Academic literature on the topic 'Boundaries with loved ones'

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Journal articles on the topic "Boundaries with loved ones"

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Cook, John W., Melissa Dillmon, Stephanie L. Graff, Rebecca D. Pentz, Ranjana Srivastava, and Julia L. Close. "Caring for Colleagues and Loved Ones With Cancer." American Society of Clinical Oncology Educational Book, no. 38 (May 2018): 903–8. http://dx.doi.org/10.1200/edbk_201451.

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Throughout the arc of a career in medicine, physicians are universally faced with the difficult decision of when to provide care for a colleague and when to refer to another physician. Gauging the magnitude of your relationship, both professionally and personally, and then weighing how to add the roles of physician and patient to your preexisting relationship is complex. We review and discuss care of family and colleagues, address ethical boundaries both firm and flexible, and explore the emotional weight of those relationships.
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Omori, Maho, Courtney Baker, Jude Jayasuriya, Steven Savvas, Anastasia Gardner, Briony Dow, and Sam Scherer. "Maintenance of Professional Boundaries and Family Involvement in Residential Aged Care." Qualitative Health Research 29, no. 11 (March 31, 2019): 1611–22. http://dx.doi.org/10.1177/1049732319839363.

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The importance of family’s involvement in care planning has been stressed to cater individualized, person-centered care in residential aged care. However, in reality, there are numerous structural obstacles and barriers that limit opportunities for their involvement. The aim of this article is to explore what they are. The findings based on the 12 focus groups, six groups of care professionals and six groups of family/relatives, reveal that the narrow pathway of communication between staff and families, which is hierarchically structured, one-directional, and clinically driven, enables the former to maintain and control professional boundaries between formal and informal care-giving. Such communication style delimits an opportunity for families to engage in quality discussion about care planning for their loved ones with care staff. Communication within residential aged care facilities embodies complex dynamics of care expectations and responsibilities held by care staff and families.
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Chalise, Hom Nath. "‘Physical Distancing’ is Appropriate than ‘Social Distancing’ during COVID-19 Pandemic." Journal of Health and Allied Sciences 11, no. 1 (August 18, 2021): 91–92. http://dx.doi.org/10.37107/jhas.230.

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One of the phrases that is widely being used amid this pandemic is ‘Social Distancing’. Yes, the suggestion is good but is the phrase an appropriate one, and most importantly is it conveying a healthy message to us, social beings who can’t survive without other beings? One thing that is shocking is Physical distance can be measured and easily implemented, while 'social distance' is a measure of the distance across social boundaries. Therefore, it would be much more suitable to use the phrase “physical distancing”, since, we still (despite being isolated physically) socialize through an online platform with our loved ones and well-wishers.
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Ginter, Amanda C., and Bonnie Braun. "Social support needs of breast cancer patients without partners." Journal of Social and Personal Relationships 36, no. 1 (July 12, 2017): 43–62. http://dx.doi.org/10.1177/0265407517718390.

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This qualitative study investigated how women without partners navigate social support challenges following their breast cancer diagnoses. In-depth interviews were used for collection. Twenty women without partners discussed the supportive and unsupportive roles their relatives, peers, and colleagues played during diagnoses and treatment. Family systems theory guided the construction of interview questions. Thematic analysis uncovered the following themes: reactions to diagnosis, managing social networks, negotiating appropriate forms of social support with loved ones, and expanding social networks postdiagnosis. Participants discussed the personal challenge of unexpectedly unsupportive friends and family and how they established boundaries with these individuals. Participants also discussed needing age-relevant and cancer stage-specific breast cancer support groups. These findings are relevant to oncology care providers and therapists. Additional implications of these findings for patients, practice, and research are discussed.
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Scholtes, Esther. "Picture-Perfect Fish Stories: Homemaking through American Tall Tale Photographic Postcards." Arts 12, no. 3 (April 29, 2023): 88. http://dx.doi.org/10.3390/arts12030088.

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Photographic postcards featuring farmer culture on the American Great Plains hold a tangled relationship to the concept of home. As both personal and tactile keepsakes to be taken home after travel and souvenirs directed to loved ones, the postcard bridges spaces of home, travel, and migration. Furthermore, postcards are significant vehicles in storytelling and community building. In the early twentieth century, a peculiar type of photographic postcard became popular in the Midwest and Great Plains regions depicting farmers with outrageously oversized crops and livestock. This article explores photographic postcards by William H. Martin (1865–1940) that equivocally glorify white farmer culture and their presumed economic productivity. It posits that through an elaborate act of photomontage, these photographic cards demonstrate the boundaries of home and convey ‘homeland’ as an ambiguous landscape.
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Ryzhkova, Tat'yana B., and Elena A. Tarasenko. "CARING FOR HEALTH AND WELL-BEING. CHANGING CONSUMER TRENDS IN THE CONTEXT OF THE COVID-19 PANDEMIC." RSUH/RGGU Bulletin. Series Economics. Management. Law, no. 2 (2021): 24–37. http://dx.doi.org/10.28995/2073-6304-2021-2-24-37.

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In the article the authors give an assessment of changes in trends of the consumer behavior in the context of the COVID-19 pandemic. It is shown that care for health and safety of oneself and loved ones in conditions of social distancing, forced homing and blurring the boundaries between work and home are main drivers for changing the consumer practices of Russian citizens, introducing the new creative ways of consumption and the emergence of deferred demand. The authors show changes in consumer attitudes towards home space, self-care increasing. They conclude that due to self-safety and digitalization trends in consumer behavior have changed so significantly that consumers will not completely return to their old habits after the end of the pandemic. New technologies and digitalization are making significant changes in the consumer lives and practices.
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McCann, Brandy, Karen Roberto, Tina Savla, Rosemary Blieszner, and Emily Hoyt. "Resilience Among Dementia Family Caregivers in a Changing Social World." Innovation in Aging 5, Supplement_1 (December 1, 2021): 9. http://dx.doi.org/10.1093/geroni/igab046.032.

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Abstract Dementia caregivers must manage the social worlds of their loved ones as well as their own. In a mixed methods study, we interviewed 50 family caregivers prior to the pandemic, twice during early phases of the pandemic, and again during the vaccine roll-out phase. Findings revealed how implementation of stay-at-home orders altered reliance on informal support as well as social ties and interactions. Using content analysis, we identified three ways in which caregivers’ managed changes in their social world: rethinking family visits (fewer people, higher quality); reinventing public spaces (church services, exercise venues); and reconsidering self-care (setting boundaries, solace in nature). Caregivers showed varying degrees of resilience in the ways they managed adverse social situations and cared for themselves. Findings reinforce the need for inclusive programs and services to help caregivers learn to maintain supportive social connections that reinforce their care decisions and routines, particularly during times of duress.
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Mangual Figueroa, Ariana, and Wendy Barrales. "Testimonio and Counterstorytelling by Immigrant-Origin Children and Youth: Insights That Amplify Immigrant Subjectivities." Societies 11, no. 2 (April 21, 2021): 38. http://dx.doi.org/10.3390/soc11020038.

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This article seeks to amplify our scholarly view of immigrant identity by centering the first-person narratives of immigrant-origin children and youth. Our theoretical and methodological framework centers on testimonio—a narrative practice popularized in Latin American social movements in which an individual recounts a lived experience that is intended to be representative of a collective struggle. Our goal is to foreground first-person narratives of childhood as told by immigrant-origin children and youth in order to gain insight into what they believe we should know about them. We argue for the power of testimonio to communicate both extraordinary hardship and everyday experiences and that—through this storytelling—immigrant-origin children and youth also express imagined futures for themselves and their loved ones. Through our analysis of ethnographic recordings of testimonio shared by Latin American immigrant children and multimedia testimonios created by immigrant-origin adolescents with roots in the Caribbean and West Africa, we gain a fuller understanding of immigrant subjectivities and push the boundaries of “the immigrant experience” still prevalent in mainstream discussions today.
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Le, Tina N., Shweta Kulkarni, Michael S. Businelle, Darla E. Kendzor, Amanda Y. Kong, Anna Nguyen, and Thanh Cong Bui. "Tips to Quit Smoking: Perspectives from Vietnamese Healthcare Providers, Community Leaders, and Past Tobacco Users in the United States." International Journal of Environmental Research and Public Health 20, no. 12 (June 17, 2023): 6160. http://dx.doi.org/10.3390/ijerph20126160.

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This study focuses on smoking-cessation strategies for United States (US) Vietnamese individuals, a group with high smoking rates, particularly those with limited English proficiency (LEP). The researchers conducted 16 in-depth interviews with a diverse group of participants, including healthcare professionals, community leaders, and former tobacco users. Data were analyzed using the Phase-Based Model of smoking cessation, resulting in several helpful strategies across the four phases: Motivation, Preparation, Cessation, and Maintenance. Prominent advice for the Motivation Phase included having a strong determination to quit and a reason why, such as protecting loved ones. For the Preparation and Cessation Phases, participants recommended healthy coping mechanisms, avoiding triggers, changing habits, and gradually reducing the number of cigarettes smoked. In the Maintenance Phase, strategies included regular exercise and setting boundaries with other people who smoke. Participants also stressed the importance of social support throughout all four phases. These findings have implications for healthcare providers working with US Vietnamese who smoke, especially those with LEP. By understanding the unique challenges this group faces in accessing smoking-cessation resources, providers can offer tailored support and guidance. Ultimately, this study provides useful strategies for helping US Vietnamese quit smoking, improving their health outcomes and quality of life.
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Zvonov, Petr Anatol'evich. "The specifics of cognitive and behavioral responses to therapy of the patients with borderline personality disorder: overview of foreign studies." Психология и Психотехника, no. 4 (April 2023): 86–103. http://dx.doi.org/10.7256/2454-0722.2023.4.44069.

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The study of diagnostic methods and the development of methods for the treatment of personality disorders is a significant scientific task. Personality disorders, including borderline personality disorder, characterized by hypertrophied emotions and a violation of self-identification, are painful for both patients and their loved ones. The article analyzes the results of a number of studies and observations in the field of experience of the treatment of borderline personality disorder. Cognitive and behavioral responses to therapy of the patients with borderline personality disorder are considered, as well as the features of building a therapeutic alliance, the formation of epistemological trust of the patient to the therapist, resistance to therapy and early dropout. Based on the analysis of a number of studies, it was found that patients with borderline personality disorder are in dire need of psychotherapy, believe that the therapist is the person who can solve all their problems, often transfer responsibility for their condition on him, forming a kind of child–parent relationship. Because of this, patients with borderline personality disorder often violate the therapist's personal boundaries, demanding his availability at any time. Such patients may perceive therapy as the only safe environment. At the same time, due to the fear of rejection, the formation of a therapeutic alliance takes a long time.
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Dissertations / Theses on the topic "Boundaries with loved ones"

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Donat, Melanie, University of Western Sydney, of Arts Education and Social Sciences College, and School of Contemporary Arts. "Fur, pixels, loved ones and other transients." THESIS_CAESS_CAR_Donat_M.xml, 2004. http://handle.uws.edu.au:8081/1959.7/469.

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Fur, Pixels, Loved Ones and Other Transients is a paper discussing my practice from 2000 to 2003. It is a personal and theoretical exploration of common concepts and theories in reference to my works Fluff Snuffs (2000), Relentless (2001), Trigger Displacement (2002), Bathing in a Warm Glow of Nothing (2003) and Memory Play Back (2003). The effects of Tele-visual and computer mediated images of death and violence within these works are investigated, which lead to an exploration of fear and trauma. This mechanism of mediation is used within the works as a means of exploring the subtleties within the screen-based image that may go unnoticed or seem disconcerting. The role of the soft toy is an important element in these works and this is further explored by referencing the use of the soft toy in works of several other contemporary artists. These works are discussed to further explore the complexity of ideas on death, violence, trauma, memory and fear
Master of Arts (Hons) (Contemporary Arts)
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Wang, Yanan. "Mortality salience and product evaluation: role of self versus loved ones." Thesis, McGill University, 2013. http://digitool.Library.McGill.CA:80/R/?func=dbin-jump-full&object_id=119395.

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In this dissertation, I distinguish between two types of mortality salience, namely mortality salience of self (MSS) and mortality salience of a loved one (MSLO). Based on a need salience mechanism, I predict and find in four studies that MSS individuals prefer social status choice options over social experience choice options; whereas MSLO individuals prefer social experience choice options over social status choice options. Further, these effects are more pronounced among MSS individuals high in independent self-construal, and MSLO individuals high in interdependent self-construal. This dissertation contributes to the mortality salience literature in three ways. First, it distinguishes for the first time between two types of mortality salience, namely MSS and MSLO in terms of their effects on type of choice. Second, it proposes a new mediating mechanism based on need salience which predicts the divergent effects of MSS and MSLO on type of choice. Third, it identifies two new moderating variables, namely independent self-construal and interdependent self-construal, which can modify the effect of MSS versus MSLO on type of choice.
Dans cette thèse, je propose une distinction entre deux types d'exposition à la saillance de la mort (mortality salience), soit la saillance de sa propre mort ou MSS (mortality salience of self) et la saillance de la mort d'une personne aimée ou MSLO (mortality salience of a loved one). En se basant sur un mécanisme du besoin de saillance (need salience mechanism), je prédis et confirme à l'aide de quatre études expérimentales que les individus exposés à la saillance de leur propre mort (MSS) préfèrent des options de décision signalant le statut social contrairement aux individus exposés à la saillance de la mort d'une personne aimée (MSLO) qui préfèrent des options de décision associées à des expériences sociales. De plus, l'effet de la saillance de sa propre mort (MSS) est plus prononcé lorsque les sujets de l'étude ont un construit de soi hautement indépendant (independent self-construal) alors que l'effet de la saillance de la mort d'une personne aimée (MSLO) est plus prononcé pour les individus ayant un construit de soi hautement interdépendant (interdependent self-construal). Cette thèse contribue à la littérature sur la saillance de la mort de trois façons. En premier lieu, elle distingue pour la première fois, en fonction de leur effet sur la prise de décision, deux types de saillance de la mort, soit celle associée à sa propre mort (MSS) et celle associée à la mort d'une personne aimée (MSLO). Deuxièmement, elle propose un nouveau mécanisme de médiation basé sur le besoin de saillance (need saliance) qui prédit les effets divergents des types de saillance de la mort sur la prise de décision. Finalement, elle identifie deux nouvelles variables modératrices, soit le construit de soi indépendant et le construit de soi interdépendant, qui modulent l'effet des deux types de saillance de la mort sur la prise de décision.
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Barner, Corrine. "Welcome home| A manual for the loved ones of returned combat veterans." Thesis, Pepperdine University, 2016. http://pqdtopen.proquest.com/#viewpdf?dispub=10170182.

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Operation Iraqi Freedom (OIF) and Operation Enduring Freedom are the first long-term wars fought with an all-volunteer army. This has led to fewer available soldiers who are deployed more frequently and for longer periods of time. The impact of these deployments is significant and has been found to increase likelihood for substance abuse, mental health disorders, and concerns in the veteran, or service member’s, social functioning and overall adjustment upon returning to civilian life. There have been significant developments in our understanding of these issues, as well as effective interventions and treatment. However, many veterans still do not seek or receive beneficial treatment due to mental health stigma, as well as other barriers. While many treatment paradigms address the unique needs of the family or the individual veteran, very few resources seek to both objectively inform and provide practical coping strategies for the loved ones of veterans. Research has shown social support is a preventative factor in regards to developing or resolving mental health concerns. Similarly, research has demonstrated that others’ perceptions of mental health symptoms significantly impacts how much support and understanding their loved ones will provide (e.g. personalization of withdrawal symptoms). This manual provides a balance of both information and skills to loved ones in order to increase understanding and awareness regarding the difficulties of the transition to from military to civilian life, for both parties. Additionally, the manual integrates attachment theory concepts throughout the resource to foster self-awareness and consideration of the loved one’s own relationship style and emotional regulation. The intended audience is broad and includes a wide range of important relationships that may be affected. It was broken down into three main sections that build upon eachother: Understand, Reconnect, and Rebuild. This manual was developed through critical literature review of peer-reviewed research and personal accounts. The results of the analysis were applied to issues relevant to the transition process from military to civilian life as identified through research or review of personal accounts of the transition home from war.

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Light, Patricia A. "Spousal Caregivers' Challenges When Caring for Their Loved Ones Battling Alzheimer's Disease." ScholarWorks, 2019. https://scholarworks.waldenu.edu/dissertations/6452.

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In the United States, the occurrence of Alzheimer's dementia is growing. This chronic illness is highly prevalent in the elderly population. Studies have advised that the elderly population is primarily affected by this chronic illness as age progresses. Aging may lead to mental or physical deterioration. This chronic illness can be extremely challenging for the spousal caregivers involved and the challenging decisions that must be made. There remains a crucial gap in the literature concerning the challenges experienced by spousal caregivers and how they cope with these factors daily. Specifically, there are no studies exploring the perceptions of spousal caregivers and the emotions involved with long-term placement. Therefore, the purpose of this qualitative study was to use the grounded theory method and to explore the perceptions of 7 spousal caregivers and the emotions attached to decision making. The method involved open-ended interview questions to attain answers to the research questions involving experiences and observations of the caregiving role. Interview data were open-coded and analyzed for themes. The outcomes of this research will help aid in overcoming the challenges spouses face with the new role of spousal caregiving. This will add existing literature associated with elderly spousal caregivers and challenges faced when caring for an Alzheimer's individual. These outcomes can lead to social change and development through the implementation of positive coping strategies when dealing with the caregiving challenges and emotions attached to this role.
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Forbes, Lisa M. "African American Women Caring for Loved Ones With Alzheimer's Disease and Dementia." ScholarWorks, 2018. https://scholarworks.waldenu.edu/dissertations/5007.

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Abstract In 2016, a dramatic shift occurred in demographics in the United States because the oldest people in the baby boomer generation, which consists of people born between 1946 and 1964, reached age 65. The larger aging population and longer lifespans have produced an increased need for care and services. There are an estimated 5.4 million Americans of varying ages living with a diagnosis of dementia or Alzheimer's disease. Diagnoses of Alzheimer's disease are more prevalent among African Americans than other ethnicities. With little research found on culturally appropriate interventions for specific ethnic groups, a more detailed review of the experiences of African American women was necessary to explore the relationship between caring for loved ones with dementia and managing lifestyles. The purpose of this study was to explore the lived experiences of African American women who care for their loved ones with dementia and Alzheimer's disease. Guided by the conceptual framework of attachment theory, a phenomenological study design was used with semistructured interviews of 10 caregivers to examine their experiences and how they cope with caring for loved ones with dementia and Alzheimer's disease. The results of the thematic analyses of the collected data uncovered 6 main themes: sense of responsibility, grounded in faith, guidance for future caregivers, difficult journey, caregiver challenges, and coping strategies. The study may positively impact social change by informing health care professionals who may use the findings to help African American families caing for loved ones to apply interventions, use services, and manage resources more efficiently.
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Hunt, Barbara. "The Emotional Impact on Elderly Spouses Who Placed Their Loved Ones in Long-Term." ScholarWorks, 2015. https://scholarworks.waldenu.edu/dissertations/1444.

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Aging may bring mental and/or physical decline. There may come a point when a loved one needs long-term care in a nursing home. The purpose of this phenomenological study was to examine the community dwelling spouses' emotional state. A study was conducted with 10 individuals (5 men and 5 women) who had a spouse in long-term nursing care. Inclusion criteria was to be at least 65-years old, have been married at least 30 years, and reside alone in his or her own home. The social emotional selectivity theory and the construct of boundary ambiguity were applied to view the epoch. Data were collected with audio recorded interviews and coded as to major idea in each response. Five themes evolved from the responses: reduction of friends, ease or difficulty with change, companionship, vows are forever, and why. The community-dwelling spouse tended to be sad, anxious, and angry. Loss of companionship, increased isolation due to reduction of friends prior to placement, concern about the well-being of his or her spouse, and feelings of 'why did this happen to me?' were common themes by the community dwelling spouse. Wives who did all household chores prior to their husband's institutionalization were more able to accept the placement of their spouse than were husbands who had depended on their wives. There is a need for treatment for the community-dwelling spouse by nursing home staff, friends, and family. Nursing homes can encourage support through community-dwelling support groups and mealtime with their institutionalized spouses. Children of community-dwelling spouse can provide support through contacting their parents frequently, clergy, and friends of the church through visiting the community-dwelling spouse after placement of their spouse.
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Hansson, Jessica, and Eveline Wester. "A Game of Phone Tag : A qualitative study of women living away from loved ones." Thesis, Karlstads universitet, Institutionen för sociala och psykologiska studier (from 2013), 2021. http://urn.kb.se/resolve?urn=urn:nbn:se:kau:diva-83002.

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In today’s globalized world leaving one’s country of origin to move abroad has become more common,which often results in families and loved ones living apart from each other. This qualitative study aimsto explore professional women’s experiences of living abroad and their ways of coping with being awayfrom their loved ones. The study relies on theoretical concepts and prior research on transnationalfamilies, the sense of home and identity, guilt and coping strategies when longing for loved ones. Inaddition, the current context of the COVID-19 pandemic and its implications for travel has also beentaken into account. The primary data for thisstudy is based on ten semi-structured interviews with womenthat have been living and working or studying in Sweden for over a year, with loved ones abroad. Thedata is analyzed by a relational and partly narrative analysis and the study has been done from a feministperspective. The results show that moving abroad has impacted individual relationships with loved ones.Our participants expressed longing for physical co-presence with their loved ones, although they weremostly satisfied with their current situation. As our interviews showed, COVID-19 has not significantlyaffected their relationships with loved ones abroad, since the women have already been living apart -some of them quite long distances. In addition to the results the discussion will focus on key issuesencountered during the study, its limitations, strengths and suggestions for further research.
I denna globaliserade värld har det blivit mer vanligt att lämna sitt hemland och flytta utomlands, ochdärmed inte bo nära sina nära och kära. Syftet med denna kvalitativa studie är att få en djupare förståelseför kvinnor som bor i ett annat land än deras nära och kära och hur de hanterar det. Studien är baserad påteoretiska koncept och tidigare forskning om transnationella familjer, flyttens inverkan på identiteten ochatt känna sig hemma, skulden av att bo på avstånd och strategier för att klara av att ha sina nära och kärapå avstånd. Detta sätts i perspektivet till den rådande COVID-19 pandemin och de begränsningar, inombland annat resande, som det innebär. Studiens primärdata baseras på tio semistrukturerade intervjuermed kvinnor som bott och jobbat eller studerat i Sverige i minst ett år och har sina nära och kärautomlands. En relationell analysmetod kombineras med narrativ analys och studien har en feministiskutgångspunkt. Resultatet visar att kvinnornas flytt utomlands har påverkat deras relationer med nära ochkära. Deltagarna i studien uttryckte en längtan efter fysisk samvaro med nära och kära i deras hemländer,men ansåg sig mestadels nöjda med deras rådande situation. Det framkom i våra intervjuer att COVID19 pandemin inte hade någon större inverkan på kvinnornas relationer med nära och kära, då de redanbefann sig på ett längre geografiskt avstånd. Utöver resultatet lyfter diskussionen viktiga frågor sompåträffades under studien, styrkor och svagheter samt förslag på vidare forskning.
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Woodbury, Kerri-Ann. "A prospective study of the impact of deployment on the intimate relationships of Australian army personnel and their loved ones." Thesis, Queensland University of Technology, 2020. https://eprints.qut.edu.au/201713/1/Kerri-Ann_Woodbury_Thesis.pdf.

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This thesis explores the impact of deployment to a warzone with the Australian Army on intimate relationships. It examines the applicability of two relationship theoretical frameworks for this cohort and has resulted in a new application of these theoretical frameworks, and extended the current evidence base as to how military deployment can impact intimate relationships. The findings provide a unique evidence-based platform on which to develop targeted education for civilian intimate partners and military personnel pre- and post-deployment.
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Worboys, Deborah Jane. "Turning strain into strength: Exploring the positive psychological changes and growth-ful developments in the loved ones providing care for persons with Parkinson’s Disease." Thesis, Australian Catholic University, 2016. https://acuresearchbank.acu.edu.au/download/755c61137c6bb9330cd897ebe1ce13f92861738470ee9db4fcedfdcb3b6aa614/3334717/Worboys_2016_Turning_strain_into_strength_exploring_the_positive.pdf.

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Parkinson’s disease (PD) is a degenerative disease that progressively impacts physical, psychological and social functioning resulting in diminished quality of life (D'Antonio, Zimmerman, & Iacono, 2000; Den Oudsten, Van Heck, & De Vries, 2007; Montel, Bonnet, & Bungener, 2009). The negative effects of PD are not only experienced by persons with PD but also their loved ones – such as their spouses and to a lesser extent their adult-children – because they become the primary caregivers as the disease progresses (D’Amelio et al., 2009). PD caregiving literature has focused predominantly on the negative effects of caregiving, namely caregiver burden (see Aarsland et al., 2007; Caap-Ahlgren & Dehlin, 2002; Harbishettar et al., 2010). The positive effects of PD caregiving remain a less-explored phenomenon. Existing literature suggests that PD caregiving is primarily a negative, burdensome and stressful experience without sufficient acknowledgement of the possible lived experience of PD caregiving and caregivers’ strengths. This interpretative-phenomenological study was designed with a strengths-based perspective (Saleebey, 2012) to explore the lived experience of loved ones providing care for persons with PD. Participants were the primary caregivers for a family member with PD, either spouses or adult-children, residing in the same home as the person with PD. Data collection phase one involved in-depth semi-structured interviews (N = 29). Data collection phase two involved a small focus group (N = 3), as a supplementary measure to draw upon insights and clarify emergent themes from phase one. The transcripts were analysed using an integration of interpretative phenomenological analysis (IPA; Smith & Eatough, 2012) and thematic analysis (TA; Braun & Clarke, 2006). The analysis identified five master themes (and 20 sub-themes): (1) Positive changes in perspectives on living, (2) Personal Growth, (3) Relationship growth, (4) Contextual experience associated with positive changes and growth-ful development, and (5) Lacking in positive changes and growth-ful development. Results indicated a substantial number of loved ones providing care reported positive psychological changes and growth-ful development associated with PD caregiving. However, many others could not identify any positive experiences, only loss and strain since the presence of PD in their lives. Analysis revealed that participants employed meaning-making processes such as deliberate rumination (i.e., life re-evaluation and re-prioritisation), searching for significance (i.e., benefit finding and positive reappraisal), and cognitive processes (i.e., assimilation and accommodation), as well as emotional processing (i.e., exploring and expressing emotions) in a supportive environment (i.e., PD support groups). This resulted in outcomes of meaning made, such as perceptions of positive psychological changes and growth-ful development (i.e., positive changes in attitude, and ways of thinking and being). Findings are consistent with influential growth theories, such as the adversity-activated development theory (AAD) (Papadopoulos, 2007), the revised meaning-making model (Park, 2010) and the post-traumatic growth theory (Calhoun, Cann, & Tedeschi, 2010; Tedeschi & Calhoun, 2004)). Each postulate that people can grow and develop both personally and relationally as a result of a stressful experience (Park, 2010), exposure to ongoing adversity (Papadopoulos, 2007), and post-trauma or major life crisis (Calhoun, Cann, & Tedeschi, 2010; Tedeschi & Calhoun, 2004). Conclusions were consistent with previous caregiving research from other populations (e.g., Farran et al., 1999; Rapp & Chao, 2000; Sanders, 2005) where the PD caregiving situation is associated with loss and compromise, much like dementia caregiving. However, the potential for positive experiences and growth-ful developments is apparent. The precise circumstances where caregiving activities generated everyday strain (e.g., tension, losses, burden, and stress) for the loved ones providing care also appeared to create moments of appreciation and gratification, and allowed for positive transformation and growth-ful development...
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Peters, Julie Claire. ""No one's free who isn't free to love": love and history across Canadian boundaries in George Elliot Clarke's «Beatrice Chancy» and «Québécité: A Jazz Fantasia in Three Cantos»." Thesis, McGill University, 2008. http://digitool.Library.McGill.CA:80/R/?func=dbin-jump-full&object_id=21924.

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Abstract George Elliott Clarke's 1999 opera Beatrice Chancy is the story of the daughter of a slave owner and a slave in Nova Scotia in 1801. It addresses Canada's ignorance about its history of slavery from 1689-1834. The play shows how love becomes perverted in a society in which bodies can be owned, to the point that the landscape becomes "transfigured by unfulfilled love" (143). Québécité, on the other hand, is an opera about two interracial couples getting married in contemporary Quebec City. It is Clarke's utopia and Beatrice's dream: a world where love is possible across any historical or cultural boundaries. This utopia, informed by Canada's policy of multiculturalism, is problematic, especially in terms of its engagement with Québec's own cultural and historical issues. As performances, however, both plays invite an inclusive community of Canadians to discuss the issues raised, even if they cannot yet be solved.
Précis Beatrice Chancy (1999), l'opéra par George Elliott Clarke, est l'histoire de la fille d'une esclave Noire et de son maître Blanc dans la Nouvelle Ecosse de 1801. Adressant l'ignorance qu'ont plusieurs Canadiens de l'esclavage pratiquée au Canada entre 1689 et 1834, la pièce démontre comment se pervertit l'amour dans une société où un corps peut être une commodité. Québécité (2003), d'autre part, met en scène deux couples de races mixtes qui se marient dans la Ville de Québec contemporaine. L'histoire est également l'utopie de Clarke et le rêve de Beatrice: une monde où l'amour est possible à travers toutes frontières historiques et culturelles. Cette utopie tant informée par l'éthique multi-culturelle Canadienne est très problématique, spécialement mise en vue de son engagement avec la dynamique culturelle et historique du Québec au sein du Canada. À travers leurs manifestations dramatiques, les deux pièces invitent une communauté inclusive de Canadiens à discuter les problèmes abordés, sans exiger leur résolution.
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Books on the topic "Boundaries with loved ones"

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Mamdūḥ, ʻĀliyah. The loved ones. London: Arabia, 2008.

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Mamdūḥ, ʻĀliyah. The loved ones. New York: The Feminist Press at the City University of New York, 2007.

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Mamdåuòh, å̊Aliyah. The loved ones. New York, NY: The Feminist Press at the City University of New York, 2007.

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Bolude, Bukola Olumayowa. The loved ones. [Lagos, Nigeria: B.O. Bolude, 1994.

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Mamdouh, Aliyah. The loved ones. Cairo: American University in Cairo Press, 2006.

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Tate, James. Distance from loved ones. Hanover [NH]: Published by University Press of New England [for] Wesleyan University Press, 1990.

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Finley, Martha. Elsie and her loved ones. Peabody, Mass: Hendrickson Publishers, 2012.

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Stuart, Barbara. Prayers for my loved ones. [S.l.]: Paradise Press, 2000.

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Armstrong, Mary Vaughn. Caregiving for your loved ones. Elgin, Ill: LifeJourney Books, 1990.

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Durrant, Watson Albert. Loved ones on the sea. [S.l: s.n., 1997.

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Book chapters on the topic "Boundaries with loved ones"

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James, Veronyka, and Stacie Merken. "Force or Appeal to Loved Ones." In Deviance Today, 89–103. 2nd edition. | New York, NY : Routledge, 2020.: Routledge, 2020. http://dx.doi.org/10.4324/9781003053286-7.

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Luijkx, Katrien, Meriam Janssen, Annerieke Stoop, Leonieke van Boekel, and Marjolein Verbiest. "Involve Residents to Ensure Person-Centered Nursing Home Care During Crises Like the COVID-19 Outbreak." In The New Common, 145–51. Cham: Springer International Publishing, 2021. http://dx.doi.org/10.1007/978-3-030-65355-2_21.

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AbstractNursing homes aim to provide person-centered care and recognize residents as unique individuals with their own histories, life goals, and preferences. The life expectancy of nursing home residents is rather limited. Nursing homes have been hit hard by COVID-19 because of an increased risk of death and a total nursing home lockdown from March 19 until the end of May 2020. Although social relationships are a basic human need and the fulfillment of social needs is essential for both physical and mental health, nursing home residents were no longer allowed to meet their loved ones. This decision was taken without involving residents and their loved ones and without considering the psychosocial impact of such measures for residents and their loved ones. When visitors were again allowed in the nursing homes, this was valued highly. To enable decent decision-making, we call both the government and nursing homes to involve residents and their families in decision-making. It is essential to know how residents weigh the risk of a COVID-19 infection and the possible implication of them opposing social isolation. We have to adapt to a new common and need to stop talking about residents and their loved ones and start talking with them.
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Miller-Karas, Elaine, and Jan Click. "Veterans, Active-Duty Service Members, and Their Loved Ones." In Building Resilience to Trauma, 228–44. 2nd ed. New York: Routledge, 2023. http://dx.doi.org/10.4324/9781003140887-17.

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Kleinman, Loren, Shavaun Scott, Sandy Phillips, and Lonnie Phillips. "Support Resources for Survivors, Their Loved Ones and Advocates*." In The Forgotten Survivors of Gun Violence, 83–88. London: Routledge, 2023. http://dx.doi.org/10.4324/9781003368137-10.

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Nothhaft, Christian. "Protecting Lifestyle and Loved Ones: New China Life Insurance (NCI)." In Made for China, 149–58. Cham: Springer International Publishing, 2017. http://dx.doi.org/10.1007/978-3-319-61584-4_14.

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Boekhout, Brock, Susan S. Hendrick, and Clyde Hendrick. "The Loss of Loved Ones: The Impact of Relationship Infidelity." In Loss and Trauma, 358–74. New York: Routledge, 2021. http://dx.doi.org/10.4324/9781315783345-25.

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Felsenstein, Frank. "Twenty-Five." In No Life Without You, 285–306. Cambridge, UK: Open Book Publishers, 2024. http://dx.doi.org/10.11647/obp.0334.25.

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Vera and Mope get married, 1 August 1937. They spend their honeymoon in Europe, meeting and staying with friends and loved ones. Mope is not given permission to remain in England, and so returns to work in Russia.
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Klonoff, Pamela S. "Loved Ones’ End-of-Life and Existential Considerations as a Caregiver." In Psychotherapy for Families after Brain Injury, 397–442. Boston, MA: Springer US, 2014. http://dx.doi.org/10.1007/978-1-4899-8083-0_10.

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Deakins, Susan M., and William R. McFarlane. "Integrated Family Psycho-Education: Helping Families Help Their Loved Ones Recover." In Handbook of Community Psychiatry, 339–45. New York, NY: Springer New York, 2012. http://dx.doi.org/10.1007/978-1-4614-3149-7_28.

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Snow, Stephen. "The Experience of Caregivers for Loved Ones Who Have a Mental Illness." In Ethnodramatherapy, 132–59. New York: Routledge, 2021. http://dx.doi.org/10.4324/9781003083818-7.

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Conference papers on the topic "Boundaries with loved ones"

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BOYCHENKO, Mykhailo. "THE HAPPINESS AND THE GOOD: ECCENTRICITY AND CENTRIPETALITY." In Happiness And Contemporary Society : Conference Proceedings Volume. SPOLOM, 2021. http://dx.doi.org/10.31108/7.2021.6.

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Happiness is always a good for a person: even if a person lacks some other goods, material or spiritual, a person can be happy. We can say that happiness to some extent can compensate for the lack of certain goods. A person is unhappy not when one does not know his center and boundaries, but when one cannot have power over them. Happiness is not rather in the retention of goods, but in the free possession of them. This rule is emphasized by rare exceptions from it: these include a person's dependence on the good of communication with spiritually close ones, relatives, loved ones, friends. Happiness is not a constant escape, but rather a constant learning of happiness. Person uses his / her eccentricity to find his / her new center each time, not to lose it or lose faith in it. Changing one's borders is also not unlimited and completely arbitrary. All this must also be learned, because the loss of goods is also bitter, especially if involuntary or, moreover, against our will, and the loss of some goods is the loss of our very life – organic and / or spiritual. Happiness is in the unity of eccentricity and centripetal of some personality: in the constant rejection of the unchanging center and boundaries of one's personality and at the same time in the constant search and new discoveries that partially reaffirm this center and boundaries – but as a result of one's own choice. Keywords: happiness, goods, eccentricity, centripetality, learning of happiness.
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Asayesh, Parisa. "An Emotional Bio-wearable." In 14th International Conference on Applied Human Factors and Ergonomics (AHFE 2023). AHFE International, 2023. http://dx.doi.org/10.54941/ahfe1003632.

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Touch is a powerful emotional communication tool that can reduce the stress hormone cortisol and triggers the release of oxytocin. The emotional influence of touch is rooted in human biology. Separation and losing loved ones’ touch are associated with emotional distress and impact people's mental health and daily productivity.During the pandemic, we all experienced separation from loved ones as emotionally draining. People are separated from their loved ones for a variety of reasons, such as pursuing education, a new job, getting married, or relocating. There are a few coping solutions, such as making video calls with loved ones or keeping their photos around us, reminding us of their presence. But those visual cues may not be enough for tactile individuals. This research demonstrates that people who define touch as their love language tend to keep their loved one's belongings. Touching our keepsakes is a coping strategy to enhance our feelings of connection to our loved ones. However, not all sentimental items are always carriable or available to support us when we need them emotionally. The Emotional Bio-wearable represents the integration of biology and technology, creating a meaningful wearable keepsake for those who benefit from a tactile, emotional sensation. In addition, this project developed a combination of parametric modeling, interface design, and software development to create an intuitive and interactive application.The Emotional Bio-wearable has two parts. The first part is an iOS application program, which receives data such as a heartbeat (a symbol of life) and user’s responses to questions to determine the user’s preferred style. The application generates designs and customizes the output based on the inputs. The second delivery part is the physical bio-bracelet covered with a meaningful texture, heartbeat and printed with a 3D printer. This project is an exploration of the impact of tactility, focusing on those who identify ‘touch’ as their love language. An Emotional Bio-wearable provides a new way of connecting to love ones and boosts the consumer’s mental health.
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Davis, Josh Urban, and Johann Wentzel. "Font Your Friends and Loved Ones: On the Utility of Ugly Interfaces." In CHI '21: CHI Conference on Human Factors in Computing Systems. New York, NY, USA: ACM, 2021. http://dx.doi.org/10.1145/3411763.3450371.

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Nakken, N., M. A. Spruit, E. H. A. Van den Bogaart, M. Van Vliet, G. J. De Vries, F. L. Custers, J. H. Vercoulen, G. M. Asijee, E. F. M. Wouters, and D. J. A. Janssen. "Health status and chronic conditions in patients with COPD and their resident loved ones." In Annual Congress 2015. European Respiratory Society, 2015. http://dx.doi.org/10.1183/13993003.congress-2015.oa1761.

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Nursafitri, Okky, and Margaretha. "Grieving the Death of the Loved Ones among the Incarcerated Women: A Phenomenological Study." In International Conference on Psychology in Health, Educational, Social, and Organizational Settings. SCITEPRESS - Science and Technology Publications, 2018. http://dx.doi.org/10.5220/0008588703070312.

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TÜRK, Osman. "AN EVALUATION ON THE “STORIES IN THE I. Vol. OF MEVLANA'S MESNEVİ”." In 3. International Congress of Language and Literature. Rimar Academy, 2021. http://dx.doi.org/10.47832/lan.con3-2.

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Mevlânâ was born on September 30, 1207, in the city of Balkh, one of the old Turkish cultural centers, today within the borders of Afghanistan. His real name is Muhammed Celâleddin. His grandfather, Hüseyin Hatibî, was one of the great scholars of his time. His father, Bahâeddin Veled, was known as "Sultânü'l Ulemâ" (Sultân of Scholars). Sultânü'l Ulemâ, an honest person who did not hesitate to speak to anyone, would say everything he knew right in his lessons and sermons without knowing any boundaries. Language is the symbol of being human. Language, which is the necessity of being human, the development of thought and emotion, indispensable of respect and love, is a legacy that nations inherited from the past to the present and the future. It is a known fact that individuals speaking the same language have the same background, culture and values, that is, a common destiny. Our expressions clearly carry the values, norms and social control elements, beliefs and traditions of our nation and play an important role in transferring the above-listed ones to future generations with the help of the language they are a part of. Mevlana has a very important place in the history of Turkish literature. In our study, there will be a language study on volume I based on the book "All Stories in Mesnevi" prepared by Mehmet Zeren. Based on the auxiliary verbs in the stories in the book, the idioms in the sentence will be determined. The idioms determined in the work, the number of lines and the number of pages will be determined. How often the author has used idiomatic word groups and will evaluate the meaning he adds to the sentence. Key words: Mevlana, Mesnevi, İdiom, Language Study
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Mesquita, Rafael, Nienke Nakken, Daisy J. A. Janssen, Esther H. A. van den Bogaart, Jeannet M. L. Delbressine, Hans Essers, Kenneth Meijer, et al. "LATE-BREAKING ABSTRACT: Physical activity and sedentary behaviour in patients with COPD and their resident loved ones." In ERS International Congress 2016 abstracts. European Respiratory Society, 2016. http://dx.doi.org/10.1183/13993003.congress-2016.oa1516.

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Stoustrup, Anna, Daisy J. A. Janssen, Nienke Nakken, Emiel F. M. Wouters, Ulla M. Weinreich, and Martijn A. Spruit. "Lack of association between self-perceived social support and treatable traits in COPD patients with resident loved ones." In ERS International Congress 2023 abstracts. European Respiratory Society, 2023. http://dx.doi.org/10.1183/13993003.congress-2023.pa2424.

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Horner, Sophy, Maddy Bass, and Sue McGraw. "P-117 Last days matter – a programme to help lay families look after their loved ones at home." In A New World – Changing the landscape in end of life care, Hospice UK National Conference, 3–5 November 2021, Liverpool. British Medical Journal Publishing Group, 2021. http://dx.doi.org/10.1136/spcare-2021-hospice.134.

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Hamplová, Lidmila, Soňa Jexová, Veronika Pišová, and Petr Hulinský. "Application of the brief intervention method in prevention of HIV/AIDS spread - 6 years of project implementation." In Život ve zdraví 2021. Brno: Masaryk University Press, 2021. http://dx.doi.org/10.5817/cz.muni.p280-0076-2021-5.

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The National Programme for Addressing HIV/AIDS in the Czech Republic 2018- 2022 is a strategic document for combating the spread of HIV/AIDS and other sexually transmitted infections in the Czech Republic. The activities of the programme are funded by the Czech Republic’s Ministry of Health’s subsidy programmed called the National Programme on HIV AIDS. The target population groups of the programme are not only persons at high risk of HIV/AIDS infection due to risky sexual behaviour, but also adolescents, teenagers, and other persons of reproductive age with a lower level of health literacy. One possibility that could increase their level of knowledge is the short intervention method, which is also applicable in the field of prevention of sexually transmitted diseases. The aim and purpose of the brief intervention method recommended by the WHO is to increase the health literacy of the intervened persons, eliminate their risky behaviour and promote their reproductive health. Reducing the incidence of HIV-positive persons in the population brings significant financial savings in terms of reduced treatment costs for both HIV-positive patients and especially those with advanced AIDS. The application of the brief intervention method in the field of prevention of HIV/AIDS and other STIs was the essence of the 6-year project conducted by the University of Health Sciences in health care facilities across the Czech Republic. Patients were privately familiarised with the content of educational cards and were offered the opportunity for a closer consultation on the topic. After the education, the effectiveness of the intervention was evaluated by a short questionnaire. 5,146 people of reproductive age were intervened in more than 150 health care facilities across the country during the implementation of the 6-year project. A total of 1,347 patients (26%) reported that their loved ones were not adequately protected from HIV/AIDS and other STIs. Only 56% of the male and 66% of the female respondents reported that they had ever spoken to their loved ones about STI prevention. After the education, 56% of the 89 reproductive-age interveners requested copies of the education cards for their loved ones. Increased health literacy due to education was more often acknowledged by women than men, and especially by those in the 15-25 age group, where 74% of those in this age group who intervened confirmed increased health literacy. Women (75%) were more likely than men to believe that their loved ones were not adequately protecting themselves from STIs. Patients with lower levels of education were more likely to admit an increase in health literacy than those with university education (64%). 71% of patients with only primary education, completed at fifteen years old in the Czech Republic, said their health literacy had increased. 70% or patients who finished their schooling after secondary education, completed at eighteen years old in the Czech Republic, said their health literacy had increased. Over the course of 6 years, more than 5,000 people of reproductive age were educated in the project. The health care environment in which the interventions were implemented contributed significantly to the success of the brief intervention method. The realisation of the project by the College of Health contributed to the implementation of the National Programme for Addressing HIV/AIDS in the Czech Republic 2018-2022 and at the same time the National Action Plan, entitled Development of Health Literacy.
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Reports on the topic "Boundaries with loved ones"

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Guengerich, Terri. Support California Family Caregivers and Their Loved Ones: Infographic. AARP Research, June 2019. http://dx.doi.org/10.26419/res.00259.058.

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Ripoll, Santiago. Death and Funerary Practices in the Context of Epidemics: Upholding the Rights of Religious Minorities. Institute of Development Studies (IDS), October 2020. http://dx.doi.org/10.19088/creid.2020.001.

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This working paper explores the challenges that emerge when public health measures to mitigate the risk of infection during an epidemic infringe on the rights of religious communities to say a final farewell to their loved ones according to their custom. The paper aims to answer these questions: how does epidemic response in the context of death and burials frame and impact religious minority rights? And in turn, how do sectarian dynamics reposition themselves in the context of epidemic response?
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Bonvecchi, Alejandro, Ernesto Calvo, Susana Otálvaro-Ramírez, and Carlos Scartascini. Research Insights: Can a Crisis Reduce Trust in the President to the Point that Citizens Do Not Accept Fiscal Reforms or Economic Sacrifices Intended to Overcome It? Inter-American Development Bank, June 2023. http://dx.doi.org/10.18235/0004950.

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Survey data for Argentina and Uruguay do not show a decline in trust in the president among those whose health was compromised by COVID-19. Over time, trust in the president increased in Uruguay and declined in Argentina among the population at large. Evidence on support for greater economic sacrifices was mixed. Compared to the population in general, those whose health or that of their loved ones was affected by the virus showed more support for the economic sacrifices necessary to exit the pandemic.
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DiAngelo, Lucy, Libby Lowry, Kayla McDaniel, Clare Sauser, Shelby Terry, and Erin Williams. Increasing Confidence and Mental Health in Caregivers. University of Tennessee Health Science Center, May 2021. http://dx.doi.org/10.21007/chp.mot2.2021.0011.

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The purpose of our critically appraised topic is to synthesize the highest-level evidence available regarding interventions for increasing confidence and mental health outcomes in caregivers taking loved ones home from inpatient rehabilitation. The final portfolio contains six research articles from peer-reviewed journals. Study designs include randomized control trials, a systematic review, and a pretest-posttest without a control group. All studies relate directly to the components of the PICO question. Four of the articles discussed both caregiver confidence and mental health while two articles discussed only mental health. There is strong evidence to support that in-person hands on training, in person discussion-based training, and/or virtual resources helped increase confidence in caregivers of patients. There is mixed evidence and only limited improvement to support mental health. The findings from this critically appraised topic will be used to draft new ideas for practice guidelines for addressing caregiver education and caregiver mental health in an inpatient rehabilitation facility.
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Caballero, Ricardo J. Macroeconomic Volatility in Latin America: A View and Three Case Studies. Inter-American Development Bank, August 2000. http://dx.doi.org/10.18235/0010988.

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After decades of trial, error, and occasional regress, the pieces of a successful Latin American economic model can be seen scattered among the leading economies of the region. The most traditional macroeconomic maladies of the emerging world, such as chronic fiscal imbalances and monetary gimmicks, are gradually being left behind. Many of these economies have made significant progress in their regulatory and supervisory frameworks and, at times, have been leaders beyond Latin American boundaries in allowing private sector co-participation in a wide array of ex-public sector activities. Despite these significant efforts, several structural sources of volatility remain, and new ones have emerged as a result of the new and otherwise better economic environment.
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Borgès Da Silva, Roxane. COVID-19 : Comprendre et agir sur l’acceptabilité sociale des mesures de santé publique. CIRANO, May 2022. http://dx.doi.org/10.54932/izck1391.

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As of May 14, masks will no longer be required to be worn in indoor public places such as businesses, schools and daycares. It will continue to be required in public transportation, hospitals, medical clinics and CHSLDs. A survey conducted by the Institut national de santé publique du Québec from April 15 to 27 shows that two-thirds of respondents still intend to continue wearing the mask. But in reality, how will Quebecers react? What will be their motivations? How can we ensure that they make informed choices based on their circumstances and the objective risk factors they - and those around them - face? And how do we avoid the ostracization of those who will continue to wear the mask? Research inspired by experimental economics provides insight into the role that awareness and improved knowledge of the real risks associated with COVID-19 can play in people's intentions and reactions following the implementation - or removal - of various measures. This short text presents the results of two experimental studies conducted in the specific context of the reopening of schools in September 2020. These studies allow us to draw two main conclusions about the social acceptability of health measures and individual choices in the face of the pandemic: It is essential to provide valid, accurate, and simple sources of information to inform and reassure the population about the risks of developing COVID-19, without causing "cognitive overload." Simple awareness tools, clear and evidence-based information can have an impact on people's perceptions and choices when it comes to their health or that of their loved ones.
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MacFarlane, Andrew. 2021 medical student essay prize winner - A case of grief. Society for Academic Primary Care, July 2021. http://dx.doi.org/10.37361/medstudessay.2021.1.1.

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As a student undertaking a Longitudinal Integrated Clerkship (LIC)1 based in a GP practice in a rural community in the North of Scotland, I have been lucky to be given responsibility and my own clinic lists. Every day I conduct consultations that change my practice: the challenge of clinically applying the theory I have studied, controlling a consultation and efficiently exploring a patient's problems, empathising with and empowering them to play a part in their own care2 – and most difficult I feel – dealing with the vast amount of uncertainty that medicine, and particularly primary care, presents to both clinician and patient. I initially consulted with a lady in her 60s who attended with her husband, complaining of severe lower back pain who was very difficult to assess due to her pain level. Her husband was understandably concerned about the degree of pain she was in. After assessment and discussion with one of the GPs, we agreed some pain relief and a physio assessment in the next few days would be a practical plan. The patient had one red flag, some leg weakness and numbness, which was her ‘normal’ on account of her multiple sclerosis. At the physio assessment a few days later, the physio felt things were worse and some urgent bloods were ordered, unfortunately finding raised cancer and inflammatory markers. A CT scan of the lung found widespread cancer, a later CT of the head after some developing some acute confusion found brain metastases, and a week and a half after presenting to me, the patient sadly died in hospital. While that was all impactful enough on me, it was the follow-up appointment with the husband who attended on the last triage slot of the evening two weeks later that I found completely altered my understanding of grief and the mourning of a loved one. The husband had asked to speak to a Andrew MacFarlane Year 3 ScotGEM Medical Student 2 doctor just to talk about what had happened to his wife. The GP decided that it would be better if he came into the practice - strictly he probably should have been consulted with over the phone due to coronavirus restrictions - but he was asked what he would prefer and he opted to come in. I sat in on the consultation, I had been helping with any examinations the triage doctor needed and I recognised that this was the husband of the lady I had seen a few weeks earlier. He came in and sat down, head lowered, hands fiddling with the zip on his jacket, trying to find what to say. The GP sat, turned so that they were opposite each other with no desk between them - I was seated off to the side, an onlooker, but acknowledged by the patient with a kind nod when he entered the room. The GP asked gently, “How are you doing?” and roughly 30 seconds passed (a long time in a conversation) before the patient spoke. “I just really miss her…” he whispered with great effort, “I don’t understand how this all happened.” Over the next 45 minutes, he spoke about his wife, how much pain she had been in, the rapid deterioration he witnessed, the cancer being found, and cruelly how she had passed away after he had gone home to get some rest after being by her bedside all day in the hospital. He talked about how they had met, how much he missed her, how empty the house felt without her, and asking himself and us how he was meant to move forward with his life. He had a lot of questions for us, and for himself. Had we missed anything – had he missed anything? The GP really just listened for almost the whole consultation, speaking to him gently, reassuring him that this wasn’t his or anyone’s fault. She stated that this was an awful time for him and that what he was feeling was entirely normal and something we will all universally go through. She emphasised that while it wasn’t helpful at the moment, that things would get better over time.3 He was really glad I was there – having shared a consultation with his wife and I – he thanked me emphatically even though I felt like I hadn’t really helped at all. After some tears, frequent moments of silence and a lot of questions, he left having gotten a lot off his chest. “You just have to listen to people, be there for them as they go through things, and answer their questions as best you can” urged my GP as we discussed the case when the patient left. Almost all family caregivers contact their GP with regards to grief and this consultation really made me realise how important an aspect of my practice it will be in the future.4 It has also made me reflect on the emphasis on undergraduate teaching around ‘breaking bad news’ to patients, but nothing taught about when patients are in the process of grieving further down the line.5 The skill Andrew MacFarlane Year 3 ScotGEM Medical Student 3 required to manage a grieving patient is not one limited to general practice. Patients may grieve the loss of function from acute trauma through to chronic illness in all specialties of medicine - in addition to ‘traditional’ grief from loss of family or friends.6 There wasn’t anything ‘medical’ in the consultation, but I came away from it with a real sense of purpose as to why this career is such a privilege. We look after patients so they can spend as much quality time as they are given with their loved ones, and their loved ones are the ones we care for after they are gone. We as doctors are the constant, and we have to meet patients with compassion at their most difficult times – because it is as much a part of the job as the knowledge and the science – and it is the part of us that patients will remember long after they leave our clinic room. Word Count: 993 words References 1. ScotGEM MBChB - Subjects - University of St Andrews [Internet]. [cited 2021 Mar 27]. Available from: https://www.st-andrews.ac.uk/subjects/medicine/scotgem-mbchb/ 2. Shared decision making in realistic medicine: what works - gov.scot [Internet]. [cited 2021 Mar 27]. Available from: https://www.gov.scot/publications/works-support-promote-shared-decisionmaking-synthesis-recent-evidence/pages/1/ 3. Ghesquiere AR, Patel SR, Kaplan DB, Bruce ML. Primary care providers’ bereavement care practices: Recommendations for research directions. Int J Geriatr Psychiatry. 2014 Dec;29(12):1221–9. 4. Nielsen MK, Christensen K, Neergaard MA, Bidstrup PE, Guldin M-B. Grief symptoms and primary care use: a prospective study of family caregivers. BJGP Open [Internet]. 2020 Aug 1 [cited 2021 Mar 27];4(3). Available from: https://bjgpopen.org/content/4/3/bjgpopen20X101063 5. O’Connor M, Breen LJ. General Practitioners’ experiences of bereavement care and their educational support needs: a qualitative study. BMC Medical Education. 2014 Mar 27;14(1):59. 6. Sikstrom L, Saikaly R, Ferguson G, Mosher PJ, Bonato S, Soklaridis S. Being there: A scoping review of grief support training in medical education. PLOS ONE. 2019 Nov 27;14(11):e0224325.
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8

Shamblin, Robert, Kevin Whelan, Mario Londono, and Judd Patterson. South Florida/Caribbean Network early detection protocol for exotic plants: Corridors of invasiveness. National Park Service, July 2022. http://dx.doi.org/10.36967/nrr-2293364.

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Abstract:
Exotic plant populations can be potentially catastrophic to the natural communities of South Florida. Aggressive exotics such as Brazillian Pepper (Schinus terebinthifolius) and Melaleuca (Melaleuca quinquinervia) have displaced native habitats and formed monocultures of exotic stands (Dalrymple et al. 2003). Nearby plant nurseries, especially the ones outside the boundaries of Biscayne National Park (BISC) and Everglades National Park (EVER), are a continuous source of new exotic species that may become established within South Florida’s national parks. Early detection and rapid response to these new species of exotic plants is important to maintaining the integrity of the parks’ natural habitats and is a cost-effective approach to management. The South Florida/Caribbean Network (SFCN) developed the South Florida/Caribbean Network Early Detection Protocol for Exotic Plants to target early detection of these potential invaders. Three national parks of South Florida are monitored for invasive, exotic plants using this protocol: Big Cypress National Preserve (BICY), Biscayne National Park (BISC), and Everglades National Park (EVER). These national parks include some 2,411,000 acres (3,767.2 square miles [mi2]) that encompass a variety of habitat types. To monitor the entire area for new species would not be feasible; therefore the basic approach of this protocol is to scan major “corridors of invasiveness,” e.g., paved and unpaved roads, trails, trail heads, off road vehicle (ORV) trails, boat ramps, canals, and campgrounds, for exotic plant species new to the national parks of South Florida. Sampling is optimized using a two- to three-person crew: a trained botanist, a certified herbicide applicator, and optionally a SFCN (or IPMT [Invasive Plant Management Team]) staff member or park staff to take photographs and help with data collection. If infestations are small, they are treated immediately by the herbicide applicator. If large, they are reported to park staff and the Invasive Plant Management Team. The sampling domain is partitioned into five regions, with one region sampled per year. Regions include the terrestrial habitats of Biscayne National Park, the eastern region of Everglades National Park, the western region of Everglades National Park, the northern region of Big Cypress National Preserve, and the southern region of Big Cypress National Preserve. Monitoring of roads, trails, and canals occurs while traveling into and through the parks (i.e., travel at 2–10 mph) using motorized vehicles, airboats, and/or hiking. Campgrounds, boat launches, trailheads, and similar areas, involve complete searches. When an exotic plant is observed, a GPS location is obtained, and coordinates are taken of the plant. Photographs are not taken for every exotic plant encountered, but photographs will be taken for new and unusual species (for example a coastal exotic found in inland habitats). Information recorded at each location includes the species name, size of infestation, abundance, cover class, any treatment/control action taken, and relevant notes. During the surveys, a GPS “track” is also recorded to document the areas surveyed and a field of view is estimated. Field notes, pictures, and GPS data are compiled, entered, and analyzed in a Microsoft Access database. Resource briefs (and optional data summary reports) and associated shapefiles and data are then produced and sent to contacts within the corresponding national parks.
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