Academic literature on the topic 'Adolescent cancer experiences'
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Journal articles on the topic "Adolescent cancer experiences"
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Estefan, Andrew, Nancy J. Moules, and Catherine M. Laing. "Composing Sexuality in the Midst of Adolescent Cancer." Journal of Pediatric Oncology Nursing 36, no. 3 (March 22, 2019): 191–206. http://dx.doi.org/10.1177/1043454219836961.
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A cancer diagnosis heralds the onset of significant life changes. The various experiences of diagnosis, treatment, and recovery from cancer during adolescence and young adulthood are complex and disruptive. Emphasis on treatment and recovery often overshadows other social and developmental imperatives for adolescents and young adults. Acknowledging, exploring, and crafting one’s own sexual identity is a significant milestone achieved during this time, and it is one that is interrupted by the arrival and treatment of cancer. There is value in understanding how adolescents and young adults compose sexuality amid cancer experiences, and how this composition contributes to their ongoing stream of life experiences after recovery. As part of a larger study of sexuality and adolescent cancer, we undertook a narrative inquiry with Anna and Mark, two young adults who experienced cancer during adolescence. Over 14 months, we met with Anna and Mark, drawing on different narrative inquiry approaches to explore their past and ongoing experiences and to build negotiated stories of those experiences. We explored resonant threads between the stories, which help show the depth and complexity of sexuality as it is experienced in the midst of and after cancer. Two resonant threads are discussed: inward and outward looking, and sexuality and survival. The inquiry reveals the richness of self-composition amid competing stories of cancer treatment, disruptions to family and socialization, survivorship, what it means to be a young man or woman in the world, and the sense of a developing sexual self.
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Loades, Maria E., Venessa James, Laura Baker, Abbie Jordan, and Aditi Sharma. "Parental Experiences of Adolescent Cancer-Related Fatigue: A Qualitative Study." Journal of Pediatric Psychology 45, no. 10 (October 22, 2020): 1093–102. http://dx.doi.org/10.1093/jpepsy/jsaa080.
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Abstract Objective Cancer-related fatigue is common, disabling, and chronic, but professional help is not necessarily sought. Parents can support symptom management and facilitate help-seeking. This study explored parental experiences of their adolescent’s cancer-related fatigue and what they do to help. Methods Qualitative semi-structured interviews were conducted with 21 parents of 17 adolescents aged 12–18 who were previously diagnosed with cancer. Reflexive thematic analysis was used to analyze the data. Results Three high-order themes were generated. Firstly, “fatigue is inevitable and unpredictable.” This encompassed parental perceptions of fatigue as variable, distinct from normal tiredness, and linked to sleep and mood. Fatigue was seen as arising from cancer, which rendered parents helpless. Secondly, “fatigue is disruptive to normal life” beyond cancer treatment, which is contrary to expectations. Thirdly, parents managed fatigue by trying to balance the adolescent’s desires for normality and their own perception of what is realistic with encouraging activities, and by seeking support from others. Conclusions Parents see adolescent cancer-related fatigue as multi-faceted and experience it as unpredictable and attributed to cancer. They struggle to distinguish normal adolescent behavior from problematic fatigue, and to balance supporting and empowering the adolescent to live life to the fullest whilst also being realistic about the limitations imposed by fatigue and the benefits of activity. Parents try to manage fatigue practically but want more information about adolescent cancer-related fatigue to help establish their own and their adolescent’s expectations.
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Rodriguez, Leonor, Ann Marie Groarke, Pat Dolan, and Padraig MacNeela. "Adolescent adjustment to maternal cancer: an interpretative phenomenological analysis (IPA)." Qualitative Research Journal 18, no. 4 (November 12, 2018): 345–58. http://dx.doi.org/10.1108/qrj-d-17-00034.
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Purpose As an Interpretative Phenomenological Analysis (IPA), the purpose of this paper is to provide an in-depth understanding of adolescent experiences of maternal cancer to identify the individual and contextual factors that shape adolescent experiences and evaluates the potential applicability of the Family Ecology Model to the illness context. Design/methodology/approach This analysis is focussed on three female adolescents who completed semi-structured interviews, which were subjected to IPA. Maternal illness is a challenge for adolescents, which can be improved or undermined by their contexts. The analysis yielded three sub-themes: family structure, social supports, experiencing maternal cancer at a time of transition and the lasting impact of cancer. Findings This study found that adolescent experiences of maternal cancer depend on their contexts from an ecological perspective the type and quality of adolescent interactions determine coping and adjustment. Maternal cancer can be difficult as adolescents are already facing specific developmental challenges. Future research can benefit from adopting an ecological perspective to further understand adolescent experiences to support adolescent that may be more vulnerable and benefit from additional supports. This is not a generalisable piece of research but it provides a very deep and detailed understanding of the impact of maternal cancer on adolescents’ developmental course and determines how the complexity of their contexts can serve as a risk or a protective factor at this challenging time. Originality/value This paper contributes to the body of research by providing a comprehensive understanding of adolescents facing maternal cancer. The Ecological Model supports the findings of this research and proves to be a good model to understand the complex interplay between adolescents and their environments when facing a difficult challenge like maternal cancer is.
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Walker, Amy J., Frances M. Lewis, and Abby R. Rosenberg. "Walking on Eggshells: Parents’ First Year After Their Adolescent Completes Their Cancer Treatment." Journal of Pediatric Oncology Nursing 37, no. 4 (March 6, 2020): 233–43. http://dx.doi.org/10.1177/1043454220909788.
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Background: Despite an awareness that parents experience distress and heightened uncertainty at the end of their adolescent’s treatment for cancer, little is known about the specific challenges and concerns parents hold for their adolescent survivors or how they manage these challenges. This study described challenges parents experience in the first year after their adolescent’s cancer treatment and what parents did to manage those challenges. Method: Single occasion semistructured interviews were conducted with parents and were transcribed verbatim. Data were coded using inductive content analysis methods adapted from grounded theory. Results: Participants were 30 parents of adolescent survivors (13-18 years) who were in the first year following treatment completion. The core construct, “Walking on Eggshells,” explained the processes and experiences parents faced once treatment was complete. Two additional domains captured how parents managed posttreatment challenges (“Doing What We Can”) and the ways parents helped their adolescents adjust (“Balancing”). Conclusion: Study results suggest that services and materials are needed to help parents know common struggles that arise after treatment and ways to mitigate the severity of distress parents experience.
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Kazlauskaite, Vaida, and Stephen T. Fife. "Adolescent Experience With Parental Cancer and Involvement With Medical Professionals: A Heuristic Phenomenological Inquiry." Journal of Adolescent Research 36, no. 4 (January 9, 2021): 371–97. http://dx.doi.org/10.1177/0743558420985446.
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Experiencing the death of a loved one can be a difficult occurrence. Adolescents, in particular, experience death in a unique way. Yet there is relatively little research on adolescents’ experience with parental death and their involvement in the medical setting during a parent’s terminal illness. This qualitative study utilized heuristic inquiry, a type of phenomenological research, to investigate adolescents’ involvement in the hospital setting during parental terminal illness. Qualitative analysis of participants’ experiences resulted in two primary categories associated with adolescents’ involvement with medical professionals during parental illness: factors influencing hospital involvement and experience with health care professionals. The findings have implications for medical and mental health professionals who work with adolescent family members of terminally ill patients.
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Schreiner, Katherine, Daniel H. Grossoehme, Justin N. Baker, Jennifer Needle, Sarah Friebert, and Maureen E. Lyon. "“Being healthy and living life as if I never had cancer”: The meaning of “living well” from adolescents with cancer." Journal of Clinical Oncology 38, no. 15_suppl (May 20, 2020): e22532-e22532. http://dx.doi.org/10.1200/jco.2020.38.15_suppl.e22532.
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e22532 Background: Extensive resources are devoted to discovering novel cancer treatments. Meanwhile, patient priorities and experiences must also be addressed. Specifically, among adolescents with cancer, patients’ definitions of “living well” may elucidate treatment preferences, guide care teams and families, and influence future behavioral interventions. The objective was to develop an empirical definition of “living well” for adolescents with cancer to enhance shared decision-making. Methods: Video recordings were analyzed from the Next Steps: Respecting Choices interviews with n = 30 adolescents ages 14-21 years with cancer and their families, a subsample of N = 126 adolescent/family dyads participating in a randomized clinical trial, FAmily CEntered (FACE) Advance Care Planning. Interviews were transcribed, verified and anonymized. A phenomenological analytic method was used to identify psychological meaning in participants’ statements. Results: Adolescents with cancer conceptualize living well as meaning maintaining physical, mental and emotional health, while engaging in purposeful, typical, adolescent-appropriate activities with people important to the adolescents. This has four components: living mindfully; living an identity as a healthy adolescent; spending time with friends and family; and living a purposeful life without depression. Living well means most often enjoying these activities while spending time with family and friends. An exemplary quotation is, “...being able to have a life where everything is going good, and being able to live healthy...gets rid of some of your worries not only for yourself but for your friends and family...less worries means a less stressful life...” Conclusions: By determining what “living well” means to adolescents with cancer, care teams and families can more easily understand patients’ priorities. A firm grasp on patients’ definitions of “living well” could relieve significant burden from families and increase families’ willingness to honor adolescent treatment preferences. Findings may guide future psychosocial interventions. Clinical trial information: NCT01670461.
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Menossi, Maria José, Juliana Cardeal da Costa Zorzo, and Regina Aparecida Garcia de Lima. "The dialogic life-death in care delivery to adolescents with cancer." Revista Latino-Americana de Enfermagem 20, no. 1 (February 2012): 126–34. http://dx.doi.org/10.1590/s0104-11692012000100017.
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This study aims to understand the experience of adolescents with cancer, family and the health team regarding death in the healthcare context, in the light of Edgar Morin's proposed theoretical framework of complexity. Participants were 12 adolescents, 14 relatives and 25 health professionals. The interview was used for data collection. The discussion of data was guided by the dialogic life-death in the context of care to adolescents with cancer. It was observed that the singularity in the way the adolescent experiences time and faces death and the possibility that the family will lose a loved one may not be in accordance with the care the health team offers, considering structural, organizational and affective aspects. It is not enough for the team just to rationally make choices on the use of diagnostic-therapeutic devices, in line with predefined moments in the disease. Instead, a contextualized and sensitive understanding of each situation is needed.
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Waters, Austin R., Karely Mann, Echo L. Warner, Perla L. Vaca Lopez, Heydon K. Kaddas, Nicole Ray, Tomoko Tsukamoto, et al. "Adolescent and young adult cancer patients' health insurance experiences, expectations, and literacy." Journal of Clinical Oncology 38, no. 29_suppl (October 10, 2020): 65. http://dx.doi.org/10.1200/jco.2020.38.29_suppl.65.
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65 Background: Adolescent and young adult (AYA) cancer patients (15-39 years of age) often report health insurance concerns and financial toxicity due to their life-saving treatment. AYAs often have limited experience with healthcare prior to their diagnosis, which may limit their understanding of health insurance concepts, coverage, and costs. To describe AYA health insurance experiences, expectations, and literacy, we conducted semi-structured interviews with AYA cancer patients and survivors. Methods: Eligible participants were 18-39 years, diagnosed with cancer, and insured. Participants were recruited through an AYA cancer navigation program in Utah from 10/2019-03/2020. Participants were purposively sampled to achieve equal age strata (18-25 vs. 26-39), as patients under 26 often remain on their parents policy. Individual interviews were recorded, transcribed, and analyzed. Inductive qualitative analysis was conducted to describe their experiences with and understanding of their insurance. We calculated descriptive statistics of demographics and the Health Insurance Literacy Measure (HILM), a continuous measure ranging from 0-84 (higher scores indicate higher comfortability and literacy). Associations of age (18-25 vs. 26-39) and policy holder (yes vs. no) with HILM score were evaluated with t-tests. Results: AYAs (N = 24) were nearly even by gender, female (58%), primarily heterosexual (92%), Non-Hispanic White (79%), and had at least some college (92%). Less than half of participants were policy holders (41.7%). Three themes emerged from analysis: 1) Lack of knowledge and experiential learning throughout treatment, 2) Unclear expectations of health insurance, and 3) Difficulties navigating coverage and the complex systems. Most AYAs were unaware of the specifics of their coverage and how their insurance plan impacted their costs. Most AYAs were surprised at the lack of coverage and high costs they encountered during treatment. Most AYAs experienced substantial difficulty navigating coverage issues, particularly the appeals process. The mean HILM score was 55.63 (SD = 10.06), no differences by age group or policy holder status. Conclusions: AYAs with cancer report substantial difficulty navigating the complex health insurance system and demonstrate low levels of health insurance literacy. Health insurance education focusing on insurance concepts (e.g., cost-sharing mechanisms) may help AYAs better manage costs and enable them to make informed health insurance decisions despite being at higher risk for financial toxicity.
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Tindle, Danielle, Carol Windsor, and Patsy Yates. "Centralizing Temporality in Adolescent and Young Adult Cancer Survivorship." Qualitative Health Research 29, no. 2 (September 5, 2018): 173–83. http://dx.doi.org/10.1177/1049732318797087.
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Drawing on Gadamer’s hermeneutic philosophy, this article presents a key outcome of broader research into the phenomenon of adolescent and young adult cancer survivorship. Data were generated through semi-structured interviews with 45 participants from Australia, England, and the United States. The participants received a cancer diagnosis between the ages of 15 and 29 years and were aged 18 to 40 years at the time of interview. The key analytical finding depicts the concept of time as central to the experiences in survivorship. Altered beliefs in temporal progression and biographical chronology affected the organization of time, the structuring and value of life events, and the use of time as a resource. The significance of temporality in young survivors’ experiences warrants its centrality in the design of survivorship care models that reflect a broader understanding of the life experiences of this population.
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Carlsson, Agneta Anderzén, Annica Kihlgren, and Venke Sørlie. "Embodied suffering: experiences of fear in adolescent girls with cancer." Journal of Child Health Care 12, no. 2 (June 2008): 129–43. http://dx.doi.org/10.1177/1367493508088550.
Full textDissertations / Theses on the topic "Adolescent cancer experiences"
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Till, Tracy, and res cand@acu edu au. "Coping with Cancer: the Adolescent experience." Australian Catholic University. School of Nursing, 2004. http://dlibrary.acu.edu.au/digitaltheses/public/adt-acuvp70.25092005.
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Adolescence is the period of physical and emotional development from childhood to adulthood. As an adolescent develops they struggle with many issues including developing independence from their parents, embracing peer culture, an increase in the importance of body image and the development of sexual, vocational, and moral identity. The diagnosis and treatment for cancer can interfere with the adolescent meeting these goals, and subsequently cause the experience of adolescence to be more difficult. The aim of this study was to identify how adolescents with cancer cope with their situation. The objectives were to determine the resources adolescents utilise to cope with their experience, and the coping strategies adolescents use to cope with their experience. A thorough literature review identified that there had previously been only limited research with adolescents with cancer. In particular there had been very few qualitative studies investigating the specific coping strategies used by adolescents with cancer, with no such research being undertaken in Queensland. This study was conducted under the epistemological stance of constructionism. Meaning was constructed for this study of adolescents with cancer through the use of grounded theory methods, and secondary analysis of data. Interviews were collected by the researcher for a project at the Royal Children’s Hospital. Using grounded theory methods, seven of the interviews were analysed. In the process of developing a central category, Schatzman's Dimensional Matrix was used to assign codes into context, processes, consequences, and conditions, under the central category of “conquering the cancer experience”. The experience of diagnosis and treatment for cancer was difficult for these adolescents, however they ultimately coped and became stronger as a result of their experience. The key findings of this study identified that adolescents were able to cope with their experience. These finding were discussed in relation to factors which enhanced their coping, factors which influenced their ability to cope and how the experience changed the adolescent. Recommendations were also made with the aim of improving the experience of adolescents undergoing treatment for cancer in Queensland. Through the implementation of the recommendations of this study, hopefully the journey of adolescents with cancer can be made easier.
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Lopez, Alana Delores. "Transition Experiences of Adolescent Survivors of Childhood Cancer: A Qualitative Investigation." Scholar Commons, 2011. http://scholarcommons.usf.edu/etd/3213.
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Adolescent survivors of childhood cancer are a growing population with unique needs as they face a combination of challenges associated with normal development and returning to life after treatment completion (Wakefield et al., 2010). One specific need identified in the research literature includes the effective delivery of transitional care and planning (Hewitt, Greenfield, & Stovall, 2005). It has been suggested that the provision of transition care and planning can help facilitate the shift from one phase of care to another and promote positive transition experiences (National Cancer Institute, 2008). The shift from off-treatment to post-treatment and school reintegration have been identified in the literature as significant transitions for adolescent survivors of childhood cancer (Cabat & Shafer, 2002; MacLean, Foley, Ruccione, & Sklar, 1996). However, limited research has been conducted to explore these transitions from the perspectives of adolescent survivors of childhood cancer.
An exploratory, qualitative study was conducted with eight adolescent survivors of childhood cancer between the ages of 14 and 17. A multiple case study research design was used to explore adolescent cancer survivors' perceptions of these transition processes, challenges associated with these transitions, and their beliefs about what supports/services were or would be beneficial during these transitions. Data collected for analysis included questionnaires, transcribed interviews and follow-up meetings, direct observation, documents, and parent feedback. These data were analyzed using a combination of a template organizing style, immersion/crystallization (I/C) approach, and multiple case study strategies (Borkan, 1999; Crabtree & Miller, 1999, Stake, 2005; Yin, 2008).
Results indicated that adolescents perceived that change was occurring on some level during the shift from off-treatment to post-treatment and school reintegration but did not necessarily define this time as a "transition." They defined these times in personalized terms that reflected more subtle changes in their lives. The focus was placed on returning to a sense of "normalcy" and capitalizing on opportunities to regain some control over one's life. The improvement and/or absence of treatment residuals along with re-engagement in activities and roles served as signs, or indicators, that life was returning back to "normal" and provided feedback to the adolescent on their transition progress. Conversely, the presence of these signs continued to impact their lives as they restricted participation in desired activities and served as reminders that the effects of cancer and treatment extended beyond treatment completion. In addition to the presence of treatment residuals, fear of relapse also was a concern associated with the transition from off to post-treatment. However, adolescents tended not to let this be the focus of their lives. School reintegration challenges included disruption of school life and routines as well as academic and social concerns. Academic challenges included falling behind/catching up with work, maintaining motivation to do work, and readjusting to school demands and routines. Social challenges included answering peer questions, adjusting to peer awkwardness/discomfort, and managing peer reactions to their physical side effects. These challenges were not perceived by adolescents as sources of significant distress and, often times, they adapted and employed coping strategies to address these concerns in the school setting.
Adolescents also varied in their perceived need for transitional care and support during these transitions. Support received during the shift from off-treatment to post-treatment included advice from health care team members as well as relationships with peer cancer survivors across school, community, hospital, and camp settings. They received a variety of academic and social support during school reintegration. Teachers, family members, and peers provided academic support across home, hospital, and school settings. Teachers were a particularly important source of academic assistance. Accommodations and modifications also were provided to these adolescents at school. Peers, teachers, and other school staff provided social support. Based on the findings of the study, suggestions for future research and practical implications are offered.
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Behar, Lynn C. "Getting through it alone : a descriptive study of the experiences of single mothers with breast cancer and adolescent children /." Thesis, Connect to this title online; UW restricted, 1999. http://hdl.handle.net/1773/11156.
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Melander, Anna, and Susanne Roséus. "Barnets upplevelse av förälders cancersjukdom." Thesis, Malmö högskola, Fakulteten för hälsa och samhälle (HS), 2006. http://urn.kb.se/resolve?urn=urn:nbn:se:mau:diva-25022.
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I Sverige drabbades 1999 över 45.000 människor av cancer. Många av de insjuknade hade barn och ungdomar i skolåldern. Barn och ungdomar är de som får leva längst med sina trauman och eventuell förlust av förälder. Syftet med denna litteraturstudie var att få kännedom om och belysa barns upplevelser av att ha en förälder med cancersjukdom; deras tankar om förälderns cancer, hur de påverkas av förälderns cancersjukdom samt vad hälso- och sjukvårdspersonal kan göra för att hjälpa dem hantera situationen på bästa sätt. En analys av tio artiklar genomfördes. Resultatet visade att barn med cancersjuka föräldrar hade många tankar och funderingar om förälderns sjukdom. Barnen påverkades på många olika sätt, en del blev inneslutna i sig själva och ville fly medan andra agerade utåt med ilska, aggressioner eller häftig gråt. Många barn och ungdomar fick ångestsymtom, sömnsvårigheter, koncentrationsproblem samt hade problem att fungera socialt. Studien visade att hälso- och sjukvården bör bistå föräldrar med råd, stöd och kunskap om hur de kan stötta sitt barn att bemästra situationen. Hälso- och sjukvården borde också vara behjälplig med stödgrupper och individuell handledning för barn och ungdomar.In 1999 more than 45.000 adult Swedes were diagnosed with cancer. Many of those had school age children and adolescents. Children and adolescents are those who live longest with the trauma and potential loss of a parent.The purpose of this study was to achive knowledge about childrens perceptions having a parent with cancer; their thoughts about the illness, how they are affected by their parents illness and to gain insight in what healthcare professionals can do to help the children deal with the situation. Ten articles were analysed in this literature study. The result shows that children having a parent with cancer had lots of thoughts about the disease, some became introvert and wished to escape while others were acting out with anger, aggressions or crying. Children and adolescents had anxiety problems, sleeping disorders, trouble concentrating and some even had social functioning disorders. The study showed that health care units need to provide parents with advice, support and knowledge how they can support their children cope with the situation. The health care also need to provide support groups and individual counselling for children and adolescents.
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Phillips-Salimi, Celeste. "Young adult cancer survivors' experiences of connectedness with their healthcare providers." Thesis, Connect to resource online, 2009. http://hdl.handle.net/1805/2067.
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Thesis (Ph.D.)--Indiana University, 2009.Title from screen (viewed on February 2, 2010). School of Nursing, Indiana University-Purdue University Indianapolis (IUPUI). Advisor(s): Joan E. Haase, Marion E. Broome, Janet S. Carpenter, Richard M. Frankel. Includes vitae. Includes bibliographical references (leaves 227-258).
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Hedström, Mariann. "Distress among Adolescents with Cancer." Doctoral thesis, Uppsala universitet, Vårdvetenskap, 2005. http://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-4832.
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The primary aim was to investigate the distress perceived by adolescents with cancer treated in paediatric oncology. In Study I, especially distressing events for children/adolescents with cancer were identified by interviews with children/adolescents/parents and nurses. Data were analysed with content analysis. A range of physical and emotional concerns was identified. Physical concerns are of a rather similar nature across age groups. Emotional concerns vary more between age groups. For children 8-12 years, emotional concerns are rather frequent. In Study II distressing and positive aspects related to some care situations for adolescents with cancer were identified by interviews with adolescents and nurses. Data were analysed with content analysis. A range of negative aspects, e.g. fear of alienation, fear of dying, altered appearance and physical concerns, as well as positive aspects, e.g. positive relations to staff and being well cared for were identified. The aspects of distress identified in Studies I and II formed the basis for a structured interview-guide, used in Studies III and IV. Adolescents, recently diagnosed with cancer, physicians and nurses were interviewed by telephone about distress, anxiety, depression and well-being experienced by the adolescents. Adolescent ratings of prevalence, levels and worst aspects of distress do not necessarily agree, however, worry missing school and mucositis are among those rated with the highest prevalence, levels and those perceived as the overall worst. The findings from Study IV demonstrate that physicians and nurses underestimate the distress caused by worry missing school and mucositis. The accuracy of physician and nurse ratings of physical distress is acceptable, however, this is not the case for psychosocial distress. It can be concluded that it is crucial to consider how questions are asked when interpreting the significance of the answers, and that action on adolescent problems in relation to cancer diagnosis and treatment need to rely on direct communication.
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Erickson, Jeanne. "The education experiences of eight American adolescents in cancer survivorship." Thesis, University of Oxford, 2016. https://ora.ox.ac.uk/objects/uuid:e366e072-075d-4f9f-8a02-308c09d8728e.
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The aim of this thesis is to understand the experiences of eight American high school students who have been diagnosed with cancer. By increasing understanding of the challenges that adolescents in cancer survivorship experience, better support can be identified. The experience of cancer survivorship influences the physical, psychological, and social experiences of patients. As the survival rate of childhood cancers continues to increase, death becomes less likely making the need to maintain educational engagement during survivorship increasingly important. The research questions for this study were designed to address two main gaps in the current field of research. The first research question aims to address how the physical and psychological effects of cancer and treatment impact the participants' engagement with school. The second research question aims to understand the role that school plays for adolescents in cancer survivorship, including how participants experienced supplemental education during and after cancer treatment. This study uses a qualitative research methodology to address the research questions utilizing primarily semi-structured interviews and an adjusted version of the Adolescent Coping Scale. When used in combination with the interviews, the scale provides a picture of what the participants experienced and how they have been able to cope with the challenges they have faced. Interpretive phenomenological analysis was used to provide structure to the interview analysis. The results of this study show that fatigue and a compromised immune system have an impact on school attendance more than other physical effects during cancer treatment. As a result, adolescents are most at-risk of experiencing challenges in educational engagement during treatment. The results of this study also show that the feeling of uncertainty throughout cancer survivorship promotes fear and the feeling of a loss of control. Once treatment ends, fear of relapse is common. Physical and psychological effects were felt to improve as time passed. Another key result of this study is that the cancer experience results in a shift in perspective that becomes incorporated into the formation of identity. Participants feel different from peers as a result of the physical and psychological effects of the cancer experience. The results from the Adolescent Coping Scale indicate that school achievement, relapse and the worsening of physical side effects, and being treated different by peers were common concerns for the participants regarding their school, illness, and social concerns, respectively. Lastly, the participants view supplemental education as successful if it meets their personal academic and physical needs, is implemented consistently, and helps them to feel emotionally supported and socially connected. However, more research is needed that focuses on the implementation of policy at the state and district levels to discern whether this is a common challenge unique to this population of students with a physical or medical disability. The sample available for this research topic is not only limited to an extremely small population, but they are also a highly guarded population, making access for recruitment challenging. However, while generalization is difficult with a study of this size, the evidence collected on the participants' experiences during and after treatment provides valuable data on aspects of supplemental education implementation.
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McTaggart, Deborah L. "Breast cancer experience : mothers, adolescent daughters and the mother-daughter relationship." Thesis, National Library of Canada = Bibliothèque nationale du Canada, 2000. http://www.collectionscanada.ca/obj/s4/f2/dsk1/tape3/PQDD_0018/NQ56587.pdf.
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Kavanaugh, Brian. "Examining the Experience of Peer Relationships in Adolescents with Cancer." Antioch University / OhioLINK, 2014. http://rave.ohiolink.edu/etdc/view?acc_num=antioch1373627069.
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Rechner, Mona Gale. "Adolescents with cancer : their experience living with a chronic illness." Thesis, University of British Columbia, 1989. http://hdl.handle.net/2429/27341.
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This phenomenologic study was designed to understand and describe the experiences of adolescents with cancer living with a chronic illness.
The study was conducted with a sample of five adolescents, aged thirteen to seventeen who had received or were receiving treatments for cancer. Data were collected during audio-taped interviews and were analyzed for common themes.
The findings revealed that the adolescents' overall goal was to get on with life. The teenagers responded to cancer by experiencing the illness and determining that they were normal. They developed a philosophy of being positive and redefined their social world in order to get on with life. Understanding the manner in which adolescents with cancer experience living with this illness may enable health care practitioners to provide appropriate care to the teenager with cancer. Implications for practice, research and education are discussed.Applied Science, Faculty of
Nursing, School of
Graduate
Books on the topic "Adolescent cancer experiences"
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Life after cancer in adolescence and young adulthood: The experience of survivorship. Abingdon, Oxon: Routledge, 2009.
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Reid, Philippa. Music Therapy for Children and Adolescents Diagnosed with Cancer. Edited by Jane Edwards. Oxford University Press, 2015. http://dx.doi.org/10.1093/oxfordhb/9780199639755.013.45.
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Receiving a cancer diagnosis and undergoing the subsequent treatment challenges coping and equilibrium for children and adolescents and their families. This chapter describes how music therapists work with children, adolescents, and family members in cancer care contexts. A range of musical experiences can provide adjunct support to medical treatments to support coping, reduce distress, and provide comfort. The music therapist works as a member of the interdisciplinary team to provide opportunities fornormaland fun musical experiences to support the experience of hospitalization, as well as offering comfort and support for children in pain or distress. Research evidence supports the role of the music therapist in providing effective services with children and adolescents in cancer care.
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Ritter, Thomas D. FAMILIAL AND EXTRA-FAMILIAL INFLUENCES ON ADOLESCENT ADAPTATION TO THE CANCER EXPERIENCE (COMPLIANCE). 1995.
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Kearney, Julia A., and Jennifer S. Ford. Adapting Meaning-Centered Psychotherapy for Adolescents and Young Adults with Cancer. Oxford University Press, 2017. http://dx.doi.org/10.1093/med/9780199837229.003.0008.
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There is a lack of validated psychotherapeutic interventions for the adolescent and young adult (AYA) cancer population, despite years of evidence of significant need. AYAs with cancer experience distress, anxiety, grief, life disruption, and loss of meaning. Meaning-making is a core developmental task of adolescence and contributes to identity development. This chapter reviews narrative and structural theories of identity development, viewed through the lens of a disruptive life event such as cancer. Clinical therapeutic issues are discussed, including the selection of AYA patients for participation in meaning-centered work, the therapeutic approach to difficult subjects such as prognosis or end of life, working with parents and caregivers, and dealing with grief and suicidality in a meaning-centered framework. Formal development of a manualized meaning-centered psychotherapy for AYAs is also discussed. A clinical vignette is presented to illustrate the main themes of a meaning-centered psychotherapeutic approach.
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Brown, Ronald T., ed. Comprehensive Handbook of Childhood Cancer and Sickle Cell Disease. Oxford University Press, 2006. http://dx.doi.org/10.1093/oso/9780195169850.001.0001.
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Over recent decades, tremendous advances in the prevention, medical treatment, and quality of life issues in children and adolescents surviving cancer have spawned a host of research on pediatric psychosocial oncology. This important volume fulfills the clear need for an up-to-date, comprehensive handbook for practitioners that delineates the most recent research in the field--the first of its kind in over a decade. Over 60 renowned authors have been assembled to provide a thorough presentation of the state-of-the art research and literature, with topics including: -Neuropsychological effects of chemotherapy and radiation therapy -Bone marrow transplantation -Important issues about quality of life during and following treatment -Collaborative research among child-focused psychologists -Standards of psychological care for children and adolescents -Stress and coping in the pediatric cancer experience -The role of family and peer relationships The Comprehensive Handbook of Childhood Cancer and Sickle Cell Disease represents both multidisciplinary and international efforts, an alliance between physicians and parents, and a combination of research and service. With a wealth of information of great interest to patients and their families, this volume will also be a welcome resource to the psychologists, psychiatrists, pediatricians, oncologists, nurses, and social workers who confront these issues as they help children and their families through the treatment, recovery, and grieving processes.
Book chapters on the topic "Adolescent cancer experiences"
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Lofts, Rebecca. "A Young Person's Experience 1: Life Before Treatment." In Cancer Care for Adolescents and Young Adults, 4–6. Oxford, UK: Blackwell Publishing Ltd, 2008. http://dx.doi.org/10.1002/9780470697740.part1.
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Denver, Kelly. "A Young Person's Experience 2: Life During Treatment." In Cancer Care for Adolescents and Young Adults, 81–84. Oxford, UK: Blackwell Publishing Ltd, 2008. http://dx.doi.org/10.1002/9780470697740.part2.
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Morgan, Sue. "The Development of Adolescent and Young Adult Cancer Nursing: The UK Experience." In Nursing Adolescents and Young Adults with Cancer, 9–27. Cham: Springer International Publishing, 2018. http://dx.doi.org/10.1007/978-3-319-73555-9_2.
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Tang, Michael H. "In Their Own Voices: Experiences of Children and Adolescents with Cancer." In Pediatric Psychosocial Oncology: Textbook for Multidisciplinary Care, 387–90. Cham: Springer International Publishing, 2016. http://dx.doi.org/10.1007/978-3-319-21374-3_23.
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Pitcairn, Alan. "A Young Person's Experience 3: Life After Treatment or Chemotherapy Saves the Lost Boy." In Cancer Care for Adolescents and Young Adults, 163–66. Oxford, UK: Blackwell Publishing Ltd, 2008. http://dx.doi.org/10.1002/9780470697740.part3.
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Melo, Cláudia, Maria Cristina Canavarro, and Teresa Almeida-Santos. "Optimizing the Decision-Making Process About Fertility Preservation in Young Female Cancer Patients: The Experience of the Portuguese Centre for Fertility Preservation." In Pediatric and Adolescent Oncofertility, 269–84. Cham: Springer International Publishing, 2017. http://dx.doi.org/10.1007/978-3-319-32973-4_19.
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Rajkumar, Rajamanickam. "Cervical Cancer Elimination by 2030: The “SMASH” Strategy of Raj © A Global Public Health Treatise." In Cervical Cancer - A Global Public Health Treatise [Working Title]. IntechOpen, 2021. http://dx.doi.org/10.5772/intechopen.99949.
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Cervical cancer is a leading cancer among women, being the second most gynecological cancers in the developing countries, accounting for about 6 million new cases every year and 3.5 million deaths. The Cervical cancer is easily detectable by simple screening tests, like visual inspection methods, pap smear examination, and the recent HPV DNA test methods. If the precancer conditions are diagnosed, treatment can be done by ablation or excisional methods. The women can be followed by periodic cervical biopsy examinations, ideally once in 6 months for 3 years. If, at the end of 3 years, there is no evidence of cervical precancer, then the women will not develop invasive cancer stages. The HPV vaccination of adult and adolescent girls, offer more than 90% protection against Cervical Cancer. Thus, Cervical cancers are early detectable, effectively treatable and successfully preventable. The author, having been the Principal Investigator for one of the largest Cervical Cancer Screening programs in India, atAmbillikai, Tamil Nadu, India, during 2000–2007, which was in collaboration with the International Agency for Research on Cancer – IARC / WHO. The program was successful in reducing the Incidence Rate of Cervical Cancer by 25% and Mortality Rate due to Cervical Cancer, by 35% in a span of 5 years. From the experiences of this “Proof of Concept” project, the author has advocated, “SMASH” strategy of Raj©, for Cervical Cancer Elimination by 2030, which is deliberated in detail, i n this chapter. Hope that, this will serve as a Global Public Health Treatise, for the health care planners and providers in particular and the community at large, worldwide.
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Cheung, Christabel K., Sheila J. Santacroce, and Bradley J. Zebrack. "Adolescent and Young Adult Patients." In Psycho-Oncology, edited by William S. Breitbart, 715–20. Oxford University Press, 2021. http://dx.doi.org/10.1093/med/9780190097653.003.0089.
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Adolescent and young adult (AYA) cancer patients are beneficiaries of technological advances, who are now living long enough to experience medical late effects and psychosocial challenges, as well as opportunities for personal growth and transformation, resulting from exposures to curative and life-extending biomedical innovation. This chapter first defines the AYA population and summarizes trends in the epidemiology, etiology, and prognosis of cancer in this population. Second, it describes prominent AYA developmental characteristics. Third, it characterizes the context in which AYAs experience a cancer diagnosis and its care. Fourth and finally, it discusses prevalent psychosocial developmental challenges for AYA cancer patients, including key clinical issues unique to this age-defined population, and what is considered reasonable recommendations for assessment, information, and intervention in psycho-oncology care to promote their health and well-being. Psycho-oncologists are called to utilize frameworks that explain human development and social ecology to inform the development of clinical recommendations that are relevant and responsive to the dynamic contexts in which AYA patients live beyond a diagnosis of cancer.
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Benedict, Catherine, Zeba Ahmad, Vicky Lehmann, and Jennifer S. Ford. "Adolescents and Young Adults." In Sexual Health, Fertility, and Relationships in Cancer Care, 63–97. Oxford University Press, 2020. http://dx.doi.org/10.1093/med/9780190934033.003.0004.
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Adolescents and young adults (AYA) represent a unique patient population with a number of age-specific care needs that should be understood and attended to as a part of comprehensive cancer care. The effects of cancer and its treatment on sexual functioning and fertility are common and ranked as among the most distressing survivorship issues faced by this age group. Difficulties associated with sexuality, body image, and intimacy; facing infertility risk; and coping with loss of fertility are all relevant issues for patients across disease and treatment groups. Further, when cancer occurs during this age range, its sequelae can disrupt key developmental tasks and have long-lasting effects on areas of life connected to and affected by sexual and reproductive health problems. Patients are often not fully informed about the sexual side effects and infertility risks associated with treatment and as a result are typically unprepared for the challenges they experience. This chapter describes the challenges AYAs face related to their sexual and reproductive health after a cancer diagnosis, provides information for screening patients for heightened distress and dysfunction, and reviews treatment strategies to help clinicians prepare to discuss these complex issues with AYA patients and survivors.
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Armstrong, F. Daniel, and Maria L. Goldman. "Neurocognitive Outcomes in Childhood Cancer: Effects of Disease and Treatment on Brain Development and Learning." In Cognitive and Behavioral Abnormalities of Pediatric Diseases. Oxford University Press, 2010. http://dx.doi.org/10.1093/oso/9780195342680.003.0052.
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Childhood cancer is a rare disease, accounting for only 1% of all malignancies in humans of all ages. In 2007, approximately 10,400 new cases of cancer were diagnosed in children 14 years of age and younger (American Cancer Society 2007). Significant advances in diagnostic techniques and tailored treatments during the past three decades have increased the 5-year survival rate for all cancers to over 80% (Twombly 2007). For acute lymphoblastic leukemia (ALL), the most common form of childhood cancer, the current survival rate is approaching 90% (Pui and Howard 2008). Better survival has led to increased awareness and focus on the consequences of cancer treatment, called late effects. The Children’s Oncology Group has developed and published guidelines for monitoring childhood cancer survivors for late effects in nearly every organ system (Landier et al. 2004), with a recent growing interest in those affecting cognitive, academic, social, and behavioral function (Nathan et al. 2007), which are the focus of this chapter. It was long assumed that a cancer diagnosis and the severe toxicity associated with treatment was such a traumatic event that significant adverse psychological consequences were inevitable. Recent, large reports from the Childhood Cancer Survivorship Study and reviews of smaller studies suggest that this is not the case for the majority of children and adolescents treated for and surviving cancer (Eiser, Hill, and Vance 2000; Zebrack et al. 2002; Zeltzer et al. 2009). With the exception of children who experience central nervous system (CNS) cancer or cancer treatment (Zebrack et al. 2004), most childhood cancer survivors are not significantly different from the general population on measures of depression (Phipps and Srivastava 1999), selfesteem (Noll et al. 1999), hopefulness (Ritchie 2001), or posttraumatic stress disorder (PTSD). Some children experience symptoms of posttraumatic stress during acute treatment, but these symptoms diminish over time (Phipps et al. 2006). For children with CNS cancer or who receive treatment that affects the CNS, the picture is somewhat different, with poorer emotional and social functioning, neurocognitive function, and overall health-related quality of life (HRQL) reported in this subpopulation (Calaminus et al. 2000; Vannatta et al. 2007).
Conference papers on the topic "Adolescent cancer experiences"
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Mann, Karely, Austin R. Waters, Perla L. Vaca Lopez, Echo L. Warner, Judy Ou, Heydon Kaddas, Joemy Ramsay, et al. "Abstract S06-04: Telehealth experiences of adolescent and young adult cancer patients and survivors during the COVID-19 pandemic." In Abstracts: AACR Virtual Meeting: COVID-19 and Cancer; February 3-5, 2021. American Association for Cancer Research, 2021. http://dx.doi.org/10.1158/1557-3265.covid-19-21-s06-04.
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Proctor, Cecile J., Danie A. Beaulieu, Anthony J. Reiman, and Lisa A. Best. "LIVING WELL AFTER CANCER: THE IMPACT OF SOCIAL SUPPORT AND PRODUCTIVE LEISURE." In International Psychological Applications Conference and Trends. inScience Press, 2021. http://dx.doi.org/10.36315/2021inpact029.
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"It is now recognized that the ""cancer experience"" extends beyond diagnosis, treatment, and end-of-life care. Relative to individuals who have not faced a cancer diagnosis, cancer survivors report increased mental health concerns and lowered physical and psychological well-being (Langeveld et al., 2004). Health-related quality of life encompasses overall physical (e.g., energy, fatigue, pain, etc.) and psychological functioning (e.g., emotional well-being, etc.), as well as general health perceptions (Hays & Morales, 2001). Nayak and colleagues (2017) reported that 82.3% of cancer patients had below-average quality of life scores, with the lowest scores found in the general, physical, and psychological well-being domains. Research suggests that various positive lifestyle variables, including social connectedness, leisure activity, and mindfulness practices are associated with increased quality of life in cancer patients (Courtens et al., 1996; Fangel et al., 2013; Garland et al., 2017). In this study, 350 cancer survivors completed an online questionnaire package that included a detailed demographic questionnaire with medical and online support and leisure activity questions. Additional measures were included to assess quality of life (QLQ-C30; Aaronson et al., 1993), social connectedness (Social and Emotional Loneliness Scale for Adults, SELSA-S; DiTommaso et al., 2004), and mindfulness (Adolescent and Adult Mindfulness Scale, AAMS; Droutman et al., 2018). Results show that increased QOL is predicted by increased medical support, lower family loneliness, self-acceptance, and engaging in a variety of leisure activities. Encouraging family support, including the patient in the decision-making process, encouraging a variety of physically possible leisure activities, and normalizing negative emotions surrounding diagnosis and disease symptoms are all ways that overall QoL can be improved."