Bücher: „Decisional autonomy“

1

Final choices: Autonomy in health care decisions. Springfield, Ill., U.S.A: Thomas, 1989.

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2

Schermer, Maartje. The different faces of autonomy: Patient autonomy in ethical theory and hospital practice. Dordrecht: Kluwer Academic Publishers, 2002.

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3

Schermer, Maartje. The different faces of autonomy: Patient autonomy in ethical theory and hospital practice. Dordrecht: Kluwer Academic, 2001.

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4

The practice of autonomy: Patients, doctors, and medical decisions. New York: Oxford Unviersity Press, 1998.

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5

Chan, Hui Yun. Advance Directives: Rethinking Regulation, Autonomy & Healthcare Decision-Making. Cham: Springer International Publishing, 2018. http://dx.doi.org/10.1007/978-3-030-00976-2.

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6

Respecting patient autonomy. Urbana: University of Illinois Press, 1999.

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7

Against autonomy: Justifying coercive paternalism. Cambridge: Cambridge University Press, 2012.

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8

Kofi, Awusabo-Asare, Hrsg. Female autonomy, family decision making, and demographic behavior in Africa. Lewiston, N.Y: Edwin Mellen Press, 1999.

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9

Moshe, Sokol, und Rabbi Isaac Elchanan Theological Seminary., Hrsg. Rabbinic authority and personal autonomy. Northvale, N.J: J. Aronson, 1992.

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10

Lamb, David. Therapy abatement, autonomy and futility: Ethical decisions at edge of life. Brookfield, VT: Avebury, Ashgate Pub., 1995.

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11

Massai, Mara. La sfera decisionale autonoma del soggetto: Bioetica, tecnologia, informazione in Karl Mannheim. Bologna: CLUEB, 2005.

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12

Sloan, Mann, und United States Institute of Peace., Hrsg. Kosovo decision time: How and when? Washington, DC: United States Institute of Peace, 2003.

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13

Sandin, Robert T. Autonomy and faith: Religious preference in employment decisions in religiously affiliated higher education. Atlanta, Ga: Published for the Center for Constitutional Studies [by] Omega Publications, 1990.

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14

Taking advance directives seriously: Prospective autonomy and decisions near the end of life. Washington, D.C: Georgetown University Press, 2001.

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15

Heimer, Carol Anne. Pushy parents and dismissive doctors: Legal supports for norms of autonomy, interdependence, and responsibility. Chicago, Ill: American Bar Foundation, 1999.

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16

Healthcare decision-making and the law: Autonomy, capacity and the limits of liberalism. New York: Cambridge University Press, 2010.

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17

Sabatino, Charles P. In your hands, the tools for preserving personal autonomy: A community education package aimed at enhancing decision-making autonomy for adults and older persons : final report. Chicago, Ill: American Bar Association, Commission on Legal Problems of the Elderly, 1988.

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18

Punziano, Gabriella. Welfare europeo o welfare locali?: I processi decisionali nel sociale tra convergenza ed autonomia. Pomigliano d'Arco (NA): Diogene edizioni, 2012.

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19

Pellerone, Monica. Identità in transizione e compiti di sviluppo: Attitudini, interessi e stili decisionali nel percorso di scelta adolescenziale. Acireale: Bonanno, 2011.

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20

Guex, Philippe. L' autonomie des filiales des entreprises multinationales suisses: Une analyse contextuelle. Fribourg, Suisse: Editions universitaires, 1988.

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21

Autonomie und Stellvertretung in der Medizin: Entscheidungsfindung bei nichteinwilligungsfähigen Patienten. Stuttgart: Verlag W. Kohlhammer, 2011.

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22

Cicirelli, Victor G. Family caregiving: Autonomous and paternalistic decision making. Newbury Park: Sage Publications, 1992.

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23

The FALN and Macheteros clemency: Misleading explanations, a reckless decision, a dangerous message : third report. Washington: U.S. G.P.O., 1999.

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24

United States. Congress. House. Committee on Government Reform. The FALN and Macheteros clemency: Misleading explanations, a reckless decision, a dangerous message : third report. Washington: U.S. G.P.O., 1999.

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25

Shuvalova, Li︠u︡dmila. Vremi︠a︡ pobedy, vremi︠a︡ zhestkikh resheniĭ: The Burden of victory, time of tough decisions. Moskva: T︠S︡entr sot︠s︡ialʹno-konservativnoĭ politiki, 2009.

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26

Smart cookies don't crumble: A modern woman's guide to living and loving her own life. New York: Putnam, 1985.

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27

Smart cookies don't crumble: A modern woman's guide to living and loving her life. New York: Pocket Books, 1986.

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28

Hildt, Elisabeth. Autonomie in der biomedizinischen Ethik: Genetische Diagnostik und selbstbestimmte Lebensgestaltung. Frankfurt: Campus, 2006.

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29

Clemency for the FALN: A flawed decision? : hearing before the Committee on Government Reform, House of Representatives, One Hundred Sixth Congress, first session, September 21, 1999. Washington: U.S. G.P.O., 2000.

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30

Jane, Doan, Hrsg. Choosing to learn: Ownership and responsibility in a primary multiage classroom. Portsmouth, NH: Heinemann, 1996.

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31

Lombardi, Pio. Multi criteria optimization of an autonomous virtual power plant: (Multikriterielle Optimierung eines autonomen virtuellen Kraftwerks). Magdeburg: Otto-von-Guericke-Universität Magdeburg, 2011.

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32

Radoilska, Lubomira. Depression, Decisional Capacity, and Personal Autonomy. Herausgegeben von K. W. M. Fulford, Martin Davies, Richard G. T. Gipps, George Graham, John Z. Sadler, Giovanni Stanghellini und Tim Thornton. Oxford University Press, 2013. http://dx.doi.org/10.1093/oxfordhb/9780199579563.013.0067.

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This chapter aims to address two related challenges the phenomenon of depression raises for theories which present autonomy as an agency concept and an independent source of justification. The first challenge is directed at an intuitive conception of intentional agency as implying a robust though not always direct link between evaluation and motivation, for in depression what appears to be choice-worthy does not get chosen. The second challenge targets the feasibility of a reliable distinction between autonomous and non-autonomous choices, for both value-neutral and value-laden accounts of depressive agency seem open to decisive objections. Drawing on Freud's interpretation of melancholia and Korsgaard's notion of practical identity, the chapter develops a conception of paradoxical identification which helps address the two challenges described and supports a revised value-neutral account of depressive agency as being non-autonomous.

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33

Manuel José Cepeda, Espinosa, und Landau David. Part Two Rights, 3 Dignity and Autonomy. Oxford University Press, 2017. http://dx.doi.org/10.1093/law/9780190640361.003.0003.

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This chapter provides excerpts of the Colombian Constitutional Court’s case law on dignity and autonomy. Like some European legal orders, Colombian constitutionalism is centered on the protection of human dignity, understood as the protection of a minimum level of subsistence (see Chapter 6), as well as broad respect for human autonomy in fundamental choices. It covers the jurisprudence of the Court legalizing possession of a personal dose of drugs as well as euthanasia, protecting the decisional autonomy of children in a school setting, protecting the autonomy and dignity of intersex children, and legalizing abortion in certain circumstances. These topics are noteworthy because they demonstrate the Court’s insistence on protecting human autonomy within a historical context that has often sacrificed the individual for the collective.

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34

Sullivan, Mark D. Respecting and Promoting Patient Autonomy in Research, End-of-Life Care, and Chronic Illness Care. Oxford University Press, 2016. http://dx.doi.org/10.1093/med/9780195386585.003.0003.

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Bioethics teaches us to respect patients as persons by respecting their decisional autonomy. We respect patient autonomy by seeking patients’ informed consent, a policy was first developed for clinical research, where it has worked reasonably well. In other areas, most notably end-of-life care, it has not worked as well. Respecting patient autonomy is not adequate respect for them as ill persons. Rather than opposing physician beneficence and patient autonomy, as is customary in bioethics, we should consider the promotion of patient autonomy as a part of physician beneficence. This recasts the conflict between beneficence and autonomy as the conflict between respecting and promoting patient autonomy. This autonomy needs to be understood not just as the ability to make decisions but also as the general ability to do and be things of value (i.e. agency). This autonomy is not just a value that qualifies care, but is a goal of care.

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35

Fairman, Nathan, und Scott A. Irwin. Depression and the Desire to Die Near the End of Life. Herausgegeben von Stuart J. Youngner und Robert M. Arnold. Oxford University Press, 2015. http://dx.doi.org/10.1093/oxfordhb/9780199974412.013.25.

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This chapter examines how depression may affect a patient’s ability to make life-shortening decisions within the setting of care near the end of life, as well as a clinician’s willingness to support the patient’s preferences (that is, respecting his autonomy). It considers how the suspicion of depression can make the physician pause even when the obvious choice would be to support the patient’s decision. It also describes some of the defining features of depression, including hopelessness, suicidal ideation, and desire for hastened death. The chapter first reviews depression and similar clinical conditions in the context of end-of-life care before discussing the construct of capacity and the elements of its assessment. It then considers evidence on the relationship between depression and decisional capacity before concluding with suggestions to help guide decision-making.

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36

Sullivan, Mark D. Finding Health Between Personal and Disease Processes. Oxford University Press, 2016. http://dx.doi.org/10.1093/med/9780195386585.003.0009.

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Patient autonomy on a personal level is ultimately rooted in biological autonomy on a subpersonal level. Patient decisional autonomy concerns the conscious choices patients make concerning treatments and lifestyle, whereas biological autonomy concerns the ability of patients to shape their environment. To understand the roots of health in this biological autonomy, we must bridge the chasm characteristic of modern natural science between personal meaning and impersonal mechanism. We will find that “health” and “action” represent blind spots for medical and biological theory, respectively. Modern medicine strongly distinguishes the impersonal disease from the patient who has the disease. Four disciplines at the margin of biomedicine are reviewed that challenge this separation: psychosomatics, placebo, alternative medicine, and geriatrics. Attention to personal goals during diagnosis and treatment is one way to bridge the gap between impersonal disease and the patient as person. But, ultimately, the impersonal biomedical disease model needs to be challenged.

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37

Spriggs, Merle. Autonomy and Patients' Decisions. Lexington Books, 2005.

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38

Szmukler, George. Challenges to the orthodoxy. Oxford University Press, 2017. http://dx.doi.org/10.1093/med/9780198801047.003.0004.

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Two comparatively recent developments in health care ethics and policy further challenge the conventional bases for involuntary treatment in mental health care. First has been the shift in general medicine over the past 50 years from ‘paternalism’ and large medical discretion to patient ‘autonomy’. Interventions require ‘informed consent’; treatment without a patient’s consent can only occur if the person lacks ‘decision-making capacity’ and the treatment is judged to be in the person’s ‘best interests’. The treatment decision of a general medical patient who has decisional capacity is respected even if it appears to be unwise. This shift to respect for patient self-determination has been largely ignored in psychiatry. The second policy development is the extension in mental health care of involuntary treatment into the community, greatly increasing the scope for the exercise of compulsion. What constitutes an appropriate level of risk to justify compulsion in the community is unclear.

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39

Veatch, Robert M., Amy Haddad und E. J. Last. Autonomy. Herausgegeben von Robert M. Veatch, Amy Haddad und E. J. Last. Oxford University Press, 2017. http://dx.doi.org/10.1093/med/9780190277000.003.0007.

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This chapter explores the basic ethical principle of autonomy and the related principles of veracity, fidelity, and avoidance of killing. The pharmacist’s role in recognizing and respecting the individual patient’s moral interests is discussed. The chapter addresses the psychological and moral meanings of the principle of autonomy and delineates the elements of a substantially autonomous decision. Circumstances are discussed when it would be morally justifiable to override the actions of a substantially autonomous person. Cases highlight the issues that arise in determining whether a person is substantially autonomous for health care purposes, those posed by external constraints on autonomy, and those that arise in consideration of overriding patient autonomy.

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40

Veatch, Robert M., Amy Haddad und E. J. Last. Mental Health and Behavior Control. Herausgegeben von Robert M. Veatch, Amy Haddad und E. J. Last. Oxford University Press, 2017. http://dx.doi.org/10.1093/med/9780190277000.003.0013.

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This chapter focuses on the special challenges of ethical problems in mental health and behavioral health settings. The basic elements of informed consent, the special problems with decisional capacity, and the right to refuse treatment are examined in the light of mental health practice. The controversy that results from various understandings and meanings of the cause and treatment of mental illness are explored. Pharmacological and medical therapies such as electroconvulsive therapy and aversive therapy are discussed, with a focus on the parties who are in a position to judge the risks and benefits of such therapies. The interests of third parties are also explored as justification for overriding a patient’s autonomy because of potential serious harm to others.

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41

Flanigan, Jessica. Medical Autonomy and Modern Healthcare. Oxford University Press, 2017. http://dx.doi.org/10.1093/oso/9780190684549.003.0007.

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Though rights of self-medication needn’t change medical decision-making for most patients, rights of self-medication have the potential to transform other aspects of healthcare as it is currently practiced. For example, if public officials respected patient’s authority to make medical decisions without authorization from a regulator or a physician, then they should also respect patient’s authority to choose to use unauthorized medical devices and medical providers. And many of the same reasons in favor of rights of self-medication and against prohibitive regulations are also reasons to support patient’s rights to access information about pharmaceuticals, including pharmaceutical advertisements. Rights of self-medication may also call for revisions to existing standards of product liability and prompt officials to rethink justifications for the public provision of healthcare.

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42

Schermer, Maartje. The Different Faces of Autonomy: Patient Autonomy in Ethical Theory and Hospital Practice. Schermer M, 2010.

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43

Chan, Hui Yun. Advance Directives: Rethinking Regulation, Autonomy & Healthcare Decision-Making. Springer, 2019.

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44

Chan, Hui Yun. Advance Directives: Rethinking Regulation, Autonomy & Healthcare Decision-Making. Springer, 2018.

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45

Kong, Camillia. Mental Capacity in Relationship: Decision-Making, Dialogue, and Autonomy. Cambridge University Press, 2018.

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46

Kong, Camillia. Mental Capacity in Relationship: Decision-Making, Dialogue, and Autonomy. Cambridge University Press, 2017.

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47

Carlin, Kathleen Anne. Autonomy and health care decision making in chronic illness. 2003.

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48

Saracino, Rebecca, Melissa Masterson und Barry Rosenfeld. The Impact of Depression on Health Care Decisions. Oxford University Press, 2017. http://dx.doi.org/10.1093/oso/9780198801900.003.0016.

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This chapter examines how depression affects health care decisions, with particular emphasis on patient autonomy, capacity, and competence for decision-making. It first considers the ethical boundaries and psycho-legal criteria for assessing decision-making capacity in the context of medical treatment decisions, attending to issues of autonomy and beneficence as well as the debate over whether paternalistic approaches have a place in our health care system. It then discusses the parameters that help define the debate over paternalism, along with the clinical challenges that accompany the assessment and implementation of these alternative approaches to health care decision-making. The chapter also reviews research exploring the impact of depressive symptoms on decision-making capacity and treatment refusal more specifically. It cites the doctrine of informed consent, the goal of which is to promote patient autonomy and rational decision-making. The chapter concludes with recommendations for a comprehensive approach to decision-making capacity assessment and directions for future research.

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49

Against Autonomy: Justifying Coercive Paternalism. Cambridge University Press, 2013.

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50

Loh, Wulf, und Janina Loh. Autonomy and Responsibility in Hybrid Systems. Oxford University Press, 2017. http://dx.doi.org/10.1093/oso/9780190652951.003.0003.

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In this chapter, we give a brief overview of the traditional notion of responsibility and introduce a concept of distributed responsibility within a responsibility network of engineers, driver, and autonomous driving system. In order to evaluate this concept, we explore the notion of man–machine hybrid systems with regard to self-driving cars and conclude that the unit comprising the car and the operator/driver consists of such a hybrid system that can assume a shared responsibility different from the responsibility of other actors in the responsibility network. Discussing certain moral dilemma situations that are structured much like trolley cases, we deduce that as long as there is something like a driver in autonomous cars as part of the hybrid system, she will have to bear the responsibility for making the morally relevant decisions that are not covered by traffic rules.

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Bücher zum Thema „Decisional autonomy“

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