Academic literature on the topic 'Ageing family carers'
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Journal articles on the topic "Ageing family carers"
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O'Donnell, Deirdre. "65 The Health and Well-Being of Family Carers of Older People: An Exploratory Cross-Sectional Analysis." Age and Ageing 48, Supplement_3 (September 2019): iii1—iii16. http://dx.doi.org/10.1093/ageing/afz102.14.
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Abstract Background Family carers are critical to supporting older people to live well in their homes and demand for care at home is projected to increase dramatically into the future.1 The Irish state and health system, therefore, are dependent upon the supply of family care now and into the future. The health and well-being of older family carers, and carers providing care to older people in the community, is under-researched. Methods A combination of online and postal survey distribution achieved a convenience sample (N=1102) of carers from the membership and network reach of Ireland’s largest family carer support and advocacy agency. Results Of those carers providing care to an older adult (n=341), 30% were aged over 64 and 28% reported mild to moderate carer burden. A further 36% reported moderate to severe burden. The average Zarit burden score for carers caring for an older adult was 44 (CI 42:45) and was 39 (CI 36:43) for family carers aged over 64. Among family carers of older adults, 72% reported diagnosis or treatment for physical illness and 42% reported diagnosis or treatment for mental illness. The most frequently cited source of worry for this group was their own health and wellbeing (73%) followed by lack of appropriate supports/services (68%). GPs were the most frequently cited source of support (64%) followed by a PHN (50%). Conclusion The study findings indicate that the lack of appropriate state supports and services for family carers is negatively impacting carer health and well-being. Family carers, including those providing care to older people and those who are themselves aged over 64, need to be consistently identified for intervention by health professionals, particularly GPs and PHNs.
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Reid, Laura, and Aisling Harmon. "146 The Lived Experience of Carer Resilience Told by Carer Advocates." Age and Ageing 48, Supplement_3 (September 2019): iii17—iii65. http://dx.doi.org/10.1093/ageing/afz103.87.
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Abstract Background Established in 2013 this network of volunteer family carers is a national advocacy group that presents a vital opportunity for carers to use their voice to raise awareness of issues affecting families living with dementia in Ireland. The network is facilitated by a dementia specific service provider. These carer advocates wish to present on a piece of qualitative research they have recently conducted on the topic of carer resilience at the advanced stages of caring for a loved one with dementia. Methods There are 43 family carer advocates on the network, all of whom were invited to participate in this research. The piece of qualitative research conducted by the network with its members took the form of a questionnaire. The research sought to ascertain how informed and supported carers felt as their loved ones transitioned to long term residential care and the stage thereafter. This research did not discuss the level of professional care given to their loved one but what supports and services were offered to the carer at that time and how this affected their resilience. The aspect of caring for a loved one availing of hospice care naturally emerged during the research process and this topic was also explored in relation to carer resilience. Completed questionnaires were analysed to show findings and draw conclusions. Results The research gives insight into the lived experience of carer resilience told by carer advocates. The results show that carer advocates feel ill-informed and badly supported as their loved one transitions to or resided in long term residential care. The research also showed that carers feel more informed and supported if their loved one availed of hospice care rather than long term residential care. Conclusion Carers are not properly informed or supported when their loved one transitions to or resides in long term residential care and this negatively affects their resilience.
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Horner, Barbara, and Duncan P. Boldy. "The benefit and burden of "ageing-in-place" in an aged care community." Australian Health Review 32, no. 2 (2008): 356. http://dx.doi.org/10.1071/ah080356.
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Ageing-in-place is usually viewed as a positive approach to meeting the needs of the older person, supporting them to live independently, or with some assistance, for as long as possible. It implies that older people prefer to live in their own home, rather than in an institution or care centre. However, there is little in the literature about the implications of ageing-in-place for the individual or their carers, or the burden this can place on service providers and aged care communities. In an action research study that investigated the complexities and challenges of change in an aged care community in Western Australia, the implications of ageing-in-pace were apparent. The study revealed how residents expressed a desire to agein- place and identified it as a critical element of quality of life and an important component of social connection. The findings also revealed the burden of ageing-in-place on carers, family and the organisation, and sufficient attention must also be paid to the wider impact on the individual, the family and carers.
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Finn, Caroline, and Pauline Boland. "59 Male Family Carers’ Perceptions of Formal Support Services, a Meta-ethnography." Age and Ageing 48, Supplement_3 (September 2019): iii17—iii65. http://dx.doi.org/10.1093/ageing/afz103.34.
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Abstract Background Family carers provide thousands of hours of unpaid work every year, a third of whom are men, however this group are generally under-represented in research. Comparative studies have shown that male carers experience their caring role differently to female counterparts. Social concepts related to masculinity can help to explain help-seeking behaviours of male carers, as well as their attitudes to accessing outside support. Compared to women carers, men have lower rates of uptake of formal support services. This aim of this review, therefore, was to examine accounts of male carers’ experiences and perceptions of receiving formal support. Methods The study followed a meta-ethnography process starting with a systematic literature search of five electronic databases. The methodological quality of the included studies was evaluated using the McMaster checklist. Using NVivo 12 software, primary qualitative data was analysed and key themes were identified. Results were synthesised using Noblit and Hare’s (1988) process of meta-ethnography, retaining direct quotes from the studies. Results Eighteen studies were included in the final paper. Three main themes were identified: 1) asserting control over the caring role 2) desire to excel in caring role and 3) coping without formal support. Conclusion For the most part, male carers expressed a desire to be competent in their caring role. Perceived loss of control within the caring relationship was a key factor when men had low trust and dissatisfaction with services. Support services that were collaborative, education-based and gender-sensitive were favoured by the men. To engage more male carers, service providers should acknowledge men’s experience and capabilities as well as their wish to stay involved in decision-making around care for their family member. For men over the age of 85 male family carers outnumber females in Ireland (CSO 2016). It is important to understand male carers’ experience to develop more inclusive supports and consequently increase service uptake.
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Singh, Prabhjot, Rafat Hussain, Adeel Khan, Lyn Irwin, and Roslyn Foskey. "Dementia Care: Intersecting Informal Family Care and Formal Care Systems." Journal of Aging Research 2014 (2014): 1–9. http://dx.doi.org/10.1155/2014/486521.
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Dementia is one of the major causes of disability and dependence amongst older people and previous research has highlighted how the well-being of people with dementia is inherently connected to the quality of their relationships with their informal carers. In turn, these carers can experience significant levels of emotional stress and physical burden from the demands of caring for a family member with dementia, yet their uptake of formal services tends to be lower than in other conditions related to ageing. This paper is based on a qualitative study undertaken in the Australian state of Queensland and explores issues of access to and use of formal services in dementia care from the perspective of the informal family carers. It identifies three critical points at which changes in policy and practice in the formal care system could improve the capability of informal carers to continue to care for their family member with dementia: when symptoms first become apparent and a diagnosis is sought; when the condition of the person with dementia changes resulting in a change to their support needs; and when the burden of informal care being experienced by the carer is so great that some form of transition appears to be immanent in the care arrangement.
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Poole, Marie, Nuala Davis, and Louise Robinson. "Massive Open Online Courses: enhancing caregiver education and support about dementia care towards and at end of life." Age and Ageing 49, no. 2 (December 4, 2019): 171–74. http://dx.doi.org/10.1093/ageing/afz150.
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Abstract As the ageing population grows globally, the need for informal care—usually provided by family and friends—will continue to increase. Numbers of people with dementia also continue to rise, and much of their care will be provided by relatives. As such, more people who may themselves be older, will take on such caring roles. Consequently, more carers are likely to have education and support needs. Amidst government recognition of the need to provide good quality, person-centred education and support to carers, there are tensions between the potential for such provision to be resource intensive and whether existing services have the capacity to meet the needs of carers. Massive Open Online Courses (MOOCs) are a resource with scope to meet some of these educational and support needs. MOOCs enable flexible learning, are often free, and can be accessed anywhere in the world. Providing supportive dementia care requires carers to have an understanding of the condition, assistance to cope with the responsibilities of caring, and recognition of the importance of their own health and wellbeing as well as the person they support. In response to the needs of family carers of people with advancing dementia identified through a 5 year programme of research, we developed a MOOC—dementia care: living well as dementia progresses. This is an accessible source of relevant and engaging information; which enables carers to learn about advancing dementia, consider their own needs and create an interactive global forum of peer support.
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Oliveira, Deborah, Lidia Sousa, and Aimee Aubeeluck. "What would most help improve the quality of life of older family carers of people with dementia? A qualitative study of carers’ views." Dementia 19, no. 4 (August 4, 2018): 939–50. http://dx.doi.org/10.1177/1471301218791906.
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Older family carers of people with dementia provide a substantial amount of care for people with dementia in the UK. Caregiving can be stressful and burdensome for these individuals, who are also experiencing psychological and physical changes resulting from their own ageing process. However, little is known about what impacts their quality of life, how this can be improved and what we should prioritise. This brief report asks one simple question to older family carers of people living with dementia – “What would most help improve your quality of life as a carer?” Qualitative data were collected from 150 carers who completed an anonymous paper survey during the development and validation of a quality of life tool for use with this population (DQoL-OC). Participants were individuals aged 60 and over and were providing care for a family member with dementia at home in the UK. Carers were recruited from a variety of voluntary organizations, community-based carers’ groups, health services and via online forums. A thematic approach was used to analyse the carers’ comments and three main overarching themes were identified. The quality of life of older family carers can be enhanced by having more time away from caregiving, accessing health and social services that are dementia friendly and by having economic support. Future care, policies and research should aim to address these key areas in order to promote better quality of life for older carers of people with dementia. Further implications for practice, policy and research are discussed.
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Lyons, Karen, and Christopher Lee. "175 A Dyadic Approach to Life-Threatening Illness in Older Adults and their Spouse Carers." Age and Ageing 48, Supplement_3 (September 2019): iii1—iii16. http://dx.doi.org/10.1093/ageing/afz102.39.
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Abstract Background Little research focuses on the older adult with life-threatening illness and their carer simultaneously, nor the role of the interpersonal and familial context around them. The purpose of this study was to identify factors associated with poor mental health and lack of shared appraisal of symptoms. Methods Multilevel modeling was used to examine cross-sectional data from 135 older adult-spouse carer dyads with life-threatening illness (59 with congestive heart failure and 76 with lung cancer). This was a secondary analysis of quantitative data from two studies. Data were gathered using established measures of symptoms (dyspnoea, fatigue, pain), depression, concealment, relationship quality and family support with in-person interviews conducted separately for older adults and their carers. Diagnosis and stage of disease were gathered from clinical records. Results Older adults with heart failure reported significantly more depressive symptoms than older adults with lung cancer, whereas spouses caring for someone with heart failure reported significantly less depressive symptoms than those caring for someone with lung cancer. Greater levels of spouse depressive symptoms were significantly associated with less shared appraisal of the older adult’s fatigue and pain interference, controlling for the quality of the relationship between them. Finally, risk factors for higher depressive symptoms of older adults included higher levels of concealing symptoms and worries from their spouse, advanced stage of disease, reporting low relationship quality and low levels of support from family. Risk factors for higher depressive symptoms of spouse carers included being younger and reporting low support from family. Conclusion Findings highlight the importance of taking a dyadic approach to life-threatening illness in older adults and the role of interpersonal and familial variables on the mental health of both members. Interventions to support and strengthen relationships and communication and address depressive symptoms of both members of the dyad are warranted.
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Jones, Carys, Rhiannon Tudor Edwards, and Barry Hounsome. "Qualitative Exploration of the Suitability of Capability Based Instruments to Measure Quality of Life in Family Carers of People with Dementia." ISRN Family Medicine 2014 (March 4, 2014): 1–9. http://dx.doi.org/10.1155/2014/919613.
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Background. In an ageing population, many individuals find themselves becoming a carer for an elderly relative. This qualitative study explores aspects of quality of life affected by caring for a person with dementia, with the aim of identifying whether capability based questionnaires are suitable for measuring carer quality of life. Methods. Semistructured interviews lasting up to an hour were conducted, November 2010–July 2011, with eight family carers of people with dementia. Interviews typically took place at the participants’ homes and were recorded and transcribed verbatim. Framework analysis was used to code and analyse data. Domains from three capability based questionnaires (ICECAP-O, Carer Experience Scale, and ASCOT) were used as initial codes. Similar codes were grouped into categories, and broader themes were developed from these categories. Results. Four themes were identified: social network and relationships; interactions with agencies; recognition of role; and time for oneself. Conclusions. By identifying what affects carers’ quality of life, an appropriate choice can be made when selecting instruments for future carer research. The themes identified had a high degree of overlap with the capability instruments, suggesting that the capabilities approach would be suitable for future research involving carers of people with dementia.
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Costantini, Hiroko. "COVID-19 Vaccine Literacy of Family Carers for Their Older Parents in Japan." Healthcare 9, no. 8 (August 12, 2021): 1038. http://dx.doi.org/10.3390/healthcare9081038.
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In super-ageing Japan, COVID-19 vaccinations were starting to reach older people as of June 2021, which raises the issue of vaccine literacy. This study focuses on family members who work and also care for their older parents, as they are at risk of COVID-19 and also risk transmitting COVID-19 to the parents they care for and potentially influencing their parents’ vaccine uptake. Such family carers are central to the approach in Japan to achieving a sustainable and resilient society in response to ageing. Contrasting family carers’ COVID-19 vaccine literacy with their overall health literacy provides insights into their preparedness for COVID-19 vaccinations. The purpose of this study is to understand how vaccine literacy, compared to health literacy, varies across family carers and the sources of information they use. Through a cross-sectional online survey, family carers’ vaccine literacy, health literacy and their sources of information, including mass media, social media, health and care professionals, family, colleagues, friends, and others, were assessed. The participants’ (n = 292) mean age was 53, with 44% women, and an average of 8.3 h per week caring for their parents. Notwithstanding the increased risks from COVID-19 with age, COVID-19 vaccine literacy relative to health literacy for older family carers is lower on average, higher with increased provision of care, and more variable, resulting in a substantial proportion of older family carers with relatively low vaccine literacy. At this stage of vaccine rollout in Japan, family carers’ sources of information to inform COVID-19 vaccine literacy is distinct, including more national and local mass media versus less health and care professionals and informal networks, which indicates the importance of tailored health communication strategies to enhance vaccine literacy
Dissertations / Theses on the topic "Ageing family carers"
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Simpson, Wendy. "Accommodation for adults with intellectual disability: Exploring the lived experiences of ageing parent carers and the reasons behind their decision to continue to care in the family home." Thesis, Edith Cowan University, Research Online, Perth, Western Australia, 2017. https://ro.ecu.edu.au/theses/1948.
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As life expectancy increases and mortality rates decrease, Australia is faced with an ageing population. This is particularly true of the population of people living with intellectual disability. Australian research has found that there is an increasing number of ageing parent-carers continuing to provide care for their adult child with an intellectual disability in the family home. Since deinstitutionalisation, many families made the choice to provide care at home, which may become a concern as they age and ask the question “who will care when I am gone?” The purpose of this study was to explore the reasoning behind decisions families made that resulted in them continuing to provide care in the family home, what barriers they experienced, and what plans they had in place for the future accommodation for their adult child with intellectual disability.
A qualitative phenomenological approach was utilised for this study, through a social constructivist worldview. Semi-structured interviews explored the lived experiences of ageing parent carers who continue to care for their adult child with intellectual disability at home. Four families were interviewed for the study. Contrary to the findings of other studies, this study found that the degree of the disability of their adult child and the absence of informal support networks had no bearing on the decision for these families to continue to provide care at home. The families in this study perceived that the care they provide at home was better quality than the care that is provided in accommodation services. This perception was influenced by previous experiences in respite care. In addition to this, even though all of the families interviewed had wills in place, concrete plans for their son or daughter’s future accommodation and care were often vague, or non-existent other than financial bequests.
Recommendations focused on improving the first and subsequent experiences in respite care by implementing strategies to improve the quality of care, perceived or real, provided in disability accommodation. Further recommendations include the introduction of funding to allow for planning sessions for families to navigate the legal system in regards to wills, financial bequests and guardianship. Final recommendations include the introduction of further education for service providers, Local Area Coordinators and NDIS Planners to have a greater knowledge of the challenges families face as they age yet continue to provide care, and to be better equipped to provide the information and resources to plan for the future of their adult child with intellectual disability.
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Joubert, Janetta Debora. "A profile of informal carers in South Africa." Diss., Pretoria : [s.n.], 2005. http://upetd.up.ac.za/thesis/available/etd-12022005-140227.
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Robertson, Jane M. "Making sense and finding meaning : comparing narratives of older people with dementia and carers about the quality of an ordinary life." Thesis, University of Stirling, 2010. http://hdl.handle.net/1893/2530.
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This research examines narratives about the quality of everyday life with dementia. The aim of the study is to compare and contrast differing perspectives about the impact of ageing and dementia upon the lives of older people with dementia. A total of 50 interviews with six older people with dementia and ten family and paid carers were conducted over a two-year period. Narrative analysis was used to examine the content and structure of their accounts to understand their perspectives on what matters most to people living with dementia. This in-depth analysis enabled an exploration of different social concepts and narrative constructions that people draw upon in making sense of their experiences of caring and living with dementia. The analysis demonstrated that older people incorporate ageing and dementia into a continuing sense of self. Positive constructions of living with dementia involve the ability to lead a meaningful life that supports pre-existing social roles and relationships and active engagement within the family and community. The emphasis is on living an ordinary life while responding to the challenges associated with cognitive impairment and social stigma. For family and paid carers, perceptions of a meaningful life depend on how the identity of the older person with dementia is positioned relative to past social roles and relationships. Positive constructions assume continuity as opposed to focusing on disruption in the person’s identity and life. Carer perspectives are also influenced by how the person is perceived to conform to social standards of normality. The narratives of older people with dementia reflect their active struggle to find meaning in terms of realising their sense of self within a social world that largely defines them as different and out of the ordinary. The narratives of carers resonate with emotional difficulty, reflecting their struggle to make sense of a life that is not represented as essentially normal. These findings show that, for all, finding meaning in everyday life depends upon making sense of that life as normal and ordinary.
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Straub, Larry G. "Promethean Framework and Measurement Instrument: Career Development, Maintenance and Transitions in Convulsive Economic Cycles." Case Western Reserve University Doctor of Management / OhioLINK, 2014. http://rave.ohiolink.edu/etdc/view?acc_num=casedm1568628001000544.
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Rezková, Aneta. "Vliv rodiny na výběr povolání u žáků ZŠ." Master's thesis, 2012. http://www.nusl.cz/ntk/nusl-306906.
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RESUME The times based on one individual's decision about which school to study to be able to choose further continuous and smooth career path has been over. As a result of current global and local social changes everybody should be prepared to the every possible change in career. Nevertheless the first choice of career is still an important milestone and can direct the individual career, but it is not the only key milestone, that determines the individual career once and for ever. People in contemporary world should be able to respond quickly to constant changes, evaluate new situations and be able to make the right decisions. The widespread myth is that success means to raise money as quickly as possible to guarantee the freedom and happiness. But a real success is a contented life, which is a long way over such values as for example certainty that we are doing the work that we like and which fills us with satisfaction. Individual goal is to focus on the abilities and skills so that the decision directs to such a career path where one will be able to optimally exploit one's potential in a future career. In the beginning of a career path a family as a primary socializing agent and the closest partner institution in the life of the pupil should fulfil its role in close cooperation with the school that...
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Bakalarczyk, Rafał. "Polityka wsparcia nieformalnych opiekunów niesamodzielnych osób starszych. Na podstawie zmian prawnych w latach 2003-2015." Doctoral thesis, 2016.
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Praca jest poświęcona polityce wsparcia osób opiekujących się osobami starszymi, które zostały dotknięte ryzykiem niesamodzielności. Analiza obejmuje okres 2003-2015. Głównym celem jest eksploracja i opis określonej w tytule problematyki, a także dostarczenie narzędzi do analizy, oceny i projektowania systemów wsparcia opiekunów w przyszłości. W pierwszym rozdziale zostało przedstawione ryzyko niesamodzielności jako ryzyko socjalne, a następnie ryzyko socjalne, jakiemu podlega opiekun osoby niesamodzielnej osoby starszej, w wymiarze socjalnym, zawodowym, zdrowotnym i psychospołecznym. Następnie autor pokazuje ryzyko niesamodzielności i skalę potrzeb opiekuńczych w starzejącym się społeczeństwie polskim oraz rozważa źródła silnego oparcia systemu opieki długoterminowej wobec niesamodzielnych osób starszych na zaangażowaniu rodziny i opiekunów nieformalnych. Wśród potencjalnych przyczyn tego stanu rzeczy autor wyróżnia i omawiana: silne, kulturowo zakorzenione, oczekiwania społeczne wobec rodziny jeśli chodzi o opiekę i pomoc niesamodzielnym osobom starszym; ograniczony dostęp do wsparcia instytucjonalnego w zakresie opieki długoterminowej; a także treść regulacji prawnych, w ustawy o pomocy społecznej, która nadaje pierwszeństwo opiece świadczonej przez osoby z najbliższego otoczenia względem opieki instytucjonalnej.Drugi rozdział przedstawia cele i instrumenty wsparcia opiekunów nieformalnych niesamodzielnych osób starszych pod kątem występowania ich w polskim porządku prawnym w analizowanym okresie oraz dylematów towarzyszących stosowaniu poszczególnych instrumentów. Autor podzielił omawiane instrumenty na dwie zasadnicze grupy: wsparcie materialno-finansowe i pozamaterialne. Rozważania z drugiego rozdziału prowadzą do wniosku, że polski system wsparcia opiekunów zdominowany jest przez wsparcie o charakterze materialno-finansowym, zwłaszcza pieniężnym (realizowane w formie świadczeń opiekuńczych na mocy ustawy o świadczeniach rodzinnych).Trzeci rozdział zawiera periodyzację zmian prawnych w zakresie wsparcia opiekunów wraz z pokazaniem czynników jakie je warunkowały oraz konsekwencji poszczególnych zmian. Szczególnie dokładnie omówione są zmiany i dyskusje wokół w nich w okresie 2013-2015, kiedy to autor w sposób uczestniczący przyglądał się dialogowi środowiska opiekunów niepełnosprawnych osób dorosłych ze stroną rządową. Jak pokazała analiza, głównym przedmiotem zmian jak i sporów okazała się kwestia wysokości świadczeń jak i kryteriów uprawniających do skorzystania z nich.Czwarty rozdział poświęcony jest kryteriom dostępu do wsparcia. Autor tworzy schemat podziału kryteriów wsparcia opiekunów na trzy grupy: socjalno-ekonomiczne, opiekuńcze i społeczno-rodzinne, a następnie omawia zastosowanie poszczególnych ich rodzajów w Polsce i rozważa zasadność ich użycia w dotychczas istniejącym kształcie prawnym. Wśród kryteriów socjalno-ekonomicznych szczególnie dokładnie zostało omówione kryterium dochodowe oraz kryterium całkowitej rezygnacji z pracy, gdyż to ich spełnienie warunkuje otrzymanie pomocy. Wśród kryteriów opiekuńczych autor omawia m.in. poziom niesamodzielności, poziom zaangażowania w opiekę i jej aspekty jakościowe, zaś wśród kryteriów rodzinno-społecznych między innymi charakter więzi między opiekunem i podopiecznym oraz strukturę gospodarstwa domowego, z uwzględnieniem udziału osób wymagających opieki. Całość pracy wieńczy zakończenie zawierające wnioski i rekomendacje.The subject of dissertation is policy of support to informal carers of infirm elderly people in Poland. The analysis refers to the years 2003-2015. The main purpose is to explore and to describe the subject, but also to provide some tool to analyse, evaluate and project policy in that field in the future. First chapter starts with the description of categories such as long-term care and the risk of infirmity. Then, author moves to the description of being the carer of elderly person as a social risk. He distinguishes three aspects of that risk: poverty risk, poorer situation on labour market and risk of losing the health and psycho-social wellbeing of carer. Next, author shows the scale the risk of infirmity among elderly people in Poland and the way their caring needs are met. Finally, author examines what may be the reason for a huge role of family in polish long-term system concerning the elderly people. He points and elaborates three hypothetical factors that lead to family oriented model of elderly care in Poland: historically and traditionally rooted, social expectations that caring for the elderly family, the limits of formal care provision and access and the shape of law regulations that favour care provided by social actors form close surrounding, not public institutions.The second chapter is devoted to the goals and instruments of support to the informal caregivers. After enumerating the goals that can orientate such policy, author focuses on the question of the forms of support and their typologies. He decides to use his own way of dividing the forms of support into two groups: material and financial on the one hand, and the non-material on the second. The profound analysis of certain forms of support of both type in reference to the polish system of support to the carers leads to conclusion that system in Poland is based on material (especially financial) support, meanwhile the non-material help is not well-developed. In the third chapter author describes the evolution of policy of financial support to caregivers, considering the changes in regulatons, processes that stimulated that changes (such as social protests) and critical discussion about it. The most precise analysis refers to the years 2013-2015, when author used to participate in social dialogue between government and the representatives of carers. The analysis leads to the conclusion that main subject of the legislative changes and the argues between government and caregivers representation referred to the generosity of benefits and the conditions used to check who is eligible to support. The last chapter focuses on the criteria used to limit the access and the generosity of benefits. Author, divides the criteria into tree broad groups: socio-economic, caring, and social-family criteria. He examines which of them (and in what form) are used in polish policy and analyse the advantages and disadvantages of using them. Much attention is put on the income-test and the condition of total resignation from labour market activities, that are two main condition of getting support to carers according to national law.The final part includes not only conclusion but several recommendations on what direction the system should be reshaped in the future in order to gain the goals of support policy and to counteract the social risk of carer in the dimensions, mentioned in previous chapters.
Books on the topic "Ageing family carers"
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Walker, Carol. Uncertain futures: People with learning difficulties and their ageing family carers. Brighton: Pavilion, in association with the Joseph Rowntree Foundation, 1998.
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Adler, Richard. Economic Foundations for Creative Ageing Policy, Volume II: Putting Theory into Practice. New York: Palgrave Macmillan, 2017.
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Sampson, Elizabeth, and Karen Harrison Dening. Palliative care and end of life care. Oxford University Press, 2013. http://dx.doi.org/10.1093/med/9780199644957.003.0028.
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Our ageing population and changes in cause of death, mean that increasing number of people will die in old age. Older people have, in many countries, had poor access to good quality end of life care. Many will develop multiple co-morbidities associated with age; dementia, mental health problems and general frailty. Palliative care is an approach which aims to relieve suffering and take account of a person’s physical, psychosocial and spiritual needs as they near the end of life. Advanced dementia is now being perceived as a “terminal illness”. Interventions such as antibiotics and enteral tube feeding remain in use despite little evidence that they improve quality of life or other outcomes. A person-centred approach from a multidisciplinary team is vital in providing good quality end of life care in a range of settings The acknowledgement of anticipatory grief and provision of bereavement support are vital for some family carers.
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Phillips, Jane L., Annmarie Hosie, and Patricia M. Davidson. Palliative care in the nursing home. Oxford University Press, 2015. http://dx.doi.org/10.1093/med/9780199656097.003.0014.
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Internationally, ageing, technological advances, evolving patterns of disease and disability, and changes in family structures have resulted in nursing homes becoming the final residence for many frailer older people. Much of the on-site assistance with activities of daily living in nursing homes is predominately provided by an unregulated or minimally trained carer workforce with registered nurse supervision, while professional nursing and medical care is provided either by on-site or visiting doctors, nurses, and allied health professionals from external services. This chapter details the palliative care needs of older people living in nursing homes and the challenges and opportunities to deliver better end-of-life care to this population, and proposes utilizing the Chronic Care Model as a framework for delivering the elements of a palliative approach to improve care outcomes for residents and their families.
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Boncardo, Robert. Jean-Paul Sartre’s Mallarmé: Hero of an Ontological Drama, Agent of the Counter-revolution. Edinburgh University Press, 2018. http://dx.doi.org/10.3366/edinburgh/9781474429528.003.0002.
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This first chapter presents an in-depth study of Jean-Paul Sartre’s career-long engagement with Mallarmé. Beginning with a discussion of Sartre’s notorious side-lining of poetry in favour of committed literature, the chapter asks why Sartre nevertheless chose to devote so many pages to Mallarmé, particularly in his incomplete existential biography Mallarmé, or, The Poet of Nothingness. The chapter begins with an extensive reading of this latter work, tracking Sartre’s trenchant Marxist analysis of the post-1848 literary field in France before exploring his account of Mallarmé’s personal trajectory. Finally, it turns to the third volume of Sartre’s The Family Idiot and argues for the consistency of Sartre’s reading of Mallarmé as a nihilist and as a political quietist.
Book chapters on the topic "Ageing family carers"
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Rogoz, Mădălina, and Martina Sekulova. "Labour Mobility from Eastern European Welfare States: Zooming in on Romania and Slovakia." In IMISCOE Research Series, 105–21. Cham: Springer International Publishing, 2021. http://dx.doi.org/10.1007/978-3-030-67615-5_7.
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AbstractIn the last two decades, care deficits in Western Europe have been fuelled by demographic and social transformations, such as population ageing, changes in household structures, welfare programme reforms and an altogether lesser involvement of the state in care provision. These care deficits, particularly in high-income countries, have been addressed through migrant labour which, in turn, contributes to increasing care needs in the migrants’ sending countries. Through the example of Romanian and Slovak caregivers working in 2- and 4-week shifts in Austria, this chapter explores the linkages between care workers’ strategies to address the care deficits in their families, the features of relevant welfare provisions in their respective countries of origin and the workers’ mobility patterns. The chapter argues that existing (limited) care needs in their respective families allow carers to engage in transnational work, while extensive care needs at home are a hindrance for working abroad. In other words, there seems to be a tipping point in the care needs of workers’ families, which results in care workers no longer wanting to work abroad but needing to remain in their countries of origin and care for family members instead. Furthermore, the chapter argues that labour mobility patterns are also influenced by the ‘familialistic’ orientation of relevant welfare provisions in sending countries. As limited formal services put pressure on families to continue providing care informally, institutional frameworks for childcare and care for the elderly also influence care workers’ mobility strategies.
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Rummery, Kirstein. "Ageing, disability and family life." In Disability, Care and Family Law, 66–82. Milton Park, Abingdon, Oxon; New York, NY: Routledge, 2021.: Routledge, 2021. http://dx.doi.org/10.4324/9780429328015-5.
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Schulz, Erika. "Projection of Care Need and Family Resources in Germany." In Ageing, Care Need and Quality of Life, 61–81. Wiesbaden: VS Verlag für Sozialwissenschaften, 2010. http://dx.doi.org/10.1007/978-3-531-92335-2_4.
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Körükcü, Öznur, and Kamile Kabukcuoğlu. "Health Promotion Among Home-Dwelling Elderly Individuals in Turkey." In Health Promotion in Health Care – Vital Theories and Research, 313–27. Cham: Springer International Publishing, 2021. http://dx.doi.org/10.1007/978-3-030-63135-2_22.
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AbstractAlthough the social structure of Turkish society has changed from a broad family order to a nuclear family, family relations still hold an important place, where traditional elements dominate. Still, elderly people are cared for by their family in their home environment. Thus, the role of family members is crucial in taking care of elderly individuals. In Turkey, the responsibility of care is largely on women; the elderly’s wife, daughter, or daughter-in-law most often provides the care. Family members who provide care need support so that they can maintain their physical, psychological and mental health. At this point, Antonovsky’s salutogenic health model represents a positive and holistic approach to support individual’s health and coping. The salutogenic understanding of health emphasizes both physical, psychological, social, spiritual and cultural resources which can be utilized not only to avoid illness, but to promote health.With the rapidly increasing ageing population globally, health expenditures and the need for care are increasing accordingly. This increase reveals the importance of health-promoting practices in elderly care, which are important for the well-being and quality of life of older individuals and their families, as well as cost effectiveness. In Turkey, the emphasis on health-promoting practices is mostly focused in home-care services including examination, treatment, nursing care, medical care, medical equipment and device services, psychological support, physiotherapy, follow-up, rehabilitation services, housework (laundry, shopping, cleaning, food), personal care (dressing, bathroom, and personal hygiene help), 24-h emergency service, transportation, financial advice and training services within the scope of the social state policy for the elderly 65 years and older, whereas medical management of diseases serves elderly over the age of 85. In the Turkish health care system, salutogenesis can be used in principle for two aims: to guide health-promotion interventions in health care practice, and to (re)orient health care practice and research. The salutogenic orientation encompasses all elderly people independently of their position on the ease-/dis-ease continuum. This chapter presents health-promotion practices in the care of elderly home-dwelling people living in Turkey.
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Ní Léime, Áine, and Debra Street. "Gender, Transitions and Turning Points: The Life Course and Older Workers’ Trajectories in Different US Occupations." In Older Workers and Labour Market Exclusion Processes, 19–44. Cham: Springer International Publishing, 2022. http://dx.doi.org/10.1007/978-3-031-11272-0_2.
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AbstractThis chapter interrogates the proposition that extending working life is an unproblematic policy measure introduced to address demographic ageing and increased pension costs. The implications of extending working life varies for workers in different occupations. The chapter draws on interview data from a qualitative study of 17 men and 20 women workers in the United States. Interviewees working either as teachers or in physically-demanding jobs such as care-giving for older people or cleaning narrated their work-life history and discussed their current work, future plans and their views on working longer.Analysis of different strands of their work-life trajectories – work, family, health – from a life course perspective reveals that workers may be channelled into particular kinds of employment and that advantage or disadvantage can accumulate across the life course. It supports previous research showing that physically-demanding work adversely affects workers’ health. Gendered expectations regarding the provision of care can result in disrupted careers for women, leading to lower pension provision and the need to continue working later. Such processes, combined with pension reforms and the increasingly precarious nature of employment can lead to poor economic and health outcomes for some workers. The implications of these findings for policy are discussed.
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"Carers: Interfacing family and community." In Ageing in Singapore, 99–117. Routledge, 2006. http://dx.doi.org/10.4324/9780203966921-16.
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Sampson, Elizabeth, and Karen Harrison Dening. "Palliative and end-of-life care." In Oxford Textbook of Old Age Psychiatry, 395–408. Oxford University Press, 2020. http://dx.doi.org/10.1093/med/9780198807292.003.0027.
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Our ageing population and changes in cause of death mean that increasing number of people will die in old age. In many countries, older people have had poor access to good-quality end-of-life care. Many will develop multiple comorbidities associated with age—dementia, mental health problems, and general frailty. Palliative care is an approach that aims to relieve suffering and take account of a person’s physical, psychosocial, and spiritual needs as they near the end of life. Advanced dementia is now being perceived as a ‘terminal illness’. Interventions such as antibiotics and enteral tube feeding remain in use despite little evidence that they improve quality of life or other outcomes. A person-centred approach from a multi-disciplinary team is vital in providing good-quality end-of-life care in a range of settings. The acknowledgement of anticipatory grief and provision of bereavement support are vital for some family carers.
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Thompson, David R., Martha Kyriakou, Izabella Uchmanowicz, Jan Keenan, Rani Khatib, Loreena Hill, Lis Neubeck, Ekaterini Lambrinou, and Abigail Barrowcliff. "Addressing the current challenges for the delivery of holistic care." In ESC Textbook of Cardiovascular Nursing, edited by Catriona Jennings, Felicity Astin, Donna Fitzsimons, Ekaterini Lambrinou, Lis Neubeck, and David R. Thompson, 419–42. Oxford University Press, 2021. http://dx.doi.org/10.1093/med/9780198849315.003.0014.
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Contemporary challenges for holistic care include frailty and ageing, multimorbidity, polypharmacy, caregiver involvement, palliative and supportive care, cultural and socioeconomic issues, and gender inequalities. Frailty is a growing health problem among older people, especially women, and linked with an increased risk in mortality, disability, and cognitive decline. Patients with cardiovascular disease (CVD) often present with other comorbidities such as diabetes, obesity, cancer, depression, arthritis, frailty, and cognitive impairment, which require a tailored ‘person-centred’ holistic approach using skilled clinical judgement and good communication and should draw upon a range of resources, including informal carers, friends, and family, who often provide considerable support to people with multimorbidity. Polypharmacy, the concurrent use of multiple medications by a person, is a growing issue, especially among older people with multimorbidity. Problematic polypharmacy occurs where the benefits of one or more of these medicines are not realized, patients experience inappropriate or avoidable adverse drug reactions, or patients are non-adherent. Regular medicines review, evaluation of adherence, and appropriate deprescribing are essential. Many patients with advanced CVD and serious symptoms require palliative care which should be integrated with usual cardiovascular care from diagnosis. Cultural and socioeconomic issues are increasingly being recognized as important determinants of the cause and outcome of CVD and should be considered in any intervention, such as health behaviour change, when holistically assessing a patient with CVD. Females with CVD should be provided with equal access to care, a prompt diagnosis, and treatments based on the guidelines and recommendations at the same rate and intensity as their male counterparts.
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Cable, Noriko, Michikazu Sekine, and Shinsuke Koike. "Family, Community, and Mental Wellbeing." In Health in Japan, 69–84. Oxford University Press, 2020. http://dx.doi.org/10.1093/oso/9780198848134.003.0005.
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The Japanese demographic changed rapidly after 1945. There was rapid ageing, a sharp decline in three-generation households, and a rise in solo households. Still, the Japanese family-based collective culture continues to shape individuals’ overall beliefs and attitudes within society. The demographic shift has become a significant constraint on the Japanese social care system, manifesting as ro-ro kaigo (the old caring for the older), kaigo-rishoku (leaving employment to become a carer), and ‘8050’ (parents in their eighties caring for socially withdrawn children in their fifties). The national tendency towards social detachment makes such problems difficult to address. Today, Japan is finding a way to overcome these social challenges and establish an inclusive society by re-connecting people, including the mentally ill, within communities by tapping into the culturally inherited collective mentality of its people.
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Pandey, Smita. "Factors Contributing of Ageing." In Handbook of Research on Geriatric Health, Treatment, and Care, 393–408. IGI Global, 2018. http://dx.doi.org/10.4018/978-1-5225-3480-8.ch022.
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Ageing is related to problems in physical, emotional, and mental health. If we can delay the ageing process, we may be able to live more happily and successfully. Several factors are responsible for ageing: age, sleep, dietary habits, nutrition, physical activity, general health condition, emotional well-being, physical impairment, cultural factors, life events, social support, family well-being, financial resources, cognitive functioning, and diseases. The chapter is based on the above views and mainly focuses on the various factors that contribute to ageing.
Conference papers on the topic "Ageing family carers"
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Rosochacka-Gmitrzak, Magdalena. "CAREGIVING FOR THE ELDERLY FAMILY MEMBERS AS A CHALLENGE FOR MEN � THE HIDDEN AND FORGOTTEN CARERS IN AGEING EUROPE." In SGEM 2014 Scientific SubConference on PSYCHOLOGY AND PSYCHIATRY, SOCIOLOGY AND HEALTHCARE, EDUCATION. Stef92 Technology, 2014. http://dx.doi.org/10.5593/sgemsocial2014/b12/s2.015.
Full textReports on the topic "Ageing family carers"
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Boyes, Allison, Jamie Bryant, Alix Hall, and Elise Mansfield. Barriers and enablers for older people at risk of and/or living with cancer to accessing timely cancer screening, diagnosis and treatment. The Sax Institute, July 2022. http://dx.doi.org/10.57022/ieoy3254.
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• Older adults have complex and unique needs that can influence how and when cancer is diagnosed, the types of treatment that are offered, how well treatment is tolerated and treatment outcomes. • This Evidence Check review identified 41 studies that specifically addressed barriers and enablers to cancer screening, diagnosis and treatment among adults aged 65 years and older. • Question 1: The main barriers for older people at risk of and/or living with cancer to access and participate in timely cancer screening relate to lack of knowledge, fear of cancer, negative beliefs about the consequences of cancer, and hygiene concerns in completing testing. The main enablers to participation in timely cancer screening include positive/helpful beliefs about screening, social influences that encourage participation and knowledge. • Question 2: The main barriers for older people at risk of and/or living with cancer to access and/or seek timely cancer diagnosis relate to lack of knowledge of the signs and symptoms of cancer that are distinct from existing conditions and ageing, healthcare accessibility difficulties, perceived inadequate clinical response from healthcare providers, and harmful patient beliefs about risk factors and signs of cancer. The main enablers to accessing and/or seeking a timely cancer diagnosis include knowledge of the signs and symptoms of cancer, and support from family and friends that encourage help-seeking for symptoms. • Question 3: The main barriers for older people at risk of and/or living with cancer in accessing and completing cancer treatment include discrimination against patients in the form of ageism, lack of knowledge, patient concern about the adverse effects of treatment, predominantly on their independence, healthcare accessibility difficulties including travel and financial burden, and patients’ caring responsibilities. The main enablers to accessing and completing cancer treatment are social support from peers in a similar situation, family and friends, the influence of healthcare providers, and involving patients in treatment decision making. • Implications. The development of strategies to address the inequity of cancer outcomes in people aged 65 years and older in NSW should consider: Increasing community members’ and patients’ knowledge and awareness by providing written information and decision support tools from a trusted source Reducing travel and financial burden by widely disseminating information about existing support schemes and expanding remote patient monitoring and telehealth Improving social support by promoting peer support, and building the support capacity of family carers Addressing ageism by supporting patients in decision making, and disseminating education initiatives about geriatric oncology to healthcare providers Providing interdisciplinary geriatric oncology care by including a geriatrician as part of multidisciplinary teams and/or expanding geriatric oncology clinics.