. This study sought to explore multiple facets of the caregiving experience as part of cancer care using the Cancer Caregiving Tasks, Consequences and Needs Questionnaire, measuring caregiver distress using the Hospital Anxiety and Depression Scale, and collecting sociodemographic and proxy-reports of the patient’s medical information. A total of 82 partner-caregivers were recruited for the study, and our sample were mostly men, White, affluent and highly educated. Most of their partners were diagnosed with stage III or IV disease, and were treated with both surgery and chemotherapy. This study’s analysis found that caregiving workload, lacking information from healthcare providers, problems with the quality of information and communication with healthcare providers, lacking time for social relations due to caregiving, and needing more help from healthcare providers correlated with distress outcomes.
The third investigation sought to further explore these relationships by measuring attachment insecurity, as assessed by a short, modified version of Experiences in Close Relationships Scale. Using the same sample data, hierarchical regression analyses were used to test whether general attachment avoidance or attachment anxiety moderated the relationship between the caregiving experiences and distress outcomes. These analyses revealed that attachment anxiety contributed to a portion of the variance in distress, however the experiences with the healthcare team explained a large portion of the variance of distress. Attachment anxiety was found to play a minor role moderating the relationship between needing more help from healthcare providers and anxiety, and attachment avoidance contributed a very small, moderating role between lack of time for social relations and distress. Together, these studies have demonstrated that caregivers of patients with ovarian cancer are understudied, however they experience significant levels of depression and anxiety. Their distress is highly affected by their reported experiences as part of the cancer care team, regardless of their predisposition to distress through attachment insecurity.
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Alblowi, Fahd Salem. "Understanding the impact of caregiving upon husbands of women with breast cancer in Saudi Arabia: a mixed-methods approach." Thesis, Ulster University, 2014. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.674962.
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Background: A diagnosis of breast cancer and its subsequent treatment has a profound bio-psychosocial impact. There is a gap in the literature examining the impact on husbands of women with breast cancer, specifically in the Middle East. Aim: To achieve an understanding of the impact of having a wife with breast cancer undergoing chemotherapy on men's quality of life. Methods: A mixed-methods, repeated-measure design was used to collect data from Saudi husbands of women diagnosed with breast cancer at the beginning and at the end of chemotherapy. Instruments used were the Caregiving Appraisal Scale, Brief Cope Scale, and the WHOQOL-BREF Scale. A transitional stress and coping model helped to further explore the husbands perceived impact of their wives' cancer and chemotherapy upon their quality of life and how they appraised and coped with this impact. Results: The husbands of women with breast cancer perceived poor quality of life at the beginning and at the end of chemotherapy. Although the husbands appraised substantial negative aspects of their caregiving across both time points, they also appraised positive aspects. Husbands were struggling to cope with their wives' situations and tended to use more problem-focused coping strategies rather than emotion-focused and dysfunctional coping strategies. They used specific techniques such as social support and religion to cope with their wives' diagnosis and chemotherapy. Qualitative findings highlighted the complex role of culture in the caregiving appraisal and coping of husbands of women with breast cancer in Saudi Arabia. Conclusion: The findings provide new knowledge about the challenges, difficulties, and unmet needs of men in this situation within the cultural context of Saudi society. Nurses need to develop interventions to enhance the positive appraisal and emotion-focused coping strategies among the husbands to decrease the impact of their wife's illness upon their quality of life. Understanding and enhancing husbands' ability to cope may improve their quality of life. In addition, including the wives in future research would explore how the couple cope together and achieve optimal quality of life.
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Cheung, Margaret Mun-Yee. "Mending the broken heart: Using an ethnodrama to give voice to Hong Kong Chinese cancer caregivers." Thesis, Queensland University of Technology, 2016.
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Employing a constructivist approach, this Doctor of Creative Industries (DCI) research project describes the Hong Kong Chinese cancer caregiving experience using ethnography and applied theatre for data collection; and an original theatre production for data dissemination. Mending the Broken Heart, an ethnodrama, was staged to give voice to Hong Kong Chinese cancer caregivers, a community that is largely "isolated" and "invisible" (Mackenzie and Holroyd 1996, 10). It aims to enable research participants to translate their own experiences through storytelling and participation in drama; and support them by offering validation, ways of expression, and a platform for dialogue on a difficult topic of discussion.
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Cagle, John Garland. "Informal Caregivers of Advanced Cancer Patients: The Impact of Geographic Proximity on Social Support and Bereavement Adjustment." VCU Scholars Compass, 2008. http://scholarscompass.vcu.edu/etd/1314.
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This research explored the social and psychological needs of caregivers of advanced cancer patients, and their subsequent bereavement adjustment. The study focuses exclusively on informal caregivers who provide assistance to patients receiving hospice care for end-stage cancer. Those individuals living furthest from the dying care recipient, the long distance caregivers, were of particular interest. This study used a prospective design to explore how a caregiver's geographic proximity impacted their social support and bereavement adjustment. A 2 x 3 repeated measures design was used to gather data from caregivers before a patient's death (using a pre-death questionnaire) as well as after the death (by post-death questionnaire). This design allowed for an examination of differences between three groups of caregivers over time: long distance caregivers (who live an hour or more from the care recipient), proximate caregivers (who live less than an hour away) and co-residing caregivers. One hundred and six (N = 106) caregivers were recruited to participate from Covenant Hospice, a large Gulf Coast-based palliative care organization. Validated instruments were used to measure levels of social support and bereavement adjustment. A repeated measures MANCOVA procedure explored the impact of geographic proximity on measures of social support and adjustment. Results did not support the proposed multivariate model. However, quality of dying (as measured by the QOD-Hospice) was identified as an influential between-groups covariate within the model. Further exploration of the QOD-Hospice revealed a negative correlation with levels of emotional grief, and positive correlations with length of stay in hospice, and pre-loss and post-loss levels of social support. Overall results seem to suggest that timely referrals to hospice, improvements in care for the dying, and increased attention to quality of dying, may have a beneficial impact for survivors during bereavement. Furthermore, findings from this study suggest that the quality of a person's final days may play an important role in how the surviving caregivers adjust to the loss. Not only can high quality end-of-life care benefit dying patients, but it may also facilitate bereavement adjustment for those who participated in their care network. However, findings were limited and further investigation of these relationships is warranted.
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Lewis, Adam Michael. "A terror management theory based intervention for anxiety in spouses of cancer patients: a multiple-baseline study." Diss., University of Iowa, 2016. https://ir.uiowa.edu/etd/2235.
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As the U.S. population ages the number of family caregivers is expected to rise. Family caregivers are a valuable source of informal healthcare services for patients and the public, in terms of reducing healthcare costs. However, research suggests family caregiving is not only financially costly for individuals, but associated with a number of medical and mental health risks, with spouses at higher risk for negative outcomes compared to other family members. Traditional evidence-based therapies for stress in family caregivers have been shown to be minimally efficacious with spouses. No therapies take into account the existential nature of spouse caregiver stress, including the potential nonconscious role of loss of life meaning/purpose and death anxiety. This study of multiple baseline design preliminarily explored the effects of a novel 8-week Terror Management Theory integrated existential psychotherapy (TIE) on stress and nonconscious mechanisms believed to function as buffers for existential anxiety, in five women with spouses receiving cancer treatment. Methods included ecological momentary assessment (EMA) of anxiety and self-esteem states via text message sent three times daily – and intermittent assessment of death anxiety, self-compassion, meaning in life, and quality of life at baseline, intervention, immediate post, and 1-month follow-up. Visual and statistical analyses indicated significant between-phase trend changes in anxiety and self-esteem within participants, although direction of changes varied across participants. Additionally, changes in death anxiety, self-compassion, meaning in life, and quality of life between phases varied across participants in directions inconsistent with intervention aims and participants’ subjective impressions of intervention-related changes. Mixed findings point to the complexity of spouse caregiver psychology and highlight the need for more effective therapies with this population. Results may also guide future research and development of existentially-informed therapies.
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Mat, Saat Suzanie. "Information needs of children of a parent with cancer." Thesis, Loughborough University, 2016. https://dspace.lboro.ac.uk/2134/21546.
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This PhD thesis explored the experiences of dependent children and children care-givers facing challenges with their parent s cancer. The aim was to understand children s information experience including their perception of cancer and information culture; information needs, information seeking behaviour, barriers and enablers. The research used a six-stage process. This was informed by an extensive literature review and discussions with cancer specialists, psychologists and researchers from United Kingdom, United States, Australia and Malaysia. This study used a three-cycle, eight-step process of Participative Action Research (PAR) with participation from ten Malay breast cancer patients and their dependent children. Three bilingual (English and Bahasa Malaysia) instruments were developed; 1) An Inquiry to Participate Form to select participants who had dependent children, 2) Three opened-ended questions to obtain children s cancer experience and information needs where drawing was used to encourage children s responses and, 3) A 15-question questionnaire to understand children s experience and information preference. Cancer affected parenting abilities and challenging experiences identified the lack of culturally relevant information and the shift in caregiving responsibilities to dependent children. Children s understanding of cancer was influenced by their experiences and observations, many of which resulted in misconceptions about cancer, its causes, treatment and preventative measures. Children participant s reaction to a health situation triggered their information behaviour. The burden of caregiving and the consequences of a lack of information were greater than anticipated; children had many dimensions of concern and experienced many challenges. This advocated for a more assessable, attractive and sensitive information system. Data synthesis contributed to the development of a Children s Reactive Information Seeking Behaviour An Integrated Model that seeks to explain the relationship between children participants reaction to a health situation and the subsequent processes they undergo to resolve their state of information need.
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Esterhuizen, Estelle Leonie. "Making meaning in anticipatory mourning : reflections by caregiving spouses of cancer patients." Diss., 2009. http://hdl.handle.net/10500/3384.
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This insider research journey explores the meaning-making processes of female spousal caregivers in anticipatory mourning and the knowledges which they have gained in retrospect. The research traces the social constructions of meaning and how they influence the process of meaning-making. A phenomenological study was undertaken in which unstructured interviews were conducted with five bereaved participants, highlighting the unique way in which each woman made meaning of loss in anticipatory mourning. The main phenomenological themes to emerge from their meaning-making were: a) the significance of time; b) challenges and gifts; c) witnessing the decline; d) paradoxes; e) the significance of the spousal relationship; and f) spirituality. The therapeutic effect of telling the life story is explored in this study and the need for contextual pastoral care that is specific to the state of anticipatory mourning is highlighted. Finally, possibilities for co-constructive pastoral care are raised in the light of the research findings.Practical Theology
M. Th. ( Practical Theology, with Specialisation in Pastoral Therapy)
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Shen, Yu-Chen, and 沈妤貞. "Caregiving Burden and Associated Factors among Caregivers of Postsurgery Colorectal Cancer Patients." Thesis, 2015. http://ndltd.ncl.edu.tw/handle/31020467365081773981.
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碩士長庚科技大學
護理研究所在職專班
103
Cancer not only impact on patient’s life, but also effect on primary family caregivers. Nowadays, the treatment of cancer almost shift to out patient department, that means the family taking care of the patients majority. The tasks about caring may have positive and negative influence or experience for family caregivers. When caregivers face difficult situation, they may feel painfully sad that their lover meet cancer, and caregivers may not only have physical symptoms but also effect caregiver’s quality of life. This cross-sectional study was designed to understand the family caregivers care burden and associated factors among caregivers of postsurgery coloreatal cancer patients. 108 dyads of patients and families participated in this study. The results revealed that the caregivers included 51.9 % women , with a mean age of 56.2 years ( SD=13.33 ). The severity of care burden on the primary caregiver was in the order: impact on finances, impact on schedule, impact on health, lack of family support and caregiver’s self esteem. The caregivers’ education level had significant difference on caregivers’ esteem(P＜.05 ) . The caregivers’ family income had significant difference impact on lack of family support (P＜.05 ) . The caregivers had chronic disease or not had significant difference on caregivers’ age(P＜.05 ) . The caregivers’ employment status had significant difference on caregivers’ age(P＜.05 ) . There were significant positive correlations between caregiver’s social support and caregiver’s self esteem. There were significant negative correlations between social support and caregiver burden. The stepwise regression showed that the level of caregiver’s social support and caregiver’s education status could significantly predict the caregiver’s self esteem ( R^2=12.2﹪). The main predictors of lack of family support were caregiver’s social support and caregiver’s education status( R^2=16.8﹪), the main predictors of economics situation were family income, caregiver’s social support, patient’s education level and caregiver’s sex( R^2=41.6﹪). The main predictors of time arrangement burden were caregiver’s age and family income( R^2=12.6﹪). The main predictors of caregiver’s health impact were social support, caregiver’s sex and caregiver’s age( R^2=20.3﹪). The results suggest that the family caregivers whom care colorectal cancer surgery patients should be concerned and be supported to release their burden.
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LI, CHIH-YI, and 李芷宜. "The Caregiving Burden and Related Factors Among Primary Caregivers of Cancer Patients." Thesis, 2019. http://ndltd.ncl.edu.tw/handle/rj869m.
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碩士長榮大學
護理學系碩士班
107
Background: The primary caregiver of cancer patients has to face the heavy patient care work and the adaptation of multiple roles, which is likely to cause a care load. The issue affecting the load of caring for the caregiver is very complex and diverse, and this issue is therefore taken seriously. Objective: To explore the caregiving burden and related factors among primary caregivers of cancer patients. Methods: This was a cross-sectional correlation study. Cancer patients and their primary caregivers at a medical center in southern Taiwan were recruited in the study. From January to May 2018, we used a structured questionnaire to collect information about caregiving burden of primary caregivers, and accessed medical records to obtain the basic characteristics and disease data of cancer patients. Descriptive statistics, t-test, and ANOVA were used to analyze the basic data and caregiving burden. The related factors among primary caregivers of cancer patients were explored with linear regression analysis. Results: A total of 137 pairs of subjects were recruited in the study. Most of patients were male (61.3%) with 20-64 years old (63.5%), and suffered from head and neck, and digestive tract cancer (57.7%). The stage of cancer was three to four (86.1%). The diagnosis time was more than 2 months (70.8%), and ECOG was below level 2 (86.1%). Most of caregivers were women(70.1%) with 45-64 years old(51.1%), and had a job(55.5%). Most of them took care of patients within 17-24 hours per day(40.1%), and there was rotation manpower(63.5%). The overall caregiving burden among primary caregivers of cancer patients was low to medium. The related factors of caregiving burden were sleep quality (β = .304, p <.001), high psychological burden (β= .354, p <.001), moderate psychological burden (β = .313, p <.001), rotation manpower (β= -.143, p= .029), and patients’ ECOG (β = .175, p= .008). Conclusion: This study showed the overall caregiving burden was low to medium, but there was diversity in different domains. In future, medical staff should provide related resources of care or referral medical assistance for the high-risk groups to reduce their caregiving burden.
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Wang, Li-Chieh, and 王俐絜. "Caregiving Burden and Associated Factors among Caregivers of Terminally Ill Gastrointestinal Cancer Patients." Thesis, 2010. http://ndltd.ncl.edu.tw/handle/30525911285815988472.
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碩士高雄醫學大學
護理學研究所
98
The study aimed to investigate the factors associated with caregiving burden among main caregivers of terminally ill patients with gastrointestinal cancer. The purposes of this study were (1) to explore the relationship of demographic and disease characteristics of both patients and caregivers to caregiving burden; (2) to explore the relationship of social support, fear of death, self-care efficacy, self-perceived symptom distress to caregiving burden; (3) to explore the important explanatory factors for caregiving burden. The study adopted a cross-sectional, descriptive and correlational research design with a convenience sampling and structured questionnaires. We recruited 178 family caregivers of terminally ill patients with gastrointestinal cancer (oral, esophageal, stomach, colorectal, liver, or pancreatic cancer) from four medical care institutions in Tainan and Chiayi areas. Structured questionnaires including demographic characteristics, Barthel Index, social support scale, fear of death scale, self-care efficacy scale, self-perceived symptom distress scale, and caregiving burden scale were used to collect data. Internal consistency, test-retest reliability, content validity, and surface validity were used to examine the reliability and validity of all scales. Data were analyzed using percentage, mean, standard deviation, independent samples t-test, One-way ANOVA, Pearson product-moment correlation, and stepwise regression analysis. Results showed that (1) the standardized score in total caregiving burden was 50.72, indicating a medium level of burden; (2) location of study subject recruitment, age, disease diagnosis, and physical activity function of patients existed significant differences with total caregiving burden; (3) the relationship with patient, self-perceived health status, and religion of caregivers showed significant differences with total caregiving burden; (4) the standardized score in social support of caregivers was 52.63, indicating a medium level of burden; the less social support the caregivers had, the more total caregiving burden they had (r = -.610, p < .01); (5) the standardized score in self-care efficacy of caregivers was 74.40, indicating a medium high level of burden; the better self-care efficacy the caregivers had, the less total caregiving burden they had (r = -.436, p < .01); (6) the standardized score in self-perceived symptom distress of caregivers was 37.40, indicating a medium low level of burden; the more severe symptom distress in patient the caregivers perceived, the more total caregiving burden they had (r = .555, p < .01); (7) the standardized score in fear of death of caregivers was 64.39, indicating a medium high level of burden ; the more fear of death the caregivers had, the more total caregiving burden they had (r = .460, p < .01); (8) social support, self-perceived symptom distress in patient, self-perceived health status, location of study subject recruitment, fear of death, and relationship with patient were the most important explanatory factors for total caregiving burden, which explained 63.8% of the variation.
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"Laboratory-derived, Coded Communicative Behaviors among Individuals with Cancer and their Caregiving Partners." Master's thesis, 2020. http://hdl.handle.net/2286/R.I.57394.
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abstract: Effective communication plays a major role in the psychological adjustment and quality of the relationship of couples coping with cancer, yet only a few communicative behaviors have been examined in the context of a cancer diagnosis and treatment. This study sought to expand the extant literature by describing a wider range of communicative behaviors (beyond the frequently researched withdraw, disclosure/holding back, and avoidance behaviors) through an observable measure, as previous research has relied heavily on self-report. Couples (134 cancer patients and their caregiving partners) were video-taped discussing a cancer-related concern in the laboratory. Discussions were coded separately for patients and caregivers using the Asymmetrical Behavioral Coding System which captures 22 communicative behaviors. These behaviors contribute to four higher-level scales: positive approach, negative approach, positive avoidance, and negative avoidance. Area under the curve was calculated to describe each factor. The most frequently observed behavior was positive approach, followed by negative avoidance, negative approach, and positive avoidance.
Paired samples t-test analyses examining the factors by moderating variables revealed that women engaged in more positive approach behaviors than did men; men engaged in more avoidant behaviors (both positive and negative) than did women; and caregivers engaged in more avoidant behaviors (both positive and negative) than did patients.
Findings are consistent with prior research in the field and suggest consideration of tailoring possible future interventions. Further investigation is needed to assess possible interactional effects to ultimately help couples better communicate about the challenges associated with cancer treatment and recovery.Dissertation/Thesis
Masters Thesis Counseling Psychology 2020
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Shepherd, Erin Jennifer Watt. "Caring for the child who has completed treatment for cancer: the lived experience of parents who do not live near their child's tertiary cancer centre." 2010. http://hdl.handle.net/1993/4060.
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Caring for children with cancer involves caring for the entire family. Treatment for childhood cancer is centralized in major centres. A phenomenological study was conducted to elicit the lived experience of parents caring for a child who had completed treatment for cancer who do not live near their child’s cancer treatment centre. Interviews with five parents exploring their recollections of parenting their child with cancer during and after treatment were conducted. Data analysis revealed the essence of the parents’ lived experience as a journey within a journey.
Four themes characterized the essence of parents’ lived experience: (1) travelling for care, (2) learning to navigate their journey with healthcare providers, (3) coping with change, and (4) giving back. Similarities and differences between the findings from this study and other studies of families with childhood cancer are presented. Recommendations relating to nursing practice, education, research and healthcare policy are provided.
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Swift, Darci L. "Families of children with cancer caregiving and family demands, family hardiness, and parental coping /." 1993. http://catalog.hathitrust.org/api/volumes/oclc/29420250.html.
Full textAbstract:
Thesis (M.S.)--University of Wisconsin-Madison, 1993.Typescript. eContent provider-neutral record in process. Description based on print version record. Includes bibliographical references (leaves 68-74).
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Yang, Hsiao-Wen, and 楊曉雯. "Factors associated with caregiving appraisal by primary caregivers of terminal ill cancer patients in hospice." Thesis, 2008. http://ndltd.ncl.edu.tw/handle/26499078276207529337.
Full textAbstract:
碩士中國醫藥大學
醫務管理學研究所
96
Objectives：Although the number of terminal cancer patients increases year by year, few researchers have discussed caregivers’ burden in dealing with terminal cancer patients in palliative hospitals. Much research has discussed the subjective of caregiving subjective burden, but hasn’t measured the impact of caregiving, the levels of caregiving mastery, and satisfaction during caregiving. The purpose of this study was to measure caregiving appraisal and to find important factors in those who cared for terminal cancer patients in palliative hospitals. Methods：A cross-sectional survey was used to collect data by face to face interview from a convenience sampling of 72 caregivers who cared for terminal cancer patients in palliative hospitals. Questionnaires was interpreted from Lawton, published in 1989. The data was gathered from November 2007 to June 2008. The statistical analysis methods included descriptive statistics, independent t test, one way ANOVA, and stepwise multiple regression analysis. Results：Caregivers who cared for terminal cancer patients were agreeable to “caregiving satisfaction” and “caregiving mastery” than “subjective caregiving burden” and “impact of caregiving” for each domain of caregiving appraisal. The results found that it was higher scroes in positive caregiving experiences than in negative caregiving experiences for caregiving appraisal of caregivers. A stepwise multiple regression analysis indicated that predict variables included fatigue, diarrhea, edema, and Karnofsky Performance Scale(KPS) in patient’s characteristic aspect. In caregiver’s characteristic predict variables included education, relationship with patient, changing occupation, and other diseases. Conclusions：The findings of this study provide clinical nurses with an evidence basis while helping primary caregivers of cancer patients to make referrals of Taiwan’s palliative care models in the future. The results help multidisciplinary teams promote and maintain caregivers’ quality of life.
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Olson, Rebecca Eileen. "Time to Feel: Understanding Cancer Carers: Emotions and Support Preferences." Phd thesis, 2010. http://hdl.handle.net/1885/8894.
Full textAbstract:
Family carers assume responsibility for much of patients' treatment coordination and emotional support, saving medical systems billions by reducing the number and duration of hospital admissions. However, in doing so, they tend to suffer high rates of psychosocial morbidity. While much is known about the experiences of cancer patients and carers of a family member with other diseases, little is known about the experiences and support services preferences of people caring for a spouse with cancer. Past research on this population is largely psycho-oncology based and emphasises carers' stress, burden and coping strategies. Using qualitative methods including participant observation, questionnaires, interviews and a focus group, this research provides an experience-driven understanding of these carers' experiences and support service preferences. Findings suggest that these carers experience a distinct kind of anticipatory grief: indefinite loss and indefinite grief. These concepts, referring to vacillating and uncertain anticipatory loss and grief, are presented as a more accurate conceptualisation of these carers' experiences of mourning and uncertainty about the future. Findings also show that carers of a spouse with cancer experience temporal anomie, a challenged sense of orientation towards the future. Using Hochschild's concepts of 'emotion work' and 'feeling rules' during analysis allowed for an interactive and social complement to the focus on individual coping strategies that dominates within psycho-oncology. Using this approach to analyse carers' emotions revealed the sense of lost direction towards the future that challenges carers' positive outlooks and showed that to overcome this temporal anomie, carers manage their own and their spouse's emotions towards their illness or the future.
Further, interview accounts indicate that some carers' responsibilities are so time-consuming, they are unable to experience and explore their own emotions; they do not have time to feel. Much of the poorly understood variation in carers' needs and support preferences can be explained using a time-sovereignty framework. Those carers who do have time for emotions valued support groups and counselling as a means of emotion management clarification. Practical support, such as financial aid and respite care, however, is rarely accessible to those who need it most: carers who lack time-sovereignty. Current Australian medical system practices do not ameliorate this strain, as medical professionals tend to exclude carers from the consumer-role while relying on carers to provide patient care. Thus, caring for a spouse with cancer often entails a sense of confusion about complex and contradictory emotions, but little time to reflect on these emotions. These experiences are, in part, a product of a medical system which simultaneously relies on carers - thus increasing their burden - and excludes carers from important information, leaving them under-resourced to deal with their partners' needs and their own emotions.
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Dworzanowski-Venter, Bronwyn Joan. "Emotional labour, black men and caregiving: cases from South Africa (1850-2010)." Thesis, 2013. http://hdl.handle.net/10210/8298.
Full textAbstract:
D.Litt. et Phil. (Sociology)Reid and Walker (2005) suggest that black South African men are ‘behaving differently’. Added to this Budlender (2008) has found that South African men are more likely to engage in unpaid community care work than conventional wisdom suggests. Part of this community work involves black men acting as AIDS caregivers. It is imperative to gain knowledge about masculine caregivers as the informal health care sector bears the brunt of the HIV pandemic. The fragmented and over-burdened public health system simply cannot absorb the 15-20% of HIV infected South Africans. Coovadia et.al. (2009) point to a lacuna in the scholarship regarding community health workers (CHW) in South Africa. My study of black masculine caregivers, located in the world of informal AIDS care, hopes to fill this gap. Yet, I do something more for I tackle the conventional wisdom that suggests South African men are different and exceptional if they conduct feminised care work. The emotions involved in care processes are the basis upon which society may feminise care work. My argument is also premised upon forging links between the past and the present. As such, I focus upon determining the extent to which emotional labour that may be exhibited by historical and contemporary black men. I make use of W.E.B. Du Bois’ (1903) notion of double-consciousness to show how the normalising society, surrounding masculine care, impacts this category of black men. In so doing, I not only forge links between past and present by means of doubleconsciousness, but I perform an intersectional analysis of emotional labour, and the context, in which it occurs. In so doing, I show how double-consciousness is an intersectionally-forged mechanism for Foucault’s (1978) biopower, and one that has become reinvented in present day South Africa. In this way I augment the works of Du Bois (1903) and Foucault (1978) for both did not give primacy to gender as a construct. It is essentially this view of black men, involved in AIDS care that contributes to the originality of this work. This historical-sociological investigation relied upon the linking of cases. I conducted historical research upon two cases: ‘houseboys’ in colonial Natal (1850 – 1928) and mine hospital ‘ward boys’ (1931 – 1959). Contemporary cases were constructed to reflect the world of AIDS and cancer care. The 13 original cases were compressed into seven case categories and based on triangulated survey and interview data (29 AIDS and 18 cancer caregivers were interviewed; while 195 community workers involved in AIDS care were surveyed in 2005/6; follow-up interviews were conducted with 11 caregivers across all case categories in 2010).
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Witchard, Alison Monique. "The operations of the familial body: genes, family and hereditary cancer." Phd thesis, 2017. http://hdl.handle.net/1885/131790.
Full textAbstract:
This thesis examines the experiences of 47 Australian and
American women who have been tested for BRCA1- and
BRCA2-associated hereditary breast and ovarian cancer syndrome.
Existing anthropological approaches to hereditary breast and
ovarian cancer syndrome assert a stern analytic division between
biomedical and genetic, and familial relatedness. By asserting
the primacy of the individual, these approaches attempt to rescue
the socially connected at-risk woman who chooses her relations
with others affectively, from the genetic sequence that dictates
her relations with others medically. This figure of the
‘individual’ is anthropologically considered to organise
socially significant others according to either selfish or
selfless motives: she may selfishly have children despite the
risk of cancer she confers, or selflessly hold back her
reproductive desires. These difficult emotional decisions, it is
anthropologically asserted, are obscured by a medical world that
dictates genetic relatedness. But, as I show in this thesis,
analyses that sharply contrast genetic and social forms of
relatedness prevent us from seeing their shared basis in,
simultaneously, partiality and collectivity.
Rather than taking up the familiar combative anthropological
stance in which the biomedical and the social are sharply
contrasted, I take my cue from a basic principle of genetic
inheritance. Genes challenge the discrete boundedness of the
body: each person makes partial genetic contributions which, in
concert with the partial contributions of others, yield the
genetic collective that is ‘me.’ Just as persons are the
collective product of partial contributions of others, so too is
the social institution of the family. The family is a sociality
made and maintained in fleshy relations between parts of bodies
that together create a familial collective. Taking the notions of
partiality and collectivity that are found in both genetic and
social worlds of cancer as key motifs, I offer up a new analysis
of precancerous lives. Instead of seeing at-risk women who act as
bounded individuals – either selfishly or selflessly – I
focus on the precancerous parts of women’s bodies that threaten
to disrupt familial collectivities. Such an analysis tells us
much about the importance of particular body parts to the
intercorporeal sociality of the family, how critical it is that
those parts remain reliably there, however unreflexively
considered they might usually be, and how wrenching it is to have
to remove parts critical to the making and maintenance of the
family to remain in it as a living presence.
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Salvador, Ágata Cristiana Morgado. "Parent's perceptions about their chil's illness in pediatric cancer: links with caregiving burden and quality of life." Master's thesis, 2014. http://hdl.handle.net/10316/25697.
Full textAbstract:
Dissertação de mestrado em Psicologia Clínica e da Saúde (Intervenções Cognitivo-Comportamentais nas Perturbações Psicológicas da Saúde), apresentada à Faculdade de Psicologia e Ciências da Educação da Universidade de CoimbraO presente estudo teve por objetivo contribuir para a compreensão da qualidade de vida em pais de crianças com cancro.Especificamente, esta investigação examinou o papel das perceções dos pais acerca da doença em termos de gravidade e interferência na vida da criança na sua própria qualidade de vida (QdV) de forma direta e indireta através da sobrecarga percebida. Pretendeu-se ainda examinar se as referidas associações entre as variáveis em estudo diferiam de acordo com a fase de tratamento da criança. A amostra do presente estudo transversal foi constituída por 277 pais de crianças ou adolescentes com diagnóstico de cancro, divididos em dois grupos clínicos: 126 pais de crianças em tratamento e 151 pais de crianças fora de tratamento. Os participantes preencheram questionários de auto-resposta que avaliaram as suas perceções da gravidade e interferência da doença na vida da criança, a sua sobrecarga e sua QdV. A informação relativa ao diagnóstico, condição e intensidade de tratamento foi reportada pelo oncologista pediátrico que acompanhava a criança. Os resultados mostraram que os pais de crianças em tratamento reportavam perceções mais negativas acerca da doença (gravidade e interferência na vida da criança), níveis mais elevados de sobrecarga e pior QdV, quando comparados com os pais de crianças fora de tratamento. Para ambos os grupos, apenas a perceção de interferência da doença na vida da criança se mostrou negativamente associada à QdV. Por sua vez, a associação entre a perceção de gravidade e QdV não se mostrou significativa. Adicionalmente, as perceções dos pais acerca da doença (gravidade e interferência) mostraram estar negativamente associadas à QdV por meio da sobrecarga. Por fim, a associação entre a sobrecarga e a QdV foi moderada pela condição de tratamento, com associações mais fortes encontradas para os pais de crianças em tratamento. Os resultados deste estudo reforçam a relevância da investigação e intervenção com famílias no contexto do cancro pediátrico, no sentido de identificar as necessidades específicas dos pais em diferentes fases de tratamento, promover a sua adaptação nesta situação de adversidade e, consequentemente, promover também o bem-estar das próprias crianças.
This study examined the direct and indirect links, via the caregiving burden, between parents’ perceptions about the severity of their child’s illness and its interference in his or her life and the parents’ quality of life (QoL). The participants were 277 parents of children with malignant cancer, divided into two clinical groups according to treatment status: 126 parents of children on-treatment and 151 parents of children off-treatment. Self-reported questionnaires assessed parents’ perceptions of illness severity and interference in the child’s life, caregiving burden and QoL. Pediatric oncologists provided information about diagnosis, treatment status and intensity. Parents of children on-treatment reported more negative perceptions about the illness (severity and interference), higher levels of caregiving burden and worse QoL, when compared to parents of children off-treatment. Furthermore, parents’ perceptions about their child’s illness (severity and interference) were negatively linked to parents’ QoL through caregiving burden. Additionally, the link between caregiving burden and parents’ QoL was moderated by child treatment status, with stronger associations found for parents of children on-treatment. This study’s findings are discussed in terms of their relevant implications for intervention with families in the pediatric cancer context.
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Chen, Yu-Yeh, and 陳玉葉. "The relationships between caregiving tasks loads,difficulties and caregiver burden for home care of terminal cancer patients." Thesis, 2007. http://ndltd.ncl.edu.tw/handle/33623079296151230080.
Full textAbstract:
碩士輔英科技大學
護理系碩士班
95
Recently, for the last several years, the medical care system in Taiwan has focused on promoting home care for terminal cancer patients. However, home caregivers are facing many difficulties and stresses. The purpose of this study is to explore caregiving tasks, difficulties, caregiver burden, and related factors for home care of terminal cancer patients. A cross-sectional correlation research design was used in this study. Using purposive sampling, 110 home caregivers for terminal cancer patients were selected from a southern Taiwan medical center. The data was gathered using a structured questionnaire interview. Measures used in this study include ECOG Performance status, Barthel Index, Symptom Distress Scale, the caregiving tasks scale, and the caregiver burden scale. As a result, it is reported that assisting in transportation causes the most workload, offering information about cancer is the most difficult, and psychological strain results in the highest burden. In addition, younger and more educated caregivers have the larger care workload. Level of patient dependency, symptom distress, caregivers’ educational levels and caring hours per day explained 53.5% of the variance for caregiving tasks. Patients in the terminal stage period who are expected to live greater than 12 months, are more difficult than those who are expected to live in the terminal stage period equal to or less than 6 months. The significant difference is in the difficulty of offering information about the cancer（U=406.0，p= .046）. The predicted factors for difficulty of caregiving tasks are patients’ dependency, symptom distress and caregivers’ age, which can only explain 23.7% of the variance. The caregivers burden was correlated with the caregiving tasks（r= .48，p= .000）and with the difficulty of caregiving tasks（r= .66，p= .000）. The longer the period of care, the higher the burden of physical and personal time. The predicted factors of caregiver burden are the difficulty of caregiving tasks, caregiving tasks and times of care, which can explain 55% of the variance. The results of this study reveal that health professionals should understand the effect of caregiving tasks, difficulties and caregivers’ burdens on their physical and psychological stresses. Furthermore, future research by health professional could explore nursing intervention to develop ways to improve the care-giving difficulty situation and decrease caregivers’ stresses.
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Hu, Lin-Jean, and 胡綾真. "The Caregiving Burden、Depression and Quality of Life of Primary Caregivers of Metastatic Cancer Patients Receiving Home Care." Thesis, 1999. http://ndltd.ncl.edu.tw/handle/42396508227927244283.
Full textAbstract:
碩士長庚大學
護理學研究所
87
The purpose of this study was to (1) describe the change of caregivers'' burden, depression and quality of life during the 4 weeks following hospital discharge; (2) to examine the relationship of patient, caregiver and home care characteristics to caregivers'' burden, depression and quality of life over time; and (3) to determine the relationship between caregivers'' burden, depression and quality of life. Data were collected through longitudinal correlation survey. A convenience sample of forty-one family caregivers of cancer patients from a medical center of northern Taiwan was obtained. The Caregiver Strain Index (CSI) , the Center for Epidemiological Studies of Depression (CES-D) and Caregiver Quality of Life Index (CQOL) were administered within 48 hours of discharging to hospital (T0) and 1, 2 and 4 weeks post-discharge (T1-T3). Patients'' symptom distress and functional status, caregivers'' depression and quality of life remained stable from discharging to week 4. The mean score of caregivers'' burden at discharging was higher than that of week 1, 2 and 4. Patients'' symptom distress and functional status, caregivers'' job and income change, daily caring hours had significant effect on caregivers'' burden, depression and quality of life. Higher levels of caregivers'' burden was associated with higher levels of caregivers'' depression and lower levels of quality of life. The findings suggest that the changes of life before and after taking care of patient may be the main reason for increasing caregivers'' burden, depression and decreasing quality of life.
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CHIU, YA-RING, and 邱雅鈴. "The Association Between Caregiving Burden，Depression，And Quality Of Life Of Primary Caregivers For Advanced Liver Cancer Patients." Thesis, 2018. http://ndltd.ncl.edu.tw/handle/vnd32x.
Full textAbstract:
碩士長庚科技大學
健康照護研究所
106
Caregiver burden has been an important issue that it would affect the role of caregiver and caregiving quality. In this study, we included primary caregivers of intermediate to advanced liver cancer patients from a gastroenterology ward of medical center in northern Taiwan. Structured questionnaires, including Caregiver Reaction Assessment (CRA), Center for Epidemiology Studies Depression (CES-D), Taiwan concise version of the World Health Organization Quality of Life Questionnaire (WHOQOL-BREF), and basic data of the primary caregivers and their patients were used to evaluate the relationship between burden, depressive symptom and quality of life (QOL) in total 116 respondents. Descriptive and inferential statistical methods used in this study include student t-test and one-way ANOVA, Pearson correlation and stepwise multiple regression analysis. The result revealed that caregivers were mostly women (62.9%) who were married (69.8%) and aged between 20 and 76 (Avg. = 48.17) with more than 8 hours of caregiving per day (47.7%). The average overall burden score of primary caregivers was 77.13 (SD= 8.44), with the highest burden level of health impact followed by financial impact, schedule impact and family impact. The burden of primary caregivers is related to overall QOL, social category, environmental category and especially physiological category. The higher the overall caregiver burden, the worse the QOL. The average overall depression score was 19.22 (SD= 9.17). Sixty-four point six percent of caregivers suffered from depressive symptom (CES-D score >16), and 46.6% of them experienced mild depression. The average score of overall QOL was 44.32 (SD= 7.52). In summary, depressive symptom of caregiver was significantly associated with QOL in every aspect, including physiological, psychological, social, environmental category and overall QOL. It is recommended to provide primary caregivers supporting measures in order to reduce burden and improve caregiving quality. Key Words:Advanced Liver Cancer, Primary Caregiver, Caregiving Burden, Depression, Quality of Life
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"The Contradictions of Caregiving, Loss, and Grief during Emerging Adulthood: An Autoethnography and Qualitative Content Analysis." Master's thesis, 2010. http://hdl.handle.net/2286/R.I.8788.
Full textAbstract:
abstract: Emerging adulthood--a developmental point in the life span (usually between the ages of 18-25) during which children no longer see themselves as adolescents but would not yet consider themselves adults--is marked by identity exploration and discovering new life directions. When emerging adults find themselves serving as caregivers for their parent during a time when they would normally be establishing autonomy and exploring new directions, they may feel conflicted by their desire to both care for their parent and maintain a sense of independence. Thus, using a multiple-method research design that includes both an autoethnography and a qualitative content analysis of young adult caregivers' online posts, this study intends to uncover the dialectical tensions (the interplay of communicative tensions within a relationship) an emerging adult daughter experiences in her relationship with her mother as she serves as her caregiver, experiences her death, and grieves her passing by analyzing the author's personal narrative. To provide a deeper understanding of the dialectical nature of the emerging adult caregiver experience, the study was extended with an examination of other young caregivers' experiences, drawn from online forums, to explore how they encounter tensions within their own relationships with their parents. An analysis of the personal narrative revealed one primary dialectical tension, separation-connection, and three interrelated tensions--predictability-change, openness-closedness, and holding on-letting go--that seemed to influence this primary tension. Results of the qualitative content analysis revealed that other caregivers experienced one primary dialectical tension, sacrifice-reward, and two additional, interrelated tensions: independence-dependence and presence-absence. A comparison of the findings from each methodological approach revealed both similarities and differences in experiences of emerging adult caregivers.Dissertation/Thesis
M.A. Communication 2010
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Liao, Chin Yun, and 廖謹筠. "The Relations among Positive Aspects of Caregiving, Posttraumatic growth and Stress Coping Process in Female Head and Neck Cancer Family Caregivers." Thesis, 2013. http://ndltd.ncl.edu.tw/handle/57275424565671187871.
Full textAbstract:
碩士長庚大學
職能治療學系
101
This article aims to explore the influence of positive aspects of caregiving (positive care experience) and posttraumatic growth of head and neck cancer female caregivers toward stress, coping style and quality of life. In addition, the relationships among pressure, coping style and quality of life are also studied. In this study, 123 primary female caregivers of head and neck cancer patients are recruited to complete questionnaire surveys. The returned questionnaires were analyzed by means of descriptive statistics analysis, reliability analysis, correlation analysis, t test, analysis of variance, structural equation modeling, hierarchy regression analysis, and stepwise regression analysis. The study results show that: (1) During coping with stress, female caregivers use approach coping and avoidance coping to relieve it. The more the use of approach coping, the effect of reducing the impact of stress on quality of life is more obvious. However, the impact of using avoidance coping is not significant. (2)The posttraumatic growth of female caregivers has significant positive influence to approach coping and avoidance coping. That is, the more the posttraumatic growth of female caregivers, the more approach coping and avoidance coping are used to alleviate their pressure. (3) Positive care experience and pressure feelings are important variables for predicting the life quality of female caregivers. (4) Female caregivers’ economic burden and mental load related to disease have significant negative influence to quality of life; the self of posttraumatic growth and life aspects of positive care experience have significant positive influence to quality of life. (5) In the influence of caregivers’ pressure versus quality of life, the intermediary effect of approach coping is significant. From these study results, we know that in the process of coping pressure generated from head and neck cancer female caregivers, coping, positive care experience and posttraumatic growth play important roles. Therefore, clinical practice in the future, except medical assistance, the focus on the positive psychological development of female caregivers can also improve their quality of life.
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Chang, Tzu-Ting, and 張紫婷. "Development and initial evaluation of reliability and validity of the Caregiving Self-Efficacy of Family Caregiver in Taiwanese Outpatients with Oral Cancer." Thesis, 2017. http://ndltd.ncl.edu.tw/handle/q5gr68.
Full textAbstract:
碩士國立臺北護理健康大學
護理研究所
105
In recent years, the number of deaths resulted from oral cancer has a significant increase. The disease ranked No.5 of the top ten cancer deaths in 2010 and the number of deaths of males is twice more than females. The factors resulted from this cancer include smoking, drinking, betel nut chewing, etc. The image of the patient is damaged but to the change of the facial structure, and the oral functions such as speaking, swallowing, and chewing are affected. The patient also has a sense of uncertainty due to side effects of treatment about the development of the disease, which has a considerable degree of psychological impact. When the patient is discharged from the hospital, the heavy responsibility of caring relies entirely on the family. Although traditional education strategies can improve the knowledge and attitude of the patient and caregiver, they fail to enhance their judgment on the matter or problem-solving behavior. Therefore, whether the main caregiver has the ability and confidence in caring the patient well or not is the issue to be treated seriously. Bandura (1997) suggested that beliefs would affect an individual's health behavior. When people face difficult situations, self-efficacy beliefs affect the extent and duration of personal effort. In addition, self-efficacy measurements need to be specific as correct measurement so that results can be obtained only when different self-efficacy scales were used to measure different health care behaviors. Therefore, the purpose of this study is to develop and evaluate the "caregiving self-efficacy scale for care of patients with oral cancer" and to test reliability and validity of this scale. The study was divided into two stages. In the first stage, the initial scale with 28 items in 6 major dimensions are based on the findings of the qualitative research by Liang (2013) and the results of the literatures for the family members of oral cancer patients, which went through expert validity test by the five experts, the CVI value is 0.93 to 0.97. Thirty research subjects were collected as the objects of study. The test-retest reliability of the caregiving self-efficacy scale used after two weeks was tested with Pearson's plot of the correlation coefficient. The original scale total score and the re-measured scale total score were highly correlated (r = .83, p <.001). In the second stage, the samples were collected from 107 caregivers of patients with oral cancer. Item analysis and factor analysis were used to analyse the data. For the factor load, 0.45 was taken as the breakpoint and the four factors were extracted. Three items were deleted for not meeting the standard, and finally 25 items were retained, of which the factor load was higher than 0.45. Four factors together explained 71.33% of the variance of the caregiving self-efficacy scale, showing the scale developed by this study to have good construction validity. The four factors were re-named as "dealing with patients’ sudden and uncertain circumstances", "issue of access to resource handling ", "issues of eating handling and attitudes" and "exploration and decision-making on patient care " based on the test results and items content for further analysis of the correlation between the subscale and the total score. The results showed that total scale of the caregiving self-efficacy scale was highly correlated with each of the scales (r = 0.807 ~ 0.929). There was also a high positive correlation among the subscales (r = 0.667 ~ 0.803). Therefore, the scale of developed by this study is a single dimension one and can be used as the evaluation tool of the self-efficacy ofcaregivers of patients with oral cancer. This scale helps health professionals to understanding the degree of self-confidence of the caregivers in the care of oral cancer patients. As well, this scale can be a care guidance that can be reinforced for the items with lower scores to enhance self-confidence of the families in caring the patients for improved care quality. There is not yet a belief assessment tool for the care abilitiy of the caregivers of patients with oral cancer both home and abroad. It is recommended that future research can conduct a confirmatory analysis to re-verify the reliability and validity of this scale.
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YUAN, JUNG-HUA, and 苑容華. "The experience of early adulthood’s in caring their mothers with cancer in the terminal stage – the balance of individual development and caregiving responsibility." Thesis, 2019. http://ndltd.ncl.edu.tw/handle/8jtg8m.
Full textAbstract:
碩士輔仁大學
兒童與家庭學系碩士班
107
Thesis Title: The experience of early adulthood’s in caring their mothers with cancer in the terminal stage-the balance of individual development and caregiving responsibility. The origin of this research came from my own experience. When my mother suffered cancer, I served as the primary caregiver. At that time, I was ready to show my talent and stepped on the dream journey but all original plans were stopped due to taking care of my mother. For me who is in state of pre-adulthood, what a torment and contradiction! Hence, I begin to be concerned with people who have the same experience as mine and hope to know whether they faced the same unfavorable as mine. Therefore, the research journey begins with this curiosity. This research takes the qualitative research method and collects the information via deep interview. There is total one research participant who accepts the interview and also refers to the experience from the researcher herself. During my research, I find Jane consider that her younger brother will be more inconvenient to take care of their mother so she actively takes as the primary caregiver. In this decision, she doesnt think over self-feeling a bit but only take her mother as priority. For the three categories (Career planning, Peer relationship, Intimate relationship) of personal development, career planning is the most emphasized; then, the care responsibility could be demarcate as primary caregiver, economic supplier, coordinator, the person who takes responsibility to condense. If putting the personal development and the care responsibility on the scale, the care responsibility is tremendously more important than the personal development. Next, this research shows the corresponding experience and difference between the researcher and Jane. We are in the similar background but the behind reason unexpectedly exists extremely discrepancy. However, the discrepancy comes from our own different personal believe. Jane focuses on the family. If the family could be complete with happiness, to put her in the last position is acceptable. But I take myself as first consideration and afraid to marked on the unfilial label. In additionally, the researcher found filial piety imperceptibly influences both of Jane and me indeed. Our devotion for our mother also stands for taking a part of filial. Yet, the relationship between my families and I and between Jane and her families are gradually changed with different period. For Jane, the family relationship is constantly in close and even closer status. Only when her mother passes away, it causes temporarily become alienated. On the contrary, my family relationship has more variability. From pre-cancerous to pos-carcinoma, the family relationship change from having slight connection to close but along with passing away of my mother, the quarrel makes my father, my second elder brother and I alienated. None the less, the talk with my first elder brother and elder sister during the mourning period, it pulls each other to become closer. Keyword: Pre-adulthood daughter, personal development, cares responsibility.
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Adams, Rebecca Nichole. "Do health behaviors mediate the relationships between loneliness and health outcomes in caregivers of cancer patients?" Thesis, 2013. http://hdl.handle.net/1805/3649.
Full textAbstract:
Indiana University-Purdue University Indianapolis (IUPUI)Greater levels of loneliness have shown consistent associations with poorer mental and physical health; however, the reason for these relationships is unknown. Engagement in poorer health behaviors among individuals with higher levels of loneliness is one potential explanation for this relationship. Self-regulation theory suggests that coping with feelings of loneliness may impair attempts to control health behaviors. Caregivers of cancer patients have been found to have poor health behaviors (e.g., inadequate exercise) and high levels of loneliness. Thus, the aim of the study is to examine whether health behaviors mediate the relationships between loneliness and mental and physical health outcomes among caregivers of cancer patients. Methods: A secondary data analysis was conducted using data from a longitudinal study of cancer patients and their family caregivers who were staying at the American Cancer Society’s Hope Lodge. Participants completed self-report questionnaires measuring levels of loneliness, engagement in health behaviors (i.e., exercise and fruit and vegetable consumption), mental and physical health, and demographic and medical characteristics at three time points over a 4-month period. A bootstrapping macro was used to examine the indirect effect of loneliness on mental and physical health via health behaviors. Results: Contrary to hypotheses, exercise and fruit and vegetable consumption did not mediate the relationships between loneliness and physical and mental health among cancer patients’ caregivers. Additional research is needed to determine whether health behaviors partially account for the relationships between loneliness and health outcomes or whether alternate explanations for these relationships should be considered.
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Allard, Emilie. "Un modèle du processus de préparation à la perte d’un conjoint : une théorisation ancrée constructiviste auprès de conjointes de personnes vivant avec un cancer." Thèse, 2018. http://hdl.handle.net/1866/22587.
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