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Till, Tracy, and res cand@acu edu au. "Coping with Cancer: the Adolescent experience." Australian Catholic University. School of Nursing, 2004. http://dlibrary.acu.edu.au/digitaltheses/public/adt-acuvp70.25092005.
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Adolescence is the period of physical and emotional development from childhood to adulthood. As an adolescent develops they struggle with many issues including developing independence from their parents, embracing peer culture, an increase in the importance of body image and the development of sexual, vocational, and moral identity. The diagnosis and treatment for cancer can interfere with the adolescent meeting these goals, and subsequently cause the experience of adolescence to be more difficult. The aim of this study was to identify how adolescents with cancer cope with their situation. The objectives were to determine the resources adolescents utilise to cope with their experience, and the coping strategies adolescents use to cope with their experience. A thorough literature review identified that there had previously been only limited research with adolescents with cancer. In particular there had been very few qualitative studies investigating the specific coping strategies used by adolescents with cancer, with no such research being undertaken in Queensland. This study was conducted under the epistemological stance of constructionism. Meaning was constructed for this study of adolescents with cancer through the use of grounded theory methods, and secondary analysis of data. Interviews were collected by the researcher for a project at the Royal Children’s Hospital. Using grounded theory methods, seven of the interviews were analysed. In the process of developing a central category, Schatzman's Dimensional Matrix was used to assign codes into context, processes, consequences, and conditions, under the central category of “conquering the cancer experience”. The experience of diagnosis and treatment for cancer was difficult for these adolescents, however they ultimately coped and became stronger as a result of their experience. The key findings of this study identified that adolescents were able to cope with their experience. These finding were discussed in relation to factors which enhanced their coping, factors which influenced their ability to cope and how the experience changed the adolescent. Recommendations were also made with the aim of improving the experience of adolescents undergoing treatment for cancer in Queensland. Through the implementation of the recommendations of this study, hopefully the journey of adolescents with cancer can be made easier.
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Lopez, Alana Delores. "Transition Experiences of Adolescent Survivors of Childhood Cancer: A Qualitative Investigation." Scholar Commons, 2011. http://scholarcommons.usf.edu/etd/3213.
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Adolescent survivors of childhood cancer are a growing population with unique needs as they face a combination of challenges associated with normal development and returning to life after treatment completion (Wakefield et al., 2010). One specific need identified in the research literature includes the effective delivery of transitional care and planning (Hewitt, Greenfield, & Stovall, 2005). It has been suggested that the provision of transition care and planning can help facilitate the shift from one phase of care to another and promote positive transition experiences (National Cancer Institute, 2008). The shift from off-treatment to post-treatment and school reintegration have been identified in the literature as significant transitions for adolescent survivors of childhood cancer (Cabat & Shafer, 2002; MacLean, Foley, Ruccione, & Sklar, 1996). However, limited research has been conducted to explore these transitions from the perspectives of adolescent survivors of childhood cancer.
An exploratory, qualitative study was conducted with eight adolescent survivors of childhood cancer between the ages of 14 and 17. A multiple case study research design was used to explore adolescent cancer survivors' perceptions of these transition processes, challenges associated with these transitions, and their beliefs about what supports/services were or would be beneficial during these transitions. Data collected for analysis included questionnaires, transcribed interviews and follow-up meetings, direct observation, documents, and parent feedback. These data were analyzed using a combination of a template organizing style, immersion/crystallization (I/C) approach, and multiple case study strategies (Borkan, 1999; Crabtree & Miller, 1999, Stake, 2005; Yin, 2008).
Results indicated that adolescents perceived that change was occurring on some level during the shift from off-treatment to post-treatment and school reintegration but did not necessarily define this time as a "transition." They defined these times in personalized terms that reflected more subtle changes in their lives. The focus was placed on returning to a sense of "normalcy" and capitalizing on opportunities to regain some control over one's life. The improvement and/or absence of treatment residuals along with re-engagement in activities and roles served as signs, or indicators, that life was returning back to "normal" and provided feedback to the adolescent on their transition progress. Conversely, the presence of these signs continued to impact their lives as they restricted participation in desired activities and served as reminders that the effects of cancer and treatment extended beyond treatment completion. In addition to the presence of treatment residuals, fear of relapse also was a concern associated with the transition from off to post-treatment. However, adolescents tended not to let this be the focus of their lives. School reintegration challenges included disruption of school life and routines as well as academic and social concerns. Academic challenges included falling behind/catching up with work, maintaining motivation to do work, and readjusting to school demands and routines. Social challenges included answering peer questions, adjusting to peer awkwardness/discomfort, and managing peer reactions to their physical side effects. These challenges were not perceived by adolescents as sources of significant distress and, often times, they adapted and employed coping strategies to address these concerns in the school setting.
Adolescents also varied in their perceived need for transitional care and support during these transitions. Support received during the shift from off-treatment to post-treatment included advice from health care team members as well as relationships with peer cancer survivors across school, community, hospital, and camp settings. They received a variety of academic and social support during school reintegration. Teachers, family members, and peers provided academic support across home, hospital, and school settings. Teachers were a particularly important source of academic assistance. Accommodations and modifications also were provided to these adolescents at school. Peers, teachers, and other school staff provided social support. Based on the findings of the study, suggestions for future research and practical implications are offered.
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Behar, Lynn C. "Getting through it alone : a descriptive study of the experiences of single mothers with breast cancer and adolescent children /." Thesis, Connect to this title online; UW restricted, 1999. http://hdl.handle.net/1773/11156.
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Melander, Anna, and Susanne Roséus. "Barnets upplevelse av förälders cancersjukdom." Thesis, Malmö högskola, Fakulteten för hälsa och samhälle (HS), 2006. http://urn.kb.se/resolve?urn=urn:nbn:se:mau:diva-25022.
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I Sverige drabbades 1999 över 45.000 människor av cancer. Många av de insjuknade hade barn och ungdomar i skolåldern. Barn och ungdomar är de som får leva längst med sina trauman och eventuell förlust av förälder. Syftet med denna litteraturstudie var att få kännedom om och belysa barns upplevelser av att ha en förälder med cancersjukdom; deras tankar om förälderns cancer, hur de påverkas av förälderns cancersjukdom samt vad hälso- och sjukvårdspersonal kan göra för att hjälpa dem hantera situationen på bästa sätt. En analys av tio artiklar genomfördes. Resultatet visade att barn med cancersjuka föräldrar hade många tankar och funderingar om förälderns sjukdom. Barnen påverkades på många olika sätt, en del blev inneslutna i sig själva och ville fly medan andra agerade utåt med ilska, aggressioner eller häftig gråt. Många barn och ungdomar fick ångestsymtom, sömnsvårigheter, koncentrationsproblem samt hade problem att fungera socialt. Studien visade att hälso- och sjukvården bör bistå föräldrar med råd, stöd och kunskap om hur de kan stötta sitt barn att bemästra situationen. Hälso- och sjukvården borde också vara behjälplig med stödgrupper och individuell handledning för barn och ungdomar.In 1999 more than 45.000 adult Swedes were diagnosed with cancer. Many of those had school age children and adolescents. Children and adolescents are those who live longest with the trauma and potential loss of a parent.The purpose of this study was to achive knowledge about childrens perceptions having a parent with cancer; their thoughts about the illness, how they are affected by their parents illness and to gain insight in what healthcare professionals can do to help the children deal with the situation. Ten articles were analysed in this literature study. The result shows that children having a parent with cancer had lots of thoughts about the disease, some became introvert and wished to escape while others were acting out with anger, aggressions or crying. Children and adolescents had anxiety problems, sleeping disorders, trouble concentrating and some even had social functioning disorders. The study showed that health care units need to provide parents with advice, support and knowledge how they can support their children cope with the situation. The health care also need to provide support groups and individual counselling for children and adolescents.
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Phillips-Salimi, Celeste. "Young adult cancer survivors' experiences of connectedness with their healthcare providers." Thesis, Connect to resource online, 2009. http://hdl.handle.net/1805/2067.
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Thesis (Ph.D.)--Indiana University, 2009.Title from screen (viewed on February 2, 2010). School of Nursing, Indiana University-Purdue University Indianapolis (IUPUI). Advisor(s): Joan E. Haase, Marion E. Broome, Janet S. Carpenter, Richard M. Frankel. Includes vitae. Includes bibliographical references (leaves 227-258).
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Hedström, Mariann. "Distress among Adolescents with Cancer." Doctoral thesis, Uppsala universitet, Vårdvetenskap, 2005. http://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-4832.
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The primary aim was to investigate the distress perceived by adolescents with cancer treated in paediatric oncology. In Study I, especially distressing events for children/adolescents with cancer were identified by interviews with children/adolescents/parents and nurses. Data were analysed with content analysis. A range of physical and emotional concerns was identified. Physical concerns are of a rather similar nature across age groups. Emotional concerns vary more between age groups. For children 8-12 years, emotional concerns are rather frequent. In Study II distressing and positive aspects related to some care situations for adolescents with cancer were identified by interviews with adolescents and nurses. Data were analysed with content analysis. A range of negative aspects, e.g. fear of alienation, fear of dying, altered appearance and physical concerns, as well as positive aspects, e.g. positive relations to staff and being well cared for were identified. The aspects of distress identified in Studies I and II formed the basis for a structured interview-guide, used in Studies III and IV. Adolescents, recently diagnosed with cancer, physicians and nurses were interviewed by telephone about distress, anxiety, depression and well-being experienced by the adolescents. Adolescent ratings of prevalence, levels and worst aspects of distress do not necessarily agree, however, worry missing school and mucositis are among those rated with the highest prevalence, levels and those perceived as the overall worst. The findings from Study IV demonstrate that physicians and nurses underestimate the distress caused by worry missing school and mucositis. The accuracy of physician and nurse ratings of physical distress is acceptable, however, this is not the case for psychosocial distress. It can be concluded that it is crucial to consider how questions are asked when interpreting the significance of the answers, and that action on adolescent problems in relation to cancer diagnosis and treatment need to rely on direct communication.
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Erickson, Jeanne. "The education experiences of eight American adolescents in cancer survivorship." Thesis, University of Oxford, 2016. https://ora.ox.ac.uk/objects/uuid:e366e072-075d-4f9f-8a02-308c09d8728e.
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The aim of this thesis is to understand the experiences of eight American high school students who have been diagnosed with cancer. By increasing understanding of the challenges that adolescents in cancer survivorship experience, better support can be identified. The experience of cancer survivorship influences the physical, psychological, and social experiences of patients. As the survival rate of childhood cancers continues to increase, death becomes less likely making the need to maintain educational engagement during survivorship increasingly important. The research questions for this study were designed to address two main gaps in the current field of research. The first research question aims to address how the physical and psychological effects of cancer and treatment impact the participants' engagement with school. The second research question aims to understand the role that school plays for adolescents in cancer survivorship, including how participants experienced supplemental education during and after cancer treatment. This study uses a qualitative research methodology to address the research questions utilizing primarily semi-structured interviews and an adjusted version of the Adolescent Coping Scale. When used in combination with the interviews, the scale provides a picture of what the participants experienced and how they have been able to cope with the challenges they have faced. Interpretive phenomenological analysis was used to provide structure to the interview analysis. The results of this study show that fatigue and a compromised immune system have an impact on school attendance more than other physical effects during cancer treatment. As a result, adolescents are most at-risk of experiencing challenges in educational engagement during treatment. The results of this study also show that the feeling of uncertainty throughout cancer survivorship promotes fear and the feeling of a loss of control. Once treatment ends, fear of relapse is common. Physical and psychological effects were felt to improve as time passed. Another key result of this study is that the cancer experience results in a shift in perspective that becomes incorporated into the formation of identity. Participants feel different from peers as a result of the physical and psychological effects of the cancer experience. The results from the Adolescent Coping Scale indicate that school achievement, relapse and the worsening of physical side effects, and being treated different by peers were common concerns for the participants regarding their school, illness, and social concerns, respectively. Lastly, the participants view supplemental education as successful if it meets their personal academic and physical needs, is implemented consistently, and helps them to feel emotionally supported and socially connected. However, more research is needed that focuses on the implementation of policy at the state and district levels to discern whether this is a common challenge unique to this population of students with a physical or medical disability. The sample available for this research topic is not only limited to an extremely small population, but they are also a highly guarded population, making access for recruitment challenging. However, while generalization is difficult with a study of this size, the evidence collected on the participants' experiences during and after treatment provides valuable data on aspects of supplemental education implementation.
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McTaggart, Deborah L. "Breast cancer experience : mothers, adolescent daughters and the mother-daughter relationship." Thesis, National Library of Canada = Bibliothèque nationale du Canada, 2000. http://www.collectionscanada.ca/obj/s4/f2/dsk1/tape3/PQDD_0018/NQ56587.pdf.
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Kavanaugh, Brian. "Examining the Experience of Peer Relationships in Adolescents with Cancer." Antioch University / OhioLINK, 2014. http://rave.ohiolink.edu/etdc/view?acc_num=antioch1373627069.
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Rechner, Mona Gale. "Adolescents with cancer : their experience living with a chronic illness." Thesis, University of British Columbia, 1989. http://hdl.handle.net/2429/27341.
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This phenomenologic study was designed to understand and describe the experiences of adolescents with cancer living with a chronic illness.
The study was conducted with a sample of five adolescents, aged thirteen to seventeen who had received or were receiving treatments for cancer. Data were collected during audio-taped interviews and were analyzed for common themes.
The findings revealed that the adolescents' overall goal was to get on with life. The teenagers responded to cancer by experiencing the illness and determining that they were normal. They developed a philosophy of being positive and redefined their social world in order to get on with life. Understanding the manner in which adolescents with cancer experience living with this illness may enable health care practitioners to provide appropriate care to the teenager with cancer. Implications for practice, research and education are discussed.Applied Science, Faculty of
Nursing, School of
Graduate
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Höier, Sofie, and Per Rickström. "Erfarenheter av stöd hos unga som genomgår cancerbehandling." Thesis, Högskolan i Halmstad, Sektionen för hälsa och samhälle (HOS), 2012. http://urn.kb.se/resolve?urn=urn:nbn:se:hh:diva-17078.
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Att drabbas av cancer är en mycket genomgripande upplevelse i livet och då särskilt för unga som genomgår stora omställningar med utveckling av den egna identiteten. Denna utveckling sker i samspel med omgivningen samtidigt som de genomgår en frigörelseprocess från föräldrarna. En cancerdiagnos kan innebära att mognadsprocessen försvåras med risk för isolering i det dagliga livet från såväl närstående som nära vänner. Behovet av stöd kan därför vara omfattande för unga personer som samtidigt som de är unga är på väg in i vuxenlivet. Syftet med denna litteraturstudie var att belysa vilka erfarenheter av stöd ungdomar och unga vuxna har när de genomgår behandling för cancer. Elva vetenskapliga artiklar analyserades utifrån syftet och resultatet visade att de unga ser familjen, vännerna, gruppstöd och sjuksköterskan som viktiga källor till stöd. De viktigaste erfarenheterna som de unga framhöll var att familj och vänner ska behandla dem som innan de fick sin cancerdiagnos. De önskar även att omvårdnaden genomförs med särskild hänsyn till deras specifika situation som unga individer och att kontakten med vardagen underlättas. De unga framhöll vikten av en ungdomlig atmosfär även i vuxenvården med en ungdomsanpassad miljö som underlättar kontakten med familj och vänner liksom vikten av lättförståelig och åldersanpassad information. Ungas specifika situation och behov av stöd vid vård av cancer behöver synliggöras i utbildning och forskning.To be struck with cancer is a very profound experience in life, particularly to the young individuals who are undergoing major transitions in the development of their identity. This development works in harmony with their surroundings concurrently while they are undergoing a process of emancipation from their parents. A cancer diagnosis can mean that the maturation process is hampered by the risk of isolation in daily life from both relatives as well as close friends. The need for support can be substantial for young people since they are young but also on their way into adulthood. The purpose of this study was to illuminate the experience of support that adolescents and young adults have while undergoing treatment for cancer. Eleven research articles were analyzed according to the purpose and the result showed that young people see family, friends, group support and the nurse as important sources of support. The most important experiences that the young people pointed out were that family and friends should treat them like before they got their cancer diagnose. They also had a wish that their care should be carried out with particular regard to the specific situation they are in and also that their contact with everyday life is facilitated. The young people also pointed out the importance of a youthful atmosphere in the adult care with an environment that is adjusted for young people, which will facilitate contact with family and friends, and also comprehensive and age-appropriate information. Young people's specific situation and needs for support when receiving treatment for cancer should be made visible in education and research.
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Grimaldi, Gary. "Adolescents' lived experiences during treatment of cancer and impact on social participation." Thesis, NSUWorks, 2011. https://nsuworks.nova.edu/hpd_ot_student_dissertations/9.
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March 2011.
"Submitted in partial fulfillment of the requirements for the degree of Doctor of Philosophy in the Occupational Therapy Department, College of Allied Health and Nursing, Nova Southeastern University."
This phenomenological study was designed to understand the lived experience of adolescents being treating for cancer and the impact of their lived experience on engagement in occupations and social participation. Participants in this study included four young adolescents 17-19 years of ages attending school on a part-time basis. They were on active treatment protocols for cancer and enjoyed participating in sports or other activities with friends. In-depth structured interviews with questions to illuminate the impact of cancer treatment on social participation were completed and audio recorded. Data analysis was completed utilizing a phenomenological reduction method to determine emerging themes and significant statements. A description of the experience and its meaning were then developed from themes emerging from the perspective of the participants. The four major themes and sub themes resulting from this study were: 1. Change of Lifestyle a) Physical & Emotional Pain of Living b) School Re-entry--A Saving Grace; 2. Exploring New Occupations a) Adapting Occupations b) Awakening or Confirming Beliefs; 3. Reconnecting with Family a) Importance of Support b) A Kid Again. 4. Living with Cancer Isn't Easy a) Isolation b) Hidden Disability. The findings revealed lifestyle changes, which these adolescents needed to deal with in order to maintain a sense of routine and engagement in occupation. Changes in appearance, physical strength, and overall endurance impacted the participants' ability to engage in occupation(s) which often led to isolation among their peers. In spite of this, participants discovered new occupations that were less physically demanding but still fostered social participation with peers. The study of social participation for adolescents with cancer has implications for and can assist in developing client-centered interventions and simultaneously increase occupational therapy's understanding of these individuals during a transitional period of their lives.
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Fochtman, Dianne. "Understanding the Meaning of the Lived Experience of Adolescents in Treatment for Cancer." Diss., University of Hawaii at Manoa, 2010. http://hdl.handle.net/10125/22052.
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The increased intensity and complexity of cancer treatment has an impact on the lives of the adolescents undergoing such treatments. Living with cancer is a distinct experience for them which include physical, psychological, spiritual and social dimensions. The cancer experience comprises more than the measurement of symptom occurrence, frequency, duration and severity, or the ratings of quality oflife. The meanings of the lived experience from the adolescent's perspective and self-report can give a more accurate, holistic picture of the nature and scope of the experience. Practitioners need to know and understand the meaning of the experience from the adolescent's perspective in order to design appropriate interventions to prevent or relieve distress in these patients.
The purpose of this study was to describe the meanings of the lived experience ofhaving cancer for adolescents undergoing treatment. Phenomenology was the qualitative research methodology used. As outlined by Patricia Munhall, this methodology seeks to understand the meaning of lived experiences. Seven adolescents, 14 to 18 years of age, in treatment for cancer were interviewed. Six males and one female participated in this study. Six were receiving treatment for acute lymphocytic leukemia and one for a solid tumor. All participants were of Pacific Island origin; two live in Hawaii and five were temporary residents. The audio taped interviews were transcribed and analyzed to understand the meaning of the cancer experience. The essence of the experience for the individual adolescent was described and a composite interpretation of the meaning derived.
Recommendations to healthcare providers for improving communication with adolescents in treatment for cancer are provided, including discussing death and dying early in the illness trajectory. The interdisciplinary concept of care is stressed, as well as the importance of a thorough physical examination. The importance of social support and techniques to potentially strengthen and increase this support are outlined. Solutions to the problems of school reintegration are introduced.
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Andersson, Johanna, and Anna-Lisa Parlapiano. "Ungdomar och unga vuxnas upplevelser av att genomgå en cancerbehandling : En litteraturstudie." Thesis, Uppsala universitet, Institutionen för folkhälso- och vårdvetenskap, 2018. http://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-347840.
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Syfte: Syftet med denna litteraturöversikt var att beskriva ungdomar och unga vuxnas upplevelser av att genomgå en cancerbehandling och vilket behov av stöd som behövts under behandlingen. Metod: En litteraturstudie har gjorts där 11 orginalartiklar med kvalitativa studier från databaserna Pubmed och Cinahl har använts. Resultat: Resultatet delades in i fyra teman; upplevelser av fysiska förändringar, påverkan på den psykiska hälsan, påverkan på det sociala livet samt behovet av stöd från vårdpersonal och närstående. Kroppsliga förändringar var någonting som skapade osäkerhet och brist på kontroll över sin egen kropp. Det skapade ilska och frustration. Resultatet från studierna visade också att ett socialt nätverk, emotionellt stöd och kompetent personal var livsviktigt för patienterna. Slutsats: Ungdomar och unga vuxnas liv påverkas mycket av att genomgå en cancerbehandling. Deras fysiska- och psykiska hälsa påverkas av hur de blir bemötta av vårdpersonalen. Därav skulle det vara av fördel om vårdpersonal har kunskap om patienternas upplevelser av att genomgå en cancerbehandling för att kunna ge rätt stöd och information. En bra kommunikation och en tillitsfull relation mellan sjukvårdspersonal och patient är nödvändigt för en god vård. Nyckelord: Cancer, ungdomar, unga vuxna, upplevelserAim: The aim of this literature study was to describe adolescents and young adults experiences of going through cancer treatment and what kind of support they would have needed during treatment. Method: A literature study has been done where eleven original articles with qualitative studies from the databases Pubmed and Cinahl were used. Results: The result were divided into four main themes; experiences of physical changes, the effects on psychological health, the effects on social life and the need for support from healthcare providers and close relations. Bodily changes were something that created insecurities and lack of control over the own body. That created anger and frustration. The result from the studies also showed that social networks, emotional support and competent healthcare providers is essential for the patients. Conclusion: Adolescents and young adults lives are very affected when going through cancer treatment. Their physical and psychological health are affected by how they get received by healthcare providers. There for, it would be of advantage if healthcare providers have knowledge about the patients experiences going through cancer treatment. To be able to give the right support and information. A confidential communication and a trustworthy relation between healthcare provider and patient is crucial for a good care. Key words: Cancer, adolescents, young adults, experiences.
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Brimeyer, Chasity. "The adolescent with cancer's school re-entry experience : exploration of predictors and successful outcomes." Diss., University of Iowa, 2012. https://ir.uiowa.edu/etd/3267.
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More adolescents are surviving cancer and being treated outside the hospital-setting, allowing them to return to typical activities of development like attending school. Effective preparation for school re-entry is an important aspect of easing the transition back-to-school following a cancer diagnosis. Previous research has used the terms school re-entry, school re-entry preparation, and school reintegration interchangeably. For the purposes of the current study, school re-entry refers to going back-to-school. School re-entry preparation or interventions refers to the preparatory process implemented for the initial return to school following a cancer diagnosis. Conversely, school reintegration refers to the ongoing or long-term adjustment of the child or adolescent with cancer to the school environment. Research in school re-entry preparation began in the late 1970s, but much is still not well understood about appropriate school re-entry preparation in terms of application, outcome, or the adolescent's needs. The adolescent with cancer's perspective has been grossly neglected in research. Furthermore, current research lacks an operational definition of "successful school re-entry" and knowledge of specific factors associated with positive school re-entry outcomes. Identifying variables that positively impact the school re-entry process is critical to improving and individualizing school re-entry interventions. The current study used an adaption of the Disability-Stress Coping Model (DSC; Wallander & Varni, 1998) to both define school re-entry success and identify potential predictors that may impact school re-entry success. In addition, to obtain a more comprehensive picture of re-entry success, adolescents with cancer rated the success of their back-to-school experiences. The current study asked 85 adolescents with cancer (ages 11 - 19 years) to complete a web-based survey asking about their re-entry experiences and daily functioning. Results provided tentative support for a discrepancy between professional and adolescent re-entry needs/goals. Findings suggest that a subset of adolescents with cancer may be at risk for poor school re-entry/reintegration outcomes, including females, being of lower SES, having certain types of cancer (brain tumors, leukemia), undergoing specific treatments (radiation, chemotherapy), being out of school for longer periods of time, having pre-morbid academic difficulties, and/or having poor social support. Adolescents who demonstrate these risk factors may warrant increased, specialized attention when preparing to return to school. In addition to systemic and within-person factors from the adapted DSC model, findings suggest that developmental characteristics of adolescence must be considered in planning re-entry intervention. Appropriate modifications to school re-entry preparation for adolescents may include utilizing electronic and social media, implementing peer mentors, focusing on reinforcing appropriate social circles, and emphasizing autonomy. More research is needed to understand how to best assist the adolescent with cancer in returning to school.
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Marklund, Emelie, and Frida Sundbom. "Barns och tonåringars upplevelser av att leva med en förälder som drabbats av avancerad cancersjukdom : En litteraturstudie." Thesis, Umeå universitet, Institutionen för omvårdnad, 2016. http://urn.kb.se/resolve?urn=urn:nbn:se:umu:diva-131597.
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Bakgrund: Cancer är en av de vanligaste sjukdomarna globalt sett. En halv miljon svenskar har någon gång fått en cancerdiagnos. Varje dag förlorar cirka tre barn under 18 år en förälder i cancer i Sverige. För att hjälpa dessa utsatta barn behöver samhället öka kunskapen i ämnet för att kunna skapa bättre förutsättningar inför framtiden. Syfte: Syftet med litteraturstudien var att belysa barns och tonåringars upplevelser av att leva med en förälder som drabbats av avancerad cancersjukdom. Metod: En litteraturstudie med kvalitativa artiklar valdes. Artiklarna söktes upp i databaserna Cinahl, PubMed och PsycINFO. Åtta vetenskapliga studier har valts ut som överensstämmer med syftet. Resultatet i studierna har sammanställts med hjälp av Fribergs 5-stegsmodell. Resultat: Analysen resulterade i 5 kategorier och 13 underkategorier. Kategorierna är: känslomässiga reaktioner, barns sätt att hantera situationen, det viktiga stödet, förändrat familje- och socialt liv och att växa med erfarenheten. Konklusion: En öppen kommunikation och att bli involverade i förälderns sjukdom är viktigt för barnen. Sjuksköterskan bör arbeta efter ett familjecentrerat förhållningssätt för att lättare kunna hjälpa barnen.Background: Cancer is, globally, one of the most common diseases. Half a million Swedes recive a cancer diagnosis during their lifetime. In one day, approximately 3 Swedish children experience the loss of their parent due to cancer. To help these vulnerable children the community needs to increase knowledge of the subject in order to create better conditions for the childrens future. Aim: The aim of this litterature study was to illuinate the experiences of children and adolescents living with a parent diagnosed with advanced cancer. Metodhs: A literature study with qualitative articles was selected. The articles were found in Cinahl, PubMed and PsycINfO. Eight scientific articles conformed to the aim. The result in the studies were analyzed with help of a 5-stepmodel as described by Friberg. Results: The analysis resulted in 5 categories and 13 subcategories. The categories are: emotional reactions, how children cope with the situation, the main support, changes in family- and social life and growing with the experience. Conclusion: An open communication and to be involved in the parent´s desease is important for the children. The nurse should work in a family-centred approach to provide good care for the children.
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Spies, Leana. "A study to understand the experiences of adolescents and young adults living with cancer in a northern cape public health setting." Master's thesis, Faculty of Health Sciences, 2020. http://hdl.handle.net/11427/34001.
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Introduction: The challenges and holistic care needs of adolescents and young adults (AYAs) with cancer in low- and middle-income countries are under-researched. This limits evidencebased information regarding their experiences related to palliative care and quality healthcare services, resulting in a neglect in planning services for this population. Aim: The aim of the research study was to explore and identify the challenges experienced by AYAs with cancer in a Northern Cape public health setting. Objectives: The objectives were to describe the key concerns and priorities experienced by AYAs with cancer, to determine their holistic care needs and to identify the current limitations of healthcare resources that influence the provision of appropriate palliative care for AYAs with cancer in the Northern Cape. Methodology: In this qualitative study, purposive sampling was utilized to select AYAs with cancer and between the ages of 18 and 39 years. The participants recruited were patients from the Northern Cape public health setting who received curative or non-curative cancer treatment at either Robert Mangaliso Sobukwe Hospital or Harry Surtie Hospital oncology centres. Their experiences were explored using individual, open-ended semi-structured interviews. Data were analysed using thematic analysis. Results: A total of twelve participants between the ages of 22 and 39 were identified. Male and female participants were equally representative of the sample and their cancer diagnosis included many diverse tumour types that ranged from Hodgkin's lymphoma, breast cancer, testicular cancer, larynx cancer, melanoma, and colon cancer, to Human Immunodeficiency Virus/Acquired Immunodeficiency Syndrome-related malignancies such as Kaposi's sarcoma, cervical cancer, and non-Hodgkin's lymphoma. Six key themes emerged that provided insight into the challenges experienced by AYAs with cancer. These challenges were interrelated on a physical, psychosocial, spiritual and healthcare level, and they included the physical impact of cancer, additional illness burdens such as Human Immunodeficiency Virus and Tuberculosis, health system issues such as poor communication, delayed diagnosis, negative nursing attitudes, poor health services, inadequate resources, and transport problems. Apart from similar challenges experienced by AYAs with cancer in developed countries, such as overwhelming emotional responses, threatened dreams and hopes, a need for emotional counselling and better support systems, participants from this study also reported the impact of socio-cultural influences such as stigmatization, cultural beliefs, socio-demographics, poverty, unemployment, and a lack of cancer awareness and education within communities. Conclusion: AYAs with cancer experience complex, multidimensional, interrelated challenges that include many health system issues. In a middle-income country, these challenges are amplified by additional factors such as communicable diseases, sociocultural influences, and poverty. Consequently, their holistic care needs are largely unmet. Even though the findings may only be generalizable to limited settings, they can be transferred to form specific recommendations on how to improve the quality of life of AYAs with cancer and that of their families in the Northern Cape public health setting. As reflected by these findings, higher interventions on a National Health level in order to implement the current national palliative care policy, are required. Advancements in AYA oncology care that acknowledge their unique developmental age, emotional capacity, distinct life stage, and social background are also pivotal. Notwithstanding the significant challenges that plague quality healthcare delivery in the Northern Cape, further research to elucidate the meaning of age-appropriate care and the development of comprehensive, integrated oncology and palliative care guidelines for AYAs with cancer in South Africa, is necessary in order to acknowledge and address their total pain.
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Pemer, Lisa A. M., and Fredrik Willehadson. "Ungdomar och unga vuxnas upplevelser av sin psykosociala situation under cancerbehandling." Thesis, Uppsala universitet, Institutionen för folkhälso- och vårdvetenskap, 2020. http://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-425599.
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SAMMANFATTNING Bakgrund: Ungdomar och unga vuxna under cancerbehandling är i behov av specialanpassad och ålderslämplig vård då deras åldersgrupp genomgår unika livsutvecklande milstolpar i övergången från barndom till att bli vuxen som påverkas av cancersjukdomen. En störd livsutveckling kan resultera med långsiktiga negativa konsekvenser som kan påverka ungdomar och unga vuxna även efter avslutad behandling. Syfte: Att undersöka ungdomar och unga vuxnas upplevelser av sin psykosociala situation under cancerbehandling. Metod: Litteraturstudie med systematisk ansats med beskrivande design. Litteratursökningen använde MEDLINE, CINAHL, och PsycINFO. Resultatet baserades på elva kvalitativa studier samt en kvantitativ studie med kvalitativ bearbetning av ett fritextsvar publicerade mellan år 2014–2020. Resultat: Ungdomar och unga vuxna värderade bibehållandet av ett normalt liv och strävade efter att uppnå detta med olika strategier. Självständighet och känslan för den egna identiteten kunde störas. Stöttning från anhöriga, närstående, cancerdrabbade jämnåriga, och vårdpersonal var av betydelse men inte alltid tillräckligt. Upprymdhet upplevdes över att avsluta cancerbehandlingen men också en oro inför framtiden efteråt. Slutsats: Rapporterade upplevelser av psykosociala påfrestningar under cancerbehandlingen leder till slutsatsen att kunskap om hur dessa utmaningar kan bemötas på ett specialanpassat och ålderslämpligt vis är bristfällig. En vidare fördjupad förståelse för ungdomar och unga vuxnas psykosociala upplevelser under cancerbehandling från ytterligare forskning kan potentiellt förbättra sjukvårdens möjlighet till att erbjuda adekvat vård. Nyckelord: Ungdomar och unga vuxna (AYA), Cancerbehandling, Psykosocial, Erfarenheter.ABSTRACT Background: Adolescents and young adults undergoing cancer treatment are in need of specially adapted and age appropriate care since their age group undergoes unique life-developing milestones in the transition period between childhood and adulthood that may be affected by cancer. A disrupted life development may result in long-term negative consequences that may affect adolescents and young adults even after the end of cancer treatment. Aim: This study aimed to examine adolescents and young adults’ experiences of their psychosocial situation during cancer treatment. Method: Literature review with descriptive design. The literature search used MEDLINE, CINAHL, and PsycINFO. The result was based on eleven qualitative studies and a quantitative study with qualitative processing of a free text answer published between 2014-2020. Result: Adolescents and young adults valued the maintenance of a normal life and strived to achieve this with different strategies. Independence and the feeling for one's own identity could be disturbed. Support from family, friends, cancer-stricken peers, and healthcare staff was of importance, but not always enough. Exaltation was experienced over ending the cancer treatment but also a concern for the future afterwards. Conclusion: Reported experiences of psychosocial stress during cancer treatment lead to the conclusion that knowledge of how these challenges can be met in a specially adapted and age-appropriate way is deficient. A further in-depth understanding of adolescents and young adults' psychosocial experiences during cancer treatment from further research may potentially improve healthcare's ability to offer adequate care. Keywords: Adolescents and Young Adults (AYA), Cancer Treatment, Psychosocial, Experiences.
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Cheng, Mei Ling, and 鄭美玲. "The Lived Experiences of Adolescent Cancer Patients during Hospitalization." Thesis, 1997. http://ndltd.ncl.edu.tw/handle/39387046268521596163.
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碩士高雄醫學院
護理學研究所
85
The purpose of this study was to explore the hospitalized exeriencesof adolescent cancer patients, and, through the understanding of this, to properly help them adapt hospitalized stress caused by cancer treatment. The method of phenomenology was implemented to understand the essential lived experiences of six adolescnet cancer patients during hospitalization.In-depth interview and tape recording were carried out in all participantsand then transcribed. The transcription of participants'' descriptions wereanalyzed by using Colaizzi''s method of phenomenology. The results of data analysis revealed that, two major groups of experience, namely ''living situation'' and ''growth energy'', were induced in the in-hospital experience structure of adolescent cancer patients. Livingsituation, a central theme in terms of ''grieving loss'', was constructed byfour categories, including ''confinement of body, time, and space''; ''threatof self-concept''; ''anxiety of uncertainty''; and ''locking of emotion''. Growth energy cultivated by the in- hospital living situation was penetratedby a central theme, ''maintaining control'', including three categories, suchas ''keeping balance of life''; ''completion of developmental task''; and ''holding of life esteem''. The results of this study indicated that, though these adolescent cancerpatients were "captive" in the limited space of hospital and endured the sufferings of physical distress, they still retained the persistence and aspirations for life and still managed to sustain fragmentary living. Thus,they were able to settle on the point between desperation and hope. Besides,they not only seized the opportunity of growth and made efforts to find livingfoothold from their illness, but also learned how to devote themselves andextended the energy of life. In this process of regaining sense of controlfrom illness, they reached the goal of growth. The study results may helphealth care professionals understand this special experience and face up tothe crisis which hospitalization might cause to the adolescent cancer pat-ients, so that the crisis of loss can be reverted to the turning point of growth by adolescent cancer patients.
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Yang, Hui-Chuan, and 楊惠娟. "The illness experiences of adolescent with cancer: body and self-extension." Thesis, 2017. http://ndltd.ncl.edu.tw/handle/05929088113260922148.
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Cheng, Kai-Yun, and 鄭凱芸. "When a parent got cancer-The experiences of adolescent girls with parental responsibilities." Thesis, 2010. http://ndltd.ncl.edu.tw/handle/01478629995367007755.
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博士東海大學
社會工作學系
98
The thesis is of a primary incentive to look into the subjective perceptional behavior of adolescent girls engaging in the parenting practice in the situation as their parents suffer cancer, so as to help develop practical methods for social workers as an assistance in such condition, on top of which a general conception of ‘parentification’ here in Taiwan is to be well delved. Objects of this research are 15 teenage girls from 13 to 18. Based on intensive interviews and grounded theory, the experiential patterns of adolescent girls with family responsibilities are established. As a result in the case of the patterns, some magnificent renditions are as followed: 1. Individual episodes: a. Emotional repression as coping skill, developmental tasks as daily life: It is apparent to observe the objects withhold their emotions while taking care of their parents or siblings, who take such responsibilities also as to keeping pace up to schoolwork as well as their own personal social images in accordance with relationship among peers. b. Willingness to take the family responsibilities may be due to 4 main factors: 1. reciprocation of breeding, 2. obligatory calling, 3. pre-formed sense of responsibility, 4. unevasive circumstances. c. Benign feedbacks: In general, the objects take on affirmative verdicts to be burdened as family responsibilities regardless that more or less inevitable ‘grumbling period’ may occur. 2. Domestic association: With views to dual dimensions of emotion and financial intensity respectively, adolescent girls’ involvement in family responsibilities can be categorized into the following four types: a. diverse burden, b. whole-hearted protection, c. attached fusion, d. cogent sympathy. These four groups are also evaluated by means of objects’ handling related cancer information, schoolwork and calling to bearing the family responsibilities. 3. Environmental sustain: resource and support Objects gain various supports and aids especially in terms of extended families in either of the four types. In addition, the governmental authorities offer long-term and short-term subsidies to most of the needy cases. However, the expecting feedback of bailing out their household financial problems seems yet to be reached. Summing up the research, traditional merit ‘filial piety’ is the indigenous inducement which blends within the objects’ family responsibilities and ego development, in which the researcher provides practicing procedures and principles according to distinguishing types of each case, consulting in the mean time for setting up adolescent girls’ groups for the similar problems, which hopefully facilitate the solution of the same situation in the future.
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"Experiences of adolescent bone sarcoma survivors : the journey from diagnosis through remission and beyond." Thesis, 2015. http://hdl.handle.net/10210/14749.
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D.Litt. et Phil. ( Psychology)A literature survey has confirmed that the growing number of cancer survivors in general are experiencing both physical as well as psychological and social adaptation difficulties following their cancer treatment. This is no different for patients diagnosed with Osteosarcoma and Ewing sarcoma (bone sarcomas) during adolescence. At present there is no formal psychosocial intervention program available to the patients presenting with Ewing and Osteosarcomas. Because of the multicultural nature of the patients as well as the fact that many childhood and adolescent cancers do not include major surgery, as is the case with bone sarcomas, the direct applicability of generalized psychosocial intervention programs for adolescents with cancer other than bone sarcoma is doubtful ...
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Poole, Adele. "The lived experiences of adolescents with cancer." Thesis, 2010. http://hdl.handle.net/11394/3481.
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Magister Psychologiae - MPsychPeople often do not want to hear, talk or read about cancer. Cancer is arguably one of the most feared illnesses and maybe rightly so for it is usually associated with pain, fear,uncertainty, anxiety, long uncomfortable treatments and death. To receive a diagnosis of cancer must be absolutely devastating especially when you are in a developmental stage where you are already battling with issues such as self-esteem, body image, independence and career choices. The current study explored the lived experiences of adolescents who have or had cancer and how this experience impacted on their lives. Six adolescent cancer patients from the cancer unit in a public hospital were interviewed. The sample was purposively drawn and the majority of the interviews were conducted at the homes of the participants. Phenomenology was used both as a theoretical framework as well as a means of analysing data. Using the descriptive phenomenological method employed by Giorgi,four essential themes emerged from the data. The themes included (1) Unexpected change of everyday life means experiencing the unfamiliar (2) Experiencing a changed body, (3) Experiencing the support of significant others and (4) Anticipating a future. The themes were explained in terms of the four existentials of Van Manen which is lived space, lived body, lived other and lived time. The study revealed that although the initial diagnosis of cancer came as a shock to the participants and their families, they were able to deal with the inevitable changes that accompanied the diagnosis mainly as a result of the support they received from family and friends. Their initial fear of death were replaced with an ardent pursue of their dreams for the future.
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Chung, Wei-Ting, and 鍾維庭. "A Study of Life Experience of Adults Who Had Cancer in Adolescent Period." Thesis, 2014. http://ndltd.ncl.edu.tw/handle/64359519644853304544.
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碩士國立屏東教育大學
教育心理與輔導學系碩士班
102
This study aims to investigate how adolescents’ life pattern interact with their cancer experience. There are three adults participate in this study, they all had cancer when they were 12-20 years old, and off treatment now. Data collection is based on interview, and analysis by narrative analysis method. The results are as follows: 1. Adolescents’ feeling and coping strategies to the diagnosis of cancer In this study, the three adults felt confused and shocked when they heard about the diagnosis of cancer. The coping strategies they used to adapting the suffering were do something they like, keep a feeling of hopefulness, seeking for social support, turning attention to something else, and searching information about the disease. 2. How adolescents’ life experience and support network influence their cancer experience The adults’ positive characteristics and good family support、relationship with doctors can help reducing the impact of negative feelings, and keeping faith to the treatment, being more cooperative. 3. How the experience of cancer influence the values and life after treatment Three adults in this study had positive changes in values and better relationship with families. Two adults made some limits to their life pattern, career and romances, because worrying about relapse.
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Lin, Miao-Ling, and 林妙怜. "Hope Experience in Drawings by Adolescents with Bone Cancer during the Treatment." Thesis, 2016. http://ndltd.ncl.edu.tw/handle/39227436674943456612.
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碩士國立陽明大學
臨床護理研究所
104
Background: Hope is the universal phenomenon of human life. It can enhance life experiences as well as provide meanings to everyday life. One can share their hope searching experience to encourage others in having a better outlook of their illnesses. Objective: This study utilized a phenomenological approach to explore the hopeful experiences of post-operative adolescents bone cancer patients through figure drawings. The patient's overall descriptive hopeful experience was explored using the Snyder's theoretical concept of hope. Method: Phenomenology research method was applied in this study. Data was collected by participants drawings and tape-recorded interviews. The data was analyzed by the procedure of Colaizzi phenomenological methodology. The rigor of this study was further examined using Lincoln and Guba (1985) principles. Results: The participants of this study consisted of 10 adolescent with bone cancer who having been received orthopedic surgery. Four major themes were found which including the inspiration of meaningful goals, the development of disease coping strategies; the power of caring and encouragement; and faith and positive momentum. Conclusion: The study findings may provide evidence-based information for nurses in caring for adolescent bone cancer patients during their disease treatment. Key Words: Bone Cancer, Adolescents, Hope, Drawings