Dissertations / Theses on the topic 'Activities of Daily Living (ADL)'
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Waldau, Viktor, and Max Elfvik. "Äldre patienters upplevelser av ADL inom slutenvården." Thesis, Uppsala universitet, Institutionen för folkhälso- och vårdvetenskap, 2014. http://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-224634.
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Bakgrund Förlust av förmågan att utföra självständig ADL är ett vanligt problem hos äldre i slutenvården. Detta leder till lidande och förlängda vårdtider. För att kunna utveckla omvårdnaden och för att motverka detta behövs ökad insikt om patienternas upplevelser vid minskad ADL-förmåga. Syfte Att beskriva äldre patienter med försämrad ADL-förmågas upplevelser av sin vård gällande utförande av ADL inom slutenvården. Metod Kvalitativ intervjustudie med åtta äldre patienter inneliggande på ett svenskt universitetssjukhus. Resultat Studiedeltagarna upplevde överlag att vården och personalen fungerade bra och att detta förbättrade deras upplevelse av att ha minskat i ADL-förmåga. Studiedeltagarna tyckte det var jobbigt att vara beroende av andra och få hjälp med personlig hygien. Vårdavdelningarnas rutiner och upplevelsen av att personalen var stressad gjorde att studiedeltagarna inte ville vara till besvär och ställa krav. Slutsats Resultaten visar att det finns ett behov av att utveckla ett mer personcentrerat förhållningsätt där riskpatienter identifieras och får möjlighet att vara delaktiga i arbetet för att stärka förmågan till självständigt utförande av ADL.Background Loss of the ability to independently perform tasks of basic ADL is a common problem in the care of institutionalized elderly. Loss of ADL function is a source of suffering and prolonged institutionalization. It is necessary to effectively counter the risks and develop the care a deeper insight of the experiences from patients with losses in their ADL function. Purpose To describe experiences of performing of ADL in hospital as described by institutionalized elderly with a loss of ADL function. Methods Qualitative interviews with eight elderly patients institutionalized at a Swedish university hospital. Results The participants had in general a positive opinion of the care they received and they felt that it improved the feeling of having lost some ADL function. They felt troubled about being dependent of someone else and getting help with private hygiene on the basis of its personal nature. The routines and the experience of stressed staff made the participants reluctant to make demands or ask for help. Conclusion The results of the study showed that there is a need to develop a person centered approach where patients at risk are identified and given opportunity to participate in the work to strengthen their ability to perform ADL independently.
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Lilja, Margareta. "Elderly disabled persons in the home setting : aspects of activities in daily life /." Stockholm, 2000. http://diss.kib.ki.se/2000/91-628-4244-7/.
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Jackson, Lauren Innes. "Depression, Activities of Daily Living, and Retirement." Thesis, University of North Texas, 2006. https://digital.library.unt.edu/ark:/67531/metadc5220/.
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Depression is a common clinical and subclinical psychiatric disorder in the middle-age to older adult population. This study examined the relationship between depression and activities of daily living (ADLs) in middle-age to older adults. This study examined longitudinal data from the 1998, wave 4, and 2000, wave 5, of the Health and Retirement Study (HRS), a National Panel Study sponsored by the National Institute on Aging. A negative cross-sectional and longitudinal relationship between higher ADL scores and depression was hypothesized. A goal of the present study was to determine the temporal precedence of these two constructs using a cross-lag panel design to first examine the cross-sectional relationship between ADLs and depression at time-one and at time-two, and then the time-one to time-two longitudinal relationships to examine temporal precedence possible causal relationships. Finally, differences in these correlational relationships by retirement status and then by marital status were tested. There were several interesting findings, including those who were retired in both 1998 and 2000 reported fewer ADLs (i.e., worse functioning), but also reported better health than those who were working in both 1998 and 2000. Similarly, those people who were not married in both 1998 and 2000 reported fewer ADLs but better health than those who were married in both 1998 and 2000. Married individuals reported fewer depressive symptoms than those who were not married.
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Edwards, David A. "ADL-Specific Versus Standard Aquatic Exercise in Older Persons." Scholarly Repository, 2011. http://scholarlyrepository.miami.edu/oa_dissertations/588.
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With aging there is a decrease in a person’s ability to perform activities of daily living (ADL) which may be most effectively addressed using training patterns that are biomechanically similar to ADL. Since aquatic exercise offers the opportunity to provide resistance with a high level of safety, the pool may afford the ideal environment for ADL-specific training in an aging population. Purpose: The purpose of this investigation was to compare a traditional aquatic exercise program (TRAD) to an aquatic program tailored to target ADL (ADLspec). Methods: Eighteen independently living individuals (68.7 + 7.5 years) were randomly assigned to a TRAD or ADLspec aquatic exercise group. The exercise groups attended 1 hr exercise sessions, 2 times per week for 8 weeks. ADL ability was assessed using the short version of the Continuous-Scale Physical Functional Performance Test (PFP-10); while strength and power were assessed using the 30s arm curl and 30 sec. chair stand tests. Results: Mixed design ANOVAs revealed a significant group x time interaction for floor sweep time with the ADLspec group outperforming the TRAD and control (CON) groups (p = .043). Additionally, the ADLspec group improved the pan weight and scarf time components of the PFP-10 (p < .020), while the TRAD group improved pan time and laundry time (p < .046). Both training groups showed similar improvements for jacket time, grocery weight, and 6-min walk, (p < .046). The ADLspec and TRAD groups also made similar improvements in upper and lower body strength, as well as lower body power across time, (p < .043). A student’s t-test revealed the TRAD group spent more time exercising during the hour session than the ADLspec group (p < .05). Conclusion: The results indicate that performing an ADLspec aquatic exercise program can increase performance of ADL that require more complex sequential movements; however, ADL more dependent on fitness may be better addressed using a TRAD intervention. These results can be helpful when designing a periodized aquatic training program to increase independence in older persons.
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Alosco, Michael L. "Executive Function and Instrumental ADL Performance in Older Adults with Heart Failure." Kent State University / OhioLINK, 2013. http://rave.ohiolink.edu/etdc/view?acc_num=kent1364204867.
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Fieo, Robert Anthony. "Determinants of functional decline in community-dwelling older adults." Thesis, University of Edinburgh, 2011. http://hdl.handle.net/1842/5501.
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The overarching theme of this thesis is the prevention of progressive-type disability. Unlike catastrophic disability, progressive disability is gradual and more common in older adults. Because progressive disability can take years to develop, it is often conceptualized as a continuum, from less to more disabled. Disability prevention, by definition, is designed to identify people who are as yet nondisabled but at high risk for future functional decline by identifying an early functional state associated with increased risk of subsequent disability (Fried & Guralnik, 1997). This thesis sought to address two challenges associated with identifying an early functional state of disability. The first challenge relates to instrument calibration. Traditional instruments (based on self-report) used for assessing disability, scales of activities of daily living (ADL) and instrumental activities of daily living (IADL), were originally developed to describe levels of functional status in institutionalized older adults. Thus, these instruments poorly discriminate, as well as underestimate disability in the early stages of development. Poor discrimination refers to tasks or activities (i.e., scale items) that prove unresponsive to changes in a particular person’s ability level. Performance measures on the other hand, such as walk time or grip strength, have proven to be quite responsive to early declines in functional status. Despite the popularity of performance measures used to assess health status in epidemiology or gerontological research, evidence suggests that they measure a somewhat different construct than self-reported activities of daily living. ADLs have a long history of use in the medical community, yet it has been proposed that the relative standing of ADLs, in relation to communitydwelling older adults, could be enhanced by improving construct validities that are at least equivalent to those of physical performance measures. Item response theory (IRT) methodology can be used to improve the structure of ADL scales so that they are more sensitive in detecting the early stages of functional decline within relatively high functioning older adults; a stage that has been shown to be more responsive to clinical interventions aimed at prevention of overt disability or frailty. IRT can improve ADL scales in multiple ways: by confirming an underlying uni-dimensional continuum of disability, establishing interval level measurement or item hierarchies, and increasing scale precision. As part of this thesis I conducted a systematic review of functional status scales, applied to community-dwelling older adults, which employed IRT procedures. The review was useful in that it draws attention to areas of functional assessment that can be improved upon, most notably, the topic of establishing interval level data and construct under-representation. Using data from the Cardiovascular Health Study, I was able to show that a common hierarchy of functional decline was observed for a diverse set of conditions and diseases that are prevalent among community-dwelling older adults. Such an indicator could be used to identify hierarchical declines relating to severity in diverse patient populations. Improvements in validity of functional status scales can also lead to the use of ADL-IADLs as potential determinates of disability, rather than simply acting as outcome measures of disability. Again using data from the Cardiovascular Health Study, I examined the predictive power of IADL (mobility-type) items on later disability. Self reported difficulty in 2 or 3 of the most difficult IADL items increased the odds of being disabled eight years later by a factor of 3.5. The odds of being disabled fell to 1.9 for those reporting difficulty with one item. The second challenge of this thesis relates to defining determinants of functional decline that manifest themselves at the earliest stages of the disablement process. As previously stated physical performance measures have been shown to be sensitive to early stages of functional decline. However, can other measures, potentially spanning multiple domains, be used to identify those at high risk for future disability? In particular I was interested in whether psychosocial and cognitive variables could be used to detect changes in functional status at the preclinical stages of the disablement process. With regard to the Cardiovascular Health Study, I was able to show that, for subjects within the normal range of cognitive functioning, performance in the lowest quartile of the Digit Symbol Substitution Test resulted in a 2.2 increase in the odds of being disabled. Performance on this measure, as well as selfreported mobility noted above, could detect decrements in functional status as much as 8 years prior. With the use of the Lothian Birth Cohort sample I explicitly investigated the psychosocial domain. I found that the level of depressive symptoms increased the odds of being disabled by 56%. Again, these symptoms were assessed as much as eight years prior to self-reported disability. The general findings of this thesis indicate that refinements in ADL-IADL measures can aid in the detection of disability at the pre-clinical level, and that cognitive function and intra-individual factors play a pivotal role in speeding up or slowing down the disablement process.
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Whitehead, Phillip J. "Can an occupational therapy intervention increase independence in activities of daily living (ADL) in people who use homecare re-ablement services?" Thesis, University of Nottingham, 2016. http://eprints.nottingham.ac.uk/31802/.
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Homecare re-ablement services have been widely implemented by local authorities in England, although there are widespread variations in relation to occupational therapy input within them. These services aim to improve users’ ability to manage independently at home and reduce the need for other health and social care services. It is not known whether outcomes are better for people who receive occupational therapy as part of their homecare re-ablement compared with those who do not. This thesis reports a programme of work investigating this, encompassing: a systematic review, a qualitative interview study, and a feasibility randomised controlled trial (RCT) of an occupational therapy intervention targeted at activities of daily living (ADL). For the systematic review, 11 databases were searched and 13 studies were identified comparing interventions to improve performance in ADL with routine homecare. The review found variability in the content of interventions delivered and the measures used for ADL ability. However, there was moderate evidence that the interventions led to improvements in ADL ability, although most effects were not statistically significant. Those interventions involving occupational therapists led to improvements in ADL, but the content of the occupational therapy input varied. Semi-structured qualitative interviews were completed with 12 occupational therapists working in re-ablement services and ten people who had received re-ablement services. Interviews covered experiences and opinions of the service, and were analysed using thematic analysis. Findings were categorised in three themes: (1) Re-ablement: Tasks and Activities (2) Re-ablement: Modalities and Strategies for Delivery, and (3) Facilitators and Barriers. The occupational therapists’ primary focus was delivering graded programmes to improve users’ ability to manage ADL, which they believed they were uniquely placed to provide and tailor to each individual’s needs. People using services valued this graded approach believing that it improved their confidence to manage activities. A feasibility randomised controlled trial (RCT) was conducted in which 30 re-ablement users were randomised to receive either: usual homecare re-ablement without routine OT input (control) (n=15), or usual homecare re-ablement plus a tailored OT programme targeted at ADL (intervention) (n=15). The OT programme was tailored for each participant and included: goal-setting; teaching or practising techniques; equipment and adaptations; and provision of advice or support. Outcomes were: personal and extended ADL; quality of life; falls; and health and social care service use. These were assessed at two-weeks, three and six months post re-ablement. Although there were methodological challenges due to service changes which affected usual care and trial recruitment, it was feasible to enrol and retain participants, deliver the intervention, and collect outcome data which were responsive to change. Participants in both groups showed improvements from baseline, although overall the OT group showed greater improvement; they also used homecare services less frequently and had fewer falls. However, confidence intervals were wide, reflecting the small sample. The intervention was acceptable to participants who particularly valued the tailored advice and support. The principal conclusions were that there is some evidence that interventions targeted at personal activities of daily living can reduce homecare service users’ dependency. Although the content of interventions is variable, those involving occupational therapists appear to be beneficial. Occupational therapists believed that their specialist skills and knowledge in ADL performance were essential facilitators implementing an approach which was suited to each individual’s needs and therefore to successful re-ablement. The RCT was feasible and a further powered definitive study is warranted, subject to methodological alterations. The favourable trends in the OT group indicate the potential benefits in this population group. This is the first RCT of occupational therapy in homecare re-ablement and it is therefore important in the development of the evidence base for this area of practice. A definitive RCT is needed given the widespread national and local government investment, and policy and legislation that continues to underpin the development of homecare re-ablement services.
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Åberg, Anna Cristina. "General motor function assessment and perceptions of life satisfaction during and after geriatric rehabilitation /." Uppsala : Acta Universitatis Upsaliensis : Univ.-bibl. [distributör], 2003. http://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-3788.
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Fukutani, Naoto. "Association of Varus Thrust With Pain and Stiffness and Activities of Daily Living in Patients With Medial Knee Osteoarthritis." 京都大学 (Kyoto University), 2016. http://hdl.handle.net/2433/215467.
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© [2015] American Physical Therapy Association.Kyoto University (京都大学)
0048
新制・課程博士
博士(人間健康科学)
甲第19641号
人健博第33号
新制||人健||3(附属図書館)
32677
京都大学大学院医学研究科人間健康科学系専攻
(主査)教授 市橋 則明, 教授 山田 重人, 教授 妻木 範行
学位規則第4条第1項該当
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Árnadóttir, Guðrún. "Measuring the impact of body functions on occupational performance : validation of the ADL-focused occupation-based neurobehavioral evaluation (A-ONE)." Doctoral thesis, Umeå universitet, Arbetsterapi, 2010. http://urn.kb.se/resolve?urn=urn:nbn:se:umu:diva-32083.
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Background: Among the instruments commonly used by occupational therapists working in the area of rehabilitation of persons with neurological disorders are evaluations of both occupation, such as activities of daily living (ADL), and body functions. While persons with neurological diagnoses typically have symptoms that represent diminished neurobehavioral functions, the resulting pattern of neurobehavioral impairments affecting ADL performance often differs among diagnostic groups. Usually, neurobehavioral impairments are evaluated in a context that is separate from and not natural for ADL task performance. The A-ONE is a unique instrument that can be used to evaluate both ADL performance (ADL scale) and, in the natural context of the ADL task performance, the underlying neurobehaviors that cause diminished ADL task performance among persons with neurological disorders (Neurobehavioral scale). The scales of the instrument are of ordinal type, and in their existing form, do not have measurement properties. Measurement properties are a requirement of evidence-based and quality assured rehabilitation services. The overall aim of this doctoral study was to further develop and validate the A-ONE. This included (a) internal validation to explore the potential for converting the ordinal scales of the instrument to interval scales, (b) examination of which of the neurobehavioral items would be most beneficial and clinically useful for constructing a new Neurobehavioral Impact (NBI) scale for evaluating persons with different neurological diagnoses, and (c) exploration of whether persons with right and left cerebrovascular accidents (RCVA, LCVA) differ in mean NBI measures. Methods: This thesis is comprised of four studies which all contribute in different ways to the validation of the scales of the A-ONE. In the first three studies, Rasch analyses, a widely accepted modern test theory methodology, was used to examine internal validity of the scales and the reliability of the A-ONE measures. In the fourth study, ANCOVA was used to explore between group differences, and Pearson correlation coefficients were used to explore relations between person measures from the different A-ONE scales. Results: The first study of 209 persons diagnosed with CVA and dementia provided support for converting the ordinal ADL scale to an interval scale that has potential to be used to measure change in ADL performance over time. The second and third studies, including 206 and 422 persons respectively, indicated that it is possible to construct several unidimensional versions of a new NBI scale from the neurobehavioral items of the instrument, each with different item content and hierarchical item structure. Further, some of these NBI scales could be used across different diagnostic groups. When exploring differences between 215 persons with RCVA and LCVA on the NBI scale developed for CVA, results of the ANCOVA (with ADL ability as a covariate) indicated that there is no significant difference between groups in their mean NBI measures, despite known differences in patterns of neurobehavioral impairments. Conclusions: The results of this thesis indicate that the A-ONE, although developed by traditional psychometric methods for the purpose of providing useful information for intervention planning, now also has the potential to be used to measure change and compare diagnostic groups. This additional feature will likely enhance both clinical and research potential of the instrument. In order to make the results of the study accessible for clinicians, conversion tables need to be developed.
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Sunvisson, Helena. "The embodied experience of living with Parkinson's disease /." Stockholm, 2003. http://diss.kib.ki.se/2003/91-7349-570-0/.
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LEITE, Jéssica Costa. "Glittre ADL-Test na avaliação da capacidade funcional de indivíduos adultos com insuficiência cardíaca." Universidade Federal de Pernambuco, 2016. https://repositorio.ufpe.br/handle/123456789/18732.
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A insuficiência cardíaca (IC) é uma síndrome cardiovascular com impacto na saúde pública, leva a redução da capacidade funcional, limitando a execução de atividades de vida diária e de exercícios físicos. Considerada de grande importância, a capacidade funcional pode ser avaliada por uma variedade de instrumentos, tais como questionários e testes de campo, sendo o Teste de exercício cardiopulmonar considerado o padrão ouro. O Glittre ADL-Test, é um teste funcional submáximo que busca representar as atividades do cotidiano, uma vez que envolve um conjunto de tarefas comuns na vida diária. Esta dissertação está estruturada sob a forma de dois artigos originais. O primeiro artigo teve como objetivo avaliar e estabelecer um valor de diagnóstico para o Glittre ADL-Test em indivíduos adultos com Insuficiência Cardíaca, quando comparado ao padrão ouro. Foi realizado análise de acurácia do tempo de realização do Glittre ADL-Test em comparação com o VO2pico dado pelo TECP, utilizando o ponto de corte para o VO2pico de 16 ml/Kg/min a partir da classificação de Weber. O melhor ponto de corte encontrado foi de 258 segundos, com sensibilidade de 88,89% (IC 95%, 65,29-98,62) e especificidade de 70% (IC 95%, 45,72-88,11), com área sob a curva de 0,80 (IC 95% 0,66-0,94 e p 0,001). A prevalência encontrada no estudo para baixa capacidade funcional (VO2pico < 16 ml/Kg/min-1) foi de 47,3%, e para um TTotal maior que 258 segundos encontramos VPP de 72,73% (IC 95%, 49,78-89,2) e VPN de 87,50% (IC 95%, 61,65-98,4). A RV positiva para o ponto de corte de 258 segundos foi de 2,96 (IC 95% 1,49-5,90), e a RV negativa foi de 0,16 (IC 95% 0,04-0,60), resultando em um pós-teste positivo de 73% e negativo de 12%. O segundo artigo teve como objetivo investigar se o tempo necessário para realização do Glittre ADL-Test varia de acordo com a classificação de Weber para o VO2 pico, e sua correlação com a força muscular respiratória, função pulmonar e mobilidade diafragmática. O tempo médio de realização do Glittre ADLTest foi de 286,5 segundos, houve diferença significativa entre as classes A (254,1 segundos) e C (324 segundos) de Weber (p<0,05). O Glittre ADL-Test mostrou correlações significativas com a PImáx (r=-0,445 – p<0,01), com a PEmáx (r=-0,531 – p<0,01) e com a mobilidade diafragmática (r=-0,361 – p<0,05). Vinte e oito pacientes realizaram um segundo teste, na análise de reprodutibilidade, o ICC encontrado foi de 0,76 (IC 95% 0,17-0,91) e p<0,01. Conclusão: Os valores de sensibilidade, especificidade, VPP e VPN, mostraram que o Glittre ADL-Test é acurado na avaliação da capacidade funcional de pacientes com IC. É útil e pode ser usado na prática clínica, pois também se mostrou capaz de refletir a performance funcional destes indivíduos e apresentou correlação com a força muscular respiratória e mobilidade diafragmática.
Heart failure (HF) is a cardiovascular syndrome with enormous impact on public health, leading to reduced functional capacity in terms of both physical limitations to activities of daily living as well as the implementation of physical exercises. Considered of great importance, functional capacity can be assessed by a variety of instruments such as questionnaires and field tests, and cardiopulmonary exercise test considered the gold standard. The Glittre ADL-Test is a submaximal functional test that seeks to represent the daily activities, since it involves a set of common tasks in everyday life. This paper is structured in the form of two original articles. The first article was to evaluate and establish a diagnostic value for the Glittre ADL-Test in adults with heart failure when compared to the gold standard was carried out accuracy analysis of the Glittre ADLTest performance time compared to the data peak VO2 CPX by using the cutoff point for the peak VO2 of 16 ml/kg/min from the Weber classification. The best cutoff point was of 258 second, with a sensitivity of 88.89% (95% CI 65.29 to 98.62) and a specificity of 70% (95% CI 45.72 to 88.11) with an area under the curve of 0.80 (95% CI 0.66 to 0.94 and p 0.001). The prevalence found in the study to low functional capacity (peak VO2 <16 ml / kg / min) was 47.3%, and for TTotal greater than 258 seconds found PPV of 72.73% (95% CI, 49, 78 to 89.2) and VPN 87.50% (95% CI, 61.65 to 98.4). The positive LR to the cutoff point of 258 seconds, it was 2.96 (95% CI 1.49 to 5.90) and the negative LR was 0.16 (95% CI 0.04 to 0.60) resulting in a positive post-test of 73% and negative 12%. The second study aimed to investigate whether the time required to perform the Glittre ADL-Test varies according to Weber's rating for the peak VO2, and its correlation with respiratory muscle strength, pulmonary function and diaphragmatic mobility. The mean duration of the Glittre ADL-Test was 286.5 seconds there was a significant difference between the classes (254.1 seconds) and C (324 seconds) Weber (p <0.05). The Glittre ADL-Test showed significant correlations with MIP (r=-0.445 - p <0.01), with the MEP (r = -0.531 - p <0.01) and diaphragmatic mobility (r=-0.361 - p <0.05). Twenty-eight patients underwent a second test, the reproducibility of analysis, the ICC found was 0.76 (95% CI 0.17 to 0.91) and p <0.01. Conclusion: The sensitivity, specificity, PPV and NPV, showed that the Glittre ADLTest is accurate in assessing the functional capacity of patients with HF. It is useful and can be used in clinical practice, he was also able to reflect the functional performance of these individuals and correlated with respiratory muscle strength and diaphragmatic mobility.
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Källbom, Andreas, and Michelle Lundin. "Åtgärder som främjar den äldre ortopedpatienten till bibehållen personlig ADL under vårdtiden : En allmän litteraturstudie." Thesis, Högskolan i Halmstad, Akademin för hälsa och välfärd, 2021. http://urn.kb.se/resolve?urn=urn:nbn:se:hh:diva-44212.
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Bakgrund: Höftfraktur hos äldre är en vanlig anledning till inläggning på ortopediska avdelningar. Att som äldre patient vårdas på sjukhus är associerat med negativa hälsoeffekter då det påverkar förmågan att utföra aktiviteter i dagliga livet (ADL), ADL är grundläggande för att en patient ska kunna klara sig hemma utan stöd från vården. Under vårdtiden behöver denna förmåga bedömas i syfte att skapa rätt omvårdnadsåtgärder för att bibehålla patientens ADL, samt sträva efter att dessa aktiviteter utförs självständigt. Syfte: Identifiera vilka åtgärder som kan främja äldre patienter till bibehållen ADL efter genomgången höftoperation. Metod: En allmän litteraturstudie användes för att besvara syftet. Resultat: Resultatet presenteras i fyra teman: “Tidig mobilisering”, “Personcentrerad rehabilitering”, “Stöd för att optimera näringsintaget” samt “Användandet av mätinstrument”. För att beskriva ADL användes flera mätskalor som gav information om patientens utgångspunkt och effekten av rehabilitering. Patienter som mobiliserades tidigt efter operationen hade en minskad risk för komplikationer och därmed hade patienten större möjlighet att återhämta sin personliga ADL-förmåga. Välutbildad vårdpersonal gav personcentrerad och tydlig information, vilket gjorde att rehabiliteringsplanen följdes. Ytterligare information om patientens näringsintag behövde införskaffas för att kunna optimera rehabiliteringen, då patienterna led av otillräcklig näringstillförsel. Konklusion: För att hjälpa patienten till bibehållen ADL under vårdtiden behövs kontinuerlig personcentrerad information från vårdpersonalen, när personal är välutbildad finns det bättre möjlighet för patientinvolvering. Detta kan uppmuntra till att omvårdnadsåtgärderna utförs och följs av patienten. Näringsintaget behöver identifieras och observeras för att patienten ska få i sig tillräckligt med näring och få ut det mesta av rehabiliteringen.Background: Hip fracture among elderly is a common reason for patient admission to orthopedic wards. Being treated in a hospital as an elderly patient is associated with adverse health effects, as it affects their ability to perform activities of daily living (ADL). ADL is fundamental for patients to manage at home without support from caregivers. During hospitalization this ability needs to be assessed in order to create the right nursing measures to maintain the patients ADL, as well as strive for these activities to be performed independently. Aim: Identify which measures can promote elderly patients to maintain ADL after undergoing hip surgery. Method: A general literature study was used to answer the purpose. Results: The results are comprised of four themes: "Early mobilization", "Person-centered rehabilitation", "Support for optimizing nutrient intake” and “The usage of measuring instruments”. To examine ADL, several measurement scales were used that provided information about the patient's starting point and the effect of rehabilitation. Patients who were mobilized early after surgery had a reduced risk of complications and thus the patient had a greater opportunity to regain their personal ADL ability. Well-trained staff provided person-centered care and clear information, which meant that the rehabilitation plan is followed. Additional information about the patient's nutritional intake needed to be obtained in order to optimize rehabilitation, as the patients suffered from insufficient nutritional supply. Conclusion: To help the patient to maintain ADL during the care period, continuous person-centered information from the care staff is needed, when the staff is well trained, there is a better opportunity for patient involvement. This can encourage the nursing measures to be performed and followed by the patient. Nutritional intake needs to be identified and observed in order for the patient to get enough nutrition and get the most out of the rehabilitation.
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Berggren, Elisabeth. "Daily life after Subarachnoid Haemorrhage : Identity construction, patients’ and relatives’ statements about patients’ memory, emotional status and activities of living." Doctoral thesis, Hälsohögskolan, Högskolan i Jönköping, HHJ. Kvalitetsförbättring och ledarskap inom hälsa och välfärd, 2012. http://urn.kb.se/resolve?urn=urn:nbn:se:hj:diva-19840.
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The overall aim of this thesis was to describe patients’ experience and reconstruction regarding the onset of, and events surrounding being struck by a Subarachnoid Haemorrhage (SAH), and to describe patients’ and relatives’ views of patients’ memory ability, emotional status and activities of living, in a long-term perspective. Methods: Both inductive and deductive approaches were used. Nine open interviews were carried out in home settings, in average 1 year and 7 seven months after the patients’ onset, and discourse analysis was used to interpret the data. Eleven relatives and 11 patients, 11 years after the onset, and 15 relatives and 15 patients, 6 years after the onset, participated in two studies. Interviews using a questionnaire with structured questions and memory tests were used to collect data. Fischer’s exact test and Z-scores were used for the statistical analysis. Results: Patients with experience of a SAH were able to judge their own memory for what happened when they became ill. The reconstruction of the illness event may be interpreted as an identity creating process. The process of meaning-making is both a matter of understanding SAH as a pathological event and a social and communicative matter, where the SAH is construed into a meaningful life history, in order to make life complete (I). Memory problems, changes in emotional status and problems with activities of living were common (II-IV). There was correspondence between relatives’ and patients’ statements regarding the patients’ memory in general and long-term memory. Patients judged their own memory ability better than relatives, compared with results on memory tests. Relatives stated that some patients had meta-memory problems (II). The episodic memory seemed to be well reserved, both concerning the onset and in the long-term perspective (I, II). There were more problems with social life than with P- and I-ADL (III), and social company habits had changed due to concentration difficulties, mental fatigue, and patients’ sensitivity to noisy environments and uncertainty (IV). Relatives rated the patients’ ability concerning activities of living and emotional status, and in a similar manner to patients’ statements (III-IV). Conclusions: The reconstruction of the illness event can be used as a tool in nursing for understanding the patient’s identity-construction. Relatives and patients stated the patients’ memory, emotional status and activities of living in a similar manner, and therefore both patients’ and relatives’ statements can be used as a tool in nursing care, in order to support the patient. However, the results showed: meta-memory problems (relatives’ statements) and that the patients’ judged their own memory ability better than relatives in comparison with results on memory tests. Nevertheless, there was a high degree of concordance between relatives’ and patients’ evaluations concerning patients´ memory ability, emotional status, emotional problems, social company habits and activities of living. Therefore both relatives’ and patients’ statements can be considered to be reliable. However, sometimes the patients and the relatives judge the patients’ memory differently. Consequently, memory tests and formalized dialogues between the patient, the relative and a professional might be required, in order to improve the mutual family relationship in a positive way. Professionals however, must first assume that patients can judge their own memory, emotional status and ability in daily life.
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Árnadóttir, Guðrún. "Measuring the impact of body functions on occupational performance validation of the ADL-focused occupation-based neurobehavioral evaluation (A-ONE) /." Umeå : Umeå university, 2010. http://urn.kb.se/resolve?urn=urn:nbn:se:umu:diva-32083.
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Hill, Catherine Lindsay. "Can the performance of activities of daily living questionnaire identify children with developmental coordination disorder?" University of Western Australia. School of Human Movement and Exercise Science, 2008. http://theses.library.uwa.edu.au/adt-WU2008.0096.
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Currently a lack of guidelines for Criterion B of the DSM-IV-TR (American Psychiatric Association, 2000) hampers diagnosis of children with developmental coordination disorder (DCD). The Performance of Activities of Daily Living Questionnaire (PADL-Q; Dewey, Larkin & Summers, 2004) is a new parent-reported instrument developed to quantify the level of interference in activities of daily living (ADL) experienced by children with DCD and was tested for its efficacy in addressing Criterion B. Thirty-two children aged between 5 and 10 years comprising two matched groups, 16 with DCD (8 boys and 8 girls) and 16 without DCD (8 boys and 8 girls) participated in the study. The aim of the research was to investigate the ability of the PADL-Q to identify differences between children with and without DCD. A further 5 children, in the same age range, who did not have DCD added data that was used to ascertain relationships between the constituent assessments. All children were tested using the MAND (McCarron, 1982) whilst their parents completed the PADL-Q. A set of Tests of Activities of Daily Living (TADL) tasks were devised for the children to perform that further validated parents ratings of children?s ADL performance. A Group x Gender MANCOVA, controlled for age, of the PADL-Q total scores demonstrated that there was a significant difference between the children with and without DCD (F(3,25) = 9.44, p < .001; Wilks' lambda = 0.47). Follow-up univariate tests showed a Group x Gender interaction and simple main effects of this interaction indicated that the PADL-Q did not discriminate between the DCD and non-DCD boys. The ability of the PADL-Q to identify DCD was explored in the concurrent validity against the MAND when using a diagnostic cut-off point. The PADL-Q demonstrated 100% specificity and positive predictive values but only 19% sensitivity and 62% negative predictive values. There was a moderately strong relationship (r = .71), between the PADL-Q total score, considered a measure of Criterion B, and the MAND, a measure of Criterion A (DSMIV- TR, 2000). A two factor (Group x Gender) ANCOVA, controlled for age, of the TADL items revealed a statistically significant effect for DCD only (F(1,19) = 34.65, p < .001). There was a moderate correlation (r = -.64) between the PADL-Q total score and the TADL tasks, indicating that parent-reports are supported by their child?s performance. The PADL-Q appears to have potential as part of the DCD diagnostic process; however, further refinement on a larger sample is necessary before it can be used as an easily-administered guide to ADL performance levels in children.
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Ahl, Gullan. "Reliabilitets- och validitetstestning av ADL-instrument RAINBOW - ett teamdokument." Thesis, Högskolan i Örebro, 1998. http://urn.kb.se/resolve?urn=urn:nbn:se:hj:diva-54256.
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Ett nytt instrument utvecklades från Katz´ ADL-index, vilket visat sig vara ett allt för grovt instrument, för att kartlägga patientens aktivitetsförmåga och självständighetsutveckling. Bedömningsinstrumentet innehåller patientdata samt kategori-index och kom att kallas RAINBOW på grund av att instrumentet är i fyrfärgstryck. En kontroll av det nykonstruerade team-instrumentet utfördes i syfte att mäta dess tillförlitlighet. Mellanbedömar reliabilitet mellan oberoende bedömare har prövats. Validiteten har analyserats på 4 patienter ur materialet och jämförts med Katz´ ADl-index. Studien, som bestod av parvisa oberoende bedömningar, utfördes av sjuksköterskor, sjukgymnaster och arbetsterapeuter. 40 patienter deltog i studien. Delaktivitetsbedömningarna uppgick till 950 och innehöll 36 avvikelser. Resultaten visade på 96 % samstämmighet i bedömningarna. Den kvalitativa analysen visade, i jämförelse med Katz´ ADL-index, att RAINBOW kategori-index gav utförligare information om patientens självständighetsnivå samt hjälpbehov. I denna studie bedömdes endast strokepatienter, men då begreppen som ingår i instrumentet kan anses allmängiltiga, torde det även kunna användas på andra diagnosgrupper. En gemensam rehabiliteringsterminologi gav teamarbetet en ökad kvalitet gällande bedömning, planering samt utvärdering av den enskilde patientens aktivitetsförmåga.Uppsatsarbete omfattande 10 poäng, C-nivå, inom ramen för arbetsterapeutprogrammet 120 p., Högskolan i Örebro, Institutionen för vårdvetenskap och omsorg. Författarens namn i uppsatsen är Gull-Britt Johansson.
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Waehrens, Eva Ejlersen. "Measuring quality of occupational performance based on self-report and observation development and validation of instruments to evaluate ADL task performance /." Doctoral thesis, Umeå : Umeå university, 2010. http://urn.kb.se/resolve?urn=urn:nbn:se:umu:diva-33848.
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Lura, Derek J. "Modeling upper body kinematics while using a transradial prosthesis." [Tampa, Fla] : University of South Florida, 2008. http://purl.fcla.edu/usf/dc/et/SFE0002751.
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Dyberg, Malin, and Ahlbäck Elvira Troillet. "P.E.G.A.S : Powered Exoskeleton Grip Amplifying System." Thesis, KTH, Mekatronik, 2021. http://urn.kb.se/resolve?urn=urn:nbn:se:kth:diva-295802.
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In this bachelor’s thesis, the development and construction of a soft exoskeleton for a human hand is described.The purpose of the project includes evaluating what type of exoskeleton that is most suitable for aiding the user inactivities of daily living and how this exoskeleton can be constructed in order to increase grip strength in the human hand. In addition, the prototype should be portable and not inflict any harm on the user. The necessary theoretical research is thoroughly conducted followed by the construction of the final prototype. The purpose of the project is achieved, resulting in a flexible, portable and safe exoskeleton which with satisfaction can aid the user in its activities of daily living. However, this prototype is limited to exclusively include the thumb and index finger, and in further work the prototype can be developed to include all five fingers of the human hand.I detta kandidatexamensarbete behandlas utvecklingen och konstruktionen av ett mjukt exoskelett för den mänskliga handen. Syftet med projektet är att undersöka vilken typ av exoskelett som passar bäst för att hjälpa användaren med aktiviteter i det dagliga livet, samt hur detta exoskelett kan konstrueras för att förstärka greppet i handen. Prototypen ska även vara bärbar och inte skada användaren. Den nödvändiga teorin presenteras, följt av konstruktionen av den slutgiltiga prototypen. Syftet med projektet uppfylls och resulterar i ett flexibelt, portabelt och säkert exoskelett som kan hjälpa användaren med aktiviteter i det dagligalivet. Dock är denna prototyp begränsad till att endast inkludera styrning av tummen och pekfingret, och prototypenkan således i framtida arbeten utvecklas till att inkludera samtliga fem fingrar på den mänskliga handen.
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Alizadeh, khoei Mahtab. "Assessing factors in utilisation of health services and community aged care services by the Iranian elderly living in the Sydney metropolitan area." Thesis, The University of Sydney, 2008. http://hdl.handle.net/2123/3986.
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Abstract As one of the most culturally diverse countries in the world, Australia has a high proportion of minority communities. However, its ageing population, particularly within these ethnic minorities, faces a range of barriers or difficulties in gaining access to and using health and aged care services. This study aims to identify the acculturation factors that affect the health status of Iranian-born elderly immigrants to Australia and their utilisation of health and community aged care services. The results of this study will be of value to Iranian elders, their families, and Australian aged health care service providers. The findings could also contribute towards enriched multicultural policy and improved social fairness, access to services, and equity for the aged from different ethnic backgrounds. 302 Iranian migrants aged 65 years who had lived in the Sydney Metropolitan area for at least six months were surveyed via a written questionnaire, face-to-face interviews, and telephone interviews. The results were analysed using SPSS and then compared to the findings from a 1999 survey of NSW elderly. The results indicate that Iranian migrants suffer higher levels of psychological distress and are more limited in their physical functioning than the general population of older Australians. They are in greater need of assistance with activities of daily living, have a lower sense of wellbeing, and are far less likely to utilise aged care services. Iranian migrant who do not speak English at home experience these disadvantages to an even greater extent English language proficiency was the only acculturation factor found to affect whether Iranian elderly utilised health and community aged care services, while ability to engage in activities of daily living (ADL) was the only health variable associated with their utilisation of community supportive aged care services. This variable did not predict the use of community aged care services in the broader sample of NSW respondents. Since limited proficiency in English placed elderly Iranian migrants at greater health risk and impeded their access to necessary assistance, the findings suggest that they would clearly benefit from English classes and from access to health and community care services and information regarding these services in the Farsi language.
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Alizadeh, khoei Mahtab. "Assessing factors in utilisation of health services and community aged care services by the Iranian elderly living in the Sydney metropolitan area." University of Sydney, 2008. http://hdl.handle.net/2123/3986.
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Doctor of philosophy (PhD)Abstract As one of the most culturally diverse countries in the world, Australia has a high proportion of minority communities. However, its ageing population, particularly within these ethnic minorities, faces a range of barriers or difficulties in gaining access to and using health and aged care services. This study aims to identify the acculturation factors that affect the health status of Iranian-born elderly immigrants to Australia and their utilisation of health and community aged care services. The results of this study will be of value to Iranian elders, their families, and Australian aged health care service providers. The findings could also contribute towards enriched multicultural policy and improved social fairness, access to services, and equity for the aged from different ethnic backgrounds. 302 Iranian migrants aged 65 years who had lived in the Sydney Metropolitan area for at least six months were surveyed via a written questionnaire, face-to-face interviews, and telephone interviews. The results were analysed using SPSS and then compared to the findings from a 1999 survey of NSW elderly. The results indicate that Iranian migrants suffer higher levels of psychological distress and are more limited in their physical functioning than the general population of older Australians. They are in greater need of assistance with activities of daily living, have a lower sense of wellbeing, and are far less likely to utilise aged care services. Iranian migrant who do not speak English at home experience these disadvantages to an even greater extent English language proficiency was the only acculturation factor found to affect whether Iranian elderly utilised health and community aged care services, while ability to engage in activities of daily living (ADL) was the only health variable associated with their utilisation of community supportive aged care services. This variable did not predict the use of community aged care services in the broader sample of NSW respondents. Since limited proficiency in English placed elderly Iranian migrants at greater health risk and impeded their access to necessary assistance, the findings suggest that they would clearly benefit from English classes and from access to health and community care services and information regarding these services in the Farsi language.
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Muñoz, Neira Carlos Eduardo. "Adaptación del ADLQ –Activities of Daily Living Questionnaire- (Cuestionario de Actividades de la Vida Diaria) en pacientes con demencia." Tesis, Universidad de Chile, 2010. http://repositorio.uchile.cl/handle/2250/106298.
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Snyder, Carrie L. "The System of Least Prompts to Promote Independence in Activities of Daily Living for Older Adults." Youngstown State University / OhioLINK, 2011. http://rave.ohiolink.edu/etdc/view?acc_num=ysu1310229479.
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ODA, KOJI, KOJIRO KUROIWA, TAKESHI AMEMIYA, MASAHIKO ANDO, and SHINJI FUKATA. "POSTOPERATIVE FUNCTION FOLLOWING RADICAL SURGERY IN GASTRIC AND COLORECTAL CANCER PATIENTS OVER 80 YEARS OF AGE : AN OBJECTION TO “AGEISM”." Nagoya University School of Medicine, 2012. http://hdl.handle.net/2237/16735.
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Imai, Hissei. "Factor structures of a Japanese version of the Geriatric Depression Scale and its correlation with the quality of life and functional ability." Kyoto University, 2015. http://hdl.handle.net/2433/199167.
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Widar, Marita. "Living with Long-Term Pain after a Stroke." Doctoral thesis, Linköping : Univ, 2003. http://www.bibl.liu.se/liupubl/disp/disp2003/med827s.pdf.
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Press, Priscila Nigri [UNIFESP]. "Activities of daily living scale (ADLS) - tradução, adaptação cultural da escala de vida diária, em pacientes portadores d afecções do joelho." Universidade Federal de São Paulo (UNIFESP), 2007. http://repositorio.unifesp.br/handle/11600/8871.
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Publico-10948.pdf: 1455010 bytes, checksum: a42a03443fbbdc82cc67795274128d5c (MD5)Objetivo: realizar a tradução, adaptação cultural e validação do "Knee Outcome Survey-Activities of Daily Living Scale" (ADLS) para a língua portuguesa, bem como verificar suas propriedades de medida, reprodutibilidade e validade, para que 0 mesmo possa ser usado como um instrumento específico para avaliação de sintomas em pacientes brasileiros portadores de afecy5es no joelho durante as atividades de vida diária. Métodos: Para este processo de validação seguimos as normas propostas por Guillemin et al (1993). Foram selecionados por conveniência, 53 pacientes que apresentavam queixas relacionadas ao joelho. Na primeira entrevista 0 questionário foi aplicado em conjunto ao Lysholm, SF-36 e EAV (entrevistador 1). Ap6s aproximadamente 30 minutos da primeira entrevista, os mesmos pacientes responderam apenas ao ADLS (entrevistador 2). Ap6s um intervalo entre sete e 10 dias, foi realizada a terceira entrevista constituída de nova aplicação do ADLS (entrevistador 2). Resultados: A amostra consistiu de 53 entrevistados, sendo a media de idade de 33.05 anos e patologia mais freqüente a lesão Iigamentar (56,6%). 0 índice de Sperman obteve m valor de 0,98 (a=O ,05, p<0,01) na reprodutibilidade inter-entrevistador e de 0,98 (a=0,05, p<0,01) na reprodutibilidade intra-entrevistador. Conclusão: O questionário ADLS em português adaptada à cultrura brasileira é de fácil adminstração e aplicação além de ser um instrumento útil para avaliação de atividades de vida diária de pacientes brasileiros com afecções no joelho. As propriedades de medida, reprodutibilidade e validade do questionário ADLS foram confirmadas por meio da tradução e validação da versão em português.
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Tabata, Ami. "Changes in upper extremity function, ADL, and HRQoL in colorectal cancer patients after the first chemotherapy cycle with oxaliplatin: a prospective single-center observational study." Kyoto University, 2018. http://hdl.handle.net/2433/233845.
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Hagsten, Birgit. "Arbetsterapeutisk träning efter höftfraktur : aktivitetsförmåga och hälsorelaterad livskvalitet /." Stockholm, 2006. http://diss.kib.ki.se/2006/91-7140-747-2/.
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Sommerfeld, Disa. "Body function and activity after acute stroke : physiotherapy perspectives /." Stockholm, 2004. http://diss.kib.ki.se/2004/91-7349-828-9/.
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Gottberg, Kristina. "Studies of people living with multiple sclerosis in Stockholm county : evaluation of methods for data collection and aspects of functining and use of health care services /." Stockholm, 2006. http://diss.kib.ki.se/2006/91-7140-784-7/.
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Liedberg, Gunilla. "Women with fibromyalgia : Employment and daily life." Doctoral thesis, Linköping, 2004. http://urn.kb.se/resolve?urn=urn:nbn:se:liu:diva-5184.
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Medeiros, Maria Estela de. "Tradu??o, adapta??o cultural e an?lise das propriedades psicom?tricas do activities of daily living questionnaire - ADLQ - para avalia??o funcional de pacientes com a doen?a de alzheimer." Universidade Federal do Rio Grande do Norte, 2009. http://repositorio.ufrn.br:8080/jspui/handle/123456789/13254.
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Previous issue date: 2009-03-30O Activities daily living questionnaire - ADLQ foi elaborado para avaliar atividades b?sicas e instrumentais em pacientes com a doen?a de Alzheimer. O objetivo principal deste estudo consistiu em realizar a tradu??o do ADLQ para a l?ngua portuguesa, adapta??o transcultural e an?lise das suas propriedades psicom?tricas. A amostra foi composta por 60 pacientes e os respectivos 60 cuidadores. O estudo iniciou-se com a tradu??o do instrumento pela t?cnica de retrotradu??o associada ao m?todo bil?ng?e. A vers?o traduzida foi respondida pelo cuidador e o Mini Exame do Estado Mental (MEEM) aplicado ao paciente. A an?lise psicom?trica foi realizada atrav?s da validade das medidas do instrumento. Os resultados verificaram uma correla??o inversamente significativa (r=-0,793;p<0,05) entre os instrumentos avaliados, com uma explica??o da vari?ncia total de 62%. A coer?ncia interna do instrumento foi realizada atrav?s da correla??o com os resultados do MEEM sugerindo uma vers?o condensada do ADLQ. Avaliando-se atrav?s do teste t para amostras correlacionadas, as m?dias do ADLQ-vers?o traduzida e vers?o condensada n?o apresentaram diferen?as significativas, demonstrado assim que a simplifica??o do instrumento n?o alterou os valores do n?vel de depend?ncia funcional observados. A an?lise fatorial realizada atrav?s da rota??o Varimax indicou seis dimens?es. Atividades como; comer, vestir-se, banho, necessidades fisiol?gicas, tomar comprimidos, participa??o em grupos, administrar finan?as, manusear dinheiro, locomover pela vizinhan?a, usar telefone, compreens?o, dentre outras, s?o os mais importantes preditores da capacidade funcional, no grupo estudado. Atividades com desempenho pouco comum a ambos os sexos, e no desempenho de pap?is sociais enquanto g?nero na sociedade brasileira (afazeres dom?sticos, consertos e manuten??o em casa), na amostra estudada, n?o demonstraram ter import?ncia na determina??o da capacidade funcional com o paciente com a Doen?a de Alzheimer. O presente estudo disponibiliza uma nova ferramenta de avalia??o funcional, visando contribuir para a mensura??o mais cuidadosa do estado funcional do paciente por todos os profissionais da ?rea da sa?de
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Kottorp, Anders. "Occupation-based evaluation and intervention : validity of the assessment of motor and process skills when used with persons with mental retardation." Doctoral thesis, Umeå universitet, Arbetsterapi, 2003. http://urn.kb.se/resolve?urn=urn:nbn:se:umu:diva-94111.
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The ability to perform everyday life occupations is a critical component in both evaluation and intervention for persons with mental retardation (MR). While the ability to perform personal and instrumental activities of daily living (ADL) has always been important for occupational therapy (OT) practice, there is an absence in OT literature and research with a focus on ADL and persons with MR. The overall aim of this thesis was to evaluate the validity of the Assessment of Motor and Process Skills (AMPS) for evaluation and intervention of ADL ability for persons with MR. In order to evaluate the evidence of validity of the AMPS ability measures based on relation to level of MR, two groups of participants with MR were evaluated with the AMPS (,#=22; #= 39). The results indicated expected moderate relationships between ADL motor and ADL process ability measures and level of MR, despite different methods used for evaluating level of MR. The results also indicated that the results of the AMPS evaluation could be used to directly describe and measure the consequences in performance of ADL tasks for persons with different levels of MR. The evidence of validity of the AMPS was further examined in a study including participants with different types of developmental disabilities (e.g., MR, cerebral palsy, spina bifida) (#=1724). An application of many-faceted Rasch analysis was used to examine goodness-of-fit of the responses for the tasks, skill items, and participants included in the study. All tasks and all items except one demonstrated acceptable goodness-of-fit to the model on the ADL motor and ADL process scales. An expected proportion of participants demonstrated acceptable goodness-of-fit on the ADL motor scale. On the ADL process scale, a slightly lower proportion of participants than expected demonstrated acceptable goodness-of-fit. The results indicated further that persons with more severe levels of MR and persons with more limited ADL process abilities demonstrated different response patterns across tasks and possibly items. The evidence of validity of the internal structure of the AMPS scales was also evaluated between persons with mild and moderate MR (#=178; #=170). Group specific ADL motor and ADL process skill item hierarchies were generated using many-faceted Rasch analyses and compared. The hierarchies of ADL motor and ADL process skill items remained stable across groups, indicating evidence of validity of the AMPS scales when used to evaluate persons with MR. The results also indicated that although participants with moderate MR demonstrated overall lower mean ADL motor and ADL process ability, they did perform some specific ADL motor and ADL process skills at a similar level as persons with mild MR. Finally, the utility of the AMPS ability measures for detecting change were examined in an intervention study including three female participants with moderate MR. The study was based on a single case design and evaluated the effectiveness of a structured occupational therapy intervention program. Improvements were found for the participants in relation to the implementation of the program, but the pattern of changes were different between the participants and across the dependent variables. ADL process ability was the only variable that improved across all participants. The results supported the ADL process abilities as sensitive measures for detecting changes in ADL ability of persons with MR. In conclusion, the results of these studies contribute to the evidence of validity of the AMPS ability measures and scales, specifically in relation to the evaluation of persons with MR. The finding that an OT program resulted in improved ADL process ability also suggest that the results of the AMPS can be used to plan as well as evaluate outcomes of OT practice. Further research is also suggested in order to improve validity evidence and utility of the AMPS when used with persons with MR.Diss. (sammanfattning) Umeå : Umeå universitet, 2003
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Zhang, Shu-Ying. "Measurement and correlates of caregiver self-efficacy amongst family caregivers of persons with dementia living in Shanghai, China." Thesis, Queensland University of Technology, 2010. https://eprints.qut.edu.au/44134/1/Shuying_Zhang_Thesis.pdf.
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Background: Caring for family members with dementia can be a long-term, burdensome task resulting in physical and emotional distress and impairment. Research has demonstrated significantly lower levels of selfefficacy among family caregivers of people with dementia (CGs) than caregivers of relatives with non-dementia diseases. Intervention studies have also suggested that the mental and physical health of dementia CGs could be improved through the enhancement of their self-efficacy. However, studies are limited in terms of the influences of caregiver self-efficacy on caregiver behaviour, subjective burden and health-related quality of life. Of particular note is that there are no studies on the applicability of caregiver self-efficacy in the social context of China. Objective: The purpose of this thesis was to undertake theoretical exploration using Bandura’s (1997) self-efficacy theory to 1) revise the Revised Caregiving Self-Efficacy Scale (C-RCSES) (Steffen, McKibbin, Zeiss, Gallagher-Thompson, & Bandura, 2002), and 2) explore determinants of caregiver self-efficacy and the role of caregiver self-efficacy and other conceptual constructs (including CGs’ socio-demographic characteristics, CRs’ impairment and CGs’ social support) in explaining and predicting caregiver behaviour, subjective burden and health-related quality of life among CGs in China. Methodology: Two studies were undertaken: a qualitative elicitation study with 10 CGs; and a cross-sectional survey with 196 CGs. In the first study, semi-structured interviews were conducted to explore caregiver behaviours and corresponding challenges for their performance. The findings of the study assisted in the development of the initial items and domains of the Chinese version of the Revised Caregiving Self-Efficacy Scale (C-RCSES). Following changes to items in the scale, the second study, a cross-sectional survey with 196 CGs was conducted to evaluate the psychometric properties of C-RCSES and to test a hypothesised self-efficacy model of family caregiving adapted from Bandura’s theory (1997). Results: 35 items were generated from the qualitative data. The content validity of the C-RCSES was assessed and ensured in Study One before being used for the cross-sectional survey. Eight items were removed and five subscales (caregiver self-efficacy for gathering information about treatment, symptoms and health care; obtaining support; responding to problematic behaviours; management of household, personal and medical care; and controlling upsetting thoughts about caregiving) were identified after principal component factor analysis on the cross-sectional survey data. The reliability of the scale is acceptable: the Cronbach’s alpha coefficients for the whole scale and for each subscale were all over .80; and the fourweek test-retest reliabilities for the whole scale and for each subscale ranged from .64 to .85. The concurrent, convergent and divergent validity were also acceptable. CGs reported moderate levels of caregiver self-efficacy. Furthermore, the level of self-efficacy for management of household, personal and medical care was relatively high in comparison to those of the other four domains of caregiver self-efficacy. Caregiver self-efficacy was also significantly influenced by CGs’ socio-demographic characteristics and the caregiving external factors (CR impairment and social support that CGs obtained). The level of caregiver behaviour that CGs reported was higher than that reported in other Chinese research. CGs’ socio-demographics significantly influenced caregiver behaviour, whereas caregiver self-efficacy did not influence caregiver behaviour. Regarding the two external factors, CGs who cared for highly impaired relatives reported high levels of caregiver behaviour, but social support did not influence caregiver behaviour. Regarding caregiver subjective burden and health-related quality of life, CGs reported moderate levels of subjective burden, and their level of healthrelated quality of life was significantly lower than that of the general population in China. The findings also indicated that CGs’ subjective burden and health-related quality of life were influenced by all major factors in the hypothesised model, including CGs’ socio-demographics, CRs’ impairment, social support that CGs obtained, caregiver self-efficacy and caregiver behaviour. Of these factors, caregiver self-efficacy and social support significantly improved their subjective burden and health-related quality of life; whereas caregiver behaviour and CRs’ impairment were detrimental to CGs, such as increasing subjective burden and worsening health-related quality of life. Conclusion: While requiring further exploration, the qualitative study was the first qualitative research conducted in China to provide an in-depth understanding of CGs’ caregiving experience, including their major caregiver behaviours and the corresponding challenges. Meanwhile, although the C-RCSES needs further psychometric testing, it is a useful tool for assessing caregiver self-efficacy in Chinese populations. Results of the qualitative and quantitative study provide useful information for future studies regarding the explanatory power of caregiver self-efficacy to caregiver behaviour, subjective burden and health-related quality of life. Additionally, integrated with Bandura’s theory, the findings from the quantitative study also suggested a further study exploring the role of outcome expectations in caregiver behaviour, subjective burden and healthrelated quality of life.
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Thyberg, Ingrid. "Disease and disability in early rheumatoid arthritis : A 3-year follow-up of women and men in the Swedish TIRA project." Doctoral thesis, Linköping : Linköping ; Örebro : Dept. of Molecular and Clinical Medicine, Univ. ; Swedish Institute for Disability Research, 2005. http://www.bibl.liu.se/liupubl/disp/disp2005/sidr16s.pdf.
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Karloh, Manuela. "Resposta fisiológica induzida pelo teste de AVD-Glittre em pacientes com DPOC." Universidade do Estado de Santa Catarina, 2011. http://tede.udesc.br/handle/handle/243.
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Chronic obstructive pulmonary disease (COPD) is characterized by systemic manifestations that result in significant limitation of functional capacity and hence the individual's ability to perform activities of daily living (ADLs). Objective: to investigate the physiological response induced by the Glittre-ADL test (TGlittre) and to compare with the physiological response induced by the six-minute walk (6MWT) in patients with Chronic Obstructive Pulmonary Disease. Methods: 15 patients with COPD aged 66 ± 8 years and with forced expiratory volume in one second of 40.0 ± 18.3% predicted were evaluated. Patients underwent spirometry before and after bronchodilator, anthropometric and body composition, London Chest Activity of Daily Living scale (LCADL) and Medical Research Council (MRC). On two different days, separated by one week, two exercise protocols were performed in random order: 6MWT and TGlittre. Patients had also their physical activity in daily life (AFVD) monitored on two consecutive days. The Shapiro-Wilk test of normality was used to assess data distribution. To compare the physiological response between 6MWT and TGlittre was used the paired t test or Wilcoxon. The coefficient of Pearson or Spearman was used to verify the association between variables. The level of significance was 5%. Results: The time spent in TGlittre correlated with the distance walked on 6MWT (r= -0.82, p <0.01). Patients spent 52.9 ± 13.9% of the monitored time in sitting position, 19.6 ± 5.7% standing, 14.6 ± 12.4% lying and 12.9 ± 4.7% of the time walking The time in sitting position was correlated with both the performance in TGlittre and in 6MWT (r= 0.56 and r = -0.60, respectively, p <0.05). There were no differences between the physiological parameters measured at baseline of TGlittre and 6MWT (p>0.05). Patients achieved a VO2 of 1258.2 ± 317.8 and 1176.5 ± 364.8 ml/min at the end of TGlittre and 6MWT, respectively (p> 0.05). The VO2 showed a plateau from the third lap in TGlittre and from the third minute in 6MWT. The VO2 measured at the end of TGlittre correlated with the VO2 measured at the end of 6MWT (r= 0.85, p <0.01). All physiological variables measured at the end of TGlittre were similar and correlated with those measured at the end of 6MWT. Conclusions: TGlittre is able to induce a metabolic, respiratory and cardiovascular response similar to those induced by TC6min.
A doença pulmonar obstrutiva crônica (DPOC) caracteriza-se por manifestações sistêmicas significativas que resultam na limitação da capacidade funcional e consequentemente, na capacidade do indivíduo de realizar as suas atividades de vida diária (AVD). Objetivo: investigar a resposta fisiológica induzida pelo teste de AVD-Glittre (TGlittre) bem como comparar à induzida pelo teste de caminhada de seis minutos (TC6min) em pacientes com DPOC. Método: participaram 15 pacientes com DPOC com idade de 66 ± 8 anos e volume expiratório forçado no primeiro segundo de 40,0 ± 18,3% do previsto. Os pacientes foram submetidos à espirometria pré e pós broncodilatador, avaliação antropométrica e de composição corporal, escala London Chest Activity of Daily Living (LCADL) e Medical Research Council (MRC). Em dois dias diferentes, separados por uma semana, dois protocolos de exercício foram realizados em ordem randomizada: TC6min e TGlittre. Os pacientes realizaram ainda a monitoração das atividades físicas na vida diária (AFVD) em dois dias consecutivos. O teste de normalidade Shapiro-Wilk foi utilizado para avaliar a distribuição dos dados. Para comparar a resposta fisiológica entre o TGlittre e o TC6min foi utilizado o teste T pareado ou Wilcoxon. O coeficiente de correlação de Pearson ou Spearman foi utilizado para verificar a associação entre as variáveis. O nível de significância adotado foi de 5%. Resultados: o tempo despendido no TGlittre correlacionou-se com a distância percorrida no TC6min (r= -0,82; p<0,01). Os pacientes permaneceram 52,9 ± 13,9% do tempo monitorado na posição sentada, 19,6 ± 5,7% em pé, 14,6 ± 12,4% deitados e 12,9 ± 4,7% do tempo caminhando. O tempo sentado correlacionou-se tanto com o desempenho no TGlittre como no TC6min (r= 0,56 e r= -0,60, respectivamente; p<0,05). Não foram observadas diferenças entre os parâmetros fisiológicos basais mensurados no TGlittre e no TC6min (p>0,05). Os pacientes atingiram um VO2 de 1258,2 ± 317,8 e 1176,5 ± 364,8 ml/min ao final do TGlittre e do TC6min, respectivamente (p>0,05). O VO2 estabilizou-se a partir da terceira volta no TGlittre e do terceiro minuto no TC6min. O VO2 final do TGlittre correlacionou-se com o VO2 final do TC6min (r= 0,85; p<0,01). Todas as variáveis fisiológicas mensuradas no final do TGlittre foram similares e apresentaram correlação com as mensuradas no final do TC6min. Conclusões: o TGlittre é capaz de induzir uma resposta metabólica, ventilatória e cardiovascular similares às induzidas pelo TC6min.
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Cheng, Pei Lai. "Biomechanical study of upper limb activities of daily living." Thesis, University of Strathclyde, 1996. http://oleg.lib.strath.ac.uk:80/R/?func=dbin-jump-full&object_id=20389.
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The kinematic and kinetic characteristics of arm movement during four activities of daily living: lifting a weight, driving a steering wheel, opening/closing a door and cutting were investigated in this study by using a human movement analysis system comprising a 6 camera Vicon motion analysis system, a 6 component strain-gauged transducer, a specially designed and instrumented steering wheel simulation system, a door and a cutting plate. The most important achievements of this study are: (1) Implementation of the residual analysis technique into a computer program to filter the noisy kinematic data at an autoselected cut-off frequency for each data sequence. (2) The development of a new method of representing the velocity and acceleration of points of interest using the phase plane presentation. It was found that driving is the most complicated activity investigated in this study according to the range of arm movement. From the kinetic results, it was found that the order of difficulty of the four activities can be arranged as cutting, door opening/closing, lifting, and driving according to the magnitude of the maximum resultant total shoulder moment. The difficulty of the lifting activity increased with the weight to be lifted and the height of lifting. It was also found that the major component of the shoulder moment is the flexion/extension moment for most of the activities except driving, therefore it is concluded that having sufficient shoulder flexion/extension strength is most important for conducting most upper limb activities of daily living. In addition, the results of this study provide information for improving the understanding of the biomechanics of the upper limb activities and for clinical reference.
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Tayyub, Jawad. "Hierarchical modelling and recognition of activities of daily living." Thesis, University of Leeds, 2018. http://etheses.whiterose.ac.uk/22186/.
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Activity recognition is becoming an increasingly important task in artificial intelligence. Successful activity recognition systems must be able to model and recognise activities ranging from simple short activities spanning a few seconds to complex longer activities spanning minutes or hours. We define activities as a set of qualitatively interesting interactions between people, objects and the environment. Accurate activity recognition is a desirable task in many scenarios such as surveillance, smart environments, robotic vision etc. In the domain of robotic vision specifically, there is now an increasing interest in autonomous robots that are able to operate without human intervention for long periods of time. The goal of this research is to build activity recognition approaches for such systems that are able to model and recognise simple short activities as well as complex longer activities arising from long-term autonomous operation of intelligent systems. The research makes the following key contributions: 1. We present a qualitative and quantitative representation to model simple activities as observed by autonomous systems. 2. We present a hierarchical framework to efficiently model complex activities that comprise of many sub-activities at varying levels of granularity. Simple activities are modelled using a discriminative model where a combined feature space, consisting of qualitative and quantitative spatio-temporal features, is generated in order to encode various aspects of the activity. Qualitative features are computed using qualitative spatio-temporal relations between human subjects and objects in order to abstractly represent the simple activity. Unlike current state-of-the-art approaches, our approach uses significantly fewer assumptions and does not require any knowledge about object types, their affordances, or the constituent activities of an activity. The optimal and most discriminating features are then extracted, using an entropy-based feature selection process, to best represent the training data. A novel approach for building models of complex long-term activities is presented as well. The proposed approach builds a hierarchical activity model from mark-up of activities acquired from multiple annotators in a video corpus. Multiple human annotators identify activities at different levels of conceptual granularity. Our method automatically infers a ‘part-of’ hierarchical activity model from this data using semantic similarity of textual annotations and temporal consistency. We then consolidate hierarchical structures learned from different training videos into a generalised hierarchical model represented as an extended grammar describing the over all activity. We then describe an inference mechanism to interpret new instances of activities. Simple short activity classes are first recognised using our previously learned generalised model. Given a test video, simple activities are detected as a stream of temporally complex low-level actions. We then use the learned extended grammar to infer the higher-level activities as a hierarchy over the low-level action input stream. We make use of three publicly available datasets to validate our two approaches of modelling simple to complex activities. These datasets have been annotated by multiple annotators through crowd-sourcing and in-house annotations. They consist of daily activity videos such as ‘cleaning microwave’, ‘having lunch in a restaurant’, ‘working in an office’ etc. The activities in these datasets have all been marked up at multiple levels of abstraction by multiple annotators, however no information on the ‘part-of’ relationship between activities is provided. The complexity of the videos and their annotations allows us to demonstrate the effectiveness of the proposed methods.
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Balasubramanian, Koushik. "Perception Framework for Activities of Daily Living Manipulation Tasks." Digital WPI, 2016. https://digitalcommons.wpi.edu/etd-theses/450.
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There is an increasing concern in tackling the problems faced by the elderly community and physically in-locked people to lead an independent life experience problems with self- care. The need for developing service robots that can help people with mobility impairments is hence very essential. Developing a control framework for shared human-robot autonomy will allow locked-in individuals to perform the Activities of Daily Living (ADL) in a exible way. The relevant ADL scenarios were identi ed as handling objects, self-feeding, and opening doors for indoor nav- igation assistance. Multiple experiments were conducted, which demonstrates that the robot executes these daily living tasks reliably without requiring adjustment to the environment. The indoor manipulation tasks hold the challenge of dealing with a wide range of unknown objects. This thesis presents a framework developed for grasping without requiring a priori knowledge of the objects being manipulated. A successful manipulation task requires the combination of aspects such as envi- ronment modeling, object detection with pose estimation, grasp planning, motion planning followed by an e?cient grasp execution, which is validated by a 6+2 Degree of Freedom robotic manipulator.
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Breloff, Scott. "Quantifying Segmental Spinal Motion during Activities of Daily Living." Thesis, University of Oregon, 2013. http://hdl.handle.net/1794/13233.
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Back pain is a very common musculoskeletal impairment in most Americans. Average annual occurrence of back pain is reported around 30% of the population and is the most common cause of activity limitation in people younger than 45 years old. Eighty percent of the back pain presents in the lumbar spine. Although this ailment is very prevalent in the American population, there is a lack of empirical evidence supporting the common clinical diagnosis and intervention back pain strategies. The frequency of back pain and the lack of treatment methods were the motivation for this investigation. It is important to better understand spine dynamics during ambulatory tasks of daily activities to identify possible biomechanical mechanisms underlying back pain.
Current biomechanical quantification methods for spine dynamics are either too invasive or not detailed enough to fully comprehend detailed spinal movement. Therefore, a non-invasive but detailed procedure to calculate spine dynamics was developed and tested. In this study, multi-segmented spine dynamics (kinematics and kinetics) were calculated during four activities of daily living (level walking (W), obstacle crossing (OC), stair ascent (SA) and stair descent (SD)).
Our findings suggested an in-vivo multi-segmented spine surface marker set is able to detect different and repeatable motion patterns during walking among various spinal segments. The sacrum to lower lumbar (SLL) joint had the largest range of motion (ROM) when compared to the other more superior joints (lower lumbar to upper lumbar and upper lumbar to lower thoracic). Furthermore, SA task demonstrated more flexion ROM than both W and SD tasks. In addition to task influence, joints at different spine levels also demonstrated different ROMs, where SLL had a greater ROM than upper lumbar to lower thoracic (ULLT) in the transverse plane. Age was found to not significantly affect the segmental spinal ROM or peak angles. The vertical segmental joint reaction forces were different between tasks, where SD yielded larger vertical reaction forces than W.
Overall, findings from this dissertation work were able to show that a multi-segment spine marker system could be an effective tool in determining different spinal dynamics during various activities of daily living.
This dissertation includes unpublished co-authored material.
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Jean-Baptiste, Émilie Michèle Déborah. "Statistical task modeling of activities of daily living for rehabilitation." Thesis, University of Birmingham, 2016. http://etheses.bham.ac.uk//id/eprint/6865/.
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Stroke survivors suffering from cognitive deficits experience difficulty completing their daily self-care activities. The latter are referred to as activities of daily living (ADL). The resulting loss of independence makes them rely on caregivers to help them go through their daily routine. However, such reliance on caregivers may conflict with their need for privacy and willingness to keep a control over their life. A possible solution to tackle this issue is the development of an assistive or rehabilitation system.
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Martyr, Anthony. "Cognition and activities of daily living in ageing and dementia." Thesis, Bangor University, 2013. https://research.bangor.ac.uk/portal/en/theses/cognition-and-activities-of-daily-living-in-ageing-and-dementia(2289fdb1-2d4b-4f3b-acdc-45168dd6785b).html.
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Caselli, Paolo <1976>. "Monitoring of daily living activities in a perspective of telerehabilitation." Doctoral thesis, Alma Mater Studiorum - Università di Bologna, 2007. http://amsdottorato.unibo.it/386/1/Paolo_Caselli_tesi_di_dottorato_in_Bioingegneria_XIX_ciclo.pdf.
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Caselli, Paolo <1976>. "Monitoring of daily living activities in a perspective of telerehabilitation." Doctoral thesis, Alma Mater Studiorum - Università di Bologna, 2007. http://amsdottorato.unibo.it/386/.
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Ferguson, Rachel. "The impact of activities of daily living on seating interface pressures." Thesis, Ulster University, 2014. http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.604657.
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Even though the prevention of pressure ulcers is a priority area for healthcare agencies globally (Dunn & Stander, 2008; Graves et aI., 2005; Russo & Exilhauser, 2006), these challenging wounds continue to trouble individuals with impaired sensation, prolonged im111obility, or advanced age. The purpose of this thesis W<1S to investigate the effectiveness of integrating pressure redistributing activities into everyday life for reducing interface pressures for individuals at risk of ulceration. The first study reviewed the literature and found that the majority of individuals at risk of developing pressure ulcers do not adhere with the pressure relieving frequency currently recommended. It also highlighted that there is no known magnitude of movement currently recommended to relieve interface pressure. In order to measure magnitude of seated movement, the second study explored the effect of anatomical positioning of the Activpal3 accelerometer. The 1110St stable measurement came t1'0111 the accelerometer placed at the sternum. The third study investigated the etTect of duration and magnitilde of forward reach on body seat interface pressures of able bodied subjects sitting in a wheelchair. Reaching forward significantly redistributed pressure at the seating interface, as demonstrated by the change in dispersion index and contact area compared to upright sitting. The f0U11h study investigated the time that older adults spend in sitting while on a rehabilitation ward and how frequently they engage or are assisted to engage in repositioning movements when sitting. The older adults spent the majority of their time in a seated position and did not perf 01111 seated movements at <1 magnitude large enough to redistribute seating interface pressures. The final study investigated the pressure relieving behaviours of SCI individuals during everyday computer use, and the application of an ergonomically adapted computer-based activity to reduce seating interface pressures. The majority of movements perfon11ed by participants in this study had minimal etfect on interface pressures, yet many of the participants believed they performed frequent pressure reliefs. This thesis evidences the need for individual assessments and pressure relieving strategies, and introduces a novel concept of integrating pressure relief within everyday activities.
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Pathirage, Don Indika Upashantha. "A Brain Robot Interface for Autonomous Activities of Daily Living Tasks." Scholar Commons, 2014. https://scholarcommons.usf.edu/etd/5292.
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There have been substantial improvements in the area of rehabilitation robotics in the recent past. However, these advances are inaccessible to a large number of people with disabilities who are in most need of such assistance. This group includes people who are in a severely paralyzed state, that they are completely "locked-in" in their own bodies. Such persons usually retain full cognitive abilities, but have no voluntary muscle control.
For these persons, a Brain Computer Interface (BCI) is often the only way to communicate with the outside world and/or control an assistive device. One major drawback to BCI devices is their low information transfer rate, which can take as long as 30 seconds to select a single command. This can result in mental fatigue to the user, specially if it necessary to make multiple selections over the BCI to complete a single task. Therefore, P300 based BCI control is not efficient for controlling a assistive robotic device such as a robotic arm.
To address this shortcoming, a novel vision based Brain Robot Interface (BRI) is presented in this thesis. This visual user interface allows for selecting an object from an unstructured environment and then performing an action on the selected object using a robotic arm mounted to a power wheelchair. As issuing commands through BCI is slow, this system was designed to allow a user to perform a complete task via a BCI using an autonomous robotic system while issuing as few commands as possible. Furthermore, the new visual interface allows the user to perform the task without losing concentration on the stimuli or the task. In our interface, a scene image is captured by a camera mounted on the wheelchair, from which, a dynamically sized non-uniform stimulus grid is created using edge information. Dynamically sized grids improve object selection efficiency. Oddball paradigm and P300 Event Related Potentials (ERP) are used to select stimuli, where the stimuli being each cell in the grid. Once selected, object segmentation and matching is used to identify the object. Then the user, using BRI, chooses an action to be performed on the object by the wheelchair mounted robotic arm (WMRA). Tests on 8 healthy human subjects validated the functionality of the system. An average accuracy of 85.56% was achieved for stimuli selection over all subjects. With the proposed system, it took the users an average of 5 commands to perform a task on an object. The system will eventually be useful for completely paralyzed or locked-in patients for performing activities of daily living (ADL) tasks.
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Nätterlund, Birgitta. "Living with muscular dystrophy : Illness experience, activities of daily living, coping, quality of life and rehabilitation." Doctoral thesis, Uppsala University, Department of Public Health and Caring Sciences, 2001. http://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-641.
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The overall aim was to study and gain knowledge about what it means to live with muscular dystrophy and to study rehabilitation from the patient's perspective, among adults with muscular dystrophy in three Swedish counties: Örebro, Östergötland and Norrbotten. The thesis comprises two qualitative and three quantitative studies. Thirty interviews about illness experience were subjected to content analysis and 37 interviews about perceived support in rehabilitation were analysed according to phenomenological guidelines. Data were also collected by the Assessment of Problem-focused Coping (APC), the ADL Staircase, the Self-report ADL, the Mental Adjustment to Cancer Scale, the Sickness Impact Profile, the Psychosocial well-being questionnaire and the Quality of Life Profile. The APC was developed for assessment of problem-focused coping and also covers questions concerning the extent to which activities are experienced as problems and satisfaction with activities. The result shows that the experience of illness is largely similar in the three diagnostic groups (proximal MD, Myotonic muscular dystrophy, Myopathia distalis tarda hereditaria). The persons reported many restrictions of everyday activities, most often in mobility and transportation. Over half were dependent on other people in activities of daily living, and the illness was experienced mainly as having negative consequences for everyday life. A lower quality of life may be partly explained by a reduced capacity for activities. Problem-focused coping was used only to a limited extent, and 'Fighting spirit' was the dominant coping strategy. Rehabilitation was experienced as very valuable, particularly the education about the muscle disease, technical aids, grants and physical training. Over a five-year period, disability and quality of life of the study participants deteriorated significantly, and the dependence on other people increased.
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Nätterlund, Birgitta. "Living with muscular dystrophy : illness experience, activities of daily living, coping, quality of life and rehabilitation /." Uppsala : Acta Universitatis Upsaliensis : Univ.-bibl. [distributör], 2001. http://publications.uu.se/theses/91-554-4997-2/.
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