Journal articles: 'Assessment of chronic illness care'

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Wensing, Michel, and Jan Van Lieshout. "Patients Assessment of Chronic Illness Care." Health Expectations 13, no. 2 (June 2010): 218. http://dx.doi.org/10.1111/j.1369-7625.2010.00610_1.x.

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Aghili, Rokhsareh, Ameneh Ebrahim Valojerdi, Amir Farshchi, and Mohammad Ebrahim Khamseh. "Type 2 diabetes: patient assessment of chronic illness care." Journal of Diabetes & Metabolic Disorders 20, no. 1 (January 14, 2021): 7–13. http://dx.doi.org/10.1007/s40200-020-00540-1.

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Lewis, Mary Beth, and Eric J. Peterson. "Spirituality as a Coping Mechanism for Chronic Illness." Clinical Scholars Review 6, no. 1 (2013): 53–59. http://dx.doi.org/10.1891/1939-2095.6.1.53.

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Chronic illness and sickness includes more than just the physical treatment of a disease process. Health care relational models emphasize that adequate care for an illness involves ensuring that a patient’s emotional health and well-being is addressed along with one’s physical well-being. During a health care assessment, a doctorally prepared advanced practice nurse (APN) should take into consideration the patient’s physiological, social, neurological, and spiritual health. Today’s health care arena does not allow or reimburse for lengthy assessments or extensive health histories, practices, and support systems. The time allotted instead is spent listening to each patient’s current issues, making an assessment and diagnosis, and formulating a treatment plan and educating the patient accordingly. Because of the drive for efficiency, mainly because of reimbursement reductions, providers may doubt the necessity to discuss spirituality in the management of chronic illness. Patients that lack a social support system especially may benefit from a doctorally prepared APN’s nurturing of their spirituality for emotional comfort. Spirituality influences the ability of the patient to cope with chronic pain, either negatively or positively, and is acknowledged by doctorally prepared APNs as an important coping mechanism. For these reasons, doctorally prepared APNs should be aware of community resources to support patients with their spiritual growth and well-being.

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Barcelo, Alberto, Fernando Colugnati, Arise Galil, and Elaine Amaral. "Linking manager's, health provider's and patient's assessment of chronic illness care." International Journal of Integrated Care 19, no. 4 (August 8, 2019): 557. http://dx.doi.org/10.5334/ijic.s3557.

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Costa, Karine Cavalcante da, Luiza Helena de Oliveira Cazola, and Edson Mamoru Tamaki. "Assessment of Chronic Illness Care (ACIC): avaliação da aplicabilidade e resultados." Saúde em Debate 40, no. 108 (March 2016): 106–17. http://dx.doi.org/10.1590/0103-1104-20161080009.

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Estudo descritivo de abordagem quanti-qualitativa, cujo objetivo foi avaliar a aplicação do Assessment of Chronic Illness Care (ACIC) e seus resultados junto aos profissionais de equipes da Estratégia Saúde da Família, em Campo Grande (MS). A amostra constituiu-se de 30 profissionais em 5 equipes, e a coleta de dados foi realizada em maio e junho de 2014, por meio do instrumento ACIC. A média das equipes resultou em capacidade razoável para atenção às condições crônicas, sendo o sistema de informação clínica a principal fragilidade e o desenho do sistema de prestação de serviços de saúde, o maior potencial.

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Aung, Eindra, Remo Ostini, Jo Dower, Maria Donald, Joseph R. Coll, Gail M. Williams, and Suhail A. R. Doi. "Patient Assessment of Chronic Illness Care (PACIC) in Type 2 Diabetes." Evaluation & the Health Professions 39, no. 2 (November 6, 2014): 185–203. http://dx.doi.org/10.1177/0163278714556674.

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Buatois, Emily M., Les P. Covington, Nicole D. Lopez, Rodney B. Young, and Eric J. MacLaughlin. "Impact of a Pharmacist-Led Chronic Disease State Management Clinic on Patient Assessment of Chronic Illness Care." Journal of Patient Experience 9 (January 2022): 237437352211056. http://dx.doi.org/10.1177/23743735221105682.

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Background: The Patient Assessment of Chronic Illness Care (PACIC) tool measures patient satisfaction with chronic disease care. Objective: A modified PACIC tool (PACIC-RxFM) was used to assess patient satisfaction in a pharmacist-led chronic disease state management clinic. The secondary outcome compared satisfaction with pharmacist-led and physician-led visits. Methods: This cross-sectional study surveyed individuals with ≥ 1 chronic disease who saw a pharmacist (pharmacotherapy) or primary care provider (usual care) in the Texas Tech Physicians Family Medicine Clinic. The PACIC-RxFM survey included 15 items rated on a five-point Likert scale (5 = “always satisfied”). Results: A total of 107 patients with no significant differences in demographics or complexity between groups were surveyed. All mean domain scores indicated a high level of satisfaction in the pharmacotherapy group with statements regarding perceptions of care organization and encouragement to go to group classes yielding statistically significantly higher scores than the usual care group. Conclusion: Patients are satisfied with both providers’ and pharmacists’ involvement in chronic illness care. This involvement leads to significant improvement in patient perception of care organization.

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Carryer, Jenny, Claire Budge, Chiquita Hansen, and Katherine Gibbs. "Modifying the PACIC to assess provision of chronic illness care: An exploratory study with primary health care nurses." Journal of Primary Health Care 2, no. 2 (2010): 118. http://dx.doi.org/10.1071/hc10118.

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INTRODUCTION: In line with Wagners Chronic Care Model, the Patient Assessment of Chronic Illness Care (PACIC) has been developed to evaluate chronic illness care delivery from the patient's perspective. Modification of the instrument to assess the same aspects of care delivery from the health practitioners perspective would enable individual practitioners to evaluate their own provision of self-management support, and would also enable a more direct comparison between care provided and care received within the chronic illness context. AIM: To explore the potential of a modified PACIC instrument to assess individual health practitioners delivery of care to chronic illness patients with a sample of primary health care nurses. METHODS: Seventy-seven primary care nurses completed the modified PACIC, reworded to ask about care provision rather than receipt of care. An additional seven cultural sensitivity items were included, as were questions about the suitability of the types of chronic illness care and who should be providing the care. RESULTS: The modified PACIC items appear to be appropriate for use with health practitioners. Agreement that the types of care described in the PACIC should be provided was almost unanimous, and the predominant view was that self-management support should be provided by both nurses and doctors. Mean scale scores were higher than those generally reported from studies using the PACIC. DISCUSSION: The results of this first evaluation of a modified PACIC suggest that the original items plus the cultural sensitivity items can be used to assess self-management support by individual health practitioners. KEYWORDS: Chronic illness; self-management; primary health care, nurses

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Monsen, Karen A., Diane E. Holland, Ping W. Fung-Houger, and Catherine E. Vanderboom. "Seeing the Whole Person: Feasibility of Using the Omaha System to Describe Strengths of Older Adults With Chronic Illness." Research and Theory for Nursing Practice 28, no. 4 (2014): 299–315. http://dx.doi.org/10.1891/1541-6577.28.4.299.

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A promising strategy for enhancing care and self-management of chronic illness is an integrative, whole-person approach that recognizes and values well-being. Assessment tools are needed that will enable health care professionals to perceive patients as whole persons, with strengths as well as problems. The purpose of this study was to examine the feasibility of using a standardized terminology (theOmaha System) to describe strengths of older adults with chronic illness. The Omaha System assessment currently consists of identifying signs/symptoms for 42 health concepts. Researchers mapped self-reported strengths phrases to Omaha System concepts using existing narratives of 32 older adults with 12–15 comorbid conditions. Results demonstrated the feasibility of describing strengths of patients with chronic illness. Exploratory analysis showed that there were 0–9 strengths per patient, with unique strengths profiles for 30 of 32 patients. Given that older adults with multiple chronic illnesses also have strengths that can be classified and quantified using the Omaha System, there is potential to use the Omaha System as a whole-person assessment tool that enables perception of both problems and strengths. Further research is needed to enhance the Omaha System to formally represent strengths-based as well as a problem-focused perspectives.

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Zimmermann Tansella, C. "Psychosocial factors and chronic illness in childhood." European Psychiatry 10, no. 6 (1995): 297–305. http://dx.doi.org/10.1016/0924-9338(96)80311-7.

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SummaryChronic illness in a child requires successful organisational and emotional adjustment of the child and the family. The way in which the child and the family adapt to the illness will affect their psychological well-being and their quality of life. This review summarizes recent research findings on the relationship between illness factors, individual and family functioning, coping strategies and psychosocial adjustment. The findings are presented within the framework of three complementary theoretical models: the family developmental approach; the psychosocial typology of illnesses; and the process model of stress and coping. These models are useful for a better understanding of the complex interactions between illness, family and coping and offer to the professionals engaged in the care of chronically sick children, guidelines for assessment and the development of intervention programs. The review starts with examining the impact of chronic illness on the psychosocial adjustment of the sick child, his/her siblings and parents. Then psychosocial Stressors and risk factors in terms of illness and family related characteristics are discussed. Coping resources and strategies are presented which have been shown to be related to child and parental adjustment; and finally, successful intervention programs are described.

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Lui, Jacob Z., Nathan P. Young, Jon O. Ebbert, Jordan K. Rosedahl, and Lindsey M. Philpot. "Loneliness and Migraine Self-Management: A Cross-Sectional Assessment." Journal of Primary Care & Community Health 11 (January 2020): 215013272092487. http://dx.doi.org/10.1177/2150132720924874.

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Background: Chronic illness is often comorbid with the psychological state of loneliness. Models of care for patients who experience chronic migraines may often lack an understanding of psychosocial influences of the illness. Addressing the effects of loneliness on the health behaviors of chronic migraine patients may further elucidate gaps in care that exist beyond the biomedical approach to migraine treatment. The primary aim of this study was to assess the relationship between loneliness and behavioral health decisions in chronic migraine patients, specifically patient ability to self-manage, and effectiveness of treatments. Methods: We conducted a cross-sectional survey among patients (n = 500) with migraine and assessed for the experience of loneliness by using the University of California, Los Angeles–Revised (UCLA-R) Three-item Loneliness Scale and the extent of migraine-related disability via the Migraine Disability Assessment (MIDAS). Furthermore, we evaluated patients for their ability to self-manage their migraines, and perceived effectiveness of treatment. Results: Nearly half of our population reported at least one measure of loneliness (230/500, 46.0%). Patients experiencing chronic migraine were statistically more likely to report feeling lonely when compared to patients with episodic migraines ( P < .001). Patients who report loneliness had lower odds of feeling ’very satisfied” with their ability to self-manage their migraine symptoms (aOR = 0.34, 95% CI 0.14-0.81) and had lower odds of feeling “very satisfied” with their ability to avoid conditions that cause their headache (aOR = 0.39, 95% CI 0.16-0.91). Conclusions: Loneliness has significant effects on the illness experience of patients with chronic migraines, including their ability to self-manage or be satisfied with their current state of care. Psychosocial models of care that address loneliness among patients with chronic migraine may help improve health outcomes and management.

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Kelly, Maria, and Georgina Gethin. "Prevalence of Chronic Illness and Risk Factors for Chronic Illness Among Patients With Venous Leg Ulceration: A Cross-Sectional Study." International Journal of Lower Extremity Wounds 18, no. 3 (May 29, 2019): 301–8. http://dx.doi.org/10.1177/1534734619850444.

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Introduction. Chronic illness and risk factors for chronic illness are rising public health concerns for individuals and health care systems. Individuals with venous leg ulceration (VLU) have at least one chronic illness. As there is a projected increase in VLU prevalence there is a need to determine concurrent prevalence of risk factors for chronic illness among this population. Methods. A cross-sectional design conducted in 8 community, nurse-led, leg ulcer clinics. Results. Fifty patients (58%, n = 29 females) were enrolled. Seventy percent were >65 years old; 90% had at least one chronic illness; 60% had hypertension; 30% had atrial fibrillation; 18% had diabetes; 18% heart failure; and 28.6% musculoskeletal conditions. All had at least one risk factors for chronic illness (mean = 2.26), the most frequent being overweight (30%), obesity (30%), high cholesterol (22.2%), and restricted physical activity (22%). Participants took a mean 5.2 medications daily and 26% were on current oral antibiotics. Conclusions. Comprehensive, holistic assessment and regular reassessment with a preventative focus needs to consider chronic illness and risk factors for chronic illness. Patients with VLU are in frequent contact with their multidisciplinary team. This is an opportunity to improve care and make every encounter count.

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Glasgow, Russell E., Edward H. Wagner, Judith Schaefer, Lisa D. Mahoney, Robert J. Reid, and Sarah M. Greene. "Development and Validation of the Patient Assessment of Chronic Illness Care (PACIC)." Medical Care 43, no. 5 (May 2005): 436–44. http://dx.doi.org/10.1097/01.mlr.0000160375.47920.8c.

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Schmittdiel, Julie, David M. Mosen, Russell E. Glasgow, Judith Hibbard, Carol Remmers, and Jim Bellows. "Patient Assessment of Chronic Illness Care (PACIC) and Improved Patient-centered Outcomes for Chronic Conditions." Journal of General Internal Medicine 23, no. 1 (November 21, 2007): 77–80. http://dx.doi.org/10.1007/s11606-007-0452-5.

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De Hert, M., R. van Winkel, A. Silic, D. Van Eyck, and J. Peuskens. "Physical health management in psychiatric settings." European Psychiatry 25, S2 (June 2010): S22—S28. http://dx.doi.org/10.1016/s0924-9338(10)71702-8.

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AbstractSevere mental disorders have a chronic course associated with a high risk for co-morbid somatic illnesses and premature mortality, but despite this increased risk, general health care needs in this population are often neglected. Over recent years, several groups have developed screening and monitoring guidelines for metabolic and cardiovascular risk assessment in patients treated with antipsychotics. The psychiatrist needs to be aware of the potential metabolic side-effects of antipsychotic medication and to include them in the risk/benefit assessment when choosing a specific antipsychotic. He should also be responsible for the implementation of the necessary screening assessments and referral for treatment of any physical illness. Multidisciplinary assessment of psychiatric and medical conditions is needed. The somatic treatments offered to people with severe and enduring mental illness should be at par with general health care in the non-psychiatrically ill population. In our University Centre, a structured and elaborate screening and monitoring protocol was introduced in late 2003. This paper describes the practical aspects of this monitoring protocol and the results obtained 4 years after its implementation.

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Wolock, Elizabeth R., Alexander H. Queen, Gabriela M. Rodríguez, and John R. Weisz. "Chronic Illness and Internalizing Symptomatology in a Transdiagnostic Clinical Sample of Youth." Journal of Pediatric Psychology 45, no. 6 (May 9, 2020): 633–42. http://dx.doi.org/10.1093/jpepsy/jsaa028.

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Abstract Objective In research with community samples, children with chronic physical illnesses have shown elevated anxiety and depressive symptoms, compared to healthy peers. Less is known about whether physical illnesses are associated with elevated internalizing symptoms even among children referred for mental health treatment—a pattern that would indicate distinctive treatment needs among physically ill children receiving mental health care. We investigated the relationship between chronic physical illness and internalizing symptomatology among children enrolling in outpatient mental health treatment. Method A total of 262 treatment-seeking children ages 7–15 and their caregivers completed a demographic questionnaire, Child Behavior Checklist, and Youth Self-Report during a pre-treatment assessment. Physical illnesses were identified through caregiver report. Results There was no overall association between the presence/absence of chronic physical illness and parent- or child-reported symptoms. However, number of chronic physical illnesses was related to parent- and child-reported affective symptoms. Children with two or more chronic physical illnesses had more severe depressive symptoms than those with fewer physical illnesses. Conclusion Having multiple chronic illnesses may elevate children’s risk of depression symptomatology, even in comparison to other children seeking mental health care. This suggests a need to identify factors that may exacerbate depression symptoms in physically ill children who are initiating therapy and to determine whether different or more intensive services may be helpful for this group. The findings suggest the potential utility of screening for depression in youth with chronic physical illnesses, as well as addressing mental and physical health concerns during treatment.

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Noel, Polly Hitchcock, Salene Jones, and Michael Parchman. "Patient Experience in an Era of Primary Care Transformation: Revisiting the PACIC." European Journal for Person Centered Healthcare 4, no. 3 (September 29, 2016): 528. http://dx.doi.org/10.5750/ejpch.v4i3.1160.

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Rationale, Aims and Objective: The validation study of thePatient Assessment of Chronic Illness Care (PACIC) questionnaire suggested a 5-factor structure determined a priori, but subsequent analyses have questioned the validity of the original factor structure. This study analyzed the factor structure of the PACIC using a large and diverse patient sample and evaluated the identified factors through the lens of recent transformational initiatives in primary care.Methods: Exploratory and confirmatory factor analyses were conducted on baseline and follow-up patient questionnaire data from a cluster randomized controlled trial. Convenience samples of adults completed surveys in waiting rooms during clinic visits. Primary care patients with 1 or more chronic illnesses with complete PACIC responses at baseline from 39 clinics (n=1,567) and at follow-up from 36 clinics (n=1,536) participated. Identified factors were evaluated in terms of item loadings, content, reliability and the extent to which items reflected advances in the delivery of chronic illness care.Results: Analyses supported the use of the PACIC summary score. Although a 5-factor model was retained, factor loadings were different from the original PACIC validation study. All factors had sufficient reliability, but findings suggested potential revisions to enhance the factor structure.Conclusions: It may be time to revise the PACIC to enhance the stability of the subscales (factors) and better reflect recent transformations in the delivery of chronic illness care.

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Mullen, Richard, Paul Bebbington, and Liz Kuipers. "A workshop for relatives of people with chronic mental illness." Psychiatric Bulletin 16, no. 4 (April 1992): 206–7. http://dx.doi.org/10.1192/pb.16.4.206.

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The District Services Centre of the Maudsley Hospital deals with the care and rehabilitation of people with chronic mental illnesses. Three independent teams of mental health professionals comprise nurses, occupational therapists, psychiatrists, psychologists, and social workers. A multidisciplinary team approach is used in the assessment and management of patients. Most of the patients are either day-patients or ‘supportive’ patients who attend less frequently. The service is thus very much community based and orientated, and the support and involvement of close relatives in the care of the patients is seen as both necessary and desirable.

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Doolan-Noble, Fiona, Robin Gauld, Debra L. Waters, and Sophia Leon De la Barra. "New Zealand health professional and patient perceptions of chronic illness care." European Journal for Person Centered Healthcare 3, no. 1 (February 11, 2015): 4. http://dx.doi.org/10.5750/ejpch.v3i1.852.

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Background: In 2004 the New Zealand Ministry of Health announced additional funding, called Care Plus, for primary care to enhance provision of chronic illness care. There has, however, been no national evaluation of the impact of this additional funding.Objective: The main purpose of this study was to assess patient and primary health care provider (PHCPs) perceptions of chronic illness care in the Southern region of New Zealand.Design and Setting: Cross-sectional survey of patients with multiple chronic conditions in conjunction with a survey of all PHCPs in the Southern Region of New Zealand.Method: The Modified Patient Assessment of Chronic Illness Care (M-PACIC) survey was mailed to a random sample of 500 patients enrolled in Care Plus and all PHCPs in the region. M-PACIC assesses care across six domains: patient activation; delivery system; goal setting; problem solving; follow up and care coordination; and cultural sensitivity.Results: Thirty-one percent (n=198) of PHCPs responded compared to fifty-two percent (n= 259) of patients. At least one response was received from 77% of general practices in the region. The difference in perceptions of care between patients and PHCPs was statistically significant (p=<0.001) across five of the six domains, with the delivery system domain also reaching statistical significance (p=0.018).Conclusion: Overall, patients reported lower chronic care competency scores than health professionals. This suggests that additional funding provided to primary care via the Care Plus programme has not improved the health care experiences of patients living with chronic illness in the region.

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Necyk, Candace, Jeffrey A. Johnson, Ross T. Tsuyuki, and Dean T. Eurich. "Exploring the impact of pharmacist comprehensive annual care plans on perceived quality of chronic illness care by patients in Alberta, Canada." Canadian Pharmacists Journal / Revue des Pharmaciens du Canada 154, no. 5 (July 5, 2021): 331–41. http://dx.doi.org/10.1177/17151635211020340.

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Background: In 2012, the Government of Alberta introduced a funding program to remunerate pharmacists to develop a comprehensive annual care plan (CACP) for patients with complex needs. The objective of this study is to explore patients’ perceptions of the care they received through the pharmacist CACP program in Alberta. Methods: We invited 3442 patients who received a pharmacist-billed CACP within the previous 3 months and 6888 matched controls across Alberta to complete an online questionnaire. The questionnaire consisted of the short version Patient Assessment of Chronic Illness Care (PACIC-11), with 3 additional pharmacy-specific assessment questions added. Additional questions related to health status and demographics were also included. Results: Overall, most patients indicated a low level of chronic illness care by pharmacists, with few differences noted between CACP patients and non-CACP controls. Of note, controls reported higher quality of care for 5 domains within the adapted PACIC-like tool compared with CACP patients ( p < 0.05 for all). Interestingly, only 79 (44%) of CACP patients reported that they had received a CACP, whereas only 192 (66%) of control patients reported that they did not receive a care plan. In a sensitivity analysis including only these respondents, individuals who received a CACP perceived a significantly higher quality of chronic illness care across all PACIC domains. Conclusion: Overall, chronic illness care incentivized by the pharmacist CACP program in Alberta is perceived to be moderate to low. When limited to respondents who explicitly recognized receiving the service or not, the perceptions of quality of care were more positive. This suggests that better implementation of CACP by pharmacists may be associated with improved quality of care and that some redesign is needed to engage patients more. Can Pharm J (Ott) 2021;154:xx-xx.

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Kim, Soo Hyun, Bo Gyeong Lee, and Yu Hyeon Choe. "Psychometric evaluation of patient assessment of chronic illness care among Korean cancer survivors." PLOS ONE 16, no. 8 (August 12, 2021): e0256119. http://dx.doi.org/10.1371/journal.pone.0256119.

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Background The Patient Assessment of Chronic Illness Care (PACIC) was developed in the United States to assess the implementation of the Chronic Care Model (CCM)-based intervention from the patient’s perspective. Although the psychometric properties of the PACIC have been reported in other chronically ill patients, it has not been reported in cancer survivors. Our aim was to evaluate the acceptability, validity, and reliability of a Korean version of the PACIC among cancer survivors (K-PACIC-CS). Methods Among 204 cancer survivors at a university-based hospital in South Korea, we performed psychometric evaluation of the K-PACIC-CS according to acceptability (descriptive statistics, missing values, and floor and ceiling effects), validity (confirmative factor analysis [CFA] and convergent validity), and reliability (internal consistency, i.e., Cronbach’s alpha). Results The item response was high (missing rate = 0.5%). The floor effect was 3.9%– 43.6% and the ceiling effect was 6.9%– 41.2%. The CFA revealed good indices of fit and confirmed the five structures predetermined in the original version of PACIC. The K-PACIC-CS scores had significant positive relationships with cancer survivors’ self-efficacy and health-related quality of life. The total K-PACIC-CS showed excellent internal consistency (Cronbach’s alpha = .94) and those of the subscales were acceptable (Cronbach’s alpha = .76 -.86). Conclusions This study suggests that the K-PACIC-CS is a valid and reliable instrument for measuring implementation of CCM-based chronic care from the survivor’s perspective.

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MORRISEY, ROBIN, ELIZABETH KACZMAR, ALEXIA TSIMIKAS, FRANCES M. ARNOLD, TAYLOR CLARK, JAMES MCCALLUM, and ADDIE L. FORTMANN. "Evaluating T1DM Patient Experience Using the Patient Assessment of Chronic Illness Care Survey." Diabetes 67, Supplement 1 (May 2018): 2326—PUB. http://dx.doi.org/10.2337/db18-2326-pub.

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Bonomi, Amy E., Edward H. Wagner, Russell E. Glasgow, and Michael VonKorff. "Assessment of Chronic Illness Care (ACIC): A Practical Tool to Measure Quality Improvement." Health Services Research 37, no. 3 (June 2002): 791–820. http://dx.doi.org/10.1111/1475-6773.00049.

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Huntink, Elke, Jan Koetsenruijter, Michel Wensing, and Jan van Lieshout. "Patient cardiovascular risk self-management: results from a randomized trial of motivational interviewing delivered by practice nurses." Family Practice 36, no. 4 (October 1, 2018): 460–66. http://dx.doi.org/10.1093/fampra/cmy087.

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Abstract Background To enhance cardiovascular risk management and patients’ self-management, a tailored programme to improve cardiovascular risk management was tested in a randomized trial. The presented study concerned secondary analysis. Objectives To explore the correlations of practice nurses’ counselling skills at baseline on chronic illness care (measured with Patient Assessment of Chronic Illness Care questionnaire) and patients’ self-management (assessed with Patient Activation Measure) at follow-up and to examine the effect of the tailored implementation programme on chronic illness care and patients’ self-management. Methods A two-arm cluster randomized trial was conducted in 34 general practices in the Netherlands. Counselling skills of practice nurses at baseline were abstracted from audio-taped consultations, which were assessed by Motivational Interviewing Treatment Integrity. Data of 2184 patients with established cardiovascular disease or at high cardiovascular risk were gathered at inclusion and at 6 months follow-up by a composite questionnaire. Multilevel regression analysis was applied, controlling for patient characteristics. Results Counselling skills of practice nurses were not associated with chronic illness care and patients’ self-management scores. At follow-up, patients in the intervention group experienced less chronic illness care and were less activated in disease management than patients in the control group. The most important predictors were patients’ age, gender and education level. Conclusions The logic model underlying the implementation programme needs to be reconsidered, because patient perceptions were neither influenced by nurses’ counselling skills nor by other components of the implementation programme.

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Carryer, Jenny, Claire Budge, Chiquita Hansen, and Katherine Gibbs. "Providing and receiving self-management support for chronic illness: Patients and health practitioners' assessments." Journal of Primary Health Care 2, no. 2 (2010): 124. http://dx.doi.org/10.1071/hc10124.

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INTRODUCTION: Providing care for people with chronic illness is a major issue for health practitioners around the world, especially as populations age. Encouraging self-management is beneficial in terms of relieving the burden on the health system and promoting better health and adherence to medication and advice amongst this group. AIM: To measure the level of self-management support being provided to and received by people living with chronic illness in a District Health Board (DHB) region. METHODS: Self-report questionnaires (PACIC) were completed by 341 people living with chronic illness to measure the self-management support they receive from general practitioners and nurses. A modified version of the PACIC was used with 12 GPs and 77 primary health nurses in the same region to assess the provision of self-management support. RESULTS: Patients’ assessments suggest that they are receiving intermittent self-management support for their chronic illness. A comparison of ratings of different health practitioners revealed that nurses were reported to be providing support more consistently than GPs. The health practitioners rated themselves as providing self-management support more often than the patients reported receiving it. Many clinicians also suggested that not all forms of support are appropriate for everyone, suggesting the need to tailor support to the individual. DISCUSSION: Chronic illness support needs to be considered within the context of the individual and to be embedded in an ongoing relationship between the person and the provider. Findings highlight the benefits of a multidisciplinary team approach to self-management support and education in chronic illness care. KEYWORDS: Chronic disease; self care; primary health care; primary nursing care; physicians, family

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Rodriguez-Blazquez, Carmen, Maria João Forjaz, Antonio Gimeno-Miguel, Kevin Bliek-Bueno, Beatriz Poblador-Plou, Sara Pilar Luengo-Broto, Inmaculada Guerrero-Fernández de Alba, et al. "Assessing the Pilot Implementation of the Integrated Multimorbidity Care Model in Five European Settings: Results from the Joint Action CHRODIS-PLUS." International Journal of Environmental Research and Public Health 17, no. 15 (July 22, 2020): 5268. http://dx.doi.org/10.3390/ijerph17155268.

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Multimorbidity, the coexistence of several chronic conditions in a patient, represents a great challenge for healthcare systems and society. The Integrated Multimorbidity Care Model (IMCM) was recently designed within the Joint Action on chronic diseases and promoting healthy ageing across the life cycle (CHRODIS) to ensure the continuity of care for patients with multimorbidity. The IMCM was implemented in five European pilot sites in Spain, Italy, and Lithuania, within the Joint Action CHRODIS-PLUS. The effect of these pilot interventions was assessed pre- and post-implementation by 17 healthcare managers, using the Assessment of Chronic Illness Care (ACIC) measure, and by 226 patients with the Patient Assessment of Care for Chronic Conditions (PACIC+) survey. The ACIC total score significantly increased (5.23 to 6.71, p = 0.022) after the intervention, with differences across sites. A significant increase in the PACIC+ summary score was found ranging from 3.25 at baseline to 4.03 after the intervention (p < 0.001), and 58% of the sample perceived an improvement in care. Higher PACIC+ scores after the intervention were associated to lower baseline values in the respective PACIC+ dimension and to greater changes in ACIC Part 1 (delivery system organization). The IMCM implementation can help improve the quality of care for patients with multimorbidity.

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Gensichen, J., A. Serras, M. A. Paulitsch, T. Rosemann, J. König, F. M. Gerlach, and J. J. Petersen. "The Patient Assessment of Chronic Illness Care Questionnaire: Evaluation in Patients with Mental Disorders in Primary Care." Community Mental Health Journal 47, no. 4 (August 24, 2010): 447–53. http://dx.doi.org/10.1007/s10597-010-9340-2.

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Arini, Merita, Winny Setyonugroho, Iman Permana, Arlina Dewi, Oryzati Hilman, Riris Andono Ahmad, and Adi Utarini. "The Cross-Cultural Adaptation for Assessment of Chronic Illness Care Questionnaire Into Indonesian Version." Asia Pacific Journal of Public Health 33, no. 5 (May 28, 2021): 627–31. http://dx.doi.org/10.1177/10105395211018090.

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Матюха, Л. Ф., О. В. Процюк, and Б. О. Смаль. "Adaptation and Validation of «The Patient Assessment of Chronic IllnesS Care (PACIC) +» in Ukrainian." Family Medicine, no. 5 (November 30, 2018): 47–52. http://dx.doi.org/10.30841/2307-5112.5.2018.165829.

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Kappelman, Michael, Carol Carr, Robert Sandler, and Joan Walsh. "Adaptation of the assessment of chronic illness care survey for pediatric Inflammatory Bowel Disease." Inflammatory Bowel Diseases 17 (December 2011): S59. http://dx.doi.org/10.1097/00054725-201112002-00188.

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Taggart, Jane, Bibiana Chan, Upali W. Jayasinghe, Bettina Christl, Judy Proudfoot, Patrick Crookes, Justin Beilby, Deborah Black, and Mark F. Harris. "Patients Assessment of Chronic Illness Care (PACIC) in two Australian studies: structure and utility." Journal of Evaluation in Clinical Practice 17, no. 2 (September 16, 2010): 215–21. http://dx.doi.org/10.1111/j.1365-2753.2010.01423.x.

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&NA;. "Honoring the Personal Side of Chronic Illness." Nursing 15, no. 11 (November 1985): 52–57. http://dx.doi.org/10.1097/00152193-198511000-00018.

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Sreedhar, Sreelakshmi, Aswini B, Neethu Poulose, Akhil Hari, and P. N. Sureshkumar. "The quality of life assessment of chronic schizophrenia and diabetic patients with WHO-QOL in Indian population: a comparative study." Research in Pharmacy and Health Sciences 4, no. 2 (May 15, 2018): 442–47. http://dx.doi.org/10.32463/rphs.2018.v04i02.07.

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Background: Schizophrenia is a chronic, severe and disabling psychiatric disorder and diabetes mellitus is one of the most prevalent non-psychiatric chronic illnesses. Both the diseases have common features of their chronicity, economic burden and dysfunction of occupation. QOL becomes more important health outcome tool in disorders that are chronic or where treatment continues over a long period. Methodology: In this study, descriptive survey was used to collect the data. Demographics details, laboratory results, given drugs, medical and medication history were documented into the data entry form and were asked to fill the BREF WHOQOL questionnaires (Malayalam version). Results: The BREF WHOQOL score was high in the Diabetic group in all the four domains as compared with the Schizophrenia group. Since P value is less than .05 in all cases, the difference is statistically significant. Discussion: The schizophrenia patients may have problems in maintaining relationships, frustration in working place, social isolation and stigma which again make their QoL scores lower especially when compared to a chronic physical illness like diabetes. The low score in schizophrenia indicates that mental illness influence above components of this domain. Conclusion: Mental health care is an integral part of healthcare. psychiatric illnesses is associated with lower QoL.

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Vaez, Kelly, Lauren Diegel-Vacek, Catherine Ryan, and Pamela Martyn-Nemeth. "Evaluating Diabetes Care for Patients With Serious Mental Illness Using the Chronic Care Model." Health Services Research and Managerial Epidemiology 4 (January 1, 2017): 233339281773420. http://dx.doi.org/10.1177/2333392817734206.

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People with serious mental illness (SMI) have a higher incidence of type 2 diabetes mellitus (T2DM) and shorter life span due to medical health problems. The chronic care model (CCM) has been used to improve care of patients with T2DM. One clinical organization that provided primary care to patients with SMI had excellent diabetes outcomes but did not have information on how they achieved those outcomes. Thus, we conducted a pilot study chart review for 30 patients with T2DM and SMI to determine how well the clinic’s system aligned with the overall CCM components and which components correlated with diabetes control. We also evaluated use of the CCM using the Assessment of Chronic Illness Care provider survey. Results showed that the clinic had an overall basic implementation level of the CCM, which allows opportunity for improvement. Two elements of the CCM were correlated with hemoglobin A1C and both were in an unexpected direction: self-management support in the variable of percentage of visits that included patient-specific goal-setting ( rs = .52; P = .004) and delivery system design in the variable of number of nurse practitioner visits per study period ( rs = .43; P = .02). These findings suggest that the clinic may have made more concentrated efforts to manage diabetes for patients who were not in good diabetes control. Providers noted the influence of SMI and social service organization support on these patients’ clinical outcomes. The findings will be reexamined after a fuller implementation of the CCM to further improve management in this population.

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Thórarinsdóttir, Kristín, Kristján Kristjánsson, Thóra Jenný Gunnarsdóttir, and Kristín Björnsdóttir. "Facilitation of a Person-Centered Approach in Health Assessment of patients with chronic pain: An Ethnographic Study." Qualitative Health Research 29, no. 4 (April 24, 2018): 471–83. http://dx.doi.org/10.1177/1049732318770628.

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A phenomenologically derived assessment tool, Hermes, was developed in a rehabilitation setting for adopting the central ideals of person-centered care and patient participation into health-assessment practices in nursing. This focused ethnographic study aimed at exploring the feasibility of using Hermes for enabling the application of these ideals into assessment of patients with chronic pain upon admission to a rehabilitation center. Participants were patients with chronic pain, enrolled in rehabilitation, and their nurses. Data were collected by participant observation and interviews, and analyzed by thematic analysis. By the use of Hermes, the impact of illness was explored through supportive connection and dialogue with open, reflective, and interpretative features; understanding of the illness situation was enhanced; and possibilities provided in adjusting to health issues of concern. In sum, Hermes facilitated person-centered participation of patients with chronic pain in their health assessment and made a phenomenological philosophy usable in nursing-assessment practices.

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Silva, Leonel dos Santos, Bruna Eloise Lenhani, Dabna Hellen Tomim, Paulo Ricardo Bittencourt Guimarães, and Luciana Puchalski Kalinke. "Quality of Life of Patients with Advanced Cancer in Palliative Therapy and in Palliative Care." Aquichan 19, no. 3 (August 14, 2019): 1–14. http://dx.doi.org/10.5294/aqui.2019.19.3.7.

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Objective: To assess the quality of life of patients with advanced cancer in palliative therapy and in palliative care. Materials and Methods: Quantitative, observational, cross-sectional, and analytic study conducted in a teaching hospital in Paraná, Brazil, from January to June 2018, with 126 patients: 107 in palliative therapy; 19 in exclusive palliative care. The questionnaires for data collection were: Quality of Life Questionnaire-Core 15-Palliative, Functional Assessment of Chronic Illness Therapy-Palliative Care 14, and Edmonton Symptom Assessment System. The Spearman non-parametric coefficient test was used for the analysis. Results: The overall quality of life in palliative therapy and in palliative care was, respectively, 71.54/59.65; when correlating the total score of quality of life of the Quality of Life Questionnaire-Core 15-Palliative with the Functional Assessment of Chronic Illness Therapy-Palliative Care 14 (p = 0.001), and the Edmonton Symptom Assessment System (p = 0.001), significant difference of better quality of life was observed in the palliative therapy. Conclusion: Patients in palliative therapy have good overall quality of life, while the palliative care group reports regular quality of life. The symptoms were milder in the palliative therapy and more intense and with greater significance in palliative care; hence, knowing the compromise of quality of life will help professionals in planning interventions with transdisciplinary approach for patients and for their families.

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Dimcheva, Teodora, Boryana Levterova, Desislava Bakova, and Nonka Mateva. "HEALTH-RELATED QUALITY OF LIFE AMONG DISPENSARY OBSERVATION PATIENTS WITH CHRONIC ILLNESS IN BULGARIA." CBU International Conference Proceedings 5 (September 24, 2017): 943–47. http://dx.doi.org/10.12955/cbup.v5.1049.

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Introduction: The prevalence of chronic non-communicable diseases (NCDs) worldwide acquires epidemic dimensions. In Europe, five nosological groups (diabetes mellitus, cardiovascular disease, cancer, chronic respiratory diseases and mental disabilities) constitute 77% of NCDs and cause about 86% of deaths in the region.Objectives: This study aimed to assess the quality of life in patients with chronic non-communicable diseases under dispensary observation.Methods: The pilot cross-sectional study was performed among adult with chronic diseases in primary care practices in the Plovdiv district (the second largest in Bulgaria) from May to June 2013.Results: A total of 200 adults with chronic diseases participated in the study. The mean age was 55.6 years (range 25â€“95, standard deviation (SD) 16.9). The most common chronic diseases in our study were cardiovascular 51% (ischemic heart disease, hypertension, etc.), followed by endocrinology diseases (23%). There was statistically significant differences in the assessments of "general health" in different groups of participants by gender (Ď‡2 = 16.65, P <0.002), age (Ď‡2 = 12.57, P <0.05) and social status (Ď‡2 = 28.54, P <0.0001).Conclusion: The subjective assessment of health is a factor that has a strong impact on the quality of life of patients and is an important component in evaluating the effectiveness of provided health care for patients with chronic non-communicable diseases.

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Connelly, Catherine Ecock. "An Empirical Study of a Model of Self-Care in Chronic Illness." Clinical Nurse Specialist 7, no. 5 (September 1993): 247–53. http://dx.doi.org/10.1097/00002800-199309000-00007.

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Carryer, Jenny, Fiona Doolan-Noble, Robin Gauld, and Claire Budge. "New Zealand patients’ perceptions of chronic care delivery." Journal of Integrated Care 22, no. 2 (April 14, 2014): 71–80. http://dx.doi.org/10.1108/jica-12-2013-0048.

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Purpose – Care coordination for patients with chronic conditions is one aim of an integrated health care delivery system. The purpose of this paper is to compare findings from two separate New Zealand studies and discusses the implications of the results. Design/methodology/approach – The paper describes and discusses the use of Patient Assessment of Chronic Illness Care Measure in two different geographic areas of New Zealand and at different times. Findings – The studies suggest that, despite the time that has elapsed since government investment in care coordination for long-term conditions, there has been little change in the nature of service delivery from the patient perspective. Originality/value – The paper highlights the shortcomings of simply providing additional funding for care coordination, without built in accountabilities, no planned evaluation and no concerted focus on what the model of care should look like.

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Davenport, Sarah. "Ensuring the community cares: assessment and evaluation of social care needs in long-term mental illness." Advances in Psychiatric Treatment 12, no. 1 (January 2006): 45–53. http://dx.doi.org/10.1192/apt.12.1.45.

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Clinicians have been divided in their views on whether systematic needs assessment leads to an improvement in the outcome of care for people with chronic mental illness. Policy makers assume that assessment and evaluation will improve the clinical and cost-effectiveness of mental health services. Many of these assumptions are already embedded within mental health policy and practice. A decade of research has not resolved this tension. However, clinicians need to know about the options available to guide systematic assessment and evaluation of care. They can then make informed decisions about their use to promote effective care planning or as a tool to direct socially inclusive service development.

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Salih, Mohammed Hassen, Lena Wettergren, Helena Lindgren, Kerstin Erlandsson, Hussen Mekonen, and Lemma Derseh. "Translation and psychometric evaluation of chronic illness anticipated stigma scale (CIASS) among patients in Ethiopia." PLOS ONE 17, no. 1 (January 21, 2022): e0262744. http://dx.doi.org/10.1371/journal.pone.0262744.

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Background Stigma is common among patients with chronic illnesses. It affects the delivery of healthcare for not addressing the psychological components and may interfere with the patient’s attendance to necessary health care services. Therefore, a valid and reliable instrument to measure anticipated stigma related to chronic illness is vital to inform possible interventions. This study aimed to translate the Chronic Illness Anticipated Stigma Scale (CIASS) into the Amharic language and evaluate its psychometric properties in Ethiopia. Methods The CIASS was translated into Amharic language using standard procedures. The Amharic version was completed by 173 patients (response rate 96%) with chronic illness from three referral hospitals in the Amhara region. Internal consistency was examined through Cronbach’s alpha. Construct validity was evaluated by confirmatory factor analysis and convergent validity by using a Pearson correlation of P-value less than or equal to 0.05. Results The internal consistency was estimated at Cronbach alpha of 0.92. By using a structural equation model, and modification indices a model fitness testing was run and shows a root mean squared error of approximation 0.049 (90% CI, 0.012–0.075). The structural validity results in 78.8% of confirmatory factor analysis showed from the extraction of the three-dimension (components). Validity tests for convergent by using Pearson correlation positively correlated with common mental distress and negatively correlated with quality of life–BREF, and the construct validity shows a good valid tool to CIASS. Conclusion The Amharic language version of the chronic illness anticipated stigma scale shows a satisfactory level of reliability and validity on different psychometric measures of assessment. The tool may be useful for future researchers and patients with chronic illness in the Amharic-speaking population. Moreover, it will be used to see the psychological burden related to chronic illness and for comparison among international population groups.

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Hammond, Lori, and Richard L. Pullen. "Managing loneliness and chronic illness in older adults." Nursing 50, no. 12 (December 2020): 22–28. http://dx.doi.org/10.1097/01.nurse.0000721716.40604.19.

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Jo, Mirae, and Heeyoung Oh. "Development of the Self-Care Non-adherence Risk Assessment Scale for Patients with Chronic Illness." Journal of Korean Academy of Community Health Nursing 32, no. 4 (2021): 415. http://dx.doi.org/10.12799/jkachn.2021.32.4.415.

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Steurer-Stey, Claudia, Anja Frei, Gabriela Schmid-Mohler, Sibylle Malcolm-Kohler, Marco Zoller, and Thomas Rosemann. "The German version of the Assessment of Chronic Illness Care: instrument translation and cultural adaptation." Journal of Evaluation in Clinical Practice 18, no. 1 (August 4, 2010): 1–4. http://dx.doi.org/10.1111/j.1365-2753.2010.01511.x.

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Martínez-Sanchis, Marian, Mª Dolores Vara, Rocío Herrero, Daniel Campos, Javier García-Campayo, and Rosa Mª Baños. "Effectiveness of the Internet Attachment-Based Compassion Therapy (iABCT) to improve the quality of life and well-being in a population with chronic medical illness: A study protocol of a randomized controlled trial (SPIRIT compliant)." PLOS ONE 17, no. 12 (December 27, 2022): e0278462. http://dx.doi.org/10.1371/journal.pone.0278462.

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Background Chronic medical illnesses significantly and negatively affect the quality of life of individuals who suffer them and represent one of the most important challenges faced by healthcare providers and policy-makers due to its rising prevalence and high rates of comorbidity. Compassion-based interventions delivered over the Internet may be a useful approach to facilitate illness management and improve the quality of life of individuals with chronic medical conditions. Objectives The purpose of this study is to describe a protocol for a randomized controlled trial to test the efficacy of the Internet Attachment-Based Compassion Therapy (iABCT) to improve the quality of life and well-being of patients with chronic medical illnesses. Method A two-arm, parallel-group, randomized controlled trial (RCT) will be carried out, with three assessment points (baseline, 3-month, and 6-month) under two conditions: intervention group and control group (waiting list). The primary outcomes include the quality of life on the EuroQol 5-Dimensions Questionnaire (EQ-5D) and the Pemberton Happiness Index (PHI). Secondary outcomes, such as compassion, self-care behaviors, illness interference, self-criticism, symptomatology, attachment styles, social support, and illness perception, will be considered. Moreover, an assessment on satisfaction and usability will be carried out. A total of 68 participants as minimum will be recruited (34 per arm). Intent-to-treat mixed-model analyses without any ad hoc imputations will be conducted. Conclusions Findings of this study will provide new insights into the potential of self-applied compassion-based interventions (CBI) delivered online in the context of chronic medical illnesses, considering aspects of their implementation (e.g., facilitators, barriers) and mechanisms of change. Trial registration The study is registered under Clinicaltrials.gov (NCT04809610) and it is currently in the participant recruitment phase.

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Scholz Mellum, Jean, Donna Martsolf, Greer Glazer, Grant Martsolf, and Barbara Tobias. "A mixed methods study of the experience of older adults with multimorbidity in a Care Coordination Program." International Journal of Care Coordination 21, no. 1-2 (March 7, 2018): 36–46. http://dx.doi.org/10.1177/2053434518762593.

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Introduction Care Coordination Programs are designed to streamline services for older adults with multimorbidity. The Triple Aim, a conceptual model for the design and evaluation of healthcare models, stipulates that a balance of three aims—reducing costs, improving population health, and improving patient experience—are needed for high-quality, value-based care. Research is beginning to show that coordinating care across the continuum of care reduces costs and improves the health of the multimorbid older adult population. Yet little is known about older adults’ experience of care and their overall assessment of interactions with healthcare providers across the length of time of these interactions in a Care Coordination Program. Methods To gain a deeper understanding of older adults’ experience with a Care Coordination Program, this concurrent mixed methods research study analyzed 201 older adults’ assessment of their chronic illness care using the Patient Assessment of Chronic Illness Care (PACIC+). A subset of 30 older adults also participated in a telephone interview to collect qualitative data. Results The experience of older adults with multimorbidity in a Care Coordination Program was related to two factors: (1) professional actions and (2) professional attitudes. Actions that improved patients’ experience of care were communication, coordination, and addressing fundamental problems. Professional attitudes that improved their experience of care included being compassionate, knowledgeable and professional, mutually respectful, and positive and encouraging. Discussion To improve patient experience, Care Coordination Programs must design and measure their efforts related to the actions and the attitudes of their care team, especially primary care physicians and care coordinators.

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Hardy, Kristina K., Katie Olson, Stephany M. Cox, Tess Kennedy, and Karin S. Walsh. "Systematic Review: A Prevention-Based Model of Neuropsychological Assessment for Children With Medical Illness." Journal of Pediatric Psychology 42, no. 8 (March 22, 2017): 815–22. http://dx.doi.org/10.1093/jpepsy/jsx060.

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Abstract Objective Many pediatric chronic illnesses have shown increased survival rates, leading to greater focus on cognitive and psychosocial issues. Neuropsychological services have traditionally been provided only after significant changes in the child’s cognitive or adaptive functioning have occurred. This model of care is at odds with preventative health practice, including early identification and intervention of neuropsychological changes related to medical illness. We propose a tiered model of neuropsychological evaluation aiming to provide a preventative, risk-adapted level of assessment service to individuals with medical conditions impacting the central nervous system based on public health and clinical decision-making care models. Methods Elements of the proposed model have been used successfully in various pediatric medical populations. We summarize these studies in association with the proposed evaluative tiers in our model. Results and Conclusions This model serves to inform interventions through the various levels of assessment, driven by evidence of need at the individual level in real time.

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Yu, Catherine, Dorothy Choi, Brigida A. Bruno, Kevin E. Thorpe, Sharon E. Straus, Paul Cantarutti, Karen Chu, et al. "Impact of MyDiabetesPlan, a Web-Based Patient Decision Aid on Decisional Conflict, Diabetes Distress, Quality of Life, and Chronic Illness Care in Patients With Diabetes: Cluster Randomized Controlled Trial." Journal of Medical Internet Research 22, no. 9 (September 30, 2020): e16984. http://dx.doi.org/10.2196/16984.

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Background Person-centered care is critical for delivering high-quality diabetes care. Shared decision making (SDM) is central to person-centered care, and in diabetes care, it can improve decision quality, patient knowledge, and patient risk perception. Delivery of person-centered care can be facilitated with the use of patient decision aids (PtDAs). We developed MyDiabetesPlan, an interactive SDM and goal-setting PtDA designed to help individualize care priorities and support an interprofessional approach to SDM. Objective This study aims to assess the impact of MyDiabetesPlan on decisional conflict, diabetes distress, health-related quality of life, and patient assessment of chronic illness care at the individual patient level. Methods A two-step, parallel, 10-site cluster randomized controlled trial (first step: provider-directed implementation only; second step: both provider- and patient-directed implementation 6 months later) was conducted. Participants were adults 18 years and older with diabetes and 2 other comorbidities at 10 family health teams (FHTs) in Southwestern Ontario. FHTs were randomly assigned to MyDiabetesPlan (n=5) or control (n=5) through a computer-generated algorithm. MyDiabetesPlan was integrated into intervention practices, and clinicians (first step) followed by patients (second step) were trained on its use. Control participants received static generic Diabetes Canada resources. Patients were not blinded. Participants completed validated questionnaires at baseline, 6 months, and 12 months. The primary outcome at the individual patient level was decisional conflict; secondary outcomes were diabetes distress, health-related quality of life, chronic illness care, and clinician intention to practice interprofessional SDM. Multilevel hierarchical regression models were used. Results At the end of the study, the intervention group (5 clusters, n=111) had a modest reduction in total decisional conflicts compared with the control group (5 clusters, n=102; −3.5, 95% CI −7.4 to 0.42). Although there was no difference in diabetes distress or health-related quality of life, there was an increase in patient assessment of chronic illness care (0.7, 95% CI 0.4 to 1.0). Conclusions Use of goal-setting decision aids modestly improved decision quality and chronic illness care but not quality of life. Our findings may be due to a gap between goal setting and attainment, suggesting a role for optimizing patient engagement and behavioral support. The next steps include clarifying the mechanisms by which decision aids impact outcomes and revising MyDiabetesPlan and its delivery. Trial Registration ClinicalTrials.gov NCT02379078; https://clinicaltrials.gov/ct2/show/NCT02379078

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Daly, Donnelle, and Stephen Chavez Matzel. "Building a Transdisciplinary Approach to Palliative Care in an Acute Care Setting." OMEGA - Journal of Death and Dying 67, no. 1-2 (August 2013): 43–51. http://dx.doi.org/10.2190/om.67.1-2.e.

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A transdisciplinary team is an essential component of palliative and end-of-life care. This article will demonstrate how to develop a transdisciplinary approach to palliative care, incorporating nursing, social work, spiritual care, and pharmacy in an acute care setting. Objectives included: identifying transdisciplinary roles contributing to care in the acute care setting; defining the palliative care model and mission; identifying patient/ family and institutional needs; and developing palliative care tools. Methods included a needs assessment and the development of assessment tools, an education program, community resources, and a patient satisfaction survey. After 1 year of implementation, the transdisciplinary palliative care team consisted of seven palliative care physicians, two social workers, two chaplains, a pharmacist, and End-of-Life Nursing Consortium (ELNEC) trained nurses. Palomar Health now has a palliative care service with a consistent process for transdisciplinary communication and intervention for adult critical care patients with advanced, chronic illness.

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Steurer-Stey, Claudia, Anja Frei, Gabriela Schmid-Mohler, Sibylle Malcolm-Kohler, Marco Zoller, and Thomas Rosemann. "Assessment of Chronic Illness Care with the German version of the ACIC in different primary care settings in Switzerland." Health and Quality of Life Outcomes 8, no. 1 (2010): 122. http://dx.doi.org/10.1186/1477-7525-8-122.

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Journal articles on the topic 'Assessment of chronic illness care'

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