Dissertations / Theses on the topic 'Adolescent illness'
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Brady, Ann Marie Brigid. "Chronic illness in childhood and adolescence : a longitudinal exploration of co-occurring mental illness." Thesis, Queen Mary, University of London, 2017. http://qmro.qmul.ac.uk/xmlui/handle/123456789/31703.
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Chronic health problems are hypothesised to be a risk factor to child and adolescent mental health, due the consistent and continuing stress these health problems pose to normative patterns of development. However, this theory remains to be substantiated by empirical research. Moreover, a systematic review conducted as part of this research indicated that the empirical body is not one on which the validity of this theory can be adequately tested. The major question posed is whether the lack of high quality epidemiological data in the field is obscuring a true psychiatric risk associated with chronic illness in childhood and adolescence, or whether, in contrast, the theory of chronic health problems as a particular risk factor to child and adolescent mental health, is based on false premises. In order to provide a stronger insight into the association of chronic health problems to mental ill-health across the late childhood and adolescent period, this study used data from a large, representative British sample (the Avon Longitudinal Study of Parents and Children (ALSPAC)) and sensitive measures of mental health outcomes. Mediating factors in these associations were also identified, and a model of the association of chronic health problems to poor mental health outcomes in early adolescence was developed. In order to ensure that all findings were applicable across chronic health conditions, outcomes over this period for children with chronic illness more generally were compared to outcomes for children with asthma diagnoses. Children with chronic health problems presented with a disproportionate rate of psychiatric illness at 10 years, and these chronic health problems continued to be associated with poor mental health outcomes across the early to mid-adolescent period. The outcomes at 10 and 13 years were suggested to be mediated by factors non-specific to any diagnosis, specifically peer victimisation and health-related school absenteeism. Limitations to external validity in the research, and implications for public health and future research are discussed.
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Koussa, Michelle D. "Adolescent Academic Adjustment during Chronic Illness: Online Training for Child Life Specialists." Thesis, University of North Texas, 2018. https://digital.library.unt.edu/ark:/67531/metadc1404622/.
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Frequent absences resulting from a chronic illness can disrupt adolescent school involvement, impacting academic achievement and psychosocial development as a result. This study explores whether certified child life specialists (CCLSs) could be a resource for parents as they address their adolescents' academic disruptions. Specifically, this study assesses an online training program designed to increase CCLSs' knowledge and self-efficacy as related to adolescents' academic adjustment following frequent absences. This knowledge and skill based training was designed as a three part module with sections including: academic considerations, psychosocial considerations, and availability of school resources in promoting successful adolescent academic adjustment. 62 CCLSs were recruited to participate and complete measures evaluating knowledge, in relation to content included in each module, and self-efficacy, involving communication with parents in regards to adolescent academic adjustment. T-tests were conducted to determine whether there were differences in reports of self-efficacy and knowledge following participation in the intervention between and within the treatment and control groups. Results indicate statistical significance for enhanced knowledge and self-efficacy for the treatment group at post-test. Therefore, the outcomes from this study support the effectiveness of brief online training in fostering knowledge and feelings of efficacy for CCLSs in a context not typically included in child life education or certification. As a result, findings from this study may be used to expand intervention programs in the clinical setting to provide more comprehensive psychosocial care to adolescents diagnosed with a chronic illness.
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Jones, Siobhan. "Adolescent engagement in mental health services." Thesis, Canterbury Christ Church University, 2016. http://create.canterbury.ac.uk/14807/.
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Despite older adolescence being a risk period for the development of mental health concerns, mental health service engagement is low amongst 16-18 year olds. As therapeutic attendance is linked to clinical outcome, it is important to understand engagement in this population. There is a paucity of research looking specifically at the older adolescent engagement phenomenon. Previous qualitative research into adolescent experiences has provided rich and detailed results. Ten 16-18 years olds, engaged in Child and Adolescent Mental Health Services, were recruited from two London-based services. Each young person was interviewed in order to understand their personal experience of engaging in mental health services. Interviews were transcribed and underwent Interpretative Phenomenological Analysis. Analysis produced twelve subthemes subsumed within five superordinate themes: engagement begins at help seeking, strength of inner resolve, evolution of the self, in the clinic room, and, existing within service walls: physical and policy-based boundaries. Themes are discussed in detail. Conclusions are drawn in relation to previous theory and research. When considering 16-18 year understandings of the engagement phenomena, key elements include: clinician and service developmental appropriateness, negotiation of developmental tasks in relation to engagement, experience of the physical building environment, and awareness of service policy limitations. Suggestions for clinical practice in relation to engagement facilitators and threat are made, and recommendations for future research proposed.
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Bull, J. David. "Adolescent Attitudes Toward Help-Seeking and Mental Illness: A Rural-Urban Comparison." Xavier University / OhioLINK, 2011. http://rave.ohiolink.edu/etdc/view?acc_num=xavier1381841395.
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Baker, Frank W. Jr. "Mental Toughness: Effect on Factors Associated with Injury and Illness in Adolescent Athletes." Ohio University / OhioLINK, 2014. http://rave.ohiolink.edu/etdc/view?acc_num=ohiou1407271208.
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McGrady, Meghan E. "Illness Representations and Glycemic Control in Adolescents with Type 1 Diabetes." University of Cincinnati / OhioLINK, 2012. http://rave.ohiolink.edu/etdc/view?acc_num=ucin1335462592.
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Read, Gary Frank Hoyland. "An investigation into the relationship between adolescent parasuicide, depressive illness and associated risk factors." Thesis, Rhodes University, 1996. http://hdl.handle.net/10962/d1004615.
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This study aimed at investigating the relationship between adolescent parasuicide, depressive illness and associated risk factors. Reports worldwide indicate that suicidal behaviour in this age group has risen 150% over the past 20 years, whilst the rate for suicide in adults and the elderly has remained the same (Deykin et al, 1985; Neiger & Hopkins, 1988; Sudak, Ford & Rushforth, 1984a). In South Africa statistics confirm similar trends with regard to attempted and completed suicide. Statistics reveal that a high local incidence of adolescent suicide attempters are seen at psychiatric units. One pilot study recorded 187 adolescent suicide attempters during a three month period. This study was based on the hypothesis that the incidence of depressive illness in adolescent suicide attempters is higher than is generally accepted and that this condition often goes unrecognised and is misdiagnosed because it manifests differently with acting out behaviour and "masked" symptomatology. A random sample of suicide attempters between the ages of 13 - 25 who presented at C23 (psychiatric emergencies) Groote Schuur Hospital following a suicide attempt were assessed. 100 subjects were seen over a period of three months. The research procedure comprised a comprehensive assessment incorporating a semi-structured interview, self-report and objective rating scales for depression as well as instruments designed to assess the general health of each subject and their level of suicide intent. The depressive inventories used have been validated for use in this age group and were designed to elicit the associated features of adolescent depression. If warranted, a clinical diagnoses was given based on DSM 1V criteria. This diagnosis was substantiated by information from the research instruments which formed part of the assessment process. A high incidence of clinical disorders was diagnosed in the sample (86%). Depressive illness was found to be a significant risk factor for suicidal behaviour with 68% of the subjects suffering from an affective disorder and 21% reporting depressive symptoms. This study shows that the correlation between parasuicide and depressive illness is high enough to suggest that all suicidal behaviour in this age group should be taken seriously as parasuicide in itself is often a reliable indicator of an underlying depressive condition. Additional risk factors for adolescent parasuicide identified in this study correlated well with the findings of similar research studies. Psychiatric co-morbidity, especially substance use (42%) and cluster B personality factors (54%), were high and served to increase an individual's vulnerability to suicide risk. Psychosocial factors such as sexual abuse (28%) and physical abuse (37%) were also identified as high risk factors for adolescent suicidal behaviour. Individuals at risk for depression and suicidal behaviour typically came from broken homes which were disrupted and unsupportive. Family members were frequently abusing alcohol and 67% of the subjects reported the presence of psychiatric illness in the family. The preferred method of suicide attempt was an overdose (90%). These attempts were generally unplanned and impulsive with no disclosure prior to the event. Intent was usually high at the time of the act. It is only through identifying the risk factors specific to the developmental concerns of this age group and acknowledging the role of depressive illness in adolescent suicidal behaviour that effective preventative measures can be devised.
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Hanrahan, Erin K. "The stigma of mental illness among youth a practical guide for child and adolescent therapists /." online access from Digital Dissertation Consortium, 2008. http://libweb.cityu.edu.hk/cgi-bin/er/db/ddcdiss.pl?3287356.
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Judge, Abigail M. Penn David L. "Prospective identification of clinically relevant risk factors influencing illness course in childhood- and adolescent-onset psychotic disorders." Chapel Hill, N.C. : University of North Carolina at Chapel Hill, 2008. http://dc.lib.unc.edu/u?/etd,2528.
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Thesis (Ph. D.)--University of North Carolina at Chapel Hill, 2009.Title from electronic title page (viewed Oct. 5, 2009). "... in partial fulfillment of the requirements for the degree of Doctor of Philosophy in the Department of Psychology Clinical." Discipline: Psychology; Department/School: Psychology.
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Badenhorst, Daniella. "Experiences of adolescents living with a diagnosed chronic, auto-immune illness / D. Badenhorst." Thesis, North-West University, 2012. http://hdl.handle.net/10394/8777.
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The purpose of this study was to explore and describe the experiences of adolescents living with a diagnosed chronic auto-immune Illness (CAI) due to the fact that there is a wider increase in the prevalence and incidence of auto-immune illnesses among adolescents. The researcher applied one primary scientific paradigm and two theories in this study, namely the Gestalt paradigm, Field theory and Erikson’s Theory of Adolescent Development, pertaining to adolescents living with a CAI. A qualitative, explorative and descriptive case study approach was followed. Purposive sampling was used to select six adolescents with a diagnosed CAI. Data was collected through individual semi-structured interviews and observations. Qualitative data analysis using Creswell’s “data analysis spiral” was used to analyse data and identify themes. It was clear that the adolescents” environments, as well as their intra- and interpersonal resources and outlook on life have an influence on the way they experience their illness. They experienced a continuum of feelings which ranged from support and encouragement from family and community members, to a lack of understanding from community members, and ridicule and isolation by peers. Sharing success stories and exploring a multidisciplinary, more holistic treatment plan that focuses on mind, body and soul, may benefit adolescents living with a CAI.Thesis (MA (Psychology))--North-West University, Potchefstroom Campus, 2013
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Eagle, Samantha. "The Peer Relationships of Adolescents with Chronic Conditions." Scholarship @ Claremont, 2016. http://scholarship.claremont.edu/scripps_theses/786.
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The purpose of this study proposal is to examine the peer relationships of adolescents with chronic conditions, particularly as a result of spending less time at school and socializing with peers, and more time at home or in the healthcare system. Participants will be 50 adolescents with chronic conditions, 50 healthy adolescents attending regular schools, and 50 homeschooled adolescents. They will complete a variety of questionnaires relating to activity restriction, best friendship quality, number of friends, peer-group attachment, relationships with selected adults, and parent-child relationships. Information about the chronic condition and school attendance will also be collected. It is predicted that despite experiencing a high quality best friendship, adolescents with chronic conditions will have fewer friends and worse peer-group attachment. There is also expected to be an inverse relationship between both activity restriction and absenteeism and peer-group attachment and number of friends. This study proposal has several implications for healthcare practitioners, school administrators, and parents: particularly, that more should be done to integrate adolescents with chronic conditions into schools and social activities.
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Kranke, Derrick Alan. "The Narrated Subjective Experience of Stigma for Adolescents Diagnosed with a Mental Illness and Prescribed Psychiatric Medication." Cleveland, Ohio : Case Western Reserve University, 2009. http://rave.ohiolink.edu/etdc/view?acc_num=case1238017177.
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Holm, Linnéa, and Alice Olausson. "Den suicidala paradoxen : En kvalitativ studie om professionellas upplevelser av unga mäns psykiska ohälsa." Thesis, Mittuniversitetet, Institutionen för psykologi och socialt arbete, 2019. http://urn.kb.se/resolve?urn=urn:nbn:se:miun:diva-35657.
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The purpose of this study was to examine people with professional experiences involving young men’s tendency to seek professional help, and also to analyse male standards and masculinities influence, due to the high statistics of mental illness and suicide among young men in Sweden. We used a qualitative method and obtained the material by semistructured interviews. Four participants, from three different organisations, participated in this study and shared their perception about the current situation. The material was examined through a thematic analysis. The result showed that male standards and masculinities are a contributing factor to why young men are reluctant to seek professional help, but also why it is more complicated for young men then young women to show their emotional needs. The informants were however clear on emphasising that this is far from the only reason and that committing suicide is an issue which goes beyond gender.2019-01-15
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Forsner, Maria. "Att vara barn i sjukdom och sjukvård : barns berättelser om sina upplevelser av sjukdom och sjukvårdsrädsla." Doctoral thesis, Umeå universitet, Pediatrik, 2006. http://urn.kb.se/resolve?urn=urn:nbn:se:umu:diva-947.
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The overarching aim of this thesis is to illuminate the experience of illness and the meaning of fear of medical care through children’s narratives. A purposive sample of 22 children and youths, aged from 2 to 18 years, narrated through play and conversation their experiences of illness and of their fear of contact with medical care. The data were analysed using thematic qualitative content analysis and the phenomenological hermeneutic method. In childhood, the experience of being ill seems to vary with the child’s age. At the ages of 7 to 10 years, the child’s way of thinking can colour the experience;imagination can produce both problems and opportunities. Children seem to combine imagination and reality, and contrasts in the experience coexist such as being scared/confident, sad/cosy and hurt/having fun. At the age of 11 to 18,being ill seemed to imply being lost, hurt and in need of comfort from themselves and others. Medical care can be frightening to children and what is fearful can differ with age. To a 2-year-old child, medical care seemed to be dangerous; to children aged 7 to 11 years, it seemed threatening, like a monster. To the 2-year-old child, there seemed to be a conflict between, on the one hand, living up to expectations by ‘being good’ and hiding their feelings or, on the other hand, communicating their fear. The narrations by children in the 7–11 year age group, point to the importance of empathy when caring for children, i.e., to be receptive of the child’s fear in order to help the child through and out of the fear. To be afraid for a two-yearold was to have one’s trust broken yet still be searching for a trustful relationship. However, if the child is received along with the fear, this opened up an opportunity for the child to develop courage and to gain control over the fear when under gentle care. The results of this research revealed the possibility of using play to create stories in a creative relationship with the child. To express one’s inner feeling is a gift of trust, a gift of hospitality. Thus when caring for children we can be the ones who are receiving that gift. We can accept the offer of being a guest in the child’s world.
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Isbister, Chloe. "Young people, self-harm and help-seeking." Thesis, Canterbury Christ Church University, 2013. http://create.canterbury.ac.uk/12505/.
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Given the high rates of completed suicide and poor help-seeking among young men, this research explored how young men, who had successfully sought help from a Child and Adolescent Mental Health Service (CAMHS), experienced help-seeking. This study focused on the factors that facilitated initial access and on-going engagement in services. Eight young men between the ages of 16-18, who had entered CAMHS following self-harm or suicidal ideation, and who were engaged in on-going therapy, were recruited. Each young man was interviewed to elicit his personal experiences of help-seeking and help-receiving. Interviews were transcribed and subjected to Interpretative Phenomenological Analysis. Five dominant themes, that overarched participant’s individual experiences, emerged from the data: Role of external adult in recognising, normalising and initiating help seeking; Influence of another;Challenging and renegotiating perception of need for help and meaning behind this need; Change in perspective; Maintaining an independent self; Mechanisms of engagement and Shared experience. Help-seeking was described as a journey of two stages; 1) initial access and 2) on-going engagement, during which the presence and timing of external influences (parents, teachers) and internal influences (personal beliefs and attitudes) were crucial. A model of help-seeking is presented. This study is the first of its kind to consider factors that facilitate the help-seeking journey of young men aged 16-18 following self-harm. It highlights the need for provision of information to parents and teachers about how to identify need and ways to facilitate access to services. Information and guidelines on how to adapt services to meet the complex developmental needs of young men, is highlighted for service developers, commissioners and clinicians.
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Gunputh, Vanessa. "An exploration of help-seeking among South Asians living in the UK." Thesis, Canterbury Christ Church University, 2015. http://create.canterbury.ac.uk/13904/.
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Culture can often influence how psychological distress is experienced and where help is sought. South Asians are the largest ethnic minority group in the United Kingdom (UK). This paper aimed to explore how second-generation South Asian adolescents make sense of their experiences of psychological distress and the meanings attributed to help-seeking. Semi-structured interviews were carried out with nine second-generation adolescents aged 13-19 years. Interpretative Phenomenological Analysis was employed. Five superordinate themes emerged from the analysis: feeling distressed, negative impact of family and cultural ideals on the self, connectedness to others, perception of help-seeking outside the family and intergenerational differences in help-seeking. The results indicated that help is sought from families when participants perceive they are able to relate to the source of distress. However, when there is a lack of understanding of distress, participants sought this from external sources of help. Professional help-seeking appeared influenced by the interplay between not meeting family ideals, intergenerational differences in understanding of distress and the stigma of seeking help. Clinical and research implications are discussed.
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Hughes-Scalise, Abigail T. "Exploring the Roles of Adolescent Emotion Regulation, Recognition, and Socialization in Severe Illness: A Comparison Between Anorexia Nervosa and Chronic Pain." Case Western Reserve University School of Graduate Studies / OhioLINK, 2014. http://rave.ohiolink.edu/etdc/view?acc_num=case1401897218.
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Morley, David Paul. "The impact of parental neurological illness on adolescent and adult children : quality of life, psychosocial factors and relationship with parent well-being." Thesis, University College London (University of London), 2008. http://discovery.ucl.ac.uk/1446238/.
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Background: The onset of a chronic neurological condition can have a serious impact on the individual's quality of life (QoL). Literature on how this affects the individual's children is sparse, and only a preliminary measurement tool, the Parental Illness Impact Scale (PUS), currently exists to measure this.;Aims: Further development and validation of the PUS, and to assess the QoL and psychosocial well-being of adolescent and adult children whose parent has either a chronic or acute neurological condition, and make comparisons across conditions.;Methods: Following an extensive pre-testing programme, questionnaire batteries including a revised version of the PUS and instruments measuring QoL and psychosocial variables were postally administered to 438 family members where one parent had a diagnosis of Parkinson's disease (PD), Multiple Sclerosis (MS) or stroke. Responses were received from 331 participants (76%). Of these 171 were adolescent and adult children (age range 11-48), 91 were the affected parent, and 69 the non-affected parent.;Results: Psychometric analysis shows the revised PIIS-R to have good construct, concurrent and discriminant validity. Internal consistency (Cronbach's Alpha .92) and test-retest reliability was high. The impact of parental neurological illness was highest in children of stroke patients, and lowest in children of people with PD. Levels of self-reported depression were significantly raised in all three groups. Correlations between child QoL and parental well-being suggest that the emotional manifestations of MS significantly affect children's QoL.;Conclusion: The PIIS-R is a scientifically robust measurement tool with which to assess the impact of parental illness. Both chronic and acute parental neurological illness has an impact on children's QoL and psychosocial well-being, and this needs to be recognised by service providers and in clinical guidelines. The development of effective interventions, information resources, and evidence-based guidelines, will require longitudinal study.
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Puckett, Theresa Louise. "The Influence of Risk and Protective Factors on Health-Compromising Behaviors among Incarcerated Juveniles." University of Akron / OhioLINK, 2010. http://rave.ohiolink.edu/etdc/view?acc_num=akron1279594086.
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Özel, Carlgren Gabriella, and Linda Jansson. "Traditionell hjälp vs. onlinehjälp : En jämförande kvantitativ studie om ungdomars attityder till att söka hjälp hos kurator och via onlinechatt vid psykisk ohälsa." Thesis, Ersta Sköndal högskola, Institutionen för socialvetenskap, 2016. http://urn.kb.se/resolve?urn=urn:nbn:se:esh:diva-5356.
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I takt med att samhället förändras och antalet unga med psykisk ohälsa ökar utvecklas och förändras även de hjälpformar som finns tillgängliga för ungdomar med psykisk ohälsa. Internets framväxt har bland annat resulterat i att traditionella former av hjälp, där den unge möter den professionella ansikte mot ansikte, har kompletterats med onlinehjälp så som onlinechattar. Med hänsyn till denna utveckling syftar denna studie till att undersöka och jämföra ungdomars attityder till att söka hjälp hos kurator och via onlinechatt vid psykisk ohälsa. Detta har åstadkommits med hjälp av ett kvantitativt tillvägagångssätt där pappersenkäter använts som insamlingsmetod. Sammanlagt besvarades enkäterna av 223 högstadie- och gymnasieungdomar mellan 15-20 år i Stockholmsområdet. Studiens resultat visar att ungdomarna känner större tillit till kuratorer än onlinechattar. De är även mer positiva till att söka hjälp hos kurator än via onlinechatt vid psykisk ohälsa. Ungdomarna uppgav varierande svar på vad som påverkar deras attityder till att söka respektive hjälpform. Lättillgänglighet, tillit och kommunikationsform uppgavs vara de faktorer som främst påverkar deras vilja att söka hjälpa hos kurator medan brist på tillit och stigma främst påverkar deras ovilja att söka denna hjälpform. De respondenter som kunde tänka sig att söka hjälp via onlinechatt uppgav däremot lättillgänglighet och anonymiteten som främsta anledningar. Den majoritet som inte kunde tänka sig att söka hjälp via onlinechatt uppgav brist på tillit och kännedom samt kommunikationsform som främsta orsaker till att inte söka denna hjälpform. Studiens respondenter är inte bara mer positiva till att söka hjälp hos kurator än via onlinechatt vid psykisk ohälsa; de har dessutom mer erfarenhet av att söka denna hjälpform. De faktorer som ungdomarna upplevde som positiva och negativa med sina erfarenheter skiljde sig dock avsevärt från de faktorer som påverkade deras attityder till att söka respektive hjälpform. Ungdomarna uppmärksammade exempelvis den professionellas bemötande och om de fick hjälp med sitt problem som positiva och negativa faktorer som utmärkte deras erfarenheter. Generellt hade dock majoriteten av ungdomarna positiva erfarenheter av att söka hjälp hos både kuratorer och onlinechattar.In pace with changes in society, and as the number of youth with mental illness increases, the forms of help available to youth with mental health issues also develop and change. The evolution of the internet, among other things, has resulted in traditional forms of help, where the one meets a professional face-to-face, being supplemented with online forms of help, such as online chats. In view of this development, this study aims to examine and compare the attitudes of young individuals towards seeking help for mental illnesses from a counselor and an online chat. This thesis will be accomplished using a quantitative approach where paper questionnaires are used as a data collection method. A total of 223 questionnaires were answered by adolescents aged 15-20 years in the Stockholm area. The study’s results show that respondents feel more secure with and trust towards a counselor’s help and are also more likely to seek this form of help than online chat. Responses varied in regards to what affected attitudes toward each form of assistance, but ease of access, trust and the medium of communication was reported to be the main factors affecting willingness to seek the help of a counselor, while lack of trust and stigma were the main factors contributing to reluctance. The respondents who were willing to seek help from an online chat stated however that accessibility and anonymity were primary factors. The majority who could not imagine seeking such online assistance stated lack of confidence and awareness as well as medium of communication as the foremost explanations. The study also showed that respondents are not only more willing to seek help for mental illness from a counselor than through online chat; they also have more experience in seeking this type of support. The factors that respondents felt to be positive and/or negative with their experience differed considerably from those factors that influenced the respondents' attitudes toward seeking help from a counselor or an online chat. Respondents drew attention to factors like the professionals' attitude and whether they received help with his or her problem as factors that characterized their experiences. Generally, however, the majority of respondents’ had positive experiences of seeking help from both counselors and online chats.
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Lane, Carla. "Youth offending teams : a grounded theory of the barriers and facilitators to young people's help seeking from mental health services." Thesis, Canterbury Christ Church University, 2015. http://create.canterbury.ac.uk/13902/.
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Young people within the youth justice system experience three times higher rates of mental health problems than the general youth population yet are one of the least likely groups to seek help. Very little theory or research is available within this population to explain these high rates of unmet need. This study aimed to develop a theory about the barriers and facilitators that Youth Offending Team workers experience when supporting young people to access mental health services. Eleven semi-structured interviews were conducted with participants; eight youth offending team workers, two young people and a mental health worker. Interviews were audio-recorded and transcribed verbatim before being analysed using “grounded theory”. This method was chosen to allow the in depth exploration of participants experiences and the development of theory within an under researched area. The results showed that Youth Offending Team workers appeared to play a crucial role in supporting a young person’s help seeking from mental health services. A preliminary model was developed which demonstrated the complex relationships between six identified factors which influenced this role. The study concluded that Youth Offending Team workers would benefit from more support, training and recognition of the key role they play in supporting young people to become ready for a referral to mental health services. Mental health services could be well placed to provide this. Clinical implications are discussed. Further research is needed to develop our understanding of what influenced the help seeking of this vulnerable population.
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Marques-Camargo, Amanda Rossi. "Experiência financeira de famílias no cuidado de crianças e adolescentes com câncer." Universidade de São Paulo, 2014. http://www.teses.usp.br/teses/disponiveis/22/22133/tde-30032015-134544/.
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O objetivo da pesquisa foi analisar a experiência financeira de famílias no cuidado de crianças e adolescentes com câncer. Estudo descritivo que utilizou o método misto para analisar os custos diretos e indiretos do câncer infantojuvenil, no sistema familiar. Após aprovação ética, a pesquisa foi realizada com pais e cuidador principal de crianças e adolescentes com câncer, em seguimento em um hospital público do interior paulista. A coleta de dados foi realizada entre junho de 2013 e fevereiro de 2014, por meio da aplicação do questionário \"Custos do Cuidado da Criança com Câncer\" de forma concomitante à realização de entrevistas semiestruturadas, audiogravadas em gravador digital. Integraram o estudo 62 participantes, dentre os quais 17 também participaram da entrevista semiestruturada. Os dados provenientes dos questionários foram analisados e reportados, utilizando-se a estatística descritiva, e os discursos das entrevistas foram analisados conforme orientação para análise temática dedutiva e indutiva. A caracterização dos participantes demonstra que a maioria (88%) eram mães, casadas ou que viviam com um companheiro e que acompanhavam o filho, durante o tratamento. Os resultados foram apresentados e discutidos a partir das unidades de sentido: 1) Repercussão do câncer infantojuvenil na situação financeira das famílias; 2) Custos diretos e indiretos do câncer infantojuvenil para as famílias; e 3) Redes de apoio e apoio social às famílias de crianças e adolescentes com câncer. Com base nessas unidades, elaboramos dois temas, que explica a experiência financeira das famílias, no cuidado de crianças e adolescentes com câncer: \"Custe o que custar, nosso filho adoecido em primeiro lugar\" e \"Toda ajuda é bem-vinda\". Após o câncer, o déficit econômico foi inevitável a essas famílias e foi ainda mais contundente naquelas em que o principal cuidador era o provedor principal da renda familiar. Os custos diretos corresponderam aos gastos com alimentação; transporte; reformas da casa; artefatos para o cuidado e com presentes e doces para o filho doente e seus irmãos saudáveis. O custo indireto correspondeu à perda da atividade laboral do principal cuidador, devido à impossibilidade de conciliar sua carreira com os cuidados do filho adoecido. A condição do câncer infantojuvenil impôs uma situação de vulnerabilidade social às famílias, sendo imprescindível o suporte social. No entanto, apesar das dificuldades, as famílias não medem esforços para atender às necessidades do filho adoecido, o qual está acima de qualquer prioridade do sistema familiar. Os resultados desta pesquisa têm potencial para subsidiar as intervenções de enfermagem e de outros profissionais de saúde, para planejar e elaborar políticas públicas que possam minimizar as repercussões do diagnóstico do câncer infantojuvenil no sistema familiar e para orientar pesquisas futuras.This research aimed to analyze the financial experience of families in the care of children and adolescents with cancer. It is a descriptive study which used a mixed method to analyze direct and indirect costs of children and youth cancer in the family system. After ethical approval, the research was conducted with parents and primary caregiver of children and adolescents in cancer follow up at a public hospital in the interior of São Paulo state. Data collection was carried out between June 2013 and February 2014 through the questionnaire \"Care Costs of Children with Cancer\", concomitant to performing semi-structured interviews which were recorded on a digital recorder. Study participants were 62, of whom 17 also participated in semi-structured interviews. Data from the questionnaires were analyzed and reported using descriptive statistics, and the speeches were analyzed according to guidelines for deductive and inductive thematic analysis. The characterization of the participants shows that the majority (88%) were mothers, married or living with a partner and who accompanied the child during treatment. The results were presented and discussed from the meaning units: 1) impact of children and youth cancer and its consequence on the financial situation of families; 2) direct and indirect costs of children and youth cancer for families; and 3) support network and social support for families of children and adolescents with cancer. Based on these units, two themes were developed, which explains the financial experience of families in the care of children and adolescents with cancer: \"No matter the cost, our ill child in the first place\" and \"All help is welcome\". After cancer, the economic deficit was inevitable for these families and was even more decisive in those in which the primary caregiver was the family´s main provider. Direct costs corresponded to spending on food; transport; reforms of the house; artifacts for the care; and gifts and candies for the sick child and their healthy siblings. Indirect cost corresponded to the loss of labor activity of the primary caregiver, due to the impossibility of conciliating his/her career with the care of the ill son/daughter. The condition of children and youth cancer imposed a socially vulnerable condition to the families, and the social support was vital. However, despite the difficulties, the families go to great lengths to meet the needs of the ill child, which is above any priority of the family system. The results of this research have the potential to support nursing interventions and other health professionals to plan and develop public policies that may minimize the repercussions of the diagnosis of children and youth cancer in the family system and to guide future researches.
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Vasan, Ashwin. "Improving the quality of primary care delivery and health worker performance in rural Rwanda using the W.H.O. Integrated Management of Adolescent & Adult Illness (IMAI) guidelines." Thesis, London School of Hygiene and Tropical Medicine (University of London), 2016. http://researchonline.lshtm.ac.uk/2548572/.
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To-date primary care delivery - defined here as first-contact patient care delivered at the first level of health systems - in low- and middle-income countries (LMICs) has been an under-researched topic, with researchers tending to focus on specific diseases or vulnerable groups (e.g. children, pregnant women). Yet as vertical programs have evolved and expanded in the past two decades, interest in primary care has been renewed, specifically as operational challenges to delivering integrated care have surfaced. There is also growing recognition that vertical interventions benefit from a basic foundation of general clinical quality, which in turn, requires integration at the point-of-care. One of the few notable, yet comparably under-researched, efforts to advance integrated primary care delivery in LMICs, is the World Health Organization (WHO)'s Integrated Management of Adolescent & Adult Illness (IMAI). IMAI consists of simplified protocols addressing common adult and adolescent illness and targeted at health workers at first-level facilities. Unlike the better-known Integrated Management of Childhood Illness (IMCI) for children under-five, however, IMAI lacks an evidence base either for its validation or its impact on care. This thesis addresses this gap and describes an implementation research trial - using a pre-/post- intervention plausibility design - of the impact of IMAI training combined with a program of sustained mentoring and supervision, on the quality of care and on the performance of primary care nurses in one district in rural Rwanda. The main finding of this trial is that IMAI training and sustained supervision leads to significant improvements in basic quality indicators and behaviors such as taking of vital signs and screening and counseling for priority conditions, while also resulting in a greater than two-fold increase in the odds of agreement in diagnosis and treatment decisions by nurses, when compared to the reference standard. This effect remained for diagnosis with exposure to supervision alone, but in the absence of classroom-based didactic IMAI training, highlighting the importance of sustained mentorship to improving health worker performance and quality. This study is one of the first of its kind to focus specifically on the quality of integrated primary care delivery in itself, rather than through the lens of a specific proxy disease or population subgroup. It is also the first study to provide impact data on IMAI, and thus offers early evidence of its utility as an organizing protocol to improve integrated primary care delivery in LMICs.
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Anér, Jennifer. "Varför ska det ibland behöva vara så jobbigt att bli vuxen? : En kvalitativ intervjustudie om psykisk ohälsa hos ungdomar och unga vuxna, med särskilt fokus på könsskillnader." Thesis, Högskolan i Gävle, Avdelningen för socialt arbete och psykologi, 2015. http://urn.kb.se/resolve?urn=urn:nbn:se:hig:diva-20015.
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Psykisk ohälsa hos unga är ett problem som ökar i dagens samhälle. För att främja en bättre psykisk hälsa hos dessa finns kuratorer på skolor, ungdomsmottagningar samt barn- och ungdomspsykiatriska mottagningar. I denna studie har frågorna ställts om kuratorernas bilder gällande de vanligaste orsakerna till psykisk ohälsa hos unga, eventuella könsskillnader samt resurser för att ge stöd. Utifrån sex intervjuer som genomförts med kuratorer på ovan nämnda arbetsplatser visade resultatet att många unga idag lider av problem i hemmet eller skolan, höga krav, depression, ångest, ätstörningar, självskadebeteende, arbetslöshet samt hemmasittande. Av dessa visade sig ätstörningar och självskadebeteende vara vanligast hos flickorna, medan istället hemmasittande och skoltrötthet dominerade hos pojkarna. Övriga orsaker var relativt jämnt fördelade mellan könen. Viktigt är dock att ta hänsyn till mörkertalet av dem som inte söker hjälp. I många avseenden behövde resurserna förbättras, framför allt i form av tid för ungdomarna samt för kompetensutveckling och handledning.Mental illness among adolescents is a problem which increases in our society. By promoting a better mental health among these, there are social workers working at schools, Youth Clinics and psychiatry receptions for children and adolescents. This study asked the questions about which versions the social workers had about the most usual reasons for mental illness amongst adolescents, if the social workers had noticed any differences of the mental illness between young boys and girls and if the social workers thought that they had sufficient resources to offer the adolescents good help. By six interviews done with social workers on the workplaces above, the results showed that many adolescents today have problems at home or in school, problems with high claims on themselves, depression, anxiety, eating disorders, self-harm, unemployment and sitting at home. Of these reasons for mental illness, eating disorders and self-harm had been found to be most usual amongst the young girls, and sitting at home and school fatigue amongst the young boys. The other reasons for mental illness were pretty much the same amongst boys and girls. Still, it is important to take into account that there are hidden statistics of the young people who do not search for help against their mental illness. The resources needed to be improved in many aspects, mostly by more time by the social workers to help the adolescents and more skills development and tutoring for the social workers.
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McKenna, Megan L. "What if they think I'm crazy : clinical interventions to help adolescents manage stigma following a psychiatric hospitalization : a project based upon an independent investigation /." View online, 2008. http://hdl.handle.net/10090/5912.
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Kimberley, Maree Ann. "Girl in the Shadows and resilience and coping strategies in contemporary young adult fiction." Thesis, Queensland University of Technology, 2009. https://eprints.qut.edu.au/29384/1/Maree_Kimberley_Thesis.pdf.
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The novel manuscript Girl in the Shadows tells the story of two teenage girls whose friendship, safety and sanity are pushed to the limits when an unexplained phenomenon invades their lives. Sixteen-year-old Tash has everything a teenage girl could want: good looks, brains and freedom from her busy parents. But when she looks into her mirror, a stranger’s face stares back at her. Her best friend Mal believes it’s an evil spirit and enters the world of the supernatural to find answers. But spell books and ouija boards cannot fix a problem that comes from deep within the soul. It will take a journey to the edge of madness for Tash to face the truth inside her heart and see the evil that lurks in her home. And Mal’s love and courage to pull her back into life. The exegesis examines resilience and coping strategies in adolescence, in particular, the relationship of trauma to brain development in children and teenagers. It draws on recent discoveries in neuroscience and psychology to provide a framework to examine the role of coping strategies in building resilience. Within this broader context, it analyses two works of contemporary young adult fiction, Freaky Green Eyes by Joyce Carol Oates and Sonya Hartnett’s Surrender, their use of the split persona as a coping mechanism within young adult fiction and the potential of young adult literature as a tool to help build resilience in teen readers.
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Kimberley, Maree Ann. "Girl in the Shadows and resilience and coping strategies in contemporary young adult fiction." Queensland University of Technology, 2009. http://eprints.qut.edu.au/29384/.
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The novel manuscript Girl in the Shadows tells the story of two teenage girls whose friendship, safety and sanity are pushed to the limits when an unexplained phenomenon invades their lives. Sixteen-year-old Tash has everything a teenage girl could want: good looks, brains and freedom from her busy parents. But when she looks into her mirror, a stranger’s face stares back at her. Her best friend Mal believes it’s an evil spirit and enters the world of the supernatural to find answers. But spell books and ouija boards cannot fix a problem that comes from deep within the soul. It will take a journey to the edge of madness for Tash to face the truth inside her heart and see the evil that lurks in her home. And Mal’s love and courage to pull her back into life. The exegesis examines resilience and coping strategies in adolescence, in particular, the relationship of trauma to brain development in children and teenagers. It draws on recent discoveries in neuroscience and psychology to provide a framework to examine the role of coping strategies in building resilience. Within this broader context, it analyses two works of contemporary young adult fiction, Freaky Green Eyes by Joyce Carol Oates and Sonya Hartnett’s Surrender, their use of the split persona as a coping mechanism within young adult fiction and the potential of young adult literature as a tool to help build resilience in teen readers.
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Short-Giles, Kristin. "The prevalance of substance abuse in adolescents with a mental illnes and the efficacy of on-going psychiatric treatment /." Full text available online, 2009. http://www.lib.rowan.edu/find/theses.
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Wicks, Sarah L. "An exploration into identity formation in young people living with a chronic illness." Thesis, Canterbury Christ Church University, 2011. http://create.canterbury.ac.uk/10346/.
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Section A critically reviews relevant theoretical literature and empirical studies exploring the particular impact of chronic illness on identity formation in adolescents. Theoretical conceptualisations of the adolescent period and of the process of identity formation are explored. Following this, empirical literature regarding the impact of chronic illness on the developmental tasks of adolescence and in particular identify formation will be critically examined. A number of clinical implications are discussed to enable clinicians to effectively support young people and future research directions are outlined. Section B reports a narrative analysis of young people's experiences of forming an identity with a diagnosis of an adolescent-onset chronic illness (CI). Identity formation is argued to be one of the key developmental tasks of adolescence. Despite implications for adolescent development, research into CI onset during this period has been notably sparse. This study aimed to explore how diagnosis impacts on the developmental tasks of adolescence, what role adolescent-onset CI plays in identity formation, and how adolescents incorporate the diagnosis into their identity. Individual semi-structured interviews were carried out with 8 young people aged 14-19 who lived with a diagnosis of a CI diagnosed between the ages of 12-16 years. Two illness types were studied; crohn’s disease and juvenile idiopathic arthritis. Interviews were audio-recorded, transcribed and analysed using narrative analysis. Participant narratives contained five core narrative themes: Walking a different path, tolerating contradiction, a changed interface with others, locating power and a fluid relationship. Narratives were considered to have been influenced by factors such as the interview context and dominant social narratives concerning health and illness. Adolescent-onset CI was found to have a significant, though not exclusively negative, impact on developmental tasks. The findings are discussed in relation to existing literature and potential clinical implications. Section C critically appraises the narrative study. A discussion begins with reflections on the research skills developed and insights into the research process. Areas of further learning are identified. Implications of clinical practice are explored and the section concludes with considerations for further research in this area.
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Eisenbrandt, Lydia, and Jill D. Stinson. "Adolescents in Residential Care With Major Mental Illness." Digital Commons @ East Tennessee State University, 2018. https://dc.etsu.edu/asrf/2018/schedule/129.
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Mental major illness, including psychotic disorders and mood disorders, has been linked to early prenatal/childhood factors and subsequent behavioral health concerns. For example, Watson et al. (1999) found that maternal illness and extreme stress during pregnancy disrupts fetal brain development, increasing the likelihood of depression or schizophrenia in later life. Research has also shown a dose-response effect between the number of adverse childhood experiences (ACEs) and mental health outcomes, with increasing ACEs linked to more severe mental health problems and suicide attempts (Merrick et al., 2017). Persons with major mental illness, like schizophrenia or bipolar disorder, are also at increased risk of suicidal and self-harm behaviors (Happell et al., 2012; Morden et al., 2009). These individuals also demonstrate a higher rate of substance use (Linszen et al., 1995) that often contributes to poor medical health (Dixon et al., 2000; Jeste et al., 1996).
The current study sought to differentiate adolescents with and without major mental illness (i.e., psychotic or mood disorders) by investigating a sample of youth who were in a residential treatment facility for sexually abusive behaviors (N = 296). Data related to participants’ prenatal/birth concerns, ACE scores, history of suicide attempts and self-harm, and use of alcohol, tobacco, marijuana, and inhalants were gathered from archival records.
Results indicated that there were a number of adolescents diagnosed with a psychotic disorder (n = 33) or mood disorder (n = 189). Two separate logistic regressions assisted with differentiating adolescents with and without psychotic or mood disorders using the specified predictors. A significant model (χ2 = 94.910, Nagelkerke’s R2 = 0.412, p < 0.001) correctly classified 76.4% of participants with a mood disorder. Adolescents with a mood disorder were 4 times as likely to have had prenatal or birth concerns (OR: 4.404, p < 0.001), and were significantly more likely to have higher ACE scores (OR: 1.148, p =.024). Further, those with a mood disorder were 2.5 times as likely to have self-harmed (OR: 2.673, p=.009), and approximately 23 times more likely to have attempted suicide (OR: 22.858, p=.003). Another significant model (χ2 = 29.842, Nagelkerke’s R2 = 0.210, p < 0.001) correctly classified 88.3% of participants with a psychotic disorder. Adolescents with a psychotic disorder diagnosis were significantly more likely to have higher ACE scores (OR: 1.237, p =.020), and were 4 times as likely to have a self-harm history (OR: 4.474, p=.005) compared to those without a psychotic disorder.
Results indicate that prenatal/birth concerns appear to be a significant factor for those who are diagnosed with a mood disorder, but not with a psychotic disorder. Also, those with mood disorders, but not psychotic disorders, were more likely to have attempted suicide. Adolescents with either a mood or psychotic disorder both tended to self-harm and have experienced more ACEs. Interestingly, substance use was not higher among adolescents with mood or psychotic disorders, despite predictions and previous research findings.
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Svensson, Annie. "”Du borde verkligen inte visa känslor, särskilt inte om du är pojke” : En systematisk litteraturstudie om pojkars upplevelser kring hur maskulinitet och könsnormer begränsar hjälpsökande för psykisk ohälsa." Thesis, Högskolan i Skövde, Institutionen för hälsa och lärande, 2019. http://urn.kb.se/resolve?urn=urn:nbn:se:his:diva-17016.
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Inledning: Psykisk ohälsa är ett växande samhällsproblem, där pojkar är överrepresentativa i självmordsstatistiken. Maskulinitetsnormer kan ha negativa konsekvenser för pojkars sätt att uttrycka psykisk ohälsa. Forskning påvisar att pojkar enbart söker hjälp om deras problem är så pass varaktiga och desperata att de inte ser någon annan utväg. Syfte: Undersöka hur maskulinitet och könsnormer hindrar pojkar (10–25 år) från att söka hjälp för psykisk ohälsa. Metod: En systematisk litteraturstudie, baserad på 10 vetenskapliga originalartiklar med kvalitativ metod (fokusgrupper och individuella intervjuer). Datainsamling har skett via CINAHL, Academic Search Elite och WorldCat Discovery. Resultatet har analyserats med kvalitativ innehållsanalys. Resultat: Resultatet tyder på att maskulinitetsnormer i hög utsträckning begränsar pojkar från att söka hjälp för psykisk ohälsa. Faktorer som var avgörande var stigmatisering, rädsla för konfrontation och hantera känslomässiga svårigheter. Det framkom kunskapsbrist kring psykisk ohälsa och tröskeln för att söka hjälp var hög. Pojkar undviker i hög utsträckning psykiska problem genom olika externa strategier. Slutsats: Maskulinitetsnormer har negativ inverkan på pojkars psykiska ohälsa och är ett hinder till att pojkar inte söker hjälp. Även strukturella faktorer framkom som ett hinder. Maskulinitetsnormer är påtagliga och påverkar pojkars syn på sin egen och andras psykiska ohälsa. Förståelse för hur pojkar uttrycker och upplever psykisk ohälsa och vilka begränsningar för att söka hjälp är viktiga att förstå för att uppnå en jämlik vårdkedja. Metoder kring normbrytande strategier bör prioriteras, samt involvera pojkar i förändrings- och utvecklingsarbetet. Forskning bör även fokusera på att fördjupa kunskaper inom aktuell kontext för att kunna generalisera resultaten.Introduction: Mental illness is a growing problem, where boys are overrepresented in the suicide statistics. Masculinity norms can have negative consequences for boys' way of expressing mental illness. Research suggests that boys only seek help if their problems are so long lasting and desperate that they don’t see any other way out. Purpose: To investigate how masculinity and gender norms prevent boys (age 10–25) from seeking help for mental illness. Method: A systematic literature review, based on 10 scientific original articles with qualitative method (focus groups and individual interviews). Datacollection took place in CINAHL, Academic Search Elite and WorldCat Discovery. The result has been analyzed with qualitative content analysis. Result: The result suggests that masculinity norms restrict boys from seeking help for mental illness. Factors that were decisive were stigmatization, fear of confrontation, and dealing with emotional difficulties. There was a lack of knowledge about mental illness and the threshold for seeking help was high. Boys avoid psychological problems through different external strategies. Conclusion: Masculinity norms have a negative impact on boys' mental illness and are an obstacle to boys not seeking help. Even structural factors emerged as an obstacle. Masculinity norms are tangible and affect boys' view of their own and others mental illness. Understanding how boys express and experience mental illness and limitations to seeking help are important to understand in order to achieve an equal healthcare. Methods regarding norm breaking strategies should be prioritized, as well as involving boys in the change and development. Research should also focus on deepening knowledge within the current context in order to be able to generalize the results.
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Giles, Sunnie. "The Effects of Parentification, Attachment, Family-of-Origin Dysfunction and Health on Depression: A Comparative Study between Gender and the Ethnic Groups of South Koreans and Caucasian Americans." BYU ScholarsArchive, 2012. https://scholarsarchive.byu.edu/etd/3410.
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Parentification is a process where children or adolescents assume adult roles before they are emotionally or developmentally ready, which, in turn, disrupts the development of healthy, secure attachment in childhood. Using 1,001 men and women from South Korea and the United States with equal division between males and females and multiple group comparison technique in structural equation modeling, this paper examined the relationship between parentification during childhood and depression during adulthood. It explores the cross-sectional long-term effects of parentification into adulthood, using a retrospective survey technique. This study also confirmed previous research findings that attachment, physical health and family-of-origin dysfunction, parental addiction in particular, significantly predict depression. This study is one of the few studies, using clinical data, that allows a direct comparison between different sample groups in two different countries and by gender.
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Modin, Sanna. "Psykisk ohälsa i media : En kritisk diskursanalys av medias framställning av unga med psykisk ohälsa." Thesis, Hälsohögskolan, Högskolan i Jönköping, HHJ, Avd. för socialt arbete, 2019. http://urn.kb.se/resolve?urn=urn:nbn:se:hj:diva-43029.
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Psykisk ohälsa bland unga ökar ständigt, tillsammans med de mediala debatterna kring ämnet. Media har en stark maktposition varför det är av vikt att kritiskt utforska massmedias framställning av det ökade folkhälsoproblemet. Syftet med studien är att studera hur svensk dagspress framställer psykisk ohälsa bland ungdomar under en ettårsperiod. Till detta används den kritiska diskursanalysen för att utforska relationen mellan språkanvändning och upprätthållandet av maktförhållanden i samhället, samt att undersöka om det är ungdomar eller sakkunniga som kommer till tals kring ämnet. Den insamlade empirin delas in i tre huvudsakliga diskurser; välfärdsdiskursen, den postmoderna diskursen samt den individualistiska diskursen. Välfärdsdiskursen visar hur det svenska välfärdssamhället misslyckas i sitt ansvar att täcka upp medborgarnas behov kring psykisk ohälsa. Den postmoderna diskursen framhäver hur ungdomarna i hög grad utsatts för strukturella stressorer i form av bland annat högre utbildning- och arbetsmarknadskrav samt sociala mediers ständiga informationsflöde. Vidare presenterar den individualistiska diskursen hur samhälleliga orsaker till psykisk ohälsa bör lösas med hjälp av individuella interventioner. I resultatet upptäcktes en avsaknad av en förebyggande diskussion, istället dominerar ett symptominriktat angreppssätt. Inom alla diskurser är det sakkunniga och professionella som till största del kommer till tals kring frågan, vilket speglar ungas utsatthet och låga maktposition i samhället. Detta återspeglar och återspeglas av kulturella trender vilket i sin tur påverkar politiska ageranden och dess funktion för det sociala arbetets praktik.Mental illness among young people is a constantly increasing problem that affects the media debate regarding the subject. Media has a strong position of power in the society today, which makes it important to critically explore its production of the expanding health problem. The aim of the study is to investigate how Swedish newspapers portraits mental illness among young people during a one-year period. The critical discourse analysis is used to explore the relationship between the use of language and the maintenance of the unequal distribution of power in the society. Furthermore, it is used to analyse if it is experts or young people who gives a voice in the matter. The result is divided in three main categories; the welfare-discourse, the postmodern discourse and the individualistic discourse. The welfare-discourse revealed how the Swedish welfare state fails regarding its obligations to cover all citizens needs regarding mental health issues. The postmodern discourse featured a society where young people are highly exposed to structural stressors as higher demands in the education and labour market and the stress enchanted by social media. The individualistic discourse presented how social causes are to be solved by individualistic interventions. The result in general showed a lack of preventive approach regarding solutions to the problem. Within all discourses, experts and professionals were the ones who mainly got a voice in the matter, which mirrors the young people’s lack of power in relation to experts. This reflect and reflects cultural trends which further leads to influence political interventions and therefore social work practices.
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Weston, Christine Anne. "Psychosocial adjustment in children and adolescents with chronic illness." Thesis, University of Southampton, 2000. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.327607.
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Eisenbrandt, Lydia L., and Jill D. Stinson. "Differentiating Major Mental Illness Among Adolescents in Residential Care." Digital Commons @ East Tennessee State University, 2018. https://dc.etsu.edu/etsu-works/7934.
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Pontefract, Amanda. "Differentiating coping patterns for illness-related and other types of stressors in adolescents with chronic illness." Thesis, University of Ottawa (Canada), 2003. http://hdl.handle.net/10393/29063.
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The aim of this study was to investigate the personal stressors and patterns of coping in adolescents living with a chronic illness. Primary objectives were to: (1) identify salient stressors and to determine the relation between cognitive appraisals and the degree to which a stressor is perceived as illness-related or typical of adolescence; (2) assess differences in coping strategies used for illness-related and other types of stressors; (3) investigate if gender or age influences the frequency, cognitive appraisals or types of stressors reported, or the nature and the overall number of coping strategies reported. A secondary objective was to assess the extent to which health-related quality of life is related to stressors, coping strategies and coping in general.
In the current study, 193 chronically ill adolescents listed up to 20 personal stressors and rated the frequency, control over the cause, perceived impact, control over the outcome, and the extent to which each stressor was related to the chronic illness, and typical of adolescence. Adolescents reported coping strategies (Kidcope) for one self-identified illness related and one non-illness related stressor and for two stressors standardized for the entire sample. Participants also completed a global measure of adolescent coping (A-COPE) and a health-related quality of life measure (Rand 36-item Health Survey).
Results showed that the most frequently identified stressors were similar to those reported for healthy adolescents. Moreover, stressors were rated as more typical of adolescence than they were illness-related. Although perceived control over the cause was negatively related to stressor impact for self-identified stressors, neither controllability ratings nor impact were significantly correlated with illness or typical ratings. Considerable consistency in coping was found across self-identified stressors only. Females employed more social support and emotional regulation than did males. Although the number of stressors and the perceived impact of stressors increased with age, consistent age differences in coping were not obtained. Poorer general health perception was associated with greater impact for illness stressors. Perceived controllability over the outcome was associated with increased approach coping for both self-generated and standard stressors. Study limitations, suggestions for future research, and clinical implications are discussed.
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Fihosy, Sonia M. "Exploring culture and illness." Thesis, Canterbury Christ Church University, 2015. http://create.canterbury.ac.uk/13856/.
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A grounded theory exploration of cultural and spiritual influences on adjustment in adolescents with liver disease. The evidence-base for adjustment in adolescents with liver disease is minimal, but treatment non-adherence in adolescent liver transplant recipients is known to range between 17-53%, increasing medical complication risks. Evidence has also shown that spirituality impacts on illness perceptions and behaviours of adolescents with other diseases. In this study, ten semi-structured interviews were conducted with 16-24 years olds, recruited from a regional liver clinic in the UK. Half were liver transplant recipients. The study found that navigating cultural expectations was challenging, particularly around education, employment and socialising (e.g. participation with peers and avoiding alcohol). Several participants reported an illness-related spiritual or socio-cultural crisis, sometimes resulting in non-adherence. This seemed to be followed by a turning point, eventually leading to a state of acceptance, personal development and possibly, spiritual growth. Trusted individuals were often instrumental in helping participants to overcome difficulties. However, for some, adjustment was transitory. As such, this appeared to be a cyclical process, entangled with universal adolescent developmental tasks. The study concluded that more exploration is required on treatment adherence and overall functioning in adolescents with liver disease, taking into account socio-cultural and spiritual influences.
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Pienaar, L. L. (Louisa Leanie). "An exploration of the experiences of adolescents living with HIV." Diss., University of Pretoria, 2010. http://hdl.handle.net/2263/27307.
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The research endeavoured to voice the told and untold stories of adolescents living with HIV undergoing continual disease management at the Kalafong Hospital Paediatric HIV Clinic. Through the telling of their stories the adolescents had the opportunity to make sense of their illness experiences. Some of the participating adolescents had limited opportunities to discuss their experiences with friends or family members. The research was completed within the qualitative social constructionist narrative approach. Six adolescents from the clinic participated voluntarily in the research. The participants attended the clinic regularly for disease management and were on ART. The study explored the experiences of the adolescents by means of two semi-structured individual interviews. Expressive art in the form of drawings and poetry were used to aid storytelling. Through collaborative exploration of the adolescents‟ stories, it became possible to co-construct the meanings that they attached to their experiences of HIV, which informs their identity. The interview transcripts were analysed, re-storied, and placed within a narrative framework of understanding, based on the three-dimensional space approach by Clandinin and Connelly (2000). The framework of understanding aided the researcher to look at the different contexts, identities, and social significant aspects found in the adolescents‟ stories. Multiple identities were constructed in their stories such as patient, scholar, friend, family, and athlete identities. These were constructed based on their experiences in the family and cultural, school and social, and medical contexts. The adolescents attributed different meanings to their stories of living with HIV such as that of normality, sameness, realism, and difference. The unique and similar aspects that were found in the adolescents‟ stories were identified and discussed with reference to various concepts such as disclosure, adherence, and ART. It was found that status disclosure was done by staff at the clinic and it occurred during young adolescence. All the adolescents, except one who was not aware of her status, showed insight into the chronic nature of their disease. Five adolescents‟ statuses have not been disclosed to anyone outside the families. In only one instance, the family was not aware of his status. Most adolescents assumed primary responsibility for ART. They expressed conflicting ideas about the role of ART. Some adolescents had to cope with side effects, the possibility of accidental status disclosure and non-adherence, and fears of rejection. The research, employing a narrative approach, endeavours to contribute to create a holistic understanding of HIV/AIDS in the context of health care. Lack of communication and impersonal staff interactions with patients were identified as barriers to disease management. The research recommends that the clinic should provide ongoing support to the adolescents with regards to disclosure of their status to friends, family, and partners, and adherence to medication. The social significant aspects found in the adolescents‟ stories will be disseminated to the staff at the clinic. This will assist the multi-disciplinary team to gain a better understanding of the reality of the adolescent and how these experiences inform their identity.Dissertation (MA)--University of Pretoria, 2010.
Psychology
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Rechner, Mona Gale. "Adolescents with cancer : their experience living with a chronic illness." Thesis, University of British Columbia, 1989. http://hdl.handle.net/2429/27341.
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This phenomenologic study was designed to understand and describe the experiences of adolescents with cancer living with a chronic illness.
The study was conducted with a sample of five adolescents, aged thirteen to seventeen who had received or were receiving treatments for cancer. Data were collected during audio-taped interviews and were analyzed for common themes.
The findings revealed that the adolescents' overall goal was to get on with life. The teenagers responded to cancer by experiencing the illness and determining that they were normal. They developed a philosophy of being positive and redefined their social world in order to get on with life. Understanding the manner in which adolescents with cancer experience living with this illness may enable health care practitioners to provide appropriate care to the teenager with cancer. Implications for practice, research and education are discussed.Applied Science, Faculty of
Nursing, School of
Graduate
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Johnson, Juli A. "A Retrospective Look at How Effectively Parents, Peers Without a Chronic Illness, and Other Adolescents With a Chronic Illness Impact the Self-Esteem and Body Image of Adolescents With a Chronic Illness." Ohio University / OhioLINK, 2016. http://rave.ohiolink.edu/etdc/view?acc_num=ohiou1472747981.
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Harriet, Susan. "The shared experience of chronic illness : a comparison study of adolescents." Thesis, National Library of Canada = Bibliothèque nationale du Canada, 2000. http://www.collectionscanada.ca/obj/s4/f2/dsk2/ftp01/MQ47877.pdf.
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Moura, Sergio Luiz de. "Perspectives of health and illness amongst adolescents in Sao Paulo, Brazil." Thesis, London South Bank University, 2000. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.300593.
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Grizzle, Jonhenry Cordell. "The influence of contagion information and behavior on older adolescents' perceptions of peers with chronic illness." Texas A&M University, 2004. http://hdl.handle.net/1969.1/2798.
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To explore attributions about chronically ill peers, 545 older adolescents ages 17-26 read a short vignette describing a brief social encounter with a hypothetical peer suffering from a medical condition, and then responded to a series of questionnaires to assess their perceptions of that peer. Nine measures intended to assess perceptions of ill peers were developed and empirically validated. Test-retest reliability and internal consistency was moderate to good for all measures. Component structure of the Peer Acceptance Questionnaire (PAQ), Peer Acceptance Questionnaire ?? 3rd Person (PAQ-F), and Perceived Similarity Questionnaire (PSQ) were also evaluated. Principal components analysis yielded a 2-factor structure of Openness and Egalitarianism for both the PAQ and PAQ-F. A 6-factor structure of (a) Familial/Spiritual, (b) General Health, (c) Social, (d) Behavioral, (e) Physical, and (f) Educational was suggested for the PSQ. Results indicated an interaction between illness type and behavior on acceptance ratings, such that behavior potentiated the effect of illness type on acceptance. In addition, vignette characters with contagious illnesses were rated less favorably than those with noncontagious illnesses, and vignette characters displaying typical behavior were rated more favorably than either withdrawn or aggressive vignette characters. Illness-specific knowledge, ratings of perceived similarity, and ratings of assigned blame predicted acceptance ratings, whereas illness-specific knowledge and acceptance ratings predicted ratings of assigned blame.
Finally, significant differences were observed between first- and third-person ratings of both acceptance and assigned blame.
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Crowder, Sharron Johnson. "Illness representations and self-management behaviors of African American adolescents with asthma." Thesis, Indiana University, 2014. http://pqdtopen.proquest.com/#viewpdf?dispub=3617300.
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African American adolescents have inadequate self-management behaviors, particularly during middle adolescence (14-16 years of age). Inaccurate beliefs, degree of asthma impairment (well controlled or not well controlled), and gender could influence asthma self-management (symptom management, medication management, and environmental control). The researcher used the illness representations concept from the common sense self-regulation model as the framework for this study.
The descriptive correlational study explored (1) differences in illness representations (cognitive and emotional) and self-management behaviors by gender, asthma impairment, and gender by asthma impairment of African American adolescents with asthma; and (2) relationships between illness representations and asthma self-management behaviors, gender, and asthma impairment in 133 African American adolescents with asthma. Data were collected using the Asthma Control Test, the Illness Perceptions Questionnaire-Revised, and the Asthma Self-Care Practice Instrument. Data were analyzed using ANOVA, MANOVA, Pearson correlations, and multiple regressions.
Findings indicated that females whose asthma was not well controlled had more beliefs about the chronicity of their asthma than those who were well controlled. However, there were no differences in such beliefs among males whose asthma was not well controlled from those who were well controlled. Well controlled adolescents differed from not well controlled adolescents for cognitive representations of cyclic timeline, treatment control, psychological attributes, and consequences as well as for emotional representations. There were no significant differences in the means of the self-management behaviors by gender, by asthma impairment, or by gender by asthma impairment. A significant bivariate relationship was found between representations of identity, consequences, treatment control, and symptom management. In the multiple regression model, representations of treatment control and consequences contributed to variances in symptom management; however, no other representations, gender, or asthma impairment variables were statistically significant. The representations, gender, and asthma impairment variables did not contribute to variances in medication management or environmental control. Limited studies have been conducted with African American adolescents with asthma; therefore, the findings will contribute information to the literature on their illness representations and self-management behaviors. The findings also contribute to the literature information based on adolescents' genders and levels of asthma impairment.
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Terrasson, Johanna. "Perception du diabète de type 1 auto- et hétéro-évaluée par les adolescents et leurs parents : analyse des liens avec leur qualité de vie, la gestion familiale de la maladie et le contrôle métabolique." Thesis, Rennes 2, 2019. http://www.theses.fr/2019REN20018/document.
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Cette thèse porte sur une population d’adolescents ayant un diabète de type 1 et leurs parents. Elle examine l’influence de la perception du diabète de type 1 par les adolescents et par leurs parents sur leur ajustement respectif à la maladie. En premier lieu sont présentées les caractéristiques du diabète de type 1, ses spécificités à l’adolescence, et les deux critères retenus pour examiner l’ajustement à la maladie : le contrôle métabolique et la qualité de vie. Après avoir défini la notion de perception de la maladie et décrit ses influences sur l’ajustement, le rôle de la perception des proches est examiné. L’étude de la perception de la maladie dans la famille en auto- et en hétéro-évaluation est ensuite proposée. Les deux axes de recherche envisagés visent à mettre en évidence l’existence d’une potentielle interprétation de la perception des proches et à en analyser l’influence sur l’ajustement à la maladie. Les deux premières études mettent en évidence l’impact de la perception du diabète en auto- et en hétéro-évaluation, par les adolescents et leurs parents, sur leur ajustement. La dernière étude permet de rendre compte, par une approche qualitative, des liens entre la perception de la maladie dans la famille et la qualité de vie des adolescents, au regard de la gestion familiale du diabète. En conclusion, nous soutenons l’intérêt de l’étude de la perception de la maladie dans la famille par le prisme de la perception interpersonnelle et de la méta-perception. Les limites de ce travail, les pistes de recherche et les perspectives d’application sont finalement discutéesThis thesis focuses on a population of adolescents with type 1 diabetes and their parents. It examines the influence of adolescents’ and their parents’ perceptions of type 1 diabetes, on their respective adjustments to the disease. First, we present the characteristics of type 1 diabetes, its specificities in adolescence, and two criteria used to examine adjustment to the disease : metabolic control and quality of life. After having defined the notion of illness perception and describing its influences on adjustment, the role of family members' perception is examined. A study of illness perception in the family through self- and hetero-evaluation is then presented. The two lines of research aim to highlight the existence of potential interpretations of the family members’ perceptions and analyze their influence on adjustment to the illness. The first two studies highlight the impact of type 1 diabetes' perception, both self- and hetero-evaluation, by adolescents and their parents on their adjustment. The last study reports, using a qualitative approach, the links between illness perception in the family and adolescents' quality of life, in light of family diabetes management. In conclusion, our studies provide further support the need to study the illness perception in the family through the prism of interpersonal perception and meta-perception. Finally, the limits of this work and research and applied perspectives are discussed
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Jakupovic, Emina, and Sanna Hansen. "Covid-19 pandemins påverkan på barn och ungdomars psykiska hälsa : identifiering av riskfaktorer – en litteraturstudie." Thesis, Högskolan i Skövde, Institutionen för hälsovetenskaper, 2021. http://urn.kb.se/resolve?urn=urn:nbn:se:his:diva-19811.
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Introduktion: Psykisk ohälsa hos barn och ungdomar fortsätter att öka och har blivit ett stort samhällsproblem och den höga sjukdomsbördan medför att psykisk ohälsa räknas som en folksjukdom. Covid-19 pandemin har medfört en försämring av den psykiska hälsan till följd av förändrade levnadsvanor på grund av restriktionerna för att minska smittspridningen och konsekvenserna kan påverka individer i flera år framåt. Syfte: Syftet med denna litteraturstudie är att identifiera vilka riskfaktorer som påverkar barn och ungdomars psykiska hälsa negativt under covid-19 pandemin. Metod: Denna studie är en tematisk litteraturstudie och artiklar har framtagits med hjälp av databaserna Academic Search Premier, CINAHL, Directory of Open Accsess Journals, MEDLINE EBSCO, PubMed och SpringerLink. Resultat: Fyra riskfaktorer identifierades ”fysisk inaktivitet”, ”ökad skärmtid”, ”våld i hemmet/föräldrars alkoholmissbruk” samt ”isolation/social distansering”. Även socioekonomiska faktorer utmärkte sig som betydande för psykisk ohälsa samt att flickor var särskilt utsatta för psykisk ohälsa under pandemin. Slutsats: Covid-19 pandemin har påverkat barn och ungdomars psykiska hälsa negativt, restriktionerna har medfört att smittspridningen minskat, dock till en bekostnad av en ökad psykisk ohälsa. Fler studier på ämnet behövs för att utforska vilka ytterligare konsekvenser covid-19 pandemin har fått på folkhälsan då forskningsområdet är relativt outforskat.Introduction: Mental illness in children and adolescents continues to increase and has become a major societal problem. The prevalence and high burden makes mental illness apublic health disease. The covid-19 pandemic has led to deterioration in mental health due to changes in lifestyles due to restrictions to reduce the spread of infection. Consequences of these restrictions can affect individuals for years to come. Aim: The aim of this study was to identify risk factors that have a negative impact on children and adolescent's mental health during the covid-19 pandemics. Methods: This study was a thematic literature study and articles has been selected from the databases Academic Search Premier, CINAHL, Directory of Open Accsess Journals, MEDLINE EBSCO, PubMed och SpringerLink. Conclusion: The covid-19 has had a negative effect on the mental health of children and adolescents and covid-19 restrictions have led to a reduction in the spread of the infection but at the expense of increased mental illness. More studies on the subject are needed to explore the additional consequences
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Coetzee, J. C. "The psychosocial themes in adolescents diagnosed with a co-morbid disruptive behavioral mood disorder." Pretoria : [s.n.], 2003. http://upetd.up.ac.za/thesis/available/etd-01302004-141632.
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Ghio, Daniela. "Illness perceptions in adolescents with juvenile arthritis : applying the common sense self-regulatory model." Thesis, University of Manchester, 2016. https://www.research.manchester.ac.uk/portal/en/theses/illness-perceptions-in-adolescents-with-juvenile-arthritis-applying-the-common-sense-selfregulatory-model(ec4d78b7-1cdd-463d-9861-1da30d5a72ed).html.
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Background: Juvenile idiopathic arthritis (JIA) is a long-term inflammatory arthritis which starts before the age of 16; 60% of those with JIA continue to have symptoms into adulthood. There are wide variations in experiences of adolescents with JIA, including the effects of the condition on social and intellectual development, self-management, psychological and physical functioning. Individual differences may be due to differences in how adolescents conceptualise JIA. Leventhal's Common Sense Self-regulatory Model (CS-SRM) has been used to theorise adults' experiences of illness, however, this has rarely been used with adolescents. The CS-SRM has three components, mental representations (component 1) that drive coping procedures and illness behaviours (component 2) which are then evaluated and appraised (component 3). A review of studies with adolescent cohorts that applied the CS-SRM found no evidence-base with which to justify application of an adult theory with children or adolescents. Thus the applicability of the theory and the use of the associated questionnaire, the Revised Illness Perceptions Questionnaire (IPQ-R), with adolescents are problematic. Aims: The aims of this PhD were first to assess the suitability of the CS-SRM for adolescents with JIA by investigating the three components of the model, and second, to develop a questionnaire for use with this population. Methods: To investigate the first two components of the CS-SRM, twenty-one participants aged between 11-16 years were recruited from a national cohort of JIA patients. Data collection was undertaken using cognitive interviewing. Framework analysis of the data was used to identify domains used by adolescents to conceptualise their JIA and content analysis to further investigate the suitability of the IPQ-R to assess beliefs. Transcripts were analysed identifying problems or inconsistencies with IPQ-R use. Adolescents' ways of coping with JIA were investigated using the somatic experience module of a computer-based interview, 'In My Shoes' (IMS). To evaluate the third component of the CS-SRM, quantitative data were used in a longitudinal mediation analysis to investigate the extent to which emotional representations and pain predicted physical behaviour (n= 50). To address the second aim of this PhD, Version 1 of the Pain Perception Questionnaire for Young People (PPQ-YP) was devised and sent to 18 healthy adolescents (11- 16) to assess linguistic validity and face validity of the items using a recent pain to answer items and provide feedback on language and length. The psychometric properties of a revised version were tested with 76 adolescents with JIA. Results: Adolescents' responses to having JIA were driven by their emotional and cognitive responses to symptoms (in this case pain) rather than illness beliefs per se. Thus, it is important to assess pain beliefs rather than broader illness representations. The need to preserve their social identity as 'normal' was a coping goal shared across the sample, however different strategies were identified, either to focus on maintaining normal activities or to attend to pain directly. Adolescents who focused on their pain held a more negative emotional representation, reported higher pain and lower functionality compared to adolescents who tried to maintain normality. Based on these results, longitudinal mediation models investigated the role of emotional representations and pain in predicting physical behaviour. Pain mediated 44% of the relationship between emotional representations and physical behaviour. Conclusions: Modifications to the model are recommended to take into account the role of social identity in the process of developing illness behaviours as well as the importance of a symptom driven conceptualisation of the condition.
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Ferreira, Bruno Eduardo Silva. "A amizade e o adolescente portador de doença crônica." Universidade Federal do Espírito Santo, 2006. http://repositorio.ufes.br/handle/10/6672.
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Este trabalho teve por objetivo descrever e analisar certos aspectos das amizades de adolescentes acometidos por diabetes mellitus e câncer. Os aspectos da amizade trabalhados foram: a) histórico da relação, b) companheirismo e reciprocidade, c) comunicação, auto-revelação e intimidade, d) apoio social, e) conflito e f) expectativas e conceito de amigo. Doze participantes foram entrevistados e divididos em dois grupos, sendo três pessoas com diabetes e seus três melhores amigos, e três pessoas que tiveram câncer e seus três melhores amigos. Os resultados apontam para uma relação específica, similar às amizades de adolescentes que não sofrem de uma doença crônica em alguns aspectos, mas que difere destes relacionamentos em outros. A comunicação entre as díades é afetada, de modo que a auto-revelação de conteúdos íntimos é diminuída, e as conversações acerca de conteúdos ligados à enfermidade também são evitadas pelos participantes. O apoio social dado a este adolescente, por outro lado, é consideravelmente aumentado, fato que altera a reciprocidade, base das relações de amizade. Tais fatos chamam a atenção para o fato de que as amizades vão muito além do apoio social (largamente investigado no Brasil e no mundo), e dimensões como intimidade e companheirismo, entre outras, também estão presentes e desempenham papéis de destacada importância para a vida do adolescente.
This research aimed at describing and analyzing some features of the friendships of adolescents with diabetes mellitus and cancer. The features investigated were: a) relationship history, b) companionship and reciprocity, c) communication, self-disclosure and intimacy, d) social support, e) conflict, and f) expectations and concept of friend. Twelve participants were interviewed and divided into two groups: three participants with diabetes and their three best friends, and three participants who had cancer and their three best friends. The results point to a specific relationship, similar to friendships of people who have not a chronic disease in some features, but different in others. The communication between the dyads is affected, leading to a decrease in the self-disclosure, and talking about subjects linked to the disease is avoided by the participants too. The social support given to the adolescent, on the other hand, clearly increases, and it changes the reciprocity, base of friendship relations. Such facts call attention to the fact that friendships are much more than social support (broadly investigated in Brazil and around the world), and dimensions as intimacy and companionship, among others, are also present, and play an important role in adolescents life.
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Bryon, Mandy. "The impact of cystic fibrosis and influence of mothers on childhood sibling relationships." Thesis, Bangor University, 1998. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.262744.
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