Relevant bibliographies by topics / Assessment of chronic illness care

Academic literature on the topic 'Assessment of chronic illness care'

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Published: 10 December 2022
Last updated: 28 January 2023

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Journal articles on the topic "Assessment of chronic illness care"

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Wensing, Michel, and Jan Van Lieshout. "Patients Assessment of Chronic Illness Care." Health Expectations 13, no. 2 (June 2010): 218. http://dx.doi.org/10.1111/j.1369-7625.2010.00610_1.x.

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Aghili, Rokhsareh, Ameneh Ebrahim Valojerdi, Amir Farshchi, and Mohammad Ebrahim Khamseh. "Type 2 diabetes: patient assessment of chronic illness care." Journal of Diabetes & Metabolic Disorders 20, no. 1 (January 14, 2021): 7–13. http://dx.doi.org/10.1007/s40200-020-00540-1.

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Lewis, Mary Beth, and Eric J. Peterson. "Spirituality as a Coping Mechanism for Chronic Illness." Clinical Scholars Review 6, no. 1 (2013): 53–59. http://dx.doi.org/10.1891/1939-2095.6.1.53.

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Chronic illness and sickness includes more than just the physical treatment of a disease process. Health care relational models emphasize that adequate care for an illness involves ensuring that a patient’s emotional health and well-being is addressed along with one’s physical well-being. During a health care assessment, a doctorally prepared advanced practice nurse (APN) should take into consideration the patient’s physiological, social, neurological, and spiritual health. Today’s health care arena does not allow or reimburse for lengthy assessments or extensive health histories, practices, and support systems. The time allotted instead is spent listening to each patient’s current issues, making an assessment and diagnosis, and formulating a treatment plan and educating the patient accordingly. Because of the drive for efficiency, mainly because of reimbursement reductions, providers may doubt the necessity to discuss spirituality in the management of chronic illness. Patients that lack a social support system especially may benefit from a doctorally prepared APN’s nurturing of their spirituality for emotional comfort. Spirituality influences the ability of the patient to cope with chronic pain, either negatively or positively, and is acknowledged by doctorally prepared APNs as an important coping mechanism. For these reasons, doctorally prepared APNs should be aware of community resources to support patients with their spiritual growth and well-being.
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Barcelo, Alberto, Fernando Colugnati, Arise Galil, and Elaine Amaral. "Linking manager's, health provider's and patient's assessment of chronic illness care." International Journal of Integrated Care 19, no. 4 (August 8, 2019): 557. http://dx.doi.org/10.5334/ijic.s3557.

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Costa, Karine Cavalcante da, Luiza Helena de Oliveira Cazola, and Edson Mamoru Tamaki. "Assessment of Chronic Illness Care (ACIC): avaliação da aplicabilidade e resultados." Saúde em Debate 40, no. 108 (March 2016): 106–17. http://dx.doi.org/10.1590/0103-1104-20161080009.

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Estudo descritivo de abordagem quanti-qualitativa, cujo objetivo foi avaliar a aplicação do Assessment of Chronic Illness Care (ACIC) e seus resultados junto aos profissionais de equipes da Estratégia Saúde da Família, em Campo Grande (MS). A amostra constituiu-se de 30 profissionais em 5 equipes, e a coleta de dados foi realizada em maio e junho de 2014, por meio do instrumento ACIC. A média das equipes resultou em capacidade razoável para atenção às condições crônicas, sendo o sistema de informação clínica a principal fragilidade e o desenho do sistema de prestação de serviços de saúde, o maior potencial.
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Aung, Eindra, Remo Ostini, Jo Dower, Maria Donald, Joseph R. Coll, Gail M. Williams, and Suhail A. R. Doi. "Patient Assessment of Chronic Illness Care (PACIC) in Type 2 Diabetes." Evaluation & the Health Professions 39, no. 2 (November 6, 2014): 185–203. http://dx.doi.org/10.1177/0163278714556674.

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Buatois, Emily M., Les P. Covington, Nicole D. Lopez, Rodney B. Young, and Eric J. MacLaughlin. "Impact of a Pharmacist-Led Chronic Disease State Management Clinic on Patient Assessment of Chronic Illness Care." Journal of Patient Experience 9 (January 2022): 237437352211056. http://dx.doi.org/10.1177/23743735221105682.

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Background: The Patient Assessment of Chronic Illness Care (PACIC) tool measures patient satisfaction with chronic disease care. Objective: A modified PACIC tool (PACIC-RxFM) was used to assess patient satisfaction in a pharmacist-led chronic disease state management clinic. The secondary outcome compared satisfaction with pharmacist-led and physician-led visits. Methods: This cross-sectional study surveyed individuals with ≥ 1 chronic disease who saw a pharmacist (pharmacotherapy) or primary care provider (usual care) in the Texas Tech Physicians Family Medicine Clinic. The PACIC-RxFM survey included 15 items rated on a five-point Likert scale (5 = “always satisfied”). Results: A total of 107 patients with no significant differences in demographics or complexity between groups were surveyed. All mean domain scores indicated a high level of satisfaction in the pharmacotherapy group with statements regarding perceptions of care organization and encouragement to go to group classes yielding statistically significantly higher scores than the usual care group. Conclusion: Patients are satisfied with both providers’ and pharmacists’ involvement in chronic illness care. This involvement leads to significant improvement in patient perception of care organization.
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Carryer, Jenny, Claire Budge, Chiquita Hansen, and Katherine Gibbs. "Modifying the PACIC to assess provision of chronic illness care: An exploratory study with primary health care nurses." Journal of Primary Health Care 2, no. 2 (2010): 118. http://dx.doi.org/10.1071/hc10118.

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INTRODUCTION: In line with Wagner’s Chronic Care Model, the Patient Assessment of Chronic Illness Care (PACIC) has been developed to evaluate chronic illness care delivery from the patient's perspective. Modification of the instrument to assess the same aspects of care delivery from the health practitioner’s perspective would enable individual practitioners to evaluate their own provision of self-management support, and would also enable a more direct comparison between care provided and care received within the chronic illness context. AIM: To explore the potential of a modified PACIC instrument to assess individual health practitioners’ delivery of care to chronic illness patients with a sample of primary health care nurses. METHODS: Seventy-seven primary care nurses completed the modified PACIC, reworded to ask about care provision rather than receipt of care. An additional seven cultural sensitivity items were included, as were questions about the suitability of the types of chronic illness care and who should be providing the care. RESULTS: The modified PACIC items appear to be appropriate for use with health practitioners. Agreement that the types of care described in the PACIC should be provided was almost unanimous, and the predominant view was that self-management support should be provided by both nurses and doctors. Mean scale scores were higher than those generally reported from studies using the PACIC. DISCUSSION: The results of this first evaluation of a modified PACIC suggest that the original items plus the cultural sensitivity items can be used to assess self-management support by individual health practitioners. KEYWORDS: Chronic illness; self-management; primary health care, nurses
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Monsen, Karen A., Diane E. Holland, Ping W. Fung-Houger, and Catherine E. Vanderboom. "Seeing the Whole Person: Feasibility of Using the Omaha System to Describe Strengths of Older Adults With Chronic Illness." Research and Theory for Nursing Practice 28, no. 4 (2014): 299–315. http://dx.doi.org/10.1891/1541-6577.28.4.299.

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A promising strategy for enhancing care and self-management of chronic illness is an integrative, whole-person approach that recognizes and values well-being. Assessment tools are needed that will enable health care professionals to perceive patients as whole persons, with strengths as well as problems. The purpose of this study was to examine the feasibility of using a standardized terminology (theOmaha System) to describe strengths of older adults with chronic illness. The Omaha System assessment currently consists of identifying signs/symptoms for 42 health concepts. Researchers mapped self-reported strengths phrases to Omaha System concepts using existing narratives of 32 older adults with 12–15 comorbid conditions. Results demonstrated the feasibility of describing strengths of patients with chronic illness. Exploratory analysis showed that there were 0–9 strengths per patient, with unique strengths profiles for 30 of 32 patients. Given that older adults with multiple chronic illnesses also have strengths that can be classified and quantified using the Omaha System, there is potential to use the Omaha System as a whole-person assessment tool that enables perception of both problems and strengths. Further research is needed to enhance the Omaha System to formally represent strengths-based as well as a problem-focused perspectives.
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Zimmermann Tansella, C. "Psychosocial factors and chronic illness in childhood." European Psychiatry 10, no. 6 (1995): 297–305. http://dx.doi.org/10.1016/0924-9338(96)80311-7.

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SummaryChronic illness in a child requires successful organisational and emotional adjustment of the child and the family. The way in which the child and the family adapt to the illness will affect their psychological well-being and their quality of life. This review summarizes recent research findings on the relationship between illness factors, individual and family functioning, coping strategies and psychosocial adjustment. The findings are presented within the framework of three complementary theoretical models: the family developmental approach; the psychosocial typology of illnesses; and the process model of stress and coping. These models are useful for a better understanding of the complex interactions between illness, family and coping and offer to the professionals engaged in the care of chronically sick children, guidelines for assessment and the development of intervention programs. The review starts with examining the impact of chronic illness on the psychosocial adjustment of the sick child, his/her siblings and parents. Then psychosocial Stressors and risk factors in terms of illness and family related characteristics are discussed. Coping resources and strategies are presented which have been shown to be related to child and parental adjustment; and finally, successful intervention programs are described.
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Dissertations / Theses on the topic "Assessment of chronic illness care"

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Landim, Camila Aparecida Pinheiro. "Adaptação cultural para o Brasil e Portugal do instrumento Patient Assessment of Chronic Illness Care (PACIC)." Universidade de São Paulo, 2012. http://www.teses.usp.br/teses/disponiveis/22/22132/tde-17042013-144940/.

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O Patient Assessment of Chronic Illness Care (PACIC) é o único instrumento disponível na literatura científica para avaliação da qualidade do cuidado sobre os elementos do Modelo de Cuidados Crônicos, na perspectiva da pessoa com condição crônica. No contexto cultural do Brasil e de Portugal, não há instrumentos para avaliar essa dimensão de cuidado no diabetes mellitus (DM), considerada como uma importante condição crônica, em decorrência da sua prevalência e mortalidade mundial. Trata-se de um estudo metodológico com o objetivo de realizar a adaptação cultural para o Brasil e Portugal do instrumento PACIC. Constituído por 20 itens, o PACIC possui cinco domínios: Participação Ativa do Paciente no Tratamento, Modelo do Sistema de Cuidado/Modelo para a Prática, Estabelecimento de Metas/Adaptação, Resolução de Problemas/Contexto e Seguimento/Coordenação. O processo de adaptação cultural seguiu as etapas preconizadas pela literatura: Tradução, Comitê de Especialistas, Retrotradução (Back-Translation), Pré-Teste e Entrevista Cognitiva. O estudo foi realizado em ambulatório de endocrinologia, de uma unidade básica distrital de saúde no município de Ribeirão Preto, São Paulo, Brasil e de um hospital público e de ensino na cidade do Porto, Portugal. Os dados foram obtidos por meio da entrevista dirigida, nos meses de novembro (Brasil) e maio (Portugal) de 2012. Mediante os critérios de seleção, a população do estudo foi constituída por 50 pessoas brasileiras e 50 pessoas portuguesas, perfazendo um total de 100 pessoas com DM. Para a coleta de dados foi utilizado os instrumentos Impressão Geral e Específica do Projeto DISABKIDS ® . Para apresentação dos resultados utilizou-se análise descritiva, por meio de quadros e tabelas. Os resultados encontrados foram satisfatórios, demonstrando que o instrumento foi considerado muito bom pela maioria da população do estudo, com questões fáceis de entender e categorias de respostas não difíceis de serem utilizadas. Somado a isso, 92% (Brasil) e 86% (Portugal) dos participantes declararam que os itens do instrumento são muito relevantes para o diabetes mellitus, como condição de saúde. Visando a maneira como os 20 itens do instrumento avaliado foram formulados, a maioria mostrou-se de fácil compreensão, apenas quatro (6, 10, 12 e 16) foram adaptados culturalmente no Brasil e um (19) em Portugal. Conclui-se que o estudo resultou em um instrumento adaptado culturalmente e compreensível para o Brasil e Portugal. Há necessidade de prosseguir com a avaliação das propriedades psicométricas para o estudo de validação do instrumento adaptado em ambos os contextos culturais.
The Patient Assessment of Chronic Illness Care (PACIC) is the only instrument available in the scientific literature to assess the quality of care for the elements of Chronic Care Model from the perspectives of individuals with chronic diseases. In the Brazilian cultural context, there is no instrument to evaluate this dimension in the care provided for diabetes mellitus (DM) patients, which is considered an important chronic condition due to its prevalence and mortality worldwide, nor is there one in the Portuguese cultural context. This methodological study\'s objective was to perform the cultural adaptation of the PACIC instrument for both Brazil and Portugal. It comprises 20 items and five domains: Patient Activation, Delivery System Design/Practice Design, Goal-Setting/Tailoring, Problem-Solving/Context and Follow- up/Coordination. The cultural adaptation process followed the steps recommended by the literature: Forward Translation, Expert Panel, Back-Translation, Pre-testing, and Cognitive Interviewing. The study was conducted in the endocrinology outpatient clinic of a primary health unit in the city of Ribeirão Preto, SP, Brazil and in a public university hospital in the city of Porto, Portugal. Data were obtained through focused interviews in November (Brazil) and in May (Portugal), 2012. A total of 50 Brazilian and 50 Portuguese individuals met the inclusion criteria, totaling 100 individuals with DM. The instruments General and Specific Impression of DISABKIDS ® Project were used to collect data. Descriptive analysis was used and the results are presented in tables. The results were satisfactory, showing the instrument was considered very good by most of the study\'s population. Questions were considered to be easy to understand and the answer categories were also easy to use. Additionally, 92% (Brazil) and 86% (Portugal) of the participants reported the instrument\'s items are very relevant for DM as a health condition. Due to the way the instrument\'s 20 items were developed, most were easy to understand and only four (6, 10, 12 and 16) were culturally adapted for Brazil and only one (19) was culturally adapted for Portugal. The conclusion was an instrument culturally adapted and easy to understand both in Brazil and Portugal. There is a need to assess its psychometric properties to validate the adapted instrument for both cultural contexts.
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Culen, Caroline, Marion Herle, Marianne Konig, Kiana Johnson, David L. Wood, and Gabriele Hausler. "Be on TRAQ – Cross-cultural adaptation of the Transition Readiness Assessment Questionnaire (TRAQ 5.0) and pilot testing of the German Version (TRAQ-GV-15)." Digital Commons @ East Tennessee State University, 2019. https://dc.etsu.edu/etsu-works/7012.

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Objective: Transfer from pediatric care into the adult health care system is known to be a vulnerable phase in the lives of youth with special health care needs (YSHCN). Recommendations from the literature favor assessment of transition readiness rather than simply pass over YSHCN from pediatric to adult-centered care by the age of 18. Nevertheless, no validated and disease neutral assessment instrument in German exists to date. Hence, our aim was to cross-culturally adapt and to pilot-test a German version of the Transition Readiness Assessment Questionnaire (TRAQ 5.0). We wanted to provide a tool that can be applied broadly during the health care transition (HCT) process of YSHCN. Methods: The development included translating and adapting TRAQ 5.0 to German and conducting a pilot-study with 172 YSHCN between the ages of 14 and 23. Results: Cross-cultural adaptation resulted in the TRAQ-GV-15. Exploratory factor analysis led to a 3 factor-structure. Internal consistency for the overall score was good with a Cronbach’s alpha of 0.82. Age, in contrast to sex, had a significant effect on the TRAQ scoring. The administration of the TRAQ-GV-15 was well received and demonstrated good feasibility. Conclusion: The TRAQ-GV-15 is an easily applicable and clinically usable instrument for assessing transition readiness in German speaking YSHCN prior to HCT.
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Kobelt, Gisela. "Health economic assessment of medical technology in chronic progressive diseases : multiple sclerosis and rheumatoid arthritis /." Stockholm, 2003.

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Wintermann, Gloria-Beatrice, Jenny Rosendahl, Kerstin Weidner, Bernhard Strauß, Andreas Hinz, and Katja Petrowski. "Fatigue in chronically critically ill patients following intensive care - reliability and validity of the multidimensional fatigue inventory (MFI-20)." Saechsische Landesbibliothek- Staats- und Universitaetsbibliothek Dresden, 2018. http://nbn-resolving.de/urn:nbn:de:bsz:14-qucosa-235556.

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Background Fatigue often occurs as long-term complication in chronically critically ill (CCI) patients after prolonged intensive care treatment. The Multidimensional Fatigue Inventory (MFI-20) has been established as valid instrument to measure fatigue in a wide range of medical illnesses. Regarding the measurement of fatigue in CCI patients, the psychometric properties of the MFI-20 have not been investigated so far. Thus, the present study examines reliability and validity of the MFI-20 in CCI patients. Methods A convenience sample of n = 195 patients with Critical Illness Polyneuropathy (CIP) or Myopathy (CIM) were recruited via personal contact within four weeks (t1) following the transfer from acute care ICU to post-acute ICU at a large rehabilitation hospital. N = 113 (median age 61.1 yrs., 72.6% men) patients were again contacted via telephone three (t2) and six (t3) months following the transfer to post-acute ICU. The MFI-20, the Euro-Quality of Life (EQ-5D-3 L) and the Structured Clinical Interview for the Diagnostic and Statistical Manual of mental disorders DSM-IV (SCID-I) were applied within this prospective cohort study. Results The internal consistency Cronbach’s α was adequate for the MFI-total and all but the subscale Reduced Motivation (RM) (range: .50–.91). Item-to-total correlations (range: .22–.80) indicated item redundancy for the subscale RM. Confirmatory Factor analyses (CFAs) revealed poor model fit for the original 5-factor model of the MFI-20 (t2/t3, Confirmatory Fit Index, CFI = .783/ .834; Tucker-Lewis Index, TLI = .751/ .809; Root Mean Square Error of Approximation, RMSEA = .112/ .103). Among the alternative models (1-, 2-, 3-factor models), the data best fit to a 3-factor solution summarizing the highly correlated factors General −/ Physical Fatigue/ Reduced Activity (GF/ PF/ RA) (t2/ t3, CFI = .878/ .896, TLI = .846/ .869, RMSEA = .089/ .085, 90% Confidence Interval .073–.104/ .066–.104). The MFI-total score significantly correlated with the health-related quality of life (range: −.65-(−).66) and the diagnosis of major depression (range: .27–.37). Conclusions In the present sample of CCI patients, a reliable and valid factor structure of the MFI-20 could not be ascertained. Especially the subscale RM should be revised. Since the factors GF, PF and RA cannot be separated from each other and the unclear factorial structure in the present sample of CCI patients, the MFI-20 is not recommended for use in this context.
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Ho, Cornelia. "Understanding and influencing dietary self-care in chronic illness." Thesis, University of Birmingham, 2012. http://etheses.bham.ac.uk//id/eprint/3848/.

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Objectives Coeliac Disease (CD) is a common chronic autoimmune disorder characterised by sensitivity to gluten. This study investigated the relationships between CD illness representations, coping, self-efficacy, health related quality of life, wellbeing, psychological distress and dietary self-care (following a gluten free diet) among adults with coeliac disease. Design A questionnaire-based correlation design was used to investigate the hypothesised relationships between illness representations and outcomes. Methods Ninety six adults with CD, recruited through dietician clinics, completed a single booklet of questionnaires about their beliefs, experiences and behaviour in relation to their CD. In addition serology (CD antibody levels) and clinician rated levels of dietary self-care (both taken within one month of participation) were employed as additional measures of behaviour. Results Results of regression analyses showed that some aspects of illness representation, particularly estimates of consequences and emotional impact were related to some psychosocial outcomes but not levels of dietary self-care (which was generally high among the sample). Conclusions Illness representations may be useful in explaining some psychosocial outcome for CD, but more research would be needed to assess whether they are useful in explaining dietary behaviour among this population. Findings related to coping and self-efficacy are also discussed.
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Kensall, Sherri Lynn. "Experiences of ethnic minorities with chronic illness accessing primary health care." Thesis, University of British Columbia, 2011. http://hdl.handle.net/2429/34185.

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Living with a chronic illness such as diabetes or heart disease and accessing health care over many years can be a challenge for anyone. This experience is further impacted by experiences associated with being an ethnic minority where challenges in communicating with health care providers or encountering different views on health care can make navigating the system more difficult. Within the current health care system in British Columbia, the Primary Health Care (PHC) Charter articulates a clear role for PHC as the setting in which chronic illness care is organized and delivered. Unfortunately, interactions in PHC can be both a source of support and of stress for individuals. In order to provide care which supports individuals to self manage their health, it is important that PHC providers understand common experiences and priorities for diverse populations when seeking care in the ongoing management of their condition. Through secondary analysis, this study analyzes data from a recent research project exploring the experiences of ethnic minorities in PHC by Dr Wong. Data from twelve focus groups with a subset of participants with chronic illness was examined to further advance aspects of chronic illness management within the context of the current health care environment in British Columbia (BC). This data was viewed within a critical cultural perspective to inform both current and future practice in order to promote care which is culturally safe and at the same time supports individuals in adopting healthier lifestyles and maximizing their confidence in managing their health. Results from this study highlight the challenges encountered by anyone managing a chronic illness but also how ethnic minorities may face an increased burden of illness. This study also explores how approaches in the charter, specifically the expanded chronic care model, need to be viewed critically in terms of the potential to promote a sense of individual responsibility for care or further racialization through subcategorizing individuals based on ethnicity. This study also highlights benefits in the approaches to CDM especially in the investments in resources in multiple languages and potential for building stronger linkages to community programs.
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Martin, Sam C. "Coeliac disease : chronic illness and self-care in the digital age." Thesis, University of Warwick, 2017. http://wrap.warwick.ac.uk/103497/.

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This doctoral research contributes to three main fields: the Sociology of Health and Illness (SHI), specifically in the way it speaks to Coeliac Disease; and the field of Big Social Data and Health in general. Research in SHI, has typically focussed on the effects of diagnosis on self-identity, and illness narratives used in adapting to life with chronic disease. While there have been recent studies looking at how general food cultures, obesity and diabetes are visualised on social media, there have been no studies about the visualisation of self-care and identity in relation to Coeliac Disease specifically. Current social research in Coeliac Disease is mainly focused on the psychological impact of being diagnosed with Coeliac Disease and the challenge the gluten free diet can put on individuals. There is little in the literature about how individuals self-manage Coeliac Disease or share identity across social media platforms, or how they use social media to navigate risk. Current literature in the field of Big Social Data and Health, mainly looks at how social media offers opportunities to socially share or disseminate public health information between organisations and the public, as well as how the use of wearable technology and apps are used to quantify health. It does not look at how the chronically ill share symptoms, identity and self-care across social media platforms. This thesis adds to the literature by bringing together the fields of SHI, Big Social Data and Health, and Social Science research into Coeliac Disease to understand and visualise the way Coeliac patients actively use social media platforms in the process of self-care and self-identity. It explores how social media can be used to tell a chronic illness narrative, and thus illustrate the process of diagnosis, and how individuals adapt to life as a Coeliac on the gluten free diet (GFD). In doing so, this research provides an illustrative example of how social media data can be used to both inform and complement research on Coeliac Disease specifically, and the fields of SHI and digital social science more generally.
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Selfe, Susan Anne. "Chronic pelvic pain in women : illness, disease and medical attitudes." Thesis, University of Southampton, 1998. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.262875.

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Sibayan, Juanita. "Family Relational Experiences During Major Transitions with a Chronic Illness." ScholarWorks, 2018. https://scholarworks.waldenu.edu/dissertations/5266.

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Although health care transitions have received some attention in the literature, few researchers have emphasized family relational experiences and communication during major changes while living with a chronic illness. The purpose of this phenomenological study was to understand the lived experience of parents and their adult children while transitioning from pediatric to adult care of a chronic illness. The bio-psychosocial theory, family systems theory, and attachment theory established the context for this study. A criterion-based sampling technique and snowball sampling were used to recruit 7 parents and 6 of their adult children aged 18 to 30 years who were diagnosed with cystic fibrosis or congenital heart disease, and who had either completed or were in the process of completing the transition from pediatric to adult healthcare. Semi-structured interviews were conducted, and content analysis was used to code and analyze themes that emerged from the experiences of participants. The themes that were identified included that parents were instrumental in maintenance of treatments during high risk periods of adolescence, healthy parent and child relations included collaboration that accommodated autonomy, and that early coaching helped reduce parental anxiety about non-adherence while increasing the self-efficacy of the child. This study contributes to positive social change by informing the design of current procedures to transition young adults with chronic illness by recommending flexibility in negotiations, early education, shadowing between facilities, and incorporating evidence-based practice based on feedback from each family member.
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Powell, Deborah Lynn. "An exploration of space, time and chronic illness : multiple perspectives on stroke." Thesis, Lancaster University, 1999. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.368049.

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Books on the topic "Assessment of chronic illness care"

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Daaleman, Timothy P., and Margaret R. Helton, eds. Chronic Illness Care. Cham: Springer International Publishing, 2018. http://dx.doi.org/10.1007/978-3-319-71812-5.

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Nichols, Keith A. Psychological care in physical illness. Philadelphia, Pa: Charles Press, 1989.

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Kane, Robert L. Meeting the challenge of chronic illness. Baltimore, MD: Johns Hopkins University Press, 2004.

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Reinhard, Priester, and Totten Annette M. 1964-, eds. Meeting the challenge of chronic illness. Baltimore: Johns Hopkins University Press, 2005.

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Successful living with chronic illness. Wayne, N.J: Avery Pub. Group, 1985.

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Kramer-Kile, Marnie. Chronic illness in Canada: Impact and intervention. Burlington, Mass: Jones & Bartlett Learning, 2012.

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A, Swanson Elizabeth, and Tripp-Reimer Toni 1946-, eds. Chronic illness and the older adult. New York: Springer Pub. Co., 1997.

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Dombrowski, Lynn Blewett. Functional needs assessment program for chronic psychiatric patients. Tucson, Ariz: Therapy Skill Builders, 1990.

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Chronic physical illness: Self-management and behavioural interventions. Maidenhead: Open University Press, 2009.

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Thorne, Sally E. Negotiating health care: The social context of chronic illness. Newbury Park, CA: Sage, 1993.

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Book chapters on the topic "Assessment of chronic illness care"

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Shungu, Nicholas P. "Ambulatory Care." In Chronic Illness Care, 199–211. Cham: Springer International Publishing, 2018. http://dx.doi.org/10.1007/978-3-319-71812-5_16.

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Mulcare, Mary R. "Emergency Care." In Chronic Illness Care, 213–20. Cham: Springer International Publishing, 2018. http://dx.doi.org/10.1007/978-3-319-71812-5_17.

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Kistler, Christine E., and Margaret A. Drickamer. "Home Care." In Chronic Illness Care, 271–80. Cham: Springer International Publishing, 2018. http://dx.doi.org/10.1007/978-3-319-71812-5_22.

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Prentice, Amy N., Rayhaan Adams, and Timothy P. Daaleman. "Care Management." In Chronic Illness Care, 375–84. Cham: Springer International Publishing, 2018. http://dx.doi.org/10.1007/978-3-319-71812-5_31.

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Shelton, Paul, Cheryl Schraeder, Michael Berkes, and Benjamin Ronk. "Chronic Illness." In Comprehensive Care Coordination for Chronically III Adults, 1–23. West Sussex, UK: John Wiley & Sons, Inc., 2013. http://dx.doi.org/10.1002/9781118785775.ch1.

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Barzin, Amir H. "Acute Hospital Care." In Chronic Illness Care, 221–31. Cham: Springer International Publishing, 2018. http://dx.doi.org/10.1007/978-3-319-71812-5_18.

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Halpert, Karen D. "Acute Rehabilitation Care." In Chronic Illness Care, 233–43. Cham: Springer International Publishing, 2018. http://dx.doi.org/10.1007/978-3-319-71812-5_19.

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Dale, Maureen C., and Margaret R. Helton. "Nursing Home Care." In Chronic Illness Care, 245–57. Cham: Springer International Publishing, 2018. http://dx.doi.org/10.1007/978-3-319-71812-5_20.

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Brown, Mallory McClester. "Transitions of Care." In Chronic Illness Care, 369–73. Cham: Springer International Publishing, 2018. http://dx.doi.org/10.1007/978-3-319-71812-5_30.

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Lam, Yee. "Team-Based Care." In Chronic Illness Care, 385–90. Cham: Springer International Publishing, 2018. http://dx.doi.org/10.1007/978-3-319-71812-5_32.

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Conference papers on the topic "Assessment of chronic illness care"

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Leal, Filipe, Carminda Morais, and Rui Pimenta. "Cross-cultural adaptation and validation of the Assessment of Chronic Illness Care (ACIC): Chronic care model — Information for chronic disease management." In 2014 9th Iberian Conference on Information Systems and Technologies (CISTI). IEEE, 2014. http://dx.doi.org/10.1109/cisti.2014.6876902.

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Leal, Filipe, Carminda Morais, and Rui Pimenta. "Cross-cultural adaptation and validation of the assessment of chronic illness care (ACIC): Chronic care model — Information for chronic disease management." In 2014 9th Iberian Conference on Information Systems and Technologies (CISTI). IEEE, 2014. http://dx.doi.org/10.1109/cisti.2014.6877053.

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O'Kane, Aisling Ann, and Helena Mentis. "Sharing medical data vs. health knowledge in chronic illness care." In the 2012 ACM annual conference extended abstracts. New York, New York, USA: ACM Press, 2012. http://dx.doi.org/10.1145/2212776.2223812.

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Chen, Guanling, Bo Yan, Minho Shin, David Kotz, and Ethan Berke. "MPCS: Mobile-phone based patient compliance system for chronic illness care." In 6th Annual International Conference on Mobile and Ubiquitous Systems: Computing, Networking and Services. IEEE, 2009. http://dx.doi.org/10.4108/icst.mobiquitous2009.6829.

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Thangnaree, Kamonkan, Tassanee Krirkgulthorn, and Siritorn Yingrengreung. "Effects of Providing Spiritual Care on Elderly Patients with Chronic Illness at Saraburi Hospital." In 1st Annual Worldwide Nursing Conference (WNC 2013). Global Science and Technology Forum Pte Ltd, 2013. http://dx.doi.org/10.5176/2315-4330_wnc13.56.

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Marchioni, Alessandro, Roberto Tonelli, Riccardo Fantini, Luca Tabbì, Antonia Sdanganelli, Ivana Castaniere, Alessia Verduri, et al. "Chronic critical illness in patients with acute respiratory failure admitted to a respiratory intensive care unit." In ERS International Congress 2018 abstracts. European Respiratory Society, 2018. http://dx.doi.org/10.1183/13993003.congress-2018.pa320.

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Rubins, Uldis, Zbignevs Marcinkevics, Inara Logina, Andris Grabovskis, and Edgars Kviesis-Kipge. "Imaging photoplethysmography for assessment of chronic pain patients." In Optical Diagnostics and Sensing XIX: Toward Point-of-Care Diagnostics, edited by Gerard L. Coté. SPIE, 2019. http://dx.doi.org/10.1117/12.2508393.

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Lee, J., N. Khandelwal, R. A. Engelberg, A. L. Jennerich, and J. R. Curtis. "Specialty Palliative Care for Patients with Underlying Chronic Illness Dying in the Intensive Care Unit (ICU): Trends in Utilization by ICU Type." In American Thoracic Society 2020 International Conference, May 15-20, 2020 - Philadelphia, PA. American Thoracic Society, 2020. http://dx.doi.org/10.1164/ajrccm-conference.2020.201.1_meetingabstracts.a3580.

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Sari, Ni Putu Wulan Purnama, and Jintana Artsanthia. "Comparison of Stress Level and Quality of Life in Elderly Who are Living with Chronic Illness in Bangkok and Surabaya." In The 9th International Nursing Conference: Nurses at The Forefront Transforming Care, Science and Research. SCITEPRESS - Science and Technology Publications, 2018. http://dx.doi.org/10.5220/0008321201010109.

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Pasha, S., A. Kelly, X. Li, J. Riser, E. P. Cassity, and P. E. Morris. "Severity of Illness in Patients with Co-Morbid Chronic Hepatitis C at the Time of Admission to the Medical Intensive Care Unit." In American Thoracic Society 2019 International Conference, May 17-22, 2019 - Dallas, TX. American Thoracic Society, 2019. http://dx.doi.org/10.1164/ajrccm-conference.2019.199.1_meetingabstracts.a1669.

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Reports on the topic "Assessment of chronic illness care"

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Dy, Sydney M., Julie M. Waldfogel, Danetta H. Sloan, Valerie Cotter, Susan Hannum, JaAlah-Ai Heughan, Linda Chyr, et al. Integrating Palliative Care in Ambulatory Care of Noncancer Serious Chronic Illness: A Systematic Review. Agency for Healthcare Research and Quality (AHRQ), February 2020. http://dx.doi.org/10.23970/ahrqepccer237.

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Objectives. To evaluate availability, effectiveness, and implementation of interventions for integrating palliative care into ambulatory care for U.S.-based adults with serious life-threatening chronic illness or conditions other than cancer and their caregivers We evaluated interventions addressing identification of patients, patient and caregiver education, shared decision-making tools, clinician education, and models of care. Data sources. We searched key U.S. national websites (March 2020) and PubMed®, CINAHL®, and the Cochrane Central Register of Controlled Trials (through May 2020). We also engaged Key Informants. Review methods. We completed a mixed-methods review; we sought, synthesized, and integrated Web resources; quantitative, qualitative and mixed-methods studies; and input from patient/caregiver and clinician/stakeholder Key Informants. Two reviewers screened websites and search results, abstracted data, assessed risk of bias or study quality, and graded strength of evidence (SOE) for key outcomes: health-related quality of life, patient overall symptom burden, patient depressive symptom scores, patient and caregiver satisfaction, and advance directive documentation. We performed meta-analyses when appropriate. Results. We included 46 Web resources, 20 quantitative effectiveness studies, and 16 qualitative implementation studies across primary care and specialty populations. Various prediction models, tools, and triggers to identify patients are available, but none were evaluated for effectiveness or implementation. Numerous patient and caregiver education tools are available, but none were evaluated for effectiveness or implementation. All of the shared decision-making tools addressed advance care planning; these tools may increase patient satisfaction and advance directive documentation compared with usual care (SOE: low). Patients and caregivers prefer advance care planning discussions grounded in patient and caregiver experiences with individualized timing. Although numerous education and training resources for nonpalliative care clinicians are available, we were unable to draw conclusions about implementation, and none have been evaluated for effectiveness. The models evaluated for integrating palliative care were not more effective than usual care for improving health-related quality of life or patient depressive symptom scores (SOE: moderate) and may have little to no effect on increasing patient satisfaction or decreasing overall symptom burden (SOE: low), but models for integrating palliative care were effective for increasing advance directive documentation (SOE: moderate). Multimodal interventions may have little to no effect on increasing advance directive documentation (SOE: low) and other graded outcomes were not assessed. For utilization, models for integrating palliative care were not found to be more effective than usual care for decreasing hospitalizations; we were unable to draw conclusions about most other aspects of utilization or cost and resource use. We were unable to draw conclusions about caregiver satisfaction or specific characteristics of models for integrating palliative care. Patient preferences for appropriate timing of palliative care varied; costs, additional visits, and travel were seen as barriers to implementation. Conclusions. For integrating palliative care into ambulatory care for serious illness and conditions other than cancer, advance care planning shared decision-making tools and palliative care models were the most widely evaluated interventions and may be effective for improving only a few outcomes. More research is needed, particularly on identification of patients for these interventions; education for patients, caregivers, and clinicians; shared decision-making tools beyond advance care planning and advance directive completion; and specific components, characteristics, and implementation factors in models for integrating palliative care into ambulatory care.
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Tipton, Kelley, Brian F. Leas, Nikhil K. Mull, Shazia M. Siddique, S. Ryan Greysen, Meghan B. Lane-Fall, and Amy Y. Tsou. Interventions To Decrease Hospital Length of Stay. Agency for Healthcare Research and Quality (AHRQ), September 2021. http://dx.doi.org/10.23970/ahrqepctb40.

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Background. Timely discharge of hospitalized patients can prevent patient harm, improve patient satisfaction and quality of life, and reduce costs. Numerous strategies have been tested to improve the efficiency and safety of patient recovery and discharge, but hospitals continue to face challenges. Purpose. This Technical Brief aimed to identify and synthesize current knowledge and emerging concepts regarding systematic strategies that hospitals and health systems can implement to reduce length of stay (LOS), with emphasis on medically complex or vulnerable patients at high risk for prolonged LOS due to clinical, social, or economic barriers to timely discharge. Methods. We conducted a structured search for published and unpublished studies and conducted interviews with Key Informants representing vulnerable patients, hospitals, health systems, and clinicians. The interviews provided guidance on our research protocol, search strategy, and analysis. Due to the large and diverse evidence base, we limited our evaluation to systematic reviews of interventions to decrease hospital LOS for patients at potentially higher risk for delayed discharge; primary research studies were not included, and searches were restricted to reviews published since 2010. We cataloged the characteristics of relevant interventions and assessed evidence of their effectiveness. Findings. Our searches yielded 4,364 potential studies. After screening, we included 19 systematic reviews reported in 20 articles. The reviews described eight strategies for reducing LOS: discharge planning; geriatric assessment or consultation; medication management; clinical pathways; inter- or multidisciplinary care; case management; hospitalist services; and telehealth. All reviews included adult patients, and two reviews also included children. Interventions were frequently designed for older (often frail) patients or patients with chronic illness. One review included pregnant women at high risk for premature delivery. No reviews focused on factors linking patient vulnerability with social determinants of health. The reviews reported few details about hospital setting, context, or resources associated with the interventions studied. Evidence for effectiveness of interventions was generally not robust and often inconsistent—for example, we identified six reviews of discharge planning; three found no effect on LOS, two found LOS decreased, and one reported an increase. Many reviews also reported patient readmission rates and mortality but with similarly inconsistent results. Conclusions. A broad range of strategies have been employed to reduce LOS, but rigorous systematic reviews have not consistently demonstrated effectiveness within medically complex, high-risk, and vulnerable populations. Health system leaders, researchers, and policymakers must collaborate to address these needs.
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MacFarlane, Andrew. 2021 medical student essay prize winner - A case of grief. Society for Academic Primary Care, July 2021. http://dx.doi.org/10.37361/medstudessay.2021.1.1.

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As a student undertaking a Longitudinal Integrated Clerkship (LIC)1 based in a GP practice in a rural community in the North of Scotland, I have been lucky to be given responsibility and my own clinic lists. Every day I conduct consultations that change my practice: the challenge of clinically applying the theory I have studied, controlling a consultation and efficiently exploring a patient's problems, empathising with and empowering them to play a part in their own care2 – and most difficult I feel – dealing with the vast amount of uncertainty that medicine, and particularly primary care, presents to both clinician and patient. I initially consulted with a lady in her 60s who attended with her husband, complaining of severe lower back pain who was very difficult to assess due to her pain level. Her husband was understandably concerned about the degree of pain she was in. After assessment and discussion with one of the GPs, we agreed some pain relief and a physio assessment in the next few days would be a practical plan. The patient had one red flag, some leg weakness and numbness, which was her ‘normal’ on account of her multiple sclerosis. At the physio assessment a few days later, the physio felt things were worse and some urgent bloods were ordered, unfortunately finding raised cancer and inflammatory markers. A CT scan of the lung found widespread cancer, a later CT of the head after some developing some acute confusion found brain metastases, and a week and a half after presenting to me, the patient sadly died in hospital. While that was all impactful enough on me, it was the follow-up appointment with the husband who attended on the last triage slot of the evening two weeks later that I found completely altered my understanding of grief and the mourning of a loved one. The husband had asked to speak to a Andrew MacFarlane Year 3 ScotGEM Medical Student 2 doctor just to talk about what had happened to his wife. The GP decided that it would be better if he came into the practice - strictly he probably should have been consulted with over the phone due to coronavirus restrictions - but he was asked what he would prefer and he opted to come in. I sat in on the consultation, I had been helping with any examinations the triage doctor needed and I recognised that this was the husband of the lady I had seen a few weeks earlier. He came in and sat down, head lowered, hands fiddling with the zip on his jacket, trying to find what to say. The GP sat, turned so that they were opposite each other with no desk between them - I was seated off to the side, an onlooker, but acknowledged by the patient with a kind nod when he entered the room. The GP asked gently, “How are you doing?” and roughly 30 seconds passed (a long time in a conversation) before the patient spoke. “I just really miss her…” he whispered with great effort, “I don’t understand how this all happened.” Over the next 45 minutes, he spoke about his wife, how much pain she had been in, the rapid deterioration he witnessed, the cancer being found, and cruelly how she had passed away after he had gone home to get some rest after being by her bedside all day in the hospital. He talked about how they had met, how much he missed her, how empty the house felt without her, and asking himself and us how he was meant to move forward with his life. He had a lot of questions for us, and for himself. Had we missed anything – had he missed anything? The GP really just listened for almost the whole consultation, speaking to him gently, reassuring him that this wasn’t his or anyone’s fault. She stated that this was an awful time for him and that what he was feeling was entirely normal and something we will all universally go through. She emphasised that while it wasn’t helpful at the moment, that things would get better over time.3 He was really glad I was there – having shared a consultation with his wife and I – he thanked me emphatically even though I felt like I hadn’t really helped at all. After some tears, frequent moments of silence and a lot of questions, he left having gotten a lot off his chest. “You just have to listen to people, be there for them as they go through things, and answer their questions as best you can” urged my GP as we discussed the case when the patient left. Almost all family caregivers contact their GP with regards to grief and this consultation really made me realise how important an aspect of my practice it will be in the future.4 It has also made me reflect on the emphasis on undergraduate teaching around ‘breaking bad news’ to patients, but nothing taught about when patients are in the process of grieving further down the line.5 The skill Andrew MacFarlane Year 3 ScotGEM Medical Student 3 required to manage a grieving patient is not one limited to general practice. Patients may grieve the loss of function from acute trauma through to chronic illness in all specialties of medicine - in addition to ‘traditional’ grief from loss of family or friends.6 There wasn’t anything ‘medical’ in the consultation, but I came away from it with a real sense of purpose as to why this career is such a privilege. We look after patients so they can spend as much quality time as they are given with their loved ones, and their loved ones are the ones we care for after they are gone. We as doctors are the constant, and we have to meet patients with compassion at their most difficult times – because it is as much a part of the job as the knowledge and the science – and it is the part of us that patients will remember long after they leave our clinic room. Word Count: 993 words References 1. ScotGEM MBChB - Subjects - University of St Andrews [Internet]. [cited 2021 Mar 27]. Available from: https://www.st-andrews.ac.uk/subjects/medicine/scotgem-mbchb/ 2. Shared decision making in realistic medicine: what works - gov.scot [Internet]. [cited 2021 Mar 27]. Available from: https://www.gov.scot/publications/works-support-promote-shared-decisionmaking-synthesis-recent-evidence/pages/1/ 3. Ghesquiere AR, Patel SR, Kaplan DB, Bruce ML. Primary care providers’ bereavement care practices: Recommendations for research directions. Int J Geriatr Psychiatry. 2014 Dec;29(12):1221–9. 4. Nielsen MK, Christensen K, Neergaard MA, Bidstrup PE, Guldin M-B. Grief symptoms and primary care use: a prospective study of family caregivers. BJGP Open [Internet]. 2020 Aug 1 [cited 2021 Mar 27];4(3). Available from: https://bjgpopen.org/content/4/3/bjgpopen20X101063 5. O’Connor M, Breen LJ. General Practitioners’ experiences of bereavement care and their educational support needs: a qualitative study. BMC Medical Education. 2014 Mar 27;14(1):59. 6. Sikstrom L, Saikaly R, Ferguson G, Mosher PJ, Bonato S, Soklaridis S. Being there: A scoping review of grief support training in medical education. PLOS ONE. 2019 Nov 27;14(11):e0224325.
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Baker, Stuart W. Assessment of the Utility of Episodes of Illness as a Tool for Ambulatory Resource Allocation within the United States Military Health Care System,. Fort Belvoir, VA: Defense Technical Information Center, August 1991. http://dx.doi.org/10.21236/ada252425.

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Integration of reproductive health services for men in health and family welfare centers in Bangladesh. Population Council, 2004. http://dx.doi.org/10.31899/rh17.1006.

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Since the mid-1970s, the Bangladesh national family planning program primarily focused on motivating women to use modern contraceptive methods and encouraging them to seek services from clinics. In addition, female field workers were recruited to deliver contraceptive methods at homes. The program design facilitated women’s access to information and medical care through clinics and home visits. In the process, however, the medical needs of males were marginalized. Men generally seek services from pharmacies, private practitioners, and district hospitals, and often ignore preventive steps and postpone seeking medical care for chronic health conditions. In cases of acute illness, they often resort to self-medication. As noted in this report, the study’s aim was to integrate male reproductive health services within the existing government female-focused health-care delivery system. The study concluded that reproductive health services for men could easily be integrated into the health and family welfare centers without affecting the clinics’ focus on serving women and children.
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